enCourage December 2014

INSPIRED TO GIVE. INSPIRED TO HEAL. Sanford Health Foundation Fargo Summer 2011 Sanford Health Foundation Sioux Falls December 2014

Heineman Family

inspiring the

spirit of giving

Construction begins on

Meet the

Children’s Miracle Network Champion

Edith Sanford Breast Center Gift of Time

– Jordyn’s Story

Greg and Phyllis Heineman, center right, and their family.

Inspiring

the spirit of philanthropy

This past winter, the Heineman family of Sioux Falls quietly created a $250,000 endowment to support breast cancer research through the Edith Sanford Breast Foundation at Sanford Health.

Their intent initially was to keep the gift anonymous.

“We didn’t want attention,” Mike Heineman said of his family. “We wanted to keep the focus where it belongs, which is the potential of Edith Sanford.”

But they soon realized they could do more for the cause by embracing their gift as a way to engage and inspire others about the power of philanthropy.

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“We thought we could spur some more giving by being more public,” said Heineman. “We’ve seen the impact of giving to Sanford by a lot of good people over the years, and we wanted to be a part of that. We’re following in the lead of others, and hopefully, we can inspire others to follow our lead.”

The recent gift is just the latest in the Heinemans’ notable legacy of investing in the future of Sioux Falls.

Greg and Phyllis Heineman raised their three sons, Robb, Mike and Nick in town, where Greg is owner of Williams Insurance Agency and Phyllis has a long record of public service in the state legislature.

The family also owns the Look’s Market and the Sioux Falls Skyforce basketball team, a longstanding partner of Sanford Health.

When the team moved to the Sanford Pentagon for the 2013-2014 season, Heineman says the relationship became even stronger. The family felt more connected to Sanford’s mission and had more opportunities to learn about the organization’s research initiatives. They were especially impressed with work supported by the Edith Sanford Breast Foundation.

“We jumped at the opportunity to be a part of Edith Sanford, a part of something revolutionary,” Heineman said. “Just hearing about what they’re doing and the actual strides they’re

Construction begins on Edith Sanford Breast Center Sanford Health broke ground on the new state-of-the-art Edith Sanford Breast Center this fall. The threestory, 48,000-square-foot facility on the campus of the Sanford USD Medical Center will combine research and clinical care for women across the region.

“As our patient and family requests and needs continue to grow, it is important we explore methods to take advantage of innovations and advances in cancer care,” said Paul Hanson, president of Sanford USD Medical Center. “The Edith Sanford Breast Center will blend science, genetics, research and clinical expertise in one building.”

The Edith Sanford Breast Center will consolidate and expand upon existing services, including 3-D mammography, a breast cancer risk assessment program, a highrisk breast clinic, a breast surgery clinic, genetic counseling, a boutique offering medical and retail support

making in finding the cures—that’s what attracted us.”

Sanford launched Edith Sanford in 2011 to take breast cancer research in a bold new direction. The cutting-edge initiative was made possible through the vision and philanthropy of Denny Sanford, who lost his mother, Edith, to the disease when he was a child.

Today it is bringing together some of the brightest minds in science and medicine to unlock the secrets of the human genome and help end breast cancer for future generations.

“You can always give to other organizations, but you never really know what the money is being used for,” said Heineman.

Artist’s rendering of the future Edith Sanford Breast Center.

for cancer patients, a multidisciplinary conference center and clinic and a survivorship clinic. The Sanford BioBank, which serves as a library for researchers to make discoveries in breast cancer and other diseases, will also be housed in the new building.

Donors to the Edith Sanford Breast Center will help ensure advanced training for medical staff, that patients have access to cutting-edge diagnostics and treatment, and that screenings are available free-ofcharge to patients who are financially disadvantaged.

Construction is expected to be completed in early 2017.

To learn more or to make a gift, please call (605) 312-6700.

“With Edith Sanford, we know first hand, and we’ve been shown where our gift is going and who’s benefiting and it makes us feel good that it will make an impact.”

