meet the barrow family By Tiffany Barrow Photos by: Heather Gregg – 21 Vines Photography
Receiving the Diagnosis of Down Syndrome
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8 Special Needs Living • December 2020
Ephesians 3:20 “Now to him who is able to do exceedingly and abundantly above all that we ask or think, according to the power that works in us.� Hi, I’m Tiffany Barrow, former resident of Fishers, IN, and this is my family. My family is originally from Baton Rouge, LA, and after receiving a promotion at work, we relocated to Indiana three months after giving birth to our twins, which included a 21-day NICU stay for Lola. We received a post-birth diagnosis of Down syndrome for our Lola who is the oldest of our set of twins. Lola was born with all of her hearing and vision intact and all of her organs completely whole. She was admitted to the NICU for failure to maintain body temperature and elevated bilirubin. Her pediatrician observed soft physical markers of Down syndrome and ordered chromosomal studies. I’m grateful for the post-birth diagnosis because I was able to avoid the stress, worry, and fear of the unknown associated with the Down syndrome diagnosis coupled with a relocation to a new state for a new role at work. Our family consists of my husband of 15 years, an 11-year-old son, Elijah, a 9-year-old daughter, Brinkley, and 2 1/2-year-old girl/boy twins, Lola and Levi. Our relocation to Indiana allowed our family to bond like never before. We became a team with the sole focus of getting settled, adjusting to our new normal, and finding our tribe within the Down syndrome community. Our first task included finding a new church home. Little did we know that our newfound church home would be a place of connection for everything else we needed and were praying for.
