APRIL 2022
TO GET THE DIGITAL COPY OF SNL THROUGH TEXT MESSAGE TEXT THE LETTERS SNL TO THE NUMBER 55433.
INSIDE: • Autism Avenues: Traditional and Alternative Options • Meet the Seay Family • Meet the Miller Family • Non-Profit Spotlight: SAWs • Sponsor Spotlight: Fortune Academy – Celebrating 20 Years of Transforming Lives • The ABCs of IEPs: Language Delays or Disorders • Pastor’s Corner: Invisible Disabilities: A Pastor’s Perspective • Local Events and More
Meet the
Seay Family Photos by: Matthew Doudt Photography
2 Special Needs Living • April 2022
More than a Trampoline Park Adrenaline is the perfect place for an adventure! Have a blast jumping on trampolines (of course), channeling your inner ninja warrior, making it to the top of the climbing wall, or challenging your friends in jousting. We are the largest indoor adventure park in Indiana, with 50,000 square feet of attractions, including our ALL NEW ropes course, warped wall, stunt fall, all sports course, harnessed climbing wall
and MORE!! Sensory Friendly Play every Monday from 11:00 a.m. - 4:00 p.m. Call or email to reserve your spot!
10080 E 121st St Suite 182 Fishers, Indiana 46037 317-572-2999 adrenalinefishers1.com events@adrenalinefishers.com April 2022 • Special Needs Living
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I M P O RTA N T
N UMBE R S 317-977-2375
Arc of Indiana www.arcind.org
317-257-8683
ASK: About Special Kids, Inc. www.aboutspecialkids.org
317-676-4222
Autism Community Connection www.autismcc-in.org
800-609-8448
Autism Society of Indiana www.autismsocietyofindiana.org
877-241-8144
Blind and Visually Impaired Services (BVIS)
800-545-7763
Bureau of Developmental Disabilities Services (BDDS)
800-545-7763
Bureau of Rehabilitation Services (BRS) Deaf and Hard of Hearing Services (DHHS) DHHSHelp@fssa/in.gov
www.n2pub.com Turning Neighborhoods Into Communities © 2022 Neighborhood Networks Publishing, Inc.
AREA DIRECTOR PUBLISHER
Jamie McCabe jamie.mccabe@n2pub.com
317-233-4454
Indiana Family and Social Services Administration (FSSA) - www.in.gov/fssa/index.htm
317-232-7770
Indiana Governor’s Council for People with Disabilities (GPCPD)
812-855-6508
Indiana Resource Center for Autism https://www.iidc.indiana.edu/irca
317-233-1325
Indiana State Department of Health
844-446-7452
Indiana Statewide Independent Living Council (INSILC)
855-641-8382
Indiana Works
800-332-4433
INSOURCE http://insource.org/
800-622-4968
Disability Determination Bureau
888-673-0002
Division of Aging (IDA)
800-457-4584
Medicaid Disability
800-403-0864
Division of Family Resources (DFR)
317-232-7770
Medicaid Waivers
317-232-7800
Division of Mental Health and Addiction
800-772-1213
Social Security Administration (SSA)
317-925-7617
Down Syndrome Indiana
877-511-1144
Early Childhood and Out of School Learning (OECOSL)
317-466-1000
Easterseals Crossroads https://eastersealscrossroads.org
911
Family Voices Indiana www.fvindiana.org
800-545-7763
First Steps
317-232-0570
Social Security Disability Insurance (SSDI)
877-851-4106
Special Education Questions
317-871-4032
United Cerebral Palsy Association of Greater Indiana
800-545-7763
Vocational Rehabilitation Services (VR)
Emergency
844-323-4636
574-234-7101
1-800-772-1213
INSOURCE www.insource.org Indiana Department of Education: Office of Special Education www.doe.in.gov/specialed
4 Special Needs Living • April 2022
SCAN TO VIEW THE PAST ISSUES OF SPECIAL NEEDS LIVING
SCAN TO GET THE DIGITAL COPY OF SNL THROUGH TEXT MESSAGE
DISCLAIMER: Any articles included in this publication and/or opinions expressed therein do not necessarily reflect the views of The N2 Company d/b/a N2 Publishing but remain solely those of the author(s). The paid advertisements contained within the Special Needs Living magazine are not endorsed or recommended by The N2 Company or the publisher. Therefore, neither The N2 Company nor the publisher may be held liable or responsible for business practices of these companies. NOTE: When community events take place, photographers may be present to take photos for that event and they may be used in this publication.
THANK YOU
to the sponsors of the 2022 Midwest Academy Gala to be held on April 29th Title sponsor:
April 2022 • Special Needs Living
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Sponsor I N D E X Thank you to all the below businesses who have chosen to support Special Needs Living magazine each month!! They would be delighted to help you with your next project or need. If you know of a business that helps those with special needs and would be a good resource for families please let us know. Jamie.McCabe@n2pub.com. If you run a business and would like to be involved or support this magazine you can set up a time to talk here https://calendly.com/jamie-mccabe/special-needs-living ABA & COMPREHENSIVE SERVICES K1ds Count Therapy (317) 520-4748 ABA SERVICES Adapt for Life ABA (317) 383-0188 Applied Behavior Center for Autism (317) 849-5437 Autism Center for Enrichment (317) 436-7080 BehaviorWorks ABA (317) 731-7777 Mindful and Modern ABA Therapies (317) 827-7777 Piece by Piece Autism Center (765) 481-2261 ABA/COMPREHENSIVE SERVICES The Hope Source (317) 578-0410 ACCESSIBILITY PRODUCTS AMRamp (260) 519-1935 ACCOUNTING/PAYROLL/TAXES Borshoff Consulting LLC. Sherry Borshoff (317) 902-6539 ADULT DAY CENTER Adult Day Centers Jay Lugosch (317) 296-8815 ADVOCACY/EVALUATIONS PEAS for Kids (920) 980-1172
6 Special Needs Living • April 2022
ASSISTANCE DOG Indiana Canine Assistant Network, INC. (ICAN) (317) 250-6450 ATTORNEY Hostetter & Associates (317) 852-2422 ATTORNEY-WILLS/TRUSTS/ ESTATE PLANNING Law Office of Elizabeth A. Homes LLC (317) 660-5004 CASE MANAGEMENT Connections Case Management (317) 440-0637 IPMG - Indiana Professional Management Group (866) 672-4764 CAT CARE & SITTING Bastet Cat Care & Sitting (317) 919-1948
ELECTRICAL SERVICES 21 Electric (317) 449-0021 FINANCIAL Charter Advisory Corporation David Yearwood (317) 844-7416 Munder Financial James Munder (317) 238-6621 WestPoint Financial Group Gordon Homes (317) 567-2005 FUNCTIONAL MEDICINE Wholestic Nutrition (317) 429-0111 GYMNASTICS Body by GymRoots Studio (317) 579-9300
CBD SUPPLIER Indy CBD Plus (317) 961-0191
HEALTH & WELLNESS LifeVantage - Team Richards Kristin Richards (317) 698-5264
COFFEE ROASTER Tinker Coffee Co. (317) 438-5728
HOME CARE Amiable Home Care Inc. (317) 802-1746
COUNSELING SERVICE Mark 2 Ministries (317) 777-8070
HOME CARE SERVICES SafeInHome (855) 476-6665
DAY / BEHAVIORAL SERVICES Developmental Disabilities Systems INC. - DDSI (317) 477-8240
INDOOR TRAMPOLINE PARK Adrenaline Family Adventure Park (317) 572-2999 adrenalinefishers1.com
DENTAL CARE Children’s Dental Center (317) 842-8453
Rigsbee Hall Orthodontics (317) 574-0612
INSURANCE State Farm John Cole (317) 430-1958
PARKS & RECREATION Johnson County Parks & Recreation (812) 526-6809
INVESTMENT MANAGEMENT Dan Claxton Investment Advisory & Broker Dan Claxton (317) 250-8080
PEDIATRIC THERAPY Wee Speak (765) 446-8300
LANDSCAPING/LAWN CARE/ LANDSCAPE LIGHTING Franco Landscaping, Inc (317) 858-3858
REAL ESTATE Encore Sotheby’s Patti & Jeff Carroll (317) 809-5839
MOBILITY / ACCESSIBILITY CYA Mobility (317) 530-2541
REALTOR Carpenter Realtors-Jeremy Page (317) 413-5311
MORTGAGE CrossCountry Mortgage (317) 666-4679
F.C. Tucker Nicole Lyon (317) 501-0639
MUSIC THERAPY Resounding Joy (858) 888-0899
REGENERATIVE MEDICINE/ STEM CELL THERAPY Destination ReGen (317) 522-1980
NEUROFEEDBACK THERAPY Indy Neurofeedback (317) 888-8500
SCHOOL Dynamic Minds Academy (317) 578-0410
ORTHODONTICS Hallmark Orthodontics (317) 773-5515
Midwest Academy (317) 843-9500
SCHOOL - SPECIAL NEEDS The Fortune Academy (317) 377-0544 SCULPTURE, POTTERY & ART Ripple Mobile Arts (317) 514-8469 SPECIAL EDUCATION CONSULTING IEP Services, LLC. Sheila Wolfe (317) 573-9610 SUPPORT SERVICES Easterseals Crossroads (317) 466-1000 Noble (317) 375-2700 The ALTRUIST Group, LLC (317) 547-3041 x1005 THERAPY & TESTING SERVICES The Brain Center (317) 748-0034 VIDEOGRAPHY/PHOTOGRAPHY Deliver Video Eli Walker (765) 602-1046 VOLUNTEER OPPORTUNITIES Buttermilk mountain (317) 987-8450
Noble has been expanding opportunities and enhancing the quality of life for people with disabilities since 1953.
If You Can Dream It,
We Can Help You Live It. Learn more at MyNobleLife.org,
on social media, or at 317-375-2700.
At Noble, our goal is to meet the needs of the children and adults so they can “Dream It. Live It.” every day. • Family & Support Services • Youth Services • Adult Life Services • Employment • Therapies • Advocacy
April 2022 • Special Needs Living
7
MEET THE
Special Needs Living TEAM JAMIE MCCABE Publisher & Area Director
CHRISTIA WOODFORD Publishing Assistant and Local Events
MARIA SMIETANA Editor-in-Chief
ANGIE ARLINGTON Community Engagement Coordinator / Writer and Contributor
HEATHER GREGG Photographer 21 Vines Photography
CHRISTIE AND NATHAN BUONANNO Buonanno Photography
KENDAL FORD Kendal Nicole Photography
ISAAC ROMAN Writer and Photographer
Buttermilk Mountain Making sure adults with disabilities are taken care of in the future and have fun along the way.