Are you ready to be a part of Edith Sanford’s mission to end breast cancer, too?

Your investment will not only drive cutting-edge genomics research underway right now across the Sanford Health system…you will also help expand the technological capacity and infrastructure to build a legacy of innovation and lifesaving discovery

here in the Dakotas, close to home.

“We’re humbled by the Heineman family’s generous partnership and philanthropic leadership in this lifesaving cause,” said Christine Dockter, chief development officer of the Sanford Health Foundation. “It’s exciting to see the momentum that occurs when determined people, like the Heinemans, unite around a bold idea.”

Please visit edithsanford.org to join us and invest today in a brighter tomorrow.

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The Gift of Time –

Jordyn’s story

Jodie Olsen, of Pipestone, Minn., holds a photo of her daughter Jordyn.

Ultimately, their best and only option was to bring Jordyn home and care for her on their own.

“My husband and I were her doctor, her nurse, her maid and her cook,” said Jodie. I think hospice would have allowed us to focus on just being together… it would have let us just be her dad and mom.”

The family spent a month together before Jordyn gently passed away in her sleep on March 20, 2014.

ordyn Olsen would have turned 8 this year. She would have started second grade in the fall with her friends.

“I wanted so much in life for her,” says her mom, Jodie. Every day still brings memories of her daughter and dreams left unfulfilled.

Jordyn fought for seven years against two horrific forms of cancer, but by late February of 2014, the doctor called to say they were running out of treatment options. Even the most aggressive and experimental options hadn’t stopped the disease from ravaging Jordyn’s tiny body.

“When we told Jordyn that she didn’t have to go to the doctor’s office anymore, she said she hoped we would say that soon,” said Jodie.

“I think she knew she was done, but she didn’t know how to say it to us.”

“It’s the hardest decision you’ll ever make–but it comes so easy,” she said about stopping treatment.

“Because you have so much love for your child and you don’t want to see them suffer. It wasn’t like we had to sit around and talk about it. We knew.”

While fighting cancer had come naturally, letting go was a struggle.

Jodie and her husband, Justin, suddenly felt alone navigating the emotional and practical aspects of end-of-life care for their own child.

They considered hospice care, but discovered there were no facilities near them that specialized in the unique needs of children.

While Jordyn was extraordinary, her story isn’t. Many families across our region will face decisions about endof-life care for a child in the year to come. You can make sure they have somewhere to turn.

Your support for Sanford’s Gift of Time campaign will help construct a new acute level, multi-generational hospice facility in Sioux Falls. This facility will be one of only four in the nation to provide inpatient pediatric hospice services.

Continuing in the tradition of Sanford Children’s Hospital’s family-centered care, the new facility will be one of celebration and comfort, and will promote specialization and excellence in pediatric hospice care.

To give the Gift of Time to families and children across our region, please visit sanfordhealthfoundation.org.

The gift of giving There’s no better way to give and receive than to make a gift that helps others at this time of year. Your gift to the Sanford Health Foundation will go a long way toward helping your friends and family across the region by providing life-saving equipment, expanding programs and services, supporting staff education and ensuring cutting-edge research continues.

To make a gift, visit sanfordhealthfoundation.org 4

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Delivering hope through research For too long, the lack of research into rare diseases has meant a lack of hope for patients facing these often life-threatening conditions.

But the future is looking brighter thanks to an innovative initiative at Sanford Research.

The Coordination of Rare Diseases at Sanford (CoRDS) is a centralized international patient registry for all rare diseases that is helping speed the way toward cures and treatments.

Launched in 2010 with a grant from the Sanford Health Foundation’s Unrestricted Fund, CoRDS has quickly risen to prominence as a central resource for rare disease data and a powerful tool for linking patients to researchers conducting clinical studies.

“While rare diseases affect approximately 30 million people in the United States and 350 million people worldwide, patient populations are small and widely dispersed geographically,” said CoRDS Research Manager Catie Olson. “We hope the CoRDS registry will facilitate collection

and analysis of data, encourage partnerships between patients and researchers, and ultimately, accelerate research into rare diseases.”

