NDIS Sunshine Coast

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SUNSHINECOASTDAILY.COM.AU TUESDAY, DECEMBER 4, 2018

EvEryTHING yOu NEED TO kNOW AbOuT THE NDIS

FouNDaTIoNS FOr LIFE

SupporTING people WITh DISabIlITy IN auSTralIa

ELIGIbILTY HAvE yOu CHECkED?

TIPS & aDvICe

your

20-paGe GuIDe To NavIGaTING The NDIS

Get the most out of your NDIS

yOur QuESTIONS ANSWErED

Get in touch for our full range of NDIS services and support options

STEPS provide NDIS support that helps you live every day the way you choose

Call us on

Help you identify, plan and coordinate services that suit your needs Deliver and connect you to a range of recreational and social activities School leaver employment support (SLES)

Training and support for families and carers

07 5458 3000

Assist in behaviour management planning and ASD specialist support

www.stepsgroup.com.au

Provide assistance with everyday living

Find out more

22 ADVERTISING FEATURE

TUESDAY, DECEMBER 4, 2018 SUNSHINECOASTDAILY.COM.AU

NDIS ROLL-OUT The NDIS has been rolling out across the nation since 2013 with 460,000 people to be supported by the end of 2019

1 July 2013 Geelong, Tasmania (rolling out in age groups until 2019) 1 July 2016b Townsville 1 November 2016 mackay, Whitsundays 1 JaNuary 2017 Toowoomba,Southern Downs, Western Downs, maranoa 1 JuNe 2017 Ipswich, lockyer valley, Scenic rim (existing Queensland Government clients only)

1 oCTober 2017 bundaberg (new clients) 1 November 2017 rockhampton, Gladstone (existing Queensland Government clients only) 1 JaNuary 2018 rockhampton, Gladstone (new clients) 1 July 2018 Cairns, suburbs of brisbane, Fraser Coast, North and South burnett, Gold Coast, moreton bay, Strathpine, Caboolture.

▲

1 July 2017 Ipswich, lockyer valley, Scenic rim (new clients), Clarence valley, richmond valley, Tweed, lismore, Kyogle, ballina, byron.

1 SepTember 2017 bundaberg (existing Queensland Government clients only)

1 JaNuary 2019 Sunshine Coast, Gympie, Noosa.

As Australia’s leading disability service provider, we have provided trus sted support for 56 years.

For over 6 years as an NDIS provider, we w have supported more than 2,750 people to make m the most of their NDIS plans.

Our flexible Sunshine Coast services inc clude: • Supported accommodation • Respite (short term accommodation n) • Community and recreational activitiies • Support coordination Get in touch for a free consultation.

INSIDE

FouNDaTIoNS For lIFe

F

or too long, Australian families have been waiting for change in the disability sector.

And now that change is a reality for the people of the Sunshine Coast. On January 1, 2019 the National Disability Insurance Scheme became available to the region.

Dubbed the biggest health reform since Medicare, the NDIS is set to not only significantly increase the number of people accessing much-needed disability support, but allow for a tailored approach for every individual.

Gone are the off-the-shelf support services that may or may not suit you or your loved one’s needs.

Gone is the inability to change service providers that don’t match up with your requirements. And here is the chance to build the best possible foundation for the life you want to live.

We at the Sunshine Coast Daily know how important this reform is for our

community, and we want to equip you with the right tools and information to ensure you make the most of the scheme.

Inside this 20-page guide, we’ve touched every corner of the NDIS journey from pre-planning to registering, eligibility and what it means for early childhood.

We’ve simplified the entire process into your very own roadmap so you can see exactly where you are and where you’re headed – no matter where you are on your own NDIS path.

We’ve got personal stories from those already taking advantage of the NDIS and how it has changed their lives.

Hang on to this guide to ensure you’re well-equipped with everything you need to know about the NDIS. >>The Sunshine Coast Daily team

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SUNSHINECOASTDAILY.COM.AU TUESDAY, DECEMBER 4, 2018

WHAT IS

THE NDIS? National Disability Insurance Scheme replaces inefficient support system with individual needs at the forefront

T

he National Disability Insurance Scheme is the new way of providing disability support – with your needs at the forefront.

The scheme aims to give power back to recipients, and instead of toting an ‘off-the-shelf’ solution, the NDIS allows you to receive tailor-made support with a program as unique as you.

The NDIS provides all Australians under the age of 65, who have a permanent and significant disability, with the reasonable and necessary supports they need to enjoy an ordinary life.

It has been rolling out in various areas in Australia since 2013 and will continue until 2019 when the NDIS will support about 460,000 Australians.

The NDIS replaces a disability system that was unfair and inefficient with a new, national system that is world-leading, equitable and sustainable.

This provides certainty and consistency for people with a disability, their families and carers.

Australians will now have peace of mind that if their child or loved one is born with, or acquires, a significant disability that is likely to be with them for life, they will get the support they need, when they need it. n

THE SCHEME AIMS TO GIvE POWEr bACk TO rECIPIENTS, AND INSTEAD OF TOTING AN ‘OFF-THE-SHELF’ SOLuTION.

FIvE TIpS TO

pREpARE CONTEXT EXAMPLE John* has received care from a service provider for the past 10 years.

He is not necessarily happy with the level of service, or how it fits into his lifestyle, but it has been the only option for him. With the NDIS, John and his carer will work with a National Disability Insurance Agency staff member or representative to link him with the best service provider for his needs.

He will then work with the provider to create an individualised support program to meet his requirements, and see it through for the rest of his life. If at any time John is not happy with his new provider, he can change to another of his choosing. *Case example

If you haven’t started preparing for the NDIS, start now. The scheme will be made available to the region on January 1, 2019 and if you don’t have your support plans in place, here’s how to get started.

1

assess your situation: Write down your current needs, the current support you receive and anything else you require or would make life easier. Gather all the information you can about your disability including medical assessments and reports. If you don’t have access to any records, don’t worry, your NDIS caseworker can help you arrange them.

2 3

Think ahead: What do you want your future to look like? Think about the perfect scenario, what you hope to achieve and any ideas on what you might need to get there. Again, write all this down so it’s ready to show your caseworker.

Day in the life: Diarise a typical day or week in your life.

Ensure you include any barriers you face, any support you receive etc. Make note of things you think could help make these everyday tasks easier.

WHErE POSSIbLE, Try TO CONNECT WITH OTHEr PEOPLE AND FAMILIES IN A SIMILAr SITuATION AS yOu.

4

Network: Where possible, try to connect with other people and families in a similar situation as you. Compare notes and seek various perspectives. This will help you better understand what others are doing, any things you may not have considered, or types of support you could also be entitled to.

5

research: become familiar with the language associated with the NDIS. understand what the various components are and what certain terms mean. keep up to date with information on the NDIS website, and keep this guide handy to refer to as you need to. Start looking at providers in your area so you are familiar with who they are and how they might be able to help you. n

FOr MOrE INFOrMATION ON ACCESSING THE NDIS GO TO ndis.gov.au

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TUESDAY, DECEMBER 4, 2018 SUNSHINECOASTDAILY.COM.AU

HOW TO AccESS THE NDIS? Ensure you have the best chance at receiving the support you need

O

nce the NDIS is available in the region, it will be time to access the support you need by lodging an access request.

This is where you officially lodge yourself as someone who would like to receive the NDIS. If you are currently receiving disability services, you will receive a letter in the mail prior to a phone call to let you know an NDIA representative will soon make contact. you will then be asked if you’d like to do your request over the phone, or through a paper form.