Buttermilk Mountain
JANE GAILEY Event Manager
WRITER & CONTRIBUTORS
ANGELICA N. GRAY, MA, BCBA, LBA
AARON OLSON
SHEILA WOLFE
DEANDRA YATES
PAUL HATHCOAT
MATT KNIGHT
DORIE ZIPPERLE
CHRISTINA MCGAIRK Editor and Writer
is excited to offer adults with disabilities the opportunity to create Buttermilk’s Biscuits, all natural pumpkin dog treats. Making the Biscuits teaches the Bakers important life and job skills, including: • FOLLOWING DIRECTIONS • BEING A TEAM PLAYER • COMMUNICATING WITH THE PUBLIC
The Bakers sell Buttermilk’s Biscuits at local farmers markets, pet expos and holiday bazaars. Buttermilk Mountain uses the proceeds to host fun events for families with special needs.
317.987.8450 buttermilkmountain.net
buttermilkmountaininc@gmail.com
8 Special Needs Living • April 2022
April 2022 • Special Needs Living
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Our Purpose We are leading the way to 100% equity, inclusion and access for people with disabilities, families and communities.
Our Services
From birth through later life, we are a resource for people of all ages, partner organizations, businesses, employers, nonprofits, schools, universities, civic groups, government agencies and more.
Programs for children include early intervention services; physical, occupational and speech-language therapy; autism and behavior services; respite and camp programs. Adult programs include adult day services; employment and veteran options; and transition services. Family options include home modification services; Deaf services; a speech and hearing resource center and an autism resource center.
eastersealscrossroads.org
Our Partners 10 Special Needs Living • April 2022
Our community partners help us achieve the 25% of our operating budget that depends upon philanthropy.
Independence Park - a place to PLAY for ALL
• All Inclusive Playground Remodeled in 2020 featuring an Interactive YALP & Sona Arch • 3 Rentable Shelters • Wheelchair Accessible Trail with JCPL Storywalk • Wheelchair Accessible Basketball Court
YOU’RE INVITED – Reserve your Spot Today!
2100 S Morgantown Rd Greenwood, IN 46143 812.526.6809 www.jocoparks.com Follow us on Facebook! @injocoparks @jocoind
This event is for special needs families, along with the supporters of Special Needs Living. This will be a great way to connect with other families in the community and enjoy a day of fun. On behalf of Press Play Gaming Lounge, there will be no cost for your family to come and enjoy this connection opportunity.
Remote Supports
Date: April 26th 6-8pm
FOR PEOPLE WITH DISABILITIES
Location: Adrenaline Family Adventure Park 10080 East 121st St., #Suite 182 Fishers, IN, 46037
scan to RSVP
Register here to reserve your spot!! https://www.eventbrite.com/e/special-needsliving-social-at-press-play-gaming-loungetickets-291864132477
Scan Me
Empowering people with disabilities to live independently in their own homes and communities using Remote Supports
www.safeinhome.com
- FAMILY FUN DAY AT
1-855-476-6665
A private event for families & individuals with special needs. Virtual Reality, 3-point Challenge, foam war, arcade, games & more. This event is free, you and your family can play at no cost. Food and beverage are available for purchase. Come out and have a fun evening and meet some other special needs families. Space is limited. Please RSVP. April 2022 • Special Needs Living
11
promotions
This Magazine is – F O R YOU – BY YOU – To Support & Connect You H E R E I S H O W YO U C A N B E I N V O LV E D
Have a story to share
For Advertising:
Would you like to share a story in an upcoming issue of Special Needs Living? We want to hear from you – To share a story or to nominate someone else to be in an upcoming issue of Special Needs Living, email us your story ideas or nominations to SpecialNeedsLivingIndy@n2pub.com.
Do you run a business that supports the special needs community and are looking to advertise and support the Special Needs Living magazine? Email: Jamie.McCabe@n2pub.com. Would you like to share a story? Scan here to submit a story to be in a future issue of Special Needs Living!
Highlighting all Special Needs Businesses
To view several story options with quick links to answer questions and upload photos go to Linktr.ee/Community.Stories.
Do you have special needs and run a business? We will highlight all those with special needs who run a business for free – email us or go to Linktr.ee/ Community.Stories and click on (Special Needs Living – Business Profile Q&A).
Accomplishments/Achievements/Milestones Looking to Celebrate all Special Needs Individuals
Looking to give back and make a difference in the community?
Some accomplishments and milestones take years ... We want to recognize you/them! Are you or your child celebrating a birthday, milestone, achievement, or accomplishment? We want to recognize you – email us at SpecialNeedsLivingIndy@n2pub.com.
Join us to impact the community through our Impact Campaign. Your donation will help support local nonprofits that serve the special needs community. Many parents and individuals with special needs find it difficult Scan to donate and support local nonprofits to find resources that exist in the that support the special community to help them. Some feel needs community. alone and isolated as they navigate through the challenges. We started Special Needs Living to help inspire, educate and connect local families together and help them find great resources to help them live their best lives. Scan or click the link below to learn more. https://app.donaide.com/donaidefoundation/impact
Calling all 501c3 organizations that support the Special Needs community
Each month, we will highlight a nonprofit for free to let the community know more about how they support and impact families and individuals with special needs. Do you run a nonprofit or know of one that supports the special needs community? Email us at SpecialNeedsLivingIndy@n2pub.com. Let’s Get Social
To keep up to date with all things happening with Special Needs Living – Upcoming Events/Socials/Gatherings – Stories and Highlights – Ways to be Involved – Follow us on Facebook@specialneedslivingmagazine. Scan to get Special Needs Living digitally through text message and to keep up to date on all the latest in the community!
12 Special Needs Living • April 2022
Scan here to view the past issues of Special Needs Living!
Creating Meaningful Music Experiences One Class at a Time!
Amiable Home Care Inc. is a multi-service home care agency. We specialize in helping individuals from all age groups.
Resounding Joy's Healing Notes program uplifts children with challenging conditions, helps them achieve their goals, and supports health and wellness for their families. not-for-profit • evidence-based services Board-Certified music therapists • support services for the whole family waiver and non-waiver services • group and individual options in-person and virtual options Scan to Sign Up for Classes Today.
Contact me to check out new classes available at The Main Squeeze, a new arts and movement co-op in Carmel.
lzehren@resoundingjoyinc.org | 858-888-0899
RESOUNDINGJOYINC.ORG
We assist with errands, light house work, medication reminders, bathing, food preparation, and lots more! We accept A&D and TBI Waivers. For private pay, ask about our rates. Providing Behavioral Health Services under the Family Supports Waiver (FSW) and Community Integration and Habilitation Waiver (CIH). We currently offer Participant Assistance and Care (PAC) Structured Family Caregiver Levels 1, 2, 3 Family and Caregiver Training Wellness Coordination Residential Habilitation & Support and Day Habilitation Attendant Care and Respite
317-802-1746 • amiablehomecare.org
@AmiableHomeCareinc April 2022 • Special Needs Living
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Offering free or for-donation Biblical Counseling and Relationship Coaching for families within the Special Needs Community. Coaching - Consulting - Collaborating Follow us on Facebook for exciting updates @mark215
Did you know there are more victims held against their will today than ever before? That’s why The N2 Company – the company behind this publication and 850+ others like it – is financially committed to end human trafficking.
FOR EVERY AD WE SELL, N2 DONATES ENOUGH MONEY TO FREE 2 SLAVES FROM CAPTIVITY. The average Fortune 500 company donates about 1% of their profits to charity. The N2 Company donates more than 2% of their gross revenue.
Thanks to the businesses within these pages, our Area Directors, and readers like you, we’re able to break the
DONATED THIS YEAR TO HELP END MODERN-DAY SLAVERY.
We are committed TO BUILDING BEAUTIFUL SMILES BY FOCUSING ON BEING PERSONABLE, POSITIVE, AND PROFESSIONAL! With special training in craniofacial, surgical, and special care orthodontics, the staff and team at Hallmark and Rigsbee Hall Orthodontics is committed to you! We are excited to see your beautiful smile and have a lot of fun along the way. Call us for a free consultation.
Carmel & Shelbyville IN rigsbeeorthodontics.com 317-574-0612
Noblesville & Elwood IN hallmarkorthodontics.com 317-773-5515
14 Special Needs Living • April 2022
chains of this horrible reality.
Visit n2gives.com to learn more about our fight.
Homeschool? Planning a birthday party or celebration? Looking for a fun activity to art class to participate in?
Cus tom Clas s e s & Ar t P r oj e c t s 317-514-8469 ripplemobilearts.com
In-Home or In-Studio Classes
Looking for Services? ABA Therapy
ABA is an intensive, one-on-one therapy program that teaches language, social skills, and daily living skills while decreasing maladaptive behavior through environmental modification and positive reinforcement. Skills taught include requesting, commenting, conversational skills, social skills, toileting, dressing, and feeding. Mastery of these foundational skills allow children to be more independent and successful in their day to day activities.
Behavior Consultation
Our BCBAs are here to help facilitate treatment and to meet with families on a regular basis to discuss their child's progress and any problems they are experiencing at home or in the community. We believe in as much collaboration as possible to ensure generalization of skills and behaviors to all the environments our children are in.
*this service is provided in home through the BDDS Medicaid Waiver
Looking for a Career? We are looking for a clinic-based BCBA with a heart for helping underserved populations in small town communities. Soft skills required for this job include: ability to work as part of a team, great communication, flexibility, and excellent interpersonal skills. We offer competitive pay based on experience, medical, dental, and vision insurance, 401K, life insurance, short term disability, yearly professional conference opportunities, CEUs, and re-certification reimbursement.
BCBAs
We are looking for ABA therapists to work one-on-one with children and adolescents diagnosed with autism. All necessary training will be provided upon hire and leads to Registered Behavior Technician certification from the Behavior Analyst Certification Board. Soft skills required for this job include: ability to work as part of a team, great communication, patience, flexibility, and excellent interpersonal skills. We offer competitive pay based on experience, medical, dental, and vision insurance, 401K, life insurance, short term disability, and an exceptional time off policy.