By definition, any disease affecting fewer than 200,000 Americans is considered rare. There are nearly 7,000 of these diseases affecting nearly 30 million Americans— that’s about one person in 10.

Approximately 80 percent are genetic in origin and many are chronic, progressive and debilitating. Yet, discouragingly, most don’t have a single approved drug treatment.

“Rare diseases are life-altering for patients and families. Patients face many challenges including a lack of information on their disease and limited treatment options,” said Olson. “We hope the CoRDS registry will act as an avenue for breakthroughs in research and treatments.”

Today, the registry houses clinical data from more than 1,660 participants from all 50 states and 23 countries, representing 298

unique rare diseases. CoRDS is also a member the International Rare Disease Research Consortium (IRDiRC), which helps bridge research partnerships around the world, in addition to its work nationally.

The initiative also has plans for a rare disease biobank to enable future translational, preclinical and clinical research into all 7,000 different rare diseases.

Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry.

It is free for patients to enroll and for researchers to access.

To learn more about CoRDS, visit sanfordresearch.org/cords.

To make an investment in this critical program, please visit sanfordhealthfoundation.org.

Through your donation, membership, or simply by helping raise awareness, you can support CoRDS and bring hope to patients and families battling rare disease.

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We’ve all been touched by cancer in some way.

Perhaps most heart-wrenching is watching a child deal with the disease, not only because of the struggles it creates for the child and his or her immediate family, but because it affects their extended family, friends, classmates and neighbors as well.

During September, Sanford Children’s Hospitals across the Sanford Health enterprise recognized Childhood Cancer Awareness Month to raise awareness and funds for pediatric oncology services in their respective hospitals and clinics. In Sioux Falls, a new campaign — Brave Kids Bold Cures — debuted to support pediatric oncology services at Sanford Children’s Hospital, South Dakota’s only children’s oncology group hospital.

The Sanford Health Foundation encouraged everyone to wear gold ribbons, the childhood cancer international symbol, and reach out to their friends and family to organize their own events to raise money and awareness throughout the month of September to display unity in the fight against this disease.

The first-ever Running for Brave Kids Bold Cures 5K happened Sept. 7 in coordination with the Sioux Falls Marathon. Local children diagnosed with cancer represented the campaign during several sporting events, including the President’s Bowl football game, all home football games at Augustana College and Go Gold volleyball and

Quinn Pesicke hugging firefighter Wade McKenney.

Students from the Sully Buttes School District supporting Childhood Cancer Awareness Month.

women’s basketball games at South Dakota State University.

Sanford Children’s staff also participated in “Whipping Childhood Cancer Challenge” where they got a whipped cream pie in the face and donated to Brave Kids Bold Cures.

“It’s so inspiring to see kids help other kids fight cancer during Childhood Cancer Awareness Month,” said Kim Haiar, Sanford Health Foundation director of annual giving. “These young patients fight such a hard battle and they really appreciate having support from so many people.”

To support pediatric oncology services at Sanford Children’s, visit sanfordhealthfoundation.org.

Honoring guardian angels Sometimes, when we need it most, a guardian angel will step into our lives at just the right time.

Amber Eliason and Katie Herrboldt were two of three nurses honored recently as guardian angels.

When Abby Lee delivered her first child at The Birth Place at Sanford Women’s, she and her husband, Josh, were blessed with not one, but three of these guardian angels: their nurses, Amber Eliason, Katie Herrboldt and Jolene Tuschen.

All three went above and beyond to ease the Lees into their new role as parents.

The couple was so touched by the attentive care, they honored each of the nurses with gifts to the Sanford Health Foundation’s Guardian Angel program.

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Guardian Angel is a meaningful way to thank a Sanford nurse, doctor or other caregiver who made a special impact in your care. Gifts of any size are welcome, but with a donation of $100 or more, your honoree will receive a Guardian Angel pin to wear with pride.