If you choose to process over the phone, you will be asked a series of questions, including: >> Confirmation of your identity and/or a person’s authority to act on your behalf >> Questions in relation to providing consent to enter the scheme >> Questions to determine if you meet the NDIS eligibility requirements.

If you would prefer not to do the request over the phone, the NDIA representative can send you the appropriate paperwork to complete.

Following the initial access process, you may be asked to submit further information regarding your disability.

If this is the case, you will be sent a letter and a form to have completed by a health professional. you will be informed within 21 days if your access request has been approved or denied.

If you have not been approved, you can request a review of the decision within three months of the decision being made.

If there is a delay in the application approval process, you will be informed. n If you are not currently receiving disability services, but think you may be eligible, phone the NDIS hotline on 1800 800 110 between 8am– 11pm, monday to Friday.

WhaT SupporT IS CovereD? Every case is evaluated on an individual basis and support provided accordingly.

In a general sense, the NDIS provides personalised: » Information and referral » Support to access community services and activities » Individualised plans and supports » Early intervention » Where necessary, funded supports that may be one-off support or a funded support package.

Examples of funded supports include assistive technology, Auslan and housing.

WhaT IS aSSISTIve TeChNoloGy? Assistive technology, as defined by the World Health Organisation, is ‘any device or system that allows individuals to perform tasks they would otherwise be unable to do or increases the ease and safety with which tasks can be performed’.

Some examples of assistive technology that an NDIS participant may be eligible to receive funding for include (but is not limited to): » Over-toilet frame » Mobility cane » video magnifier » Non-slip bathmat » bed rails » Non-electronic magnifiers » Wheelchair » Talking watch » Hoist » Long-handled or adapted grip equipment » Hearing aids » Shower stool/chair » bath seat

MULTICaP

and The

ndIS

Multicap has proudly provided services to people with disability since 1962 and will continue to do so under the NDIS as an NDIS approved service provider. We can tailor our services to your needs, and support you to achieve your goals in your local community.

At Multicap, we believe everyone deserves to live their best life. We are dedicated to making this happen through the extensive range of services we offer; • Supported Independent Living • In-home support • Community Hubs • Short-term accommodation (Respite) • Community Care Support • Support Co-ordination • Positive Behaviour Support • Multicap Housing • Avegates – Social Experiences and Assisted Holidays • Assisted Employment Our focus on high and complex needs is significant. We provide a person centred and integrated support service. Our support service team in conjunction with our specialised services team are able to provide increased holistic support to customers and their families.

For more information on how we can support you, visit www.multicap.org.au or call 1300 135 886. Multicap is here for you, in all ways and always.

Tel: 1300 135 886

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SUNSHINECOASTDAILY.COM.AU TUESDAY, DECEMBER 4, 2018

STEpS TO

SPONSOrED CONTENT

INDEpENDENcE

O

ne of the Coast’s longest running disability organisations is utilising its many years of accumulated knowledge, experience and connections to help people gain positive outcomes under the National Disability Insurance Scheme.

STEPS Community Services offers a range of programs and services aimed at building capacity and independence for people with a disability. It welcomes a new era of support services that gives individuals the power to identify the best services for them and gain control over their own finances. before rolling out NDIS services regionally in 2017, STEPS undertook

several years of research and planning.

STEPS staff had important meetings with families and individuals set to be affected by the new scheme to gain an in depth understanding of the community’s needs.

STEPS Deputy CEO, kerry Staines, said the organisation’s comprehensive approach to preparing for services under the NDIS has allowed them to break down some of the fear and uncertainty for their customers.

‘We’ve had many, many conversations with individuals and families around their concerns, hopes and expectations regarding their funding under the NDIS, and by truly understanding the needs of

our customers we’ve been able to turn their feelings of uncertainty to feelings of confidence and positivity about their future,’ Ms Staines said.

STEPS are hosting a broad range of services to help their customers prepare for the new scheme including NDIS preplanning, and support to navigate the NDIS.

‘We’re able to help our customers navigate the NDIS, so that they are in a space of possibility, thinking about the services that will really help them get the most out of life within a budget and support framework that aligns with their lifestyle,’ she said.

They’re also offering support services currently under the NDIS from assistance with daily living and self-care, to behaviour management, assistance with social and community participation as well as Ms Staines said that while the NDIS employment and provided benefits to most individual’s WE’rE AbLE TO HELP Our skills development, including SLES eligible under the CuSTOMErS NAvIGATE (School Leaver scheme, she strongly THE NDIS, SO THAT THEy ArE IN Employment encouraged people A SPACE OF POSSIbILITy...

Support), and to align themselves specialised services with an organisation like STEPS. This would help them navigate for people living with Autism Spectrum the services available to them and to plan Disorder (ASD) for people eligible for NDIS funding. their funding.

‘We have seen some examples in earlier roll outs where individuals have been left short changed in their funding because they haven’t been fully aware of the opportunities available to them,’ Ms Staines said.

‘We’re advising that people do their research first and make sure they’re partnering with an organisation that has a detailed knowledge of the NDIS but also a genuine understanding of what’s important to individuals’, she said.

Ms Staines said the NDIS was just one more step in the right direction to achieving an even playing field for more than 4 million Australians with a disability.

‘We’re on track for brighter, more inclusive future for people with a disability where they are empowered to live the life they choose’.

For more information about the NDIS call STepS on 5458 3000 or email enquiries@stepsgroup.com.au

Get the most out of your NDIS Get in touch for our full range of NDIS services and support options

Call us on STEPS provide NDIS support that helps you live every day the way you choose

Help you identify, plan and coordinate services that suit your needs Deliver and connect you to a range of recreational and social activities Provide assistance with everyday living Training and support for families and carers Assist in behaviour management planning and ASD specialist support School leaver employment support (SLES)

07 5458 3000 Drop in and say hello 15 Evans St, Maroochydore

Find out more

www.stepsgroup.com.au

26 ADVERTISING FEATURE

TUESDAY, DECEMBER 4, 2018 SUNSHINECOASTDAILY.COM.AU

NEWSpApER jOb jUST THE START

by Tessa Patrick

A

of her busy schedule; with gym workouts, swimming lessons, dance classes, and a trip to see Eminem live in concert planned for early next year.

but 27-year-old Sarah Milne is a woman of many talents.

Sarah has Down syndrome, but she never lets the medical diagnosis get in the way of enjoying life.

visiting the Sunshine Coast Daily offices in Maroochydore each week is just part

With her host contractor, brooke ryan, with whom she lives in brightwater, Sarah

friendly face with a contagious smile has been working behind the scenes at the local paper to keep everything spic and span for her colleagues.

is spending her days just like any other young woman on the Sunshine Coast.

She works two days a week sorting papers, watering plants and organising the recycling.

Her favourite part about coming into work is spending time with her friends.

“Steve is my friend, and Paul, and Phil,”

Emily at the radio station, so next thing we knew we were meeting with Steve Hirst (Sunshine Coast Daily general manager) and he had a new employee.”

Sarah’s bubbly personality has instantly had an effect on everyone she meets, both inside and outside of work.

“She just makes people smile, she’s

LIFE FOr SArAH IS MuCH LIkE ANyONE ELSE HEr AGE, THrIvING IN THE ErA OF SOCIAL MEDIA AND FOrMING CLOSE bONDS WITH HEr COLLEAGuES. she said.

