August 2013
The Lifeboat
Coming soon a 1940’s Night, look out for more details next month
South Cornwall Branch Monthly Magazine
Cover page: A good reminder that there is going to be a 1940’s evening in the Autumn this year so you can dress up in your 1940’s outfits and enjoy the evening, there will be food and music, 1940’s of course. Watch out for details in next months magazine.
at Inside the Lifebo this month MS News Page 3 Nuedexta drug approved for people with MS. Government to re-consult on PIP mobility criteria
Page 11 Young peoples group Page 12 Members Page 13/14 The get together
Page 4 Thinking about a supported short break? Zebrafish research gives clues for myelin repair
Page 15 Megan’s page Page 16 Carwinion
Page 5 Thought for the month Page 6 Sky Dive
Page 17 Carers page
Page 7 Read-A-Thon
Page 18 Events
Page 8 Read-A-Thon
Page 19 Information page
Page 9/10 Quiz page
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Chairman’s Report Hello everyone. I am very pleased to announce that when Malcolm Thorne retires soon, a young lady called Hilary has agreed to replace him. Of course no one can fully replace Malcolm because he has with his wife Jackie been very active and supportive members of our Branch. Both have been good friends of mine with the ability to bring unique qualities rarely found nowadays. I am talking as they have left already but they are leaving in December. The Chapman family continue to raise money for us at car boot sales and recently accepted a very
generous offer from Hayle Rugby Club of a whole bucket of pennies donated by the public. To our surprise it contained over seventy pounds. If there are any artists out there, I have an old strong artists easel at home going begging. There are loads of things that I could ramble on about but there is only so much that you can take, so I will let you relax and continue with reading our fantastic, expertly compiled, very interesting ( I wish I could remember all the exact things Jasper said the magazine contained ) Do you find him like me soooooooo funny! and a creep!
Mike Editors Note
Hi Everyone Yet another busy month has flown by with lots developing in the pipeline. Great news from Mike about the replacement for Malcolm, we all welcome Hilary aboard. The Money raised by Chapman family is a welcome addition to our funds. I am pleased to say that the get together on 29th July was a great success, the venue was full and for a moment I thought it would not be enough room but there was and everyone had a great time. I am now working on the next theme. The Read-A-Thon awards have taken place, what a great experience this has been and MS awareness within schools has certainly increased, some of the schools pupils I have re-visited after a year still recall the MS presentation and its content, and of course there’s the money raised to help people with MS. September see the next round of the MS Read-A-Thon.
I must thank Mike May who I have dragged out at all hours to take pictures of the presentation of awards, I can recall starting at 7.00am in Penzance and finishing at 3.00pm in Truro having visited more than one school in the county. Thanks Mike. Mike May also comes with me to film the awareness DVD, he is our camera man as well as our Web Manager. Look out for our 1940’s evening in the autumn, it promises to be great fun, you can get dressed up in your best 1940’s outfit but watch out for Mike Georges choice of costume, we wait with baited breath! Another exciting venture is our Young MS group, read about it on page 11 and if you are interested get in touch we will be pleased to hear from you. The last Carwinion open day for MS is on the 21st September, please make an effort to support this event, we can’t thank them enough for their support over the years and it will be a sad loss to the South Cornwall Branch.
Malcolm
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News from the MS National Centre Nuedexta drug approved for people with MS Nuedexta, a drug used to help manage uncontrollable emotional outbursts, has been approved for use in Europe. We believe it will make a significant difference to people with MS who experience the condition. Nuedexta was first approved in the USA in 2010, and the benefits of the drug include its ability to reduce the number of episodes of uncontrollable emotional expression. The roll-out of the drug in the UK and Europe, as granted by the Committee for Medicinal Products for Human Use (CHMP), will provide significant respite to people experiencing this condition who require support to help manage it. Uncontrollable emotional outbursts in MS Uncontrollable bouts of laughing or crying which are unrelated or disproportionate to a person’s emotional state affect around 10 per cent of people living with MS. It’s something that can be distressing, embarrassing and confusing for people living with the condition, including family and carers. It’s also known as ‘affective release’ or the ‘Pseudobulbar Affect’ and is thought to come from MS-related damage to nerves in the brain that control the formation, 3 modification and expression of emotions.
