ISSUE PREVIEW
• Pages 8-9 Community Resources
• Pages 10-13 Your Story Matters! Meet CJ
• Pages 14-15 Judson Center: Routine Appointments and Autism
• Pages 16-17 Sponsor Spotlight: Student Advocacy Michigan
• Page 18 See What’s New at STEP! Empowering the Workforce of Tomorrow: STEP’s Summer Earn & Learn Program
• Pages 20-21 Celebrating the Life of Autism Advocate Dr. Laurence A. Becker
• Pages 22-23 Expressing Love to Your Child with Autism
• Page 24 Advocate Like A Mother: Understanding the IEP Process: Eligibility, Services, and How to Advocate for Your Child
• Pages 26-28 Local Events
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Meet CJ
Sponsor Spotlight
Advocate Like A Mother: Understanding the IEP Process: Eligibility, Services, and How to Advocate for Your Child
Having Fun at Healing Haven!: Expressing Love to Your Child with Autism
Empowering the Workforce of Tomorrow: STEP’s Summer Earn & Learn Program
Routine Appointments and Autism
This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance!
ABA SERVICES
ABA Pathways (734) 203-0181 www.ABAways.com
Budding Behavior Therapy (248) 622-5191 www.buddingbehavior.hi5aba.com
ABA/ BEHAVIORAL & AUTISM SERVICES
Healing Haven (248) 965-3916 www.thehealinghaven.net/
Key Steps ABA Therapy (248) 561-0130 keystepsaba.com
ADVOCACY
Student Advocacy Michigan (248) 372-9770 www.studentadvocacymi.com
ATHLETIC TRAINING
Autastic Athletics LLC. (248) 224-4151 www.autastic-athletics.com
ATTORNEY-WILLS/TRUSTS/ESTATE PLANNING
Chalgian & Tripp Law Offices PLLC (248) 799-2711 www.Mielderlaw.com
COMMUNITY SUPPORT
Gigi’s Playhouse Detroit (248) 225-5616 gigisplayhouse.org/detroit
Judson Center (248) 837-2020 www.JudsonCenter.org
EMPLOYMENT AND TRAINING SERVICES
Services To Enhance Potential (STEP) (734) 718-0483 www.stepcentral.org
FINANCIAL MIABLE (844) 656-7225 mi.savewithable.com
PRIVATE HIGH SCHOOL
AIM High School (248) 702-6922 www.aimhighschool.com
RECREATIONAL/ MUSIC/ ART THERAPY
Advanced Therapeutic Solutions (734) 352-3543 www.advancedtherapeauticsolutionsmi.com
RELATIONSHIP SUPPORT/SEXUAL HEALTH
My Relationships Project (313) 489-0043 www.myrelationshipsproject.com
SPECIAL NEEDS TRUST
Springhill Pooled Accounts Trust (248) 269-1319 springhillpooledtrust.org
Where Children BLOOM
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Arc Michigan arcmi.org
Autism Alliance of Michigan https/autismallianceofmichigan.org/
Autism Support of Michigan https/autism-mi.org/
Behavioral Health and Developmental Disabilities Administrationwww.michigan.gov/mdhhs/ keep-mi-healthy/mentalhealth/procurement/ welcome-to-behavioral-health-and-developmentaldisabilities-administration
Michigan Foundation for the Blind and Visually Impaired
Michigan Developmental Disabilities Council www.michigan.gov/mdhhs/keep-mi-healthy/ mentalhealth/developmentaldisability
800-605-6722
517-333-6655
616-732-7358
269-337-3600
517-241-3740
517-241-3740
800-75-SEALS
Michigan Rehabilitation Services (MRS)
Capital Area Down Syndrome Association www.cadsa.org
Deaf and Hard of Hearing Services (DHHS) www.deafhhs.org/
Disability Determination Bureau
Division of Aging www.michigan.gov/mdhhs/adult-child-serv/adultsand-seniors/behavioral-and-physical-health-and-agingservices/aging-services
Division of Family Resources (DFR) www.michigan.gov/mdhhs Easterseals MORC www.easterseals.com/MORC/
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Michigan Department of Education: Office of Special Education https/www.michigan.gov/mde/services/ special-educationMichigan Family Forum
Michigan Family to Family www.f2fmichigan.org/
Michigan Foundation for the Blind and Visually Impaired Michigan Department of Health and Human Services www.michigan.gov/mdhhs
Michigan Family and Social Services Administration (FSSA) www.michigan.gov/mdhhs
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Michigan Statewide Independent Living Council (MSILC) www.misilc.org/
Medicaid Disability
MI Choice Waiver Program
National Alliance on Mental Illness
Preschool & Out-of-School Time Learning www.michigan.gov/mde/about-us/mde-divisions-andoffices/preschool-and-out-of-school-time-learning
Self-Advocates of Michigan (SAM)
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Important Community Connections
Need to know who to connect with to ask a question? This is where you find out who you need to know!
BY CHRISTIA WOODFORD
Arc of Michigan
800-292-7851
www.arcmi.org
We provide for the special needs community leadership, support and enhance local Arc efforts, support governmental advocacy at the local, state and national levels, coordinate state advocacy efforts, influence governmental agencies and policymakers in Michigan and at the national level, promote autonomy and self-determination, promote the value and potential of all people, advocate for the inclusion of and participation by individuals with disabilities in their communities, promote highquality services, provide training for parents and professionals
Autism Alliance of Michigan
877- 463-2266
www.autismalliance ofmichigan.org
Every family should have access to services to assist with education goals, to create a safety plan to keep their child from wandering, to enjoy resources and entertainment venues in their community, and to access housing, transportation and employment for independent living. In short, we believe no family member should be limited because they have autism.
Autism Support of Michigan
517-882-2800
www.autism-mi.org
ASM is committed to empowering individuals with autism and their families by offering educational resources, materials, and other services. ASM advocates “Making Human Connections” in a
supportive, integrated community is a right of all persons.