“We tell jokes, yeah.”

She scored her job through the STEPS organisation, which helps to get youth like her into employment.

“We were interviewed and right away he said, ‘I know a guy’,” brooke said.

“He actually employed Sarah’s friend

Roadcraft is an NDIS register supplier and offers road safety and driver education services to people with a disability:

kind,” her host contractor said.

“She’s just such a beautiful girl inside and out.

“She makes everyone happy, she’s contagious.”

Her favourite musician is Eminem, her favourite food is salmon pasta and her NrL team is brisbane broncos, whose

“Inclusion is not a strategy to help people fit into the systems and structures which exist in our societies; it is about transforming those systems and structures to make it better for everyone.

• Driver Assessments, development or education in dual-controlled cars on driver education facility on private property • Road safety education courses covering pedestrian, bus and bicycle safety • Courses can be tailored to suit client needs

Inclusion is about creating a better world for everyone.”

Diane Richler, Past President, Inclusion International

A locally based NDIS Registered Provider:

• Assistance with your daily living at home.

• Building your connections in the community.

• Short breaks away from home.

6911252aa

6903503aa

Equity Works provides a wide range of personalised supports to children and adults.

• Assistance to live independently.

RTO ID: 41542

Ph. 1800 060 064 E. enquiries@roadcraft.org.au www.roadcraft.org.au

Call for more info 1300 486 440 equityworks.org

info@equityworks.org

SUNSHINECOASTDAILY.COM.AU TUESDAY, DECEMBER 4, 2018

ADVERTISING FEATURE 27

YOU’RE AppROvED...

NOW WHAT?

Once you have been notified by the NDIA that you are eligible to receive NDIS funding, you will be assigned a Local Area Coordinator (LAC) to work with you in developing your support plan.

The LAC will discuss with you your current situation and support, which will form the basis of your first plan.

It may include the same or similar support and services you currently receive including family, community or mainstream supports. you will continue to receive your current support until the NDIS plan is in place.

Once your plan is approved, it is time to put it into action. your LAC and the service provider can help you kick it into gear, for example, your LAC might help you find community activities and the mainstream services that help you achieve your goals. you can choose the providers you want to deliver the services you need. you can also choose to self-manage your funding.

After that first year, you will be able to determine if that service worked for you, how you’d like it adapted and if there is any additional support you require.

CreaTING your FIrST plaN signed jersey she wears with pride.

your first plan is the start of a life-long relationship with the NDIS.

She watches Netflix and youTube videos in her spare time, when she’s not going for walks or swimming at the beach.

To create your first plan, which is a blueprint of the support you will receive, you will have a conversation with a NDIA representative about your current situation and support.

On weekends she visits friends and family and watches concerts. She spoke fondly of the lead singer in Electrik Lemonade at Caloundra Music Festival, in his skinny jeans with cool tattoos.

Life for Sarah is much like anyone else her age, thriving in the era of social media and forming close bonds with her colleagues.

For her birthday her co-workers pitched in to buy her a brisbane broncos jersey and celebrated with Sarah’s favourite dessert, cheesecake.

For more information about the STEPS program, visit stepsgroup.com.au n

you will also discuss your future needs and everyday routines like showering, cooking and cleaning.

This will form the basis of your plan.

If you currently receive some level of support, you will be contacted by the NDIA to arrange this conversation. your plaN may INCluDe: » Informal supports: the care and help you get from your family and friends » Community supports: the activities and services you can get from people or groups in your local community » mainstream supports: the support and services you get from your doctor or school » reasonable and necessary funded supports: the supports and services the NDIS can fund. These are things related to your disability that you need to live your life and increase your options such as getting a job or doing more activities in the community. your first plan will be in place for 12 months. This will give you time to think about how those supports are working for you, and what else you might need to help you achieve your goals before you do your next plan.

If you are not currently receiving disability services, but think you may be eligible, phone the NDIS hotline on 1800 800 110. n

FOr MOrE INFOrMATION ON ACCESSING THE NDIS GO TO ndis.gov.au

28

TUESDAY, DECEMBER 4, 2018 SUNSHINECOASTDAILY.COM.AU

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SUNSHINECOASTDAILY.COM.AU TUESDAY, DECEMBER 4, 2018

Early Childhood Early Intervention available for children aged 0-6 years

WITH NDIS

Early intervention was the key to getting Axel French ready for mainstream school.

T

wo years ago, Tiffney French couldn’t see a future for her three year old son Axel.

Axel couldn’t speak well or comprehend language, struggled with his fine motor skills, and was so frustrated by his inability to communicate that he was violent and had frequent meltdowns. He didn’t want to play with his older brother and sister and would only rarely say ‘mum’ and ‘dad’.

He frequently escaped from home through locked doors and six-foot high fences, and had no understanding or awareness of danger.

His frustrated parents had tried everything to get his behaviours under control, but nothing was working.

After much trial and error, Tiffney finally found a group therapy program that seemed to work, and he slowly began to show progress.

Joining the NDIS shortly thereafter was the cherry on top, giving the family the funds to allow Axel to continue in their chosen

program, fully funded by the scheme.

The result, Tiffney says, is a thriving five-year-old boy who is looking forward to starting prep in a mainstream school next year – something she never thought would be possible a few years ago.

“We were just surviving before but now everything is so much easier,” she says.

“I look back at where he’s come from to where he is now, and he’s a different child.

We’re getting him ready for prep now, which has been a big goal.

“If you met him when he was two, you would say that’s not the same child.”

Tiffney says the NDIS has allowed Axel to access the early intervention therapy he needed to progress so far that mainstream schooling was now a viable option for him.

“He’s come so far in his development that I’m hoping he won’t even need a support person when he starts school next year,” Tiffney says. “but if he does, we’ll work on that with the NDIS.” Tiffney says Axel no longer has meltdowns, is now able to talk and have conversations lasting up to five minutes, and regularly plays with his siblings and other children.

“He’s just completed his first term with his Autism Queensland kindy group and is able to play with the other children in a small group. For part of the week, he goes to a mainstream kindy with 24 kids in the class and is helped by a support worker, and he

copes well,” she says.

“He knows how to write his name already and I’m very hopeful that he’ll be able to integrate into the classroom easily and be able to do things like sit on the mat and follow the teacher’s direction, which he can now do at kindy.”

Tiffney says that before the NDIS, she was concerned for Axel’s future as many existing services ceased providing support once a child reached the age of seven.

“It was quite daunting to have a child with a disability before the NDIS, especially one with autism, because they didn’t do anything other than early years support,” she says.

“I’m so happy he was able to get his funding. Now I know he will be able to get the support he needs throughout his life which will mean that he will be able to one day live independently.

“I never used to be able to see that as a possibility, but now I do see that he will be able to have a family one day, hold down a job, and be a part of society.

“With his supports in place, my beautiful boy will be able to have a happy life.”

Early Childhood Early Intervention (ECEI) is available under the NDIS to children aged 0-6 years. We’ve mapped out a five-point plan (see right) to help get your child’s ECEI journey underway. n

your eCeI JourNey

AXEL NOW THRIvING your FIve-poINT plaN To aCCeSSING eCeI SupporT

1

Connect with an eCeI partner: you will be connected with an early childhood partner to discuss your child’s disability or concerns you have about their development.

2

Get some helpful information: your early childhood partner will provide you with guidance and information that will help you make decisions.

