Casey House 2013-14 annual report

HIV/AIDS

25 years together ANNUAL REPORT 2012-2013

ANNUAL REPORT 2012–2013

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25 Years of Compassion Casey House was founded thanks to the foresight and compassion of a group of dedicated volunteers, in the midst of the devastation of the early AIDS crisis.

That tradition of pioneering health care innovation lives on at Casey House today, as we continue to adapt to the changing landscape of this everevolving disease. Today, thankfully, a diagnosis of HIV does not lead to imminent death. But life with this disease can be very difficult, often dangerous, and nobody can manage it alone.

Every life saved, every isolation ended, every hope for the future

Watch the video Many of the photographs and quotations in this report are included in a video commemoration of our 25th anniversary, available online now at our newly rebuilt website, www.caseyhouse.com.

rediscovered... Nothing we do at Casey House could happen without the support and kindness of our staff, physicians, volunteers and donors.

Thank you for joining us on this journey. Together, we’re giving

On the website we also have collected many stories and recollections of clients, staff, volunteers and donors about the past quarter century of care at Casey House. You can also read more about our exciting plans for the future of Casey House, underway now with the Rebuilding Lives Capital Campaign.

Learn more about the past, present and future of Casey House: www.caseyhouse.com

compassion a home.

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C a s e y H o u s e – C o m p a s s i o n a t e H I V/A I D S C a r e i n O u r C o m m u n i t y

Message from the Chair, Board of Directors and Chief Executive Officer

Casey House at

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Landmark anniversary for pioneer in AIDS and palliative care On March 1, 1988, the doors to Casey House opened as Canada’s first stand-alone AIDS facility, and first free-standing hospice in Ontario.

As the AIDS epidemic hit Toronto with devastating force in 1988, a brave and wise group of volunteers banded together to take action in the face of despair. Defying the fear and stigma surrounding this newly-emerging disease, they created Casey House as a beacon of compassion and hope, gaining world recognition as innovators in AIDS care and palliative care.

Each and every day, with every moment of care at Casey House, we honour that legacy.

A quarter century since our founding, our work is far from over. The number of people living with HIV/AIDS in Toronto ANNUAL REPORT 2012-2013

continues to rise, with 1 in 120 adult Torontonians now HIV positive. Many of these individuals are 30 years old and younger, with health care needs that will escalate in intensity and complexity as they age. And while fewer of our clients require end-of-life support, the care needs of people living with advanced HIV/AIDS are significant and complex, often overwhelming, and difficult to address for health care providers who lack Casey House’s particular focus and expertise.

There is no other place like Casey House in Toronto or anywhere in Ontario.

Twenty-five years since our founding, it is thanks to the unbridled kindness and support of our community that Casey House continues to be a place of hope

and compassion for so many people who continue to struggle with advanced HIV in our city. We have exciting plans underway to ensure that this vital role will be sustained and expanded as the need for specialized and compassionate HIV/AIDS care continues to grow. For as long as we are needed, and thanks to the support of many generous people, Casey House will continue to be here to serve our community.

Thank you for your kindness.

Guy Bethell Chair, Casey House Board of Directors Stephanie Karapita Chief Executive Officer, Casey House

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C a s e y H o u s e – C o m p a s s i o n a t e H I V/A I D S C a r e i n O u r C o m m u n i t y

are

passionate Board of Directors Josée Bertrand

Stephanie Karapita

Treasurer

Chief Executive Officer

Guy Bethell

Karen de Prinse

Chair

Karen de Prinse

Steven Endicott

Gary Funderlich

Gayle Janes

Bryn Gray Vice Chair

Director of Finance and Operations

Todd Ross

St. Michael’s Representative

Sandeep Joshi

Dr. Ann Stewart

Stephanie Karapita Chief Executive Officer

Bruce Lawson Past Chair

Graham McLeod James McPhedran Philippe Meyersohn

Casey House provides exemplary treatment, support and palliative care for people affected by HIV/AIDS, in collaboration with our communities.

Chief Development Officer

Director of Community Development and Information Services

Dr. Charlie Guiang

(remains the same 25 years later)

Director of Clinical Programs & Chief Nursing Executive

Director of Clinical Programs & Chief Nursing Executive

Jason Grier

Our Mission

Senior Team

Thomas O’Shaughnessy Secretary

Judith Purves Nancy Read St. Michael’s Representative

Gillian R. Stacey Dr. Ann Stewart

Medical Director

Volunteer Recognition Awards 2013 5 years

Rich Bruggeman David Cox Adrienne Desjardins Dave Franklin Heather Grant Anne Hart Barbara Huck Steve Hutton Pam Lillos Sarah MacQuarrie Wayne McCallum Kasia Pytlik

Long Service Staff Awards 2013

Tory Sullivan

5 years

Donald Walker

Tania Auer Karen de Prinse Nancy Reid

Julie-Ann Toovey 10 years

John Maguire 15 years

Brittan Ullrich

Diane d’Astous

10 years

20 years

15 years

Ian Mahaffay

Amy MacKinnon Gowry Sriskandarajah

Bill Henbest

Juliana Treacher

Medical Director

Darryl Sturtevant Dr. Barbara Whylie

ANNUAL REPORT 2012-2013

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There was a lot of fear in the community at the time. You had to assume that everyone you knew was HIV positive.

YRichard Silver, Long-Time Volunteer

Watch the video at caseyhouse.com

Diana, Princess of Wales meets Casey House client Wayne Taylor during her 1991 visit

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C a s e y H o u s e – C o m p a s s i o n a t e H I V/A I D S C a r e i n O u r C o m m u n i t y

Leadership & Accountability

Casey House: 25 Years of Leadership in our Community When HIV/AIDS first hit Toronto with deadly force, Casey House was at the forefront of the response, pioneering new approaches to HIV care and hospice care that are still used today in health care and hospice settings around the world. This leadership, adaptability, and responsiveness to community need remain central to our approach to care at Casey House, as our staff and volunteer leadership team continually seek out innovative and better responses to a disease that remains relatively new and is ever-evolving.

Our dedicated staff tailor care to meet the individual needs of each person receiving care at Casey House. Our approach to care embraces holistic care, collaboration and integration, expanded networks and partnerships, increased ANNUAL REPORT 2012-2013

support for clients, and supportive case management practice. Feedback from people living with HIV/AIDS, who depend on us to assist in meeting their health care needs, has been central to our success to date and is fundamental to our approach for the future.