RBTs
At Piece by Piece, we believe in bringing ABA quality therapy to communities that do not readily have access to services for children with autism.
Visit our website for more information www.piecebypiececenter.com April 2022 • Special Needs Living
15
MEET THE
SEAY FAMILY
featured family
James, Lisa, Payton, Taylor, James Jr. “JC”, Ethan By Rae Swift and Maria Smietana Photos by: Matthew Doudt Photography
Noblesville residents James and Lisa Seay and their four children are in most ways a typical family. After a busy week of work and school, “our favorite family tradition is Friday Pizza Night,” said James, who works in Technical Sales. “We rotate who gets to pick the pizza place each and every Friday, and this usually turns into Family Movie Night where we pig out on junk food and watch movies.” Some recent screen favorites have been Disney’s Encanto and Marvel’s Eternals. When everyone is hanging out at home, they also like to read, play videogames, and create Tic Toks.
When JC was getting ready to make the transition to junior high, his parents were determined to find a school where he could experience a true sense of belonging. They wanted JC to have a normal school experience, whether that meant building meaningful friendships, participating in extracurricular activities, seeing an attainable path to graduation, or not sticking out because of differences, but rather being celebrated for them.
James was born in Alabama and spent a majority of his childhood in northwest Ohio. Lisa, who grew up in northeast Ohio, met James in Columbus, where their first three children were born. When a job promotion for James resulted in a relocation to Indiana, the family settled in Noblesville, where the school system was a good fit for daughters Payton and Taylor. Now 17 and 15, respectively, the two are students at University High School, where Payton helped lead the girls basketball team to victory in the 2021 IHSAA Class 2a Regional Championship. Youngest son Ethan, the only Seay who’s a native Hoosier, is 12 and having a great experience in middle school.
JC’s younger brother, Ethan, doesn’t see anything different about JC. “He looks up to him and I love that!” Lisa said. “JC is just like any other teenager to him.”
Life has been more challenging for the Seay’s third child, James Jr., better known as JC. Now 13, he was born with a mild intellectual disability and also diagnosed with ADHD and speech disfluency. His parents say their biggest challenge was finding the right educational fit for him. They wanted a place where he felt included and could achieve his highest potential. At his elementary school, he had a high level of support and wonderful teachers, though were times when he didn’t experience a sense of belonging. “Given his educational and social hurdles, there were
16 Special Needs Living • April 2022
concerns regarding JC feeling included and truly seeing his path to graduation,” Lisa said.
That was when they found Fortune Academy, where James said there is a greater sense of community and a clear path of success for JC, something he had not experienced before. JC is now involved in Anime Club, basketball, and theater. He’s even had a chance to participate in a play. Not to mention, he has made quite a few friends!
When Payton and Taylor were younger, they didn’t understand JC’s challenges. “They thought it was just their younger brother being annoying (LOL),” Lisa said. “However, as they began to mature, they better understood that the annoying things JC was doing were not intentional. We had to help them understand that he processes things differently. JC has issues understanding nonverbal cues which leads to him misreading/misunderstanding interactions and situations. They’ve learned to clearly articulate their feelings and needs with him versus expecting him to ‘read the room.’” It’s also fair to say that the girls have become JC’s biggest protectors and allies. “When it was time to transition JC from elementary to middle school, they were the strongest proponents
for alternative education, pushing us to look at [non-traditional] schools,” Lisa said. “Having gone through middle school and understanding the social dynamics, they were concerned how JC would be treated by others.” Recently, Taylor said she needs to ensure she has a big house when she gets older so JC can have his own space. “It melted my heart to know she’s thinking of his future,” Lisa said. “As parents of a special needs child, that is always in the back of your mind— ’What will happen to my child when I’m not here?’ It gives me a sense of peace to know his siblings will always have his back.” Lisa adds that JC has given his family so many good memories, and more than a few laughs. “He is a really loving kid, especially
when it comes to animals,” she said. “He somehow has been able to catch two birds, a rabbit, and a frog, [in the wild]!” The Seays are big sports fans, rooting for THE Ohio State University and of course for the University High School Trailblazers. All the kids are seasoned travelers. Their favorite vacation destination is Florida. James and Lisa describe JC’s current experience at Fortune Academy as a prayer answered. “We had to realize we needed to be patient and have a plan,” James added. He wants parents of special needs children to remember that “you cannot compare your child to others; each of their journeys stands on its own.”
What if your child's body could repair or regenerate leading to a better quality of life with reduced pain?
ICAN’s 20th Celebration Party!
Replenish what the body needs, where the body needs it with the life changing power of Regenerative Medicine and Tissue Therapy.
Friday, April 29th – Biltwell Event Center – 5:30 to 11 pm A family-friendly event for all ages. The ICAN dogs are taking over the entire Biltwell Event Center! • Vegas-style games • Carnival Games for Children • Wine & Chocolate Tasting • Wine Pull & Silent Bourbon Auction • PAWS Vegas Buffet • Live Karaoke with appearances by the Dog Pack and other special guests!
Tickets Now on Sale! Visit icandog.org
BIO-IDENTICAL HORMONES | CHIROPRACTIC CARE | CLINICAL WEIGHT LOSS | IV THERAPY | MED SPA | NEUROMUSCULAR RE-EDUCATION | TISSUE/STEM CELL THERAPY
To see if your child is a good candidate for regenerative medicine tissue therapy, book a free consultation with our medical team today!
(317) 565-1450 www.destinationregen.com
Because every child deserves to live pain free! 5100 Charles Court | Suite 100 Zionsville, IN 46077
www.icandog.org
11495 N Pennsylvania St #100 Carmel, IN 46032 April 2022 • Special Needs Living
17
Family owned & operated
Estate Planning Get Immediate Results – And Long-Term Support
Experienced Attorneys Serving Hendricks, Boone, and Marion Counties and beyond. Call us today 317-852-2422 or visit hostetterlegal.com to schedule your consultation.
18 Special Needs Living • April 2022
21 Electric was created in honor of our son, Brody, who has Down Syndrome.
BUILDING FOR A BRIGHTER FUTURE! • Full-service electrical contractor • Licensed, bonded, & insured • 100+ years of combined experience • Residential & Commercial services • Stocked service vehicles ready to go
www.21electric.net Contact us today at 317-449-0021 @21Electric.net
Adult Day Habilitation • Behavior Services Participant Assistance & Care MAKE CHOICES • GAIN SKILLS • CUSTOM EXPERIENCES Give us a call today to learn more about being involved.
ddsi-in.com • info@ddsi-in.com • 317-477-8240
5999 W Memory Lane Greenfield, IN 46140
April 2022 • Special Needs Living
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LOCAL EVENTS Important Note: Prior to attending any events please be mindful of any COVID-19 restrictions. Please review the state mask executive order. There are exemptions within the order, including that children under 2 years of age should not wear a face-covering due to risk of suffocation; and any person with a medical condition, mental health condition, or disability that precludes wearing a face covering is not required to do so. Since COVID-19 is still among us there is a possibility that the events listed and places to go could be canceled, rescheduled, or closed. Please confirm event status and listed details in case event details have changed since posting. Note: Don’t forget to apply for the Access Pass! The Access Pass Program allows for families that meet the specific requirements listed below to visit The Children’s Museum of Indianapolis and all participating locations for $2 per family member per visit, for up to two adults and all dependent youths living in the household. Qualifications include the following: • Hoosier Healthwise Insurance (Indiana’s health care program for low-income families, pregnant women, and children) • SNAP (Supplemental Nutrition Assistance Program) • TANF (Temporary Assistance for Needy Families) Apply Here: https://www.childrensmuseum.org/ visit/hours/access-pass
20 Special Needs Living • April 2022
MUSEUMS
SPORTS
The Children’s Museum of Indianapolis Various Events April 1 - April 30 Starting at 10:00 am 3000 North Meridian Street Indianapolis, IN 46208 317-334-4000 https://www.childrensmuseum.org/ visit/calendar?date=01/08/2022
Indiana Pacers April 1, 9, 10 Various start times Bankers Life Fieldhouse 125 South Pennsylvania Street Indianapolis, IN 46204 317-917-2727 https://www.nba.com/ pacers/schedule
Conner Prairie-Indiana’s Living History Museum Various events through April. In 2022 the second Sunday of every month from 10 am-12 pm will be sensory-friendly hours. Admission is free, and all of the grounds will be open. BREAKFAST WITH THE BUNNY April 16, 8:30 am - 12:30 pm Enjoy a delicious breakfast buffet and visit with the Easter Bunny for a photo op. Assigned seating will be arranged in advance for registered guests. This event sells out quickly so reserve your tickets today. First seating opens at 8:30 am. Second seating opens at 11 am. $21.95/$11.95 member adult/youth; $24.95/$14.95 non-member adult/youth. EASTER EGG-STRAVAGANZA April 16 10:00 am - 5:00 pm. After breakfast, Easter on the Prairie continues with activities throughout our grounds! Easter egg hunts will be divided up by age group and spread throughout the grounds. Times and age ranges: 1:30 pm - 2-3-year-olds, 1:45 pm - 4-5-year-olds, 2:00 pm - 6-8-yearolds, 2:15 pm - 9-12-year-olds. 13400 Allisonville Road Fishers, IN 46038 317-776-6000 http://www.connerprairie.org/
Indy Fuel April 3, 8, 13, 16 200 South Capitol Avenue, Suite 300, Indianapolis, IN 46225 800-323-INDY (4639) | 317-262-3000 FAMILY FUN The Well Community Church Special Egg Event (Egg hunt for children with disabilities) Saturday, April 9 2:00 pm - 5:00 pm The Well Community Church 544 Pit Road, Brownsburg, IN 46112 Complete with games, prizes, and Baxter the Bunny! The egg hunt will have 3 separate start times: 2 pm - Adaptive Egg Hunt Magnetic eggs are picked up with poles. This hunt is perfect for kiddos in wheelchairs or gait trainers. 3 pm - Sensory Friendly Hunt Quiet egg hunt with little stimulation. This hunt is great for kids with autism or sensory processing difficulties. 4 pm - Family Egg Hunt For children who can hunt unassisted but have developmental delays. Siblings can participate in this hunt! Family games and activities run simultaneously to the egg hunts. We would love for you to stick around to play for a while before or
