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HELLO
It seems like I make this observation every year, but seriously, where did this year go? We're on the brink of Summer, Christmas is just around the corner, and it feels like we've barely caught our breath! The year 2023 has been a whirlwind for everyone, and here at Source Kids we’ve ticked off five expo events in different states, four magazine issues, a flood of nearly 100 email newsletters & updates, three eMagazines, plus an Assistive Tech eGuide. Phew, it's been an incredible ride! As we gear up for a well-deserved break during the festive season, we hope you're looking forward to some relaxation too. Our final magazine for the year is here, and it's a beauty! It’s been on our bucket list for a while to put the spotlight on young people with visible and invisible disability and the inspiration they are to others when they see someone like them on the screen or some other impressive feat. Katherine Granich delves into how disability is portrayed on the screen and what the future of disability representation looks like for Australian media. We're also thrilled to feature Cooper Smith, a budding DJ whose career is skyrocketing, plus we share some social media accounts worth following. There's so much goodness in this feature - we hope you enjoy it along with the rest of our content in this jam-packed summer edition. We would like to wish all our Source Kids community a wonderful Christmas and festive season, thank you for supporting Source Kids this year and we can’t wait to bring you some new and wonderful things in 2024. Sending much love,
52 42 Use your pool noodle
56
48 12 days of Christmas: Autism
contents SUMMER 2023
Emma x
PRODUCT EDITOR: Kelly Wilton HEAD OF SALES & BUSINESS DEVELOPMENT: Matthew Rainsford, matthew@sourcekids.com.au 0409 418 362
56 T’s the season for merry making: Christmas craft
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Learning to be
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18 Meet DJ Cooper
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4 SO U RCEKI DS .CO M . AU
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EMBRACE YOUR BODY 2023 Australian Book of the Year. Taryn Brumfitt is the fiercely passionate thought leader behind the Body Image Movement and director of Embrace the documentary. She is determined to inspire everyBODY to celebrate
A CURE FOR VIVIAN A little girl called Evelyn goes in search of a cure for her baby sister, Vivian, who has an unknown illness. Evelyn encounters three mysterious creatures who each give her a golden magical gift. A heart-warming story with a beautiful message. namdarbooks.com.au
their body, regardless of size, colour, ethnicity, gender or ability. This picture book encourages everyone to love who they are, inside and out. bodyimagemovement.com
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LEGO – A CASTLE FIT FOR ANY AUSSIE F A M I LY Who can’t resist Lego, especially over the long school holidays? With it being the celebration of 100 years of Disney this year, we couldn’t go past the Disney Castle set for the more experienced Lego builder! shop.legolanddiscoverycentre.com.au
I SSU E 37 | SU M M ER 2023 7
The power of seeing
“ME”
All children deserve to see themselves represented in the characters on their favourite TV shows, movies, and even commercials. Katherine Granich delves into how disability is portrayed onscreen – and what the future of disabled representation looks like for Australian media.
Dougie
8 SO U RCEKI DS .CO M . AU
much under‑represented in TV drama compared to the Australian population and seven in 10 titles feature no main characters who are disabled,” the study states. So what’s being done to increase disability representation on our screens, and who is leading the way in this space?
REPRESENTING INCLUSIVITY “When we launched, disability wasn’t featuring anywhere, whether in advertising, fashion, beauty, commercials, TV, film – it was pretty much non-
existent,” says Laura Winson, Director of the Zebedee (zebedeetalent.com/ aus), the inclusive talent management agency she co-founded in 2017. “It was unbelievable that this huge group of people didn’t have access to any sort of representation at all.” Zebedee launched in the UK and now represents over 1,300 disabled, visibly different, nonbinary, and trans clients worldwide, with around 100 – and Ellie Goldstein
Laura Winson and Zoe Proctor of Zebedee Talent
@DAVIDPDYDE FOR GUCCI X VOGUE
W
ho is your child’s favourite TV character? According to a 2023 report by Screen Australia, only 6.6% of the main characters we see portrayed on local productions are disabled, so chances are your child’s onscreen hero appears typical and able. Disabled characters do occasionally appear – season three of Bluey featured a deaf cavapoo named Dougie, who communicates using Auslan – but are nearly always relegated to the background, in supporting or short-term roles, or with their disability posited as the most distinguishing thing about them. With nearly 20% of Australians having a visible or invisible disability, this number is shockingly low, but Screen Australia admits it’s an increase on the numbers their 2016 study uncovered – it was 3.6% back then. In children’s programming specifically, levels of disability representation is even lower – 3.8%. “The rate of disability representation among main characters has improved, but from a low base. Disability remains very
Zebedee Talent- modibodi
DISABILITY REPRESENTATION
Rae Pastuszak
Z
de eb e
le e Ta
n
po t- S
r ts
g ir l
growing – here in Australia. Their talent and being more inclusive, especially in have featured in ad campaigns of wellAustralia recently. It’s moving in the known brands like Google, Samsung, La right direction. At the time we founded Roche Posay, Rebel Sport, P+O Cruises, Zebedee, around 0.6% of advertising Bonds, Woolworths, Target, and a number campaigns featured disabled people. of other household names. And in the six years since, it’s climbed to “Being able to see someone with a around 1%, which is a big shift,” Laura disability, someone who looks just like says. “But with the disabled population them, and represents them, has a huge thought to be around 20%, we still have impact on people’s self19% to go.” At the time we esteem and self-worth,” founded Zebedee, Laura says. FOCUS ON around 0.6% “One of our models – TALENT of advertising Ellie Goldstein, who has One of the difficulties of campaigns featured the screen industry is that, Down syndrome – was disabled people. on the May 2023 cover rather than the disabled And in the six years actor’s performance of British Vogue. She was also the first disabled since, it’s climbed to taking the starring role, around 1%, which is their disability seems to be model to feature in a a big shift,” Laura Gucci Beauty campaign. the reason they were cast. says. “But with the While it’s important to Her picture was one of disabled population see disability represented Gucci’s most-liked social media posts ever. That, authentically onscreen – thought to be to me, is evidence that around 20%, we still the industry has a long people want to see and and disappointing history have 19% to go.” engage with disability in of casting abled actors to the beauty industry. That is powerful.” play disabled characters – disabled actors Laura is proud that her own children are, first and foremost, actors who are are growing up in a world where disability there because they’re talented, and the best is seen as “mainstream” – that disability choice for the role. Case in point: Actor is part of the world we all live in, and that Rae Pastuszak, who has Down syndrome seeing people with visible differences is and and is the face of insurance company nib’s should be normalised across the board. popular new TV commercial. She also avoids the term “diversity”, Rae, whose acting experience spans preferring “inclusion”. “Inclusion is a more several short films as well as TV and encompassing concept,” she explains. online ads, says her experiences on set “The industry seems to be getting it, have been largely positive – her job search,
PHOTO CREDIT MARCUS WALTERS
not so much. “I have had good experiences with crews and co-stars. They’ve asked if I need anything to assist or support me, and everyone has been very welcoming. The harder part is finding roles to audition and be cast in.” Rae’s mum Dianne agrees. “The roles that Rae is approached for or cast in are generally for things like disability services or photo shoots where the role is for a ‘person with a disability’. “But Rae would also like the opportunity to be cast in roles that don’t make disability the focus of her story. She doesn’t talk about her disability all the time and it isn’t the most important part of her – she just wants to get on with living life. To quote her: ‘I am normal!’ We think when the film and television industry reach that point, it will feel normal and totally inclusive.” The nib advert, however, doesn’t draw attention to Down syndrome at all; Rae portrays a nib employee, dressed in businesswear and preparing to meet a client. For a change, disability isn’t the focus of the story, and Rae’s talent shines. “People who have seen the ad have told me how believable I am as an nib employee and how professional I look,” Rae smiles. “So I guess the ad worked!” I SSU E 37 | SU M M ER 2023 9
DISABILITY REPRESENTATION
CALLING FOR A SHIFT
BEHIND THE SCENES The concept of “nothing about us without us” is integral to the work of Bus Stop Films (busstopfilms.com.au). “Our work is to educate, create, and advocate,” says Tracey Corbin-Matchett OAM, the organisation’s Chief Executive Officer. “Educating through our accessible film studies programme, creating beautiful inclusively made films, and then Tracey Corbin-Matchett
advocating for change in the screen industry, to build that confidence in an industry which is very exclusive.” Bus Stop’s accessible film studies programme is a year-long programme taught by industry professionals, giving young adults with mild to moderate intellectual disabilities and autism a grounding in all aspects of filmmaking, culminating in each class producing a short film that’s shown at festivals and on TV. It started in 2009 in Sydney, and this year they have 180 participants in 18 classes across 10 locations – next year they will add three more locations and be almost nationally available. Tracey believes that content is a most powerful medium for social change, and that incorporating disability into every part of a production is an essential ingredient in enacting that change. “Who’s behind the camera really impacts what we see on screen,” Tracey explains. “It’s an industry that employs a myriad of people in a myriad of roles. When we embed disability into those crew roles, that really changes the lens for what we see onscreen. And it should be open to all of us.” Tracey is the mother of a Deaf child, and herself is a part of the Deaf community. “It is so, so important to be able to see ourselves onscreen. To be able to see people wearing hearing aids on screen – to not have them covered up or shameful – that is incredibly important,” she says. “I’m really active in and proud of the Deaf community, and to be involved in this industry, to help bring disability to the screen, is a very powerful thing.” With nearly 4.5 million disabled people in Australia, and only a fraction of that represented onscreen, it’s a medium that’s ripe for education, connection, and aspiration – not inspiration, Tracey cautions, mindful of the difference. “A well-told story can change the world,” she concludes. “If you’re a creative person, having a disability shouldn’t stop you from being involved in the creative side of the screen industry.” ----By Katherine Granich
*
2023’s most-hyped movie of the year was, without a doubt, Barbie. With a budget of $145 million and Greta Gerwig directing, it explores gender stereotypes, oppression, and opportunities for change – and includes three visibly disabled characters. Wheelchair Vet Barbie, Bionic Barbie, and Deaf Barbie all make appearances although, regrettably, their parts are nonspeaking. Ashley Young
nib is one of 10 Australian companies who have signed on to Shift 20 Initiative (shift20.org), a coalition of brands working towards increased representation, inclusion, and accessibility in marketing and communications. Launched in September by the Dylan Alcott Foundation, Shift20 aims to transform disability representation and normalise seeing and hearing people with disability in advertising and media. The organisation has worked with wellknown brands to replace the talent in over a dozen well-known TV commercials with people who have visible and non-visible disabilities – including disabled people working behind the camera, too. That’s a lesser-known deficit of the screen industry; how many stories which include disabled characters are being conceptualised, written, filmed, produced, and worked on by disabled professionals?
The bigger picture on the big screen
Ashley Young, who plays Bionic Barbie – a Barbie with a limb difference – said in an interview, “Growing up, I didn’t have any sort of role models or any kind of dolls that looked like me, so hopefully this next generation of kids with limb differences, amputees, they can see me in this movie and think this is possible for them as well.” In the international film industry, the big picture is still somewhat grim. According to a 2019 study, only 2.3% of speaking characters in the 100 top-grossing films of that year were disabled. Perhaps post-pandemic, with more focus on inclusion, we’ll see improvement – and more disabled Barbie dolls for our kids to play with, too.
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Inclusive social media:
Disabled Influencers & Creators It’s wonderful to watch the growing disability representation on social media, with a diverse array of voices emerging for our young people to learn from, look up to or simply be entertained by people just like them. Whether you have a teenager or young adult exploring various platforms or you’re looking to widen the diversity of your own feed, we’ve compiled a list of great accounts to follow.
