2015 Central New York Breast Cancer Community Resource Guide

CNY

Breast Cancer

Community Resource Guide 2015 - Version 1

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Ann u Eve al nts

INSIDE 2015 Annual Events Local Stores that carry Survivor Gifts Organizations for Patients Support Groups

Thank you to the Oneida Fire Department for their Pink T-Shirt fundraiser, which has raised the dollars to print this breast cancer resource guide.

T-shirts are still available! Stop in to the Oneida Fire Department and purchase yours today! All proceeds benefit this publication!

www.facebook.com/Oneida-City-Fire-Department-264559703594417/

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from the editor

When I was first diagnosed with breast cancer in late 2013, I was overwhelmed with information that was thrown my way all at once.

It would have been great if someone handed me one publication that included all the resources I would need, but instead I received them piece-meal and ended up throwing pamphlets, business cards and books in a box.

Now that I have completed my active cancer treatments, I am looking to give back and offer my support. I always knew we had a strong community of breast cancer survivors and supporters, but I had no idea how to reach them or find out where and when all these events were happening so I could take part.

I hope you find this resource guide to be helpful. Two things to remember... One - please feel free to pass it on so others can support and reach out. Two - please check back often for the newest version of this guide. As soon as I get information on events and/or organizations, we will update the guide. The version number is located on the cover.

If there are organizations or events that should be listed, please feel free to reach out to me!

Get social with us!

@CNYHopeChest

Shelly

Shelly Straub Survivor, Breast Cancer & Skin Cancer President, Hope Chest for Charity

Cover photo courtesy Lucia Camarda.

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contents Local Support Books & Events 12 Groups08 Blogs 11 CNY Breast Cancer Resources 2Sisters4Life

Positively Pink Packages

American Cancer Society

Rose & Co

Non profit education & awareness in inner city Making Strides Against Breast Cancer

Fundraising and Awareness Hair studio

Cancer Connects

Roses for Breast Cancer

Carol M. Baldwin

Saint Agatha Foundation

CLASP Legal Services Dazzle Boutique

Shades of Inspiration

Lady Jane Boutique

StoryBook Photography

Non-profit

Breast Cancer Research Fund of CNY, Inc.

Products

Mastectomy Boutique

Look Good Feel Better

American Cancer Society program

Old Wicker Mill

Breast Cancer Novelty Gifts

Onondaga County Cancer Services Free Mammograms & resources

Pink Tutus For A Cure Annual Fundraising Event

Pink Tie Guy

Non profit fundraiser for Susan G Komen CNY

Products

Non-profit organization

Empowerment Organization

St. Joseph’s Lymphedema Program Lymphedema Photography

Stupid Dumb Breast Cancer Fundraising and Awareness

Susan G. Komen CNY Non-profit organization

Syracuse Bicycle

Breast Cancer Awareness Ride

The Molly Project Photography

Upstate Cancer Center Hospital

YMCA

Livestrong

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SUBMIT Submit your event, product, book, blog or organization The CNY Breast Cancer Community Resource Guide includes local organizations and events, as a resource guide for the newly diagnosed and for survivors who want to get involved in the community.

We welcome everyone involved in the cny breast cancer community to submit relevant information for this guide. We are not a news publication so save the press release for one of our community’s outstanding magazines or newspapers.

No, it’s not too late. We continually publish new versions when additions are made.

To submit your information, kindly email shelly.straub@outlook.com with advertisement, logo, etc.

Please make sure to include who you are and what you do for the breast cancer community here in Central New York, along with any necessary links.

Ad should be 4 x 5 in size and all graphics and text should be 300 dpi at full size.

This publication is offered as a free download and you can pick it up any Hope Chest for Charity event.

Feel free to contact me with any questions.

Thank you!

Shelly Straub Survivor http://www.hopechestforcharity.com

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Carol M Baldwin’s A Run For Their Life Annual Event 2014 Lucia Camarda, Mandy & Peter Svegl

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support groups Pink Therapy Breast Cancer Survivors Group Meets the 4th Tuesday of each month 5:30 pm Marley Education Center, 765 Irving Ave., conveniently located on University Hill, minutes off the East Adams St. exit of Route 81 north and south.

Free parking for attendees is available in the Marley Education Center garage (garage is beneath the building and entrance is located at the corner of Irving Ave. and University Pl.) To register, please call 315/472-2464 or complete the online form. Click this link: http://www.crouse.org/services/breast-health-center/breast-cancer-support-group/ Warrior Wellness, SDBC Classes meet The 1st and 3rd Sunday of the month 9:30-10:30 am Towne Fitness Center 311B Towne Center Dr, Fayetteville, New York 13066 Support group but not your typical one. We laugh, exercise, talk and share our feelings in a fun setting.

To register, please email stupiddumbbreastcancer@gmail.com http://www.stupiddumbbreastcancer.com/warrior-wellness/

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Making Strides Against Breast Cancer Event 2014 Pictured (L): Terry Kapilla, 24 year survivor (R) Shelly Straub, 1 year survivor Please feel free to submit your event photos to shelly.straub@outlook.com.

