November • December 2012 Issue 61
Life at the chalk face
How will teachers meet the challenge of SEN reforms?
The changing role of the SENCO
Is a difficult job about to get harder?
Unlocking lives Helping those with PMLD to reach their potential
SEN and mental health • how to complain about schools • spina bifida autism • dual or multiple exceptional children • dyslexia • equine therapy creative arts • SEN news, CPD, events, recruitment and much more...
this issue in full
November • December 2012 • Issue 61
Editor’s letter Like it or not, we live in interesting times. The world of special educational needs is going through its biggest upheaval for thirty years, with legislation and official guidance issuing forth at an unprecedented and, some might say, alarming rate.
In this issue of SEN Magazine, we have three articles looking at different aspects of the SEN reforms. Alison Ryan examines how new legislation will affect schools and teachers (p.18), Lorraine Petersen looks at the changing role of the school SENCO (p.48) and Amelia Roberts asks if planned changes will leave children and young people without the additional support they need (p.47).
The Government’s appetite for change is seemingly insatiable, its determination to move quickly, unwavering. Depending on your point of view, this may seem either admirable or foolhardy. One thing is for sure: all the talk and all the activity of our “interesting times” have put SEN firmly on the political agenda. We now have a once-in-a-generation chance to dramatically improve the lives of large numbers of children, young people and their families.
Elsewhere in this issue, you will find articles on subjects ranging from dyslexia (p.26) to autism (p.40), and from mental health (p.55) to PMLD (p.60). There is also a useful guide for families on exactly how to seek redress in the event of a problem with a school (p.70).
There remains, though, a very real fear that the opportunity will be squandered or, worse still, that cuts to services will force many of those with SEN and their families into even greater isolation and hardship.
As always, you can follow the latest from the world of SEN on our website (www.senmagazine.co.uk) or join the debate on our Facebook and Twitter pages. If you have an opinion or experience to share, please don’t hesitate to get in touch.
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SEN news
12
What’s new?
16
Point of view
18
SEN reforms
22
Dual or multiple exceptional children
26 Dyslexia 30
Alternative approaches to dyslexia
36
Equine therapy
38
Creative arts
40 Autism 47
The end of School Action
48
The role of the SENCO
52
Spina bifida
55
Mental health and SEN
60 PMLD 66 Behaviour 70
How to complain about schools
73
About SEN Magazine
74
Book reviews
76 Recruitment 78
CPD and training
88
SEN resources directory
90
SEN subscriptions
CONTRIBUTORS Lilias Ahmeira Rachel Allan
Peter Sutcliffe: Editor editor@senmagazine.co.uk
Maria Chivers Martha Evans Alex Mason Ali Mawle
Contacts DIRECTOR Jeremy Nicholls EDITOR Peter Sutcliffe editor@senmagazine.co.uk 01200 409 810 ADVERTISING SALES Denise Williamson - Sales Manager denise@senmagazine.co.uk 01200 409 808 MARKETING & ADMINISTRATION Anita Crossley anita@senmagazine.co.uk 01200 409 802
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Mary Mountstephen Subscription Administrator Amanda Harrison amanda@senmagazine.co.uk 01200 409 801 DESIGN Rob Parry - www.flunkyfly-design.com design@senmagazine.co.uk Next issue deadline: Advertising and news deadline: 3 December 2012
Margaret Pazdzierski Lorraine Petersen Gobi Ranganathan Amelia Roberts Alison Ryan Janet Trebilcock Trisha Waters
Disclaimer
Maggie Wilson
The opinions expressed in SEN Magazine are not necessarily those
Patrick Wilson
of the publisher. The publisher cannot be held liable for incorrect information, omissions or the opinions of third parties.
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SEN Magazine ISSN: 1755-4845
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In this issue
Autism 18
40
55
Mental Health
Meeting the SEN challenge
55
How will Government SEN reforms affect schools?
22
26
Young, gifted and special The complex world of the dual or multiple exceptional child
60
Know your brain
66
Alternative approaches to dyslexia
From the art Reaching out to children with PMLD through multisensory arts workshops
40
A brief history of autism
48
Farewell to School Action
70
How to complain about schools Where can parents seek redress if they are unhappy with a school?
Regulars 6
16
SEN news What's new? The latest products and ideas from the world of SEN
Point of view Your opinions aired
Will the abolition of School Action leave many children without the support they need?
74
The changing role of the SENCO
76 Recruitment
Is a difficult job about to get harder?
52
Feelings into words Using therapeutic storywriting to help troubled children deal with their emotions
12
The big ideas that have shaped our ever-changing understanding of autism
47
Unlocking lives
Riding high How equine therapy is transforming the lives of children on the autistic spectrum
38
Healthy mind, everybody
A multi-disciplinary approach to PMLD
Can ideas from complementary and alternative medicine help those with dyslexia?
36
60
PMLD
Supporting the mental health needs of pupils with complex SEN
Understanding the workings of the dyslexic brain
30
Nov • Dec 2012 • Issue 61
78
Follow us on
CPD and training Your essential guide to SEN courses, seminars and events
Part of the team How an inclusive education taught one student to deal with his spina bifida and achieve at school
Book reviews
88
Visit us at:
SEN resources directory
www.senmagazine.co.uk
Join us on
18 SEN reforms 22 Dual or multiple exceptional children
26 Dyslexia 38 Creative arts
In the next issue of SEN:
autism • assistive technology CReSTeD/dyslexia • post-16 options outdoor activities • hearing impairment wheelchairs/mobility • Down syndrome SEN overseas and much more...
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SEN NEWS
Government’s SEN legislation revealed The Government has published draft legislation on its reform of provision for children and young people with SEN which will be included in the Children and Families Bill, expected in 2013. This follows the Department for Education’s (DfE’s) SEN Green Paper, Support and Aspiration, of March 2011 and its Next Steps document published in May 2012. As expected, the proposals include a duty for local authorities and health services to work together on joint commissioning of provision for children and young people with SEN and a requirement for local authorities to publish details of provision available in their area. Parents are to be given the option of a personal budget to buy-in provision for their child. The right to support for those with SEN between the ages of 16 and 25 years is to be extended and further education colleges and all academies are to have the same duties as maintained schools to provide educational support for children and young people with SEN. The Draft legislation on Reform of provision for children and young people with Special Educational Needs can be found at: www.official-documents.gov.uk/document/cm84/8438/8438.pdf
Families losing battle for support Families with disabled children are at “breaking point” because they are not getting the support they need. Following the publication of the Government’s draft Children and Families Bill, a number of leading charities have come together to warn of a chronic shortage of services at a local level. The charities, including Scope, The National Autistic Society, Sense, 4Children and The Family and Parenting Institute, say that the changes in the Bill do not go far enough and will not protect those with disabilities and SEN from massive cuts to services. Scope has published a new report, Keep Us Close, based on the experiences of 600 parents of disabled children. The report shows that 62 per cent of families with disabled children are not getting critical support such as childcare or nursery places, appropriate schools, essential therapies or even healthcare in their local area. Nearly half of parents (49 per cent) said they had to wait a long time before they received any support. The process of getting their child the right services was described by 60 per cent of respondents as a “battle”. Of the families who were unable to access services locally, 80 per cent said it caused them stress and anxiety. More than half (51 per cent) said it had a negative impact on their ability to work and meant they missed out on family activities, such as birthdays and playing together. Welcoming Scope’s report, Mark Lever, Chief Executive of the National Autistic Society, said that “too many parents of SENISSUE61
children with autism have to battle to get their needs recognised, understood and met.” Mark Goldring, Chief Executive of Mencap, echoed these sentiments, saying that people with learning disabilities and their families “have real fears about their finances in the future.” The draft Bill, the SEN Green Paper of 2011 and a number of other Government initiatives have done much to raise the profile of SEN and disability issues and place them on the political agenda, yet many campaigners fear that ministers are missing the chance to push through the kinds of reforms that would make a dramatic difference to the lives of young people and their families. “The Government has a once-in-a-generation opportunity to end the daily struggle parents of disabled children face”, says Richard Hawkes, Chief Executive of Scope. However, he warns that at the moment, the Bill “doesn’t go far enough and won’t plug the gaps in local services that families with disabled children desperately need.” www.senmagazine.co.uk
SEN NEWS
Schools to lead on safeguarding Primary schools should play a greater role in safeguarding vulnerable children, says the Children’s Commissioner Maggie Atkinson. Against the backdrop of cuts to services and changes in government guidance and legislation, schools must become more involved in spotting and helping children at risk of abuse or neglect.
NICE standards in autism care The National Institute for Health and Clinical Excellence (NICE) is to produce quality standards for the care of those with autism. NICE quality standards set out what the Institute calls “aspirational but achievable care through measurable statements and indicators.” The move is part of the expansion of NICE’s remit to include social care. The Department of Health has agreed an initial list of joint NHS/social care topics for NICE to start working on. In addition to autism, these will include transition between health and social care, child maltreatment and transition between children and adult services, as well as other areas primarily affecting older people. The move follows proposals set out in the recent Care and Support White Paper to improve the quality of care and support, integrate services and ensure a more consistent approach across the country. NICE will seek to develop a stronger evidence base to determine what high-quality care looks like for service users, care providers and those commissioning services. The agency will consult with the care and support sector, people using care and support, and their families and carers, before publishing its standards for autism in 2013/14.
Ms Atkinson commissioned the NSPCC to conduct a review of safeguarding in schools, looking at best practice and how schools work with outside agencies. The report points to early identification as the key to helping children most at risk. It says that teachers are uniquely placed to spot potential issues with pupils and drive the safeguarding process forward. Alongside the report, You have someone to trust - Outstanding safeguarding practice in primary schools, the Children’s Commissioner has also published practical tips for teachers based on the NSPCC findings. While the Commissioner believes that most primary schools “do a good job identifying and supporting children recognised as vulnerable and at risk”, more needs to be done by schools as cuts to local council services take effect, potentially placing greater numbers of children at risk. “This report and the accompanying practical tips for schools come at a time when local authorities and other support agencies are under financial pressure which is impacting on support services, and many families are facing greater challenges in the current economic climate”, says Ms Atkinson. Together, the documents are aimed at helping education professionals identify and support children they are concerned about and develop a whole school approach to safeguarding. The report and practical tips document can be found at: www.childrenscommissioner.gov.uk
New model for AAC provision A new model for delivering augmentative and alternative communication (AAC) equipment to those who have difficulty speaking is being championed by AAC specialists Communication Matters. Welcoming the Government’s decision to accept the recommendation of the Clinical Advisory Group for Prescribed Services that specialised AAC services and equipment should be nationally commissioned from April 2013, the charity is urging ministers to adopt a new “hub and spoke” model for service delivery. This which would see NHS commissioning boards take responsibility for the most complex AAC cases via regional hubs, while local health and wellbeing boards commission the vast majority of services. The charity’s Chair, Janice Murray, argues that AAC provision is currently subject to a “postcode lottery”, with a shortage of www.senmaGAZINE.co.uk
specialist professionals and constant battles between education and health services over whose responsibility it is to meet local AAC needs. “Every person has the right to a voice, yet many people are currently being deprived of this because they aren’t being supplied with the equipment and support services which enable them to speak”, says Dr Murray. The charity estimates that 260,000 children and adults will need AAC at some point in their lives, with around ten per cent of those with the most complex needs requiring access to specialised AAC services and equipment. The “hub and spoke” model has been developed by Communication Matters in association with the Government’s former Communication Champion Jean Gross. www.communicationmatters.org.uk SENISSUE61
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SEN NEWS
New exams discriminate against dyslexics The new English Baccalaureate Certificate, which is to replace GCSE examinations, will have a detrimental effect on those with specific learning difficulties such as dyslexia, claims a leading charity. Under plans announced by Education Secretary Michael Gove, the GCSE’s mix of external exams, course work and internal assessment will be replaced by a single external exam at the end of the course. The British Dyslexia Association (BDA) is concerned that the new exam will severely disadvantage learners with dyslexia who do not perform at their best in exams. Many people with dyslexia have problems processing information quickly and accessing and recording written information. These difficulties can be exacerbated by stress in examination conditions, making it hard for students with dyslexia to fully demonstrate their knowledge and understanding of a subject in a one-off, timed examination. “These plans will create an additional barrier for dyslexic students to continue on to higher education”, says Dr Kate Saunders, the charity’s CEO. “Course work is generally a much fairer method of assessment and constitutes a reasonable adjustment for these students”. The English Baccalaureate Certificate is due to be introduced for the core subjects of English, maths and sciences from 2015, with the first candidates taking the new exams in 2017. The Government is planning to introduce the Certificate for history, geography and languages at a later date, and is currently consulting on including other subjects in the programme.
Don’t scrap GCSEs, say teachers Only 22 per cent of teachers in England support the Government’s plans to scrap GCSEs in favour of the new English Baccalaureate Qualification, and 50 per cent oppose the change, according to a new survey. The results of the YouGov poll show that teachers are particularly concerned at the loss of the continuous assessment element in GCSE’s. Under the new Qualification, grades will be based solely on final examination, but 74 per cent of teachers in England believe that results should reflect a combination of exams and coursework. A recent public opinion poll by YouGov showed little support for the Government’s proposals outside of education circles, with 64 per cent of the public saying they prefer the old system of combining final exams and coursework, and only 28 per cent supporting the change to basing marks solely on a final exam. SENISSUE61
Pupil premium is not working Schools are failing to use money from the pupil premium to provide extra support to pupils from disadvantaged backgrounds, says a new report by Ofsted. While the funding is provided to help schools improve outcomes and raise achievement for these pupils, many schools are subsuming pupil premium funding in their general budgets and using it to maintain or enhance existing provision. The report, The Pupil Premium, found that the most common use of the funding was to pay for classroom support staff, with over two fifths of school leaders surveyed saying that they used the money to pay for existing or new teaching assistants. Half of schools said that the pupil premium was making little or no difference to the way they work. The pupil premium, introduced in April 2011, currently provides schools with £600 a year for each student eligible for school meals or in care. While schools are free to spend the money as they see fit, the Government is clearly keen to ensure that the extra funding is being targeted at those pupils it is intended to help. As of September this year, it is requiring schools to publish online information about how they have used the premium. Ofsted has also announced that, in future, its inspections will pay closer attention to how effectively schools are using the pupil premium to make a difference for disadvantaged pupils, and how governors are holding schools to account for this spending. In a statement, the Government’s education watchdog says it “will be critical of schools that are not achieving well for their disadvantaged pupils”.
New child mental health initiative The Department of Health is to fund a consortium of experts to deliver a £2.2m educational and advice programme to improve mental health outcomes for children. Based around an online interactive portal, the initiative will aim to support professionals to identify the signs of mental health issues and speed up diagnoses. Targeted at those working in the NHS, early years, education, social work and the police, the scheme will also seek to ensure that the messages professionals give to children and young people about mental health are consistent and concise. The consortium will be headed by the Royal College of Paediatrics and Child Health and will also include the National Children’s Bureau, children’s charity YoungMinds, Royal College of Psychiatrists, Royal College of Nursing, Royal College of General Practitioners, and British Psychological Society. The e-portal, due to be launched in Spring 2014, will provide e-training resources tailored to both health professionals and non-health professionals working with children and young people. It will also include aids to evaluate outcomes, and suggestions for appropriate therapies and additional resources to support treatment. The consortium will work alongside The British Association for Counselling and Psychotherapy, which will deliver e-learning materials relating to counselling for the programme. www.senmagazine.co.uk
SEN NEWS
Communication is the key for deaf children
Help for schools with dyslexia and SpLD
Ofsted has produced a guide to best practice in services supporting deaf children. It highlights the importance of access to wellcoordinated support across a range of agencies.
A free online resource has been developed to help education professionals understand the skills and knowledge they need to support those with dyslexia and specific learning difficulties (SpLD).
Service provision must be grounded in the principal that all deaf children have an entitlement to communicate and be communicated with which is fundamental to their development and progress, the report says. Communication is the key examined practice in services supporting deaf children in three local authorities. It found that early diagnosis and timely support of those identified with hearing impairments were crucial, citing the example of children diagnosed as deaf shortly after birth benefitting from the newborn hearing screening programme. Inspectors reported that communication was well-established between health and specialist education support services in each of the authorities visited. They also discovered examples of effective working across local authority boundaries to enable children to attend the right school for them. When children were diagnosed early, placed in the right school, with parent or carer involvement and with the right support, deaf children could achieve just as well as their hearing peers, Ofsted found. While the report includes many examples of effective cooperation between agencies, it recognises that some deaf children do not get a joined-up service and that provision can be patchy. The National Deaf Children’s Society (NDCS) has gone further, with a spokesperson for the charity claiming that many deaf children “are invisible on the social care radar in many areas, before cuts come into force.” The charity fears that proposed changes to social care guidance and further cuts to local services “threaten to make a bad situation worse”. In the next issue of SEN Magazine Jo Campion, Deputy Director of Campaigns at the NDCS, will discuss the implications of Ofsted’s report and the likelihood of local authorities being able to meet the best practice standards it sets out.
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The Professional Development Framework, commissioned by the Department for Education and designed by Dyslexia Action and PATOSS, is a self-assessment tool providing users with a personalised report based on a gap-analysis of their confidence in key areas related to dyslexia and SpLD. This report defines the levels of expertise, understanding and professional competencies that are required to fulfil relevant job roles in the school. It also provides suggestions for appropriate continuing professional development (CPD), including key books and articles, resources, work place activities and online resources. The Framework can be accessed at: http://framework.thedyslexia-spldtrust.org.uk
Epilepsy education award Nominations are open for Young Epilepsy’s newly-launched Champions Awards. The charity is seeking to recognise the outstanding contribution that many individuals and organisations make towards improving the lives of young people with epilepsy. There are ten Awards up for grabs, with one focussing specifically on education. The Education Award is for anyone working in the sector, including SENCOs, teachers, teaching assistants and headteachers. The winners will be announced on 26 March 2013 at a ceremony in London. Awards will be presented by Philip Martin-Brown, from TV’s Waterloo Road, who has epilepsy. The charity launched the Awards at its recent Complex Epilepsy conference in Solihull. For more information and to make a nomination, visit: youngepilepsy.org.uk
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SEN NEWS
Toolkit to promote inclusive sport A new online toolkit has been developed to help sports clubs improve opportunities and provision for those with disabilities. The English Federation of Disability Sport (EFDS) has unveiled its free-to-use Inclusion Club Hub, which includes an audit tool so that clubs can find out how inclusive they are, and resources to support club development. The Hub also provides information on technical issues and help with areas such as planning and developing a club action plan. The toolkit contains case studies and better practice examples, so clubs can learn from others and adapt their practice accordingly. Recent research by the EFDS, Understanding the Barriers to Participation, revealed that there are a number of minor improvements a club can make to help disabled people feel more comfortable and welcome. Examples include, “being open and direct towards disabled people, asking the level of support needed to be able to take part in the sport and slightly amending standard practices.” For more information, visit: www.inclusion-club-hub.co.uk
Baroness Grey-Thompson (centre front row) with Energy Club leaders.
Baroness Grey-Thompson launches kids’ lifestyle initiative Paralympic legend Baroness Tanni Grey-Thompson was at the House of Commons in October to launch Energy Club, an extracurricular physical activity scheme for children aged between four and 11 years old. Energy Club aims to ensure a lasting legacy from the Olympic and Paralympic Games by tackling the increasingly sedentary lifestyles of young children. Targeting primary schools across the UK, Energy Club offers free activity sessions which include healthy eating and nutrition messaging led by a trained volunteer force. Volunteers are being recruited by the charity and social enterprise Sports Leaders UK, of which Baroness Grey-Thompson is President. Volunteers will be parents and members of school networks, including young adults and recruits from major corporations.
Spellathon goes live online The annual spelling competition organised by learning disability charity Mencap is now live online. Schools are invited to sign up for Spellathon, where pupils can compete against their peers, other classes and schools across the UK.
“Energy Club is an exciting opportunity as our country moves forward from a fantastic summer of sport”, said Baroness GreyThompson. “This scheme builds on the great volunteer movement we saw during the Games”. The new programme is being funded by the Government’s Cabinet Office through the Social Action Fund with an initial grant of £900,000, which provides the scheme for 900 schools. To increase its reach, the project will need to attract additional funding from the commercial sector.
A cash prize of £10,000, donated by the event’s online partner Digital Giving Ltd, is up for grabs for the school raising the most money per pupil. Spellathon offers a range of interactive games which include more than 10,000 words on which children can be tested. The games feature animated bees voiced by Stephen Fry and actress Jodie Whittaker. The site also includes resources for teachers to help improve their pupils’ spelling ability.
News deadline
Deadline for news items for next issue: 03/12/2012 Email: editor@senmagazine.co.uk Tel: 01200 409810
More information is available at: www.spellathon.net SENISSUE61
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SEN NEWS
Kids are not getting unsupervised outdoor play This summer, nearly three-quarters (72 per cent) of children of primary school age either did not go outside to play unsupervised at all or went only “a few times”, according to a new survey by online research provider Lightspeed Research. This is despite the fact that 85 per cent of respondents said they live within a 15 minute walk of a municipal park or other child-oriented playing area that can be accessed for free.
New animations to empower deaf young people
The survey found that while parents are keen for their children to enjoy unsupervised play, their concerns about safety mean that they are reluctant to let children go off and do their own thing.
The National Deaf Children’s Society (NDCS) has produced three new animations aimed at giving deaf teenagers better information about the support available to them when they are making decisions about their future. The animations, produced in conjunction with deaf young people, focus on key times in the lives of young people, including exam time, making a decision on college and deciding whether to take an apprenticeship.
Of the 1000 adults surveyed, 38 per cent said their children are not allowed to play outside without supervision. More than threequarters of these parents (76 per cent) said that this is because their children are simply too young to be unsupervised outside the home, while 50 per cent cited “stranger danger” and 31 per cent fear of accidents as the primary reason.
The project was launched in response to the latest figures showing the attainment gap between deaf and hearing children, which revealed that 60 per cent of deaf children fail to get 5 GCSEs at grades A* to C, compared to 30 per cent of hearing children. Research by the National Foundation for Educational Research also showed that parents’ aspirations for their deaf children fall short of their realistic expectations: 66 per cent of parents of deaf children said they hoped their child would go to university but only 22 per cent thought this would actually happen.
Adults said they would be less cautious if unsupervised play was made safer, with 74 per cent of all respondents supporting the idea of local authorities closing a small number of streets for short periods during the summer holidays to allow children to play unsupervised with one or two adults present. If such a scheme were available, 81 per cent of adults said they would allow their children to play in the street.
The animations are available at: www.buzz.org.uk/myfuture
Teaching Awards honour PMLD champion
Nowhere to turn for teenage self-harmers
A headteacher from Ayr has been recognised by the prestigious Teaching Awards for her work with children with profound and multiple learning disabilities (PMLD). At a star-studded ceremony Lorraine with her Lifetime in London this October, Achievement Award. Lorraine Stobie, Headteacher of Southcraig Campus, was presented with the Ted Wragg Award for Lifetime Achievement.
Most young people and their parents do not know how to find support if they are involved in self-harm. Despite a dramatic increase in the number of teenager self-harming over the last ten years, three quarters of young people do not know who to talk to about the issue, while a third of parents say they would not seek professional help if their child was self-harming. These are the finding of new research conducted by pharmaceutical and health marketing company Cello, in partnership with UK mental health charity YoungMinds. The study, talking self-harm, also reports that nearly half of GPs feel that they don’t understand young people who self-harm, while two thirds of teachers do not know what to say to young self-harmers. In response to the report’s findings, the charity has put together a set of recommendations for parents, teachers, peers and health professionals on how to best identify and support at-risk and self-harming teens. The full report is available at: www.cellogroup.com/pdfs/talking_self_harm.pdf www.senmaGAZINE.co.uk
Lorraine is well known throughout Scotland and beyond as an expert in the education of children and young people with PMLD and complex physical conditions. During a 35-year career in her hometown of Ayr, she has been an inspirational leader who has challenged the previously held view that some children could not be educated. Many of Southcraig’s pupils suffer from life-limiting conditions and Lorraine has become an expert in bereavement and ways to support families when children die. The judging panel referred to the “immense impact” of Lorraine’s work locally, nationally and internationally. Colleagues described her as “a visionary” who is much admired and widely respected. SENISSUE61
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WHAT’S NEW?
What’s new?
A dream tour of cave systems and subterranean cities
Henshaws welcomes head of Education Funding Agency
RSD Travel Ltd is running an exciting and breathtakingly beautiful journey of discovery to Cappadocia. An area of outstanding natural beauty, Cappadocia represents the perfect symbiosis of humankind and nature. Led by professionally qualified RSD travel guides, you will be able to gain a vivid and fascinating impression of Christian history.
As part of a visit to discuss the challenges ahead for funding students with disabilities at specialist colleges, Peter Lauener, the Head of the Education Funding Agency, recently spent a morning at Henshaws College.
