MEET RICKY HULL
Meet the Uniquely You! Team
STAFF WRITERS
PHOTOGRAPHERS
Isaac Roman Writer and Photographer
Katie Mendez Photography
Heather Gregg — Photographer, 21 Vines Photography
Jane Gailey
Dorie Zipperle
Charles Spray MS, LMHC
Tanya Sood
Paul Hathcoat
Lindsey Watson Susan Graham
Shelley Harkness — Scheduling Assistant N2 Publishing
Christina McGairk Editor and Writer
Dr. Darolyn “Lyn” Jones Content Coordinator and Writer
Angela Arlington — Community Engagement Coordinator, Writer and Contributor
Maria Smietana Editor-in-Chief
Christia Woodford — Publishing Assistant and Local Events
Jamie Olson Publisher and Area Director
ISSUE PREVIEW
14-16 Featured Individual: Meet Ricky Hull
18-19 Sponsor Spotlight: BehaviorWorks ABA 20 What’s Happening at Janus, Inc.?!
Sharing Employee Success
22 You’re Invited to the Uniquely You & Carter’s Play Place Community Fun & Resource Fair!
24-25 Finacial: Moving the Special Needs Trust Beneficiary and Special Needs Planning to Another State
26-27 If You Could Only See Pain
28-31 Picture is Worth a Thousand Words: In Honor of Down Syndrome Awareness Month
32 Pastor’s Corner: Finding Strength in Community 36-37 Milestones: Marley’s Journey
38-39 National Disability Employment Awareness Month Spotlight
42-45 Uniquely You! Event Recap: Rock the Spectrum
46 Sensory Blurb! Reader Pen
47-50 Local Events
OWNER/ADVERTISING INQUIRIES
Jamie Olson
jamie.olson@n2co.com 248-882-8448
Scan the QR Code to Subscribe or Nominate:
UNIQUELY YOU INDIANA FACEBOOK PAGE https://www.facebook. com/UniquelyYouIndy (LIKE & FOLLOW US)
Featured Individual: Meet Ricky Hull
Uniquely You! Event Recap: Rock the Spectrum
Milestones: Marley’s Journey
A Picture is Worth a Thousand Words: In Honor of Down Syndrome Awareness Month
Single Momas Seen: Dating Challenges: Facing & Overcoming Fears
What’s Happening at Janus, Inc.?! Sharing Employee Success
Sponsor Spotlight
ComForCare Home Care goes beyond just home care. We understand the unique needs of families with medically complex children. We offer a network of support, ensuring their caregiving journey is a bit lighter.
Call or text with questions
317-575-3983
comforcare.com/indiana/north-metro-indianapolis
@comforcareindy
@comforcare_northmetroindy
Our Services
• Medicaid PA Home Health Aide Service
• Structured Family Caregiving Service
• Private Duty Home Care Services
• Medicaid Attendant Care Services
SCAN TO LEARN MORE
This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance!
AAC AND ASSISTIVE TECHNOLOGY
Tobii Dynavox (800) 344-1778 www.Tobiidynavox.com
ABA & COMPREHENSIVE SERVICES
BehaviorWorks ABA (317) 731-7777 behaviorworksaba.com
K1ds Count Therapy (317) 520-4748
Mindful and Modern ABA Therapies (317) 827-7777
ABA / RESIDENTIAL & COMMUNITY SUPPORT
Tangram www.TheTangramWay.org
ABA SERVICES
Piece by Piece Autism Center (765) 481-2261
The Umbrella Center (463) 701-0909
ABA SERVICES - IN HOME B Above Services (317) 773-0500 www.baboveservices.org
Blue Balloon ABA (317) 650-1109 www.blueballoonaba.com
ABA/COMPREHENSIVE SERVICES
The Hope Source (317) 578-0410
ADULT INDEPENDENCE
Janus Developmental Services, Inc. (317) 773-8781 www.janus-inc.org/
ATTORNEY-WILLS/TRUSTS/ ESTATE PLANNING
Law Office of Elizabeth A. Homes LLC (317) 660-5004
Stinson Law Firm (317) 622-8181 www.stinsonlawfirm.com
BEHAVIOR MANAGEMENT
Supportive Behavior Services (765) 337-1895 www.supportive behaviorservices.com
CASE MANAGEMENT
Connections Case Management (317) 440-0637
CLEANING: RESIDENTIAL & COMMERCIAL
The Dust Devils (317) 709-6120
COMMUNITY SUPPORT
Achieve Community Services (317) 918-0337 acssupports.com/
AID of Indiana (765) 273-3999 aidofindiana.com/
Carters Play Place (317) 836-5510 cartersplayplace.com
LEL Home Services (317) 387-1443 lelhomeservices.com
Muscular Dystrophy Family Foundation (317) 615-9140 www.mdff.org Noble (317) 375-2700
Phoenix Community Services LLC (765) 622-7808 www.Phoenixcommser.com
The Arc of Hancock County (317) 462-3727 www. thearcofhancockcounty.com
EMPLOYMENT/ COMMUNITY SUPPORT
Hopewell Center (765) 642-0201 www.hopewellcenter.org
FINANCIAL
WestPoint Financial Group
Gordon Homes (317) 567-2005
HOME CARE
Amiable Home Care Inc. (317) 802-1746
HOME CARE & TRANSPORTATION
ABC Community Services LLC (317) 516-1178 www. abccommunityservices.com
HOME HEALTH SERVICES
ComForCare Home Care (317) 575-3983
www.comforcare.com/indiana/ north-metro-indianapolis Tendercare Home Health Services (317) 251-0700 www.tchhs.net/
HOME MODIFICATIONS / SPECIALTY EQUIPMENT
Specialized Home Care Services (888) 506-4182 www.specialized4u.com/
ICE CREAM
Howdy Homemade Ice Cream (317) 397-0008 www.howdyindy.com
INSURANCE
State Farm
John Cole (317) 430-1958
Thomas Insurance Agency (756) 561-5138
KID’S SENSORY GYM
Rock the Spectrum (317) 764-6607 werockthespectrum carmel.com/
MEDICAL EQUIPMENT & PHARMACY
George’s Pharmacy & Medical Equipment (855) 600-6251 www.georgespharmacy.com
MUSIC THERAPY
Dynamic Music Therapy (317) 829-6654
NEUROFEEDBACK THERAPY
Indy Neurofeedback (317) 888-8500
SCHOOL
Dynamic Minds Academy (317) 578-0410
Midwest Academy (317) 843-9500
SUPPORT SERVICES
Easterseals Crossroads (317) 466-1000
Joseph Maley Foundation (317) 432-6657 www.josephmaley.org
My Quillo (317) 626-4387 myquillo.com/
WAIVER PROVIDER & EMPLOYMENT
Putnam County
Comprehensive Services (765) 653-9763 www.pccsinc.org
317-977-2375
317-676-4222
800-609-8448
877-241-8144
800-545-7763
800-545-7763
800-622-4968
888-673-0002
800-403-0864
317-232-7800
317-925-7617
877-511-1144
317-466-1000
n2co.com
Celebrate. Connect. Impact. © 2024 The N2 Company, Inc.
Arc of Indiana www.arcind.org
Autism Community Connection www.autismcc-in.org
Autism Society of Indiana
Blind and Visually Impaired Services (BVIS) Bureau of Developmental Disabilities Services (BDDS)
Bureau of Rehabilitation Services (BRS) Deaf and Hard of Hearing Services (DHHS) DHHSHelp@fssa/in.gov
Disability Determination Bureau Division of Aging (IDA) Division of Family Resources (DFR) Division of Mental Health and Addiction Down Syndrome Indiana Early Childhood and Out of School Learning (OECOSL) Easterseals Crossroads www.easterseals.com/
IMPORTANT NUMBERS
911
800-545-7763
317-232-0570
844-323-4636
317-233-4454
317-232-7770
812-855-6508
317-233-1325
844-446-7452
855-641-8382
800-332-4433
800-457-4584
317-232-7770 988
800-772-1213
800-772-1213
877-851-4106
317-871-4032
800-545-7763
Emergency First Steps
Indiana Department of Education: Office of Special Education – www.doe.in.gov/specialed
Indiana Family to Family - www.inf2f.org
Indiana Family and Social Services Administration (FSSA) – www.in.gov/fssa/index.htm
Indiana Governor’s Council for People with Disabilities (GPCPD)
Indiana Resource Center for Autism
Indiana State Department of Health
Indiana Statewide Independent Living Council (INSILC)
Indiana Works
INSOURCE – http://insource.org/
Medicaid Disability
Medicaid Waivers
National Alliance on Mental Illness
Social Security Administration (SSA)
Social Security Disability Insurance (SSDI)
Special Education Questions
United Cerebral Palsy Association of Greater Indiana Vocational Rehabilitation Services (VR)
Jamie Olson: Uniquely You! Magazine Area Director jamie.olson@n2co.com 248-882-8448
Scan to view past digital copies, find resources, share a story or learn more about being involved.
