Impact Report Temple Street Fundraising
Every Gift Matters
“At the end of the day our little patients are at the heart of everything that we do. Every ward we refurbish and make better is for them. Every piece of equipment we purchase is for them. And every new service we develop is for them. They make us strive to be better.� Denise Fitzgerald, Chief Executive, Temple Street Fundraising
Every Gift Matters life-saving equipment
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creating a caring environment
21
supporting patients and their families
33
finding new treatments and cures
37
planning for tomorrow
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
Impact report | a message from our CEO
A message from our CEO Welcome to our very first Impact Report. It gives me great joy to be able to share with you some of the amazing things we have achieved for Temple Street thanks to the support of our donors, fundraisers, ambassadors and network of volunteers. Together, since the beginning, we have raised a staggering €40million for our special hospital. When people ask me what difference a donation makes, I reply that donations allow us to make the ordinary, extraordinary. Every gift, no matter the size, has impact. Every gift, when combined with thousands of other gifts, transforms children’s lives. That’s the simple truth. And that’s why we rely on our amazing family of supporter’s to keep us going and make change happen. It’s their loyalty that allows us to plan for the future with confidence. As you will see over the next few pages we have already achieved so much. We have invested €31.2million in Temple Street with a further €9million earmarked for new projects.
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We have purchased key pieces of neurosurgery equipment, an MRI and CT scanner as well as upgraded and replaced Ventilators, Dialysis Machines and Omnibed incubators to name but a few. We have totally transformed our Intensive Care Unit, extended our footprint to include a designated Cystic Fibrosis & Respiratory Outpatients Unit and given our children on dialysis a ward they can call home. But we are far from finished so we will continue to champion change and make improvements every step of the way. At the end of the day, our little patients are at the heart of everything that we do. Every ward we refurbish and make better is for them. Every piece of equipment we purchase is for them. And every new service we develop is for them. They make us strive to be better. In 2013 we spent over €3.8million helping sick children and their families. This money was spent on a number of key projects, the most notable being the redevelopment of one of our oldest
wards, St. Joseph’s Top Flat. More than 1,900 children are admitted to Top Flat each year making it one of our busiest environments. This ward had not seen any improvements since the 1930’s so to see it now in all its glory is just unbelievable. This redevelopment cost €2million, €1.65million of which came from our loyal supporters. But St. Joseph’s Top Flat is just one of our most recent achievements. Over the years we have knocked down walls and built extensions in order to turn what was once a series of inner city houses into the state of the art hospital it is today and we will keep going until we are done. This year we are already hard at work making plans for our next ambitious redevelopment project - a new Neurology Unit and Renal Department. With the support of our donors we plan to construct a new two storey building above our existing outpatients area with a designated floor for each. Having a new child friendly environment for both of these areas will
make a huge difference to patients and families, giving them much needed space and privacy. It should also significantly reduce waiting times. On top of this urgent equipment purchases and research remain key priorities. We have some of the best doctors and nurses in the world but without specialist equipment we are nothing. I would like to take this opportunity to sincerely thank everyone who has supported us down through the years. The hospital is what it is today because of people like you and I hope you continue to be part of our future. Thank you for your generosity and your trust; it really means a lot.
Denise Fitzgerald Chief Executive, Temple Street Fundraising
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
Impact report | why we exist
Major Specialties include:
WHY WE EXIST Temple Street’s Fundraising Office was set up in 2000 with the sole purpose of raising funds to make Temple Street Children’s University Hospital a better place. We work with individuals, businesses and organisations in the community to provide much needed financial assistance to the hospital. Since we were established we have raised €40million for Temple Street, ensuring this and future generations of sick children get the treatment they deserve. We are very proud of what we have achieved and very aware that none of this would have been possible without the generous support of our donors, fundraisers, ambassadors and network of volunteers. They are the real heroes.
Temple Street has some of the best doctors and nurses in the world but without specialist state of the art equipment it’s simply not enough.
Our Mission To make a real difference to the lives of children and parents in Temple Street Children’s University Hospital by funding the re-development of hospital facilities, purchasing vital life-saving equipment, financing research and by creating a caring environment.
2013 Hospital Statistics Admissions:
145,000
A&E Visits:
52,450
Surgical Procedures:
8,000
Number of beds/cots: Our Vision To raise funds to enable Temple Street Children’s University Hospital to continue to provide world class medical care to babies and children from all over Ireland in a family focused environment.
