Arthritis Matters Spring 2012 by Nick Quirke

www.arthritisnsw.org.au

RRP $5.95

ARTHRITIS SPRING 2012

& OSTEOPOROSIS Ezy-Care Gardening

BY JAMIE DURIE

MATTERS

HEALTHY AGEING ISSUE

STAYING ACTIVE And On Your Feet

FOCUS: Ankylosing Spondylitis

FOREVER YOUNG Anna-Louise Bouvier:

TIPS AND TRICKS FROM PEOPLE WITH ARTHRITIS

STOPPING THE WOBBLES... WHY ALL WE NEED IS GOOD STABILITY

ARTHRITIS MATTERS / WINTER 2012

Contents

REGULARS

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Calendar of Events OCTOBER 2012

Request a FREE info pack If you are aged 50 to 79, simply complete and return this coupon to: Seniors Funeral Plan, Reply Paid 7186, Baulkham Hills NSW 2153 No stamp required. Title

Mrs

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With the Seniors Funeral Plan you are investing in peace of mind – so you know that should anything happen to you, your family will have the money on hand to pay for your funeral.

Choose the cover that suits you

Other

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From $3,000 up to $15,000 paid to your family Up to $45,000 paid in the event of accidental death Single or family cover options Optional Accidental Serious Injury cover available

Tuesday 16:

Osteoporosis Seminar, Penrith

Community

Saturday 20:

World Osteoporosis Day

Q&A

Saturday 27: Kidsflix, Event Cinema,

Nutrition

Castle Hill

NOVEMBER 2012

State

Postcode

Email address (

)

Mobile phone

Call me regarding Seniors Funeral Plan

Plus! FREE Will Kit with your policy valued at $30. We would like to keep you informed. However, if you would prefer that we do not keep in touch with you regarding our products and services, please tick here. H0993_ASIA_Arthritis_06/12

Opinion 20

Saturday 3:

Kids’ Corner

Kidsflix, Hoyts Cinema, Penrith

Thursday 22:

Members News

Osteoporosis Course, Liverpool

Out of Joint

Saturday 24: Kidsflix, Hoyts Cinema,

Local Happenings

Wednesday 28:

Branch Listings

Thursday 22 &29: Osteoporosis Course, Liverpool

Health & fitness

DECEMBER 2012

n Apply over the phone, in minutes n No medical exam or blood tests required n Immediate cover for accidental death, cover for death by any cause after 12 months n Claims usually paid within 48 hours of receiving all required documents

FEATURES PAGE

A-Z of Health Maintenance

Why choose Australian Seniors Insurance Agency

n We are the over 50’s insurance specialists n Friendly, Australian based customer service team n Cover 24/7, worldwide

PAGE

Stopping the Wobbles

Arthritis Seminar (Italian)

idsflix, Hoyts Cinema, K Brookvale/Warringah Mall

For more information or to register for any of these events, contact Arthritis NSW on 1800 011 041 or visit www.arthritisnsw.org.au

PAGE

Staying Active & On Your Feet

PAGE

Focus: Ankylosing Spondylitis

PAGE

Call 1800 004 005 for a quote or visit www.seniors.com.au

Charlestown

Saturday 1:

Osteoporosis: Calcium Position Statement

Quick and easy application

Suburb

Home phone

n n n n

World Arthritis Day

From the CEO

Osteoporosis 14

If you were to pass away unexpectedly, would your family have the cash on hand to pay for your funeral? Funerals can be expensive and not planning for your funeral can leave your family with added financial stress at a difficult and emotional time.

Friday 12:

PAGE

24 Ezy-Care Gardening: by Jamie Durie

Lines are open Monday to Friday 8.00am – 8:00pm (EST)

NEXT ISSUE Out December 2012 * Age based premium providing $5,000 benefit under a single plan for a person aged 50.

Front Cover: Edith Gray, Member of Arthritis NSW Location: Margarita Salinas’ home in Roseville Photographer: Nick Bowers

This is general advice only. Please consider the Product Disclosure Statement to ensure the product suits your needs. This information is provided by Australian Seniors Insurance Agency Pty Ltd (AR 270983), an authorised representative of Hollard Financial Services Pty Ltd, AFSL 343079. The Australian Seniors Funeral Plan is issued by Hannover Life Re of Australasia Ltd, ABN 37 062 395 484. Terms and conditions apply.

DO YOU HAVE ANY FEEDBACK OR SUGGESTIONS FOR ARTHRITIS MATTERS? If you do, e-mail info@arthritisnsw.org.au

3 H0993_ASIA_Arthritis Matters_PRINT.indd 1

25/05/12 3:31 PM

ARTHRITIS MATTERS / SPRING 2012

ARTHRITIS & OSTEOPOROSIS

MATTERS

FROM THE

CEO

SRING 2012 Arthritis NSW & Osteoporosis NSW Locked Bag 2216, North Ryde NSW 1670 1.15/32 Delhi Road, North Ryde NSW 2113 Phone: 02 9857 3300 Fax: 02 9857 3399 Web: www.arthritisnsw.org.au ABN 64 528 634 894 CAN 000587299 CFN 12845 Copyright© 2012 Arthritis NSW Arthritis Matters is mailed out to members and subscribers throughout NSW. Information & Helplines Arthritis: 1800 011 041 Osteoporosis: 1800 242 141 Challenging Arthritis Self-Management Program: 1800 332 131 Advertising: To advertise in Arthritis Matters call 02 9857 3300 Contribution and Advertising Closing Dates: Summer 2012: 20 November Autumn 2013: 27 January Patron: Her Excellency Prof Marie Bashir AC, Governor of NSW President: Mr Greg Monaghan Vice President: Ms Judith Cantor Hon. Treasurer: Mr Dennis Messner Company Secretary: Mr Evan Manolios Directors Ms Diana Aspinall, Assoc. Prof. Nick Manolios, Dr. Ben Marosszeky, Ms Cosi Pupo, Mrs Doris Carrall and Mr Allan Ryan Chief Executive: Karen Filocamo Manager Health Promotion & Service Development: Di Spragg Marketing and Fundraising Manager: Rob Novotny Marketing and Fundraising Officer: Caroline Selwyn Health Promotion Officer: Alex Jaksetic and Jenny Ly Business Manager: Michael Fazio Finance Assistant & Kidsflix Coordinator: Clarissa Jones Receptionist/ Information Officer: Ingrid Player Membership Officer: Melissa Denham Self Management Program Development Officer: Eloise Buggy Branches and Community Liaison Officer: Nena Doyle Design: Sensory Creative Advertising Policy Statement Products and services advertised in Arthritis Matters are not necessarily recommended or endorsed by Arthritis NSW. Some readers may assume that anything advertised in these pages has been cleared, vetted or in some way approved by the charity. This is not so. Arthritis NSW is not equipped to test and approve products and services that are available to the general public. Please exercise careful judgment about whether the item or service is likely to help you personally, and where appropriate, take professional advice from your doctor or specialist before making a purchase. Whilst all reasonable care has been taken to ensure the accuracy of information inside Arthritis Matters, no warranties or guarantees are given nor any responsibility accepted by the publishers, its agents or anyone else involved in its production for any errors which may occur. Nothing contained inside is intended as medical advice – always consult your doctor regarding treatment or medicines.

In this issue we explore healthy ageing. As the ageing population in our community is growing, we need to promote strategies to keep people healthy, active and independent for as long as possible. We have included some great stories from people who are managing to do this in wonderful ways and we hope these give you, the reader, some good ideas. Thanks to those people who have shared this with us. There are many ways to promote healthy ageing which includes a good diet, regular exercise, participating in activities you enjoy that provide regular social interaction and managing medicines in an informed way. I recently spoke at a national Pharmacy Conference and the recurring topic discussed was the high number of different medicines consumed by older people. This is known as polypharmacy and can be a risk factor for falls, because of the possible interaction between medicines. It might be a good idea to discuss your medicines with your doctor if you haven’t done this for a while. I hope you find a few good ideas in this issue to help you, whether you are young or older, to think about how you can promote your own healthy ageing – it’s never too early to start! Best wishes to all.

Karen Filocamo

Community PROGRESS MADE ON THE NATIONAL DISABILITY INSURANCE SCHEME (NDIS) The implementation of the National Disability Insurance Scheme is one step closer after the July Council of Australian Governments (COAG) meeting. The Commonwealth reached in-principle agreement with South Australia, Tasmania and the Australian Capital Territory for a launch to commence from July 2013. Since the COAG meeting, Victoria and New South Wales have also agreed to participate in pilots of the scheme, and Western Australia has also indicated support for the scheme. The NDIS will bring much-needed reform and support for people with disability. We will continue to provide you with the latest information on the NDIS over the coming issues.

For more information visit www.ndis.gov.au

TGA WITHDRAWS PAINKILLER The painkiller Di-Gesic has been withdrawn from the market due to safety concerns. It contains the active ingredient dextropropoxyphene which, according to the Therapeutic Goods Administration (TGA), has recently been shown to affect the heart’s electrical system, resulting in an increased risk of serious irregular heartbeats or arrhythmias. Following a review of the available evidence, the TGA found that the safety risks of using painkillers containing this ingredient outweighed the benefits, and removed them from the Australian market. If you have any questions or concerns, please contact us on 1800 011 041.

