ISSUE PREVIEW
• Pages 14-16 Featured Family: Meet the McCall Family
• Pages 18-19 Sponsor Spotlight: Healing Hands Personal Services and Home Health
• Page 22 What’s Happening at Janus, Inc.! Janus Summer Academy
• Pages 24-26 At Rise Learning Center, Students Soar!
• Pages 28-29 Nonprofit Spotlight: Hear Indiana
• Pages 32-33 Single Mamas Seen: Knowing What You Need
• Pages 34-37 Special Needs Support Groups in Indiana
• Page 40 Pastor’s Corner: Mephibosheth: A Closer Look
• Page 42 Sensory Blurb!
• Pages 44-47 Local Events
• Pages 50-52 Family Fun Day at Smiley Indianapolis
OWNER/ADVERTISING INQUIRIES
Jamie McCabe
248-882-8448
Jamie.McCabe@n2co.com
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This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance!
ABA & COMPREHENSIVE SERVICES
K1ds Count Therapy (317) 520-4748
Mindful and Modern ABA Therapies (317) 827-7777
ABA / RESIDENTIAL & COMMUNITY SUPPORT
Tangram (317) 571-1042 www.TheTangramWay.org
ABA SERVICES
Grateful Care ABA (317) 572-5315 gratefulcareaba.com/
Piece by Piece Autism Center (765) 481-2261
Stepping Stones
Behavioral Solutions (317) 863-8388
The Umbrella Center (463) 701-0909
ABA SERVICES - IN HOME
B Above Services (317) 773-0500 www.baboveservices.org
Blue Balloon ABA (317) 650-1109 www.blueballoonaba.com
ABA/COMPREHENSIVE SERVICES
The Hope Source (317) 578-0410
ADOPTION
Indiana Adoption Program (855) 677-5437 www.indianaadoptionprogram.org/
ADULT INDEPENDENCE
Janus Developmental Services, Inc. (317) 773-8781 www.janus-inc.org/
ADVOCACY/EVALUATIONS
PEAS for Kids (920) 980-1172
ATTORNEY-WILLS/TRUSTS/ ESTATE PLANNING
Law Office of Elizabeth A. Homes LLC (317) 660-5004
Stinson Law Firm (317) 622-8181 www.stinsonlawfirm.com
BEHAVIOR MANAGEMENT
Supportive Behavior Services (765) 337-1895 www.supportivebehaviorservices.com
CASE MANAGEMENT
Connections Case Management (317) 440-0637
CLEANING: RESIDENTIAL & COMMERCIAL
The Dust Devils (317) 709-6120
COMMUNITY SUPPORT
Achieve Community Services (317) 918-0337 acssupports.com/
Carters Play Place (317) 836-5510 cartersplayplace.com
LEL Home Services (317) 387-1443 lelhomeservices.com
Muscular Dystrophy Family Foundation (317) 615-9140 www.mdff.org
Noble (317) 375-2700
DAY / BEHAVIORAL SERVICES
Developmental Disabilities Systems INC. - DDSI (317) 477-8240
FINANCIAL
ENABLE Special Needs Planning, LLC (765) 585-1050 enablesnp.com
WestPoint Financial Group
Gordon Homes (317) 567-2005
FOSTER CARE
Firefly Children and Family Alliance (855) 677-5437 foster.fireflyin.org
HOME CARE
Amiable Home Care Inc. (317) 802-1746
HOME CARE & TRANSPORTATION
ABC Community Services LLC (317) 516-1178
www.abccommunityservices.com
HOME HEALTH CARE
Comfort Care (317) 552-2039
HOME HEALTH SERVICES
Tendercare Home Health Services (317) 251-0700 www.tchhs.net/
HOME MODIFICATIONS / SPECIALTY EQUIPMENT
Specialized Home Care Services (888) 506-4182 www.specialized4u.com/
ICE CREAM
Howdy Homemade Ice Cream (317) 397-0008 www.howdyindy.com
INSURANCE
State Farm John Cole (317) 430-1958
Thomas Insurance Agency (756) 561-5138
MEDICAL EQUIPMENT & PHARMACY
George’s Pharmacy & Medical Equipment (855) 600-6251 www.georgespharmacy.com
MUSIC THERAPY
Dynamic Music Therapy (317) 829-6654
NEUROFEEDBACK THERAPY
Indy Neurofeedback (317) 888-8500
PEDIATRIC HOME CARE
Guardian Care (317) 360-0359 myguardian.care/
SCHOOL
Dynamic Minds Academy (317) 578-0410
Midwest Academy (317) 843-9500
SUPPORT SERVICES Easterseals Crossroads (317) 466-1000
Joseph Maley Foundation (317) 432-6657 www.josephmaley.org
My Quillo (317) 626-4387 myquillo.com/
The ALTRUIST Group, LLC (317) 547-3041 x1005
WAIVER PROVIDER & EMPLOYMENT
Putnam County Comprehensive Services (765) 653-9763 www.pccsinc.org
Meet the Special Needs Living Indy Team
317-977-2375
317-676-4222
800-609-8448
877-241-8144
800-545-7763
800-545-7763
800-622-4968
888-673-0002
800-403-0864
317-232-7800
317-925-7617
877-511-1144
317-466-1000
Arc of Indiana www.arcind.org
Autism Community Connection www.autismcc-in.org
Autism Society of Indiana
Blind and Visually Impaired Services (BVIS) Bureau of Developmental Disabilities Services (BDDS)
Bureau of Rehabilitation Services (BRS) Deaf and Hard of Hearing Services (DHHS)
DHHSHelp@fssa/in.gov
Disability Determination Bureau Division of Aging (IDA) Division of Family Resources (DFR) Division of Mental Health and Addiction Down Syndrome Indiana
Early Childhood and Out of School Learning (OECOSL) Easterseals Crossroads https://eastersealscrossroads.org
IMPORTANT NUMBERS
911
800-545-7763
574-234-7101
317-232-0570
844-323-4636
317-233-4454
317-232-7770
812-855-6508
317-233-1325
844-446-7452
855-641-8382
800-332-4433
800-457-4584
317-232-7770 988
800-772-1213
800-772-1213
877-851-4106
317-871-4032
800-545-7763
Emergency First Steps
INSOURCE – www.insource.org
Indiana Department of Education: Office of Special Education – www.doe.in.gov/specialed
Indiana Family to Family - www.inf2f.org
Indiana Family and Social Services Administration (FSSA) – www.in.gov/fssa/index.htm
Indiana Governor’s Council for People with Disabilities (GPCPD)
Indiana Resource Center for Autism
Indiana State Department of Health
Indiana Statewide Independent Living Council (INSILC)
Indiana Works
INSOURCE – http://insource.org/
Medicaid Disability
Medicaid Waivers
National Alliance on Mental Illness
Social Security Administration (SSA)
Social Security Disability Insurance (SSDI)
Special Education Questions
United Cerebral Palsy Association of Greater Indiana Vocational Rehabilitation Services (VR)
DISCLAIMER: Any articles included in this publication and/or opinions expressed therein do not necessarily reflect the views of The N2 Company d/b/a N2 Publishing but remain solely those of the author(s). The paid advertisements contained within the Special Needs Living magazine are not endorsed or recommended by The N2 Company or the publisher. Therefore, neither The N2 Company nor the publisher may be held liable or responsible for business practices of these companies. NOTE: When community events take place, photographers may be present to take photos for that event and they may be used in this publication.
In this role, you will provide interactive supervision and support to children and adults with intellectual disabilities in their homes and community. We are looking for determined individuals that can achieve this through respectful interactions in our client's homes, the creative use of resources, networking and involvement in the community at large. To learn more, scan the QR code to be taken directly to the open positions listed on our Careers page.
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Meet The Family McCall
BY AUTUMN COFFEY: WRITER AND CONTRIBUTORAfter college, John and Ellyn McCall relocated from Indiana to Safety Harbor, Florida, unaware that they would eventually return to their home state. In Florida, they joyfully welcomed their first two children, Ava and Jace. In 2007, Eli entered this world as an angel. He passed away while Ellyn was in labor. Ellyn knew that Eli’s short life had unearthed something inside of her that would not only help her future children but so many others. It’s for that reason that Ellyn inspires us to know that difficult times, even tragedies, can create beauty in this world. “I wanted to make sure that his life was something to be celebrated, that he would have a legacy,” Ellyn said. She began looking for the right opportunity to make a difference. In 2008, Seth was born prematurely and immediately admitted to the NICU due to respiratory distress and pulmonary hypertension.
