FEBRUARY 2024
PHOTO BY TWIN SPELL PHOTOGRAPHY
Meet
Joseph & Jonathan
Your Michigan Law Firm For Special Needs Planning and Advocacy MielderLaw.com • 248-799-2711
Take the first step today and advocate for your child's well-being, WE'RE HERE FOR YOU. Autism Spectrum Disorder Therapy Services We provide ABA, Speech, Occupational Therapy (OT), and Diagnostic Evaluations
Empowering families and caregivers with effective strategies and resources.
844-427-7700 • inspireautism.com • 2
February 2024
@inspireautismaba
ISSUE PREVIEW • Pg 20-22 Featured Family: Joseph and Jonathan’s Journey • Pg 26-27 Advocate Like A Mother: School Expulsions and Protections for Children with Disabilities • Pg 23 STEP- Shop, Donate, and Support a Great Cause at the STEP Thrift Store and Donation Centers! • Pg 28-29 Labels or Widows • Pg 8-11 Sensory Friendly Indoor Spaces • Pg 24-25 Sponsor Spotlight: Autastic Athletics • Pg 19 Reducing Stress and Anxiety • Pg 14-15 Nonprofit Spotlight: Work and Play Special Needs Resource Center Inc. • Pg 16-18 Local Events
Featured Family: Joseph and Jonathan’s Journey
PUBLISHER/ADVERTISING INQUIRIES
Jamie McCabe 248-882-8448 Jamie.McCabe@n2co.com Scan the QR Code to Subscribe or Nominate:
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Advocate Like A Mother!
(SpecialNeedsLivingDetroitMetro) www. facebook.com/SpecialNeedsLivingDetroitMetro
Sponsor Spotlight
Nonprofit Spotlight
The Future of Art - Progressive Art Studio Collective
(specialneedslivingdetroitmetro) www.instagram.com/ specialneedslivingdetroitmetro/ Special Needs Living Detroit Metro
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We empower families and youth
who experience developmental or mental health challenges to use their voice to reduce stigma and achieve their potential to successfully participate in their community.
myrelationshipsproject.com
JUST ASK
@myrelationshipsproject Knowing where to start is often the hardest part. Luckily, our staff is composed of people who have been there. We are eager to share our stories and experiences with you with the hope that we can support you on your journey. ASK Family Services is dedicated to supporting families and youth with mental health or developmental challenges. Through collaboration with families and community partners, we strive to guide services to be more family-driven, youth-guided, and culturally competent.
askforkids.org • 269-343-5896 4
February 2024
@askfamilyservices
Neurodivergent-affirming Services in Metro Detroit Empowering neurodivergent individuals and their communities to build healthy, meaningful relationships across the lifespan that honor their unique needs and personal autonomy. Providing classes, coaching, and groups for neurodivergent individuals and their familes and caretakers. Delivering training and consultation for practitioners, educators, and organizations to enhance neurodivergent-affirming practices in their service delivery and workplace.
Call us to learn more about how MRP can meet your unique needs
(313) 489-0043
This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance! ABA SERVICES ABA Pathways (805) 551-7613 www.ABAways.com
ATHLETIC TRAINING Autastic Athletics LLC. (248) 224-4151 www.autastic-athletics.com
EMPLOYMENT AND TRAINING SERVICES Services To Enhance Potential (STEP) (734) 718-0483 www.stepcentral.org
Budding Behavior Therapy (248) 622-5191 www.buddingbehavior.hi5aba.com
ATTORNEY-WILLS/TRUSTS/ESTATE PLANNING Chalgian & Tripp Law Offices PLLC (248) 799-2711 www.Mielderlaw.com
FINANCIAL MIABLE (844) 656-7225 mi.savewithable.com
AUTISM DIAGNOSIS/SUPPORT Arbor Autism Center (734) 544-5561 www.arborautismcenters.com
PRODUCTS HedgeHog Health (248) 495-7244 www.hedgehoghealth.com
AUTISM EVALUATIONS & ABA THERAPY Inspire Autism (844) 427-7700 www.inspireautism.com/
RECREATIONAL/ MUSIC/ ART THERAPY Advanced Therapeutic Solutions (734) 352-3543 www.advancedtherapeauticsolutionsmi.com
COMMUNITY SUPPORT ASK Family Services (269) 343-5896
RELATIONSHIP SUPPORT/SEXUAL HEALTH My Relationships Project (313) 489-0043 www.myrelationshipsproject.com
ABA/ BEHAVIORAL & AUTISM SERVICES Healing Haven (248) 965-3916 www.thehealinghaven.net/ ADULT INDEPENDENCE Our Neighborhood Academy (248) 556-5332 www.ourneighborhoodacademy.com/ ADVOCACY Student Advocacy Michigan (248) 372-9770 www.studentadvocacymi.com
Work and Play Special Needs Resource Center Inc. (734) 780-6795 www.workandplaycenter.org
Where Children
BLOOM Special Needs Living Detroit Metro
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Delivering Neighborhood Connections © 2024 The N2 Company, Inc.
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517-487-5426 877-463-2266 517-882-2800 517-241-3740
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800-605-6722 517-333-6655 616-732-7358 269-337-3600 517-241-3740
517-241-3740 800-75-SEALS
Arc Michigan arcmi.org Autism Alliance of Michigan https/autismallianceofmichigan.org/ Autism Support of Michigan https/autism-mi.org/ Behavioral Health and Developmental Disabilities Administrationwww.michigan.gov/mdhhs/ keep-mi-healthy/mentalhealth/procurement/ welcome-to-behavioral-health-and-developmentaldisabilities-administration Michigan Foundation for the Blind and Visually Impaired Michigan Developmental Disabilities Council www.michigan.gov/mdhhs/keep-mi-healthy/ mentalhealth/developmentaldisability Michigan Rehabilitation Services (MRS) Capital Area Down Syndrome Association www.cadsa.org Deaf and Hard of Hearing Services (DHHS) www.deafhhs.org/ Disability Determination Bureau Division of Aging www.michigan.gov/mdhhs/adult-child-serv/adultsand-seniors/behavioral-and-physical-health-andaging-services/aging-services Division of Family Resources (DFR) www.michigan.gov/mdhhs Easterseals MORC www.easterseals.com/MORC/
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February 2024
Emergency Ealy On Michigan https/www.michigan.gov/mde/services/earlylearners-and-care/special-ed-05/early-on-michigan Michigan Department of Education: Office of Special Education https/www.michigan.gov/mde/services/ special-educationMichigan Family Forum Michigan Family to Family www.f2fmichigan.org/ Michigan Foundation for the Blind and Visually Impaired Michigan Department of Health and Human Services www.michigan.gov/mdhhs Michigan Family and Social Services Administration (FSSA) www.michigan.gov/mdhhs Michigan State Department of Health www.michigan.gov/mdhhs Michigan Statewide Independent Living Council (MSILC) www.misilc.org/ Medicaid Disability MI Choice Waiver Program National Alliance on Mental Illness Preschool & Out-of-School Time Learning www.michigan.gov/mde/about-us/mde-divisions-andoffices/preschool-and-out-of-school-time-learning Self-Advocates of Michigan (SAM) Social Security Administration (SSA) Social Security Disability Insurance (SSDI) Special Education Questions United Cerebral Palsy Association of Michigan ucp@ucpmichigan.org Vocational Rehabilitation Services (VR)
DISCLAIMER: Any articles included in this publication and/or opinions expressed therein do not necessarily reflect the views of The N2 Company d/b/a N2 Publishing but remain solely those of the author(s). The paid advertisements contained within the Special Needs Living magazine are not endorsed or recommended by The N2 Company or the publisher. Therefore, neither The N2 Company nor the publisher may be held liable or responsible for business practices of these companies. NOTE: When community events take place, photographers may be present to take photos for that event and they may be used in this publication.