The emotional outbursts can sometimes lead to problems recognising that someone with MS is really troubled and that real problems aren’t taken seriously. Our MS Essentials on mood, depression and emotions has more information on affective release and other emotional symptoms of, and reactions to, MS. A positive step Ed Holloway, Head of Care and Services Research at MS Society said: “The MS Society welcomes the news that Nuedexta is being made available in the UK and Europe. A significant number of people living with MS experience ‘affective release’, and the introduction of a new treatment option to help manage and treat the often distressing symptoms is a really positive step.” For help and support for any emotional issues, please contact our Helpline. Government to re-consult on PIP mobility criteria The Government has announced it will review a recent decision to change mobility criteria for Personal Independence Payment (PIP). The u-turn means people with MS, and other disabilities, will be able to raise their concerns at changes which would cause large numbers of people to miss out on fundamental support. Devastating changes The move comes after the MS Society and 50 other charities which form the Disability Benefits Consortium (DBC) voiced concerns that the strict mobility criteria for PIP would have a devastating impact if it wasn’t reviewed. The DBC highlighted that if people can walk 20m even using aids such as sticks they wouldn’t qualify for the enhanced rate of the benefit,
and could lose up to £1,800 a year or their Motability vehicle. Many people rely on this to maintain their independence and live their daily lives. Positive step forward Claire Nurden, Senior Policy and Campaigns Officer at the MS Society and Co-Chair of the DBC said: “We are extremely pleased that the Department for Work and Pensions has decided to review this vital area of the PIP benefit. It’s a crucial opportunity for the MS Society and people with MS themselves to highlight the potentially devastating impact this policy could have on people with the condition. "If the policy is changed as a result of this consultation, it will be a positive step towards ensuring that all people get the right access to vital support in order for them to retain their independence and everyday way of life.” Help change policy If you think you‘ll be affected by the 20 metre rule, either through loss of the upper rate of the mobility component of DLA or the loss of a Motability vehicle, we want to know about it. Please email campaigns@mssociety.org.uk and we’ll tell you how you can get involved in the campaign. The sooner you get in touch the better as the consultation ends on Monday 5 August. Thinking about a supported short break? The Good Care Group, an award-winning care company, have developed a new home respite and holiday care service for people with MS, as a result of working with the MS Society. The new service is available from 1 June and enables people with MS to access high quality live-in care services for short periods of respite care. The Good Care Group’s professional carers are receiving specialist training about MS from the MS Society.
They have also been working with a specialist MS service provider to ensure their carers have a true understanding of MS in order to provide the very best support. How it works Following an assessment, clients purchase a period of one week of care. This can be taken in one go or can be split over two shorter periods (a minimum of three nights) over the following six months. The care can be delivered at home or away (ie. in accessible accommodation). Future periods of care can then be booked in minimum periods of three nights. This specialist MS service is available as either: ♦ A live-in basis across England and Scotland ♦ A holiday service that enables you to take a carer with you wherever you go in the UK or overseas. For more information or to discuss your specific needs contact The Good Care Group on 08000 234 220, or enquiries@thegoodcaregroup.com or see their website at www.thegoodcaregroup.com/ms. The MS Society’s Short Breaks and Activities Fund can provide grants for the costs associated with short breaks and holidays with care. To find our more and to apply, call 020 8438 0700 and ask for a member of the grants team or email grants@mssociety.org.uk Zebrafish research gives clues for myelin repair Researchers based at the MS Society Centre for Translational Medicine, University of Edinburgh, have used zebrafish to understand how myelin repair works. The results could give important clues on how it doesn’t work as efficiently in people with MS.
