Sue Wright

I own The Huntington's Disease Support Club & devote my life to providing online support, creating awareness & raising funds for this devastating disease that claimed my husband's life. I’m also the International Communications Director of the We Have A Face organisation working on "The Faces of Huntington's Disease: I am No Longer a Faceless Face" - a documentary exploring the many aspects of the disease. Trailers for the documentary were released to the public on 28th June 2011 & 13th April 2012. I'm also an identical twin & we were honoured to feature in the BBC documentary "The Secret Life of Twins" initially aired in the UK in the autumn of 2009, & were interviewed live on BBC Breakfast & had our story featured in The Mail on Sunday, as well as other national & local media including a live interview on BBC Radio Kent. We're volunteers at TwinsUK & have contributed to their research for well over a decade!