One highlight of the tour is Göreme, famous for its cave churches. This unique complex of rock formations was listed a UNESCO World Heritage Site in 1985. For more information about RSD’s tours, call: 0800 323 4811 or visit: www.rsd-travel.co.uk/senmagazine
Load2Learn – helping staff support learners with difficulties reading standard print Load2learn.org.uk, the new online service delivered by Dyslexia Action and RNIB, now has over 1700 downloadable, accessible curriculum materials for all key stages. It helps staff support learners who struggle to read standard print (dyslexic, partially sighted or blind) to access text more easily. It also offers over 1000 images for download, along with digital books in different formats (word, audio, Braille). It enables students to work more independently, improving selfconfidence and increasing learning. Load2Learn can also help schools meet the requirements around the Equality Act (2010). Tel: 0300 303 8313, email: info@load2learn.org.uk or visit: www.load2learn.org.uk
Experia announce sensory first Experia has announced the launch of the Sensory Express, the world’s first train themed portable sensory solution. Designed to be fun, exciting and educational, the Sensory Express includes state-of-theart sensory equipment that can be used to develop a variety of life skills, such as cause and effect, colour recognition, vocalisation, tracking, and fine and gross motor skills. Its appearance delights and attracts children of all ages and abilities encouraging anticipation and helping to create a willingness to learn. For more information, visit: www.experia-innovations.co.uk SENISSUE61
He witnessed first-hand how Henshaws is using assistive technology to support students. Third year student Nathan uses eye gaze technology to communicate and invited Mr Lauener to try the device for himself. This quickly highlighted the level of determination and support required to use this technology successfully. Mr Lauener also enjoyed hearing students talk about their enthusiasm for sport following the Paralympics. www.henshaws.ac.uk
Rewarding experiences for Wilsic Hall students Wilsic Hall School prides itself on how it prepares its students for the complex world of work. Students are given regular opportunities to gain knowledge and understanding of work and enterprise. Students learn for work by developing skills for enterprise and employability, and go on to learn through work with opportunities provided in school and the local area. Students have recently undertaken work experience in offices, retail establishments, cycle repair workshops and elderly care homes. These experiences are not only rewarding for the students but they also enable the wider community to gain a better knowledge of the young people Wilsic Hall supports. www.hesleygroup.co.uk
Team Teach training from Protocol Education With so many schools asking Protocol Education for professionals trained in Team Teach, it was only a matter of time before they took matters into their own hands. Trisha Brook, Protocol’s special needs and support training expert explains: “We realised that the only way we could hope to keep up was by becoming trainers ourselves. We are now able to train teachers and support workers in Team Teach and now hold regular training sessions across the country to make sure there is a steady supply of candidates for all of our schools.” For more information, visit: www.protocol-education.com www.senmagazine.co.uk
WHAT’S NEW?
Anna Kennedy scoops Mumpreneur award Anna Kennedy OBE, the autism campaigner and founder of Hillingdon Manor School, has won the Mumpreneur UK 2012 award, while Anna Kennedy online was also shortlisted for Best Interactive Service. Each year, Mumpreneur UK present awards to some of the UK's most inspiring women who are both mums and successful in business. The 2012 awards ceremony in Warwickshire was attended by a host of inspirational women, including fashion guru Karen Millen OBE, Claire Young, a finalist from The Apprentice, and Anne Summers’ Managing Director Vanessa Gold. For more information, visit: www.annakennedyonline.com
CapturaTalk for Android™ CapturaTalk for Android™ is the ultimate literacy support tool to help build word recognition, vocabulary skills and reading fluency. Whether you are in education or simply need assistance with reading, CapturaTalk for Android™ is the solution for all your needs. • Type and speak with the talking word processor • Web, PDF and eBook reading with synchronised colour highlighting • Translate text into over 20 languages • Add voice notes • Save text as audio files • OCR to take a picture and hear the words read aloud • Fully integrated dictionary • Free 30 day trial at: www.capturatalk.com
Easy and funny SEN action songs CD SEN Music Stars have released a new CD and book with action songs created specially for children with SEN. Suitable from Year 1 to post-16 SLD, it has been described by one special school teacher as “one of the best ready-made resources I’ve found for my pupils”. Music Stars have an introductory offer: buy the CD only and have the words emailed to you (thereby saving postage). To take advantage, send your name, address and email address, with a cheque for £6 payable to “Sutton Arts”, to Batts Farm, Batts Lane, Long Sutton, Somerset TA10 9EQ. For more information and to listen to samples, visit: www.senmusicstars.co.uk www.senmagazine.co.uk
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Prestigious award for OKI printers The new range of OKI single function colour and mono printers, and the multifunction devices, has won the coveted PC Pro Excellence award in the category for best laser after outstanding scores of 97 per cent for print quality and an industry leading score of 91 per cent for reliability. More than 11,000 readers voted in this year’s survey rating each product or service on a number of factors, such as performance, reliability or value for money. These answers were converted to numeric values to obtain percentage scores for each category, and derive an overall score. For more information, see: www.cleverprinters.co.uk
Project X CODE powers the Oxfordshire Reading Campaign Project X CODE is the chosen intervention programme of the Oxfordshire Reading Campaign, launched at a Headteachers’ Conference on 24 September 2012. Oxfordshire Reading Campaign focuses on improving reading standards. The campaign includes high quality training on best practice implementation of Project X CODE resources for maximum impact on reading ability, delivered by experts from Edge Hill University. An independent review of school trials by Dr Ros Fisher, University of Exeter, found that one term of Project X CODE led to an average 8.7 month rise in phonics age, and a 6.8 month increase in sentence reading age. www.oxfordprimary.co.uk www.oxfordshirereading.co.uk
Lesson capture has arrived When Soundfield was first introduced, it heralded a new approach to classroom learning. Now, as technology develops at a startling rate, it is only right that our classrooms should keep pace. Video lesson capture has arrived and thankfully it is seriously simple. Your voice is recorded straight through the Juno Soundifeld system and synced seamlessly with visuals captured from the active whiteboard. The ability to record lessons and post them onto a student intranet for home viewing is promising to totally revolutionise the way precious lesson time is used. For more information, visit: www.soundforschools.co.uk SENISSUE61
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WHAT’S NEW?
Specialist SEN recruitment from Engage
Enterprising students at LVS Hassocks
Engage SEN is the new specialist recruitment service for schools seeking teachers and support staff to work with children with SEN in both special and mainstream settings. Engage Partners, the creators of Engage Education and iday, are established market leaders in the placement of day to day, long term and permanent staff for schools. Engage SEN now aims to provide this sensitive, professional and needs-led approach to schools looking for the special skills and characteristics they require for their SEN or alternative provision. For more details, call 0333 800 7800 or visit: www.engageesen.co.uk
Students in the work skills department at LVS Hassocks are developing their business skills with the help of a new shop opened by the Autism Trust. The shop is selling items such as greeting cards, candles and calendars made by the students from the West Sussex specialist school.
New text-to-speech web apps Anytime, anywhere literacy support for dyslexic students is provided through Texthelp's range of cloud-based text-tospeech web apps for reading, writing, studying and research on the go. Designed to work on a wide range of devices, including the iPad, iPod Touch, iPhone, smart phones, PCs and Macs, the apps support multiple browsers, providing instant access to these powerful support tools. Texthelp web apps provide users with support and quick access to Read&Write GOLD features. The collection also boasts rich functionality, integrating seamlessly with the world wide web. For a free trial of the Texthelp web apps, tel: 028 9442 8105, email: webapps@texthelp.com or visit: www.webapps.texthelp.com
Planning for the future events Parents and families of people with a learning disability can make a difference to the future financial security of their loved ones by careful planning in their will. As well as providing free booklets about writing wills and setting up trusts, Mencap's wills and trusts team organise free events around England, Wales and Northern Ireland for families and carers. The two-hour events offer vital, specialist legal advice about writing a will and setting up a trust for the benefit of someone with a learning disability. To find your nearest event in 2012, visit: www.mencap.org.uk/pffe or call: 020 7696 6925. SENISSUE61
The group have worked together as a team taking the pictures and designing the calendar, planning how to package their items and working out how much to sell them for. “The students have worked really hard and are very excited about seeing their products on the shop’s shelves”, said a teacher at the school. www.lvs-hassocks.org.uk
HRH The Princess Royal officially opens RNIB Pears Centre On 13 September 2012, Her Royal Highness The Princess Royal officially opened RNIB Pears Centre for Specialist Learning in Coventry. The Centre offers individually-tailored education, care and therapies to children and young people with complex needs who are blind or partially sighted. The Princess toured the new facilities, meeting young people and enjoying a short performance they had prepared, before unveiling a plaque to formally open the centre. The purpose-built school and bungalows are fully accessible with specialist facilities including multi-sensory rooms, classrooms for art, technology and music, a library and physiotherapy and mobility areas. www.rnib.org.uk/PearsCentre
Tackling sensory processing the easy way An innovative approach that aims to improve attention, language processing and emotional wellbeing by activating each brain-half separately using sounds through headphones, the Sensory Activation Solutions (SAS) method is easy to apply, non-invasive and cost-effective. It can help with conditions such as ADHD, APD, dyslexia and autism. Every individual course is specifically tailored to the age, condition and needs of each client. The SAS method is available through practitioners in the UK, Turkey and Australia or via the internet. Training for therapists and educational professionals is available. Tel: 020 3239 4880 or visit: www.sascentre.com www.senmagazine.co.uk
PLAY
HEARING IMPAIRMENT
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Promotional feature
£220,000 play forest is ideal inclusive facility A showcase playground installed six years ago is continuing to have a positive impact on the community, particularly for a group of children and young people with learning and physical disabilities. The £220,000 Cutsyke Play Forest, supplied by experts in play Sutcliffe Play, was a community scheme that was part of The Castleford Project, a major regeneration initiative between Channel 4, Wakefield Council and supporting agencies. Mike Smith, part of the Council’s Leisure Link team, has been a regular visitor to the Cutsyke Play Forest. “Our team supports children and young people with a range of learning and physical disabilities, as well as those with sensory impairments and works to introduce them to ‘mainstream’ leisure services in the local community”, he says. “We use Cutsyke with both individuals and groups and our young people respond positively to the opportunities it offers. The variety of equipment at Cutsyke suits the differing abilities of our young people as it provides challenges, and the potential for achievement at different levels. Some find it therapeutic and sensorial to lie down on the cargo nets, some enjoy developing balance and coordination skills, and others love the challenge of climbing and sliding. The play park’s layout and location make it an ideal safe environment for our young people.” The play forest was designed by Leeds-based landscape designers Estell Warren and was chosen by local children from a number of schemes submitted by competing designers. The four-hundred-square-metres play forest comprises overlapping grids of 6m and 3m high poles. Nets and equipment are located between them, creating a unique three dimensional environment with “no way in, no way out and no prescribed routes to follow”. It also boasts two very large tunnel slides, a unique four metre high platform and LED topped light-up poles. Mike Smith concludes: “One of the most rewarding elements I’ve found at Cutsyke is that it helps integrate our young people with the local children. We have also found that it helps promote understanding of disabilities, as kids love to ask questions.” For more information: 01977 653 200 www.sutcliffeplay.co.uk
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point of view
Point of view: grandparent
Talking therapy
Margaret Pazdzierski explains how dedicated therapy and support are helping her granddaughter overcome a reluctance to speak
W
hen my granddaughter started nursery, aged 27 months, we hoped that it would encourage her to talk, as at that stage her only words had been “yes” and “no”. The nursery staff did their best but without success, so her parents took her to a talking toddlers group, hoping that this would do the trick. After several months, the other children were making progress, but not so my granddaughter. At the age of three, she transferred to the local nursery/infant school, still unable to say more than half a dozen words, but otherwise a bright, lively and sociable child. She enjoyed nursery school and seemed to be popular, despite only being able to communicate by gestures and repeated “uh, uh” sounds. A speech and language therapist came to the school on a regular basis to work with her, and this helped to some degree, but she was still only able to add one or two words to her spoken vocabulary. Aged four, my granddaughter was referred to a neurologist who thought she might have Worster-Drought syndrome, a rare condition in which the part of the brain controlling the muscles involved in speech has not developed properly. The neurologist suggested an MRI scan in order to make a formal diagnosis, but since there is no treatment for the condition, her parents decided against putting her through the ordeal of a scan. Three months later, my granddaughter was fortunate enough to be referred to an early years language centre in
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Sheffield, where she was described for the first time as having a specific speech and language impairment. There are many reasons why children who appear to have average or above average intelligence levels, and whose development is otherwise age appropriate, may have such an impairment. At the centre, a team of two specialist teachers and two speech and language therapists spend four halfdays per week working with a maximum number of eight children between the
She soon began attempting new sounds, and her vocabulary gradually increased ages of three and five, for a term of eleven weeks. The team direct the children in games and activities based around communication, using spoken language, Makaton signing and sheets of Rebus symbols. The games and activities are varied and imaginative, intended to teach the children how to behave in various social settings as well as to encourage communication. These include role play in the improvised settings of, for example, a hairdressing salon, a hospital, a kitchen or a building site. There are books, puzzles, sand and water play areas, dressing-up costumes and puppets. There are also parent sessions where staff discuss the
children’s progress with parents and suggest ways in which the children can be encouraged to develop. Initially, many of the children are reluctant to attempt speaking because they are used to being surrounded by their more articulate peers, but in a nurturing and non-competitive atmosphere, where all the children are at a similar level, their confidence grows. Also, unlike mainstream school or nursery, where children are expected to be quiet for much of the time, they are positively encouraged to chatter as much as possible. My granddaughter had seemed reluctant to try new words before attending the centre, but she soon began attempting new sounds, and her vocabulary gradually increased to over 60 words. She also started linking two words together, for example “I like” and “no more”. She will be five in October and will move on to full-time school in September, but the staff at the centre will continue to keep in touch. They have arranged for various support systems to be put in place for her at school, and her communication book will be an invaluable aid, as will her continuing speech and language therapy sessions. The experience of my granddaughter shows just how much can be achieved with the right diagnosis and the right therapy. It is our hope that the significant boost she has received from such dedicated support will continue to help her progress throughout her schooling.
www.senmagazine.co.uk
point of view
Point of view: former SEN pupil
Bridging the divide Alex Mason tells the intriguing tale of how a dysphasic pupil became a budding writer
E
ighteen months ago, I graduated from university with a Masters Degree in Creative Writing. I wore the gown, I received the bow from the Vice Chancellor and had my picture taken, just like the rest of my classmates. All of this sounds pretty normal, except that at one time, the very idea of me becoming a writer was, quite frankly, laughable. About twenty years ago, I was diagnosed with dysphasia and spent a number of years in a specialist SEN school where I undertook speech and language development classes. I suppose I could therefore be described as something of a success story. I am writing this article because I want to show parents that a learning disability doesn’t necessarily mean that a child will not be successful and able to achieve the things s/he wants to. Dysphasia is a language comprehension disability that is normally associated with the elderly. In my case, the condition affected all elements of communication, from speech through to reading and writing. In short, I found the physical act of communicating incredibly difficult – I would learn to speak but my voice would be garbled; I would try to write and my hand would simply fail to do so. It is very hard to describe the condition to someone who has not experienced it. The best analogy I can think of is that of a bridge over a canyon separating two towns. One of www.senmaGAZINE.co.uk
the towns is your mind and the other the world. The bridge represents the physical act of communicating in all its forms. Dysphasia is akin to having that bridge fall apart. The two towns are untouched but there is no way to cross the divide. Today, the canyon is bridged by numerous ropes and pulleys – tricks and techniques that I was taught to overcome my disabilities. Managing my condition was beyond the skills of mainstream education. Much of my success is due to the
If I had lived a mere 20 miles away, I would not have received the care and help that I did constant battling and sheer tenacity of my parents, who fought to get me into a specialist school that would give me the tools to function within conventional education. The fact that they had to struggle so hard is deeply worrying. I only discovered, after talking to my father more recently, the extent of the archaic and downright disgraceful system in place during the 1980s. If I had lived a mere 20 miles away, I would not have received the level of care and help that I did, due to the inconsistent approach to SEN facilities across county lines. Although the situation is much improved today, it is clear that a
postcode lottery still exists in certain parts of the country. Whilst I was very fortunate and got the help I needed, there must have been many people my age that did not, and were therefore denied educational success simply through geography. This is clearly unacceptable. I am not trying to say that given the right tools, every child with SEN can achieve a masters degree. However, I do believe that a child should have the right to the services and specialist support that would give him/her the best possible chance in the real world. It should not be accidents of geography or the ability of parents to fight their corner that determine which child gets one of the (too few) specialist places available. As my case demonstrates, care and dedication can massively improve a child’s chances in this world. Specialist support not only allowed me to overcome my language problems, it also enabled me to discover, despite everything, that the written and spoken word was my true passion. Now, far from being unable to write, it is increasingly difficult for me to stop! So, I urge parents of those with SEN never to give up. After all, your determination is the most important gift you can ever give to your child.
If you have a point of view to share on any SEN issue, please email: editor@senmagazine.co.uk
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sen reforms
Meeting the SEN challenge Alison Ryan looks at how the Government’s SEN reforms will impact on schools, and what it all means for teachers
W
hatever is happening in the world of education policy, schools are busy fulfilling their role
of educating children and young people, providing an environment which allows and supports each pupil’s achievement of their full learning potential. Schools strive to provide teaching which ensures high-quality learning opportunities for all pupils, involving parents and carers in supporting that learning, building networks with other schools to ensure breadth and efficiency of their education offer, and working with other agencies to support the whole child. It’s a rich role, which encompasses
Quality teaching is central to the role of schools.
all pupils, whatever needs they have. However, even before one considers the impact of the Government’s forthcoming
the Government will no longer require
SEN reforms, the fulfilment of schools’
teachers to have qualified teacher status
role is already being challenged by severe
in our schools, subject expertise now
financial cuts across all public services.
seemingly trumping knowledge of
The environment that schools can
pedagogy or child development.
What should be extra funding for those with additional needs is being used to plug holes in existing budgets
provide, including the facilities they can
Reductions in staff, particularly
offer, has been challenged by the loss of
in support staff, have resulted in the
Building Schools for the Future funding
loss of pivotal staff roles that many
and real losses in budgets. We know that
schools had developed in order to build
this has negatively impacted on what the
strong relationships with parents and
and capacity of external agencies, such
pupil premium can achieve, resulting in
carers, to ensure their support of their
as health and social care, to schools.
what should be extra funding for those
child’s learning and in supporting the
with additional needs being used to plug
“whole child”.
holes in existing budgets in order to maintain an essential level of service.
We must be clear that schools are already facing some tough challenges
The weakening of the local authority
in ensuring that no pupil gets less than
(LA) model, alongside funding cuts, has
the high-quality learning experience
The quality of teaching is central to the
challenged LA-based across-school
and support they need and deserve,
role of schools, yet this summer saw the
partnerships, with the cuts having a
challenges that are particularly acute
Secretary of State’s announcement that
devastating effect on the accessibility
for those with SEN.
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sen reforms
It is in this context that the SEN reforms are being trialled and introduced. There is also a pervading political assumption that schools currently overidentify SEN in their pupils. Correct and early identification of SEN in schools is an area in need of review. However, I believe it is simplistic, and serving of a
The Government seems to treat the voluntary and community sector as a cheap substitute for expensive resources
funding cuts agenda, to base reforms
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the current supply-led culture, where a child or young person is fitted to the provision the service provider has available, to one based on their needs is a goal which must be met. However, the reforms’ answer, in the form of the personal budget offered to parents and young people with a plan, poses a huge logistical challenge, one which is
on a view that schools over-identify SEN
together of the different processes,
currently being side-stepped by many
in their pupils and that a narrow medical
which seems hardly conducive to the
of the areas within the pathfinders.
model of SEN is sufficient upon which
shortening of the process from the
The personal budget will not only be
to build a new system.
users’ perspective or to the reduction
difficult to implement and monitor on a
of bureaucracy.
local level but also provides schools and
An uncertain future
There are also fears that it is those
key workers with a significant challenge
The current system of statements is
in education who will end up having
in managing the expectations of parents
far from perfect; whilst being the Holy
to take the lead in these partnerships,
and carers, and in ensuring provision of
Grail for many parents and young people
as has happened previously. While the
up-to-date, comprehensive and relevant
with SEN themselves, a statement isn’t
principle of cross-agency ownership
information. Against the background of
seen as a package of support focused
of the plans is welcome, it is by no
service cuts, this challenge is likely to
on meeting the needs of that child or
means a guarantee, particularly as
be acute.
young person, and they frequently
education is the only sector which will
The SEN reforms place local
follow long and frustrating waiting times.
have a statutory obligation in relation
voluntary and community sector (VCS)
Statements often add little significant
to provision.
organisations at their heart, particularly
new information from schools about
Staff in schools, as well as pupils with
in relation to coordination of across-
those needs, and are not strong or
SEN and their families, will be greatly
sector working. The Government seems
clear enough on required provision from
helped by the key worker role. In some
reluctant to consider the capacity of the
services outside of education.
LA areas, this role will be in its infancy
voluntary and community sector (VCS)
Against this backdrop, the education,
and decisions still need to be made about
to take on this type of role. Currently,
health and care plan (EHCP) is a positive
the appropriate boundaries of the role
the pathfinders are addressing the issue
step forward, promoting a single (and
and the resulting skills and experience
of capacity by providing additional
one would assume, faster) assessment
which best fit with it. However, how will
resources to ensure the ability of the
process, bringing together the different
this role play out against the harsh reality
VCS sector to contribute, but the
agencies involved.
of fewer educational psychologists and
sustainability of that funding beyond
However, the recent report from the
reduced social care teams at local level,
the life of the pathfinder is by no means
pathfinder projects highlights the scale
and fewer support staff in schools? It is
assured. Schools already rely on and
of the challenge. The development of
to be hoped that the key worker role will
make good use of dedicated and often
the plan has to jump the multi-agency
not suffer from the pupil premium effect,
extremely well-qualified volunteers,
hurdles of competing priorities, different
making up for shortfalls elsewhere rather
but the Government seems to treat the
eligibility criteria, different assessment
than bringing something new and vital
VCS as a cheap substitute for expensive
processes, different care/support
to the table.
resources rather than as a valuable human asset.
pathways, different terminology and
The capacity of the sectors involved
professional language, and even
and the available funding for provision
incompatible IT systems. While the
are crucial to the ability of schools and
pathfinders have reported that there is
other agencies to meet the challenges
Developing teaching expertise
no lack of desire for the professionals to
set by the SEN reforms, just as they
Bringing it all back to schools, there’s
work together, their efforts are stymied
are to the ability of these partners to
no doubt that the level of expertise and
by lack of resources and capacity. So
meet the needs of children and young
experience amongst staff in relation
far, the initiative has not resulted in one
people with SEN in their area at any
to SEN is a key factor in ensuring the
joined-up process but rather the bringing
time. Moving from what is seen as
>>
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sen reforms
quality of learning experience for pupils with SEN, and I welcome the reform programme’s intention to ensure a greater focus on SEN in initial teacher education, continuing professional development (CPD) and leadership programmes. However, any programme around initial teacher education or CPD must
Unions must continue to defend vigorously their members’ interests and question government policy
build on evidence and on what is
commission and disseminate. Unions must continue, as always, to defend vigorously their members’ interests and question government policy on behalf of members and the pupils they serve, using member and research evidence to highlight problems and to propose solutions. The challenge set by the SEN reforms
already available, ensuring that sufficient
agency support and additional adult
is great in the context of funding cuts
funding is provided for meaningful
support as even more important than
and complex local relationships.
professional learning activities. Reform
additional training.
Schools will continue to fulfil their role
proposals include development of
Indeed, general awareness of SEN
of providing an excellent education
online training materials in relation to
will continue to rise with increased
to all their pupils to the best of their
CPD for practitioners, despite a wealth
levels of specific training, and this, in
ability and capacity. Where possible,
of online materials already available.
turn, will result in a corresponding rise
they will build on their achievements;
The proposed scholarship fund for “the
in demand for specialist services. For
pre-schools settings will continue to
most able” teaching assistants and other
example, teachers’ awareness of pupils’
engage with early years/intervention
support staff to enable them to build
speech, language and communication
services to develop the skills of their
on their SEN support roles is welcome,
needs has improved over the last few
workforce and participate in team-
but it is hardly a substitute for a proper
years, leading to increased requests for
around-the-child (TAC) approaches, and
system of funding and support for high-
assessments by speech and language
schools will continue to cluster together
quality CPD, particularly in relation to
therapists, specialist teachers’ services
to commission their own services to
SEN, across the workforce.
and educational psychologists. This
support children with SEN.
Development of SEN professional
professional training is likely to stimulate
Schools will play a key role in
development options must also allow
further demand, and it must not take
delivering these SEN reforms and in
for the impact of other government
the place of expert support provided
ensuring that pupils with SEN can
initiatives. The growth in classroom-
by SENCOs and other SEN specialists.
receive and participate in an education
based learning at initial teacher
offer that meets their needs. However,
education stages will challenge schools
Supporting school staff
they cannot be responsible alone for
to make meaningful partnerships with
The support that school staff will need to
that provision; it is to be hoped that the
local special schools or higher education
face these challenges is significant and
lessons of the initial pathfinder trials,
institutions to ensure that the quality of
complex. It must involve a high-quality
previous reviews and the voice of the
training opportunities and understanding
and comprehensive SEN focus in initial
profession will play a big role in how
around SEN is high for all staff. If the
teacher education and in continuing
these proposals are taken forward and
number of those working as teachers
professional development. It also has
how their rightly ambitious aims are
without qualified teacher status increases
to include access to specialist expertise
realised.
significantly, then that SEN training will
(both internally and externally), timely
need to build on different foundations,
access to resources, access to local
as assumptions regarding a particular
networks and strong school leadership
level of professional knowledge around
to support inclusive approaches despite
pedagogy, differentiation and child
the narrowing pressures of league tables.
development may not apply.