We also continue to plan strategically for the future, as the population of people newly infected with HIV in Ontario grows by 1,000 each year, affecting increasingly diverse demographics with highly complex and multi-faceted health care needs.

We’re very excited about the future of Casey House, which will continue to be a testament to the spirit of leadership and innovation upon which we were founded. A new purpose-built facility

will allow us to more than double our capacity to provide care for the growing numbers of Torontonians requiring our compassionate approach to advanced HIV/AIDS treatment. You can read more about these plans and the Rebuilding Lives Capital Campaign on pages 22-23 of this report.

mission, we continually strive to keep our donors informed. All our fundraising activities are overseen by a volunteer Board of Directors, to ensure that the generous gifts made by our donors are effectively stewarded, ensuring the maximum reach of our programs and services.

Accountability to our community, in delivery of our mission, is a responsibility we continue to take very seriously. In accordance with Ontario’s Excellent Care for All Act, we publish our Quality Improvement Plan on our website at www.caseyhouse.com, as well as our Balanced Scorecard, Strategic Planning documentation and many other financial reports and planning documents. Through all our fundraising efforts in service of our

We are grateful to our community for over a quarter century of support, and always strive to be transparent and open to the input of our clients and community.

We encourage you to explore the many reporting tools we publish at www.caseyhouse.com, and get in touch with us any time at heart@caseyhouse.on.ca .

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Quality Improvement

Quality Improvement Highlights 2012-2013 Quality Improvements Ever since Casey House opened our doors, our commitment has been to provide excellent, compassionate health care to people living with HIV/AIDS. Back in 1988, a Quality Committee was established and continues today. Since day one, Dr. Linda Rapson has served on this committee, bringing her knowledge as a physician.

And since 2008, Casey House has had a comprehensive Quality and Risk Management Program, which is updated annually. This effort is fully aligned with Ontario’s Excellent Care for All Act which was introduced in 2010. All of Casey House’s efforts reflect our commitment to client-centered care, and to our values.

The Quality Committee of the Board of Directors plays a leadership role in quality (including risk management, 8

• Established a comprehensive medication error tracking system to enable staff to understand the factors which can contribute to an error and then respond to reduce re-occurrences.

• Developed a comprehensive policy with procedures regarding privacy and confidentiality of health care information. Implementation involved staff education, signage and a pamphlet.

safety and ethics) for all aspects of care, service and operations at Casey House.

This committee is comprised of members of the Board of Directors as well as non-director members who are health care professionals possessing a wide range of skills and knowledge.

Most quality initiatives are led by Karen de Prinse, Casey House’s Director of Clinical Programs and Chief Nursing Executive. Karen is very passionate about her goal to provide the very best care to each and every client cared for at Casey House. She works very closely with our dedicated Medical Director, Dr. Ann Stewart.

Outlined on this page are examples of the key quality improvement initiatives that were achieved in 2012-13 by our dedicated staff team.

• Completed and implemented an orientation manual and program for new nursing staff.

• Re-engineered the intake and referral process for all Casey House programs resulting in improved access and response time.

• Introduced a pre-admission package which is now provided to each person awaiting admission to Casey House, introducing key policies and information that assist in the client’s transition to a hospital environment.

• Completed and implemented the Resident Binder which is a reference guide for incoming clients, presenting information on the care team, programs and logistics.

• Partnered with the Rekai Centres to develop four learning videos for long-term care staff to promote excellence in HIV care in their environment.

• Constructed a mock-up of an inpatient room for the new building and received input from clients, families, volunteers, staff, physicians, community partners and board members.

C a s e y H o u s e – C o m p a s s i o n a t e H I V/A I D S C a r e i n O u r C o m m u n i t y

Friends InDeed Legacy Society

We were flying by the seat of our pants.

There was no blueprint, there was no guidebook. We had to guess at how to set the hospice up to provide ideal care for HIV. And at that time, there was hardly any information about how to set up any kind of hospice.

YDr. Linda Rapson, Founding Volunteer

Watch the video at caseyhouse.com

Casey House nursing staff and volunteers, circa 1988.

ANNUAL REPORT 2012-2013

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How You Make HIV/AIDS Care Possible at Casey House

INPATIENT CARE

12 beds funded by Ministry of Health and Long-Term Care 1 bed funded by donors

SHERBOURNE HEALTH BUS Weekly HIV/AIDS nursing care

HOME NURSING CARE, SOCIAL WORK & HOMEMAKING SUPPORT 8% funded by Toronto Central CCAC

Hassle Free Health Promotion Clinic

DONOR SUPPORT

Individual giving, planned giving, corporate or foundation grants, special events

OUTREACH HEALTH CARE Delivered in partnership with other agencies

Prisoners’ HIV/AIDS Support Action Network (PASAN) Clinic

EDUCATION & RESEARCH Partially funded by Ontario AIDS Bureau

Research

To collaboratively advance knowledge of HIV/AIDS and improve care

SEMINARS & SYMPOSIA

Your generosity finds its way into every point of service at Casey House, whether at 9 Huntley Street, in our clients’ homes, or on board the Health Bus and at outreach clinics for some of our city’s most marginalized people. Your support also helps to fund our specialized HIV/AIDS treatment research projects and helps to train the next generation of HIV/AIDS health care providers. Together with your help, we’re transforming HIV/AIDS care in our city. Thank you.

For Toronto-area nurses, physicians & AIDS service providers

Training & Preceptorships In HIV/AIDS for nurses, physicians and other professionals in training

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C a s e y H o u s e – C o m p a s s i o n a t e H I V/A I D S C a r e i n O u r C o m m u n i t y

Financials

Revenues & Expenses Casey House Hospice Inc.