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Books & Blogs Positively Pink HOPE “Positively Pink Hope, Healing Resources from Breast Cancer to Breast Health� places power in your hands and acts as a guide for hope. This resource book provides breast cancer patients and their families the resources and support they desperately need at the time they most need it.

Free Download: http://www.positivelypinkpackages.org/Healing_Resource_Book.pdf A Tale of 2 Boobies: One Year With Cancer From diagnosis to surgery, chemotherapy, radiation and hormone therapy drugs, this is what One Year with Cancer looks like.

Amazon: http://www.amazon.com/dp/B00PHGOUB2

A Tale of 2 Boobies BLOG http://www.ataleof2boobies.com/ Stupid Dumb Breast Cancer BLOG http://www.stupiddumbbreastcancer.com/

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2015 ANNUAL EVENTS January 3RD ANNUAL SDBC RIDES FOR CANCER - An indoor Cycle event - Jan 11, 2015 - Fayetteville - Stupid Dumb Breast Cancer - https://www.facebook.com/events/721361287929147/

March

PINK OUT - March 2015 - Rain Lounge, Syracuse - Stupid Dumb Breast Cancer https://www.facebook.com/stupiddumbbreastcancer/events

May A NIGHT TO REMEMBER ANNUAL GALA - May 09, 2015 - Verona, NY - Carol M. Baldwin Breast Cancer Research Fund of CNY, Inc. - http://findacurecny.org/events/baldwin_events.php KOMEN CENTRAL NEW YORK RACE FOR THE CURE - May 16, 2015 - NYS Fairgrounds - Susan G. Komen - http://komencny.org/

July GILLIE GIRL TRIATHLON - July 19, 2015 - Camillus, New York - Carol M. Baldwin Breast Cancer Research Fund of CNY, Inc. - http://findacurecny.org/events/baldwin_events.php

August TEED OFF AT CANCER - August 2015 - Pompey - Stupid Dumb Breast Cancer https://www.facebook.com/stupiddumbbreastcancer/events BADASS BBQ FOR BREAST CANCER - August 2015 - Liverpool - Hope Chest for Charity http://www.hopechestforcharity.com

2015 ANNUAL EVENTS September AIMING FORE THE CURE - September 20, 2015 - Verona, NY - Carol M. Baldwin Breast Cancer Research Fund of CNY, Inc. - http://findacurecny.org/events/baldwin_events.php SERVING FOR THE CURE - September 20, 2015 - Vernon, NY - Carol M. Baldwin Breast Cancer Research Fund of CNY, Inc. - http://findacurecny.org/events/baldwin_events.php

October

SYRACUSE BICYCLE BREAST CANCER AWARENESS RIDE - October 03, 2015 - Erie Canal Path / Green Lakes State Park - Carol M. Baldwin Breast Cancer Research Fund of CNY, Inc. http://findacurecny.org/events/baldwin_events.php MAKING STRIDES AGAINST BREAST CANCER - October 18, 2015 - Clinton Square - American Cancer Society - http://www.makingstrideswalk.org/syracuse A RUN FOR THEIR LIFE - October 2015 - Manley Field House - Carol M. Baldwin Breast Cancer Research Fund of CNY, Inc. - http://www.cmbarunfortheirlife.com/

November LADIES NIGHT - November 2015 - Minoa - Stupid Dumb Breast Cancer https://www.facebook.com/stupiddumbbreastcancer/events 2014 Making Strides event

Carol Baldwin is a crusader. After being diagnosed in 1990 she was determined to beat breast cancer. Once she received a clean slate from her doctors, she made it her goal to help other women that were fighting against the disease. At the time, early detection of breast cancer had gained momentum. Carol felt it was time to move to the next step - to find a cure. That is why the mission of the Carol M. Baldwin Breast Cancer Research Fund is to support medical research, and her slogan is, "Together we will find a cure."

The Central New York affiliate of Susan G. Komen for the Cure’s promise is to save lives and end breast cancer forever by empowering people, ensuring quality care for all, and energizing science to find the cures.

http://komencny.org/

http://findacurecny.org/

2Sisters4Life is a non profit organization geared to keep Breast Cancer Awareness in the inner city community through education and being a resource connection.

CNY’s leading men have joined the fight against breast cancer, raising funds & awareness as Pink Tie Guys!

This program supports Susan G. Komen CNY.

https://www.facebook.com/PinkTieGuyCNY

http://www.2sisters4life.com/

Available to anyone that has been diagnosed with cancer regardless of cancer type or treatment and free to cancer survivors, LIVESTRONG offers a free, 12-week family membership in hopes that the survivors support system helps to integrate the survivors’ transformation and return to wellness.