The education unions will continue
The development of a more highly
to play a key role in providing this
SEN-educated workforce cannot be a
support through the professional
cheap alternative to specialist expertise.
development, publications and guidance
Research has found that teachers see
they offer, the support they provide for
increased access to specialist teachers,
local partnerships (including the local
educational psychologists, external
authority model) and the research they
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Further information
Alison Ryan is Education Policy Adviser at the Association of Teachers and Lecturers (ATL), a UK union for education professionals: www.atl.org.uk
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dual or multiple exceptional children
Young, gifted and special Being gifted and talented can be hard enough, but what if you also have SEN? Denise Yates charts the complex world of the dual or multiple exceptional child
S
ome children seem to be struggling with an area of their learning, yet you have no doubt that they
understand exactly what is covered
in lessons. Others, you feel, may have a special need but just do not quite fit the classic profile and you are left wondering just how to support them in the classroom and beyond. Still others may have a learning need which is clear to see, but are just too bright for the support programmes you can offer. Have you ever considered that these children might be dual or multiple exceptional (DME)?
What is dual or multiple exceptionality? Dual exceptionality (sometimes referred to as twice exceptionality or 2e) is the term used to describe a child who is not only exceptionally able but also has an additional learning difficulty or a disability. Multiple exceptionality is the term used to describe a child with high intellectual ability and more than one special need or difficulty. Put them together and the term used is dual or multiple exceptional or DME.
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The signs of DME are often misunderstood or missed altogether.
This article explains what DME is, how it can affect a child and their learning within the classroom, and what can be done to support a child who is DME.
Something is not quite right, but it is hard to describe what is wrong
High learning potential and SEN
that these descriptions are not wholly
Teaching children who are both bright
impossible not to fall back on them when
and have a learning difficulty can be
something is not quite right but it is hard
confusing. They can seem so able
to describe what is wrong.
accurate, sometimes it is almost
and yet struggle to carry out basic
Yet this is just what can happen with
tasks. Often they are misperceived,
DME children. These children have a
by both teachers and parents alike, as
disability or learning difficulty but at the
lazy, inattentive, stubborn, careless or
same time they have high ability in one
unmotivated. Whilst everyone suspects
or more aspects of their learning. www.senmagazine.co.uk
dual or multiple exceptional children
23
A child who is DME can face several
If you are gifted and autistic you are
barriers to their learning, both in the
invisible at school. Everyone says “oh,
to assessment involves the SENCO
classroom and at home. The most
she's doing really well in lessons” but no
consulting across the curriculum and
common include:
one cares that you are always bored. The
looking at discrepancies between
other kids don't like it when you can do
subject areas and what is required for
learning difficulty, making their
things well and they bullied me for four
different skills. An example of this would
SEN extremely difficult to identify
years. School is a foul place for children
be a child who might write one or two
• his/her needs and abilities can be
like me and I am really angry and upset
lines for a written essay but who flies
misdiagnosed or misinterpreted
that I can't go to any secondary school
in terms of both content and creativity
even if I wanted to because I don't have
when they type or dictate a piece of
the right sort of brain for them.
homework or produce a presentation
• his/her strengths conceal a
• where a need is identified, emphasis can be placed on supporting this to the exclusion
DME child with autism
recognised and supported • typical measures to support a learning difficulty or disability are not successful for a child who
about what they know. A person outside the school system,
of the child’s high learning potential, which also needs to be
A multi-dimensional approach
“If you are gifted and autistic you are invisible at school”
such as an educational psychologist, may also be involved to observe the child and carry out an assessment. The results of a standardised reading test and a listening test might show huge varied ability – a score on the 90th percentile for
also has high learning potential
listening and 60th percentile for reading
• where the child’s strengths are identified, traditional gifted and
Identifying a DME child
would suggest difficulties in interpreting
talented support is not suitable
Sometimes I get frustrated as I know the
written things. Assessments in art,
as it is reliant upon basic skills
answer to the question but something
music, drama and physical education
being in place
goes wrong between what I think and
might rate considerably higher in some
• the child may have a diagnosed
what I write on the page. I feel so stupid
cases than reading, writing and spelling
learning difficulty but because
and I wish I knew what to do about it.
ages and vice versa.
his/her high ability allows them to
DME child with dyspraxia
When assessing a child informally, the school would look at a range of
achieve slightly above average, s/he does not qualify for
Dual or multiple exceptionality is
additional support.
probably one of the most difficult
• schoolwork
areas of special needs to identify. To
• work from home
Because of my son’s high IQ, he is
do this it is important to have evidence
• drawings and paintings
managing to keep up with the average
of both the specific learning difficulty
• parents’ comments and
in reading even though he has dyslexia.
and the potential for giftedness in order
The school is not interested in what his
to assess any discrepancies between
• classroom observations
reading level should be in relation to
intellectual ability and performance.
• advanced reading and/or number
his potential and is not providing any
Parent of DME child For the child him/herself, the results of being held back in these ways can be catastrophic, with many children reporting low self-esteem and feelings of failure both at home and at school. Without appropriate support this can result in underachievement far below what might have been expected if their potential had been realised. www.senmaGAZINE.co.uk
assessments
ability
additional support as in his teachers words “he is managing to keep up”.
different evidence, including:
• verbal ability
Common difficulties seen alongside giftedness include: • Asperger’s syndrome • ADD/ADHD • dyslexia, dysgraphia, and dyscalculia • auditory and visual processing disorders • sensory processing disorders, including dyspraxia • non-verbal learning disorder.
• advanced use of equipment • use of language and communications skills • reports from both the gifted and talented coordinator and the SENCO • reports from the class teacher and/or subject teacher • reports from other professionals. In addition, the professional would look for a range of characteristics associated >> SENISSUE61
24
dual or multiple exceptional children
Focusing on the gifts, talents and interests of DME children results in improved resilience
with a particular learning difficulty and also those associated with high ability. However, this cannot be done in isolation because of the complex interaction between the two. For example, many of the characteristics of high ability are similar to children on the autistic spectrum; indeed, the two are often confused and there is a high level of
A potential strategy to support the DME child in school
misdiagnosis of one (usually autism) for the other.
Supporting a DME child’s strengths and special needs
Working in the area of their strengths is motivational for DME children.
The sensitivity and awareness that DME children often have means that,
abilities begin to creep in, resulting in
from an early age, they are able to
deteriorating perceptions of their own
see that their peers out-perform them
strengths. Parents and teachers who
on simple tasks. Doubts about their
focus on their difficulties reinforce these negative feelings. The resulting selfimage damages the child’s academic, social, and emotional progress.
How to spot a DME child in the classroom • written work and verbal work out of synchronisation • tries to cover up difficulties; For example, may be the joker in the class or use wits rather than results • issues with homework. Common problems include poor standards of work compared to answers in class, forgetting to hand it in or misinterpreting what is being sought by the teacher • test results at odds with knowledge of a subject • vast knowledge about a subject or an area of interest outside school where there is no pressure to perform • extreme frustration or anger with self (and possibly teacher or parent) when cannot get something right • very low self-esteem • shows flashes of brilliance • good problem-solver • thinks conceptually • poor self-control • disorganised.
Focusing on the gifts, talents and interests of DME children whilst accommodating their difficulties, on the other hand, results in improved resilience and the experience of success. If they are given opportunities to develop their strengths, these children can develop a positive image of who they are and a vision of what they might become. Working in the area of their strengths is motivational for DME children. Some of the skills they lack show dramatic development when practiced in the
• SENCO and gifted and talented lead teacher develop a joint programme to support all the needs of the child • individual education plan supports the child’s SEN and stretches his/her abilities • challenge in areas of strength • involve parents to develop a plan to support learning at home. Agree how issues in school will be handled where the DME child may have particular difficulties, for example, exams, project work or writing • provide information and/or training to all relevant class and subject teachers and encourage a flexible approach to learning. For example, if handwriting is an issue for the child, look at other ways for him/her to record what they have learnt • celebrate success by focusing on what the child can do • support to develop resiliency and self-control.
context of projects in their gift or interest area. They may also be more willing to push themselves through the practice of a difficult skill when the effort is related to a project they want to complete. For those who lack social skills and understanding, working with others in the same interest area greatly expands opportunities for positive and productive interaction. Their weaknesses can and must be addressed, but they need to be addressed creatively and preferably in their interest area, not at the expense of
Further information
Denise Yates is Chief Executive of the NAGC, a charity providing social, emotional and learning support for children with high learning potential, including dual and multiple exceptional children. www.nagcbritain.org.uk The quotes in the text are taken from the NAGC’s publication, Hidden Gifts: Dual or Multiple Exceptional Children (2012).
the development of their strengths. SENISSUE61
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ADOPTION
25 Promotional feature
Could you offer a home to Jonas? One-year-old Jonas is a happy and delightful boy who is looking for a parent/s to adopt him. Jonas was placed with foster carers at six days old. His birth mother has a learning difficulty which prevents her from being able to care for him. Jonas is meeting his milestones and is in a good routine. He loves to explore and is a joy to care for. Jonas has inherited tuberous sclerosis – a condition which can result in growths forming on different parts of the body, although
symptoms vary from one person to another with some people showing very few symptoms. In some cases, tuberous sclerosis can affect a person’s behaviour and their ability to learn. Jonas currently has growths on his heart and kidneys. They are not causing him any difficulties, but he is being monitored by a variety of specialists. Ethnic and cultural descent: white/British. Family needed: one or two parent adoptive family. Allowance: an allowance may be payable. Please note that potential adopters would need to undergo a full assessment and approval by Gloucestershire’s Adoption Panel.
If you could offer Jonas a home, please contact the Family Finding Team at Gloucestershire County Council on: 01452 427753 or email: familyfinding@gloucestershire.gov.uk Gloucestershire Adoption Service, Anne Peniket House, 380 Bristol Road, Gloucester, GL2 5DH
Could you offer a home to Michael? Five-year-old Michael is looking for an adoptive parent/s. He became looked after two years ago, having experienced a childhood of chronic neglect and inconsistent and inadequate parenting.
Mikey has benefited from the clear and consistent boundaries that are in place in his foster home. His behaviour was difficult to manage at first and was seen to deteriorate around contact with his mother. With stability, Mikey can now take direction and plays independently; he will do as he is told and responds well to consistent boundaries and routines.
Michael, or “Mikey”, as he prefers to be known, is a “cheeky chap” who can be mischievous and full of fun and laughter. He is content to play by himself with his toy cars and also with others safely and nicely. Mikey has a good and childlike imagination and will happily draw you in to his lovely imaginary journeys when you are playing with him.
Mikey has been able to make a good attachment to his carer, which will help him attach to future adoptive parents. Mikey likes to play outside as much as possible and loves going on long walks and running around. However, his favourite activities are helping his foster carer in the garden and being involved with DIY tasks.
Mikey likes cuddles and affection and is very giving emotionally. He can now communicate what he needs and wants easily and his speech is improving gradually.
Ethnic and cultural descent: white/British. Family needed: a one or two parent adoptive family. Allowance: an allowance may be payable. Please note that potential adopters would need to undergo a full assessment and approval by Gloucestershire’s Adoption Panel.
If you could offer Michael a home, please contact the Family Finding Team at Gloucestershire County Council on: 01452 427753 or email: familyfinding@gloucestershire.gov.uk Gloucestershire Adoption Service, Quayside House, Shire Hall, Gloucester
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SENISSUE61
dyslexia
26
Know your brain Dyslexics need to understand how their brain works differently, if they are to fulfil their potential, says Patrick Wilson
I
t is an undeniable fact that in
are subconscious processes. Picking
modern day society we are
up a pen and writing a shopping list,
increasingly
by
glancing at a road sign or skimming
bombarded
Dyslexia can lead to a spaghetti soup of ideas that pours out in a stream of consciousness
words. The ever growing role of
a recipe book are actions that mix
the internet in our lives is an important
seamlessly into our day. It is easy
factor contributing to the onslaught.
to forget what a miracle it is that the
On a typical news website ten years
human brain is capable of processing
ago, you would see about 12 headlines
language at all, and that we are the only
on a home page, whereas nowadays
species on the planet that has managed
skills. This is demonstrated by the
there are, on average, over 400 story
to achieve communication on such a
fact that a disproportionate number of
or section links. Someone who spends
complex level.
entrepreneurs are dyslexic. However
their working day in front of a computer
For those with dyslexia, the
in the early stages of development at
will see around 490,000 words every
complexity of reading, writing and
school, it is paramount that a dyslexic
day. War and Peace is only 460,000
spelling is much more apparent. In a
student grows to understand the way
words (source: www.guardian.co.uk/
dyslexic brain, the areas that interact
that his/her brain works differently
media/pda/2009/nov/02).
to coordinate the manipulation of words
and learns to work with it in order
This shift in our lifestyles means that
are affected and work differently. The
to achieve success. Here are four
reading and writing are becoming a more
presence of dyslexia in no way affects
key characteristics of the dyslexic
central and important part of our lives.
intelligence; indeed, it can enhance
brain that students and educators
For the majority of the population, they
lateral thinking and problem solving
should understand:
SENISSUE61
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dyslexia
Writing is a three-step process
automatic level. For example, we may
Dyslexics are creative
pick up a sock and know instantly that
Because dyslexics can’t rely on
Putting pen to paper makes huge
it should be put in our sock drawer, or
memory, they become very good at
demands on the short-term memory
drive to work without thinking about
creating abstract constructs rather than
to move from one step to the next, which
how to turn the steering wheel. For
thinking in relation to past experience.
can be a real weakness for dyslexics. In
dyslexics, however, these automatic
Imagine explaining to a British rugby
the brain, the process involves:
processes can be more difficult due
player how to play American football.
• synthesizing a thought. For
to poor memory recall. This may even
The non dyslexic will relate this to his
example, writing a story about
explain why dyslexics’ bedrooms are
experience (for example, “It’s like rugby
what you did last weekend, such
often particularly messy.
but you need to throw the ball forward”).
A good way to help a dyslexic
The dyslexic has more work to do and
• working out how you are going
improve their ability to complete simple
as a result has to create the construct
to write it: “I...ran...fast...in...
processes more quickly is to encourage
of American football more from his
the...park”
them to create models, such as SLUR
imagination. This creativity also leads
• the physical act of writing –
(Socks Left drawer Underwear Right
to the ability to solve complex problems.
finding the right words and
drawer), and “I before E except after
The artist Michelangelo, the physicist
actually writing them.
as going to the park
C”. Models can be created for anything
Einstein and James Dyson, inventor of
A dyslexic can typically do one of
from writing a paragraph (AXE –
the modern vacuum cleaner, were all
these things, but will struggle to do all
Argument, eXplain, Evaluate) to
dyslexic, and it is likely that their inability
of them in sequence. The process of
remembering to pack essentials into an
to rely on recall helped develop their
holding that thought and then selecting
overnight bag (DTGMAP – Deodorant,
imagination and ability to create brilliant
words and subsequently writing them
Toothpaste,
art, inventions and concepts that have
down on paper can end in chaos. Poor
and Pyjamas).
Glasses,
Make-up
changed the world.
sequencing in the brain also makes it
With the right understanding of
very difficult for dyslexics to organise
dyslexia, a student can become a truly
their thoughts and sentences into a structured piece of writing. Creating a structured argument is a bit like cooking whilst trying to hold all the ingredients at the same time. Sometimes ingredients can fall into the pot at the wrong time. This can lead to a spaghetti soup of ideas that pours out in a stream
Think of memory as a warehouse full of ideas. A dyslexic searches for the words with the light off
of consciousness.
successful and adaptable person. While a non-dyslexic sees failure as an indication that they can’t do something, a dyslexic will see it as a part of the path to progress. Olympian Steven Redgrave attributed his tenacity to his dyslexia. He tried and failed, but he knew that this was part of his learning process, and he did not give up until he won five Olympic gold medals. Understanding dyslexia
To overcome this and train the brain to become more comfortable with
Memory, what memory?
and turning it as far as possible into a
synthesizing thoughts to write and
Poor memory recall is a key
positive is the key to unlocking success,
structure, teachers or parents can use
characteristic of the dyslexic brain.
academic or otherwise.
the talk to write method. This involves
This means that while students may
talking through a student’s thoughts,
appear to understand things well, they
repeating until the structure of the
often struggle to recall concepts later.
thoughts are clear and only then thinking
Think of memory as a warehouse full
about writing.
of ideas. A dyslexic searches for the words with the light off. Because they
Dyslexics struggle with automated processes
have more difficulty recalling things,
To cope with the multitudinous series
warehouse thinking that they have the
of thoughts and actions that the brain
right thing and be wrong. This is why,
coordinates every day, humans complete
for example, dyslexics often confuse the
simple tasks on a subconscious,
word “specific” with “pacific”.
www.senmaGAZINE.co.uk
they can sometimes come out of the
Further information
Patrick Wilson, who is dyslexic, is the founder of the Tutor Crowd, which helps students with SEN do better in exams. Patrick’s particular teaching focus is dyslexia: www.thetutorcrowd.com
SENISSUE61
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28
DYSLEXIA
Promotional feature
Personalised exercise programme for SEN pupils DORE is a unique personalised exercise programme for adults and children over seven years old with learning difficulties, such as dyslexia, dyspraxia and ADHD. The DORE programme is already an intervention of choice in several UK schools. Some schools run the entire programme themselves, whereas others work in partnership with parents to facilitate the programme each day. Springfields Academy, winner of the TES Award for Overall Outstanding School of the Year 2012, started using the DORE programme in 2009. Principal Trystan Williams says that “There is always ten per cent of pupils who don’t make as much progress as hoped. It’s my job to find the right intervention strategies, such as the DORE programme, to help the students achieve this progress.” The DORE programme has also been successfully completed by more than 30,000 individuals, most of them children. One enthusiastic mum recently contacted DORE to report: “Before Katie started the DORE programme, completing homework was a nightmare for all of us. Within nine months of starting DORE, Katie’s reading age had gone up 18 months”. SENISSUE61
Reasons why schools should consider the DORE programme as an intervention include: • over 92 per cent of DORE clients have said that they would recommend the programme to a friend • it is based on regular physical exercises, which can be performed at home or at school • it is completely personalised, allowing each pupil’s progress to be monitored individually • it encourages a constructive partnership between the pupil, the school and the family • it includes full support from the DORE team in the set-up, as well as in the day-to-day running, of the Programme, regular assessments and reporting procedures
To learn more about the DORE programme, or find out about our work with schools visit: www.DORE.co.uk or call: 0333 123 0100. DORE is the trading name of Dynevor CIC, a social enterprise, based in Stratford upon Avon, which works to support people with learning difficulties and which has owned the rights to the DORE programme since 2009.
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30
dyslexia
Alternative approaches to dyslexia Can ideas from complementary and alternative medicine help those struggling with dyslexia? Maria Chivers investigates
C
omplementary or alternative
considered to be a health profession and
medicine (CAM) is one
is routinely recommended by doctors.
Many doctors are calling for greater control and registration of CAM
of the fastest growing
Many therapists believe that doctors
markets in the developed
will only treat your symptoms, while
world and its influence is felt across
CAM therapists focus on respect for the
all areas of health, wellbeing and SEN.
whole person and his/her innate healing
There are hundreds of therapies that
abilities. CAM assists the natural healing
difficulties often result in great frustration,
claim to help, alleviate or even “cure�
wisdom of the body through natural
particularly given that most dyslexics are
dyslexia. They range from those based
approaches, thereby healing the whole
of at least average intelligence.
on solid scientific research to the plainly
person rather than just the problems
outlandish. While I always advise that
presented at the time.
I believe that dyslexics can and do benefit from some forms of CAM.
people should show caution when
On the whole, CAM therapists are
As each dyslexic learner is different,
dealing with these therapies, they
not state registered, so anyone can set
though, no specific method or therapy
should also open themselves up to new
up in business. There are no scientific
will suit them all. It is important to start
ideas. After all, chiropractic was once
studies, or very little evidence of the
from an understanding of what dyslexia
viewed as alternative therapy, but is now
safety and effectiveness of therapies,
is and how it affects individuals, and
whilst conventional medical approaches
to identify the problems the particular
generally go through years of testing
student is having with learning before
before implementation. Many doctors
looking at what kind of therapy may
are, in fact, calling for greater control and registration of CAM.
help him/her. I will focus here on four key areas of CAM, those relating to hearing,
What is dyslexia?
developmental therapies, nutrition
Dyslexia is a specific
and massage.
learning difficulty (SpLD) and problems can reveal
Hearing
themselves in reading,
It is now widely accepted that some
writing, number work,
dyslexics have difficulties with auditory
memory,
skills and appear to be hypersensitive
hand control and visual
to certain sound frequencies (Schulte-
processing. Timekeeping,
Korne, Deimel, Bartling et al., 1998).
sense of direction and
This can lead to problems with sound
interpersonal skills can
discrimination, auditory processing,
also be affected. These
auditory discrimination, concentration,
short-term
memory
skills
and,
ultimately,
self-esteem. SENISSUE61
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dyslexia
Many alternative therapies are designed to normalise the auditory system, changing how the brain processes and organises the information it receives from the ears. For instance, some use special headphones to deliver
Fatty acid deficiency may be to blame for reported increases in dyslexia over the last 20 years
31
the neurological causes of dyslexia. The majority of these therapies claim that they are helpful for a wide range of learning issues, including reading difficulties, dyslexia, clumsiness, ADHD, handwriting problems and low self-
a broad range of frequencies to retrain
esteem. A word of caution: as with other
the auditory system. This can also be
CAM therapies, while some have been
achieved by listening to music each day.
or inhibited as a result. There has been
carried out over many years, others are
Another therapy involves the use of
a lot of research in recent years to show
quite new and have very little scientific
a metronome. For centuries, musicians
that some children with these problems
research to back up their claims.
have used metronomes to help them
can be helped with a movement-based
keep time, and in recent years these
programme (see, for example, Koester
devices have been used to help those
and Sherwood, 2001; Blythe, 2005).
with Parkinson’s and stroke patients.
There is now a significant number
Work has also been carried out to use
of therapists offering different types of
metronomes with those with dyslexia
exercise programmes covering areas
and ADHD (Schaffer et al., 2001).
such as simple movements, throwing
Quite simply, a metronome works by
beanbags, catching and throwing
keeping time; many people with dyslexia
balls at targets, balancing on different
and ADHD have difficulty processing
objects or looking at flashing lights on
different sounds and staying on task.
computers. It is these special routines,
Metronomes help students focus, pay
which are repeated over and over again,
Diet and nutrition
attention to certain sounds and block
that are designed to improve reflexes.
It is generally accepted that eating a
out all other noises. Physiotherapists
These kinds of exercises are said
balanced diet is essential to children’s
and occupational therapists use the
to stimulate and develop sensory
mental and physical development.
metronome to help train the brain to
integration, spatial awareness, dexterity,
However, could deficiencies in vital
plan, sequence and process information
motor skills and the sense of balance.
vitamins and minerals even be a cause
more effectively through repetition of
The idea is that they should help
of dyslexia?
interactive exercises. These drills use
organise processing in the brain in order
Over the last two decades, much
repeated hand, toe, and heel exercises,
to improve a child’s overall functioning
research has been carried out into the
which are carried out thousands of
in areas of learning such as reading
relationships between food and dyslexia,
times, while keeping in time with the
and writing. This is understood to work
ADHD and other issues affecting
metronomic beat.
because of the relationship of movement
learning (Dewhurst et al., 2003; Konofal
A well-balanced diet may have a positive impact on dyslexia.
This method has undergone scientific
to perception and the impact on fine
et al., 2004; Bruner et al., 1996). Many
trials and has shown improvement in
motor and academic skills; it works
of these research papers have looked
attention, concentration, motor control
on the physical rather than the mental
at fatty acid deficiencies, salicylates,
and coordination. Such therapy can be
components of learning. It is suggested
food additives, colourings, flavourings,
carried out over a relatively short period
that once an exercise program has been
refined sugar, zinc and iron deficiencies,
of time, and may show results within a
set up for the individual person, it could
herbal medicine, food allergies, and
five week period.
easily be carried out in schools during
multiple chemical sensitivities.
a PE lesson or at home.
Developmental therapies
Essential fatty acids (EFAs) play a
When technology is used with
major role in brain function. They are
with
computer games, it is said to help
required for visual functioning in the
movement-based techniques believe
stimulate eye tracking, visual neural
retina of the eye, in the synapses of
that learning problems can be caused by
pathways and the cerebellum. The
the brain, in nerve tissues and in the
immature (primitive) reflexes remaining
object of some of the games is to keep
adrenals for regulating stress. EFAs must
in the body. Attainment of balance,
a lighted dot in the correct place, while
be provided through diet. The richest
hand-eye coordination, motor control
the background continually changes. It
source of EFAs is said to be oily fish.
and perceptual skills, may be delayed
is claimed that this can help to address
>>
Many
therapists
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working
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dyslexia
It may be that one of the problems with modern diets is that they lack EFAs, perhaps because we are eating less fish than before. Many believe that fatty acid deficiency may be to blame for reported
Inhaling certain aromas can have an almost immediate effect on the limbic area of the brain
approaches and interventions, and the help of appropriate complementary therapies, I believe that some of the difficulties associated with dyslexia can be alleviated, which in turn can have a huge effect in terms of
increases in dyslexia over the last 20
boosting confidence.
years (Richardson, 2002; Richardson and Puri, 2002; Portwood, 2002).