MADELINE STUART Dubbed by the press as not only a supermodel, but “the world’s most famous model with Down syndrome”, this talented young woman from Brisbane has had astonishing success in the short time she has been modelling, and has captured media attention both here in Australia and internationally. You can follow Madeline’s journey on Facebook and Instagram. madelinesmodelling_ madelinesmodelling
THE VALENTINE BROTHERS (ZACH & PAT) Zachary Valentine has Down Syndrome and alongside his brother Pat, has amassed a following of over 8M on TikTok. Loved for the gorgeous relationship they display and their fun dance, comedy and lifestyle content, this American duo are committed to sharing their experiences of living with Down syndrome, answering user-submitted questions, and offering insights into their daily lives and close-knit family relationships. @valentinebrothers valentinebrothers 14 SO U RCEKI DS .CO M . AU
DISABILITY REPRESENTATION
RAE GREEN Rae is a 22 year old blind TikToker and YouTuber inviting us to experience life through her eyes. She uses her platform to discuss make-up, fashion, food, and of course, blindness. @raegreen135
DAMION GROSS An aspiring model and actor, Damion’s lifestyle and dance videos have earned him over 3.2M followers on his TikTok account. He uses his social media presence to document his life and spread awareness about living with cerebral palsy. @itsdamiong itsdamiong
THE BAKER FAMILY
RIKKI POYNTER Rikki Poynter is a disabled content creator, consultant, and public speaker on YouTube. She makes content about deaf awareness, accessibility/closed captioning awareness, mental health, feminism, and more. Since making her first deaf related video on October 1st, 2014, Rikki has been featured on mainstream media outlets around the world including the ABC and BBC. @rikkipoynter
DJ COOPER SMITH As outlined in our profile on page 18, Cooper, who has cerebral palsy, is a talented young DJ on the rise to fame in Australia and beyond. djcoopersmith/ @djcoopersmith
The Baker family from St Louis, Missouri is a family of five social media sensation with over 3.1M TikTok followers. The two sisters, Jenna and Katy manage their platform, Baker Banter with their brother, Derek, who is 26 years old and has Down syndrome. They started Baker Banter to try to give the rest of the world a glimpse into the life of a family like their, creating lots of fun videos capturing their family dynamics. @bakerbanter @BakerBanter bakerbanter
DYLAN ALCOTT An incredible Australian who needs no introduction. Follow Dylan’s socials to keep up with his multitude of projects and advocacy work for our disabled community. dylanalcott/ @dylanalcott
PURPLE ELLA THE ASPIE WORLD Another autism influencer with a huge YouTube following, Dan at the Aspie World talks about living with Asperger’s, ADHD, OCD & Dyslexia. TheAspieWorld
TESS DALY Tess is a fashion and beauty influencer from Sheffield in the UK who has Spinal Muscular Atrophy type 2. She uses her Instagram to give make-up tutorials and work with brands to champion inclusivity within the beauty and fashion industries. tess.daly @tess_daly
Actually autistic adults are able to give great insight into the lives of our autistic children. Disabled content creator, disability public speaker and a parent herself, Ella is brilliant at explaining autism particularly in girls and children. @PurpleElla @purpleellaandcoco
BAYLEN DUPREE Expect lots of very NSFW language as Baylen does a brilliant job of both entertaining her followers and raising awareness of living with Tourette’s syndrome. 21 year old Baylen has amassed a following of over 7M on TikTok with her refreshingly honest and unapologetic content highlighting her Tourette’s and the way it affects her life. @baylen.dupree baylen_dupree I SSU E 37 | SU M M ER 2023 15
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is changing and becoming more accessible. “If I look at someone else DJing, it’s hard and really creative, but when I look at Cooper doing it, it’s even more amazing. So much concentration, balance and coordination is required for him to stand up, let alone use his hands to DJ and dance as well. He only started walking independently about eight years ago, so he gets exhausted,” commented his mum, Bron. About six months ago Cooper put a shout out on Instagram for anyone that could help him. Tom Evans, who happens to be one of Cooper’s favourite Melbourne DJs got in touch and they now get together once a week. Whatever musical ideas are in Cooper’s mind, Tom can be his hands on the equipment. “Cooper was studying music production at TAFE, learning the same things as he’s getting from Tom, an industry expert, on a 1:1 basis in a much more fun, experiential way,” said Bron. He’s DJ’d at CPA events in Melbourne including STEPtember, with CPA feeling so lucky to have had him participate, given he and Tom just landed a record deal to produce music together, and Cooper now
COOPER SMITH IS A BIG ADVOCATE FOR INCLUSION. AS A BRAND AMBASSADOR
how to adapt the equipment, and technology
has an agent, Thick as Thieves, to manage his “He’s pretty determined in that way, his
bookings; he’s a young man much in demand!
FOR CEREBRAL PALSY ALLIANCE AND
mum Bron commented. “He likes to prove
Looking ahead, Cooper’s excited about a
A STEPTEMBER PARTICIPANT, HE RECENTLY
people wrong. Like if the doctors say you
festival called Beyond the Valley which he will
PARTICIPATED IN CPA’S STEPTEMBER
probably won’t walk then the next thing he
be playing at the end of this year, just outside
ADVERTISING CAMPAIGN “A LIFE CHANGING
starts walking.”
Melbourne on the Great Ocean Road. And
MOVEMENT”. Cooper also works with City of Melbourne as an accessibility consultant. A lifelong passion for music and COVID lockdown hobby turned into a busy DJ
His school teacher thought Cooper needed some proper equipment, so they contacted the Dylan Alcott Foundation. Dylan and with his setup and it’s just gone from there.
and doing what he says he’ll do. His advice to
is in hot demand in the music industry,
right place at the right time. He just makes
rubbing shoulders and mixing tunes with
thing happen.” his mum commented.
Cooper loves music and how it enables him to communicate and express himself and do things – like standing and dancing for two
Cooper’s motto is never give up; he’s passionate about persistence, showing up
“He’s always got a knack of being in the
Melbourne’s Eric Powell.
Australian tour.
Angus got in touch with Cooper and helped
career, an agent and record label. Cooper
the likes of the legendary UK DJ Carl Cox and
next year he’s hoping to do a European and
Although Cooper believes that hard work
people with disability is: “If you’re trying your best and positive about your disability, not complaining about the situation and feeling sorry for yourself,
counts for around 40% of his success,
then people are more likely to support you
he puts making things happen down to
and want to be around you. People are more
manifesting.
likely to help with someone with a disability if
Cooper finished school in year 11 last year.
they have something in common.”
hours – which he didn’t think were possible.
Everyone decided that it would be better for
-----
He has cerebral palsy and finds some
Cooper’s mental health not to do year 12, and
You can watch the recent ad campaign by
movements and speech challenging, but his
as he was getting so many opportunities with
Cerebral Palsy Alliance featuring Cooper
disability is just a small part of his identity.
music gigs, it seemed a better idea for him to
here - cerebralpalsy.org.au/great-minds-
pursue that.
think-differently and also visit the CPA
Cooper started practising DJing on his
He has dystonic CP which means that
website: cerebralpalsy.org.au to find out
morning and just decided he was going to
movements happen without his control, so
about all the ways they support families
do it.
it makes DJing really tricky. But he’s learned
living with cerebral palsy.
iPad during lockdown; he woke up one
18 SO U RCEKI DS .CO M . AU
DISABILITY REPRESENTATION
Loop
What to WATCH
Raising Dion
Hardball
These films and shows all include authentic disabled characters
LOOP (DISNEY+) In this beautiful Pixar short, “Loop” tells the story of a non-speaking autistic girl named Renee and a chatty boy named Marcus who is assigned to help her get to her destination on a canoeing trip. The film explores themes of communication, understanding, and empathy as the two characters learn to connect and find a way to communicate despite their differences.
RAISING DION (NETFLIX) “Raising Dion” is a sci-fi TV series based on a comic book and short film. It follows Nicole, a single mother, as she raises her son, Dion, who develops superhuman abilities after his father’s death. The show revolves around the challenges of keeping Dion’s powers a secret and protecting him from potential threats. In the show, Dion has ADHD and asthma and his best friend, the sassy Esperanza, uses a
The Healing Powers of Dude
wheelchair and has a hearing impairment. Esperanza is played by the young actor and disability advocate Sammi Haney who has Osteogenesis Imperfecta Type III.
THE HEALING POWERS OF DUDE (NETFLIX) Another Netflix show for all the family, The Healing Powers of Dude centres around an 11-year-old boy named Noah Ferris, who has social anxiety disorder, and his emotional support dog, Dude. The show sensitively, and with gentle humour, addresses the challenges Noah faces in social situations, particularly at school, and how having an emotional support animal, like Dude helps him cope. Physical disability is also represented as
Keep an eye out for… We recently heard about a new kids TV show which is due to be released in the US next year. ‘Hop’ follows an eclectic group of besties whose comedic adventures teach pre-schoolers about embracing their own uniqueness. Led by Hop, an enthusiastic, empathetic frog with one leg shorter than the other, he and his quirky friends address kid-relatable problems with a healthy dose of laughter, silliness and adventure. Hop is played by actor David Connolly, the first amputee to perform in a Broadway production. Filipa the squirrel, another character on the show, is neurodivergent and dislikes loud noises and crowded environments. The young animal pals live in a fictional town called “Fair Village” where everyone is equal and valued for their unique qualities. It sounds fab, so let’s hope it gets picked up to air here in Australia.
Rising Phoenix
Noah’s friend, Amara, is a wheelchair user. Amara is played by teen actress, Sophie Kim; Sophie was diagnosed with Ullrich Congenital Muscular Dystrophy when she was two years old and has been using a wheelchair since the age of four.
HARDBALL (ABC) “Hardball” is a homegrown TV show that burst onto the screen with a fresh and vibrant take on the world of schoolyard antics and camaraderie. The show revolves around Mikey, a 12-year-old with cerebral palsy who possesses an unyielding spirit and a head full of entrepreneurial dreams. Set in the diverse neighbourhoods of Western Sydney, “Hardball” portrays the daily adventures, challenges, and triumphs faced by Mikey and his friends as they navigate the rollercoaster of pre-teen life.
RISING PHOENIX (NETFLIX) This documentary provides a deep and moving exploration of the Paralympic movement, its history, and the exceptional athletes who have shattered stereotypes and defied odds. Through poignant interviews and breathtaking visuals, “Rising Phoenix” follows nine Paralympians in the run-up to the Paralympics in Rio in 2016 and highlights the extraordinary determination and resilience of the athletes as they compete on the global stage. I SSU E 37 | SU M M ER 2023 19
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I SSU E 37 | SU M M ER 2023 21
DOWN SYNDROME in the spotlight BCYC Magic Toyshop
Following Down Syndrome Awareness Month which took place in October, Australia’s Down syndrome community is poised to take centre stage again in July 2024, as the eagerly anticipated World Down Syndrome Congress convenes in Brisbane. 22 SO U RCEKI DS .CO M . AU
T
o gain a deeper understanding of the evolving landscape surrounding awareness, acceptance, and advocacy, we chatted with Cally Ward, proud mum to Sarah, a 14-year-old who has Down syndrome. Cally wears three hats; an everyday mother to a teenager, an advocate for Sarah as a person with disability, and as an advocate for the community through her role as a director of Down Syndrome Queensland (DSQ ). As one of six voluntary DSQ board members, she plays a crucial role in shaping the organisation’s strategy and goals.
AWARENESS When asked what awareness raising now means to Cally, she told us, “Because it is the most common intellectual impairment, Down syndrome arguably needs the least amount of pure awareness raising. And I say that from the perspective of knowing friends whose children have rare disorders, perhaps one in 50,000. In reality, an average Australian would need to be living under a rock to not come across people with Down syndrome in everyday life. Awareness for our community has moved into a different space. For me awareness now translates as acceptance and an evolving conversation we want to have with the general community”.
A PARENT’S ACCEPTANCE “Acceptance to me means appreciating and valuing what Sarah contributes to the community and not trying to repackage her into a neurotypical box. This has been a journey as much for me, as it has for our community. Prior to being Sarah’s Mum, the core values that were drummed into me by my parents were being compliant, responsible and punctual. All those values are irrelevant to me now, but they still underpin my basic psyche, so I struggle with this every day. Punctuality is a classic example. Sarah is a teenager who wants choice and control in her life. She demonstrates this by being ready for an event on her terms, when she’s ready. We get there when we get there. I can’t make Sarah punctual, so in the words of Elsa, I am trying to Let It Go, accept Sarah for what she is and adapt my expectations and lifestyle to fit her.
COMMUNITY ACCEPTANCE Moving on from my own personal acceptance of Sarah, the next step for me is creating a community around Sarah which values her and her contribution. In our everyday lives, two groups of people have welcomed Sarah and support her to live her best life. First, the local bowls club, with its diverse group of patrons have embraced
DOWN SYNDROME
World Down Syndrome Congress 2024 in Brisbane
Titans - Best mates!
Sarah with open arms. The regulars is a very different age profile to what we love Sarah and her passion for music and have today. Historically, life expectancy performance. They cheer when she sings; has been poor, primarily because today’s they get up and dance with her. Their older generation were brought up in support has allowed us as parents to relax institutions and didn’t have access to and let Sarah be herself, exploring her good health care. The next age cohort boundaries in a safe environment where have flourished in a supported family everyone knows and accepts her. environment, resulting in a generation of Secondly, the local NRL team, the Gold people with better health and greater life Coast Titans, have created expectancy. This is wonderful “Acceptance a wonderfully inclusive and as it should be, mirroring community where diversity increasing life expectancy in to me means is supported and celebrated. mainstream society”. appreciating This starts with the team and valuing itself and the work they do WHERE TO NEXT? what Sarah every day in the community, contributes to Through DSQ , the focus but the real benefit is when is on the implications of the community an ageing population. their leadership spills over and not trying Cally says, “In 20-30 into the general public. to repackage years, people with Down her into a ADVOCACY syndrome will have Cally’s formal advocacy on different needs in terms of neurotypical behalf of the Down syndrome support and care, when box.” community occurs through you factor in the reality her role on the DSQ Board. that most people will outlive their Her personal mission is to create the best parents. At DSQ we are considering opportunities possible in the long term for what that future looks like and the the Down syndrome community. conversations we need to have with Cally says, “I work in infrastructure and government and its agencies, to to plan and design, we look 20-30 years plan and design for that future. It’s into the future. When you do that in the wonderful to have the opportunity to Down syndrome population, what you find contribute to the debate”.
The World Down Syndrome Congress takes place in Brisbane in July 2024, bringing together people with Down syndrome, family members, researchers and service providers to showcase the latest research and best practice as well as the lived experience of Down syndrome from around the world. Cally says this is an amazing opportunity for our Australian community to unite with the global community, to learn and hear the latest in research and trends. “I urge everyone to sign up for updates and plan some winter sun in Brisbane!” This is going to be a once in a lifetime opportunity to attend Congress in Australia. Not only can you attend Congress, but everyone is also welcome to participate through running workshops, talks, exhibiting art work, and more. If you would like to participate, or register to attend, please visit: wdsc2024.org.au
I SSU E 37 | SU M M ER 2023 23
Ask a PLAN
MANAGER! Understanding goals and the NDIS.
Setting goals is a crucial aspect of the NDIS journey. It can make a world of difference in securing the right support for your child in their NDIS Plan.
T
hink of goals as your roadmap, guiding you and your child towards harnessing their strengths and making better choices together. Curious about how to navigate goal setting with your child? Tabitha, our friendly plan manager from Leap in! is here to answer some common questions about children, their goals, and how they connect with the NDIS.
