INTOUCH MARCH 2017
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Katherine Spraggett, a home hemodialysis patient, detaches her own tubing with home dialysis nurse Ramona Cook. (Photo by Yuri Markarov, Medical Media Centre)
Patients and families road-test home hemodialysis machines By Emily Holton
It was time to decide on a new model of home hemodialysis machine, and Elizabeth Anderson, the clinical leader-manager of the Home Dialysis Unit, wanted to be sure she got the decision right. Because the current models have become obsolete, St. Michael’s is in the market for a full fleet of 40 machines. “I need to make sure these machines work well for three groups: our nurses, our biomedical technologists and our patients,” said Anderson. “But our patients’ needs far outweigh the others.” Anderson wrote to all her home hemodialysis patients to invite them to have a say in the decision. Interested patients and their families came to the clinic to check out the new options, try full hemodialysis sessions if they wished and score their experiences in a short questionnaire. Printed on 100 per cent recycled paper
“I’m grateful she asked for my input,” said Kathryn Spraggett, who has been doing home hemodialysis for 13 years. “I’m the one who has to operate and clean this machine. The details really affect my life.” Hemodialysis is a treatment that does the kidneys’ job of clearing waste and extra fluid from a patient’s blood. The patient’s blood travels through a needle and plastic tubing to a filter inside the dialysis machine, where it is cleaned and then returned back into the patient’s arm. This process takes several hours, and usually needs to be performed several times a week. Sometimes, patients can learn to safely perform and manage the hemodialysis process themselves. In those cases, St. Michael’s lends the patient a dedicated machine that they can keep at home. “The machine takes up a good portion of my bedroom,” said Spraggett. “So I need to be able to move it around. Once I’m hooked up,
all the controls need to be within reach. I dialyze overnight, so noise is also a huge issue. The one I’ve got at home sounds like a train beside my head.” Spraggett said she was hoping for a new model that minimized the need for extra gels. The containers are big and heavy; she and her husband built a dumbwaiter into their home to help move the jugs and boxes around. Ted Bates, also a home dialysis patient, agreed. “We have to store a month’s worth of products at a time,” said Bates. “I have a large dresser and half a closet dedicated just for supplies.” Bates’ partner has also come to the clinic to check out the machines. “He probably does half of the setup; he’s half my process,” said Bates. “He wanted to give his input as well.” MARCH 2017 | IN TOUCH | 1