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The team used zebrafish, a type of tropical fish, because they share more than 80 per cent of the genes associated with human diseases. They’re also transparent, which means researchers can look at their nervous system without surgical or physical intervention. The research, published today in the journal Developmental Cell, looked at the ability of individual cells called oligodendrocytes to generate myelin. The researchers found the cells have only a very short time period of a few hours in which to make this protective coating. Promoting myelin formation The researchers are now focusing on how manipulation of genes and the use of treatments might promote myelin formation in zebrafish. We hope the results of this study will be used to find ways of encouraging myelin repair in people with MS. Dr Susan Kohlhaas, head of biomedical research at the MS Society said: “These new results demonstrate, for the first time, that myelin repair happens in a matter of hours. Although this is early stage research, it’s encouraging to see new techniques being used to tell us more about how myelin repair works. "One of the MS Society’s priorities is developing new myelin repair treatments so we look forward to finding out about what the researchers at the University of Edinburgh are able to achieve next.”
Together to beat MS Around 100,000 people in the UK have MS. It affects two million more. We offer hope for the future by investing millions in research, and help for today through our information, support and campaigning.
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Ros Parker is going to be writing our thought for the month and August is her first. Welcome to the Lifeboat Magazine Ros LIFEBOAT – THOUGHT FOR THE MONTH AUGUST Pushing my rollator up what used to be a gentle slope but is now something akin to Everest, I was making my way to the doctor’s surgery; a journey which in the ‘old days’ would have taken me perhaps three or four minutes. Today I left just after ten for my 10.35 appointment. Plenty of time to stop for a rest! As I walked, I got to thinking how lucky I am. ‘I have all the time I need to get there’, I thought, and silently thanked God for my good fortune. I met a friend on the way so had a perfect excuse to stop. It was good to have to rest for a minute or two but it was what she said as we parted that set me thinking; “Take care”, a common enough thing we say often say on parting. Normally I would have been sitting in my wheelchair and the person who ‘takes care’ of me would be the one doing the walking. Another thing to thank God for! If only he had known when we married 48 years ago what he would be doing now...... How easy life used to be. Did I ever thank God then? No, I don’t think I ever did. Now I know how truly blessed I am to live in this beautiful county, to have a great deal of support from many and various people, from doctors and social services personnel to friends, and even strangers, not forgetting of course the South Cornwall MS Society and Merlin. Whenever things look bleak I try to remember all the blessings I have. Until the next time, I promise to pray for all you members and carers. And may your God watch over you. Ros Parker
Sky dive
This is one brave lady, Rebecca BarkerBrown is the Executive Head at Lanlivery and Darite schools, having supported the Read-A-Thon Rebecca is now going to completed a sponsored sky dive in aid of MS. By the time you read this magazine Rebecca would have completed the dive but you can still send in your sponsor money. All the money raised is coming to the Cornwall MS Branches. How to sponsor: Make cheques payable to mss South Cornwall and send them to me, editors contact details are on the back page. Please support Rebecca if you can, we really appreciate her efforts and support and she is jumping out of an aeroplane for you.
Malcolm I hope to have some pictures for the next magazine. Let me know if you feel like jumping out of an aeroplane or have any exciting fund raising events.
Is there anything I can’t do? Of course I have been skydiving for years, I could give Rebecca a few tips but it will be all over by the time this magazine goes out. I have the advantage of being able to flap my ears so I don’t spill my tea!! Jaspers Joke: A blind man was describing his favourite sport - parachuting. When asked how this was accomplished, he said that things were all done for him: "I am placed in the door and told when to jump. My hand is placed on my release ring for me, and out I go." "But how do you know when you are going to land?" he was asked. "I have a very keen sense of smell and I can smell the trees and grass when I am 300 feet from the ground," he answered. "But how do you know when to lift your legs for the final arrival on the ground?" he was again asked. He quickly answered "Oh, the dog's leash goes slack."
