Pic activities report 2010 2013 1

Partners in Care Patient & Family Advisory Program

Activities Report 2010 - 2012

The Partners in Care Patient & Family Advisory Program (PiC) Report Covers: Fall 2010 – March 31, 2013

Susan Greig Partners in Care Family Liaison Room K2-127 BC Children’s Hospital Vancouver, BC, Canada V6H 3VL

Email: sgreig@cw.bc.ca Phone: 604-875-2345 #5391

patient and family advisory program Patient- and family- centred care in action at BC Children’s, Sunny Hill and BC Women’s Hospital

Partners in Care Patient and Family Advisory Program is a group of patients, families and healthcare professionals dedicated to promoting excellence in principles and practice of patient and family centred care. We provide human resources through patient and family volunteers, patient and family centred care education and guidance to strengthen collaboration of professionals and families at BC Children’s Hospital (BCCH), Sunny Hill Health Centre (SHHC), and BC Women’s Hospital Neonatal Program (BCW).

We educate patients & families and healthcare providers about the patient and family centred care that happens at the bedside which enables patients and their families to work with healthcare providers as equal partners on the healthcare team. We encourage, educate and support the patient and family centred care that happens on the organizational level so that patients and family are embedded into the shaping of policies, programs, and facility design. The group works with and represents all families who use BCCH, SHHC and the BCW Neonatal Program to give them a voice in both patient care and organizational decision-making. All of this leads to better health outcomes, wiser allocation of resources, and greater patient and family satisfaction.

We recognize that the patient and family flow through healthcare is one experience regardless of how many departments, organizations or agencies are involved. We encourage patient and family centred care into the broader community through partnerships with Provincial and local community support groups, organizations and agencies.

Patient & Family Centred Care Definition Patient- and family-centered care is an approach to the planning, delivery, and evaluation of health care that is grounded in mutually beneficial partnerships among health care providers, patients, and families. It redefines the relationships in health care.

Patient- and family-centered practitioners recognize the vital role that families play in ensuring the health and well-being of infants, children, adolescents, and family members of all ages. They acknowledge that emotional, social, and developmental support are integral components of health care. They promote the health and well-being of individuals and families and restore dignity and control to them.

Patient- and family-centered care is an approach to health care that shapes policies, programs, facility design, and staff day-to-day interactions. It leads to better health outcomes and wiser allocation of resources, and greater patient and family satisfaction.

Institute for Patient- and Family- Centered Care

Patient & Family Centred Care Core Concepts Respect and dignity: Health care practitioners listen to and honor patient and family perspectives and choices. Patient and family knowledge, values, beliefs and cultural backgrounds are incorporated into the planning and delivery of care.

Information Sharing: Health care practitioners communicate and share complete and unbiased information with patients and families in ways that are affirming and useful. Patients and families receive timely, complete, and accurate information in order to effectively participate in care and decision-making.

Participation: Patients and families are encouraged and supported in participating in care and decision-making at the level they choose.

Collaboration: Patients and families are also included on an institution-wide basis.

Health care leaders collaborate with patients and families in policy and program development, implementation, and evaluation; in health care facility design; and in professional education, as well as in the delivery of care.

The Patient & Family Centred Care Journey System Centred Care Care, programs and polices are created and organized for the system and for those that work in it.

Family Focused Care Care, programs and policies are created by those who work in the system while taking patient and family needs into consideration. Things are done “to” and “for” them.

Patient & Family Centred Care Care, programs and policies are created in equal partnership with patients and families. Whether it is making a plan of care, building a new hospital, creating an educational resource, or developing a policy, things are done “with” patients and families from the very beginning.

BCCH/SHHC 2012/13 Strategic Action Plan PHSA Values, Mission & Strategic Directions 1. Improving quality outcomes and better value for patients.

2. Promoting healthier populations 3. Contributing to a sustainable health care system

What we want to be known for‌

As an academic patient and family centred health sciences centre we are: on the forefront of transforming the health system for children and youth locally, provincially, and globally AND are a provincial resource for state-of-the-art, highly specialized care, teaching and research.

The Partners in Care Patient & Family Advisory Program (PiC)

WE ARE: Patients, family members and staff who are experts in patient & family centred care. The program consists of 4 Patient & Family Advisory Committees and 1 Youth Advisory Committee. We provide resources that enable the patient & family voice and the principles of patient & family centred care to be embedded in everything done at BCCH, SHHC, and in the BCW Neonatal Program.

2013 PiC Leadership Team

Susan Greig PiC Family Liaison Program Management

Samantha Sullivan BCCH PiC Chair 2010-2013

Kyla Brophy PiC Youth Partner

Kim McBurney BC Women’s NP PiC Co-Chair

Linda Tobias PiC Social Media /Online Content Coordinator

Silvia Carlos PiC Senior Family Partner

Judy Daschuk PiC Senior Family Partner

FACT: A generous donation by skoah skin care has allowed us to fund 1 youth and 4 family partner positions for one year. These leaders work 6-10 hours per month.

Having more paid patient and family partners enhances and enables the advancement of patient and family centred care .

