BIKES & TRIKES FOR ALL AGES AND STAGES BACKYARD MOTOR SKILL IDEAS
We are a team of experienced occupational therapists, speech pathologists, psychologists, positive behaviour support practitioners, social workers, music therapists and physiotherapists.
With a united focus on achieving your goals, we’re more than a service – we’re your partners for allied health supports.
Visit us at livebig.com.au or call us on 1300 390 222.
Stand Tall for Physical and Emotional Health
Kids gain a whole new perspective on life when they start to stand.
Physically, standing improves bone density, balance, muscle tone, digestion, and circulation. It also enhances cognitive development.
Interacting at eye level boosts social skills, promotes inclusion, and increases confidence.
For children needing help to stand, we provide a range of standing frames to suit mild to complex postural needs. Each frame provides essential support, ensuring head-to-toe comfort and stability.
Ready to see your child stand tall and explore? Book a trial today with our expert team.
Scan to book
Did anyone spot anything new on our cover this issue? Look closely…and you will see we are transitioning our brand to SOURCE (no kids on the end) to better reflect our audience, because let’s face it teens and young adults don’t want to be called ‘kids’ do they (!). We’ve been around for 10 years now and during that time our families have grown with us, so we wanted to better represent our audience of kids, teens and young adults. Over the coming magazine issues and online/at expos you’ll see the same great content that will also focus across all of the ages we cater for (0-35 years).
With all that said, we absolutely won’t forget all our families with newly diagnosed or younger children, so in this issue we’ve got a big focus on early childhood matters, including an important call to arms on including our complex kids in childcare settings. The law in Australia says that all kids regardless of need should have access to childcare but as so many of us know that’s just not happening. Monique Power of Rippleability investigates why.
You’ll also find great info covering developmental milestones for self-help and functional skills, the key worker approach and its benefits, nutritional concerns and how dieticians can help, home and living supports explained and just in time for spring – 10 backyard activities to target gross motor skills!
It’s a great read, we hope you enjoy it and remember to share it around with other families, your therapy team, educators and your family and friends.
Much love,
MAGAZINE
CONTENT EDITOR: Nicole Davis
HEAD OF SALES & BUSINESS DEVELOPMENT: Matthew Rainsford, matthew@sourcekids.com.au 0409 418 362
HEAD OF EVENTS: Naomi Sirianni, naomi@sourcekids.com.au
0447 755 043
GRAPHIC DESIGN: Emma Henderson
PUBLISHER/CEO: Emma Price
MINDFULNESS MAT
The Emotionology Mindfulness Mat is an erasable, reusable, 're-funable' silicone mat that has been specifically designed to help children quiet their minds, regulate their emotions, and calm their nervous systems. Perfect for travelling, eating out, home or school, the Emotionology Mindfulness Mat folds up and stores away in its own little bag with its erasable markers. Packed with mindfulness activities and colouring opportunities, this Melbourne-designed, counsellor-created mat provides hours of fun, independent play, and quiet reflection. emotionology.com.au
emotionology_official
BRUSHING MADE SYMPL
Symplbrush make brushing teeth very simple. By harnessing the equivalent of twenty toothbrushes working simultaneously, this unique toothbrush delivers a safe, clinically proven, and effective clean each and every time it’s used. This is such a useful tool for anyone with a physical disability, plus the gentle brushing motion doesn’t buzz or vibrate, which may be useful for those with sensory sensitivities. symplbrush.com.au
PATIENCE PEBBLES
These Patience Pebbles will bring a calming effect into your family home as your little one discovers the art of mindfulness through play while also developing their fine motor skills. Thoughtfully carved from wood, and beautifully boxed in sustainable packaging, they are also eco-friendly. au.mindfulandcokids.com mindfulandcokids
HOME SWEET HOME TABLE TENT
Isn’t this just the most beautiful way to foster imaginative play and also create a safe sensory space? The ‘Home Sweet Home’ Table Tent is designed to be thrown over your dining table to create an instant cubby house underneath for your little ones to stimulate imaginative play. Home is definitely where the heart is and this design is the perfect home beneath the dining room table to make any child’s heart flutter! petitemaisonplay.com.au
Assistive Technology
Paediatric specialist Astris PME has now opened in Perth, enabling Western Australian families to access leading scripted Assistive Technology from top international and Australian manufacturers. Enjoy free trials and free servicing for life*! Contact us now to learn more.
*
www.astris-pme.com.au perth@astris-pme.com.au
POSITIVE AFFIRMATION POSTERS
These boho-style positive affirmation prints will look beautiful in your home, office, or classroom. Each print features a single empowering word or phrase, such as "You are brave," "You are smart," and "You are unique," designed to uplift and inspire. Available as digital downloads, them come in a range of sizes in high-resolution .jpg files ready to print, ensuring you can find the perfect fit for any space. mywellbeingschool.com mywellbeingschool
SOURCE KIDS MOBILITY & EQUIPMENT EGUIDE
Did you know that we have an amazing FREE resource to help you if you’re looking to acquire or replace valuable assistive technology products for your child or young adult? We’ve covered manual and powered wheelchairs, pushchairs and strollers, bikes and trikes, standers, walkers, seating and positioning, bathroom aids and beds and sleep systems. sourcekids.com.au/atguide
STATTOO – SAFETY TATTOOS
We love a clever idea! A Stattoo is a temporary safety tattoo designed to help keep our loved ones safe if they were to become lost or separated from their carer. Created to give you peace of mind when heading out by providing important contact and medical information. Check out the range which includes a camping version with camp site details – fabulous as we head into the warmer months. stattoo.com.au
MY FIRST GARDEN – CHILDREN'S RAISED GARDEN BED
Perfect for Spring! These raised garden beds are just the right height for kids to get their introduction to gardening. Great for growing herbs and veggies, not only will your kids love being involved in the gardening, they will also be encouraged to enjoy healthier food choices. These beds can also help to develop fine motor skills as they learn to prepare soil, and plant and care for their harvest.
organicgardenco.com.au // theorganicgardencoau
ABC Disability by Sarah Rose
From three-time Paralympian swimmer, medal-winner and disability advocate Sarah Rose, comes a big-hearted guide to disability, full of letters, learnings and laughs from a disabled person to you. ABC Disability is an A to Z of celebrating what makes each of us unique, featuring bold, brightly coloured artwork by award-winning illustrator Beck Feinerincluding the Auslan sign for each letter of the alphabet. amazon.com.au
My complex kid CAN’T ACCESS CHILDCARE
Why not, and what do I do now?
Children with disability are often woefully under supported in early childcare settings. Monique Power issues a call to arms to fix the broken system.
NAVIGATING CHILDCARE
-
IS COMPLICATED!
Imagine you’re on a road trip, driving a car with a faulty GPS. Every time you think you’re getting closer to your destination, the GPS reroutes you, leading you further away. This is what it feels like for many parents of children with disabilities in Australia when trying to find suitable early childhood education and care (ECEC).
THE ‘NO-THROUGH’ ROAD
The journey is filled with detours and dead ends. You may feel anxious about entrusting your child to others because the caregivers might not have the necessary skills or qualifications. The government, the National Disability Insurance Scheme (NDIS), or other sources often provide insufficient funding to cover the necessary hours of care. Geographical location and long wait times further complicate your trip. For many, the severity of their child’s needs leaves them without any viable care options.
The Convention on the Rights of
This is a call for collective action, to hold governments, mainstream and disability supports accountable.
the Child promises that children and young people have the right to special education and care, so they may lead fulfilling lives. If upheld, this promise could be like finding a dependable map to guide you. Reliable, sustained, qualified, and appropriate care for children aged 0-5 with disabilities would bring profound benefits. It could alleviate relationship stress, enhance financial stability, allow for educational and employability improvements, reduce caregiver burnout, and improve overall well-being. Inclusive, adaptive, and appropriate early childcare would give your child the same opportunities their typically developing peers enjoy. But why isn’t this the case in Australia? The GPS seems to be stuck on the wrong route due to barriers within the legislation, systems, and policies that govern how disability is perceived in ECEC settings. All care entities must comply with the Disability Discrimination Act 1992 (DDA), which ensures equal access and participation. Yet, the lack of accountability to the Disability Standards
for Education 2005 leaves many families without the necessary support.
In Australia, it is mandatory for all children to start formal education by age six, including those with high support needs. While typically developing children enjoy ample community access and early opportunities for social, educational, and emotional development, children with profound disabilities often lack these privileges. They are frequently surrounded by adults who manage their medical and day-to-day needs, with fewer chances to integrate into their communities and connect with peers in supported settings. These challenges have long-term impacts on their overall quality of life.
THE WRONG ROADMAP
The NDIS was created to address these issues, but it has fallen short. The NDIS
review highlighted a significant gap between mainstream and disabilityspecific services. Mainstream sectors began deflecting disability-related responsibilities to the NDIS, neglecting the provision of early childhood care. Families of young children with highintensity support needs have felt the strain immensely, in many cases they have been diverted down a dead-end road, with no safe U-turn option in sight.
Without adequate, affordable, and appropriate ECEC options, families resort to sporadic, segregated systems or make enormous sacrifices. Existing support schemes, including the NDIS, the Inclusion Support Program (ISP), the Inclusion Development Fund (IDF), and In Home Care packages, have significant limitations. They often promote isolated educational options and are inadequately
or inequitably funded. The NDIS focuses on clinical and therapeutic interventions for early childhood, neglecting substantial support hours for paid care options. The ISP aims to support inclusive practices but is difficult to access and insufficient for high and complex needs. In Home Care packages, while available, are isolating, have long wait times, and offer inflexible support.
FIXING THE FAULTY GPS
This fragmented, isolated, and unsustainable system of care for disabled children under school age in Australia needs reform. The solution lies in collective action and holding governments and support systems accountable. Access to care is a fundamental human right, as is meaningful engagement with educational and early intervention options. Children
with profound disabilities should not be excluded from ECEC settings, and their carers should not be marginalised.
PLOTTING A NEW COURSE
So, how do we fix this faulty GPS and find our way to the right destination? The answer is simple: we demand better.
This is a call for collective action, to hold governments, mainstream and disability supports accountable. Access to care is a fundamental and inalienable human right, as is social connection and meaningful engagement with educational/ early intervention options. Children with profound disabilities or complex needs should not be systemically excluded from ECEC settings, and carers of these children should not be forced to the fringes of their communities for the first six years of their child’s lives. There is change coming about, and your voices are crucial.
JOIN THE JOURNEY: MAKE A NEW MAP
Imagine a world where the GPS finally gets it right, leading us directly to inclusive, supportive, and well-funded care options for all children. This vision can become a reality with your advocacy and support. Get involved in the discussions, sign up to the cause, call out the challenges, and emphasise different outcomes. Your voice can secure access to the care and support your child needs.
Join the conversation, advocate for change, and demand better. It’s time to sign off Siri… we’ve got this one.
Childcare is for ALL children.
By Monique Power.
RippleAbility is a paediatric specific disability provider, helping families navigate complex systems of support and build their capacity to advocate for appropriate supports and services for their child. Email: monique@ rippleability.org | rippleability.org
Developmental MILESTONES
FOR SELF-HELP & FUNCTIONAL SKILLS
As children grow and develop towards adulthood, they acquire various self-help and functional skills that enable them to become more independent and confident in their everyday lives. Occupational therapy plays a vital role in helping reach these important milestones.
Age 1-3 Years BUILDING FOUNDATIONAL SKILLS
During these early years, children are developing fundamental skills that set the stage for future independence.
SELF-HELP MILESTONES
Feeding: Around 1 year old, children can start holding and eating finger foods independently. As they approach 2 years old, they learn to use a spoon, scoop food, and drink from a cup with some assistance.
Dressing: Between 1 and 2 years old, children can begin to help with simple dressing tasks, such as pulling off socks or putting on a hat. By age 3, they can often take off their own clothes with minimal assistance.
Personal hygiene: By age 1, children can participate in handwashing with some assistance. As they approach 2 and 3 years old, they may begin to show an interest in brushing their teeth, although they still require help and supervision.
ACTIVITY IDEAS
• Encourage self-feeding by providing a
variety of finger foods that are easy to grasp, like soft fruits and vegetables.
• Offer child-friendly utensils, such as spoons with thick handles, to support their development of feeding skills.
• Make handwashing interactive and fun by using colourful soap and singing a handwashing song together.
• Introduce toothbrushing as a playful activity by using a child-sized toothbrush and flavoured toothpaste.
Age 4-6 Years
DEVELOPING INDEPENDENCE
At this stage, children are gaining more independence and are capable of performing various self-help tasks.
SELF-HELP MILESTONES
Dressing: At this age, children can usually dress themselves with minimal assistance. They can put on and take off their clothes, including socks, shoes, and simple outfits.
Personal hygiene: Children can toilet independently and are capable of brushing their teeth independently, although they
still need some supervision and guidance. They can also wash their face and hands with less assistance.
Organisational skills: Around 4 to 5 years old, children begin to develop the ability to tidy up toys and belongings. They can start understanding the concept of keeping things organised.
ACTIVITY IDEAS
• Allow your child to choose their clothes and practice dressing themselves.
• Create a visual routine chart with pictures for brushing teeth, washing face, and using the toilet.
• Teach basic organisational skills by involving your child in cleaning up their toys and putting away belongings after playtime.
Age 7-10 Years REFINING SKILLS FOR INDEPENDENCE
During this stage, children continue to refine their self-help and functional skills, becoming more responsible for their daily tasks.
SELF-HELP MILESTONES
Personal care: They can brush their hair, tie shoelaces, and button or zip up their clothes.
Mealtime skills: They can help with simple meal preparation, such as spreading butter on bread or pouring drinks.
Time management: They begin to understand and follow daily routines and schedules.