Condensed Statement of Revenue and Expenditures and Changes in Net Assets For the year ended March 31, 2013

Revenue Provincial grants Grants from Casey House Foundation Community Care Access Centre billings Interest Other Amortization of deferred contributions and grants

Expenditures Salaries and benefits General and administrative Interest Pharmaceuticals Resident/client care Building and maintenance Amortization of property and equipment Unrealized investment loss

Deficiency of revenue over expenditures for the year

Casey House Foundation

2013 $

2012 $ Restated

4,832,554 882,709 116,529 33,394 115,271 122,371 6,102,828

4,855,503 960,652 69,281 19,887 124,690 102,577 6,132,590

4,751,898 364,397 49,085 404,662 240,039 190,259 239,244 6,239,584

4,726,515 409,416 48,816 365,318 237,296 186,138 221,012 29,728 6,224,239

(136,756)

(91,649)

Unrestricted net assets – Beginning of year

4,440,214

4,531,863

Unrestricted net assets – End of year

4,303,458

4,440,214

Condensed Statement of Revenue and Expenditures For the year ended March 31, 2013

2013 $

2012 $ Restated

Revenue Donations Bequests Special events Donations in kind Interest and other

1,620,323 294,855 1,302,146 399,010 211,450 3,827,784

1,525,303 577,427 1,327,230 414,500 176,958 4,021,418

Expenditures Fundraising and special events Administrative Donations in kind Amortization of equipment

1,250,580 569,209 399,010 1,856 2,220,655

1,097,950 627,621 414,500 2,271 2,142,342

1,607,129

1,879,076

Change in fair value of investments

61,568

(253,042)

Grants to Casey House Hospice Inc.

(1,473,290)

(1,003,754)

Excess of revenue over expenditures before the following items

Excess (deficiency) of revenue over expenditures for the year

195,407

622,280

The complete audited financial statements for Casey House Hospice and Casey House Foundation are posted on our website at www.caseyhouse.com. The audits were conducted by PricewaterhouseCoopers LLP.

ANNUAL REPORT 2012-2013

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Cabbagetown Festival Parade 1990.

During the early years of HIV/ AIDS, we lost a number of friends to the disease. We’ve supported Casey House because it provides the compassionate and understanding care and support that were not available to our friends in those early years. As Casey House enters the next 25 years, we are pleased to continue our support as it expands its programs with a new facility to support people living with HIV/AIDS over the longer term, bringing the community together through a new day program.

YAlan Rowe and Bryan Blenkin 12

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er rs

om ar

There were no treatments back then.

You couldn’t do anything to make people live longer. You just had to concentrate on how much time they had, and giving them the quality of life that they deserved.

Y Dan Chisholm, RN for 25 years at Casey House

Watch the video at caseyhouse.com

Activist June Callwood was instrumental in founding Casey House.

ANNUAL REPORT 2012-2013

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Events & Awareness Our signature events raise essential funds and awareness for compassionate HIV/AIDS programs and services at Casey House. Thank you to our generous sponsors, volunteers, artists, galleries and attendees – you’re helping to bring health and hope to people living with HIV/AIDS in Toronto.

Art with Heart, presented by TD Bank ...and SOLD! Music to the ears for the lucky bidders at the 19th annual Art with Heart who managed to outbid the more than 800 other guests at the Carlu, collectively raising over $750,000 for a tremendous cause. To date, Art with Heart has raised more than $5 million for Casey House. This year, the efforts of the Curatorial Committee offered up a collection that was hailed as the most critically significant to date. Be sure to mark your calendar for this year’s very special 20th Annual Art with Heart on October 8, 2013.

Voices of Hope for World AIDS Day The Casey House community of support once again came together for a glorious concert and community gathering marking International World AIDS Day on December 1, raising vital awareness of the ongoing need for HIV/AIDS care,

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as well as over $60,000 for Casey House programs. We once again collaborated with Vancouver’s Dr. Peter AIDS Foundation and Montreal’s Maison du Parc to present this trio of concerts across Canada. Our deep thanks to National Presenting Sponsor M•A•C AIDS Fund for its generous financial and volunteer support for this unique national collaboration.

SnowBall 2013: CHROMA – presented by BMO Financial Group On March 23, our community came together for an unforgettable night marking 25 years of support for compassionate HIV care at Casey House. Ryerson’s Mattamy Athletic Centre (site of the former Maple Leaf Gardens) was transformed into a vibrant and sophisticated backdrop for a sumptuous and fun evening raising over $400,000 for Casey House programs. Co-chaired by celebrity

designers Tommy Smythe and Arren Williams along with Spafax’s Raymond Girard, the evening was a very special commemoration of Casey House’s 25th anniversary, and included the presentation of The Casey Awards.

Monogram Dinner by Design Launched in 2012, this series of invitation only, “in-home” fundraising dinners offers fabulous opportunities for Toronto’s design community to show its love for Casey House. In April, Umbra and Monogram joined forces to host a special evening at the Umbra Concept Store. And in February, guests were treated to a one-of-a-kind dining experience with a “head-to-head” tasting menu from two Top Chef winners, Dale MacKay of Vancouver vs.

Carl Heinrich of Toronto. We are grateful to GE Monogram for their lead sponsorship of this exciting new fundraising venture for Casey House,

and to each of the hosts and their guests for their spirited and compassionate support of HIV/AIDS care. Additional Dinner by Design events will be hosted in the coming year – visit www.dinnerbydesign.ca for more information.

Community Fundraising Hosted by individuals, businesses, community groups, schools or service clubs, community fundraisers are a fun and rewarding way that our community generates vital funds for Casey House, while raising awareness of the important work we do. If you are interested in organizing such an event, please contact Elizabeth Dalgleish at 416-962-4040 ext. 212 for more information.

C a s e y H o u s e – C o m p a s s i o n a t e H I V/A I D S C a r e i n O u r C o m m u n i t y

Art with Heart 2012

Voices of Hope/ Voix D’Espoir World AIDS Day Concert 2012

Art with Heart 2012 Steven J. Rapkin and Simon Clements Co-Chairs Erin Stump and Pamela Dinsmore Curatorial Co-Chairs

SnowBall 2013: CHROMA

Voices of Hope/Voix D’Espoir World AIDS Day Concert 2012 Rev. Dr. John Joseph Mastandrea and Benoit-Daniel Lafleche Event Chairs David Warrack Musical Director Briane Nasimok and Lesley Ballantyne Producers SnowBall 2013: CHROMA Tommy Smythe, Arren Williams and Raymond Girard Co-Chairs

Monogram Dinner by Design

Robert Forsey Casey Awards Chair Congratulations to the Recipients, The Casey Awards 2013 John Plater (posthumous award) Dr. Peter AIDS Foundation

ANNUAL REPORT 2012-2013

Recipients of The Casey Awards 2013

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A Casey House client with a canine friendly visitor, circa 1990

Without Casey House, I think I would have died. Casey House is a necessity in my life.

