Special Needs Living May 2023

MEET THE DUFF FAMILY: KEVIN, TENDRA, KEARSLEY, TRENIN AND KAIDEN

PHOTOS BY 21 VINES PHOTOGRAPHY

ISSUE PREVIEW

50-53 Featured Family: Meet The Duff Family

42-43 Pioneer Parent: Meet Jennifer Parker

47 Shout Out! Meet Kiersten and Andrew

34-35 Smart Steps: A New Phone App Helps Young Adults with Special Needs Navigate the World

18-19 Sponsor Spotlight: Specialized Home Care Services

26-27 Single Isolation

20-21 Nonprofit Spotlight: The Alex and Ali Foundation

38-39 Special Needs Living Family Fun Day at Press Play Gaming Lounge

16-17 Community Resources

30-32 Local Events

OWNER/ADVERTISING INQUIRIES

Jamie McCabe 248-882-8448

Jamie.McCabe@n2co.com

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Pioneer Parent-Jennifer Parker

Single Isolation

Family Fun Day! Press Play Gaming Lounge

Sponsor Spotlight

Nonprofit Spotlight

Meet Kiersten and Andrew

317-977-2375

317-676-4222

800-609-8448

877-241-8144

800-545-7763

800-545-7763

800-622-4968

888-673-0002

800-403-0864

317-232-7800

317-925-7617

877-511-1144

317-466-1000

Arc of Indiana

www.arcind.org

Autism Community Connection www.autismcc-in.org

Autism Society of Indiana

Blind and Visually Impaired Services (BVIS)

Bureau of Developmental Disabilities Services (BDDS)

Bureau of Rehabilitation Services (BRS)

Deaf and Hard of Hearing Services (DHHS)

DHHSHelp@fssa/in.gov

Disability Determination Bureau

Division of Aging (IDA)

Division of Family Resources (DFR)

Division of Mental Health and Addiction

Down Syndrome Indiana

Early Childhood and Out of School Learning (OECOSL)

Easterseals Crossroads

https://eastersealscrossroads.org

911

800-545-7763

574-234-7101 317-232-0570

844-323-4636 317-233-4454

317-232-7770

812-855-6508

317-233-1325

844-446-7452

855-641-8382

800-332-4433

800-457-4584

317-232-7770

800-772-1213

800-772-1213

877-851-4106

317-871-4032

800-545-7763

Emergency First Steps

INSOURCE – www.insource.org

Indiana Department of Education: Office of Special Education – www.doe.in.gov/specialed

Indiana Family to Family - www.inf2f.org

Indiana Family and Social Services Administration (FSSA) – www.in.gov/fssa/index.htm

Indiana Governor’s Council for People with Disabilities (GPCPD)

Indiana Resource Center for Autism

Indiana State Department of Health

Indiana Statewide Independent Living Council (INSILC)

Indiana Works

INSOURCE – http://insource.org/

Medicaid Disability

Medicaid Waivers

Social Security Administration (SSA)

Social Security Disability Insurance (SSDI)

Special Education Questions

United Cerebral Palsy Association of Greater Indiana Vocational Rehabilitation Services (VR)

DISCLAIMER: Any articles included in this publication and/or opinions expressed therein do not necessarily reflect the views of The N2 Company d/b/a N2 Publishing but remain solely those of the author(s). The paid advertisements contained within the Special Needs Living magazine are not endorsed or recommended by The N2 Company or the publisher. Therefore, neither The N2 Company nor the publisher may be held liable or responsible for business practices of these companies. NOTE: When community events take place, photographers may be present to take photos

Looking

Be

Delivering Neighborhood Connections © 2023 The N2 Company, Inc.

Music Therapy can help individuals of all ages and abilities, including those with:

Alzheimer’s Disease and Dementia ° Autism ° Cerebral palsy Developmental Disabilities ° Down Syndrome

End-of-life care (Hospice) ° Intellectual Disabilities

Mental health ° Neurological disorders Psychiatric disorders ° Rehabilitation

This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance!