3

Work out support needs: your early childhood partner will help you understand what supports and services in your community can help your child achieve their goals.

4

NDIS access: If your child will be best supported with an NDIS plan, your early childhood partner will work with you to request NDIS access, develop a plan and connect you with providers of your choice.

5

monitor progress: your child’s progress will be monitored against the goals you set. your early childhood partner and service providers will work with you towards improving your child’s independence and participation in everyday activities.

Disability funding may have changed but our focus on your family hasn’t.

Children’s Therapy Centre Sunshine Coast, Gympie, Noosa, Caboolture

Our services are provided in homes, schools, community or our family-friendly centres.

CONTACT US P: (07) 5441 7199

E: enquiries@childrenstherapycentre.com.au www.childrenstherapycentre.com.au We’ve always been here for you, always will be.

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Providing family-centred therapy for children and young people.

• Speech and Language Pathology • Occupational Therapy • Psychology Trusted by families • Physiotherapy for more than 30 years.

• Specialist equipment • NDIS Plan Management • NDIS Support Coordination

30 ADVERTISING FEATURE

TUESDAY, DECEMBER 4, 2018 SUNSHINECOASTDAILY.COM.AU

YOUR NDIS

JOURNEY

YOUR STEP-BY-STEP ROADMAP FOR EVERYTHING YOU NEED TO KNOW ABOUT ACCESSING THE NDIS

1

2

1. ASSESS THE SITUATION Do you currently receive disability support, or care for someone who does? Is there anything that prohibits you from leading an ordinary life? Do you think you may be eligible for NDIS support? If you’ve answered yes to any of the above, you may be eligible.

2. ARE YOU ELIGIBLE? You can access the NDIS depending on your age, residency and disability. » Age: If you are under 65 years of age when the NDIS reaches your region. » Residency: If you are a permanent resident in Australia or are an Australian citizen. » Disability: If your disability is likely to be with you for life and you require support to manage everyday activities. Early intervention can also help children under six years old with developmental delay.

For a full eligibility checklist, head to www.ndis.gov.au/ndis-access-checklist

3. PREPARE

3

Envisage what you want your future to look like. Write down any supports you need and what would make your life easier. Diarise your typical day to document any barriers you have. Where possible, collate any medical records about your condition.

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SUNSHINECOASTDAILY.COM.AU TUESDAY, DECEMBER 4, 2018

5 5. CONTACTED

BY THE NDIA After receiving your letter in the mail, you will be phoned by a NDIA representative and asked if you’d like to do your request over the phone, or through a paper form.

6. LODGE ACCESS REQUEST If you chose to complete your access request in paper form, you will need to send it to the address indicated on the forms.

If you did it over the phone, you don’t need to post anything.

7. FIND OUT IF YOU’VE BEEN ACCEPTED

6

Your application will take 21 days to process and be either approved or denied. You will be contacted by a NDIA representative if there is a delay.

POST OFFICE

4

7

8 8. ASSIGNED A LOCAL AREA COORDINATOR

Once you have been notified by the NDIA that you are eligible to receive NDIS funding, the NDIA will assign a Local Area Coordinator (LAC) to work with you in developing your support plan. Your LAC will discuss your situation with you, and help you seek community activities and services in your community that will help you reach your goals. You can choose the providers you feel are the best fit for you. Your LAC will be able to support you throughout the whole process.

4. NDIS IS HERE If you are currently receiving disability services, you will receive a letter in the mail from the NDIA outlining your next steps. If you are not currently receiving disability services, but think you may be eligible, phone the NDIS on 1800 800 110 between 8am-11pm local times, Monday to Friday and let them know you think you may be eligible.

9

9. YOUR FIRST PLAN Your first plan will stay in place for 12 months. After that first year, you will reassess your situation and adjust if required.

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TUESDAY, DECEMBER 4, 2018 SUNSHINECOASTDAILY.COM.AU

NDIS answers long-awaited call, writes Tonya Turner

I

FOcUS SHIFTS

TO SHINE LIGHT ON AbILITIES

n October, Sydney hosted the world’s fourth Invictus Games for injured service personnel from 13 nations.

More than 400 disabled competitors took part in nine adaptive sports such as wheelchair basketball, sitting volleyball and indoor rowing.

While the Paralympics might be the world’s premiere sporting event for disabled athletes, the popular Invictus Games, founded by Prince Harry in 2014 after visiting the uS Warrior Games the previous year, has been lauded to help send positive messages and challenge perceptions about people with disabilities.

For many Australians with disabilities, every day can feel like a battle - against discrimination, bureaucracy or in the worst

aims to help those aged under 65 with permanent disabilities to live independently, find work and feel socially included.

It was 2009 when a damning report titled Shut Out: The Experience of People with Disabilities and their Families in Australia was released, shining a light on a broken system.

Prepared by the National People with Disabilities and Carer Council, the landmark study was the result of 750 submissions and discussions between 2500 people in every state and territory in Australia over three years.

Among the results, the report found that 56 per cent of people identified exclusion and negative social attitudes as critical issues, that people in wheelchairs aren’t able to access public facilities such as playgrounds,

released its report into disability care and support.

It concluded that Australia’s system was “underfunded, unfair, fragmented and inefficient” and gave “people with a disability little choice and no certainty of access to appropriate supports.” According to Dr Lisa Stafford, lecturer of public health and social work at Queensland university of Technology, the NDIS is one of the most significant Australian social economic reforms since

the de-institutionalisation of people with disabilities in the 1980s and 1990s.

“The NDIS provides people with disabilities and families choice and control over their supports – this is significant,” she says.

“A young man who I interviewed just recently echoed this, saying how important it was for him to have a team of people, who he chose, to be supporting his vision.”

Dr Stafford says one of the biggest issues

THE NDIS PrOvIDES PEOPLE WITH DISAbILITIES AND FAMILIES CHOICE AND CONTrOL OvEr THEIr SuPPOrTS. cases, abuse.

Just as the Invictus Games celebrates the fighting spirit of its competitors, so too has Australia finally begun to answer the call to help people with disabilities to reclaim their future with the roll-out of the National Disability Insurance Scheme.

Almost one in five Australians live with a disability and at birth, Australians can expect to live on average more than a fifth of their life with some level of disability. The NDIS

cinemas, swimming pools, cafes and hotels, that children with disabilities are excluded from local schools and kindergartens, and accessing public transport is an ongoing struggle for people with mobility aids.

Just a year later, the Organisation for Economic Co-Operation and Development found Australia ranked 21 out of 29 developed countries in employment participation rates for people with disabilities.

In 2011, the Productivity Commission

kurt Fearnley took home first place in the T54 marathon at the 2018 Gold Coast Commonwealth Games.

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Suncoast Integrated Therapies is proud to be the agent for Mollii sunshine Coast.

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Mollii can also be used to alleviate chronic pain or assist in sports performance.

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brisbane’s Madeline Stuart became the first professional model with Down syndrome.

with the old system was that it wasn’t based on the needs and goals of individuals.

“Programs were based on prioritisation systems of urgent and critical, or were program specific – such as family support, or transition, which impacted on the person as they moved through their life. Many people under the old system missed out on essential supports to achieve full participation in everyday life and realise their visions and goals,” she says.

Providing further evidence of the importance of the implementation of the NDIS, in 2013 research by disability service provider Scope, in partnership with Deakin university, found that people with a disability

ADVERTISING FEATURE 33 AS A SOCIETy, WE HAvE THE OPPOrTuNITy TO CHANGE HOW WE THINk.

overwhelmingly felt excluded from society.