Disability Network
Eastern Michigan
586-268-4160
https://www.dnemichigan.org/
A Center for Independent Living serving Huron, Lapeer, Macomb, Oakland, Sanilac, St. Clair and Tuscola counties.
Disability Rights Michigan 517- 487-1755 or 800)-288-5923
www.michiganlegalhelp. org/find-lawyer/disabilityrights-michigan-drm
Disability Rights Michigan (DRM) is the independent, private, nonprofit, nonpartisan protection and advocacy organization authorized by Federal and State law to advocate and protect the legal rights of people with disabilities in Michigan. DRM services include information and referral, short-term assistance, selected individual and legal representation, systemic advocacy, monitoring, and training
Early On Michigan
833-633-5788
www.michigan.gov/mde/services/ early-learners-and-care/specialed-05/early-on-michigan
Early On is Michigan’s early intervention system for helping infants and toddlers, birth to three years of age who have a disability, developmental delay(s) or are at risk for delay(s) due to certain health conditions, and their families. It’s designed to help families find the
Easterseals has been helping individuals with disabilities and special needs, and their families, live better lives for nearly 100 years.
social, health, and educational services that will promote the development of their infants and toddlers with special needs.
Easterseals MORC
248-475-6400
http://www.eastersealsmorc.org/ Easterseals has been helping individuals with disabilities and special needs, and their families, live better lives for nearly 100 years. From child development centers to physical rehabilitation and job training for people with disabilities, Easterseals offers a variety of services to help people with disabilities address life’s challenges and achieve personal goals.
Free Appropriate Public Education (FAPE)
888-320-8384
https://www.michigan.gov/mde/ Services/special-education/ parent-resources/family-matters
A united union of students, parents, educators, community professionals and consumers supporting and providing Free Appropriate Public Education (FAPE). The site provides training, webinars, information, resources and referrals to students, parents, educators and community agencies on educational rights and laws.
Global Down Syndrome Foundation www.globaldownsyndrome.org/ about-down-syndrome/resources/ local-organizations/michigandown-syndrome-organizations/ Gives access and contact information for all 12 Down Syndrome organizations in Michigan
Hope Network 616- 301-8000 www.hopenetwork.org
Empowers people to overcome challenges to achieve their highest level of independence. Provides advocacy and programs for the disabled community.
Learning Disabilities Association of Michigan 616-284-1650 www.ldaofmichigan.org
LDA of Michigan is an affiliate of LDA of America and provides support to people with learning disabilities, their parents, teachers and other professionals with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources.
Michigan Alliance for Families 800-552-4821
www.michiganalliance forfamilies.org
Michigan Alliance for Families provides information, support,
COMMUNITY RESOURCES
Have a suggestion for an important connection that could be added to this page? Email your suggestion to Jamie.McCabe@ n2co.com.
Every family should have access to services to assist with education goals.
and education for families who have children and young adults (birth to 26 years of age) who receive (or may be eligible to receive) special education services. This website can help you with finding information on special education issues as well as disability-specific information.
Michigan Department of Health and Human Services (MDHHS) 517)-241-3740
www.michigan.gov/mdhhs Serves families, children, senior citizens, people with disabilities and mental illness
Michigan Disability Services www.disabilityresources. org/michigan.html
Directory of services for the disability community
Michigan Family to Family www.f2fmichigan.org
Information, education, training, outreach and peer support for families
Michigan Vocational Rehabilitation (LEO) 517-241-5324 or 800-605-6722
www.michigan.gov/leo/ bureaus-agencies/mrs
Vocational counseling and training, job placement assistance, physical and mental restoration services, rehabilitation technology (e.g., adaptive devices, vehicle modifications)
National Suicide Prevention Hotline 988 or 800-273-TALK (8255) Resources and support for any kind of mental health issues
National Alliance for Mental Illness (NAMI) — Michigan 517-485-4049
www.namimi.org/ Support groups, classes, resources, conferences, information
211
Database of organizations to help with any type of needs by location in Indiana
THE GIFT OF
CJ
Cheri and Randy Riemer, who live in Haslett, MI, found their lives forever transformed by the arrival of their only son, CJ. His life began not with the simplicity of a newborn’s coos but with a diagnosis that shaped their path as parents in unexpected ways.
As CJ entered the world, Cheri felt a wave of love and joy. But shortly after his birth, a pediatrician visited their hospital room with a grave expression. “We think your son has severe neurological problems,” she stated nervously. Cheri and Randy exchanged concerned glances, wondering what this could mean.
When the doctor continued, “We think he has Down syndrome,” a mix of confusion and reassurance washed over Cheri. A sudden laugh almost escaped
her. Down syndrome, she thought, is not a severe neurological issue; it’s a genetic condition caused by an extra copy of chromosome 21.
At that moment, Cheri instinctively wanted to reassure the pediatrician. She understood the challenges that lay ahead but also knew the depth of love she and Randy felt for CJ. They had heard stories about children with Down syndrome and seen the joys and struggles of families navigating similar paths. One nurse, sensing their uncertainty, offered comfort: “You’ve received a joyous gift from God,” she said. Cheri held onto that sentiment, ready to embrace the journey ahead.
As CJ grew, the family learned more about his unique needs and capabilities. Cheri and Randy
A Journey of Love and Resilience
understood that Down syndrome is not a barrier but a different way of experiencing life. They had heard the statements from well-meaning friends and family: “He won’t be able to do this” or “You should prepare for that.” Instead of succumbing to doubts, the couple adopted a different approach: They cultivated an environment that fostered CJ’s abilities, refusing to let limitations define him.
In 2019, CJ received a weather station for Christmas, and his fascination with clouds and meteorology grew. During the COVID-19 shutdown, CJ, now a bright and energetic teenager, started to show an unexpected passion for daily weather reporting. Cheri and Randy realized they needed to keep him engaged, especially with the challenges of online learning. So, they devised a plan. Every day, CJ created a weather report, using an outline he helped create. The reports evolved beyond mere forecasts, incorporating themes, dances, and guest appearances.