Scan to view the past issues of Uniquely You! Indy
DISCLAIMER: Any articles included in this publication and/or opinions expressed therein do not necessarily reflect the views of The N2 Company d/b/a N2 Publishing but remain solely those of the author(s). The paid advertisements contained within the Uniquely You! magazine are not endorsed or recommended by The N2 Company or the publisher. Therefore, neither The N2 Company nor the publisher may be held liable or responsible for business practices of these companies.
NOTE: When community events take place, photographers may be present to take photos for that event and they may be used in this publication.
We’re proud to showcase businesses that share our commitment to fostering local connections. When perusing our pages, keep an eye out for the “Local Sponsor” icon to identify articles highlighting these valuable partners. Please note that businesses profiled may have provided free products and / or services for the review.
MEET RICKY HULL
MAKING A DIFFERENCE
BY DAROLYN “LYN” JONES AND CHERYL CARLTON
RICKY HULL was born in 1960 with Down syndrome. His parents were told to place him in an institution and to “forget about him”. The doctor told Ricky’s parents that he would never walk, talk, or feed himself. Ricky’s dad disregarded the doctor’s advice and instead brought him home to grow up with his eight brothers and sisters. Ricky’s siblings were never told that he was any different or that he needed special treatment. In the medical community, Ricky was considered to be “higher functioning,” so he was able to attend a special school, but only very basic life skills were taught.
To Ricky’s siblings, he was just another kid in the family, so his siblings brought home their books, sharing their school lessons with him in the evenings and in doing so, taught him to read
and write. Ricky attended school until he was 20 years old. He loved playing on his high school basketball team. After he graduated, Ricky went to work at Noble Industries, a sheltered workshop. His favorite job there was working with plants in the greenhouse. He worked there almost 30 years, until the passing of his mother in 2008.
Ricky then moved in with his sister, Cheryl and her husband, Kenny. He transitioned to working at a much smaller sheltered workshop with Sycamore Services in Danville, Indiana. Ricky loved his various cleaning jobs and especially loved cleaning nearby churches. He was involved in a community group that would go out once a week to movies, bowling, and restaurants. Ricky loved working and would have gone every day had the workshop been open. He never wanted to miss a day of work.
Sadly, a few years ago, Ricky began to exhibit signs of early onset Alzheimer’s, which is very common for older adults with Down syndrome. His sister, Cheryl, had to make the difficult decision to have Ricky retire from work at age 62. It has been difficult for Ricky’s siblings to watch him lose so many of the skills he worked so hard to gain—especially during a time when society and schools were not providing therapies and interventions to assist individuals with Down syndrome like they do now.
But Ricky is still Ricky. He has maintained his infectious smile and is still bringing joy to everyone around him. Whenever Ricky’s family starts to feel disheartened by the Alzheimer’s diagnosis, they remember what an amazing and extraordinary life he has lived and remind themselves that who Ricky is and what Ricky has accomplished can never be taken from him or his family.
On World Down Syndrome Day in 2019, Down Syndrome Indiana (DSI) encouraged individuals with Down syndrome to go out into their community and perform random acts of kindness to bring awareness to their many talents and contributions. Ricky decided to drop off doughnuts for officers at his local Avon, Indiana police department.
As soon as Avon Police Chief, Sean Stoops, met Ricky, they immediately became best friends. He asked about other activities that Ricky was involved in, so Ricky’s sister, Cheryl, shared with Police Chief Stoops that Ricky was raising money for his upcoming Buddy Walk. A few days later, a donation of over $700 was received from the Avon Police Department for Ricky’s Walking Warriors team. This helped Ricky meet and exceed his goal of $590. Down Syndrome of Indiana had announced that any team which raised $5,000 or more would have a billboard erected with their photo on it, so Ricky’s Walking Warriors team decided to dream big and set a new goal of $5,000.
Ricky’s story was picked up by the local news station, and it went viral. There was an outpouring
of support from, not only family and friends, but the entire community. Ricky far surpassed his goal of $5,000, raising almost $9,000. Ricky and his family were so happy and proud the day the billboard was unveiled and couldn’t wait for everyone to see it.
Cheryl says that it is still unbelievable to think that when Ricky was born in 1960, his parents were told to hide him away in an institution and in that moment, there was Ricky’s smiling face on a giant billboard for all to see.
Ricky’s Walking Warriors team had over 70 team members who walked with him in last year’s 2019
Buddy Walk—Ricky and Chief Sean Stoops leading the team. Ricky’s story continued to go viral and was featured on additional local news stations and even news stations as far away as Germany and Switzerland.
Ricky’s family wants you to know that Down Syndrome Indiana (DSI) is dedicated to enhancing the lives of children and adults with Down Syndrome by providing services and support to both them and their families. DSI is always working to promote the value, acceptance and inclusion of people with Down Syndrome.
Ricky’s family first became involved with DSI through the Buddy Walk in 2014. The Buddy walk is held each year in Indianapolis in October—Down Syndrome Awareness Month. It is DSI’s largest fundraiser. Ricky’s team, Ricky’s Walking Warriors, has participated in the Buddy Walk each year since 2014. Ricky is believed to be the oldest individual with Down Syndrome still actively participating in the Buddy Walk.
Ricky and his team of Walking Warriors loves that DSI not only brings awareness to Down Syndrome, but also works hard to promote and advocate for the value, acceptance, and inclusion of people with Down Syndrome. As more and more individuals with Down Syndrome are living longer, DSI is focusing on also gathering resources and supporting families dealing with the newer and unique challenges of an aging population who have Down Syndrome. Ricky’s Walking Warriors is continuing to raise money in his name for the Buddy Walk each year, even though he is now in a wheelchair and unable to physically participate in the walk anymore. We do this to keep his legacy alive and to bring awareness and hopefully answers eventually to the Down Syndrome/Alzheimer link.
When new or expectant parents are surprised with the diagnosis that their baby has Down Syndrome, they usually feel scared and overwhelmed and many times are provided with outdated information for their child’s future.
Parents can and should reach out to Down Syndrome Indiana through either a phone call, #317-925-7617 or through their website dsindiana.
org. Those parents will immediately be given a new, updated parent packet of information and connected to someone who can answer their questions and address their fears and concerns.
Participating in DSI’s Buddy Walk is a wonderful way for families with children
and adults with Down Syndrome to come and connect and share information and resources while also raising funds to support DSI’s many important projects.
And new parents should also know that DSI offers several support groups for both Moms and Dads like Lucky Mama Project and DSI D.A.D.S. And DSI hosts picnics, events, and gatherings though out the year to offer additional ways to connect in the Down Syndrome community.
Ricky’s family wants you to know that anyone with Down Syndrome can live a full and extraordinary life and make a difference, just like Ricky Hull.
BehaviorWorks ABA
Expanding to Noblesville and now offering diagnostic evaluations for autism
New Autism Clinic in Noblesville
Currently Enrolling with No Waitlist for ABA Services and Diagnostic Evaluations
BehaviorWorks ABA, a local leader in autism care, has opened a new clinic in Noblesville. Located at 19043 Cumberland Rd, Noblesville, IN, the clinic is currently enrolling children with ASD aged 2 to 10.
The new Noblesville location is in a former daycare space, so everything is customized for kids. There is an outdoor enrichment space, and bright natural light makes it an ideal setting for both clients and staff. The center will support children ages 2 to 10 and offer transitional programs that support in-school inclusion.