He required a ventilator for breathing support. While in the NICU, Seth failed his newborn hearing screening and as the weeks went by, Ellyn and John saw notable differences between Seth and his siblings. A follow-up test confirmed that Seth was profoundly deaf. Ellyn swiftly understood that if they wanted Seth to listen and speak, amplification like hearing aids and cochlear implants would be necessary. Ellyn was a natural researcher, and it became clear that for hearing outcomes, amplifying earlier was better. The McCalls started the process of getting Seth hearing aids, and in the meantime, they learned more about sign language and hearing loss in general. When Seth was six weeks old, he got his first set of hearing aids. Just a few weeks later, he started to receive specialized Listening and Spoken Language therapy every week. Hearing aids weren’t enough for Seth’s level of hearing loss, though, and the family
soon learned that cochlear implants were his best chance at learning to listen and speak. When Seth was eight months old, he underwent surgery to receive bilateral cochlear implants. A few weeks later, the implants were activated and he experienced the joy of hearing his family’s voices for the very first time.
Over time, Seth continued to make remarkable progress, attending audiology and therapy appointments on a regular basis. However, John and Ellyn knew that if they wanted Seth to reach his full potential, he would need to attend a school specialized for kids with hearing loss who use Listening and Spoken Language. To their surprise, their research led them to St. Joseph’s Institute for the Deaf in Indianapolis, a school that aligned perfectly with Seth’s needs.
After their move back to Indiana, Seth began attending preschool at St. Joseph. Ellyn, meanwhile, came across a local non-profit organization called
Hear Indiana. This organization’s main goal was to ensure that children with hearing loss were given the same opportunities as their peers through Listening and Spoken Language. Ellyn saw this as the perfect chance to help other families in a similar situation to hers and joined Hear Indiana in 2015. She simultaneously pursued her master’s degree and acquired her certification as a Listening and Spoken Language specialist. Presently, she holds the position of CEO at Hear Indiana. Seth now attends Noblesville High School and thanks to the work done at St. Joseph’s and Hear Indiana, he was able to develop a level of speech and language that rivals his peers. Ellyn remembers a time when she wasn’t sure if she would ever hear Seth say “I love you.”
“I still remember the first time he did and that will stick with me forever. But amazingly, that memory pales in comparison to seeing all the things Seth has done since then,” she confessed.
Over the years, Seth has participated in Best Buddies and student council. He currently serves as a junior board member for Indiana Hands and Voices. He is also a leadership camper at Indiana’s Listening and Spoken Language Camp.
The McCall’s are known for their active lifestyle and Ellyn admits, “It is challenging to meet the needs of all my kids, each of whom has different needs and challenges. We do our best to make sure that everyone gets to participate in what they love.” Seth and Coen
play lacrosse in Noblesville. Ava plays lacrosse and Jace cheers at Trine University while Nova is a competitive gymnast.
Ellyn wholeheartedly believes that Indianapolis is an ideal location for raising a child with hearing loss. The abundance of helpful resources and a remarkable support system for parents make it an exceptional place. She also encourages parents to be the “squeaky wheel” and proactively advocate for their children.
She advises, “Be the one who speaks up even when it’s hard, the one who pushes for more and better opportunities for your child. You are the expert on your child and you have a very important seat at the table.”
Healing Hands Personal Services and Home Health
BY SUSAN GRAHAMHealing Hands Personal Services and Home Health was founded on the principle that everyone deserves access to home health services. While most home health companies focus on seniors, Healing Hands recognizes that all ages need quality, reliable home care. Tim Paul, owner and president says “I started Healing Hands because there were no other agencies out there primarily focused on pediatric care.” He is proud that Healing Hands is locally owned and operated, only serving Indiana. It allows a personal approach, recognizing that every family has unique needs.
Because every family is unique, Healing Hands has been offering Attendant Care, PA Home Health Aides, Nursing, and Structured Family Caregiving for years. Their dedicated teams can seamlessly transition patients from one program to another as their needs change. Serving pediatrics through seniors, each department’s goal is to make your home care experience as simple as possible.
The Healing Hands Medically Complex Warrior program is one of a kind, offering support to caregivers who have a medically complex child. Amid FSSA’s changes to the parent attendant care program, the MCW staff have been to protests, taken phone calls after hours, and written
letters to legislators. They have gone above and beyond for their current and future families because they know what medically complex families live day to day. Going forward, Healing Hands is implementing a Medically Complex Warrior 2.0 program.
This program will include Structured Family Caregiving, PA Home Health Aides, Nursing, and Attendant Care for those who qualify. Healing Hands families will be able to utilize a combination of these programs, depending on their needs. Parents who want to work as their child’s Home Health Aide will be provided training through Healing Hands to help simplify their transition. These changes can seem overwhelming but their mission hasn’t changed. And that is to provide the best possible care for both caregivers and patients.
One of the ways Healing Hands cares for its caregivers is through competitive pay and benefits. Nurses, LPN’s, Home Health Aides, and Attendant caregivers qualify for health, dental, and vision insurance, Paid Time Off, and can enroll in a 401(k) retirement plan with company matching! Their flexible schedules offer a healthy work/life balance, allowing you to focus on your family.
With competitive benefits, dedicated staff, and program choices, Healing Hands supports its caregivers, families, and patients by customizing their home care experience. Change caused by FSSA or life can be frightening. Healing Hands is here to help.
For more information healinghandsindiana.com info@healinghandshha.com 317.788.0777 @healinghandsindiana
Janus Summer Academy
Gain valuable experience and build vocational skills through a variety of topics and opportunities
This summer, Janus will be holding a summer academy for Hamilton County high school students with preemployment transition services (Pre-ETS) funding. The Academy will begin on June 3rd and end on July 25th. Class will be held each Monday, Tuesday, and Thursday from 9 am to 2:30 pm.
The Focus: Advocacy, Career Planning, Resume Building, Volunteering, Cooking, Fun Projects, Interview Skills, Guest Speakers, and Company Visits. The Summer Academy Graduation will be held at Janus Developmental Services on July 25th, 1555 Westfield Rd Noblesville, IN 46062. Transportation will be provided if needed!
Meet Your Instructors
Erin Kim: Erin has worked at Janus for 6 months. She is currently the Pre-ETS career coach. Erin supports high school students at Noblesville, Westfield, and Carmel.
She attended Hamilton Southeastern High School and Ball State University. Erin enjoys spending time with her three kids, snow skiing, reading, traveling, and being outdoors.
Brennan Greer: Brennan has worked at Janus for 4 years. He started as an employment specialist and is now the manager of the community employment department. Brennan attended Noblesville High School and Indiana State University. In his free time, Brennan enjoys being outside, traveling, attending sporting events, and spending time with friends and family.
If you have any questions please contact Brennan Greer or Erin Kim: Cell: 317-531-1874 Email: bgreer@janus-inc.org or ekim@janus-inc.org
Real Plans for Re Ch ge.
(Michelle)At Rise Learning Center, Students Soar!
BY DAROLYN “LYN” JONESRISE LEARNING CENTER (RLC) is a cooperative special education program serving students with exceptional needs on the southside of Indianapolis. RLC serves Beech Grove City Schools, MSD of Decatur Township, and Perry Township Schools. However, RLC also accepts students from other districts on a referral basis. RLC offers the Behavior Education Program, Life Skills Program, and Mobility Opportunities via Education Program.
The Behavior Education Program (BEP) is student-centered and is focused on meeting the emotional and behavioral needs of each student. The goal of the BEP is to identify problematic behaviors and replace them with positive ones so the student can return to her/his home school. Students learn under Common Core and Indiana state standards but also
have the benefit of a full-time teacher and two instructional assistants who are trained to accommodate and support the student’s unique social and emotional needs. In addition, students in the BEP have access to Square1 therapy services on-site.
The Life Skills Program centers on activities of daily living, including hygiene, or functional academics such as following a recipe or dealing with money. All skills are taught with the idea of making a student as independent as possible in all aspects of his or her life. These classrooms also have a full-time teacher and two instructional assistants. The Life Skills Program uses evidence-based practices normally employed with students on the autism spectrum. The middle school and high school classrooms align with state standards
while focusing on routine skills that are needed for greater functioning and independence. High school students also participate in community vocational experiences.
The Mobility Opportunities via Education Program (MOVE) works with students who have limited physical mobility. The objective of this program is to get students up and moving while learning how to be more functionally independent. RLC is fortunate to have two teachers,
Monica Ponce and Allison Compton, who are certified MOVE International Trainers. The facilities at RLC are equipped to meet the physical needs of these students. This program also utilizes assistive technologies and includes access to physical, occupational, and speech therapists.
According to MOVE International, RLC is one of only thirty designated model MOVE sites in the world.
At RLC, the staff who work in any of these programs are well trained and they collaborate as a team on communication and building positive relationships. The students and staff feel valued, wanted, and needed. The staff members meet their students with exceptional needs where they are, build on the skills that each student has, and help each student grow, rise, and soar!
