motivo A robot accompany with cancer patient
Designer Yen Wei Chi (Edward)
The Hong Kong Polytechnic University School of Design CHANGHONG
Abstract The report is the final year project of Yen Wei Chi (Edward) from MDes Interaction Design program at Hong Kong Polytechnic University School of Design collaborate with CHANGHONG. The project was focus on how to bring the positive attitude to cancer patient during the recovery time in order to ease their cancer journey.
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Designer
Yen Wei Chi (Edward) Edward is from Taiwan, experienced living in Shanghai for three years and later attended Beijing University of Aeronautics and Astronautics for his undergraduate studies in Industrial Design. Due to his interest in user-experience studies and system design, he moved to Hong Kong to study Interaction Design at the Hong Kong Polytechinic University. Edward believes that the study of human behavior and application of cultural studies and social sciences to design can create a better life.
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Partners The Hong Kong Polytechnic University School of Design The School of Design is at the forefront of applying Asian innovation to global opportunities. It is committed to sustain excellence in design education, practice, consulting and research; to harness the legacy and dynamism of Asian cultures in creating solutions for human needs; and to create strategic models for products, brands, and systems in local and global markets. The school has over 1200 students and is the only institution offering design education at the higher level in Hong Kong. Process CHANGHONG Initiating since 1958, Changhong brand has around 60 years history and is the No.1 best selling of TV in Chinese market for last 17 years, and one-third of Chinese families is using Changhong TV. With the rapid development in recent years, Changhong has transformed itself as an integrated multinational corporation (combined R&D and manufacturing of military industry, consumer electronics, core components, etc.) and been advancing to become a content and service provider in worldwide. Hope Society of Cancer Care Hope Society of Cancer Care is a foundation helping cancer patients and their family during the recovery time. They provide medical consultancy, counseling Psychology, etc.
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Brief
Explore the cancer patient recovery emotional journey. To understand what will cause cancer patient negative emotion and what will cause them positive attitude. Besides, knowing what their social network can support the patient to ease the painful recovery journey and bring them positive attitude.
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Process
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Research
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Key Insight
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Experience Guidline
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Projecg Statement
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Introducing Motivo
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Interaction Model
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Scenario
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Prototype
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Research Phone interview with two doctors who are working in hospital
Purpose Understand the prospective of view from doctors about cancer patient in order to know patient’s cancer journey and defining the target user Finding • Patients get cancer in different stage will act different: Stage one-easy to cure Stage two, three-have the chance to cure Stage four-little chance to cure • Old people, who gets cancer, will tend to give up the medical treatment • Sometimes it’s difficult for patient to feel the support from their friends or relative because the radio therapy will cause them unconscious.
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• Five Stages of Grief from Elisabeth Kßbler-Ross is sutable for the cancer patient when they are facing the disease. It is easy for some patients to get through to the last stage acceptance easily. However, to most of patients, they will suffering back and forth in the first four stages. Denial and Isolation. At first, we tend to deny the loss has taken place, and may withdraw from our usual social contacts. This stage may last a few moments, or longer. Anger. The grieving person may then be furious at the person who inflicted the hurt (even if she's dead), or at the world, for letting it happen. He may be angry with himself for letting the event take place, even if, realistically, nothing could have stopped it. Bargaining. Now the grieving person may make bargains with God, asking, "If I do this, will you take away the loss?" Depression. The person feels numb, although anger and sadness may remain underneath. Acceptance. This is when the anger, sadness and mourning have tapered off. The person simply accepts the reality of the loss.
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Research Reading online cancer patient diary
I found a complete cancer patient diary. He writes the diary during his treatment and also uses photos to document the cancer journey. The patient got the leukemia in his early 20 in stage two and the treatment last for months. Purpose Learning patient emotion journey through their diary How Circle what causes patient’s emotion changing and create insight. Insight • Chatting makes patient happy, even the people are stranger. • Empathy is important to family members toward patient but also to patient toward family members. • Patient will forget the pain while they are doing the activity they like. • When patient doesn’t feel well, they start complaining. •P rofessional people’s comfort is more useful than others.