BehaviorWorks was established in 2006 by Ann Baloski. Ann has over twenty years of experience in the field of ABA and is committed to raising the bar for ABA therapy. BehaviorWorks is accredited by the Behavioral Health Centers of Excellence. The mission of BehaviorWorks ABA is to inspire positive behavior change in the most inclusive environment and to promote independence in all aspects of life through the highest standard of excellence in ABA. The clinical director is Katie Springer, who has a wealth of experience in ABA and
assisted with the start-up of the BehaviorWorks westside clinic. The center manager is Alissa Scott, who has over 10 years of experience in early childhood development. We are excited for you to meet our growing team.
BehaviorWorks has recognized the need for diagnostic evaluation for autism and has recently added this to the list of services that we offer. If you are interested in receiving a screening for autism or a comprehensive diagnostic evaluation, contact our team. There is currently no waitlist. Call us at 317-731-7777 to get scheduled. Dr. Cari A. Sovich is our in-house clinical psychologist. She has a proven track record in the mental
healthcare sector. Dr. Sovich specializes in diagnosing autism spectrum disorders, mood disorders, anxiety disorders, and developmental disabilities, as well as treating relationship issues and anger management problems. Her wealth of expertise ensures exceptional care for every client she serves.
“Early intervention is critical for children with autism, so we are thrilled to open a second location to help more families. We are excited that this space opened up, allowing us to expand to the northside of Indianapolis,” said CEO Ann Baloski.
The Westside clinic opened in 2017 and continues to be a thriving part of the community in the Wayne Township area.
BehaviorWorks
has recognized the need for diagnostic evaluation for autism and has recently added this to the list of services that we offer.
ABOUT BEHAVIORWORKS
BehaviorWorks believes early intervention works for autism. We focus on identifying the unique opportunities needed to maximize client outcomes. BehaviorWorks abides by proven scientific principles of natural ABA that enables us to connect with our clients, resulting in client self-motivation for sustainable change. We offer evidencebased services in our clinic, in client’s homes and in schools and use stateof-the-art technology to deliver these services. At BehaviorWorks ABA, we embody growth, compassion, and unwavering commitment. Learn more at www.behaviorworksaba.com.
Anna has received Employment Services through Janus for about 6 months and is coming up on her 5-month Anniversary of working at Wolfie’s Grill! Anna really enjoyed some volunteer opportunities that she participated in through high school, particularly working with guests at hotels or restaurants. So, when she started working with the Employment Consultant at Janus, she knew that she was interested in serving others and working with people in a dynamic setting. Anna and her Employment Consultant spent a few days exploring opportunities like a nursing home, a restaurant, or a daycare! When Anna and the Employment Consultant went to meet with the manager of Wolfie’s and learn more about any needs that could be filled, the manager asked some questions and offered Anna a job on the spot! Anna was ecstatic and so excited to begin working with the team. Anna helps to greet guests, escort them to their seats, clean tables and windows, and wipe down the tables after guests leave. Anna has done a fantastic job at Wolfie’s and the whole team loves her.
Written by families of those with special needs providing hope, inspiration, education and more.
Packed with resources for all.
Printed & Digital versions that reach over 30k in the state monthly
Clickable ads in digital copies direct to your site or social media
Index listing in print copies feature you as trusted resource
High visibility in a niche resource that will be viewed and shared repeatedly
Event opportunities to connect with the community Tailor your messages & Share valuable information to impact the community monthly
Help us to CELEBRATE, CONNECT & IMPACT the Special Needs Community
Stories written by special needs
individuals, families Looking for businesses to support non-profit organizations that support the community
To get started or learn more. Contact or scan the code (248) 882-8448 or Jamie.Olson@n2co.com.
You’re Invited to the Uniquely You and Carter’s Play Place Community Fun and Resource Fair!
Date: October 25th
Time: 4:00 PM - 7:00 PM
Location: 1021 Kendall Ct, Westfield, IN 46074
Join us for a fantastic evening dedicated to the disability community! Uniquely You and Carter’s Play Place are excited to host a Community Fun and Resource Fair that welcomes individuals, families, DSPs, caregivers, and supporters of all ages.
Event Highlights:
• Connect with other families and community members
• Enjoy an afternoon of fun with exciting activities
• Discover valuable resources and support from various organizations
• Free admission courtesy of Carter’s Play Place
• This event is a wonderful opportunity to engage with your community and explore resources that can make a difference in your life.
Reserve Your Spot: https://buytickets.at/ uniquelyyou/1358218
Don’t miss out on this enjoyable and informative event! We look forward to seeing you there and sharing a memorable evening together.
Let’s connect, have fun, and support each other!
Moving the Special Needs Trust Beneficiary and Special Needs Planning to Another State
Relocating to a new state can be a daunting undertaking, especially when it involves moving a special needs trust beneficiary and the associated special needs planning. Whether the move is for personal reasons, better healthcare prospects, or a change in family circumstances, moving to another state requires comprehensive consideration for the individual with special needs.
Understanding Special Needs Trusts
A special needs trust (SNT) is a planning arrangement for individuals with disabilities. Its purpose is to provide for their supplemental needs while preserving eligibility for government benefits such as Medicaid and Supplemental Security Income (SSI). Special needs trusts are intended to enhance the quality of life for the beneficiary without jeopardizing their access to meanstested government benefits.
There are two types of SNTs, commonly known as first-party and third-party SNTs, depending on how
they are funded. A first-party SNT is funded with the SNT beneficiary’s own assets, usually obtained from an inheritance, a court settlement or from assets that belonged to the beneficiary before the SNT was established.
A first-party SNT must contain a provision that the Medicaid program will be reimbursed dollar for dollar for all expenditures made by the Medicaid program on behalf of the beneficiary during the beneficiary’s lifetime before any assets can be distributed to anyone else in accordance with the terms of the trust.
A third-party SNT is funded with assets that belong to someone else, usually a parent or grandparent. There is no requirement that Medicaid be paid back from third-party SNTs. A thirdparty SNT can be a stand-alone trust or it can be a subtrust in someone else’s trust or last will and testament.
An individual with disabilities also may have assets placed in a first-party pooled SNT or a third-party pooled SNT. A separate account is maintained for each pooled trust beneficiary. The assets
are pooled by an administrator for investment and management purposes.
Crucial Considerations Before the Move Prior to the move, it’s important to consider several factors:
1 Although SSI and Medicaid are governed by federal law, every state has its own set of laws governing trusts and eligibility for those benefits. Accordingly, it may be necessary to amend the trust to conform to the law of the new state.
2. If a guardian or conservator was appointed it may be necessary or advisable to transfer the guardianship or conservatorship to the new state. Similarly, if the special needs trust beneficiary previously executed a power of attorney and/or a health care proxy it may be advisable to create those documents in accordance with the laws of the new state.
3. The beneficiary may require new medical providers and support programs. Consequently, it is important to search for quality healthcare in the new state.
4. The beneficiary may need to move to a group home or a supervised apartment, or may be required to be enrolled in a school or classes that accommodate students with special needs. Housing and school options should be carefully researched.
5. Financial Consideration: The move may result in changes in the cost of living and taxes. Avoid surprises by investigating the financial impact of the move.
Achieving a Smooth Transition
1. Consult with an attorney with extensive experience in special needs planning and trust administration in the new state. By reviewing the existing SNT the lawyer can provide advice regarding trust modifications if necessary, and ensure compliance with the laws of the new state.
That attorney should also be able to provide guidance regarding the beneficiary’s eligibility for government benefits in the new state as well as the advisability of transferring the guardianship or conservatorship or preparing a new power or attorney and health care proxy for the individual with special needs.
2. Explore local disability advocacy groups and support services for the special needs trust beneficiary in the new locale.
3. Consider whether the move requires a change in financial management of the special needs trust. For example, it may be necessary to appoint a new trustee if the current trustee does not have the power or desire to serve as trustee in the new state. The current budget, if any, that was implemented in the old state may need to be adjusted based on the cost of living in the new state.
4. Ensure that medical records are transferred to the new medical providers and that school records are sent to the school in the new community.