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Major Specialities Include:
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C ystic Fibrosis and Respiratory
Neonatal and Paediatric Surgery
Temple Street has a full range of in-patient and out-patient services, and paediatric critical/intensive care. The Hospital also has a full range of Clinical and Health & Social Care Services including;
Physiotherapy
Medical Social Work
Occupational Therapy
Nephrology
Neurosurgery
Clinical Nutrition/Dietetics
Orthopaedics
Psychiatric Social Work
ENT
Plastic Surgery
Temple Street operates the National Screening Laboratory and the National Sudden Infant Death Register is also located in the Hospital.
Neuropsychology Chaplaincy St. Frances’ Clinic provides services for Child and Adolescent Mental Health, Psychology and Speech and Audiology. The Hospital also operates a comprehensive Laboratory and Radiology service.
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
Impact report | How we spend your money
HOW WE SPEND YOUR MONEY
Over the years, with the help of our generous supporters we have been able to turn what was once a series of inner city houses into the state of the art hospital it is today.
Funding applications must be signed by the relevant hospital department head and include a strong case for support. Only applications that fall into one of the following categories are considered.
Every year we work directly with the hospital to ensure every penny we raise is spent effectively and appropriately. All applications for funding are assessed by our Project Appraisal Committee (PAC) which consists of representatives from:
2013: €3,828,770 invested 17%
Since 2000: €31,248,560 invested 9%
9%
Areas We Consider For Funding: Executive from The Children’s University Hospital
1
Director of Nursing, The Children’s University Hospital
1
- Equipment needs - Redevelopment of wards - Development of new services
The Medical Board of The Children’s University Hospital
1
Directors of the Fundraising Company
2
CEO – Temple Street Fundraising
1
- S upport services for patients, parents and families
37% 19%
In 2013 we spent €3.8million redeveloping wards, purchasing vital life-saving equipment, developing services and investing in ground breaking research.
Ward & Hospital Redevelopment:
55%
2,086,004
43%
Ward & Hospital Redevelopment:
Research:
740,471
Research:
Equipment:
664,910
Equipment:
Patient & Parental Support Services:
337,385
Patient & Parental Support Services:
11% 11,528,696 3,321,327 13,447,640 2,950,897
Note: We have restricted a further €9million in funds for projects that are pending Board approval.
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Impact report | life-saving equipment
…Paediatric Renal, Dialysis and Transplant Hospital of Ireland
…Centre for Paediatric Neurosurgery (for children up to the age of six)
life-saving equipment 2013: €664,910 invested Since 2000: €13,447,640 invested
…Centre for Inherited Metabolic Disorders
…Meningococcal Reference Laboratory
Temple Street is the national…
…Craniofacial Centre
…Centre for Paediatric Ophthalmology
…Airway Management Centre
Impact report | life-saving equipment
Temple Street has some of the best doctors and nurses in the world but without specialist equipment it’s simply not enough. Each year the hospital needs to spend between €500k and €1.5million purchasing vital life-saving equipment. These purchases are crucial and allow the hospital to stay at the forefront of paediatric medicine. But state of the art equipment is very expensive which is why we rely on the support of our generous donors to ensure we have the very best when every second counts. Here’s a snapshot of some of the critical pieces of life-saving equipment that we have been able to purchase thanks to fundraised money.
Having state of the art equipment on site allows doctors and nurses to detect problems immediately.
Year 2000
Department Radiology
Equipment MRI Scanner
Invested €2million
Facts:
Impact:
Temple Street currently carries out approximately 8 MRI scans per day – that’s approximately 28,000 scans since it was purchased. Each scan takes approximately 45mins and requires the child to lie completely still. Temple Street carried out its first MRI in January 2001. At the time it was the only paediatric MRI scanner in the country
Prior to having our own MRI machine children would need to be transported to an adult hospital accompanied by a doctor and a nurse. As you can imagine in critical situations transporting a seriously ill child to another hospital is not ideal. This welcome addition saved not only time and resources... but thousands of lives too.
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
impact report | life-saving equipment
For many parents the thoughts of putting their child through a CT scan can be daunting which is why we try and make our surroundings as child friendly as possible. The simple addition of Peter Pan and Tinker Bell artwork makes a world of difference to young children.
Due to on-going advances in medical standards and technology Temple Street needs to upgrade and replace most of its equipment every five years. These upgrades literally save lives.
Year 2002
Department Laboratory
Year 2008
Department Radiology
Equipment Tandem Mass Spectrometer
Invested €500,000
Equipment CT Scanner
Invested €1.3million
Facts:
Impact:
Facts:
Impact:
This equipment is used for the investigation of inherited metabolic disorders and for monitoring PKU. Phenylketonuria (PKU) is a rare inherited condition which can be treated with a low protein diet.