For more information visit www.tga.gov.au/newsroom

NATIONAL ADVOCACY – ARTHRITIS AUSTRALIA Arthritis Australia is taking a proactive approach to national advocacy on behalf of people with arthritis by developing a national advocacy strategy. They are consulting with consumers and other stakeholders, including Arthritis NSW, to identify key advocacy priorities, develop effective solutions and work with government and others to achieve meaningful change. We will keep you updated on any further developments.

JOINT INJECTIONS SURVEY Arthritis Australia’s online joint injections survey had over 700 responses from people living with arthritis across the country. The results will help to assess the impact that removing Medicare rebates for joint injections has had on people living with arthritis. In addition, they are surveying rheumatologists for their perspective of the impact on people with arthritis. The findings of both surveys are being analysed with a view of presenting the results to the Federal Minister for Health. Arthritis Australia hopes that this evidence will help in their efforts to convince the government to restore Medicare rebates for these procedures. Thank you to our members who participated in the survey.

BACK PROBLEMS A COMMON CAUSE OF PAIN About 10 percent of Australians, or 1.8 million people, have back problems, according to a recent report by the Australian Institute of Health and Welfare (AIHW). Using data from the 2007-08 National Health Survey, the AIHW found that back problems – issues with bones, joints, connective tissue, muscles or nerves – are commonly characterised by pain, with 86 percent of sufferers experiencing pain one day per week, and 14 percent living with persistent pain. For people living with chronic back problems, intervention based on a multidisciplinary approach and self-management techniques, is most often the best treatment.

HEADACHE AFFECTS ONE IN TEN A recent Newspoll Survey held during National Pain Week found that headaches affect one in ten Australians. From the 1200 people who responded to the survey, one in three reported suffering from headaches at least once a month, and one in 10 experienced them once a week or more. While headaches are usually due to stress or tension, or may be part of a migraine condition, they can also be due to medication overuse, a condition elsewhere in the body, or indicators of something more sinister.

Q&A RECIPES

RECIPES

Q&A Welcome to Q&A, a section providing you with the opportunity to ask any question you may have regarding arthritis or osteoporosis. If you do have a question, please e-mail us at info@arthritisnsw.org.au or call 1800 011 041. Please note: not all questions will be answered in the magazine.

SALMON RISOTTO WITH CUCUMBER AND TARRAGON An easy but tasty dish which can be served from the pot it was cooked in.

INGREDIENTS (SERVES 4)

AT WHAT AGE DO PEOPLE GET ARTHRITIS?

Nearly one in every five Australians has arthritis. Many people think that arthritis is a normal part of ageing; however, this is not true. Arthritis can affect people at any age. In fact, two out of every three people with arthritis are between 15 and 60 years old and are studying, working and raising families.

There are over 120 forms of arthritis, each affecting the joints and other parts of the body in different ways. The most common forms are osteoarthritis, rheumatoid arthritis, gout and ankylosing spondylitis. Osteoarthritis can occur at any age but is more common in people over 40 years of age. Rheumatoid arthritis is usually diagnosed when people are in the 30-55 year age group but can also present much earlier, or later, in life.

Gout more commonly affects men between the ages of 40 and 50 years but can also affect older people who are taking diuretics (tablets to help the body get rid of excess fluids). The symptoms of ankylosing spondylitis usually start between the ages of 15 and 45 years. Children and teenagers can also be affected by arthritis. In Australia, about one in every 1000 children has juvenile idiopathic arthritis (JIA), a term referring to the forms of arthritis occurring in children from the age of six months to 16 years. While many children outgrow JIA; others will continue to experience the symptoms of inflammatory arthritis into their adult years. For more information about who gets arthritis and the different types, visit the Arthritis NSW website: www.arthrtisnsw.org.au

• 450g salmon fillet, skinned and diced • 30ml / 2 tbsp olive oil • Small bunch of spring onions, white parts only, chopped with scissors • ½ cucumber, peeled, seeded and chopped • 350g / 1 ¾ cups risotto rice • 1.2 litres / 5 cups hot chicken or fish stock • 150ml / ⅔ cup dry white wine • 45ml / 3 tbsp chopped fresh tarragon salt and ground black pepper 1. Heat the oil in a large saucepan or table-top cooker and add the spring onions and the cucumber. Cook for 2 – 3 minutes without allowing the spring onions to colour. 2. Stir in the rice, then add the stock and wine. Bring to the boil, then lower the heat and simmer, uncovered, for 10 minutes, stirring occasionally. 3. Stir in the diced salmon and season to taste with salt and ground black pepper. Continue cooking for a further 5 minutes, stirring occasionally, then switch off the heat. Cover and leave to stand for 5 minutes. 4. Remove the lid, add the chopped fresh tarragon and mix lightly to combine. Serve the risotto immediately, in warmed bowls.

DID YOU KNOW WE ARE ON FACEBOOK & TWITTER? Like us on facebook.com/arthritisnsw or follow us at twitter.com/athritisnsw and find out the latest information regarding arthritis and osteoporosis in real time!

ARTHRITIS MATTERS / SPRING 2012

Cook’s tip: • If you find peeling and seeding the cucumber difficult, just chop it with skin and seeds intact.

MEDITERRANEAN CHEDDAR CHICKEN INGREDIENTS (SERVES 4) • 4 skinless chicken fillets • 50g butter • 4 thick slices of eggplant, diced • 8 thick slices zucchini, diced • 1 red capsicum, diced • 80g or 8 thick slices of Australian cheddar cheese • ¼ cup balsamic vinegar • Basil leaves to garnish 1. Melt butter in a frypan and pan-fry chicken fillets on both sides over medium heat until cooked through. 2. Meanwhile, add vegetables to the pan, stirring occasionally. Leaving chicken in the pan, top with red capsicum and cheddar cheese and pour vinegar over vegetables. Cover and cook until cheddar has melted. 3. Serve balsamic vegetables onto serving plates and top with cheddar chicken. Serve garnished with basil leaves. Note: Arthritis NSW suggests substituting olive oil for butter and using low fat cheese.

Do you have a healthy recipe you’d like to share? Simply post it to Locked Bag 2216, North Ryde 1670 or e-mail info@arthritisnsw.org.au.

FOCUS ON ARTHRITIS

ARTHRITIS MATTERS / SPRING 2012

MICHAEL SLATER’S

FOCUS ON ARTHRITIS:

Ankylosing Spondylitis ANKYLOSING SPONDYLITIS (AS) IS A CONDITION THAT MAINLY AFFECTS THE SPINE. THE JOINTS OF THE NECK, BACK AND PELVIS BECOME INFLAMED, CAUSING PAIN AND STIFFNESS. OTHER JOINTS SUCH AS THE HIPS, SHOULDERS, ANKLES OR FEET MAY ALSO BE INVOLVED. THE SYMPTOMS USUALLY BEGIN BETWEEN THE AGES OF 15 AND 45 YEARS. IT AFFECTS ONE IN 300 AUSTRALIANS AND OCCURS MORE COMMONLY IN MEN THAN WOMEN. Ankylosing spondylitis (AS) is a form of inflammatory arthritis. The name is derived from two terms – ankylosing, meaning stiffening or joining together and spondylitis, referring to inflammation of the spine. A key feature of AS is inflammation of the joints in the neck, back and pelvis, particularly where the ligaments and tendons attach to the bone. As with other inflammatory forms of arthritis, the symptoms of AS vary from person to person.

THE MOST COMMON SYMPTOMS ARE:

* * *

p ain and stiffness in the back, buttocks or neck s ymptoms worse after rest (e.g. early in the morning) and relieved with exercise

pain in tendons (which connect muscles to bones) and ligaments (connecting bone to bone), often felt as pain at the front of the chest or between the shoulder blades, back of the heel or underneath the foot.

The course of AS is highly variable. In the early stages, pain may be felt as a dull ache in the buttock region, where the tail bone meets the pelvis. The pain may come and go and involve only one side, move from one side to the other, or spread across both buttocks. Chest pain, made worse by coughing or sneezing, is also a common early complaint. Some people only experience brief episodes of back pain, or a ‘flare’ (a temporary worsening of symptoms), with long periods of remission in between. For others, symptoms of pain and stiffness are persistent. The exact cause of AS is not known. However, it is known that unlike some other back pain conditions, AS is not caused by particular jobs, activities or injuries. You are more likely to get AS if someone else in your family has it. A gene known as HLA-B27 is associated with AS, with almost nine out of every 10 people with AS testing positive to the gene. However, this gene is also present in about eight per cent of the general population, including people who do not have AS. More recently, two new genes (IL23R and ARTS1) have also been associated with AS. Early diagnosis and treatment of AS is important to reduce progressive loss of spinal flexibility and minimise deformity. Management is aimed at reducing symptoms of pain and stiffness and maintaining a person’s posture, mobility and daily function. There is currently no cure for AS; however, with early medical treatment and appropriate lifestyle advice, people with AS can lead full and active lives. If you have AS, seek the advice and support of your doctor and healthcare team so that you are well-armed with strategies to manage your condition. If you would like to learn more about AS, a factsheet and booklet is available on our website: www.arthritisnsw.org.au. Print copies can also be obtained by contacting the Arthritis NSW office on 1800 011 041. REFERENCES Arthritis Australia. Taking control of your ankylosing spondylitis: A practical guide to treatments, services and lifestyle choices. Sydney: Australia, 2011. Arthritis Australia. Ankylosing spondylitis [fact sheet]. Sydney: Australia, reviewed 2011.