after your hunt. Questions: jana@thewellcommunitychurch.com The Ausome Bunny- A FamilyFriendly Sensory Event April 10 10:00 am – 2:00 pm The Ausome Bunny is a family-friendly sensory event for Autism Awareness Month. Join Ausome Indy and hundreds of families in celebration and sensory-friendly play. Activities will include: pictures with the Easter bunny, make and take sensory bottles, egg hunt, coloring station, bead craft, temporary tattoos, and balloon animals. Register for event: https://www. eventbrite.com/e/the-ausomebunny-a-family-friendly-sensoryevent-tickets-248775573437
Scan Me
Indianapolis Zoo xZOOberance Spring Festival March 24 - April 17 12 - 4 pm https://www.indianapoliszoo.com/ events/xzooberance/ https://www.indianapoliszoo.com/ visit/zoo-map/ The Studio Movie Grill 3535 West 86th Street Indianapolis, IN 46268 317-315-8113 Sensory-friendly screenings of movies! Check the website for movies and times. https://www.studiomoviegrill.com/ movie/special-needs-screenings
Indian Creek Christian Church invites you to our annual Access Ministry Spring Carnival! Individuals with special needs and their siblings will experience a fun filled day of carnival games, pizza, hand painting, and a Silly Safari Show. Each participant will have a buddy volunteer paired with them. We hope parents will join us for a day of laughs at our parent programming with Comedian Scott Long. This is a FREE event for the community! Our Access Ministry volunteers can’t wait to connect and celebrate with you! Where: Indian Creek Christian Church 6430 S. Franklin Road Indianapolis, IN 46259 When: Saturday, April 23 from 3:00 – 6:30p Dinner and snacks provided Families must register at www.thecreek.org/access Registration opens March 16
EVENTS The Autism Ability FEST April 3 10:00 am - 4:00 pm Free Admission/$10.00 parking Blue Ribbon Pavilion, Indiana State Fairgrounds Directions: https://www.indianastatefair.com/ p/visit/parking ILADD Informational Seminar Thursday, April 7 6:30-8 pm Ascension St. Vincent Room, Zionsville Town Hall 1100 West Oak Street, Zionsville, Indiana 46077 Description: “Mental Health Awareness.” A mental health expert will speak on quality of life and the importance of diet, exercise, and social interaction. Event is free and a part of ILADD’s mission to help self-advocates along the path to greater independence. Register by emailing Michele Gray at program.manager@iladdinc.org
The PATINS Project is teaming up again with IN*SOURCE for Tech Expo 2022! Mark your calendars for your one-stop shop to preview assistive and accessible technologies and services, meet with vendors and experts on resources designed for inclusion and compliance, and learn about accessible technology supports. Open to all interested Indiana administrators, teachers, family members, students, and pre-service/ grad students. Register here! https:// www.patinsproject.org/services/ conferences/tech-expo?register Promoting Positive Outcomes: Early Childhood Special Education Conference April 19-20 Virtual attendance Hosted by The Indiana Department of Education Office of Special Education, the Early Childhood Center at the Indiana Institute on Disability and Community at Indiana University-Purdue University, and the Division for Early Childhood of the Council for Exceptional Children. Sessions on inclusion, collaboration, and more. Learn more by visiting the conference web page. https://www.iidc.indiana.edu/ ecc/news-and-events/preschool-conference.html
Is there a local event for the special meeds community you would like us to promote in an upcoming issue? Email us at SpecialNeedsIndy@n2pub.com.
THE ARTS Beef and Boards “Hello Dolly” March 31- May 15 9301 Michigan Road Indianapolis, IN 46268 317-872-9664 https://www.beefandboards.com/ Online/default.asp Jubilate Choir Butler University, Lilly Hall, Room 133 Wednesdays, 6:45-7:30 pm Director: Lauren Southard Start Date: September 22, 2021 For more information, contact Lauren Southard at 317-940-8065 or lsouthar@icchoir.org Gigi’s Playhouse Various classes during the week 5909 East 86th Street Indianapolis, IN 46250 317-288-8235 indy@gigisplayhouse.org
Crossroads Easterseals iCan Bike Camp June 20-24 Perry Park Ice Skating Rink 451 East Stop 11 Road, Indianapolis, IN 46227 $130 Easterseals Crossroads, in partnership with iCan Shine and Indy Parks, offers this bike program to people 8 years and older with disabilities and special needs. Over 5 days, participants learn to ride a two-wheel bicycle independently. Register at https://eastersealscrossroads.wufoo. com/forms/pv7ryp70gp65ns/
TECH EXPO 2022 The Patins Project Thursday, April 14 502 East Event Centre 502 East Carmel Drive, Carmel, IN 46032
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By Angela Arlington
AUTISM AVENUES: TRADITIONAL AND ALTERNATIVE OPTIONS Welcome to autism, a journey unlike that of many other diagnoses. When looking at different therapies or methodologies for your child, do your own research–read all you can and observe any environment your child is in and how they react. You know your child best and want them to be as independent as possible, and that may look different for each one. There is no one-shoe-fits-all with autism. There is no right or wrong way to help your child–it is a process that can change along the way. Some treatment options may be covered by medical insurance and this is not a complete list of the therapies available. Applied Behavior Analysis (ABA) There are several types of ABA therapy. Common ones include: Discrete trial training (DTT). Lessons are broken down into their simplest parts and desired answers and behaviors are rewarded. Undesired answers and behaviors are ignored. Pivotal response treatment (PRT). The goal of PRT is to improve a few “pivotal skills” that will help the child learn many other skills. One example of a pivotal skill is to initiate communication with others. Verbal behavior intervention (VBI). Used mostly in children with little or no speech ability. Improving a child’s language and speaking skills is the goal. Early intensive behavioral intervention or treatment (EIBI or EIBT). Designed for children under 5, EIBI/EIBT provides 20-40 hours per week of highly individualized instruction, either at home or in the classroom, and incorporates DTT, or methods like incidental training. The child learns social, adaptive, communication, and functional skills, usually over a period of 2-3 years.
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Art Therapy Arty therapy involves the use of creative techniques such as drawing, painting, collage, coloring, or sculpting to help people express themselves artistically and examine the psychological and emotional undertones in their art. Art therapy helps explore emotions, improve self-esteem, manage addictions, relieve stress, improve symptoms of anxiety or depression and cope with a physical illness or disability. Aquatic Therapy Helps to improve oral-motor skills, respiratory control, body awareness, and motor planning. Can improve touch tolerance, and increase the ability to organize all of the various sensory inputs to focus on the correct one. Brain Balance The Brain Balance program integrates key elements necessary to drive development and brain connectivity, including sensory engagement, core muscle strength and coordination, eye tracking, auditory processing, academic exercises, and nutritional guidance. The focus is on strengthening weaker areas of the brain with in-center sessions, at-home activities, and nutrition programs. Brain Mapping A non-invasive procedure that painlessly and safely measures brain activity and function. Brain mapping can identify irregular brain wave patterns, reveal areas of the brain that are not optimally communicating with other regions, aid in diagnosing psychiatric and cognitive conditions, identify brain injuries, indicate level
of stress, and help predict responses to medication. Brain mapping yields critical information needed to design a customized biofeedback program tailored to an individual’s needs.
The Electronic Auditory Stimulation effect (EASe) Listening Therapy EASe Listening Therapy was developed for children on the spectrum and those with other sensory processing disorders. Many of these children find noise to be highly stressful, resulting in behavior problems and even learning difficulties. EASe therapy is a practical application of the “fight or flight” response. Short duration, high-intensity noise is used to stimulate the auditory system. After enough listening sessions, patients are better able to cope with the noise around them. Floortime (also known as DIR Floortime) Beginning by focusing on self-regulation, this therapy aims to increase emotional functioning and social interaction. It uses the power of relationships and human connections to promote engagement, communication, positive behaviors, and thinking. Parents engage at the child’s level and interest. Forebrain Therapy Using a headset with an electronic filter this therapy can help with short-term and verbal memory, concentration and focus, speech pronunciation and fluency, and reading and writing skills. Hippo-therapy A form of physical, occupational, and speech therapy in which a therapist
uses the characteristic movements of a horse to provide carefully graded motor and sensory input, improve neurological function and sensory processing,
Joint attention symbolic play engagement and regulation (JASPER) JASPER can help your child better focus on a toy and a person at the same time. The JASPER program can help your child engage in more pretend play, broaden the way they play with toys, speak more with others, and improve other social skills. Music Therapy Music therapy interventions can address a variety of health and educational goals: manage stress, alleviate pain, express feelings, enhance memory, and improve communication. Nutritional Therapy Nutritional Therapy involves looking at the diet, using supplements, and testing for allergies, deficiencies, and toxins. There are many different diets that focus on eliminating foods that might aggravate or upset the gut. Examples include the gluten-free/ dairy-free diet, Feingold Diet, and specific carbohydrate diet. Chelation therapy is a medical procedure that involves the administration of chelating agents to remove heavy metals from the body. Occupational Therapy Occupational therapy can help with daily living skills such as toilet training, dressing, and brushing teeth. It can also increase fine motor skills and gross motor skills, increase awareness of the body and its relation to others, help with play, self-help, problem-solving, communication, and social skills. Phototherapy (also called “light therapy”) Phototherapy is a noninvasive therapy that involves exposure to an artificial lightbox. The box gives off bright light that mimics natural outdoor light. Phototherapy is thought to affect brain
chemicals linked to mood and sleep.
ability to form an emotional bond and share experiences with others.
Physical Therapy Physical therapy includes activities and exercises that build motor skills and improve strength, posture, and balance. This type of therapy aims to help a child build muscle control and strength so that he or she can play more easily with other children.
Sensory integration therapy This therapy can help improve responses to sensory input that may be restrictive or overwhelming. Therapy sessions are play-oriented and may include using equipment such as swings, trampolines, and slides. Sensory integration also uses techniques such as deep pressure, brushing, weighted vests, and swinging. This can help reduce anxiety, increase a child’s threshold for tolerating sensory-rich environments, make transitions less disturbing, and reinforce positive behaviors.