ACTIVITY IDEAS
• Encourage your child to take care of their personal hygiene independently, including brushing their hair and tying shoelaces.
• Involve them in age-appropriate meal preparation tasks, such as setting the table or mixing ingredients.
• Introduce a visual schedule or use a timer to help your child understand and manage their daily routines and responsibilities.
Age 11-14 Years
BUILDING INDEPENDENCE AND LIFE SKILLS
During adolescence, children develop more complex self-help and functional skills necessary for transitioning into adulthood.
SELF-HELP MILESTONES
Personal care: They can independently shower, groom themselves, and manage their personal hygiene.
Home management: They can assist with household chores like laundry, cleaning, and cooking simple meals.
Time management: They can independently manage their schedules, including completing homework and keeping track of appointments.
ACTIVITY IDEAS
• Encourage your child to take responsibility for their personal care routine, including showering, using deodorant, and managing their grooming needs.
• Teach them essential home management skills, such as doing laundry, tidying their room, and preparing simple meals.
• Help your child develop time management skills by using a planner or digital calendar and assisting them in prioritising tasks and activities.
By understanding the milestones for self-help and functional skills at different ages, parents can actively support their child’s development and promote independence. Incorporating simple activities into daily routines can provide valuable opportunities for children to practice and master these essential skills. However, it is important to notice that every child develops at their own pace, so it’s important to remember that these milestones are general guidelines. Some children may reach these skills earlier or later than others. Seeking guidance from a qualified occupational therapist can be beneficial in addressing specific challenges or concerns along the way.
By Occupational Therapy Helping Children. Occupational Therapy
Helping Children is a specialist team of occupational therapists in Sydney’s Frenchs Forrest dedicated to helping children thrive, offering one on one supports, as well as parent workshops and teacher training sessions. occupationaltherapy.com.au
TAKE YOUR TIME
TAKE YOUR TIME
When a child is not meeting their motor milestones like their peers, is slow in their development, or has been diagnosed with a disability – it’s only natural to feel eager to get in and try to help your child as quickly as possible. You want to see them improve, to progress, to catch up, to be the best they can be. But it is important to know that - as much as you might want to race into helping your child and help them improve - there are some things that are worth taking your time over:
Take your time learning about and understanding ALL your child’s needs
All areas of your child’s development are interconnected, across all the different areas of their development – movement, learning, communication, social skills, self-care, etc. It can be easy to focus on the one area that is the most obvious difficulty your child is having, but miss other areas. Understanding the breadth of your child’s needs will allow you to be informed, prepared, and empowered to help your child be the best they can be across all areas of their life.
Take your time learning to be understanding of your child’s future
Receiving a diagnosis can be an overwhelming time for any parent. Give yourself and your family time to understand and digest the information you have been given, mourn or grieve the life you had previously imagined for your child, and start to imagine and dream about what a good life for your child could look like.
suit
your child and family
Try to find a good match between your child and family, and the therapists and service providers you engage with. Consider your child’s and family’s needs, your values and approach to life, and whether that matches with what and how a service provider can help you.
sometimes hundreds and thousands of repetitions. However, even though it might feel like your child is not progressing because they are continuing to practice the same skill – achieving mastery of a movement or a skill is actually preparing them and giving them a solid foundation from which they can learn the next, more complex movement or skill. Your child will develop new skills by layering them on top of skills they have already mastered.
Give your child the time and opportunity to have a go at something by themselves (even if they are struggling) before jumping in to help them
How does the saying go? ‘You can’t pour from an empty cup’. You have to look after yourself first in order to have something to offer others. Make sure you take the time to pursue your own interests, look after your own health and wellbeing, and make sure your own cup is not empty.
Take your time to celebrate the successes and enjoy the moments
Allow your child’s therapists time to get to know your child
Understanding a child – their personality, quirks, interests, strengths, abilities and challenges – can take time. If your child’s therapist can develop a deep understanding of your child – in both the initial assessment and over time – the therapist will more confidently be able to pinpoint the best way to help your child.
Similarly, allow your child time to get to know their therapists and support providers
Therapy is a collaborative process, with the therapist and the child working together. Therapy should never be done TO your child; it should always be done WITH your child. Your child will be a more willing and happy active participant in therapy if they have had time to get to know the therapist and have built their own level of trust and confidence in them.
It is important for your child to learn to become as independent as possible, to learn to ask for help when they need it, and to develop resilience and to learn to cope with setbacks and failures in life (just as any of us). It is by giving them time to try something by themselves that you can help them to develop these important life skills.
Give your child time to explore their passions
What does your child like, what are they most interested in, what activities do they love to do? Let them pursue these interests and passions and let them discover what they are good at and what they can contribute to in their life. This will help them to develop their sense of self and sense of identity. Your child is defined by their interests, passions and relationships, not by their disability.
Take time to spend quality time with your child, and with your family
Life gets busy, but always ensure you and your child find time to find joy in the every day, and spend time with the people who mean the most to you.
Find joy in the small moments, find excitement in the achievement of both ‘millistones’ and milestones, and enjoy your time and the people you spend your time with. This is probably a lesson for all of us - regardless of if we have kids or don’t have kids, or whether we have abilities or disabilities.
At Move and Play, we believe in the importance of taking time to get to know the children we work with and their families, to understand their dreams and hopes for their child and family, and helping parents and families to take their time to help their child the best they possibly can. In our fast-paced world, what else do you think it is important to take your time with?
Written by Emily HaylesPhysiotherapist and Owner – Move & Play Paediatric Therapy, and author
of ‘Braver than you think: How to help your child with a disability live their best life’. moveandplay.com.au
An important factor when choosing your AT provider is how well they support you with any after sales care you need. Astris PME has you covered!
Our Programmed Maintenance Plan helps prevent small issues from escalating, ensuring your equipment performs optimally and remains safe. With mobile service technicians across multiple locations, we offer on-site repairs, maintenance, and adjustments. Our goal is to safeguard your equipment’s lifespan and keep you mobile. Trust Astris PME for exceptional after-sales care!
Trikes & Bikes
CAN SHAPE POSITIVE OUTCOMES for children How KEY WORKERS
Here at Leap in! HQ we often hear from parents that managing multiple providers, therapies and appointments for their child can be stressful.
But there is a way to manage supports and services for young children that’s less hectic for families and easier for the child. It’s called the key worker model and involves having one primary contact for your child’s development.
The key worker model is not a new concept to the NDIS but it’s not very well known. We look at what it is, the benefits and how to create an effective support team for your child and family.
WHAT IS THE KEY WORKER MODEL?
The key worker model involves choosing one primary therapist to coordinate all your child’s therapies, known as a “key worker”. A key worker is a highly qualified early childhood intervention professional who leads a team of providers and family members to support a child’s development.
Your key worker will understand your child and family’s needs, routines, relationships, interests and values. They
Benefits of the key worker approach
HAVING A KEY WORKER CAN MAKE GETTING SUPPORT FOR YOUR CHILD EASIER AND FREE UP FAMILY TIME. HERE ARE SOME OF THE BENEFITS.
One point of contact: The family or primary carer has one point of contact for organising appointments, assessments, therapies, etc. which can save time and energy.
It’s family-centred: The key worker recognises that the family knows the child best. They work with the family and other team members to implement meaningful strategies for everyday routines and activities.
Child-focused: Therapy sessions can be provided in a more natural location for the child, such as at home rather than in a therapy centre.
A consistent approach: The key worker and team members communicate and collaborate for the child’s benefit, focusing on functional goals, sharing knowledge and coordinating appointments.
Centralised information: Information provided is more relevant to the child and family’s situation. Fewer gaps in service delivery: The key worker ensures continuity of care and addresses any potential gaps in service delivery before they occur.
use this knowledge and information to work with the family on strategies for the child to reach their goals at home, in education and the community.
Key workers are often employed by early childhood allied health and therapy services.
They build a team around the child, including family and other early childhood and health professionals.
Team members such as educators, psychologists, social workers, speech pathologists and occupational therapists provide discipline-specific support where needed. The key worker liaises with other care providers to share knowledge, develop schedules and help resolve any challenges.
QUALIFICATIONS AND SKILLS FOR KEY WORKERS
A key worker is an early childhood special educator or relevant allied health practitioner such as a speech pathologist, occupational therapist, physiologist or paediatric professional. They should be degree qualified and have extensive experience in early childhood intervention.
Other essential skills are experience supporting children and young families, excellent communication skills and the ability to lead a multidisciplinary team of people.
The key worker in the team can change at any time to meet the child’s and family’s specific needs.
CREATING AN EFFECTIVE TEAM FOR YOUR CHILD
If you think your child could benefit from a key worker and they don’t have funding in their plan, speak to your early childhood partner, LAC or NDIS planner.
NDIS funding for a key worker appears under Capacity Building supports in an NDIS Plan. It is a stated support, meaning it needs to be specifically allocated and listed and the funds can’t be used for any other purpose. It will be labelled as “early intervention (children under 9yrs)” and indicates that the funding is for a “key worker model”. Children under 9 are eligible for this funding under the early childhood approach.
If your child has this funding in their NDIS Plan and you would like to access the support of a key worker, speak to an allied health or early childhood provider to see if they have specialists in their team who are qualified in this area.
Given that a range of specialists can offer this service you might decide to
The role of key workers in the NDIS early childhood approach
• Acts as a team leader to ensure the team works together for the child’s benefit. For example, if your key worker is an occupational therapist, they may regularly communicate with other supporting therapists such as a speech therapist and physiotherapist.
• Provides advice and strategies to build a strength-based approach to everyday tasks and activities
• Teaches skills and builds capacity for caregivers and family members to support the child in their own environment
• Coordinates appointments to reduce family stress and create better opportunities for social and family time in the child’s schedule
• Coordinates communication and the sharing of knowledge and skills between the team.
choose a key worker whose professional background aligns with your child’s goals. For example, a physiotherapist may be a great choice if you child has goals relating to motor skills or balance.
By Leap in!
If you’re looking for an allied health or early childhood provider in your area, Leap in! has an extensive Provider Network Directory that allows you to filter by location, service type and more. Visit Leapin.com.au to find out how they can assist you and your family.
Care, Compassion and Understanding
Serving our Customers with Integrity, Respect and Expertise
FOR AUTISTIC CHILDREN PLAY-BASED LEARNING The power of PLAY-BASED LEARNING
Play helps all children learn and grow, regardless of their background, interests or abilities. For autistic children, play and play-based learning can be an enjoyable and effective way to teach new skills, improve their confidence and encourage acceptance and belonging among their peers.
WHAT IS PLAY-BASED LEARNING?
Play is at the core of the growth and development of young children and is one of the most effective teaching tools parents and carers have. Play is not only fun for children; it helps them build essential life skills, including creativity, imagination, and curiosity about the world and the people around them. Children can discover information, practise new skills, and build resilience in a safe and
supportive environment through playing on their own and with their families, peers and educators.
Play-based learning should involve a few key elements to be effective for autistic children. Consider your child’s strengths and abilities; play-based learning should meet them at their developmental stage while encouraging them to work towards their developmental goals. If your child receives early intervention or other professional support, these goals should be the same or similar to those addressed by the child’s therapy team.
Ideally, families, therapists, and educators (where applicable) will approach play-based learning similarly. Autistic children thrive on consistency and predictability, so using similar activities,
rules, and rewards in activities at home, in therapy, and education settings is essential. Consider organising a meeting between you and any professionals supporting your child, including therapists and educators, to develop guidelines around play-based learning that are easy to implement and follow for everyone involved.
Using your child’s special interests is another important factor to consider in play-based learning. For example, if your child loves dinosaurs, they could practise turn-taking by sharing one of their dinosaur toys with their siblings or peers, with supervision from an adult, such as yourself or their teacher. During play, the adult should give plenty of positive feedback in a way the child will understand, for example, using verbal praise that specifies how the child is succeeding (‘I am so impressed that you let your brother have a go holding your toy. That is very good!’)
learning, modelling should reflect your child’s learning and development goals with their strengths, abilities and support needs. Again, reflect on the skills and behaviours addressed by therapists or educators supporting your child and communicate with these professionals to determine the best ways to address these goals at home.
WHAT IF NOTHING IS WORKING?
Involving all senses can also benefit autistic children, helping them navigate sensory sensitivities safely.
It’s important to remember that modelling isn’t forcing or demanding a child to play or engage in a specific way; instead, it aims to assist children struggling with a skill or task to build their confidence and independence. Ultimately, children should be encouraged to play, engage, learn and regulate in a way that makes them feel comfortable as long as the people around them are safe. When modelling, instant success or improvement should never be expected. The focus must remain on guiding and supporting children without pressure, allowing them to learn, practise and grow at their own pace.
Sometimes, despite our best efforts, playbased learning might not be helping an autistic child’s learning and development as you hoped. For parents and carers, this can be disheartening or even anxietyinducing, as you naturally worry about why your child is not progressing or finding certain skills or situations easier to navigate. Like any new skill or process, it is very rare to find success the first time around. Play-based learning requires constant adjustments to reflect the child’s changing needs, preferences and goals. A flexible approach to play, along with plenty of patience and creativity, is essential.
To be successful, play-based learning must be child-led and adult-supported, incorporating a child’s interests while reflecting their strengths and abilities that encourage them to build skills and ideas to become lifelong learners and active participants in the world around them.
HOW MODELLING HELPS AUTISTIC CHILDREN
Another way many parents and carers teach through play, often without realising it, is modelling. By providing a visual or physical demonstration of how to play, engage or perform a skill, parents and carers can support their autistic children’s learning and development in a way that is clear and captures their attention.
