May 2014 by Sally M

The staff magazine of Great Ormond Street Hospital for Children and the UCL Institute of Child Health

Ellieâ&#x20AC;&#x2122;s second chance Ellieâ&#x20AC;&#x2122;s parents tell us how a heart transplant at Great Ormond Street Hospital saved her life, see page 12

May 2014

Meet the Interventio na Radiology te l am! See page e ight

Welcome from the Interim

Do you know someone amazing at Great Ormond Street Hospital? Why not nominate them for an Annual Staff Award?

STAFF AWARDS

Closing date for nominations: Saturday 10 May 2014

Wednesday 11 June 2014 | Kennedy Lecture Theatre 5–7pm Improvement Champion • Colleague of the Year • Team of the Year • Leader of the Year Staff Development Champion

Regulars In the news

Word on the tweet

Julian Nettel

GO Create!

Learnabout

Welcome to May’s edition of Roundabout, which features a wide variety of articles including two focusing on education.

From the archives

Noticeboard

At Great Ormond Street Hospital, we often speak about the work we do to improve the quality of care for our patients and their families and the research we undertake with our partners at the UCL Institute of Child Health to find new treatments and cures. However, we do not always speak as often, or as loudly, about the important role education, learning and development plays in improving the outcomes and experience of our children and young people, and their families. Roles like that of Learning and Innovations Lead, Cat Oxley, highlighted in this magazine, are crucial in making sure that we support all our staff in their development and ensure they are equipped with the most up-to-date knowledge, skills and expertise to fulfil their roles and drive improvements.

2014

Child and Family Award • Volunteer of the Year •

Chief Executive

Contents

And just as we strive to provide the highest possible standards of care to our patients, we must also strive to offer the highest quality training to our staff. This is exactly what the developing role of junior doctor education leads, also featured this month, is aiming to do. I am also very pleased that our new Director of Medical Education, Dr Quen Mok, will be working with our junior doctors and Co-Medical Director Cathy Cale, to look more broadly at the structures we have to deliver education to support our junior medical staff and also ensure their voices are heard and valued.

Features Making an impact Professor Chris O’Callaghan talks about his team’s research into a rare respiratory condition

Meet the Interventional Radiology team Meet some of the staff from the Interventional Radiology Service and find out what they do

Ellie’s second chance 12 When Ellie’s heart condition became critical, she was rushed to Great Ormond Street Hospital (GOSH), where she received a life-saving operation A day in the life Cat tells us what a typical day is like as a Learning Innovations Lead in the Learning and Development team

Behind the camera We take a look at the GOSH ward videos that have been produced by the Digital team and the patient presenters who weren’t afraid to go in front of the camera

The Patricia Lewisohn Award for Excellence in Customer Care The Gwen Kirby Award donated by The Nurses League

How to nominate Anyone can nominate in one of the following ways: • Email staffrecognition@gosh.nhs.uk

Please always remember to say who you’d like to nominate and why. Make sure you give us plenty of information about • Complete an online nomination via the Staff Awards pages of the staff intranet or by going to www.gosh.nhs.uk/staff-awards what makes your nominee specially deserving of the award. Remember you can nominate an individual or team each • Fill out a printed nomination card and drop it into one month for a GEMS (GOSH Exceptional Member of Staff) award. of the boxes located at the hospital reception and at the All nominees from monthly GEMS will be considered for entrance to the Lagoon. the Annual Staff Awards!

The copy deadline for the June edition is Wednesday 7 May. Please note that submitting articles does not guarantee a place in the next issue. Submissions should be sent to publications@gosh.org Editor Sally Mavin, ext *643042 Email: sally.mavin@gosh.org Designer Sharon Leese, ext *643100 Contributors Louise Abbott, Corinne Clarke, Mark McKenzie-Ray and Alice Woodward Printer Jigsaw Colour, www.jigsawcolour.co.uk

Charity logo Great Ormond Street Hospital Children’s Charity. Registered charity no. 235825.

In the news Two Great Ormond Street Hospital (GOSH) families and Paediatric Oncology Consultant Dr Judith Kingston were featured in an in-depth article in The Times Magazine, looking at the rise in childhood cancer and questioning why it affects 20 per cent more boys than girls. Dr Kingston discussed the trend towards personalised medicine, which is individualised for each child’s particular cancer. GOSH’s pioneering work in gene therapy Professor Adrian Thrasher was profiled in The Sun, with Consultant Immunologist Professor Adrian Thrasher describing its growing importance as an alternative to bone marrow transplants for immunodeficient patients. Whereas finding a viable match for bone marrow donations can be problematic, gene therapy allows clinicians to create the missing gene responsible for a patient’s condition in the laboratory, and then insert it into the patient’s bone marrow. Two patient safety projects at GOSH have been shortlisted for this year’s BMJ Awards. The Trust’s ‘zero harm, no waits, no waste’ programme, which has seen the level of patient harm at the hospital fall by one-third since its launch in 2007, has been nominated for the 2014 Patient Safety Team Award. Meanwhile, a pilot programme encouraging families on Eagle Ward to report safety concerns in order to make the hospital safer, has also been shortlisted for the 2014 Innovation in Healthcare Award.