The Saint Agatha Foundation was founded in 2004 to provide support, comfort and care to breast cancer patients. We help individuals—particularly the under-insured and uninsured—in the Central New York area by providing financial assistance to cover a range of costs for treatment and recovery.

http://www.saintagathafoundation.org/

http://www.syracuse.ymca.org/programs/healthy-living/fitness/livestrong.html

Look Good Feel Better® is a free nationwide program helping women with appearance-related side effects of cancer treatment.

http://lookgoodfeelbetter.org/

Ann Marie Giannino-Otis and her Stupid Dumb Breast Cancer. A facebook page for information on events and staying breast informed.

https://www.facebook.com/stupiddumbbreastcancer

Men and women need to get regular health care screenings. The Cancer Services Program Partnership can help. The Partnership offers free breast, cervical, and colorectal cancer screenings and diagnostic services for those without health insurance. http://www.ongov.net/health/cancerscreening.html

The Dazzle Boutique at Upstate Hospital carries a wide variety of Cancer Awareness items that help give back to the cause! https://www.facebook.com/DazzleUpstate

Upstate University Hospital is known as the region’s most comprehensive resource for cancer care. The Upstate Cancer Center offers the most advanced outpatient treatment, clinical research studies, and support services all in one convenient location.

Cancer treatments, cancer research, education, and prevention provides hope and inspiration. The Cancer Center has received strong support from patients, families, caregivers and the community. http://www.upstate.edu/cancer

Pink Tutus for a Cure is an annual silent auction fundraising event that was founded in 2012 by Danny Espinoza and Scott Chambers. All proceeds are proudly donated to the Carol M. Baldwin Breast Cancer Research Fund of CNY, Inc. http://pinktutusforacure.com/

Syracuse Bicycle is hosting their 7th Annual Breast Cancer Awareness Ride on Saturday, October 3rd, at Green Lakes State Park in Fayetteville, NY. Participants can choose between three great ride options: a 10-mile family-friendly ride on the Erie Canal Path, a 25-mile or a 50-mile road ride on a scenic, flat loop north of Green Lakes State Park. Proceeds from the event will benefit the Carol M. Baldwin Breast Cancer Research Foundation of Central New York.

CancerConnects is a non-profit 501(c)(3) organization which provides programs and services to help facilitate the cancer journey for patients throughout Central New York. We empower cancer patients and survivors via connections to community resources, support and guidance.

http://www.cancerconnects.org/

http://syracusebicycle.com/events-3/breast-cancerawareness-ride/

For over three decades, The Olde Wicker Mill has brought you incredible gifts, home decor, fashion, collectibles, furniture, items for your gardens and so much more! We carefully select items for you that are fun, functional and affordable - that’s our philosophy through and through.

http://www.oldewickermill.com/

This is a non-profiting fundraiser where the proceeds support charities and organizations. Formerly Roses for Breast Cancer: STUCK for a Cure.

http://www.rosesforbc.org

Positively Pink Packages

The Molly Project was founded in Central New York to coordinate free, on-location photography sessions for women whose lives are being redefined by cancer or terminal disease. http://themollyproject.org

Lady Jane Boutique has been providing Central New York women with post-mastectomy and post-reconstruction breast prosthesis, bras, lingerie, and swimwear since 1986.

http://www.ladyjaneboutique.com/

Positively Pink Packages and Rose & Company Hair Design of Fayetteville are pleased to offer free head shaving and wig cutting services to local breast cancer patients. You can bring your wig in for cutting and styling. Rose & Co. does not sell wigs, however there are a limited number available to patients who are not able to afford them. http://roseandcompanyhairdesign.com/giving-back/

Some treatments for breast cancer can cause decreased flexibility and strength, pain and even increase your risk for lymphedema, a disorder of the lymphatic system where blockage and swelling occurs. Breast cancer related lymphedema can appear within a few days, months or years following cancer treatment. Left untreated, it can become worse.

Our Lymphedema and Breast Cancer Recovery Program, supported in part by a grant from the CNY Affiliate of the Susan G. Komen Breast Cancer Foundation, is unique to St. Joseph’s and can reduce your risk for lymphedema following treatment for breast cancer. http://www.sjhsyr.org/breast-cancer-recovery

The Cancer Legal Advocacy & Services Project is a joint project of Legal Services of Central New York, Inc. and the Frank H. Hiscock Legal Aid Society.

http://www.lscny.org/

Hope Chest for Charity is a not-for-profit all volunteer organization which raises funds to provide real dollars to real individuals in crisis, as well as creating awareness for causes that effect our Central New York community. http://www.hopechestforcharity.com

Please patronize these sponsors who made this publication possible.

ADVERTISE HERE CONTACT Shelly for more info at shelly.straub@outlook.com

StoryBook Photography

Specializing in a unique, creative, fun, modern or traditional photojournalistic style of portraiture that captures your distinctive personality.

Special rates for those surviving breast cancer.

Call me!

(315) 679-6916 storybookphotography@rocketmail.com https://www.facebook.com/StoryBookPhotographyofSyracuse