Recreational therapy The purpose of recreational therapy is to improve or maintain physical, cognitive, social, emotional, and spiritual functioning in order to facilitate full participation in life. Techniques include arts and crafts, interaction with animals, sports, games, dance and movement, drama, music, and community outings. Recreational therapy also seeks to reduce depression, stress, and anxiety; recover basic motor functioning and reasoning abilities; build confidence and socialize effectively.
Speech and Language Therapy Speech and language therapy helps to improve the person’s understanding and use of speech and language. It can involve nonverbal skills, like making eye contact, taking turns in a conversation, and using and understanding gestures. Therapists teach kids to express themselves using words, picture symbols, sign language, or augmentative devices. Speech articulation can be improved by massaging or exercising lips or facial muscles.
Relationship Development Intervention (RDI) RDI focuses on building social and emotional skills. Parents are trained as the primary therapist in most RDI programs. RDI helps people form personal relationships by strengthening the building blocks of social connections. This includes the April 2022 • Special Needs Living
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HeartSOS
Children, Adolescents, Young Adults with ASD & Related Needs
Mental Health Counseling
Anxiety, Depression, Attachment, PTSD & Relationships
Speech Therapy
Self-Advocacy, Articulation, Feeding, Apraxia & Relationships
Family Guidance
Social Communication, Emotional Regulation, Flexible Thinking & Relationships
Occupational Therapy
Executive Functioning, ADLs, Sensory Processing & Relationships Indy & Terre Haute Clinics 26 Special Needs Living • April 2022
Outpatient Services for Individuals & Families
We Hear Your SOS! Reach out at asdheartsos.com
April 2022 • Special Needs Living
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BOWLING BOW BO WLING F FU FUN! UN!
pinheads’ special needs bowling day! We had a wonderful time bowling with several families in the community. Some who attended are regular bowlers, while a few haven’t been in over a decade. For some families, this was their very first time bowling with their kids. One thing is for sure, each person who attended had a great time bowling and connecting with other families in the special needs community. We are thankful to Pinheads for hosting this event and love that we can put on events like this to help connect the community. Located in Fishers, IN – family entertainment center with luxury bowling lanes, an arcade, and Alley’s Alehouse, which features chef-crafted food. They can accommodate everything from family entertainment to corporate events to wedding receptions. Give them a call today to learn more about private events, live music, and more. www.bowlatpinheads.com contact@bowlatpinheads.com 13825 Britton Park Rd. Fishers, IN 46038 (317) 773-9988
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Jamie McCabe - Special Needs Living publisher, with support partner Paula LeMaster, SafeInHome
Angie Arlington - Special Needs Living - Community Engagement Coordinator
April 2022 • Special Needs Living
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financial Gordon Homes, CFP
Con s iderat i o n s for S ucce sso r Caregi v i n g Who will continue caring after my loved one with special needs when I am no longer able to?
benefits, assuring the vision and quality of life you have in mind for your loved one with special needs.
This is a critical question many caregivers caring for a loved one with special needs will need to anticipate and plan for. The role of a successor caregiver is vital. Planning and considerations can be put into place in advance to help make the transition to the successor caregiver successful.
Next phase of successor caregiver You may have established a life care plan, but additional and important consideration will also be your vision for successor caregivers. Caregiving can be stressful, often taking a toll emotionally as well as economically. Many successor caregivers will have to balance the needs of their family as well as the responsibilities of the individual with special needs. It is imperative for successor caregivers to have all the available information and resources in place to assist them. In addition to administrating funds out of a special needs trust or ABLE account for the individual with special needs you may want to consider additional trusts.
Person-centered life care planning with integrated legal and financial planning Following a person-centered life care planning process keeps the person with special needs as the primary focus and develops a life care plan that helps enable that person to obtain the best quality of life possible. A life care plan is a coordinated and integrated program of social, medical, financial, and legal strategies for people with disabilities and their families. A life care plan continually changes to adapt to the needs of the individual throughout his or her life and is integrated with the broader family planning. A life care plan should integrate estate, legal and financial planning with government
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• A caregiver trust can be set up to alleviate some of the financial aspects of providing care by the caregiver and cover some items a special needs trust might not be able to. • A legacy trust is an irrevocable trust which allows you to remove assets from your primary estate into the trust, which acts like a secondary estate. • A spendthrift trust allows for a beneficiary to receive funds incrementally (this would not necessarily be a good option for an individual on resource tested government benefits).
Creating a letter of intent Creating a letter of intent document is also a good way to capture your desires and concerns, as well as caregiving instructions to future caregivers, guardians, trustees, and advocates of the individual with special needs. Although not a legally binding document, the letter of intent will allow future caregivers to more quickly learn how to deliver the very best care. MassMutual’s SpecialCare program can provide a template of the letter of intent for you to customize for your unique situation. Family meetings and communication Having conversations and meetings regularly can help to identify needs, plans and openness of potential successor caregivers. Keep in mind that dynamics may change over time as caregivers age and siblings grow up, therefore it is important to continue a fluid conversation with all individuals involved. Make sure everyone is aware there is a plan in place, and they know where to find the information (legal documents, letter of intent, etc.). Remember the goal is to achieve and sustain the best quality of life for your loved one with special needs and ensure they have the assistance they need in every aspect of their life. Call Special Care Planner Gordon Homes at (317) 567-2005 for a confidential consultation.
SpecialCare is a program created by MassMutual that provides access to information, specialists, and financial solutions to people with disabilities and their families. For more information about Massachusetts Mutual Life Insurance Company (MassMutual) and its SpecialCare program, please visit www.massmutual. com/specialcare. The Special Care Planner title is used by MassMutual financial professionals who have received advanced training and information in estate and tax planning concepts, special needs trusts, government programs, and the emotional dynamics of working with people with disabilities and other special needs and their families. Provided by [Gordon Homes], courtesy of Massachusetts Mutual Life Insurance Company The information provided is not written or intended as specific tax or legal advice. MassMutual, its subsidiaries, employees, and representatives are not authorized to give tax or legal advice. Individuals are encouraged to seek advice from their own tax or legal counsel. Individuals involved in the estate planning process should work with an estate planning team, including their own personal legal or tax counsel. © 2022 Massachusetts Mutual Life Insurance Company (MassMutual®), Springfield, MA 01111-0001. All rights reserved. www.MassMutual.com. SC1165 222 MM202502-300546
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sponsor of the month By Lydia Chastain
T
20
Fortune Academy CELEBRATING 20 YEARS OF TRANSFORMING LIVES
This year marks the 20th anniversary of Fortune Academy, which has been transforming the lives of students with language-based learning differences such as dyslexia and dysgraphia, as well as those with ADHD. According to research from the National Institute of Child Health and Human Development, nearly 1 in 5 students is affected by dyslexia, 1 in 30 have been diagnosed with ADD/ADHD, and over 40% of students with language-based learning differences are improperly placed in special needs programs that aren’t addressing their needs. Fortune Academy is home to these students. They deserve an education that directly meets their specific learning needs and makes sense to them. We are here to provide it. Our “Fortune Family” started with a small group of visionaries around a kitchen table. These founding members were united in their conviction to provide an emotionally safe learning environment where students were met where they are, understood for what they could be, and given the help they need to succeed. These core values still guide us today. Located at historic Fort Benjamin Harrison, Fortune Academy is currently the only school in Indiana with a fully immersive learning environment based on the Orton-Gillingham Approach. The OrtonGillingham Approach has been well researched and is known in classrooms for its individualized structured learning. This dynamic, multi-sensory, and personal approach is used daily in Fortune classrooms and allows the flexibility to meet complex student needs. “Our students come to us with average to above-average intelligence; they just learn differently than their peers,” said Vanesa Coles, Head of School at Fortune Academy. “For 20 years, Fortune Academy has been providing this transformative education. The mission of Fortune Academy is to be a comprehensive school dedicated to equipping our students with [the skills] to become competent and confident lifelong learners. Fortune is designed to provide an environment that nurtures each child’s development, builds upon their strengths, and offers remediation in areas of weakness.” The 6:1 student to teacher ratio is critical for the academic intervention programs our students require to find success. However, tuition alone does not cover the cost of a Fortune
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Academy education. Each year, Fortune Academy hosts a fundraising gala. The revenue from this celebration enables us to keep tuition costs low while addressing needs, balancing the budget, and living the mission of transforming the lives of the students we serve. Staci Koehler, event and fundraising manager, has been leading this event. “After two years of online virtual events, we are incredibly excited to come together in person with our Fortune Family of supporters on Saturday, May 14 at 6 PM,” said Koehler. “This adult-only event will include cocktails, plated dinner, entertainment by GrooveSmash, raffles, wine pull, and a live and silent auction.” The Gala is Fortune’s largest fundraising event of the year, “It is an annual celebration of our students, teachers, and community of supporters. All proceeds raised from this event go directly to our students and teachers by supporting tuition assistance, specialized programming, performing arts, athletics, and community outreach.” Koehler said. The celebration event will be held at Embassy Suites in Noblesville, 13700 Conference Center Dr. South, Noblesville, IN 46060. If you are interested in attending the Gala, you can do so by visiting the Fortune Academy website at www.thefortuneacademy.org/annual-celebration-gala Become a sponsor, buy raffle tickets, and bid on our auction items (you can do this without attending!). https://celebration20.ticket.qtego.net/tickets/list Fortune Academy can only give this level of specialized education because of supporters like you. Your generosity allows us to continue to empower the 1 in 5 students to thrive in our community for generations to come. Admissions information: www.thefortuneacademy.org 5626 Lawton Loop E Drive, Indianapolis, IN Phone Number | Fax Number Media Inquiries: Lydia Chastain 317-474-7588 Lchastain@thefortuneacademy.org Fortune Academy is a 501(C)3 nonprofit organization. If you are interested in donating to Fortune Academy to help support students with learning differences, please click here. April 2022 • Special Needs Living
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David G. Yearwood, CFP® Vice-President
Helping People Make Smart Choices About Their Money for the Reasons That Are Important to Them • Creating your financial road map and providing guidance through life’s transitions • Celebrating 35 years of serving clients at Charter Advisory Corporation • One of only 29 recipients to have been named an Indianapolis-area Five Star Wealth Manager award winner each year since 2012 Working towards the realization of your dreams is paramount in our relationship with you. The process of understanding your current financial situation is vital in making prudent decisions towards your future goals. We will walk with you, with experienced guidance, toward your financial destination. 250 E 96th Street, Suite 200 • Indianapolis, IN 46240 • Phone: 317-844-7416 dyearwood@charteradvisory.com • www.charteradvisory.com
2012 - 2021 winner David G. Yearwood, CFP
R
A.C.E. Is Growing Exceptional Learners From The Ground Up! We recognize that every individual with Autism is unique in terms of his or her challenges and strengths. Whether you are a family who has just received an Autism diagnosis, you have an older child in the later stages of treatment, or anything in between, ACE will create an Applied Behavior Analysis (ABA) therapy program that will work for your child and your family. IN HOME & CLINIC-BASED SERVICES In-Network With Most Insurances
www.autismenrichment.com (317) 436-7080 | info@autismenrichment.com
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Special Needs Planning & Elder Law Attorney
Here to help you put plans in place to give you peace of mind. Elizabeth A. Homes is a special needs planning and elder law attorney. She has been licensed and practicing law since May of 2014. Her practice at the Law Office of Elizabeth A. Homes LLC is focused on Special Needs Planning, Guardianships, Elder Law, Estate Planning, and Probate Work. This includes Wills, Powers of Attorney, Advanced Directives, Trusts, Trust Administration, Medicaid Planning, Special Needs Planning, Guardianship, and Probate. She is admitted to practice law in the State of Indiana. We ask "What If?" so you don't have to ask "What Now?"