YJudy, client

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Watch the video at caseyhouse.com

C a s e y H o u s e – C o m p a s s i o n a t e H I V/A I D S C a r e i n O u r C o m m u n i t y

Section heading

Headline

The wonderful thing about Casey House is that they don’t just focus on the individual person suffering, because HIV/AIDS doesn’t just affect the person, it affects all their friends and family. Casey House helped me be a tower of strength to my partner, otherwise I think I might have been a house of cards.

That’s the amazing difference Casey House made in his life, and my life, and in the life of our family.

YGuy Bethell, Board Chair

ANNUAL REPORT 2012-2013

Watch the video at caseyhouse.com

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Message from the Campaign Chair

Casey House Rebuilding Lives Capital Campaign

Jaime Watt, Chair Executive Chair and Senior Partner, Navigator Ltd.

A message from Jaime Watt, Campaign Chair

from many generous individuals, corporations and foundations.

HIV/AIDS has been with us for over three decades. Since the very early days of this fight, Casey House has not only provided leadership, but literally invented the leading compassionate advanced HIV/AIDS care that simply isn’t available anywhere else.

Our $10 million goal is within sight, but we still have a ways to go. We’re confident that with your help, we’ll get there very soon.

Despite the hard work of partner agencies working in HIV/AIDS prevention over the years, more Torontonians are living with HIV/AIDS than ever before. Today, 1 in 120 Torontonians is HIV-positive. Casey House must expand its services to meet a looming, growing need for specialized and advanced HIV/AIDS care. There is no time to wait.

To meet this need, the $10 million Rebuilding Lives Capital Campaign was established. It will allow us to build a world-class new home for Casey House and a bold new face for HIV/ AIDS care in Toronto. It will also allow Casey House to more than double its patient load, ease pressure on other health care resources, and offer more 22

Campaign Cabinet

targeted and appropriate care for community needs.

The building design by award-winning Siamak Hariri will create a prominent presence for Casey House on Jarvis Street, firmly anchoring it in the consciousness of the city. The innovative structure will ensure that Casey House stands alongside the cultural, academic, and other health care institutions that make this city great.

I am delighted to report that we have now secured over half of the campaign goal, with $6.4 million raised to date

We are so grateful to all our donors, many of whom have made extremely generous and thoughtful gifts. Their contributions will allow us to rebuild the lives of twice as many people as are currently served by Casey House individuals who will need our help for years to come.

You can be part of this transformation, by making a generous gift to help Casey House rebuild the lives of so many more people living with HIV/AIDS who desperately need our help. Thank you for your support.

Jaime Watt, Chair, Rebuilding Lives Capital Campaign

Mark Bonham Chief Executive Officer, Bonham & Co. Inc. Asset Management Gordon Baker Gordon R. Baker, Q.C.

Paul Boniferro Partner and National Leader, Practices and People, McCarthy Tétrault Stephen Brown President and Partner, Fuse Marketing Group Andrew Faas Trustee, Faas Foundation Azmi Haq Founder and Executive Producer, Salon Camden Stephanie Karapita Chief Executive Officer, Casey House Karim Karsan, Vice-Chair Managing Director, Consumer Protection, Ontario Energy Board Bruce Lawson Executive Director, The Counselling Foundation of Canada James McPhedran Senior Vice President, Ontario Region Group, Scotiabank Peter Milligan Associate Counsel, Miller Thomson Richard Silver, Vice-Chair Sotheby’s International Canada Realty

To find out more, to make your gift, and to see the plans and architect Siamak Hariri’s inspirational vision, please visit www.caseyhouse.com or phone Pat Hetherington at 416-962-4040 ext. 235

George Smitherman Former Deputy Premier of Ontario Timothy Thompson Chief Operating Officer, TD Asset Management

C a s e y H o u s e – C o m p a s s i o n a t e H I V/A I D S C a r e i n O u r C o m m u n i t y

An Inspired Plan: Rebuilding the Heart of HIV/AIDS Care As the face of HIV changes, Casey House is pushing the boundaries of HIV/AIDS care with a bold plan for our future.

We will construct a dramatic new 50,000 square foot health care centre that will expand and improve upon our current capacity to provide our advanced HIV/AIDS specialty health care services.

The new site will also allow for the introduction of an exciting and new Day Health Program. The centrepiece of our capital expansion, this new program will provide one-stop care and treatment for individuals affected

by HIV/AIDS, from the time they are infected through to the need for end-of-life care.

We invite you to join our community of support as we work together to once again revolutionize the future of HIV/ AIDS care in Toronto.

Donors: Rebuilding Lives Capital Campaign

Casey House extends our warm thanks to the many generous donors who have made campaign contributions to date. This list includes all donors who have made gifts of $500 or more. $1,000,000 + Mark S. Bonham $500,000 - $999,999 The Harold E. Ballard Foundation The Faas Foundation 1 anonymous donor $250,000 - $499,999 George Cedric Metcalf Foundation (Johanna Metcalf ) Samuel Sanford Family Jaime Watt and Paul Ferguson

ANNUAL REPORT 2012-2013

$100,000 - $249,999 David Daniels and Kate Alexander Daniels Stan I. Griffin Michael S. Higgins Heather Killough Jim Lawrence M•A•C AIDS Fund McLean Smits Family Foundation Peter Milligan and Dorene MacAulay RBC Foundation In Honour of John McWhinnie from his friend Tevya Rosenberg Alan Rowe and Bryan Blenkin Scotiabank Group George Smitherman and Christopher Peloso TD Bank Group Daniel Wright and Douglas Moffatt $50,000 - $99,999 Diane Blake and Stephen Smith Jefferson and Sally Mappin Tim Thompson and Matthew Campbell Joe and Heather Toby 1 anonymous donor $25,000 - $49,999 Heather Armstrong and Lance Rishor Paul Boniferro Ian V. Nordheimer Rush/Anthem - Alex Lifeson, Geddy Lee, Neil Peart Dr. Andrew Taylorand G. Stephen Dembroski 1 anonymous donor $10,000-$24,999 Al Green Gallery James R. Beattie and Family Daphne Beauroy in memory of Roger Griffin Jim Belshaw and Frank Carroll Steven J. Blackburn and Tino Corsetti Stephen Brown Brian Cartwright Heather Cartwright and Hilary Wyche Jacki Challenger and David Kanester Robert D. Cook Sasha Darling DeMarco Family Jeronimo De Miguel Karen de Prinse Robert DiStefano Paul Ellis Paul Felstein Gary Funderlich and Rob Ridgeway Bruce Goudy Dr. Charlie B. Guiang David Hirsh Keith J. Holland Mark Johnston Kaatza Foundation Karim Karsan and John Rider Bill Keay and Jordan Johnston