MEET THE SPECIAL NEEDS LIVING DETROIT TEAM
Jamie McCabe Area Director & Publisher
Paula Eifler Account Executive
Christia Woodford Publishing Assistant
WRITERS & CONTRIBUTORS
Ron Sandison Writer and Contributor
Alice FellWriter and Contributor
Dorene Philpot Writer and Contributor
Maria Giancotti Writer and Contributor
Angie Arlington Writer
Kendra Rogers, MS Editor-in-chief
Catherine Blatnik: Writer and Contributor
A Clear Path Toward A Brighter Future
awarded 50 Companies to Watch by
Our multidisciplinary team at ABA Pathways is committed to helping your family find the optimal holistic treatment program for your child with autism. We proudly service over 15 counties in Michigan! 300 Saint Andrews Rd. Saginaw, MI 48638
1625 Concentric Ave. 4000 W. Michigan Ave. Saginaw, MI 48604 Lansing, MI 48917
912 S. Washington St. 710 Columbus Ave. Owosso, MI 48867 West Branch, MI 48661 2890 Carpenter Rd. 314 E. Chisholm St. Ann Arbor, MI 48108 Alpena, MI49707 Kalamazoo, MI: In-home Treatment Services
CALL US TO GET STARTED: (734) 203-0181 abaways.com @ABAPathways Special Needs Living Detroit Metro
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Indoor Sensory Spaces BY CHRISTIA WOODFORD
The Abrams Planetarium
755 Science Road, Michigan State University, East Lansing, MI, 517-355-4676 Offers sensory-friendly shows on the third Sunday of every month at 11:30 a.m. and 1:00 p.m. These shows will run with the lights up, the sound down, and the theater doors open so people can move about as needed. We also provide a place to “chill out” in our lobby. All shows include a live star talk about what is up in the sky that night. We will include a short break between the main show and the star talk. Information about what to expect during the show will be provided when you check-in. Sensory-friendly shows are free thanks to sponsorship from MiABLE. Check the website for shows https:// www.abramsplanetarium.org/ Programs/Sensory.html
classroom. We recently started this class as a pilot program, not knowing how successful it could be. Using techniques used in the SXI classroom we have observed significant improvements. We are very excited about the possibilities this program can offer students who would struggle in another setting. Visit the website for class times or email for more information https://aspiretkd. com/ ottawa639@gmail.com
Curious Kids’ Discovery Zone
Curious Kids’ Museum
Aspire Taekwondo
Celebration! Cinema
The Abrams Planetarium
Aspire Taekwondo
The Gym at Anchor Point Bible Church, 635 Seminole Rd, Norton Shores, MI, 49441, 616-813-6654 We have started a new Sensory Friendly class. This class is taught by Master Willard and Mrs. Willard. Mrs. Willard is an award-winning Special Education teacher with over 20 years of teaching in an SXI
teens with all abilities will not be in a hurry to leave these facilities made just for them. Visit the website for the hours of operation. https://curiouskidsmuseum. org/visit/discovery-zone/
Lights Up. Sound Down. Enjoy The Movie! See the website for movie times and a location near you. https://www.celebrationcinema. com/events-series
415 Lake Boulevard, St. Joseph, MI 49085, 269-983-2543 Feature more than 100 interactive activities and exhibits to spark your child’s imagination and love of learning. Toddlers to young teens with all abilities will not be in a hurry to leave these facilities made just for them. Visit the website for hours of operation https://curiouskidsmuseum. org/visit/museum/
Celebration! Cinema
Curious Kids’ Discovery Zone
333 Broad St., St. Joseph, MI 49085, 269-982-8500 Feature more than 100 interactive activities and exhibits to spark your child’s imagination and love of learning. Toddlers to young Curious Kids’ Museum
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February 2024
The Emagine Theatres
This sensory-friendly program makes going to the movies a more enjoyable and accessible experience for families, children, and teens with sensory needs. *Participating locations: Birch Run (MI), Canton (MI), Eagan (MN), Hartland (MI), Macomb (MI), Novi (MI), Rochester Hills (MI), Saline (MI), Quality 10 powered by Emagine (MI), Woodhaven (MI) Check the website for theatre locations and movie times https:// www.emagine-entertainment. com/sensory-friendly/
The Emagine Theatres
Our Sensory Friendly programming has been designed specifically for the ASD/SPD audience using expert advice and guidance from a network of medical and educational partnerships. Sensory Friendly days, events, programs and ternaries vary throughout the year, but at their foundation are accommodations that provide access to a broad range of experiences here at The Henry Ford. Check the website for times and dates. https://www.thehenryford. org/visit/plan-your-visit/ accessibility/accessibilityautism-spectrum-disordersensory-processing-disorder/ Please feel free to contact accessibility@thehenryford.org with any questions or comments. For more information about Henry Ford and the history of our ASD programming, check out our blog.
Grand Rapids Children’s Museum
11 Sheldon Ave NE, Grand Rapids, MI 49503, 616-235-4726 Special low-sensory programming with dimmed lighting, quiet music, calming tactile activities and cozy spaces. Monthly, 12 pm-3 pm Visit the website for more details https://www.grcm.org/programs Henry Ford Museum
Impression 5 Museum
Grand Rapids Children’s Museum
The Henry Ford Museum
20900 Oakwood Boulevard, Dearborn, MI 48124‑5029, 313-982-6001
Impression 5 Science Center, 200 Museum Dr, Lansing, MI 48933, 517-485-8116 Explore your Science Center with select exhibits altered to reduce sounds, scents, and lighting stimuli. Guests can expect a limited building capacity, popup activity, and map designating the sensory experiences in each exhibit. Thank you to MiABLE for supporting Sensory Friendly Hours at Impression 5! Check the website for monthly dates and times https://impression5. org/sensoryfriendly
Impression 5 Museum
LEGOLAND Discovery Center (Michigan)
4240 Baldwin Road Auburn Hills, MI 48326, 248-409-6001 During Sensory Friendly & Inclusive Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum & other special needs individuals to enjoy the Discovery Center in a calm and fun environment. Sensory sensitive and special needs adults are welcome to visit during Sensory Friendly & Inclusive Mornings without a child (age 16 or under) in the party until the attraction opens to the general public at 10 am. Adults who are not accompanied by a child must exit the attraction upon opening. Groups that are accompanied by a child are welcome to stay past 10 am. Tickets are limited and must be purchased online in advance for this special event. See the website for more information on dates and times and ticket sales. https://www. legolanddiscoverycenter.com/ michigan/what-s-inside/events/ sensory-friendly-mornings/
LEGOLAND Discovery Center (Michigan)
Special Needs Living Detroit Metro
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Longway Planetarium in Flint
Play-Place for Autistic Children
1310 E. Kearsley St., Flint, Michigan 48503, 810-237-3400 During sensory-friendly shows, we turn the lights up and turn the sound down to provide a safe, welcoming environment for our friends with special needs. Sensory-friendly shows will now feature open captioning for the hearing-impaired community. Be yourself and find the best spot in the house to enjoy the show! Check the website for dates and times. https://sloanlongway.org/friendly/