Chief executive of Scope, Jennifer Fitzgerald, said at the time: “People with a disability are among the most marginalised of our population. And this social exclusion is a breach of their basic human rights as equal citizens.”

The survey was completed by 761 Australians with a disability and found 94 per cent did not have their need for meaningful participation in their community met; 90 per cent did not have their need for access to services met; 90 per cent did not have their need to feel valued and to belong met; and 91 per cent did not have their need for social contact and support met.

Most concerning of all, it also found the biggest change needed to increase social inclusion of people with a disability – above health, physical access, money and transport – was the attitudes of others in the community.

Many people with disabilities over the years have provided inspiration and served as role models to others to help them overcome challenges and achieve their dreams.

Most recently, brisbane model Madeline Stuart became the first professional adult model with Down syndrome.

Since her before-and-after modelling shoot posted on social media went viral in 2015 garnering more than seven million views, the 21-year-old beauty has walked the runways at fashion shows in New york, Paris, London, Dubai and China and last year secured her first sponsorship with Worldhotels.

Her mother, rosanne Stuart, told vogue: “We have to stop thinking that if we use someone who’s a bit different in advertising it’s a negative thing. As a society we have the opportunity to change how we think.”

A change in attitude can go a long way. In the four decades to 2002, the life expectancy of Australians born with Down syndrome more than tripled from 18 years to 60 years due to medical advances and a positive shift in public attitudes towards the condition.

Paralympic athletes such as kurt Fearnley are other shining examples of people challenging perceptions of those with disabilities.

As well as winning medals at the Paralympic Games, World Championships,

Commonwealth Games and marathons around the world, in 2009 Fearnley crawled the kokoda Track.

At the Gold Coast 2018 Commonwealth Games, he crossed the finish line in the T54 marathon in his racing wheelchair taking first place in front of a home crowd.

In the first Games to include a big program of para-sports that counted towards the medal tally, it couldn’t have been a sweeter victory.

With the roll-out of the NDIS, it is hoped more Australians with disabilities will be able to achieve their dreams, whether that’s living independently, finding employment or winning a gold medal. Although the NDIS has increased funding to the sector from about $8 billion each year to $22 billion by the time it’s fully operational in 2019, it has not been without its challenges.

“The NDIS is a major national reform.

With any such reform, complications will be evitable,” Dr Stafford says, adding it needs timelier responses, resolution of processing issues, improved planning and gaps to be addressed, particularly relating to eligibility.

Just as important is how each and every one of us treat people with disabilities in everyday life. Dr Stafford says campaigns such as The r-Word, encouraging people to stop using the hurtful and demeaning insult, is just one example of how people with disabilities have to fight for respect and dignity.

“People with disability are valued members of society and are your neighbours, family members, a classmate, a co-worker, your lecturer, your doctor, your parliamentary representative,” she says.

“Treat every person with the same value, dignity and respect you would expect.” n

34 ADVERTISING FEATURE

TUESDAY, DECEMBER 4, 2018 SUNSHINECOASTDAILY.COM.AU

RIDING A WAvE

TO A NEW FUTURE

Surf’s up for inspirational go-getter Megan Turner

C

atching a wave in the sparkling Gold Coast surf is just one of the feats Megan Turner has accomplished in the past months, as the Ipswich woman enjoys a new lease on life after joining the NDIS in July last year.

Megan couldn’t have imagined taking part in such exploits this time last year.

After acquiring a brain injury during a fall at age 10, followed by multiple brain

I FEEL LIkE I AM LIvING AGAIN AFTEr bEING IN HIbErNATION FOr SO LONG surgeries from the age of 11, Megan experiences significant difficulty with concentration which has resulted in a tendency for hoarding, where she starts to declutter and rearrange things in her house multiple times then loses concentration.

Prior to July last year, Megan did not receive any regular support which meant daily activities like cooking, keeping her house in order and finding enjoyable hobbies were challenging.

Through the NDIS, Megan now receives funding for a support worker from

community organisation Alara Queensland to visit weekly and help her to de-clutter her apartment, rearrange her living space, and help her to cook herself meals.

Megan says her experience with the NDIS has given her the confidence to be able to go out in the community and live her life, and become involved in activities she never thought possible.

“I feel like I am living again after being in hibernation for so long,” Megan says.

“I would encourage people to apply for the NDIS because it has made such a difference to me, and it is flexible according to an individual’s personal needs and goals.”

Megan says her newfound independence has paved the way for a bright future where she is once again able to find and do things that she enjoys.

“I feel inspired to try new things. I have always enjoyed art and now I am in a regular art class and I am enjoying it,” Megan says.

She has also developed a passion for surfing; enjoying the Gold Coast ocean with the help of the Gold Coast Disabled Surfers Association.

“I can’t wait to get back and be swept away with surfing again soon,” she says.

“It is wonderful to have things to look forward to again.” n

Megan Turner is stoked she can get back to living her life with the support of the NDIS backing her all the way.

É 1300 729 190 www.ssrg.com.au

ADVERTISING FEATURE 35

SUNSHINECOASTDAILY.COM.AU TUESDAY, DECEMBER 4, 2018

jAIMI bOWLING THEM OvER WITH OLYMpIc MEDAL HAUL NDIS helps talented athlete charge full speed ahead

A

Nothing is standing in the way of Jaimi Dann.

independence, his confidence and fter blitzing the field in his communication skills. ten-pin bowling at the 2014 He’s always been non-verbal but Special Olympics with two now he expresses some words about gold medals and one silver medal, his experiences, which is great. bundaberg’s Jaimi Dann has brought ‘Adelaide’ has been one I’ve been home two gold medals from the hearing a lot of,” raelene says with 2018 games held in Adelaide in a smile.

April. raelene says Jaimi was also Jaimi’s mum, raelene Whalley, says showing positive signs in other competing in the Special Olympics areas of his life, which she and Glen had been a life-changer for her put down to greater 27-year-old son, continuity of supports who has severe SINCE THE through Jaimi’s NDIS autism, and she and funding. her partner Glen OLyMPICS, “Jaimi’s local provider, had never imagined WE’vE SEEN SO Impact, has been the extent of his MuCH PErSONAL wonderful. With the abilities.

GrOWTH IN HIM. introduction of the NDIS, “When Jaimi Impact changed its entire was chosen for the program and now he Special Olympics gets to choose what he would like back in 2014, we were really surprised and really happy,” she says. to do from a menu of activities,” raelene says.

“We never expected him to come “The support worker who runs home with two gold and one silver Jaimi’s construction class rang me medal! the other day and said Jaimi is doing “Since the Olympics, we’ve seen things he never thought he could so much personal growth in him. do, and this is coming from someone He has been able to see different who has had years of experience parts of Australia and he just loves working with people with disability. meeting new people.

“We’ve noticed a huge difference “being able to compete at Special in him over the past year. He loves Olympics local, state and national the NDIS. He called it IDS for a events has definitely increased his

couple of weeks,” she laughs.

Jaimi has been involved in the entire NDIS process, from the initial planning conversation to choosing his supports.

“I wanted to give him the opportunity to tell the planner about what he wanted to do so he knew he had choices and he didn’t have to do the same programs over and over again if he didn’t want to,” raelene says.