What is a goal? A goal is a specific target or objective that someone is striving to reach and willing to work towards. They provide a clear direction and purpose, helping us stay focused along the way. You can think of goals as being like building blocks that help us construct the life we want. Just like smaller blocks stacked together eventually form a building, each smaller goal accomplished helps to create a foundation for bigger achievements for your child.
How do goals work in an NDIS Plan? Setting goals is part of developing your child’s NDIS Plan. Goals give the NDIS information about what’s important to your child and what they want to achieve in life. For an NDIS Plan to be approved, it must include at least one goal. You can add up to four action steps of how your child will achieve their goal. Each goal
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I N A S S O C I AT I O N W I T H
should include details about how the NDIS and other supports (like family, community and mainstream supports) will help. Your child’s goal or goals will be included in their participant statement as part of their NDIS Plan. Supports can be added or removed as needs and goals change. And you can change your child’s goals at any time.
I’ve heard that the NDIS likes participants to set “SMART” goals. What are these and how do we set them? The SMART goals process is helpful for people on the NDIS as it allows for clear, measurable and meaningful goal setting. SMART goals have five characteristics. They should be: • Specific – clearly defined • Measurable – easy to track • Achievable – realistic • Relevant – aligned with the child’s interests and needs • Time-bound – with a timeframe for accomplishment. When setting SMART goals, work through the five characteristics, one step at a time. Then create a one sentence statement that brings it all together. For example: By December next year, with the support of my therapist, I will have developed coping strategies to manage anxiety in social situations so I can comfortably spend time with my friends and engage in social activities.
Can you please explain shortterm and long-term NDIS goals? Sure! Short-term NDIS goals can be achieved in a relatively short period of time, usually less than 12 months. They can help your child make progress and build momentum. An example of a short-term goal is: In the next three months, I want to build the strength in my fingers and improve
coordination so I can clean my teeth properly without help. Longer-term goals require more time and effort. They may even take several years. Breaking them into smaller steps makes them more achievable. An example of a long-term goal is: By the end of next year, I want to attend my local primary school with the right support to help me make friends and be an active part of my class.
How can I involve my young child in goal setting? Depending on their age and abilities, encouraging active participation can help your child to understand the purpose behind the goals. Not to mention take proactive steps to achieving them! Start by talking about what they’re good at and where they need assistance. Focus initially on small, achievable goals where they can make meaningful progress. And don’t forget to celebrate all the wins, no matter how small!
What types of goals are suitable for a school-aged child’s NDIS Plan? It’s a good idea to prioritise functional goals, especially for primary school children. Consider goals that will have a practical impact on the child’s daily life and education. If your child struggles with handwriting, a functional goal might be to improve writing to complete school work independently. You may also like to align goals with your child’s strengths and to help keep them motivated and engaged. For example, if a child enjoys music, set a goal related to music therapy or learning a musical instrument. Another common goal for kids at school is self-advocacy to improve independence and confidence. Set goals for your child to express their needs and
preferences. Steps may include building effective communication with peers and teachers and learning to seek support when needed.
Do you have any advice for getting funding for goals in my child’s NDIS Plan? Firstly, be clear and specific. Ensure goals are well-defined and aligned with the NDIS eligibility criteria. Be clear on what your child is aiming to achieve and how the supports will benefit them. Don’t forget to provide relevant evidence and supporting documentation, such as medical reports, assessments or professional recommendations. And, spend some time reviewing and understanding NDIS budget categories. Ensure goals fall within the appropriate category to maximise the chances of funding approval. Don’t forget that every support purchased with NDIS funds must meet the reasonable and necessary criteria. It must be related to your child’s disability needs, be good value for money and be likely to be effective and beneficial.
Scan here for more information about understanding goals
DO YOU HAVE A QUESTION YOU’D LIKE US TO ANSWER IN THE NEXT EDITION OF SOURCE KIDS? WE’D LOVE TO HEAR FROM YOU. SEND YOUR QUESTION TO MYSTORY@LEAPIN.COM.AU
I SSU E 37 | SU M M ER 2023 2 5
A RARE DIAGNOSIS
24-year-old Maya is mum to Lloyd (6). She is a recent university graduate, admin for Swan (Syndromes Without A Name) and owns RareWear – an adaptive clothing brand for children.
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How did you first become aware that there might be a concern about your child’s health or development? What were the early signs that led you to seek a diagnosis? I had a difficult diagnosis journey with Lloyd as I was just 18 years old when I gave birth to my little guy and was constantly undermined by medical professionals due to my age. When he was around 4 months old, I noticed that Lloyd wasn’t meeting his developmental milestones, and this became even more obvious by the time he was six months. He didn’t engage with toys, wouldn’t attempt to roll and wouldn’t
tolerate pureed food. When Lloyd was 8 months old, I took him to the MCHN but I was dismissed and told that they would revisit any concerns I had at his 12 month check-up. At this appointment he hadn’t met any developmental milestones; there was an 18 month wait for a paediatrician appointment at Monash so I obtained a private referral. The paediatrician was fantastic and referred us to all the specialists you could think of; audiology, cardiology, neurology, ophthalmology etc, and he was referred for an MRI. She diagnosed him with Global Developmental delay, hypotonia, hypermobility, left eye exotropia and a few other minor diagnoses,
DIAGNOSIS: MY STORY
his condition and has a severe intellectual disability with cognitive function at approximately 6-12 months old. He is fed via a PEG, has epilepsy and cortical vision impairment, as well as hypotonia, hypermobility and left eye exotropia. Lloyd is dependent on his wheelchair but can walk very short distances in a walking frame. He is learning how to use an eye gaze to communicate as he is nonspeaking.
and we were sent on our merry way to see all the other specialists. Over the course of 12 months we completed every test possible to find an answer to what was the root cause of his issues and there was nothing ‘wrong’; no diagnosis, no prognosis, nothing. I researched for hours, whilst working full time and finally asked my GP to refer us to the Genetics Team (VCGS) at the RCH. After some advocating with the Genetics team and long hard hours of researching hundreds of rare genetic conditions, Lloyd was finally diagnosed at 2.5 years old. Can you tell us a bit about the diagnosis your child received? What does it mean, and how does it affect your child’s life? Lloyd has ‘IQsec2 Associated Disorder’ - a mutation of his iqsec2 gene that is located on his X chromosome and is denovo - not inherited but randomly occurred during conception. There are approximately 300 cases diagnosed worldwide with approximately 12 cases in Australia, all with different variances of gene change. Lloyd has quite a severe spectrum of
on my product development and other small business ventures for RareWear. What kinds of treatments, therapies or interventions has your child been receiving? How have these approaches helped your child’s development and wellbeing? Lloyd has physiotherapy, exercise physiology, speech therapy, OT and an annual therapy intensive. He wears a Second Skin suit, AFOs and is PEG fed. All of these things have had a hugely positive impact on his quality of life and abilities.
How has the diagnosis impacted your family dynamics and daily routines? Have there been any specific challenges or adjustments you’ve had to make to support your child? What are your primary concerns When Lloyd was very young, my fulland hopes for your child’s future in time employer took away my full-time light of their diagnosis? contract as I was having so much time off My primary concern for Lloyd is that he to attend appointments which was hard will not have a typical upbringing with financially and mentally. My marriage heaps of school friends, party invites etc. to my ex-husband was also severely I am also worried that he will be excluded affected – more by the from events that Elsie will be diagnosis journey than the able to attend but he can’t. I will go to the diagnosis itself. And the I hope that he gets to ends of this earth enjoy as many things as his weight this journey had to advocate on me left me with PTSD sister and that in doing so, for inclusivity, and crippling anxiety. We their sibling bond and our currently co-parent in bond as a family will grow not only for my separate households and do children but for and flourish. I just wish for so amicably, but this is very children with all Lloyd and Elsie to be happy difficult with a medically different abilities and for the community and developmentally around us to continue to and needs. complex child. accept and include us as Lloyd requires a much as possible. wheelchair, wheelchair van for transport, I will go to the ends of this earth to standing frame, activity chair, disability advocate for inclusivity, not only for my bouncer, eye gaze AAC, anti-seizure children but for children with all different medication, feeding tube pumps and abilities and needs. Every child deserves equipment, alongside hours upon hours a good quality of life as well as fun and of therapy every week so there are a lot of happy moments to cherish. logistics to work out! Lloyd loves cars and music, particularly Our daily routine is almost always the old classic Holdens, as well watching same for our little family of 3 (Lloyd now cars doing burnouts on YouTube. His has a sister). We eat breakfast together, favourite songs are Hells Bells by ACDC, then drive and drop off to different places. The Unforgiven by Metallica and Blue Lloyd to his special school for Prep, Elsie, on Black by Five Finger Death Punch. his sister, to her day-care, and I head home Whilst he has a severe disability, he isn’t so to work for SWAN on my laptop or work different after all! I SSU E 37 | SU M M ER 2023 27
KEEPING Kiveyn MOVING
Five-year-old Kiveyn has found freedom of movement with his customised walker and halo system.
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s our children grow and develop, it’s important to be able to support their independence – particularly when it comes to mobility. Combine a Hoggi FLUX Walker with a custom halo-gravity system and six-year-old Kiveyn Peiris has taken to walking like a duck to water, thanks to the innovative ideas of the Dejay team. Kiveyn was born with a rare form of scoliosis, or severe curvature of the spine. When he was two, he was the youngest child in Australia to be fitted with a halogravity traction device, which helps to carefully straighten his spine while giving him the freedom to move. And as he grew stronger and more mobile, it was clear Kiveyn would benefit from using a light, stable walker to support the development of natural walking movements as well as efficiently utilise and promote his residual functions. With the need for an integrated halo-gravity system, a personalised solution was called for – which is where Dejay came in. Lena from Dejay says, “I met with Kiveyn, his mum Shiranga, and his therapist Michael Chalouhi to update Kiveyn’s mobility aid. After getting to know Kiveyn and working through his needs and goals, my team at Dejay customised a Hoggi FLUX Walker to mount Kiveyn’s halo system, including
2 8 SO U RCEKI DS .CO M . AU
7.5kg in weights. Hoggi’s FLUX range of walking aids “This has given Kiveyn increased coming in a rainbow of bright, trendy mobility while ensuring his safety, and colours to give children even more ability Dejay is now looking at customising his to express their personalities. next wheelchair with a similar solution.” Handcrafted in Germany, Hoggi FLUX Kiveyn’s mum, Shiranga, says that her promotes upright posture and features a son’s Hoggi FLUX and halo have been an sturdy yet lightweight frame that opens integral part of his ongoing growth and out in walking direction. It has reverse development. roll locks that keep constant and reliable “Kiveyn’s scoliosis curvature was over contact with the rear wheels and lock 100 degrees, and since wearing his halo in as soon as they start rolling backwards conjunction with the FLUX, it decreased – a safety feature that helps children by 30 degrees,” she explains. “His medical grow their confidence along with their history is complex, but he walking skills. This can is slowly getting better and be deactivated so the With the need for maturing.” FLUX can roll forward or an integrated The choice to fit backward, too. halo-gravity system, out a Hoggi FLUX Another benefit for a personalised Walker for Kiveyn was a Kiveyn is the Hoggi straightforward one, as solution was called FLUX’s adjustable the Dejay team is highly features – it’s the only for – which is where walker with height, experienced in matching Dejay came in. clients with personalised vertical, and horizontal mobility solutions – they’ve adjustment capabilities, as been manufacturing wheelchairs and well as height- and width-adjustable grip customising components for over 35 years. bars, so it will grow with Kiveyn, meaning And their capacity to make each solution he’ll be able to rely on this walking aid for unique to each child is elevated by 3D longer before needing a bigger size (and printing technology, which allows the the FLUX is available in four graduated Dejay team to craft custom, lightweight sizes, so Kiveyn can move up to the next components very quickly if needed. size when he’s ready). Gone are the utilitarian greys of And helpfully for parents, the FLUX “standard” mobility equipment, with folds and unfolds easily, with a safety lock
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for transporting – fitting into the boot of the car with room to spare for the shopping (or, in Kiveyn’s case, his school bag). “Kiveyn is a happy, cheerful child,” mum Shiranga says. “He is always smiling, always positive, and he’s happy to go to school and be with his friends. The modified FLUX helped him to have more independence at school.” Safety, stability, and self-determination are three key characteristics of the
mobility solutions Dejay creates for kids like Kiveyn. The family-owned business helps people with disabilities achieve their goals using carefully selected rehabilitation and mobility equipment. Dejay not only manufacturers, designs, handcrafts, and customises wheelchairs in their Sydneybased workshop, they also partner with respected mobility aid brands like Hoggi to create bespoke solutions. Dejay’s wide range of solutions also include standers, strollers and prams,
seating systems, therapy aids, head protection, and accessories. And they’re experts in the field of mobility bikes, trikes, and race running bikes – their website dejay.com.au contains a dedicated frame running resource section to help educate and spread the word about this fast-growing sport across Australia. The Dejay team is keen to work with therapists around the country to create solutions, and offer equipment trials so your child can check out the products that might best meet their needs before you commit. Email therapy@dejay.com.au to organise a free trial in your home, at school, in clinic, or in the local Dejay showroom. They can personalise and customise each piece of equipment to your child’s needs, then deliver and fit it once purchased – making your life easier and ensuring your child’s mobility aid is able to be used appropriately, safely, and correctly from day one. Dejay can also provide training and technical support with your child’s equipment once it’s delivered, along with all-important servicing and maintenance. They’re a one-stop shop. Most importantly, the Dejay team are passionate about providing solutions to meet your child’s goals. And the best reward, they believe, is the smiles they see on the faces of children like Kiveyn – zipping here and there with newfound freedom and safety, using mobility equipment that keeps him moving toward confidence and independence. For more infomation see dejay.com.au or contact 02 9838 8869 or email therapy@ dejay.com.au By Katherine Granich
just keep walking - one step at a time
Helping you achieve your goals for over 35 years www.dejay.com.au
02 9838 8869
therapy@dejay.com.au I SSU E 37 | SU M M ER 2023 2 9
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L L ’ E W U O Y SEE P M A AT C The long summer holiday - whether you adore it, or secretly dread its arrival, there’s no denying that it stretches on and on!