As with other forms of play-based
A great example of modelling in action is the one mentioned above, where using a child’s toy dinosaur can help them practise turn-taking. Another great strategy is using ‘people games’; this includes games such as hide-and-seek, tag, or singing nursery rhymes in a group. Involving all senses can also benefit autistic children, helping them navigate sensory sensitivities safely.
Consider taking a step back and reflecting on what your child enjoys and responds well to and whether this is reflected in your approach. Is there something that causes your child to lose interest or become upset or confused during play? Are sensory stimuli triggering or engaging your child during play (e.g., a toy with flashing lights)? Are there toys, games or situations your child is drawn towards or enjoys doing often? Are the goals you are trying to address during play too ambitious or complex?
If your child receives support from therapists or educators, raise your concerns with these professionals. Their insights can help you identify what is not working and begin addressing any challenges through an evidence-based approach in therapy, education and at home.
Finally, remember not to be too hard on yourself. Look after yourself consistently and take a break when things become overwhelming for your and your child’s well-being. Focus on how far you have come and how the little wins are pretty big when supporting your autistic child’s learning and growth.
For more free, evidence-based autism information, visit autismawareness.com.au.
Toilet Training
The most vital part of ensuring toilet training success is working out whether your child is ready. For some children this is obvious as they are communicating their interest, asking to go, or making clear that they no longer wish to wear nappies. For many children with disability however, the usual checklist of readiness such as
• Are they bothered by being wet or dirty?
• Do they communicate when they need to go?
& disability
Toilet training is a daunting prospect for many parents, and it is an area of development where the voice of societal pressure is louder than in lots of others. For parents whose child has additional needs, this process can often feel impossible. Whether the need is developmental or medical and whether the disability is physical or invisible, there are challenges faced that other children may not have to contend with.
• Can they pull their pants up and down?
• Do they have the body flexibility to wipe themselves?
may not be relevant due to their stage of development and skills. This doesn’t mean that they aren’t ready but rather that it needs to be thought about and introduced in a different way. Here are some things to think about when considering toilet training for your child.
COMMUNICATION
Communicating about the toilet is something we do with children from the earliest days when we change their nappies and refer to what is inside! For children who are hearing impaired or who are unable to communicate verbally, this context is just as important but needs to be done in a different way. Before toilet training, it is helpful to make sure that any AAC method that is being used has all the words you would need during toilet training and that your child understands what means what. This includes them needing to go, letting you know they have had an accident, wiping, flushing, and washing hands! It is imperative that everyone working with them knows how to access this vocabulary for them and to help them be as independent with it as possible.
PROVIDING CONSISTENCY
The predictable steps of going to the toilet are something which can help when toilet training a child with additional needs. The more they understand the steps of the process, how often they go, where to sit, how to go, how to wipe and how to flush, the easier it will be for you to not feel frustrated when steps are missed. By breaking the process down for children, it also allows caregivers and therapists the opportunity to see which steps they are struggling with and provide additional
support. It is important that once you start, all carers take a similar approach and that your child can feel that this is now a new stage which is being enforced on a consistent basis.
INTEROCEPTION
For many children with SPD or low muscle tone, it is a struggle for them to know when they need the toilet. This process is known as interoception and it means being aware of what is happening inside your body. This includes being hungry, tired, feeling unwell and of course having a full bowel or bladder! This is often an obstacle to toilet training and working with an OT can be very helpful. Other strategies to consider would be taking your child to the toilet at set times to start to familiarise them with the process and start to talk to them about what they can feel in their tummies. Over time, the aim is for them to connect their successes to what they felt at that time and then begin to identify that feeling as meaning that they need to go to the bathroom.
MOBILITY AND COMFORT
is often that their child isn’t ready yet. However, if it can be identified why and in what areas the child needs help and where they can be independent, whilst toilet training may look different, it can occur beautifully with adaptations just as your child may need in other areas of their life. It is important to work with your child’s therapy team to ensure the set up of the bathroom is conducive to allowing them to toilet independently. This means thinking about whether a particular seat is required or steps or something to hold on to to give additional physical support.
MEDICAL HISTORY
Going to the toilet independently (the aim of toilet training) requires a level of mobility, body and brain coordination and flexibility eg: for wiping. When someone is limited in these areas, it can be disheartening for parents and their instinct
One of the most common side effects to toilet training children is stool withholding and constipation! For children with additional needs who may have a history of gut or digestion issues, this should be taken into account. If you are looking to remove nappies entirely and your child has a history of constipation and is already on medication, the dose should be discussed with your paediatrician. Hopefully this can avoid causing any pain to your child or accidents that may be able to be avoided.
Every child is unique and when it comes to toilet training, no one size fits all. This is even truer when a child has additional needs that need to be considered. The key is often managing your own expectations and having a plan in place to make sure the right supports are there before you begin. Toilet training is a process and progress and regression mixed together is normal and to be expected given the complexity of what we are asking our incredible children to learn.
By
Ariella Lew. Ariella Lew is the founder and director of Kids on Track Consultancy. Kids on Track consults with families, schools and allied health professionals around issues including but not limited to: behaviour support, family dynamics and parenting, disability, NDIS access and support coordinations, chronic conditions and more. kidsontrackconsultancy.com; admin@kidsontrackconsultancy.com; 0416 612 676
Ask a PLAN MANAGER! PLAN MANAGER!
The Early Childhood Approach for children under 9
It’s not surprising that parents of children with disability or developmental delay often feel confused about the NDIS and where to start.
WHAT YOU NEED TO KNOW ABOUT THE EARLY CHILDHOOD APPROACH
• Children don’t need to be eligible for the NDIS to get assistance
But did you know that you don’t have to apply to the NDIS or have a diagnosis to get help for your child? The Early Childhood Approach can provide supports for some children without the need to be on the NDIS.
The Crew at Leap in! plan management has provided a helpful guide on how you may be able to get assistance for your child.
WHAT TO DO IF YOU HAVE CONCERNS ABOUT YOUR CHILD’S DEVELOPMENT
The Early Childhood Approach (ECA) provides support to children to get the best possible start in life. It’s for children under 6 with developmental delay or children under 9 with disability.
If you have concerns about your child’s development, speak with a health or education professional such as your GP, occupational therapist, child health care nurse or early childhood educator.
They can connect you with an Early Childhood Partner (ECP), an organisation with experience and clinical expertise working with young children with developmental concerns or disability and their families.
Do you have a question you’d like us to answer in the next edition of Source Kids? We’d love to hear from you. Send your question to mystory@leapin.com.au
• It may include community/mainstream (non-NDIS) supports, NDIS funded supports or a combination of both
• Children who don’t fully meet the definition of developmental delay but have developmental concerns can also receive support
• No referral or diagnosis is needed
• You can contact an ECP yourself
• Some families will be assisted with an NDIS access request, depending on individual needs.
SUPPORTING CHILDREN AND FAMILIES
The Early Childhood Approach can provide supports in two ways.
1. Early Connections: Connect families with the right supports and services to build on their strengths. Early Connections are for children younger than 9 and their families. Children do not have to have a diagnosis or be eligible for the NDIS to access Early Connections. 2. NDIS early childhood supports: Early childhood intervention supports under the NDIS, provided through an NDIS Plan. This requires a diagnosis and the child must meet NDIS eligibility requirements.
EARLY CHILDHOOD PARTNERS
Early Childhood Partners (ECPs) are local professional organisations the NDIS funds to deliver the Early Childhood Approach. They work with both children and their families.
Providing support as early as possible in a child’s development is the ideal way to ensure they achieve the best possible outcomes throughout their life.
ECP teams often include occupational therapists, psychologists, physiotherapists, speech therapists and other relevant allied health professionals. Early Childhood Partners seek to understand a child’s needs and will provide connections to supports and services that best meet their individual needs and goals.
WHAT TO EXPECT FROM AN EARLY CHILDHOOD PARTNER
An ECP will initially meet with you and your family and chat about:
• Any concerns about your child’s development
• Priorities and goals for the child
• How you currently support your child and where more support may be needed
• Information from available screening tools, assessments or reports
• Any early childhood supports currently being received and how well they meet your needs.
An ECP uses observation in familiar settings to understand how the child plays, communicates and helps take care of themselves. They may also use assessment tools to learn more about the child’s development.
This information is used to assess the child’s support needs and determine the next steps.
GETTING YOUR CHILD’S FIRST NDIS PLAN IN PLACE.
If your child has been granted access to the NDIS, you will work with your Early Childhood Partner to develop their NDIS Plan. This often comes with a whole new set of questions.
The team at Leap in! can help with this part of the process. We can take you through steps and suggestions for your NDIS Plan meeting like:
• Start to prepare early and give yourself time to think big about what your child would like to achieve
• Make notes and keep a list of examples in the Leap in! app so you have one easy and central place for all of your thoughts and information
• Encourage your key family, friends and/ or support workers to join the app and connect with you so they can help with additional information
• Be ready to be as specific as possible to get exactly what you need from your meeting.
CONNI KIDS TACKERS
Gender-neutral “pull-up” style training transition underwear designed to absorb and protect. These slim, fashionable and discreet undies designed for ‘little’ accidents, are helpful during daytime toilet training, transitioning from pull-ups and everything else in between. They feature Conni's four-layer waterproof protection from the front waistband to the back waistband. RRP $69 shop.conni.com.au
Lightweight, machine washable, tumble dryer safe.
FLUSH with SUCCESS
If toilet training is driving you potty (see what we did there!?), these products to assist might be just what you need.
PJAMA BEDWETTING TREATMENT KIT
This starter kit from Pjama is a complete package for tackling bedwetting. The Pjama Bedwetting Alarm connects to any smartphone and has a companion app to track progress. To use, simply connect the Pjama Sensor to 2 small buttons by the waist of the Pjama Treatment Briefs Underwear which in turn wirelessly communicates with the bedwetting alarm unit or your smartphone. The kit contains: 2 x Pjama Treatment Unisex Briefs Underwear, 1 x Pjama Bedwetting Alarm Sensor, 1 x Pjama Bedwetting Alarm Speaker, DryGuardians Bedwetting Alarm App. RRP $227 pjama.com.au
MAGNETIC MOVES TOILET CHART
Magnetic Moves - My Toilet Chart offers a fabulous positive parenting tool to help make toilet training an easy transition for both parents and children.
The child can move the goal tile down once the task is completed and receive a star for each goal successfully accomplished. RRP $33 sensorytools.net
BROLLY SHEETS DAYTIME TOILET TRAINING ACADEMY
The team at Brolly Sheets know a thing or two about toilet training and their Toilet Training Academy is designed to help parents tackle toilet training with an email every day to help make the process as simple as possible! There’s a closed Facebook group, plus an EXCLUSIVE discount code so you can stock up on the toilet training essentials! RRP: $9.95 brollysheets.com.au
SPECIAL TOMATO POTTY SEAT
The Special Tomato Potty Seat provides convenient, familiar, comfort with soft, comfortable support. This portable seat is a revolutionary toileting potty system that works in multiple settings. Whether it stays at home, goes on vacation, a relative’s home, or sent on school field trips, the easy-to-use features and the portability make it a great toileting solution! RRP $444 dejay.com.au
WOBL VIBRATING REMINDER WATCH
Help your child remember to visit the toilet and avoid accidents. With the WobL Vibrating Reminder Watch you can set discreet vibrating reminders for your child without the worry of interrupting others. Made with a small and comfortable Velcro wristband that fits toddlers through to small adults. Choose from pink, black, purple or blue! RRP: $64.99 moosebaby.com.au
Call to book your FREE Unpack Your Plan Session with Australia’s leading NDIS plan manager!
In your session we’ll:
• help you understand the funding in your NDIS plan
• explain all the budget categories
• discuss the kinds of supports you can use
• share tips and tricks about how the NDIS works.
With us, it’s all about you.
We support you to navigate the NDIS with confidence, armed with the knowledge you need to get the most from your child’s plan.
And, we take care of NDIS admin and paying invoices to give you more time to focus on the things that matter to you and your family.
Call today to make your booking or scan the QR code to register your interest and we’ll call you!
We’re proud to partner with Source Kids.
Directly employ people you already know and trust as your Support Workers.
Since 2011, we’ve helped thousands of Aussies employ people from their local community as their Support Workers.
We are Australia’s only Direct Employ service that enables you to:
Employ people suitable for your needs
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The ON TIME Assitive Technology framework promotes "all children have the right to be mobile; to explore, engage in relationships, and develop agency to co-create their lives" (Sabet et al., 2022). Sunrise Medical encourages the incorporation of AT to promote all types of self-initiated movement and participation.
Noah and Ash
Squiggles+
Primo
POWER UP
A customised wheelchair power add-on has given young Pippa a major boost to her confidence and independence, explains Katherine Granich.
Kids love to go fast, and our youngsters who use mobility aids are no exception. In the suburbs of Wollongong, nineyear-old Pippa is embracing the thrill of speed and newfound independence –and as far as her mum Sian is concerned, there’s no going back.
“We thought Pippa would have more freedom at home, with being able to travel to the local park, go to the bike track, and get around our property better,” Sian says. “But now her wheelchair has a power add-on, she’s unstoppable!”
Over the summer, Pippa’s wheelchair was fitted with the Empluse F55
Wheelchair Power Add-On from Dejay Medical. It soon proved its worth when the family went away on their annual camping trip. “On previous trips, Pippa had to rely on other family members to push her around the campsite,” Sian explains.
“This year Pippa was able to drive herself around, play Spotlight with the kids in the caravan park, and visit friends in other campsites. One friend even hopped on a skateboard and held on to the back of Pippa’s chair while they rode around the bike track!”
MOTORING TOWARDS INDEPENDENCE
Explained simply, the F55 is a power attachment that clips on to the front of Pippa’s wheelchair and allows it to function similarly to an electric bike. Pippa can already ride a bike really well, so when the family learned about the F55, something clicked. “I saw an adult using one, and questioned whether something like it would be good for Pippa,” Sian says. “When Dejay brought the F55 over for Pippa to trial, she took to it instantly.”