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Reading books, papers
Purpose Understand proffesional people's suggestion to deal with cancer patient's emotion Finding What can I do to relieve a person’s anxiety? Acknowledge the anxiety: as with many situations where emotions are involved, acknowledgement of the anxiety or fear shows you noticed and that you care. This may only mean saying something like, ‘you seem worried today’. Touch: touch is a valuable mode of communication but you need to be sure that this is acceptable to the person. Gentle touch communicates the message of sharing the fear. Some people will withdraw from touch-this can be a sign that they need to remain control. Explore the reason for the anxiety: this indicates that you want to help. It may be possible at this stage to provide what the person needs, such as company, help or information. Relaxation and distraction: introducing some relaxation and distraction techniques might lessen anxiety associated with the ongoing circumstances that are likely to persist. •Distraction: company, radio, TV to reduce time spent feeling anxious •Relaxation: music, message, peaceful places ‘Supportive and Palliative Care in Cancer’, Claud Regnard and Margaret Kindlen, 2002
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Research Interview with social workers
Interview with two cancer survivors who are social workers now and the vice secretary from the Hope society of Cancer Care. I prepared some question to them and started a casual conversation to discuss their experience and others’ they know. Purpose To know what cancer patients have been through during the recovery time. What would cause them bed emotion and how to support them?
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Insight • Patient would like to know there is always someone they can talk, accompany with them • Patient feel lonely when they are sick • Friends of the patient don’t know how to treat them or what they are suffering • Close family is the pressure come from • Hug, saying “I love you” are the useful way to patient; saying “be brave” is the least words patient like to hear • Knowledge is the power; be thankful; trust medical treatment is what a patient should do • The order of the power that can influence patient Doctors>nurse>social workers>close friends/ relative>close family member
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Research Interview with psychology professor
Purpose To understand to perspective view from the professional people about how to bring the positive attitude to cancer patient Insight • The most useful people helping the patient on mentally is their close friends but not those people who is taking care of them • Direct support is pressure • Social group is so important for the patient • Personal interrelation will change after he got cancer • Feeling lonely is what most patient feel after they got cancer • There must something wrong for leading the cancer. Document patient’s life can find the wrong life style
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Key Insight
• Knowing others cancer patient experience and how to treat it really help patient having confident fighting the disease • People attend to social group recover better than they don’t • Patient would like to know there is always someone they can talk, accompany with them • Friends of the patient don’t know how to treat them or what they are suffering • Talking to someone who has been through the same progress makes patient feel confortable • Knowledge about the disease can gain trust to medical treatment for patient
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Experience Guidline
Be with me Let patient feel being accompany with all the time. Educate us Provide knowledge to both patient and their family, friends. Understand me Showing others what patient has been through Invite me to supporting group Conveying the information about activity
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Project Statement
Bring the positive attitude to cancer patient. To let them feel being accompany and have faith to medical treatment in order to improve the quality of patient’s life during the recovery time.
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Introducing Motivo
Motivo is a plush robot that directly
accompanies cancer patient during their recovery time. Through the platform, it enables the patient to communicate with their family, friends and supporting groups. Whenever people send their care to the patients by their computer, it will store in Motivo for patient to watch whenever they are available. Patients can also show their situation and emotion through Motivo to their friends. If patients or their family, friends have any question, they can post question and those professional people on the platform will answer it for reducing their anxious. Also, professional people are able to provide knowledge to educate them or invite them to join the activities with supporting group. Motivo enable patients feel tight to their family and friends through digital instant format.
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Interaction Model
motivo is a robot that accompanies cancer patient during their recovery time. It enables the patient to communicate with their family, friends and supporting groups to get emotion support, knowledge in order to gain positive attitude and motivation during the patient cancer journey
provide k answer qu invite to support g
When patients feel lonely and depress, motivo will show what their friends, relative send them to support them. When patients lost the trust to medical treatment, motivo will show what other patient’s experience and provide the knowledge from professional people. When patients feel no one understand them, motivo will invite them and their family to support group to be with other cancer patients and cancer survivors.