39337 Mound Road, Sterling Heights, MI 48310, (586) 254-6533 A 501(c)3 nonprofit organization located in Sterling Heights, MI. Play-Place’s mission is to provide a fun-filled, judgment-free, haven of hope for families affected by autism and other special needs. Through a unique play-powered environment, combining education and recreation with a variety of social, occupational and physical therapeutic overtones, PlayPlace’s one-of-a-kind model will be a revolutionary compliment to the autism equation of intervention and awareness. Email info@autisticplayplace.org Check out the website for times and dates or to book your party! https://autisticplayplace.org/
visit during Sensory Friendly & Inclusive Mornings, too! Tickets are limited and must be purchased online in advance for this special event. See the website for dates and times and to purchase tickets https://www.visitsealife.com/ michigan/what-s-inside/events/ sensory-friendly-mornings/
Longway Planetarium in Flint
Peppa Pig World of Play Michigan
4362 Baldwin Road Auburn Hills, MI 48326, During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum. The attraction will open to the general public with normal lighting, sound, etc. at 10 am, but you’re welcome to stay as long as you like and do not have to leave when the event ends at 10 am. See the website for days and times https://www. peppapigworldofplay.com/ michigan/tickets-passes/ways-tovisit/sensory-friendly-mornings/
Peppa Pig World of Play Michigan 10
February 2024
SEA LIFE Aquarium (Michigan)
Stomping Grounds Play Cafe
9028 North Rodgers Ct SE, Suite E, Caledonia, MI, 616-275-4869 A Montessori and Waldorf-inspired indoor play space for children ages 0-6 and their caregivers
Play-Place for Autistic Children
Check out the website for hours of operation https://www. stompinggroundsgr.com/
SEA LIFE Aquarium (Michigan)
4316 Baldwin Road Auburn Hills, MI 48326, 248-409-6001 During Sensory Friendly & Inclusive Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum & other special needs individuals to enjoy the Aquarium in a calm and fun environment. Sensory sensitive and special needs adults are welcome to
Stomping Grounds Play Cafe
tinkrLAB
2650 E. Grand River Suite A, East Lansing, MI 48823, 517500-8687 #3The transformative journey of discovery, creation,
and innovation. No need for previous knowledge. No need to be perfect. We encourage the pursuit of originality. Unlock your imagination. Enjoy the freedom of choice. Celebrate the process. Visit the website for more information. https://tinkrlab.com/
Tinkrlab
Vonnie’s World
3850 2nd Street Suite 220, 2nd Flin the “MPC” Building Wayne, MI, 734-799-7821 We are a Respite Center & life enrichment activity play place for children with special needs and disabilities. We accept all CHILDREN. Every child is different in their individual needs:) We are a place that offers extra Respite support for the families in a safe loving therapeutic environment with hands-on individualized recreational play & fun activities. Children will create their own life-enriching PLAY experience every time they come. All play “is not the same” Children retain various information from their play experiences why NOT provide them an unrestricted opportunity to add life enrichment play & exploration to their lives while allowing their caregivers to take a short break from their daily duties? Check the website for hours of operation https://www. vonniesworld.com/ email vonniesworld21@gmail. com for questions
Theraplayoga: Therapeutic Playful Yoga for Diverse Abilities
2015 E. Michigan Ave. Lansing, MI 48912Inclusive & Accessible Yoga for Diverse Bodies, Brains, and Abilities. For more information https://TheraPLAYoga.com or Gloria@TheraPLAYoga.com
Theraplayoga: Therapeutic Playful Yoga for Diverse Abilities
Vonnie’s World
Urban Air Adventure Park
Check out the website for a location near you https://www. urbanair.com/michigan An event specifically designed for children with Autism and special needs to enjoy time at the park without loud music, and flashing lights- and to have a lot of fun! See the calendar for timing and details. https://www. urbanair.com/michigan https://www. urbanairtrampolinepark. com/sensoryfriendly/
Urban Air Adventure Park
Special Needs Living Detroit Metro
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SPECIAL NEEDS LIVING - THIS MAGAZINE IS – FOR YOU – BY YOU – TO SUPPORT AND CONNECT YOU – HERE IS HOW YOU CAN BE INVOLVED – LET’S GET SOCIAL
To keep up to date with all things happening with Special Needs Living – Upcoming Events/Socials/ Gatherings – Stories and Highlights – Ways to be Involved – Follow us on Facebook: www.facebook.com/ SpecialNeedsLivingDetroitMetro/ Follow us on Instagram:
HAVE A STORY TO SHARE
Would you like to share a story in an upcoming issue of Special Needs Living? We want to hear from you. To share a story or to nominate someone else to be in an upcoming issue of Special Needs Living, e-mail your story ideas or nominations to Jamie.McCabe@n2co.com To view ways to share your story in a future issue & to view the digital version of Special Needs Living Detroit/Metro: Click the link or scan the QR code: https://linktr.ee/snlmichigan Scan to view past issues of Special Needs Living
ACCOMPLISHMENTS/ ACHIEVEMENTS/MILESTONES Looking to Celebrate all Special Needs Individuals
Some accomplishments and milestones take years... We want to recognize you/them! Are you or your child celebrating a birthday, milestone, achievement, or accomplishment? We want to recognize you – email us at SpecialNeedsLivingDetroit@ n2pub.com CALLING ALL 501C3 ORGANIZATIONS THAT SUPPORT THE SPECIAL NEEDS COMMUNITY
Each month we will highlight a nonprofit for free to let the community know more about how they support and impact families and individuals with special needs. Do you run a non-profit or know of one that supports the special needs community? Fill out your submission or scan the QR code here: www.jotform.com/ build/202466367490157
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February 2024
TO GET THE FREE COPY OF SPECIAL NEEDS LIVING DETROIT METRO CLICK OR SCAN:
https/form.jotform. com/222635365026049
FOR ADVERTISING:
Do you run a business that supports the special needs community and is looking to connect, impact or advertise in Special Needs Living magazine? Scan the QR code to set up a time to connect or Email Jamie.McCabe@n2pub.com.
TRANZACTCARD Put money back in your pocket!! Do you know about Tranzact Card?
Instead of getting only 1%, 3% or 5% back using a credit card. You can now jump on board with Tranzact card and get matched $1 for every $1 you spend. This is not a credit card and you don’t have to open a new bank to use this card. This is backed by the FDIC and Visa system. You use it just like you do your bank card and transfer money onto it and use it to buy the same items you do with your bank debit card. Can you imagine paying your house payment using this card and getting matched dollar for dollar? You can use these ZBucks at the online store to buy almost everything you can buy on Amazon along with access to your zbucks to buy dozens of gift cards to use at any of your favorite stores, along with buying flights and travel packages. Check the links and QR codes below to learn more about this opportunity. if you would like to learn more there are calls each Wednesday every hour on the hour from 12-9pm EST. At the link here: www.tranZactCard.live
Find out more ways to get additional money for using this card. it’s a great way to stretch your dollar. https/communityimpact.tranzactcard.com/
Scan or Click on this link to learn more about how to stretch your dollar & Get your Tranzact Card today: https://communityimpact. tranzactcard.com/
Check out this video to learn more: https://my-tranzactcard.com/ special-needs
Special Needs Living Detroit Metro
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NONPROFIT SP OTLIGHT
Work and Play Special Needs Resource Center Inc.