When considering any of the movements can help. Massage is said to
approaches mentioned, it is important
Zinc is one of the body’s most
help dyslexia by improving coordination
to maintain an open mind, but also to
important trace minerals and there
and providing a calmer environment
use common sense. No matter how
have been suggestions that people with
for learning.
good these techniques are supposed
dyslexia and other learning difficulties
With the expanding use of CAM,
to be, it is important not to ignore good
may be deficient in this mineral (Grant,
the International Association of Infant
old-fashioned teaching methods that
Howard and Davies, 1988).
Massage has been set up to help the
have stood the test of time. There are
Iron is also extremely important for
growing number of parents seeking to
also many established approaches
building our bodies. Research indicates
look at infant massage and how it can
to managing dyslexia which should
that even a minor deficiency in iron may
assist their children. Most parents touch
always be considered. Opticians and
weaken the immune system and impair
and massage babies as soon as they are
behavioural optometrists have become
general physical performance. A French
born, thereby building up a wonderful
more and more involved in working with
study (Konofal et al., 2004) has identified
rapport. Massage can help to strengthen
those with dyslexia in recent years,
a link between iron deficiency and ADHD.
and develop the immune system and
and the use of coloured overlays and
An earlier study published in the Lancet
provide vital sensory stimulation.
lenses, for example, is well known to
(Bruner et al., 1996) found that teenage
Aromatherapy
is
a
form
of
be of benefit to many dyslexic children
girls showed cognitive improvement
complementary healthcare that can
when they we given iron supplements. It
work alongside more conventional
There are many alternative therapies
may be that this deficiency is enough to
treatments. Studies have shown that
that may be able to help you or your child
change the iron levels in the brain, which
inhaling certain aromas can have an
with dyslexia, but only you can make
in turn alter the way neurotransmitters
almost immediate effect on the limbic
the decision about which approaches
behave in the brain.
area of the brain – the centre of our
might be best in your particular case.
emotions and memory (Buck and Axel,
My own experience, after working
1991; Wilkinson et al., 1999).
for so long in this field, has led me to
There is so much research to suggest that a well-balanced diet can help
and young people.
with dyslexia. EFAs, zinc and iron are
The therapeutic power of essential
believe wholeheartedly in some of these
all available as supplements, but you
oils helps the body to heal itself.
complimentary approaches to dyslexia,
should always check with your doctor
Aromatherapy is a holistic treatment
though others I simply cannot vouch
before taking them.
of the whole person, not just of his/
for. I hope, though, that I have, at the
her symptoms. The essential oil ylang-
very least, provided some food for
The power of touch
ylang is said to be one of the best for
thought in this article, and perhaps the
Massage therapy is often seen as a
nervous tension and to counter the
inspiration to consider and try some
holistic approach and many therapists
build up of frustration. Rosemary is
of these approaches for yourself.
work alongside medical professionals
believed to help with stress disorders
to promote good health, strengthen the
and to aid concentration. A massage
immune system, flush out toxins and
that covers the head, upper back, upper
provide stimulation and relaxation. It
arms, shoulders, neck, scalp and face is
is clear to most people that if a child is
particularly effective at relieving stress.
stressed, s/he will not be able to work effectively or learn in that environment.
Helping those with dyslexia
If you have a headache, one of
Many children with problems with
the first things you do is to rub your
learning suffer from low self-esteem.
head. With remedial massage, specific
However, with the right teaching
SENISSUE61
Further information
Maria Chivers is the author of Dyslexia and Alternative Therapies and the founder of DyslexiaA2Z (formerly Swindon Dyslexia Centre). She has two sons, both of whom have dyslexia: www.dyslexiaa2z.com
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DYSLEXIA
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VISUAL IMPAIRMENT
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36
equine therapy
Riding high Equine therapy can provide life changing experiences for children on the autistic spectrum. Lilias Ahmeira saddles up and explains all
It is about a horse and a child bonding and developing a partnership
The health professionals made us feel
successful with children on the autistic
that because Toby is autistic, there was
spectrum. Horses have been an essential
nothing more they could do. They had
part of human life for thousands of
written him off, whereas I felt that he
years, yet only recently have people
had more to give – we just had to find
started to recognise that equines have
a way to channel it.
a unique ability to heal. A horse is non-
T
judgemental, giving love and respect
him to get off a trampoline...he started
hese are the words of Cathy
unconditionally, and such qualities are
banging his head on a post," says Sam.
Foxwell, mother of six-year-
proving increasingly important in turning
"In a motorway restaurant, he decided
old Toby who has autism.
around the lives of children who may
to take all his clothes off and ran around
It is this "you're on your
otherwise be written off by society. Â
screaming. People came up to me and complained. It was awful."
own now" attitude, taken by some providers of healthcare services, which
Improving behaviour
is compelling not only parents of autistic
For people living with an autistic child,
August 2011, when Noah began
children, such as Cathy, but also carers
life can be challenging. Sam Pulleston,
equine therapy. "In just three months,
and educators involved with autism to
the mother of three-year-old Noah,
Noah, for whom conventional speech
seek alternative, holistic solutions, such
describes life with her non-verbal,
therapy had proved inappropriate,
as equine therapy.
For Sam, life didn't get better until
frustrated autistic child as like walking
made improvements that I had dared
Although still in its infancy, equine
on a tightrope. "Noah has no concept of
not hope for. For the first time ever, he
therapy is already proving highly
sharing or taking turns. When we asked
began to speak and consequently was
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equine therapy
To sit on a horse is to be a king, to be taller and braver than everyone else
In July 2012, the results of a clinical review commissioned by equine therapy centre Special Horses for Special Children revealed why the rhythmic motion produced by a horse in canter can help promote speech in non-verbal autistic children.
Using simple commands with horses can encourage a child's communication skills.
understand) produce instant results: say
The author of the paper, Dr Fiona
"Whoa" or "Halt" and the horse stops,
Dann, said that "Autistic children have
say "Walk on" and the horse moves,
a lot of tension in the base of the skull
or say "Up" and the horse climbs on
and in the membranes of the brain
a pedestal. The child quickly learns to
and this stops the essential flow of
less angry, he became more sociable,
reward the horse with a verbal "Good
hormones such as oxytocin, which is
was able to concentrate and even toilet
boy/girl" and to give physical praise with
essential for sociability. By putting an
trained himself."
a pat or stroke. It is simple, but extremely
autistic child on a horse and double
effective therapy.
riding in canter, the increased sacral
Equine therapy involves a variety of techniques, but the key lies in a
The biggest thrill of all, though, has
movement and release of tension in
flexible, individual approach based
to be actually riding a horse. To sit on
the cranium can lead to improved CSF
on a child's needs. It is important to
a horse is to be a king, to be taller and
(cerebrospinal fluid) circulation as well
monitor the child’s reaction to every
braver than everyone else and to do
as increased oxytocin release, which
new experience and never to push
something that other children cannot
in turn creates the benefits seen from
boundaries too far. There are various
do. For a child with autism, this is about
increased levels of this hormone, such
ways to involve children, starting with
taking control and gaining confidence
as greater improvements in speech,
gentle, introductory sensory techniques,
in leaps and bounds.
mood and focus, better fine motor
such as grooming or petting a horse, or
Even at standstill, there is much that
skills of coordination and dexterity, and
even decorating it with paint. The use of
can be achieved. Sitting on a bareback
changes in a child's concentration span
paint is particularly effective for children
horse, a child can enjoy the feeling of
and calmness."
who can't bear to touch fur or skin (a
its silky fur, stroke the coarse hair of its
Although the benefits from equine
common autistic trait), as the paint acts
mane, smell its unique scent, hug its
therapy can often be seen in a child
a barrier. The benefits of sensory work
neck facing forward and then lie down
very quickly, it should not be regarded
are profound, as it involves the use of
on its hindquarters – a position of pure
as a quick fix. It takes around three
fine motor skills, verbal communication
trust. Some children have even been
or four sessions of sensory work and
and social interaction.
known to fall asleep in this position.
double riding at canter in a single month
Then, when the child is ready, it
to help establish the neural pathways
Developing communication skills
is time to start walking, with helpers
necessary for speech. If a speech habit
on either side to provide support, as
is not formed immediately, then a child
Once the child is comfortable being
required. Just being so high on a horse
can regress, so repetition is vital.
around a horse, they can progress to in-
and feeling its movement is an immense
hand work. Walking a horse around on a
thrill for a child. However, many autistic
rope is a tremendous confidence builder,
children are speed merchants for whom
which is particularly good for a child who
pottering is not enough. This is where
may have serious self-esteem issues.
double riding – with an expert adult rider
It is about a horse and a child bonding
holding a small child on a specially made
and developing a partnership. The horse
saddle in front of them – comes into its
follows the child, with helpers on hand
own. To take a child with no previous
at all times, and is alert to both verbal
interaction with horses and allow them
command cues and body language.
to experience the motions of canter can
This is ideal for non-verbal children as
be of great benefit to autistic children,
it encourages them to speak, because
often helping them to speak for the first
even single words (ideal for horses to
time in their lives.
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Further information
Lilias Ahmeira has more than ten years’ clinical experience working with autistic children and is the founder of Special Horses for Special Children, an equine therapy centre in Somerset. She is also the mother of Tom, aged 13, who is diagnosed with autism: www.specialhorsesforspecial children.com
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creative arts
38
From the art Ali Mawle looks at how multi-sensory arts-based workshops can reach out to children with PMLD
I
t can be very moving to witness a
learnt from our experiences, as well as
child with severe learning difficulties
looking at the practicalities of using the
stretching out and grasping
arts to engage those with PMLD.
something spontaneously for the
The experience can help children to better understand the world around them
very first time, or being so excited and
Why the arts?
determined to communicate that they
Access to the arts for those with PMLD
press the correct animal image on a
is often far from straightforward, but
talker after seeing a cow in a painting.
the opportunities for these children to
responses. New experiences, such as
Yet these are kind of rewards that are
benefit from visual, sound and touch
looking at a striking painting, listening
part and parcel of conducting arts-
stimuli are many. Art has the ability
to a soundscape or making paint, invite
based education sessions for children
to provoke both an emotional and an
these children to respond directly to
with profound and multiple learning
intellectual response in us. Artworks can
what they are seeing, hearing, smelling
difficulties (PMLD). Such sessions
trigger a range of feelings and inspire
or doing. The experience facilitates new
deliver countless unexpected outcomes
us to investigate what we are seeing
ways to communicate and can help the
that benefit not only the child, but also
or hearing.
children to better understand the world
their carers, teachers and family too.
For children with PMLD taking part in
around them.
At the National Gallery, we have
an off-site arts-based activity, a visit to
Arts-based activities are able to
worked with PMLD practitioners to
the Gallery goes beyond the paintings
satisfy a number of the children’s
develop a programme called Sense It!,
and encompasses the impact of new
physical and communications needs,
which takes a painting in the collection
physical surroundings. Things that we
according to the abilities of those taking
and uses it as the focus for multi-sensory
might not notice, such as echoes in
part. In our programme, each activity is
sessions in the Gallery. This article will
different rooms, are very exciting for
chosen on the basis that the art-process
share some of the key things we have
some and can prompt exceptional
is as inclusive as possible and that it
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creative arts
encompasses as many of the children’s needs as is feasible. Activities can switch to touching and listening experiences to include those who are blind or partially, sighted while providing strong visual images for those whose hearing may
Visual stimuli, temperature, touch and smell are all powerful ways to reach children
be impaired. Such activities can also
In our case, a painting provides obvious inspiration for a set of experiences related to the picture. It also provides a static object with which we can all become familiar and connect through a set of relevant multi-sensory experiences.
provide new material and inspiration for
Feedback, flexibility and adjustments
imaginative sessions for both teachers
could contribute and work in partnership
and their pupils.
with the Gallery’s educator. The twilight visits were also an
When a session comes to a close, it may
Getting to know you
opportunity for all involved to understand
be the unexpected aspects of the day
In any class, every child is different.
and prepare for the significant and
that we take away and remember. This
However, delivering a session to a group
specialist practical needs that must be
is often the case for teachers and carers
of children with PMLD presents an
met as part of a visit by such a group to a
and for the children who participate. For
additional challenge, as each child may
public space, including facilities for food
some, the visit and the activity will be
have very different physical and mental
preparation and personal care needs.
an almost overwhelming achievement.
abilities which in turn require specific
Parents tell us that they gain more
methods of support and communication.
Multi-sensory fun
confidence to take their children out
The more time that those providing the
Fundamental to using creative arts
and about as a result of a successful
session and those attending can spend
to communicate with children with
visit. Teachers tell us that they come
together before a specific session the
PMLD is the opportunity to develop
away inspired to recreate multi-sensory
better the outcome of the session will
a set of arts-related experiences that
learning activities when they return to
be. It is vital that the session provider
incorporate a range of senses. Visual
their school. The sessions have sparked
has met the children, learnt their names,
stimuli, temperature, touch and smell are
ideas on how a new soundscape might
and knows what they can do and what
all powerful ways to reach children who
bring to life a book a group is reading
they enjoy. Communication with carers
face a complex set of communication
at school, and have provided the
and teachers enables facilitators to
challenges. The integration of colour and
inspiration for a messy painting session.
understand the children’s abilities, what
texture can produce highly successful
During an offsite arts session,
makes them smile and what to avoid.
ways to learn and have fun, where other
children and teachers alike are often
At the Gallery, we organised twilight
more conventional methods might fail.
outside their comfort zone and all
visits enabling teachers and carers to
This might take the form of children
concerned need to be mindful of this.
come to the space before the session
running their hands over a cool, smooth
Flexibility is crucial and it is important
and ask questions about art, the facilities
surface such as a marble column, or
to be able to adapt according to the
and the session’s aims. Gaining this
feeling the softness of a feather. It might
children’s responses. Not everything
insight helped them to see how they
involve listening to a recording of the
will go to plan and unpredictable things
rustling sound of leaves or experiencing
will happen. However, it is perhaps this
the physical pounding action and
very element of unpredictability that can
sound of grinding charcoal in a pestle
produce some of the most rewarding
and mortar.
aspects of any art-based session.
The use of essential oils such as cedar to evoke wood is effective but must be carefully managed, as not all children respond well to them. It is important not to overwhelm the visitors and to allow them time to recognise and appreciate what might seem to be small gestures and reactions to an evocative Workshops can provide the inspiration for artbased sessions in school.
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soundscape recording of birdsong, wind and rain or buzzing bees.
Further information
Ali Mawle is Head of Schools at the National Gallery in London, with responsibility for the on-site, outreach and on-line programme for primary and secondary pupils and their teachers, SEN schools and units and PMLD pupils and their staff: www.nationalgallery.org.uk
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40
autism
A brief history of autism Maggie Wilson considers the big ideas that have shaped our ever-changing understanding of autism
T
hroughout the history of
living in isolation (Lane, 1977). Jean
autism, those at the forefront
Itard, a physician, worked tirelessly
of change have been parents;
over many years with Victor, focusing
they
challenged
on socialising him. Although Victor’s
prevailing professional attitudes and
have
expressive language did not develop,
opinions and pushed the boundaries of
his understanding of the world and of
intervention. Some of the professionals
other people improved considerably.
in the field have also been parents of
Several reports of “feral” children
children with autism – perhaps most
of varying reliability (Newton, 2002)
These difficulties were conceptualised within the dominant paradigm of the time – that of insanity
notably Bernard Rimland and Lorna
are included in the literature on
However, more recent examples where
Wing – and parents continue to play a
autism, although, as with Victor, it is
a lack of stimulation in early childhood
big role in the evolution of knowledge
difficult to differentiate the effects of
has lead to autism-like conditions have
about the condition. More recently,
early deprivation from a biological
been seen in the effects on development
people with autism themselves have
condition. This has been the difficulty
of children unfortunate enough to
found a voice through which to share
with identifying cases from historical
have been “cared for” in Romanian
their experiences and shape the political,
accounts of possible autism – the
orphanages at the beginning of
social and research agenda in relation
unknown influence of the environment.
this century.
to autism. Over the past seventy years, the concept of autism has undergone several changes in line with the concurrent professional and scientific milieu. This article will examine these changes along with some thoughts about future directions in our framing of the experiences, similarities and differences in the population of people labelled “autistic”.
Autism in historical accounts Several interesting accounts of children who were markedly unusual in their abilities and interactions have been noted through the centuries. Perhaps the most famous of these is Victor, a youngster who was discovered in 1797 near St-Sernin-sur-Rance, France, having spent several years SENISSUE61
Leo Kanner's work in the 1940's outlined early diagnostic criteria for autism.
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autism
41
could “break through”, and lengthy psychoanalysis of the whole family stemmed from the conceptualisation which marked this era.
A neurological condition In the 1960s, an American psychologist and parent of a child with autism, Bernard Rimland, wrote a landmark text suggesting that autism was a neurological disorder – based in biology, not faulty relationships. In the middle of the twentieth century, reasons for a child's condition were sought in family relationships.
At the same time, professional thinking around the formation of, and interventions for, mental, cognitive and
A medical condition
in the 19'80s. Although Asperger’s
emotional disorders was changing
Children whose abilities and behaviour
syndrome is soon to be no longer an
and behaviourism moved the focus
accord with our current understanding
independent part of the DSM 5 schedule,
from early relationships to learned
of autism have also been described by
I retain it here for clarity.
behaviours. If individuals had learned
some early psychiatrists. John Haslem
Whilst both Kanner and Asperger
inappropriate or unhelpful behaviours,
(1809) and Henry Maudsley (1879) had
recognised the constitutional basis of
they could be helped to learn more
patients who spoke of themselves in
autism, it came to be known popularly as
adaptive behaviours. Through the '70s
the third person, were solitary, had a
“juvenile schizophrenia”. Coupled with
and '80s, behavioural study continued
very narrow range of deep interests and
the cultural and professional dominance
and the work of Ivar Lovaas, whilst
did not form attachments to caregivers
of psycho-analytic approaches to
controversial then and since, was
(Wolff, 2004). These difficulties were
emotional, cognitive and mental health
influential in demonstrating that children
conceptualised within the dominant
challenges at the time, this led to a
with autism could learn more normative
paradigm of the time – that of insanity.
particular conceptualisation of and
behaviours (Anderson, 2007). Autism was thus seen as a
Psychiatry was at a very early stage at the turn of the twentieth century and the idea of cognitive disabilities and differences took several decades to emerge and to influence clinical practice.
A psychogenic disorder In the 1940s, two clinicians working independently outlined the conditions
Rimland’s landmark text suggested that autism was a neurological disorder based in biology, not faulty relationships
neurological condition, which was treatable by psychological intervention. Many of the earlier observations were forgotten: Kanner had remarked on the increased head size of children with autism; Asperger had noted similar personality traits in the parents of children with Asperger’s syndrome
we know as autism and Asperger’s
(Wolff, 2004). Whilst some of the
syndrome. Leo Kanner (1943), working
strategies used over this period are now
in America, differentiated a group
approach to the condition. Reasons
anathema to professionals, this phase
of children with distinctive patterns
for the child’s condition were sought
in the evolution of our understanding of
of strengths and needs from other
within the relationships in the family and
autism recognised that children are able
children with difficulties. He outlined
parenting styles were scrutinised. The
to learn and to develop.
the diagnostic criteria which are, largely,
concept of parents who were emotionally
still followed and called these children
unavailable – the “refrigerator mother” of
A developmental disorder
“autistic” (Rutter, 2005).
Bettelheim’s view – must have added to
As technology gave researchers greater
Hans Asperger (1944) also outlined
families’ distress. Approaches such as
ability to collect and collate data about
the condition, although his work was
removing the child from the “pathogenic”
populations and individuals, so the
not recognised widely until Lorna Wing
family (Rutter 2005), holding therapy,
conceptualisation of autism advanced.
addressed the broader autism question
where the child was held until the adult
>>
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autism
Lorna Wing and Judith Gould’s seminal
educational options based on particular
work in the '70s and '80s led to a re-
understandings of autism. So, whilst
evaluation of the condition, giving
autism was seen as a neurological issue,
estimates of prevalence and also
intervention was largely educational.
Understanding of the developmental nature of autism led to an emphasis on early intervention
broadening the diagnostic gate. The
During this period, the Human
concept of the “autism spectrum” was
Genome Project captured both the
fundamental in shifting the professional
professional and popular imagination.
and popular mindset from autism as a
As is often the case, when seeking
discrete disorder to that of a continuum
simple answers to complex questions,
Diagnosis
of strengths and needs. The emergence
many were quick to use the latest
The suggestion for DSM 5 (due to be
of Asperger’s syndrome (again
ideas to produce all-encompassing
published in 2013) is that the diagnostic
Wing’s work) as part of the spectrum
theories; “faulty genes” were sought
differentiations are dropped, and a
strengthened this concept.
for a whole range of human difficulties,
single diagnosis of “autism” is available
Work through the '80s and '90s
from autism to diabetes. The discovery
to the clinician. This emphasises the
framed autism as a developmental
that some gene sites appear to be
unique presentation of the condition
disorder: affected children did not
implicated in the development of
in individuals. “Autism” indicates the
reach developmental milestones in the
autism seemed to offer some answers.
presence of difficulties in the anticipated
areas of language, socialisation and
The downside of this approach is, of
fields of social communication and
imagination/flexibility of thought and
course, the accompanying mistaken
restricted patterns of behaviour, but the
behaviour. Toward the end of the '90s,
notion that one’s genes are one’s
general feeling is that the new criteria
it became increasingly recognised that
destiny: that genetic make-up dictates
will lead to a decrease in diagnosis rates
people on the spectrum also had high
biological futures.
as many people with difficulties will not
rates of anxiety and marked sensory-
meet the new criteria.
number of important texts dealing with
The future: a multi-system condition
An autism constellation?
these aspects of the condition (see
As research methods have become
Further, the range of conditions which
Seroussi, 2002).
perceptual differences, resulting in a
yet more sophisticated, so our picture
are associated with autism – such as
the
of autism has become less plausible,
ADD/ADHD, OCD and dyspraxia – point
developmental nature of the condition
particularly in terms of our conception
to a much more complex aetiology and
led to an emphasis on the importance
of autism as:
presentation (Seroussi, 2002). Given
This
understanding
of
of early intervention – the need to teach
(a) a disorder comprising the
our advancing understanding of these
the young child not only the skills which
discrete variants: autism, Asperger’s
relationships, in the future, we may
s/he did not acquire in the way that
syndrome, childhood disintegrative
well see an “autism constellation”
neurotypical children did, but also to
disorder and PDDNOS
where these associated conditions
teach the child how to learn. Approaches
(b) present from birth and
also become part of the individual’s
to helping those with autism offered
(c) fixed.
primary diagnosis. Thus, whilst we may have one, broad diagnosis (autism) the elements of the individual’s condition can be more thoroughly described and defined within it. “Late onset” autism For many decades, parents have been reporting that children, who at two to three years old are clearly autistic, had become so following a period of typical development and regression. The
In the '80s and '90s, an understanding of the sensory perception differences of those on the spectrum came to the fore.
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autism
for clinicians to view the individual child’s development closely from home movies and, indeed, the proportion of children who are later diagnosed with autism, who regress after a period of typical development, does appear to
Recent work suggests a much more complex and intricate picture of autism than previously imagined
be increasing.
amenable to physical as well as educational intervention.