Our Structure Partners in Care Leadership Team

BCCH PIC Committee Sunny Hill PiC Committee Neonatal Program PiC Committee PiC Youth Advisory Committee

Partners in Pajamas

Who We Are Partners in Care Family Liaison Partners in Care Administrative Assistant

Partners in Pajamas

259 members

172

Staff & Community Partners

42

Patient & Family Partners

45

300 200 100 0 # of Members

2010 2011 2012

An Overview Fall 2010-Spring 2013

Event Highlights Re-design & Opening of Family Support & Resource Centre

PiC Site Development World Cafe

Patient & Family Centred Care Awards

3P Site Development 45 PiC patient & family member & Partners in PJ involvement

Mad Men Gala at skoah

Site Development Stakeholder Prep & Feedback Meetings

Nov 2011

Oct 2011 Oct 2011

May 2011

Feb 2011 Seattle Children's Bellevue Clinic and Surgery Centre Tour

June 2011

Open House Ronald McDonald House & daycare

Feb 2011

Jan

BCIT Broadcast Journalism Documentary 2 PiC Speakers

Nov 2010

Sept 2010

Oct 2010

Dec 2010

BCCH Social Media Panel

CAPHC & CFAN 2011 Ottawa 3 PiC members attend

Family Fair & PFCC Awards Shaughnessy Auditorium

PFCC Awards & Family Fair

Accreditation

IPFCC Webinar: “Applying PFCC in Dealing with Challenging Situations with Pts & Families

UBC Nursing Education – PFCC 2 PiC member panel

Feb 2013

Nov 2012

Oct/Nov Oct/Nov

SHHC Coaching out of the Box Pilot Project

Quality Forum 2013 – PFCC Workshop Day

Nov 2012

Oct

Oct 2012

July 2012

June 2012

June 2012

May 2012 Apr 2012

Jan 2012

Presentation to PHSA Board

PiC hosts one Day CFAN Workshop during CAPHC

YAC Ice Cream Social

BCCH & SHHC Strategic Plan Retreat

COV Re-zoning hearing for Site Development YAC Hot Chocolate Valentine Event

Integrated Facility Design 200 PiC patient & family member & Partners in PJ involvement CAPHC Conference

Working Partnerships 2011 Partnerships Learning & Development* Patient Voices Emergency/Trauma Services HSSBC Corporate Communications* Surgical Services * Transfusion Medicine Family Support & Resource Centre* Aboriginal Health* Food Services Parking BCCHF* imPROVE* Ethics

(Sept-Dec)

Research & Grant Involvement

“ From the Ground Up: Improving Transition from Pediatric to Adult Care”.

“Best practices: Provider/parent interactions in pediatrics”

*Multiple Projects

Consultation Providence Health Care Holland Bloorview BC Women’s Hospital PFCC Ronald McDonald House Vancouver Coastal HA PHSA Corporate

“Evaluating Fasting Guidelines for Pediatric Surgical Patients at BC Children’s Hospital: A research initiative to improve safety, comfort and quality of care”

2012 External Partnerships Canuck Place CFAN CAPHC Family Support Institute Red Cross IFPCC

Project Highlights Surgical Virtual Tour Cardiology Surgery Tour Telehealth Christmas Connect PFCC Awards & Family Fair RPIW & Kaizen Events Integrated Facility Design Guidelines for the Treatment of Patients who refuse Blood Transfusions Ethics Services Planning Workshop Accreditation

Partnerships Learning & Development* Family Support & Resource Centre * Transfusion Medicine imPROVE* Child Life* Spiritual Care Surgical services* Site Redevelopment Communications* BCCHF* Site Development* Corporate Communications Parking Food Services Aboriginal Health Social Work Security Bereavement Committee International Patient Program BC Women’s Strategic Initiatives OPSEI Risk Management Telehealth Family Support Coordinator* Youth Health* Blood Collection Services * Multiple projects

2013

(Jan-Mar 31)

Project Highlights

Patient & Family News Blog

360

Followers

www.bcchildrensnews.com FACT: PiC created a blog called The Family Centred Care Courier in 2010. In 2012 it was changed to Patient & Family News. The blog is a very effective tool in connecting us with patient and family volunteers.

With site development construction the new blog is proving to be a very useful source of up to date information before coming to the campus.

Project Highlights

Facebook Page created August 2010

New Page created

70

Fall 2012

Please like us and click on “Get Notifications” to keep updated on what is happening on campus

Project Highlights

YouTube Channel BCCHFamilyAdvisory YouTube Channel

255 Views Created Fall 2012

FACT: On the BCCH Family Advisory YouTube Channel you will find videos on patient and family centred care, building the new BC Children’s Hospital, PiC initiatives/partner projects and clever, witty health videos.

