November 2 - November 15, 2021
Every Issue Complimentary Every Time
www.santaynezvalleystar.com
Vance’s Army to march for a cure in cystic fibrosis walk Local family thankful for community support in helping their son flourish By Raiza Giorgi
publisher@santaynezvalleystar.com
G
rant and Jenifer Sanregret tend to plan out their days so they are able to help their 8-year-old son Vance with his breathing treatments multiple times a day. “People ask us, do we ever just to things spur of the moment, and not really because we never miss a breathing treatment for Vance. It’s just not optional,” Jenifer Sanregret said. Since he was 3 weeks old, Vance has been diagnosed with cystic fibrosis (CF). This rare genetic disorder is not common, and only 70,000 people in the world have it, according to the Cystic Fibrosis Foundation.
The Cystic Fibrosis Great Strides Walk will take place at Chase Palm Park in Santa Barbara (323 E. Cabrillo Blvd.) on Saturday, November 13. To register, volunteer or find out more about the local Cystic Fibrosis Foundation, go to https://fightcf.cff.org/site/TR?fr_id=8700&pg=entry
This local family has been championing research for this ailment and will be participating in the Cystic Fibrosis Great Strides Walk at Chase Palm Park in Santa Barbara on Saturday, November 13. “We won’t stop helping raise funds for a cure until the letters CF stand for ‘cure found,’” Jenifer said. Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time, according to the CF Foundation. “Social distancing and sanitary practices have been imparted on our household way before COVID ever came around,” Jenifer Sanregret said. “We have a mask hanging area in our front entry
way that has been there forever.” Jenifer also explained that people with CF cannot be around other people with CF as they can easily spread their germs to one another and become ill. The Sanregret family is most known in the Santa Ynez Valley for their former business, Los Olivos Lemonade, the stand that is in the shape of a giant lemon. They sold their business several years ago to the Gods Country Provisions owners. Grant now works in cyber security and Jenifer is doing wedding and event planning. “We came to the Valley to visit my in-laws when Vance was a toddler, and we immediately noticed a change in his breathing,” Jenifer said. “He had a
Photos contributed Santa Ynez Valley kid Vance Sanregret will be participating in this year's Cystic Fibrosis Great Strides walk on Saturday, Nov. 13, in Santa Barbara.
Since he was 3 weeks old, Vance Sanregret, 8, has been diagnosed with cystic fibrosis, which requires multiple breathing treatments per day.
nose whistle, which meant he could breathe through his nose which had never happened. I immediately said we were moving here.” The family had previously lived in Austin, Texas, which has a hotter and more humid climate, not conducive to a child that suffers from an excess of mucus in his system. In people with CF, mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene cause the CFTR protein VANCE'S ARMY CONTINUED TO PAGE 23
El Rancho Market
Skip the line our deli is offering swipeby curbside pickup. Get the app www.swipe.by Easy mobile/no fees ordering 2886 Mission Drive • Solvang • 805 • 688 • 4300 Open Daily 6am - 10pm www.californiafreshmarket.com
o