ABA & COMPREHENSIVE SERVICES

K1ds Count Therapy (317) 520-4748

ABA SERVICES

Autism Center for Enrichment (317) 436-7080

Grateful Care ABA (317) 572-5315 gratefulcareaba.com/

Link to Learn (317) 863-8388

Mindful and Modern ABA Therapies (317) 827-7777

Piece by Piece Autism Center (765) 481-2261

Step Ahead ABA (317) 732-8380

The Umbrella Center (463) 701-0909

ABA/COMPREHENSIVE SERVICES

The Hope Source (317) 578-0410

ADVOCACY/EVALUATIONS

PEAS for Kids (920) 980-1172

ATTORNEY

Hostetter & Associates (317) 852-2422

ATTORNEY-WILLS/TRUSTS/ESTATE PLANNING

Law Office of Elizabeth A. Homes LLC (317) 660-5004

BEHAVIOR MANAGEMENT

Supportive Behavior Services (765) 337-1895

www.supportivebehaviorservices.com

CASE MANAGEMENT

Connections Case Management (317) 440-0637

IPMG - Indiana Professional Management Group (866) 672-4764

CBD SUPPLIER

Indy CBD Plus (317) 961-0191

COMMUNITY SUPPORT

Achieve Community Services (317) 918-0337 acssupports.com/

Ausome Indy (317) 331-2434 ausomeindy.org/

Indiana ACT for Families (317) 536-6900

COUNSELING SERVICE

Mark 2 Ministries (317) 777-8070

DAY / BEHAVIORAL SERVICES

Developmental Disabilities Systems INC. - DDSI (317) 477-8240

DENTAL

Children’s Dental Center (317) 842-8453

FINANCIAL Munder Financial

James Munder (317) 238-6621

WestPoint Financial Group

Gordon Homes (317) 567-2005

GYMNASTICS

Body by GymRoots Studio (317) 579-9300

HEALTH & WELLNESS

LifeVantage - Team Richards

Kristin Richards (317) 698-5264

HOME CARE

Amiable Home Care Inc. (317) 802-1746

HOME CARE SERVICES

SafeInHome (855) 476-6665

HOME HEALTH SERVICES

Tendercare Home Health Services (317) 251-0700

www.tchhs.net/

HOME MODIFICATIONS / SPECIALTY EQUIPMENT

Specialized Home Care Services (888) 506-4182

www.specialized4u.com/

INDOOR TRAMPOLINE PARK

Adrenaline Family Adventure Park (317) 572-2999

www.adrenalinefishers1.com

INSURANCE State Farm

John Cole (317) 430-1958

INVESTMENT MANAGEMENT

Dan Claxton Investment Advisory & Broker

Dan Claxton (317) 250-8080

MORTGAGE

CrossCountry Mortgage (317) 666-4679

MUSIC THERAPY

Dynamic Music Therapy (317) 829-6654

Resounding Joy (858) 888-0899

NEUROFEEDBACK THERAPY Indy Neurofeedback (317) 888-8500

PARKS & RECREATION

Johnson County Parks & Recreation (812) 526-6809

PEDIATRIC THERAPY

Wee Speak (765) 446-8300

REALTOR

F.C. Tucker Nicole Lyon (317) 501-0639

REGENERATIVE MEDICINE/STEM CELL THERAPY

Destination ReGen (317) 522-1980

SCHOOL

Dynamic Minds Academy (317) 578-0410

Midwest Academy (317) 843-9500

SCHOOL - SPECIAL NEEDS

The Fortune Academy (317) 377-0544

SENSORY SPACES

Corporate Interior Solutions (317) 691-4156

SPEECH THERAPY

Positive Interactions Therapy (317) 518-0627 positiveinteractionstherapy.com

SUPPORT SERVICES

Abundance Living Ministries - PMA (765) 534-3564 abundancelivingnd.com

Easterseals Crossroads (317) 466-1000

Embracing Abilities (317) 825-8326

Joseph Maley Foundation (317) 432-6657 www.josephmaley.org

The ALTRUIST Group, LLC (317) 547-3041 x1005

Wabash Center (765) 423-5531

THERAPEUTIC RIDING CENTER

Morning Dove Therapeutic Riding Center (317) 733-9393

THERAPY & TESTING SERVICES

The Brain Center (317) 748-0034

MEET THE SPECIAL NEEDS LIVING INDY TEAM

Angelica N. Gray, MA, BCBA, LBA – Writer

Jamie McCabe – Publisher and Area Director

Tasha Cleaver – SNL Account Executive

Christia Woodford –Publishing Assistant and Local Events

Brooke Russell –Operations and Events Manager

Lisa DeFilippo – Writer and Contributor

Maria Smietana – Editorin-Chief

Dr. Darolyn “Lyn” Jones –Content Coordinator and Writer

Heather Gregg –Photographer, 21 Vines Photography

Christie and Nathan Buonanno –Buonanno Photography

Paul Hathcoat – Writer and Contributor

Kendal Ford – Kendal Nicole Photography

Christina McGairk – Editor and Writer

Tanya Sood – Writer and Contributor

DeAndra Yates – Writer

Sheila Wolfe – Writer and Contributor

Jane Gailey – Contributor

Dorie Zipperle – Writer and Contributor

Aaron Olson – Writer

Isaac Roman – Writer and Photographer Matt Knight – Writer

Angela Arlington –Community Engagement Coordinator, Writer and Contributor

HeartSOS

Children, A dolescents, Young A dults with A SD & R elated Needs

Mental Health Counseling

A nxiety, Depression, A ttachment, PTSD & R elationships

Speech Therapy

Self- A dvocacy, A rticulation, Feeding, A praxia & R elationships

Family Guidance

Social Communication, Emotional R egulation, Flexible Thinking & R elationships

Occupational Therapy

Executive Functioning, A DLs, Sensory Processing & R elationships

Indy & Terre Haute Clinics

Outpatient Services for Individuals & Families

W e H e a r Y o u r S O S !

R each out at asdheartsos. com

This Magazine is – For You –By You – To Support and Connect You –

Here is how you can be involved

HAVE

A STORY TO SHARE

Would you like to share a story in an upcoming issue of Special Needs Living Indy? We want to hear from you. To share a story or to nominate someone else to be in an upcoming issue of Special Needs Living Indy, email your story ideas or nominations to SpecialNeedsLivingIndy@n2pub.com.

To view several story options with quick links to answer questions and upload photos go to Linktr.ee/Community.Stories

Accomplishments/ Achievements/Milestones

Would you like to share a story? Scan here to submit a story to be in a future issue of Special Needs Living Indy!

LOOKING

TO CELEBRATE ALL SPECIAL NEEDS INDIVIDUALS

Some accomplishments and milestones take years We want to recognize you/them! Are you or your child celebrating a birthday, milestone, achievement, or accomplishment? We want to recognize you email us at

CALLING ALL 501C3 ORGANIZATIONS THAT SUPPORT THE SPECIAL

NEEDS COMMUNITY

Each month we will highlight a nonprofit for free to let the community know more about how they support and impact families and individuals with special needs. Do you run a nonprofit or know of one that supports the special needs community? Email us at SpecialNeedsLivingIndy @n2pub.com

Do you supports the special needs community and is looking to advertise in Special Needs Living Indy magazine? Email Jamie. McCabe@n2pub.com

HIGHLIGHTING

ALL SPECIAL NEEDS BUSINESSES

Do you have special needs and run a business? We will highlight all those with special needs who run a business for free email us or go to Linktr. ee/Community.Stories and click on (Special Needs Living Indy –Business Profile Q&A).

Scan here to view the past issues of Special Needs Living Indy!

Specialized Home Care Services

BY MARIA SMIETANA

Parents of children with physical and medical challenges are all too familiar with how difficult and expensive it can be to create a home environment that is safe and accessible. That was the case for Jackie and CJ Bodwell, whose second child, Amelia, was born with a rare chromosome deletion that causes global developmental delay, visual impairment, low tone, ataxia, and apraxia, among other medical problems.

Childhood sweethearts Jackie and CJ grew up in Connersville, IN, and went to IU together, where he earned a business degree from the Kelley School of Business and she completed her BS in respiratory therapy. They married after graduation and moved to

Maria Smietana — Editor-in-Chief

Indianapolis, where Carter (19), Amelia (17), and Ainsley (14), were born.

“When the children were young, we made the decision to move back to Connersville to be closer to our families and raise the children in a small town,” Jackie said. “Though we miss some of the amenities of a larger city, the support that a small town gives us is amazing.”

When Amelia began growing out of the specialized baby and toddler equipment that facilitated everything from eating to mobility, the family started to struggle with her daily routines. “It was hard to find something that fit her,” Jackie recalled, “and oftentimes, when we did find something, it was quite expensive. That is when we began brainstorming.” CJ was a business owner and Jackie worked at Peyton Manning Children’s Hospital, so with his business background and her medical experience, they came up with a business platform and then decided to launch Specialized Home Care Services.

“We are a provider under Medicaid and the Indiana Medicaid waiver,” CJ said. “We make homes accessible and safe for individuals with physical limitations. Some examples of home safety installations are ramps, walk-in soaker tubs, roll-in showers, grab bars and ADA toilets. We also provide equipment and tools for individuals with developmental delays, sensory disorders, gross motor, fine motor, and visual impairments so they are able to overcome their obstacles and live their best life.”

“We wanted to help families out there that have the same struggles we have,” Jackie added. “Individuals with special needs are meant to be celebrated and supported. We are

humbled every day to be able to share our knowledge and services with families like ours.”

The Bodwells agree that the biggest thing that sets Specialized Home Care Services apart from other companies is AMELIA. “If you know her, you understand,” Jackie said. “We don’t just clock in and out of work. When we are working, we are reminded of Amelia every time we talk to the individuals or families we are providing a service for. Because of this, we are able to bring personal insight to the challenges of our clients.”

CJ and Jackie encourage others in the special needs community to find people who will love and support them. “Whether you have a child that was born with an issue, are the child of a parent with physical limitations, or have a loved one in your life with special challenges, you are never alone. It is the differences that make us stronger.”

Since Amelia has a service dog through ICAN DOG, the Bodwells give back to the community by attending most of the organization’s fundraising events. Other than that, they are fine with being home bodies when they aren’t working. “We built a home that is accessible for Amelia, and also our aging parents, should they ever need to [move in with us],” Jackie said. “We often host family and friends here.”

Business Contact Information

Specialized Home Care Services

(317) 538-3737

www.specialized4u.com

Specializedhomecareservices @gmail.com

The Alex and Ali Foundation

BY ANGIE ARLINGTON

The Alex and Ali Foundation was formed in 2014 by Jennifer and Andrew Parker, named for their son Alex and his best friend, Ali Callahan. Jennifer and Andy realized that after Alex completed high school, there were very few job opportunities and little availability for community

engagement. They also realized that most of the parents of young adults with developmental disabilities had the same concerns. Happy Hounds, a doggy daycare, and The Hope Gallery art boutique were developed as the brick-and-mortar venues where the foundation carries out its mission.

“Our focus remains on providing safe venues for these [special needs] individuals to learn, work and interact with the community,” Jennifer said. “As a result, our young adults [known as team members] have a purpose in their days and develop confidence in themselves. We believe that given the right structure with the correct training, these individuals can be very successful and are able to give back to our society. We are in the business of empowering and enhancing lives.”

THE HOPE GALLERY:

The Hope Gallery, located in downtown Bargersville, IN is an ice cream shop within a boutique that sells art and unique gift items. It opened June of 2018. The gallery was named after Hope, the Parker’s other special needs child. Hope tragically passed away at age 13 after bravely battling a severe congenital heart defect for the entirety of her young life. “Hope taught us to make the most of every day that we have here on earth by loving others,” Jennifer said.

Many items sold at the gallery are made by the team members themselves with the help of volunteer artists. “We also sell handmade products from individuals with disabilities across the US and Canada,” Jennifer said. “These products range from candles, to popcorn, to home décor. To shift with the changing Bargersville business culture, we have added a large variety of ice cream and sweet treats so the whole family can enjoy a treat with a purpose. Our team members run the store by greeting customers, filling orders, and running the cash

Angela Arlington — Community Engagement Coordinator, Writer and Contributor

register.” The gallery is also home to Hope’s prayer box, where people can drop in prayer requests for team members, and hosts fundraising events throughout the year.