Conclusions Autism has received an increasing amount of research and media attention over the past two decades.
here – whether cause or effect – is
The questions around causes of the
Gastro-intestinal challenges
unclear, but many parents report the
condition and the apparent anomalies
Perhaps the most exciting field of
onset of autistic regression following
of human functioning (savant syndrome,
change is that of the awareness of
a biological insult, such as an infection
Tourette’s syndrome) make it appealing
other body systems involved in an
or seizure.
to the media. As the brief commentary
individual’s autism. Again, for decades
above has noted, our conceptualisation
parents have been reporting the gastro-
Metabolic differences
of autism is a cultural product, not an
intestinal problems their children have:
A new area of research is that of
objective categorisation. It depends
diarrhoea, food intolerances, stomach
metabolic functioning in individuals with
on the direction of scientific advances,
cramps and extreme food preferences
autism. Research in this field is pretty
societal attitudes and values, and
(the beige diet). Whilst previously these
disparate; however, work on oxidative
(certainly in research terms) competing
have been ignored, parental pressure
stress apparently indicates significant
voices. However, the prevalence of the
has recently focussed much more
differences in functioning between the
condition – now estimated at one in
attention on these difficulties, which are,
neurotypical and autistic individual at
100 – would warrant a continuing high
in some cases, extreme. The gluten-free,
a cellular level (James, in Zimmerman,
level of interest. As a result of this, we
casein-free diet, seen as outlandish ten
2008).
can anticipate further changes in our
years ago, is now part of the mainstream
Taken together, this work suggests a
approach to autism. One would hope
much more complex and intricate picture
that in another ten years time, thorough
of autism than previously imagined.
gastro-intestinal investigation would be
Should the research on immune and
part of the diagnostic and therapeutic
metabolic differences in autism come
approach to autism in individuals.
to fruition, we may see a protocol for early intervention which includes not just
Immune system challenges
work on language, social understanding
More recently, it has been suggested
and sensory sensitivities, but on dietary
that the food issues discussed above
supplementation and attention to
are part of a broader picture of immune
individuals’ metabolic profiles. All of this
system dysfunction in individuals with
marks another paradigm shift – away
autism. It is broadly thought that the
from fixed, developmental unfolding
immune system over-reacts to some
of the condition (albeit ameliorated by
substances and under-reacts to others
educational intervention) toward the
(see Zimmerman, 2008). The relationship
concept of a multi-faceted condition,
References and Bibliography Anderson, M., Tales from the Table: Lovaas/ ABA Intervention with Children on the Autistic Spectrum (2008) London: Jessica Kingsley Publisher. Bettelheim, B., The empty fortress: Infantile autism and the birth of the self (1967) New York: Free Press. Happe, F., Autism: An introduction to psychological theory (1994) London: UCL Press. Herbert, M. and Weintraub, K., The autism revolution: Whole-body strategies for making life all it can be (2012) New York: Random House Books. Hermelin, B., Bright splinters of the mind: A personal story of research with autistic savants (2011) London: Jessica Kingsley Publisher.
Houston, R. and Frith, U., Autism in history: The case of Hugh Blair of Borgue (2000) Oxford: Blackwell Publishers Ltd. Huws, J. and Jones, R., Missing Voices: Representations of autism in British newspapers, 1999-2008. British Journal of Learning Disabilities. (2010) 39, 98-104. Lane, H., The Wild Boy of Aveyron (1977) London: Allen and Unwin. Newton, M., Savage girls and wild boys: a history of feral children (2002) London: Faber and Faber. Rimland, M., Infantile autism: The syndrome and its implications for a neural theory of behaviour (1965) London: Methuen. Rutter, M., Autism research: Lessons from the past and prospects for the future. Journal of Autism and Developmental Disorders (2005) 35(2) 241-256.
www.senmaGAZINE.co.uk
understanding of what autism is.
Further information
Dr Maggie Wilson runs Autism: Learning and Development Ltd, a company which provides early educational intervention for preschool children on the autistic spectrum. She also works with schools to support children and staff groups to address the aspects of autism spectrum conditions in individuals which may prove challenging in the classroom. www.autismdevelopment.co.uk
Sanders, J., Qualitative or quantitative differences between Asperger’s disorder and autism Historical considerations. Journal of Autism and Developmental Disorders (2009) 39 1560-1567. Seroussi, K., Unravelling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research & Recovery (2002) New York: Broadways Books. Silverman, C., Understanding Autism: Parents, doctors and the history of a disorder (2011) New Jersey: Princetown University Press. Wolff, S., The history of autism. European Child and Adolescent Psychiatry (2004) 13, 201-208. Zimmerman, A. (Ed.), Autism: Current Theories and Evidence (2008) New Jersey: Humana Press.
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LANGUAGE PROCESSING
44
AUTISM
Affordable new method promotes sensory integration, activates language processing and builds life skills Using specially processed music and speech, the new neuro-sensory SAS method activates each brain-half separately to improve inter-hemispheric communication, speed up processing and strengthen language development. Client feedback indicates major improvements in attention, understanding, speech and language, social skills, behaviour and most importantly self-worth. When applied intensively for one hour every day for 3 to 4 weeks, the fully personalised programmes aim to build new, lasting habits of processing in the brain. As the method does not require following instructions, movement, attention or feedback, it can be used by clients of all abilities and ages. A full course includes over 100,000 cross mid-line processing movements. Every course is individually designed to ensure the programmes fit the abilities and needs of the client and have maximum effectiveness. The SAS method is available at SAS Centres and Practitioners in the U.K., Australia and Turkey. Fully personalised programmes can also be ordered via the web with prices starting from under ÂŁ 120 for a course of 12 half-hour programmes. Information and training for therapists and educational and health professionals is available.
Find out more today about this exciting new method by calling Nicole or Steven on 020 – 3239 4880, by visiting our website at www.sascentre.com, or by emailing info-uk@sascentre.com Sensory Activation Solutions Ltd, 9 Sonia Close, Watford, WD19 4PD, U.K.
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AUTISM
45
Promotional feature
New 2012/13 catalogue from Total Sensory Total Sensory has launched its new fourth edition catalogue. It’s packed full of innovative sensory resources, from traditional bubble tubes and fibre optics to some new product launches, including sensory musical gloves, play ‘n’ go all sense cases, new LED projectors, weighted blankets and more.
Total Sensory’s Draw ‘n’ Glow kit is available to purchase online.
Information on Total Sensory’s design services, catering for sensory and soft play rooms, can also be found in the new catalogue. To request your free copy, call: 01702 542231 or visit: www.totalsensory.co.uk www.senmagazine.co.uk
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AUTISM
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school action
Farewell to School Action
The abolition of School Action and School Action Plus may leave many children with SEN without the support they need, says Amelia Roberts
A
• There will be new measures
s the Children and Families
protection as they did under the
Bill works its way through
previous statement of SEN. Where this
in performance tables on the
Parliament, there are a
gets less clear, however, is how this
progress of disadvantaged pupils
number of unanswered
will affect children who aren’t eligible
and those in the lowest-attaining
questions on what future SEN provision
for a combined plan, but would have
will look like. This is particularly true
previously been on School Action or
To support schools during this transition,
for children who don’t need the new
School Action Plus. There may be
government proposals include:
combined education, health and care
distinct geographical differences, too,
• increased emphasis on managing
plan (EHCP), but will still require focused
as local authorities will be publishing
SEN in school as part of initial
intervention in school. Many of these
a “local offer” of provision available to
teacher training
children are likely to be on School Action
children with SEN, which will vary from
or School Action Plus at the moment, both
region to region.
of which are to be abolished. Individual education plans will also go, while the SEN Code of Practice will be revised. This reflects the coalition’s stance that SEN is over identified in schools. Currently, School Action is used when a child is not making progress
How will this affect children who aren’t eligible for a combined education, health and care plan?
at school and there is a need for
20 per cent.”
• increased emphasis on continuous professional development and ongoing training • increased focus by Ofsted on ways in which SEN is identified and the progression of the lowest attaining 20 per cent. Although there is still some way to go before the Bill becomes legislation, all indicators suggest that the majority
action to be taken. It can include the
The National Association for Head
of these changes will go ahead. The
involvement of extra teachers and
Teachers (NAHT) describes the changes
aspiration of managing a diverse range
may also require the use of different
thus: “The Green Paper says current
of children’s needs within the school
learning materials, special equipment
practice harms children who do not
setting is laudable, but what will this look
or a different teaching strategy. School
have SEN but are identified as such. It
like at the chalk face? What support
Action Plus is used where School Action
says: ‘This problem of over-identification
and resources will teachers have at their
has not been able to help the child make
sustains a culture of low expectations for
fingertips to turn these aspirations into
adequate progress. The school may
these children and can mean that they
a vibrant and dynamic reality? This is
seek external advice from appropriate
do not get the right help. It can distract
a crucial time as no-one quite knows
support services, such as a speech
teachers away from their main priority of
what will replace School Action and
and language therapist, occupational
teaching pupils, assessing where they
School Action Plus in terms of “real
therapist or specialist autism advisory
are in their learning and ensuring they
life” provision, particularly for those
service. Provision may also include one-
get the right help where needed.’
children who fall just short of accessing
to-one support and the involvement of an educational psychologist.
“Instead, the government wants to
the combined EHCP.
embed the approach of the Achievement for All project, change statutory guidance
Gaps in provision
on how SEN should be identified and
Under the new arrangements, School
enforce ‘sharper accountability.’
Action and School Action Plus will
• “The SEN Code of Practice
be replaced by the combined EHCP.
will be shorter and clearer for
Children who have a combined plan
professionals, including those in
will have the same level of statutory
early years settings
www.senmaGAZINE.co.uk
Further information Dr Amelia Roberts is Project Researcher for The Literacy and Dyslexia-SpLD Professional Development Framework: http://framework.thedyslexiaspldtrust.org.uk
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sencos
The changing role of the SENCO As the new Teachers’ Standards and Ofsted framework take effect, Lorraine Petersen examines how SENCOs can help school staff meet the needs of all pupils
W
ith one in five pupils
Standards, now in operation, place a
identified as having a
greater emphasis on supporting pupils
special or additional
with SEN. Challenging professionals
educational need, the
to adapt teaching to respond to the
role of the SENCO has never been so
strengths and needs of all pupils, the
important to whole school development
Standards also call on teachers to use
and improvement. The new Ofsted
and evaluate distinctive approaches to
framework and the new Teachers’
engage and support them.
The revised Ofsted framework will impact greatly upon the role of the SENCO a far greater number of support staff
Standards focus on teachers supporting
This has a clear impact on the role of
– this includes time-tabling, training,
the most vulnerable pupils to ensure that
the SENCO; diverse responsibilities for
performance management, ensuring
they are making significant progress.
the role include staff training, working
effective provision and assisting with planning of work.
The inclusion agenda, SENCO
with external organisations, classroom
regulations and the National Award have
observation, impacting on teaching and
led to significant changes in the role
learning, data analysis and leading on
Ofsted inspection framework
of the SENCO over the past decade.
school improvement. The specification
The revised Ofsted framework will impact
The recent announcement of a sizeable
for the National Award for SEN Co-
greatly upon the role of the SENCO.
fall in the number of pupils identified
ordination lays out very clearly the
Although the overall responsibility is
as having SEN belies the simple fact
knowledge, skills and understanding that
with the leadership of the school, there
that there are many more children
a twenty-first century SENCO should
are a number of aspects within the
with special and additional needs in
have; one of the significant changes
four key judgements that the SENCO
mainstream schools. The new Teacher
to the role is the line management of
will be expected to have the evidence to support. The revised framework will focus sharply on those aspects of schools’ work that have the greatest impact on raising achievement. Engagement with headteachers, school staff, governors, parents, pupils and staff is also a key theme. The framework will focus in more depth on the achievement of pupils, the quality of teaching, the behaviour and safety of pupils and the quality of leadership and management of the school. Pupil development – spiritual, moral, social and cultural – will also be a key measure, and inspectors
SENCOs should oversee appropriate intervention strategies for those with SEN.
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will examine the extent to which the
www.senmagazine.co.uk
sencos
The SENCO is vital in ensuring that all the changes within SEN policy are implemented in schools Children with SEN need effective advocates.
For some SENCOs, one of the more recent aspects of their role is working with other schools (especially special schools) and external agencies to ensure a holistic model of support for a child. With more and more children with complex needs in our mainstream schools there is a much greater need to seek advice and support from other
The announcement of the second year
professionals to ensure that provision
education provided by the school
of the National Scholarship for teachers
meets the needs of each individual.
meets the needs of the range of pupils,
and the introduction of a scholarship
Although every teacher is clearly
particularly those with SEN.
for SEN support staff was broadly
a teacher of children with SEN, there
The emphasis within the evaluation
welcomed, as was the fourth year
needs to be one lead person who can
schedule is very clearly targeted at
of funding for the National Award for
support what they are doing in the
those pupils who are underachieving
SEN Co-ordination.
classroom. SENCOs not only advocate
and who are not making the expected
Many SENCOs facilitate CPD within
for children but can be instrumental in
progress. These may be pupils who have
their own school or arrange for outside
developing early intervention strategies,
an identified special educational need
agencies to provide specialist training
carrying out assessments and advising
and/or disability, but they may well be
and support as the need arises. Schools
on appropriate and alternative
a significant group within a school who
should have at least one full day per year
interventions and strategies as the child
are not receiving the targeted support
looking at SEN and how to adapt the
moves through the school.
that they need to improve.
curriculum and teaching styles to meet
The SENCO is vital in ensuring that
The key to a school’s success is
the needs of all children. Secondary
all the changes within SEN policy are
that they can evidence high quality
SENCOs often offer additional twilight
implemented in schools. Although the
educational provision which is offered
sessions for newly qualified teachers or
SENCO regulation in 2008 legislated
every day to every pupil. The SENCO
new school staff, but these are voluntary.
that all SENCOs must be qualified
has always played a very important part
Local authorities (LAs) have provided
teachers and those appointed since
within a school inspection; however, the
SENCO conferences but these can
2008 must undertake the award, the
new schedule will demand much more
become information giving sessions
quality assurance processes is still not
from this already extensive role and,
rather than quality CPD and can differ
robust and so is not being systematically
therefore, it is really important that the
from one authority to another. There
implemented across the country. The
foundation stones are laid to enable
is increased concern that with the
SENCO is very important and we must
the SENCO to carry out the strategic
staffing cuts taking place at LA level,
ensure that governing bodies understand
role effectively. This means ensuring
much of this support may disappear and
that they need time and resources to
that all staff have the skills, knowledge
schools will have to look at alternative
carry out their role and responsibilities
and understanding they need to provide
ways of accessing training and
to the highest level. Schools also need
high quality teaching and learning
support providers.
to ensure that there are high-quality
opportunities for all pupils.
The National Award for SEN Coordination has seen some excellent
Continuing professional development and local support
examples of networking opportunities,
One of the key messages within the
within an LA and beyond. Some
Government’s SEN Green Paper, and
special schools offer excellent training
reinforced in the new Ofsted framework,
opportunities for mainstream staff but
is the need for high-quality continuing
this is not the national picture. There
professional development (CPD)
is an increased role for special and
opportunities for the school workforce
mainstream schools to work together
and those who work with schools
within clusters/federations to support
supporting children and young people.
CPD opportunities for all staff.
www.senmaGAZINE.co.uk
both online and face to face, developing
continuing professional development opportunities for all staff.
Further information
Lorraine Petersen OBE is Chief Executive Officer of nasen, the UK professional association for special and additional educational needs and disabilities. nasen is the Department for Education’s delivery partner for free specialist SEN training: www.nasentraining.org.uk
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SEN RESOURCES
Promotional feature
Vodafone volunteers transform gardens at Prior’s Court School Eighty volunteers from Vodafone’s legal team joined staff at Prior’s Court School for children with autism to give two residential house gardens a make-over. From building raised beds, to laying new turf and gravelled areas, the volunteers transformed the gardens, providing structured areas where the students can enjoy their surroundings and grow flowers, fruit and vegetables as part of their horticulture and vocational activities. For more details about Prior’s Court School, call: 01635 247202, email: mail@priorscourt.org.uk or visit: www.priorscourt.org.uk SENISSUE61
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spina bifida
52
Part of the team Gobi Ranganathan tells how an inclusive education taught him to deal with his spina bifida and achieve at school and beyond
I
they knew that I would have special
Even before I started any schooling,
needs, which they felt might not be
I was encouraged by my parents to be
catered for in Singapore, the place of
active, and they were keen to get me
my birth. Following discussions with
doing as much as possible. I may have
family and friends, it was agreed that the
had some physical restrictions, but there
a range of disabilities, I accepted that
chances of receiving better healthcare
was no reason why I couldn’t be active
everyone had their own needs and it
for me would be improved by emigration
in some way.
was all part of growing up.
was born with spina bifida.
England would help me considerably, I
Understandably, my parents had
don’t think even they envisaged just how
concerns about my wellbeing and
well things were going to turn out for me.
I was given the opportunity to do exactly the same things as my classmates
to another country. It was a massive step
Needless to say, my first memories
for my parents to take, but the idea of
of school (attending a special needs
Into the mainstream
moving to England was a decisive one.
nursery) are somewhat limited, though I
Somewhere along the line, it was
While my parents clearly thought that
do remember feeling a part of “normal”
decided that I would benefit from
better health and support facilities in
school life. As the other children had
going to a mainstream school. I’m not entirely sure who’s decision it was, but I soon found myself going along to a mainstream nursery once a week. From the initial weekly sessions, I was slowly integrated into full-time attendance at the nursery, and my life as a disabled child in a mainstream school had started. To assist with the transition to primary school, I was provided with my own welfare assistant, Val, who was there for me throughout my time in infant and junior school. I settled in well at the new school and took part in pretty much everything that the class did. I was given the option, and opportunity, to do exactly the same things as my classmates, albeit with some allowances in the more physical aspects of school, such as PE lessons, sports days and school trips. In my opinion, this inclusive approach was crucial to my integration at school; it was a big step for all concerned as it involved educating teachers and my friends about what my physical
Gobi with the Olympic flame in Stevenage in July 2012.
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spina bifida
to work and play without having someone looking over my shoulder all the time. This was a big turning point in my school life, not just for me, but for my friends as well. Rather than having my assistant by
53
The step up to a secondary school was a massive concern for my parents
my side during play time and lunchtime, I wanted to play with my friends – having
Taking part in sport was always important to Gobi as a child.
a kick-about in the playground, going in
Practical considerations, such as
goal (on my knees) on the field, or sitting
moving between classrooms, going
on the ground playing with my toy cars.
upstairs and managing PE lessons,
My friends rallied around to help
were all important, and there were also
when needed, and were more than
concerns regarding my mobility and
happy to involve me in any of the social
having the use of a suitable toilet facility.
activities within school. By that age,
However, one-by-one, these issues were
realise it then, the options provided to
they’d already realised that I had my own
addressed and I was soon functioning
me gave me a sense of confidence and
needs and they were supportive of what
happily at the school.
enabled me to focus on the things that
I was trying to achieve. Furthermore,
I could do, rather than the things that I
they were also very protective of me,
place, I was provided with my own
couldn’t do – something I have carried
particularly with those in other classes
personal disabled toilet (for which I had
forward into adulthood.
who were less understanding of
the key), and I was given permission
my disability.
to take refuge in the nurse’s room as
I always enjoyed PE and at school sports days I was encouraged to get
I
had
definitely
The school already had ramps in
discovered
and when I needed to (and also during
involved and take part. Although some
independence and had shown teachers
break times if I didn’t feel up to heading
of the activities needed modifying for
and my welfare assistant that I was more
outdoors). This wasn’t always an offer I
me, I was still able to contribute to the
than capable of managing a number
took up but, now and then, the option of
points total gained by my team, which
of things on my own. Introducing me
getting away from it all was very handy.
gave me a real sense of achievement
to my class at an early age helped to
My timetable was also modified to ensure
and belonging. I wasn’t just the disabled
educate my classmates to the extent
that all my classes were in ground floor
kid, making up the numbers – I was part
that they knew that there were going
rooms or in accessible portakabins.
of a team.
to be differences, and they therefore
Once again, my peers soon realised
accepted this as the norm. Obviously,
my capabilities and they rallied around
Reaching for independence
greater independence also gave me a
where they could to assist me, but
While my involvement at junior school
massive confidence boost; I was no
without patronising me or wrapping
was very much the same as it had
longer disabled – just differently able.
me in cotton wool. I was a student
been at infant school, my needs were changing and I also wanted to experience more independence.
like everyone else, had homework like
Moving up to secondary school
everyone else and, needless to say, had else too.
the occasional telling off like everyone
To allow me to sample this, my welfare
My junior school had started me on the
assistant was given other roles within the
road to success and independence.
Teachers treated me no differently to
school, so that I could remain seated
However, it was at comprehensive
any other student. A basic understanding
with my classmates, without someone
school that I truly developed into a
of the physical requirements I had and
constantly sitting nearby throughout
confident and determined individual.
some empathy towards my disability
lesson time. I was allowed to request
The step up to a secondary school
were all it took for me to feel settled.
assistance as and when I needed it,
was a massive concern for my parents,
Student life in secondary school was
with Val soon on hand to help out on
welfare assistant and teachers alike.
soon to develop even further and it was
such occasions.
Many questions were asked about my
with the help of the PE department that
Inevitably, my confidence grew and
ability to cope in a school where the
I got a taste of what I could achieve.
I soon wanted to be like my peers –
lifestyle would be different in every way
having the freedom and independence
to that which I was used to.
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54
Sporting chance Rather than exclude me from PE lessons that weren’t practical for me, I was provided with options of sports activities that I could do, in some instances with a classmate or two of my choice.
I had evolved from a disabled child into a disabled student, and then simply into a student
at school, I very much doubt that any of this would have been possible.
Looking to the future With all the modernisation and upgrading of school facilities that has taken place recently, and with an
I always avoided rugby on the field and tended instead to opt for tennis
emphasis of better provision for disabled
or badminton. I was even given the
adamant that I take part in PE and other
students, I hope that the inclusive ethos
opportunity to take part in cross country
school activities.
I experienced will come to be the norm
running, although my route involved
All this made me look at what I was
in all schools. In order for children to
slight detours to avoid grass or any
able to do rather than taking the easy
have an understanding of disabilities
muddy areas. When others took part
way out and just not doing anything at
and how they are dealt with in day-to-
in athletics and hurdles, I had extra
all. I had evolved from a disabled child
day life, such integration is essential. For
practice with the javelin and shot putt.
into a disabled student, and then simply
those with a disability, greater support
In rounders, I took my turn at batting
into a student, just like everyone else
and empathy shown by others would
while someone was nominated to run
at school.
certainly serve to provide much needed
Spurred on by my experiences at
boosts to their confidence and self-
The key thing at both primary and
school, my interest and expertise in
esteem, which can be further challenged
secondary school was that I was given
sport have developed throughout my life.
when they reach adulthood.
flexibility, options and opportunities to
I have enjoyed a fair bit of success as an
I am truly thankful to all the staff at
try different things. The schools never
international para-badminton player and
my schools for supporting me in all
obstructed me by saying that I couldn’t
today I am European Champion in men's
that I did. My welfare assistant was
do anything. The focus was very much
doubles and ranked world number two
particularly influential and also helped
on what I wanted to do and what I
in men's singles. I was also honoured to
to educate my classmates and show
could do. It would have been easy for
be selected as an Olympic torchbearer
them that a person with a disability can
teachers to let me sit in a classroom or
in Stevenage in July 2012. Without the
be a success.
the library during lessons, but they were
support and encouragement I received
for me.
School life is always going to be difficult, whatever your ability, but having measures in place that demonstrate understanding and show a willingness to be flexible can take schools a long way towards supporting all their students. If there is one single thing that needs to be remembered, it is this: disability is not inability.
Further information
Today, Gobi is a European champion at para-badminton.
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Gobi Ranganathan was a highways engineer for 12 years and now works for the charity Shine, which helps families and individuals affected by spina bifida and hydrocephalus: www.shinecharity.org.uk
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MENTAL HEALTH
55
Healthy mind, everybody Pupils with complex SEN are particularly prone to mental health issues, yet their needs are going unrecognised and unsupported, says Rachel Allan
I
n recent years, we have seen an increase in the incidence of mental health concerns for children and young people with complex SEN.
Indeed, a child with a learning disability is six times more likely to present with a mental health difficulty throughout his/her life than a child without one
Lack of knowledge leads to lack of confidence in identifying concerns about a young person’s mental health
(Emerson and Hatton, 2007). Studies
diagnostic overshadowing (Bernard, et al., 2010). This confusion was found particularly in teaching staff within some special schools who, for example, found it hard to identify high levels of anxiety as a potential additional mental health concern in children with a diagnosis of ASD (NASS, 2007). Typically, mental health concerns in
also show a need for greater awareness
which may make them more predisposed
children with complex SEN have been
of these issues when specific conditions
to developing a mental health concern.
identified by observing behaviours, such
are considered. For example, 70 per
These include social exclusion, poverty,
as increases in challenging incidents or
cent of children with autistic spectrum
lack of verbal communication skills and
withdrawal from activities. However, in
disorders (ASD) will have a mental
low cognitive ability.
children who have profound and multiple
health concern at some point in their life (National Autistic Society, 2010). For some children with other complex
needs, it may be that we need to be
Supporting pupils with complex SEN
SEN, the true extent of the problem is still unknown.
aware of more physical responses to identify distress, such as sweating, eye movements and body posture
Identification
(Cooper, 2008).
Why, though, might this group of
It can be very difficult for school staff to
children and young people be more
know whether to attribute behaviours to
Lack of Knowledge
vulnerable? Emerson and Hatton’s work
a child’s primary diagnosis or identified
Research has shown that, within some
highlights some interesting risk factors in
SEN, or a separate mental health
services, there is a lack of specialised
the lives of children with complex SEN
concern. This is often referred to as
knowledge regarding mental health in >>
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mental health
There needs to be an improvement in the training and support offered to schools
children with complex SEN. A number
young people may not be adaptable
of reports have mentioned a difficultly in
for situations involving children with
accessing child and adolescent mental
severe and complex needs who may
health services (CAMHS) for those
have communication difficulties or low
children and young people with complex
cognitive ability, leaving their problems
SEN, and that long referral times and a
unidentified and often untreated.
lack of specialised knowledge create
Bernard (2010) suggests that in order
serious barriers for schools in securing
to try and assess the mental health
appropriate support (NASS, 2007;
of a child or young person with a
this population. By raising awareness
Fergusson et al., 2008; Rose, et al., 2009).
learning disability we need to take a
and equipping school and care staff
Sometimes, a mental health concern has
comprehensive and multi-disciplinary
to be alert to potential concerns,
been attributed as part of the child’s SEN
approach that considers aspects such
more children who need support will
and, as a consequence, limited support
as observations, past history, and a
be identified.
is available for those who need it. NASS
reliance on information from third parties,
A recent research project, Making
(2007) found that this might be due to
including teachers, parents, and social
Sense of Mental Health, suggests that to
two factors: low expectations in respect
workers, who know the individual well.
identify any potential issues we should be
to the individual’s behaviour, or a causal
observing any changes in many different
factor in behaviour that schools and
Lack of training
aspects of the child’s life, so that we take
professionals were unable to explain.