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Read-A-Thon news July saw the presentation of awards in all but two of the schools that took part in the Read-A-Thon. Working with these schools has been a pleasure, I must thank the Head Teachers and Staff for their valued contribution to the Read-A-Thon.
Cape Cornwall School
Cape Cornwall School Cape Cornwall school has over 400 students and has supported the MS Society with the Read-A-Thon and the awareness DVD. Our thanks go to Head Teacher Mrs Julie Nash, Librarian Mrs Megan Nelhams and Emily hill Deputy Head as well as all the staff and students who have and are still supported us.
Lanlivery School
Lanlivery School Lanlivery School was one of the first to take on the Read-A-Thon challenge and has held other fundraising events for MS. We thank Mrs Rebecca Barker-Brown, her staff and all the students for their continued support. You will see Rebecca Barker-Brown on Page ? for her sky dive, we hope it all went well and perhaps we can publish some pictures in September’s magazine.
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St Mary’s C of E School As you will know from previous magazines students at St Mary’s School took part in the Read-A-Thon and raised a great deal of money, but they where also winners of the Oritse JLS prize. You can see them here as proud owners of the Hat and signed photo of JLS. St Mary’s C of E School supported us well with the Read-A-Thon. A great thank you goes to Head Teacher Hilary Tyreman and her staff.
Darite School
The executive head teacher at Darite School is also the head of Lanlivery, Mrs Rebecca Barker-Brown, as you can see we had a great time presenting the awards and thank all the students who took part and the school staff, it is this kind of support that make our relationship with schools so successful. Rebecca Barker-Brown is going to complete the Read-A-Thon again in September.
Devoran School
Pictures by Mike May I must thank Mike May who I have dragged out at all hours to take pictures of the presentation of awards, I can recall starting at 7.00am in Penzance and finishing at 3.00pm in Truro having visited more than one school over the county. Thanks Mike. Mike May also comes with me to film the awareness DVD, he is our camera man as well as our Web Manager.
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July Quiz answers 1 2 3 4 5
LAVA VIEW TURNS OWNS EYED
6 BETS 7 DELAY 8 LOU 9 MINCE PIE 10 DONOR
Bingo numbers called in: January 10, 26, 43, & 61 February 52, 90, 76, & 85 March 5, 30, 46 & 67 April 13, 49, 23, & 73 May 79, 45, 16, & 28 June 65, 18, 41, & 87 July 57, 3, 8, & 69 August 83, 59, 71, & 20 September 38, 63, 75, &1 October 33, 77, 55, & 89 November 51, 86, 48, & 35 December 11, 32, 53, & 68 January 13 81, 31, 15, & 25 February 13 40, 22, 78, & 36 March 13 44, 56, 21, & 6 April 13 80, 39, 50, & 74 May 13 42, 84, 24, & 37 June 13 2, 60, 34, & 70 July 13 58, 29, 62, & 7 August 13 14, 66, 12, & 82 September
August quiz 1 Name the largest fresh water lake in the world. 2 Where would you find the Sea of Tranquillity? 3 What is someone who shoes horses called? 4 What item of clothing was named after its Scottish inventor? 5 What kind of weapon is a falchion? 6 What is another word for lexicon? 7 Name the seventh planet from the sun. 8 Name the worlds biggest island. What's the difference between roast beef and pea soup? -- Anyone can roast beef. " What do you call a deer with no eyes? No eye deer. "
What’s this mystery object?