Former PiC members Donna Tack and Heather Fowlie share stories about patient and family centred care and Interprofessional collaboration

Project Highlights

Pinterest & Twitter Created Fall 2012

97Followers

218 Followers

Project Highlights

Paint Fest 2012

July

25

BC Children’s Hospital Paint Fest [peynt] [fest] noun patients, siblings, family members and staff painting together to create hospital art. (based on Foundation for Hospital Art events) Original acrylic painting by staff member Susan L. Greig

12 Canvases

Parents, siblings, staff and volunteers painting in the SDCU

Patients, families and staff painting in the BCCH playroom & at the FSRC

August

29 Painting installed in SDCU

Thank you to Samantha Sullivan for organizing & to Team Finn Foundation for the donation of materials

PiC in the News

PIC In the News PiC Receives International Recognition – June 2012 Annual reports published by Patient & Family Advisory groups are intended to give organizational leaders and other interested people information about the collaborative endeavors and activities and to help them understand the Council's and Committee's future direction.

When the Institute for Patient & Family Centred Care put a call out for examples of Annual reports, The PiC Patient and Family Advisory for BC Children’s Hospital, Sunny Hill Health Centre and the BC Women’s Hospital Neonatal Program answered the call.

Two examples, the 2006-2008

and 2008-2010 PiC Activities reports were chosen and posted to the website.

Patients & Families Partner on New Hospital Building a hospital in cardboard? Yes, one floor at a time. Global reporter Linda Aylesworth interviewsedLarry Gold, BC Children’s Hospital President, RN Anaylyn Perez and Physician Mason Bond.

PiC Family Liaison, Susan Greig, a parent whose longest stay with her daughter at the hospital was 237 days, explained the value of patient and family involvement in Integrated Facility Design.

Samantha Sullivan, Chair for the BCCH PiC Committee and Susan Greig, Partners in Care Family Liaison were interviewed for a three minute CBC radio presentation by a BCIT Journalism student. They discussed reasons why a new hospital was necessary from a patient and family perspective.

“Planning the new ACC” This video chronicles the preliminary process & planning work . Heather Fowlie, PiC Senior Family Partner said in an interview, “It’s important (for patients & families) to have a voice early on as to what we think works and doesn’t work”.

Partners in Pajamas

Patients & family members provide feedback in the comfort of their own home

Partners in Pajamas (PiP) 173

92%

113 90

Number of members 2010

2011

2012

FACT: Partners in Pajamas members are often divided into groups by experience with programs/services/clinics. We have targeted surveys and projects to patients and families who have used these services: PICU Surgical Services NICU/IN Cardiology Bereavement/End of Life Oncology

Partners in Pajamas (PiP) Become a BC Children’s Hospital Partners in Pajama Advisor Video

175 views Completed Fall 2012 FACT: The video can also be watched at: www.bcchildrensnews.com Look under the About Us section FACT: More people have signed up as Partners in Pajamas after watching the video than through any other promotional campaign during PiC’s history.

Pajama Projects FACT: PiC feedback shows patients & families want access to information on-line, through apps, and videos.

25 20 15

2010 2011

10

2012 5 0 Surveys

Posters

Projects

FACT: Pamphlets taken from hospital information displays were tracked in 2012; pamphlets were not taken in most areas.*

Educational Resources and Partners in Pajamas

FACT: Before developing or revising any educational resource for patients and families staff should contact Learning and Development and PiC. The first step is to identify through Partners in Pajamas what kind of resource the target audience would find most helpful and useful.

The new BCCH Surgical Virtual Tour (available in several languages) is an excellent showcase of the quality work created through this partnership.

Closing the Loop

FACT: One of the most important factors in the success of patient and family engagement is showing participants the results of their efforts and feedback.

Andrew Griffith, blogger at My Lymphona Journey commented on the parental input for the Cardiology Video.

PiC and imPROVE A unique relationship designed to embed the patient and family voice in improvement initiatives. Rather than staff focusing “on” patients and families events include and are done “with” them.

CAPHC 2012 Poster

Site Re-Development A unique relationship designed to embed the patient and family voice in improvement initiatives. Rather than staff focusing “on” patients and families events include and are done “with” them.

3P

IFD FACT: BLAH………………………………………. …………………… …………..

BLAH…….

Patients, families and staff envision the new hospital during a variety of Site Development ….

4 parents and one youth particapted in room mock ups Add numbers from Lean Poster Chart showing Patient & Family involvement in Lean initiatives

Justin ‌‌ f rom the Youth Advisory participates in room mock up

Justin …… f rom the Youth Advisory participates in room mock up

Youth Advisory Council  Movie List  Ice Cream Social Event August 2012  Hot Chocolate February 2013

References Contact: Susan L. Greig Partners in Care Family Liaison ……. ………..

BlAH, BLAH, BLAH….

BC Children’s Hospital is looking for patients and family members to join the patient & family advisory program and share their stories and to give us feedback on hospital policies, programs and the building of the new hospital.

There are three ways to be involved: 1. Become a Patient or Family Partner: As one of our partners, you can tell us your ideas and share your experience by sitting on hospital committees, or being part of a working group .

2. Become a teacher: Share your patient or family story at staff education sessions, meetings or special events.

3. Become a Partner in Pajamas member: Give important feedback through email and social media on ideas to help improve the hospital; all in the comfort of your own home.

A LOOK AHEAD

BLAH, BLAH, ………………………………………… ………………………………………… ………………………………………… ………………………………………… ……………………………….