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e’ve all wrestled with that designed for children with physical tiny knot of anxiety as we disabilities, and the specialised programs contemplate the endless at Autism Camp Australia; all the camps hours to fill with our kids on these pages offer children unique without relying on screentime every opportunities to explore their interests, single day. There is a silver lining: camps make friends, and gain new skills. From and organised activity days can be the building social connections to discovering antidote you need to help you combat the hidden talents, they open doors to a world “endless summer” curse. School holiday of possibilities, within a supportive and superheroes – rescuing parents inclusive environment. and kids from the brink of boredom and cabin fever. SONY FOUNDATION Please check Camps hold a special place HOLIDAY CAMPS the individual websites for in any child’s heart, providing The Children’s Holiday Camp running dates not only a break from the Program is a unique respite and application routine but also a world of fun, program that sees high school requirements. adventure, and friendship; core and university students take on Some camps will run in memories just waiting to be the responsibility for the care Summer while made. And for children with of children with disability. The others disabilities, these camps offer camp provides a much-needed may run during much more than a simple escape break for parents and carers other school from the everyday; they are while simultaneously giving the holidays. gateways to empowerment, skillchildren an incredible holiday, building, and valuable peer interactions. and the teenage carers an eye-opening Here we’ve gathered information on experience. The camp is provided at no just a selection of camps for children with cost to the families. disability running around Australia.* Over the course of four days, the Camps like Variety Kids Camp, QLD, student companions provide 24-hour care
32 SO U RCEKI DS .CO M . AU
to camp participants. Feeding, bathing, entertaining and tending to their every need. From movie nights to art session, zoo visits to sailing, the companions stop at nothing to give each camper the holiday of a life-time! Up to 30 camps run across Australia throughout the year. sonyfoundation.org/what-we-do/ childrens-holiday-camps
CAMP JIBARU An offering from The Sensory Gym, Camp Jabiru is based upon the Camp Avanti model in the United States. The aim of Camp Jabiru is for children to have a typical camp experience with the addition of therapeutic intervention to support and facilitate successful individual participation and group experience. Camp is staffed by a highly skilled team of occupational therapists, OT Students and YMCA outdoor education staff. sensorygym.com.au/camp-jabiru
JUNIOR WHEELIES DAY CAMPS The Junior Wheelies Camps are for
SUMMER FUN
& crafts and heaps more. Keep an eye on their website for the full program of events that run throughout the year - downsyndrome.org.au/nsw/ services-and-supports/people-withdown-syndrome/upclub/
CAHOOTS – CAMPS & ADVENTURES FOR ALL ABILITIES Cahoots (formerly Kids’ Camps) is a community organisation in WA providing exciting and rewarding programs and camps for children and young people living with a disability. They run a variety of programs and camps over weekends and school holidays throughout the year, catered to children and young people aged between 5 and 25. They run programs for children who are able to walk unassisted, as well as high support camps for those who need one-to-one support or use a wheelchair. cahoots.org.au
WHAT ABILITY CAMPS children aged 6-18 years who want to have some fun and give wheelchair sports a try. Participants will be able to have a go at Wheelchair Rugby, Wheelchair Basketball, Wheelchair Cricket, Wheelchair Aussie Rules and Wheelchair Tennis. Junior Wheelies is more than just sport, it is a fantastic community to share stories amongst the juniors and the adults. wsnsw.org.au/our-programs/juniorwheelies-camps
AUTISM CAMP AUSTRALIA Strengths based neuro-affirming programs for Autistic young people and their families. Autism Camp Australia addresses the needs of Autistic youth (ages 7-14) and their families, including those with coexisting conditions. Through experiential learning camps, ACA fosters engagement, supporting young individuals to integrate into mainstream society. They champion neurodiversity, aiming for self-reliance, independence, social bonds, and community inclusion. Neurodivergence is a fundamental part
of ACA, with an Autistic-led approach. Camps run in VIC, NSW, WA and QLD. autismcampaustralia.org
VARIETY QLD KIDS SPORTS CAMP The Variety Kids Sports Camp offers kids living with a physical disability the opportunity to try out a variety of different sports to determine which they enjoy and want to continue playing. It is a two-anda-half-day experience open to kids aged between 6 and 15 years old. variety.org.au/qld/variety-sportscamp
DOWN SYNDROME NSW – UP! CLUB CAMP If you have an older teen or young adult with Down syndrome who’s looking for things to do, this one’s for you. With a focus on workshops, varied activities for all abilities, connecting with friends and lots of FUN, the ever popular camp program features yoga and meditation, relationship workshops, sports & fitness activities, arts
Held in QLD, VIC and NSW on several dates throughout the year, during a What Ability Camp participants are provided with one-to-one support in a relaxed, group environment for between 2 days and 1 night, up to 7 days and 6 nights away from home, depending on support needs. Camps are filled with fun activities like jet-skiing, beach days, bushwalks, caring for and feeding animals, water slides, cooking meals and baking, campfires and roasting marshmallows, family style dinners and movie nights. The unique experience is aimed at: • Providing unique social opportunities • Facilitating interactions and engagement with others of a similar age and interests • Supporting development of meaningful friendships • I ncreasing independence in self-care skills • E xposing participants to new and different age-appropriate activities they don’t normally have the opportunity to access. I SSU E 37 | SU M M ER 2023 33
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2024 Intensive Bookings Now Open! Our Intensive Therapy Programs are individualised daily programs, designed to suit your child’s own specific needs. We offer holistic care by taking a transdisciplinary approach in developing your child’s full potential. Our two clinics feature state of the art equipment.
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Family fun & therapy:
BALANCING BREAKS AND GOALS School holidays – especially our long summer break - are a chance to relax, explore, and create lasting memories with the whole family. However, for parents of children with disabilities who require ongoing therapy, the holidays can also bring concern and anxiety about maintaining progress.
F
irstly, don’t stress! A break, even an extended one, can actually be a good thing. We all need a little down time now and then – especially our kids who put in so much work in their therapy sessions. Therapy demands a lot physically and mentally from them and they deserve a break as much as anyone. No-one can learn continually 100 percent of the time and time off from therapy allows time for skills
3 6 SO U RCEKI DS .CO M . AU
consolidation as well as reflection on goals and progress made so far. Plus, summer is a time for FUN! If you do want to keep some skills practice going however, albeit in a lighter, more relaxed way, here are some familyfriendly ideas you can easily incorporate into your days.
SET CLEAR GOALS Discuss with your child’s therapists and create a list of specific goals you’d like to work on during the holidays, such as improving fine motor skills, speech articulation, balance, or emotional well-being. It’s a good idea to share your holiday plans and factor those into your goals, as you’ll need to consider the environment and access to tools and resources. Remember, you don’t want to overwhelm yourself or overschedule your child – so narrow it down to one or two goals and incorporate them with your holiday plans.
HOME-BASED ACTIVITIES Incorporating therapy-based activities into your daily routine is an easy and fun way to keep up the momentum during the holidays. You can adapt activities your child is familiar with, or try some of these at home: • Holiday-themed arts and crafts • S ensory activities such as playing with slime, kinetic sand, or water beads • Pool activities to continue physiotherapy • Storytelling and reading aloud • P uzzles and board games for problemsolving and social skills Make it fun and simple and enjoy quality family time while maintaining your progress.
THERAPIST RECOMMENDATIONS Reach out to your child’s therapists and ask for suggestions on home-based activities that can supplement their regular sessions. Make sure you discuss your holiday plans so they can tailor
THERAPY
GROW THROUGH PLAY!
SLIDES Slides are a great tool for visual perceptual skills (the brain’s ability to make sense of what the eyes see). Practice climbing up those stairs, while holding on to the handrails.
Head to the park where the equipment provides some brilliant opportunities for fun and development.
community events that cater to children with disabilities (see our camp suggestions on page 32). These programs often have experienced therapists on staff and incorporate therapy into recreational activities. Explore local options and enrol your child in a program that aligns with their needs and celebrates their interests. Programs offer a structured and supportive environment where therapy can seamlessly blend with engaging group activities.
PEER INTERACTION exercises to meet your child’s goals and match the environment you’ll be in. They can provide you with a range of ideas, resources, and specific exercises to try at home. Remember, therapists are there to support your child’s progress, even during the holidays. Outings: Holidays offer a great opportunity to explore new environments and engage in sensory-rich experiences. Plan outings that align with your child’s therapy needs. For instance, a visit to a park can offer opportunities for physiotherapy exercises, such as walking on uneven terrain or climbing structures. Museums, art galleries, or nature reserves can stimulate speech and language development while fostering a sense of curiosity. These outings are great regardless of therapy but offer a chance to keep up the momentum in new environments. Programs: During the school holidays, you’ll find lots of organised specialist programs like camps, workshops, and
Encourage your child to spend time with friends and peers, engaging in activities that align with their therapy goals. Organise playdates or join community groups that foster inclusive abilities and environments. These interactions can offer opportunities for communication, cooperation, and the development of social skills.
SWINGS Swings will meet your child’s needs for vestibular stimulation. By playing on a swing, the vestibular sense will give information about where their body is in space, and if your child is moving, how quickly they’re moving and in what direction.
MONKEY BARS Monkey bars offer an excellent way to enhance the hand and finger muscles essential for grasping and handwriting. Plus, you can customise this activity to suit different abilities. For instance, if your child struggles to support themselves entirely, you can lend a helping hand to ensure their safety. Monkey bars are also fantastic for improving eyehand coordination, building core strength, enhancing balance, and developing both arm and leg power.
RELAXATION AND MINDFULNESS While therapies focus on specific goals, it’s equally important to prioritise relaxation and mindfulness. You can use Youtube to find kid-friendly yoga, such as Cosmic Kid Yoga, or practice quiet meditation or reflection. Not only do these promote emotional well-being and regulation, but these activities are also great for balance and concentration. Keeping up the momentum and continuing therapies during school holidays shouldn’t feel like a chore. Remember to keep it simple, keep it fun and integrate it with what you already have planned.
LADDERS AND BEAMS Ladders and beams provide opportunities for improving balance and coordination. Think of the ladders leading up to slides or balancing on different equipment lower to the ground. You can even draw a chalk version on the ground to incorporate the same movement.
I SSU E 37 | SU M M ER 2023 37
DADS Q&A
Q&A
DADS and disability
Andy is dad to Will who is Autistic. We sat down to chat about his insights and experiences on raising a child with disability and what he’s learnt so far. What are some of the biggest challenges you face as a dad of a child with disability, and how do you navigate them?
How do you balance the needs of your child with a disability with the needs of your other children?
I find the expectations the hardest. I’ve always had high expectations, but it seems many other people don’t, which I think is wrong. Will might not be the world’s best athlete but he can be much greater than most people expect him to be. I’ll always push him to be the best version of himself possible. But at the same time, try to have the humility to understand when it’s too far for him.
I think in the main we do a good job of this. Our youngest (neurotypical) does occasionally sense he’s missing out, and it’s a tough gig as he’s forced to be much more mature than his years. But we do as much as we can to create fairness and balance, even if that sometimes results in near meltdowns from Will. Our youngest plays a lot of sport and gets one-on-one time with each of us. We pay special attention to him when he’s seeking it and we ensure both boys get an opportunity to speak and have their opinions and thoughts valued.
How do you prioritise and maintain your own well-being and emotional health while caring for your child? I’m very active; I run, exercise and mountain bike every week. I also work on jobs around the house to keep busy, so we are always progressing and moving forward which helps me mentally to feel more positive and create a perspective that today is better than yesterday.
What are your biggest fears for your child and how do you manage those feelings? Will he ever be independent enough to live on his own? Will he find a partner? Have kids? Or what does he actually want out of life? What will make him happy? It’s like the world’s hardest puzzle and we are trying to help crack the code so we can guide and assist him on the journey. Often what we want is nothing like what he wants, so until he’s capable enough to tell us, we’ll just be there for him. But the uncertainty of what life will bring is certainly amplified.
What advice would you give to other dads who are new to parenting a child with disability? Firstly, it’s ok to believe it! Secondly, you are a huge role model, so your beliefs and actions around your child are so influential. Always look for ways to influence them positively and keep pushing the boundaries of how great life can be.
What are some of the most rewarding moments you’ve experienced as a dad? I love his obsessions. It may sound crazy but we’ve been through so many. From cds, to hand dryers to telephones, traffic lights, space and now tunnels & claw machines. He gets so excited - so much so that he’ll talk the ear off anyone willing to listen. By nurturing these obsessions, we are opening up his skills in the wider world and increasing his social engagement. I can’t wait for the next one, who knows what it’ll be!!
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‘Nanny Elle’ and Jimmy
IN YOUR WORDS
21 years in the Target toy aisle By Jo Ashline
We think that this beautiful piece of poetry is especially relevant as we start the annual search for Christmas gifts for our kids.