Target £2,000.00 Actual to date £914 Money Boxes 9 9
Happy birthday to: 1st Bertha Ferguson 5th Amanda Durnford 17th Tony Parkes 23rd Mr B Clutterbuck 26th Heather Ashton
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July mystery object
Poetry Corner
Did you spot the ten differences? " What happens when you get scared half to death twice? "
Can you spot the 9 differences
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Young MS and friends Hi, My name is Lauren Jenkins and I am the Young MS and friends group officer for the South Cornwall Branch of the MS Society. Welcome to the group and what it can offer you. Being able to talk to someone like yourself can help in many ways. Are you a young person affected MS? Ever wondered what it would be like to speak to other young people affected by the condition? Have you just been diagnosed and need some help and advice away from the general MS branch Joining the South Cornwall Multiple Sclerosis Young Persons group will allow you to learn and exchange experiences that other young people have had or are having when affected by MS The young peoples support team can help you to consider future goals and managing your condition to the best of your ability Realising your potential and abilities! Sharing experiences with other people can allow you to focus on what you are good at, living with MS can be challenging however you shouldn’t be beaten, together with friends we can focus on the positives and develop new and exciting activities. # Who’s in? The MS young people’s team are here for youyouWhy? Because we understand that it can sometimes be hard to talk and communicate with people outside your age group, talking about the personal things that MS can bring!
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How? Meeting with people with MS will give you the chance to exchange how the condition effects you, friends can help with emotional support~ so lets hear your side of the story! Understanding what you want from life! Do you want to learn more about yourself? Proving activities can help you bond with new people and talk. Are you newly diagnosed with MS: Have you been diagnosed with MS recently? Do you feel like you don’t know who to turn to for advice of support? Young MS and friends can help you to understand your condition. Friends can give you the companionship when learning to cope with being newly diagnosed. Having the support of others will help you to be able to start thinking about the potential changes that you may have to make in your life, however just because you have been told you have MS doesn’t mean you have to stop doing the things you love doing~ never stop trying, continue to be a high achiever. Contact the Young MS and Friends group and find out more: Tel: 01209 860754 Email: malcolmglister@btinternet.com
Important notice Helston & Lizard Group meeting: Wheal Dream Restaurant, Helston from 11.00am to approx 2.00pm. Lunch at discounted rate. This has changed from the last Tuesday to the last Monday of the month. Wendy Lobb contact details
Correction: Hi Malcolm and everyone I just wanted to say what a lovely time we had at the recent branch event at the Carnon Inn. I was able to catch up with people, meet some new and enjoyed a 'natural looking' make over. Also, the food was really nice, I did notice Kev went up a few times… I have continued to read the pages from Mary Smith - and by offering this piece, she must have thought that this would not be easy reading for some of us at times. However, as she says, 'People are always saying they can't imagine how it must feel to be me...give them some idea of my predicament.' It certainly does that Mary, I really had no idea, you're a very brave lady and your poetry and writing make me think, thank you. I feel I should mention Megan on the front cover: this young lady's picture makes me smile every time I look at her happy face! Oh...forgot the quiz… Thanks to all, Wendy and Kev Hughes Thanks for your comments Wendy it’s always good to get feedback and we appreciate yours and Kev’s support at our functions. We are trying to vary the programme so “everyone”, give us your feedback, we ne e d i t !
Physiotherapist Wendy Lobb has had incorrect contact details issued resulting in patients being unable to contact her for treatment The correct details are: Telephone number: 01209 698896
IMPORTANT NOTICE South Cornwall Vouchers Jackie Thorne will be away for a few weeks so as from 1st March 2013 please make all voucher requests to Chris Sargent 01209 315386 In next months Lifeboat magazine: Members pages & Magazine Bingo Youth Group page Young MS and Friends page MS News Megan’s page Branch events Read-A-Thon news
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The get together What a cracking get together we had at the Carnon Inn, so many people and so much going on.
This must have been one of the best get togethers yet, the room was packed with people from all areas, even as far away as Fowey. The makeovers were a popular feature particularly with the men! Although for many of us it was too late, there wasn’t much to work on the ladies of course looked beautiful. We must thank Karen Richards from Body Shop for her time with us. Her work made people feel special and pampered.