The F55 has not only revolutionised Pippa’s mobility, it’s also given her a sense of autonomy and independence. For example, it was Pippa’s own idea to take the power assist to school with her. “In the past, when I dropped her off at school, I’d need to wheel her into the classroom,” says Sian. “Now I get her out of the car, pop the power assist on to her wheelchair, and off she goes!”
The F55 is user-friendly and easy to attach to Pippa’s wheelchair, so she can instruct her teacher aide on how to do it –and as she grows and gains strength, she’ll be able to attach it independently herself in future. It’s also compact and easy to tote around in the car. “I can’t imagine it not being with us everywhere we go,” says Sian.
A TEAM EFFORT
Pippa’s parents, along with her occupational therapist, worked with Lena from Dejay Medical to trial the F55 and ensure it was the right piece of equipment for Pippa. “Lena has been outstanding,” Sian says. “Every facet of the experience has just been handled so well. Lena has formed such a lovely rapport with Pippa, getting her input on the process, asking her opinion about the equipment, and going out of her way to make sure Pip was fully
comfortable and confident using the F55 during the trial and when it was time for Pippa to have her own one.”
Pippa’s family wanted a nonpermanent power assist for her wheelchair because they wanted her to be able to self-propel as much as possible, not to mention the complicated upheaval of needing to convert their vehicle to accommodate a larger power chair. “We wanted something more versatile, and the F55 fit the bill,” Sian says.
VERSATILITY PLUS
With sturdy, off-road wheels, the F55 is compatible with most fixed-front wheelchairs, and with two independent brake systems, it’s super safe. The battery has up to 25km of range, which is perfect for Pippa’s everyday needs, and its intelligent battery management system ensures improved charging cycles and lifetime. And it’s easy to dock and undock, meaning Pippa can swap between using her wheelchair on manual or motorised mode quite easily.
The F55’s portability is something that Sian says is really helpful for their family. “When Pippa has hospital appointments, I’ve always needed to bring along a support person to help me push Pip, carry her equipment, and manage getting from car to clinic,” Sian explains. “Now Pippa can propel herself, and I can carry what we need to bring.”
With the F55, Pippa can also manoeuvre her wheelchair around on family outings herself, which gives her more autonomy and freedom. “When we’re shopping at the mall, for example, she can go look at what she’s interested in, instead of me trying to show her what I think she wants. It really helps her to feel more independent.”
COOLEST KID ON WHEELS
The F55’s sleek, stylish design means it looks cool – an automatic box-tick for any kid using mobility aids. “All the kids who see Pippa using her ‘motor’, as she calls it, want to have a go,” Sian smiles.
One place where Pippa can show off her power assist chair is at Frame Running Wollongong (framerunningwollongong. org.au), the local frame running club she attends on Monday afternoons. Pippa turns up driving her F55, then swaps over to a frame runner – a specialised threewheeled running frame without pedals.
Co-founded by her mum Sian, this nonprofit community activity is the only provider of frame running in the Illawarra Region, and is a growing sport for disabled kids around Australia.
With around 30 kids attending alongside Pippa each week, it’s a great way to get kids enjoying fitness as well as expanding their mobility skills.
“Through frame running, Pippa’s gone
from being able to take only a few steps to now being able to run for an hour,” Sian says.
Dejay is integral to the sport of frame running in Australia, providing the frame runners the children use as well as supporting the sport’s development nationwide. With over 35 years of experience manufacturing wheelchairs and custom components, Dejay truly knows how to meet the mobility needs of kids like Pippa – and their families.
At the end of the frame running session, Pippa easily transfers back into her power assist chair and heads to the car to go home for dinner. As Sian says, the F55 has given Pippa a self-esteem boost alongside increased freedom. “It’s just changed Pippa’s life.”
By Katherine Granich
A free trial can be organised by emailing therapy@dejay.com.au. The full range of power add-ons for manual wheelchairs can be seen at dejay.com.au
YFOR CHILDREN & HOW A DIETICIAN CAN HELP NUTRITIONAL CONCERNS COMMON CONCERNS NUTRITIONAL COMMON
The paediatric dieticians at Active Ability help us to understand some common nutritional concerns for children in Australia and provide helpful insights for managing them.
ou know a healthy diet is essential for children to get the nutrients they need for healthy growth and development. But all the information out there about diet and health can be confusing, making it hard to know what advice to follow, especially if your child has a disability or medical condition. The good news is that even small dietary changes can make a big difference to your child’s health. And making these changes might be easier than you think.
Children in Australia may face a range of dietary challenges that can impact their growth, development, and overall quality of life. Some of the most common nutritional concerns in children include:
Inadequate intake of fruits and vegetables
Many Australian children and young people are not eating the recommended serves of vegetables and fruits each day. Fruits and vegetables contain fibre, which is important for healthy immune and digestive system function. Children who don’t eat enough vegetables and fruits (along with whole grains) may not get enough fibre, which can lead to constipation. Lack of fibre is also linked to type 2 diabetes and excess weight gain,
and increased risk of bowel cancers and heart disease in later life.
Vegetables and fruits also contain many important vitamins and minerals that support good health, including vitamin C, which the body needs to absorb iron, heal wounds, and overcome infections.
Allergies and intolerances
In Australia, around one in ten children has a food allergy, while up to one in four people has a food intolerance. Unless managed well, eating a restricted diet to manage food allergies or intolerances can lead to nutrient deficiencies. For example, avoiding dairy to manage lactose intolerance could lead to a lack of calcium – an essential nutrient for strong bones and healthy teeth.
Too many ‘sometimes’ foods
The Australian Dietary Guidelines advise that people of all ages, including children, limit eating foods that contain saturated fat, added salt, added sugars and alcohol[v]. These are known as ‘discretionary’ foods. They include processed foods and treat foods like chips, lollies, cakes, chocolates, biscuits and many common take-away foods, such as burgers, pizzas and deep-fried foods. They also include sports drinks, fruit juice,
cordial and soft drinks.
These foods and drinks are low in nutrients and can contribute to poor health, tooth decay and excess weight gain. They should only be eaten on special occasions and in limited amounts. However, many Australian children are eating them regularly.
Restricted and fad diets
Older children and adolescents sometimes choose to follow specific or fad diets or restrict some food groups. This may lead to nutrient deficiencies that adversely impact growth and development. For example, an adolescent who opts for a vegan diet is at risk of iron and calcium deficiency. Without input from a dietary professional, following such a diet could impact their health, energy levels, and physical and cognitive development.
Weight management issues
Children who are above or below a healthy weight for their age can be deficient in various nutrients because their diet is lacking in healthy foods. Good nutrition can help children stay within a healthy weight range as they grow. This can help them have better health now and in adulthood, and also lower their risk of many health conditions.
NUTRITIONAL CONCERNS IN CHILDREN WITH DISABILITY
Children with disability can be especially prone to nutritional concerns. Nutritional issues in children with disabilities may be related to:
• sensory challenges – children with conditions such as autism spectrum disorder may have sensory sensitivities and struggle with certain food textures, smells, and flavours.
• medical conditions – children with disability may have medical conditions that affect their nutritional requirements.
• digestive issues – gastrointestinal issues such as constipation, coeliac disease, and gastroesophageal reflux can be more prevalent among children with disabilities, affecting nutrient absorption.
• medications – some medicines can affect appetite and nutrient absorption, which can lead to nutritional deficiencies and weight management issues.
• dietary habits – disability can impact an individual’s ability to make healthy food choices. For example, research has shown people with intellectual disability tend to eat larger portions, more ‘sometimes’ foods, and fewer vegetables and fruits.
• lack of nutrition knowledge and food preparation/cooking skills – children and adolescents with disability may have a limited understanding of nutrition and face barriers to building skills in buying and preparing healthy food.
• physical inactivity – physical or intellectual disability can pose barriers to getting enough physical activity for optimal health and wellbeing. Lack of physical activity can further complicate issues related to poor nutrition, such as excess weight gain and heightened risk of chronic health conditions such as type 2 diabetes and heart disease.
Good nutrition can help children stay within a healthy weight range as they grow. This can help them have better health now and in adulthood, and also lower their risk of many health conditions.
How dietitians support healthy growth and development in children
When it comes to addressing the nutritional needs of children with disability, NDIS-funded dietetic services can be invaluable. Dietitians are university qualified health professionals with extensive training in children’s nutrition. They have the expertise to create tailored strategies that ensure children get the nutrients they need for healthy growth and development.
Here’s how professional dietitians, like the paediatric dietitians at Active Ability, can make a positive impact.
Comprehensive assessment
The first step in managing nutritional issues involves conducting a thorough assessment of your child’s current dietary habits, preferences, medical history, and any specific nutritional concerns. This provides the foundation for developing an individualised plan.
Designing tailored meal plans
Based on this assessment, your dietitian will develop an individualised meal plan that considers your child’s health, age, dietary requirements, sensory sensitivities, and any existing deficiencies. These plans help ensure children get the necessary nutrients while accommodating their preferences and challenges.
Nutrient optimisation
Dietitians focus on optimising nutrient intake by strategically selecting foods rich in essential vitamins, minerals, and macronutrients. They consider factors such as the child’s growth rate, energy expenditure, and any medications that might impact nutrient absorption.
If your child has any nutrient deficiencies, your dietitian may recommend appropriate supplementation. For instance, if your child is deficient in iron, your dietitian may suggest iron-rich foods and supplements to address the deficiency and prevent related health issues.
Managing sensory challenges
Children with disability often experience sensory issues that affect their food choices. Dietitians employ creative strategies to modify the texture, taste, and presentation of foods to align with the child’s sensory preferences, while still providing the necessary nutrients.
STRATEGIES DIETITIANS USE TO SUPPORT CHILDREN’S NUTRITIONAL NEEDS
Paediatric dietitians use a range of strategies to help children reach their goals. These include:
1. TEXTURE MODIFICATION
If your child has sensory issues with certain foods, your dietitian might provide advice for modifying its texture or consistency. For example, they might suggest pureeing vegetables into sauces or cutting them in small pieces you can add to soups. Or you might be able to blend fruit into smoothies. These strategies can improve your child’s nutrient intake without triggering sensory challenges.
2. VARIED PRESENTATION
Dietitians sometimes recommend creative ways to present nutrient-rich foods in an appealing manner. For example, they might suggest you make a smiling face out of colourful vegetables, or present fruits and vegetables on their favourite plate. This can encourage children to try new foods.
3. GRADUAL EXPOSURE
Your dietitian knows introducing new foods can be challenging, especially if your child is a picky eater or fussy feeder. They can design a graded exposure approach, introducing your child to unfamiliar foods in a progressive manner, starting with small portions. This can foster a positive experience with trying new foods.
Educating support people
Dietitians work closely with parents, carers and support workers to educate them about the child’s nutritional needs and the importance of a healthy diet. This education empowers parents to make informed decisions that support their child’s wellbeing.
Practical training
They might also provide practical training for your child and family to build capacity for choosing and preparing healthy foods. For example, they might teach you how to read food labels, or to cook using healthier techniques such as steaming or grilling.
Monitoring and adjustment
Your dietitian will monitor your child’s progress regularly and adjust their meal plan as needed. They will consider your child’s growth, changing health needs, and feedback from your family to ensure continued success.
4. FAMILY INVOLVEMENT
Dietitians involve the entire family to create a supportive environment for making dietary changes. When family members participate, children feel encouraged to explore new foods and develop healthier eating habits. For example, your dietitian might advise allowing each family member to choose which meal you have one night per week or choosing a new food to try together.
5. MEALTIME ADVICE
Family mealtime challenges can be common if your child is a picky eater or has chosen to follow restrictive eating patterns. Your dietitian can help you find ways to make mealtimes smoother and easier. Creating a calm and comfortable eating environment, for example, can promote positive associations with food.
6. SNACK PLANNING
Healthy snacks are just as important as healthy family meals. Your dietitian can help you find snack options that are nutritious, appealing, and cater to your child’s dietary needs.
At Active Ability, children’s dietitians collaborate with paediatric physios and exercise physiologists to help your child reach their goals. They’ll also work in partnership with other members of your healthcare team, such as your GP, child health nurse, paediatrician and any other health professionals involved in your child’s care. To find out more contact their friendly team on (02)91615887, hello@activeability.com.au
Dine & SHINE
Minimise mealtime stress with these products to assist with both physical and sensory challenges.
EZPZ HAPPY MAT
EZPZ mats provide a solid, secure base for children to safely develop self-feeding skills. We also love the added bonus of compartmentalised sections to stop different food from mixing and touching! Made from high quality silicone that is BPA, PVC and phthalate free. RRP $40.50 // skillbuilders.com.au
DINNER WINNER PLATE
Winner winner, chicken dinner! Dinner Winner makes food fun and helps to take the difficulty out of mealtime with fussy eaters. The goal is to get to the finish line, where a special covered treat awaits, so even the fussiest eaters will clean their plate!
Dinner Winner is moulded from 100% virgin melamine, is BPA free and dishwasher-safe. RRP $31.50 // thetherapystore.com.au
WOODSIE FOOTSIE FOOTREST
This bamboo highchair footrest will help to promote correct posture and stability during mealtimes and allow children to increase their motor skills and improve their levels of concentration, which in turn encourages a better feeding and learning experience. Designed to perfectly fit the IKEA ‘Antilop’, TARGET ‘Snacka’, KMART ‘Prandium’, BIG W ‘Uno’ and Mother’s Choice Breeze highchairs. RRP 42.95 // nibbleandrest.com
KIDDIE CUTTER
Cut food, not fingers! Dive into a world of fun, confidence, and newfound independence with the KiddiKutter – the perfect tool for your little chefs. Designed with safety in mind, it’s not just a kitchen accessory; it’s an opportunity to prepare meals together and make memories. 16 fabulous colours to choose from! RRP from $19.99 // kiddikutter.com.au
SUBO FOOD BOTTLE
This reusable food bottle is quick and easy to fill with nutritious home cooked and pureed food, or yoghurt, cereals and even spaghetti.