REPUBLISHED WITH PERMISSION FROM JOASHLINE.COM
I am not paralysed by sadness anymore as I roam the toy aisle at Target I want you to know it gets better (and then it gets a little worse, but then it gets better again. and that’s just before breakfast. You get the idea). Cruz Ramirez On the eve of his 21st birthday will join the others I am not buying my firstborn an impressive collection a six pack of Disney Pixar’s finest or promising nestled among to pick him up Thomas and all his Friends from a bar enough R2D2s with his bleary-eyed friends to make George Lucas jealous and dot markers in all the colours I am here (trust me, all of them) instead in this toy aisle I know so well I am happy my eyes scanning rows standing here of Lightning McQueens in the toy aisle at Target and Maters for the 21st year in a row until I spot a flash of bright yellow as I imagine his giant grin And yelp with joy lighting up his face as I unearth Andrew’s beloved Cars character
his hands fluttering towards space unwrapping gifts that are perfectly him that I will buy again (and again) and he doesn’t know it’s his birthday tomorrow and it’s ok he doesn’t have to I do I know it enough for the both of us here in the toy aisle at Target
I SSU E 37 | SU M M ER 2023 41
Use your (POOL) noodle How many times have you gone to a pool or beach with a pool noodle and then just left it behind?
C
ampsites are often strewn with these bendy, colourful tubes; abandoned poolside to be used by new families arriving as others check out. But what if we told you that you should think again before leaving yours behind? Because they could be your child’s passport to a world of fine and gross motor development, and a whole heap of fun. Inexpensive and versatile; with a bit of creativity, pool noodles can be used in and out of the water to work on balance, strength, hand-eye coordination and more. Read on as we outline some inventive ways to explore their potential for a summer of endless fun and skill-building.
POOL NOODLE PAINTING Painting with pool noodles is a fun way to change up an arts and crafts afternoon, making use of unconventional materials. By dipping the pool noodles in paint and rolling or stamping them onto paper, kids can produce unique and colourful designs. This budget-friendly activity not only encourages imagination but also helps develop fine motor skills. It’s a simple yet enjoyable project that can keep kids entertained and inspired on a sunny afternoon.
OBSTACLE COURSE Who needs a standard obstacle course when you can build your own noodleinspired version? Create a series of 4 2 SO U RCEKI DS .CO M . AU
Noodle creatures
Another fun craft activity, by cutting and attaching noodles together, children can design their own unique creatures, adding googly eyes, colourful tape, and other decorative elements. For that extra touch – go all out with feathers and glitter if that’s your thing! Problem-solving, fine motor and visual perceptual skills all come in to play here.
challenges involving stepping on noodles like stepping stones, crawling through noodle tunnels, and even noodles to jump over. This activity promotes both fine and gross motor skills, encouraging strategic thinking and adaptability. Make use of wooden dowel rods in the ground to keep the noodles in place.
WATER WALL This one needs a few extra materials – a peg board, cable ties and some funnels and containers should do the trick. By attaching pool noodles (cut them into various lengths) as pathways for water to flow through, children can explore cause and effect, experimenting with various spouts and angles. Let the kids discover the
basic principles of physics all while keeping cool on a warm day! As a bonus, activities on a vertical surface are great for natural wrist extension and fine motor skills.
RING TOSS Use wooden dowels and noodles cut to size; stand the noodles over the dowels and you have simple, colourful targets to throw rings over. Place your targets at increasingly demanding intervals.
BATTING WITH BALLOONS Balloons are loved by physiotherapists for the gross motor and hand eye coordination work outs they give our kids. You can level up the fun by adding in pool noodles as ‘bats’ (cut to the length that
SUMMER FUN
Sensory Bin Play
There are a number of ways that you can incorporate pool noodles into a sensory bin: • Cutting and shaping: Begin by cutting the pool noodles into various shapes and sizes. You can create rings, cubes, or any other shapes that suit your sensory bin theme. • Water play: Floaty pool noodles are ideal for waterthemed sensory bins. Fill the bin with water and add the pool noodles to create a floating obstacle course for small toys or boats. The texture of the noodles adds an interesting tactile element. • Fine motor skills: Encourage children to thread smaller pool noodle pieces onto strings or pipe cleaners hidden within the bin, promoting fine motor skills and creativity.
• Letter and number recognition: Cut the pool noodles into discs and write letters or numbers on them. Children can search for specific letters or numbers, helping with early literacy and numeracy skills. • Sensory search: Hide small objects or toys within the pool noodles, creating a sensory scavenger hunt for kids to dig and explore.
Remember to supervise young children during sensory play, especially if small parts are involved.
Noodle Race Track works for your child). You can extend this activity even further by adding laundry baskets as targets/goals to guide the balloons towards.
NOODLE LIMBO Pool noodles make great ‘sticks’ or rope alternatives to limbo under. Task kids with performing different animal walks as they go under the noodle to work on all parts of the body. Ready to do a crab walk? Let’s go!
POOL NOODLE BALANCE GAME Pool noodles are perfect, low cost balance beams! Place around the yard, or even indoors for an instant balance workout.
Hot Wheels tracks are pretty pricey so do it the budget way instead! Pool noodles can make for fantastic, budget-friendly alternatives to traditional tracks. Simply cut the noodles in half lengthwise to create a groove for the cars to race through, and then arrange them in various configurations. The soft, flexible material adds an element of unpredictability to the races, making it all the more exciting for kids. It’s a simple, low-cost solution that encourages imagination, DIY innovation, and hours of entertainment.
I SSU E 37 | SU M M ER 2023 4 3
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Physical Therapy:
GAME ON!
Physical therapy is being gamified – and it’s making a massive difference to children all over Australia. Katherine Granich takes a closer look.
H
ow easy is it to get your child to participate in their at-home physical therapy program, especially when it’s summer and the focus is on fun!? For many of our kids, doing therapy at home is seen as a chore to be avoided rather than an activity to look forward to. Getting that regular therapy practice in takes time, motivation, and often some form of cajoling (or even bribery – no judgement!), and even then, it’s not typically something that children consider to be super-fun. It can be difficult
to get all the exercises done, or to ensure they’re doing them properly – one study (1) says that compliance with at-home physical therapy programs vacillates between 50% and 80%, so this is an incredibly common challenge parents have to contend with. Doreen Deede understands the frustration. Her daughter Emma, 13 – just like many children – has had a hard time consistently completing her therapy programs. “Emma’s motivation to participate in any kind of therapy has always been dependent on the setting and
the activity,” Doreen explains. But the introduction of a physical therapy “ecosystem” app called LusioMATE has been game-changing for Emma and her mum – literally. LusioMATE has wearable motion sensors that can be fitted almost anywhere on a client’s body. It connects via Bluetooth to a range of “exergames” – a fusion of fitness and fun, where therapy takes the form of gameplay. These physical therapy games are highly customisable, giving therapists the ability to set up client-specific exercises that evolve as the treatment progresses. For Emma, being able to play her way through her physical therapy routines with fun, interactive games had immediate positive effects. “Emma loved the instant gratification she received through the games, and performed the required movements more consistently and with more control and effort,” Doreen smiles. “Prior to using LusioMATE, Emma did
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not engage at all, or only engaged with (fpphysio.com), agrees that LusioMATE limited motivation when asked to complete has had a positive impact on her young her exercises at home.” client. “One of Emma’s goals was to be LusioMATE’s physical therapy games able to improve her ability to lift her foot are designed to help clients develop up from her wheelchair to help with being specific functional skills or address able to take her socks and shoes on and cognitive, emotional, or behavioural off,” Dalena says. “Emma loved being issues. They help with strength-building, able to work on her knee extension with improving flexibility, and increasing LusioMATE, and we were able to improve mobility. And in Emma’s case, using on her range of motion and isolating LusioMATE gave her physiotherapist movement between her left and right side instant feedback on Emma’s abilities, better by the end of one week.” which her mum admits had been a bit A major advantage of LusioMATE of a question mark up to that point. is that it provides Dalena with “The use of LusioMATE comprehensive analytics engaged Emma instantly and insights, allowing her “It’s time for your to remotely adjust Emma’s and highlighted her ability, which we were previously exercises!” means at-home physio program uncertain about,” Doreen she progresses – keeping “It’s time to play as explains. “We trialled the exercises fresh, relevant, games!”, getting and appropriate, and easily LusioMATE to work on Emma’s ability to assist kids to take part monitoring her progress. with putting on socks and The LusioMATE system in their physical shoes while she’s sitting in is compact and portable, therapy program meaning you can use it at her chair, because previous attempts to engage her in is a less stressful home, at the park, at school, function-specific exercises and even on holiday. And prospect for were not successful. The when “It’s time for your everyone. trial showed that Emma exercises!” means “It’s time can lift her feet and knees, to play games!”, getting but just needs the right motivation to keep kids to take part in their physical therapy practising to become stronger and more program is a less stressful prospect for in control.” everyone. Better yet, the professionals who work The most meaningful outcome, with Emma were duly impressed, Doreen though, is that Emma is not only gaining says. “Emma’s care team reacted with movement and strength, but her selfexcitement and enthusiasm during the esteem is also increasing. “Through trial. Everyone witnessed Emma’s positive LusioMATE, Emma became aware of her response, and felt that this therapy tool own ability, and realised that she could do would make a significant difference to something successfully,” mum Doreen says. Emma’s engagement with her home And helping kids believe in themselves is therapy program.” the biggest win of all. Emma’s physiotherapist, Dalena Pangna of Full Potential Paediatrics Physiotherapy lusiorehab.com
MAKING PHYSICAL THERAPY FUN
New Improved Gamifying therapy LusioMATE App LusioMATE is cutting-edge, wearable, Now Launched! portable physical therapy technology.
Here are some more reasons this gamified tool is revolutionising the Low cost, low risk with NDIS way at-home therapy programs are delivered.
achievement of AL ✓ Kids love to playMotivates games, so they’re super motivated to achieve their movement goals movement goals through gamified physical therapy.
Remote monitoring by clinicia
✓ Simple to set up, implement, and get
started, with a visually appealing, Use in clinic or at home user-friendly interface.
✓ Highly personalised and adaptable so therapists - Physios, OTs and Exercise Physiologists alike - can ensure activities are totally targeted to what clients need.
Get agrowing quote today library ✓ Massive, constantly of fun “exergames” to engage and encourage your1300 child. 1 LUSIO
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up with your ✓ An easy way to keep www.lusiorehab.com child’s therapy program over the summer break or when you’re on holiday.
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REFERENCE 1 (PDF) EFFICACY OF UPPER LIMB THERAPIES FOR UNILATERAL CEREBRAL PALSY: A META-ANALYSIS (RESEARCHGATE.NET)
I SSU E 37 | SU M M ER 2023 47
12 Days of Christmas:
AUTISM EDITION For autistic children and their families, Christmas can be exciting and daunting all at once. In the spirit of the twelve days of Christmas, we’ve got twelve tips for not only surviving but enjoying this festive season.
Day 1
PREPARE, PREPARE, AND PREPARE SOME MORE. A lot of changes occur around Christmas time which can be highly stressful for autistic people. Having regular conversations, using a social story or displaying visual reminders are just a few helpful ways to support preparations for change.
Day 2
DON’T OVERLOAD YOUR (METAPHORICAL) PLATE. The end of the year is always incredibly busy, from school events to Christmas parties and everything in between. Although the pressure to attend everything can be intense, be mindful that people with autism (and their carers) need more time to rest and recover after social events to avoid burnout.
Day 3
GRAB YOUR GIFTS EARLY. Whether it’s due to special interests or safety concerns, traditional presents may not be appropriate for your autistic child. As suitable gifts might be harder to find, avoid disappointment (and the crowds) by grabbing them sooner rather than later. And if the thought of going to the shops overwhelms you, buy online. 4 8 SO U RCEKI DS .CO M . AU
IN PARTNERSHIP WITH
Day 8
STAY SAFE AROUND WATER.
Day 4
KEEP A ROUTINE (WHERE YOU CAN). Although the festive season brings a lot of changes, that doesn’t mean all routines have to go out the window. Whether it’s as simple as keeping up therapy activities at home or eating meals at the same time, your autistic child or young person will appreciate some continuity during this busy period.
Day 5
ALLOW FOR CHOICE. By allowing your child or young person to participate in activities and decisions that affect them (where appropriate), they’ll feel acknowledged, respected and therefore more likely to participate in the festivities where they can and wish to.
Day 6
CONSIDER YOUR ENTIRE FAMILY.
In the event of a meltdown, make a plan and don’t be afraid to use it.
Although your autistic child might not engage with many Christmas traditions, that shouldn’t mean the rest of your family misses out. Consider how compromises can be reached with a child’s siblings or other family members to make some of their Christmas wishes come true.
Day 7
PACK A SNACK (OR TWO). Although your aunt’s turkey might be a fan-favourite on Christmas Day, don’t expect your autistic child to agree. Bringing separate snacks or meals for your child to eat ensures they don’t go hungry and can even participate in mealtimes.
Plenty of us will be spending this scorching Christmas in and around the water, which can pose some additional safety concerns for autistic children. Assess the area and your child’s swimming capabilities before they enter the water and ensure someone is always supervising.
Day 9
HAVE A PLAN FOR THE PLAN. Sometimes, despite our best efforts, things don’t go to plan. Whether it’s your own autism-friendly snacks or a quick exit plan in the event of a meltdown, make a plan and don’t be afraid to use it.
Day 10
PRIORITISE YOUR BOUNDARIES. Our boundaries are important, particularly in moments of heightened stress and responsibility. Don’t feel pressured to entertain conversations, activities or events you or your child aren’t comfortable with.
Day 11
CELEBRATE YOUR WAY. Whether it’s a ban on flashing fairy lights or listening to the same carols on repeat, Christmas should be about one thing: having fun your way!