Greatest Test

It was 1989, the ideal beginning to what was to be a groundbreaking cricketing career and Slats, as he is affectionately known, had just been accepted into the Australian Cricket Academy. At 18 years of age, the young gun was at the top of his game. Yet within weeks of moving to the Academy, Slats had a bicycle accident. While a hip injury sustained as a result improved over time, a young Slater was experiencing brutal spinal pain. “I felt an intense pain in my lower back…and also in the tops of my legs. It was worse in the mornings…(and) really hampered the way I walked… not a cool look!” As a sportsman under scrutiny, Slater knew he couldn’t afford to waste any time when it came to his health and went in search of advice from healthcare professionals around Australia. It was a doctor at the Australian Institute of Sport (AIS) who asked Slater if he had had a blood test. “I asked: what for?” It was the first time I had heard about the HLA-B27 gene, which I tested positive for. People who are positive are much more likely to have ankylosing spondylitis.” Ankylosing spondylitis (AS) causes inflammation and pain in the spine and other joints, including the shoulders, hips, knees, ankles and the joints in your knees and breastbone. If left untreated, AS can lead to permanent stiffening of your spine and in severe cases, the bones in the spine can fuse together, stopping movement and causing a permanently stooped-forward posture.

For the young talent, the AS diagnosis was “gut-wrenching”. “Here I was, living out the dream and the opportunity of a lifetime but I wasn’t sure what one day would bring to the next.” Thankfully, the Academy allowed Slats to continue playing yet it was anything but smooth sailing. Like most AS sufferers, Slats had his good days and his bad days. During the Ashes in 1993, Slater suffered from severe AS flare-ups, however, he still managed to score the first half-century of his career in the opening match. It didn’t come easy and Slater admits he was lucky to even be on the field. “The pain was constant and I knew if it got any uglier I’d have to pull out,” he admits. Now retired, Slats is a Channel 9 cricket commentator and host of 2KY’s Big Sports Breakfast program. For years his AS had gone into remission as Slater changed his lifestyle to manage the disease. However, in recent years, due to his sedentary daily routine, Slats is starting to experience flare-ups once again.

“One of the positives in my cricket career was that I was always active, which is crucial in fighting AS. It’s very much, you use it or lose it”, he explains. Today, Slats is tailoring an exercise program to help fight his latest AS flare-up. This time he’s keeping up surfing and is looking to build yoga and Pilates into the mix. “Rather than just doing exercise I want to do, I am doing activities with a real purpose knowing that it will allow me to be running around with my kids in 15 years,” he explains. Slater puts his AS management down to a strong network of healthcare professionals and the ongoing support of his family and friends, and says picking up on the pain early was critical to his ability to continue playing the game he loved. “For young guys, if you’ve got spinal pain that is constant and always rumbling, and particularly if it eases as the day goes on, but is there the next day, get it checked as soon as you can – ask your GP for a referral to a rheumatologist. The quicker you get on to it, the easier it will be for you down the track.”

Reproduced thanks to Arthritis Australia.

FEATURE

ARTHRITIS MATTERS / SPRING 2012

AGEING AND ARTHRITIS:

Exercise

A-Z

Staying active is an important part of arthritis management. Regular exercise helps keep your muscles strong and joints flexible, reduces symptoms of pain, stiffness and fatigue, and decreases the chance of other diseases such as cancer, heart disease and diabetes. Additionally, regular weight-bearing exercise, strength training (using weights) and balance exercises play a vital role in osteoporosis prevention and management. Include some form of exercise into your daily routine, ideally a combination of exercise for fitness, muscle strength, balance and flexibility. Ask your doctor or a physiotherapist for advice on an exercise program that is suitable for you.

of health maintenance

rthritis, covering a range of conditions with varying symptoms, can easily dominate your health concerns. However, as we age other health issues can arise. Being familiar with the common considerations for older adults will help you take control of your health as you move into your 50s, 60s and beyond.

Avoid falls

Breast screening

The risk of falling and injury increases as you get older. Falls are more likely in people with poor leg muscle strength, poor balance or poor eyesight. People living with a chronic condition, such as arthritis, have a greater chance of falling. For someone with osteoporosis, even a minor fall or injury can lead to a fracture. However, falls can be prevented. Refer to the article on pages 18-19 for strategies on how to decrease your risk.

After turning 50, it is recommended that women have a mammogram every two years. Be familiar with the look and feel of your breasts and consult your GP if you notice any changes. BreastScreen NSW provides free screening mammograms to detect breast cancer for women aged 50 to 69 years. For more information, call 13 20 50 or visit the BreastScreen NSW website: www.bsnsw.org.au

Blood pressure

Cholesterol

Have your blood pressure checked regularly. If your blood pressure is high, your doctor will suggest lifestyle changes or prescribe medication to reduce your risk of developing other conditions, such as heart disease.

There are two types of cholesterol – ‘good’ cholesterol and ‘bad’ cholesterol. A high level of ‘bad’ cholesterol in the body is a risk factor for various health problems, such as heart disease. Your doctor can check your levels and advise you on how to lower your cholesterol if it is high, which may include a combination of lifestyle changes or medication if required.

Bone density Your GP will assess your risk factors for osteoporosis (e.g. age, medical history and lifestyle factors) before referring you for a bone density test, which measures the strength of your bones.

Bowel cancer All Australians aged 50 and over are encouraged to undertake bowel cancer screening every two years. There is now a simple bowel-screening test available through participating pharmacies that can be done in the privacy of your home. If you notice any changes in your bowel routine seek advice from your GP.

Dental care Prevention of dental disease is linked with overall good health and is especially important in the management of some forms of inflammatory arthritis, such as lupus, scleroderma and Sjogren’s syndrome. Visit your dentist every six months and make a habit of brushing twice a day and flossing to remove plaque. If you have dentures, clean them thoroughly each day and have your dentist check them every two years. Ask your pharmacist about products that can help with dry mouth, if you experience this symptom.

Genetics If diseases such as cancer, diabetes, heart disease or stroke run in your family, make sure your GP is aware of your family history so that appropriate screening tests can be arranged. Make the lifestyle changes required to reduce your overall risk.

Hearing Diabetes A person’s risk of developing type 2 diabetes increases with age, particularly if that person has a family history of diabetes, is overweight or has high blood pressure. Your doctor can assess your level of risk for developing type 2 diabetes and may recommend a fasting blood sugar (glucose) test.

Diet The key to ageing well and keeping weight gain at bay is to balance your energy needs, that is, energy in (calories consumed) needs to equal energy out or the amount of energy you need to complete your daily activities. Choose a variety of foods and eat a diet rich in fresh fruit, vegetables, legumes, wholegrains, fish and lean meat, and low in sugar, salt and saturated fats. Include three to four serves of calcium-rich foods each day to help prevent or manage the effects of osteoporosis. Seek the advice of your doctor or a dietitian, if you have specific weight management or dietary needs.

Hearing loss is a natural process of ageing, with many people over the age of 50 showing some signs of hearing loss. Wax build up can also cause hearing loss and this is easily fixed. A regular audiogram (hearing test) makes sense as you age. If your hearing has deteriorated, your doctor can refer you to an audiologist for testing and advice.

Osteoporosis Women over 50 years are at a greater risk of developing osteoporosis. Men are also at risk as they get older. Having certain chronic conditions, such as rheumatoid arthritis, and long-term use of corticosteroid medicines can also increase your overall risk. Exercise, adequate calcium intake and vitamin D are important factors for maintaining healthy bones. Seek advice from your GP on how to reduce your chances of osteoporosis and be vigilant about preventing falls if a diagnosis has been confirmed.

Pap smear Pap tests are recommended every two years to detect the development of cervical cancer. Continue to have regular pap smears, even if you have had the cervical cancer vaccination.

FEATURE ADVETORIALS

Prostate check

Vision

If you are over 50 you should be discussing prostate health with your GP, who will be able to determine whether you require testing.

Some forms of inflammatory arthritis can affect a person’s eyes and vision. Age can also have an impact on your eyesight. Glaucoma can start showing from the age of 40 and cataracts and macular degeneration can also develop in later years. Make sure you have regular eye checks so that your prescription glasses can be monitored and any other visual changes are detected early. See your doctor or eye specialist for more information.

Skin check The likelihood of skin cancers increases as you age so ensure you have your skin checked every year or so, especially if you work outdoors, have a fair complexion or have suffered from sun burn. Check your skin for unusual moles or freckles and see your GP, who may refer you to a dermatologist, if you notice anything unusual.

Stay connected To age well and maintain your independence you need to remain interested in others. Keep in regular contact with family and friends. Join a social or interest group, discover new hobbies and explore opportunities for making new friends. Our branches and support groups are one way of remaining socially active; contact the Arthritis NSW office to find a group near you.

