Special Needs Living Feb 2021 Issue

Page 30

caregivers & healthcare corner By Lisa M. Monge, MSN, RN

Be Your Own Valentine

Sweetheart: Selfcare and Caregiver Burnout

February is most famous for Valentine’s Day. History and tradition herald this day as a time to give candy, flowers, gifts, and favors to our loved ones. Across the globe, many will honor their spouses, partners, sweethearts, and children. While it is exciting to give to others during this and many other holidays, it is important to remember to give back to ourselves. Selfcare, or a cognizant effort to prioritize our own physical, emotional and mental health, is vital to living an optimal life. A caregiver can be anyone who renders a service or task for any child, adult, or family. This person can be a family member, a professional providing medical or non-medical care, a community member, or a volunteer. While caregiving is a very rewarding job, it is also very complicated and can sometimes entail long days, endless nights, extreme stress, and caregiver burnout. Caregivers will often neglect their own well-being. In fact, 72% of family caregivers have not gone to the doctor as often as they should and report skipping 55% of doctor appointments. Another study concluded up to 70% of caregivers have signs of depression and extreme stress, causing premature aging. “It takes a village” The first step in self-care as a special needs caregiver is accepting limits to what you can do. Superman and Wonder Woman are fictional! Try to maintain a healthy sleep schedule, stay hydrated, exercise regularly, and take a break from your responsibilities! If you are the primary caregiver, find a caregiver for yourself! Try to find someone you trust to give you a break (a neighbor, respite

30 Special Needs Living • February 2021

worker, family or friend, etc.). There are endless resources, but you may have to ask. Just like it is important to have boundaries with others, it is also important to set boundaries with ourselves.

we must be healthy individuals first. Caregiving, even under the best of circumstances, can be draining. Taking care of ourselves first will allow us to optimize the care we provide for others.

“Kick up your heels” Isolation and alienation are common when living with a child or family member with difficult or challenging behaviors. Feeling limited or secluded in any way can contribute to stress and take an emotional toll. Respite care can give you temporary relief during this time. If you have no resources, ask! Taking care of your emotional and social health is just as important as physical care and routine. Of course, talking to a medical professional is always a good idea. However, something as simple as making time for an adult-only social life can be a breath of fresh air. To retrieve some of your emotional health, start asking yourself questions like:

If you are a caregiver and are struggling in any way, I encourage you to reach out. If there is any question or resource that may be beneficial to enhance your self-care, please reach out. If you are feeling like harming yourself or anyone else, please seek immediate medical attention.

· · ·

Stay healthy, Nurse Lisa

When was the last time I had a date night? When was the last time I went dancing? When was the last time I laughed with my best friend?

Self-care is vital to preventing caregiver burnout. In order to be the best provider, parent, employee, friend, neighbor, or anything else,

If you have a story you would like to share to impact other caregivers in the special needs community, I am available at Specialneedslivingnurse@ gmail.com or you can submit a caregiver’s story on the form below. https://form.jotform. com/202605155839154

References Caregiver Action Network (2019, October 30). 10 tips for family caregivers. https://caregiveraction.org/ resources/10-tips-family-caregivers Child Mind Institute (2020, May 28). Why Self-Care Is Essential to Parenting. childmind.org. https://childmind.org/article/ fighting-caregiver-burnout-special-needs-kids/


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LOVE NEVER FAILS - a moment of inspiration – by a special needs mom

4min
page 36

Pioneer Parents in Indiana- Meet Beth DeHoff

5min
pages 34-35

Indianapolis Flames Alternative Baseball

6min
pages 32-33

Helping your child deal with the feels

1min
page 38

Be Your Own Valentine Sweetheart:

3min
page 30

A Mother’s Promise Promise

5min
pages 26-27

Non Profit Spotlight - A Kid Again - Giving Illness a Time out

2min
page 25

Pastor's Corner

3min
page 24

Siblings Perspective - Meet Tyler Ashby & His Brother, Caleb

3min
pages 22-23

Upcoming Events

1min
page 21

HEART SOS

3min
page 19

THE ABC’S OF IEP’S

3min
page 18

Meet Law office of Elizabeth A. Homes LLC. - Supporter of Special Needs Living

4min
pages 16-17

WHAT IS Sesame/East Syndrome?

2min
page 15

Ashley Caveda - No Legs Needed - A New Athlete's Intro to Adaptive Hockey

6min
pages 12-13

MEET NORA –Service Dog for Zoe

2min
page 11

4 Reasons Why Writing Composition May Be Hard for Your Child

3min
page 10

Meet the CEO of the Angelman Syndrome Foundation - Amanda Moore & her Family – Adam, Jackson & Baden

3min
pages 8-9

A UNIQUE KIND OF ART - Art by Olivia

4min
pages 1, 28-29
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