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Patients can interact with the robot. They can pat on robot’s head, hug it and get information through the screen. Robot will act like a human and talk to the patient.
friends/relative
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support group social workers
knowledge uestion goup
provide knowledge answer question invite to support goup show supportive
doctors
learn knowledge post question get invitation
learn knowledge post question et invitation
provide knowledge answer question invite to support goup
learn knowledge post question get invitation
post recent situation
post recent situation
show supportive
show supportive
motivo
close family
self-reflection
patient
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Scenario Meet David, he is 25 years old, working in the financial industry, and has been a cancer patient for 2 years. He’s diagnosed with colorectal cancer in stage three. After his surgery, David went back home. His friends went to his home visiting and gave him Motivo to accompany during the recovery time. They input the basic information. Nancy, David’s best friend lives abroad. In the morning when Nancy checked her mail, she got the invitation from Motivo and watch through the information teaching her how to treat the cancer patient. Nancy recorded a video through the computer camera and sent it to David. David felt calm when he recieved Nacy's message and he hug Motivo tight to express his feeling. Radio therapy has been tough on David. It caused David fever, nausea. He hated the therapy and he felt his family didn’t know what he has been going through. He punched Motivo and it help him express his feeling to others. Motivo would also play music to ease David;s emotion. Cancer has changed his social life. He often avoids hanging out with friends because he feels uncomfortable about artificial anus might smell foul. David search ”How can I prevent the foul?”and read through other's experience and also chatting with other cancer patients to get more information. Whenever there is any activity from the supporting group, Motivo sends invitations to David and his friends and family. During several such meet-ups, he met many patients, some of whom recovery from more serious condition. Their increased access to social workers and support group had made them more comfortable. With Motivo, its easier for David to record his progress and even the emotional journey. He can be more aware about what can improve his life preventing getting cancer again. Motivo eases David's cancer journey.
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Prototype The process of making prototype
Drawing out the shapes of the robot Using foam board to make a tagible shape Based on the shape, making the clothes Designing the route to connect arduino Insert the button sensor and light in the middle of the robot Assemble them all including touch screen
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Reflection Edward Yen My project start at how to help cancer patient for better communicate with their friends, relative to get sympathy and support during their painful medical therapy in order to get hope and strength to get through it. I narrow down the target group by talking to doctors. Based on the age and the stage, I focus on adult age from 20 to 50, get cancer from stage two or three. However, this is not the only group that is suitable to focus. Young cancer patient and breast cancer patient can be my target group but either it is difficult to get contact with or not easy to communicate with due to my gender. After I do the online research and reading books, I still don’t get what I should focus on or what should I do until I really talk to the patient and supporting group. What they told me give a whole understanding about the cancer patient journey. The previous research that I did is correct but it is only a part to how to give patient positive attitude. In that case, I do not only focus on how to improve cancer patient’s communication but also how to let others know what they are suffering; the knowledge about medical treatment; others experience. This is a big change to my project. Later then, I had an interview with psychology professor teaching in medical school. What she told me is basically what I have learned from supporting group, patient survivors and books, which strengthen my faith about what I have studied. I brought the idea back to the Hope Society of Cancer Care. What I got is positive feedback. The only concern they have is the price and how long I can make it happen. This is a crucial question for me to answer them. Being a design, we found a problem and based on our study, we got a solution which can solve the problem. The difficulty is how we can make it happen. This is the only project I do by myself. I learned from what I have learned and reflect it on my capstone. If I have time to keep doing the project, I would like to make it happen and bring it back to cancer patient to ease their cancer treatment journey. 28
References
The process of making prototype Counselling People with Cance, Mary Burton & Maggie Watson, 2007 Psychology And Medical Care, Gerry Kent, Mary Dalgleish, 1996 SUpportive and Palliative Care in Cancer, Claud Regnard, Margaret Kindlen, 2002 The staged of Grief, http://www.memorialhospital.org/library/general/stressthe-3.html Patient diary http://www.wretch.cc/blog/ns183/1713369 http://tw.myblog.yahoo.com/stjl-angel/article?mid=65&sc=1 http://tw.myblog.yahoo.com/daisy-note/archive?l=f&id=6&page=9
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Special thanks The Hong Kong Polytechnic University School of Design Project Supervisors Dr. Xiangyang Xin Michael Lai Hope Society of Cancer Care Miss Wu supporting group China medical School Department of Social Medicine Li-Chuan Hsu Doctors Jiang yuan-jun Jomi Justin
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