NIHR Senior Investigator Awards Congratulations to Lyn Chitty, Neil Sebire and Phil Beales from the National Institute for Health Research (NIHR) Biomedical Research Centre (BRC) at Great Ormond Street Hospital and University College London on receiving NIHR Senior Investigator awards. NIHR Senior Investigators represent the country’s most outstanding leaders of clinical and applied health and social care research. The BRC now has six NIHR Senior Investigators in the faculty. An independent expert panel advised on the appointments. These are made according to several criteria including: • quality and volume of internationally excellent research • its relevance to patients

Gamelan at GOSH Festival This month’s social media highlights from Great Ormond Street Hospital’s (GOSH) Facebook and Twitter accounts.

My son spent several days at the GOSH school when he was poorly. Great place. Lovely normality for children who are facing a tough time. I will never, ever forget the support that the wonderful chaplains gave to my husband and I during our son’s time at GOSH and following his death. The work and support of the entire Chaplaincy team is a part of GOSH that I feel is invaluable. My first Mother’s Day was spent on PICU. It was so touching to find a little card for me from Olivia in her incubator that the nurses had arranged. There was one by each child all ready for their mummies. So happy to say that we are now celebrating our third all thanks to GOSH.

• research leadership including contribution to NIHR • engagement of patients and the public, and engagement of healthcare policy makers and planners with their research.

Following a series of workshops at Great Ormond Street Hospital (GOSH), artwork created by patients (pictured below) is being exhibited at the Foundling Museum in their newly refurbished Introductory Gallery. The project was inspired by the cockades (a circular or oval knot of ribbons, usually worn on a hat) and tokens in the museum collection, which mothers left with their babies when they were admitted to the Foundling Hospital. During the workshops, children made rosettes and printed them with their own ideas and messages for the future.

I was in as a baby for three months and all was hanging in the balance, but thanks to GOSH I’m 22 and playing ice hockey. Always thankful to you x

Join the conversation Facebook: facebook.com/ GreatOrmondSt Twitter: @GreatOrmondSt

We will be offering free workshops for staff, patients and families to come along and have a go at playing the unique collection of instruments, ranging from gongs to bamboo flutes. All ages are invited to take part and no musical experience is necessary. Drop-in shadow puppet-making sessions will be taking place throughout the week for those who wish to try their hand at some arts and crafts. The Lagoon restaurant will also be providing a special Indonesian menu, with opportunities to get involved in cooking demonstrations of Asian street food.

I was recently a patient on the Mildred Creak Unit. It has helped and supported me so much. Thank you so much. You have made me healthy again!

• its relevance to the public • impact on improvements in healthcare and public health

GOSH exhibition at the Foundling Museum

This month, GOSH will be hosting a gamelan – a set of Indonesian percussion orchestra instruments – to accompany a week-long festival of Indonesian music, crafts and food. The gamelan (pictured below) is on loan from the Southbank Centre.

The workshops will take place on 12–17 May 2014 in the Lagoon. For more information or to sign up to one of the staff workshops, please email gocreate@gosh.nhs.uk

Participants and families will be invited to see the exhibition and the new galleries at the Foundling Museum for free. The GOSH Staff Culture Club will also be visiting the museum later in the summer. To join the Culture Club mailing list, please email gocreate@gosh.nhs.uk For information on visiting the Foundling Museum at any other time, go to www.foundlingmuseum.org.uk/ visit-us/

GO Create! is funded by Great Ormond Street Hospital Children’s Charity.

Making an impact: respiratory research and the Centre for Research into Rare Disease in Children Acute and chronic respiratory infections are one of the major causes of illness and death in children. It is essential that we improve our ability to diagnose the underlying causes of respiratory infections and develop new therapeutic strategies to treat infection. Chris O’Callaghan, Professor of Respiratory and Paediatric Medicine at the UCL Institute of Child Health (ICH) and Consultant at Great Ormond Street Hospital (GOSH), is leading research in this area. Professor O’Callaghan’s research has resulted in the development of new diagnostic methods for children with primary ciliary dyskinesia, a rare respiratory condition that, unless diagnosed early, can lead to severe lung disease. The condition affects the tiny hair-like structures lining the body’s airways: “Imagine the inside of your nose, sinuses and the airways in your lungs that you breathe through. Growing out of the surface of these areas are millions of microscopic hairs called cilia. Each hair beats over a million times a day to clear mucus and the particles, bacteria and viruses that we inhale. Their action reduces our risk of developing infection and lung damage,” explains Professor O’Callaghan.