As CJ shared his findings online, his passion blossomed into a social media phenomenon. The WCJR Weather platform amassed 2,500 followers, and CJ became a local celebrity, bringing joy to many during uncertain times. Since its inception on April 13, 2020, he has not missed a single day of reporting.
In May 2023, CJ graduated from high school with a certificate of completion, marking a significant milestone in his life. He enrolled in the Skills for Adult Independent Living (SAIL) program, designed to equip young adults with essential life skills. Here, he participated in morning meetings, learned to cook, and practiced budgeting and financial management. His experiences extended to job placements in the community, where he gained hands-on experience at the YMCA, a technology center, and even an animal shelter. A paid work experience at a local bowling alley
became a cherished opportunity, showcasing his ability to engage with the world around him.
Raising CJ was not without numerous challenges for Cheri and Randy, even though they took a positive approach to his diagnosis. Communication proved to be a significant hurdle for CJ. While he expressed himself with enthusiasm, the nuances of language often eluded him. They focused on teaching him the WH questions—who, what, when, where, and why—recognizing that these skills would aid in his communication development. It became a family project, one where patience and perseverance were key. Cheri and Randy reassured CJ that they wanted to understand him and encouraged him to try again when he struggled to convey his thoughts. Many people weren’t patient with him, and this was discouraging for both CJ and his parents. CJ continues to struggle with the WH questions which is not uncommon. We keep working on it.
Still, there were many moments when CJ exceeded everyone’s expectations. Cheri remembered the moments of doubt when she was told he might not walk until the age of three or four. With dedication and playful encouragement, he surprised them all by taking his first steps at just 15 months.
Cheri and Randy enrolled CJ in PEAC bike riding classes, where instructors assessed his balance and helped him find his confidence. In no time, he was riding a bike, joy radiating from his beaming face. The family learned that sometimes, a little external encouragement could work wonders.
One summer, CJ expressed a desire to surf behind the family’s boat. Cheri and Randy hesitated, worried that he lacked the strength and balance needed. But one sunny afternoon, Cheri got in the water with him, guiding him gently as he rose up on the surfboard, his laughter echoing in the air. They realized once again that assumptions
can limit possibilities. CJ’s triumph reinforced their belief that he should never be placed in a box; he is capable of so much more than others may perceive.
The Riemer’s family motto, “Don’t lower the standard for CJ; let’s find a different way to help him reach it,” echoes in their minds as they navigate the world together. They refuse to back down in the face of challenges, embodying a spirit of resilience. Repetition has become their friend, a tool to reinforce learning and communication. Each small success builds upon the last, weaving a tapestry of progress.
Cheri and Randy embrace the importance of community in their journey. They actively participate in local organizations, including the Capital Area Down Syndrome Association and the Special Olympics of Michigan. CJ joined the MSU Special Olympics teams for basketball and football, where he finds camaraderie and joy. These experiences expand his social circle, introducing him to others who understand his journey.
As the Riemers engage with their community, they notice how perspectives shift. They find themselves in conversations with other parents navigating similar challenges, exchanging insights and offering support. Cheri often tells them, “Get involved. Talk to other parents. Look for local organizations that can help.” The connections they forge become lifelines, reminding them that they are not alone.
The family’s leisure time has adapted to ensure CJ’s inclusion. They find joy in activities that can accommodate
everyone. From biking to water sports, each adventure becomes a celebration of togetherness. Cheri and Randy introduced CJ to extreme tubing, surfing, and paddleboarding—activities that ignite his adventurous spirit. Even family travel is an opportunity for growth, exploring new places while fostering connections. Cheri often reflects on the transformative power of her family’s journey. “Learn to take a break and return to the challenges,” she tells herself. “Never give up.” It’s a philosophy that permeates their lives, reminding them that the hard work they invest yields incredible rewards. The moments of laughter and connection overshadow the struggles, creating a rich tapestry of memories.
As the years pass, CJ continues to evolve. His involvement in community initiatives has expanded, and he has become a valued participant in local events. The family remains active in their New Hope church community, where they find support and friendship. Cheri and Randy recognize that their focus has shifted since CJ’s arrival. They seek ways to give back and support causes that resonate with them, creating a ripple effect of positivity.
One day, while attending a community event, Cheri met a mother whose child had just received a diagnosis similar to CJ’s. The mother’s eyes were filled with uncertainty and fear, and Cheri felt a rush of empathy. She shared her journey, explaining the beauty that lies within the challenges. “Your child is a unique individual,” she assured the mother. “Embrace their gifts and don’t let
others define their potential. You’ll find a community of support, and you’ll learn so much about resilience and love.”
At that moment, Cheri realized the importance of sharing her family story. By opening up, she could inspire others to embrace their journeys with hope and determination. The lessons her family learned over the years are universal, and they resonate with anyone facing adversity.
As CJ prepares for the next chapter of his life, he remains hopeful and excited. The SAIL program has equipped him with invaluable skills, and his dedication to daily weather reporting continues to inspire others. Cheri and Randy stand by his side, ready to support him as he ventures into adulthood.
The family understands that life will always present challenges, but they face them together. They cherish every milestone, every laugh, and every tear shed along the way. CJ is not defined by his diagnosis; he is defined by his spirit, his laughter, and his unwavering determination.
they face.
ROUTINE APPOINTMENTS AND AUTISM
Routine Appointments and Autism: A Unique Challenge
Routine appointments like visiting the dentist or doctor are typically straightforward, but for individuals with autism spectrum disorder (ASD), they can be overwhelming. ASD, a spectrum disorder with diverse presentations, often involves sensory sensitivities and communication challenges that make everyday experiences like medical visits difficult.
Why Routine Visits Are Difficult
Many with ASD have heightened or reduced sensory sensitivities. The bright lights, loud noises, unfamiliar smells, and textures of medical and dental offices can trigger sensory overload, leading to anxiety and distress. Additionally, unfamiliar settings and unpredictable routines can heighten anxiety. Social communication challenges also play a role, as understanding social cues, expressing preferences, or engaging with professionals can be difficult. These difficulties, coupled with heightened anxiety about new experiences, often make appointments a struggle.