Sara with the Easter Bunny
BY ANGIE ARLINGTON
The Work and Play Special Needs Resource Center provides a central location for therapy companies to provide services, social gatherings, and resource information for those with developmental disabilities of all ages and their caregivers. “Think of us as a hub for the special needs community. Having a resource center simplifies access to things
Special Needs Resource Center
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February 2024
needed to care for someone with developmental disabilities, which is desperately needed in an often complicated life with a child with special needs,” Misty Kluck explains. The Work and Play has a key group of leaders looking for “holes” within the community. “Once we make sure the solution isn’t already provided by another nonprofit (just
Cheer Camp
lack of community knowing about them), we then find a solution. This includes providing a program ourselves at the center or advocating in the educational or medical fields. If the solution is already provided, we blast the program through our newsletter and social media channels, making sure the community knows about the program.” “You may have a big family or circle, however, no one knows what you are going through unless they are walking a life path close to yours. Raising a child with special needs can be very lonely. Trudging through the mountains of information can be daunting. Being on edge every time you go somewhere in public is EXHAUSTING. We
provide a location where people with developmental disabilities and their caregivers can just “be”. We listen to the caregivers and spend time with the community members. We provide them with solutions from the community that they may have not known about before. If we cannot provide a solution, then we call people who might have one. The idea of the resource center is to become known and lift the community to where people feel that our community is worth investing in. Knowledge is power. There is power in numbers. Our community is severely under-served… we want people to see it and change it.” They offer monthly membership to the community. Families within the community can choose from a free membership or twenty dollars a month. “We need those numbers and demographics to apply for grants and to prove our reach. This allows us to provide muchneeded resources and programs for our following,” Misty shares. “Community supporters and business supporters can donate once or monthly through our website. If they have a specialty like music teacher or social worker, they may
Lacrosse Ladies
Roller Disco!
develop and offer a free program to our community at our location. This gets their name out to the public as well as allows them to obtain experience working with our community members.”
Tessa the Cheerleader
Topsoccer Special Needs Living Detroit Metro
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Local Events BY CHRISTIA WOODFORD
Christia Woodford — Publishing Assistant and Local Events
Visit a Museum through Museums for All Due to COVID-19, many museums participating in Museums for All have adjusted their hours and ticket purchasing policies. Before visiting a museum, please call or check their website to see if they are open or require advance registrations. Many museums are offering virtual resources—check your local museum’s website for more information. Through Museums for All, those receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,000 museums throughout the United States simply by presenting their EBT card and a photo ID. Check here for participating museums. https:// museums4all.org/ Museums Grand Rapids Children’s Museum Sensory Friendly Night! Hosted by ASK of Kent County Feb. 19, 4:00 pm- 7:00 pm Grand Rapids Children’s Museum11 Sheldon Ave NE, Grand Rapids, MI 49503 JOIN US FOR A FUN NIGHT AT THE CHILDREN’S MUSEUM JUST FOR US! The Children’s Museum has set aside Monday evening, February 19, from 4-7 pm, for anyone with sensory challenges. 16
February 2024
Admission is free, but registration is required by February 15. No late registrations or at-event registrations will be allowed. Use the link below by clicking on the words. (You will need to go to the cart, and you WILL receive an email confirmation.) https://www. autismsupportofkentcounty.org/newproducts/p/2024-night-at-the-grchildrens-museum Abrams Planetarium Sensory Friendly Shows Rising Star, A South African Astronomy Journey Feb. 18, 11:30 a.m. 755 Science Road, East Lansing, MI, United States Rising Star takes you on an astronomical journey from our beginnings through the development of astronomy research in South Africa and looks at what the future of astronomy holds for the country. In addition to introducing multi-wavelength and multi-messenger astronomy, it highlights the many remarkable facilities hosted in South Africa along with some of their latest results. This includes unrestricted views of the 10-meter class Southern African Large Telescope and the most powerful radio telescope in the Southern Hemisphere, MeerKAT. The film is accessible to all ages and aims
to excite audiences from around the world about South African astronomy while inspiring the next generation of astronomers. As the first of its kind to be produced in Africa, Rising Star hopes to stimulate the production of many more locally produced planetarium films from multidisciplinary fields, with the goal of popularizing Africa’s numerous scientific achievements. We Are Stars Feb. 18, 1:00 pm What are we made of? Where did it all come from? Explore the secrets of our cosmic chemistry and our explosive origins. Connect life on Earth to the evolution of the Universe by following the formation of Hydrogen atoms to the synthesis of Carbon, and the molecules for life. Narrated by Andy Serkis. These shows will run with the lights up, the sound down, and the theater doors open so people can move about as needed. We also provide a place to “chill out” in our lobby. All shows include a live star talk about what is up in the sky that night. We will include a short break between the main show and the star talk. Information about what to expect during the show will be provided when you purchase tickets. Cost: Adults, $5.50, Students and senior citizens, $5.00, Children (age 12 and under), $4.50
Friends of Abrams Planetarium Members, Free Free with Museums For All (with valid EBT, Medicaid, or WIC card and photo ID) https://www.abramsplanetarium. org/Programs/Sensory.html Ella Sharp Museum Sensory Time Every Saturday at 9:00 am 3225 4th Street, Jackson, Michigan 49203 During Sensory Friendly Hours, the Ella Sharp Museum will open its galleries at 9 a.m., an hour before the museum opens to the public. Families with members who are neurodiverse, autistic, or have other sensory processing disorders or cognitive disabilities are welcome to visit the museum for a quieter experience in a more controlled environment. Designated quiet zones will allow visitors to decompress and experience the museum at their own pace. Before each program, families are invited to browse our “pre-visit” materials to help them prepare for their visit including social narratives and maps of our facility. These previsit materials are also available to help families plan for visits that take place outside of program hours and a sensory backpack is available at the front desk for use. To provide the most sensory-friendly environment possible, we will limit the capacity for these special times to 50 people. https://ellasharpmuseum.org/ classes-and-events/sensory-time/ Sports Detroit Red Wings Feb. 10, 22, 24, 27, 29 Little Caesars Arena, 2645 Woodward Ave, Detroit, MI 48201 https://www.nhl.com/redwings Detroit Pistons Feb. 2, 4, 24,26 Little Caesars Arena, 2645 Woodward Ave, Detroit, MI 48201 https://www.nba.com/ team/1610612765
Family Fun Winter Park At Bowers School Farm Jan.5 - Feb. 25 CHARLES L. BOWERS SCHOOL FARM, 1219 East Square Lake Road, Bloomfield Hills All visitors are welcome to come and meet our animals, warm up at one of our cozy bonfires, indulge in a variety of comfort foods from the Farm Kitchen, shop the Farm Store for local products and more. New this year is a climbing play area. No charge. Tubing is available for an additional charge. Purchase tickets: https://www. schoolfarm.org/winter-activities Detroit Zoo Sensory Friendly Evenings Check the website for the day! As part of our work to create accessible and welcoming spaces for all, the Detroit Zoo will turn down the music and adjust the lights during special evenings this summer. Starting in June, the Detroit Zoo is hosting three Sensory Friendly Evenings for guests with different sensory needs. Sensory Friendly Evenings will take place from 3 to 7 p.m. on Aug. 30. During these times, the Zoo and its attractions will be open to all visitors, but special accommodations will be in place to ensure the Zoo can be enjoyed by families and individuals of all abilities. What accommodations can I expect during Sensory Friendly Evenings? • Reduced music volume at gate entry • Reduced volume and adjusted lighting inside the Polk Penguin Conservation Center’s Shackleton experience • Limited effects and adjusted lighting in the 4D Theater • Reduced sound on the BRICKLIVE trail • Altered music on the Carousel KultureCity sensory bags equipped with noise-canceling headphones, fidget tools and verbal cue cards will be available to guests who may feel overwhelmed by the environment. Guests can check out the bags at Customer Care and the Park Safety Office.