Day 12
DON’T FORGET YOURSELF. Parents are their child’s first and best advocates, but sometimes that means their own needs and wishes get left behind. Take time for yourself this Christmas to relax, recharge and reflect on what a good job you’ve done! For more information, visit autismawareness.com.au
I SSU E 33 37 | SU M M ER 2022 2023 4 9
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SUN, SAND & SMILES
ACCESSIBLE BEACHES
Nothing says Aussie summer quite like a family day at the beach. Not only is having fun in the sand and sea accompanied by some ice-cream and hot chips the perfect way to spend a sunny day, but beach life also offers a world of exploration, sensory experiences, and development opportunities for our kids with disability.
52 SO U RCEKI DS .CO M . AU
I
f you’re anything like our family, however, the idyllic vision I’ve presented here is often far from the actual reality. Car parks miles from the sand, difficult terrain, cramped, unsanitary changing facilities, a whole heap of extra equipment and food to service our kids’ needs - can all turn a dream day out into a bit of a nightmare. Fortunately, more and more of our beautiful beaches are being made inclusive and accessible for all, with facilities that make a day out much less stressful for everyone involved. Beach accessibility differs by location and can include things like beach wheelchairs, accessible bathrooms, pathways, and improved parking, all making the beach more inclusive and usable by all. Accessible Beaches Australia is a volunteer-driven organisation, that has been a catalyst for the expansion of these type of facilities since 2016. Founder, Shane Hryhorec is a wheelchair user after an accident in 2007. At 21 years of age, he suffered a serious injury to his C5 spinal cord and was left an incomplete quadriplegic — in addition to also having a hypoxic acquired brain injury (ABI). After quickly discovering that the thin wheels of his wheelchair were too easily
bogged down in the sand, he searched for a solution that would once again allow him to go to a place he loved so much, the beach. He stumbled upon an image of a wheelchair-friendly beach mat and decided to do everything he could to advocate for Australia’s world-famous beaches to become more accessible and to make the necessary equipment available to those who need it. In 2020, Shane founded the Accessible Beaches not-for-profit organisation to help achieve this vision of beach accessibility. Accessible Beaches collaborates towards this goal with other organisations, lifesaving clubs, government, people with disability and their families. Alongside their advocacy, training and consultancy work, their website features a searchable directory of accessible beaches and their facilities in states around Australia. Over the next couple of pages, you’ll find just a selection of these beaches and the information Accessible Beaches provides about them. So, with summer here there is no better time to enjoy all the fun the sand and surf has to offer. Take a look at the info we’ve sampled, and make sure to visit accessiblebeaches.com to access the full directory and find out more about the brilliant work they’re doing.
ACCESSIBLE BEACHES
QLD MOOLOOLABA
NSW JETTY BEACH Jetty Beach is a protected beach which is popular with both locals and tourists alike, especially families. A mobi-mat is in place year-round except during rough sea conditions. Two Hippocampe beach wheelchairs are available for booking. This beach caters for people with high support needs who travel with a support person. It has a Changing Places or Lift & Change toilet with a hoist and adult change table. Beach wheelchairs can be booked online at coffsharbour.nsw.gov.au/ Community-and-recreation/Yourneighbourhood/Beaches/Beachwheelchairs or by calling the Coffs Harbour Yacht Club on (02) 6652 4390. The beach also has: • Accessible bathroom • Multiple accessible car parks • Accessible beach matting • Accessible toilet • Accessible changeroom • Accessible shower • Step free outdoor pathways (includes picnic areas, barbecues and shelters)
BONDI BEACH Probably the most famous beach in Australia, Bondi Beach is a must-see destination for Australians and tourists alike. Boasting 1km of stunning beach and home to one of the oldest Surf Life Saving Clubs in Australia, Bondi beach has something for everyone. Beach mats are in use at Bondi on Thursdays and Saturdays from 8.30am to 2pm, surf and weather conditions permitting. They are located at the northern end ramp of Bondi Beach, near Wally Weekes pool. The beach also has: • A wide ramp at North Bondi making access to the beach easy • Mobi-Mat beach access mat is rolled out on Thursdays & Saturdays from 8.30am to 2pm. Please note that the matting does NOT reach the ocean’s edge! The beach wheelchairs will enable access to the water • Beach wheelchairs are available for hire: you can choose between the Sandcruiser (adults) or Sandpiper (children). Please use the beach wheelchairs to access and swim between the flags • Two accessible parking spots are located right near the ramp down to the beach at North Bondi • Plenty of accessible parking • Accessible bathrooms and showers
With a fully accessible Surf Life Saving Club and surrounded by places to eat, including a beach-side kiosk, Mooloolaba Beach on the Sunshine Coast is a great place to visit. The beach also has: • Accessible parking • Accessible beach matting • Accessible bathroom • Beach wheelchair availability • Accessible outdoor shower • Accessible shade • Accessible fresh water • Accessible Life Saving Club
WOORIM BEACH Woorim Beach is located on picturesque Bribie Island and is a must-visit destination for an adventure weekend or accessible holiday. Woorim Beach is 75kms north of Brisbane (approximately 1.5hours drive) and about the same distance south of Mooloolaba on the Sunshine Coast. The beach also has: • MobiChair floating beach wheelchair • SandCruiser beach wheelchair •A ccessible car parking approx. 20m from the surf club •A ccessible bathroom at the surf club with a flip down shower chair and toilet with a grab bar •W ide footpaths around the surf club. Some limited curb cuts in drop off areas •L arge public bathroom block in Bluey Piva Park with an outdoor shower and an accessible bathroom •W ide footpaths with steady gradients with a smooth transition from concrete path to the MobiMat path • 3 0m of MobiMat path down onto the beach with a great view over the water •L ots of shaded areas to cool down on hot days •W heelchair accessible water fountain with wheelchair under cut out I SSU E 37 | SU M M ER 2023 53
SA
WA
HENLEY BEACH Spend a beautiful day out at this gorgeous beach, surrounded by grassed areas and plenty of restaurants. It is approximately 11.1kms long and just a 23-minute drive from the Adelaide CBD on the stunning southern coast. • Beach mats from Thursday to Sunday between October and Easter each year. Mat roll out is subject to tide times, weather conditions and resources • Plenty of Mobi-Mat wheelchair parking on the sand • Beach wheelchairs available for free half day hire from October to Easter. You can choose from the Mobi-Chair or the Davinci Mobile Beachster or a mobility walker • 6 accessible parking spaces down by the beach • Fully equipped Changing Place facility, BYO sling Beach wheelchair bookings are essential. Book by calling 08 8408 1333.
WHYALLA FORESHORE The Whyalla Foreshore zone features a marina and boat ramp; café; change rooms; showers and toilets; lawns; beach shelters; free electric BBQs; lifesaving; a large, shaded playground area and is linked with a walkway to the beautiful Ada Ryan Gardens. • Beach mats are available on Saturday and Sunday between October and Easter each year. Mat roll out is subject to tide times, weather conditions and resources! • Beach wheelchairs are available for free use from 9.00am till 1.00pm Saturday & Sunday, from October to Easter. Available chairs are Sandpiper (children) & the Sandcruiser (adults) • There are 4 accessible parking spaces available down by the beach • A fully equipped Changing Place facility BYO sling • Accessible toilet Beach wheelchair bookings are recommended but not essential!
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MULLALOO BEACH
VIC Rosebud Beach A fantastic beach featuring everything you need for a great day out. There is a ramp down to the beach matting, 4 accessible car parks, a playground featuring accessible barbeques, accessible seating, accessible shade and accessible fresh water. There is also a lovely boardwalk running along the beach. The beach also has: • Accessible beach matting • Accessible bathroom • Accessible parking • Accessible shower • Accessible shade area • Lead up pathways • Accessible fresh water • Accessible barbeques • Retail within 150 metres.
ST KILDA BEACH Located in the iconic suburb of St Kilda, full of cafes and restaurants and home to some great festivals and events. • Mobi-Mat beach access mat all the way to the hard sand. • MobiChair wheelchair available at the Life Saving Club 7 days a week throughout summer patrol, bookings required • Accessible toilet just on the side of the Life Saving club • Changing places with a hoist located at the Life Saving Club and available with the use of MLAK key • Wide footpaths all compliant, flat and easy to wheel along • Standard street parking and several wheelchair car parks on the main road
Mullaloo Beach has accessible toilets, parking, all terrain walker and beach wheelchairs. Tom Simpson Park overlooking the beach is also accessible with seating, picnic and BBQ areas. The footpath from the carpark to the toilets is slightly steep. The beach is patrolled by Mullaloo Surf Life Saving Club. The beach also has: • Beach overview • Accessible parking • Accessible beach matting • Accessible bathroom • Beach wheelchair availability • Accessible shade area • Retail within 150 metres
HILLARY’S BEACH The Harbour has been developed to be accessible to all - providing some unique facilities to cater for people with disabilities, including universal access floating pontoon, fishing platform, beach access pathway, a beach wheelchair, accessible barbeque facilities, drinking fountains and hotel rooms specifically tailored for people with limited mobility. The beach also has: • Accessible parking • Accessible bathroom • Accessible beach matting • Beach wheelchair availability • Retail within 150 metres • Lead up pathways • Accessible shaded area • Accessible Surf Life Saving Club To access more information from Accessible Beaches and also learn how you can support the brilliant work they do visit accessiblebeaches.com
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T’IS THE SEASON FOR MERRY MAKING
T
Some fun ideas for festive fine motor development and seasonal speech and language practice…
he holiday season is a wonderful time for crafting, and it’s also a fantastic opportunity to help children enhance their fine motor skills and work on their speech and language development. Engaging in creative projects can improve hand-eye coordination, dexterity, and patience, all while having festive fun. Here are some simple Christmas craft ideas and activities that you can try together.
FINE MOTOR SKILLS
Bead ornaments: Stringing beads onto a piece of twine to create ornaments is a great way for children to work on their fine motor skills. They’ll need to use their fingers to pick up and thread each bead, improving their hand-eye coordination and precision. 5 6 SO U RCEKI DS .CO M . AU
Paper snowf lakes: Cutting intricate paper snowflakes may appear delicate, but it’s a wonderful workout for the hands and fingers. Kids can fold and cut paper to create beautiful and symmetrical designs, all while enhancing their scissor control.
Handmade christmas cards: Encourage your kids to make their own Christmas cards. Decorating, cutting, and gluing different elements onto cardstock requires precision and careful hand movements. It’s a fantastic way to improve fine motor skills while also spreading holiday cheer.
Handprint reindeers: Tracing and cutting out handprints to make reindeer antlers and faces is a delightful craft that improves scissor skills and fine motor
coordination. What other Christmas shapes can you make with hand and even footprints?
Salt dough ornaments: Mixing, kneading, and manipulating salt dough into various christmas shapes is fun and great for hand strength. Kids can further enhance their dexterity by painting and decorating the ornaments.
Gingerbread house decorating: Constructing and decorating gingerbread houses can be a real test of patience and precision. It involves using small lollies, icing, and a steady hand to create edible works of art. You can cut the time, workload & effort required by hunting down ready-made kits for you to put together.
SUMMER FUN
Here’s a simple shortbread cookie recipe to work with:
Shortbread cookie
• 1 cup unsalted butter, softened • 1/2 cup granulated sugar • 2 cups all-purpose flour • A pinch of salt • 1 /2 teaspoon vanilla extract (optional) • Christmas-themed cookie cutters • Coloured icing, sprinkles etc to decorate (optional) 1. Preheat your oven to 350°F (180°C).
Christmas Pictionary: Create your own Christmas-themed Pictionary game. Drawing and guessing holiday-related words or phrases can enhance vocabulary and boost communication skills, all while having a blast.
SPEECH AND LANGUAGE DEVELOPMENT
Letter to Santa: Writing a letter to Santa is a cherished tradition. This activity encourages children to express their wishes, thoughts, and gratitude in writing. It’s an excellent way to expand their vocabulary and communication skills.
Christmas carol lyrics: Gather the family and sing Christmas carols together. Hand out lyric sheets to the kids, and encourage them to read or sing along. This promotes reading and phonological awareness while enhancing memory.
Holiday recipe cards: Working on recipe cards for holiday treats like sugar cookies (see recipe on the right) or gingerbread houses involves reading and following instructions. This craft not only nurtures cooking skills but also promotes comprehension and vocabulary development.
2. Line a baking sheet with parchment paper.
Christmas card messages: When
3. Mix the butter and sugar: In a mixing bowl, have the kids cream together the softened butter and granulated sugar. They can use a wooden spoon or you can help out with an electric mixer set to low speed. Mix until it’s light and fluffy.
making Christmas cards, discuss the messages with children. Encourage them to write personalised notes, fostering expressive language skills and emotional communication.
4. Add flour and salt: Gradually add the flour and a pinch of salt to the butter-sugar mixture. The kids can stir or mix it until a crumbly dough forms. If you like, add the vanilla extract at this point for extra flavour.
Holiday bingo: Design a Christmas-
5. Knead the dough: Turn the dough out onto a clean, floured surface. Let the kids knead it until it comes together into a smooth ball.
themed bingo game with words or pictures related to the season. Playing bingo encourages listening and speaking as children call out the words or phrases they’ve marked on their cards.
Themed speech crafts: Crafts like creating Christmas-themed speech bubbles or dialogue balloons for characters in holiday stories can help kids practice sentence structure, storytelling, and creativity.
Christmas tree vocabulary: Decorate a Christmas tree with ornaments that have festive words written on them – you can this on a piece of paper (find a template online!) if you want, rather than on a real tree! Encourage children to identify the words, discuss their meanings, and use them in sentences to promote vocabulary and language skills.
