Emily Dolton
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How to support alternative communicators *Some participants requested that only their first names be used.
Luke has a unique genetic condition
and an undefeatable happy disposition. He will talk to anyone who shows interest and has time to chat. When Luke was a toddler, expressing his needs was challenging, so mom Vickie employed a variety of tools to help. Sign language can be a great tool for littles, but was ineffective due to Luke’s motor delays, so his parents began to look at Augmentative and Alternative Communication (AAC). AAC can involve pointing to pictures or symbols, as in the Picture Exchange Communication System (PECS). Students point to a series of pictures to string thoughts together, such as “Steven wants cookie.” Luke started out with this process, then graduated to an iPad and the Proloquo program, the tech version of PECS. The app grows with the communicator and can be personalized with favorite questions and specific needs. Luke then moved on to the Language Acquisition through Motor Planning (LAMP) program which uses neurologic and motor planning principles. Luke still uses an iPad and apps for schoolwork, but his speech has improved so much that verbal communication is the go-to at home. Some of his longtime friends use EyeGaze, a program that allows students with the greatest physical restrictions to type out words with their eyes. EyeGaze gets to know user tendencies, using predictive text to increase speed and help access search engines and social media. Ben Carey, 23, is moving into his first apartment. His sense of humor shows in the funny decorative touch to his new couch—a letterboard pillow
from Autistically Inclined. The pillow mimics the letterboard Carey uses for Rapid Prompting Method (RPM), a communication technique used by people with disabilities who cannot speak. Users spell out answers or point to simple yes or no responses. Seizures make independence challenging for Carey, but staff and family are committed to making it work. Monitors, alarms and 24/7 care are in place for safe sleeping. “I have a new voice and a new unit of senseis making it possible,” he spells. Carey loves all aspects of his newfound freedom, but “Making memories with loved ones is my priority,” he adds. Helping Carey transpose spelling into print are Celina Viloria, owner of Builders of Eloquence and Engagement, and the staff at Colmena Academy, a nonprofit school for nonspeaking communicators. Viloria was a special education attorney whose quest to support her son led to a trip to Texas to learn from Soma Mukhopadhyay, the creator of RPM. When Viloria returned, she searched for a local RPM practitioner to help. Unable to find steady support, she left a successful law practice to become a teacher. Viloria’s and Mukhopadhyay’s sons have two things in common: 1. At one time, they were assumed to be unintelligent, and 2. They surpassed every expectation anyone ever had of them as disabled learners and communicators. Julián Camacho, Viloria’s 15-year-old, has written a book, Autistic & Awesome: A Journal from the Inside, and is on track to attend college with supports. According to Viloria, perception is
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everything. IQ tests are motor-based— children with motor-planning issues can’t be tested by traditional methods. “It’s unfair for people with motor challenges. It’s surprising how much we assume about a person from the way they move,” she says. Local school psychologist Jessica Coleman says that in order for standardized testing to be judged, the same standards must be upheld each