Prior to having this vital piece of equipment tests were sent to London which meant there was a significant delay with results. Having this piece of equipment on site allows doctors and nurses to treat children who present problems immediately, preventing undue suffering.
A CT scan allows for thin cross-sectional views of the bodies organs and tissues, using noninvasive radiographic techniques. Since the computerised image is so sharp, focused, and three-dimensional, many tissues can be better distinguished via a CT scan than a standard X-ray.
This scanner allows children with life threatening illnesses to be diagnosed on site and treated immediately. Prior to purchasing it, our little ones would have to be transported to and from an adult hospital accompanied by a doctor and nurse. This put a huge strain on the child and had a significant impact on hospital resources.
Every baby born in Ireland has a ‘Heel Prick Test’. Temple Street carries out all of these tests with the Tandem Mass Spectrometer.
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Temple Street carried out its first CT scan in March 2008.
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
Impact report | life-saving equipment
Dan Martin with Hrishikesh, aged 7
“Parents and children alike are benefiting hugely from the distraction these units provide. It encourages rest which aids healing and also provides exhausted parents with a much needed distraction for the long nights spent at their child’s bedside.”
When a child’s life hangs in the balance every second counts. Having access to state of the art equipment literally saves lives.
2013: 187 Neurosurgery Cases
Suzanne Dempsey, Director of Nursing
Year 2013
Department St. Joseph’s Top Flat
Year 2009 / 2010
Project The Neurosurgery Appeal
Equipment Patient Entertainment System
Invested €160,000
Equipment SonoWand Invite, Stealth Station, OPMI Pentero.
Raised €2million
Facts:
Impact:
Facts:
Impact:
Anyone who has ever had a child in hospital will tell you how stressful it can be trying to distract them from their pain. It’s a child’s job to play and recognising this we installed state of the art beside entertainment systems in the newly refurbished St. Joseph’s Top Flat at the end of 2013.
A happier child! The system allows children to Skype home and stay connected with friends and family who can’t always be at their bedside. They can watch TV, listen to the radio and play games. Doctors and nurses can also access patient information on it.
In 2009 Temple Street was appointed as the National Referral Centre for Neurosurgery making it responsible for all surgeries, including the removal of brain tumours, in children under the age of six years. This new appointment meant the hospital had to raise an additional €2million in order to upgrade its theatre space and purchase vital pieces of neurosurgery equipment including a SonoWand Invite, a Stealth Station and an OPMI Pentero. In total more than 1,000 surgeries have taken place since 2010.
Hundreds of children receive life-saving surgery and make a full recovery! Now there is no gift greater than that!
It has been a huge hit with both children and parents alike and we hope to roll it out to other wards over the coming months and years.
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
patient story
impact report | creating a caring environment
“Izzy has been utterly amazing. When her dad and I were stressed talking to the surgeon about the operation, it was Izzy who was asking the rational questions like: ‘How will you get through my hair?’ ‘Are you going to shave my head?’ No matter what treatment or procedure she had to endure there was no complaining or moaning. Somehow she knew it was all to make her well again. It was as if she was taking care of us.” Emma, Izzy’s mum
Izzy O’Connell Within minutes of meeting Izzy O’Connell you get a real sense of the fun, exuberant and bright little girl that she is. Little Izzy celebrated her 6th birthday in February 2014 – 11 days after serious brain surgery to remove a massive malignant tumour.
Surgery like Izzy’s was made safer and more effective because of a very specialised piece of equipment which was funded by Temple Street’s wonderful supporters in 2013 – the Blue 500.
In her short life Izzy has endured surgeries and challenges that no 6 year old should ever have to experience – although she will tell you herself that it hasn’t been all bad! Conor Murray, Munster and Ireland Rugby star came to visit her and Brian O’Driscoll also made a visit to this special little girl. And it doesn’t stop there. She even managed to persuade champion jockey Davy Russell to name his horse after her!
Brain Surgeon, John Caird explains that this technology is hugely important. “The patient drinks a dye and this is taken up into the malignant cells of the brain. In simple terms, when you shine a blue light the malignant cells glow a fluorescent pink colour, which allows us to see the boundaries of the malignant tumour and perform precision surgery. If we didn’t have this, we could be leaving parts of the malignant tumour behind. It really is an important advance in our battle to successfully treat malignant tumours.”
Izzy is now having chemotherapy and radiation and despite the painful and upsetting side effects, her positive attitude continues to shine through.
The Blue 500 was funded entirely by Temple Street supporters and cost €50,000.