Emerson and Hatton found that 42 per
a holistic approach to understanding
Additionally, education and care staff
cent of mental health concerns are dealt
their mental health. This includes looking
have reported feeling that they don’t
with by school and education staff, but
for changes in areas such as their
know what a mental health need is, or
NASS found that staff lack training within
emotions, relationships, communication,
how to respond to a pupil who may
this area and there is a great need for
and thinking and learning, not just solely
have a mental health concern/or a dual
help and advice in the identification of
behavioural changes.
diagnosis of a mental health need in
concerns and how to refer these on to
There is also a need to improve
addition to their complex SEN (NASS,
other professionals. Fergusson at al.
communication with external services,
2007). However, it is important for staff
(2008) found that, although the majority
such as CAMHS, to ensure that children
working in schools to recognise that
of staff had wide experience of working
and young people are being supported
they are often better equipped with
with individuals with complex SEN,
adequately. The report This is What
knowledge about the child than any
they had not had the opportunity to
We Want (Foundation for People with
other professional, and this knowledge
access specific mental health training to
Learning Difficulties, 2006) showed that
is extremely valuable in spotting issues
support them in distinguishing between
young people with complex SEN want
of concern and supporting pupils to
characteristics of the existing SEN and
to have access to the same services
receive appropriate help. In some
possible mental health problems, or the
as everybody else. The National
cases, though, lack of knowledge
opportunity to learn about appropriate
CAMHS Review (2008) also proposed
leads to lack of confidence in identifying
ways of responding to individual needs
that all children and young people
concerns about a young person’s
when they have identified a concern.
should have equal access to services,
mental health. This also has an impact
regardless of disability. Additionally,
on the support and care offered to the
Where can we go from here?
if someone does have a disability or
individuals concerned.
Although the issues around mental
SEN, they should expect that their
health in children with complex needs
mental health needs will be assessed
Communication
are complex in themselves, and research
alongside their other needs, regardless
Children and young people with limited
within this area is ever evolving, there
of which need is initially identified. S/he
or no verbal communication may find
needs to be an improvement in the
should also expect an individualised
it difficult to express their concerns
training and support offered to schools.
package of care appropriate to his/her
and feelings, and school staff often
Fergusson et al. also suggest that
personal circumstances (Department
find it hard to interpret their needs or
provision of appropriate support for
of Health, 2008). However, this may
distress. Additionally, some clinical
children with complex needs depends
not be happening for a large number
assessment tools that are designed for
on the establishment of an informed
of individuals with complex needs and
the general population of children and
picture of the mental health needs in
additional mental health concerns.
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mental health
Potential mental health issues might be revealed in many different areas of a child’s life. Image copyright NASS (2012).
In Making Sense of Mental Health,
• embedding evidence-based
research emphasised the importance
practice across all children
of forming good working relationships
and young people’s mental
with external services to encourage the
health services
formation of strong and effective links to mental health support for pupils. This
includes
strategies
• involving children and young people in the design of services.
such
The Department for Education (DfE)
as joint working and training, a
has also commissioned the BOND
mutual understanding of roles and
consortium, led by the charity
good
between
YoungMinds, to work with the voluntary
services
and community sectors to develop their
communication
schools
and
external
(Pettit, 2003). Recently, the mental health of children and young people with SEN has
capacity to offer early intervention mental health support, including to schools.
been mentioned in the Government’s
These recent developments provide
response to its SEN Green Paper. Here,
encouragement that things may be
the Government says that it aims to
beginning to change. However, although
fund different organisations to support
the knowledge base of interventions that
children and young people who have
are effective for children with complex
SEN with their mental health needs,
needs is evolving slowly, it is still the case
including activities such as:
that the mental health needs of these
• developing approaches to early
children and young people go largely
intervention in mental health
unnoticed. As our health and education
support for children and
services evolve to meet mental health
young people
needs in the general population, it is
• the extension of the Improving
important that equal consideration
Access to Psychological
is given to those children and young
Therapies Programme to
people who may have a mental health
children and young people
concern and complex SEN.
www.senmaGAZINE.co.uk
References Bernard, S., Kannabiran, M., and Philips, N. (2010) Assessment, in Raghavan, R., Bernard, S., and McCarthy, M. (Ed's) Mental health needs of children and young people with learning disabilities, Brighton, Pavilion. Bradley, E. A., Summers, J. A., Wood, H. L. and Bryson, S. E. (2004) Comparing rates of psychiatric and behaviour disorders in adolescents with young adults with severe intellectual disability with and without autism, Journal of Autism and Developmental Disorders, 34 (2), pp. 151–161. Cooper, E. (2008) Assessing contentment and distress. Learning Disability Practice, 12 (1), pp. 14-17. Emerson, E., and Hatton, C. (2007) The Mental Health of Children and Adolescents with Learning Disabilities in Britain. The British Journal of Psychiatry, 191, pp. 493-499. Fergusson, A., Howley, M., and Rose, R. (2008). Responding to the Mental Health Needs of Young People with Profound and Multiple Learning Disabilities and Autistic Spectrum Disorders: Issues & Challenges. Mental Health and Learning Disabilities Research and Practice, 5, pp. 240251. Foundation for People with Learning Disabilities (FPLD) (2006). This is what we want. The Mental Health Foundation, London. National Autistic Society (NAS) (2010). You Need to Know Report. Available from www.nas.org.uk The Nation Association of Independent Schools and Non-maintained Special Schools (NASS) (2007), Making Sense of Mental Health. Available from www.nassschools.org.uk Pettit, B. (2003) Effective joint working between Child and Adolescent Mental Health Services (CAMHS) and schools. Department for Education and Skills. Nottingham. Mental Health Foundation. Rose, R., Howley, M., Ferguson, A. and Jament, J. (2009). Mental Health and Special Educational Needs - exploring a complex relationship. British Journal of Special Education, 36 (1). Pp. 3-8. Wolff, S., The history of autism. European Child and Adolescent Psychiatry (2004) 13, 201-208. Zimmerman, A. (Ed.), Autism: Current Theories and Evidence (2008) New Jersey: Humana Press.
Further information
Rachel Allan is the SEN and Mental Health Resource Developer working as part of a knowledge transfer partnership between the National Association of Independent and Non-maintained Special Schools (NASS) and The University of Northampton. This project has developed an e-learning resource for school staff about how to identify, record and respond to the mental health needs of pupils with complex SEN in their care: www.nasschools.org.uk
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PMLD
Unlocking lives Janet Trebilcock looks at how a multi-disciplinary approach in a residential school is helping those with PMLD achieve their potential
C
hildren
and
young
total communication environment and
people with profound
the embedding of vital approaches,
and multiple learning
such as intensive interaction and
disabilities (PMLD) are
sensory integration.
Sarah was often uncomfortable or in pain, which could cause her a great deal of distress
amongst the most vulnerable people
To illustrate what such an approach
in our society. The challenges they
might involve, I will outline the cases
face, in terms of engaging with their
of three young people with PMLD who
environment, relating to those around
are residents at the specialist school
Sarah to focus on things around her.
them and fulfilling their potential, can
for PMLD at which I work. It is often
Her communication skills were at a
be so severe that they sometimes seem
thought that those with PMLD make little
low level – around P2(i) – which meant
almost insurmountable.
progress throughout their education,
that though it was sometimes possible
It is remarkable, though, just how
and even if they do make progress,
to read Sarah’s body language to
much can be achieved by many of these
it is notoriously difficult to evidence.
understand her needs and wishes, she
children and young people if they are
However, we are often delighted to
wasn’t able to communicate actively or
given the right support. For those of
record real steps forward that individuals
in an organised way.
us who work in PMLD, excellence in
have been able to make.
practice is a must, and yet is often
In each of the three cases below,
elusive. It is clear that children with
progress in achievement and quality
PMLD should receive the very best care,
of life has required intensive input from
education, nursing and therapy that we
many professionals. The absence of,
can provide. However, by definition, the
or reductions in, any of these specialist
needs of these children are complex,
approaches would have hindered or
requiring the greatest perseverance from
even prevented progress. The outcomes
all involved to achieve a coordinated and
for these children speak for themselves.
sustained approach that will enable the fulfilment of potential and ensure the
Sarah’s story
highest quality of life.
Sarah has very complex health
Achieving this kind of approach is a
needs, arising from her quadriplegic
particular challenge in the community,
cerebral palsy. These include, epilepsy,
where resources can be scarce and
gastrostomy feeding (nil-by-mouth),
attention is often diverted to those with
being prone to serious chest infections,
less complex disabilities. Residential
having dislocated hips and experiencing
schools, however, have specialist
painful extensor spasms.
therapists, nurses and teachers on
Despite having a loving and caring
site, making communication between
family, Sarah found life very difficult
professionals and carers easier, and
before she transferred to a residential
allowing for intensive input where
placement. She was often uncomfortable
necessary. Specialist centres for
or in pain, especially when her extensor
PMLD can also ensure the consistent
spasms were uncontrollable, which
implementation of an appropriately
could cause her a great deal of distress.
individualised curriculum, a 24-hour
Consequently, it would be hard for
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With extensive support from the multidisciplinary team, Sarah's life has been transformed.
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PMLD
It took several years of the multidisciplinary team working with Sarah to see any change. Care and education staff were able to support Sarah to be engaged in social and educational activities, but only when she wasn’t
Moses is unrecognisable as the boy who first arrived with so many challenging issues
61
unit, with just three others, where there is a “safe space” room (set up in conjunction with the local DOL team). The educational setting has a lowstimulation “white room”, a
overwhelmed by her physical needs.
multi-sensory room and an arts
Crucially, the nursing team were
studio, providing different levels
proactive in implementing effective
Moses’ story
of appropriate stimulation. He has
medical regimes for feeding, control
Moses is a young man who is full of
an individualised timetable with
of chest infections and muscle tone,
character and fun, and also has many
intensive staff support throughout
and management of pain. In addition,
challenging behaviours. He has severe
the 24-hour curriculum
physiotherapy and occupational
physical and learning difficulties. When
• an occupational therapist
therapy staff worked to achieve better
he began a 52-week placement at the
(OT) specialising in sensory
posture and the right wheelchair for
school, at the age of 15, we could see
integration was brought
Sarah, so that her spasms and pain
his potential but he would frequently
in to advise on a “sensory
were reduced.
become so emotionally agitated that
diet” to engage Moses in
These measures transformed Sarah’s
he would lose control and become very
constructive ways. This has
experience of life, so that instead of being
difficult to support. This loss of control
been implemented by all
overwhelmed by physical discomfort,
was clearly as distressing for him as it
staff, particularly the OT and
she was now able to engage more fully
was for the staff supporting him, and was
with people and events around her,
making it impossible for him to access
benefit from the educational curriculum,
any learning or build relationships.
residential teams • a consultant psychiatrist became involved to advise on medication
and learn communication strategies with
A whole-school approach was clearly
the help of the speech and language
needed. Some of the main elements
agitation and aggression without
therapy (SaLT) team.
involved in this were:
affecting his levels of engagement
The implementation of intensive
• the school’s assistant
to reduce Moses’ anxiety,
• the physiotherapy team provided
interaction and the total communication
psychologist, with input from
frequent hydrotherapy and other
environment by staff across the campus
a local consultant clinical
physical sessions, not only
enabled Sarah to become an active
psychologist, devoted many
to meet his orthopaedic and
participant in daily life and to express
hours to observing, analysing
physical needs, but also to make
her own opinions. She has learnt to
and setting up recording
constructive use of his extra
use eye-pointing to make choices from
systems for Moses’ behaviour
objects, pictures in her communication
patterns, looking for triggers and
book or symbols on an E-tran frame (a low-tech communication aid). She is
ways to help • a behaviour support plan was
physical energy • the SaLT team provided input and training in intensive interaction to maximise Moses’ enjoyment
becoming proficient at using eye contact
put in place, with collaboration
of relationships and develop his
to say “yes” and averting her eyes to say
from residential, education and
interpersonal skills.
“no”, and at using a simple voice output
therapy staff, to be implemented
Three
communication aid (VOCA) to give a
throughout the campus
unrecognisable as the boy who first
greeting or join in an activity. She now
• intensive staff training
years
later,
Moses
is
arrived with so many challenging
makes full use of varied tone in her own
programmes were initiated,
issues. He is learning how to manage
vocalisations to have a say and make her
focussing on challenging
his own behaviour, and is usually calm
needs known. She has even been using
behaviour, physical intervention
and controlled and able to engage
an eye-gaze computer to access simple
and breakaway techniques,
inquisitively with learning, relationships
computer programmes independently.
and deprivation of liberty (DOL)
and leisure. He is a joy to take out on
As she moves on to an adult placement,
legislation. All staff teams were
trips – something that previously seemed
Sarah’s communication skills are now
involved in careful planning of
unthinkable – even participating in some
rated at P3 (ii), which represents an
Moses’ environment. He has
of the scarier rides at theme parks and
astonishing rate of progress.
been placed in a quiet residential
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PMLD
enjoying a zip wire experience on an
During her five-years in residential
adventure holiday. Moses derives great
placement so far, Georgie has received
pleasure from life and people and as he
intensive input from the whole multi-
approaches adult life, he now has a real
disciplinary team at the school:
opportunity to achieve his full potential.
• the care team has provided one to one attention to all her
Georgie’s story Georgie is a 17-year-old with cerebral
For the first time in her life, Georgie is able to tell us independently how she is feeling
personal and pastoral needs • the education team has given
palsy, which affects her so severely
her an individualised curriculum
pamper sessions – she is also able to
that she finds almost any independent
specifically tailored to her needs
make choices throughout the day, make
movement impossible. She is completely
and abilities
her voice heard and have a say in her
dependent on others for her health,
• the nursing team has helped
own life.
mobility, education and care. Her health
to manage Georgie’s complex
issues dominate her life, as she is prone
health needs, reduce pain levels
Making a difference
to chest infections, needs constant
and keep her free of infections
As the stories above illustrate, a
oxygen, and is frequently in pain due
• the physiotherapy team has
structured and consistent multi-
to severe spasms. She is registered
worked to maintain joint
disciplinary approach can make a
cortically blind and her most reliable
movement, actively develop trunk
huge difference to the long-term life
means of communication is to give an
and head control and functional
opportunities of those with PMLD. For
eye blink to say “yes” in answer to a
movement, and ensure twice-
me, it is inspiring and motivating to know
simple question.
daily chest physiotherapy
that it is possible to have a significant
• the OT team has worked to
impact on the lives of children with even
provide comfortable seating and
the most profound and complex needs.
mobility, and to help Georgie gain
There is always more to learn and it
access to ICT equipment
can be very challenging work, but I feel
• the SaLT team has helped Georgie
privileged to be part of a team that gives
develop her communication
children with PMLD the intensive input
abilities through the total
that they need to fulfil their potential.
communication environment and intensive interaction. Most excitingly, Georgie has been working hard to learn how to use an eyegaze computer with voice output – which allows her to access simple computer programmes, including vocabulary for communication – by just looking at the screen. Previous attempts to train Georgie’s vision for communication had proved futile, and it wasn’t until the eyegaze system was able to pick up where she was looking that we found out that she had functional vision. For the first time in her life, Georgie is able to tell us independently how she is feeling and what she would like to do.
Further information
Janet Trebilcock is a speech and language therapist and Head of Therapies at Action for Children Penhurst School, Chipping Norton: www.actionforchildren.org. uk/our-services/our-schools/ penhurst-school
Georgie is not only able to enjoy By developing her communication abilities, Georgie can now have greater control over her life.
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many of the things that an ablebodied teenager would enjoy – going shopping, listening to music, having
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PMLD
63 Promotional feature
Aspire, enable, achieve Stephanie Harris joined Treloar School in Alton, Hampshire, at the age of 11. A PMLD student, she was a timid young girl who had no independent mobility and most thought was non-verbal. Much of that has changed through her eight years at Treloar’s. Indeed, this year, Stephanie spent ten days in Israel, without her family or regular carers, travelling with a group of disabled young people. She was ready to take this opportunity, to which many young people aspire at her age, and experience a country which means so much to her family.
Central to this ethos is the recognition that only by enabling students to participate, often starting at the simplest level, can we unlock the potential that is within and challenge the boundaries of expectation.
In the education of students with PMLD, there is a need to recognise that a range of skills and expertise are required to release potential and enable success. At Treloar’s, this has been our approach for some time, with multi-disciplinary teams dedicated to working around each of our students. These teams are based on-site, available on-call and tasked to coordinate and support in every aspect of students’ education, care, social and independence skills. This coordinated approach is aimed at each student recognising their abilities, proving to themselves and others what they are capable of doing, and hence boosting their self-esteem and giving birth to aspirations.
Stephanie went on to college this summer a confident, verbal and more independent young adult who can be rightly proud of her achievements to date.
www.senmagazine.co.uk
For Stephanie, examples of this included the 24-hour curriculum that ensured her posture and physical wellbeing were managed, so enabling her to access education and achieve ASDAN’s personal progress accreditation. Her impressive success in independence and communication skills started with making choices about her day, finding her voice and so taking control over the direction of her care. Alongside this was the work done on enabling her independent mobility, and her father will proudly show you the photo of her winning her first ever independent mobility sports day race.
For more information about Treloar’s, please visit: www.treloar.org.uk
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PMLD Promotional feature
Hollybank Trust Our Vision: “To be an outstanding provider of quality of life, for life, for children and adults with multiple and profound disabilities.” We promote independence in all aspects of living – to age 25 and beyond. Everybody is encouraged to make their own choices. www.hollybanktrust.com
Fire Poet awakens senses of children at specialist school A pioneering therapy has been introduced into a school for children with profound and multiple learning difficulties. The Fire Poet, otherwise known as Philip Wells, has been performing unique poetry as a way of helping children who cannot speak and have complex health needs to communicate. Using different tones of voice, improvised words, nonsensical language, music and rhythm, Philip is delivering his poetry therapy to learners at The School for Profound Education based at The Children’s Trust in Tadworth, Surrey. Music Therapist at the school, Claire Wood, said the introduction of poetry therapy has given them all something new to work with. “Music therapy and poetry complement each other really well”, she said. “The energy with which he performs is wonderful, and what I find so interesting is how both staff and the learners become immersed; it’s exciting.” www.thechildrenstrust.org.uk SENISSUE61
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66
behaviour
Feelings into words Trisha Waters looks at how therapeutic storywriting can help troubled children deal with their emotions
T
herapeutic
storywriting
pupil and teacher, to support pupils
groups encourage pupils
with BESD. Children’s intuitive ability to
with behavioural, emotional
describe their inner worlds through story
and social difficulties (BESD)
metaphor can be quite remarkable; evil
to process difficult feelings through
giants, abandoned animals and haunted
storywriting. Research shows that the
towers stand in for their personal fears
intervention develops emotional literacy
and anxieties.
and also improves writing skills.
Nine-year-old Liam used animal
Evil giants, abandoned animals and haunted towers stand in for their personal fears and anxieties
Ten-year-old Nina was a withdrawn
stories to write about his feelings of
anxious child who had difficulty focusing
persecution. Liam was described by
killed by soldiers if he tries to find a
on classroom tasks. She summed up
his SENCO as having “a short fuse”
bigger, more comfortable cave. Liam’s
what therapeutic storywriting is about
and when he lost his temper he could
story continues: “Three days later Dino
when she described her group session
kick out, throw furniture or refuse to
saw no soldiers anywhere. So he flew
as a place where “you can imagine
move. He had been excluded several
out slowly. All of a sudden someone
your own characters and put yourself
times for aggressive behaviour and the
shouted, ‘Kill the dragon!’ and a zillion
in their shoes. You think about them
SENCO explained that while the other
arrows came from the left and a zillion
and not yourself.” Emotionally anxious
children felt bullied by Liam, he actually
from the right. It was absolute chaos.
children like Nina can easily become
considered himself to be the victim
Luckily, Dino managed to fly away. He
uncomfortable with a direct discussion
and would never take responsibility for
found himself a beautiful cave and he
of their difficulties. By encouraging the
his actions.
lived happily ever after.”
projection of pertinent issues onto story
Almost all of Liam’s stories written
While we usually think of dragons as
characters, pupils are less likely to feel
in the group had a victim/bully theme.
angry, scary creatures, in Liam’s story
emotionally overwhelmed.
One story is about Dino, a fifty-year-
Dino is clearly the victim. When talking
Therapeutic storywriting uses
old dragon who lives in a cave that is
about his story to the group, Liam said
metaphor in stories, written by both
too small and is terrified that he will be
that fifty-years in dragon time meant
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behaviour
Dino was the same age as himself. He also mentioned that while Dino managed to find a better cave, “he didn’t know he could fly until he tried”. While the educational professionals running therapeutic storywriting groups
“It’s helped me to talk and listen to other people. I’ve got a lot more friends now”
Emotional containment Therapeutic storywriting draws on Bion’s idea that anxiety needs to be sufficiently contained in order for thinking to take place. Emotional containment is provided by the teacher in a range
are encouraged to bring psychological
of ways, including the use of active
mindedness to their work with
listening skills, attention to beginnings
emotionally troubled children, they are
everyone in the group to share their story
and endings, continuity and consistency
not expected to become therapists. The
and the teacher uses active listening
of sessions, as well as ensuring that
training stresses that at no time should
skills to reflect on the content of these
the group is a place of safety for all
the teacher make a direct interpretation
stories. Children are also encouraged
the pupils. The stories themselves also
of what the stories might mean in
to share ideas for each other’s stories.
provide a container for difficult feelings
relation to the child’s actual life, but
While this sharing is in process, the
which might otherwise be acted out.
instead confine comments to the story
children are encouraged to illustrate
Eleven-year-old Mike thought that his
characters and plot. For instance, in
their stories. This both deepens the story
stories had helped him manage his
Liam’s story the teacher might comment
meaning and helps those children who
angry feelings better: “It’s really helped
on how scared Dino must have felt
find it difficult to sit still when listening.
because I have an anger problem and
with all those arrows coming towards
The opportunity to discuss stories helps
I can make a story around how I feel.
him but would not mention the actual
pupils develop their peer relationships.
I can write my own story – it’s just me
things in Liam’s life that s/he might
Eleven-year-old Laura felt the group
and the paper.”
know were making him feel persecuted.
had helped with her friendships: “I’m
This ensures that confidentiality
normally bossy. It’s helped me to talk
Research and dissemination
issues are minimised and that the
and listen to other people. I’ve got a lot
Research commissioned by the South-
approach is appropriate to use in an
more friends now”, she said.
East Region SEN Partnership shows that
educational setting.
therapeutic storywriting groups help
The teacher’s story
pupils process difficult feelings, develop
How the groups work
A key element of the therapeutic
social skills and improve their writing.
Therapeutic storywriting groups normally
storywriting model is the teacher’s story.
Such groups have been used in over 500
consist of six pupils identified by the
The teacher chooses the theme of his/
schools and the model has recently been
school as having BESD. The model is
her story to reflect emotional issues
included in the YoungMinds in Schools
most suitable for pupils at KS2 and early
present in the group and incorporates
project funded by the Department for
KS3. A course of sessions usually runs
suggestions from the group. Laura, who
Education.
over about ten weeks and each session
had difficulty settling down to writing
lasts for about an hour.
in class, said that having the teacher
There’s an initial mindfulness exercise
also write made her feel a lot more
to settle the pupils before beginning
comfortable because “it doesn’t make
writing. Everyone then has a turn to say
you feel like some big human camera
how they are feeling and these words are
is watching us.”
written down and placed on a “feelings
Writing a story in this way can be a
ladder”. In this way, the teacher provides
new experience for teachers and while
the children with an extended emotional
some can initially feel a bit anxious, they
vocabulary which they can internalise
usually quickly become engrossed in
and begin to use to think about their
their storywriting. One teacher attending
own feelings.
the training was surprised at how much
Following the relaxation and sharing
the pupils had empathised with the
of feelings, there is time to brainstorm
feelings of the characters in her story,
ideas around the new story and then
saying that “they love it – that it’s for
everyone, including the teacher, writes
them and that it’s got their ideas in it. It
their own story. Time is allowed for
makes it something special”.
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Further information
Dr Trisha Waters is the founding director of the Centre for Therapeutic Storywriting and author of Therapeutic Storywriting. She is the consultant trainer for the DfE funded YoungMinds in Schools project. www.therapeuticstorywriting.com www.youngminds.org.uk Note: all pupil names have been changed to protect confidentiality.