several previously unrecognised forms of the condition. “By having a diagnostic service in the UK, children affected by primary ciliary dyskinesia can be diagnosed earlier, and treatment started to help prevent lung damage,” he says. Over a third of children with chronic chest infections have no underlying diagnosis, and it is likely that a number of as yet unrecognised rare diseases are responsible. Professor O’Callaghan and his team are creating a biobank of samples from patients with respiratory conditions to help with this problem. “Collecting and growing samples from patients in the laboratory allows us to better understand what is going wrong,” says Professor O’Callaghan. “We can use this new information to develop new diagnostic tests and treatments for the children seen at the hospital. This type of research capacity is vital to develop a patient-focused approach to research. The Centre for Research into Rare Disease in Children will help to accelerate the discovery of these conditions.”

Image: respiratory cilia

antibiotic resistance and why patients in intensive care suffer from life-threatening hospital-acquired infections. “We have discovered that high levels of stress hormones can make one of the bacteria that causes life-threatening pneumonia on intensive care much more dangerous and resistant to antibiotics,” he says. Professor O’Callaghan is also researching alternative therapies to antibiotics. “There is great concern about the increasing resistance of bacteria to antibiotics,” he says. “We are exploring the use of viruses called

The work of Professor O’Callaghan’s team has enormous potential to transform clinical practice and improve outcomes for children with respiratory conditions.

The Centre for Research into Rare Disease in Children One in 17 people will suffer from a rare disease at some point in their lives. Thirty per cent of these will die before their fifth birthday. That’s why Great Ormond Street Hospital Children’s Charity is currently raising money to create a Centre for Research into Rare Disease in Children, bringing together clinical and research expertise from GOSH and the ICH.

“During a bad cold, the cilia in healthy individuals stop moving and the mucus builds up, which is difficult to clear. In children with primary ciliary dyskinesia, their cilia are in this state from birth – they don’t move in the way they should. The build-up of mucus leads to chronic respiratory infections and inflammation of the lungs, nose and sinuses that is difficult to treat. This leads to progressive, severe lung damage with occasional children requiring lung transplantation.”

This world-leading centre of excellence will tackle some of the most challenging scientific questions in rare disease research, allowing us to more accurately diagnose, treat and cure children with rare conditions.

Professor O’Callaghan’s research led to a successful bid to the NHS National Commissioning Group to develop the first national diagnostic service worldwide for primary ciliary dyskinesia. This has resulted in an increase in the number of children diagnosed and the discovery of

Professor O’Callaghan’s team are just one of the clinical specialties that will benefit from the multidisciplinary environment in the new centre, offering much-needed space, equipment and facilities for teams to focus on core research areas.

At the same time, Professor O’Callaghan also recognises some of the more immediate challenges faced in respiratory infection research, such as the rise in

bacteriophages, which attach themselves to bacteria and kill them. Unlike antibiotics – which kill all sorts of bacteria, including the ones in our bodies that help us – bacteriophages are very specific, just killing the bacteria we want to kill. At this stage, the research is in cells grown in the laboratory, but the aim is to go to clinical trials in patients in the future.”

GOSH is holding a public consultation during early summer on plans to build the centre on the site of a disused building close to the hospital. We will use a variety of consultation methods, including publicity, meetings, briefings and a public exhibition. The aim is to help our local residents, businesses and the GOSH community understand any impact on them and the benefits the centre could offer our patients and their families and carers. The consultation will provide opportunities for people to raise their queries with the Redevelopment team directly and allow us to take their views into account before submitting a planning application later in the year. More information about the consultation and how to get involved is available at gosh.nhs.uk/about-us/ redevelopment/

Meet the team: Interventional Radiology The Interventional Radiology (IR) Service at Great Ormond Street Hospital (GOSH) offers a comprehensive range of procedures for children from newborns to 16 years of age. The team uses minimally-invasive image-guided procedures to diagnose and treat diseases in nearly every organ system. The IR Service performs around 3,100 procedures each year for patients with hundreds of different conditions.

Clare McLaren Clinical Specialist Radiographer since 1998 • A key aspect of my role is running the X-ray equipment. I am involved with taking the pictures needed for a range of different tests, but I also do some procedures myself and work closely with other teams around the hospital, including the Tracheal team and Renovascular Hypertension team.

Craig Gibson Consultant Interventional Radiologist since 2013 • I came halfway around the world to GOSH from Australia, because this is a centre of excellence and really is my dream job. There aren’t many hospitals around the world that practice cutting-edge interventional radiology like GOSH.