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creating a caring environment 2013: €2,086,004 invested Since 2000: €11,528,696 invested
Impact report | creating a caring environment
For children like Aimee Louise who are on dialysis three to four times a week, Temple Street is a home away from home.
Over the years, with the help of our generous supporters we have been able to turn what was once a series of inner city houses into the state of the art hospital it is today. We have knocked down walls and extended wards in an effort to make Temple Street as comfortable and stress free as possible. It has been a long road and while we have much to be proud of we are not there yet. In the next few pages we will take you on tour and show you some of the amazing transformations that have been made possible thanks to fundraised money.
Year 2004 Invested: €1.25million
To date over 100 transplants have been carried out in Temple Street.
Project Redevelopment of St. Michael’s C Ward into a designated space for children with kidney problems
Purpose:
Impact:
In 2003 Temple Street became the National Centre for Paediatric Renal, Dialysis and Kidney Transplants. This meant that every child in Ireland with kidney problems would be referred to Temple Street for treatment. In order to accommodate this growing demand we needed to redevelop St. Michael’s C Ward to give our special patients a designated space.
Having a new 9 bed purpose built facility gave both patients and parents routine in a comfortable environment. Prior to this children on dialysis would be moved from ward to ward depending on where there was space. For long term patients and families travelling long distances 3-4 times a week this was often stressful.
Facts: In 2012 alone 16 children got a present of new kidney which is just 5 less than Great Ormond Street in London which performed 21 that same year! In 2013 Temple Street performed 9 kidney transplants.
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
Patient story
impact report | creating a caring environment
“Aimee is desperate for a new kidney but she copes better than us and just gets on with it. She is such a little trooper.” Aimee’s mum, Michelle
Before
Aimee Louise Fenton
Aimee is all smiles as Irish Rugby legends Brian O’Driscoll & Jack McGrath drop in with the RBS Six Nations Cup.
After
“For months I craved normality and the day I could take our son home. That day did finally come and now some years later, our son is perfect. Temple Street Hospital and its ICU staff had a profound effect on us. The ICU was built by fundraising; all the equipment was bought by fundraising. We owe them everything. Every time I look at Jake, I give thanks.” Ciaran, Jake’s dad
Year 2006 / 2007
Aimee Louise was born with Polycystic Kidney Disease which can be fatal for tiny babies. She only had one kidney and it was covered in cysts that were rupturing. She would need a kidney transplant. When Aimee was 3 years old her dad Donal stepped up to the mark and gave her the greatest gift a dad could give – his kidney.
Invested: €2.5million
Amy embraced life wholly and grew stronger and bigger with every day and every year that passed until Dec 2011 when she went into kidney failure. Her family was devastated. Aimee now has to attend Temple Street four days a week until they find a new match. For her family this means leaving Cork at 5am to begin their six hour round trip to the hospital to go on dialysis for four hours at a time. With only one day between sessions this is a gruelling schedule for anyone to bear. So what do Aimee and her mum do to keep sane and cope with her illness?
“Honestly, we often drive down to the Ballycotton Cliffs. We get out of the car and we stand in front of the ocean and we scream and scream as loud as we can!!” Aimee’s mum, Michelle
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Kidney Dialysis Machine €35,000 For children with kidney problems, dialysis machines are a lifeline. They literally keep them alive until they are lucky enough to find a suitable match and undergo transplant surgery.
Project Redevelopment of Intensive Care Unit (ICU)
Purpose:
Impact:
To increase the size of the unit from 143sq metres to 400sq metres and provide a better quality of care for critically ill children and their families.
The new ICU gives families better facilities and more privacy at a time when it’s needed most. In addition to increasing the general footprint of the unit, three isolation cubicles were fitted for seriously ill babies and children. A parent’s room was also added to give exhausted parents somewhere to take time out. And doctors and nurses were also given more space in which to carry out their life-saving work.
Facts: On average 500 critically ill children are admitted to Temple Street’s Intensive Care Unit each year. Patients come from all over Ireland including Northern Ireland. A large portion of admissions are new born babies and babies who are born preterm.
It is thanks to our loyal supporters that we are able to fund these vital machines.
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
impact report | creating a caring environment
Patient story
G iraffe Omnibed Incubator Over the years we have purchased many Giraffe Omnibed incubator’s at a cost of €50k a piece. These high spec incubator’s are used to keep premature babies and critically sick infants alive. It’s an all in one life support machine and one of the hospital’s most vital pieces of equipment.
“Without a doubt Ella would not have made it without the incubators and without the medical expertise of the surgeon and other medical staff who attended her. Without the incubators, which people all over the country fundraise to buy, we would have been lost.” Paul, Ella’s dad.