Strategies for Overcoming Challenges
Parents and caregivers can help individuals with ASD manage these experiences through preparation and practice. Strategies include:
• Visual Schedules: Use visuals or social stories to outline the steps of an appointment, reducing anxiety by offering predictability.
• Gradual Exposure: Decrease sensory sensitivities by slowly introducing elements of the experience, such as sitting in a dental chair or hearing medical tools, in a non-threatening way.
• Role-Playing: Practice scenarios at home by simulating appointments, helping individuals rehearse behaviors like sitting still or opening their mouths for a dentist.
• Short Appointments: Start with brief, simple visits, gradually increasing their length and complexity as confidence builds.
• Accommodations: Communicate sensory needs to professionals. Noise-canceling headphones, weighted blankets, or sensory tools can make the experience more manageable.
• Positive Reinforcement: or rewards to create positive associations with appointments and motivate cooperation.
Judson
Center’s Autism
Connections: Building Life Skills
Every individual with ASD is unique, and strategies that work for one may not suit another. Judson Center’s Autism Connections Life Skills Lab tailors support to each client, helping them prepare for routine appointments. The lab features:
Empowering And Enriching The Lives Of People With Disabilities.
Springhill Pooled Accounts Trust is a trusted advocate in the special needs community. As professional trust administrators, we manage your assets, distribute funds for discretionary expenses, and help maintain your public benefits eligibility.
We take the time to understand beneficiaries' specific needs to determine if our trust is the best option for their long-term goals.
• Unparalleled Client Advocacy
• Assistance Maintaining Public Benefits
• Professional Asset Management
• A dental room with realistic equipment
• A medical exam room with tools like scales and eye charts
• A barbershop setup with a chair and grooming tools
• A waiting room to practice the full experience
These experiential spaces allow clients to build confidence and skills in a supportive environment. Judson Center’s trained staff adapt to each individual’s sensory needs, and families frequently share success stories of children overcoming their anxieties and participating in real-world appointments.
Supporting Families Beyond Appointments
Judson Center’s Autism Connections also offers transportation to and from school, collaborates with educators to develop Individualized Education Plans (IEPs), and provides diagnostics and early intervention services. Immediate daytime openings are available at multiple locations.
Contact Us
To learn more about Autism Connections or discuss your child’s unique needs, visit www.judsoncenter.org or call 248-549-4339.
Schedule your free consultation to get started! 248-269-1319
springhillpooledtrust.org
• Is your child struggling at school?
• Feeling overwhelmed navigating the special education system?
• Unsure of your child’s rights and how to advocate for them?
STUDENT ADVOCACY MICHIGAN
Empowering parents in special education advocacy
Navigating the world of special education can feel overwhelming for parents, who often struggle to understand their rights and how to access the support their children need. This is where Student Advocacy Michigan makes a transformative difference, providing expert advocacy and education to empower families across the state.
Founded in 2020 by Maria Giancotti, M.Ed., Student Advocacy Michigan was born from her journey as a parent facing the complexities of the special education system. After experiencing firsthand the challenges of her son’s Individualized Education Program (IEP), she became deeply committed to helping others navigate the system.
What truly sets Student Advocacy Michigan apart is its commitment to empowering parents. The organization goes beyond providing non-attorney advocacy services by offering training and resources that allow families to confidently navigate the special education process on their own.
“The earlier you engage an advocate, the better equipped you’ll be to understand your rights and ensure your child receives the support they deserve,” Giancotti said.
With a focus on both advocacy and education, Student Advocacy Michigan helps parents develop the tools to collaborate effectively with schools, ensuring that students with special needs receive the accommodations and services required
What truly sets Student Advocacy Michigan apart is its commitment to empowering parents.
by law. This approach enables parents to advocate for their children independently, fostering long-term success in the education system.
Giancotti, whose son is now in college, understands the importance of community, resilience, and ongoing support. She continues to advocate for his needs while balancing her passion for fitness and travel. Her journey as both a parent and advocate inspires other families to find strength, confidence, and hope in their own advocacy efforts.
In addition to providing exceptional advocacy services, Student Advocacy Michigan actively supports various community initiatives and organizations, funding efforts that align with their mission to improve the lives of children with special needs and their families.
If you are a Michigan parent seeking guidance on navigating the special education process, Student Advocacy Michigan is here to help. Reach out at www. studentadvocacymi.com, or call 248372-9770. Take the first step toward becoming your child’s best advocate and ensuring their success in the classroom and beyond.
EMPOWERING THE WORKFORCE OF TOMORROW STEP’s Summer Earn & Learn Program
During the summer, Services To Enhance Potential (STEP) hosts the Summer Earn & Learn Program, in partnership with Michigan Rehabilitation Services and the Bureau of Services for Blind Persons. The six-week internship program provides an exciting and impactful opportunity for students to gain valuable work experience, earn a paycheck, and develop essential job skills. On-the-job training at local businesses is supplemented with virtual classroom sessions focusing on workplace soft skills, industry-specific knowledge, and career readiness.
Each intern was matched with a local employer for handson experience, giving them an inside look at various industries,
all while earning at least minimum wage. Throughout the program, interns work alongside a dedicated skills trainer to build both hard and soft skills, preparing them for success in today’s competitive job market. In the summer of 2024, STEP hosted a total of 17 interns, offering a diverse range of roles with employers like LaFontaine Automotive Group, UPS, Jet’s Pizza, Mexican Gardens, and Sizzle Salon in Wayne County. These businesses provided invaluable learning opportunities, where interns honed their skills in everything from customer service and meal prep to automotive work and more.
Interns at Karma Coffee in Wayne assisted with coffee service, while those at Zaman International in Inkster learned to prepare meals for those in need. Some worked at Menchie’s Frozen Yogurt in Taylor, managing toppings and customer interactions. In other locations, like Secret Recipes and the Westland Public Library, interns took on a variety of tasks—from rolling silverware to helping with the summer reading programs for children.