Testicle check

ARTHRITIS MATTERS / SPRING 2012

Weight gain As you age, changes in your hormones and level of physical activity can result in unwanted kilos. Research shows that being overweight or obese can increase your risk of developing osteoarthritis. For every kilo of weight a person is carrying above their ideal weight range, an extra two to three kilos of force or stress is exerted on that person’s weight-bearing joints, particularly the knees. Prevent excessive weight gain by maintaining a balanced and healthy diet, controlling portion sizes and finding time to exercise.

Things to remember:

Check regularly for unusual thickenings or lumps in the testicles and consult your doctor if you are concerned.

Unhealthy habits

Smoking is a risk factor for developing osteoporosis, as well as a range of other health conditions such as cardiovascular disease and lung cancer. Ask your doctor about how to quit and sources of support. Alcohol also needs to be treated with respect, particularly if you have been prescribed certain disease-modifying anti-rheumatic medications by your rheumatologist.

Men and women should see their doctor for regular * medical check-ups and individualised treatment advice.

creening tests help doctors to detect many diseases S in their early stages.

You may need other tests not listed here, depending on your personal risk factors or family medical history.

Reproduced and adapted from an article first published in Intouch magazine, Summer 2011, with permission from Multiple Sclerosis Limited. ADDITIONAL REFERENCES Better Health Channel. Health checks for men; and health checks for women [fact sheets]. Available from the Better Health Channel website: http://www.betterhealth.vic.gov.au

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Diabetes Australia. Type 2 diabetes [webpage], accessed 10 August 2012, http://www.diabetesaustralia.com.au/Understanding-Diabetes/What-is-Diabetes/Type-2-Diabetes/ Osteoporosis Australia. Stop the next fracture: Consumer guide – managing osteoporosis. Sydney: Osteoporosis Australia, 2008.

OSTEOPOROSIS

FEATURE

OSTEOPOROSIS AUSTRALIA

Stopping the wobbles….

ARTHRITIS MATTERS / SPRING 2012

WHY WE ALL NEED GOOD STABILITY

CALCIUM POSITION STATEMENT

n recent times the media has highlighted research that raises the possibility of an increased risk of heart attack as a result of taking calcium supplements. This has created some concern and confusion in the community regarding the safety of their use. In an effort to alleviate this, Osteoporosis Australia released a new position statement on calcium supplements in June this year. A full copy of the position statement is available on the Osteoporosis Australia website www.osteoporosis. org.au/health-professionals/researchposition-papers/ or by requesting one from the Arthritis NSW office. However, in summary the main points from the position statement are (1):

Adequate calcium intake is needed to decrease or prevent bone loss and fracture.

Depending on age or sex a recommended daily intake (RDI) of calcium of 1000 – 1300mg is recommended.

The best way to achieve the RDI of calcium is through dietary intake.

EXAMPLE 1

CALCIUM VALUE (MG)

Dairy is the best source of calcium. Other food sources include salmon, sardines and tofu. The following table gives two examples of how an intake of 1300mg of calcium can be achieved in a day (2).

+ +

If the RDI of calcium is unable to be achieved through diet then a calcium supplement may be needed.

Calcium supplements are safe for most people; however, some research has suggested a possible increase in heart attack risk with their use. Other research does not reach the same conclusions. Ongoing research is being conducted in this area.

EXAMPLE 2

CALCIUM VALUE (MG)

250 ml calcium fortified milk

353

200g plain yoghurt

390

2 slices cheddar cheese

327

100g canned sardines

380

200g low fat yoghurt

316

250 ml regular milk

285

100g tinned red salmon

220

100g calcium set tofu

150

100g soy beans

100g spinach

1 medium orange

Total

1293

Total

1290

RECOMMEND: In light of the current findings Osteoporosis Australia recommends:

A daily supplement of 500 – 600mg of calcium with vitamin D for those who do not reach an adequate daily intake of calcium.

That people with osteoporosis, or on osteoporosis medication, who are taking calcium supplements should not stop taking them without consulting with their doctor.

Those people with heart disease or increased heart disease risk should discuss the use of calcium supplements with their doctor before starting or continuing the use of supplements. The relative risks and benefits of their use can then be evaluated.

Osteoporosis Australia concludes their position statement by stating that ‘taken as currently recommended, combined calcium and vitamin D supplements remain both safe and effective for the majority of people who require them.’

What is stability?

hysiotherapist Anna-Louise Bouvier is an Arthritis NSW Ambassador. As well as being the Today Show’s Feel Good Physio, she is the creator of Physiocise, a system of classes for bad backs and wobbly bodies that has taught thousands of people how exercise and education can help Stability is the ability our body has of maintaining its equilibrium even their aches and pains. If you feel a bit wobbly on your feet occasionally and your body doesn’t seem to be as strong as it once was, you are not alone. Research has found that one in three people over the age of 65 will fall every year. Once you have one fall you have an 80% chance of falling again in the next year, sometimes because the first fall may have injured something, but often because your confidence has been affected. Once you understand why a lot of people get a little wobbly as they get older it’s relatively easy to make some simple changes to your routine and slot in some things called stability exercises that can not only prevent you feeling unsteady but can also take the load off your joints and ease aches and pains.

as things change around us. Imagine you are standing up and someone pushes past you in the street. If you have good muscle stability you will instantaneously but subconsciously turn on the muscles in your trunk, hips and legs to absorb those forces and not fall over. If you do not have good stability, even a small push may cause you to lose your balance and fall. Good stability is the result of communication between various systems in our body. It requires the nervous system to tell our brain where we are in space. This comes from input from our sight, sound and touch and also from our ligaments and joints. These nerves then send signals to our muscles to respond when we are in danger of losing our position. As we get older our eyesight deteriorates, we don’t hear as well, our reaction times slow, our muscles are not as strong and arthritis may affect the ability of our joints and ligaments to send and receive messages to the brain. All of these things impact our stability. Left: Anna-Louise Bouvier helping a client

REFERENCES 1. Osteoporosis Australia. Statement on calcium supplements. June 2012 2. Osteoporosis Australia. Calcium, Vitamin D & Osteoporosis. A Guide for Consumers (4th edition). 2010

FEATURE

ARTHRITIS MATTERS / SPRING 2012

Are you losing stability? Toddlers and waddlers As we age people often start to move differently to compensate for not having good stability. Think about a toddler as they are learning to walk. Because they fall over a lot they compensate by walking with their legs wide apart and grabbing onto things to help balance. This widens their base of support to make it easier to balance and less likely that they will fall. Now think about some of the older people you know. They start to do the same thing. They stoop down a little to get closer to the ground, they walk with their legs wider apart often swaying from side to side as they walk, and they tend to use railings for balance. They turn into waddlers! You might not be a waddler yet, but you may be starting to exhibit some subtle signs that you are losing your stability without realizing it.

How can you test your stability? Why is good stability important? Good stability means you:

* Are less likely to fall if someone pushes past you ope better with uneven pavements and changes in * Csurfaces * Can go up and down stairs with confidence * Cope better with walking in crowded noisy places * Can get in and out of cars easily * Can get up and down from low chairs * Are fine to walk in dim light * Feel more confident when you move your joints will be more supported and less likely * toAndwear and ache

Try this simple test. Stand in your kitchen with supportive shoes and put one hand on your kitchen bench for balance. Try and lift one leg up so the hip and knee is at about 90 degrees and hold it there. Keep the other leg slightly unlocked and try not to grip your feet or toes.

How do you rate? Exceptional: you can let go of the bench, stand on one leg, close your eyes and stay balanced for 10 secs

Excellent: you can let go of the bench, stand on one leg and balance with eyes open for 10 secs

Good: You can keep one finger lightly on the bench and balance for 5 secs

Not so great: You need to keep a firm grip on the

bench and you are having trouble keeping the leg up and you are wobbling as you do it

Time for exercises: You really can’t get the leg off the ground without losing your balance

How can I improve my stability? MOST PEOPLE FIND LEARNING AND REMEMBERING NEW EXERCISES HARD, SO THESE ARE SOME SIMPLE THINGS YOU CAN INCORPORATE INTO YOUR DAY Do the old things better

Link new habits to old habits

Standing * Stand evenly on both feet, don’t lean

There are certain habits in your day that you never have to think about. Having a cup of tea in the morning or brushing your teeth for example. The trick to adding and maintaining a new exercise habit is to link it to something you already do.

on benches or furniture for support and never slump down onto one hip. Over time the muscles in your core, legs and pelvis will get stronger. Keep repeating “two legs” to remind yourself.

Walking * There are two things to remember

when walking. First imagine you are in very a narrow corridor. Whenever you walk don’t let your hips waddle from wall to wall, instead feel yourself light and straight on your legs. Secondly, imagine you have a miners lamp on your head. Keep it pointing directly ahead not down to the floor. This keeps your head up and activates muscles in your neck and trunk, which helps keep you stable.

Sitting to standing * Whenever you get out of a chair

try not to use your arms to push you up. Put your feet firmly on the ground, lean forward from your hips and push through your heels to help activate your muscles in your legs and buttocks, to bring you up. Over time this is a wonderful stabilising and strengthening exercise.