The Parkers opened a second location of the Hope Gallery in 2020. This one is in Newburgh, a town near Evansville, where Jennifer says employment opportunities for disabled young adults are as scarce as everywhere else.

HAPPY HOUNDS:

A common theme among the team members of The Alex and Ali Foundation is an enormous love for animals. “Many have grown up caring for animals and treating pets like family,” Jennifer said. “That is why we opened Happy Hounds in 2019, the first doggy daycare in Indiana run by individuals with developmental disabilities. All dogs are welcome. Our mission is to make your furry

friends feel at home during their stay. You can leave your pet with us worry-free, knowing that

TESTIMONIALS:

“When I got out of high school, I wanted to work at a retail store, and it didn’t work out. My father looked for other opportunities, but unfortunately, I [still] could not find work. I never had a job until I was given the opportunity with The Alex and Ali Foundation in 2019. That’s when I started working at the Hope Gallery in Bargersville. This was my first job ever. I am very happy even though I’m going into my retirement years. I love having a job and enjoy working with the team members and volunteers. It’s the best thing I’ve ever done and look forward to it every day.”

– Sally

“I have worked at The Hope Gallery for four years now. The Hope Gallery has changed my life so much. It has given me a chance to work in a wonderful environment where I can learn new job skills. It changes my life because I learn how to count money and run the register to check out customers when they shop. It is an amazing place to work and have fun at the same time. It has made a huge difference in my life and has given me the courage to go out and work in the community knowing that I can work even though I have a disability. I know that I can work while making a difference. The Hope Gallery changes lives showing that adults with autism and disabilities can work and change the world one person at a time.”

– Chelsea Davis

Meet Jennifer Parker

BY ANGIE ARLINGTON--COMMUNITY ENGAGEMENT COORDINATOR, WRITER AND CONTRIBUTOR

Jennifer Parker’s son Alex was diagnosed with autism when he was 18 months old. “I knew that he wasn’t hitting his milestones, but I didn’t want to be the firsttime mom who compared my kid to everyone else,” Jennifer recalled. “The diagnosis felt like a death sentence. That was 25 years ago and there was very limited information about autism. The only reference to autism that I knew was from the movie Rainman. I didn’t know a single soul that was autistic. I spent day and night researching how to “cure” him. I tried every therapy, medication, supplement, diet, training method. I left no stone unturned and yet he remained autistic.”

Alex is an adult now, and he is loving, kind, smart in his own way, and compassionate. He has value, worth and purpose. And yes, he is still autistic.

“Now we talk about how he should embrace his diagnosis - it is like having brown hair or blue eyes,” Jennifer said. “It is a part of who he is and how God made him. And as it turns out, Alex will have been our easiest child among our five.”

When the Parkers were pregnant with their fifth child, Hope, they were confident that God would not allow them to have another child with a significant disability. “We felt like we had filled our quota with challenges and special needs kids in our blended family,” Jennifer said. “As we discussed our pregnancy, I asked my husband, Andy, what was the one thing he couldn’t handle with regard to this child - even though at this point we thought all was well. His immediate answer was ‘hypoplastic left ventricle’.”

Andy had taken care of these children as an anesthesiologist at Riley Hospital for Children, and he saw the trauma that they went through and the devastation for the parents, along with the poor outcomes. Fast forward three months to Jennifer’s next pre-natal appointment, where the Parkers found out they were having a girl. Unbelievably, the Parkers also learned that their baby had hypoplastic left ventricle. Stunned, devastated, horrified, and confused were some of their initial feelings. “I had no inkling of just how difficult this journey would be for Hope, Andy

and me, and our other kids,” Jennifer said.

Hope required so much hospitalization that the Parkers became a well-known family at Riley Hospital. “We had to rely on others for help,” Jennifer said. “I felt guilty when I was away from our kids at home and guilty when I wasn’t at the hospital with Hope. It was a lose/lose situation.”

The Parkers were fortunate to have many dear friends and family who provided food, childcare, house cleaning, errand running, laundry, and prayers. The kids also had to become more independent. At an early age, they all learned to do their laundry, with the youngest learning at age 8. The family also had to bring nurses into the home.

Hope came home after 3 months in the hospital and major open heart surgery. “I didn’t have nursing help that first week,” Jennifer recalled. “I was doing the night shift so Andy could focus at work. I had to use a stethoscope to make sure her NG tube was appropriately placed, and then give her meds through the tube throughout the night. I had to set four different alarms. I quickly came to a point of desperation when I was so tired that I squirted the meds on the floor and couldn’t remember what I had given her. I thought that she was going to die from that mistake. We would wind up with 24-hour nursing coverage for several years.”

In 2014, the Parkers founded the Alex and Ali Foundation, named for Alex and his best friend, Ali Callahan. “I had a wonderful mentor, Susan Kriese Vest, who walked me through the formation of the foundation,” Jennifer said. “Yes, it took hours and hours of planning and implementation, but I knew I needed to create this organization to help my children and other families.” Nearly a decade later, this successful not-for-profit is still providing employment opportunities and vocational training to young adults with autism and other disabilities--now at three Indiana locations.

The first location is the Hope Gallery, which opened in downtown Bargersville in 2018. Named for Hope, who was valiantly living her best life despite her profound cardiac anomaly, the gallery sells art, unique items, and sweet treats. Working with volunteer trainers, the disabled

employees learn all aspects of running a unique retail business. Happy Hounds, a doggy daycare in Greenwood, opened shortly thereafter and teaches employees to provide exceptional, loving animal care, obedience training, and facility maintenance.

Jennifer says she had no intention of opening a third location. The family is still grieving the tragic loss of Hope, who passed away unexpectedly in February of 2020 at the age of 13.

“My intent was to just get Alex situated with purposeful work in [the Evansville] area,” Jennifer said. “However, the issues are the same here as they are in the Indianapolis area. Alex and I began working in our dining room and asking other adults with developmental disabilities to join us. Very quickly, we had 10 adults at a table that only seats six. We were [busy making art] hammering, gluing, and grouting while sitting on my velvet dining room chairs - something had to give.”

Not long after, a storefront became available only two blocks from the Parker’s Newburgh, Indiana home. That was the sign Jennifer needed, and Hope Gallery Newburgh opened in 2022.

“It was evident that God was calling us to begin again,” Jennifer said. “In the six months that we have been open, we have served 50 team members.” Her life now is a juggle between the day-to-day running of this new location while continuing to run the rest of the foundation. “My success is

Jennifer said. “In

because I surround myself with incredibly talented and mission-minded volunteers. And my husband is incredibly understanding and patient as I “work” full time without getting paid and rarely have dinner on the table. He does have clean clothes to wear - most of the time!”

Jennifer laughs that Alex is in charge of much of the housework and his definition of clean is a little different than hers, but she’s okay with that. “I learned a long time ago that there is no such thing as a superwoman. I am intentional about what things that I focus on and what I let go of.”

For Jennifer, the best part of running the foundation is working directly with the team members. “Their souls are beautiful. They have so much to offer us, so much to teach us. They truly make our world a better place in

which to live. We just need to have eyes to see.”

Jennifer encourages other parents to enjoy their kids for who they are deep down inside. “Don’t try to fix them. Enjoy the journey with them, laugh with them, dance with them. Don’t worry about how clean your house is or isn’t. We all want the best for our kids, but sometimes we have stop trying to make them into who we think they should be. My son still enjoys watching kid’s tv shows and pulling his wagon around the community. So be it. It is okay, he is happy.”

“It was evident that God was calling us to begin again,”

the six months that we have been open, we have served 50 team members.

SPECIAL NEEDS LIVING INDY — SHARING HELPFUL RESOURCES!

One of the goals at Special Needs Living Indy is to provide as much value as possible to support the Special Needs community!

Here’s a link to view all the past issues of Special Needs Living Indy — https://issuu.com/specialneedslivingindy.