As your child sips the soft silicon (BPAfree) spout, the food rises up the bottle, one perfect-sized mouthful at a time. The innovative design means the food bottle does not need to be squeezed to access the contents. Instead, your child can feed themselves, anywhere, anytime and on the go - no mess, no fuss, no waste. RRP from $31.95 // suboproducts.com.au
PECS FOOD CHOICE FOLDER
The Food Choice Folder from See and Speak is a picture exchange choice system that is designed to empower individuals to make their own choice of what they would like to eat. There are 34 common breakfast, lunch, dinner, snacks, fruit, drink images to choose from and a handy choiceboard is also included. RRP $121 // shop.seeandspeak.com.au
ANGLED LIGHTWEIGHT CUTLERY
Angled lightweight foam cutlery is designed for those with limited wrist or arm movement. The knife can be used without cocking the wrist and the fork and spoon are available as right or lefthanded versions. Made from stainless steel with closed cell foam handles. Sold separately. RRP from $29.99 // ilsau.com.au
The modified backpacks are here to make life easier for everyone.
TUBE FEEDING BACKPACKS
A tube feeding backpack is ideal for any Tubie who is getting mobile, or on continuous feeds but still wanting the freedom to move. While tube feeding backpacks are specially designed with features to accommodate tube feeding, they look like a regular backpack. Some even have room for other items, making them extra handy! RRP from $65 // tubiefun.com.au
IEAT FEEDING ROBOT
The ultimate in independence, the iEAT Robot is an easy to operate assistive eating device. Designed specifically for people with very little or no muscle strength or muscle function and people with involuntary muscle contractions. It comes with an app to adjust personal preferences and settings. The user is in control with the iEAT Robot. A powered plate rotationunit enables you to choose from which part of the plate you would like to take a scoop, so you can eat completely independently. Price on application. avantinnovations.com.au
LEGGERO DYNO
Strollers for children with Special Needs
LEGGERO REACH
A stroller that can be used as a secondary chair. The REACH is available in 3 frame sizes: 12”, 14” and 16” seat widths and allows for some degree of adjustment. It is an excellent chair for children who do not have complex positioning needs. Available in a choice of four colours; Big Sky Blue, Rosso Red, Snowberry Pink and Galaxy Purple.
A dynamic stroller for children with active parents. As the name suggests, the DYNO is a dynamic stroller. For parents who love the outdoors and would like to take their children with them, whether walking or jogging, the DYNO is an excellent outdoor buggy. It comes with pneumatic tyre options and individual wheel suspension, thus making it a comfortable ride for the child. An important feature of the DYNO is its Activator Dynamic Seating System which has been anatomically designed to give a child the ability to move into flexion or extension, while maintaining proper pelvic positioning.
Teezi, Breezi
Breezi Max.
Helps
Helps
Understanding dysphagia
Understanding dysphagia
IN CHILDREN & YOUNG PEOPLE WITH DISABILITY
Swallowing is a reflex action that is easy to take for granted, but it can be complicated and challenging, especially for those with dysphagia. The process of swallowing involves a coordinated effort of muscles and nerves, ensuring that food and liquids move safely from the mouth to the stomach. When this process is disrupted, it can lead to various complications, especially in someone who already faces challenges due to their diagnosis. Here’s what you need to know if your child or young person is affected.
Dysphagia
Normal swallowing Swallowing difficulty
Food Food
Esophagus
Trachea Tongue Month
Epiglottis
TYPES OF DYSPHAGIA
Dysphagia in children can be classified into two main types: oropharyngeal dysphagia and oesophageal dysphagia.
Oropharyngeal Dysphagia
Chewing difficulty: Children may struggle with chewing food thoroughly, leading to problems with bolus formation (food mass) for swallowing.
Oral sensory issues: Some children may have hypersensitivity or hyposensitivity in their oral cavity, affecting their ability to manage different food textures.
Swallowing coordination: Challenges in coordinating the muscles involved in swallowing, including the tongue, soft palate, and pharynx, can cause food or liquids to enter the airway instead of the oesophagus.
Oesophageal Dysphagia
Oesophageal motility disorders:
Conditions such as achalasia or oesophageal strictures can result in difficulties in food passage through the oesophagus.
Structural abnormalities: Anatomical abnormalities in the oesophagus, such as webs, rings, or narrowing, can impede the smooth flow of food.
Gastroesophageal reflux disease (GERD): People with disability may be more prone to GERD, leading to oesophageal irritation and discomfort during swallowing.
Children with dysphagia may develop aversions to specific food textures or consistencies, leading to picky eating or refusal to eat.
Causes and associated diagnoses
Dysphagia in people with disability can arise from various underlying conditions, including cerebral palsy, Down syndrome, muscular dystrophy, and neurological disorders. These conditions can affect muscle tone, coordination, and sensory responses involved in the swallowing process. For example, people with cerebral palsy may experience spasticity or weakness in the muscles used for swallowing, while those with Down syndrome may have anatomical differences in their oral structures that impact swallowing.
IDENTIFYING DYSPHAGIA
Identifying dysphagia in children with disabilities requires careful observation and monitoring. It is crucial to consult with healthcare professionals, including a paediatrician and a speech-language pathologist if you suspect there is an issue; they can conduct a thorough evaluation and recommend appropriate interventions. Here are some common symptoms to watch for:
PHYSICAL SIGNS AND SYMPTOMS
Coughing or choking during meals
Frequent coughing or choking while eating or drinking is one of the most noticeable signs of dysphagia. It indicates that food or liquid may be entering the airway instead of the oesophagus.
Gagging or spitting out food
People with dysphagia may gag or spit out food frequently. This can happen because they are unable to chew and swallow effectively.
Drooling or excessive saliva
Persistent drooling or an inability to manage saliva can be a sign of swallowing difficulties. This is particularly noticeable when a child is not teething.
Wet or gurgly voice
A wet or gurgly sounding voice during or after eating or drinking can indicate that food or liquid is not being swallowed properly and may be lingering in the throat.
Recurrent respiratory infections
Frequent respiratory infections, such as pneumonia or bronchitis, can occur if food or liquids are aspirated (enter the airway), leading to infection in the lungs.
BEHAVIOURAL SIGNS
Reluctance to eat certain foods
Children with dysphagia may develop aversions to specific food textures or consistencies, leading to picky eating or refusal to eat.
Extended mealtime duration
Taking an unusually long time to eat meals can be a sign that the child is struggling with the process of chewing and swallowing.
Avoidance of solid foods
Preference for liquids or very soft foods over solids can indicate difficulty in managing more complex textures during swallowing.
Behavioural changes at mealtime
Increased fussiness, irritability, or anxiety during meals can be related to the discomfort or frustration associated with swallowing difficulties.
NUTRITIONAL AND GROWTH CONCERNS
Poor weight gain or weight loss
Inadequate nutrition due to swallowing difficulties can lead to poor weight gain or even weight loss. Monitoring growth patterns is essential.
Dehydration
If someone has dysphagia they may struggle to drink enough fluids, leading to signs of dehydration such as dry mouth, decreased urination, and lethargy.
Malnutrition
Difficulty swallowing can result in an imbalanced diet and nutrient deficiencies. Signs of malnutrition include fatigue, weakness, and poor overall health.
ASSESSMENT AND MANAGEMENT
Early detection and intervention are crucial in managing dysphagia. A comprehensive assessment by a multidisciplinary team, including speechlanguage pathologists, paediatricians, gastroenterologists, and dietitians, is essential. This assessment may involve clinical evaluations, swallowing studies (such as videofluoroscopic swallow study or fibre-optic endoscopic evaluation), and nutritional assessments to understand the nature and severity of the swallowing difficulties.
Management strategies are tailored to each individual’s needs but may include: Diet modification: Adjusting the consistency and texture of foods and liquids to ensure safe swallowing. Thickening liquids or pureeing foods can make them easier to swallow for some children.
Positioning techniques: Optimal positioning during meals, such as sitting upright or at a specific angle, can improve swallowing function and reduce the risk of aspiration.
Swallowing therapy: Working with a speech-language pathologist to perform exercises and techniques aimed at strengthening swallowing muscles, improving coordination, and addressing sensory issues related to feeding.
Medical interventions: In some cases, medical interventions such as botulinum toxin injections to reduce muscle spasticity, gastrostomy tube placement for nutritional support, or surgical procedures to correct anatomical abnormalities may be considered.
Support and education
Parents, caregivers, and educators play a vital role in supporting children with dysphagia. They should receive education and training on proper feeding techniques, recognising signs of swallowing difficulties, and implementing strategies recommended by healthcare professionals. Creating a supportive and nurturing mealtime environment is essential for promoting positive feeding experiences and ensuring the child’s nutritional needs are met.
MANAGING DYSPHAGIA AT SCHOOL
Coping with dysphagia at school requires careful planning, collaboration between the child, parents, school staff, and healthcare professionals, and implementation of risk management strategies to ensure the child's safety and well-being. Here's how a child with dysphagia might cope at school and the risk management strategies that might need to be in place:
3. Safe feeding environment
1. Care plan
Develop an individualised care plan in collaboration with the child’s healthcare team, outlining specific dietary needs, feeding techniques, positioning requirements, and any medical interventions or emergency protocols. Communicate the plan to relevant school personnel, including teachers, school nurses, cafeteria staff, and administrators, to ensure everyone is aware of the child’s needs and how to support them.
2. Education and training
Provide education and training to school staff on dysphagia awareness, signs of swallowing difficulties, and proper implementation of feeding protocols.
Create a safe and supportive feeding environment in designated eating areas. Ensure that tables and chairs are appropriately sized, seating is comfortable and stable, and distractions are minimised during mealtimes.
Encourage the child to eat slowly, take small bites, and chew thoroughly to reduce the risk of choking or aspiration. Provide adaptive utensils, straws, or cups if needed.
4. Mealtime supervision
Assign trained staff members to supervise the child during meals and snacks, monitoring their eating behaviour, swallowing function, and signs of distress.
Encourage peer support and understanding among classmates to promote inclusivity and reduce social stigma related to feeding difficulties.
5. Communication and advocacy
Foster open communication between parents, school staff, and healthcare providers to address any concerns, monitor progress, and adjust management strategies as needed.
Empower the child to advocate for themselves by teaching them communication strategies to express their needs, preferences, and any discomfort related to dysphagia.
6. Emergency preparedness
Develop an emergency action plan detailing steps to take in case of a choking incident, aspiration event, or other medical emergencies related to dysphagia.
7.
Accommodations
Provide accommodations and supportive services as needed, such as extended mealtimes, modified food textures, alternative meal options, or others as suggested by your child’s care team.
The Gravity Chair
For a 7-year-old with the rare condition, Behr Syndrome, the Gravity Chair has transformed Hazel and her family’s lives.
Hazel’s Story
Hazel, a cheeky 7-year-old from Christchurch, New Zealand, lives with her mum, dad, and younger siblings. She has Behr Syndrome, an extremely rare condition causing low muscle tone and blindness.
The Gravity Chair has transformed her family’s life. The chair provides a safe, secure and comfortable place for her to relax, allowing her parents to manage other tasks, such as making dinner and tending to their younger children without worry.
“ We can do stuff around the house knowing that she’s safe and upright and enjoying herself”
Hazel’s parents, Kate and Tane, are thrilled at how Medifab’s expert team helped set up and adapt equipment. And they always entertain her as well, which puts a smile on everyone’s face. Hazel, you’re a superstar!
“The material used on the Gravity Chair is really beneficial for us as a family. It can get dirty but it’s really easy to clean and look after.”
Watch Hazel’s story and learn more here
Navigating NDIS plan management with nib Thrive
Navigating the NDIS can be tricky, but nib Thrive is here to help. Our team provides supportive and accessible plan management services across Australia, making it easier for participants and their families to manage budgets, make payments, and stay informed.
Meet Vicky Roberts, Operational Quality & Compliance Manager at nib Thrive and mum of five. As a mum, Vicky knows the importance of those early years of life and is deeply passionate about supporting people with disability to achieve their goals.
Below, Vicky answers some common questions parents may have about managing their child’s NDIS plan.
What are the different ways to manage my child’s NDIS plan?
There are three ways to manage your NDIS plan: plan managed, self managed, and agency managed.
Many families mix and match these options to suit their needs. No matter which option you choose, you have control over how and where your funds are spent.
Plan management involves a provider, like nib Thrive, managing your NDIS funds on your behalf. More than half of all payments to providers are paid via plan managers.* It’s the most popular option because we handle payments, track expenses, talk with providers, and help you budget for supports. It makes the whole process a lot simpler and helps free up your time to focus on what matters most.
Self management is when you manage your NDIS funding. You make payments from your NDIS funding to providers, handle any paperwork, and talk with your providers about payments.
You can use both registered and unregistered providers if your NDIS plan is plan managed or self managed.
Then there is “Agency managed,” where your NDIS plan is managed by the National Disability Insurance Agency (NDIA). They manage your providers and financial records, so you don't have to worry about any administrative tasks. However, it means you can only use registered NDIS providers.
Vicky
Roberts, Operational Quality & Compliance Manager at nib Thrive and mum of five.
How can plan managers, like nib Thrive help simplify the funding process for parents of children with disabilities? For parents of children with disabilities, plan management can simplify the funding process by taking the administrative burden, allowing them to focus on providing care and support to their child.