Whenever you go to boil the kettle, hold onto the bench and practice standing on one leg for about 10 seconds. Then swap and do the other leg. Continue until your kettle has boiled. As you get better you can try and do it without holding on to the bench. Later you can try and lift and lower the leg 10 times to help strengthen the hips and core.

Add a little challenge To add more strength and stability you can challenge yourself a little more. Instead of walking on the pavement walk on the grass and uneven ground. Try going for a bush walk or a walk on the beach. If you can do it safely avoid holding onto railings as you go up and down stairs. It’s easy to just use them out of habit rather than need. These things are great ways to get your brain and body reacting to different challenges. For more ideas about keeping stronger and more stable as you age you will find Anna-Louise’s Happy Body Series in ABC Shops and Centres and Online. The Happy Body Stable and Strong 60s and 70s has a terrific routine for stability you can try as you follow along. It also has a walking routine, a pelvic floor section and lots of ideas for taking the load off your back and body.

STAYING ACTIVE

ARTHRITIS MATTERS / SPRING 2012

Staying Active and on Your Feet FALLS PREVENTION IS EVERYONE’S BUSINESS!

Margaret Armstrong: NSLHD and CCLHD Coordinator NSW Falls Policy Lorraine Lovitt: Leader, NSW Falls Prevention Program, Clinical Excellence Commission.

DID YOU KNOW THAT A THIRD OF PEOPLE AGED OVER 65 YEARS WILL HAVE A FALL EACH YEAR? Falls can happen in younger people as well, especially if you have sore and stiff joints that can make movement difficult.

Falls can be serious too – leading to loss of confidence and activity after an injury and in worst cases, fractures, hospitalisations and death. The good news is that we can all ‘fall proof’ ourselves. As we move into the warmer weather of Spring and become more invigorated, now is a good time to think about your safety. There are number of well known factors that can increase your chances of having a fall – so dealing with these can make you safer on your feet.

*HEALTHY EATING:

Eating a balanced diet is important for energy, good health, strong bones and muscles. Having enough calcium and vitamin D keeps bones and muscles strong. Eat three good meals a day, or regular smaller meals and snacks to keep up your energy.

*EYESIGHT:

Changes in eyesight as you get older can increase the risk of a fall. Have your eyes checked regularly, protect your eyes from glare, install a nightlight in the hall or bathroom, and allow time to adjust to new glasses. If you wear bior multi-focal glasses, be more careful as you walk and use stairs.

*MEDICATIONS:

Some medications can make you dizzy or drowsy, especially those used for anxiety, sleep difficulties or depression. Have your medications regularly reviewed by your doctor and always mention any herbal or supplementary medicines you take, as they can react with prescribed drugs. Talk to your doctor about any side effects that you may have.

SAFE FOOTWEAR:

Ambassador for Ageing, Noeline Brown, promoting healthy eating.

Wearing correctly fitting and supportive shoes and slippers can prevent falls. Ask your podiatrist, physiotherapist or occupational therapist about the best type of shoe for you. Always seek treatment for foot problems or pain.

STRENGTH AND * BALANCE EXERCISES:

FALLS PREVENTION FOR FURTHER * * IN PUBLIC PLACES: FALLS PREVENTION

Staying physically active is one of the best things you can do to keep a ‘spring’ in your step. Staying active keeps muscles strong, and joints more mobile and stable. Good exercises to prevent falls are those that include strength and balance such as Tai Chi, Yoga, Pilates, strength training and home exercise programs. Water based exercises can get you started and feeling more mobile.

Report any slip or trip hazards, such as uneven footpaths, poor lighting or spills in shops, to the relevant authorities. Be aware of potential hazards such as cyclists, joggers, small children and animals when out and about. Use your properly adjusted walking aid when outside, and do not rush to cross roads or catch public transport.

HOME SAFETY:

It is important that your home and surrounds are as safe as possible. Loose rugs, slippery floors, poor lighting, spills, cords, clutter and mossy paths are all things that can increase falls. An occupational therapist can advise how to make your home safer and easier to manage with your arthritis as well.

FALLS IN HOSPITAL:

Hospitals are unfamiliar places and most falls can happen around the bedside while getting to the toilet. It is important to familiarise yourself with your room, ward and bathroom. Always use your call bell for assistance if you do not feel safe on your feet. Having safe shoes, the right glasses and your usual walking aid with you can make you much safer.

INFORMATION:

The ‘Active and Healthy’ website:

For web-based information on suitable exercise classes close to you, plus falls prevention safety tips and falls risk fact sheets – visit the NSW Ministry of Health, Active and Healthy website: www.activeandhealthy.nsw.gov.au

The ‘Staying Active and on your feet’ booklet.

Call Arthritis NSW for a copy or visit the Active and Healthy website listed above..

OPINION

ARTHRITIS MATTERS / SPRING 2012

I want to be forever young TIPS AND TRICKS FROM PEOPLE WITH ARTHRITIS Staying young and fit is a battle we all face, whatever age we may be, particularly when living with a chronic condition like arthritis. We asked some of our members how they stay young and active. You may be quite surprised at their responses.

Jennie Roe Michael Gill

Severe rheumatoid arthritis with fibromyalgia Staying motivated takes a lot of work. What helps me to take control of my condition is to be well informed from research, join online chat groups, attend a specialist gym twice a week, pay attention to pain management and try and socialise wherever possible. I think the issue is not about staying young but maintaining social engagement and regular communications with family and friends. Set a day aside each week to simply have fun and enjoy the world. Having arthritis is not the end of the road. The first 12 months are terrible but there is hope. Once you have your condition stabilised, you will discover there is a different life out there, a more compassionate life and celebrate the support from your partner and friends.

Rheumatoid arthritis & osteoarthritis A few years ago, I had a choice: let RA dominate my life or take control. At the time, I was piling on weight and was feeling very sorry for myself. When I turned 50, I realised that I could (hopefully) live up to another 50 years. With a wonderful husband and family, I realised I had a lot to live for – and I wanted to LIVE my life. This was a turning point for me. My entire outlook changed for the better and I never looked back. I also set about learning how to live with a chronic condition and sought advice from a physiotherapist on exercises I could do to keep all my joints mobilised. I also do aqua aerobics which has allowed me to shake off a lot of excess weight and tone up quickly without stressing my joints at all. However, the best medicine to keep me young is where I live at the coast. There is nothing better for the soul than to take the dogs for a gentle walk on the beach, feel the warm sun on my back, hear the waves break and breathe in the sea air.

Mary Walker

Marina Lawrence

I always keep positive and have a positive attitude as negative thoughts can be consuming. I believe that regular exercise helps too, such as walking, cycling, Tai Chi and warm water exercises and most importantly stay in the PINK! Pink is a happy colour so you will always see me dressed in pink and surrounded by pink things.

I stay motivated by knowing my limitations with my condition. I understand that it’s not the end of the world and there are still plenty of things I can do with my arthritis. I always set goals to achieve and do things you enjoy most, you’re only as old as you want to be. Don’t let anyone ever say it’s impossible, there is always a way to reach your goal, you just have to believe in yourself.

Osteoarthritis

Rheumatoid arthritis

Rosemary Hume

Rheumatoid arthritis, lumbar spondylolisthesis & osteopaenia I set up goals that are achievable for me such as keep working part time as long as I am able. As a preschool teacher working 2 ½ days a week, being involved with young families has helped me feel young and built up my physical fitness. I also started a vegetable garden which has been a source of pleasure to me. I have tried a variety of exercises in the past like yoga, the gym, walking and warm water exercises. I still walk about three times a week and enjoy bush walks with a group. I also go to the pool twice a week and am also going to try Tai Chi, since hearing of its benefits for arthritis. What keeps me motivated or inspired is a quote I heard which is “I was sad because I had no shoes, until I saw someone with no feet.” I will always remember that there is someone worse off than myself.

Lorna Fitzpatrick

Rheumatoid arthritis I like to keep busy, like enjoying doing varied crafts, learning new ones and painting. I’m also now teaching Folk Art and work one day a week at the local community visitors scheme. Attending classes is a great way to forget pain and discomfort while learning new skills and helping others with their self development. Best thing to do is be positive and do fun activities. Laughter and spontaneity are vital in remaining active and help to maintain youth. Laughter is a wonderful way to relieve pain.

Elisabeth Foley-Teuben

Rheumatoid arthritis Life has improved by living at my own pace. I fight the black dog of depression by taking morning tea and lunch in the sun. Those little sunny breaks helps to boost the brain chemicals we need to stay positive! I also began a ‘gratitude’ file on my laptop. Typing is easier than writing on paper. A couple of times a week I reflect on the good things in life and realise there could be more difficult situations and that keeps me going.

Vickie Walker Severe rheumatoid arthritis & mild osteoporosis I like to keep busy by writing short stories and poems, completing crosswords and reading. Each day I try to find something positive, even if it’s simple like a bird singing or the sun shining. This is hardest when I am in pain, but the more I practice, the easier it gets. Some days, I know that is it debilitating, depressing and souldestroying and I look upon my disease as a battle, a war between arthritis and myself and decide it will not win.

Carol Vleeskens Osteoarthritis

Sometimes it is really hard to stay positive about my osteoarthritis, especially when the barometer drops and the joints twinge and ache. I try to stay as active as possible both physically and mentally. I have an exercise regimen that works for me and I have put my skills and knowledge into a cause which I am passionate about. I try and take some time to ‘smell the roses’ and have me time as well.