Elizabeth A. Homes, Esq., MBA ehomeslaw.com | 317-660-5004 elizabeth@ehomeslaw.com 10412 Allisonville Road, Suite 200A Fishers, Indiana 46038
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pastor’s corner By Paul Hathcoat
INVISIBLE DISABILITIES: From a Pastor’s Perspective
The world around us can be superficial and complicated. It can be isolating and confusing. In our culture today, confusion of truth has become a negatively-impacting staple to our collective mind and in effect, our actions. The church itself is not free from these struggles. Let us look for just a moment at how God’s truth is presented in the Bible and then how the Church can and should look at an invisible disability. Mark 9:14-29 NIV: A Boy Possessed 14 When they came to the other disciples, they saw a large crowd around them and the teachers of the law arguing with them. 15 As soon as all the people saw Jesus, they were overwhelmed with wonder and ran to greet him. 16 “What are you arguing with them about?” he asked. 17 A man in the crowd answered, “Teacher, I brought you my son, who is possessed by a spirit that has robbed him of speech. 18 Whenever it seizes him, it throws him to the ground. He foams at the mouth, gnashes his teeth and becomes rigid. I asked your disciples to drive out the spirit, but they could not.” 19 “You unbelieving generation,” Jesus replied, “how long shall I stay with you? How long shall I put up with you? Bring the boy to me.” 20 So they brought him. When the spirit saw Jesus, it immediately threw the boy into a convulsion. He fell to the ground and rolled around, foaming at the mouth. 21 Jesus asked the boy’s father, “How long has he been like this?” “From childhood,” he answered. 22 “It has often thrown him into fire or water to kill him. But if you can do anything, take pity on us and help us.” 23 “‘If you can’?” said Jesus. “Everything is possible for one who believes.” 24 Immediately the boy’s father exclaimed, “I do believe; help me overcome my unbelief!” 25 When Jesus saw that a crowd was running to the scene, he rebuked the impure spirit. “You deaf and mute spirit,” he said, “I command you, come out of him and never enter him again.” 26 The spirit shrieked, convulsed him violently and came out. The boy looked so much like a corpse that many said, “He’s dead.” 27 But Jesus took him by the hand and lifted him to his feet, and he stood up. 28 After Jesus had gone indoors, his disciples asked him privately, “Why couldn’t we drive it out?” 29 He replied, “This kind can come out only by prayer.[a” The son in this scripture passage is most likely living with epilepsy. At the time this was written, this was surely a mystery to the people around him. Jesus labels the cause himself as an “impure spirit.” In the evolution of human understanding, I think we have mixed together the unclean, disabilities, and evil, which has created stigmas for those who are affected. We must take care in avoiding these thoughts in our churches today if we are to make progress within the disability community.
36 Special Needs Living • April 2022
I worry that if anyone is unclear on the causes or roots of invisible disabilities, we may fail to give persons with such conditions the care they need. Have you experienced this first or secondhand? Have the effects of a traumatic brain injury, mental illness, chronic pain, ADHD, learning disabilities, or behavioral disabilities stained your experience in the world or in the church? I would guess many of you would say ‘yes’. Those who do not have anything visible to which to relate the unique behaviors and demeanor often become avoidant or even afraid. Did Jesus do this? Of course not. Jesus, walking in spiritual confidence, with a heart to love EVERYONE around Him, saw past the hindrance and loved the person. The church and its people would do well to follow suit. This scripture demonstrates to us a father who is frantic to find help for his son. Did the people blame the father for his son’s condition? Was the father made to feel guilty and ashamed about his son’s ailment? Was the father marginalized, because he, with his son, was a social outcast? Did the people around them go about their day-to-day lives, ignoring the elephant in the room? Did their fear ever turn to resentment and exclusion? Were father and son forced into homelessness, like many of those who live with mental illness? Did the father ever receive an offer of respite in taking care of his son? These are the questions and topics that healthy churches with proactive disability and special needs ministries take on. I hope this short example elicits a real response from all of you. I hope that we view invisible disabilities as real, and worthy of support and response. I pray that our churches and communities out there turn from awkward ignorance of those living with invisible disabilities around us to being intentionally engaging and inclusive, focused on supporting and resourcing those who need it. I continue to remind us all that without inviting our neighbors with disabilities to the table, then God’s family and church will never be complete. God Bless! * Inspired in part by a speech given by Linda Larson at the Calvin Theological Seminary.
Do you have a thought, idea or information that you would like to see in this section in an upcoming issue? Email Paul Hathcoat – phathcoat@wrcc.org.
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4. Educate the communityOrganizations can use their space to share resources and educational information that will better empower and impact local special needs families.
Looking to give back and make a difference in the community? Special Needs Living and The Donaide Foundation are partnering to help support and promote local nonprofits. By donating to our Impact Campaign, you will help support local nonprofits that serve the special needs community. Many parents and individuals with special needs have difficulty finding the resources that exist in the community. Some feel alone and isolated as they navigate through the challenges. We started Special Needs Living to inspire, educate and connect local families and help them find the great resources that will allow them to live their best lives. We are currently raising funds to help Indiana-based nonprofits get their message out through Special Needs Living so that they can support more local families.
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5. Connect these organizations with the special needs community, businesses, and each other so that relationships are built, synergies are realized, and more families are served. Thank you for coming alongside our mission to strengthen nonprofits, who in turn will better support families and individuals with special needs! Learn more here and make your donation today: https://app.donaide.com/ donaidefoundation/impact If you are a nonprofit that supports the special needs community and would like to receive funds from this campaign to market your services and better reach your audience, please contact Jamie McCabe at specialneedslivingindy@n2pub.com.
Your donation will go directly to Indiana-based nonprofit organizations that support the special needs community and cover the cost of their ad space in Special Needs Living. This space each month will...
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1. Help bring more awareness about their organization to members of the community So many nonprofits that support the special needs community have found it very challenging to let the public know they exist. If only families knew about the programs available, it would have a tremendous impact on their lives. However, the limited funds these organizations have are prioritized for services, leaving little for marketing and awareness. Because Special Needs Living reaches thousands of families and individuals each month, the impact of their advertising is amplified, allowing these organizations to reach many more people with their message.
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2. Help raise even more funds for local nonprofits Through their monthly ad space, organizations can efficiently communicate their fundraising needs so that donors who feel a connection to a particular organization can support it directly. 3. Help them find local volunteers to better carry out their missionThe space can be used to recruit volunteers, allowing interested individuals to give their time and talent to the organization that resonates best with them.
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THE ABC’S OF IEP’S It may seem obvious, but language is often the principal barrier to learning for many of our children with special needs. Trying to determine WHY a student is not grasping certain academic concepts can be tricky. My advice is to first rule out any language deficit, as would be the case for students learning English as a second language. When referring to a language delay or disorder, I am talking about students whose first language is English. When assessing a student’s readiness to learn, it is vital to assess their receptive, expressive, and pragmatic language skills. By carefully observing your child and keeping the following “clues” in mind, parents can determine early if a formal assessment from a speech-language pathologist is necessary. This can be done through First Steps in Indiana (https://www.in.gov/fssa/firststeps) when a child shows signs of developmental delays and is under
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40 Special Needs Living • April 2022
By Sheila Wolfe IEP Services
LANGUAGE DELAYS OR DISORDERS
three years old. Once a child turns 3, the public school is responsible for conducting the appropriate evaluations and providing early childhood intervention for those that qualify. Does your child understand what is said around them? “Receptive language” refers to the ability to process and understand the words of others. Does your child respond to their name? Can they follow simple directions? Can they point to familiar objects when someone names them? Receptive language develops first and is a parent’s first opportunity to observe how their child is developing language. Considering how much of the curriculum is usually delivered orally by teachers, this is a critical skill for learning in the classroom. Does your child use gestures to communicate? Prior to developing spoken language, children point to objects they want and/or things they want to show you. Children should also start to wave “hello” and “goodbye” and do things like give “high fives.” If your child does not show eagerness to interact with you non-verbally, this could be a clue that there is an issue. Is your child adding new vocabulary to their speech? The use of spoken (oral) communication is called “expressive language.” Even if your child is developing spoken language at a slower pace, they should be adding several new words to their vocabulary each week. Make note if the new words are added without direct teaching. It is “typical” that children pick up new words from their environment all the time. If your child is not doing this, it is important to begin early intervention. Do you understand what your child is saying (and do others)? Even very young children tell stories, describe things that happen to them, and comment on pictures. If your child experiences frustration when trying to communicate, this could be another clue. Is your child having behavioral issues at daycare/school? Behavioral issues can often be tied to frustration resulting from a communication problem. After all, can you imagine how infuriating it would be to need something and not be able to tell anyone? It is critical that parents and care providers understand the role communication plays in behavior. Until a child has functional communication, behaviors will come out as an expression of frustration.