Plan managers handle the financial paperwork of NDIS plans, including paying providers and providing spending reports. They can also help you to transition to self-manage your plan, increasing your financial independence.
Plan management isn’t just about handling the finances; it’s about giving families the freedom to concentrate on their children’s needs.
How can I access plan management?
If you have an NDIS plan, plan management is likely available to you. For most people, there is no eligibility criteria for plan management.
During your planning meeting with the NDIA, you can request plan management by explaining how it would help you and your family. The NDIA will consider this when creating your plan.
If plan management isn't currently included in your NDIS plan but you'd like to add it, you can contact the NDIS on 1800 800 110 to discuss your options.
Here to help
If you’re looking for a plan manager, the team at nib Thrive is here to help take care of some of the paperwork so you have more time and freedom to focus on achieving your goals. We support participants across Australia.
To learn more, contact our friendly team on 1800 999 333, or visit nibthrive.com.au
A guide to
SOCIAL STORIES AND VISUALS SOCIAL STORIES AND VISUALS Making it real
If your child or young adult has challenges in understanding and navigating social situations and/or unfamiliar environments, social stories such as storyboards and other visual aids are a useful tool that can significantly enhance communication skills, social interactions, and help their overall well-being in many different scenarios.
Social stories are short, personalised narratives designed to help those who need support in understanding social concepts, routines, and expectations. They typically include descriptive sentences paired with appropriate visuals to illustrate the intended message.
HOW THEY HELP
Social stories offer numerous benefits for people with disability: Enhanced understanding: These tools break down complex social situations into manageable and understandable components, making it easier to grasp important concepts and expectations. Improved communication: Visual supports provide a non-verbal means of communication, which is particularly beneficial for children with language or communication difficulty.
Reduced anxiety: Many of our kids and young people experience anxiety in unfamiliar or even familiar social situations. Social stories and visuals can alleviate anxiety by providing predictability, structure, and guidance on how to navigate what’s to come.
Increased independence: Visual
supports encourage independence and self-management by enabling children to follow routines, make choices, and solve problems independently with visual prompts and reminders. Support for transitions: Transitioning between activities, environments, or routines can be challenging for a variety of reasons. Social stories and visuals help the user prepare for transitions by outlining what to expect and how to adapt effectively.
Promotion of social skills: By explicitly teaching social norms, rules, and behaviours, social stories and visuals help children develop essential social skills, such as turn-taking, sharing, empathy, and problem-solving.
WANT TO PUT A SOCIAL STORY INTO ACTION?
Here’s a step-by-step guide to help you.
1. Identify the target situation: Begin by pinpointing the specific social situation, event, or behaviour you want to address. It could be anything, from going to a doctor’s appointment to waiting in line at the grocery store or attending a birthday party. The key is to focus on scenarios that
your child finds challenging or confusing.
2. Define the goal: What do you want your child or young person to learn or understand from reading the story? For instance, the goal might be to help them understand what will happen during a day out and the transitions that they will encounter.
3. Keep it simple: Social stories should be written in clear and straightforward language that is appropriate for an individual’s age and comprehension level. Avoid using ambiguous terms or complex vocabulary that could confuse them.
Here’s an example of how you could put together a social story for a visit to the park: TITLE: A SAFE AND FUN VISIT TO THE PARK
1. Heading to the park
Visual: Picture of a child holding an adult’s hand, smiling, and walking towards a park entrance.
Text: “Today, we are going to visit the park. The park is a nice place to be, and we can have fun while staying safe.”
2. Arriving at the park
Visual: Image of the park entrance with trees, a playground, and people in the background.
Text: “When we arrive at the park, we will see other people. Some might be walking, running, or playing. It’s okay; we will have our own space to enjoy.”
3. Staying safe
Visual: Illustration of a child standing close to an adult, with a safe space circle around them.
Shorter is usually better!
4. Structure the story: Divide the story into clear sections: introduction, body, and conclusion. The introduction sets the scene, the body describes the situation or behaviour in detail, and the conclusion reinforces the desired outcome or lesson.
5. Use visual supports: Incorporate pictures, drawings, or photographs to enhance understanding and engagement. Visual supports can help individuals better comprehend the story’s content and make it more relatable.
6. Maintain a positive tone: Keep the
Text: “We will stay close to our grown-up or buddy. If we feel overwhelmed, we can communicate how we feel. We can find a quiet spot if we need a break.”
4. Being around other people
Visual: Picture of a playground with kids playing, and the child waiting patiently.
Text: “There might be kids playing on the playground. We will wait our turn to use the swings and slides. If someone is too close, we can step back or move to another area. It’s okay to watch other kids play if we don’t want to join in right away.”
5. Things we will see and hear
Visual: Picture of a child listening with hands cupped over ears, looking at birds,
tone of the story positive and supportive. Focus on highlighting appropriate behaviours and positive outcomes rather than dwelling on mistakes or negative consequences.
7. Include personalisation: Tailor the story to your person’s preferences, interests, and experiences whenever possible as this increases its relevance and resonance.
8. Provide rehearsal opportunities: After reading the social story, offer opportunities to practice the skills or behaviours described. Role-playing or
and smelling a flower.
Text: “We might hear birds, the wind, or people talking, other children may be laughing and talking. If it gets too loud, we can use headphones or earplugs. We will see green trees, colourful flowers, and maybe some animals like birds or bugs. We might smell flowers, grass, and fresh air.”
7. Taking breaks
Visual: Image of a child sitting on a bench with a favourite toy and a snack.
Text: “ We can take breaks whenever we need to. Just tell our grown-up or buddy. We can bring a favourite toy or book to help us feel calm. Drinking water and having a snack can also help us feel better.”
8. Transitioning home
Visual: Picture of a child and adult walking back to the car, waving goodbye to the park.
Text: “When it’s time to leave, our grownup or buddy will let us know. We will say goodbye to the park. We can walk back to the car or bike and head home. If we feel sad about leaving, we can talk about coming back another time.”
9. Looking forward to next time
Visual: Image of a child thinking about the park, with a thought bubble showing the park.
Text: “We can visit the park again on another day. Every visit might be a little different, and that’s okay. We will always have fun and stay safe.”
real-life simulations can help reinforce the story’s lessons in a practical context.
9. Review and revise: Periodically revisit and revise the social story as needed. An individual’s understanding and needs may change over time, so it’s essential to ensure that the story remains effective and relevant.
10. Seek feedback: Finally, gather feedback from the individual, caregivers, teachers, or therapists to assess the story’s effectiveness. Adjustments may be necessary based on their input and observations.
Designed for Movement, Built for Growth!
The HELIO KIDS carbon folding wheelchair is built to keep up with the active lives of children.
One of the lightest folding manual wheelchairs for kids
Crafted from T700 carbon fibre for superior sturdiness with a rigid unibody frame
Moulded cross brace and unique folding system boost stability and assist propulsion
Easily increase seat depth and footplate height in seconds
Mix and match frame and handrim colours to personalise your chair
FREE GROWTH KIT!
Includes adjustable back, symmetrical moulded cross brace, standard backrest upholstery, seat sling, and footplate. The advantage of the growth feature is that you don’t need extra components and hardware to grow the chair within the frame. This keeps the chair as light weight as possible.
We know that every family is different, and that is why we have a range of pram wagons, to suit each family type.
✓ Mobility Needs
✓ Fatigue or Endurance Limitations
✓ Sensory Processing Needs
✓ Behavioural Challenges
✓ Developmental Behaviours
✓ Transporting Equipment
✓ Inclusive Outings
MOBILITY & EQUIPMENT
Reader-friendly, informative and brimming with the latest products on the market. Helping parents and allied health providers choose the best wheelchairs, strollers, bikes and trikes, walkers, standers, beds and seating, to suit their child’s unique needs.
PICTURE THIS
Facilitate understanding of events, routines, and transitions with these fabulous visual finds.
AAC CUSHIONS BY TWO WAY STREET
Check out these stylish custom cushion covers with symbols to chat at every opportunity. There are four topics to choose from: opinions, bedtime chat, TV chat and book chat. Size 35.6 x 35.6 cm (cover only). RRP $50 twowaystreet.com.au
RESILIENCE SOCIAL STORY PACK –LITTLE TICK CREATIONS
Are you searching for an effective tool to help children navigate life’s challenges with resilience and confidence? The Resilience Social Story Pack is a collection of 5 social stories designed in chat board style to ensure accessibility for users of all abilities, making it an inclusive tool for diverse learners. A fabulous tool to embrace life’s challenges with confidence, foster emotional growth, and celebrate individual strengths. RRP $35 littletickcreations.com.au
STORIES ONLINE FOR AUTISM APP
Stories online for autism app has been co-developed with the autistic community; parents and professionals can write their own stories or adapt stories from the extensive library. All stories can be personalised with photos or other images. The user can select how they would like the stories presented and are rewarded for reading the stories (or the app can read the stories if preferred). Available free on the Apple app store. apps.apple.com
REMINDABLES ANXIETY SET
Helpful reminders during anxiety provoking times. These tags are useful to help people who experience anxiety, providing ideas for ways to remain calm and regulated throughout their day. Each set includes 1 x leather strap and the following 12 tags: Deep breathe, Ask for a hug, Distractions, Drink water, Music, Engage senses, Use your hands, Talk it out, Write it out, Go for a walk, Water Play, XOXO. RRP $32.90 remindables.com.au
SAY LESS SHOW MORE
The Say Less Show More (SLSM) initiative from the NSW government provides a series of simple photo stories that illustrate what will happen during a physical examination or blood test. A great way to help calm kids before an appointment. Free to download aci.health.nsw.gov.au/networks/ intellectual-disability/resources/ say-less-show-more
THE NEW SOCIAL STORY BOOK, BY CAROL GRAY
Carol Gray is credited with creating social stories in the early 90s and this 15th Anniversary Edition of her best-selling book offers over 180 ready-to-use stories that parents and educators have depended on for years. RRP $56 amazon.com.au
PERSONAL CARE PICTURE SEQUENCE BOOK BY SEE N SPEAK
Empower your child or young adult to master personal care routines with these visual supports. This booklet provides a clear stepby-step sequence of real life pictures that allows a person to develop independent skills in bathing, washing hair, getting dressed, brushing teeth. RRP $45 shop.seeandspeak.com.au
MY FEELINGS THERMOMETER POSTER FROM MY LEARNING TOOLBOX
Thoughtfully designed to help cultivate a deeper understanding of different emotions, this interactive tool presents a spectrum of feelings across four coloured zones, drawing attention to how our emotions can translate into distinct physical responses.
To enable children to manage their diverse range of feelings more effectively, the poster provides tailored strategies that can be implemented when encountering different emotions within each zone. Available in two sizes. RRP from $14.95
Plan Management
Unparralled personal and professional service
Our journey to Care Plus began as many NDIS participants and their families do, when our son was diagnosed with a disability. Living these shared experiences with our clients is why we care. Delivering personalised, professional service from our motivated family of plan managers that understand your journey and unique challenges.
Whether you are new to NDIS, or looking to change plan managers to a business that strives to ensure you are getting the best outcomes from your plan, call Care Plus on 0455 944 125, or email info@careplusmanagement.com.au
BACKYARD ACTIVITIES FOR YOUR CHILD 10
Parents, do you look out at your backyard and see only work to be done? Toys to pick up, out of control weeds, a playhouse in need of a few repairs, a grass lawn desperate for a trim…
Well, the therapists at NAPA see your backyard in a different light — a world of opportunity for your child to work on their gross motor skills! The possibilities are endless, but here is a list of 10 backyard activities to target gross motor skills to get you started on the outdoor fun!
These first 7 ideas are all about sidewalk chalk!
1
DRAWING ON THE GROUND
Draw on the ground, either sitting or lying on belly. Bearing weight on a non-dominant hand as kids draw with the dominant hand strengthens non-dominant side. How to make it easier: draw together! With your hand over your child’s hand, draw a big rainbow together to encourage your child to use full arm range of motion
How to make it harder: draw with the non-dominant hand!
2 MAKE A RACETRACK!
A track for their ride-on toy, trike, bike, or scooter –tracing the chalk line wherever it goes targets motor planning and bilateral coordination for steering. Riding a bike or scooter works on coordination, endurance, and overall strengthening.
3
HOPSCOTCH
Targets balance, coordination, hopping, jumping, sequencing, timing, and visual system.
Jumping forward over the line from one square to the next.
To work on jumping farther, try jumping over a square (say, “The LAVA square will burn your feet! Better jump over it to the safe square!”)
Jumping with feet together, then apart, then back together develops coordination.
HARDER: hopping on one foot requires single leg balance AND muscle power.
HARDEST: combining all in one – one foot, two feet, together and apart!
4
OBSTACLE COURSE
Put all these ideas together – walking the chalk line, jumping through hopscotch squares, stomping on some chalk circles, drawing hand and footprints to walk on.
DRAW A BALANCE BEAM
Just draw a long straight line with chalk and ta-da! Instant balance beam!
Encourage your child to try to walk on the line without stepping off. Easiest: just keeping one foot on the line the whole way. A little harder: both feet staying on the line, putting one foot in front of the other with each step!
Tricky: heel of front foot must touch toe of back foot. This tandem stance is a real challenge to balance.
Advanced: walking along a line and toe tapping on red solo cups or paper towel rolls placed on both sides of the line.
Super advanced: walking backwards or sideways along the line (Try a squiggly line
~~~~~~~~~~ getting fancy!)
To take the balance beam up a level, use a curb or low retaining wall instead of a line on the concrete for an additional balance challenge.
