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VOL.11, NO.8
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More than 125,000 readers throughout Greater Baltimore
Ups and downs of caregiving
AUGUST 2014
I N S I D E …
PHOTO COURTESY OF AMY GOYER
By Carol Sorgen It has been a long and increasingly difficult 20-year journey, but Patty Kelly knows she is coming to the end of her caregiving responsibilities for her elderly mother. The 56-year-old Westminster resident has been providing an evolving array of caregiving functions since her mother was first diagnosed with Alzheimer’s disease in 1994. Now 90 and in a residential facility in Virginia, Kelly’s mother is no longer able to speak or interact with her daughter. But Kelly continues to make the 200mile roundtrip every week to sit with her mother while she eats lunch. Kelly reads to her from the Bible, even clips her fingernails. “It’s both a blessing and a curse,” said Kelly. “It breaks my heart to see her like this, but I’m glad that I have the time and a supportive husband and sister, so that I am able to do what I can.” Through the years, Kelly’s responsibilities have grown from mowing the lawn when her mother lived independently, to managing her medical care, to taking over her finances and selling her house (in three days!) when it became clear her mother could no longer live independently. “With every little step down the road, you grieve a little bit more,” Kelly said. “Your parent moves a little farther away from you, and on top of being sad, you’re angry that they’re no longer there for you.”
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L E I S U R E & T R AV E L
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Finding support
Amy Goyer, AARP’s Family and Caregiving expert, moved across the country to help care for her parents, Robert and Patricia Goyer. Nationally, there are more than 43 million caregivers to those over 50. While the job can be difficult, caregiving can also bring families closer together.
Kelly has found much information and support through the Alzheimer’s Association. The association’s website offers a large section for caregivers at http://www.alz.org/care/overview.asp, including a message board, links to support groups, and health, legal and financial resources. Check the association’s Maryland site, http://www.alz.org/maryland, for support groups and events. The association offers more than 20 support groups in Baltimore City and County. Kelly herself attends a monthly support group, something that is strongly encouraged by professional caregivers such as Michelle Mills, LCSW, Director of Adult Day Services at Levindale Hebrew Geriatric Center and Hospital.
Caregiver support groups are offered at such locations as Jewish Community Services, St. Joseph Medical Center, Kernan Hospital and Northwest Hospital Center; there are also numerous disease-specific caregiver support groups as well. You can find more information at www.baltimorecountymd.gov/Agencies/aging/caregivers/supportgroups.html. The Baltimore County Dept. of Aging also publishes a quarterly newsletter called “Caregiver Connection,” available in print or online at http://bit.ly/caregivernewsletter. “Providing care for an elderly or ill loved one is very stressful,” said Mills. “We suggest that caregivers find a support group whether in person or online. You have to commit to taking care of yourself.”
Millions of caregivers According to the Alzheimer’s Association, 43.5 million adult family caregivers care for someone 50+ years of age, and 14.9 million care for someone who has Alzheimer’s disease or other dementia. Family caregivers are said to provide a value of $450 billion a year in unpaid care. Another sobering fact, according to AARP: As baby boomer caregivers age themselves, there will be fewer caregivers available for them when they need care. In 2010, the ratio of caregivers to patients over the age of 80 was 7 to 1; by 2030, the estimated ratio will be 4 to 1; and in 2050, 3 to 1, making for an ever increasing burden See CAREGIVING, page 9
ARTS & STYLE
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FITNESS & HEALTH k Understanding food allergies k Can we prevent Alzheimer’s? LAW & MONEY k Better dividends abroad k Don’t give up on bonds
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