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BEHAVIOUR Promotional feature
Free webinar: non-drug treatment solutions for developmental disorders Dyslexia, dyspraxia, ADHD, autism: this online event outlines successful, natural and sciencebased treatment approaches, with contributing experts in psychiatry, neurology and nutrition. 19 November 2012 - 12:00pm - 1:30pm Developmental delay: causes and treatments: Dr Robin Pauc Dr Pauc believes that “glitches” in the mechanism controlling foetal and post-natal brain development are responsible for many behavioural and learning difficulties and that conditions such as dyslexia, dyspraxia and ADD should be considered “developmental delay”. His treatment protocol is holistic, with dietary and supplementation recommendations, alongside physical exercises and computer-generated treatment programmes designed to stimulate specific areas/neuron fields of the brain. Dr Robin Pauc has been in clinical practice for over 30 years and is an expert in child neurology. A Diplomate of the American Chiropractic Neurology Board and past Assistant Professor of Clinical Neurology, his books include: Is That My Child?, The Brain Food Plan, Could It Be You?, Mindful Parenting and Dyslexia Really? The potential role of fatty acids in neurodevelopmental disorders: Professor Basant K. Puri Professor Puri will describe the structural and functional roles of fatty acids in the brain and
the evidence for an association between fatty acids and neurodevelopmental disorders. Professor Puri is a scientist and clinician. The author of over 180 papers and 36 books, he has carried out groundbreaking research into the clinical use of fatty acids to treat disorders such as depression, CFS, ADHD and Huntington’s chorea. Managing developmental disorders through nutrition: Dr Nina Bailey Dr Bailey will discuss how foods may affect symptoms, “trigger” foods and ingredients suspected of contributing to symptoms, and how specific nutrients can help towards improvements in concentration, learning and behaviour. She will also discuss the role of supplementation with specific dietary fatty acids as add-on treatments. Dr Bailey is a nutrition scientist specialising in dietary health and nutritional intervention in disease, with particular emphasis on the role of essential fatty acids. For more information, visit: www.igennus-hn.com/webinars/ or call 01223 421434.
Promotional feature
BESD in post-16 mainstream education You wouldn’t send someone into a risky environment without proper health and safety training would you? Yet every day we ask staff in FE to work with students who have a variety of behaviour disorders without the proper preparation. It’s barmy!
Recent DfE statistics show that up to 850 pupils in UK schools are excluded for behavioural issues each day. Until now, many of these learners had the option to leave education and find employment. However, with the requirement to continue to college, training or apprenticeships until the age of 17/18, these students arriving at post-16 education find that they are largely expected to cope alone.
FE classrooms can be risky environments. Learners moving “up” at age 16 are not required to disclose any SEN (although the majority usually do). However, if a learner has a BESD, it is highly probable that they will conceal their chequered educational past, in the belief that revealing this could harm their educational prospects.
That’s where we come in. Our programmes provide teachers and LSAs with what’s needed to identify, skill up and implement reasonable adjustments that prevent disruptive behaviour in the classroom caused by ADHD, ODD and other BESD. They can then use the energies and interests of these hard-to-reach young people to engage and enthuse. Every young person deserves their chance of a good education and we’re all in it together.
Specialist ADHD researcher Russell Barkley states that: Sources:
• 35 per of ADD/ADHD teenagers get suspended from school • 35 per cent of ADD/ADHD teenagers drop out of school. Students in FE who received support from School Action Plus or intensive SEN intervention (or those who have been through the PRU system) in their previous school careers, continue to need assistance throughout their academic life. For these teenagers, and their teachers, college is a hazardous world. SENISSUE61
1. Child Development Guide 2. DFE 2010/2011 Statistics on Exclusions
Can Do Behaviour Resources – Advice – Tips – Strategies Providers of Professional Training in Education Tel. Hilary Nunns on: 01737 321204 info@can-do-behaviour.co.uk
www.can-do-behaviour.co.uk
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school complaints
How to complain about schools Martha Evans looks at how parents can seek redress if they are unhappy about issues at school
M
any children with SEN
complaints procedure. By law, schools
The governing body is likely to pass
will have their needs
must have a procedure for parents to
your complaint to a panel of governors.
met by schools and
complain (Section 29 of the Education
They may invite you to a meeting to put
local authorities without
Act, 2002).
your case in more detail. They should follow the rules of natural justice. These
the need to make a formal complaint. very important that parents are able
Complaining to the governing body
to use informal and formal complaints
Every school has a governing body. In
interest in the outcome or any
procedures to remedy the situation as
the case of an academy, this is known
involvement in an earlier stage of
soon as possible.
as the academy trust. School complaint
If things do go wrong, though, it is
say that: • no member should have a vested
the procedure
There are different avenues you can
procedures usually end with complaining
• each side should be given the
take when making a complaint; it very
to the governing body of the school. A
opportunity to state their case
much depends on what your complaint
complaint to the governing body should
without unreasonable interruption
is about. It can be confusing, so this
be addressed to the chair of governors
article outlines the process of making
(head of academy trust). If the school
complaints about a school and looks at
is a community or voluntary controlled
some of the most common complaints pathways and procedures. Your local parent partnership service (PPS) will be able to support and advise you through making a complaint. There is a PPS in every local authority and they provide confidential and impartial
• written material must have been seen by all parties • if new issues arise, parties should be given the opportunity to
If you cannot resolve a problem informally, ask for a copy of the school’s complaints procedure
information, advice and support to
consider and comment on them. If the governing body does not give you a satisfactory response, you then have a number of options depending on the type of complaint you have. These are detailed below. It is important for all of the routes below that you have followed
parents and carers of children and young
school, (local authority maintained, run
the school’s and, if applicable, the local
people with SEN.
by the council) you could also send a
authority’s complaints procedures first
copy of your letter to the director in
or that you are able to justify why you
Speak to the school
charge of local education services, often
have not.
The first thing to do if you are unhappy
called children’s services.
with something at school is to speak
Try to include precise details of dates,
to your child’s class teacher and/or the
times, meetings and decisions that may
complaints to school governors, visit:
school SENCO. There is a SENCO in
help the governing body understand
www.education.gov.uk/schools/
every school and they are responsible
the substance of your complaint.
leadership/governance
for coordinating provision for children
Explain what harm you or your child
with SEN. If you are still unhappy, you
has suffered as a result of the school’s
should talk to the headteacher.
action or inaction. Say what you would
Complaining to the local authority
like the governing body to do to put
Local authorities (LAs) no longer have a
things right.
role in general complaints about a school,
If you cannot resolve a problem informally, ask for a copy of the school’s
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school complaints
71
although they do still hear curriculum
legal right to complain to Ofsted on the
or headteacher, you can complain to the
complaints. If you are complaining about
work of maintained schools, academies,
Teaching Agency.
LA services (including complaints about
city technology colleges, maintained
www.education.gov.uk/schools/
assessment) you should do so to the
nursery schools and non-maintained
leadership/teachermisconduct
most senior education officer. You must
special schools.
complain to the LA before taking the complaint further.
Ofsted could investigate complaints about: • quality of education and
Complaining to the Information Commissioner You can complain to the Information Commissioner if you have problems accessing school records, minutes of governors meetings, school policies or
standards achieved • inadequate provision for pupils with SEN • neglect of pupils’ personal development and wellbeing • the quality of leadership and
Complaining to the Secretary of State for Education The Department for Education (DfE) will look at a complaint about a maintained school, academy or free school from anyone who is unhappy with the way in which a school is acting. For the Secretary of State to intervene in a school following a complaint,
other public documents, or if you believe
management. For example,
he needs to be sure either that the
your child’s school records have been
whether the school spends its
school has acted or is proposing to
disclosed unlawfully, are incorrect or
money well.
act unreasonably in the exercise or
out of date.
It is important to remember that you can
performance of its functions under
You should first exhaust the school
only make complaints to Ofsted about
certain legislation, or that the school
or LA complaints procedure. There are
issues that affect the whole school and
has failed to discharge a duty at all under
different timescales for schools to reply
not about an individual child.
certain legislation.
to your requests:
Ofsted can call an immediate
• a copy of a child’s educational
inspection of a school at short notice,
For guidance on making a
record must be supplied within
if it feels your complaint is very serious.
complaint to the Secretary
15 school days. (The Education
It can also call meetings with the school
of State and a complaints
[Pupil Information] [England]
and the local authority.
form, go to: www.education. gov.uk/schools/leadership/
Regulations, 2005 [SI 1437]) • other personal information must
You can complain to Ofsted
be supplied within 40 days of
online at: http://live.ofsted.gov.
your written request. (Section 7 of
uk/onlinecomplaints
schoolperformance
Appeal to the SEND Tribunal You can appeal to the SEND Tribunal
the Data Protection Act, 1998)
Complaining to the Teaching Agency
about decisions that the local authority
SEN Policy, school accessibility plan or governing body minutes
If you have an allegation of serious
disability discrimination by schools and
must be provided within 20
misconduct against an individual teacher
local authorities.
• documents such as the school
has made about your child, and
working days (excluding school
>>
holidays) of your written request under the Freedom of Information Act, 2000. Freedom of Information and data protection complaints forms can be found at: www.ico.gov.uk/complaints
Complaining to Ofsted Ofsted is the body which inspects a range of public services including schools. Schools are inspected at least once every three years. Parents have a www.senmaGAZINE.co.uk
Where school staff can address issues raised, formal complaints can be avoided.
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school complaints
The kind of decisions you can appeal
decides to assess your child, which is a
independent (private) school or city
against include refusal to carry out a
matter for the SEND Tribunal. However
technology college.
statutory assessment, refusal to make
you can complain about any delay in
If you are refused the school place
a statement and parts 2, 3 and/or 4 of
assessment, failure to carry out the
you asked for and you want to pursue
a statement.
provision set out in the statement or
the matter, the first thing you need to do
In regards to schools, you can make
to carry out an annual review. The
is to make an appeal to an independent
a claim of disability discrimination under
Ombudsman can look at the school’s
appeal panel. The admissions authority
the Equality Act 2010 if your child is
role in this. It may also be able to look
should tell you how to do this.
disabled within the meaning of that
at what the school has done in response
If your child has a statement of SEN,
Act – not all children with SEN are
to your child’s SEN at school action
you can appeal to the SEND Tribunal.
disabled – and you feel they have been
plus, as long as you have previously
The LGO could consider a complaint
discriminated against.
complained to the local authority.
about any delay by a council in arranging an offer of a place at a school once the
You can find more about
School admissions
appealing to the SEND Tribunal
The Ombudsman is not another level of
at: www.justice.gov.uk/
appeal and cannot question decisions
Permanent exclusion from a school
tribunals/send/appeals
if they were taken properly and fairly
The LGO cannot look at any aspect of
by the admissions authority or the
an exclusion prior to an appeal. When
Complain to the Local Government Ombudsman
appeal panel.
a decision has been reached, you can
You can complain if you think that a
complain to the Ombudsman about the
The Local Government Ombudsman
place at a school was refused because
way in which the independent review
(LGO) investigates complaints of
of some unfairness or mistake by the
panel has dealt with your case.
injustice arising from maladministration
admissions authority, or if your appeal
Once a child has been permanently
by local authorities. They are able to
was handled incorrectly, or you have
excluded, the council has a duty to
consider the role of the school as
asked for an appeal and the admissions
provide alternative education, and the
part of a wider complaint against the
authority has not arranged an appeal
LGO can look into how the council has
local authority. They currently consider
hearing for you within a reasonable time.
carried out this duty.
complaints about:
final statement has been issued.
You cannot complain to the LGO if the complaint is about an
For information on complaining
Special educational needs
academy (unless that academy has
to the Local Government
You cannot complain to the Ombudsman
transferred from a maintained school
Ombudsman, visit:
about whether or not a local authority
during the admissions process),
www.LGO.gov.uk
Further information
Martha Evans is Information and Communications Officer at the National Parent Partnership Network, which is based at the Council for Disabled Children. If you need confidential advice and support, you should speak to your local parent partnership service, whose details can be found at: www.parentpartnership.org.uk Local parent partnership services can support families through the complaints process.
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In the next issue of SEN Magazine: • hearing impairment • CReSTeD/dyslexia • autism • post-16 options • assistive technology • outdoor activities • Down syndrome • wheelchairs/mobility • SEN provision overseas • behaviour • using iPads/tablets in schools
provides a round up of current SEN news, features and listings for CPD, training and events. To sign up visit: www.senmagazine.co.uk and click on "newsletter" or email: newsletter@senmagazine.co.uk
Plus news, reviews, CPD and events listings and much more
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book reviews
Book reviews by Mary Mountstephen
Multi-Sensory Activities for Improving Fine Motor Skills: High Five Jive
Not Just Talking: Identifying nonverbal communication difficulties: A life-changing approach
Susan O’Connor
Sioban Boyce
Hinton House Publishers with Taskmaster 164 pages, paperback £29.99 (including CD-ROM) ISBN: 978-1-906531-54-6
Speechmark Publishers Spiral bound, 178 pages £38.99 ISBN: 978-0-863388-849-6
This book has been devised to improve dexterity, fine hand-eye coordination, visual perception and sequencing skills. Its author is a learning support coordinator with over thirty years of experience in a number of settings. She has also produced several maths games for children and this book helps children in acquiring early maths language relating to patterns, shapes and direction through physical activities. This is a photocopiable resource, with 30 interactive multi-sensory activities forming a structured programme which is also flexible and adaptable. These activities are aimed initially at preschool children and then older children, as appropriate. The movements seek to improve flexibility, handwriting, language, maths, memory and concentration and they are also useful as a base for learning keyboard skills. The jive activities encourage the children to actively improve hand eye coordination through exercises using either the right or left hand or both hands together. Activity sheets can be personalised for a child’s specific needs. The book includes useful information for parents’ record cards and score sheets and a CD-ROM of the activity forms. It is recommended as suitable for all children in primary schools, for children with special needs and in a variety of settings. This is a fun resource which would appeal to many teachers, support assistants and parents. The activities are mostly desk-top based, so are easy to manage in a group setting.
Sioban Boyce is a speech and language therapist who worked in the NHS for more than 18 years. Recently she has worked as an independent specialist in the development of non-verbal communication in children. In this book, she details an innovative approach to dealing with communication difficulties in children who have learned to talk, but who are unable to communicate effectively. Like many Speechmark publications, this is a spiral bound book with a built in flap to help you keep your place. It is divided into a number of chapters which cover the basics of non-verbal communication, causes of problems, communication development from toddler-age to adulthood, and assessment and intervention. Boyce also includes a section on training opportunities for those working with children of different ages and she makes reference to other resources such as the Not Just Talking Resource Pack and the Assessment Pack. Boyce stresses that her approach to communication differs from the traditional speech and language approach in that she has successfully trained support workers, teachers and social workers to deliver her programme. The assessment process is clearly set out and assessments are available for a range of ages from pre-talking babies and toddlers to teenagers. Boyce makes some very interesting observations about the different ways in which girls and boys develop language skills and this is one of many engaging aspects of this useful and practical resource.
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book reviews
Understanding & Managing Dyslexia for Dummies Tracey Wood and Katrina Cochrane John Wiley and Sons Publishers Paperback, 370 pages £15.99 ISBN: 978-0-470-74132-0
In this book, the authors cover the basics of dyslexia, getting a diagnosis, exploring intervention options and the longerterm implications of the condition. Tracey Wood has run her own reading clinics and written several related books. Katrina Cochrane, is Principal of the Dyslexia Institute Egham Centre. The book is divided into five parts and is visually attractive, with the use of cartoons, text boxes and easily identifiable action points and tips. Each chapter opens with a brief overview of the content and is broken down into bite-sized chunks for the reader. It is packed with information and would appeal to many anxious parents. The authors include information about many specific programmes, though I was a little disappointed to see that there was little or no supporting research to guide parents when faced with programme options, all of which have a cost implication. At the end of the book, the authors have included two appendices. In the first, they provide an informal assessment of phonetic awareness and phonic skills, which they claim is “typical” of what SENCOs use in school to pinpoint a child’s phonic skills. This is an interesting concept, and I am sure that some parents will find it useful, but I would be cautious in recommending its use. The second appendix is given over to a list of resources and organisations. Though I have some reservations, this book is a useful introduction for parents.
www.senmaGAZINE.co.uk
Breathe, Stretch, Write: Learning to Write with Everything You’ve Got Sheree Fitch Pembroke Publishers Ltd Paperback, 178 pages £19.99 ISBN: 978-1-55138-256-2
This is a great book for teachers who believe that movement and learning go together. The author, who has studied yoga and core fitness programmes, takes the reader on an enjoyable journey using exercises designed to spark imagination and enhance creativity. The book covers a wide range of exercises which can be undertaken standing, sitting, reclining or moving around, or as group activities. The structure of the book enables the reader to dip in and out at random, or to use the book as the basis for a creative writing club programme. Each exercise follows a common format, where the instruction simply involves focused breathing, followed by an exercise, followed by a writing activity. The activities are illustrated with basic line drawings and examples of creative writing. I found some of the examples provided to be very funny and others very moving. Fitch covers 56 different activities in this book and they would appeal to a teachers working in a wide range of school situations, as they can easily be adapted to suit the needs of particular pupils or groups of pupils. The concept of combining creative writing with a physical approach is an interesting one and I am sure that these activities, honed over many years of running workshops, will promote a healthy and active approach to classroom performance.
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recruitment
Supply teachers in demand Temporary staff expect pay rises Fall in joblessness for supply teachers Schools are cutting back on hiring new permanent staff and are instead taking on more supply teachers, according to a new survey. Research by the umbrella employment provider giant group suggests that long-term joblessness for supply teachers is falling, as schools’ concerns over budgets lead them to seek temporary solutions to staffing issues. “Schools are having to keep a very close eye on their budgets, which means permanent headcount is under the microscope”, says giant’s Managing Director Matthew Brown. “Even those schools that have not implemented formal freezes are making permanent hires only as a last resort because their budgets are being squeezed.” Roughly 90 per cent of supply teachers are spending less than a month between contracts, compared to 83 per cent over the same period last year. “Supply teachers are in high demand at present, and should remain in demand as long as the Government’s austerity drive continues”, says Mr Brown.
Higher wages High demand for supply teachers from UK schools is also driving up their wage expectations. The survey of 140 supply teachers shows that 77 per cent expect their pay to increase in the next year, while just 14 per cent expect pay freezes – down from 26 per cent last year. Although many supply teachers remain confident about their job prospects for the coming year, the majority still retain the goal of securing a longer-term placement or a permanent job. Of those surveyed, 66 per cent said they would prefer a longerterm contract to higher hourly pay, up from 53 per cent last year. SENISSUE61
www.senmagazine.co.uk
recruitment
www.senmaGAZINE.co.uk
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CPD, training and events
Keep up to date with the latest developments in special educational needs, with SEN Magazine's essential guide to the best courses, workshops, conferences and exhibitions
We take every care when compiling the information on the following pages. However, details may change, and we recommend that you contact the event organisers before you make arrangements to attend.
CPD and training Rebound Therapy Staff Training Courses The National Rebound Therapy Consultancy - with founder Eddy Anderson. The official UK body of reference and provider of nationally accredited, certificated staff training courses in Rebound Therapy.
01342 870543
Severe, Profound and Multiple Learning Difficulties MEd/ Postgraduate Diploma/ Postgraduate Certificate University of Birmingham
This part-time, campus-based, blended learning programme has been developed for
www.reboundtherapy.org
a range of professionals/
BSc Speech Sciences
with children and adults
University College London
This four-year degree in speech sciences is a full-time programme which provides a direct pathway into the profession of speech and language therapy. The degree is focussed on the processes of communication, how these may be impaired, and clinical methods of remediation. www.ucl.ac.uk
MSc in Speech and Language Sciences University College London
practitioners who work with learning difficulties in educational settings across the severe and profound range (SLD/ PMLD) such as teachers and lecturers, nurses, therapists, psychologists and support staff. www.birmingham.ac.uk
Postgraduate Certificate in Autism and Learning University of Aberdeen
The programme aims to give
This full-time, two year course is a clinical training programme as well as an academic degree. The core subject is speech and language pathology and therapy. Students consider approaches to the investigation and management of clients with communication and swallowing problems. They learn about working with clients and others professionals in health care and education.
practitioners an in depth
www.ucl.ac.uk
www.abdn.ac.uk
www.senmaGAZINE.co.uk
understanding of the condition and the working of the autistic mind. It will equip participants with a range of practical approaches and interventions that will enable children and young people on the spectrum
follow us on www.twitter.com/senmagazine
to access learning, participate actively, experience success, gain independence, and fulfil their potential. autism@abdn.ac.uk
join us on www.facebook.com/senmagazine
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CPD and training
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Working with the Autism Spectrum (Theory into Practice) Edinburgh
This undergraduate SCQF level 8 (equivalent to SHE level 2 or SVQ level 4) course is a collaboration between The National Autistic Society and Edinburgh Napier University. Comprising of six, one-day units, the course is very much practice-based. The assessment will enable candidates to reflect upon their own practice and integrate the knowledge gained to further improve the care and support they carry out. The course will be relevant to anyone working with or caring for individuals
Strategies for Successful Special Needs Support Online
Strategies for Successful Special Needs Support is an introductory online course accredited by The College of Teachers at Certificate of Educational Studies level. The course is for teachers and others working with children with special needs and includes full tutor support. The cost per candidate is only ÂŁ200.
Certificate in Understanding Autism in Schools A three-day programme leading to a Certificate in Understanding Autism (accredited at 40 credits level 4 or 5 by Canterbury Christ Church University). The course is usually taken one day per school term. Courses are purchased by local authorities who then make places available to staff working in education. www.autism.org.uk/training
Postgraduate Certificate in Assessment for Dyslexia and Literacy Online
The aim of this online programme is to train teachers and support tutors to become informed, skilled practitioners who understand the theory and practice of teaching and/ or assessment of dyslexic learners of all ages. www.dyslexiaaction.org.uk
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Overcoming Barriers to Learning Mathematics (starting 12/11/12) Teaching Children with Specific Learning Difficulties (starting 26/11/12) www.learning-works.org.uk/cpd-
New NAS Training and Consultancy brochure
This course will help develop your strategic leadership skills and is aimed at teachers and leadership teams in schools including senior and middle managers within a school or training organisation.
The NAS can offer in-house
Online
Level 4 CPD Certificate in Dyslexia in the Classroom
www.autism.org.uk/training
the following courses:
Leadership for Teachers and Trainers
disorder, including parents,
from education.
Worcester. Currently recruiting for
courses
www.collegeofteachers.ac.uk
staff, social services and staff
Accredited CPD by the University of
www.collegeofteachers.ac.uk
with an autism spectrum health professionals, support
Learning Works Advanced Diplomas
Online
Dyslexia Action's continuing professional development online course has been developed specifically for classroom teachers and teaching assistants working in the primary and secondary education fields. Many units are also suitable for those working in further education. This CPD course is primarily intended for UK based applicants. However, UK teachers working overseas in an English speaking international school may also apply. dyslexiaaction.org.uk
8 Nov: London 13 Nov: Carlisle 15 Nov: Luton 19 Nov: Glasgow 20 Nov: Manchester 21 Nov: Chorley 23 Nov: Chorley 27 Nov: York 4 Dec: London
and open access training to suit your timetable and
Concept Training Ltd
learning outcomes.
01524-832828
www.autism.org.uk/training
www.concept-training.co.uk
Various November
Intensive Interaction: Connecting with NonVerbal Children and Adults with Autism or Profound Learning Disabilities 12 Nov: Manchester 12 Nov: Ipswich 13 Nov: Chorley 14 Nov: Brighton 15 Nov: London 22 Nov: Cardiff 22 Nov: Middlesbrough 23 Nov: Taunton
Gain a thorough understanding of how to communicate with people who do not speak or respond due to their disability or behavioural difficulties
Dyslexia Action's continuing professional development online course has been developed specifically for classroom teachers and teaching assistants working in the primary and secondary education fields. Many units are also suitable for those working in further education. This CPD course is primarily intended for UK based applicants. However, UK teachers working overseas in an English speaking international school may also apply.
www.concept-training.co.uk
dyslexiaaction.org.uk
Introduction to Autistic Spectrum Condition (including Asperger’s Syndrome)
Accredited at level 2 by the Open College Network, this course is for anyone working with or caring for either adults or children with autism.
Level 4 CPD Certificate in Dyslexia and Literacy in Primary School Settings Online
Various November & December
Concept Training Ltd
01524-832828
Various November
Play for People with ASD 20 Nov: London 26 Nov: Chorley 27 Nov: Doncaster
This workshop is for anyone who wants to help a person with ASD increase their play skills and develop playfulness. Concept Training Ltd
Various November & December
Positive Ways of Changing Behaviour 23 Nov: Birmingham 3 Dec: Chorley
Gain an understanding of behaviour and its function and learn to recognise early warning signs of negative behaviour and make positive early interventions Concept Training Ltd
01524-832828 www.concept-training.co.uk
Various November to January
Practical and Effective Ways of Using Multisensory Equipment 9 Nov: Ipswich 12 Nov: London 15 Nov: Leeds 16 Nov: Middlesbrough 21 Nov: Doncaster 26 Nov: Cardiff 6 Dec: Liverpool 10 Dec: Glasgow 28 Jan London 29 Jan: Birmingham
Find out everything you need to know to get the most out of a multi-sensory environment, how to use it and how to set up a new multi-sensory environment without breaking your budget. Concept Training Ltd
01524-832828
01524-832828
www.concept-training.co.uk
www.concept-training.co.uk
www.senmagazine.co.uk
CPD and training November 5 November
Legal rights for parents of a child with ASD at 16, 18 and beyond Prior’s Court, Newbury, Berkshire
9 November
Autism: Improving practice throughout life - the Good Autism Practice Conference 2012 Manchester
Organised by BILD, University of Birmingham, Autism West
A two-hour talk giving an
Midlands and Autism Cymru,
overview of key topics
the Conference aims to
essential for parent/carers
promote good practice for
or professionals supporting
children and adults with autism
a young person with autism
across the lifespan. This
during the transition process,
conference is to share ideas
including changes in the rights
and evidence on what makes
for parents, Mental Capacity
for the most effective support.