Dennis Keefe and Dr. John Jordan Gale M. Kelly Elias Kibalian Spencer Lanthier and Diana Bennett Joshua Lawson and Michael Hathaway Arlyn Levy and Gail Hawkins Scott MacEachern Dr. Grant Maxted and Alex Salanga Kate McGilvray and David Pathe Brian McKeen and Brian Wilding Graham McLeod and Tim O’Fallon James and Sue McPhedran Philippe Meyersohn John Sanford Moore Brigid Murphy E. Llana Nakonechny Nancy’s Very Own Foundation Paul V. Noble Greg O`Donahue and Steven Voisin Thomas O’Shaughnessy and Omar Dallal Michael O’Sullivan Gary Ramsdale - In Memory of Lloyd Brown Mark Robert and Jim Johnson Benny Romano Sage Investments Limited Esteban and Brad Schmale Brian Shackleton Wendy Shaw and David Kent Richard Silver Dr. Martin Sterling Gillian Stacey Daniel Turko In Honour of Sharyn Vincent Yabu Pushelberg 3 anonymous donors $5,000 - $9,999 Michael Allen and Kelvin Browne Dr. Brian Cornelson Sandra Cruickshanks and Tom McCauley Peter Erlendson Bob Gibson and Paul Willis Stephanie Karapita and O’Neil Smith Brian MacDonald and Graeme Marney Lou and Jennifer Pagnutti Laurie Pawlitza In Honour of Scott Potter (multiple donations) David W. Pretty Scotia Life Financial Services Erika Toby Wagner Kendra Toby Alex Zivojinovich $1,000 - $4,999 Holly and Richard Benson Josée Bertrand and Maggie Cassella Sheila Block James Burn Robin Cardozo and Jeff Richardson Meredith Cartwright

Alberta Cefis J.S. Cheng and Partners Inc. Caroline Dabu Patrick Devine Steven Endicott Howard Fergusson Mark and Diane Fujita Robert Gage Dr. Abbas Ghavam-Rassoul Lisa Gibson and Andrew Titley in honour of Scott Potter David and JoAnne Gilmer Bryn Gray Lindy Green Jason Grier Ron Harris Patricia Hetherington Sandeep J. Joshi Christopher Kelly Heather Killough in honour of Scott Potter John King Henry White Kinnear Foundation McLean Foundation Pearse Murray OPSEU Local 501 Susan Portner Brian Provini Judith Purves James Robertson and Davide Rupiani Taras Shipowick Dr. Ann Stewart Darryl Sturtevant Dr. Barbara Whylie 2 anonymous donors $500-$999 Dr. P.A. Adamson Carolyn Purden Anthony Guy Bethell Peter Blahnik Brenda Butters Jane Darville Jeffrey Dawson in honour of Scott Potter Robert G. Forsey Joanne Lamberton Elwood Langley Laura Mandryk Jerry Rippetoe in honour of Scott Potter Robert C. Smith Derek Vanstone William D. Wilson 1 anonymous donor

For the third consecutive year, we are proud to report that 100 percent of the members of the Casey House Board of Directors have generously supported the Rebuilding Lives Capital Campaign.

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Donors & Friends We would like to recognize and thank the following donors and sponsors who have generously made gifts to support Casey House programs and services during the fiscal year April 1, 2012 - March 31, 2013 Individual Donors $10,000+ Timothy Thompson and Matthew Campbell $5,000 - $9,999 Barry Appleton Peter Charlton Janice Copeland Tom Deacon Alex Eaton Brian Gluckstein Stanley I. Griffin Heather Killough Gerald Lunz and Rick Mercer Marco Mancini Ian V. Nordheimer Jeff Pellarin Gillian Stacey Heather and Joe Toby $1,000 - $4,999 Eileen Adams Heather Armstrong and Lance Rishor Paul Austin Daniel L. Bain, Thornmark Asset Management Gordon Baker Robert Bartlett Steven Baum Dr. Thomas Beechy Jim Belshaw and Frank Carroll Janet Bodley Mark S. Bonham and Scott Potter B. James Bottoms and Radek Trefny Glyndon Bowie Raymond Boyce Stephen Brunt and Jeanie MacFarlane Paul Bush John Burns and Edward Lee Nan Campbell Dr. Dean Carlson Brian Cartwright Christopher B. Cartwright Dr. Paul and Mrs. Joyce Chapnick Beverley Chernos Mauer Chiarello and Geoff Joyner 24

J. Gavin Clark Lynn Crawford Sandra Cruickshanks Caroline Dabu Brian Dawson Joseph DeFoa Emily DeMerchant Dr. Douglas Deporter Sean Doyle Alex Eaton Dr. Paul Ellis Steven Endicott Peter Erlendson Gareth Faulkner Victor Festing Andrew Fleming-Norton Rose Canada LLP Patricia Fletcher David Fotheringham Mark and Diane Fujita William Fulghum Gary Funderlich and Rob Ridgeway Paul Gauthier Robert H. Gibson Robert W. Gibson Jane Gill Anthony Giosi Dr. J. Lawrence Gitterman and John Gilchrist Dr. Christopher Graham William Graham John Grand Ian Grégoire Christopher Grimston Suellen Hanet Julie Hannaford Brian Harrison David Heden Neil Herber Sally Hill Timothy Hoey Brian Howard Judy Huber Alan Husdal Mark Hutchinson Rick Hynes