RLC is an inviting and engaging space. When you enter, you are welcomed with visual cues, students’ art on the walls, and different areas to meet students’ needs, including a
therapy pool, a snack shack, a library, and a recreational/athletic area.
In 2015, The Pacers helped provide the equipment and technology for the workout room. The Pacers are a strong supporter of RLC, and team members even drop by to interact directly with students. RLC has longstanding and strong relationships with many other organizations in the community as well. You might find RLC students and staff playing the Southport Police in a community fundraising basketball game or accepting a donation from any number of generous public and private donors.
For students who attend RLC, it feels much like a typical school.
When you visit and see the impact of the RISE Learning Center, you know their mission rings true because they want students to RISE ABOVE EXPECTATIONS, LIMITATIONS, PERCEPTIONS, SITUATIONS, and RISE ABOVE TOGETHER!
For example, RLC offers adapted physical education, adapted art, a cafeteria whose seating arrangements accommodate every student, walking trails, and a pool. RLC’s student athletes compete in different sports for Special Olympics and are cheered on by the student spirit club.
Students who attend RLC come from diverse backgrounds. The RLC administration and staff meet families where they are, and with the families, they create independence and opportunities for each student who enters their doorway.
The RLC staff takes pride in and loves their work. They are helping students rise above. Read below to hear about how special RLC is to the staff and what they love about their work.
I love the relationships we get to form with students and other staff! Our building feels like a family. When there’s a need, everyone rallies to help meet it. And when there’s something to celebrate, we stop what we’re doing to make a big deal about even the smallest victory! At RISE, I know my students have opportunities to communicate using their preferred mode of communication throughout their school day, not just when they’re in my speech office.
JORDAN DEAMICIS, SLP
I love seeing the progress each individual student makes. RISE does offer a lot of special occasions for the students like prom, dances and graduation. [There is also] a food and clothing closet.
TERRI COFFIN, INSTRUCTIONAL ASSISTANT
Unity. No matter how tough the daily situations can be, everyone, regardless of position in the school, is there to support and help. When I passed my state license test, I knew my dream job would be at RLC. My experience as an assistant 13 years ago made me fall in love with special education, especially RLC.
KIRA NEUMAN, ELEMENTARY LIFE SKILLS TEACHER
RLC is a community of staff who care for all students and their well-being, and work together toward successful outcomes. It takes a team. I love our TEAM!
RENEE POSEY, HS TRANSITION LIFE SKILLS TEACHER
The best part of working at RLC is seeing and celebrating students achieving their goals!
LAUREN BURGESS, STAR INSTRUCTOR
The support we receive from the administration as well as co-workers is unmatched. What we do here is difficult, but so fulfilling. I love to help my students grow academically, but even more so emotionally. I love watching them grow connections with the staff and their peers. I love seeing them become a proud member of their family and community. I couldn’t imagine working anywhere else and being as happy as I am.
HANNAH ROTHKOPF, INTERMEDIATE BE TEACHER
I enjoy working in a place where we help children grow, and we support and encourage their families.
JAMIE REILLY, OT
I love working at RISE because RISE has a culture of caring and connection like no other.
RACHEL RUSSELL, READING SPECIALIST
HEAR INDIANA’S MISSION is to create equal opportunities for children with hearing loss through Listening and Spoken Language, an evidence-based way to teach deaf and hearing-impaired children to listen and talk. Chief Executive Officer Ellyn McCall explains the history of Hear Indiana: “During the rubella epidemic that quadrupled the number of children born with hearing loss in the 1960s, ten families gathered together in Muncie, Indiana to lay the foundation for what would become Hear Indiana. At that time, it was common practice that all children with hearing loss over 80 decibels (dB) were institutionalized. But the founding members of Hear Indiana
Hear Indiana
BY ANGIE ARLINGTONdisagreed with that tenet and decided their children could, and would benefit from mainstream education.”
Since then, Hear Indiana has worked tirelessly to educate parents, lobby at the Statehouse, provide equal access to the latest and greatest therapies, advocate, and give thousands of children the opportunity to hear. Hear Indiana’s clinic provides audiology services, speech-language therapy and evaluations, school services, and advocacy support to children with hearing loss in Indiana from birth through the end of high school.
“Finding out that your child has hearing loss can be overwhelming and isolating,” McCall said. “It is our goal to come alongside families to help them in their journey, both from the parent and child perspective. By educating parents, we can show them that they are their child’s first and most important advocate and help them work through how best to help their child meet their full potential. As kids grow, it is our goal to help them become strong self-advocates so that they can comfortably share
what they need to be successful at home, in school, and in life. Our goal is to treat the whole child through technology, education, and support.”
“All children with hearing loss deserve equal opportunities, no matter their communicative ability or financial status,” McCall continued.
“That’s what fuels us to provide affordable and effective listening and spoken language services to deaf and hard-of-hearing infants and children. We treat the whole family at our full-service clinic. At Heart Indiana, your child can receive audiology, listening and spoken language, and school services from a caring team of pediatric experts. Parents get access to information, referrals, advocacy, and support. Whatever your financial situation, we aim to ensure you have access to our full range of therapeutic options.”
Hear Indiana offers comprehensive language and speech evaluations free of charge to families. Ongoing listening and spoken language therapy is available both inhome through First Steps Indiana and
at the clinic. Teletherapy is offered for families who can’t make it to the clinic.
Licensed auditory-based deaf educators can help provide the intervention needed to help children with hearing loss succeed in a mainstream environment. They work with families and/or schools to provide direct school services as well as reading intervention and instruction.
Hear Indiana’s licensed pediatric audiologists provide the help and hope families need. They offer a complete portfolio of audiology services designed to pinpoint the problem, answer parents’ questions, and make a plan for the child’s future.
“We offer thorough audiological testing from diagnosis through the end of high school and are equipped to perform auditory brain-stem
response (ABR) testing as well as hearing aid programming and cochlear implant evaluation and programming,” McCall said. “We also have a loaner bank of hearing technology including traditional and bone anchored hearing aids and hearing assistive technology like DM systems for the classroom.”
With today’s technology, children with hearing loss can achieve their aspirations. Hear Indiana provides the following parent support services:
• Family consultations and advocacy support. “We can give parent-toparent emotional support as well as input and advice on individualized education plans (IEPs) for families making decisions about their child’s education,” McCall noted. “One of our licensed teachers of the deaf can even attend case conferences along with the family.”
• Hear Indiana’s Listening and Spoken Language Camp, the “best week of the year.” Children with hearing loss can make new friends, share life experiences, and bolster self-esteem at a camp for students ages 8-18. Campers practice positive coping strategies, participate in dialogue, and engage with peers in fun outdoor activities designed to build leadership skills
and confidence, all while having fun with children just like them!
• Hear Indiana’s annual Listening and Spoken Language Conference for parents of kids with hearing loss as well as the professionals who work with them, such as teachers, audiologists, speechlanguage pathologists, and others. The annual conference pulls together an experienced panel of experts to deliver relevant content for parents and clinicians alike. Through education and access to the latest research, the community is better equipped to care for every child’s unique needs.
"It was just really, really enlightening and I was just so happy. It was like a burden had been lifted o of me when I was able to sit and talk face-to-face with them." -Joyce
"I love that it's very family focused and family oriented. I think that LEL does a really great job of trying to support their clients in living and achieving their best life." -Stephanie
" ey respect the lives of the people that they're caring for and they respect the family members and the people who are involved with those people that they're taking care of." -Debi
" ey elevate them. ey treat them like young adults and the adults that they are. I appreciate that." -Jacquelyn
Written by families of those with special needs providing hope, inspiration, education and more. Packed with resources for all.
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Knowing What You Need
BY CHRISTINA MCGAIRKBEING A MOM is hard enough, but being a single mom of a child with special needs adds another layer of challenges and responsibilities. I know there are times I feel very overwhelmed by the demands of caregiving, advocacy, and education for my daughter, while also trying to balance my own needs. But more often than not, when I even think about self-care, I feel guilt and anxiety. How dare I put myself before others, especially my autistic child who needs me the most?
Although I know my feelings are normal and valid, I also realize that my mental and physical health can take a toll if I don’t take care of myself. Often when we think about self-care, we see it as a luxury. For instance, getting our nails done, going to the salon, or enjoying the little free time that we have. But that is where our mindset needs to change: seeing self-care as a NECESSITY, not a luxury. It took me a while to see that self-care is not SELFish; instead, it’s a way of honoring myself and my role as a mom. It’s a way of recharging my batteries to regain resilience and joy. It’s a way of showing myself and my daughter that I matter.
So what does self-care look like for single special needs moms? How can it be practiced with our busy and stressful lives? Do we even know what we need and ask for it? Here is what I’m finding along my self-care journey.
