DublinGazette MAY 23-29, 2019
MOTORING: The Opel Insignia Grand Sport
offers great style and design, not to mention some very impressive features, too SEE PAGE 20
SPORT
FOOTBALL: St
Anne’s crown cracking weekend with Dublin Feile divisional title. SEE P31
Find us on Keep reading, keep recycling – thank you
West Edition FREE
THE LATEST NEWS & SPORT FROM SOUTH DUBLIN COUNTY COUNCIL AREA
Agony for families as miracle drug delayed PADRAIG CONLON LOCAL TD John Curran made an impassioned plea for Health Minister Simon Harris to urgently authorise a life changing drug for local children who badly need it. He made his appeal in the Dail for the drug Spinraza to be provided for treatment of
Spinal Muscular Atrophy, a muscle-deteriorating disease which affects 26 children in Ireland. Two of those young people, Glen McHugh Farrelly and Sam Bailey, live locally in Clondalkin and Rathcoole. Spinraza is clinically effective and has been proven to work by slowing down the muscle wastage and in
many cases allowing muscle strengthening. It is an orphan drug, which means it is commercially underdeveloped and very expensive. The reason the HSE have given for not approving Spinraza, which would cost in excess of €20 million over five years, is because they do not deem it to be cost effecCONTINUED ON PAGE 2 tive.
Wait for swimming pool finally at an end
Following four decades of broken promises and false dawns Lucan is finally getting a swimming pool. The turning of the ceremonial sod on the pool site last Monday was a welcome sight to many residents who had campaigned tirelessly for a swimming pool. SEE PAGE 3