Weighted lap pads and strobe glasses are available upon request. A dedicated sensory room is available for those who may need a quieter and more secure space. Included with Zoo admission | Free for members | No event registration required https://detroitzoo.org/events/zooevents/sensory-friendly-evenings/ Together Let’s Sing, Dance and Jam!! Sponsored by MidMichigan Autism Association Feb. 7, 6:30 pm- 7:30 pm Please join us for our monthly “virtual” music therapy event!! Please RSVP by December 25 to Cathy Blatnik at blatsie63@yahoo. com with your name, age, contact phone number and e-mail address you would like the Zoom link sent. REC-IT Class: Inclusive Art Feb. 8 & Feb. 22, 1:00 pm- 2:00 pm Disability Network Eastern Michigan – Troy1709 John R Road, Troy, MI 48083 Join us for in-person art classes. Participants will learn new artistic skills using a variety of mediums, such as: acrylic painting, oil pastels, watercolor, and mixed media. Class includes group and individual instruction and meets on the 2nd and 4th Thursday of each month. In order to promote inclusion for all, we request a maximum of 4 individuals from any one agency. All levels of experience and ability are welcome. This class is limited to ten (10) participants, don’t miss out! https://autismallianceofmichigan. org/event/rec-it-class-inclusiveart-2/2024-02-08/ Cookies and Valentine’s Day Card Making Feb. 10, 2:00 pm- 3:00 pm VILLAGE ARTS FACTORY, 50755 Cherry Hill Road, Suite 10, Canton, MI 48188 Make cookies and create Valentine’s Day cards for your favorite people! A parent, guardian or aide is required to attend with participants at no additional fee. Special Needs Living Detroit Metro
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Register at: https://villageartsfactory. com/events/ Cost is $10.00, which includes materials contact admin@partnershipforarts.org for additional information. LIVONIA AIR BIG GAME PARTY Feb. 11, 1:00 pm-3:00 pm Kirksey Recreation Center15100 Hubbard St, Livonia, MI 48154 Livonia AIR (Adaptive Inclusive Recreation) is our new branch of inclusive recreation programs. We offer events and activities designed for individuals with special needs (ages vary based on the event). The goal is to provide participants the chance to make new friends, find new activities to enjoy, and visit different parts of their community. Save the date for 1-3 p.m. Sunday, Feb. 11, at the Kirksey Recreation Center. Today is the biggest football game of the year! Join us to celebrate the two teams that make it the furthest and some football-themed activities, snacks, and maybe even laugh at our favorite commercials of the past! The cost is $5 per Kirksey Recreation Center member, $10 per resident and $15 per non-resident. Register: https:// autismallianceofmichigan.org/event/ livonia-air-big-game-party/ Inclusive Game Night Hosted by Therapeutic Concepts Feb. 23, 6:00 pm- 7:30 pm Therapeutic Concepts, LLC38257 Mound Road, Building D, Sterling Heights, MI 48310 For the whole family focusing on inclusion, safety, and enjoyment! $10 per family, register online at https://therapeuticconceptsllc.com
Legoland Discovery Center Michigan Sensory Friendly Mornings Check the website for upcoming Mornings 4240 Baldwin Rd, Auburn Hills, MI 48326 During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum. Sensory-sensitive adults are welcome to visit during Sensory Friendly Mornings without a child (age 16 or under) in the party until the attraction opens to the general public at 10 am. Adults who are not accompanied by a child must exit the attraction upon opening. Groups that are accompanied by a child are welcome to stay past 10 am. Tickets are limited and must be purchased online in advance for this special event. https://www.legolanddiscoverycenter. com/michigan/tickets-passes/ Sealife Michigan Sensory Friendly Mornings Check the website for upcoming mornings 4316 Baldwin Road, Auburn Hills, MI 48326 During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum. The aquarium will open to the general public with normal lighting, sound, etc. at 10 am, but you’re welcome to stay as long as you like and do not have to leave when the event ends at 10 am. Tickets are limited and must be purchased online in advance for
this special event. Please check https://www.visitsealife.com/ michigan/what-s-inside/events/ sensory-friendly-mornings/ Detroit River International Wildlife Refuge Jan. 1- Jan. 31 Various Activities scheduled throughout the month 5437 W Jefferson AveTrenton, MI 48183 https://www.fws.gov/refuge/detroitriver/events?event_date_and_ time=%7B%22from%22:%22202306-15T16:00:00.000Z%22,% 22to%22:null%7D&$skip=10 MJR Digital Cinema Sensory-Friendly Film Check the website for movie times 100 East Maple Road, Troy, MI, 48083, United States https://www.mjrtheatres. com/sensory-friendlyfilms?fbclid=IwAR1JnETT4LqVME0tv0TkWPiYH5lckEcSi4ou3EcdA4eyfbqJYLgmReJ00 Events SPECIAL NEEDS RESOURCE FAIR Feb. 27, 3:30 pm- 7:30 pm The War Memorial, 32 Lake Shore Dr, Grosse Pointe Farms, MI The Special Needs Resource Fair is for parents and caregivers looking for support for their neuro-diverse children. Featuring a wide variety of educational, recreational, and occupational resources along with mental health, legal, and government services. To register: https://allevents.in/grosse%20 pointe%20woods/special-needsresource-fair/200025866769528
Is there a local event for the special needs community you would like us to promote in an upcoming issue? Email us at SpecialNeedsIndy@n2pub.com.
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Reducing Stress and Anxiety Help your child to worry less and feel relaxed. BY JUDITH E. LIPSON, M.A., LPC
K
ids today have full schedules: school, athletics, family time, and extra-curricular and other activities. Busy kids respond to their hectic lives the same way that adults do: sleep is impacted, proper nutrition is ignored, and kids feel generally overwhelmed. Hectic schedules also minimize quiet times that are imperative for development and well-being. I recently heard a police officer on the radio describing how he takes care of business: he avoids emotion so that he can respond effectively to crises, save people, and keep himself protected. Is this the effect that busy schedules have on your child? Your child may move from crisis to crisis (appointments, homework, studying, keeping family and friends happy) and without even realizing it, shut down feelings. You may need to guide your child to find the opportunities to open his or her heart, feel emotions, and attain inner peace. If your child also struggles with low selfesteem or perfectionist tendencies, there is an additional subconscious tendency to avoid feelings and thoughts. Taking care
of business and busyness seems preferable and allows them to avoid focusing on the underlying emotions and negative internal messages. It is important that your child not be constantly focused on activities outside of the self. When your child takes the time to be inwardly aware, then she can maintain an open heart, allow emotions, and recognize and develop their authentic self. Teach your children the following skills: CHANGE THOUGHT PATTERNS
The situation and its accompanying feelings are challenging enough; minimize suffering by responding only to what is. Einstein said we can’t solve a problem with the same set of information that got us there. Encourage your child to share thoughts so s/he can be advised where they might be inaccurate. FEAR is False Evidence Appearing Real. Sharing thoughts aloud brings them into perspective and reveals inaccuracies, giving them less power over your child. Release the worried thoughts for a more appropriate time since worrying is a hindrance to
learning, taking a quiz or test, studying or sleeping. With imagination, place the worried thoughts in a hot air balloon, an elevator, a drawer, etc. For this to work though, you must retrieve these worry thoughts at a later time: after school, the next day, in counseling, or with a trusted adult; limit the worry time to a specific time frame, i.e.: 15 minutes. Later retrieval allows your child to work through the thoughts and feelings safely and appropriately. STAY IN THE PRESENT
Focus on activities, like chores, as they occur rather than multi-tasking. When walking, be mindful of the footsteps rather than the thoughts. Focus on the movement of the chest and abdomen with each breath in and out. The breath is always there; while focusing on breathing, worries are kept at bay. RELAX
Drop the shoulders away from the ears during some exhalations. Beginning at the feet or head, progress slowly through each body part. “I relax my toes and feet; I relax my ankles and calves….” If your child gets distracted and realizes the
mind is wandering again, have them acknowledge without judgment and draw the awareness back to the breath; then begin the relaxation again (even if the progression was nearly complete). Remind your child that this is not a contest or a race; the process is important. OPEN THE ENERGY CHANNELS
When emotions are avoided or ineffectively expressed, they can create blockages in the body and lead to disease. Move the body: walk, pace, change position; allow music to direct the body’s movement. Participate in yoga, tai chi, cranial sacral therapy, acupuncture, Reiki, EFT (Emotional Freedom Technique), etc. Where possible, remove the triggers and challenges in your child’s life to reduce stress and worry. Teach your child that when the outer world cannot be adjusted, s/he can alter the inner response. The tools listed above can assist in that process. Begin teaching these tools to your child at a young age if possible, but it is never too late to learn. This article is for informational purposes and is not meant to replace medical care.
