Oranga Tū Prostate Cancer Research project overview

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Oranga Tū: a kaupapa Māori co-design prostate cancer project Kia ora, This is an invitation to take part in this research. About the Study Oranga Tū (a healthy stand) is a kaupapa Māori co-produced project being run collaboratively with Māori communities including Māori prostate cancer survivors, Māori health providers, specialists, the University of Otago and University of Auckland researchers. Overall, the project aims to improve the whānau ora (health and connectedness) of tāne (Māori men), their partners, whānau (family) and carers after a diagnosis of prostate cancer. The results will inform health and other service delivery. What is the aim/objective of the study? We aim to understand and improve the service and social context of tāne newly diagnosed with prostate cancer by investigating the service environment. We want to identify the network of health, social and volunteer services that are available to tāne and their whānau in the Tauranga city area, and investigate their relationships with each other and their clients. This will enable us to visualise who talks to who, where the referral streams are, which services are not connected in to the conversations, and to identify the facilitators and/or barriers between service providers. The mapping will include Māori and mainstream health and social services for tāne and their whanau. We will also identify key messages from our analysis of the maps and will include these messages in digital stories with three selected services. The digital resource will be used to create a health literacy resource tool. What will your participation in the study involve? • It involves a kanohi-ki-te-kanohi (face-to-face) interview at your place of work/service premises or location of your choice and will take approximately one hour. • You will asked a range of standardised questions alongside open ended questions. • You will also be asked to create a visual representation of the relationships between services and clients to draw a simple pen and paper map. • If you agree, we may contact you again to ask if you would like to share your key message in a digital story resource (i.e. video or film). Next stage of the research Later in the year we will interview tāne and their whānau from across the BOP/Waikato region who have experiences of prostate cancer and have used any health, social or volunteer service in the last five years. Tāne/whānau will be asked similar questions – what services did you use, how did you find them, what helped and what could be improved? Again we will ask a select number of tāne/whānau to participate in making a digital resource. Oranga Tū Research Team: Dr Jacquie Kidd (RN, PhD, Ngāpuhi), School of Nursing, University of Auckland; Rawiri Blundell (Maori Health Manager, Ngāti Porou) Pinnacle Midlands Health Network; Hemi Curtis - Oranga Tū kaumatua Te Puna Oranga Waikato DHB Dr Richard Egan, Department of Preventive Medicine, University of Otago, Dunedin. (Other collaborators are not named here). If you would like to participate or if you have any queries Please contact Stella Black (Ngāi Tūhoe, Māori researcher, School of Nursing, University of Auckland) on 09 923 3003 or at stella.black@auckland.ac.nz. University of Otago Ethics F18/003 for three years ending March 2021.


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