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V entilator Ventilators help critically ill children breath – they literally keep them alive. Doctors and nurses can monitor a child’s progress and adapt oxygen flow at a moment’s notice.
“Gazing at the ventilator sustaining little Jake I noticed a small subtle plague. The plaque was an acknowledgement of the fact that the equipment was donated. Looking around the room it quickly became apparent much of the other equipment was bought by fundraising. We owe them everything.” Ciaran, Jake’s dad.
Grace Cavanagh 5 months old & 5 months in Temple Street Grace Cavanagh’s mum Amy discovered at her 20 week scan that her little baby had a small chin indicating that she may have a rare condition called Pierre Robin Sequence. This condition meant that Grace’s jaw didn’t develop like a typical baby’s in the womb. This left Grace with breathing and feeding issues. When Grace was born she was taken straight to Temple Street where she spent the first 88 days of her life in an incubator in ICU. Her first Christmas was spent fighting for her life.
Home for good Up until recently Temple Street was the only home that little Grace Cavanagh had ever known but after 5 long months she was able to go home. Grace is now doing really well and is growing bigger and stronger every day! Grace started life on a ventilator and although she still needs oxygen at night she is now able to breathe on her own during the day.
“Being in hospital since Grace was born has been pretty tough, especially being in ICU for her first Christmas. It has been quite difficult but the staff made it easier for us.” Amy, Grace’s mum
Ventilator €45,000 These machines are in constant need of upgrading and replacing at a cost of €45,000 each. Over the years we have purchased many ventilators thanks to our generous supporters and they will continue to remain a high priority on our equipment replacement list.
TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
Impact report | creating a caring environment
After
Before
“We have no doubt in our minds that the support and care of Temple Street staff in St. Michael’s B helped not only Laoise to survive but helped us to survive what was the most horrendous few weeks we’ve ever have to go through in our lives. Laoise owes a lot to this hospital, and we as parents do too.”
The new unit under construction.
Before we had this unit, parents of children with Cystic Fibrosis feared coming to Temple Street - they were afraid their kids who are very vulnerable to infection, could pick up something waiting with hundreds of other children. We are thrilled and relieved to now have this fantastic facility in Temple Street.
Siobhan and David, Laoise’s parents
Year 2009 Invested: €1.5million as a result of TESCO
Project Redevelopment of St. Michael’s B Ward
Year 2010 Invested: €3.1million
Project New designated Cystic Fibrosis and Respiratory Outpatient Unit
Charity of the Year Partnership
Purpose:
Impact:
Facts:
Impact:
To give parents of newborn babies private cubicles where they can sleep comfortably beside their child.
When you are the parent of a new-born baby with health problems privacy and comfort is paramount. This spacious new ward was fitted with 8 single cubicles to give parents adequate space to nurse and be close to their newborn baby. Each cubicle was fitted with a fold down couch bed to allow new mother’s to rest during the day and sleep comfortably at night.
This common yet life threatening disease affects 1 in 1500 live births in Ireland. It’s a hereditary disease that causes the body to produce thick and sticky mucus that can clog the lungs and obstruct the pancreas. Treatment for this disease, for which there is currently no cure, has improved greatly in recent years with sufferers now living well into their 30’s and 40’s.
Up until 2010 there was no fixed area for day patients with Cystic Fibrosis (CF) meaning appointments were often fraught with anxiety as parent’s feared risk of infection while they mixed with general day patients. This new state of the art unit was built to house all the multidisciplinary team and is centred 100% on children with CF. It is fully air conditioned to ensure the air is clean, minimising risk of infection.
Facts: St. Michael’s B treats premature babies and infants under the age of 6 months. It also treats critically ill infants in its High Dependency Unit which is just off the main ward.
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In addition the High Dependency Unit at the end of the ward was redeveloped to include two single units, one double isolation unit and also a more spacious open plan area to treat up to three more premature babies.
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
Impact report | creating a caring environment
Before
In keeping with our child friendly environment Surgical Flat was given a fun ‘Wizard of Oz’ theme complete with its own yellow brick road!
After
“What an amazing experience to see four state of the art Isolation Suites with en-suite facilities. Running the Women’s Mini Marathon to raise funds for Top Flat was so rewarding. Now Grace has a safe place and she won’t be exposed to infections. I am over the moon and urge all women out there to do the mini marathon. You might just enjoy it…” Marie Duffy, mum to Grace who was diagnosed with Cystic Fibrosis in November 2011
Year 2012
Project Surgical Flat Ward
Invested: €1million (including equipment)
Year 2013 Invested: €2million in total (€1.65million
Project Redevelopment of St. Joseph’s Top Flat
of which came from fundraising)
Purpose: To relocate Surgical Flat to a more central location within the hospital with space to install isolation cubicles. Prior to this if one child contracted an infectious disease in a 4 bedded ward, the other 3 beds could not be used which placed a huge strain on resources.