In Macomb County, 8 interns were placed at two different American House Senior Living locations, gaining skills while working around 20 hours per week.
The summer concluded with great success: six interns were offered employment by their host organizations, a testament to the skills and work ethic they demonstrated during the program.
We are incredibly proud of all our Earn & Learn participants, and thankful for the partnership with local employers who made this opportunity possible. These internships are more than just a job—they are a stepping stone to building a successful career and empowering young people to achieve their professional goals. We look forward to continuing these partnerships and expanding the program in the future!
If you are interested in learning more about being a participant in STEP’s Summer Earn & Learn program or becoming a business partner, please contact STEP at 734-718-0483 for more information.
A Picture is Worth a Thousand Words and Milestones
Celebrating life’s milestones and memories in Uniquely You! Magazine is a beautiful opportunity to preserve the essence of special moments through photos. Whether it’s a first step, graduation, vacation, or any cherished occasion. Each photo tells a unique story of joy and achievement. It’s a chance to share these meaningful experiences with others who can appreciate and celebrate each journey.
We are also celebrating March, April and May Awareness Months, inviting you to share a photo that captures a special moment related to an Awareness Month. Customize your caption to highlight the moment’s meaning to your family.
Happy Recreational Therapy Month!
We at Advanced Therapeutic Solutions want to thank all of our Recreational Therapists and those not within our company, for all that they do.
Recreational therapy is an underrated yet immensely powerful therapy, where therapists take a client's interest and use the things they enjoy to promote progress.
You could say Recreational therapy puts the FUN in FUNctional treatment sessions.
If you are interested in learning more about this wonderful program contact us!
September 23, 1936 - October 25, 2024
BY RON SANDISON
“ My purpose in life is to share the stories and art of people with autism and bring hope to parents who often feel devastated by the diagnosis of autism.” —DR. LAURENCE A. BECKER, FILM PRODUCER OF FIERCE LOVE AND ART, AND WITH EYES WIDE OPEN
DR. LAURENCE A. BECKER
was the founder of Creative Learning Environments, a documentary film producer, an educator, an advocate for those with autism and special needs, and most importantly, a father figure and friend of every person with autism and their families.
I had the privilege of being featured in his documentary film Fierce Love and Art along with eight other artists on the autism spectrum. I stayed twice with Laurence and his wife Rosanne at their home in Austin, Texas, and traveled with him to speak on autism. Our friendship began on March 22, 2017, when Laurence discovered my book, A Parent’s Guide to Autism: Practical Advice. Biblical Wisdom., and decided to contact me.
The next day, Laurence and I talked for over an hour. I loved hearing about his documentary Fierce Love and Art, and as he spoke I knew I wanted to be one of his featured artists. The documentary shares stories of autistic savants and prodigies whose parents used art, music, or poetry to help their child’s creativity to blossom. Renowned animal behaviorist, autism advocate, and prolific author, Dr. Temple Grandin, is the narrator of the film.
In May of 2017 I learned that my family and I were chosen to be part of Fierce Love and Art. After Laurence interviewed and filmed Dr. Darold Treffert, a world-renowned expert on savants and prodigies in Wisconsin, I was the final stop on his 2,500 mile trip. He and cinematographer Ron Zimmerman filmed me at my parents’ house in Rochester Hills, MI, in June. Earlier in the day they had interviewed my parents. My mom proudly displayed all my artwork for the film. I shared in the documentary how my mom quit her job as an art teacher and became a full-time “Ron Teacher.”
Laurence saw the potential of people with autism and other disabilities and by promoting their gifts, he enabled them to gain connections. Many of the young adults he worked with had profound challenges, but he wrote articles about them, presented at conferences, and held art shows, making sure their stories and voices were heard and their artwork was seen. He shared with me, “God has a way of connecting me with young adults with autism and their families and I watch for synchronicity and see my work as a mission from God.”
After spending 5,000 hours writing three books and two hundred articles on autism, I’ve noticed that young adults with autism who thrive have two main attributes: First, they had a family member, friend, mentor, or teacher who believed in them, and invested time refining their strengths and talents to
compensate for their limitations. Second, they had someone who marketed and promoted their gifts and this helped them build connections and develop social skills. Laurence believed in people with autism and empowered them by marketing and promoting their gifts in films and art shows.
My friendship with Laurence and Rosanne taught me four life lessons. First, the importance of a kind and gentle spirit that displays the love of Christ. These qualities attracted young adults with autism and their families to Laurence and his wife. Ephesians 4:2 says, “With all humility and gentleness, with patience, bearing with one another in love.” He demonstrated his love and gentleness by mentoring people with autism and listening to their stories. He often sent gifts and encouraging letters.
Second, never stop learning and let your life be a fountain of knowledge and love. Autism causes me to love facts. One of the first things Laurence said to me when he picked me up at the airport was “Texas is so large that if you drove straight across the state, it would take the same amount of time as driving from Texas to Michigan.” We spent hours talking and sharing about our favorite books and quotes. Laurence’s guestroom was filled with books and his living room was an art studio of savants’ and prodigies’ original artwork including Richard Wawro, Ping Lian Yeak. Christophe Pillault, Kimberly Dixon, Seth Chwast, and Grant Manier.
Third, stories provide power to change people’s perspective of disabilities and to impact the world for good. Laurence had a gift for sharing his stories about life and the prodigies and savants he mentored and loved. Laurence’s two documentary films are filled with the stories and voices of people with autism and their families. These stories are inspiring and teach that with love and acceptance anything is possible.
Finally, finish your race strong. At 88, Laurence was still speaking at autism conferences and doing Zoom presentations. In his eighties, he drove 2,500 miles across the country to film Fierce Love and Art and he presented the film in Texas, Florida, and California. He stayed healthy by playing tennis and bicycling. As artist Grant Manier states in his YouTube video, Cherished Memories with Dr. Laurence Becker, “Goodbye for now until we say hello again.” Laurence’s advocacy and love for the autism community carries on with the people he impacted by his gentle and kind spirit and passion for life.