Does your child use non-verbal communication and socialize with peers? Watch how your child plays with children and adults. Is your child interested in other children and adults? Do they make eye contact with others? A child with a language delay or disorder may struggle to play or socially interact with others. These skills are considered “pragmatic language” skills. School is not just a place to learn to read and write, it is also a place for students to learn to navigate and participate successfully in the social world. Professionals can assess pragmatic language in children and create an appropriate program to teach these skills. My son’s primary barrier to learning was his language deficit. I experienced firsthand how hard it was for the school to teach a child to talk. Language is extremely complex and when a child doesn’t just “pick it up” through exposure as most children do, it is a skill that must be actively and intensely taught. Back when I started my special education journey with my son, I discovered a tool called the ABLLS (Assessment of Basic Language and Learning Skills). Since that time, many new tools have been introduced that attempt to tackle the issue of improving language skills in children with special needs. For me, the ABLLS-R (revised) remains an extremely valuable tool for assessing a child’s “learning readiness” for a typical
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public-school setting with an emphasis on language development. The VB-MAPP is another (more recent) tool that is also used to assess a student’s language skills and school readiness. Both can be found at https://difflearn.com. These tools (and others) provide invaluable insight into the underlying skills necessary to be ready to learn at school (“learning to learn” skills). Once a language need is identified, there are many programs/tools available to schools (including those above) designed to teach language to students with special needs. While I don’t pretend to know everything that is on the market currently, I can recommend a program my son used at school called “Language for Learning.” This program is intended to teach children the vocabulary needed to function and learn in a school setting. It also has additional levels including “Language for Thinking” and “Language for Writing” (https://www.mheducation.com/home.html). Please don’t let others talk you out of your concerns regarding language development delays you might notice in your child. Yes, every child is different…but all children need to develop functional language skills as early as possible to navigate their world. Trust your gut. Seek professional guidance if you suspect an issue. If a delay or disorder is identified, make it a top priority for the school to address in the IEP. Until and unless language/communication barriers are overcome, academic achievement will not be possible.
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By Kate Miller Photos By Buonanno Photography
MEET THE
MILLER FAMILY:
K AT E , B E A U , A N D T H E O The Inspiration Behind Ausome Indy
K
ate Miller never seems to stop. The Indianapolis native is mom to six-year-old Beau, who is on the autism spectrum, and 18-month-old Theo. She’s also Assistant Director of Philanthropy at Phalen Leadership Academies in Indianapolis and the co-founder and board chair of Ausome Indy. This is her story.
It is early in my parenting journey… I know the challenges I have faced have actually made me stronger, more aware, and more inclined to advocate for my family. I also know I have a lot of road ahead of me as a mom, and what [lies ahead] can sometimes be overwhelming to think about. That is a challenge in itself – the actual fear and rush of adrenaline I get when I begin to contemplate how my child with autism will navigate the world and regulate himself as a teenager, a young adult, and into adulthood. The biggest hurdle I incur daily is being overwhelmed and even stopped in my tracks by those thoughts. I work each day to overcome that–I practice being mindful of where I focus my thoughts and reminding myself to “be here now.” My son, Beau, is what has been described to me by doctors as an “eloper” – he has a strong innate desire to explore, touch, feel, taste, and move. In any environment, Beau does not recognize or acknowledge danger or fear. It is one of the most incredible things about him and also the most demanding part of caring for him and keeping him safe. He sees the world with such joy and excitement that it can sometimes be dangerous, leading him to go out of doors that are not locked, venture around outside, and even into the water with no safety precautions. Last summer, Beau walked right into his aunt’s pool – he simply stepped right in with all the excitement a kid could have! And he went straight to the bottom of the 8-foot-deep pool. He loves water, but has not learned to keep his body buoyant in water, and does not mind swallowing the water – it is a very scary thing for mom. I dove right in with all my belongings still strapped to me, swam to the bottom of the pool, and pulled him out. All our family members were in shock, unsure of what to do or say next.
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Having a child that has a difficult time hearing and following safety commands, amplified by his joy of the world and lack of fear, can make it harder to share time with family and friends who simply do not understand the complexities of those behaviors and how to mitigate them. Potty training is the newest challenge–with a nearly 7-year-old, this has been a difficult exercise for all of us! We spend a lot of time in the bathroom, working through accidents with his communication device and a lot of fruit snacks to reward him with. For months we have been going through the learning process with his ABA therapists. The best advice I can share with other parents experiencing similar situations is to find humor and grace in every situation. Encourage yourself to flip your perspective. When you’re in the middle of a challenge you have never navigated, be patient with yourself and know that you can, and will, own that challenge. I know that each day there will be new ones, but I remind myself in the thick of it that these experiences are strengthening my ability to handle the next one, and the next one after that. Going out in public with a son who is nonverbal, very active, and enjoys exploration with no reservations is an adventure. When Beau was 4 years old, he learned to hold my hand through focused therapy in ABA. This simple act has transformed our lives. The ability to take Beau to the grocery store is a possibility and an activity that we both enjoy. Having a child who does not use any words or language to communicate is a fascinating experience. I have learned that our communication comes through so many forms – it is the energy we bring to a room or situation, the look in our eyes that we share with others, the way we hold our stance or where we place our arms–so many ways one can express themselves. It has been an incredibly humbling process that I am only just beginning–to perceive communication differently. When my son first used his communication device to tell me “no” when I asked him a question, that was a moment I will not soon forget. I had a physical rush of excitement when I witnessed him share how he felt about a potential activity. Not knowing what your child is thinking about, what may be bothering them, what their desires are, what interests them, and so many other layers of understanding that come with verbal communication are difficult and even heartbreaking. The moment my son shared more than what he wants to eat on his communication device, that was a BIG moment for us. Beau attends Bierman ABA, which has been incredible for our family. The BCBA’s and therapists Beau has had there truly have changed our lives. ABA therapists are a special kind of human– their patience, encouragement, and intellectual curiosity in their work make a huge difference in so many lives and I cannot thank Bierman enough. They offer monthly webinar sessions for parents that have been very helpful to me and have allowed me to network with other parents.
My greatest joy in this world is helping people get what they need. My professional background is in nonprofit program and development work, and at the Phalen Leadership Academies, I work with children and families to gain access to the education and resources they need to be self-sufficient and thrive. I am very grateful to have found this field and continue to learn and be inspired by the work of those around me who are leading efforts in our city and in our communities to reach young people and empower them to create brighter futures. Having an employer that encourages me to bring my whole self to work has been critical to my ability to excel in my career and manage my role as a parent. ABA therapy hours are strict – and pick up and drop off is important for me, so I manage a flexible schedule with my employer to be there for the things that I cannot compromise on. As a result, I also spend time balancing my schedule with late-night hours once the boys are asleep to catch up on any work and to spend intentional time on Ausome Indy services and programs. Being open and vulnerable with my employer about who I am and what my family needs from me is balanced by producing work I am proud of and being accountable for following through with my professional commitments. As a family, we go down to visit “Papa” in Florida once a year and spend time at the beach with him. We try to visit Disney, too. Never have I seen such joy in a child as I do when Beau is at the ocean–he will sit, splash, laugh, and enjoy the tide rolling in and out. What I want most for him now is swimming lessons! We also love the Newport aquarium and have acquired annual passes to visit when we want to and for whatever duration of time is appropriate for us. I have learned to pack fruit snacks, an iPad, headphones, and something for Beau to flap in his hand. Those four things are my go-to for any destination with Beau. Here in Indy, we spend so much of our time at the splash pads and parks in the spring and summer–nearly every day! Exploring parks, trails, creeks, and anything outdoors is the best and most enjoyable activity for our family. If there is a fair or a festival in town, we are there! Beau and Theo love the excitement of lights, balloons, and animals. These types of activities are best for
April 2022 • Special Needs Living
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our family as they offer a setting where the boys can be active, engage with others, and have a great sensory experience with the sounds, smells, and tastes!
of being out in public. Beau does enjoy these outings, and I have learned as his mom what the time limit should be, encourage a corner table, and always bring his own food and entertainment to help him be comfortable and accommodated.
Beau’s favorite hobby is collecting items to store behind the couch, in the floor vents, or behind his bed. There is a treasure to be found in all those places on a weekly basis – books, toys, pens, cards, mail, and any other item that goes missing is usually found in one of those places. Beau also loves to have something in his hand that he can move when he is rocking, jumping, or just wants to move something back and forth while being still. He uses pop tubes, necklaces, balloons, leaves, anything with a string he can wrap around a pen, stick, or spatula…he can be very creative with his creations!
I have been out with both of my boys on two separate occasions and strangers have paid our bill. I cannot even put into words how the kindness and compassion of this simple act have made me feel. I have been brought to tears by this, and I would share that it is an incredibly kind thing to do for a special needs parent. It is a gesture of connection, compassion, and care that we often do not receive or are too busy to appreciate. Those families and individuals in our community who care enough to make such a gesture are needed and appreciated so deeply.
Having a special needs child influences where we go out to eat and how often we go. It is difficult to anticipate Beau’s needs when we visit a new restaurant–how’s the lighting? Is it loud? Are there windows? How far apart are the tables? How busy is it? Is there spaghetti on the menu? Beau loves spaghetti–it is his main preferred food and he eats it every single day. When the 3 pounds I make each week run low, our favorite place to go to enjoy spaghetti is Puccini’s in Greenbriar.
Since Beau is very interested in exploring and being outside, going out in public is fun for him but we have to keep a very keen eye on him to be sure we don’t lose him. We currently use a little tracker that we put on his shoe when we go on hikes or to big events. Navigating his potty training and managing accidents appropriately in certain environments has also been quite a learning experience.
As the parent, it is difficult for me to enjoy a meal in public since the outing is usually focused on Beau’s needs and practicing things like safety commands, using utensils, staying seated, and maintaining an appropriate volume for the excited shrieks he shares in celebration
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44 Special Needs Living • April 2022
We love Italian food–bruschetta, pizza, and pasta are our favorites! It works well because for Beau it’s spaghetti every night. Spaghetti is the only meal he will eat. Ever since he was a baby, we have tried introducing him to new foods. I have learned to put a lot of vegetable servings in with his sauce. I pack spaghetti everywhere we go and have become very skilled at ensuring minimal mess when enjoying said spaghetti, no matter where we are! Relaxing for me comes in the form of learning. I enjoy spending my downtime in the evenings reading, learning about current research in autism or neurology, and catching up on current events and topics relevant to my work with youth and education. I also love podcasts about personal development and current events.