The Quiz The quiz got us all thinking, there was a great deal of head scratching going on but of course the brainy ones got there in the end and won a box of chocolates which didn’t appear to last very long, I think that Mike George had a lot to do with it!! It was lovely to see so many people with their families. this made it an event for everyone to enjoy.
Get together’s are difficult to judge with varying tastes and requirements that have to be catered for but the answer seems to be in variety with different activities to suit all ages. If you would like to see a particular activity at our next get together please let me know and I will try to arrange them. There is also the distance problem, we were pleased to see Susan Creese and family all the way down from Fowey but not everyone can travel far, so we will be holding our get together in different parts of our area, watch out for the next one it could be near you.
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The food was good and lots of people had their photo taken so all in all a very good afternoon. Don’t miss the next one! Our thanks go to: Karen Richards Makeovers Nikki Jenkin Quiz and raffle Mike May Photography
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Coma Story part III Last month… The machines suddenly start beeping loudly. Nurses run into the room and usher me outside… I try to look in through the glass window but I can’t see anything, the beds surrounded by bodies of doctors and nurses trying to find out the problem. I turn around and sit in one of the blue metal chairs that are screwed into the wall. I must have fallen asleep because the next thing I know there’s a nurse sitting next to me. I sit up straight and smile. She introduces herself and tells me what happened. She explains how Taylor had started to breath by herself and that the machine was just beeping to tell them that it wasn’t needed anymore. She talks to me like I’m five but at least she speaks English unlike some of the other nurses around this place, saying all of those big words that nobody really understands. I’m speechless, I know that this doesn’t mean she’ll definitely be OK but its hope. I walk back into the white room she’s lying there in the bed. I stand at the end of the bed and watch her breathing and I know that she’s trying to come back to me. I stay at the hospital until ten and then get the bus home. I fall asleep straight away once again visiting my dream world.
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page Megan’s The next mornings a bit better than the one before. I get dressed and pull a brush through my hair. I then trot down the stairs and waltz into the kitchen where the smell of bacon drifts up my nose making my mouth water. Finally someone who can cook. I look at the table where everyone’s sat. Looking at me. I smile at them and they all return it carrying on with their breakfast. I get some bacon and eggs and sit down digging in straight away. By the time I’ve finished everyone’s watching TV. I put my plate into the sink and join them. At one I get a lift to the hospital. I push the door open to find a woman sitting in my chair. She looks at me and without saying anything gets up and leaves. Who was she? How did she know my sister? What was she doing here? All of these questions were going around in my mind. I sit in my, now, empty chair and look at another bunch of flowers that have mysteriously appeared overnight. Could they have been from her? And if they weren’t who were they from? I talk to her again until I have nothing else to say. Then I just sit and listen to her breathing in and out…
Another bunch of flowers arrived
A poem by Susan Creese Costly Buttons Pushing a button Easy, peasy lemon squeezy Pushing a button On a micro wave seafood Easy, peasy lemon squeezy Pushing a button On government pressures` cutting costs and cutting time Easy, peasy lemon squeezy Pushing a button Tied to a chair Force-fed a frozen meal Horse meat and puffer fish included But where’s the care? Easy, peasy lemon squeezy Pushing a button Remorseful, drinking tea at 7(am) Bullied and tucked-in-bed by 11(am) Lights-out, fall-out, knocked-out But no-one there Easy, peasy lemon squeezy “nearly half way there”…? Pushing a button There is no doubt How the government push the disabled out Disability living allowance in question? to, personal independent payment What a PIP Yet another sjambok mock doing a 20 metre two-seater rock Leaving the disabled without A streetcar named desire Pushing a button Ambush people into ticking time bomb boxes but not the noughts and crosses grind just another government cost cutting mastermind Saving coffers` into 600,000 Coffins` We have to RANT we have to shout so 600,000 disabled don’t lose out NOT SO EASY, PEASY LEMON SQUEEZY C
Carwinion Bring a plant Buy a plant 21st September
Sadly this will be the last Carwinion open day for MS. We need to make this the best ever so get down to Carwinion on the 21st September and spend some time and money in the fantastic gardens. We can’t thank Carwinion enough for their support over the years.