Cherished Memories with Dr. Laurence Becker https://www.youtube.com/ watch?v=M2C5LRFqVn0 Movie Trailers for Fierce Love and Art https://www.youtube.com/ watch?v=5a9dexAK4Bw
Expressing Love to Your Child with Autism
BY EMILY CRANE, HEALING HAVEN
Our culture has preconceived ideas of what love looks like. Since autism can cause differences in communication, understanding of context, and atypical sensory perceptions, some may believe a person with autism won’t understand love. However, developing relationships and learning to express and receive love when you have autism is not only possible but important.
With February being the month of “love”, this is a great time to share ideas to help build these relationship skills. We can model acts of love for individuals with autism by understanding what makes them feel loved.
Using Love Languages to Express Love
Our founder and president, Jamie McGillivary, MS, LLP, BCBA, LBA, uses Dr. Gary Chapman’s book The 5 Love Languages as her resource on this subject We all have a “love language”, so it’s important to identify which “language” your child or loved one with autism uses to love. Here we include examples for each love language:
Receiving Gifts
Gifting a child with autism an item they are interested in, such as a sensory toy,
We can model acts of love for individuals with autism by understanding what makes them feel loved.
Legos, new fidgets or a book with their favorite character may be what fills their cup. But you can also think outside the box and consider experiences. Look for sensory-friendly events and activities in your area that might appeal to your child.
Quality Time
If your child’s love language is quality time, it may be challenging to identify it. So, use their behavior to guide you. Are they constantly in your space, repeating your name, or otherwise doing something to get your attention? If this sounds like your child, set aside dedicated time to honor their requests and engage with an activity they want to do. Remember to not place demands on them during quality time.
Physical Touch
Children with autism seek sensory input in a multitude of ways. Some may like hugs and cuddles, while others may only accept a hug from the side or back. Some children only seek sensory input in broader ways through their environment. If this is your child, consider taking them outside for the sensation of the cold and snow. Or create a sensory bin with tactile objects and play next to them.
Words of Affirmation
Many children with autism are visual learners. As a result, they may respond better to pictures, videos, and written words over spoken words of affirmation. To connect with your child in this way, consider making a photo book of experiences from a trip or outing, or pictures of friends and family that they will enjoy looking at.
Acts of Service
Caring for a child with autism requires additional “acts of service” to meet their unique needs every day. So, another way to recognize this love language is to schedule your own self-care time - like a massage or dedicated time to do what you love. Doing so will help your stress levels, so you can continue to serve your child with love.
We hope you’ve learned some new ways to express love and connect to your child with autism. For more indepth information, get a copy of The 5 Love Languages – there is also a children’s version!
To learn more about the comprehensive autism services at Healing Haven, visit thehealinghaven.net.
Understanding the IEP Process ELIGIBILITY, SERVICES, AND HOW TO ADVOCATE FOR YOUR CHILD
BY MARIA GIANCOTTI, M.ED. - STUDENT ADVOCACY MICHIGAN
Navigating the Individualized Education Plan (IEP) process can be overwhelming. One common misconception is that the eligibility category under which a child qualifies for an IEP determines how many services they will receive. In reality, once your child qualifies for an IEP, the support services they receive are based on their individual needs, not the eligibility category.
What is an IEP?
An IEP is a legally binding document developed by a team of professionals, including teachers, specialists, and you, the parent. It outlines the specific educational services your child will receive to meet their unique needs and ensure they have access to a free and appropriate public education (FAPE), as guaranteed under the Individuals with Disabilities Education Act (IDEA). The IEP includes academic goals, related services (like speech or occupational therapy), accommodations, and specialized instruction. It’s designed to help children with disabilities succeed in the general education curriculum to the fullest extent possible.
Eligibility Categories
To qualify for an IEP, a child must meet one of the eligibility categories outlined by IDEA. These categories include:
• Autism
• Specific learning disability (e.g., dyslexia)
• Speech or language impairment
• Emotional disturbance
• Intellectual disability
• Other health impairment (e.g., ADHD)
• Hearing impairment
• Orthopedic impairment
• Visual impairment
• Traumatic brain injury
• Multiple disabilities
Eligibility is determined through comprehensive evaluations by a team of professionals who assess your child’s academic and developmental needs. The evaluation process is essential to identifying the services that will best meet your child’s needs, as required under IDEA.
Does Eligibility Impact Services?
A common question is, “Will my child get more or fewer services based on the eligibility category?” The answer is no. Once your child qualifies for an IEP, the focus shifts to meeting their individual needs, not their eligibility category. Whether your child qualifies under “specific learning disability” or “speech impairment,” the services provided will be based on what the IEP team determines is necessary to address your child’s unique needs. The amount or quality of services does not depend on the eligibility category; it’s determined by the child’s individual requirements.
Getting the Support Your Child Needs
The IEP is designed to ensure your child receives the support they need to succeed. Key components of the IEP include:
1. Related Services: Your child may receive services like speech therapy, occupational therapy, physical therapy, counseling, or social skills training. The IEP will specify the frequency, duration, and setting for each service. These services are designed to help your child progress academically and socially.
2. Accommodations and Modifications: The IEP may include accommodations such as extended time on tests or changes to seating arrangements. Modifications might include simplified assignments or alternative methods of assessment to ensure that your child can fully participate in the educational experience.
3. Measurable Goals: The IEP will set clear, measurable academic and behavioral goals that are tailored to your child’s needs. Progress toward these goals will be reviewed regularly, and the IEP can be updated as needed to reflect changes in your child’s development.
4. Specialized Instruction: Specialized instruction is a key element of the IEP. It refers to teaching strategies, methods, or materials adapted to your child’s unique learning needs. This could include one-on-one teaching, small group instruction, or modifications to the curriculum to help your child succeed.
