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DELIGHTED Charity’s joy after receiving ‘biggest ever’ single lottery grant
• Members of Sebastian’s Action Trust celebrating the £235,000 Big Lottery windfall (Picture courtesy of Sebastian’s Action Trust) A BASINGSTOKE charity who provide much-needed support to seriously ill children and their families have been awarded their biggest ever single funding grant. Sebastian’s Action Trust are ‘absolutely delighted’ at receiving the £235,000 of Big Lottery funding. The charity said the money will be put towards helping families in their own homes. Caroline Holton, fundraising manager at Sebastian’s Action
By James Booker news@basingstokeobserver.co.uk
Trust, said: “We are absolutely delighted with the funding…the project focuses on the needs of the parents but that means that we look at the family as a whole.” “Parents may need help with fi nances or they may just need to talk. “There are so many things that could happen, such as going
through mental health or relationship problems, or a parent might lose their job. “It’s like Jenga - you take one piece away and it all crumbles down, and that’s what happens when a child has a life limiting illness. “We need to be there to build them back up again. This project is really like rebuilding Jenga bit by bit.” “If you have a really ill child, you don’t want to spend hours on the phone fi lling in bits of paper-
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work, you want someone to do it for you.” One of the trust’s children, five-year-old Molly Murray, suffers from quadriplegic cerebral palsy. She needs special equipment to take a bath and even to sit still, as she cannot support any weight or walk, Molly also suffers from around 70 seizures every day, and doctors think she will be wheelchairbound for the rest of her life. Molly’s mother Sue, from Chine-
ham, said: “As with any child, we want to give Molly the best. As Molly needs constant care and attention, it is so time consuming and difficult to fi nd about and apply for the various help that is out there, we often felt alone and isolated as if we were the only family in this situation. “Everything we need is so expensive and NHS funding only goes to the bare minimum of needs. It can be a real battle trying to get the things that Molly needs, what people do not appre-
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ciate is that when you are caring for a very sick child your attention needs to be on the child and not on big bureaucratic forms. “I am thrilled the Trust has been awarded this funding as now they will be able to help many more families and provide much more detailed information to parents in situations such as ours.”
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