Once I have my needs figured out, I try my best to prioritize them.
IDENTIFY YOUR NEEDS:
The first step to self-care is recognizing what I need to feel whole and happy. It may shift daily or even hourly depending on my mood, what kind of day my daughter is having, and what is currently going on in my life. For instance, some days (mostly Wednesdays) I need more rest because it’s usually our busy day. Other days, I need more mental stimulation, connection with friends, or just to have fun. There are also days where I need more support or empathy. I have an awesome village that can sense when I’m struggling. But then there are also days I feel like I need more autonomy, creativity, or challenge.
The way I’m able to identify my needs is by being attuned to my body, emotions, and thoughts. If I feel like I’ve been holding my breath forever, that means I need to BREATHE, slow down, and center myself. If I catch myself clenching my jaws or I feel my shoulders or back muscles tense up, that means I’m stressed.
When that happens, I ask myself what I can do to stop myself from running around at a frantic pace. Also, what is stressing me out?
PRIORITIZE YOUR NEEDS:
Once I have my needs figured out, I try my best to prioritize them. I decide which needs are more important and which ones can wait for a little bit. When it comes to prioritizing in a workplace setting, I’m completely fine. But at home, it gets complicated because I have competing
needs or my needs may conflict with my daughter’s needs. Then the feelings of guilt and selfishness return, followed by frustration for putting myself last. So I try to narrow things down to short-term and longterm consequences. For instance, I’ll ask myself: How will it affect me and my daughter? How will it affect my health, happiness, and well-being? That’s when I start breaking things down to where I make a list of what is urgent vs. what’s important.
MEET YOUR NEEDS:
This is the hard part for me--the follow-through. Although I’m
getting better at asking for help, I could probably do it a little more often. I know within my village I have people who would help me in a heartbeat, but I don’t want to be a burden. Even though I know that’s not the case, the feeling still lingers. Also, I can’t do self-care on a whim. Trust me, I tried…it doesn’t work, at least not for me. I have to plan ahead (I’m a planner anyway), set boundaries, and communicate clearly. I must ask myself the 3 W and H questions: What can I do to meet this need? When do I have the free time to do it? Where can I do it? How can I do it? I either write this down in my notebook or put it on my phone calendar with notifications, which is usually more helpful. What I’ve learned about this self-care journey is that it’s not a onetime thing, but a continuous process of identifying, prioritizing, and meeting my needs. It’s a beneficial act, not selfish. It’s not a luxury, but a RIGHT. Practicing self-care is about taking care of myself so I can take care of my awesome autistic daughter. I’m also showing her that I value myself and my role as her Mommy. She looks up to me so I have to model what it’s like to live a healthy, happy, and fulfilling life. By doing this, I’m giving my daughter the best gift I possibly can; a mom who loves herself and her.
Special Needs Support Groups in Indiana
BY CHRISTIA WOODFORD — PUBLISHING ASSISTANT AND LOCAL EVENTSAPAC
6876 Maywood Cir, Avon, IN 46123 317-837-0205 cmmhappycamper@ aol.com https://www. autismconnect.com/
Our goal is to help the millions of parents whose children are diagnosed with autism spectrum disorder to build a better life for their children. We want to empower them by providing them easy access to a community of parents, professionals, resources, and treatment options. Armed with this knowledge, parents can make effective choices that propel their children in the right direction.
Asperger/Autism Support Group of Goshen Goshen, Indiana
Contact cguth@autismgoshen. org or (574) 534-2718
Asperger Autism Group of Goshen is a support group for parents of children, teens, and young adults on the autism spectrum. It was started in August 2006. “We aim to support families by sharing practical information and resources, along with our insights, struggles, laughter, and tears.”
Autism Community Connection
2455 Fairview Pl Box 2, Greenwood, IN 46142 (317) 676-4222
k.higgins@autismcc-in.org http://www.autismcc-in.org/
The Autism Community Connection serves individuals with autism and their families in and around the Johnson County area by connecting them with community resources, social events, and enriching programs to help navigate their autism journey.
Autism Evansville
US Post Office at 1310 N. Green River Rd., Evansville, IN (812) 202-6087
director@autismevansville.org http://www.autismevansville.org/
We are a 501(c)(3) non-profit organization located in southwest Indiana serving local individuals and families affected by an autism spectrum disorder.
Autism Resource Center of Kokomo 612 E Blvd, Kokomo, IN 46902 765.455.4213
contact.us@arc-kokomo.org http://arc-kokomo.org/
ARCK is a local, volunteer-run, 100% non-profit organization founded by parents of children with autism. Our goal is to bring the autism community together for support and education.
Autism Society of Kentuckiana
P.O. Box 21895, Louisville, KY 40221-0895
Rebecca Thompson 502-263-5708
info@ask-lou.org ask-lou.org
Monthly support meetings, second Saturday of each month, 10:00 a.m.- 2:00 noon. Contact Rebecca Thompson to be added to listserv for meeting announcements.
Autism Society of North Central Indiana
P.O. Box 1537, La Porte, IN 46352 asnci@yahoo.com http://www.asnci.org/
The mission of the ASNCI is to support, educate, and empower those struggling with autism and their families. We will support those with autism through support groups and
any or all resources available in our community. We will raise public and professional awareness of autism spectrum disorders. We will empower those in the autism community to never give up in their search to help their loved ones reach their full potential. We will solicit and receive funds to accomplish this mission.
Autism Spectrum Coalition
P.O. Box 524. Crown Point, IN 46308 219-789-9874
info@aspergersyndrome.org https://www.facebook.com/profile. php?id=100057726667332
Provides a single resource for families and the many professionals who deal with the challenges of Asperger syndrome, autism, and PDD/NOS.
AUTISM SPECTRUM DISORDERS FAMILY SUPPORT GROUP
c/o Sonya Ansari Center for Autism at Logan 2505 E Jefferson Blvd South Bend, IN 46615
Contact: Leanne Suarez, 574-2894831, leanne@logancenter.org Website: http:// ansaricenterforautism.org – See more at: http://www.iidc.indiana. edu/index.php?pageId=546#sthash. GoNSUtKq.dpuf
Autism Support Group for Parents
Tracy Briggs tracy.biggs@franciscanalliance.org
Autism Support Group Greene/Sullivan
Krisi Crabb krisicrabb@gmail.com https://www.facebook.com/groups/ 1464297173898557/
An opportunity to meet and share stories, successes, and resources with others on this journey in our area. Sign up for email alerts, newsletters, and updates at the following link: http://eepurl.com/bNIDiD
Autism Support Group Huntington 123 West Hill Street, Wabash, IN, 46992 (800) 609-8449 Ext 909 khopper@inautism.org http://www.inautism.org/ This site is set up to provide a place for sharing about autism events. It’s also for parents to communicate with other parents, grandparents, aunts, uncles, etc... who are in need of support.
BrightStars https://www.facebook.com/groups/ BrightStarsHendricksCty/ brightstars-owner@yahoogroups.com
BrightStars is a Hendricks Countybased home school group with the purpose of providing social interactions for home-schooled children. We are a casual, informal, secular group that has weekly meetings at various parks and places in Hendricks County.
Cincinnati Special Needs Homeschooling
Cincinnati, Ohio (865) 591-1802
Amy Chamberlin amy.chamberlain@lcc.culturalcare.com https://www.facebook.com/groups/ 1835887663297900/ A group for special-needs homeschooled students and their parents to participate in group events and find support.
Columbus Autism Network Support Group columbusautismnetwork@gmail.com http://columbusautismnetwork.com/ We are a support group of parents and caregivers in Columbus, IN, and the surrounding area. Contact us for more information.
D.A.D.S. National
Dads Appreciating Down Syndrome National, or D.A.D.S. National, supports local D.A.D.S. organizations across the United States and around the world. The mission of D.A.D.S. National is to assist and support, through fellowship
and action, the fathers and families of individuals with Down syndrome. The cornerstone of a D.A.D.S. group is the monthly meeting where members come together to share insights and experiences. Groups invite expert speakers to discuss medical, educational, financial, social, and any other issues that affect their children’s lives. And of course, they share stories and experiences that are unique to fathers of children with Down syndrome. Learn more about D.A.D.S. National at https://dadsnational.org/
DSI Black Family Village Community Group
The Black Family Village of DSI is a group of family, friends, advocates, and support specialists who have come together to support, encourage, and uplift our loved ones born with that “extra special” extra chromosome, as well as, those who care for them. Learn more at https://dsindiana. org/black-family-village-of-dsi/
DSI Cass Area Down Syndrome (C.A.D.S) Community Group
This group was designed to bring families closer together as a community of parents that are raising children with Down syndrome in Cass County and the surrounding areas. Learn more at https://dsindiana.org/c-a-d-s/
DSI Cuenta Conmigo Community Group
Cuenta Conmigo es un grupo de apoyo a padres de niños con síndrome de Down en Español. Cuenta Conmigo es un grupo de apoyo a padres de niños con síndrome de Down en Español. Los temas varían mes con mes. Los temas varían mes con mes. https:// dsindiana.org/cuentaconmigo/
DSI DADS
Down Syndrome Indiana currently hosts the monthly D.A.D.S.® meetings in Indianapolis. DSI D.A.D.S.® monthly meetings are held on the 2nd Tuesday of every month at 6:30 PM. Contact Chaz Druetzler at dads@dsindiana. org for more information. Any dad – or grandfather, uncle, brother, teacher, physician – who cares for
someone who has Down syndrome, is invited. Visit https://dsindiana.org/ dads-php/ for more information.