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We listen to a lot of country music in our house; music is on every morning and in the evenings. Beau often will gravitate to the couch, sit, watch and listen to the music and spend a few moments still and calm. We’ve also been known to have a little living room dance party with Bruno Mars on a regular basis.
Meditation is another form of relaxation for me–the type of meditation that encourages me to be still, focus on my breathing, and release any energy from the day that no longer serves me. Meditation has been a very powerful and intentional tool for relaxation since becoming a parent. I started a small nonprofit-Ausome Indy-with my sister in 2019. It is a way to give back to the community by supporting children with autism and children in foster care, two causes that are very dear to me. My mother was an inner-city school teacher in IPS for 35 years. She was also a child advocate and was a foster parent to more than a dozen children throughout my childhood. She passed away in 2016 and honoring her life and all that she taught me through the mission of Ausome Indy and the children we serve is an incredible
part of my life I am very grateful for. With the support of friends and family, Ausome Indy provides sensory tools, communication devices/accessories, and other resources to children with autism in foster care. Working with community organizations, foster care agencies, family case managers, parent liaisons, foster parents, and legal guardians to receive requests for support, Ausome Indy is able to reach Indiana’s most vulnerable children with immediate access to sensory tools that help them self regulate, find joy and even help establish much-needed routines. This is crucial for children who have experienced trauma and are working through unpredictable and confusing life transitions. I am so grateful for my friends from high school (I’m a North Central grad) who have shown up to support Ausome Indy with their donations through Facebook and Instagram, and my family who do the same–even having their employers match their contributions to make our mission possible. I am humbled by this work and could not do it without their support and the support of our board of directors, who also give their time, talent, and treasure. I need to share that I am inspired and hopeful when I see other parents with special-needs children. I love when I am in public with Beau and another parent acknowledges him and his unique way of exploring the world. Those interactions, nods, smiles, and stopping to say hello to my son when you know he will not respond–those moments mean so much to me. Being a parent is special…. and so often we are rushing through a store, an errand, or dinner and so concerned with making sure our children are “behaving.” I have
learned to slow down and give people those moments of support/ connection that we all so very much want and need in this life. I want parents of all children to know that I actually LOVE it when you acknowledge Beau and engage with him as you would any other child. He does hear you, and he does understand you, and as his mom, I love you for knowing that and never dismissing his presence. It is surprising to me how many people (even those I know well and love dearly!) dismiss his presence–don’t say hello to him, don’t seek out contact or interaction with him. I want people who may not know and love someone with autism that you should never be afraid to acknowledge them. In fact, go out of your way to do so.
April 2022 • Special Needs Living
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non-profit spot light By: Angela Arlington
46 Special Needs Living • April 2022
HISTORY: Rik Hagarty founded Servants at Work (SAWs®) in 2003 toward the end of his career in the transportation and logistics industry. Rik conceptualized and led the expansion of SAWs across Indiana and into other states. His experience in business development, sales, and consulting has been instrumental to SAWs. MISSION: SAWs is a faith-based nonprofit organization dedicated to providing freedom to people with disabilities in low-income households through the construction of wheelchair ramps to the exterior of their homes. “Our ramps serve as their gateways to the world, re-opening the possibility of connecting with neighbors and their larger community, Executive Director Bob Richmond explained. “Our ramps promote independence and dignity.” SUPPORTING THE COMMUNITY: “At SAWs, we build freedom one ramp at a time,” Richmond said. “SAWS does not charge people with disabilities in low-income households for their ramps. We depend on the generosity of individuals, churches, corporations, grants, foundations, and nonprofit organizations to support our efforts.” The ADA-compliant ramps provide access to the community for those who have been trapped inside their home due to a disability. SAWs has provided over 3000 ramps since 2003. Read many amazing stories about SAWs online at https://www.sawsramps.org/news/
VOLUNTEERS: Volunteers play a big part in the mission of SAWs. Bob shared, “Volunteers power our mission. Whether you can help build ramps, make phone calls to prospective recipients, or have other skills to share, we have a place for you. We welcome a diverse group of team-building partners that include businesses, churches, and service organizations. SAWs provides the on-site expertise, leadership, tools, and raw materials needed for the
construction of a ramp, while the team provides the volunteers. Our team builds are popular because of their immediate, tangible impact on the lives of our clients and their caregivers.”
For more information or to find out about volunteering – call 317-844-7664 or email admin@sawsramps.org
TESTIMONIAL: “These people volunteer their time and compassion with so much enthusiasm! They made my life so much easier! The work is beautiful and so professionally done! I want to thank all of the volunteers who came to my home! You are truly servants of Jesus and a Godsend to me!” - Lisa D.
April 2022 • Special Needs Living
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48 Special Needs Living • April 2022
SANS GLUTEN Peanut Butter Jelly Time! Creative ways to spruce up an American classic
Oh, peanut butter and jelly. Oh, how we love thee. Peanut butter and jelly has been an all-American favorite. So much so that there’s a national peanut butter and jelly holiday…April 2, to be exact. By Christina According to the National Peanut Board, peanut McGairk butter was actually considered a delicacy in the early 1900s. Peanut butter and watercress sandwiches were served in tea rooms across the country. After its debut at the St. Louis World’s Fair, peanut butter became more affordable. Pre-sliced bread was created soon after and Paul Welch of the well-known Welch’s grape brand, patented grape jelly. The peanut butter and jelly phenomenon grew in popularity during the Great Depression. The sandwich was also on the WWII ration list due to the cheap ingredients and the ability to be set out at room temperature. When the soldiers came home, they continued to eat PB&J and that’s when the peanut butter and jelly craze soared. In the spirit of Peanut Butter and Jelly Day, I tried to come up with creative ways my daughter TiTi and I could make peanut butter and jelly. During our experiment, we used gluten-free Hawaiian bread since it’s so delicious! We also used natural peanut butter and gluten-free jelly. If you are allergic to peanut butter, I would suggest sunflower butter, which is free of most allergens and just as good. So, without further adieu, here is what we whipped up in the kitchen. Sweet, Salty, and Crunchy I tried to incorporate all of TiTi’s favorite things during this experiment. One of the many things she loves is gluten-free pretzels. I like to dip them in peanut butter too for a quick snack. Actually, since we both like pretzels, we almost didn’t have enough left to make our sandwich. I mean who can resist the salty crunchiness? Apparently, not TiTi and I. HA! Sour and Sweet I had my mom join in on the fun by making her own PB&J concoction. She chose her favorite candy…Sour Patch
Kids. It was really a great idea. The sour candy coating gave the PB&J a biting zing while eating it, but turned to sweet at the end. Just Add Fruit Any kind of fruit will do if you want to spruce up your peanut butter and jelly sandwich. I used dried cranberries because I’ve had them since Thanksgiving and I got tired of looking at them in my cupboard. Basically, I wanted them GONE! So what better way to use them than by sprinkling a few on a sandwich. It actually didn’t turn out bad. The sandwich had a sweet and tart flavor. Fun at the Zoo TiTi loves her gluten-free animal crackers just as much as pretzels. It was her idea to put the cute, sweet little animals on the creamy PB&J. I loved her idea because it gave the sandwich a nice crunchy texture with a delicately sweet flavor. PB&J for the Win Drumroll please…the winner of our PB&J kitchen experiment is the peanut butter and jelly with pretzels. I had a feeling TiTi would like it because it was a mix of sweet and salty and not overly sweet. I actually enjoyed the dried cranberry PB&J because of the sweet tartness. Do you have a favorite peanut butter and jelly recipe you would like to share? If so, send your ideas to specialneedslivingindy@n2pub.com ***Disclaimer: I’m not a nutritionist or a doctor. I’m just a loving mama supporting her daughter and others through their gluten-free journey. If you have questions about the gluten-free diet or celiac disease, please contact your medical professional.***
If you would like to share gluten-free tips, tricks, info, etc. in an upcoming issue of Special Needs Living, email us at SpecialNeedsLivingIndy@n2pub.com.
April 2022 • Special Needs Living
49
The Importance of Mental Health
Jessica James, Ph.D., HSPP Clinical Psychologist
Mental health is important for everyone, including children! Mental health is about reaching developmental and emotional milestones, learning coping skills, and coping with problems. Mental health disorders affect up to 1 in 5 children and individuals with neurodevelopmental differences (such as autism and ADHD) are at an even greater risk. These disorders impact a child’s success and well-being at home, at school, and in the community. Early diagnosis, understanding, and treatment is important to improving outcomes.
What You Can Do
Know that mental health disorders are not due to a personal weakness, poor parenting, or lack of willpower. Talk with your child’s medical and school teams about any concerns you have regarding your child’s behavioral and emotional functioning. Feelings of anger, anxiety, and depression are hard but no child or family is alone in these feelings. There are supports that can help! K1ds Count Therapy, LLC Brownsburg, IN 1 (317) 520-4748 kctherapy.com ● ● ● ● ● ●
50 Special Needs Living • April 2022
ABA Therapy Speech Therapy Occupational Therapy Physical Therapy Mental Health Services School Services
K1ds Count Therapy
Mental health therapy services at K1ds Count Therapy provide family-centered support to help your child and family reach their full potential. This often involves building skills that support well-being, developing an understanding of oneself, and fostering relationships with others. Psychological evaluations provide a deeper understanding of an individual’s strengths and challenges. This can help ensure an appropriate diagnosis is made as well as provide appropriate treatment recommendations, strategies, and resources.
PEAS for Kids PEAS for Kids specializes in educational consultation, advocacy, and customized assessment plans for children (grades PK-12+). Assessment plans address emotional concerns and learning disabilities such as Dyslexia, as well as characteristics of Autism Spectrum Disorder and Attention Deficit Hyperactivity Disorder (ADHD). PEAS for Kids strives to utilize the results of our evaluations to provide recommendations for, and work with parents in advocating for their child's educational needs within the school setting.
Psycho-educational Evaluations and Advocacy Solutions (PEAS) for Kids
A Team Approach
At Connections, we recognize the importance and interconnectivity of various programs and how they work together to provide support. Our case managers are trained on a variety of resources from community to state and federal programs. We work together as a team to educate families and assist them in accessing and maintaining these programs.
Allison M Charette, Ed.S. Nationally Certified School Psychologist Founder, PEAS for Kids (920) 980-1172 • www.peas4kids.com allison@peas4kids.com
317-710-7184 | connectionsin.com April 2022 • Special Needs Living
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