Conclusion
Moving a special needs trust beneficiary and the special needs planning to another state requires careful consideration of the legal, financial, educational and medical consequences resulting from the transition. By seeking legal counsel, support programs and medical providers in the new state prior to the move, a smooth transition can be achieved.
SpecialCare is a program developed by Massachusetts Mutual Life Insurance Company (MassMutual) that provides access to information and resources to families with dependents, of any age, who have special needs. The Special Care Planner is a title used by MassMutual financial professionals who have received advanced training and information in estate and tax planning concepts, special needs trusts, government programs, and the emotional dynamics of working with people with special needs and their families.
Shirley B. Whitenack, Esq. is not affiliated or associated with MassMutual.
The information provided is not written or intended as specific tax or legal advice. MassMutual, its subsidiaries, employees, and representatives are not authorized to give tax or legal advice. Individuals are encouraged to seek advice from their own tax or legal counsel.
© 2024 Massachusetts Mutual Life Insurance Company (MassMutual®), Springfield, MA 01111-0001. All rights reserved. www.MassMutual.com.
If You Could Only See Pain
In the early 2000s, I started my journey to find answers about my health. I was always tired, my body hurt all over, and I had no energy. Doctors told me it was “all in my head” because I also was depressed and anxious. I read an article about doctors talking about fibromyalgia and asking if it was a “real” diagnosis. I had all the symptoms, so I sought out the only doctor in Indiana who tested for and treated fibromyalgia. His office was over an hour away. Seeing him made me realize that the pain I had is not normal.
At that time, there were 18 tender points on the body, about the size of a penny, that doctors used as a diagnostic test. Fibromyalgia tender points are located in clusters on both sides of the body, including on the neck, chest, shoulders, elbows, hips, and knees. For a point to be considered tender,
the spot should produce localized pain when your doctor presses on it with their finger. The doctor would push with enough pressure that their fingernail turned white. If a person reacted to pressure on at least 11 of these spots, they had fibromyalgia.
The doctor pushed on all 18 of the spots and my body nearly jumped from the pain! I asked him if everyone felt this level of pain and was surprised to learn that most people do not. I just wanted to feel better, and it was hard to explain that the pain changed in different parts of my body from day to day. Pain that ached, stung, pulsated, pounded, seared, throbbed, and burned. Pain that no one could see, so previous doctors assumed I was exaggerating or “faking it” for attention.
He explained that there were a few medications that help- mostly muscle
relaxers and a non-narcotic called tramadol. He also told me that exercise was very important to help relieve the tightness in my muscles. There were days that it took me an hour to get out of bed, so the thought of moving my body more did not sound like fun. I started doing physical therapy and it did hurt a lot at first, but then I started to feel less sore when I moved. I learned that painful knots in muscles are often myofascial trigger points. Trigger points are hard, knotty lumps that form in taut skeletal muscles. Unlike tender points, which produce only localized pain, trigger points produce both localized and referred pain. Referred pain feels like it shoots or radiates to a different part of your body. Trigger points are far more common in people with fibromyalgia than they are among the general
population. However, anyone can develop them. There’s a chronic widespread pain condition called myofascial pain syndrome. It involves chronic trigger point pain. Myofascial pain syndrome can coexist with fibromyalgia. Researchers believe now that fibromyalgia amplifies painful sensations by affecting the way your brain processes painful and non-painful signals. So technically, doctors were correct- it was “all in my head!”
At that time, researchers saw a correlation between car accident victims and patients who developed fibromyalgia. I had not been in any type of accident, so I fell into the “rare” group.
Over the last 20 years, doctors have come up with more diagnostic tests and no longer focus on the 18 tender points. Also, there is now a huge list of medications to try. Statistically, women are still more likely to develop fibromyalgia than men. Many people who have
fibromyalgia also have tension headaches, temporomandibular joint (TMJ) disorders, irritable bowel syndrome, anxiety and depression, and other invisible pain disorders. Over time, and after seeing several specialists, I was diagnosed with more health conditions than I could have imagined! My last diagnosis, in 2022, was hyper-mobile ElhersDanlos syndrome.
One thing that bothers me is when people tell me how healthy I look. The inside of my body is a mess of different problems from my head to my toes. I try to stay active and have learned to pace myself. In the beginning, if I felt good, I could clean my whole house in a day. But then I would not be able to move for a few days. With so many different diagnoses, it was hard to find the right medications, therapies, treatments, diets, and exercise routines that did not cancel each other out. Many of my health issues have overlapping symptoms and I have
Tangram's Community Living Program: Now Accepting New Clients
We help our clients establish independence with our personal, tailored approach to community living.
OUR CARING AND DEDICATED STAFF ENSURES EVERYONE RECEIVES THE SUPPORT THEY NEED TO BUILD THE LIFE OF THEIR DREAMS.
Don't have a waiver?
With over 30 years of experience, Tangram can help you apply for any of the benefits for which you qualify.
found that some patients with multiple diagnoses can draw their symptoms on a Venn diagram! When I have to rate my pain on a scale from 1 to 10, I always ask if they mean compared to people who do not live with pain and suddenly hurt. Talking to many other people suffering with different types of pain, I realized that pain is based on individual perspective.
Pain tolerance varies for everyonemany can deal with suffering and not realize that they have passed a dangerous level of pain and need medical help. How can anyone know what is “normal,” when no one asks how different parts of their body feel?
I have come a long way and have seen so many different types of doctors and therapists. Sometimes one technique helps for a while and then stops. I have tried traditional and non-traditional methods. It can be exhausting when you are a medically complex person with no obvious outward signs of illness.
A Picture Is Worth A Thousand Words
AYOMIDE(I-YO-ME-DAY)
Ayo was playing outside with her brothers, telling them what to do, because she is the boss!
NAVY GRANBERRY
Navy is 4 and so full of life and energy! She keeps us on our toes for sure! She’s got the most beautiful smile!
Lily was having a great time at a school event!
Eli showing his classic smiles
Paige is posing for the camera after choosing her own well-matched outfit.
We did a fun dress-up session in Mommy’s studio. I asked Bry to be serious and this is the response. She NAILED it!!
This was the night before his 14th birthday. He wanted his favorite food, tacos!
PAIGE YOHE
GABRIEL NOLTING
LILY BONNELL
ELIJAH KOTTLOWSKI
BRYLEIGH BOYER
TYLER ROBBINS
This photo is super special to our family. Tyler enjoy doing everything his big brothers Dallas and Joel do. Tyler LOVES scouts. He loves all the activities at meetings and enjoys the activities in the community he gets to be a part of. My husband Jay has been a leader since our oldest was little. I love that all four of them are building so many core memories and learning many life lessons along the way. I am a very proud scout mom.
KADENCE AKA “KADIE”
Kadence was gifted her very first bike, a Rifton by ACOLF, and made specifically for her abilities. This was such a big, exciting moment for us all. She has been wanting to ride a bike like all her friends for so long. We even got her a kid Peloton, but it had its challenges when trying it out on a non-stationary bike. She felt so defeated. It was a huge moment for her and for us as her parents to see her finally have something that allowed her to ride like her friends. This pic seems so minute, yet it is so monumental for a family of a special needs child, and her big smile says just that! We couldn’t be more proud of her and her hard work to get here!
CHLOE MADELYN LOUCKS
This is Chloe a little over a month after open heart surgery and recently progressing in her feeding skills. She has always been a ray of sunshine, but she is truly coming into her own at 7 months. This photo was taken during an afternoon of play with her big sister.
PETER SIMA
Peter just completed his first sprint triathlon. With his oldest brother’s support, they swam 200m; biked 12 miles, and ran a 5K, finishing with a flourish!
NORA KATE TANOOS
Nora celebrating the 4th of July. The fireworks bring new meaning after having cochlear implant surgery in 2020. She was born with bilateral sensorineural hearing loss, so she is deaf. After not one, not two, but THREE professional medical opinions, we were told she’d have a 20% chance of the implants working. Guess what? They did! She now has access to sound and while she is still nonverbal, she uses sign language and understands when you talk to her. She is such a shining light and brightens the lives of everyone she connects with!