If you would like to learn more about Special Needs Living Indy, we can find ways we can partner together to better impact the community. I’d love to set up a call to chat more. Here is a link to my calendar: https://calendly.com/jamiemccabe/special-needs-living-magazine.

Here is a great past article we did about local support groups in Indiana: https://issuu.com/ specialneedslivingindy/docs/ december_2021-special_ needs_living/s/14014143.

Here is one we did about outdoor sensory parks, places and spaces in Indiana: https://issuu.com/ specialneedslivingindy/ docs/sep_2021_special_ needs_living_indianapolis_ surro/s/13231556.

Here is one we did about indoor sensory parks, places and spaces in Indiana: https://issuu.com/ specialneedslivingindy/ docs/aug_2022_special_ needs_living_indianapolis_ surroun/s/16460960.

If an individual or family would like to share their story, click this link: https://form.jotform. com/202464921200140.

Here is a link to see all the ways to share a story in SNL: https://linktr.ee/ community.stories.

Link to sign up to get Special Needs Living Indy: https:// form.jotform.com/ 223146774923158.

I hope you find these resources helpful.

SINGLE ISOLATION

BY ANGIE ARLINGTON- COMMUNITY ENGAGEMENT COORDINATOR, WRITER AND CONTRIBUTOR

Ten years ago, I wrote this on my Facebook page: “I have realized that not only is my son isolated in many ways, but so am I. We don’t get invited to parties and spend most of our time at home. We both only have a few close friends. It’s starting to affect him now that he’s a teenager and everyone goes to Halloween parties and stuff and no one invites him. I realize that for being such a people person who used to be so ‘out and about’, I’m not anymore and it’s depressing. Hard to navigate dating if I never go anywhere, but having nowhere to go, what am I to do? No weddings, no baby showers, no birthday parties, no holiday parties, nothing. We’re in a major rut right now and I’m not sure what to do about it. It’s making us both feel lonelier than usual.”

Other parents expressed that they felt isolated at times, too. But most couldn’t imagine their child never having a friend to play with or having no one show up for his birthday party. They didn’t know how it feels to have a child never speak the words “mommy” or “I love you” out loud. They had never had to deal with churches asking them to leave in the middle of a sermon. They couldn’t imagine how it feels when a child cannot go somewhere because a place is not wheelchair accessible. Being alone and feeling lonely is not the same thing.

THEN:

The first few years after my son was born were hard. Between hospital stays and seeing specialists, I spent hours and hours alone with my thoughts. It was a blur of ‘hurry up and wait’ at appointments for both of us. Filling in pages and pages of paperwork, only to be asked those questions again by the nurse. Some doctors would have us sitting for almost 2 hours past our appointment time and never even apologized. Driving for an hour, waiting for 2 hours, seeing the doctor for 15 minutes and then driving home in rush hour for over another hour is how we spent many days. It was exhausting for both of us. It was hard to deal with doctors who dismissed me and those who did not look at the big picture. As an over-thinker, I researched everything by reading books from the library and spending hours online. In the early 2000s, there were no online support groups, no Facebook groups to join and ask questions, and resources were hard to find by Googling.

When my son was in school, it was difficult for me to work full time. I did not want to make my parents take him to appointments or pick him up when he was sick. I worked as a First Steps’ Developmental Therapist for many years. When my cell phone would ring and I recognized the school nurse’s number, I wished that I did not have to answer. I could be an hour away and I felt so guilty that I could not pick him up right away. I wished someone could pick up the slack, as I couldn’t be in two places at once.

SPECIFIC MEMORIES:

• Taking notes and being present during outpatient PT and OT sessions to understand more as opposed to sitting in the waiting room to have an hour for myself

• Not letting anyone watch him until he was older; I only trusted him with my parents

• Having to deal with my son’s father telling me that I “wanted” something to be wrong with my son

• Teachers assuming they knew my son better than me

• Listening to people without children telling me how “fix” my son

• Taking care of my son when I had migraines or when we both were sick

• Dragging my son with me to my own appointments

• Dealing with doctors who needed me to tell them what other specialists were doing

• Making phone calls and waiting for return calls

• Emailing school staff and not getting responses

• Trying to attend parent-only events at school, with my son left sitting in the hallway playing alone

• Attempting to do everything on my own and always feeling behind

NOW:

I am thankful for people who have stood by me. I have a great tribe- friends I have met along the way from support groups and my various jobs over the years. I understand when friends are running late or have to reschedule plans. There are days when I feel great and socialize with everyone I meet. It’s when I come home to an empty and silent house that I feel lonely. It is when holidays come up and everyone is busy and I’m not. Loneliness sneaks in when people tell me to bring a plus one to events and I end up sitting at a table with other couples.

When you are a single parent- it feels as if there is no “off” button. I still look up medical articles and try to find different things for my son to try to help with his pain. I am the one he shares everything with and I help him advocate for himself. I am still super focused on him, even though he lives on his own right now.

I feel blessed that as younger parents reach out to me, I can help them navigate issues regarding school, therapies, puberty, dating, applying for help from Medicaid and social security, and just being there for them when they feel lonely. Everyone has felt lonely surrounded by people at some point in their life. There are increasingly more single parents raising children with special needs. I think the biggest way to help a single parent is to listen and allow their voice to be heard.

What is Scripting?

Both terms refer to utterances (also known as gestalts) that are repeated after a significant delay. It could be hours, days weeks or months later.

(Rizant & Rydell, 1984)

These gestalts may come from videos, books, movies, TV shows, communicative partners, songs, etc.

Children who use delayed echolalia/scripting to communicate are gestalt language processors

Julia Walker, M.A., CCC-SLP is certified to use the gestalt language processor framework within play-based, child-led speech therapy sessions.

Contact Positive Interactions Therapy for more information or to schedule a free consultation.

Because no two people are alike, and neither are their needs. Not everyone processes their surroundings the same way. This can cause overwhelming situations for some individuals. Our team at Specialized Home Care Services is here to help you find the right solutions.

We provide sensory items that help with Focus for individuals that have trouble with fidgeting. Examples of products are wiggle seats, wobble stools, fidget items, sensory boxes, weighted vests, weighted stuffed animals, pencil top chews. Contact

LOCAL EVENTS

BY CHRISTIA WOODFORD

NOTE: Don’t forget to apply for the Access Pass! The Access Pass Program allows families that meet the specific requirements listed below to visit The Children’s Museum of Indianapolis and all participating locations for $2 per family member per visit for up to two adults and all dependent youths living in the household. You qualify if you receive:

• Hoosier Healthwise Insurance (Indiana’s health care program for low-income families, pregnant women and children)

• SNAP (Supplemental Nutrition Assistance Program)

• TANF (Temporary Assistance for Needy Families)

Apply here: https://www. childrensmuseum.org/visit/hours/ access-pass.

MUSEUMS

THE CHILDREN’S MUSEUM OF INDIANAPOLIS

FIRST THURSDAY NIGHTS

The first Thursday of every month, 4:00 PM-8:00 PM.

Go back in time to the Age of the Dinosaurs and explore the basics of science through fun, hands-on activities in Dinosaur Train: The Traveling Exhibition

Travel to Greece without leaving Indiana in Take Me There®: Greece

Uncover ancient artifacts in National Geographic Treasures of the Earth

https://www.childrensmuseum.org/ visit/calendar/event/273/2023-04-06

VARIOUS EVENTS

May1-May 31

Opens at 10 AM 3000 N. Meridian St. Indianapolis, IN 46208 317-334-4000

https://www.childrensmuseum.org

CONNER PRAIRIE — INDIANA’S LIVING HISTORY MUSEUM

WE CAN CAMP!

