Endnotes 1 “NC DPH: N.C. Sickle Cell Syndrome Program,” accessed December 7, 2021, https://www.ncsicklecellprogram.org/. 2 “Value-Based Payment for Maternity Care in Medicaid: Findings from Five States” (MACPAC, September 2021), https:// www.macpac.gov/wp-content/uploads/2021/09/Value-Based-Payment-for-Maternity-Care-in-Medicaid-Findingsfrom-Five-States.pdf. 3 “Proposed Program Design,” NCDHHS, n.d., https://www.ncdhhs.gov/proposed-program-design. 4 “Introduction to COVID-19 Racial and Ethnic Health Disparities,” CDC, n.d., https://www.cdc.gov/coronavirus/2019ncov/community/health-equity/racial-ethnic-disparities/index.html. 5 “North Carolina’s Transformation to Medicaid Managed Care,” NC Medicaid, n.d., https://medicaid.ncdhhs.gov/ transformation. 6 “QuickFacts: North Carolina,” United States Census Bureau, n.d., https://www.census.gov/quickfacts/NC. 7 “QuickFacts: North Carolina.” 8 “QuickFacts: North Carolina.” 9 “About Sickle Cell Disease,” Genome.gov, accessed December 5, 2021, https://www.genome.gov/Genetic-Disorders/ Sickle-Cell-Disease. 10 Sophie Lanzkron, C. Patrick Carroll, and Carlton Haywood, “The Burden of Emergency Department Use for Sickle Cell Disease: An Analysis of the National Emergency Department Sample Database,” American Journal of Hematology 85, no. 10 (2010): 797–99. 11 “About Sickle Cell Disease.” 12 Community Care of North Carolina, “Sickle Cell Program,” Community Care of North Carolina, 2021, https://www. communitycarenc.org/what-we-do/care-management/population-health-outreach-and-care-coordination/sickle-cellprogram. 13 S. Wilson-Frederick et al., “Medicaid and CHIP Sickle Cell Disease Report, T-MSIS Analytic Files (TAF) 2017,” Center for Medicaid and CHIP Services, Dvivision of Quality and Health Outcomes, Centers for Medicare & Medicaid Services, January 2021, https://www.medicaid.gov/medicaid/quality-of-care/downloads/scd-rpt-jan-2021.pdf. 14 CDC, “Incidence of Sickle Cell Trait in the US | CDC,” Centers for Disease Control and Prevention, May 4, 2018, https://www.cdc.gov/ncbddd/sicklecell/features/keyfinding-trait.html. 15 “About Sickle Cell Disease,” National Human Genome Research Institute, n.d., https://www.genome.gov/GeneticDisorders/Sickle-Cell-Disease. 16 “About Sickle Cell Disease.” 17 Courtney Fitzhugh et al., “Morbidity and Associated Sudden Death in Sickle Cell Disease,” Blood 106, no. 11 (2005): 2348. 18 Bianca Nogrady, “Why Severe Sickle-Cell Pain Has Been Neglected,” Nature 596, no. 7873 (2021): S10–12; “About Sickle Cell Disease”; Amanda Friend and Daniel Girzadas, “Acute Chest Syndrome,” in StatPearls (Treasure Island (FL): StatPearls Publishing, 2021). 19 “Longevity for Those with Sickle Cell Disease Linked to Care Maintenance, Family Involvement,” American Society of Hematology, accessed December 5, 2021, https://www.hematology.org:443/newsroom/press-releases/2016/rarepatients-with-sickle-cell-disease-live-nearly-twice-as-long-as-average. 20 H. Joanna Jiang, Marguerite L. Barrett, and Minya Sheng, “Characteristics of Hospital Stays for Nonelderly Medicaid Super-Utilizers, 2012: Statistical Brief #184,” in Healthcare Cost and Utilization Project (HCUP) Statistical Briefs (Rockville (MD): Agency for Healthcare Research and Quality (US), 2006), http://www.ncbi.nlm.nih.gov/books/ NBK269028/. 21 Deepika S. Darbari and Amanda M. Brandow, “Pain-Measurement Tools in Sickle Cell Disease: Where Are We Now?,” Hematology 2017, no. 1 (2017): 534–41. 22 Santosh L. Saraf et al., “Improved Health Care Utilization and Costs in Transplanted versus Non-Transplanted Adults with Sickle Cell Disease,” PLOS ONE 15, no. 2 (2020): e0229710. 23 NCDHHS, “North Carolina Sickle Cell Syndrome Program,” NCDHHS, September 18, 2020, https://www. ncsicklecellprogram.org/.
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