• In my role you need to be flexible. In order to get the right image for the radiologist you need to know which picture

they need, exactly how the equipment works and you need to be able to adapt quickly to changing situations. All the children here are different so you can’t just go to a textbook and look up a procedure – you need to be flexible and know what to do in an emergency. • I didn’t actually plan to work for GOSH but once I got a job here I stayed because I loved it – that was 16 years ago!

• The hospital sees a lot of chronically unwell children, many of whom are not well enough for open operations. We offer an alternative to some procedures, which is minimally invasive, and hopefully aids in a speedy recovery. • The large proportion of children with rare illnesses and syndromes presents a unique challenge for the team. Sometimes it is difficult to know the extent of the problem until we’re already into the procedure. We need to be prepared for any eventuality and have plans B, C and D ready to go. • The team is brilliant. Even though we are all interventional radiologists, my colleagues have different sub-specialty interests and other consultants will often come into the hospital outside of their working hours to assist in procedures and offer their expertise. • Something people may not know about me is that I was born with a defective heart valve, so I’ve had open-heart surgery a couple of times myself. I think this helps me to empathise with what the patients and families have to go through.

Gillian Cheyne Superintendent of Interventional Radiology and Cardiac Angiography since 2007 • My role involves running the IR department and cardiac catheterisation laboratory from a radiographer’s perspective. I make sure we have the best team in place and that everybody is properly trained and happy within their positions – it’s quite a diverse role. • I think the key to our team is the diversity. Everyone is from a different background with different personalities, but we have one aim in common, to give the patient the best possible experience, which allows us to work really well together.

Jakki Brandon

Alex Barnacle

Department Sister since 2009 • In our department we run two operating lists each day and the nurses have a very varied role, scrubbing in, circulating patients and recovery from anaesthetic. In most cases we use general anaesthetic, but some procedures are done under local, so we get to interact with the patients and families. • We’re a relatively small team but we do a large number of procedures, many of which are very specialised. I think we might be a mystery to some departments around the hospital, but we actually support every department and every specialty. There’s a huge variation in what we do, which requires a thorough understanding

Consultant Radiologist since 2003

of how the hospital works and the needs of different patient groups.

• I originally came to GOSH as part of my training on rotation and decided to stay. My role as a consultant radiologist involves regular all-day operating lists in IR, managing the clinics, seeing patients with vascular anomalies and much more! We’re a very busy team.

• My fondest memory of working at GOSH was my very first day. I remember being excited at all the new challenges and the new people I would be working with. I also remember helping one particular patient who was nervous about using Entonox® gas instead of going under general anaesthetic. I went through everything with him, chatted to his mum, and although he was nervous at first, it went really well and he was chuffed. It was a great moment.

• The IR team plays a vital role at GOSH. We are involved in the care of nearly every patient who comes through the hospital, whether it’s to do with imaging, helping to make a diagnosis through biopsies, or supporting the treatment of patients from

Nicole Grossman Healthcare Assistant since 2011 • My role involves everything and anything from making up sterile trolleys for procedures, unpacking deliveries, assisting in recovery and taking parents back up to the ward. I also stock up, circulate in the laboratory, assist if it’s a non-sterile procedure, take people to the pharmacy and play with the siblings if the child has been put to sleep inside the laboratories. • It’s my dream to become a nurse so it was an easy

decision to come to GOSH. I have got a four-year-old myself, so my heart skips a beat with children. It’s so great to see the work that gets done here. • The IR team is important because the kind of care that we offer here is noninvasive. It means that the recovery time for patients is better, their stay in the hospital is shorter, it’s better for them and less costly for the hospital.

other teams, for example by putting in a Hickman® catheter or feeding tube. We treat a lot of patients referred directly to us, as well as patients on behalf of other teams. • It can be challenging because we see a lot of really sick children – it’s a bit like A&E at times! We offer an emergency service so the IR team need to be highly skilled, have great scientific knowledge and be very flexible. • The patients at GOSH really make my job, they’re just fantastic.

Shareen Dadla Senior Administrator since 2013 • My role involves arranging slots for patients coming into IR. As soon as we get a request form, we work it into the diary. • I chose to come to GOSH because it’s a good environment. It’s a children’s hospital and the experience for patients and staff is so positive. • The key to our work as a successful team is good communication between the members. Everybody needs to be kept informed of the different patients coming into the Unit each day and any special requirements we need to make for them.