CAITLIN DUGGINS
Caitlin loves horses! She’s with our horse, Scooter, in this picture! We started out with Equiventure and then ended up getting our own horse! Their bond is incredible!
Jay, Amanda, Dallas, Joel and Tyler Robins; Photo by Hannah Wells
BRIANNA GALYAN
Brianna was in the Queen contest for both The Monroe County Fair and the Monroe County Fall Festival and won Miss Congeniality in both!
DOMINIC
This is a photo of Dominic on a pirate ship in Destin, FL. We went to Florida to celebrate his second birthday. He was a pirate on the loose!
WESTLYNN SHEPHERD
Westlynn was enjoying a “mommy and me” morning while we waited for the annual Memorial Day parade to begin in New Castle, IN. She loves sprinkle donuts and orange juice, so she was enjoying a sprinkle donut while we waited.
EMMY ANDERSON
There is no one that Emmy loves more than her sister, Mira. Even if she’s just passing by Mira, Emmy is immediately smiling and excited to see her.
ROBBY KEAFER
This is the dance party on the Saturday night of the Indiana Special Olympics State Games in 2023. Robby loves to dance and would dance all night if allowed!
ISAAC LUKE JONES
This photo was taken for Isaac’s first birthday celebration.
KY
He likes to dress up for school, carrying his briefcase with little people and an old house phone.
Oliver is showing off his walking skills and getting ready for story hour at a local bookstore. He loves exploring new things with his family.
Ky is 7 and loves music. This is his “I want to rock” photo!
PEYTON HAVILAND
This photo was taken at Hobson’s Adventure Farm in Rockville, Indiana. We were there with our local Terre Haute chapter of Down Syndrome Indiana. Peyton loves adventures and meeting up with his friends to have fun! We love our DSI family.
CAIRON MAJORS
He was at the Children’s Museum during summer camp.
My two sweet girls at Costco
CHANCE GADSON
SOPHIA STEBING
OLIVER KING
Vivian and Sophia Stebing
Finding Strength in Community
BY PAUL HATHCOAT
Caring for a loved one with a disability is a journey marked by unique joys and profound challenges. For many special needs families, the road can often feel lonely, as the demands of caregiving can be isolating. However, there is immense power in community—especially when that community is rooted in faith. The Bible encourages us to lean on one another, and for families navigating the complexities of special needs, building a supportive community can be life-changing. Let’s briefly look at how to build community into our lives, from a pastor’s perspective.
The Biblical Foundation for Community
The Bible is rich with teachings about the importance of community. In Ecclesiastes 4:9-10, we read, “Two are better than one because they have a good return for their labor: If either of them falls down, one can help the other up. But pity anyone who falls and has no one to help them up.” This scripture beautifully illustrates the power of companionship and support. In the context of special needs families, having a community means having someone to lean on when the weight of caregiving becomes too much to bear alone.
Jesus Himself modeled community throughout His ministry. He surrounded Himself with disciples, sharing life’s burdens and joys together. In Galatians 6:2, Paul instructs, “Carry each other’s burdens, and in this way, you will fulfill the law of Christ.” This verse is a call to action for us to come alongside one another, especially those who are carrying heavy loads, such as parents and caregivers of individuals with disabilities.
The Power of Sharing Our Stories
One of the most profound ways to build community is by sharing our experiences. When we open up about our struggles, our fears, and our triumphs, we not only allow others to walk alongside us, but we also offer them the opportunity to share their own stories. This mutual exchange is healing and strengthens the bonds of community.
In James 5:16, we are told to “confess your sins to each other and pray for each other so that you may be healed.” While this verse speaks to the power of confession, it also highlights the importance of transparency and vulnerability within a trusted community. By sharing our challenges and victories, we create an environment where others feel safe to do the same, leading to collective growth and healing.
For special needs families, this can be particularly important. The day-to-day realities of caregiving are
often misunderstood by those who haven’t walked a similar path. But within a community of believers who understand, there is an opportunity to experience deep empathy and support. It is in this shared space that faith can grow and flourish, even in the face of adversity.
Challenges and Encouragements
While the benefits of community are clear, seeking it out can be daunting, especially when life is already overwhelming. Here are a few challenges and encouragements to help you take those steps toward building and fostering community:
Step Out in Faith: It can be intimidating to share your story or to ask for help but remember that God calls us to live in community. Trust that He will guide you to the right people. Start by joining a small group at your church, attending a support group for special needs families, or simply inviting another family over for a meal. The first step is often the hardest, but it can lead to meaningful connections.
Be the Invitation: If you notice another family in your church or community who seems isolated or overwhelmed, be the one to reach out. Extend an invitation to coffee, offer to help with a task, or simply let them know that you are there for them. As Romans 12:13 encourages, “Share with the Lord’s people who are in need. Practice hospitality.” Sometimes, being a blessing to others opens the door for them to bless you in return.
Create a Safe Space: When you’ve built a community, work to make it a safe space where honesty is welcomed, and burdens are shared without judgment. Ephesians 4:2-3 urges us to “Be completely humble and gentle; be patient, bearing with one another in love. Make every effort to keep the unity of the Spirit through the bond of peace.” This kind of environment is crucial for growth and resilience.
Conclusion: A Life Anchored in Community
For families living with disabilities, community is not just a luxury; it’s a necessity. Through the trials and triumphs of caregiving, a strong, faith-based community can provide the support needed to navigate the journey with grace and strength. As you seek out and cultivate these relationships, remember that you are fulfilling a biblical mandate to love, support, and uplift one another. In doing so, you’ll find that not only do you become stronger, but you also help others find their strength in Christ. Be blessed!
Do you have a thought, idea or information that you would like to see in this section in an upcoming issue? Email Paul Hathcoat at phathcoat@wrcc.org.
The Muscular Dystrophy Family Foundation uses its collective resources to help those with a neuromuscular disease live safer, more independent lives.
Some of what we help fund:
Adaptive Equipment
(e.g., ramps, lifts, wheelchairs, and wheelchair components)
Home Modifications
(e.g., bathroom modifications and bathroom equipment)
Transportation
(e.g., van conversion assistance, transfer seats, and vehicle lifts) (317) 615-9140 • mdff.org
MARLEY’S JOURNEY
BY CHRISTINA MCGAIRK
When you see 4-year-old Marley, you can’t help but be filled with joy. Her bright smile and sparkling blue eyes behind her cute little glasses are precious and her friendly spirit is infectious.
Born with translocation Down syndrome, Marley has climbed many mountains at such a young age. In this type of Down Syndrome, there are three copies of chromosome 21, but one of the copies is attached to another chromosome.
Marley was also born with Tetralogy of Fallot (TET), a condition that encompasses 4 different heart problems and is commonly found in infants with Down syndrome.
But despite being born with both conditions, Marley has persevered and is celebrated with pride and joy by her mom, Aryn, her dad, Justin, and her 8-year-old sister, Maggie.
Aryn, a special education instructional assistant for Elwood Schools, and her husband, knew the moment Marley was born, that their journey with Marley would be different. Yet, early intervention played an important part in Marley’s cognitive and communicative development, including her speech.
“Marley went from saying singular words to now putting two to three words together to express her wants and needs,” said Aryn. “ She has also
started saying she is scared or sad.” According to Aryn, Marley has also recently started asking why questions while waiting for a response and using her words to express her emotions.
One of the most memorable verbal milestones Marley’s Mom recalls is when she formed the words “I love you” altogether. Marley has overcome physical difficulties as well. Due to her hypotonia, she would walk a little bit and then stumble or fall backwards. But now, thanks to many hours of physical therapy, she can walk up and down stairs and even run. According to her mom, Marley likes to run all over the gym at school, where she
Real Plans for Re Ch ge.
attends general education preschool in the mornings and special education in the afternoons. “Everyday she’s getting stronger and faster.”
Her social development is also on the rise. She loves interacting with other kids and has many friends at school who she loves to play with. But this isn’t too much of a surprise to her family, who describe her as a huggable little girl who ‘does not know any strangers’. “While we were at the county fair she kept offering everybody hugs and high fives,” said her Mom.