May 6 - May 7, 2023 - Overnight, Saturday 1 PM - Sunday 10 AM

Join us as you learn basic camping skills, enjoy fun outdoor experiences, and spend the night on our grounds in a tent! This program is perfect for first-time campers or anyone looking for a refresher. We provide all the camping gear you’ll need, along with modern restrooms and overnight security. Learn more at https://www. connerprairie.org/we-can-camp/

MOTHER’S DAY BRUNCH

May 14, 2023

Celebrate the mother in your life by joining us for our Mother’s Day brunch. Relax, let us do the cooking, and make the day special with a delicious variety of items to choose from. Reserve your tickets today and celebrate that special person in your life. Our first seating is at 10 a.m. and the second seating is at 12:30 p.m. Choose from a wide variety of menu items where there is something for everyone.

After brunch enjoy a springtime stroll on the Prairie. Mother’s Day Brunch registrants will receive $3 off same-day general admission tickets. https://www.connerprairie.org/ explore/things-to-do/ mothers-day-brunch/

MOTHER’S DAY TEA PARTY

May 14, 2023

Join Mrs. Campbell and her daughter Lillian, as well as other Prairietown Folks for a Mother’s Day Tea Party! Event will be in the afternoon but all day the Campbells and other folks will be getting ready for the Tea Party. With a Taste of the Past included.

SENSORY-FRIENDLY HOURS

The second Sunday of every month, from 10 AM to noon, are sensoryfriendly hours at Conner Prairie! Enjoy a calm environment.

Check-in with Guest Relations, stating that you are here for sensoryfriendly hours. You will get free admission and may stay as long as you wish.

VARIOUS EVENTS

May 1- May 31

13400 Allisonville Road, Fishers, IN 46038

Phone: 317-776-6000 or 800-966-1836

https://www.connerprairie.org/ events/list

SPORTS

INDIANAPOLIS INDIANS

May 16, 17, 18, 19, 20, 21, 29, 30

Victory Field, 501 W. Maryland St., Indianapolis, IN 46225

https://www.milb.com/indianapolis

INDY ELEVEN

May 20, 27

IU Michael A. Carroll Track and Soccer Stadium

1001 W New York St Indianapolis IN 46202. 317-274-9749

http://www.indyeleven.com

Christia Woodford — Publishing Assistant and Local Events

FAMILY FUN INDIANAPOLIS ZOO ZOOPOLIS 500

May 24 10:00am-12:30pm

TORTOISES, START YOUR ENGINES!

This unique annual event and race-fan favorite includes a morning of familyfriendly festivities leading up to the “Greatest Spectacle in Tortoise Racing.”

As you come in, meet 500 Festival Princesses and snap photos with a 500 Festival pace car and the giant milk jug, then head to the Bicentennial Pavilion for the prerace festivities. Plus, the American Dairy Association Indiana will be handing out free TruMoo chocolate milk (while supplies last). Make sure to arrive early to meet a snake at the Snake Pit.

Race fans can enjoy Zoopolis 500 analysis starting at 11:15am with our race emcee alongside the Zoo’s tortoise experts. At 11:30am, the “racing” radiated tortoises and their animal care team will take center stage for a parade lap, joined by the 500 Festival Princesses and American Dairy Association mascot, Buttercup. When the green flag drops at 11:30am, cheer on the tortoises as they race up, down and around the straight track! But these natives of Madagascar don’t race for a trophy. Instead, they’re after the delicious fruits waiting at the finish line.

After the race, a “pit crew” member will join American Dairy Association Indiana in the Winner’s Circle to drink a glass of milk on behalf of the winning tortoise. After the race, come up for a closer look at our tortoises and their beautifully marked shells, which have starpatterned stripes radiating from the center (hence their name). Our Deserts team will also be there to answer any tortoise-related questions and tell you all about the Zoo’s efforts to help these endangered animals. Zoopolis 500 is one of the Zoo’s oldest and most popular events! Come out and see what makes the Greatest Spectacle in Tortoise Racing such a beloved Zoo event.

https://www.indianapoliszoo.com/ events/zoopolis-500/

VARIOUS EVENTS ARE SCHEDULED DAILY

Check the calendar for events. https://www.indianapoliszoo.com/ visit/daily-schedule/

1200 W. Washington St., Indianapolis, IN 46222

317-630-2001

9 AM - 5 PM, Mon. - Thur., and 9 AM7 PM, Fri.-Sun. and holidays

DON’T LET THE PIGEON DRIVE THE BUS! THE MUSICAL!

May 14, 2023, 4:00pm -5:00pm Waldron Arts Center

122 S Walnut St, Bloomington, IN 47404

Constellation for Kids presents Don’t Let the Pigeon Drive the Bus! The Musical!, based on the book by Mo Willems, on stage April 28 - May 14 at the newly renovated Waldron Arts Center! Join us on Sunday, May 14 at 4:00pm for a special sensory friendly performance.

About the show: Whatever you do, don’t let the Pigeon star in his own musical production! It’s not easy being the Pigeon – you never get to do ANYTHING! But when the Bus Driver has a crisis that threatens to make her passengers (gasp!) late, maybe that wily bird CAN do something. Featuring an innovative mix of songs, and feathers, Don’t Let the Pigeon Drive the Bus! The Musical! is sure to get everyone’s wings flapping.

About the sensory-friendly performance: This special performance is designed to create a theater experience that is welcoming to all families with children with autism or other sensory sensitivities. (Sponsored by Unlocking the Spectrum.) Accommodations for these performances include:

• Lower sound level, especially for startling or loud sounds

• Lights remain on at a low level in the theater during the performance

• Elimination of any strobe or flashing light sequences

• Patrons are free to talk and leave their seats during the performance

• More space in theater seating area for standing and movement

• Fidgets and noise canceling headphones welcome

• Resource materials available online and at performances, so families know what to expect at the theater and during the show

• To learn more about the show, and sensory-friendly accommodations, and to find tickets, visit our website https:// seeconstellation.org/

KIDS/PIGEON/

MADAGASCAR THE MUSICAL

May 14, 2023 6:00pm

Clowes Memorial Hall of Butler University

4602 Sunset Ave.Indianapolis, IN 46208

Join Alex ,Marty, Melman and Gloria as they bound out of the zoo and onto the stage in this live musical spectacular. This smash hit musical features all of your favorite crack-a-lackin’ friends as they escape from their home in New York’s Central Park Zoo and find themselves on an unexpected journey to the madcap world of King Julien’s Madagascar. This brand new musical from Dreamworks (Shrek The Musical) will leave audiences with no choice but to “Move It, Move It!”! https://www. visitindy.com/event/madagascar-themusical/122851/

THE STUDIO MOVIE GRILL

3535 W. 86th St., Indianapolis, IN 46268

317-315-8113

Sensory-friendly screenings of movies! Check the website for movies and times. https://www.studiomoviegrill.com/ movie/special-needs-screenings

THE ARTS

BEEF AND BOARDS

AN AMERICAN IN PARIS

March 30 - May 14, 2023

BEAUTY AND THE BEAST

May 18 - July 9, 2023

9301 Michigan Road, Indianapolis, IN 46268

317-872-9664

https://www.beefandboards.com/ Online/default.asp

JUBILATE CHOIR

Butler University, Lilly Hall, Room 133

Wednesdays, 6:45-7:30 PM

The Jubilate Choir is for singers with special needs in grades 3-9. Singers with varying abilities meet each week to grow musically. This tuition-free choir focuses on proper singing techniques, music theory and sight-reading, partsinging, and social skills involved in being a member of a musical ensemble.

Though Jubilate has, at its core, the same goals as other choirs in the Indianapolis Children’s Choir (ICC), singers in Jubilate engage in additional activities like visual and tactile experiences that are catered specifically to the current members of the choir.