6. Roll and cut the dough: Using a rolling pin, roll out the dough to about 1/4-inch (0.6 cm) thickness. Then, using Christmas-themed cookie cutters, let the kids cut out shapes from the dough. 7. Place on baking sheet: Carefully transfer the cut-out cookies to the prepared baking sheet. Leave a little space between each one. 8. Bake: Bake the cookies in the preheated oven for about 10-12 minutes or until the edges are lightly golden. 9. Cool: Allow the cookies to cool on the baking sheet for a few minutes, then transfer them to a wire rack to cool completely. 10. Decorate (optional): Add some more festive touches with pre-made icing and sprinkles etc.
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ENVISAGE Families Program Are you concerned about your child’s development, or are you raising a child with a disability? In the ENVISAGE Families Program you will connect with other caregivers where you can share your experiences, learn effective strategies and access practical tools for supporting your child and family. Each program is facilitated by a trained health professional and parent peer with lived experience. Each workshop covers:
Workshop 1
Health and wellbeing in early child and family development
Workshop 2
Child, Sibling and Family development
Workshop 3
Parenting is a ‘dance’ led by the children
Workshop 4
Looking after myself so I can look after my family
Workshop 5
Communication, Collaborating, Connecting
Envisage is a fully funded program for parents and caregivers raising children aged 0-8 years with developmental concerns or disability. Enrol today using the QR code. Your child does not need a diagnosis or NDIS plan. ENVISAGE Families Australia is funded by the Australian Government Department of Social Services. Go to dss.gov.au for more information.Envisage has been developed by Australian Catholic University, McMasters University, Murdoch Children’s Research Institute and University of Melbourne.
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6 0 SO U RCEKI DS .CO M . AU
ADVOCACY
Learning to be your child’s
BEST ADVOCATE There will be times throughout your child’s life when you will feel the need to step in and advocate on their behalf.
A
s parents of children with disabilities, we get quite used to speaking up on their behalf; making (seemingly) simple requests of school, therapists, etc, but sometimes the advocacy needs to be more formal to address complex challenges or access specific resources and support. Whether it’s ensuring the right accommodations at school, securing vital healthcare services, or fighting for equal opportunities in various aspects of life, advocacy becomes a critical tool in our arsenal to guarantee our child’s well-being and future prospects. The thought of needing to advocate can be daunting so our friends at Kiind (Kiind.com.au) have put together some steps you can take to help stay focussed on the task at hand.
ARTICULATE THE ISSUE Make sure you fully understand the issue and are able to clearly articulate it to your intended audience.
BE CLEAR ABOUT WHAT YOU WANT Think carefully about what you want for your child. Gather as much information as you can to make an informed decision and if you belong to a peer support group such as the Kiind Families Facebook Network (kiind.com.au/join-kiind-familiesfacebook-network), it may be helpful to seek the opinions of others in similar situations. It’s important, however, to keep an open mind because there may be solutions that you haven’t yet considered.
PRESENT A SOLUTION, NOT A PROBLEM! Presenting a solution is a faster and more effective method of reaching an acceptable conclusion.
KNOW YOUR CHILD’S RIGHTS This will save you hours of frustration having to reiterate your concerns to different people. You’ll also be a more confident and effective advocate if you know your child’s rights and the rules of the system within which you’re operating. Familiarise yourself with the medical support to which your child is entitled, State education laws, relevant policies and procedures as appropriate to the situation. If you are based in WA, you can find relevant legislation regarding your child’s rights under the ‘Be heard’ (kiind.com.au/be-heard ) section of the Kiind website.
BE PREPARED Prepare for meetings and take a list of questions. Keep a timeline of activity with names of who you spoke to, together with emails and phone calls and a written record of meeting outcomes. This is important and could save you lots of heartache and frustration, particularly if you need to reiterate the situation to many people or the person making the decisions leaves and is replaced by someone else.
STAY CALM Staying calm and polite is likely to facilitate a more productive discussion. If you’re struggling to stay calm, ask for a moment so you can calm down and gather your thoughts. If this doesn’t work, you could ask for a short break, or stop the meeting and arrange another appointment.
GET SUPPORT Speaking to other parents who’ve had similar experiences or joining a support group can help you with useful information and emotional support. If you’re based in WA and need help to navigate advocating for your child, you can speak with one of Kiind’s knowledgeable Peer Navigators for practical guidance, information and support on tel: (08) 6164 9806 or email: support@kiind.com.au I SSU E 37 | SU M M ER 2023 61
“I’m dreaming of a relaxed Christmas” The end of year festivities, although intended to be fun, can cause anxiety and overwhelm for a lot of families. The change of pace and routine can impact our kids and cause dysregulation, which is not fun for anyone. So, who better to give us their tips for a calmer Christmas than the very families who have travelled this path and have adjusted how they do things over the years. Check out some of the suggestions below!
“
“Start the toy and gift shopping at the mid-year toy sale (Target/Big W are great for all ages). Lay-by gifts as you can always refund or exchange come November if your kid’s needs have changed. This takes the bulk of the expenses away from the silly season.”
“ “
“My daughter did all her Christmas cards early so that she’s not doing it when she is exhausted in the silly season!”
“A gingerbread house decorating session. We then all smash it on Christmas Day to eat!”
62 SO U RCEKI DS .CO M . AU
“
“Because opening gifts is overwhelming we tend to ask for all presents for our son to be put in bags or unwrapped.”
“
“Early shopping as I like to be finished shopping very soon. It paces out the spending, the demands on my agenda and the overload of being around too many people! Also, I’m starting alternate traditions for little bits of fun to share (because presents are not the typical experience here). I’ve only come up with one so far, and it’s matching Christmas pyjamas! Happy to take suggestions for more!”
“
“We host Christmas in our home, that way our 12year old is in familiar surroundings and has his own toys and room to retreat to. More work for us but definitely more relaxing and safer!”
“
“Easy, easy as she goes - no fuss, no rush. Prepare as much as possible before the day. Don’t labour over a Christmas lunch that’s gone in 10% of the time it took to make. And don’t measure your day by anyone else’s especially not Instagram.”
“
“Don’t need to do ALL the things, don’t need to say YES to everything. Saying NO makes room for what is special and what you will all enjoy.”
“
YOUR CHRISMAS TIPS
“Remember: You don’t have to go to the big family gathering. You don’t have to travel. You don’t have to wrap presents. You don’t have to open them all in one go. Do bring food to venues if you need to. Do leave when you want. You can split the family up and have some stay for just a small part or some not go at all. You don’t have to hug or kiss or even high five. You can wear what makes you feel good. You can wear earmuffs; or loops with your hair down. Some people need gentle reminding of accessibility for toilets, entrances, parking, height of the ‘buffet’ table. Sometimes people with a great heart still say the wrong thing. Education is key and hopefully they’ll start to think a little more deeply. Do try and enjoy the day, it is your day as well!”
“ “ “As a neurospicey family, we involve our kids in picking their own presents. It helps to prevent overwhelm and meltdowns. We also do a slow morning of presents and PJ’s, followed by lunch and we pick all our favourite foods.”
“Opening one special present on Christmas Eve works for us. The kids don’t feel that their presents are being withheld from them. It also makes for automatic entertainment on Christmas morning!”
“ “ “
“We do 25 days of Christmas books. Wrapped and one opened each night of December. We have an online advent calendar gifted to us each year by our mother-in-law. It’s got videos and games to keep us all entertained!”
“We are loving adults only events. Catching up for a drink is often easiest. As the kids are getting older, we are finding they are happier doing less and more of their own things.”
“Keeping it simple and only short trips to shops etc. A list on fridge and a schedule with dates so the kids know what to expect and can prepare for it.”
I SSU E 37 | SU M M ER 2023 63
Everyone deserves the chance to ride a bike Custom and modified bikes, trikes, frame runners and electric assist. Our expert health professionals empower children and teens living with disabilities to experience the thrill of cycling. Witness their smiles as they gain confidence, strength & independence. Safety, fun, and personalised support are our priorities.
Choose to purchase or rent a bike from our Freedom Wheels fleet
Register for a free trial with our health professionals today.
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• Assessments and diagnostics • Autism support services • Early childhood and school support
Visit earlystartaustralia.com.au or call 1300 372 439 to book an appointment today
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GIFT INSPIRATION
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Needing some time out
AUSTRALIAN DEVELOPED Does your child struggle at mealtimes? Footrests to support your child at mealtimes from 4 months to 9 years. Provides security and comfort for your child while sitting
Encourages improved concentartion on tasks while seated
Allows for 90/90/90 seating position rule
Allows for better hand to mouth coordination
Worksheets to support your child’s writing journey A collection of beautifully illustrated writing and visual perceptual resources for young children. Available online and developed to allow pre-writers or reluctant writers to practice combining all the elements needed for writing.
Allows child to sit upright with stability
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Woodsi Footsi®
Designed by Occupational Therapists
Footsi Grow®
crateresources.com.au
www.nibbleandrest.com
crateresources
crate_resources
Free Online Safety Training Equipping people with disability with skills to identify and overcome online risks. • Recognise and manage cyberbullying, • Safe online relationships, • Protect personal private information,
Supports available in Greater Sydney and Central Coast
Developed in collaboration with leading cyber safety experts, ySafe, thanks to funding from The Office of the eSafety Commissioner’s Online Safety Grants Program
Support Coordination
Accommodation
Behaviour and Allied Health Services
Community Access and Self Care
Access the free training at www.interactionservices.org/online-safety
Interaction Disability Services is a not-for-profit, NDIS-registered organisation committed to supporting and empowering people living with intellectual disabilities. For more information call 1300 668 123 or visit www.interactionservices.org
I SSU E 37 | SU M M ER 2023 6 9
holiday essentials Check out these holiday essentials to keep you on track for a festive summer!
4
COOL CABANAS FOR H OT B A N A N A S
1
Grab a Cool Cabana for the perfect companion
PING IT AND FIND IT W I T H A N A P P L E A I R TA G
at the beach! Set up in just 2 minutes. With a central pole
No more losing bags and
anchored by sand in
important items with the
four columns, they’re
Apple air tag from Assistive
perfect for providing
Tech! Attach these babies
ample shade for
to anything you want to
everyone.
keep track of, and then
RRP from $189 //
you can locate it with the
coolcabanas.com.au
iPhone app! You can either play a sound on the built-in speaker within the app, or say “Hey Siri, find my bag!”. RRP $49 // assistivetech.com.au
*SUMMER BAG PICTURED
2
3
Get comfy with a Kooshy Kids inflatable travel cushion during
No matter where you may travel to, take the comfort of home
long flights, car rides, and train journeys. Its unique inflatable
with you by bringing along your Snuggly Bags by Ellie. Sleeping
design can be easily inflated with the included pump. Made of
bags are perfect to help keep your child secure and sleeping
highly durable materials, it’s a must have for any family on the
soundly at night as they can’t kick off all the covers! The range
go. Plus, with its compact size, it fits in your carry-on luggage.
includes summer and winter bags, with different weights for
RRP $79.95 // kooshykids.com.au
the perfect sleep. From $89.95 // snugglybags.com.au
C O M F Y W I T H KO O S H Y K I D S
70 SO U RCEKI DS .CO M . AU
WA R M A N D S N U G G LY B A G S
PRODUCTS
6
A U D E A R A H E A D P H O N E S – P ROT E C T I O N F O R E A R S Whether you are travelling or at home, relax with the knowledge that your child’s ears are being protected. Audeara’s innovative technology checks hearing and personalises the sound perfectly to each hearing profile, enhancing the listening experience. Also suitable for cochlear implant and hearing aid wearers. RRP $349 // assistivetech.com.au
5
WAT E R P RO O F L I N I N G S F O R D RY N I G H T S
8
These liners from Brolly Sheets fit inside childsized sleeping bags but also make a great travel companion if you are camping or staying the night
SKIN CARE FOR A S M O OT H S U M M E R
in a hotel or at a friend’s house. Waterproof to keep your child protected in case accidents happen, plus making it a quick and easy clean for parents and
The ultimate bundle to
carers. RRP $65.95 // brollysheets.com.au
keep our kids’ skin fresh and clean during the hot months. Includes these
7
great Medline products - cleansing no-rinse foam; nourishing skin
U LT I M AT E S E N S O RY B U N D L E
cream; hydraguard
Make your summer easier with the
cleaning cloths with
ultimate Summer Sensory Bundle
barrier cream.
by Sensory Poodle. Each bundle
RRP $23.99 //
contains - Jumbo Wovii towel; Ugly
shop.instacare.com.au
silicone cream, and
Swan scream-free hairbrush; Salty Sister sand remover; Solar Buddies sunscreen applicator; Contigo stainless steel drink bottle. RRP $139.95 // sensorypoodle.com.au
9
COMPLILED BY KELLY WILTON
T R A V E L A DA P T E R S
10
To keep iPads, speakers and
TRAVEL GAMES
headphones charged while
The Find It travel game from
traveling, don’t forget the
the Starfish Store will keep kids
chargers! The 4-Port USB
occupied with its visual sensory
Travel Charger charges
elements as they spot all sorts of
your phone, iPad, tablet and
objects in the sealed container.
camera all at once. Includes 4
Twist, spin and shake to find as
country plugs and can be used
many of the 40 objects as you can.
in Australia, EU, USA, UK. RRP
No mess and portable! RRP $48 //
$44.95 // kooshykids.com.au
starfishstore.com.au
I SSU E 37 | SU M M ER 2023 71
Watches Reads
&
Books and shows on our radar right now…
I’LL LET MYSELF IN, HANNAH DIVINEY Here at Source Kids, we’re big fans of this remarkable young disability advocate, actress, writer and now published author, and we can’t wait to learn more about her story in her first book. I’ll Let Myself In is a young woman’s battlecry over the voices who try to tell her who she can and can’t be, and a reminder not to wait to be invited to the table but to break the door down and demand to be heard. amazon.com.au
Self-Managed and Agency-Managed par ticipants can now access discounts on our new NDIS webstore. Plan Managed Participant Online Ordering is coming soon! You can access special NDIS discounts ordering online or by email or phone. We deliver a wide range of Continence products, Nutritional products, Wound and Skin Care products and other NDIS Consumables direct to your door.