DSI Delaware County / Muncie Community Group
Down Syndrome Indiana Delaware County / Muncie is a local parent support group for families who have a loved one with Down syndrome. Learn more at https://dsindiana. org/dsi-delaware-county-muncie/
DSI East Central Community Group
DSI East Central serves families of individuals with Down syndrome who reside in Hancock, Henry, Madison, Rush and Shelby Counties. Learn more at https:// dsindiana.org/dsi-east-central/
DSI Lafayette Community Group
DSI Lafayette provides information and support for families touched by Down syndrome. Local outreach includes, but is not limited to, new parent packets, personal family contacts, family support group meetings and events. Visit https:// dsindiana.org/lafayette/ for more information and ways to get involved!
DSI Self Advocates Community Group
The DSI Self Advocate Community Group meet each month at a different location around the Indianapolis area. The group enjoys fun activities such as bowling, dancing, pool parties, and so much more! Learn more at https:// dsindiana.org/self-advocates-php/
DSI Southside Community Group
DSI Southside serves families of individuals with Down syndrome who reside on the southside of Indianapolis and in Johnson and surrounding counties. Learn more at https://dsindiana.org/dsi-southside/
DSI Teens Community Group
The DSI Teen Group is a for individuals with Down syndrome between the ages of 13 – 18. Meeting locations and activities vary monthly. Email garner@ dsindiana.org for more information or visit https://dsindiana.org/dsi-teen/
DSI
Terre Haute Community Group
DSI Terre Haute is a playgroup/support group for families with a child or family member with Down syndrome in Terre Haute, Indiana. We believe that, together, our children can form lasting friendships, and we as parents and grandparents can talk with others who truly understand how each other feels. Visit https://dsindiana.org/terre-haute/
DSI Westside Playgroup Community Group
The Westside parent group is a fun, family oriented group that meets every other month. Meeting locations and activities vary. If you live in Hendricks County or the west side of Indianapolis, or just want to hang out on the west side, visit https:// dsindiana.org/westside-parent-group/
Easter Seals Crossroads
4740 Kingsway Drive, Indianapolis, IN 46205
Bonnie Fisher
317-466-1000 x2488 bfisher@eastersealscrossroads.org https://www.eastersealscrossroads. org/our-programs/learn/autismfamily-resource-center/ Group for parents or caregivers of a child with autism to meet other parents and caregivers at Parent Support Group meetings held every 3rd Wednesday of the month in the Autism Family Resource Center.
EMPOWER ENCOURAGE ENJOY THE AUTISM SPECTRUM
C/O Easter Seals Arc of Northeast Indiana 4919 Coldwater Road Ft Wayne, IN 46825
Contact: Susan Crowell, 260-6374409, eeeautismspectrum@yahoo.com
Contact: Sue Christman, 260469-2784, schristm@esarc.org
Families of Autism Coming Together (F.A.C.T.S)
Laura Tucker
ljtucker12@hotmail.com https://www. facebook.com/groups/FACTS17/ F.A.C.T.S is a peer-to-peer parent support group set up in 2017 by parents of children and young adults with a diagnosis of autism living in the Mid-Ulster, Northern Ireland, area. Our goal is to improve facilities for autistic people so that they can live in a safe and positive environment with independent living skills and the opportunities to lead the life that they choose.
FUSE
1133 W Main St, Ste E, Greenfield, IN (317) 462-9064
info@fuseinc.org http://www.fuseinc.org/ FUSE empowers families and individuals with disabilities and mental health needs by providing information, training, support, and encouragement. Please visit our website to learn more about our services.
Huntington Autism Support Group (800) 609-8449
khopper@inautism.org
Our Mission: To improve the lives of all people affected by autism in Indiana.
ICAN Indiana Canine
Assistant Network
5100 Charles Court, Suite 100, Zionsville, IN 46077
Phone: (317) 250-6450; Fax: (317) 731-7361 ican@icandog.org
ICAN trains and places assistance dogs with individuals with disabilities and provides foundational life skills to inmates through their experience as trainers. ICAN is the only ACCREDITED service dog training program based in Indiana.
Indiana ABA Parents
Kristine Lewis kristinend@gmail.com https:// www.facebook.com/groups/ IndianaABAParents/about
The Indiana ABA Parents Facebook group is for parents and guardians of children who need intensive behavioral (ABA - Applied Behavior Analysis) therapy for autism or other developmental disorders.
INDIANA BIOMEDICAL KIDS
Contact: Maria Janik, 219-9729543, amajanik1@comcast.net
Contact: Lisa Fox, 219-9470229, lisa_fox@comcast.net
Website: http://health.groups.yahoo. com/group/IndianaBiomedicalKids/ Facebook: http://www.facebook. com/#!/groups/indianabiomedkids/
Indy Parents Special Needs Community
https://www.facebook.com/ groups/949016611791391/
This page was started to help parents of children with developmental delays or disabilities find support and resources in the Indianapolis area. Parents only, please! If you are a provider, there is a closed group called Indy Providers Special Needs Community.
Kokomo Parents of Children with Autism belovedjoy79@yahoo.com https://www.facebook.com/ groups/277198992464549
A safe place for encouragement, help, and advice on anything related to autism from parents who have children on the spectrum. No judgment or condemnation.
MALS—MAKING AUTISM LESS SCARY
Allen Co. Public Library –New Haven Branch 648 Green St New Haven, IN 46774
Contact: Julie Dennis, 260-3882818, malsplace2007@gmail.com Website: http://malsplace2007. webs.com/
A monthly support group for everyone touched by autism, also has online support forum
Moms Night Out
Mom’s Night Out is a program designed especially for moms, grandmas, aunts
and loved ones of individuals with Down syndrome. The program meets at alternating restaurants to allow participants respite time, face to face interaction, networking opportunities and an evening out that they may not otherwise be able to afford.
Visit https://dsindiana.org/momsnight-out/ for more information!
Morgan County Autism Foundation
56 N Main St, Martinsville, IN 46151 (765) 813-0003
kaharmon22@gmail.com
https://cfmconline.org/donors/ funds-2/morgan-county-autismfoundation-fund-1281/ Not-for-profit organization in Morgan County, IN, for the purpose of raising autism awareness in our community and providing training to individuals, teachers, and other professionals; and to purchase needed educational technology so that individuals with autism can succeed to the best of their abilities.
My Autism Ally: Sibshops (ages 7 - senior in HS)
Contact: Sarah Savage, 260-4564534 ext. 218, ssavage@esarc.org
Website: myautismally. org/support-groups
My Autism Ally: Spectrum Sisters (females ages 18+)
Contact: info@myautismally.org Website: myautismally. org/support-groups
National Association For Down Syndrome (NADS)
1460 Renaissance Drive, Suite #102, Park Ridge, IL 60068 630-325-9112 (phone) 847376-8908 (fax) info@nads.org
Parent Support
Resource Referrals
Public Awareness
Self-Advocate Program
More Than Down Syndrome Retreats
Conferences & Seminars
Public Speakers for Schools, Medical Professionals, and Community Organizations Neurodiversity Club Westfield, Indiana
https://www.facebook.com/events/ westfield-washington-public-library/ neurodiversity-club-westfield/1090 330351696551/?locale=ms_MY
Join us in-person on Wednesday night from 6:30-7:30 pm! We welcome all parents, caregivers, community supports, and friends. Come for the journey and stay for the joy...Neurodiversity Club Westfield sponsored by Carter’s Play Place and Autism Society of Indiana!
Northside Indianapolis
Autism Support Group
Jane Grimes jane@appliedbehaviorcenter.org
Reach-In Special Needs Family
1858 E 8th St, Jeffersonville, IN 47130 812-786-8402
ourreachin@yahoo.com
https://myreachin.com/
This group welcomes parents of children with ANY/ALL disabilities. Currently, online group meetings are held every Thursday evening 6:30-8 pm by invite to Zoom. If you wish to join, contact Tracy Brown at 812-736-9276 to join the Facebook group. In the future, face-to-face meetings are planned. Contact Tracy Brown with questions and/or check website often for updates.