Director: Lauren Southard

For more information, contact Lauren Southard at 317-940-8065 or lsouthar@icchoir.org. https://icchoir.org/special-needs/

IN HARMONY: UNITY CONCERT

May 6, 2023 - 3:00pm

St. Luke’s United Methodist Church

100 West 86th Street

Indianapolis, IN 46260

Music teaches, heals, and unifies us as a community. Join the ICC for a special performance of Unity as singers showcase how music connects us all. We are excited to welcome the Director’s Jazz Orchestra and the full ICC family of choirs, as our singers share their message of hope and joy. Neighborhood Choir Academy, Foundations Choir, AACC Preparatory Choir, ICC Preparatory Choirs, CICC Preparatory Choir, Jubilate Choir, Beginning Level Choirs, CICC Descant, AACC Concert Choir, CICC Concert Choir, Chamber, Lyric, Kantorei, Indy Voice 1, and Indy Voice 2 https:// icchoir.org/tickets/

CELEBRATIONS CONCERT

May 21, 2023 - 4:00pm

Indianapolis Hebrew Congregation

6501 North Meridian Street

Indianapolis, IN 46260

The ICC’s Master Chorale joins the Anderson Area Youth Chorale to present two uplifting major choral works accompanied by an orchestra. Vincent Persichetti’s Celebrations sets Walt Whitman’s poetry to music as it explores the resilience and optimism of the human spirit. Leonard Bernstein’s Chichester Psalms is an exciting composition based on text from the Hebrew Psalms. This concert also honors our graduating seniors as the choir dedicates and performs some of their favorite choral pieces to celebrate the fun, friendships, and experiences that the ICC offers its singers over the years. ICC’s Master Chorale and Anderson Area Youth Chorale https:// icchoir.org/tickets/

GIGI’S PLAYHOUSE

Various classes during the week. 5909 E. 86th St. Indianapolis, IN 46250 317-288-8235

indy@gigisplayhouse.org

EVENTS

BEST BUDDIES FRIENDSHIP WALK: LAKE COUNTY

May 13, 2023 - 9:00 AM - 1:00 PM

Lake County Fairgrounds

889 S Court St

Crown Point, IN 46307

Event Contact: NatalieSeibert@bestbuddies.org

The Best Buddies Friendship Walk is the leading walk in the country supporting inclusion for people with intellectual and developmental disabilities (also known as IDD). Join 40,000 walkers across the country to support the Best Buddies programs in your schools, workplaces

and communities. You’ll be making the world more welcoming to people with intellectual and developmental disabilities – one friendship, one job, and one life-changing connection at a time. https://www. bestbuddiesfriendshipwalk.org/ lakecounty/

CARMEL PARKS AND RECREATION ADAPTIVE 5K RACE

Saturday, May 13, 2023, at 10:00 a.m. We will be using our beautiful and accessible Central Park Trails! 1235 Central Park Drive East Carmel, IN 317.848.7275

Pre-registration is required

Enrollment opens Apr 1, 2023, 12:00 AM

$25.00

40 openings remaining

We will provide each participant with support throughout the race if needed. Any profits from the race will go towards our continued effort to keep adaptive programs at a low cost for participants. *Program designed for individuals with disabilities. https:// anc.apm.activecommunities.com/ carmelclayparks/activity/search/ detail/23858?onlineSiteId=0&from_ original_cui=true

IRCA FAMILY AUTISM SUPPORT WEBINAR (ONLINE)

May 15 6:30pm-7:30pm

Parenting and Partnerships: How to Navigate Your Autistic Child’s School Needs

Presented from a parent’s perspective, this session will focus on the challenges and successes while navigating the changing needs of your school aged autistic child.

Presented by: Kathryn Orvis

Follow this link to register. https:// iu.zoom.us/webinar/register/ WN_1mjA3ZliQimD1NP6E2dQOQ

Is there a local event for the special needs community you would like us to promote in an upcoming issue? Email us at SpecialNeedsIndy@n2pub.com.

Improving the lives of children and adults with disabilities in central Indiana through equine-assisted therapies and activities.

Therapeutic riding programs are offered Monday – Friday. We also offer a broad array of equine facilitated learning programs, including workshops, field trips, camps and semester long programs.

(317) 733-9393

morningdovetrc.org

7444 w 96th Street, Zionsville, IN 46077

Cindy Fisher never set out to be a technology innovator. A special education teacher with both master’s and doctoral degrees, she retired after 40 years with the Shawnee Mission School District in Overland Park, Kansas. As she worked with older teens with autism, she saw how stressful it was for them to make the transition to life beyond high school. Many, she figured, could benefit from a simple tool to help them navigate the adult world, whether on a college campus, at a job or job training, or simply while out with friends.

“In school, somebody is always nearby,” Fisher said. “[But] when kids with autism go to college, they may or may not qualify for support — they may be on their own. I noticed the amount of stress that came along with unexpected challenges. Some needed a minimum level of support, but when they did need it, it was urgent.”

Those observations motivated Fisher to start working on a user-friendly, tech-based solution. With funding from the Rehabilitation Engineering Research Center Wireless Technologies (Wireless RERC) and the National Institute on Community, Independent Living and Rehabilitation Research (NIDILRR), she developed Smart Steps, a mobile phone app that walks users through commonlyencountered situations in a step-by-step process.

Though Smart Steps functions like a flow chart, each step is presented one layer at a time, Fisher noted. That’s to keep the user, who may already be anxious, from becoming further overwhelmed.

Say, for example, that “Ethan”, a college freshman, is waiting for a bus to take him across campus for his next class. When he checks the time, he realizes that the bus is already gone. He starts to get a little anxious, because he has a test in his next class. It’s Friday afternoon, so there aren’t many people around who might be able to help. Ethan remembers his Smart Steps app, and selects the “I missed my ride” option. Several solutions pop up, and he chooses “call Uber,” because waiting for the next bus will take too long. The Uber driver arrives, and on the trip across campus, a Smart Steps prompting feature reminds Ethan to let his professor, “Dr. Shaw,” know he will be late. Ethan let all of his professors know at the beginning of the semester that he is on the autism spectrum, and

exchanged contact information with them for situations just like today. Dr. Shaw even downloaded Smart Steps onto his own phone, so that Ethan can reach him directly through the app. Ethan is only 10 minutes late to class. He feels good because he has solved a problem on his own. He hits the “Success!” option on the screen.

Smart Steps continues to walk users through options until a solution is reached, or until all feasible solutions are exhausted. At that point, the user is prompted to call their emergency contacts, or in dangerous situations, to dial 911 or simply hit the panic button. Each user’s profile screen also has important information that can be shown to an emergency responder, which is critical for users with speech impairments, or who are unable to vocalize in highly stressful situations.

Now President and CEO of Smart Steps, LLC, Fisher is embarking on a second career to introduce Smart Steps to anyone who can benefit from it. “I work with autism support groups, life coaches and young adults both in and out of the classroom setting to help them learn how to use it,” she said. “I plan to enhance the app with more features. My goal is for Smart Steps to be used by a bigger audience, including counselors, instructors, classrooms, parents and caregivers, law enforcement, and [social service] agencies.”

Smart Steps is available through the Apple App Store (https://apps.apple.com/us/app/smart-steps-mobile/ id887603628?ls=1) or Google Playstore (https://play. google.com/store/apps/details?id=com.smartsteps4me. mobile&hl=en). Register for the free basic plan at https://

BY MARIA SMIETANA- EDITOR-IN-CHIEF

You

I am committed to earning your trust and loyalty through my superior professional care, concern and communication. I am personally committed to each and every client, investing my time, energy and real estate market knowledge to ensure that I exceed your expectations at every level. I have a true passion and love for helping others, it's my ministry. Some of my strongest attributes are patience and genuine care. I work FOR you making sure that every decision made is in YOUR best interest. I welcome the opportunity to learn about you and your family and how I can best serve you.

Call me today at 317.501.0639

Special Needs

Living Family Fun Day at Press Play Gaming Lounge

Thank you to our sponsors

Thank you for coming out to enjoy the Family Fun Day at Press Play Gaming Lounge. Thank you to Press Play Gaming Lounge for opening up your business on a day you don’t typically open to have this private event for the special needs community. Huge shout out to our supporters embracing abilities, Specalized for u & Step Ahead ABA for helping to cover a majority of the cost for families. We

enjoyed being able to put this event on and seeing everyone having a great time with the many activities and games and making connections. If you have not had the chance to check out Press Play Gaming Lounge, we highly recommend it. Below is more information about all you can find there. We look forward to seeing you at our next event.

