DublinGazette JUNE 13 - 19, 2019
DUBLINMAGAZINE: It’s an Irish summer
out there – the rain confirms it – but you’ll find plenty of sunny content inside! SEE PAGE 13
West Edition FREE
THE LATEST NEWS & SPORT FROM SOUTH DUBLIN COUNTY COUNCIL JANUARY 4-10, AREA 2018
SPORT SOCCER:
Peamount United hit Limerick for six to bounce straight back into form in the Women’s National League. SEE P28
Rising to the Challenge for Charity: Dubliners from Rathfarnham, Rathcoole, Terenure, Tallaght, Walkinstown, Finglas and Balrothery recently conquered Ireland’s Four Peaks in a company challenge to raise €68,456 for four Irish charities. The locals were part of a team of 22 colleagues from Grafton Merchanting ROI. The money raised will go to four Irish charities including Focus Ireland, CMRF Crumlin, Pieta House and Cystic Fibrosis Ireland, which were carefully chosen by colleagues at Grafton Merchanting ROI. Pictures: Robbie Reynolds
TRAVEL
EXPLORE SOME OF MEXICO’S MANY DELIGHTS PAGE 18
Joy as miracle drug gets the green light PADRAIG CONLON
Find us on Keep reading, keep recycling – thank you
LOCAL parents who never gave up hope on a brighter future for their children have received the most wonderful news. This is because the HSE will fund the drug Spinraza for treatment of spinal muscular atrophy, a muscle-deteriorating disease which affects 26 children in Ireland. Two of those young people, Glen
McHugh Farrelly and Sam Bailey, live locally in Clondalkin and Rathcoole. Their families, along with the families and friends of other children living with SMA, have campaigned tirelessly for the drug’s approval and this was acknowledged by Minister for Health Simon Harris on Tuesday morning. “I know how long the journey has been for families and I am very glad they will now have access to the drug,” he said.
The HSE said it had approved access for children with SMA Type I, II or III on “an exceptional and individualised basis”. “The recommendation is to approve access for children under 18 years with genetically confirmed SMA Type I, II or III, in accordance with the controlled access criteria recommended by the Rare Diseases Technology Review Committee,” they said. CONTINUES ON PAGE 2
Warning on scam calls
RESIDENTS have been warned to be wary of phone scammers tricking people into handing over personal information. The warning comes from TD Seán Crowe who says an increase in fraudulent calls to local residents is a “worrying development”. PAGE 3
Volunteer work recognised A CLONDALKIN teacher was among five Dubliners who were recently rewarded for helping people in the world’s poorest countries. PAGE 3