Special Parents-Special Kids
Lafayette, IN (765) 543-7252
specialparentsspecialkids@yahoo.com
To provide events and services to kids with special needs and their families.
SOS Kids
(812) 631-3654(Dara) (812) 482-9536 (Dana)
oneilgang@hotmail.com
SOS Kids Parent Network connects parents of children or adults with special needs who live in SW Indiana so that we can share information and experiences...and learn from each other!
The Autism Community in Action (TACA)
2222 Martin Street, Suite 140, Irvine, CA 92612 (855) 726-7810
teamtaca@tacanow.org
http://www.tacanow.org/
Mission: TACA provides education, support, and hope to families living with autism. Vision: For every individual diagnosed with autism to lead an independent life.
The Hazel Center 317-813-9524
info@thehazelcenter.com http://www.thehazelcenter.com/
A nonprofit organization providing support for children with high functioning autism and their families.
The Voice 319 Main Street, Elkhart, IN 46516 Viv Blakeslee 574-294-6197 ext.5 blakesleev@adecinc.com http://www.adecinc.com
This group is support-education focused for parents of children with ANY/ALL disabilities who receive special education services
Through the Eyes of Special Kids 219 South Scatterfield Rd., Muncie, IN 46016 765-610-4674
throughtheeyesofspecialkids@ gmail.com http:// throughtheeyesofspecialkids. yolasite.com/
Through The Eyes of Special Kids was born to connect families with resources and support.
Turnstone Parent Support Group 3320 North Clinton Street, Ft. Wayne, Indiana, 46805 (260) 483-2100 angela@turnstone.org http://www.turnstone.org/
Founded in 1943, Turnstone’s mission is to provide therapeutic, educational, wellness, and recreational programs to empower people with disabilities.
MEPHIBOSHETH: A CLOSER LOOK
BY PAUL HATHCOATIN THE INTRICATE TAPESTRY of the Bible, there are stories that resonate deeply with the human experience, offering profound lessons and timeless inspiration. Among these narratives lies the remarkable tale of Mephibosheth—a story of adversity, redemption, and divine grace that speaks volumes to parents raising children with intellectual and developmental disabilities. Let’s look at this story together, and discover its foundational message, from a pastor’s perspective.
Mephibosheth’s journey unfolds in the pages of the Old Testament, primarily in the books of 2 Samuel and 2 Samuel 9:1-13. Born into the lineage of King Saul, Mephibosheth faced a challenging start to life, as he was afflicted with a disability that scholars widely believe to be paralysis or lameness. In a society where physical perfection often equated to status and privilege, Mephibosheth’s condition could have relegated him to the margins of society, forgotten and overlooked. Yet, despite his physical limitations, Mephibosheth’s story is one of resilience and unexpected favor. After the downfall of King Saul’s house, young Mephibosheth found himself thrust into a world of uncertainty and danger. His nurse, in a rush to flee the impending chaos, accidentally dropped him, leaving him permanently disabled.
Years later, when King David sought to extend kindness to anyone left of Saul’s household, Mephibosheth emerged from obscurity. Expecting nothing but judgment and perhaps even punishment for his familial ties, Mephibosheth instead found himself seated at the king’s table, treated as one of David’s own sons.
This act of grace and acceptance, despite Mephibosheth’s physical limitations, speaks volumes about the nature of God’s love and compassion. In a world that often values outward appearance and abilities, God looks beyond the surface to see the worth and potential in
each individual. Mephibosheth’s story reminds us that our worth is not determined by what we can or cannot do, but by the intrinsic value we hold as beloved children of God.
For parents navigating the challenges of raising children with intellectual and developmental disabilities, the story of Mephibosheth offers invaluable lessons and encouragement. Just as King David extended kindness and inclusion to Mephibosheth, parents can create an environment of love and acceptance for their children, celebrating their unique gifts and talents.
Moreover, Mephibosheth’s story teaches us the power of advocacy and support. Mephibosheth likely relied on others for assistance in navigating daily life, much like many children with disabilities today. By surrounding their children with a supportive community and advocating for their needs, parents can empower them to thrive despite any challenges they may face.
In addition to these practical lessons, Mephibosheth’s story also serves as a source of spiritual encouragement. Just as God used Mephibosheth, with all his limitations, to bring about goodness and blessing, so too can He work through our children, regardless of their disabilities. As parents, we can take comfort in knowing that God has a purpose and a plan for each of our children and that He is able to use even the most unlikely individuals to accomplish His will.
As we reflect on the story of Mephibosheth, let us be inspired to emulate King David’s example of kindness and inclusion, and to trust in God’s unfailing love and sovereignty. May we see our children not through the lens of their disabilities, but through the eyes of a loving and compassionate Creator who delights in them just as they are. And may we continue to journey alongside them, offering support, encouragement, and unwavering love every step of the way. Be blessed today!
Do you have a thought, idea or information that you would like to see in this section in an upcoming issue? Email Paul Hathcoat at phathcoat@wrcc.org.
Committed To Making A Positive Impact And
Driving Meaningful Change For Individuals With Disabilities
Founded in 1985, Tangram is a leading nonprofit organization based in Indianapolis, Indiana, dedicated to empowering individuals with disabilities to achieve their fullest potential. Through a wide range of person-centered programs and services, Tangram provides support, resources, and advocacy to enhance the quality of life for individuals with disabilities and their families.
With a focus on inclusivity, independence, and community integration, Tangram offers tailored solutions to meet the unique needs of each individual, fostering a supportive environment that promotes personal growth and opportunities for meaningful engagement. By joining alongside other community partners, Tangram strives to create a more inclusive society where people of all abilities are valued and included. Tangram offers a wide range of individualized services to meet the unique needs of the people we serve, such as:
Community and Residential Support
ABA Therapy and Behavior Consulting
Life Coaching
Employment Services
Transportation
Wellness Services
Education and Training
and Much More!
At Tangram, we are committed to making a positive impact and driving meaningful change for individuals with disabilities, promoting equality, and fostering a more inclusive and accessible world for all. For more information about our programs and services, volunteer opportunities, or ways to support our mission, please visit thetangramway.org or contact us at info@thetangramway.org.
The Muscular Dystrophy Family Foundation uses its collective resources to help those with a neuromuscular disease live safer, more independent lives.
The month of May is Indy 500! Noise cancelling headphones are a great de-stressor in loud settings.
Noise canceling headphones can be used for music and phone calls, but they can also be used simply to drown out noise. This can be a huge help for individuals who have sensory problems or may need help focusing. The great thing about having noise canceling headphones is they can be used without bothering others. Whether you need sounds that keep you grounded or you need to tune out external noises, you can put on your headphones and enjoy!
(888) 506-4182 | specialized4u.com 621 N Central Ave, Connersville, IN 47331 specializedhomecareservices@gmail.com.
Sensory Blurb!
Sensory items to better support the community
Z-Vibe Vibrating Chew Tools
Z-Vibe vibrating chew tools can be used to reduce sensitivities and to improve a variety of speech and feeding skills. It is highly recommended for individuals with low oral tone, oral defensiveness, and/or texture aversions who need sensory oral motor stimulation. Using a Z-Vibe can not only improve oral motor skills, but it can help reduce anxiety and sensory needs as well. Indiana Medicaid Waivers including CIH, FSW and A&D can help to pay for these items. Feel free to reach out and see if we can help!
Ruth Roberts at Specialized Home Care Services 621 N Central Ave Connersville, IN 47331 ruth@specialized4u.com (317)-348-0708 Mobile (317)-348-0708 Fax
LOCAL EVENTS
BY CHRISTIA WOODFORD — PUBLISHING ASSISTANT AND LOCAL EVENTSNote: Don’t forget to apply for the Access Pass! The Access Pass Program allows families that meet the specific requirements listed below to visit The Children’s Museum of Indianapolis and all participating locations for $2 per family member per visit for up to two adults and all dependent youths living in the household. You qualify if you receive:
• Hoosier Healthwise Insurance (Indiana’s health care program for low-income families, pregnant women and children)
• SNAP (Supplemental Nutrition Assistance Program)
• TANF (Temporary Assistance for Needy Families)
• Apply here: https://www. childrensmuseum.org/visit/ hours/access-pass.
Museums
The Children’s Museum of Indianapolis Museum My Way
June 11, Oct. 9, Dec. 10, 4:00 pm-7:00 pm
An adaptive museum experience Capacity limited. Registration required. This special event is an opportunity for visitors with disabilities and/or sensory sensitivities to experience the museum in a new way. Families and groups of all abilities are welcome to play and learn together!