Advocating for Your Child
As a parent, you are your child’s best advocate. If you feel that the services outlined in the IEP do not fully address your child’s needs, it’s crucial to speak up. Under IDEA, you have the right to request additional evaluations, services, or revisions to the IEP if necessary. IDEA also guarantees your right to participate in all IEP meetings and to be fully informed about your child’s progress. If you are unsure of how to advocate for your child, Student Advocacy Michigan is here to help. Visit our website at www.studentadvocacymi. com or call 248-372-9770 today to speak with an advocate.
https://form.jotform.com/243185805423153
Local Events
BY CHRISTIA WOODFORD
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Due to COVID-19, many museums participating in Museums for All have adjusted their hours and ticket purchasing policies. Before visiting a museum, please call or check their website to see if they are open or require advance registrations. Many museums are offering virtual resources—check your local museum’s website for more information. Through Museums for All, those receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,000 museums throughout the United States simply by presenting their EBT card and a photo ID. Check here for participating museums. https://museums4all.org/
MUSEUMS
Impression 5
Check website for February dates and hours https://impression5. org/sensoryfriendly Impression 5 Science Center, 200 Museum Dr., Lansing, MI 48933
Explore your Science Center with select exhibits altered to reduce sounds, scents, and lighting stimuli. Guests can expect a limited building capacity, pop-up activity, and map designating the sensory experiences in each exhibit.
Thank you to MiABLE for supporting Sensory Friendly. Admission: Regular admission prices apply. Free for members.
Abrams Planetarium Sensory Friendly Shows
755 Science Road, East Lansing, MI
Skywalkers of Africa
Feb. 16, 11:30 am
For thousands of years, Africans have used their knowledge of the sky to build their societies, shape their spiritual lives, and meet their physical needs for survival. Skywatchers of Africa highlights the diversity of African astronomy, examines cultural uses of the sky that developed throughout history, and celebrates our shared human experience.
In My Backyard Feb. 16, 1:00 pm
Join children’s entertainer Fred Penner as he explores things large and small, from the colors of the rainbow, to the reasons for the seasons. Through the use of entertaining songs and immersive environments, children are encouraged to participate while learning about the planets, constellations, meteors, the moon and more. These shows will run with the lights up, the sound down, and the theater doors open so people can move about as needed. We also provide
a place to “chill out” in our lobby. All shows include a live star talk about what is up in the sky that night. We will include a short break between the main show and the star talk. Information about what to expect during the show will be provided when you purchase tickets.
Cost: Adults, $5.50, Students and senior citizens, $5.00, Children (age 12 and under), $4.50 Friends of Abrams Planetarium Members, Free Free with Museums For All (with valid EBT, Medicaid, or WIC card and photo ID) https://www. abramsplanetarium.org/ Programs/Sensory.html
Ella Sharp Museum
Sensory Time
Every Saturday at 9:00 am 3225 4th Street, Jackson, Michigan 49203
During Sensory Friendly Hours, the Ella Sharp Museum will open its galleries at 9 a.m., an hour before the museum opens to the public. Families with members who are neurodiverse, autistic, or have other sensory processing disorders or cognitive disabilities are welcome to visit the museum for a quieter experience in a more controlled environment. Designated quiet zones will allow visitors to decompress and experience the museum at their own pace.
Before each program, families are invited to browse our “pre-visit” materials to help them prepare for their visit including social narratives and maps of our facility. These pre-visit materials are also available to help families plan for visits that take place outside of program hours and a sensory backpack is available at the front desk for use.
To provide the most sensory-friendly environment possible, we will limit the capacity for these special times to 50 people. https:// ellasharpmuseum.org/ classes-and-events/ sensory-time/
Grand Rapids Children’s Museum
Sensory Friendly Play
Feb. 3, May 5, Aug. 4, Nov. 3, 4:00 pm- 7:00 pm
Together with Autism
Support of Kent County, GRCM welcomes families to play in a calmer, quieter environment outside of regular Museum hours. Registration required. Various Events Scheduled Jan.1 - Jan. 31 various events scheduled Grand Rapids Children’s Museum, 11 Sheldon Ave NE, Grand Rapids, MI 49503
Check calendar for Sensory Friendly evenings https:// www.grpm.org/visit/
https://www. autismsupportofkentcounty. org/new-products/ p/2024-night-at-thegr-childrens-museum
SPORTS
TheraplayYoga: Therapeutic Playful Yoga for Diverse Abilities
Adaptive Yoga Studio, 2015 E. Michigan Ave. Lansing, MI 48912 Inclusive & Accessible Yoga for Diverse Bodies, Brains, and Abilities. Check website for schedule. Gloria@ TheraPLAYoga.com https:// theraplayoga.com/
FAMILY FUN
Detroit Zoo
Sensory Friendly Evenings Check website for date and times
As part of our work to create accessible and welcoming spaces for all, the Detroit Zoo will turn down the music and adjust the lights during special evenings this summer.
Starting in June, the Detroit Zoo is hosting three Sensory Friendly Evenings for guests with different sensory needs. During these times, the Zoo and its attractions will be open to all visitors, but special accommodations will be in place to ensure the Zoo can be enjoyed by families and individuals of all abilities. Sensory bags and a dedicated sensory room is available for those who may need a quieter and more secure space.
Included with Zoo admission | Free for members | No event registration required https://detroitzoo.org/ events/zoo-events/sensoryfriendly-evenings/ Various fun events through the month.