“The continuity of supports and being able to access activities not usually offered to him has really opened up Jaimi’s world.

“Now he can look forward to achieving so much more in an environment that focuses on people’s abilities, not their disabilities.” n

Your trusted NDIS & Aged Care Support provider Carers Link can provide a wide range of in-home, community and lifestyle supports.

As registered NDIS providers, we can also help you bring your NDIS plans to life by offering:

FINANCIAL PLANNING SERVICES PRE-PLANNING, SUPPORT COORDINATION SUPPORT SERVICES COMMUNITY LINKING SERVICES Our Support services are available 24 hours a day, every day and include: IN HOME & PERSONAL CARE DOMESTIC ASSISTANCE

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36 ADVERTISING FEATURE

TUESDAY, DECEMBER 4, 2018 SUNSHINECOASTDAILY.COM.AU

YOUR NDIS QUESTIONS

GET ANSWERED Q. If I feel a support coordinator is not acting in my best interests, or is excluding me from some decisions, can I change coordinators? a. yes, you can change your support coordinator at any time. Generally you will need to provide 28 days’ notice to your support coordinator. you may be able to negotiate a shorter period depending on your circumstances

t sheets I find fac n a c re e Q. Wh ation? and inform d sheets an rther fact ov.au/ .g is d n a. For fu to on, head -andinformati ct-sheets a /f y it il b a is d le p peo ons.html publicati

Q. Is there a NDIS mobile app where I can manage funds instead of using the MyGov website on my computer?

a. No, there isn’t. However you might find it handy to save the NDIS myplace login page to your mobile phone home screen, so that it’s right there, easy to access.

oN aN IphoNe: 1. Open the myplace participant portal in the Safari app (myplace.ndis.gov. au). you will be taken to a mobile version of the myplace portal where you would enter your myGov username and password to log in.

2. before you log in, tap the ‘actions’ icon at the bottom of your screen (it looks like a square with an arrow coming out the top), and you will see on the bottom right of your screen an option that says ‘add to home screen’.

3. Tap on ‘add to home screen’ (if you like, you can change the shortcut name from “myGov, Sign in” to “NDIS myplace portal”) and it will add an icon on your phone’s home screen that looks like an app.

Q. Does the NDIS cover a CPAP machine?

1. Open the myplace participant portal in Chrome (myplace.ndis.gov.au). you will be taken to a mobile version of the myplace portal where you would enter your myGov username and password to log in.

2. before you log in, tap the ‘actions’ icon at the top right of your screen (it looks like three vertical dots) and you will see an option that says ‘add to home screen’.

3. Tap on ‘add to home screen’ and it will add an icon to your phone’s home screen that looks like an app.

4. Tapping on this icon will take you straight to the myplace login page in Chrome.

IN NATIvE ANDrOID INTErNET brOWSEr

a. The myplace Participant Portal allows you to claim online, removing the need to submit forms to the NDIA. The only paperwork activity is to keep the following information for a period of five years: • your bank statements, or a printout of the transactions from your NDIS bank account; • All invoices and receipts that you have submitted a claim for.

a. your plan is a 12-month budget, calculated for how you would use it on a weekly or monthly basis. If you don’t need as much support one week, that’s fine – you can be flexible with how you use your support hours.

4. your iPhone will automatically close your browser and show you where the icon has been saved. When you tap that icon, it will launch the participant portal login page in your mobile browser.

IN mobIle Chrome:

Q. What records do I need to keep to self-manage my plan, or a family member’s plan, and how do I make claims?

Q. Do unused support hours accumulate, or do you have to use them as stated, eg. weekly?

1. Open the myplace participant portal in the internet app (myplace.ndis. gov.au). you will be taken to a mobile version of the myplace portal where you would enter your myGov username and password to log in.

2. before you log in, tap the ‘bookmarks’ icon in the bottom right corner.

It looks like a ribbon with a star. Add the page to your bookmarks.

3. Navigate to the bookmarks folder in your internet browser by tapping the bookmarks icon in the bottom right corner, and tap on the myplace portal bookmark that you just created.

4. Tap on the ‘actions’ icon in the top right corner (the three vertical dots) and select the option that says ‘add to home screen’. An icon that looks like an app will be added to your home screen.

5. Tapping on this icon will open the myplace login page in your default browser.

a. Generally, a CPAP machine is related to a medical condition and is usually more appropriately funded or provided through other general systems of service delivery or support services such as the health care system, rather than the NDIS.

Q. How do I follow up a plan review if I don’t think the plan reflects my goals or the goals of the person I care for? a. If you are unhappy with a decision about the support budget(s) in your plan, you may request a review of the plan decision. To find out more about requesting a review of your plan you can phone the NDIA on 1800 800 110 or visit the internal review of a decision page at ndis.gov.au

SUNSHINECOASTDAILY.COM.AU TUESDAY, DECEMBER 4, 2018

ScHEME AIMS TO

DIFFereNCe beTWeeN The NDIa aND NDIS It can be hard to decipher acronyms at the best of times, and now is no different. recently, you would have heard NDIS and NDIA mentioned in the same sentence – so we’re here to clarify exactly what is what.

bAcK cARERS AND FAMILIES

T

NDIS: NaTIoNal DISabIlITy INSuraNCe SCheme The NDIS replaces the current disability support system. Instead of recipients only having access to ‘off-the-shelf’ solutions, the NDIS is tailored to each individual. The NDIS recognises that everyone’s needs and goals are different and provides people with individualised support and the flexibility to manage their supports to help them achieve their goals and enjoy an ordinary life. It’s called an insurance scheme because it is social insurance, not welfare. As an insurance scheme, the NDIS takes a lifetime approach to support, not just the needs of that person right now.

NDIa: NaTIoNal DISabIlITy INSuraNCe aGeNCy The NDIA is the independent Commonwealth Government agency responsible for implementing the NDIS. Those who work for the NDIA, work with those seeking disability support. They provide information, referrals, links to services and activities, individualised plans and funded supports to people over their lifetime. They help link the dots between service providers and those seeking assistance. NDIA staff are based across Australia. The NDIA is partnering with the Commonwealth, State and Territory governments and well-known community organisations to deliver the NDIS in your local area. n For more information on the NDIa or NDIS, head to ndis.gov.au

NDIS

ADVERTISING FEATURE 37

he National Disability Insurance Scheme recognises that families and carers play an irreplaceable role in the lives of their family members with disability.

It’s a fact families and carers give love, care and support to their family members.

They do whatever they need to do to make sure their loved one has the best opportunities in life.

It’s also a fact families provide help and support that cannot be replaced by formal services or paid support workers.

What the NDIS aims to do is support carers in that role – as a mum or dad, partner or spouse, brother or sister, grandparent or extended family member.

For many NDIS participants, the views and experiences of their families will play an important part in helping them prepare for the NDIS and to help them get going with their first NDIS plan.

Each NDIS participant will have their own plan reflecting their goals, personal circumstances and disability support needs.

While the focus of the plan is the person with disability, the types of supports in the participant’s plan may also have direct or indirect benefits for families and carers.

a NDIS participant’s plan may include such things as: » Personal care–to support a participant in their home or the community.

» Social and community supports – to enable a participant to enjoy social and community interaction without relying solely on family members. » Assistance with daily living – including help to improve a participant’s ability to do things for themselves. » Training for family members – to provide care that is reasonable in relation to the participant’s age and your family circumstances.