Sensory modifications to the museum environment include:
• Limited capacity
• Quiet area with sensory items
• Some music is turned down or off
• Edited lighting effects in some areas Members: Free, Nonmembers: $6 per person
• Access Pass: $2 per person. For tickets: https://www.childrensmuseum. org/visit/calendar/event/464
First Thursday Night- First Thursday every month
May 2, 4:00 pm
On the first Thursday of every month, we open our doors from 4–8 p.m. for just $6 admission per person! Why should you visit?
Admission is just $6 per person for the entire museum. That’s a savings of more than 75% per ticket!
It’s the ONLY time the museum is open to the public in the evening, so it’s a perfect after-hours night for your family.
It’s not as crowded as you might think! We have limited capacity on First Thursday Nights. Parking is always free!
Our Food Court is open, so you can grab a quick and easy dinner for the whole family. Low cost. Low crowds. Late night play! https://www.childrensmuseum. org/visit/calendar/event/273
Various Events
May 1- May 31, Opens at 10 AM 3000 N. Meridian St., Indianapolis, IN 46208, 317-334-4000 https://www.childrensmuseum.org
Conner Prairie — Indiana’s Living History Museum WE CAN CAMP
May 4 & 5, additional dates Aug. 17 & 18, Aug. 24 & 25
LOVE THE IDEA OF CAMPING AS A FAMILY BUT DON’T KNOW WHERE TO START?
Join us as you learn basic camping skills, enjoy fun outdoor experiences and spend the night on our grounds in a tent! This program is perfect for firsttime campers or anyone looking for a refresher. We provide all the camping gear you’ll need, along with modern restrooms and overnight security.
To reserve your spot: https://www. connerprairie.org/we-can-camp/
Sensory-Friendly Hours
The second Sunday of every month, from 10 AM to noon, are sensoryfriendly hours at Conner Prairie!
Enjoy a calm environment
Check-in with Guest Relations, stating that you are here for sensory-friendly hours. You will get free admission and may stay as long as you wish.
Various events
Apr.1- Apr. 30, 10:00 am- 10:00 pm 13400 Allisonville Road, Fishers, IN 46038
Phone: 317-776-6000 or 800-966-1836 https://www. connerprairie.org/events/list
Indiana State Museum
Sensory Friendly Afternoon
650 W. Washington St., Indianapolis, IN 46204
Experience the Indiana State Museum in a sensory-friendly way! Each month, we’ll lower the lights and reduce distractions to give children and adults with sensory processing differences a chance to enjoy an interactive learning experience in a comfortable and accepting environment. Social narratives will be available at the ticket counter and sensory–based activities will be spaced throughout the museum. Plus, check out a Sensory Bag to make your experience even more enjoyable. Check calendar for dates https:// www.indianamuseum.org/calendar/
Sports
Adaptive Ballet Class
May 20, 4:40 pm- 5:30 pm Greenfield Church of Christ, 1380 South State Street Greenfield, IN 46140
Come join our Adaptive Ballet Class where everyone, regardless of ability, can experience the joy of dance! Register: https://www.eventbrite. com/e/adaptive-ballet-class-tickets858615430867?aff=oddtdtcreator
Indy Eleven
May 18, 25
IU Michael A. Carroll Track & Soccer Stadium, 1001 W New York St. Indianapolis, IN 46202 https://www.indyeleven.com/
Indianapolis Indians
May 1, 2, 3, 4, 5, 14, 15, 16, 17, 18, 19, 27, 29, 30, 31 Victory Field, 501 W Maryland St, Indianapolis, IN 46225 https://www.milb.com/indianapolis/ schedule/2024-03
Family Fun
Indianapolis Zoo Zoo Camp Spring –April 1-5
Summer – June 3-7, 17-21, 2428; July 8-12, 15-19, 22-26
From learning about wild animals to careers in conservation, campers at the Indianapolis Zoo have a blast exploring and learning while making new friends! Zoo Camps are offered during school breaks during the year. Camps include outdoor exploration of the Zoo and special behind-the-scenes tours to meet animal ambassadors and members of the Zoo’s animal care team. Zoo Camps also foster curiosity and STEM-based skills such as investigation, collaboration, problem solving, communication and more through fun hands-on activities. For information and registration https://www.indianapoliszoo.com/ learn-explore/zoo-camps/
Zoopolis 500
TORTOISES, START YOUR ENGINES! May 22, Event starts at 11:15 amThis unique annual event and race-fan favorite includes a morning of familyfriendly festivities leading up to the “Greatest Spectacle in Tortoise Racing.”
As you come in, meet 500 Festival Princesses and snap photos with a 500 Festival pace car and the giant milk jug, then head to the Bicentennial Pavilion for the pre-race festivities. Plus, the American Dairy Association Indiana, Inc. will be handing out free TruMoo chocolate milk (while supplies last). Make sure to arrive early to meet a snake at the Snake Pit.
https://www.indianapoliszoo. com/events/zoopolis-500/
Various events scheduled daily May 1- May 31, 9:00 am- 4:00 pm 1200 West Washington St. Indianapolis, IN 46222 https://www.indianapoliszoo.com/
Sensory Friendly Play | Urban Air Noblesville
May 5, June 2, July 7, 9:00 am- 11:00pm 14450 Mundy Dr, Noblesville, IN 46060
Join us for Sensory Friendly Play the first Sunday of each month (unless conflicted by holiday)!
Sensory Friendly Play is an event specifically designed for children with sensory processing difficulties to enjoy
time at the park without loud music, flashing lights- and to have a lot of fun! $15.99 Ultimate Pass per child
Parents are FREE!! *Socks not included *Memberships are not valid with this event https://indywithkids.com/locations/ urban-air-trampoline-andadventure-park-noblesville/
Adaptive Dance | All Ages-Therapeutic
May 7, 6:00 pm- 7:00 pm
Rhodius Park Sensory Gym, 1720 W Wilkins St, Indianapolis, IN
Come join Indy Parks for fun and active movement! Indy Parks partners with Art Mix to present Adaptive Dance classes for all ages.
These classes are beginning dance classes. The instructor will and can adapt dances, and/or the program to accommodate all dancers. The dance styles may vary from hip-hop, line dance, and exercise dance to possible classics. Link to Register for classes. https://anc.apm.activecommunities. com/indyparks/activity/search/ detail/26378?onlineSiteId=0&from_ original_cui=true
Classes are on Tuesdays ONLY
Alex Gold: Stuck on RepeatSensory Friendly Performance
May 12, 2:15 pm, 4:00 pm, 5:00pm shows
Waldron Art Center, 122 S Walnut St, Bloomington, IN 47404
Constellation Stage & Screen presents a sensory friendly performance of Alex Gold: Stuck on Repeat, a hilarious classroom adventure where the audience gets to make all the decisions!
11-year-old Alex Gold needs to repeat the 6th grade – maybe he shouldn’t have spent so much time watching superhero movies, playing adventure games, and drifting off into his own actionpacked daydreams. Luckily, Alex has surrounded himself with some trusted friends (you, the audience!) to help him make the best choices to succeed! This one-of-a-kind classroom comedy blends improv and audience interaction, proving every day is an opportunity for reinvention. Can you successfully guide Alex through this hilarious new show where every single performance offers different twists and turns?
Constellation offers select sensory-friendly performances for our Constellation for Kids series. This special performance is designed to create a theater experience that is welcoming to all families with children with autism or other sensory sensitivities. Plus, tickets to Constellation’s Sensory-Friendly performances are Pay What You Will, meaning you get to choose your own ticket price (from $5-$75) https:// seeconstellation.org/kids/alex-gold/
Easterseals iCan Bike Day Camp 2024
June 3 through June 7 Must Register by May 10 8:00 am- 4:00 pm Indiana National Guard Armory, 3300 East Division St. Evansville, IN 47714
Registration Contact: Patty Balbach, PBalbach@evansvillerehab.com. For information or to register for this bike camp please e-mail Patty directly at pbalbach@evansvillerehab. com or call 812-479-1411 ext. 268. Kids, Youth and Adults learn to ride regular, two-wheeled bike using a series of adapted bicycles! Cost includes five day bike camp (each participant attends for 75 minutes daily), an iCan Bike tee shirt and a safety helmet!
Designed for individuals aged 8 and up with mild to moderate disabilities or disabling conditions (cerebral palsy, Down syndrome, autism, coordination issues, obesity, etc.)