Giving Ellie a second chance To look at Ellie now, it’s hard to believe that two years ago she was in a coma being rushed to Great Ormond Street Hospital (GOSH)

In December 2010, when Ellie was 19 months old, she suddenly didn’t want to walk. “We thought walking had just lost its novelty,” says mum Debbie. “But Ellie also seemed to have lost energy.” A visit to the GP revealed nothing of major concern, but by New Year, Ellie had begun to get distressed and her breathing became laboured. After two more visits, the GP recommended taking Ellie to the local hospital, where it was initially believed that she had a chest infection and was dehydrated.

“We were told she had a one-in-three chance of making a full recovery, a onein-three chance of being on medication for the rest of her life, and a one-inthree chance of needing a transplant.” Ellie stayed overnight, then after further tests her parents were told she had dilated cardiomyopathy, a heart condition thought to have been caused by a virus. “We hadn’t even heard of it,” says dad Simon. “We were told she had a one-in-three chance of making a full recovery, a one-in-three chance of being on medication for the rest of her life, and a one-in-three chance of needing a transplant. We were clinging on to the first.” Ellie was transferred to Oxford’s John Radcliffe Hospital and given various medications. Twelve days later, she was discharged. “She had good days and tired days, but we were thinking maybe it was not so bad,” says Simon. “But then she started showing the same symptoms again.” Ellie was in and out of hospital as her medication was adjusted, but it soon became clear that she wasn’t responding well. It wasn’t long before her condition became critical and she was put into a coma to travel by ambulance to GOSH. She was placed on the list for a heart transplant on the same day.

that performs the function of a real heart. “Fitting it was a risky operation and Ellie was very weak at the time,” says Debbie. The machine was fitted successfully but being attached to it meant that Ellie couldn’t leave the hospital. Thankfully, her parents were able to stay in nearby accommodation funded by the charity. “I don’t know how we would have managed otherwise,” says Simon. “The hospital care was unbelievable.” After five months, during which time Ellie suffered a stroke, an offer of a heart was made abroad and the transplant team flew out to inspect it. While they made their way back, Ellie’s chest was opened – the longer the heart was out of the body, the harder it would be to start it. After a seven-hour operation, Ellie was ready to be sewn up – but then her heart rate plummeted and her chest needed to be reopened. “Two days after it was closed again, Ellie was taking her first steps!” says Debbie. “And after two weeks, we were home.” Five weeks later, Ellie contracted a virus from the donor heart and spent a month at John Radcliffe Hospital. The virus was at risk of damaging her eyes, but tests came back clear. Then, at a routine check at GOSH in mid-December 2011, doctors picked up that the virus had reactivated. Ellie’s peripheral vision had been damaged, but Debbie says: “If she hadn’t had the eye test that day, a month later she could have been blind.” After four weeks of treatment, including a blood transfusion on Christmas Day, Ellie could go home. “She’s been really well,” says Debbie. The future is unpredictable, but Simon says: “She’s been given a second chance. The hospital – and the donor family – saved our daughter’s life, so they will always have a very special place in our hearts.”

Until the transplant could take place, she would need a Berlin Heart – a machine as big as a filing cabinet

A day in the life of a Learning Innovations Lead

Cat Oxley is the Learning Innovations Lead in the Learning and Development team at Great Ormond Street Hospital (GOSH). She started working at the hospital 12 years ago and is based in York House.

Sea to city “I live near the sea in Brighton, a refreshing change of scenery from working in London. I grab an Earl Grey tea and protein bar on the go and jump on the Gatwick Express to Victoria. On a good day this takes 90 minutes, and having the iPad lets me check emails and plan the day ahead – productive commuting.” An evolving role “I started working at GOSH in the Cochlear Implant team, did a short stint in New Born Screening and then spent 18 months with the Chief Nurse and Director of Workforce. Since then

I’ve held several different positions, including Postgraduate Medical Education (PGME) manager and Blended Learning Lead, giving me a great understanding of how the organisation works. Being the Learning Innovations Lead means reflecting on how innovation, technology and blended learning can support staff development at GOSH. It’s also about creating an environment that drives innovative learning initiatives.

Each day is different “Some of my days involve lots of meetings. Then there are days when I get the chance to use my creative skills and do hands-on design. At the beginning of a project, I like to bring my team and the staff we are developing it for together, and create ideas collaboratively. Projects range from shooting videos for back care to interactive drawings for the Equality, Diversity and Human Rights module.”

“My role is really interesting and varied. In 2006, my team consisted of just me and Alkida Kamberi. At the time, when we launched GOLD (GOSH Online Learning and Development) portal it only had a couple of online modules. Now we have 40 modules accessible to all staff. I wouldn’t have been able to progress with new learning initiatives and the use of digital technology for learning if it wasn’t for the support of my boss, Geoff Speed, and my team, which has grown to four and is very committed.”

“Better educated staff are ultimately going to provide better care for our patients and families, and build on the values of GOSH.”