Judy Lipson is a Licensed Professional Counselor and educational strategist in West Bloomfield, MI. She helps clients of all ages who have learning difficulties, work or school-related anxiety, ADHD, Asperger’s Syndrome or Autism Spectrum Disorders, and those who wish to Remember and Become ‘Who You Really Are’. Contact Judy at 248.568.8665 and judylipson@spiralwisdom.net, and visit www. JudyLipson.com for more information. Special Needs Living Detroit Metro
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JOSEPH’S AND JONATHAN’S
Journey BY ANGIE AND DAN, AND KENDRA ROGERS, MS, EDITOR-IN-CHIEF
PHOTO CREDIT TO KATIE PRZYBYLSKI PHOTOGRAPHY
A
ngie and Dan met on a group date in 1987. They dated on and off for several years during high school. The pair reconnected as young adults and talking of marrying and starting a family. They married in 2000 and decided to build a house in a more rural area. Now it was time to think about starting a family. In 2006, after trying for over a year, they were elated to find out that not only were they expecting but were expecting TWINS. The
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couple welcomed their identical twin boys in the summer of 2007, Joseph and Jonathan. As first-time parents Angie and Dan thought their boys were developing typically. Unaware of any missed milestones the new parents felt the boys just had their own twin-to-twin language. After a routine “well baby visit” the pediatrician was concerned the boys were not functionally communicating. The pediatrician referred the family to the University of Michigan, Ann Arbor for testing. Following a full day
of testing the family was gathered together in a room with all of the “professionals” to give their prognosis. The main doctor looked at Angie and began by saying, “Well, with Autism...” and that’s all Angie heard. Everything stopped. The world went silent and everything she thought she had with her boys was gone! As she gained her composure, she began to ask questions... “What can we do, what do we do next, are you sure, are there supplements, therapies, diets, medicine, what do we do?!?!?”
FEATURED FAMILY
Again, the doctor very sternly said to Angie “There is no cure for Autism” and sent the family on their way. As they reached the parking structure, Angie collapsed. Dan tried very hard to console her and reassure her they were leaving with the same boys they had walked in with, nothing had changed, while Angie explained “We lost the boys we thought we had”. Again, Dan was very caring and helpful, but Angie was no stranger to Autism as she had been a special education paraprofessional. Joey’s and Jonathan’s diagnosis was something she never wanted or expected to hear. When they went back to their pediatrician the doctor was surprised by the diagnosis. “But they are so loving and affectionate” the doctor stated. (A VERY huge misconception about autism) Grief and mourning set in for the family, losing the children they thought they had, all the hopes and dreams GONE in 1 short afternoon. No playing baseball, no learning to ride a bike, no senior prom, no high school graduation, possibly never marrying and the list goes on and on. Given the information with no guidance or hope for any positive future for the boys, the couple looked into any help they could find to make sure their boys could have the best possible outcome in life. The first thing they did was remove gluten and casein from the boys’ diet because it was one of only a handful of things reported to help. This proved to aid their G.I. issues and some behavioral issues as well. At this point, the couple did not know where to turn next as the boys had just turned 3 years old. They got information about
help in the educational system, so they pursued an educational diagnosis of Autism as well. Angie was holding out hope for the diagnosis to be contrary to the physicians but unfortunately, they concurred with the U of M diagnosis. Although the boys met all the criteria there were not a lot of options for therapies for the family. Speech therapy was needed but not provided outside of a school setting until the age of 6. The family had heard about ABA (Applied Behavioral Analysis) which at the time was the “gold standard” Autism therapy. The parents looked into enrolling them into ABA to no avail because at the time Dan’s insurance did not cover it and the out-of-pocket expense was just not feasible. The parents started petitioning Dan’s union HARD to get them to establish ABA therapy covered by their self-funded insurance. In the meantime, the parents enrolled the boys in an early-on program through the schools both in school and at home. They also began in home out of pocket speech therapy with the help of family. The couple constantly searched for ways to help their boys. Angie and Dan discovered that GHS (Genesee Health Systems) could be of support for the boys and Angie. The 3 of them participated in a type of “Play Project”. This was very helpful at the time but also included a lot of travel time and arranging care for the other child on opposite therapy days. Additionally, they offered a parent support group, shared information on obtaining SSI, FSS, and respite care, and continue to be an ongoing resource for the family to this day.
After MUCH fighting and advocating for the insurance company to cover the ABA therapy, it was finally approved!! Angie and Dan were thrilled and eager to finally get the boys this therapy. When the family eventually found a facility, it wasn’t exactly close to home and Angie had to get the boys ready and take them daily which proved to be quite the task. Initially, ABA therapy seemed to really help the boys but over the years and over 4 different centers it had run its course. Not to mention after a time they lost their insurance coverage due to some re-disbursement of funds by the state of Michigan and they found themselves actually paying out of pocket for this hugely expensive therapy. (ABA is a whole separate topic that we can all “argue” about later.) In the early years, the boys were in and out of school depending on the need and availability of outside therapies. As time went by it became more and more apparent there just wasn’t a “good fit” for the boys anywhere in the educational system. It really appeared that the schools were not prepared or ready for the onslaught of children being diagnosed with autism. Both the boys received I.E.P.s (Individualized Educational Plans) when they entered school, and they were also provided special transportation by the I.S.D. (Intermediate School District). Even with these supports the boys didn’t fit into their regular public school and also did not necessarily need a center-based program. School has been a struggle since the boys started in 2010. Angie has definitely turned into a full-time autism advocate and “Momma Bear”.
