Sibaleni Nathi Volume 8- 2012

Sibaleni Nathi Count Us In

Volume 8- 2012

In this edition.....

Nasal Congestion/Catarrh Slaying the Dragon of Assumptions Adulthood Branch News

Dssa Contact Details:

Tel: 011 484 8890/1 Email: Website:

WDSC 2012

D

Who should Attend?

www.wdsc2012.org.za

2

Sibaleni nathi- Volume 8

Sibalni nathi 2012- In this edition...

Contents Editorial National News

International News

A Parents Perspective Medical Minimag- Count us in our voice Early Years Education Adulthood Branch News

Back Page

Sibaleni nathi- Volume 8

3

Thank you to all our generous Sponsors

DSSA is supported by LEV Denmark we thank you for your partnership in projects we have implemented through the years.

DSSA is partially supported and funded by the National Lottery Distribution Trust Fund

4

Sibaleni nathi- Volume 8

s-

Editorial

Message From the Editor from the desk of the National Organisational

I

am very humbled to bring you the 8th volume of our national publication

antly count me in!

Roxanne Scholtz

{

What a fantastic memorable year 2012 will be for DSSA

}

Please join our Facebook page, where we continue to keep you informed of our activities and most up to date information.

Sibaleni nathi- Volume 8

5

National News

National Directors News

from the desk of the National Director

W

6

Sibaleni nathi- Volume 8

National News

Vanessa dos Santos with Hayley Rehbock a DSSA Self Advocate

Sibaleni nathi- Volume 8

7

National News

National Project Manager News

from the desk of the National Project Manager

I

DSSA/LEV Break the BarrierStrengthening the Township Project 2011-2013

8

Sibaleni nathi- Volume 8

National News

Jabulani Dikgale

{

I am looking forward to continuing with this project & others over the years

Sibaleni nathi- Volume 8

}

9

National News

Awareness & Fundraising National “Genes� Day

A

National Down Syndrome Day 2011

Fundraising

World Down Syndrome Day 2012

Vanessa with the Deputy Minister and other members of DSSA

10

Sibaleni nathi- Volume 8

National News

Best Buddies

B

If you would like to participate in any of the programs please contact Jabulane on 011 484 8890/1 alternatively you can email him on dssa.pm@icon.co.za

Sibaleni nathi- Volume 8

11

International News

Down Syndrome International News

T

New York, 21 March 2012- Secretary-General’s message on World Down Syndrome Day

12

Sibaleni nathi- Volume 8

International News

D Objective 3: Global Outreach

Objective 5: World Down Syndrome Day (WDSD)- 21 March

Objective 1: World Down Syndrome Congress 2012 (WDSC)

Objective 4: DSi Website, Social Media, Newsletter and Membership Forums

Research Group (SARG)

Sibaleni nathi- Volume 8

13

International News

Inclusion International

I

Shikuku Obosi

14

Sibaleni nathi- Volume 8

International News

Inclusion Africa General Assembly

I

Sibaleni nathi- Volume 8

15

A Parents Perspective

Our Story a recollection of

the experience we had as parents of a boy with Down syndrome

M

{

16

I opened my sons bold red letters “Down syndrome�

Sibaleni nathi- Volume 8

}

A Parents Perspective

{

My Kayden taught me how to love and what a blessing he is

}

Sibaleni nathi- Volume 8

17

Medical

Medical Nasal Congestion/Catarrh

Some management strategies which may help

T

Article written by DSMIG for the Down Syndrome Association Newsletter (UK)

Mechanical decongestion Nasal saline douches

Nose blowing

18

Sibaleni nathi- Volume 8

Medical

Dairy-free diet

Nasal decongestant sprays

Oral decongestants Oral antihistamines

To sum up

Low dose antibiotics

Sibaleni nathi- Volume 8

19

Stories from our Self Advocates

MiniMag Count us in our voice

by Hayley Rehbock who has Down syndrome

I

Hayley Rehbock appearing on a United by Music Post card, United

by Music tour 13 June 201116 July 2011 Hayley Rehbock is the Chairperson for the Self Advocacy Movement of South Africa a program of DSSA. Hayley is also a board member of DSSA.

20

Sibaleni nathi- Volume 8

This was typed by Suze, Hayley interpreted to her.

Stories from our Self Advocates

Count us in our voice

by Ephraim Mohlokane who has an Intellectual Disability

H

shop for people with Intellectual Disabilities

{

For my dream I hope the world can change and respect people for who they are

Sibaleni nathi- Volume 8

}

21

Early Years

Hypotonia

M For a newborn with hypotonia you can:

Always check with an appropriate health care professional before implementing any of these suggestions, to make sure these hypotonia exercises are going to be correct for your baby/child, as well as to clarify and make sure you understand how to implement them safely.

Gross Motor Control Exercises

22

Sibaleni nathi- Volume 8

Occupational Therapy exercises for those with hypotonia

Early Years

{

Remember, the best stimulus for anyone who suffers from hypotonia is loss of patience, understanding, education and most important, love.

}

Hypotonia Exercises conclusion

Sibaleni nathi- Volume 8

23

Education

Education Slaying the Dragon of Assumptions Article written by Zane Joynt

H

{

24

In my opinion the biggest stumbling block to education is the practice of making assumptions.