6
BACKYARD TWISTER
This activity works on colour recognition, knowing left and right, and motor planning required to arrange their body to reach each color. Reaching and stretching, and then bearing weight in unique positions and balancing to maintain these positions works the vestibular system, as well as targets strengthening! Draw chalk circles on the ground. Lots of smaller circles everywhere makes it easier for smaller bodies, but bigger kids can play with fewer and bigger circles. Randomly call out left or right, then hand or foot, and then a colour. Each player has to place the corresponding hand or foot on the circle of that colour!
Keep going until someone falls, and then play it again!
BETTER BALL SKILLS 7
Just roll with it!
Draw a chalk design on the ground, the fence, the side of the house, wherever is allowed in your family, and then have your child trace the design made by rolling a ball along it. If the design is on the ground, try first on hands and knees.
Too easy? Try on hands and feet, with knees up off the ground for increased arm strengthening.
If the design is on a vertical surface like a fence or side of the house, have your child trace it while in tall kneeling, half kneeling, or standing on only one leg.
Try adding a dynamic surface like a couch cushion from patio furniture (sitting, kneeling, or standing on it, or even standing with only one leg).
Another way to roll with it: with both hands on the wall, place a ball between your kiddo’s knee and the wall or fence and have them roll the ball up and down the wall by bending and straightening their knee –strengthens hip flexors and core.
Throw it
Pick a target, any target, just not a window! Pick which arm will be their throwing arm, then have your child STEP forward with the opposite foot, POINT at the target with the opposite hand and arm, LOOK at the target so their ball knows where to go, and THROW at the target. Step, point, look, and throw – we say it as we play it so the motor plan will stick! Hand-over-hand guidance can help encourage beginner throwers!
Shoot it
We don’t need a hoop to play basketball! Gardening buckets, the kiddie pool, a chair with arms, anything can be a basket for basketball. Or you can duct tape a pool noodle to make a circle, and there’s your hoop!
Kick it
Soccer play targets single leg balance to kick with one foot as well as motor planning to coordinate where we want the ball to go. Any spot in the yard can be a soccer goal!
Hit it
Modify baseball with a pool noodle as a bat and your choice of a ball:
• Regular balloons – these “baseballs” move slowly, making it easier to coordinate movements in time to hit.
• Beach balls – these are usually faster than balloons, but still allow increased time for motor planning as kids learn this skill.
• Water balloons – these are typically much smaller targets, and therefore harder to hit, but may come with a fun splash if they get hit just right!
GARDENING
• Pulling weeds or picking dandelions – targets arm strength and anticipatory postural responses to maintain their balance!
• Collect sticks or wood chips from all over – repetitively squatting to pick something up strengthens legs and improves balance.
10 MASTERING THE MONKEY BARS THINKING OUTSIDE OF THE BOX
9
GET OUTDOORSY
Navigating up and down hills or across uneven surfaces like grass or gravel builds strength and endurance.
• Side stepping or forward stepping over rocks encourages balance and ankle strengthening.
• Water play – fill a bucket, have your kiddo carry it around to help water the plants, and secretly work on strengthening!
• Just playing in the dirt –holding a deep squat is great for ankle stability, and getting messy is great sensory play!
• Lying in the grass, encourage your child to army crawl/ slither like a snake and sneak up on an unsuspecting family member. Army crawl engages the entire body and strengthens the core and arm muscles.
• Playing barefoot in a sandbox strengthens ankles and legs – especially while squatting, jumping, and digging holes with feet.
Got a playset with monkey bars? This is a fantastic opportunity to work on arm and core strength, coordination, and motor planning!
First, just help your child get used to holding onto one bar. Swinging or counting to ten helps develop grip strength and arm strength for supporting their weight.
Next, support their body weight by holding them while they practice reaching through with their hands, one hand on each bar. This develops coordination to reach through with their hands and look for the next bar without the work of supporting their own body weight.
Practice the swing through. Only one hand on each bar may seem harder, but when they get two hands onto the same bar, kids tend to turn off their core, stopping the momentum they have going and making it more work to move to the next bar. Swinging through with one hand on each bar teaches efficient use of momentum and keeps the core engaged, decreasing the work of hands and arms.
Practice makes perfect! Repetition is important to help kiddos get going across the bars.
BONUS
ROUND
Lifting knees to chest works deep abdominal muscles responsible for balance, posture, and toileting (and kids can practice this anywhere there’s a sturdy bar to hang onto).
Article written by the therapists at NAPA Centre, a paediatric clinic offering occupational therapy, physiotherapy and speech therapy for children with complex needs. NAPA Centre has 9 locations across the world, including three here in Australia – Sydney, Brisbane and Melbourne. Let your child’s journey begin today by contacting our team to learn more. napacentre.com.au
be connected to
closest
call 03 9014 7507 or email enquiries@medix21.com.au www.medix21com.au
*OUR STORY
LIFE WITH OLIVIA LIFE WITH OLIVIA
Can you tell us a bit about the diagnosis Olivia received? What does it mean, and how does it affect her life?
How did you first become aware that there might be a concern about Olivia’s health or development?
My pregnancy was uneventful despite my daughter, Olivia, being born 5 weeks early. We were in ICU for a week and given a clean bill of health and sent home!
A week later, however, she went into cardiac arrest at my mother-in-law’s house, and I had to perform CPR on her. We were taken to Princess Margaret hospital and that’s when we found the first of many issues with her health.
Olivia has several diagnoses such as a heart condition, lung condition, global developmental delay, she is non-verbal autistic, has a brain abnormality, a genetic condition, plus mild cerebral palsy.
The first diagnosis - the heart condition - is the hardest in my opinion, as it has opened my eyes to a world of medical appointments and advocating for my child in a way I never imagined.
The genetic condition affected our family as it's hereditary and I was pregnant with our 3rd baby when I found out about it. Her global developmental delay means I am now involved with the NDIS, therapy appointments and the year after year battle of fighting for your child and justifying every piece of medical equipment you need and every dollar you spend.
I found that we have had to grieve the life we wanted for Olivia and accept the life she will have. We had to come to terms with the fact she might not ever say “I love you” or move out of home, but you learn to enjoy the smaller things in life and appreciate the laughter and every little smile.
How has the diagnosis impacted your family dynamics and daily routines? Have there been any specific challenges or adjustments you’ve had to make?
The diagnosis has impacted our family routines massively! We have weekly speech, fortnightly OT and music therapy and physio sessions; along with full time school and medical appointments! It has made it impossible for me to go back to work.
I have found that the biggest challenge we have is time; trying to find enough time to do the things my daughter needs; plus spend time with my other children, research and plan for NDIS meetings, run a house and of course, try to fit in what little time you have for self-care to feel like a human being.
and how her development will progress.
a mealtime management plan and her safety while eating when she’s sick.
OT has helped with Olivia’s daily living skills such as eating, cutlery, safety steps and making things easier for her to use such as electric soap dispensers and easy push button cereal dispensers to help her build up her independence.
I started to feel her development was coming to a bit of a standstill. That’s when I decided to look at music therapy. It was the best thing we could have done as she found something she really enjoys and was able to stay in an activity for a prolonged period of time.
I decided to look at music therapy. It was the best thing we could have done as she found something she really enjoys and was able to stay in an activity for a prolonged period of time.
I found I had to put my life ‘on hold’ for a long time. I have only just now gone back to school and started to take my selfcare seriously.
What kinds of treatments, therapies, or interventions has Olivia been receiving?
We’ve undertaken therapies for years, and she has improved, but it’s been at a very slow pace.
Speech therapy has helped get communication devices and helped with implementing signing. It’s also helped with
Olivia started to make eye contact, started to copy actions and started to copy sounds. I couldn’t believe how much difference it made in such a small amount of time! She can now sign ‘more’, ‘finished’, ‘help’ and ‘open’ with assistance.
As a parent, what are your primary concerns and hopes for Olivia’s future in light of her diagnosis?
How can those around you support you and your family?
My main concern and frustration continues to be there isn’t any information out there on my daughter’s genetic condition. There is no-one out there, as far as we know, that has the same condition, so doctors and specialists are unable to tell us what her life will look like
The other main concern I have is what will happen to my baby after I die. I have to leave her care in the hands of her sister and as much as I know when she grows up she will do it and be happy to, I don’t ever want to place this responsibility on anyone let alone my child.
It’s not even the daily management such as nappies and showering that takes its toll, it’s year after year of NDIS reviews and the stress that comes with advocating for someone who doesn’t have a voice. It is solely on me to advocate for what she needs, to live and thrive, to be the best possible version of themselves.
If someone was wanting to support someone going through a massive change like this it can be as simple as reaching out over messages and asking if they want a chat - sometimes you just need to vent what is going on. Even popping around for a coffee and a chat can help.
A lot of the times you feel so alone and isolated and that no one understands what you’re going through; just having a friend there to be a nonjudgemental voice and a safe space to express how we are feeling can make all the difference.
And finally, what’s your greatest hope for Olivia’s future?
My greatest hope for my daughter has always been, and always will be, for her to be happy and know she is loved.
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100% woven cotton sleeveless sleeping bag
YOUR LIFE ,
YOUR HOME, YOUR WAY!
If you’re confused by the range of home and living supports available through the National Disability Insurance Scheme (NDIS), our friends at My Plan Manager have got you covered!
Home and living supports can help you choose who you want to live with and where you want to live. Funding can also be provided for home modifications, assistive technology and formal supports.
Here’s a breakdown of each type of home and living support available in the NDIS, the criteria to apply, and how it might look in your plan – depending on whether or not it’s built in the National Disability Insurance Agency’s (NDIA’s) new computer system, PACE.
In every case, supports must meet the NDIA’s reasonable and necessary criteria and help you achieve your plan goals.
SHORT TERM ACCOMMODATION
Short Term Accommodation (STA)
funding covers the cost of support and accommodation for a short time away from your usual home (up to 14 days at a time). It can include:
• short term support – alone or with a group of people who may have similar needs and interests – to build new skills, achieve plan goals or provide a break to you and carers.
• overnight or weekend support away from home in a hotel – for example, if you’re going to participate in a sporting event which is a plan goal, and you require accommodation and other supports while you’re there.
HOW IT LOOKS IN YOUR PLAN
• short term support at a retreat to try new things, develop new skills or meet new friends.
The NDIS can fund up to 28 days of STA per calendar year, which can be used flexibly – but you can’t claim more than 14 days in a row. If you want to access more than that, you’ll need approval from the NDIA.
You may request STA to prepare to live independently or make new friends, or to access value for money supports within the scope of your Core Supports budget.
If STA isn’t stated in your NDIS plan but you have funding available in your Core Supports budget, you may be able to use it for STA.
Regardless of whether your plan is on the NDIA’s ‘old’ system or its new PACE system, if you have STA funding it will be included in your Assistance with Daily Life budget (no description is typically included in plans that aren’t on PACE).
MEDIUM TERM ACCOMMODATION
Medium Term Accommodation (MTA) can help you find a place to live when you haven’t yet found your long term home. You might be funded for MTA if you’re moving out of a healthcare setting, like a hospital, or waiting to move into Specialist Disability Accommodation (SDA).
The NDIA typically funds MTA – which doesn’t cover the cost of food – for up to 90 days, and it must be included in your plan.
To be eligible for MTA, you need to have found, or be looking for, long term accommodation.
If you don’t yet have a PACE plan, MTA will be described specifically, and funding will be included in your Assistance with Daily Life budget.
For those with a PACE plan, if you receive MTA funding it will be included in your Home and Living budget.
SPECIALIST DISABILITY ACCOMMODATION
If you have very high support needs, it could mean you need to live in a specially designed home that meets your access requirements. If you do, SDA will be a stated support listed in your plan. A stated support means funding has been allocated for a specific support or service, and you can’t use it for anything else.
To be eligible for SDA you must have an extreme functional impairment or very high support needs. SDA housing includes accessible features that help residents live more independently and allow other supports to be delivered better or more safely.
Funding for SDA is paid directly to your provider to cover building and maintenance costs, and you’ll need to pay a reasonable rent contribution and other day-to-day living costs, such as electricity bills.
For participants with non-PACE plans, SDA will be specifically described in the plan and funding will be included in your Home Modifications and Specialist Disability Accommodation budget.
If you have a PACE plan, funding will be included in your Specialist Disability Accommodation budget.
SUPPORTED INDEPENDENT LIVING
Supported Independent Living (SIL) funding is designed to provide you with the support you need to assist you to complete daily tasks and build your skills.
It covers a range of supports in and out of home, like cleaning, cooking, personal care, or support to access the community – but not rent or other day-to-day expenses, like utility bills and groceries.
You may also be able to claim 10-15 days of ‘irregular SIL supports’ each year and funding for ’unplanned exits’ may also be provided if you need to immediately exit SIL accommodation due to a death or breakdown in your support relationship.
HOW IT LOOKS IN YOUR PLAN
SIL will be specifically described in your plan if you’re not yet on PACE and funding will be included in your Assistance with Daily Life budget.
For those with PACE-plans, funding will be included in your Home and Living budget.
INDIVIDUALISED LIVING OPTIONS
Individualised Living Options (ILO) funding gives you choice and control to live the way you want and in a living arrangement that suits your needs and preferences – but with tailored supports that help you achieve your goals.
You may decide to share your home with friends or housemates, live with a ‘host’ who’ll provide informal supports, or live on your own with the support you need. ILO supports work with other funded supports and services, as well as with informal supports.
Funding for ILO doesn’t cover the cost of accommodation. You’ll first need to work out where you want to live, who you want to live with, what support you’ll need, and who you want to provide that support. Then, you can work with your support coordinator or local area coordinator to put your supports into place.
HOW IT LOOKS IN YOUR PLAN
ILO will be specifically described in your plan if you’re not on PACE and funding will be included in your Assistance with Daily Life budget.
If you have a PACE plan, funding will be included in your Home and Living budget.