Marley’s journey in her 4 years of life has been a tough one, but as she continues to grow and develop, her family remains committed to supporting her every step of the way. Cheering her on at every milestone no matter how big or small. “I hope she has the life she dreams of having.”
1. Translocation of Down Syndrome. Stanford Medicine Children’s Medicine (2019). https://www.stanfordchildrens.org/en/topic/ default?id=translocation-down-syndrome-90-P02153
2. Tetralogy of Fallot. Mayo Clinic (2023). https://www.mayoclinic. org/diseases-conditions/tetralogy-of-fallot/symptoms-causes/ syc-20353477
“[LifeCourseConnect]” really opens up possibilities for people with disabilities… People want my opinion about my life!”
(Michelle)
As
National Disability Employment Awareness Month Spotlight
Individuals making a difference at noble of indiana
BY ROB HARTMAN; NOBLE OF INDIANA
Mykael White
People who know Mykael best, often reflect that he “leads by example through perseverance” and his leadership is on full display in his recent promotion to team lead for the composting pilot team. Through collaboration between the Lilly, CBRE and Noble Employment & Workforce Service, Mykael is leading the charge for a new sustainability initiative that aims to significantly reduce the eco-footprint of one of Indianapolis’s biotech leaders.
Mykael’s passion as a creator is an asset and testament to his leadership as he’s able to see the world from a larger perspective. “I feel like I have a responsibility to show people with disabilities that they can as long as it doesn’t conflict with their physical or mental selves,” he notes. Putting down content on his own music label Lunar Lytez and tweaking his 3D and graphic design skills keep Mykael’s perspective grounded while opening new doors to his innovative flow that only add to his electromagnetic heart and deep respect for the work of those whom he leads as well as those who have come before him.
Hunter
Josh Hunter is noted by many to be a team player who demonstrates unparalleled customer service. The people he works with see this kind of leadership on display through his self-motivation and situational awareness that amplifies the work of others to get the job done right with focus and careful intention. Hailing from Warren Central, Josh has recently found new ways to put his training to work through a pilot composting project at Eli Lilly and Co that connects him with new people and provides him opportunities to get out of the office and travel the Lilly campus as he loves to do.
A supervisor in the Noble Employment & Workforce Services team stated that “Josh has adapted and built great independence in the roles he’s taken on.” And this adaptability is a source of pride for Josh as he shares the ways in which he quickly learns new skills as the jobs around him change. Josh points out that it’s critical to his work to have the space to try new experiences in order to explore new paths for success every day.
Josh
Mykael White
Josh Hunter
Timica Himes
Timica Himes is an author and dreamer who inspires others to dream big along with her. She recently published the book “There’s No Such Word as Can’t, But Always I Can” in which Timica reminds us that there is no standard to color, status, shape or size and calls us to be our best and kindest selves. She shares her stories of courage and commitment through trying times with others and embodies the truism that regardless of the challenges we face, we are each created uniquely.
“My spirit refuses to give up,” she says and notes that she often calls on her faith for strength. “I can do all things, but I’m not doing them within my own strength.”
Drawing inspiration from Phil 4:13 - which is artfully illustrated in her book by her brother Bert Himes - she is quick to give gratitude to the many teachers and mentors who have helped to reinforce the idea that we are not the negative thoughts around us – we are here for a greater purpose.
Timica Himes
A Picture is Worth a Thousand Words and Milestones and Favorite Memories
Sharing photos of life’s milestones in Uniquely You! Magazine is a beautiful way to celebrate the essence of special moments and memories. Whether it’s a first step, graduation, vacation, or any cherished occasion, each photo tells a unique story of joy and achievement. It’s a chance to share these meaningful experiences with others who can appreciate and celebrate each journey.
We are also celebrating November, December and January Awareness Months, inviting you to share a photo that captures a special moment related to that month. Customize your caption to highlight the moment’s meaning to your family.
Uniquely You! A Picture is Worth a Thousand Words for October, November and December Awareness Months!
Uniquely You!Milestones and Favorite Memories
Saturday, October 26th, 11am-2pm
Rock the Spectrum
We had an amazing time bringing the community together at our recent event hosted at We Rock the Spectrum in Westfield! It was a joy to see so many kids having a blast with all the fun equipment— swings, trampolines, zip lines, and sensory rooms. The smiles on the kids’ and families’ faces said it all!
A big thank you to our support partners from Uniquely You and the talented artisans who joined us. Your presence helped make this event a success by connecting with the community and sharing valuable resources and information.
To add a sweet touch to the day, Howdy Ice Cream was on site, delighting everyone with delicious treats during their playtime.
We are incredibly grateful to We Rock the Spectrum for hosting such a fantastic event. If you’re looking for a fun place for your kids to play, burn off some energy, or celebrate a birthday, we highly recommend checking out their amazing facility!
Thank you to everyone who attended and contributed to making this event memorable. We look forward to more opportunities to connect with and support our community!
PRINT IS STILL ALIVE.
Celebrating two decades of print excellence, now 800 niche magazines strong (and counting).
Neurofeedback is a non-drug, non-invasive solution to symptoms related to brainwave dysregulation. It's natural and offers a fix to the problem, not just a bandage that masks the symptoms.
"We
~Maria S. (parent)
SENSORY
BLURB!
Because no two people are alike, and neither are their needs. Not everyone processes their surroundings the same way. This can cause overwhelming situations for some individuals. Our team at Specialized Home Care Services is here to help you find the right solutions.
The air you breathe within your home can have a great impact on your overall health. Indoor pollutants and air particles can have an influence on the condition of your lungs and respiratory function. Adding an air purifier to your home can reduce the particles and improve the air quality. Although air purifiers don’t necessarily remove all particles from your residence, they can reduce the amount of potential allergens and harmful particles in the air. The biggest benefit of this is creating a cleaner environment and improving your respiratory health.
Contact us today
Our team at Specialized Home Care Services carries a great selection of air purification systems.
(888) 506-4182 | specialized4u.com 621 N Central Ave, Connersville, IN 47331 specializedhomecareservices@gmail.com.
READER PEN
Sensory items to better support the community
A SCAN READER PEN can help make reading easier for those who may struggle with this task! Scan the pen over text, and it will read the text to you in real time! This can be helpful for individuals with visual impairments as well as language limitations. The Reader Pen can translate in different languages as well. If you or a loved one struggles to read and comprehend text, this pen can read the text to you to help with comprehension! Indiana Medicaid Waivers can cover this item if it can help provide independence with reading tasks. If you have someone that may benefit from this item, we can help you utilize your waiver funding to cover the costs!
Ruth Roberts at Specialized Home Care Services
621 N Central Ave
Connersville, IN 47331
ruth@specialized4u.com (317)-348-0708 Mobile (317)-348-0708 Fax
Local Events
BY CHRISTIA WOODFORD — PUBLISHING ASSISTANT AND LOCAL EVENTS
Note: Don’t forget to apply for the Access Pass! The Access Pass Program allows families that meet the specific requirements listed below to visit The Children’s Museum of Indianapolis and all participating locations for $2 per family member per visit for up to two adults and all dependent youths living in the household. You qualify if you receive:
• Hoosier Healthwise Insurance (Indiana’s health care program for low-income families, pregnant women and children)
• SNAP (Supplemental Nutrition Assistance Program)
• TANF (Temporary Assistance for Needy Families)
• Apply here: https://www. childrensmuseum.org/visit/ hours/access-pass.
MUSEUMS
The Children’s Museum of Indianapolis Museum My Way, An adaptive museum experience Oct. 9, Dec. 10, 4:00 pm-7:00 pm Capacity limited. Registration required. This special event is an opportunity for visitors with disabilities and/or sensory sensitivities to experience the museum in a new way. Families and groups of all abilities are welcome to play and learn together! Sensory modifications to the museum environment include:Limited capacity. Quiet area with sensory items. Some music is turned down or off. Edited lighting effects in some areas Members: Free, Nonmembers: $6 per person/Access Pass: $2 per person. For tickets:. https://www.childrensmuseum. org/visit/calendar/event/464
First Thursday Night- First Thursday every month
Oct. 3, 4:00 pm
On the first Thursday of every month, we open our doors from 4–8 p.m. for just $6 admission per person! Why should you visit?