VIRTUAL REALITY AT PRESS PLAY

Our virtual reality stalls are uniquely made for awesome solo games that use new and completely wireless virtual reality technology. We do virtual reality in Indiana! We have a team of virtual reality gaming reps ready to assist in getting you hooked up and ready to enjoy virtual reality. Visit Press Play to jump into virtual reality today!

FOAM WARS AT PRESS PLAY

Experience Foam Wars (Nerf) like no other! Grab a group of friends and battle it out in “Conquer the Flag.” Go a full three rounds of Foam Wars with Nerf weapons of your choice! Get to Press Play and sign up today!

THREE-POINT CHALLENGE AT PRESS PLAY

Ball is life at Press Play. Sign up today to play in a three-point challenge! Players take 12 shots in 45 seconds. Players that score at least 10 points will win a prize! Also, ask about the Mega Challenge, where you will go a full three rounds in an attempt to win an Xbox One or 50” Screen TV!

BEAM FOR KIDS at PRESS PLAY

Bring the little ones out to burn some energy in our fun interactive BEAM room. They get to play interactive games that allow them to jump on balloons, fruits, and much more! A virtual playground that makes entertainment for all lively, hygienic, educational, and above all, a ton of fun. The little ones in your family will love stomping and jumping around on BEAM!

ARCADE CORNER AT PRESS PLAY

What is gaming without an arcade? Bring the family in to check out our mini-arcade. Our arcade is small but growing every month with new and fun, affordable arcade games. Check out the arcade pricing below.

GAMING AND SPORTS

ENTERTAINMENT AT PRESS PLAY

Bring the family out to dine in while watching sports and playing free games of Xbox on a 75” screen TV. Our gaming pods are perfect for

family gatherings and have servers that are ready to serve you! Reserve your TV pod today! Move around from the pod and take advantage of virtual reality, Nerf (Foam Wars), three-point basketball challenge, the mini arcade, or BEAM (interactive play floor)

STADIUM FOOD AT PRESS PLAY

Enjoy mouth-watering stadium food at Press Play. We have a delicious variety of stadium food that you may be familiar with! Chicken wings, gourmet pizza, chicken chunks, pickle fries ... and more...

BOOK PARTIES AT PRESS PLAY

Book a kid birthday, private or corporate party at Press Play. Reserve one of our game pods or party rooms, which comes with unlimited virtual reality, foam wars, BEAM, and basketball. Package pricing varies depending on the size of the party. Enquire today!

1004 E. Main St., Brownsburg, IN 46112

Open Hours: Thurs. 4-8p.m., Fri. 4-10p.m., Sat. 12-10p.m., Sun. 2-8p.m. 317.939.2987

Email: info@pressplaylounge.com

Website: www.pressplaylounge.com

“Where Nerf, Gaming, and Parties Collide”

New Horizons Rehabilitation Brookville and Connersville Indiana

2023 ADAPTIVE 5K RACE

WHEN: Saturday, May 13 at 10 a.m.

WHERE: 1235 Central Park Dr. East, Carmel, IN

REGISTER FOR CCPR’S ANNUAL ADAPTIVE 5K

Enrollment opens Apr 1, 2023, 12:00 AM $25.00

40 openings remaining

Registration is now open for Carmel Clay Parks & Recreation’s (CCPR) annual Adaptive 5K Race! Participants will race through Carmel’s beautiful (and accessible) Central Park trails as friends, family, and other spectators cheer them on. Although designed specifically for individuals with disabilities, anyone who would like to support CCPR’s adaptive program are welcome to join in on the fun. One-on-one race support is available for each participant, if needed. Space is limited. Pre-registration is required. Cost is $25. Register now! All Adaptive 5K Race profits benefit CCPR’s adaptive recreation programming.

https://anc.apm.activecommunities. com/carmelclayparks/activity/search/ detail/23858?onlineSiteId=0&from_ original_cui=true

•

Presented by Carmel Clay Parks & Recreation

What

EES is the perfect laser light acupuncture on every meridian and in every cell of the body, simultaneously.

Indy Neurofeedback is Changing Lives!

Do you or someone you love suffer from ADHD, Anxiety or Autism? Let Us Help You Explore Your Options.

Our 12-Unit EESystem is open to Abundance Living Ministries Members & by appointment ONLY on:

WEDNESDAYS-SUNDAYS

Session Times: 10am-12pm, 12:30pm-2:30pm, 3pm-5pm, & 5:30pm-7:30pm

Sessions/Packages

2-hr (minimum) session- $50/hr.: $100

4 Pack Package: $380

6 Pack Package: $540

10 Pack Package (Best Value): $880

We are a Private Ministerial Association, and therefore not open to the Public.

Experience the Surprising Effects of the EESystem On:

Arthritis • Autism • Auto-Immune

Disorders • Blood Disorders

Brain Fog • Ionizing/Non-ionizing

Radiation • Chronic Fatigue

Detoxification • Depression • Diabetes

Diabetic Neuropathy Fibromyalgia

Infertility • Injury Recovery • Lyme

Memory Loss • Multiple Sclerosis

Nervous System Disorders

Sickle Cell Anemia • Pain Relief

Parkinson's • Peak Performance

Deep relaxation & meditation states

Increased energy • Improved skin

Improved stress, tolerance & sleep

Enhanced learning states improved creativity **and more!

Neurofeedback is a non-drug, non-invasive solution to symptoms related to brainwave dysregulation. It's natural and offers a fix to the problem, not just a bandage that masks the symptoms.

"We followed the same path most of the other autism parents do with GFCF, DAN Dr., supplements, HBOT. What really made a difference in our son’s attention span, executive processing skills, and anger management was neurofeedback through INDY Neurofeedback and Leanne O’Neil."

~Dr. Sandra Rose Michael, Creator

Is Growing Exceptional Learners From The Ground Up!

We recognize that every individual with Autism is unique in terms of his or her challenges and strengths. Whether you are a family who has just received an Autism diagnosis, you have an older child in the later stages of treatment, or anything in between, ACE will create an Applied Behavior Analysis (ABA) therapy program that will work for your child and your family.

Wills, Powers of Attorney, Advanced

Trust Administration,

Guardianship,

PEAS for Kids

PEAS for Kids specializes in educational consultation, advocacy, and customized assessment plans for children (grades PK-12+).

Assessment plans address emotional concerns and learning disabilities such as Dyslexia, as well as characteristics of Autism Spectrum Disorder and Attention Deficit Hyperactivity Disorder (ADHD).

PEAS for Kids strives to utilize the results of our evaluations to provide recommendations for, and work with parents in advocating for their child's educational needs within the school setting.

Psycho-educational Evaluations and Advocacy Solutions (PEAS) for Kids

MEET KIERSTEN & ANDREW

Congratulations from Special Needs Living Magazine!

BY ROSEMARIE BOLINDER (PROUD MOM)

Our daughter Kiersten was diagnosed with “infantile spasms” at 4 months old after having uncontrolled seizures. This disorder led to a developmental disability that is a life-long challenge, but she works hard at the Hamilton Town Center Chick-Fil-A and is a blessing to all who know her! She, and her nowfiancé, Andrew Campbell met while running track for Hamilton County Special Olympics. These two hard-working amazing young people got engaged in October at their favorite place…Disney World! With their busy schedules, they are no longer involved in Special Olympics but they look forward to what the future holds!

Pay Transparency with Supportive Behavior Services

Emily Contreraz, MSW – Indianapolis Area, obtained her masters degree in social work from the University of Southern California in 2013. She started her career as a school therapist then transitioned to a Youth Shelter Therapist working with DCS and Foster Care. In 2018, she came across ABA and learned so much about the field and stumbled into Behavior Consulting. “I have been a Behavior Consultant since 2019 and enjoy working with my individual’s and their families. I would not change a thing!” When Emily is not working, she can be found hiking, running, reading, and spending time with her family.

Behavior Consultants, are you being paid what you deserve?

• Since 2009, the Medicaid Waiver reimbursement rate for Behavior Management has been $18.20 per 15-minute unit or $72.80 per billable hour. Let’s use a baseline example of a BC being paid a $55,000/year salary at an agency that requires Behavior Consultants to bill an average of 135 hours per month.