KIDS’ CORNER

ARTHRITIS MATTERS / SPRING 2012

Children’s PUZZLES sudoko (ANSWERS PG 27) Support CONTACT LIST Western Sydney Alex Roache P: 02 4576 6389 M: 0418 127 451 airoache@tpg.com.au

Outer West Jackie Janosi or Graeme Andrews P: 02 4782 6841 jackiejanosi@tpg.com.au

Southern Sydney Leanne Minny M: 0409 223 212 mlminny@optusnet.com.au

Central Coast Kate Dives

Abel to fight arthritis Like most eleven year old boys, Abel loves to play sport. All sport. Cricket, AFL, soccer, tennis, running, swimming, you name it! But unlike most other boys his age, after successfully running his 3 kilometre cross country, he had to go into hospital to get his ankle drained and injected with steroids.

At just two and a half years old, Abel was diagnosed with juvenile idiopathic arthritis (JIA). It took time, however, to fully understand what he was going through. As his mother Marlies recalls, “Abel had never been a happy baby. He was born a month early and being tiny, we hoped it would pass but it didn’t. He was crying a lot and didn’t want to walk a lot of the time.” After thinking he had inherited her “bad feet” she was hoping to get a referral to a podiatrist. Instead, the GP noticed a swollen knee and after a few weeks, he was diagnosed with JIA. She was initially relieved that there was, in fact, something wrong with him. “I was so happy to know why he was behaving the way he did; that he wasn’t acting but that he actually was in pain and was feeling miserable,” says Marlies. “Abel had arthritis in one knee, one ankle and one elbow. Pretty much straight after he was diagnosed he went to hospital to have the inflammation fluids drained and injected with cortisone. The relief it

gave him was significant. He started walking again and was less cranky. In his life, he has had about 15 hospital visits for these treatments.” But it certainly doesn’t slow him down. His mother describes him as a stubborn and determined young man who does anything he sets his mind to. “I do remember one soccer season that his arthritis was really bad. Every time he kicked the ball he would scream in pain. That is the only time that I couldn’t see him suffer any longer and carried him off the field as he was screaming and kicking and wanted to go back on.” For the past few years, Abel has attended Camp Footloose and loves the fun and challenging outdoor activities that are offered. “I don’t mind having arthritis as I don’t see it as a disability but more as a challenge,” he says. “An advantage is I get to go on a 5-day camp every year and meet up with other people who have arthritis. I also get 5 days away from my family and I love that! The activities are fun and I’m always up for a challenge!”

P: 02 4328 2727 M: 0402 826 027 Jodie Lincoln P: 02 4328 3278 Jodiel9@bigpond.com

LATEST NEWS ON THE NEW MODEL OF CARE FOR PAEDIATRIC RHEUMATOLOGY IN THE NSW HEALTH SYSTEM We have been keeping our readers up to date over the last year on development of a new Model of Care for diagnosis and treatment of children with juvenile idiopathic arthritis (JIA) and other associated rheumatic conditions. We know from feedback from parents that there are many frustrations in obtaining a definitive diagnosis of arthritis for their child. In some instances, it has taken between 1-2 years before a child was formally diagnosed. The Paediatric Rheumatologists with whom Arthritis NSW works closely, are also frustrated that the level of service in NSW falls way behind that of other states, as well as international benchmarks. To address this, Arthritis NSW has been part of a Juvenile Arthritis Working Group facilitated by the NSW Agency for Clinical Innovation over the past two years to develop a new model of care to provide adequate staffing for paediatric

rheumatology services. This will improve early diagnosis and long term health outcomes for children. The new model was presented to the Annual Musculoskeletal Forum in May, held at Royal Prince Alfred Hospital. As part of the presentation, Michelle Peacock, one of our parents whose child has JIA, shared the story of her child’s patient journey through the health system. Michelle spoke from the heart and touched everyone with her story. We are grateful to Michelle for her willingness to be part of the forum. There is still much work to be done in negotiations with the NSW Health system about funding for the costs associated with the new model. Arthritis NSW remains committed to seeing the model implemented and will continue working with the Agency for Clinical Innovation and the NSW health system to make the model a reality.

FEATURE

ARTHRITIS MATTERS / SPRING 2012

EZY-CARE GARDENING

by Jamie Durie

Gardening is a great way for people of all ages to keep healthy and active. However, if problems such as arthritis and joint pain affect your mobility and stamina it’s necessary to explore new ways of enjoying your outdoor room. The key is adapting the way you garden to suit your body, rather than the other way around. With this in mind, I have created a list of tips on easy care gardening to ensure your work in the garden is as pain free and pleasurable as possible.

SLOW DOWN Having arthritis or other musculoskeletal conditions doesn’t mean you need to stop gardening, but it does mean re-considering the way you do things. Instead of launching into a new garden project like you may have done in the past, think about how you can break it up into smaller, more accessible parts. Take regular breaks to rest your body and enjoy the fruits of your labor.

CHANGE IS GOOD Consider and change your gardening habits if necessary. Instead of bending down to sow seeds, try sitting on the ground and sowing them from there. Or take a folding seat with you when watering the garden instead of standing. Changing what you grow can also be a way of reducing your garden workload. Think about growing tough, easy care plants that still look good but require less input from you than their high maintenance cousins.

easy to install and can be placed on a range of surfaces. Building a raised bed out of masonry is more expensive but means you can customise the bed to suit the space. The other benefit of this style of garden is that the wall can be built wide enough to function as a seat.

LOOK SKYWARD Both a space saver and a knee saver, vertical gardens are a great solution for less mobile people. Patio by Jamie Durie has a range of cost effective garden products such as the vertical wall hanger, which is made of fabric and consists of six planting pockets, or chic ceramic hanging pots for your balcony or verandah. Visit www.bigw.com.au/jamie-durie for more product information and to buy online. Having arthritis and other musculoskeletal conditions does not mean you have to stop gardening, it just means you need to garden smarter. Know your limits, be open to change, use appropriate tools and most importantly, don’t forget to stop and smell the roses!

USE THE RIGHT TOOLS Invest in tools that suit your restricted mobility. For example, using long handled digging tools will reduce the amount of bending and kneeling you have to do. If you have weakened grip in your fingers and hands try using secateurs with a ratchet mechanism and/or finger loops in the handles. There are a wide range of easy grip and long reach tools available, suitable for a range of restricted mobility issues. Visit www.connection2nature.com.au for more information and to buy online.

BRING THE GARDEN TO YOU Raised beds are a great way to reduce bending and kneeling in the garden. Especially suitable for high maintenance plants and vegetable gardens, they can be as simple as a metal flat pack structure available from your local landscape suppliers. These are relatively cheap and

MEMBERS NEWS

Arthritis NSW Member News Welcome to the new “Members News” section of Arthritis Matters. Our members news section is an exclusive section just for members of Arthritis NSW and for non-members to better understand what Arthritis NSW can offer. We will exclusively speak about: pdates on new initiatives for * Umemberships

* Fundraising updates ews from local branches and * Nsupport groups * water and * WTaiarm Chi timetables In memorial gifts

We also welcome any feedback or comment you may have on Arthritis Matters. You can e-mail at info@arthritisnsw.org.au or contact us on 1800 011 041.

Arthritis NSW Annual Report now available The 2011/12 Annual report is now available. You can view a copy on our website www.arthritisnsw.org.au or contact 1800 011 041 for a copy to be delivered to your door.

WHY SHOULD YOU BECOME A MEMBER OF ARTHRITIS NSW?

Arthritis NSW has a membership program for people with arthritis or osteoporosis and also their carers. By becoming a member you will have access to the latest information and research on arthritis and osteoporosis, health and fitness programs targeting arthritis or osteoporosis, selfmanagement programs to deal with your condition and the opportunity to socialise and network with others who have the same condition. You will also be providing support to Arthritis NSW, an organisation which receives very little government funding, helping us to continue to provide information, services, research and advocacy to the NSW community.

Becoming a member is easy. Just visit our website at www.arthritisnsw.org.au or contact 1800 011 041 to become a member over the phone.

Memorial Gift We thank the family and friends of the following people who have marked their passing by making a donation to Arthritis NSW: MR GARNETT NORMAN DOYLE MALLON MRS HEDGES MRS EDITH EURELL MR BRUCE EDWARD HOWLETT We would also like to acknowledge the generous donations made by members of Arthritis NSW branches in memory of their fellow members and dear friends: MRS KATH LEE (HOLROYD)

ARTHRITIS MATTERS / SPRING 2012

Fundraising News UPDATES: CITY TO SURF It was an extremely hard slog for everyone who participated in this year’s City 2 Surf, however the hard work paid off with over $16,000 raised by our fantastic fundraisers. A special thanks goes to Simon Mathewson, Kyle Eddy, Di Spragg, Rob Novotny, Annalise Klein, Freya Norman, Leon Goltsman, Aaron Neilson, Elise Roberts and Stephen Ryan for helping to raise that money.