Facts: Surgical Flat cares mainly for surgical patients, including cases from general surgery, orthopaedics, plastic surgery, ophthalmology and ear, nose and throat surgery including cochlear implants.
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Impact: Prior to moving to this newly refurbished ward children weighing more than 23kg could not be accommodated in Surgical Flat as they were too heavy to lift down the stairs after an operation. The new Surgical Flat is centrally located with lift access making it ideal for both children and staff. In addition 4 isolation cubicles were installed to prevent the spread of infectious diseases – 3 single and 1 double to accommodate twins and siblings. En-suite facilities were also fitted in most rooms.
Facts:
Impact:
St. Joseph’s Top Flat is one of the hospital’s oldest and busiest environments. Each year more than 1900 children are admitted to this ward, many through Accident and Emergency. It’s also the ward where children suffering from lifelimiting illnesses such as cystic fibrosis often call home. Before the renovation it had not seen any improvements since the 1930’s making it a dreary and cramped space for children and families.
This newly refurbished ward was redeveloped into a mix of four and two bedded units with 4 isolation cubicle - all with ensuite facilities. The isolation cubicles are fitted with an airpressurised control system, essential for the treatment of patients vulnerable to infection, especially cystic fibrosis patients. One of the single isolation rooms is also used to monitor children with uncontrolled epilepsy. The Top Flat refurbishment also included the installation of a Patient Entertainment System fitted at each child’s bed space and a satellite schoolroom was added to facilitate patients from other wards that cannot access the hospital main school.
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
impact report | supporting patients and their families
supporting patients and their families 2013: €337,385 invested Before
After
Thanks to the generosity of the Vodafone Foundation and Diarmuid Gavin and his team of expert gardeners we were able to turn what was once a lifeless underground alley into a hidden wonderland.
Year 2009
Invested: €110,000 Multi-Sensory Room – Funded by Vodafone Foundation
Project Multi-Sensory Room and Garden
€40,000 Outdoor Garden and Aquarium
Facts:
Impact:
Sick children are no different. Like all children they crave attention, distraction and stimulation. And recognising this we set about designing a new garden and play area away from the wards.
This unique space gives children a chance to get away from their hospital bed and forget their troubles for a few hours. The outdoor garden features a turreted castle den, underground aquarium and Punch and Judy Theatre. The Multi-Sensory room is a specially designed area that gives both parents and children the opportunity to completely relax. It is used for a wide range of sensory experiences for therapy, learning and fun.
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Since 2000: €2,950,897 invested
Impact report |
supporting patients and their families
When a child is sick it places a huge amount of stress on everyone – parents, siblings and friends – so it’s often the little things that people remember most. In Temple Street we strive to ensure the whole family is looked after by providing those little extra’s that make all the difference. We feel this is hugely important which is why we give priority to a number of different projects year after year.
Pet Therapy
€5,000 invested annually Pet Therapy is proven to lower blood pressure and have a calming effect on sick children. It also offers a welcome break from routine for children who are in hospital for long periods of time. A visit from Max or Buttons really does work wonders. It brightens their day and helps take their mind off their illness. On average 1200 children benefit from Pet Therapy every year.
“The Pet Therapy programme is so important to our little patients. A simple visit from Max or Buttons works wonders for the whole family. I have seen children facing their darkest days light up and smile. These moments are precious and help us to normalise the hospital environment, making it more like home. The children adore Max and Buttons and look forward to their visit each week. It brings them such comfort.”
Sibling Camps
€4,000 invested annually Very often siblings of seriously ill children feel a little left out and neglected. To give these children a voice, the Social Work Department organises Sibling Camps throughout the year as the need arises. Sibling Camps give these children access to doctors and nurses in Temple Street allowing them to ask direct questions about their brother or sisters illness. They also receive a full tour of the hospital which allows them to visualise things from their sibling’s perspective which gives them a greater understanding of what they are going through. These camps have proved invaluable to families with parents noting a remarkable difference in their child’s behaviour after their attendance.
Julie Collins, Temple Street Play Specialist
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
impact report | finding new treatments and cures
Finding new treatments and cures
In 2013, Temple Street cared for 145,000 children from all over Ireland.