• 135 billable hours X $72.80 per hour = $9,828 per month -> $9,928 X 12 months = $117,936 in gross revenue brought in by the BCs work each year, to the company.

• A commonly accepted metric to establish employment cost is the 1.25 multiplier. Take the $55,000 a year salary multiplied by 1.25 = $68,750 <- which is the approx. annual cost for an agency to pay you a salary of $55,000 plus provide fringe benefits like paid time off, health insurance, retirement, etc. (and pay their employer taxes).

• $117,936.00 brought in, minus $68,750 for BC cost, taxes, and benefits, leaves the agency $49,186 of net profit from every BC-- every year.

• Now an example for the contractor at an agency getting paid per billable hour without any fringe benefits:

• Contractors at other agencies get $42 per billable hour X 135 hours = $5670 a month or $68,040 annually in total pay

• Contractors at SBS average $60.42 per billable hour X 135 hours = $8,156.70 a month or $97,880.40 annually in total pay

Here at SBS, we believe master’s prepared clinicians should be getting paid what they deserve. If you think you should too, feel free to reach out to us.

Duff Duff

KEVIN, TENDRA, KEARSLEY, TRENIN AND KAIDEN

BY ANGIE ARLINGTON • PHOTOS BY 21 VINES PHOTOGRAPHY

Tendra and Kevin Duff’s first meeting was kismet. Both are originally from northwest Ohio, and met in 2007 in Frankin, TN, a suburb of Nashville. Kevin was an active duty military police officer stationed at Ft. Campbell, KY, about 45 minutes from Nashville. Tendra was Kevin’s server at a restaurant, and while he was paying the bill, she learned they had grown up in neighboring towns in Ohio. Kevin asked for her phone number that night and they have been together ever since.

Kevin and Tendra moved to Westfield in 2011. They have three

children. Kearsley (9), their oldest, is a 4th grader at Shamrock Springs Elementary. They also have identical twin boys, Trenin and Kaiden (6), who attend kindergarten at Oak Trace Elementary.

While all children are special, Kaiden and Trenin are EXTRA special. The boys were born with Trisomy 21, commonly known as Down syndrome. There is a one-in-two million chance for identical twins to be born with Down Syndrome, which makes the Duff family very unique.

The twins were born 10 weeks early on April 21st, 2016, which

Due to their medical needs, Tendra quit the job she loved at United Healthcare. She needed the flexibility to go to and from the NICU multiple times a day. Kaiden spent 5 months and Trenin spent 9 months in the St. Vincent Women’s Hospital NICU. After a duodenal atresia surgery to repair Kaiden’s small intestine, he needed time to heal and grow stronger before he could come home. Trenin’s situation was different. He was born with an extremely narrow airway, which resulted in him coming home with a tracheostomy, a ventilator, and dependent on a g-tube.

Tendra explains, “Trenin had so much equipment when he came home. The day he was discharged from the hospital, we loaded the van with a pulse oximeter, an apnea machine, mobile oxygen, a ventilator, and a feeding pump. When we got home, our home health equipment provider met us with even more equipment. It would barely fit into the double stroller we had purchased. And then I still needed to find a place for Kaiden and his feeding pump.”

Any trips the family made were stressful. “We had to have a contingency plan and a contingency plan for the contingency plan, Tendra said. “We were constantly vigilant in

case Trenin pulled his trach out, his O2 status dropped or his feeding tube came out. You need to be able to change the trach, use an ambu bag or start CPR while the ambulance is en route. Trenin was not our only child, making the situation even harder. When something

happily came home on November 20, 2021, this time trach-free!

The boys have participated in multiple therapy sessions a week since shortly after birth. “All of the therapies and therapists have been a blessing to our family, but there is one place that does stand out among the wonderful facilities and people,” Tendra said. That place is Theraplay, where the boys receive hippotherapy (therapy with horses) twice a week.

“We are beyond grateful for the therapists and their expertise in helping Kaiden and Trenin reach their full potential. Everyone at Theraplay, from the unpaid volunteers to the administrative

someone had to go to the hospital with Trenin and someone had to stay and care for Kaiden and Kearsley.”

Trenin has had two major airway reconstruction surgeries at Cincinnati Children’s Hospital. The first one failed, which is not uncommon. The second surgery was in 2020. “We were hopeful that this surgery would allow Trenin to no longer be trach dependent, but we were not 100% confident,” Tendra said. As it turned out, he had to remain on the trach a while longer.

On November 14, 2021, the Duffs had possibly the scariest night of their life. Trenin had pulled his trach out, and the stoma (trach hole) started to close. It was the first time his trach could not be put back in. The silver lining was that Trenin showed no distress and appeared mad at his parents for waking him up. They hurriedly packed their bags and headed back to Cincinnati. Trenin was admitted for a week-long trial period with no trach. The Duffs

staff and therapists we see weekly, is focused on one goal--providing the best place for our boys to receive therapy services. Not only is the process streamlined to help overwhelmed and sleep-deprived parents, but the friendships we have made in the waiting room with other parents are a bond like no other.”

Going to church every Sunday is the Duff’s most significant tradition. The boys did not attend services for most of the first 3 years of their lives.

Kevin or Tendra would stay home, and the other went to church with Kearsley. Now the entire family can attend church. Church is a beautiful place for the Duff’s spiritual health, but it also allows the boys to put all the skills they have learned in therapy and school into practice. While the boys still require a lot of patience during the service, they are learning to sit quietly and pay attention to what is happening around them.

The family has crossed many milestones in the almost seven years since Kaiden and Treinin were born, but leaving the house is still akin to a military operation. There are no fenced-in playgrounds nearby, so going anywhere is challenging for the whole family. Trenin is still not walking independently, so someone must be with him. Kaiden is 100% boy--walking, running, jumping, and climbing are what he wants to do at the playground. Unfortunately, he doesn’t understand safety and what he should and shouldn’t do, so he requires the same amount of attention as Trenin when they are both playing.

In January of 2022, Tendra stumbled upon the opportunity to return to the workforce. “I learned about an attendant care program under the Aged and Disabled waiver that would allow me to be a paid caregiver for the boys. Once I started sharing the information with other parents and therapists, David Mitchell, the president of Guardian Care, asked if I would be interested in working as the company’s community liaison. I accepted the position, as helping others is my passion, especially families with special needs children.”

Guardian Care is a home care company that helps families get additional in-home services for their disabled loved ones. “I know what it is like to feel overwhelmed and need a break for some self-care or just time to put away the laundry that has been folded in a basket for two weeks,” Tendra said. “Guardian Care helps families do both. I now have more friends across Indiana than I would have imagined. I would never have been able to meet and talk with

Tendra is busy, but her passion for advocating for others does not stop with her boys or job. Tendra is a founding member of the Westfield Schools Special Education Parent Advisory Council (SEPAC). The group’s vision is to create an educational experience for all students of the Westfield Washington Schools that meet their unique learning needs, allow them to make meaningful progress toward goals with appropriate services and supports, and aid them in developing “life-ready” skills.

Tendra’s pastor at Christ United Methodist Church asked her to

help start a special needs ministry Providing a space for people to explore their faith without worrying about their children and a place for kids to learn about Jesus is just a nobrainer for her.

Tendra’s advice for families is, “Having a diagnosis will only help you travel down the appropriate paths to get your child the resources they need to reach their full potential. It does not define your child and their potential. Your child is labeled by their name and Down Syndrome is just an ingredient that is part of who they are, and who they will become.

“Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing it is stupid.” Albert Einstein.”

We have been blessed to have Tendercare for the past 9 years, and they have always been very caring and reliable. Our nurses have been like family to us.

– The Nestas (Tendercare family since 2002)

Do you have a child with disabilities? Want to be paid as a Tendercare Family Caregiver?

Come join Top workplace Tendercare Home Health services as a family caregiver! You or a family member can work as an RN, LPN, or Home Health Aide (free HHA training provided) to work with your child! We provide 24/7 nursing support, training by RN case managers and expert clinical staff to support your needs. Tendercare has been locally owned and operated for the last 30 years in Indianapolis. Call today at 317-251-0700

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