Act, deputyship, deprivation
Speakers include Catherine
of liberty. Talk will be given
Maclean (CNAP Co-ordinator),
by Belinda Schwehr, expert in
Dean Beadle (a person with
care and health law.
autism), Dr Ian Ensum (Bristol
First session at 10.30am, second
Autism Spectrum Service) and
session at 1:30pm
Glenys Jones (University of
£25 professionals and parents/
Birmingham).
carers Prior’s Court Training & Development Centre
www.bild.org.uk/gapconference
9 November
training@priorscourt.org.uk
Epilepsy Training for Healthcare Professionals
www.priorscourt.org.uk
London
01635 247202
SAVE THE DATE
15 March 2013, London
Making Parenting Work for Children’s Mental Health Named Memorial Speaker: Professor Stephen Scott Guest Speaker: Professor Daniel Shaw Confirmed Presenters: Professor Michael Lamb Professor Marinus van IJzendoorn Professor Peter Fonagy Professor Judy Hutchings OBE Save the date and benefit from the unique line-up of recognised national and international experts For more information, please contact Kerry O’Shaughnessy: kerry.oshaughnessy@acamh.org.uk; 020 7403 7458
This day is aimed at healthcare
8 November
Epilepsy Training for Education and Social Care
professionals working with children and young people who want to learn more about epilepsy. It will be especially
London
suitable for nurses working
This one day Childhood
in schools, paediatrics,
Epilepsy course covers the
community and learning
educational, behavioural and
disability teams, practice
psychosocial issues that may
nurses, health visitors, CAMHS
accompany this condition. This
practitioners and GPs.
study day will be of particular
www.youngepilepsy.org.uk
interest to SENCOs, teachers, classroom assistants, support workers, carers, foster carers, social workers and Connexions personal advisors. www.youngepilepsy.org.uk
8 November
Behaviour Management for Support Professionals London Euston
Training for LSAs and TAs. £160 www.can-do-behaviour.co.uk
www.senmaGAZINE.co.uk
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CPD and training 9 November
Intensive Interaction Course presented by Dave Hewett Barnsley
This course will be of interest to staff of all disciplines who work with adults and children with learning difficulties, including social services staff, teachers and assistants, nurses, staff from voluntary organisations, therapists and indeed parents and other carers. The focus is on the communication needs of people who have not achieved use nor perhaps understanding of speech and may be “difficult to reach” in various ways. Intensive interaction is an approach where the member of staff is seen as the main teaching resource, using personal qualities of face, voice and body language to involve the learner in progressive sequences of interactive activities. These activities provide the person with learning difficulties with the opportunity to learn the pre-speech fundamentals of communication, such as enjoying being with another person, giving sustained attention, turn-taking, use and understanding of eye contacts, facial expressions, body language and non-verbal signalling. Cost: £145 per delegate. To book, contact Helen Janes:
07778-178346 events.made.easy@ntlworld.com www.intensiveinteraction.co.uk
12 November
VITAL Convention 2012: Making all the difference - supporting children with degenerative conditions London
This one-day convention will bring together professionals working in education, health and social care who support children experiencing degenerative conditions. The event is organised by the VITAL (Visual Impairment Touches All Learning) network for professionals with an interest in complex needs and visual impairment.
0121 665 4235 cypf@rnib.org.uk
www.rnib.org.uk/vital
15 November
NAS Conference: Pathological Demand Avoidance (PDA) Syndrome Edinburgh
PDA is increasingly recognised as part of the autism spectrum. Gain a greater understanding of PDA and an opportunity to discuss strategies and techniques that will help at school and at home. www.autism.org.uk
We take every care when compiling the information on these pages. However, details may change, and we recommend that you contact the event organisers for up-todate information before you make arrangements to attend.
13 - 15 November
Achieving Outstanding Teaching, Training & Learning: Meeting the Challenge of the 2012 Common Inspection Framework 13 Nov: London 14 Nov: Birmingham 15 Nov: Leeds
This workshop has been designed for managers in organisations who have responsibility for improving the standards of teaching and training. This includes representatives from organisations delivering training to third parties through private and public funding, as well as those with responsibility for in-house staff training. www.excellence-in-learning.co.uk
15 November
Education 2012: Better Buildings, Enhanced Learning, Positive Outcomes London
Conference exploring the links between people, places and performance in the schools sector. http://education-conference.co.uk
17 November
Sensory Play and Leisure in the Multi Sensory Environment London
The multi-sensory environment offers a safe, comfortable space for sensory play experiences for children and young people with severe and multiple disabilities. This workshop will be useful for Early Years workers, play and youth workers, teachers and support assistant or carers or parents who have access to a multi-sensory facility. Concept Training Ltd
01524-832828
www.concept-training.co.uk
20 November
Special Educational Needs and Disabilities reform - the impact of the Children and Families Bill
The Westminster Education Forum is organising a seminar on the proposed reform of SEN provision in central London on 20 November 2012. www.westminstereducationforum.co.uk
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20 - 22 November
Improving Deployment of Learning Support Assistants: Maximising the Benefits & Contributions from Learning Support 20 Nov: Birmingham 21 Nov: Leeds 22 Nov: London
This workshop explores and challenges existing delivery models for learning support and examines the complexities of what learning assistants are actually doing as opposed to what they should and could do, and how their contributions can be maximised. www.excellence-in-learning.co.uk
21 November
Choice Unlimited - Transitions Leicester
Over three floors, this event will showcase a range of services available to support young people throughout the transitions period. It is an opportunity to find out about information, services, products, ideas, innovation, education and employment. There will also be opportunities to experience sporting activities, such as wheelchair rugby, accessible climbing and racing in a driving simulator. www.lcil.org.uk
21 November
Working Memory, Learning and the Classroom Tour Bilton Grange, Warwickshire
The half-day event will cover an array of strategies that can be used in the classroom with pupils of all ages and abilities. www.learning-works.org.uk/eventstraining
22 November
GovKnow Children and Young People’s Conference Central London
This one-day conference will focus on a range of issues regarding children’s services and policy. Delegates will have the opportunity to network with professionals and hear from key speakers from the sector. Special discounted rate of £150 (+VAT). Please quote reference SEN05. www.govknow.com
www.senmagazine.co.uk
CPD and training
www.senmaGAZINE.co.uk
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22 November
Behaviour Management: A 4-Way Approach London
Training for teachers. £160 www.can-do-behaviour.co.uk
22 November
ISC SEN Conference Victoria Plaza Hotel, London
Aimed at SENCOs, directors of learning, LSAs, heads and SMT members. Delegates will hear from industry experts regarding the new National Agenda for SEN, pragmatic language impairments, access arrangements and current legal issues. www.iaps.org.uk
24 - 26 November
Bal-A-Vis-X Workshop London W2
Three days of intensive training. Bal-A-Vis-X is a series of over 300 Balance/Auditory/ Vision eXercises, of varied complexity, all of which are deeply rooted in rhythm. The workshop is suited to SEN teachers, professionals and parents. London workshop:
07766 837 616.
www.integratedbrain.co.uk
26 & 27 November
Nuffield Early Language Intervention – Reception London £850 www.ican.org.uk
29 November
Kidz up North Reebok Stadium, Bolton
More than 120 exhibitors providing information on new products, mobility, bathing, continence, seating, beds, communication, access, services, education, funding, transport, sensory, sports, leisure and much more. Also includes a full programme of free CPD seminars, with certificates of attendance for professionals available on the day. Free entry
0161 607 8200
info@disabledliving.co.uk
www.disabledliving.co.uk/Kidz/North
December
3 - 7 December
TEACCH Five-day Course Prior’s Court, Newbury, Berkshire
Inspirational and intensive course combining active learning sessions with direct, supervised experience working with students with autism in a structured setting. Led by TEACCH trainers from Division TEACCH and trainers from Prior’s Court with extensive training and experience with the TEACCH approach following more than seven years working with Division TEACCH. Three-day course also available. £995 professionals/parents. Prior’s Court Training & Development Centre
01635 247202 23 November
International Journal of Positive Behavioural Support Conference London
This will be the inaugural autumn conference of the BILD International Journal of Positive Behavioural Support. These approaches are established as the most appropriate when supporting people with intellectual disabilities. The conference will be an opportunity for practitioners, educators, researchers, nurses, trainers, families and others to hear from leading UK researchers and others. www.bild.org.uk
28 - 30 November
Hanen: It Takes Two to Talk London
This experiential, three-day, Hanen Certification Workshop is for speech and language therapists who provide service to young children with language delays and their families. £750 www.ican.org.uk
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Various December
Mentoring New & Trainee Teachers & Trainers: Supporting those new to teaching/training to deliver outstanding learning 5 Dec: Leeds 6 Dec: Birmingham 12 Dec: London
This one-day workshop explores what a good mentoring programme looks like and outlines the skills, approaches and strategies that allow mentoring programmes to deliver success. In so doing, it better enables participants to provide high quality scaffolding and support in the fastest, most efficient and cost-effective manner. www.excellence-in-learning.co.uk
training@priorscourt.org.uk www.priorscourt.org.uk
7 December
Autistic Voices Conference Manchester
This conference, organised by Autism North West, whose committee members are all autistic, will bring together speakers from across the UK to discuss topics relevant to the autism community and interested professionals. Speakers include Chris Mitchell, Evelyn Hope Ashford and Scott James. http://autisticvoicesconference.eventbrite.co.uk
7 December
Eating Disorders in Young People Southampton
Day conference. For more information and to register your interest, contact Karyn Ambridge:
020 7403 7458 karyn.ambridge@acamh.org.uk www.acamh.org.uk
10 December
Autism Spectrum Disorder Totnes, Devon
Training Day. For more information and to register your interest, contact Karyn Ambridge:
020 7403 7458 karyn.ambridge@acamh.org.uk www.acamh.org.uk
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CPD and training 11 December
17 & 18 January
Understand the Additional Needs of Learners with ADHD in the mainstream classroom: Accredited.
PECS Basic Training Workshop
Also home study. £225
Communication System
www.can-do-behaviour.co.uk
2013 16 January
Henshaws College Open Day
Cardiff
The Picture Exchange (PECS) is a tried-and-tested approach that teaches functional communication skills using pictures. This workshop will give you the background and all the practical details you need to start implementing
Harrogate
PECS immediately, including
Henshaws College provides specialist further education to students aged 16 - 25 with a range of disabilities, specialising in visual impairment. Potential students, their families and professionals working with them are invited to visit the fully accessible campus and meet current students and staff. Open Days must be pre-booked.
demonstrations, videos and
01423 886451 admissions@henshaws.ac.uk www.henshaws.ac.uk
chances to practice.
01273 609 555 www.pecs.com
21 & 22 January
PECS Basic Training Workshop Scunthorpe
The Picture Exchange Communication System (PECS) is a tried-and-tested approach that teaches functional communication skills
17 January
Mindfulness York
using pictures. This workshop will give you the background and all the practical details you
Training Day. For more information and to register your interest, contact Karyn Ambridge:
need to start implementing
020 7403 7458
01273 609 555
karyn.ambridge@acamh.org.uk www.acamh.org.uk
17 & 18 January
PECS Basic Training Workshop Birmingham
PECS immediately, including demonstrations, videos and chances to practice. www.pecs.com
23 January
Guide to Managing Challenging Behaviours London
The Picture Exchange Communication System (PECS) is a tried-and-tested approach that teaches functional communication skills using pictures. This workshop will give you the background and all the practical details you need to start implementing PECS immediately, including demonstrations, videos and chances to practice.
This workshop outlines a
01273 609 555
01273 609 555
www.pecs.com
www.pecs.com
www.senmaGAZINE.co.uk
powerful and effective model for dealing with difficult behaviours, including self injury and aggression. The Guide to Managing Challenging Behaviours training involves an introduction to broadspectrum behaviour analysis in the form of the Pyramid Approach to Education™.
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24 January
28 January
Reforming child protection - new guidance, multiagency inspections and the next steps for Serious Case Reviews
School Funding Reform Conference
Central London
for the introduction of the
This seminar will present an opportunity to discuss the new statutory guidance for safeguarding children and the new inspection frameworks with a senior and informed group of speakers and delegates. www.westminstereducationforum.co.uk
24 & 25 January
London
The School Funding Reform Conference will prepare you National Funding Formula in the next spending review and explain how the local funding system will operate from 2013/14 so you are ready for implementation in April 2013. This conference provides a range of tools and practical solutions for making savings, spending funds prudently and
PECS Basic Training Workshop
maximising your resources
London
teaching and learning.
The Picture Exchange Communication System (PECS) is a tried-and-tested approach that teaches functional communication skills using pictures. This workshop will give you the background and all the practical details you need to start implementing PECS immediately, including: demonstrations, videos and chances to practice.
www.capitaconferences.co.uk
01273 609 555 www.pecs.com
28 January
Moving from PECS to Speech Generating Devices (SGDs) London
in order to invest more in
28 January
2nd National Conference: Able, Gifted and Talented in Independent Prep Schools Denham
Keynotes: Professor Deborah Eyre and Mike Fleetham. For class and subject teachers, AGT coordinators, learning support teachers, directors of
Moving and Handling People: Future-proofing Care and Practice Business Design Centre, Islington, London
Pre-conference New Products Evaluation Workshops on 30 January. DLF’s annual CPD accredited event in three parts – conference with plenary/concurrent sessions, practical interactive workshops considering paediatric/adult handling situations, plus comprehensive exhibition and Professional Resource Centre. 3 for 2 offer and early booking discounts. www.dlf.org.uk/mhp
31 January & 1 February
PECS Basic Training Workshop Liverpool
The Picture Exchange Communication System (PECS) is a tried-and-tested approach that teaches functional communication skills using pictures. This workshop will give you the background and all the practical details you need to start implementing PECS immediately, including: demonstrations, videos and chances to practice.
01273 609 555 www.pecs.com
studies and senior mangers. www.learning-works.org.uk
30 Jan - 2 Feb 2013
BETT 2013 Excel London
New workshop for 2013. With the current influx of communication devices and apps to the market how do we ensure that basic functional communication skills are maintained and taught right from the beginning? This talk covers guidelines for deciding if someone is a good candidate for using an SGD, and will discuss how we can use SGD’s with the PECS protocol.
The UK’s biggest education technology exhibition and conference has moved to its new home at Excel in London. New for 2013 is the BETT Arena in partnership with Microsoft, which will host internationally renowned expert speakers including ministers, politicians, media figureheads and recognised educationalists. Throughout the four days of the show, each will present insights and share thoughts into the latest trends and research in
01273 609 555 www.pecs.com
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31 January & 1 February
5 - 7 February
Succeeding at Ofsted Short Notice Inspections & 2012 CIF: Maximising grades under the 2012 CIF & 2 day notice inspections
8 & 11 February
Babcock 4S Annual SEN Conference: SEND: The New Landscape – Preparing for Change 8 Feb: Epsom Downs Racecourse, Surrey 11 Feb: Mercure Maidstone, Kent
This annual event for SENCOs and SEND professionals working in all phases of education provides an invaluable opportunity to update knowledge and inspire and improve future classroom practice. To book, contact:
0800 073 4444 ext. 835008 conferences@babcock.co.uk
18 - 22 February
3rd annual International Exhibition and Forum for Education Riyadh, Saudi Arabia
Annual event of the Saudi Ministry of Education focused on providing opportunities for international businesses in the (special needs) education sector to create partnerships between international and GCC decision makers. Edward@iefe.sa www.iefe.sa
28 February
Understand the Additional Needs of Learners with ADHD in the mainstream classroom: Accredited. Also home study. £225 www.can-do-behaviour.co.uk
4 & 5 March
5 Feb: Leeds 6 Feb: London 7 Feb: Birmingham
PECS Basic Training Workshop The Picture Exchange Communication System (PECS) is a tried-and-tested approach that teaches functional communication skills using pictures. This workshop will give you the background and all the practical details you need to start implementing PECS immediately, including: demonstrations, videos and chances to practice.
technology and learning.
This intensive one-day workshop will be of interest to managers and quality specialists from all organisations subject to inspection under the common inspection framework for further education, learning and skills. The workshop will be of specific interest to those organisations involved with apprenticeship and ACL programmes.
www.bettshow.com
www.excellence-in-learning.co.uk
Ipswich
01273 609 555 www.pecs.com
www.senmagazine.co.uk
CPD and training 5 - 6 March
The National Autistic Society’s Professional Conference Harrogate
Education stream highlights: Dean Beadle, Aspergers, education and me, Charlie Henry, Achieving success for pupils with an outstanding Ofsted judgement – what are we looking for? Brenda Mullen, Community based education and support. www.autism.org.uk
7 March
Behaviour Management: A 4-Way Approach London
Training for teachers. £160 www.can-do-behaviour.co.uk
7 March
Working Memory, Learning and the Classroom Tour Copthorne Prep, West Sussex
The half-day event will cover an array of strategies that can be used in the classroom with pupils of all ages and abilities. www.learning-works.org.uk/eventstraining
7 March
Strategies for Working with Teenage and Adult Learners with Learning Disabilities (LD) Euston, London £160 www.can-do-behaviour.co.uk
10 - 13 March
The Jerusalem International Conference on Neuroplasticity and Cognitive Modifiability Jerusalem, Israel
14 - 16 March
The Education Show Birmingham NEC
The Education Show is the UK’s largest educational training and resources event: • discover five free conferences under one roof • hear exclusive insights from government bodies and leading associations • network with peers, discuss challenges and share advice • source the latest resources from leading SEN suppliers and receive special offers. For more information, visit: www.education-show.com/senmag
15 March
Making Parenting Work for Children’s Mental Health London
Day Conference. For more information and to register your interest, contact Kerry O’Shaughnessy:
020 7403 7458 kerry.oshaughnessy@acamh.org.uk www.acamh.org.uk
19 March
Working Memory, Learning and the Classroom Tour St Edwards School, Cheltenham
The half-day event will cover an array of strategies that can be used in the classroom with pupils of all ages and abilities. www.learning-works.org.uk/events-
This international conference will examine the role of cognitive intervention in the shaping of wo/man. It will offer the opportunity for a worldwide gathering of scientists, practitioners, therapists, and educators to explore developments in the fields of cognitive modifiability and neuroscience. The organisers are currently calling for abstracts from interested parties.
training
www.brainconvention.org
www.acamh.org.uk
www.senmaGAZINE.co.uk
20 March
Cognitive Behaviour Therapy Leeds
Master Class. For more information and to register your interest, contact Karyn Ambridge:
020 7403 7458 karyn.ambridge@acamh.org.uk
27 March
Child Brain Injury Trust Annual Conference Birmingham
The Child Brain Injury Trust’s 7th annual conference will be titled “When the Bough Breaks”. This conference aims to raise awareness of the issues families face following ABI. It aims to showcase academic research, successful interventions, and highlight how professionals can embrace the subject matter positively in their day to day work. www.childbraininjurytrust.org.uk
9 - 11 April
WORLDDIDAC Astana Astana, Kazakhstan
An international exhibition of educational technologies and supplies, the exhibition is an opportunity for UK organisations to showcase the latest education technologies and solutions, that can help improve teaching and learning skills, to educationalists and government representatives from all over Kazakhstan. www.worlddidac-astana.com
25 April
Behaviour Management for Support Professionals London Euston
Training for LSAs and TAs. £160 www.can-do-behaviour.co.uk
26 April
Strategies for Working with Teenage and Adult Learners with PMLD Euston, London £160 www.can-do-behaviour.co.uk
9 May
Behaviour Management: A 4-Way Approach Birmingham
Training for teachers. £160 www.can-do-behaviour.co.uk
20 June
Behaviour Management: A 4-Way Approach London
Training for teachers. £160 www.can-do-behaviour.co.uk
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sen resources DIRECTORY
SEN resources directory Information, advice and support for all things SEN... ADHD ADDers.org Information and support forum for those affected by ADD/ADHD:
www.adders.org
Bullying
Dyspraxia Foundation UK
Bullying UK Support and advice on bullying:
Dyspraxia advice and support
www.bullying.co.uk
www.dyspraxiafoundation.org.uk
Childline National Attention Deficit Disorder Advice and support for those suffering from bullying: Information and Support Service www.childline.org.uk (ADDISS) Resources and information for ADHD:
Cerebral palsy
www.addiss.co.uk
Autism/ASD Asperger Foundation UK (ASF) Support for people with Asperger’s syndrome:
www.aspergerfoundation.org.uk
Autism Awareness Forum for sharing experience/advice for those affected by ASD:
www.autism-awareness.org.uk
Scope UK Help, advice and support for children and adults affected by cerebral palsy:
www.scope.org.uk
Down syndrome Down’s Syndrome Association (DSA) Information, support and training for those affected by Down syndrome:
www.downs-syndrome.org.uk
Autistica Charity raising funds for medical research into autism:
www.autistica.org.uk
The Down’s Syndrome Research Foundation UK (DSRF)
National Autistic Society (NAS)
www.dsrf-uk.org
Help and information for those affected by ASD:
www.autism.org.uk
Charity focussing on medical research into Down syndrome:
Dyslexia
Research Autism
Charity dedicated to reforming attitudes and policy towards bullying:
Epilepsy Action Advice and information on epilepsy:
www.epilepsy.org.uk
Young Epilepsy Support for children and young people with epilepsy plus training for professionals.
www.youngepilepsy.org.uk
General SEN British Institute for Learning Disabilities Charity for learning disabilities:
www.bild.org.uk
Cerebra UK Charity for children with brain related conditions:
www.cerebra.org.uk
Child Brain Injury Trust Supporting children, young people, families and professionals when a child has acquired a brain injury.
www.childbraininjurytrust.org.uk
The UK Government’s education department:
www.researchautism.net
Anti-Bullying Alliance (ABA)
Epilepsy
Department for Education (DfE)
Charity focused on researching interventions in autism:
Bullying
Dyspraxia
www.education.gov.uk
British Dyslexia Association (BDA) Mencap Information and support for people affected by dyslexia:
Learning disabilities charity:
www.mencap.org.uk
www.bdadyslexia.org.uk
Dyslexia Action
National Association for Special Educational Needs (NASEN)
UK bullying prevention charity:
Charity providing services to those affected by dyslexia:
Organisation for the education, training, advancement of those with SEN:
www.beatbullying.org
www.dyslexiaaction.org.uk
www.nasen.org.uk
www.anti-bullyingalliance.org.uk
Beat Bullying
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sen resources directory
General SEN
Home schooling
National Parent Partnership Network
The Home Education Network UK (THENUK)
Network of local partnerships providing information, advice and support for parents and carers of those with SEN:
National organisation for home educators:
www.parentpartnership.org.uk
www.thenuk.com/
PMLD PMLD Network Information and support for PMLD:
www.pmldnetwork.org
Rebound therapy Hearing impairment Action on Hearing Loss Hearing impairment charity:
www.actiononhearingloss.org.uk
The National Rebound Therapy Consultancy UK governing body for rebound therapy.
www.reboundtherapy.org
SEN law
Deafness Research UK Charity promoting medical research into hearing impairment:
Learning outside the classroom Council for Learning Outside the classroom (CLOtC) Awarding body for the LOtC quality badge:
www.lotc.org.uk
Literacy
www.communicationmatters.org.uk
The Communication Trust Raising awareness of SLCN:
www.thecommunicationtrust.org.uk
Tourette’s syndrome Tourette's Action
Information and advice on Tourette’s:
www.tourettes-action.org.uk
Visual impairment National Blind Children’s Society
Support and services for parents and carers of blind children:
www.nbcs.org.uk
Support and advice to those affected by visual impairment:
National Deaf Children’s Society www.ndcs.org.uk
Communication Matters
Support for people with little or no clear speech:
Royal National Institute of Blind People (RNIB)
www.deafnessresearch.org.uk
Charity to help deaf children and young people:
SLCN
www.rnib.org.uk
Independent Parental Special Education Advice Legal advice and support for parents:
www.ipsea.org.uk
Spina bifida Shine Information and support relating to spina bifida and hydrocephalus:
www.shinecharity.org.uk
SLCN
For the latest news, articles, resources, cpd and events listings, visit: www.senmagazine.co.uk
ACE Centre Advice on communication aids:
www.ace-centre.org.uk
National Literacy Trust (NLT)
Afasic
Literacy charity for adults and children:
Help and advice on SLCN:
www.literacytrust.org.uk
www.afasicengland.org.uk
www.senmaGAZINE.co.uk
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eazine for special SthuebUK'sslecadrinib g mag
to ar (6 issues) educational needs - ÂŁ48.50. aForye call 01200 409802) international subscriptions please online. (UK only UK subscription discount available
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