Enabling learning for all staff “A key part of my role is progressing and enabling digital and blended learning for all staff within the Trust. The team and I built GOLD as a central educational resource and continue to evolve and improve this. I think this is really important, because better educated staff are ultimately going to provide better care for our patients and families, and build on the values of GOSH. There are loads of aspects we can work on, including patient safety, people feeling confident in themselves and their skills, and supporting better education and learning across the Trust.”

Getting to know people “What I really love is working with people. I love working on different projects because I get to work with a broad range of staff within the Trust. I really enjoy that kind of connection, especially learning about the specific area they work in. “One of the key things for the future is to find out the needs of every department so we can help improve their knowledge and skills. This future planning initiative would enable GOSH to always lead on developing staff and raising the standard of patient care. Within these changing times I really embrace the need to invest in our greatest resource – our staff.”

A great achievement “In November 2013, we launched the first ever GOSH Learning Innovations Conference and managed to secure 10 inspirational speakers within the organisational, developmental and learning fields. The well-respected CEO of Learning Technologies, Don Taylor, was the facilitator, and gave the keynote speech. For us, that’s something to be really proud of. As a team and a department, everyone pulled together to make the whole day work. We had over 50 attendees and we received some terrific feedback.” What I like most “I think I am very lucky in my role, because I get to do so many different things. I always feel like there is more to learn and that’s a good motivator to keep improving and striving to achieve the best. One thing I really aspire to is to develop and produce more engaging and collaborative learning that is really going to help, inform and develop people. I think that’s a real challenge.” The end of the day “After the journey home, I’m usually quite exhausted so often just cook and watch TV. I have just started a Pilates class, which is already making me feel great. I love living in Brighton, largely because of the seafront, the shopping and the nightlife.” GOLD is funded by Great Ormond Street Hospital Children’s Charity.

From the archives Learnabout

Each month, we bring you a selection of images from the hospital’s archives.

Taking the LEaD on education improvements Junior doctors are being encouraged to help improve their colleagues’ learning and development, raising the standard of teaching and education for trainees at Great Ormond Street Hospital (GOSH). The Postgraduate Medical Education (PGME) team is developing the role of junior doctor education leads within each clinical area to help improve the quality of training across GOSH. The role will be integral to developing links between PGME and trainees at the hospital. The aim is for each specialty to have a junior doctor to co-ordinate educational activities within their department and lead on education improvement projects. Junior doctors who take on these roles will be responsible for: 1. Sharing information on current educational activities – they will be involved with distributing information on regular educational events to increase access to all junior doctors. 2. Co-ordinating specialty-based teaching for Member of the Royal College of Paediatrics and Child Health (MRCPCH) preparation – they will be a point of contact for PGME and junior doctors preparing for MRCPCH to provide information on teaching opportunities and co-ordinate bedside teaching. 3. Developing the clinical teaching within your department – they will be responsible for formal clinical teaching, ward teaching opportunities and sharing lessons of the week. This is an excellent opportunity for trainees with an interest in education, or for those who would like to

take on a leadership role within their department. Not only will the role provide them with a platform for personal professional development, they will also be helping to raise the standard of education for all trainees at GOSH and provide a link for MRCPCH clinical teaching. Full support will be provided by PGME, including additional training in leadership and quality improvement. The team has designed a bespoke course called ‘Developing Leadership through Simulation and Practice’ that will equip participants with the knowledge, skills and techniques needed to become an exceptional developer of others. Taught through interactive sessions, the course aims to leave junior doctor education leads feeling motivated and confident to make a positive impact on their roles within the NHS. Ongoing follow-up, coaching and support will also be available from PGME. If you are interested in taking on this role within your department, or would like to support the development of this role, please contact PGME for more details. Email joanne.may@gosh.nhs.uk or jenny.hibbert@gosh.nhs.uk

This image, from 1914, shows a patient having an early X-ray. The hospital’s Electrical department opened in 1902, and X-rays soon became an important part of routine diagnosis and treatment at the hospital.

Tadworth Court in Surrey was run by Great Ormond Street Hospital between 1927 and 1983 as a convalescent home and country hospital. Donkeys were a regular feature on the estate, and this picture, from the late 1950s, shows how patients enjoyed making a fuss of them. Image © Nursing Times

Behind the camera

Kingfisher Ward Eleven-year-old Willow has been coming to GOSH since she was born. She shows us round our gastroenterology ward, and introduces us to one of the staff nurses.

The Digital team are producing a series of short videos about the different wards at Great Ormond Street Hospital (GOSH). Each 90-second video is narrated by a patient and aims to provide parents and visitors with an informative, engaging and reassuring snapshot of a ward. Here, we introduce some of the patient presenters who have taken part.