Admission is just $6 per person for the entire museum. That’s a savings of more than 75% per ticket!
It’s the ONLY time the museum is open to the public in the evening, so it’s a perfect after-hours night for your family.
It’s not as crowded as you might think! We have limited capacity on First Thursday Nights. Parking is always free!
Our Food Court is open, so you can grab a quick and easy dinner for the whole family. Low cost. Low crowds. Late night play! https://www.childrensmuseum. org/visit/calendar/event/273
Various Events
Oct. 1- Oct. 31, Opens at 10 AM 3000 N. Meridian St., Indianapolis, IN 46208, 317-334-4000 https://www.childrensmuseum.org
Conner Prairie — Indiana’s Living History Museum
The Headless Horseman Rides... Stay Wary On The Prairie!
Oct. 3-27, 5:00 pm-10:00 pm
Take the iconic Haunted Hayride through Conner Prairie’s grounds where you will encounter spooky frights around every corner...including the Headless Horseman himself! Enjoy the Trail of Terror, our path through the corn field filled with elevated frights for those who dare to be scared
• The Perilous Plunge
• Festive fall-themed activities for the whole family
• Barrel train ride for little ones
• Sleepy Hollow Marionette Show
• ‘Mis’-Fortune telling with Carl Voyant
• Live DJ and Live Music performances from Sweet Tunes
• Live Shows: Sleepy Hollow Oneman Show and Eerie-llusions
Magic ShowFor ticket prices and information https://www. connerprairie.org/explore/thingsto-do/headless-horseman/
Sensory-Friendly Hours
The second Sunday of every month, from 10 AM to noon, are sensoryfriendly hours at Conner Prairie!
Enjoy a calm environment
Check-in with Guest Relations, stating that you are here for sensory-friendly hours. You will get free admission and may stay as long as you wish.
Various events
Oct.1- Oct. 31, 10:00 am- 10:00 pm 13400 Allisonville Road, Fishers, IN 46038 Phone: 317-776-6000 or 800-966-1836 https://www. connerprairie.org/events/list
Indiana State Museum
Sensory Friendly Afternoon
Oct. 20, 3:00 pm- 5:00 pm 650 W. Washington St., Indianapolis, IN 46204
Experience the Indiana State Museum in a sensory-friendly way! Each month, we’ll lower the lights and reduce distractions to give children and adults with sensory processing differences a chance to enjoy an interactive learning experience in a comfortable and accepting environment. Social narratives will be available at the ticket counter and sensory–based activities will be spaced throughout the museum.
Plus, check out a Sensory Bag to make your experience even more enjoyable. Check calendar for dates https:// www.indianamuseum.org/calendar/
Various events
Oct.1- Oct.31 check website for events and times. https://www.indianamuseum. org/calendar/
SPORTS
Indianapolis Colts
Oct. 20- Miami Dolphins
Lucas Oil Stadium, 500 S Capitol Ave, Indianapolis, IN 46225 https://www.colts.com/
Indy Eleven
Oct. 5, 19
IU Michael A. Carroll Track & Soccer Stadium, 1001 W New York St. Indianapolis, IN 46202 https://www.indyeleven.com/
FAMILY FUN
Indianapolis Zoo ZOOBOO
Sept. 25- Oct. 31, 2:00 pm- 7:00 pm
Is regular October too humdrum, but haunted houses too creepy-crawly?
Come to the Zoo for Halloween activities, amazing animals and pumpkins galore! ZooBoo is a fun family experience for itty-bitty ghouls and goblins as well as the bigger kids. October weather means active animals, colorful foliage and a new season to explore. Combine that with engaging, hands-free activities, spooktacular costumes and trick-ortreating, and you’ve got an unforgettable family tradition. Woo-hoo! For tickets and to see all events scheduled visit: https://www.indianapoliszoo. com/zoo-events/zooboo/
Various events scheduled daily
Oct. 1- Oct. 31, 9:00 am- 4:00 pm 1200 West Washington St. Indianapolis, IN 46222 https://www.indianapoliszoo.com/
Sensory Friendly Play at Urban Air
Noblesville Oct. 6, 9:00 am- 11:00 am 14450 Mundy Dr, Noblesville, IN 46060
Urban Air’s Sensory Friendly Play day is typically held on the first Sunday of the month. Check the Noblesville
calendar for the latest info. https:// calendar.google.com/calendar/u/0/
Sensory Hours at Sky Zone South Oct. 7, 5:00 pm- 7:00 pmSky Zone South Indy, 4150 Kildeer Dr, Indianapolis, IN 46237
ACC Trunk or Treat
Oct. 19, 10:00 am- 12:00 pm New Hope Church Parking Lot5307 Fairview Rd. Greenwood, IN 46142 For individuals of ALL ages and families affected by autism to have a good time while getting treats and learning about local autism resources. ACC Trunk or Treat will have resource vendors sharing their information and resources about the autism services they provide in the community. We will have a Touch A Truck which includes a fire truck, ambulance, medical helicopter landing, construction equipment and more! This event is FREE and open to the community. For more information https://autismcc-in.org/trunk-or-treat/
Halloween Jamboree-Hobart
Oct. 19, 1:00 pm- 4:00 pm 703 N Hobart Rd, Hobart, Indiana 46342
Chasing Dreams Learning Center is hosting Halloween Jamboree Treat Tables, Food, Games & Activities, Costume Contest Free event for individuals of all ages with disabilities. Facebook invitation: https:// www.facebook.com/share/ nahQ82MSzUr5H33F/
Sensory Friendly Movie Night
Oct. 21, 5:00 pm-7:00 pm
3900 Hursh Rd, Fort Wayne, IN 46845 Sensory Friendly Movie Night is coming up on March 19th. The movie starts at 5:30 pm and doors open at 5:00 pm for concessions. The event is $5/ person at the door or $20/family. to register: https://www.facebook. com/photo/fbid=802505455228 974&set=a.231153492364176
Monster Mash Truck or Treat and Dance Oct. 26, 2:00 pm- 5:00 pm DDSi (5999 W Memory Ln, Greenfield, IN 46140
Once again DDSi, FUSE and Special Olympics of Hancock County are teaming up to bring one of the biggest Trunk or Treat and Dance events to the Community. We invite you to join us for the inclusive Monster Mash Trunk or Treat and Dance on Saturday, October 26 at DDSi (5999 W. Memory Lane, Greenfield). From 2 to 5 pm will be taking over the DDSi campus with decorations, bounce houses, food, treats, crafts, animals, music, and a whole lot of fun.
Our community partners will be decorating trunks and passing out treats. We encourage people of all ages to dress up but it will not be required to visit the community partners and receive treats. We will also have an additional table this year, for individuals with dietary restrictions to trade in items they cannot have for other treats.
Louie Farms, a proud supporter of the three hosting organizations, will be bringing a few animals for petting. Louie Farms is intended to facilitate Farm Assisted therapy for all ages, needs, and abilities.
The dance will be happening at the same time and also open to all ages inside the DDSi ballroom. We invite you to take lots of pictures with the decorations, enjoy a great meal and hit the dance floor.
For more details or assistance with registration, contact the FUSE office at (317)462-9064.
Trunk or Treat- Lebanon Oct. 28, 5:00 pm- 7:30 pm 1585 Perry Worth Rd, Lebanon, Indiana 46052
The Waters of Lebanon, Connections Case Management and Suburban Home Health are hosting a trunk or treat! Boone County Sherriff’s office, Lebanon Police Department, Arc of Greater Boon County and many more will be at this event. Bounce House, Petting Zoo and Full meals provided!