Jasper
82 Teacher: "Anyone who thinks he's stupid may stand up!" *Nobody stands up* Teacher: "Im sure there are some stupid students over here!!" *Little Johnny stands up* Teacher: "Ohh, Johnny you think you're stupid?" Little Johnny: "No... I just feel bad that you're standing alone..."
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New carers officer Message from Bev Burt: On August 9th 10.30 to 3pm at the Merlin MS Centre FANTASTIC Raffle we have some fantastic prizes for our coffee morning here are some a children’s raffle FREE for all children that come on the morning prizes include 1hour session for canoeing, teddies, days out, guess who, t/shirts, swimming, kids world, and more, we also have a great tombola a teddy tombola where you win a fantastic teddy every time. (we have some beautiful teddies) and a few will have a hidden day out on them and if your lucky you may win one and the teddy. Meet Karen Moore our new carers officer, Karen has taken over from Neville Reed and we welcome her to our committee. Karen attended the carers lunch for the first time and said: “I went to my first carers lunch on the 20th of June, which was at the Falmouth Hotel, the location was lovely with beautiful views and we had lunch in a nice room around a large round table. The food and the company were excellent and every one seemed to have a good time. I have obviously been missing out on these and will be going to more. As a carer myself I found it very interesting and helpful to meet others who where at different stages in their own lives in caring for loved ones. People were full of helpful information, but most importantly it gave everyone that came a chance to relax and have a chat with each other. I am very glad that I went and look forward to the next one. If you are a carer and can reach the next venue, then I would suggest that you come along as it is really good”. From Karen Moore Carers Officer 01872 274188.
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Bric a brac with something for all ages we have some very nice toys kindly donated from baby up to all ages, lots of hand bags like new ,jewellery and all we ask is for a kind donation Also some very nice books for all ages (we have some very nice children’s books like new for both boys and girls). Face painting, glitter tattoos and nail painting, Weather permitting we will be having a bouncy castle, we also will have a visit from the Toymaster puppy he will be coming after 1.30 with some goodie bags for the children and at 2.30 he will be drawing the children’s raffle, and many more fun things for all to do and on top of that we have lots of cakes, buns, and if your not sure, why not just come down for a bit of lunch we will have pies, pasties, veg pasties, porkpies, vegetarian quiche cakes together we will make money for a great Cornish charity The Merlin MS centre, a centre for people with MS + all cakes, buns, pies etc very welcome. For More information contact Bev Burt through the Merlin Centre
2 Dunlop 32” trolley suitcases. 110 Litres Capacity, expandable. Black, used once. RRP £59.99 bargain at £30.00 the pair. Contact Malcolm Thorne 01209 717237 Don’t miss this bargain!!
South Cornwall Branch events 2013 Christmas Lunch Christmas lunch 2013 is on the 7th December at the Membly Hall Hotel Falmouth. Book your places with Chris Tel 01209 315386 Free for people with MS £5.00 for carers £13.00 for guests More events to come throughout the year! we are still waiting for more responses from our events list so give us a call.
Watch this space
Events Calendar Events taking place at Merlin MS Centre
Sign up is open for the Grand Canyon TrekTrek- 10th-17th May 2014 Trek. Are you ready to experience the breath taking beauty of the Grand Canyon whilst raising money for the Merlin Ms Centre?