Willow’s mum Charlotte said: “She so enjoyed the day and it’s something she will never forget.”

Bear Ward

You can watch the Kingfisher Ward video at www.gosh.nhs.uk/kingfisher

The patient presenter for Bear Ward is Jade, who came to GOSH for a heart transplant in 2011. Now 15, Jade comes back to the hospital for regular checkups. She is also a member of the Young People’s Forum.

Koala Ward Louis, age nine, is a familiar face on Koala Ward. He’s been coming to GOSH since he was a baby because he was born with hydrocephalus. In his ward video, Louis shows off some moves and introduces us to one of our student nurses.

Jade’s mum Julie said: “She so enjoyed the whole experience. We are only too pleased to have the opportunity to pay something back.” You can watch the Bear Ward video at www.gosh.nhs.uk/bear

You can watch the Koala Ward video at www.gosh.nhs.uk/koala

Squirrel Ward

Lion Ward

Bill, age nine, came to GOSH to have surgery on his bladder. In his video, he shows us round Squirrel Ward and introduces us to Play Specialist Lucy and Clinical Nurse Specialist Helen.

Seven-year-old Astrid came to GOSH three years ago because she had leukaemia. She shows us round Lion Ward and tells us about the different facilities available to parents. Astrid also shows us the complementary therapy room, where patients can come for a massage.

You can watch the Squirrel Ward video at www.gosh.nhs.uk/squirrel

You can watch the Lion Ward video at www.gosh.nhs.uk/lion

Peter Pan Ward Grace, who’s nine, came to GOSH to have a tracheostomy when she was three months old. She tells us about the different beds in the ward, and shows us the playroom.

The ward video project is being rolled out to include our other wards. You can watch some of the other completed videos at the following links: Bumblebee Ward: www.gosh.nhs.uk/bumblebee

Urodynamics Day Care: www.gosh.nhs.uk/urodynamics

Eagle Ward: www.gosh.nhs.uk/eagle

Walrus Ward: www.gosh.nhs.uk/walrus

Elephant Ward: www.gosh.nhs.uk/elephant

For more information about the ward video project, or to share any feedback, please email the Digital team at webcontent@gosh.org

Rainforest Ward: www.gosh.nhs.uk/rainforest You can watch the Peter Pan Ward video at www.gosh.nhs.uk/peterpan

Sky Ward: www.gosh.nhs.uk/sky

GOSH noticeboard Research awareness week events MONDAY 19 MAY Lung Function Unit open afternoon

Lung Function lab, Walrus Clinical Investigation Unit, Level 1 Morgan Stanley Clinical Building | from 2pm

TUESDAY 20 MAY International Clinical Trials Day celebrations The Lagoon | all day

Activities for patients

Outpatients, Level 1, Royal London Hospital for Integrated Medicine | from 11am

Seminar: A day in the life of research – The Somers Clinical Research Facility

The Lagoon | 3pm

WEDNESDAY 21 MAY Posters showcasing research funded by the Biomedical Research Centre

The Lagoon | all day

12 MAY

Frozen

Captain Phillips

(U) – 6.15pm

(12A) – 8pm

t u o b a d n a t Ou Listen

WEDNESDAY 21 MAY Research: learning cool stuff!

Various locations

Seminar: ethics and research – Professor Faith Gibson

See

The Children’s Hospital School at Great Ormond Street and UCH, Level 2, Southwood Building | 11am

Seminar: Involving patients and the public in research – Dr Erin Walker

Covent Garden May Fayre and Puppet Festival

Ground Floor Lecture Theatre, Weston House

St Paul’s, Covent Garden

Multi-faith festivals 1 MAY

14 MAY Wesak or Buddha day Buddhist

FRIDAY 23 MAY Seminar: Our research at GOSH – Dr Julian Hughes

23 MAY Declaration of the Bab Bahá’í

Individual award: Leon Hinton, Workforce Planning Manager in the HR department Team award: The Rheumatology team Nominate someone for a GEMS award!

If you think an individual or team should get wider recognition, drop an email to staffrecognition@gosh.nhs.uk providing as much information as you can about why they’re a Great Ormond Street Hospital GEM.

Eat and drink

17–18 MAY

London Pet Show

29 MAY Ascension of Bahá’u’lláh Bahá’í

Earls Court

29 MAY Ascension Day Christian

Save the date! 11 JUNE 5PM

(Write i your d t in iary!)