» Employment services – guidance for participants to move to employment programs that prepare them for work. The NDIS can also advise you about supports that are available to you under other government-funded programs, including training and peersupport programs. Ö For more information, head to ndis.gov.au/families-carers.

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e have been supporting people just like you through their NDIS journey for the last two years. Once a person has their plan, they often don’t know what to do next, which for some people can be overwhelming. They don’t like to ask for help, and can be taken advantage of.

We have four tips to help you keep safe and in control of your NDIS plan. » 1. Keep your online access safe.

The NDIS portal is accessed through your MyGov account which is also linked to your other government accounts such as Centrelink. Only you should have access to this. your Local Area Coordinator (LAC) or Support Coordinator can help you set up this up, but even they should not have your login details. » 2. you can keep your plan private.

Apart from your LAC, Support Coordinator, and Plan Manager, other

providers DO NOT need to see the budgets in your plan. Instead, share the aspects of your life that relate to the service, and ask them how they can work with you towards your goals and for them to supply a quote for you to budget around. » 3. Do not be afraid to ask. use your LAC or Support Coordinator to help build trusted networks, and navigate the first year of the NDIS. They are there to help you! Ask for a plan manager funded separately to help you manage the finances, if you want one.

There are good providers who will also be adjusting to the new NDIS. We will work with you to nail those new year goals…unlike my fitness regime! Ö parent to parent p2pqld.org.au

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38 ADVERTISING FEATURE

TUESDAY, DECEMBER 4, 2018 SUNSHINECOASTDAILY.COM.AU

KIcKING GOALS

THANKS TO THE NDIS

T

Paralympic Games. here was never a more “I love soccer. I’m stuck inside a lot mischievous child than Jeffrey Morrish. so soccer is something I can do, and He was forever climbing where the people who play are my friends,” Jeffrey says. he shouldn’t, and touching what he “I want to make the Queensland mustn’t, and pushing every toddler team, and then maybe the national boundary.

Even on the day his mum Cheryl team later this year.” was told that her son had Duchenne Jeffrey had played balloon soccer, hockey and rugby since the age of 11 Muscular Dystrophy – a genetic, and even competed at national level, degenerative disorder with no cure but became increasingly unable to Jeffrey was creating a bit of harmless havoc in the specialist’s office. keep up with the other players in his “He really was the most mischievous child ever I LOvE SOCCEr. I’M STuCk known,” Cheryl says.

INSIDE A LOT SO SOCCEr IS “We just thought he was a little slow in developing SOMETHING I CAN DO, AND THE his motor skills. It wasn’t PEOPLE WHO PLAy ArE My FrIENDS until he was three that we noticed he would avoid climbing up traditional wheelchair. on obstacles, and struggled to pull Last year Jeffrey received NDIS himself out of the pool.” funding for a Strike Force sports Seventeen years on and having wheelchair, which meant he could used a wheelchair for most of his life, finally get back on the soccer field to Jeffrey still has the same mischievous do what he loves best. sparkle in his eyes and cheeky smile “This chair has been designed on his face, and is now crushing specifically for Power Soccer. It is every hurdle in his path to fulfil his lower to the ground and won’t dream of playing soccer for Australia. tip over, and with a top speed Jeffrey is a skilled player of Power of 15 kilometres per hour, I Soccer - a sport for people in can keep up with the other electric wheelchairs - which is being players,” he says. considered for inclusion in the 2024 “My regular wheelchair

used to overheat, and I could only ever play in the role of goalie. Now I can play as a winger.

“I thought that I would have to give up soccer, but this is now letting me play again.”

Playing soccer gives Jeffrey the opportunity to hang out with his friends regularly as well as giving his mum and dad a break from their fulltime caring duties.

The most important thing that Jeffrey’s new wheelchair represents however, is happiness.

“There is always someone worse off than yourself, and I try not to feel sorry for myself,” Jeffrey says.

“For me, it’s about quality of life – about doing the things that you can, and enjoying them.”

“All I want is to make life the best it can possibly be.” n

From naughty kid, to star on the soccer field, Jeffrey Morrish continues to make a name for himself.

PASSIONATE ADVOCATE

S

haron Fulwood is a mother of three beautiful children, two of which have disabilities. Her son Jake has Spina Bifida and her middle child Ryan has Autism.

With both her sons now living independently, Sharon is a passionate advocate for the ever-growing list support services for individuals with disabilities.

Earlier this year Sharon organised the inaugural Disability Expo Sunshine Coast. The event helped residents with disabilities and their families to access relevant information and support organisations that best suit their individual needs.

Many of those clients are now preparing themselves to transition into the NDIS scheme.

Here is what Sharon has to say about NDIS and how it will help the local Sunshine Coast Community.

Q. What do you think the NDIS do for the Sunshine Coast?

A. I’m hoping that it will bring the community closer with providers clearly

I’M HOPING THAT IT WILL BRING THE COMMUNITY CLOSER WITH PROVIDERS CLEARLY LOOKING AT WHAT IS BEST FOR THE CLIENT.

looking at what is best for the client. I’m also hoping that with the help of Disability Expo Sunshine Coast the people who require assistance from the NDIS will have more of an idea of what is available in their region and be able to make informed decisions based on what is available.

Q. For those eligible for NDIS and their families, what is their biggest concern?

A. Filling in all the forms; will I/we get what we need; what happens if things change quickly? Are my needs big/small in the scheme and what will I be covered?

Q. In what way will the scheme help them?

A. The scheme is designed to give the person who needs assistance, their caregiver/family make choices as to what

Sharon Fulwood

and how they spend the money that is put aside for their caring needs.

Q. Who is eligible to access the scheme and limitations does it have?

A. I am not a specialist in this, but I would suggest your clients call and see if they are eligible, as most letters for the Sunshine Coast have now been sent. If you haven’t received one, you need to jump online and register or call the NDIS direct.

Q. What is the best way for those eligible to find out how they specifically can benefit from the scheme?

A. Go to an NDIS forum, call your local provider and ask lots of questions.

Q. How are you and your sons planning to utilise the NDIS?

A. Only one of my sons has been accepted at present onto the scheme and we have his planning appointment scheduled for later this month. We have taken a good look at what he has at present, and from where. What his needs look like in the next 12 months and where there may be variables.

We have also contacted the Spina Bifida Association (one of our biggest support groups) and gone through some scenarios.

They have also supported us by sending out questionnaires to assist us in asking the right types of questions and ensuring we include everything we need. They also let us know if some of the things we are looking at are ok to ask for, which was great. ■

ADVERTISING FEATURE 39

SUNSHINECOASTDAILY.COM.AU TUESDAY, DECEMBER 4, 2018

A WHOLE NEW WORLD For sisters Shaye and Gemma Harrison, the NDIS means they can embrace their independence.

W

hen Sandra Harrison was told 23 years ago that she was pregnant with triplets, she thought the doctor was joking.

“I was first told at seven weeks that I was pregnant with twins and I thought I could deal with that. Then at 18 weeks, the doctor said ‘did they tell you about the third one?’,” she says.

“I said ‘that’s not funny’ and he said ‘I don’t joke about things like that’. I just cried going home because I didn’t know how I would handle three.

“It was a bit daunting but you just do what you have to do.”

The triplets - kayla, Shaye and Gemma were born six weeks premature and, despite kayla having two surgeries on a duplex kidney as a baby, Sandra thought her three babies were developmentally on track.