“Being reminded that kindness doesn’t go unrecognized is a great feeling and I think it inspires everyone to continue to give awesome care,” said Nurse Eliason about receiving recognition from the Lees.

During your time at Sanford, did someone make all the difference in your care? Honor your guardian angel at sanfordhealthfoundation.org.

Meet the

2014 Children’s Miracle Network Champion!

Katelyn Tennant was born with a rare, and often fatal, heart defect. At just 2 days old, she was flown from Pierre to Sioux Falls for her first heart echocardiogram; at 6 days old, she underwent the first of four open-heart surgeries.

At only 12, Katelyn has already endured more than 30 medical procedures, including seven major surgeries and four open-heart surgeries and spent more time in the hospital than average adults do in a lifetime. She has also survived another rare and near-fatal disease, plastic bronchitis, which caused her body to form a lining around her bronchial system, blocking her breathing.

According to her physician, Sanford Children’s Pediatric Cardiologist Dr. Bill Waltz, surviving plastic bronchitis was literally a miracle.

Katelyn is now serving as this year’s South Dakota Children’s Miracle Network Champion. With the support of her mother, Nicole, and sister, Brooklyn, she represented the state during special events, fundraisers and the national CMN conference in Orlando. Champions also traveled to Washington, D.C. Katelyn said she was most excited about Disney World.

“That was the first thing I heard actually,” she said. “Then I heard about getting the medal for being the CMN Champion of the year, and you do a lot. The fundraisers help not only me, but others.”

When you support Children’s Miracle Network, you help make miracles like Katelyn’s possible. Your gifts provide for state-ofthe-art equipment, advanced education opportunities and special services and programs at Sanford Children’s Hospital – the region’s only Children’s Miracle Network Hospital. To make a gift visit sanfordhealthfoundation.org.

But you can still save on taxes this year if you act quickly...

s I e m i T g n i n n Ru Out!

There is still time to make a charitable gift of cash or property, such as stock or real estate, that will provide you with a deduction and valuable tax savings on this year’s return.

To learn more, please call Amy Bruns at 605-312-6742, Sue Salter at 605-312-6759 or Bobbie Tibbetts at 605-312-6711. encourage 7

Sanford Health Foundation PO Box 5039 Sioux Falls, SD 57117-5039

Calendar of Events Jan. 9-11

Prom Xtravaganza Elegant Expressions – Sioux Falls This event is an entire weekend filled with events and specials including exclusive prom dresses, unique fashion forward tuxes, special giveaways, free dress giveaway, free tux giveaway and special savings!

Proceeds benefit Children’s Miracle Network at Sanford Children’s Hospital

Feb. 13-15

Winterfest of Wheels Sioux Falls Arena A premier car show benefiting Cure Kids Cancer at Sanford Children’s Hospital

Feb. 13

“Hooping” for a Cure Parker, S.D. – 6:30 p.m.

Parker High School boys and girls varsity basketball teams will host special “pink out” games to benefit Edith Sanford Breast Foundation

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300-71000-0349 11/14

March 3

IHOP National Pancake Day at participating locations in Sioux Falls and Watertown Enjoy a free short stack of pancakes and while there, don’t forget to donate to Children’s Miracle Network. You can also purchase a Miracle Balloon with a kickback coupon.

Proceeds benefit Children’s Miracle Network at Sanford Children’s Hospital

March 26-27

Results Radio Cure Kids Cancer Radiothon presented by Jerry’s Auto Sales Broadcasting live from Sanford Children’s Hospital on Mix 97.3, B102.7, Hot 104.7 and KIKN 100.5 sharing stories of our region’s most courageous kids battling cancer.

Proceeds benefit Cure Kids Cancer

March 28

SDSU State-A-Thon 10 a.m. – 10 p.m.

Benefiting Children’s Miracle Network at Sanford Children’s Hospital

Thank you.

Programs and services at Sanford Health benefit from the support of readers like you.