HOW IT LOOKS IN YOUR PLAN
Assistance with Daily Life
Assistance with Daily Life is a support category in your Core Supports budget. It’s for assistance or supervision of personal tasks carried out during day-to-day life to help you to live as independently as possible. Examples might include assistance with household cleaning or yard maintenance, or support to attend medical and other appointments.
These supports are provided individually to participants and can be delivered in a range of environments, including your own home.
Applications for Assistance with Daily Life funding are assessed on a case-by-case basis.
HOME MODIFICATIONS
Home modifications are changes that are made to the structure, layout or fittings of your home, so you can safely access it and move around comfortably. The NDIS can fund home modifications to make a home accessible.
You may need home modifications if you:
• have safety concerns or difficulty moving around your home.
• have trouble with personal care, like using your shower.
• can’t use the rooms you need to use in your home.
• have difficulty achieving your goals in your home because of your disability.
• need changes to your home so your carers can support you safely.
If your plan isn’t a PACE plan and you’re funded for home modifications, the funding will be specifically described in your plan and included in your Home Modifications and Specialist Disability Accommodation budget.
Participants with PACE plans will see their home modifications funding (if they have it) included in their Home Modifications budget.
Assistive technology
Assistive technology is equipment you may need to help you with everyday tasks. Perhaps you want to buy an iPad to help you to communicate better, or modified cutlery for a child who’s learning to cut up their own food? Maybe you need a new wheelchair, a handrail or a washing line to assist you to live more independently?
Low-cost assistive technology priced under $1500 can come out of your Core Supports budget, while assistive technologies priced at more than $1500 need to be written into a plan.
Be sure to talk to your NDIA Partner about exploring your home and living options and ask their advice about what to do next.
Want to learn more about NDIS plan management? Check out My Plan Manager – Australia’s first, largest and leading plan management provider – at myplanmanager.com.au or give them a call on 1800 861 272.
INDEPENDENT LIVING GOALS
Help your young person move towards a level of independent or supported living that best suits them with these goal ideas.
DAILY LIVING SKILLS
Goal: improve personal hygiene and grooming
Objective: Develop and maintain a daily routine for personal care, including bathing, brushing teeth, and grooming, with the aim of achieving independence in these tasks.
Goal: enhance cooking and nutrition skills
Objective: Learn to prepare simple, healthy meals and understand basic nutrition to support a balanced diet, with the long-term goal of meal preparation with or without assistance.
Goal: master household chores
Objective: Gain proficiency in tasks like cleaning, laundry, and organising living spaces, with a goal of maintaining a clean and orderly home environment.
FINANCIAL MANAGEMENT
Goal: Develop budgeting skills
Objective: Learn to create and manage a budget, track spending, and differentiate between needs and wants.
Goal: gain banking proficiency
Objective: Become confident in using a bank account, making transactions, and managing finances.
Goal: manage bills independently
Objective: Understand how to read and pay bills on time, using tools like automatic payments or reminders to ensure financial obligations are met.
TRANSPORT AND MOBILITY
Goal: Increase independence using public transport.
Objective: Learn to navigate public transport, including reading schedules and understanding routes.
Objective: Learn to drive with or without adaptations and understand basic car maintenance, with the goal of obtaining a driver’s license and driving safely.
Goal: master community navigation
Objective: Get to know the local community, including key locations like grocery stores, medical facilities, and recreational areas.
HEALTH AND SAFETY
Goal: Safe medication management
Objective: Learn to manage medications, including understanding dosages, timing, and prescription refills.
Goal: Enhance first aid and emergency preparedness
Objective: Gain basic first aid knowledge, understand when to seek help, and learn how to contact emergency services, with a goal of responding effectively in emergencies.
Goal: Strengthen personal safety awareness
Objective: Develop awareness of personal safety, understanding boundaries, and knowing how to seek help when needed.
SOCIAL AND COMMUNICATION SKILLS
Goal: Build and maintain relationships
Objective: Learn to maintain friendships, communicate needs, and navigate social settings, with the goal of developing and sustaining positive relationships.
Goal: Strengthen self-advocacy skills
Objective: Learn to express needs clearly and understand personal rights in various settings.
EMOTIONAL AND MENTAL HEALTH
Goal: Develop effective coping strategies
Objective: Learn strategies to manage stress, anxiety, or depression, with the goal of maintaining emotional stability and resilience.
Goal: Build a support network
Objective: Create a network of trusted friends, family, or mentors to provide guidance and support.
TECHNOLOGY USE
Goal: Improve basic computer skills
Objective: Learn to use a computer or smartphone for communication, managing finances, and accessing information.
Goal: Enhance online safety skills
Objective: Develop skills to navigate the internet safely by understanding privacy settings and identifying potential online scams, trolls and bad actors, with the aim of protecting personal information and ensuring overall personal safety.
SUNNY STEPS SUNNY STEPS to fitness
My brother wasn’t interested in changing his routine (a man on the spectrum being fussy about his routine…shocker!). However, after a series of negotiations and agreements that would make the UN look lazy – we reached an agreement. Every morning Jackson would go for a walk. Near our home there’s a beautiful bay walk, and we would do it there. 10 minutes into the walk he put his headphones in and was in his own world (leaving me to talk to myself), but he was enjoying it.
He kept this routine up and within a year had lost close to 8kgs! Even better, this is a habit he has kept to this day - 11 years later.
Walking itself is a brilliant form of exercise for people who don’t really want
to exercise, like Jackson. But the exercise isn’t the main benefit. The impact of getting some morning sunshine cannot be underestimated. Some of the known benefits of morning sun are; improved immune system, better mood, better sleep, lower blood pressure and promotion of the production of vitamin D. Think of the morning sun like winding up a clock, the internal circadian clock of your body.
It’s important to outline these benefits because for people who use wheelchairs or other mobility devices, the real benefit of a morning walk is the sunshine and its impact on your health. Nor does it have to be walking, any activity outside would yield similar benefits and set the day off right.
He kept this routine up and within a year had lost close to 8kgs! Even better, this is a habit he has kept to this day11 years later.
JUST GO OUTSIDE
As an inclusive health and fitness
professional I get a lot of questions from parents about supplements or ‘hacks’ to help their families get healthier. Many of them mention their kids being addicted to the screen, playing games and being lethargic. So, they’re often surprised by my immediate advice to go for a walk or do an outdoor activity in the morning.
I often feel like they’re disappointed by the simplicity and how boring that advice
is, hoping instead to hear about an ancient root or plant that grants superpowers, or a radical shift in routine. But the reality is, many aspects of living a healthy life is adhering to simple protocols consistently and for a while. Which is why choosing exercises and habits that are sustainable and can adapt with you and your family is so important. A walk (or any outdoor activity) in the morning is one such habit. Another example; I have a young client who had no interest in exercise and her sleep patterns were all over the shop. This led to challenging behaviour and lethargy during the day, playing PlayStation for hours non-stop. This spilled over into her schooling and everything was getting very difficult for mum to manage. After discussing some ideas, we decided on her and mum walking to school every morning. Some bribes were required to get the ball rolling to be sure, but over time the routine stuck! The results? Her sleep improved as did her mood, which made other changes easier to implement.
So, with Spring springing and summer just around the corner, take advantage of the amazing benefits sunshine has to offer and get the family outside every morning. In a sun-safe manner obviously.
Tommy Trout, Inclusive-AF, inclusive-af.com
SOURCE DISABILITY EXPO
FOR KIDS, TEENS + YOUNG ADULTS
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ADELAIDE 22-23 FEBRUARY
Adelaide Convention & Exhibition Centre
MELBOURNE 11-12 APRIL
Melbourne Convention & Exhibition Centre
BRISBANE 4-5 JULY
Brisbane Convention & Exhibition Centre
SYDNEY 18-19 JULY
Sydney International Convention Centre
PERTH 1-2 NOVEMBER
Perth Convention & Exhibition Centre
& Watches Reads
CHILD IS NOT BROKEN
An unapologetic, deeply moving manual for parents of neurodivergent children from Heidi Mavir, a late-identified, neurodivergent adult and parent to an autistic/ADHD teenager. This updated edition includes information on Pathological Demand Avoidance, Rejection Sensitivity Dysphoria, an interview with Heidi’s son Theo and more. amazon.com.au
AUSTIN
A best-selling, but recently cancelled, children’s author has a meltdown when approached by Austin, a neurodivergent 20-something claiming to be his son. He then realises that embracing the young man may be the path to redemption.
ABC’s new comedy series features autistic actor Michael Theo, from the reality dating series Love on the Spectrum in the titular role. ABC iView
CHAMPIONS
Woody Harrelson stars in this hilarious, heartwarming story. Facing court-ordered community service, a scornful basketball coach reluctantly trains a scrappy team of players with intellectual disabilities. Netflix
KLIM
Michael Klim is a renowned Australian swimmer, Olympic gold medallist and successful entrepreneur. His illustrious career in the pool spanned seventeen years. He competed in three Olympic Games and won six medals, including two gold. But Michael Klim’s impact extends far beyond the pool. Since 2020, Michael has lived with a rare autoimmune disorder, chronic inflammatory demyelinating polyneuropathy (CIDP). He has established the Klim Foundation to provide support to sufferers and champion the search for new treatments. From the heights of Olympic glory to the depths of personal adversity, KLIM is a testament to the power of passion, perseverance and the unsinkable human spirit. amazon.com.au
Large bodysuits to assist everyday living
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• range includes back-zips & tummy access styles for tube feeding
• available in sizes for kids & adults (great for aged care)
• soft fabric & tag-free to minimise irriation
• swimwear, bibs, bandanas & bedding protection also available
FEARLESS FILMS
Four short films showcase fearless Australians living with disability through the eyes of regional filmmakers - bold, daring, and extraordinary, these people smash all disability stereotypes. ABC iView
BIKES & TRIKES
ALSO CHECKED OUT MOBILITY
EGUIDE?
sourcekids.com.au/atguide
PETRA FRAME RUNNERS
Manufacturer: ConnieHansen | Supplier: RTD Australia
Weight: Up to 120kg | Height: N/A
• The Petra Frame Runner is designed for multiple activities including basic mobility, play, family rides, sport and physical fitness.
• Available in seven sizes, catering for ages 18-months to adult, with a wide range of support options to suit all abilities.
• Rolls so freely that even children and adults using power wheelchairs can propel themselves by their own efforts. ROOM TO GROW
ADAPTIVE TRICYCLE
Manufacturer: Rifton
Supplier: APEX Mobility, Medix21 Australia
Weight: Up to 90kg | Height: N/A
• The Rifton trike provides the therapeutic benefits of cycling including lower extremity strengthening, balancing skills, visual/spatial perception and social development.
• There is a hidden stop to prevent oversteering, and a low gear ratio that helps to slow the trike down.
• Features large, puncture-proof BMX-type wheels that are easy to use outdoors and indoors. No-tool adjustments make it easy as the child grows.
RAD FRAME RUNNER
Manufacturer: Freedom Wheels
Supplier: Freedom Wheels
Weight: N/A
Height: Up to 200cm
• Increase your cardio fitness running in a frame runner. Stretch your legs, be fit and healthy in the park or compete on the track.
• Lightweight aluminium frame for easy movement.
• Wide range of seat and support options to suit every individual.
MUSKATEER ADAPTIVE TRICYCLE
Manufacturer: Everybody eBikes
Supplier: Everybody eBikes
Weight: Up to 60kg | Height: Up to 150cm
• Rear steer with controls on handlebar or rear steer and can be supplied as mechanical or electric.
• Postural supports including back, head & lateral supports.
• Able to be configured as a standard trike without rear steer and/or postural supports.
MOMO TRICYCLE
Manufacturer: Schuchmann
Supplier: APEX Mobility
Weight: 40 to 120kg
Height: N/A
• The Schuchmann Momo trike is beautifully designed to provide both therapeutic and riding pleasure with features that optimise comfort and ease of pedalling.
• Low centre of gravity, ultra-low bar and wide frame makes it easy to get on and off the trike safely and independently.
• Multi-directional seating adjustments, available in six sizes to suit all ages and a selection of frame colours.
BALANCE ROOKIE BIKE
Manufacturer: Kidvelo Bikes
Supplier: Xchange Sports Australia, Kidvelo Bikes Australia
Weight: Up to 30kg | Height: N/A
• The Rookie Balance Bike helps toddlers as young as two learn how to ride a bike without needing stabilizers or training wheels.
• Lightweight, with an adjustable seat range of 30-44cm and comes in four bright neon colours.
• Learning balance before pedals are introduced speeds up the transition to a pedal bike - it is far easier to learn one new skill than three at one time (such as balance, pedalling and braking).
A Y TRIVEL 350
Manufacturer: Trivel
Supplier: Alivat
Weight: Up to 110kg | Height: N/A
• Long lifecycle, simply remove, add or adjust components and the trike will adapt as your child grows.
• Low centre of gravity and multiple stabilsation options so is an excellent choice for kids with motor challenges.
• The Freedom Wheels Voyager provides a low step-through frame.
• Suitable for teens and adults who are independent riders, have good safety awareness and can pedal without hip and trunk support.
• Support includes outriggers to provide stability. Outriggers are wider and stronger than training wheels and much more flexible, for a smoother, quieter ride.
IMP, TERRIER AND TMX TRIKES
Manufacturer: Theraplay
Supplier: RTD Australia
Weight: 32kg to 90kg
(available in 3 sizes)
Height: N/A
• Theraplay trikes are modular and adaptable to the rider’s needs, with optional positioning accessories to provide comfort and support if the rider needs it.
• Multiple gearing options available, including freewheeling option, when fatigue occurs.
• The Terrier and TMX are foldable and have the ability to be hitched to a family member’s bike.
SUPPLIERS
For a full list of suppliers, please scan QR code.