Shaye and Gemma, who are identical, however still weren’t sitting up at 10 months and an MrI at age two and a half led to a

FOR HARRISON TRIpLETS

diagnosis of cerebral palsy.

Genetic testing just last year found the initial diagnosis was incorrect, and the girls were diagnosed with a rare genetic condition called kIF1a which affects just 141 people in the world and only three in Australia.

The only saving grace was that Shaye and Gemma were diagnosed with a kIF1a mutation which was not degenerative, unlike most other people with kIF1a.

was forced to “beg, grovel and fundraise” to pay for weekly physiotherapy and speech therapy.

That was until the National Disability Insurance Scheme became available in their home town of Laidley, which gave them significantly more support hours in addition to a support worker each, as well as funding for speech therapy, occupational therapy, physiotherapy, hydrotherapy and music therapy.

The music and speech therapy especially has seen the girls come along in leaps and bounds with a newfound ability to exercise choice and independence from one another. “before, they could say five-word sentences but a lot of people couldn’t understand them. Now it’s just flowing more and people can now sit and have full

I WANTED TO Try AND GIvE THEM THEIr OWN CHOICES. JuST bECAuSE THEy’rE IDENTICAL TWINS DOESN’T MEAN THEy LIkE EXACTLy THE SAME THING. Shaye and Gemma are both in wheelchairs, have scoliosis, intellectual impairment and impaired vision. Gemma also has epilepsy, and seizures every morning when she wakes. both have also endured numerous spinal surgeries, with Shaye developing staph in the spine which left her on antibiotics for three years. until a year ago, the girls received very limited hours of support per week, with one support worker between them, and Sandra

conversations with them,” Sandra says.

“We had a support worker from when they were young who says to me now ‘I still remember when you used to say, “if only they could say yes or no” and look at them now’.”

Sandra says funding for an additional support worker now meant that Shaye and Gemma had their own choices about what they would do day-to-day.

“We used to only have one support

worker between the two girls but one person couldn’t push two wheelchairs so they used to spend a lot of time at home. Now that they have one each they can go out into the community and do things. They never had that before, and now their worlds have opened up,” she says.

“I wanted to try and give them their own choices. Just because they’re identical twins doesn’t mean they like exactly the same thing. So now they can each choose to do what they want to do.”

Shaye and Gemma now volunteer one day a week at a local aged care facility where they spend time talking with the residents, helping the staff, and putting on country music concerts with the aid of their music therapist.

They also enjoy picnics, fishing and sailing with their support workers, and have even been away on overnight trips with the local youth centre, which Gemma was never able to do before due to frequent epileptic seizures.

“The NDIS has paid for the youth centre staff to be trained to administer medication if Gemma has a seizure so that she can go on overnight excursions,” Sandra says.

“Shaye was also always too scared to spend a night away from Mum, but now she’s learning that you can go away from home, have a good time, and you’ll still come back to your home and your bed. She’s never done all those things, but now she’s realising she can.

“They have choices now.” n

“

His world has opened up for him at last! I think I can honestly say, I don’t know what Craig and I would be doing now, if Spiral had not come into our lives.

Trish, Parent

Your Life Matters Spiral will work with you and your family to design quality personalised support that is responsive to your needs, meets your goals and future aspirations. We provide an individualised, flexible and self-directed service model ensuring you have choice and control in all aspects of your services. Spiral has a strong reputation for a person centred and developmental approach in support that promotes skills development, valued roles and meaningful community participation.

Spiral has supported the Sunshine Coast since 1981.

Professional and highly trained staff members ensure you and your family or carer benefit from our knowledge gained from over 35 years of experience. Spiral aims to provide responsive service from the first enquiry through to assisting you to reach your full potential.

“

I like the people and the company.

I like the art studio and the cooking workshops. I have been coming to spiral’s art workshops for two years and I want to be known as an artist in the community. I have had opportunities to exhibit and sell my pieces at local exhibitions and want to explore this more. I have donated art pieces to Mix FM’s give me five for kids’ art auction two years in a row and it makes me feel good as it is helping people and going out to the public. I feel good when I come here.

Neil, Participant

Contact us to discuss how you can plan to have a great life.

Office Hours: Monday to Friday 9.00am - 4.00pm A: 122 Image Flat Road, PO Box 400, Nambour 4560 P: 5476 2711 F: 5476 2832 E: spiral@spiralinc.org.au W: www.spiralinc.org.au

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Get the most out of your NDIS

INDEpENDENcE

O

ne of the Coast’s longest running disability organisations is utilising its many years of accumulated knowledge, experience and connections to help people gain positive outcomes under the National Disability Insurance Scheme.

STEPS Community Services offers a range of programs and services aimed at building capacity and independence for people with a disability. It welcomes a new era of support services that gives individuals the power to identify the best services for them and gain control over their own finances. before rolling out NDIS services regionally in 2017, STEPS undertook

several years of research and planning.

STEPS staff had important meetings with families and individuals set to be affected by the new scheme to gain an in depth understanding of the community’s needs.

STEPS Deputy CEO, kerry Staines, said the organisation’s comprehensive approach to preparing for services under the NDIS has allowed them to break down some of the fear and uncertainty for their customers.

‘We’ve had many, many conversations with individuals and families around their concerns, hopes and expectations regarding their funding under the NDIS, and by truly understanding the needs of

our customers we’ve been able to turn their feelings of uncertainty to feelings of confidence and positivity about their future,’ Ms Staines said.

‘We’re able to help our customers navigate the NDIS, so that they are in a space of possibility, thinking about the services that will really help them get the most out of life within a budget and support framework that aligns with their lifestyle,’ she said.

STEPS are hosting a broad range of services to help their customers prepare for the new scheme including NDIS preplanning, and support to navigate the NDIS.

They’re also offering support services currently under the NDIS from assistance with daily living and self-care, to behaviour management, assistance with social and community participation as well as Ms Staines said that while the NDIS employment and provided benefits to most individual’s WE’rE AbLE TO HELP Our skills development, including SLES eligible under the CuSTOMErS NAvIGATE (School Leaver scheme, she strongly THE NDIS, SO THAT THEy ArE IN Employment encouraged people A SPACE OF POSSIbILITy...

Support), and to align themselves specialised services with an organisation like STEPS. This would help them navigate for people living with Autism Spectrum the services available to them and to plan Disorder (ASD) for people eligible for NDIS funding. their funding.

‘We have seen some examples in earlier roll outs where individuals have been left short changed in their funding because they haven’t been fully aware of the opportunities available to them,’ Ms Staines said.

‘We’re advising that people do their research first and make sure they’re partnering with an organisation that has a detailed knowledge of the NDIS but also a genuine understanding of what’s important to individuals’, she said.

STEPS provide NDIS support that helps you live every day the way you choose

Ms Staines said the NDIS was just one more step in the right direction to achieving an even playing field for more than 4 million Australians with a disability.

‘We’re on track for brighter, more inclusive future for people with a disability where they are empowered to live the life they choose’.

For more information about the NDIS call STepS on 5458 3000 or email enquiries@stepsgroup.com.au

Get in touch for our full range of NDIS services and support options

Call us on Help you identify, plan and coordinate services that suit your needs Deliver and connect you to a range of recreational and social activities Provide assistance with everyday living Training and support for families and carers Assist in behaviour management planning and ASD specialist support School leaver employment support (SLES)

07 5458 3000

Drop in and say hello 15 Evans St, Maroochydore

Find out more

www.stepsgroup.com.au