Sibaleni nathi- Volume 8

}

Education

{

These are the special moments that we as educators live for.

}

David with Zane

Sibaleni nathi- Volume 8

25

Adulthood

Adulthood

T

What is hypothyroidism? How is it diagnosed and treated?

What is atlantoaxial instability?

How is it diagnosed and treated?

What health conditions occur more often in DS?

What is celiac disease? How is it diagnosed and treated?

Why does obesity occur more often in DS?

26

Sibaleni nathi- Volume 8

Adulthood

What about behavioral changes in adulthood?

What about healthcare maintenance?

What is obstructive sleep apnea?

How is it diagnosed and treated?

Source: with thanks to the NDSS www.ndss.org and special guest author Jose Flores, M.D., Ph.D. for preparing this piece.

What health conditions occur less often in DS?

Sibaleni nathi- Volume 8

27

Branch News

Amathole

Shanghai Restaurant sponsored food for the Christmas Party

T

Members from Hamilton Club assisting with the Street Collection

Outreach and Parent Support Groups

28

Sibaleni nathi- Volume 8

Branch News

Fundraising

World Down Syndrome Day

Exercise Classes Cupcake and Cocktail Evening

CONTACT DETAILS

Sibaleni nathi- Volume 8

29

Branch News

Gauteng

D

own Syndrome Association Gauteng (DSAG) Outreach Support Services:

DSAG Self Advocates, Adult Supported Employment and Job Skill Training:

30

Sibaleni nathi- Volume 8

Branch News

DSAG Awareness Day Events:

We thank you and are proud to be under your wings”.

CONTACT DETAILS DSAG CMI Children’s Christmas Party, December 2011:

Sibaleni nathi- Volume 8

31

Branch News

Kwa Zulu Natal

W Outreach Report

32

Sibaleni nathi- Volume 8

Branch News

Workshops

National Public Awareness Day

{

}

We start by Saying a very big thank you to our Sponsors

Fundraising

Functions

CONTACT DETAILS:

Sibaleni nathi- Volume 8

33

Branch News

Support Cape

D

Self Help Groups

34

Toy Library News

Sibaleni nathi- Volume 8

Branch News

Thanks and Acknowledgements

Family Counsellor

CONTACT DETAILS

Committee

Sibaleni nathi- Volume 8

35

Branch News

Tshwane

T

Early Intervention/Outreach

Inclusive Education

36

Sibaleni nathi- Volume 8

Branch News

Parent Information Mornings

Self Advocate Group

Swimming New Parents

Fundraising CONTACT DETAILS

Sibaleni nathi- Volume 8

37

Branch News

Western Cape

O Supported Employment and Skills Development

Leisure Libraries

Parent Support and Workshop

38

Sibaleni nathi- Volume 8

Branch News

Committee Members:

Cycle Tour

CONTACT DETAILS

Staff Members:

{

We would like to thank the Mountain View Cyclists

}

SASSAI Games Paarl 2012

Sibaleni nathi- Volume 8

39

Branch News

Nelson Mandela

P

Metropole

Outreach:

Fundraising:

Self Advocacy:

CONTACT DETAILS:

40

Sibaleni nathi- Volume 8

Branch News

Free State Self Advocacy and Awareness

Sheri Brynard Early Intervention CONTACT DETAILS:

Sibaleni nathi- Volume 8

41

Branch News

DSSA Outreach Kimberley

Mercia Van RooyenOutreach coordinator Contact: 078 182 3172

Members of the Outreach with the Fire Station staff

North West

Betty Motloane- Outreach coordinator Contact: 071 359 4154

42

Sibaleni nathi- Volume 8

Branch News

DSSA Outreach Limpopo

Difference Motseo Outreach coordinator Contact: 078 246 0888

Witbank

Highveld Mall for World Down Syndrome Day

Lerato Mokoena Outreach coordinator Contact: 083 732 6189

Sibaleni nathi- Volume 8

43

DSSA STAFF:

Free State: OUTREACH CONTACT DETAILS: Kimberley: North West:

DSAA OFFICE BEARERS: Limpopo: Mpumalanga: BRANCH CONTACT DETAILS: Amathole (East London): DSSA ADVISORY COMMITTEE: Medical (Genetics): Gauteng: Inclusive Education: Kwa Zulu Natal:

Speech and Language: Skills Development:

Support Cape (Red Cross Children’s Hospital): Supported Employment and Self Advocacy: Tshwane:

Self Advocates: USEFUL WEBSITES

Western Cape (Belville): SUPPORT GROUP CONTACT DETAILS: Nelson Mandela Metrople (Port Elizabeth):

Personalised Books- Especially 4U www.personalisedbooks4U.com

Your Child is the Star of each story * Features the child’s name throughout the book * Features names of family/friends throughout the book * Educates the child * Encourages an early joy of reading * Superbly illustrated * Bold easy-to-read type * Washable hard covers * Unique family keepsake * Enhances a child’s self-esteem & sense of identity Log onto the website for the many different Title options & order today 20% of all books sold goes to DSSA, contact Vanessa to place your order 082 893 0988