With a year to fundraising you have plenty of time to join us for this trek of a lifetime. Contact the centre for more information 01726 885530. Merlin MS Centre are looking for willing and friendly volunteers to help with their supermarket collection days throughout the year and throughout the county. If you think you can spare an hour or two to help then please get in touch with the centre on 01726 885530. August Fri 2nd Johnny Cowling ~ The Cornish comedian and singer will be at Sticker Football Club from 7.30pm. Tickets£10 available from the Merlin MS Centre. This is also the start of the Sticker Vintage Rally and Country Fair weekend in the grounds and fields of the football club. Taking place from 10am on Saturday and Sunday – loads of fun activities for all the family with vintage vehicles, kids sports day, car boot, craft stalls, trade stands, fun dog show, bingo, inflatable rides, licensed bar and food Fri 9th Coffee and Fun Day 10.30am to 3pm at the Merlin MS Centre Bouncy castle, face and nail painting, stalls, cakes, pasties, children’s raffle, Bric-a-Brac and a special visit form the Toymaster puppy from 1.30pm Fri 23rd Pop Up Party Malaysian Curry Night at Merlin MS Centre 7pm for 7.30 start. Tickets £10.00pp available from the centre September Sun 15th Garden Party and Cream Tea 2.30 till 5pm At Pencarey, Trevilly Lane, St Teath Fri 20th Pop Up Party Night Tapas Evening at Merlin MS Centre. The last of our summer pop up evenings. 7pm for 7.30 start. Tickets £10.00pp available from the centre Details subject to change Ellie May, Communications and Corporate Events Manager Tel: 01726 885530
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South Cornwall Branch Information
Branch contact details: Llawnroc, Mount Carbis Road, Redruth, Cornwall, TR15 2LD Tel: 01872 274911 www.mssociety.org.uk/southcornwall Satellite events 1st & 3rd Tuesday of each month: Trelowarren Arms, Budock Water, Falmouth, between 11.00am and 2.00pm approx. Coffee and/or lunch. Open to all. Last Monday of each month: Helston & Lizard Group meeting: Wheal Dream Restaurant, Helston from 11.00am to approx 2.00pm. Lunch at discounted rate. Every Thursday: Yoga at the Well Being Centre, Nance Lane, Churchtown, Illogan. 11.00am to 12.15pm. with Carolyn Smith by appointment only. Every third Thursday of each month Carers meeting at Mike George’s Useful contacts: MS National Centre: 02084 380 700 MS Helpline: 0808 800 8000 Care Direct: 0800 444 000 NHS Direct: 0845 4647 Editors Contact details: details To send in articles or comments. Malcolm Glister Whispering Winds, Crellow Hill, Stithians, Nr Truro, Cornwall, TR3 7AQ
Chairman: Mike George Telephone: 01872 862031 email: cornishmike@talktalk.net Treasurer: Malcolm Thorne Telephone: 01209 717237 email: malcolmt.southcornwallmssociety@live.co.uk Address Coomar, 3 Chenoweth Close, Camborne Cornwall TR14 7JR Voucher Admin Officer: Jackie Thorne Telephone: 01209 717237 email: malcolmt.southcornwallmssociety@live.co.uk Secretary: Christine Sargent Telephone: 01209 315386 email: christine.southcornwallmssociety@live.co.uk M S Support : Telephone: 01872 274911 Carer’s Officer: Branch Profile manager and Magazine Editor: Malcolm Glister Telephone: 01209 860754 email: malcolmglister@btinternet.com Branch Web manager: Mike May Telephone: 01872 272 957 email: mikem.southcornwallmssociety@live.co.uk Membership: Betty Alderton Telephone: 01872 270901 email: betty.southcornwallmssociety@live.co.uk Minute Secretary: Moe Fisher email: moefisher@hotmail.co.uk Branch Safety Officer and Youth Team: Nikki Jenkin Telephone: 01736 787089 email: nikkijenkin@googlemail.com Events CoCo-ordinator Fund Raising Manager Vacant
Need help or advice, call our support number 01872 274911
All views expressed in this publication are individual and not necessarily the view or policy of the charity and its supporters. Multiple Sclerosis Society Registered charity nos. 1139257 / SC041990 Registered as a limited company in England and Wales 07451571