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Over the 13 years in school, the boys have been bounced around over a dozen times and Angie and Dan have hired many an advocate. Furthermore, the boys have “School Refusal” and really put up a fight about going daily. Because autism is not a “one size fits all” type of diagnosis, education, therapies, and even diets and supplements are all tricky things to navigate. The saying is “if you’ve met 1 child with autism, you’ve met 1 child with autism.” (Even in the case of identical twins) While it has not been an easy road Angie and Dan have fought hard to provide and obtain the best possible therapies, education, nutrition, and support for their boys. To say that it had taken a toll on their marriage would be an understatement. The divorce rate for parents of children with autism is 80% and they were keenly aware of that fact. Unfortunately, they have become part of that statistic but continue to coparent and raise their boys together as best as possible. From potty training (which they are still working on) to puberty, this is not a job for the faint of heart. Also, studies have shown some parents of children with autism have the same level of PTSD as that of a combat soldier. You have to be constantly “on”, you sleep with one eye open, and lastly you have to live forever. The constant worry and fear of danger and safety concerns for your child are insurmountable. As toddlers and adolescents, the boys were prone to elopement and wandering, while this has gotten a bit better with age it is still a concern. Since the boys have entered their “teenage” years some neurotypical characteristics like attitude and not listening have surfaced. But the meltdowns and self-injurious behavior have also been exacerbated. One of the boys always seems to be stuck on a certain time frame, date, or outing which will cause constant perseveration, possibly leading to a complete meltdown.
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Handling the boys’ meltdowns as they get bigger and stronger has been quite the challenge and keeps Angie and Dan continuously seeking more support and guidance. One group that Angie was introduced to in 2022 has been a great resource for her and the boys, the “Xceptional Heroes” of Genesee County. The group provides social, recreational, and life skills opportunities for “differently abled” young adults. They have enjoyed many days at the beach, going to lunch and a movie as a group, and most recently their holiday party. Another positive activity is the Special Olympics, specifically cycling. While never imagining the boys could ride bikes, they have been very successful and enjoy riding recumbent bicycles! And on the topic of things they never thought would ever happen... the boys can say “I Love You.” The boys are categorized as not being functionally communicative although they do have some ability to convey wants and needs BUT this surpasses everything. What started as simple echolalia, repeating lines from the movie “Tangled” has now become a little more than just a nighttime routine. Simply saying “I love you”, “I love you more”, and “I love you most” and having them repeat after each phrase has been a highlight for these parents. On occasion, the boys will now say “I love you” unsolicited! Though this article is not allinclusive of all things autism hopefully it gives the reader some insight, some understanding, and maybe even a little hope. Parents receiving this diagnosis for their children may go through the 5 stages of grief but coming to the acceptance stage is the most valuable. Currently, there is no cure for autism BUT there is hope and there is help. Reach out to other families who have traveled this road before you. Be willing to fight for your child’s education, health, and future.
STEP
Shop, Donate, and Support a Great Cause at the STEP Thrift Store and Donation Centers! STEP is pleased to welcome you to our Thrift Store and Donation Centers! This communitybased business enterprise began in June of 2007 with the opening of a store in Wayne, MI. It serves as an opportunity to train and employ individuals with developmental and mental disabilities. We expanded the operation in 2011, adding a second store in Southgate and a third in Dearborn in 2016. Individuals with employment barriers are often frustrated by the feeling that they are unable to find employers who are sympathetic to their needs and who are willing to take the time to develop their skills. By encouraging an associate’s growth in the retail model, new opportunities open up in the workforce as new skills are fostered. We strive to serve the individual employee by developing their retail skills that mirror mainstream businesses. This will hopefully allow those employees we serve the opportunity to “Grow and Go” by finding employment in other sections of the community and opening a spot for another associate to enter
our establishment and reap the benefits of retail training and employment. Another great way to support our mission is to donate your gently used merchandise to the store for resale! All monies received from the sale of merchandise and donations are directly used to support the store associates as they grow in retail skills and take steps toward finding a job in the community. We welcome our shoppers into our clean and inviting stores to get a great bargain but to also meet our associates. STORE LOCATIONS: Dearborn Heights STEP Thrift Store and Donation Center
23830 Ford Rd Dearborn Heights, MI 48127 313-633-0755 Wayne STEP Thrift Store and Donation Center
35004 W Michigan Ave Wayne, MI 48184 (734) 728-9777 Southgate STEP Thrift Store and Donation Center
13705 Eureka Rd Southgate, MI 48195 734-284-0814
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SP ONSOR SP OTLIGHT
AUTASTIC ATHLETICS LLC. Empowering autistic athletes through passion and understanding In the heart of Metro Detroit, Autastic Athletics stands out as the first and only sports and fitness training program for autistic athletes, run by autistic athletes. Founded by Andrew, a passionate and empathetic coach, Autastic Athletics offers coaching in tennis, bowling, and fitness to individuals and groups of all ages. Andrew’s unique approach focuses on meeting athletes where they are, fostering skills and passion, not just in the gym or on the field, but also in their lives. With a coach and athlete who understands the struggles intimately, Autastic Athletics is making a significant impact in the special needs community. Growing Up and Family Ties:
Andrew’s journey began in Oak Park, MI, where he attended Berkley High School, graduating in 2009. Currently residing in Hazel Park with his wife Ashley and their four children, including an autistic 6-year-old son and a 16-year-old autistic daughter, Andrew’s personal and family experiences fuel the passion behind Autastic Athletics. Challenges Turned Catalysts:
Nearly a decade ago, at 24, Andrew found himself at a crossroads, having dropped out of college and struggling to secure a job. Tennis was his solace, and private lessons 24
February 2024
with coach Mark Simcina sparked a transformative conversation. Inspired by Mark’s ethos about overcoming barriers, Andrew envisioned imparting a similar message to the autism community – the message that aspiring athletes
could triumph over real-life challenges. This moment planted the seed for Autastic Athletics, a venture that would later incorporate his rediscovered passion for bowling. The journey continued with Andrew and his
wife embracing bowling, leading to notable achievements, such as winning a tournament together in 2021. Drawing inspiration from USBCgold-level coach Michelle Mullen, Andrew seamlessly integrated bowling into Autastic Athletics’ offerings, expanding his impact on the lives of autistic athletes. Unique Approach and Empathy:
What sets Autastic Athletics apart is Andrew’s lived experience as an autistic individual. The struggles of developing muscle memory, motor planning, and kinesthetic awareness aren’t just memories of the past but challenges he faces even today. This unique perspective allows him to relate to and empathize with his athletes in ways few others can. Autastic Athletics isn’t
and spending quality time with his family. His commitment to giving back extends beyond the training programs. Autastic Athletics actively engages with the community, participating in causes, organizations, and fundraising events that align with its mission. It’s not just about coaching; it’s about creating a supportive community for autistic athletes and their families. Connect with Autastic Athletics:
just a training program; it’s a platform where understanding and passion converge to break down barriers. Advice for the Special Needs Community:
Andrew’s advice to the special needs community is simple yet profound: play to your passions, then play to your strengths. In a world that often focuses on limitations, he encourages individuals
to define their own paths and not be hindered by others’ perceptions. Life, according to Andrew, is about what you do, and Autastic Athletics embodies this philosophy, inspiring athletes to overcome barriers not just in sports but in life.
For those seeking to join Autastic Athletics or learn more about their programs, visit www. autastic-athletics.com. You can reach out to Andrew
directly via email at andrew@autastic-athletics. com. Stay connected with their community and updates through Facebook and Instagram. Autastic Athletics is not just a training program; it’s a beacon of understanding, empowerment, and community for autistic athletes, led by a coach who walks the talk – Andrew, the Autastic Athlete.