Mark Johnston Dennis Keefe and Dr. John Jordan Stephanie Karapita and O’Neil Smith Gale Kelly The Hon. Betty Kennedy John Kriter Spencer Lanthier Bruce Lawson Joshua Lawson and Michael Hathaway John Burns and Edward Lee James LeNoury Graeme MacGregor Jefferson and Sally Mappin Patrick Markey Robert Maisey Dr. Grant Maxted and Alex Salanga Dugald McArthur Martha McCain Martha McCarthy Mark McEwan Graham McLeod and Tim O’Fallon Shawn McReynolds and Elaine Kierans Todd Melendy Michelle Meneley Kirby Miller Graeme Mitchell Robert Mitchell Scott Mullin E. Llana Nakonechny John Nolan and Bruce Mayhew David Nosella Thomas O’Shaughnessy Perry Orestes Eugene Palermo George Papatheodorou Doug Paterson Laurie Pawlitza Neil Peart Brian C. Pel Dr. Andrew Plaitis - Metropolitan Dental David Pontarini David Pradana Bernice Pringle Brian Provini and Ron Harris

Judith Purves Dr. Linda Rapson Heather Richmond Douglas Rienzo Dave Ritchie Mark Robert Benny Romano Alan Rowe and Bryan Blenkin Kevin Rowe Geoff Rytell Andrea Sabada Sergio Sgaramella Brian Shackleton Alfred Shaw Albert Silver Dr. Graham Smith Tommy Smythe Philip Mitchell and Mark Narsansky Derek Sweeney Stephen Taylor - Taylor Made Designs David and Sheryl Tenszen Heather M. Thomson Mary Dawn Thomson Erika Toby-Wagner John Tossell and Victor Dwyer Beverley Vanstone Derek Vanstone Eva Varga Grace M. Vidal-Ribas James Walton John Wedler Geddy Weinrib Stewart Whittingham Ross Wight Alex Schroen and Elisa Williams-Schroen Steven Wilson and Michael Simmonds Andrew Wong Arthur Wong Moses Znaimer 5 anonymous donors

$500 - $999 Ashley Abbott Melanie Abbott Lorna Anderson Caroline Andrewes William and Ruth Aston Steven Bailey Vaidila Banelis Steven Baum Paul and Kathleen Beeston Marlett Bell-Smith Mary Best Andrew Braithwaite Ernest Brown Darrell Bruce Debbie Buchanan Noreen Burns Robin Cardozo and Jeff Richardson Richard Chong Caralyn Cipin Sherri Clarkson Patricia Conner Marion Cooper Dr. Paul Corey Dr. Brian Cornelson Brian Cornfoot Gary Cox Paul Crake Stewart Cuppage Tony D’Addario Diana Dampsy Christine Davis Kevin de Courcy O’Grady Donald Dodds Jane Donald Shirley Donnelly Peter Duck Robert Elgie Kenneth Everett John Flannery Carolyn Freeborough Yona Frishman Peter Garstang Ralph Giannone ANNUAL REPORT 2012-2013

Jonas Giesen Patti Goldberg Valerie Gow Michael Griffiths Gord Hamilton John Hanson Mark Hierlihy Ronald Hodgins Keith Holland B. C. Holmes Joan Hood Therese Howard Dana Humphrey Norman Hunt Peter Husar Kenneth Irvin Richard Ivey Colleen Jones Sandeep Joshi Ramsin Khachi Susan King Michael Klax Tracy Koetsier Wulfred and Lindsay Kronenberg Linda Kutchaw Michael Laine Donald Langill Dr. Bernard Lawless Guy Leduc Sam and Aasta Levene Brian MacDonald Ruth and Alex MacDonald Maureen Mahan Daniel Mark Anne McCreath John McEwan Alan McFarland Donald McKenzie Sheila McMorrow Del Milbrandt Garfield Mitchell Susan Mullin Steve Munro Glenne Murray

Jason Oord Sidney Peck Eduardo Pereira M.J. Perry James Peterson Ellen Pickering William Potalivo Guy Poulin Andrew and Valerie Pringle Jeffrey Remedios Bruce Retallick Paul Rodgers Fred Romain Paul Rowan Elizabeth Shropshire Karen Smiley Stephen Smith Christie Smythe Dr. Ann Stewart Lisa Tant Giani Tariello Courtland Thomson Kendra Toby Véronique Tomaszewski Kathryn van der Horden Brent Vickar Serge Vitale John Wallace Paul White Arren Williams Bob Wiseman Penny and Jim Williamson James Zibarras 6 anonymous donors Endowments Hortst Dantz and Don Quick Fund June Callwood Legacy Fund Paul de Hueck and Mary Davern Care for the Caregiver Fund The Basil King Fund The Bonham Operating Fund The Giovanni Giammanco Special Purpose Fund

The Futures Fund The Estate of Gerald D. Yanke Bequests The Estate of Valerie Brook The Estate of John Crang The Estate of Horst A. H. Dantz The Estate of Dorothy Edwards The Estate of Michael Gordon The Estate of Elise Margaret Hunter-Stevenson The Estate of Finley J. Johnston The Estate of Clifton Roberts Vera Dolly Denty Foundation The Estate of Gabriel Villada The Estate of Gerald D. Yanke Friends InDeed Legacy Society Geraldine Baird in memory of Katie Baird Jason Bazinet Keith Bell and Sassan Rod Raymond Boyce Rita Bush Mary Davern Emily DeMerchant Sean Doyle Graham Edwards in memory of Stephen Edwards In memory of Stephen A. Forester/Doreen Forester Jack Garlent Paul Gauthier Steven Gordon and Ronald Kemp Jack Hallam Larry Hoath Jaye and Vern Holland Mark Johnston Bernard and Helen Lamb Bruce Lawson Brian MacDonald and Graeme Marney George Marsland Stuart Mealey and Lorne Anderson Pearse Murray Stephen Muscat E. Llana Nakonechny Glenn Osborne in memory of Dean Jeffrey Kaiser Laurie Pawlitza 25

Susan Portner Brian Provini and Ronald Harris Carolyn Purden Anthony Bruce Retallick * Robert Churchill Smith Jaime Watt and Paul Ferguson Penny and Jim Williamson * Daniel Wright 16 anonymous donors (6 new donors) Corporations $50,000+ BMO Financial Group Manulife Financial TD Bank Group $25,000 - $49,999 Volvo Cars of Canada Corp.

Sun Life Financial $10,000 - $24,999 Abbott Laboratories Ltd. Barrick Gold Corporation GE Profile/Mabe Canada Inc. HSBC IKEA Jamieson KPMG M.A.C AIDS Fund Navigator Limited RBC Financial Group through RBC Foundation Rogers Communications Inc. Scotiabank Urbacon Winners Merchants International $5,000 - $9,999 Franklin Templeton Investments Corp.

