FREE
I N
F O C U S
VOL.13, NO.2
F O R
P E O P L E
OV E R
More than 125,000 readers throughout Greater Baltimore
Brightening ill children’s days
Founding the foundation Started in 2002 by Casey Baynes, the Casey Cares Foundation provides ongoing programs for critically ill children and their families.
FEBRUARY 2016
I N S I D E …
PHOTO BY CHRISTOPHER MYERS
By Carol Sorgen When a child is critically ill, the entire family is affected, as Debi Katzenberger knows all too well. Her granddaughter, Kamryn, was diagnosed with leukemia in 2004 and passed away three years later when she was just 8 years old. As Kamryn endured treatments and innumerable hospital stays, her days were brightened by tickets to shows, birthday presents and other gifts from the Casey Cares Foundation — a Baltimore nonprofit that provides uplifting activities and support to children affected by cancer and their families. “The organization made such a difference for our whole family during such a difficult time. They would say, ‘What do you need? What can we do?’” said Katzenberger, who lives in Glen Burnie. After her granddaughter died, Katzenberger felt adrift after the all-consuming years of caring for Kamryn, so she decided to volunteer for Casey Cares. She started out helping with data entry. But then Katzenberger thought about how a high point for her granddaughter was getting a new pair of pajamas so she didn’t have to wear a flimsy hospital gown. So she developed and spearheaded a new project for the organization to provide pajamas to young hospital patients in Maryland, Washington, D.C., Virginia and Pennsylvania. Called Kami’s Jammies, the program collected and distributed more than 6,000 pairs of pajamas last year. Each pair includes a tag about the program with a photo of Kamryn. “When you’re 8 years old and pass away, you don’t really have time to build a legacy or to do something that helps people remember you were here. This [project] is something that definitely has done that” for Kamryn, Katzenberger said. “When you lose a child, a parent’s greatest fear is that their child will be forgotten, and this assures she will not. So it helps them and it helps me, and it helps those kids in the hospital.”
5 0
L E I S U R E & T R AV E L
Cozumel — beaches, diving, Mayan ruins and more; plus, budget travel to Russia, and how to bid online for hotel rooms page 23
ARTS & STYLE Terry Tacka (left) and Nancy Lund help coordinate the Casey Cares Birthday Blast program, which gives toys, stuffed animals, tickets and gift cards to critically ill children on their birthday. Baltimore-based Casey Cares works to brighten the days of young patients throughout the mid-Atlantic region, and to
While learning was always a challenge for Baynes due to her dyslexia, she nonetheless received her A.A. degree before graduating high school, graduated from Salisbury State in 1996 with a B.A. degree in Liberal Arts, and continued on to become the youngest master’s degree recipient at Towson State University in 1998 at age 20. After graduating, Baynes worked in the nonprofit sector for several years, but then went on to help run her family’s 125-yearold trucking and warehousing business. In 2000, after missing the sense of fulfillment she got from charity work, Baynes created the foundation. Under her leadership, it grew from serving a few families in Baltimore to now helping approximately 700 families in six states.
Most of the children are being treated for leukemia, brain tumors, cystic fibrosis, blood disorders, lymphoma, sarcoma and other childhood cancers. The foundation arranges for a variety of outings — from a day at the zoo or a night at a concert, to a variety of art, entertainment and cultural activities. Since, due to weakened immune systems, many children can’t attend events in the community when they first return from the hospital, the organization sends the family pizza and a movie they can enjoy together in the comfort of their own home. In addition, families may be provided sky box seats at baseball games, concert See ILL CHILDREN, page 28
A voyage back in time to Our Town with the Vagabond Players; plus, the book Our Souls at Night eloquently explores finding love late in life page 27 TECHNOLOGY k Our vulnerable power grid k Helpful links and apps
4
FITNESS & HEALTH 7 k Growing ‘organoids’ for research k How genes affect drug reactions LAW & MONEY 17 k Organize estate records online k Best bonds for 2016 ADVERTISER DIRECTORY
31
PLUS CROSSWORD, BEACON BITS, CLASSIFIEDS & MORE