DNR Outdoor Adventure Center Sensory Friendly Play
Feb. 2, Mar. 2, Apr. 6, May 4, June 8, July 13, Aug. 10, Oct. 5 10:00 am- 12:00 pm
Outdoor Adventure Center, Globe Trading Company Building, 1801 Atwater St, Detroit, MI
The DNR Outdoor Adventure Center welcomes friends and families with sensory processing differences to our sensory-friendly building hours! Enjoy the opportunity to explore and experience the OAC with building sounds and ambient noises at a lower volume. During your visit, there will be a quiet room with sensory materials available to use, and a limited building capacity. At noon, the building will open to the public, with volumes returning to standard operating levels. All staff are KultureCity-certified to ensure the best possible experience. Various Activities scheduled Dec.1 - Dec. 31 Check website https://www.michigan.gov/oac
Fascination Factory
Sensory Friendly Play
Feb. 4, 2:30 pm- 5:30 pm 2295 E Lincoln St; Suite 150, Birmingham, MI
What to expect in our new sensory sensitive hours: Back door locked for safety No music Noise Cancelling Headphones Oral chews offered at check-in Calming corner tent Minimized Capacity Families $30.00 https:// autismallianceofmichigan. org/events/list/?tribebar-date=2024-10-01
Together Let’s Sing, Dance and Jam!!
Feb. 5, 6:30 pm7:30 pm Virtual
Please join us for our monthly “virtual” music therapy event!! Please RSVP by February 25 to Cathy Blatnik at blatsie63@ yahoo.com with your name, age, contact phone number and e-mail address
Inclusive Game Night
Feb. 28, 6:00 pm- 7:30 pm
Therapeutic Concepts, LLC 38257 Mound Road, Building D, Sterling Heights, MI For the whole family focusing on inclusion, safety, and enjoyment! $10 per family, register online https:// therapeuticconceptsllc.com
Adult Adaptive Social Engagement: Diner’s Club First Monday of the month January 6,-April 2025. Ages 14+ check,website for times and to register enjoy a meal with friends at various local restaurants. This opportunity is designed to support persons with special needs. Participants pay for their own meal, beverage, and tip. Spots are EXTREMELY limited, so you must pre-register so that we have enough assistance and space reserved. Selected restaurant will be emailed the week before the program. https://rararecreation. org/programs/social_ engagement.php
MJR Digital Cinema Sensory-Friendly Film Check the website for movie times 100 East Maple Road, Troy, MI, 48083, United States https://www.mjrtheatres. com/sensory-friendlyfilms?fbclid=IwAR1JnETT4LqVME0tv0TkWPiYH5lc kEcSi4ou3EcdA4eyfbqJYLgmReJ00
Legoland Discovery Center Michigan Sensory Friendly Morning Check website for upcoming dates 4240 Baldwin Rd, Auburn Hills, MI 48326
During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli
for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum.
Sensory-sensitive adults are welcome to visit during Sensory Friendly Mornings without a child (age 16 or under) in the party until the attraction opens to the general public at 10 am. Adults who are not accompanied by a child must exit the attraction upon opening. Groups that are accompanied by a child are welcome to stay past 10 am. Tickets are limited and must be purchased online in advance for this special event. https://www. legolanddiscoverycenter.com/ michigan/tickets-passes/
Sealife Michigan Sensory Friendly Morning Check website for upcoming dates 4316 Baldwin Road, Auburn Hills, MI 48326 During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum. The aquarium will open to the general public with normal lighting, sound, etc. at 10 am, but you’re welcome to stay as long as you like and do not have to leave when the event ends at 10 am. Tickets are limited and must be purchased online in advance for this special event. Please check https://www. visitsealife.com/michigan/ what-s-inside/events/ sensory-friendly-mornings/
EVENTS
Come Join Scout Troop 1197! First All Inclusive Troop! 4920 Groveland Rd, Ortonville, MI 48462
The ONLY troop of its kind in MI, troop 1197 is being held right now at O.A.T.S. (Offering Alternative Therapy with Smiles) in Ortonville for those with special needs ages 11 and up. The troop, designed with experienced scout leaders, will include typical scouting activities including camping and outdoor skills. For more information, email walkonoats@gmail.com
Unlock Your Child’s Full Potential: Free 4-Part Workshop Webinar Series on IEPs & 504 Plans. Sponsored Student AdvocacyMI and Uniquely You! Online Workshop Series. Workshop times are 7:00 pm- 8:00 pm
1. Jan. 13, 2025 - 505 Plans and IEPs: What
Are They and How Do I Get One for My Child?
2. Jan. 22, 2025Preparing for 504 or IEP Meeting: A Parent’s Guide
3. Jan. 28, 2025Behavior Challenges: What Should You Do?
4.Feb. 6, 2025 - 504/ IEP Problems: Actions You Can Take
Imagine this: You’re a parent at a school meeting, sitting across from a table of education professionals. They start throwing around terms like “accommodations,” “evaluations,” and “LRE.” You nod politely, hoping they don’t realize you have no clue what “LRE” even means. You just
want your child to get the support they need without navigating what feels like an alphabet soup. Sound familiar? You’re not alone! Join our free 4-part workshop series to finally demystify the world of special education plans and learn exactly how to get the right help for your child. Each workshop covers key strategies to make sure you’re prepared and confident every step of the way. To register: https://form.jotform. com/243185805423153
Mobility and Accessibility Clinic
Feb. 26 and Apr. 29, 11:00 am- 2:00 pm Oceana County Council on Aging 4250 W. Tyler Rd., Hart, MI
Bring your assistive living devices to our Mobility & Accessibility Clinic. Meet with Carelinc to have basic repairs made to equipment, meet with an advocate from Disability Network and check in with our nurse to have blood pressure checks and ask questions. Registration is not required, but encouraged. To register or for questions, call us at 231-873-4461 https:// disabilitynetworkwm. org/event/mobility-andaccessibility-clinic/
Uniquely You Detroit/Metro is a free monthly magazine for and about our local special needs and disability communities. Each issue shares inspiring stories, critical resources, and recommended businesses that make Uniquely You the ultimate go-to guide for special needs families in Michigan.
C ONNEC T WITH U S
“Stories of families that connect us. The sharing of our vulnerabilities as parents, families. THAT’S what makes your magazine special.”
- Kate Miller, Reader
“When you sponsor Uniquely You magazine, you’re not just promoting your business; you’re providing a vital resource for families of children and adults with special needs. This magazine serves as a roadmap, guiding these families through the complexities of their daily lives.”
Karah Powell, Advertiser
Celebrating the Special Needs Community in Detroit Metro counties