Beyond the Gym and Field:
Outside of running Autastic Athletics, Andrew finds joy in playing the sports he coaches, working out,
Special Needs Living Detroit Metro
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ADVOCATE LIKE A MOTHER
School Expulsions and Protections for Children with Disabilities
BY MARIA GIANCOTTI, M.ED - STUDENT ADVOCACY MICHIGAN
The journey for children with disabilities is often fraught with unique challenges including behavioral issues and potential school expulsions. According to the National Longitudinal Transition Study-2 (funded by the U.S. Department of Education), 27%-33% of youth with learning disabilities, mental retardation, or traumatic brain injuries are reported to have been suspended or expelled and 13%-18% of those with visual, orthopedic, speech/ language or hearing impairments, autism, multiple disabilities and deaf-blindness are reported to have
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been expelled. While expulsion is a complex and emotionally charged topic, it is crucial to explore how the Individuals with Disabilities Education Act (IDEA) provides safeguards and protections for children with disabilities in the face of disciplinary actions. School expulsions can have profound consequences for any student, but the impact can be particularly significant for those with disabilities. Expulsions not only disrupt the educational trajectory but also pose a risk to the overall well-being of the child. Children with disabilities may exhibit behaviors related to their condition that are mistakenly interpreted as willful misconduct. In such cases, it is essential to recognize that the root cause of these behaviors may be linked to the child’s disability, necessitating a thoughtful and nuanced approach. The IDEA serves as a critical legal framework designed to ensure
that students with disabilities receive a free and appropriate public education (FAPE). When it comes to disciplinary actions, IDEA includes provisions that safeguard the rights of children with disabilities. 1. Manifestation Determination Review (MDR):
IDEA mandates a Manifestation Determination Review (MDR) before a child with a disability can be expelled for more than 10 consecutive days. This review determines if the behavior leading to the disciplinary action is a manifestation of the child’s disability and or if the IEP was not executed properly. 2. Functional Behavioral Assessment (FBA) and Behavior Intervention Plan (BIP):
IDEA encourages the use of Functional Behavioral Assessments (FBAs)
and Behavior Intervention Plans (BIPs) to address and manage challenging behaviors exhibited by students with disabilities. 3. Protections for Children Not Yet Eligible for Special Education:
Even if a child has not yet been identified as having a disability but displays behavior that raises concerns, IDEA’s protections can still apply. In such cases, schools are encouraged to evaluate to determine whether the child needs special education services. Despite these legal protections, some school administrators may lack the necessary training to differentiate between behaviors associated with a disability and those resulting from willful misconduct. Additionally, there can be delays in conducting MDRs and implementing necessary supports. Advocacy plays a pivotal role in addressing these challenges. Special education advocates and parents can collaborate with schools to ensure that the unique needs of children with disabilities are met appropriately. WHAT TO DO IF YOUR CHILD IS FACING EXPULSION • Learn the Law: Understand your child’s
rights under IDEA and familiarize yourself with the school’s disciplinary policies. • Request a Meeting: Initiate communication with
school officials to discuss the situation. Request a meeting to gain insights into the reasons for expulsion and collaborate on finding alternative solutions. • Prepare for the Manifestation Determination Review (MDR): This review determines
whether the behavior leading to expulsion is a manifestation of the child’s disability.
• Appeal the Decision: If the
expulsion decision is made, explore your right to appeal the decision through the school district’s appeal process. • Seek Mediation or Due Process: If necessary,
consider pursuing mediation or due process procedures as outlined in IDEA. The issue of expulsions for children with disabilities is frustrating and challenging. Knowing your rights, engaging professional support and understanding the process can lead to better outcomes. If you are faced with potential expulsion and need assistance, contact us at Student Advocacy Michigan. We are ready to help you!
Empower Your Child's Potential with Our Special Education Advocacy Services! We're here to represent, educate, and empower parents like you. UNLOCK YOUR CHILD'S BRIGHTER FUTURE
TODAY!
• Gather Documentation: Provide documentation of your
child’s disability and any relevant information, such as IEP records, medical assessments, or evaluations.
Special Education Consulting & Coaching
• Consider Hiring Support: Consult with an
School Communication & Representation
advocate or special education attorney for guidance on the best course of action.
Resources & Service Provider Referrals
• Explore Alternative Interventions: Work
collaboratively with the school to explore alternative interventions and supports that can address the underlying causes of the challenging behavior. This may include implementing a Functional Behavioral Assessment (FBA) and a Behavior Intervention Plan (BIP).
IEP/504 Support & Advocacy
Public Speaking & Educational Presentations
(248) 372-9770
studentadvocacymi.com @StudentAdvocacyMI Special Needs Living Detroit Metro
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Labels or Windows BY KENDRA ROGERS, MS - EDITOR-IN-CHIEF
Incredible concentration and perfectionism always
Attachment to objects--note the hammer-like branch
Stoicism at two
W
hen I think back to when my son received his autism diagnosis, I recall a myriad of feelings. First, I hesitated about getting a diagnosis because of the stigma surrounding such labels. I knew my son was peculiar and I excused his mannerisms as quirky but nothing to worry about. However, when he didn’t outgrow the meltdowns he had when he felt like his world was exploding, I realized we needed help. We went to get his label. At least, that’s how I felt some people looked at it. I cannot count the number of times I justified my son’s autism to people who said hurtful things like “Why label him?” and “Everyone is a little autistic.” It made
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me think that I was incapable of raising my son without a diagnosis or that I was excusing his behavioral difficulties through the diagnosis. I imagine I am not the only one for whom these questions and feelings raged. I threw myself into research to understand my son. I felt like with the diagnosis, I had a direction. I could find material that would help me support my son’s development, finally. I had been grasping at straws before getting a diagnosis. Even years later, though, people still challenge me regarding whether my son really needed a label. Even though he has low support needs and does well much of the time, I realized that getting
his diagnosis young meant that he would walk through more of his life with some slight understanding from those around him. My husband, who received his autism diagnosis as an adult, spent the first 38 years of his life floundering, masking, and generally confused about his place in the world. Helping my son find his place as a child because I understood what to look for and how to help him means that he won’t go through life trying to fit into round holes as a square peg. The number of adults who are now learning that their brains have always operated differently is staggering. These adults are finally learning why they had tumultuous childhoods.
I felt like with the diagnosis, I had a direction.
Connection with animals
They have been given windows into understanding. They have not been labeled as outcasts but provided with ways to understand and navigate a world that, though they represent about 13% of the population, seems not to understand. Now, they have tools. They understand themselves, which yields an understanding of their place in the world. A diagnosis is not a label but a window looking out toward an understanding of self and others. While my experience specifically regards autism diagnoses, parents of those with ADHD, Down Syndrome, Trisomy 13, global developmental delays, ODD, and so many other conditions, often find themselves being challenged by others in the same way I was. But I maintain that in every case where a diagnosis aids in understanding a human and their needs, the label provides power. Power for moving forward in what feels like walking through molasses. Power for breaking barriers. Power for celebrating the incredible people in our lives. Embrace your power.
A Place To Grow
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Happy Recreational Therapy Month! We at Advanced Therapeutic Solutions want to thank all of our Recreational Therapists and those not within our company, for all that they do. Recreational therapy is an underrated yet immensely powerful therapy, where therapists take a client's interest and use the things they enjoy to promote progress. You could say Recreational therapy puts the FUN in FUNctional treatment sessions.
If you are interested in learning more about this wonderful program contact us!
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