Volunteers needed!!! Must be aged 15+, be able to walk/run alongside a person on a bike and be available all five days (June 3-7, 2024, 8:00 am to 12:30 pm or 1:00 to 4:30 pm, or both) iCan Shine: We understand that the vast majority of people with disabilities never have the experience of independently riding a conventional two-wheel bicycle during their lifetime. Research shows that over 80% of people with autism and 90% of people with Down syndrome never experience this thrill. Defying these odds is why we exist! To Register: https://icanshine.org/evansville-in/
The Studio Movie Grill 3535 W. 86th St., Indianapolis, IN 46268 317-315-8113
Sensory-friendly screenings of movies! Check the website for movies and times. https://www.studiomoviegrill.com/ movie/special-needs-screenings
The Arts
Beef and Boards
The King and I Apr. 4 - May 19, 2024
The Wizard of Oz
May 23 - July 7, 2024
9301 Michigan Rd, Indianapolis, IN 46268
https://beefandboards.com/ Online/default.asp
Jubilate
Choir
Butler University, Lilly Hall, Room 133 Wednesdays, 6:45-7:30 PM
The Jubilate Choir is for singers with special needs in grades 3-9. Singers with varying abilities meet each week to grow musically. This tuition-free choir focuses on proper singing techniques, music theory and sight-reading, partsinging, and social skills involved in being a member of a musical ensemble. Though Jubilate has, at its core, the same goals as other choirs in the Indianapolis Children’s Choir (ICC), singers in Jubilate engage in additional activities like visual and tactile experiences that are catered specifically to the current members of the choir. Director: Lauren Southard For more information, contact Lauren Southard at 317-940-8065 or lsouthar@icchoir. org. https://icchoir.org/special-needs/
Gigi’s Playhouse
Various classes during the week. 5909 E. 86th St., Indianapolis, IN 46250 317-288-8235 indy@gigisplayhouse.org https://gigisplayhouse.org/ indianapolis/sfcalendar/
Events
Resource Fair-Whiting High School
May 8, 5:00 pm- 6:00 pm 1800 New York Ave, Whiting, Indiana 46394
Whiting High School is planning a Resource Fair. Enter through Door 10 for the Cafeteria.
Family Support Webinar: Unlocking No-Cost Resources and Technologies: Empowering Students with Autism Indiana Resource Center for Autism (IRCA) May 10, 12:15 pm
Join Jena Fahlbush to learn about lite-tech solutions and tools to support and empower students with autism at home and at school. Jena will also share how students can trial the tools in the public-school setting at no cost through the PATINS Project’s Assistive Technology Lending Library. Free Register at https://events.iu.edu/ iidc/event/1246356-family-supportwebinar-unlocking-no-cost-resources
Northeast Indiana Disabilities EXPO
May 11, 10:;00 am- 3:00 pm Allen County War Memorial Coliseum, 4000 Parnell Ave, Fort Wayne, IN 46805
My Autism Ally is excited to be a sponsor and provide the Sensory Calming Area at this year’s Northeast Indiana Disabilities EXPO
Find out everything you need to know about this year’s event at their website https://disabilitiesexpoindiana.org/ FREE ADMISSION to the event and FREE PARKING (just tell the parking attendant you’re there for the Disabilities Expo)
DSI D.A.D.S. Monthly Meeting
May 14, 6:00 pm- 8:00 pm
George’s Neighborhood Grill, 6935 Lake Plaza Dr, Indianapolis, IN 46220
The DSI chapter of Dads Appreciating Down Syndrome connects any dad, grandfather, uncle, brother, teacher, or physician who cares for someone who has Down syndrome through fellowship. DSI will pick up the check for your meal and the soft drinks. (Alcoholic drinks are available but you pay for those on your own.) For more info e-mail dads@dsindiana.org Down Syndrome Indiana’s DSI
D.A.D.S.® was the first of over 50 chapters and D.A.D.S.® is our gift to the greater Ds community. DSI helped launch D.A.D.S.® National, who helps other Down syndrome organizations start D.A.D.S.® as a committee or community group.
To find out more about the work of D.A.D.S.® National, please visit, https://www.dadsnational.org
Marion Disability Resource Fair
May 18, 11:00 am- 2:00 pm
Ivy Tech Community College Marion261 Commerce Dr, Marion, 46953
The Arc Advocacy Network will have information about Medicaid Waivers, Vocational Rehabilitation Services, guardianship and alternatives, Special Needs Trusts, the Erskine Green Training Institute, and a variety of other topics available for families and self-advocates. https://www.arcind.org/event/ marion-disability-resource-fair/
Walk 2024 About Walking for Dreams 2024 Celebrating Indiana Family to Family’s 20th Anniversary!
May 19, Virtually or in-person Indianapolis Walk at Crown Hill Cemetery, 700 W. 38th St., Indianapolis, IN 46208
Evansville Walk at Bally’s Riverfront, 421 NW. Riverside Dr., Evansville, IN 47708 Family and Pets walk to help us raise funds for wonderful nonprofit organizations. https://p2p.onecause. com/walkingfordreams/ charity/indiana-family-to-family
SibShops-Indianapolis
May 23, 5:00 pm- 8:30 pm 5377 E Washington St, Indianapolis, Indiana 46219 317-748-4802
SIBSHOPS ™ is a national acclaimed program that provides peer support within a recreational environment for children who have a sibling with special needs. Registration Information: www. creativepathwaysindy.org, janschreibman@gmail.com
COSTS:
• One Sibling $15
• Two Siblings $20
• More than two Siblings $25with special Sibshops is a fun-filled event geared toward specific needs of siblings with a brother/sister with special health and developmental needs.
1. Siblings have opportunity to meet other siblings in a relaxed, recreational setting
2. There is opportunity to discuss common joys and concerns with others
3. Siblings have opportunity to learn about disabilities and the implications for the future growth and challenges
AGES: 6 to 13y.o. and 14 to 18y.o.
INCLUDED: Arrive at 5:30pm for light dinner followed by programming
Attendant care changes are hard. We’re here to help
Prior Authorization Hours
In-home care provided by a certified caregiver. The caregiver must have a Home Health Aide, LPN, or RN certification. Allowed caregivers are spouses, parents of minor children, or any other qualified adults.
Structured Family Caregiving
A daily stipend available on some Indiana Waivers. This option requires caregivers to share a home with the care receiver. Prior Authorization Hours can be used with SFC.
Attendant Care Nursing Care
Hourly, in-home care provided by family and friends for minors and adults. This is a great option for caregivers who aren’t parents of minors. Attendant care can be used with Home Health Aide or Nursing hours.
In-home nursing care provided by an RN or an LPN. We service Prior Authorization Hours and Respite Nursing.
Special Needs Family Fun Day and Resource Fair at Smiley Indianapolis
On a bright and bustling day, families from the special needs community gathered at Smiley Indianapolis for a day of joy, connections, and support. Hosted by Special Needs Living Magazine, the event was a testament to the power of community and inclusivity.
Smiley Indianapolis, a 25,000 sq foot indoor playground and redemption arcade, offers a haven of fun away from the city bustle in a centralized location for Hoosiers. With unique interactive games and activities catering to children of all ages, Smiley ensured there was something for everyone. From trampoline basketball courts
to virtual reality centers, the venue buzzed with excitement. Attendees reveled in the diverse range of activities available, from navigating the ball pit to enjoying the sensory rice station to indulging in arcade games and relishing delicious treats from the onsite café. Smiley’s commitment to inclusivity shone through as children of all abilities laughed and played together, making cherished memories. The success of the event wouldn’t have been possible without the unwavering support of Special Needs Living Magazine’s partners. Their
dedication to the special needs community provided a platform for families to come together, access valuable resources, and create lasting connections.
As families and individuals immersed themselves in the festivities, laughter echoed through the halls as new friendships blossomed and old bonds strengthened. It was a day of celebration, acceptance, and empowerment for all who attended.
Special Needs Living Magazine extends its heartfelt gratitude to all attendees, partners, and supporters who made the Family Fun Day and Resource Fair a resounding success. Together, we continue to build a community where every individual is valued, included, and celebrated for who they are.
Contact Information:
Email: info@smileyindianapolis.com
https://www.smileyindianapolis.com
Front Desk: (317) 286-2625
If you’re seeking a vibrant venue for a few hours of fun or considering a spot for your next party or event, we wholeheartedly recommend Smiley. Collaborating with Smiley for this event was a delight, and we eagerly anticipate the opportunity to do so again in the future.
Exciting news! Smiley has recently unveiled a new location in Mishawaka. For more details about their latest establishment, visit their website at: https://www.smileymishawaka.com
Regular Business Hours at Smiley Indianapolis:
Monday: 11:00 AM - 8:00 PM
Tuesday: Closed
Wednesday: 11:00 AM - 8:00 PM
Thursday: 11:00 AM - 8:00 PM
Friday: 11:00 AM - 9:00 PM
Saturday: 10:00 AM - 10:00 PM
Sunday: 11:00 AM - 9:00 PM
Party Desk: (317) 600-0974
Address: 5729 E. 86th St., Indianapolis, IN 46250
Available for patients 18 and up!