DELICIOUS MEALS HOME DELIVERED

Most meals are Tick Approved and Gluten Free WINNER 2011 NSW SEN ACHIEVEMENT IORS AWARDS Outstandin g Achievement In Health & Wel lbeing

WYATT SONG’S FUNDRAISING Congratulations to Wyatt Song for swimming the English Channel in August and raising money for rheumatoid arthritis. He has raised $6,500 so far. It isn’t too late to donate to his swim. Just go to www.wyattsenglishchannelswim. gofundraise.com.au and make a donation.

SAVE THE DATE:

Afternoon tea with the Governor 2013 Interested in attending an afternoon tea with the Governor in 2013? We will be holding the 2nd annual afternoon tea at the Queen Victoria Building Tearoom on 12 March 2013. Cost is $60 per person or $500 for a table of 10. If you are interested, please contact us on 1800 011 041.

Best Value Healthier Meals Home delivered! Phone now for your FREE menu

Call 1800 801 200 or order online at www.tlc.org.au

CERT TM used under licence

The winner of the Arthritis NSW feedback Survey is: Mrs. J Cuthbertson, Carlton NSW. She won lifetime member with Arthritis NSW (Valued at $400).

Sudoko Solutions (from page 23)

William’s Walk 2013

MRS JUDITH MARGARET HILTON (MILTON/ULLADULLA)

We have confirmed two locations and two dates for William’s Walk 2013.

We are grateful for this support and join in the commemoration of the lives of these valued members of the community and our branches.

Saturday 27th April 2013 Bondi to Bronte (and back again) Sunday 28th April 2013 Penrith Regatta Centre To register your interest, please visit: arthritisnsw.org.au/williams_walk2013

MEMBERS NEWS

WORKING TO FILL LIVES WITH MORE YEARS AND YEARS WITH MORE LIFE.

STARTING A SUPPORT GROUP

Out of Joint NENA DOYLE

BRANCHES AND COMMUNITY LIAISON OFFICER

Arthritis NSW is pleased to announce the formation of its newest Support Group. Eloise Buggy, Self Management Program Development Officer and I travelled to Tamworth to deliver an education session and to pursue the possibility of starting a support group. With the help of Marina Lawrence and Alison Burgess, both Tamworth girls who volunteered to be co-conveners, the Tamworth S.G is up and running. The support group meets every third Tuesday of each month at 5 pm at Tamworth Community Centre, Darling Street. The contact details are under branch listing of this magazine or you can phone Arthritis NSW 1800 011 041 for more information.

As one of the most diversified companies in health care, Pfizer is committed to improving health and wellbeing at every stage of life. Today’s Pfizer is a leader in human and animal health, primary and specialty care, biologics and pharmaceuticals, with a robust portfolio of vaccines, nutritionals and consumer products.

diseases, with a renewed focus on areas that represent significant unmet health needs, such as Alzheimer’s, diabetes, inflammation and immunology, cancer and pain.

The 2012 AGM and BAM (Branches Annual Meeting) will be held on 21st November at Ryde Eastwood Leagues club. If you are attending, please contact head office with your intentions for catering purposes. The closing date for Nominations for Honorary Life membership is the 5th October. All nominations must be submitted on an Honorary Life Membership form and must include reason for nomination. Forms can be obtained by phoning head office.

By working together, we can change the lives of more people in more powerful and effective ways than ever before.

Most importantly, we’re bringing together the world’s best scientific minds to take on the world’s most feared

Nena Doyle pfizer.com.au

ARTHRITIS MATTERS / SPRING 2012

Have you considered joining or starting a support group?

Arthritis NSW has a long history of a strong Branch and Support Group network through the state. The organisation relies on these groups for raising awareness about arthritis issues and providing local support to members. They are a valuable outreach service. Support Groups (or Branches) are important support structures for our members. They provide an opportunity for:

* sharing experiences * giving and receiving mutual support xchanging information (but members are discouraged * efrom sharing or providing advice about medicines) * social interaction * creating friendships * finding new ways to solve problems * promoting self help (or self management) romoting the information literature and courses * pavailable from the Sydney office All people who are financial members of Arthritis NSW are eligible to belong to a Support Group or Branch, either in their own area or another area if they so wish.

If you are interested in starting a support group in your area either during the day or after work at night, please contact Nena Doyle on 1800 041 011 or ndoyle@arthritisnsw.org.au

WORKING TOGETHER FOR A HEALTHIER WORLD. 28

Pfizer Australia Pty Ltd (ABN 50 008 422 348) 38-42 Wharf Rd, West Ryde, NSW 2114

LOCAL

ARTHRITIS MATTERS / SPRING 2012

LOCAL HAPPENINGS

Taree

Nowra

Lithgow

Ulladulla-Milton

Taree ladies had a Christmas in July lunch at the Aquatic Club. Eighteen members enjoyed lovely seafood meals overlooking the beautiful Manning River. A most enjoyable day was had by all. Also, eight ladies have completed an eight week exercise program which is an initiative of the Manning Base Hospital. This program has been designed for anyone experiencing difficulties with balance or perhaps have had a previous fall, a fear of falling or to help prevent a fall in the future. It is run on a small group basis by experienced health professionals with different topics being discussed each session and is also based on an individualised exercise regime. Topics that are covered include: why falls happen, reducing hazards, safe foot wear, vision and nutrition, home risk assessment and exercise for balance and strength. We are assessed beforehand so our progress can be followed. We also have our exercise book that we can follow each day and record our progress which at first was slow but we did improve. Now we can incorporate these exercises into our daily lives. It’s just helping ourselves. This is a free program. For more information contact Rod or Jason re: Stepping On Program Ph. 6551 3839.

Congratulations to Jean and Mike Grieve on reaching 63 years of marriage on 4th June 2012. Daisy Diamond celebrates her 88th birthday on 21 May 2012. Gary and Henny went by caravan to Alice Springs for the A’Van AGM. Huge numbers attended the Alice Springs ANZAC Day Dawn Service. There were many young people, children and cadets who were applauded by the RSL members at the conclusion of March.

Our 2011 fundraiser was a Melbourne Cup boxed trifecta. After a lot of hard work by a few members, almost all the 2024 tickets were sold. The winning ticket went unclaimed, raising over $3173.00. Lithgow Chapter kindly donated $250 to our Branch, one of their nominated charities for 2011.

Judy Hilton, of Burrill Lake, on the South Coast, suffered from severe arthritis from the age of 19 until she died recently at age 72. It was her wish for a collection to replace floral tributes at her memorial service. The funds would go towards helping others with the crippling disease.

We would like to congratulate Margaret and Brian Wiliamson who will celebrate 60 years of wedded bliss on October 23rd this year and also congratulations go to Marilyn and Ray Hall for their 20 year marriage. For Arthritis Week in March 2013 we are planning an information table at our local shopping mall. Members are donating their small change to buy food for a hamper as a raffle on the day.

Penrith This branch works as a team and like to contribute time and energy into preparation for things for the trading table, stall and activities for fundraising. Through the year we’ve had: Penrith Library-Knitting squares, cake stalls, each month we have a trading table, bus trips and other activities that come up. We often have guest speakers at our branch meetings. This month it was the ACAT Nepean Co-ordinator information was invaluable to the members. We usually have approximately 23 people at each meeting. Shirley Clow organises the guest speakers. Unfortunately this year we had a sad loss; long time member of Penrith Branch from Springwood Mary Whiticker died on 26 March 2012.

Wollongong The Bunnings Warehouse sausage sizzle raised over $1000 on 3rd June 2012. Ms Susie Roberts, a Civil Celebrant and distributor of posties clothing range will be our guest speaker on September 11th 2012. Susie will donate 10% of sales to the Wollongong Branch. Visitors are always made welcome. Please contact Hon Secretary John Kirk 4297 8281.

Holroyd For our November meeting we will be bringing gifts and auctioning them. We are going to have a raffle and a Christmas hamper and we will have a jar to put loose change in and donate once a year to Arthritis NSW at committee AGM. We will be celebrating Marge Evans 80th birthday at our October meeting. Two bus trips have been organised; to The Entrance on 27th August and to Bowral on 29th October to see the tulips. We are always looking for ideas for fundraising and guest speakers, so if you can help that would be appreciated.

Highlight has been a High Tea with Karen Filocamo, Rob Novotny and 63 guests at the amazing Tea Shack overlooking the magnificent views of Lake Lyall. All enjoyed the many delicious varieties of Asian finger foods, learnt to make origami boxes from hostess and member Swee and had a spin of the chocolate wheel to try their luck. A big thank you to the staff of the Japanese Bath House for donating the food which enabled us to raise $1015 on the day. All proceeds of our fundraising goes towards Camp Footloose and Research. Friendly lunches are enjoyed 2nd monthly on Fridays at varied local venues. It was wonderful to have Nena join us in July and was great to catch up and learn about her busy life. We also met her husband, Terry.

Judy was a long-standing member of the local Arthritis NSW branch. At the branch’s July meeting, Judy’s widower Ray revealed that $764 had been donated by mourners who attended the St Mary’s, Milton service. He presented a cheque and said Judy would have been delighted at the generous response. Ray said it would be wonderful if more cash contributions could help find a cure for arthritis some day. “It is a disease that causes terrible suffering,” said Ray, “although Judy was never one to complain.”