2013: €740,471 invested Since 2000: €3,321,327 invested
Home Away from Home
€1million invested In 2006, thanks to the support of Sherry Fitzgerald, we were able to purchase a Home Away from Home on Fontenoy Street in Dublin. This house can accommodate two families that need to be close to the hospital on a long term basis. In addition to this house Temple Street also invested in a number of foldout beds to distribute throughout the hospital on any given night.
“The new house is a home away from home. Coming from Sligo it’s great to have it and it’s a whole lot better than sleeping on a chair or the hospital floor. It’s hard to look after your seriously ill child and leave your other kids and partner at home. This home has changed that. It’s a help and comfort to know that there is somewhere we can go.” Janet, Sligo
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Kids Events Budget €7,000 invested annually
Every year the play department hosts four special events at Easter, Summer, Halloween and Christmas. These events ensure that children who are in hospital around special occasions don’t miss out. Every penny from this fund is spent on fun things like face painting, entertainment, costumes and decorations. You simply can’t put a value on a child’s happiness.
The Bereavement Counselling Service €13,000 invested annually
This programme offers invaluable support and counselling to families who have lost a child. It consists of one to one counselling with individual family members and also group sessions.
TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
Impact report | finding new treatments and cures
Our vision for research is: Excellence in research – making a difference to the lives of children.
Today’s Research, Tomorrow’s Treatment The role of the Department of Research is to embed research as a core activity in Temple Street Children’s University Hospital. We aim to ensure that all research performed at the hospital is of the highest possible standard and is utilised and interpreted in the most appropriate way to have the maximum positive impact on children’s health. We are committed to carrying out pioneering research to find treatments and cures for some of the most complex illnesses. The Research Department actively encourage its researchers to form collaborations with other hospitals and universities and work with their Research and Technology Transfer offices to ensure that correct procedures are followed. We currently have strong research links with the National Children’s Research Centre, the Mater Hospital, the Rotunda Hospital, University College Dublin, Trinity College and the Royal College of Surgeons in Ireland.
“It’s simple really, we all want our children to live long and healthy lives. We need research to look for ways to prevent them getting ill and to ensure that they receive the best possible treatment for their condition if they are ill. At the moment, there are still many paediatric and lifelong illnesses which have outstanding diagnostic, therapeutic and management questions that need answering. To best answer these questions we need all different types of research – looking at the cellular and molecular changes in disease, finding out the best ways for the healthcare professionals, children and parents to manage a condition, and assessing which medicines have the best potential to help a sick child.” Gayle Kenney, Research Manager
The hospital focuses on three broad research themes including:
Immunisation
Rare Disorders in Children – Cutting Edge Treatments, including research in…
Injury Prevention
Inherited conditions
Obesity
Inborn errors of metabolism
Health Education
Neuroscience
Child mental health
New Diagnostic tests
Epidemiology of childhood infections
Genetic basis to disease (e.g. Cystic Fibrosis)
The Well Child Child development
Asthma
Critical Care
Specialist Surgery, including research in… Neurosurgery Ophthalmology New developments in paediatric surgery Orthopaedics Craniofacial ENT
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
Impact report | planning for tomorrow
planning for tomorrow Bernadene, mum to Ali aged 5, who attends the Neurology Department
What’s next… At the moment we are hard at work making plans for one of our most ambitious redevelopment projects yet – a new Neurology Unit and Renal Department. To accommodate both of these areas we plan to construct a new two storey building above our existing Outpatients Area with a designated floor for each. The Neurology Department currently operates out of what was once an attic making it a very cramped environment for patients suffering from complex disorders such as Epilepsy, Cerebral Palsy and brain disorders. On any given day there could be 80 staff, patients and family members on the ward pressing upon its very limited and exhausted facilities. This new build will increase capacity and provide additional clinical rooms and an adequate waiting room and patient play area. The second floor of the building will be occupied by the Renal Department and offer additional outpatient facilities for children with kidney problems. Having a new child friendly environment for both Neurology and Renal will make a huge difference to patients and families, giving them much needed space and privacy. It should also significantly reduce waiting times.
The purchase of vital life-saving equipment will continue to remain a key priority over the next three years as will our commitment to research and patient and parental support services.
“The department just isn’t big enough. It’s cramped. It’s outdated. And it’s uncomfortable for everyone - especially Ali. It’s like something from Alice and Wonderland. Every door is a different size, the floors are sloping in all directions and people are practically on top of each other. There could be 80 children, parents and siblings on any given day and there’s only one toilet – which doesn’t even fit a wheelchair. It’s so stressful.” Bernadene, Ali’s mum
We have already started to fundraise for this project which will cost approximately €5million.