AMC Theatres
Check website for location, date and times
AMC is proud to partner with the Autism Society to offer unique movie showings
where we turn the lights up, and turn the sound down, so you can get up, dance, walk, shout or sing! Our Sensory Friendly Film program is available on the second and fourth Saturday (familyfriendly) and Wednesday evenings (mature audiences) of every month. Please check your local theatre listings for specific showtimes, and don’t forget to share your family fun with #AMCSensoryFriendly. https://www.amctheatres.com/ programs/sensory-friendly-films
The Arts
Adaptive Dance
Oct. 3, 5:00 pm- 6:00 pm Every first Thursday through May 2025 the Arc of Hancock County, 8535 N Clearview Dr, McCordsville, IN 46055
We are proud to announce that we received a mini-grant from the Community Foundation of Hancock County to turn our Adaptive Dance (Body Rock) classes from March and April into a regular monthly program. These classes will be held at Hancock Wellness Center - McCordsville in the Community Room every first Thursday of the month from August 2024 through May 2025 from 5:006:00pm. This class is free, but you must be registered. Parents of participants under 18 years old must be present. We cannot wait to see you there! Please use the link to register: https:// arcofhcadaptivedance.eventbrite.com
Adaptive Ballet Series
Oct. 7, 14, 21, 28, 4:00 pm- 4:50 pm 4055 Roy Wilson Wy, New Palestine, IN 46163
Come join us for a fun and inclusive ballet class tailored for all abilities! Whether you’re a seasoned dancer or just starting out, this class is designed to accommodate everyone. This program is designed for individuals with disabilities of all ages. No experience necessary, just bring your enthusiasm and willingness to learn. Parents and guardians must stay for participants under 18 years of age. For more information: https://www.eventbrite.com/ cc/adaptive-ballet-series3256119?utm-campaign=social&utmcontent=creatorshare&utmmedium=discovery&utm-
term=odclsxcollection&utmsource=cp&aff=escb
Beef and Boards
Million Dollar Quartet
August 29- Oct. 6
Fiddler on the Roof
Oct. 10- Nov. 24
9301 Michigan Rd, Indianapolis, IN 46268 https://beefandboards.com/ Online/default.asp
Jubilate Choir
Butler University, Lilly Hall, Room 133 Wednesdays, 6:45-7:30 PM
The Jubilate Choir is for singers with special needs in grades 3-9. Singers with varying abilities meet each week to grow musically. This tuition-free choir focuses on proper singing techniques, music theory and sight-reading, partsinging, and social skills involved in being a member of a musical ensemble. Though Jubilate has, at its core, the same goals as other choirs in the Indianapolis Children’s Choir (ICC), singers in Jubilate engage in additional activities like visual and tactile experiences that are catered specifically to the current members of the choir. Director: Lauren Southard For more information, contact Lauren Southard at 317-940-8065 or lsouthar@icchoir. org. https://icchoir.org/special-needs/
Gigi’s Playhouse
Various classes during the week. 5909 E. 86th St., Indianapolis, IN 46250 317-288-8235 indy@gigisplayhouse.org https://gigisplayhouse.org/ indianapolis/sfcalendar/
EVENTS
Buddy Walk Indianapolis
Oct. 5, 9:00 am- 12:00 pm 801 W Washington St. Indianapolis, In 46204
A day of inspiration and celebration, the walk brings together the Down syndrome community all while raising funds to support the mission of Down Syndrome Indiana. Down Syndrome Indiana is a one-stop-shop for information and resources on Down syndrome. The programs it offers are
intended to promote the inclusion of individuals with Down syndrome in their greater community, as well as to offer support and information to families, caregivers, educators, employers and the professionals who serve individuals with Down syndrome. to register: https://charity.pledgeit.org/ BuddyWalkIndy?fbclid=IwA R1mu5SPBeHhx6JJR0oITqZ
O7EM8t6CwPCT5NM6P4Fj xAoszQA4gRFBMlo0
Ask The Arc Webinars
Oct. 10, 6:00 pm- 7:00 pm
Ask The Arc webinars provide information and discussion on timely topics relevant to people with intellectual and developmental disabilities, their families, and their support systems. Webinars take place on the 2nd Thursday of the month at 6:00 p.m. EST. Past webinars are recorded and posted on our YouTube channel and on The Arc of Indiana Academy. Registration is for the complete webinar series. You can pick and choose which ones you want to attend without having to register each time. Click here to register https:// www.arcind.org/event/ask-thearc-webinars-2/2024-06-13/
Job-A-Palooza 2024 Hosted by Stone Belt Arc, Inc. and Down Syndrome
Family Connection
Oct. 16, 10:00 am- 1:00 pm 302 S College Ave, Bloomington, IN 47403
In celebration of National Disability Employment Awareness Month, JobA-Palooza will be a collaborative effort between Stone Belt Arc and Down Syndrome Family Connection. We aim to empower individuals with disabilities to explore various career paths and gain valuable hands-on experience. Job-APalooza is not a traditional job fair. It is a unique opportunity for individuals with disabilities to engage in tactile, handson activities that simulate realistic job tasks. Hosted at the Monroe County Convention Center, the event will feature tasks and skill assessments provided by local businesses in the Bloomington area. Employers are invited to bring tasks representative of their operations, allowing participants to explore
potential career interests firsthand. Our objectives with this event is to empower individuals with disabilities to explore employment opportunities through experiential learning and foster meaningful connections between participants and local businesses. Registration is open to people of our community including clients, students of MCCSC and surrounding county schools and any other individuals with a disability interested in seeking employment or learning about career opportunities. In addition to the hands on tasks, we will also offer mock interview practice for anyone interested in developing interview skills. https://www.eventbrite.com/e/job-apalooza-2023-tickets-696251054647
Uniquely You & Carter’s Play Place Community Fun & Resource Fair!
Oct. 25, 4:00 pm- 7:00 pm 1021 Kendall Ct, Westfield, IN 46074
• Connect with other families and community members
• Enjoy an afternoon of fun with exciting activities
• Discover valuable resources and support from various organizations
• Free admission courtesy of Carter’s Play Place
This event is a wonderful opportunity to engage with your community and explore resources that can make a difference in your life.
Reserve Your Spot: https://buytickets. at/uniquelyyou/1358218
Don’t miss out on this enjoyable and informative event! We look forward
to seeing you there and sharing a memorable evening together.
Let’s connect, have fun, and support each other!
First Annual Lucky Mama Retreat
Oct. 26, starting at 10:00 am Lucas Oil Estate, 1143 W 116th St Carmel, IN 46032
Join us for our first annual fundraising event, The Lucky Mama Retreat! This will be a day long event for moms in Indiana that are raising a child of any age with Down syndrome. This is a day out for our moms to recharge, connect with other lucky mamas, and come away feeling inspired! The agenda includes inspirational speakers, fun activities, vendors, a little pampering, and delicious food and drinks. For tickets and more information visit https://www.theluckymamaproject. org/lucky-mama-retreat
Northwest Indiana Disability Resource Fair 2024
Oct. 26, 11:00 am- 2:;00 pm Ivy Tech Community College (410 E Columbus Dr, East Chicago, IN 46312 Connections Case Management, Self-Advocates of Indiana and Ivy Tech Community College present the 2rd Annual Northwest Indiana Disability Resource Fair, now at the new home of the Ivy Tech Community College in East Chicago. This resource fair will provide information about community resources and services for individuals disabilities and their families. Exhibitors will talk about the services and resources to assist individuals
and families. There will be interactive areas, raffles, and food vendors. info@connections-in.com for more information.
SibShops
Oct. 26, 5:30 pm- 8:00
Shirley Brothers Irving Hill Chapel, 5377 East Washington Street,Indianapolis, IN 46219
Sibshops® is a fun-filled event geared toward specific needs of siblings with a brother/sister with special health and developmental needs.Siblings have the opportunity to meet other siblings in a relaxed, recreational setting. There is an opportunity to discuss common joys and concerns with others. Siblings have the opportunity to learn about disabilities and the implications for the future growth and challenges AGES: 6 to 13 year-olds and 14 to 18 year-olds. Youth will be placed in an age-appropriate group for a portion of the workshop. To register: https://www. creativepathwaysindy.org/sibshops/
Fishers Community Connections and Resource Fair
Oct. 30, 5:00 pm- 7:00 pm
Opportunities for Positive Growth683 N. 36th St, Lafayette, IN 47905
The Arc Advocacy Network, a program of the Arc of Indiana, will have information about Medicaid Waivers, Vocational Rehabilitation Services, guardianship and alternatives, Special Needs Trusts, the Erskine Green Training Institute, and a variety of other topics available for families and self-advocates.