Gilead Sciences Canada Inc. Great-West Life, London Life and Canada Life Green Shield Canada Merck Precision Trust Sionna Investment Managers TELUS ViiV Healthcare Shire Canada

$1,000 - $4,999

BBDO Canada Bennett Jones LLP Blake, Cassels & Graydon LLP Borden Ladner Gervais Brandfire Marketing Group Inc. Cadence Research Creative Visual Solutions Davies Ward Phillips & Vineberg LLP Dentons Ehvert Engineering 26

Gib-San Pools & Landscape Creations HBC II by IV Design Associates Industrial Alliance PHD Canada PricewaterhouseCoopers LLP Sage Investments Limited Samuel Group of Companies Skycon Developments Ltd. Tasco Distributors Torys LLP Employee and Community Groups $1,000+ BCG - Partners BMO Financial Group - Employees’ Charity Trust IBM Employees’ Charitable Fund Ontario Power Generation Employees’ Charity Trust Peel Elementary Teachers’ Local RBC Financial Group - Employees’ Charity Trust Rotary Club of Belleville Scotiabank Pride Employee Resource Volunteer Group York University

Community Events $20,000+ Toronto Real Estate Board’s Charity Golf Classic $10,000 - $19,999 Monogram Dinner by Design - Azure

$1,000 - $9,999

ArtMart - Canadian Lesbian and Gay Archives Scotiabank - Queen and Church Shane Bahng - Hästens Toronto Grand Opening $500 - $999 Diving for Life Liberato’s Tasty Treats The Church of St. Mary Magdalene The Healing Cycle Foundation

Event Sponsors and Gifts In Kind Absolut Elyx Air Sprint Akau Framing & Art Inc. Aramark Balloon Trix Bellosound $500 - $999 Bertani Bell Canada - Employees’ Charity Trust Bonhams Canada Rotary Club of East York brasstacksfilms.com TD Bank Group - Employees’ Charity Trust Bullet Digital Media Canadian House & Home Foundations Carolynn Lund-Mead $50,000+ Chedonline The Krembil Foundation Contemporary Furniture Rentals Inc. $10,000 - $24,999 Craig Samuel Photography The Horace W. Goldsmith Foundation David G. Broadhurst The Paloma Foundation Event Rental Group Posluns Family Foundation Exclusive Affair Rentals The Rotary Club of Toronto Charitable Foundation Feheley Fine Arts Audrey S. Hellyer Charitable Foundation Fero Transport Flash Reproductions $5,000 - $9,999 Glenn Bell Photography McLean Smits Family Foundation Jackie O Floral Affairs REALTORS Care Foundation Joe Toby Sir Joseph Flavelle Foundation Krups Canada The Tippet Foundation Le Creuset Canada Inc. The Toskan Foundation Lenox Loblaws at Maple Leaf Gardens $1,000 - $4,999 Lot 40 The Alastair and Jennifer Murray Foundation Mark J. Mooney & Associates Limited The Blema & Arnold Steinberg Family Foundation Mattamy Athletic Centre The BLG Foundation McCarthy Tétrault LLP Jackman Foundation Mereadesso The K.M. Hunter Charitable Foundation The Norman and Margaret Jewison Charitable Foundation Metropolitan United Church Nadege Patisserie Pace Family Foundation Navis Fine Art Packaging and Transportation Specialists The St. George’s Society of Toronto Charitable Trust Patty Watteyne Photography The W. P. Scott Charitable Foundation Penfolds

Perry Tung Proud FM 103.9 Razart Installation Services Inc. Ruby Watchco Shangri-La Hotel, Toronto Spafax Stemz Stephen Ranger Ted Healey tellingstorys.ca The Carlu The Estate of Gerald Ferguson The Estate of Will Munro The Globe and Mail The New Classical 96.3 FM Tiffany & Co. Toni Hafkenscheid Transcontinental Printing Umbra Up Inc. Waddington’s Westbury National Show Systems William Fulghum Design Associates Art with Heart Artists Kim Adams Shelley Adler Stephen Andrews Denys Arcand Matt Bahen Richard Barnes Roger Bellemare Heather Benning Charles Bierk John Brown Edward Burtynsky Paul Butler Douglas Coupland Chris Curreri Max Dean Kim Dorland Ric Evans Gerald Ferguson Greg Girard Sky Glabush Martin Golland Kym Greeley Jessica Groome Toni Hafkenscheid Adad Hannah Michael Harrington Joseph Hartman April Hickox Peter Hill Hanna Hur Daniel Hutchinson

Geoffrey James Laurie Kang Kris Knight Dariusz Krzeminski Melissa Kuntz James Lahey Angela Leach David Leventi An Te Liu Marianne Lovink Attila Richard Lukacs Corwyn Lund Annie MacDonell Medrie MacPhee Sean Martindale Linda Martinello Megan McCabe Erin McSavaney Ray Mead Kent Monkman Ron Moppett Matt Moreland Will Munro Aamna Muzaffar Andrew Myers Tibi Tibi Neuspiel Charles Pachter Alain Paiement Martin Pearce Rajni Perera Tim Pitsiulak Liss Platt Sandy Plotnikoff Jaan Poldaas Annie Pootoogook Ned Pratt Geoffrey Pugen Nicholas Pye Elise Rasmussen Anthony Redpath Jillian Ross Nicolas Ruel Francine Savard John Scott Andrew Smith Michael Smith Françoise Sullivan Sharon Switzer Team Macho Denyse Thomasos Diana Thorneycroft Winnie Truong David Urban Daryl Vocat Janna Watson Jacob Whibley

ANNUAL REPORT 2012-2013

You Can Help

Casey House continues to be recognized around the world as a leader in HIV/AIDS treatment, support and palliative care. Nobody should have to manage this devastating disease alone. For as long as we are needed, Casey House will be here, continually adapting to support the diverse health care needs of people living with HIV/AIDS in our community. But we can only do it with your help.

1 in 120 adult Torontonians is now HIV positive, with care needs expected to escalate as they age. We need your support today more than ever. Together, we’re opening the door to a new future of HIV/AIDS care.