Shop our reliable, discreet, home delivery service now. www.ndis.brightsky.com.au ndis@brightsky.com.au 1300 88 66 01 Option 1
72 SO U RCEKI DS .CO M . AU
THE CHRISTMASAURUS AND THE WINTER WITCH Full of magic and wonder, humour and heart, a friendship like no other, and a hero who uses a wheelchair(!). The Christmasaurus and the Winter Witch is the most enchanting Christmas read for the whole family. amazon.com.au
WATCH, READ & LISTEN
DOWN FOR LOVE A heart-warming quest for love, this feel-good reality show, recently released on Netflix, follows several people with Down syndrome as they navigate the trials and triumphs of
GET ARTY!
dating.
With the long school holidays looming, it’s good to have a few arts & craft projects up
LET’S SING & DANCE!
your sleeve and
Lee, Vee & Meg are our wonderful friends
this YouTube
Tiptoe Giants and their YouTube channel is
channel from
full of their beautiful and inclusive song and
The Artful
dance routines. It’s rich with music therapy,
Parent is full
educational and developmental tools, and
of great ideas
overflowing with sonic delights, dynamic
that look pretty
videos, and oodles of fun and good vibes!
simple too!
youtube.com/@TiptoeGiants
youtube.com/@Artfulparent1
INTENSIVE THERAPY FOR KIDS Timmermans Method combines multiple intensive therapies to help kids learn to roll, sit, crawl, balance, and walk. Our unique techniques help kids and families achieve improvements where previously they had not.
Large bodysuits to assist everyday living
Get more results, faster!
ADELAIDE and MELBOURNE locations.
• unisex onesies to help keep wandering hands out of nappies & pants • deters inappropriate undressing & other challenging behaviour • range includes back-zips & tummy access styles for tube feeding • available in sizes for kids & adults (great for aged care) • soft fabric & tag-free to minimise irritation • swimwear, bibs, bandanas & bedding protection also available
timmermansmethod.com.au
www.wonsie.com.au
Contact us to organise an assessment. Phone 0411696839
Registered NDIS Provider
I SSU E 37 | SU M M ER 2023 73
BEDS& SLEEP SYSTEMS
KEY C
Children
Y
Youth
A
Adults
Sleep is essential for our children’s physical and overall wellbeing. However, with many children it can be a tough road to slumber due to many different factors. Here’s a great round up of the products out there to help your child catch the Zs they need!
e Assistive Tech eGuid
HAVE YOU ALSO CHECKED OUT OUR LATEST ASSISTIVE TECH EGUIDE?
WHAT HAPPE NS AT A PRODU CT FITTIN G?
From beds & bikes to standers & strollers, wheelchairs, walkers and more!
NDIS PLANS & ASSIST IVE TECH WRITIN G GOALS FOR DIFFER ENT PRODU CTS
Keep up to date with Source Kids Expos
sourcekids.com.au/atguide
REGISTER FOR
Come and try!
Most
FREE TICKETS
AT SOURCEKIDS
will be of these products
COME AND TRY!
.COM.AU/DISABILITY-EXPO
on display at our
expos
Lots of these products will be on display at our expos: sourcekids.com.au/disability-expo *Chat to a product specialist about your child’s individual needs
C Y
ALRICK NINO Manufacturer: Caremed Supplier: Caremed Alrick Weight: N/A | Height: N/A • Electric Hi-low; Electric Backrest. • Fully customisable bed (colours/sides/ends); Optional Perspex, bars, fabric, colour, timber and upholstery. • P eace of mind for parents and carers. The Nino Series electric adjustable bed gives children a view of the world around them while keeping them safe and secure. Built for little legends!
C
THE SAFETY SLEEPER
Y
Manufacturer: Abram's Bed
A
Supplier: Avant Innovations Weight: Up to 227kg | Height: N/A • Sleeping enclosure for children at risk of harm when leaving their bed space. • Fully portable for travel use, giving parents peace of mind when on holiday. • Funded through the NDIS & not-for-profit organisations. The ultimate solution for young escape artists who put themselves at risk by leaving their bed space intentionally or otherwise.
74 SO U RCEKI DS .CO M . AU
PRODUCT REVIEW C Y A
REGIA Manufacturer: Stiegelmeyer Supplier: Statewide Home Health Care
S AF E LOA D O F 2 5 0KG
Weight: Up to 225kg Height: N/A • D esigned with all the profiling features of a hospital bed that is aesthetically pleasing. • T he telescopic split safety side offers an ideal balance between protection and freedom. • T hanks to the Easy Switch system, it can be snapped on and off in seconds. This enables the bed to meet changing needs and makes it easy to adapt to new situations.
Y A
CS8 Manufacturer: Invacare Supplier: Invacare Weight: Up to 250kg Height: Suits 198cm mattress • Electric four section positioning floorline bed with battery backup. • One-button chair positioning. • High safe working load of 250kg.
Y A
LU X A H O M E C A R E ENDLESS Manufacturer: Caremed Alrick Supplier: Caremed Alrick Weight: Up to 250kg Height: N/A • E xtremely low minimum position (150mm) with vertical lift. • Auto-Regression backrest. • Ash, Almond or Ocean padded headboard with full padded surround.
C
A DJ U S T A B E D
Y
Y
Manufacturer: Adjusta Mattress
E T U D E P LU S
A
Manufacturer: Invacare
A
Supplier: Adjusta Mattress Weight: N/A | Height: N/A • Adjustability; High Density Memory Foam Mattress; 3 Memory Positions. • 100% Certified Organic Fabric; AntiSnore; Zero Gravity. • 3 levels of massage intensity. With an Adjusta Mattress you can enjoy & benefit from all the advantages of an
Supplier: Invacare Weight: Max 165kg Height: Suits 200cm mattress • Electric four section positioning bed. • Tool-less assembly and easy to transport.
adjustable bed whilst being able to keep your current bed base and surround.
I SSU E 37 | SU M M ER 2023 75
C Y A
A L R I C K E N 9 000 E N D L E S S B E D Manufacturer: Caremed Supplier: Caremed Alrick Weight: N/A | Height: N/A • Available in Single, King Single, Double and Queen widths. • Genuine 3 in 1 bed (Floor line,
SUITS BAR I AT R IC C AR E
Hi-Lo and Bariatric). Universal 3-in-1 bed to suit low-high and bariatric care. It has a low height of 100mm and no towers!
Y
S A F E S U R R O U N D P LU S B E D
A
Manufacturer: KayserBetten Supplier: Medifab Weight: Up to 150kg | Height: N/A • Height-adjustable lying surface range from 52-92 cm (floor to top of mattress), low entrance for self-transfers and providing a safe working height for caregivers. • T he unique opening door system prevents the doors being opened from the inside and gives complete access to user from side of the bed.
C Y A
• Contouring sleep platform assists physical needs of the user
GENIE BED
with a 5 section profiling sleeping platform. The Safe Surround Plus Bed is designed to provide a safe
Manufacturer: KayserBetten
environment for active people that have the physical ability to
Supplier: Medifab
stand. Available in two height variations, 135cm or 170cm.
Weight: Up to 150kg | Height: N/A • E xceptional height adjustment from floor (42cm) to waist height (102cm) enabling independent transfers and a safe working height for caregivers. • A unique opening door system prevents the doors from being opened from the inside and ensures that the bed is “sibling safe” with a two-handed release lock. Has 8 outward opening doors to enable complete access to the user to provide therapy, changing and care. • A ssists physical needs of the user with 4 section profiling sleeping platform with adjustable head and leg elevation that can be operated together or independently. The Genie Bed System is for superior nursing care for toddlers to adults with very high needs and where safety needs to be maximised.
C
K N U T PA E D I A T R I C B E D
Y
Manufacturer: Savi Supplier: Active Rehab Weight: N/A | Height: N/A • Models with electric height adjustment have a residual height of at least 300mm if the lying area is completely raised. • Minimal operating strength required (push button). • L ockable control element prevents unsupervised opening. Manufactured with the greatest care using natural timber in the construction for a more tactile experience for children. ‘Tailor-made’ options to suit a range of individual needs.
76 SO U RCEKI DS .CO M . AU
PRODUCT REVIEW KEY C
C
Manufacturer: Leckey Supplier: Sunrise Medical
A
Weight: N/A | Height: N/A • Provides night-time positioning as part of a 24-hour positioning regime.
Y
Supplier: Medifab
A
Height: N/A
respite or holiday.
• T his sleep system includes a pressure-relieving mattress and
pressure build-up by way of its
offers a large range of pads that can
airflow mattress overlay and
be selected according to individual
Adults
client’s needs. • T he base cushions, upholstered
C
SIMPLE STUFF WORKS Y A SLEEP SYSTEM
Manufacturer: Simple Stuff Works
the individual comfortably in a
in fire-retardant, water resistant,
Supplier: Medifab
symmetrical posture while the child is
2-way stretch and antibacterial
Weight: N/A | Height: N/A
asleep thus improving quality of sleep
fabric, enable specific areas to be
• Fully adjustable sleep system developed
for the child and in turn the carer. Can
cleaned easily during the night with
be used to support multiple postures
minimum disturbance.
and can be changed over time to accommodate postural changes.
A
Manufacturer: Jenx
transportable for use at home,
temperature control sheet.
Youth
A
C
Weight: N/A
The Leckey Sleepform supports
Y
DREAMA
• Quick and easy to setup; easily
• Sleepform reduces heat and
C
SLEEP SYSTEMS
SLEEPFORM
Y
Children
Y
to prevent, accommodate, or even restore body shape changes.
• T he superior design of both the
• Supports are completely silent to use,
aluminium base and the modular
making changes in position throughout the
mattress cushions allow for airflow,
night as gentle and calm as possible.
helping to maintain a comfortable
• Using a specialist non-woven fibre, the
C A R E WAV E
A unique night-time positioning
Manufacturer: Pharmaouest
moisture from the skin and do not retain
system comprised of a superior
Supplier: Medifab, Avant Innovations
heat as foam is known to do. This allows
pressure-relieving mattress and
Weight: N/A | Height: N/A
the user to remain comfortable whilst
various multi-adjustable lateral
• B ody positioning system which offers
pads to support clients with complex
lying and seating support to all ages. • Various cushion shapes are available depending on the user’s need for positioning.
and stable temperature overnight.
postural presentations in bed.
supports are highly breathable, wick away
having the risk of tissue damage reduced. • Unique therapeutic positioning equipment designed to eradicate the preventable problems associated with body shape distortion.
• Unique micro-particle padding provides flexibility and a moulding effect, essential to support asymmetric postures, fill body gaps
SU PE R IO R DE S IG N
and for comfort around the user’s body and limbs.
SUPPLIERS
For a full list of suppliers, please scan QR code.
I SSU E 37 | SU M M ER 2023 77
VIC
Shop online for all your leading healthcare brands With over 50 brands and thousands of products to choose from, you’ll find everything you need from ALL your leading manufacturers. Our product range includes disposable and washable incontinence products, skin care, urological, medical supplies, cleaning products, bedding, home equipment, adaptive clothing, sensory toys and more...
orders@topcathealthcare.com.au
(03) 8201 7137
topcathealthcare.com.au
5/31 Hosie St, Bayswater North
Your Local Continence Care & Support Services Conquip was established in 1987. We are a proudly family owned and operated nursing/specialist clinic. Our nurses are both passionate and experienced in all areas of incontinence and strive to improve the outcomes for all.
conquip@suttonhouse.com.au conquip.net.au (03) 9876 3374 conquipcontinenceservices
78 SO U RCEKI DS .CO M . AU
We are a Registered Provider
QLD
“ Freedom of Motoring” NDIS Provider# 4050004526
NDIS Approved
Get Your Family Mobile with Simple Upgrades To Your Vehicle Volkswagen CADDY GEN 5 with a lowered floor set up
Disability Vehicle Conversion
for Wheelchairs & Mobility Scooters • Van Fit Outs • Turney Seats • Hoists • Docking Stations
• Wheelchair Ramps & Lifts • Hand Controls • Careva Harnesses • Custom Jobs
To find out how to simplify your family’s transportation
call (07) 3474 6575 or visit www.alternatemobility.com.au Brisbane Service Agents for: NDIS Approved
Alternate Mobility Unit 1/5 Miller Street Slacks Creek Qld 4127 Email: sales@alternatemobility.com.au I SSU E 37 | SU M M ER 2023 79
NDIS plan management with exclusive benefits. Sign up for Leap in! plan management and access our exclusive Member Benefits Club. The L! Club can save you money on groceries, homewares, electronics, disability products and services and so much more! We put our Members first. We help you navigate the NDIS with confidence, armed with the knowledge you need to get the most out of your child’s plan. And, we take care of NDIS admin and paying invoices to give you more time to focus on the things that matter to you and your family. Talk with us today about how we can make a difference for you.
Visit leapin.com.au Call us on 1300 05 78 78