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Impact report | planning for tomorrow
patient story
Having a school in the hospital means that children in our care long term don’t have to miss out on their education.
Amber O’Rourke Little Amber O’Rourke was only 5 years old when she was admitted to Temple Street after suffering a severe stroke.
“She began vomiting and complaining of a headache. Later we noticed she was grinding her teeth. Her eyes were rolling and she didn’t respond when we called out to her. She had a rash and the left side of her body had gone limp.” Elaine and Billy, Amber’s parents When Amber arrived at Temple Street she was admitted straight into ICU where she was put on a ventilator and life support. She was gravely ill and her mum and dad feared she would never recover. In a bid to try to understand what had happened the doctors carried out a renal biopsy and an MRI which picked up a bleed on the brain. Amber also had severe kidney damage.
(Left) Amber attending the hospital school while she was in Temple Street. (Right) Elaine credit’s the doctors in Temple Street for saving her daughter’s life and was determined to help make a difference so she rallied 25 women to run the Women’s Mini Marathon and raise vital funds!
After nine days in ICU Amber was moved down to the Renal Unit where she started on dialysis. She also had to learn to walk, talk and feed herself again. But she was on the road to recovery and after lengthy physiotherapy sessions she began to regain feeling in her left leg. Amber spent Christmas and her 6th birthday in Temple Street and her parents describe the hospital as their second home for the four months Amber was in. Amber’s recovery has been slow but steady and her family are thrilled she is now able to walk again. She’s also back in school for short periods of time but her mum and dad are confident she will be back full-time really soon. She only needs to attend Temple Street now for weekly dialysis sessions. She’s a real inspiration and she touched the hearts of all the nurses and doctors who cared for her.
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
Impact report | your trust is important to us
Keeping The Magic Alive It takes an army of supporters, volunteers and ambassadors to keep the magic alive in Temple Street year after year. These amazing people work tirelessly to ensure our little patients get the care they deserve. Their commitment and dedication never ceases to amaze us and we are so lucky to have each and every one of them on Team Temple Street! There are simply too many people and organisations to mention personally but you know who you are and you know the impact you are making. You have done so much already so THANK YOU from the bottom of our hearts.
Your Trust is important to us In Temple Street we go to great lengths to ensure we are fully compliant with all legal and regulatory requirements, exercising excellent governance along the way. Our accounts are fully audited and available on our website for all our supporters and volunteers to access. We are signed up to the Statement of Guiding Principles for Fundraising which was developed by the Irish Charities Tax Reform Group (ICTR). And we are also signed up to the Code of Governance and are well on our way to full compliance.
The Statement of Guiding Principles for Fundraising exists to: Improve fundraising practice Promote high levels of accountability and transparency in the charity sector Provide clarity and assurances to donors and prospective donors about the organisation they support.
A copy of all Temple Street’s fundraising policies and procedures are available at www.templestreet.ie
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TEMPLE STREET CHILDREN’S UNIVERSITY HOSPITAL
Our Board of Trustees is a voluntary group of dedicated individuals who give their time to oversee the work of the Fundraising Office. They are leaders in business, finance and the legal profession. Children’s Fund for Health, Temple Street Fundraising Directors: Mr. D McCann (Chairman)
Mr. M Monaghan
Ms. S Brady
Mr. T O’Rourke
Mr. D Spring
Ms. E Finnan
Ms. A Ryan
Mr. V Sheridan
Mr. C McAlinden
Ms. D Fitzgerald
Secretary: Ms. A Neill
Registered Number: 328920
Registered Office: 50 Fitzwilliam Square, Dublin 2
Solicitors: Arthur Cox & Company Solicitor, Earlsfort Terrace, Dublin 2
Bankers: Allied Irish Bank, 62 St. Brigid’s Road, Dublin 5 Bank of Ireland, Ballsbridge, Dublin 4 Ulster Bank, 81/82 Dorset Street, Dublin 1
Auditors: Deloitte & Touche Chartered Accountants, Deloitte & Touche House, Earlsfort Terrace, Dublin 2
Contact Information: The Fundraising Office Temple Street Children’s University Hospital, Temple Street, Dublin 1
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“Your donations allow us to make the ordinary, extraordinary… Thank you for your generosity and your trust.” Denise Fitzgerald, Chief Executive, Temple Street Fundraising
The Fundraising Office, Temple Street Children’s University Hospital, Temple Street, Dublin 1.
t. 01 878 4344 e. info@templestreet.ie w. templestreet.ie CHY 13534