Design: Sara Purves www.purvesandco.com Photography: Glenn Bell Research, Project Management: Kathleen Sandusky

PLEASE CONSIDER THE FOLLOWING THREE WAYS TO GIVE TO CASEY HOUSE:

TO MAKE OR RENEW YOUR GIFT – ONE-TIME, MONTHLY OR ANNUALLY:

1. Support Ongoing Programs & Services Make a one-time or monthly donation to our ongoing programs and services.

• Use the enclosed donation card and envelope

2. Make a Generous Rebuilding Lives Capital Campaign Gift Pledge a gift to our Capital Campaign, helping to transform the future of HIV/ AIDS care in our city.

• Call us any time: 416-962-4040 ext. 232 heart@caseyhouse.on.ca

3. Estate Planning You can help to ensure your legacy of caring and compassion continues long after you are gone. Please remember Casey House in your will and estate plans.

• Donate quickly and securely online at www.caseyhouse.com

TO FIND OUT MORE ABOUT INCLUDING CASEY HOUSE IN YOUR WILL AND ESTATE PLANS, PLEASE CONTACT:

CONTACT US ANY TIME: 416-962-4040 ext. 232 heart@caseyhouse.on.ca www.caseyhouse.com Casey House 9 Huntley Street Toronto, Ontario M4Y 2K8 info@caseyhouse.on.ca Casey House Foundation 119 Isabella Street Toronto, Ontario M4Y 1P2 heart@caseyhouse.on.ca

Charitable Registration No. 10687 8374 RR0001

Tracy Hatten 416-962-4040 ext. 233 thatten@caseyhouse.on.ca

27

It’s no coincidence that the symbol of Casey House is a heart. For me, the first thing you see when you walk through the door is that heart. It’s the kindness, it’s the smile that you’re greeted with, it’s those core values that June Callwood taught us that are still exactly the same. They’ve been there since 1988 and they’ll be there when we have a brand new door on a brand new building. That’s what Casey House is about - it’s all about heart.

YTommy Smythe, Committee Volunteer

Watch the video at caseyhouse.com

Exemplary compassionate health care for people living with HIV/AIDS www.caseyhouse.com

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25together years

25together years Sept–Oct 1981

March 1982

Sept 29, 1985

Oct 1986

Canadian media outlets begin to report the emergence of a new disease, referred to as “the gay cancer.”

Inaugural meeting of the “AIDS hospice steering committee” to plan the first AIDS hospice in Canada.

Representatives from the AIDS Committee of Toronto and Holy Trinity Church attend, as does June Callwood.

Feb 1987

The first DQ event is held, raising $38,000 – almost precisely the outstanding amount required to purchase 9 Huntley Street.

March 1987

Less than six months after incorporation, the fledgling volunteer committee has met its $500,000 goal. The property at 9 Huntley Street is purchased and renovations begin.

March 1, 1988

One year after purchasing the property, Casey House opens with a ribbon-cutting ceremony.

March 1, 1989

In its first year, Casey House admits 93 residents and records 74 deaths.

The Ministry of Health more than doubles the Casey House operating grant, to $2.3 million annually.

1993

By the fifth anniversary, deaths remain consistent at around 80 percent of admissions. AZT remains the primary treatment.

Chaired by Richard Silver, the first Art with Heart event is held, in the parking lot next to Casey House.

July 1996

A new class of drugs called Highly Active Anti-Retroviral Therapy (HAART) is introduced as the new standard of care.

It is a vast improvement over past treatments, but to this day, there is no cure.

2001

Outreach programs for streetaffected and marginalized populations are launched. A Casey House nurse staffs the Sherbourne Health Centre health bus once a week, providing access to specialized HIV/AIDS clinical care.

Feb 2003

For Casey House’s 15th anniversary, SnowBall is launched as an annual fundraising event.

2005

Planning for a new Day Health Program begins.

2008

The number of HIV-positive Canadians has risen to 65,000, up from 57,000 in 2005 (a 14 percent increase in three years).

June 2010

The Ontario Ministry of Health and Long-Term Care agrees to fund the majority of the costs of a new Day Health Program, upon occupancy of the new building.

Sept 2011

The Ontario Government confirms that the Casey House Redevelopment Project is included in their multi-year infrastructure plan.

Oct 2012

Casey House receives approval from the Ministry of Health and Long-Term Care to begin a detailed design of the planned redevelopment at 571 Jarvis Street.

caseyhouse.com

The first report of a diagnosis of AIDS in Canada. By 1984, the number of reported cases in Canada has grown to 147.

Casey House Hospice is incorporated and registered as a charity. It is named after Casey Frayne, June Callwood’s young son who had been killed by a drunk driver four years earlier.

Jan 1987

The Ontario Ministry of Health agrees to fund $1 million for the purchase of the building at 9 Huntley Street, provided that Casey House can raise the remaining $500,000. The province also requires that Casey House be affiliated with St. Michael’s Hospital and that the budget be limited to $1 million annually.

Feb 1988

A team of 17 nurses is hired and trained. Included in their training are innovative and groundbreaking standards of care pertaining to HIV/AIDS and end-of-life care.

1989

An estimated 30,000–50,000 Canadians are infected with HIV.

Oct 21, 1991

Diana, Princess of Wales, visits Casey House, spending time with each resident. The event is broadcast worldwide and does much for AIDS awareness and myth-busting.

June 1993

Casey House doubles its patient load by introducing the Home Hospice program, funded entirely by donors.

Prognosis is still grim: of 202 clients cared for, 157 die.

March 1995

The seventh annual DQ event is held, raising $120,000. The cause is deeply personal: by this year, over 20 percent of the original DQ cast members have died, many at Casey House.

1999

With more clients able to be discharged to home with nursing care, Casey House increases the capacity of its donor-funded home nursing program from 33 to 100 people daily.

2003

The Casey House child-care fund is established to help families - especially women access HIV health care. The property at 571 Jarvis Street is purchased so that Casey House may expand its care.

As planning gets underway, office space in the property is leased to AIDS service organizations.

Aug 2006

The International AIDS Conference is held in Toronto.

Casey House presents at numerous events and symposia and highlights the changing needs of an increasingly diverse population affected by HIV/AIDS.

Oct 2010

Casey House launches a $10 million capital campaign to supplement the Ministry of Health and Long-Term Care’s commitment to fund most of the building costs for the new facility.

2012

Casey House formalizes outreach program partnerships with the Prisoners with HIV/ AIDS Support Action Network (PASAN), the Hassle Free Clinic, the People with AIDS Foundation and the AIDS Committee of Toronto in order to provide specialized HIV nursing care at partner clinics.