Great Ormond Street Hospital Staff Awards

Watch

Children

£13

Adults

£17

17 MAY

FA Cup Final Arsenal vs Hull City

Kennedy Lecture Theatre, UCL Institute of Child Health

y at, witt able tre ... This k r a m e ghts and r al thou y, “A rare f origin ates curiosit o ll u f c o v and d d book a s, freedom an quirky es, The tfulnes g thou h Nicolette Jon .” e courag unday Times S

Free

Southbank Centre

Free

16–26 MAY

Flavours of India – Alchemy Festival

May Day Secular

The Lagoon | 3pm

GEMS awards winners: March

Free

11 MAY

The Lagoon | 3pm

THURSDAY 22 MAY Scientific Research at GOSH: the roles of chocolate, coconuts and bubbles!

10 MAY

Eurovision Song Contest

The Children’s Hospital School at Great Ormond Street and UCH, Level 2, Southwood Building | 11am

The Lagoon | 3pm

Free film show

Various locations

Free

Read Rooftoppers by Katherine Rundell Winner of the Waterstones Children’s Book Prize 2014

o r a j n a m i l Ki trek 201 Join us on a breathtaking challenge

Last word

Main entrance reopens

Mental health awareness

The hospital main entrance has now reopened following a redesign to make it a brighter and friendlier space.

Help us to fund cystic fibrosis research!

12-22 February 2015 Trek to the top of the highest freestanding mountain in the world and be a hero for our cystic fibrosis patients at Great Ormond Street Hospital.

In brief

p Sign u ! today

Coloured glass panels above the doors of the main entrance create an inviting and exciting first impression, helping to ease patients’ fears of visiting hospital. The main entrance canopy will also include a sculpture by glass artist Chris Wood. The artwork will recognise and celebrate organ donation and transplantation. Two sets of automatic doors have been installed to help reduce cold breezes in the reception area. The new reception counter has been designed in the shape of a boat and with a nautical colour scheme. Workstations on the reception desk allow staff to deal with multiple requests, thereby reducing waiting times and congestion. There are also designated waiting areas, a quiet zone, and interactive entertainment for children and young people. Patients, families and staff members were all involved in selecting the reception’s furniture by visiting exhibitions last year to try out seating, which has been chosen to create a comfortable and relaxing environment. Kiosks housing a 3D interactive wayfinding system will be installed, helping visitors make their way around the hospital corridors.

Visit www .gosh.org/K ilimanjaro 2015 Call 020 7239 31 64

Email challen ges@gosh.org Great Ormond Street Hospital Children’s Charity. Registered charity no. 235825.

The temporary entrance that visitors had been using since the beginning of 2013 is now closed for the refurbishment’s second phase. An alternative entrance through the Frontage Building – which will allow easier access to the outpatients clinic – will open in the autumn. It will provide an additional waiting area, outpatient facilities and potential retail space.

Mental Health Awareness Week 2014 takes place from 14 to 18 May and aims to address questions and issues around mental health problems. This month, we speak to Senior Staff Nurses Michael Woloschin, Samantha Gardiner, Laura Lowe and Amy Sharples from the Mildred Creak Unit about identifying and tackling mental health problems at work. Warning signs If you feel more stressed than usual and are struggling with tasks that were previously manageable, it could be a sign that there is something wrong. Look for a change in appetite or mood, or more frequent nausea or headaches. Stress and anxiety are also common indicators, as are changes to your sleeping pattern or struggling to sleep. Maintaining a healthy work/life balance • Talking is really important, so have regular debriefs. A space to think and discuss can help you manage stress, and will help ensure that you don’t take your work home with you. • Manage your workload. Although you have your own responsibilities, you can still delegate certain tasks. • Have strict boundaries about leaving work on time. If you cover a shift, think about what days you’re working so you don’t work several days in a row. Ensure that you book your annual leave early and spread it out during the year. • Do things that you enjoy. Sport, art and listening to music can all have a positive impact. • Eat right and get a decent night’s sleep. Finding support Talk to your line manager first to see if there is something that can be done to resolve any stress in your day-to-day role. Talk to other colleagues or visit Occupational Health. If you feel you need further support externally, you can call the hospital’s staff support service, Care first, on freephone 0800 174 319 – they offer confidential and free advice. You can also visit your GP. The Mildred Creak Unit is part of the Department of Child and Adolescent Mental Health Services, which also includes the following outpatient teams: Feeding and Eating Disorders Service, National Centre for High Functioning Autism, Parenting and Child Service, and Psychological Medicine.

d n a s t n e i t a p Staff, d e e n e w , s e i l i m a f

YOU!

We would love for you to get a team together... you could help us make it the biggest year yet! If you have any questions, please give us a call on 020 7239 3164 or email us on raceforthekids@gosh.org

p Sign u ! today

5k family fun run Battersea Park, 8 June 2014 www.raceforthekids.co.uk Great Ormond Street Hospital Childrenâ&#x20AC;&#x2122;s Charity. Registered charity no. 235825.