Newcastle At our meeting on 25th July we had Katrina Kennedy come along to explain the benefits of Tai Chi, especially one that was developed for arthritis. Katrina will be holding half hour class starting on 1st August at Mayfield Seniors where we have our meetings. These Tai Chi classes will be held weekly starting at 12.30 pm. Our monthly raffles have raised $177.95. We are very happy to announce that Newcastle support group is approaching its third birthday and wish to thank our members for being supportive in the running of our group.

Parramatta Parramatta Branch’s meeting in July, with a speaker from “BrightSky” was interesting with a display of mostly continence products and a large catalogue for all with an offer of free samples. August will see us “reminiscing” over our Branch’s 36 years and realising how much information and friendship we have shared. In September, Di Spragg spoke on Osteoporosis and we enjoyed hearing the latest developments.We appreciate the support our members give to eachother and to the Committee and wish any sick ones better health soon.

Our classes are expanding with warm water exercise classes now on Mondays and Wednesdays. Tai Chi classes are Fridays and at Treeview Retirement Village on Tuesdays. A big Thank You from everyone, Jo. Red Cross Redi-Plan will be our guest speaker at a future meeting and we are looking forward to learning about this program.

LOCAL

LOCAL HAPPENINGS

BRANCH Blue Mountains * Coffs Harbour *

Corowa Dubbo Eastern Suburbs Hawkesbury Holroyd Kincumber Lismore Lithgow * Long Jetty *

MEETING DATE 3rd Tues 12pm 1st Tues 9.30am Bi-monthly, beg. Feb. 3rd Mon 11.15am Bi-monthly, beg. Feb. 1st Wed 10.30am 2nd Thurs 2.00pm Last Wed 10.15am 3rd Tues 10.00am 4th Wed 10.00am Last Fri 10am 2nd Tues 10am 3rd Wed 11am 1st Thurs 10am

Lower Clarence * Maitland District Milton/Ulladulla Molong Nowra Parramatta Penrith Port Macquarie Quirindi Southern Highlands * Taree Turramurra

4th Mon 9.30am 1st Thurs 10am 3rd Wed 10am 2nd Mon 11am 1st Thurs 10am 1st Mon 1.00pm 2nd Wed 9.30am 2nd Tues 10am 4th Tues 2pm 2nd Fri 10am 1st Friday 10 am 1st Friday 10am

Wagga Wagga * Warilla/Shellharbour * Wollongong Woonona/Bulli Woy Woy * Young SUPPORT GROUPS Albury/Wodonga *

1st Thurs 1pm 3rd Thurs 1.30pm 2nd Tues 10am 1st Wednesday 9.30am 3rd Tues 10am 4th Wed 10.30am, Bi-monthly

Cooma

Macarthur

Ryde

On a cold day in July 2011, 50 Macarthur residents with arthritis attended a seminar organised by Arthritis NSW in Campbelltown. After hearing about different types of arthritis and what support Arthritis NSW could offer to people living with arthritis, it was agreed that a Macarthur Support Group would be formed.

Poems, stories, song and dance featured at our July meeting. Members participated in ‘Arthritis Got Talent’ where Nancy read a story, Mary and Edith contributed poems, Roni Lawrence danced to Come Fly with Me which should encourage everyone to keep moving and stay active! A big thank you to Miss Melissa Denham (Membership Officer, Arthritis NSW) special guest who sang On My Own and Songbird. Melissa, along with Roni, Mary, Edith and Doris then led a sing-a-long where everyone joined in.

Twelve months on, the group has nearly 70 financial members, with over 40 of these being active and attending regular monthly meetings and activities. As well as meeting monthly to hear guest speakers talk about different ways of managing arthritis, two ‘Tai Chi for Arthritis’ classes are held in different areas in Macarthur and a warm water exercise class is being planned in partnership with a local retirement village. Macarthur Arthritis Support Group celebrated its first birthday this week with a visit from Arthritis NSW Ambassador Leon Goltsman, an international karate champion who was struck down with psoriatic arthritis at the age of 25. Leon talked about how he conquered the debilitating effects of his arthritis, overcoming his personal setbacks and gaining greater control of his life. Arthritis NSW CEO Karen Filocamo, presented certificates of achievements to the four co-convenors of the support group, who were thrilled to see over 50 people attend the celebrations. Attached photo below, shows the four co-convenors of the Macarthur Arthritis Support Group with Leon Goltsman and Karen Filocamo.

ARTHRITIS MATTERS / SPRING 2012

BRANCH LISTINGS

During afternoon tea members had to identify members photos from many years ago, and put a name to the face. Then more fun discovering who identified photos correctly! It was a very enjoyable and relaxing afternoon. There were a couple of great ideas for a meeting which Ryde will be trying again. Sincere sympathy to the families of Phyll Russell and Merv Fleming, both long term executive members of Ryde who passed away recently.

Chinese Support Cowra Gilgandra Gosford* Grafton Kids with Arthritis

Social gatherings Warm water ex. only Bi-monthly

LOCATION Katoomba Hospital Education Centre Community Centre 22 Earl St

CONTACT Adrienne: 02 4787 1124 George: 02 6652 7464

Ex Servicemen’s Club

Vi: 02 6456 3325

Kalianna Social Enterprises Centre, 93 Guy St Masonic Hall Darby Cl Bondi Jt RSL Club Function Room Tebbutt Room, Windsor Library 300 George St Com. Hlth Centre, 14 Memorial Ave Merrylands Brentwood Village Cedar Room, Neighborhood Centre Carrington St Lithgow Library Main St Karagi Court Community Hall Yakalla Rd, Bateau Bay Com Hlth Centre Maclean East Maitland Bowling Club Building 1 Comm Resources Centre St Vincents St Bowling Club Eucharenna Rd Shoalhaven Lib. Meeting Room Room C, Old Council, Admin Building CWA Rooms Cnr Tindale St & Castlereagh St Senior Citizens Ingall Centre, Nowlend St, Quirindi Henrietta Rose Rm Bowral Uniting Church, Albert St. Taree Dining Room, Community Complex, Gilroy Lane Turramurra Rules Club Warilla Bowling Club Wesley Auditorium Bulli Community Centre, 328 Princes Hwy, Bulli Community Centre, John Hoare Ct. Uniting Church Hall, Young.

Joan: 02 6033 3198 Norma: 02 6882 2506 Susan: 02 9389 8140 Julienne: 02 4574 1928 Betty: 02 9632 3302 Dorothy: 02 4368 1748. Marie: 02 6628 6692 Lorna: 02 6352 1984 Liz: 02 4332 5245 Ron: 02 6646 3067 Veronica: 02 4966 4649 Trish: 02 4454 0205 Margaret: 02 6366 8045 Gary: 02 4423 3633 Val: 02 9632 6636 Norma: 02 4751 3417 Pam: 02 6584 6687 Val: 02 6747 4727 Margaret: 02 4885 1430 Margaret: 02 6552 4183 Jan: 02 9987 4237 Lorraine: 02 6926 3203 Bruce: 02 4296 4420 Dot: 02 4228 1576 June: 02 4283 1450 Valda: 02 4341 5881 Brenda: 02 6382 3247 Fran: 02 6025 4301

Town Hall, 8 Carlton St Granville

Beverly: 02 9872 5495 Joyce: 02 6342 5192 Anne Hall: 02 6817 8744 Noreen: 02 4323 6707 Margaret: 02 6643 3801 Alex: kidswitharthritis@arthritisnsw.org.au Carol: 0400 439 505 Viviene: 02 9982 930 Judy: 0417 263 512

1st Tues 10am Warm water exercises only 3rd Thurs 10am

Cooee Lodge

Macarthur Manly Newcastle

1st Wed 10am

H J Daley Library, Campbelltown

4th Wednesday 1pm

Orange Parkes Ryde

1st Mon 12pm, Bi-monthly Last Tues 10am, Bi-monthly 4th Thurs 1pm

Mayfield Seniors Centre 102 Hanbury St, Mayfield HACC Centre, Lords/March Sts Parkes Hospital Education Centre Ryde/Eastwood Leagues Club

Scone

1st Wed 11am

Bowling Club

Rita: 02 6362 0998 Fiona: 02 6862 1866 Doris: 02 9817 7470 doris_carrall@tpg.com.au Fred: 02 6545 1701

Singleton

1st Friday 1.30pm

Activity Centre

Maureen: 02 6571 1922

Tamworth Community Centre, Darling St Uniting Church, Summerside St Toukley

Marina 0403 758 148 Lorraine: 02 4390 2177

Henrietta Rose Rm, Bowral Charlestown Multi Purpose Centre

Dianne: 02 4861 4639 Julie: 02 4982 5264

Southern Illawarra Womens Group Last Wed 2pm

Warilla Womens Health Centre

ACT 2nd Tues 12.30pm FIBROMYALGIA INFORMATION Wollongong

Pearce Com. Cent. Collette St

Barbara: 02 4296 3744 Shelagh: 02 4272 9251 Roz (Mon/Tues):02 6290 1984

Tamworth Support Group 3rd Tuesday 5pm Tuggerah Lakes * 1st Friday 10am FIBROMYALGIA SUPPORT GROUPS Bowral 2nd Friday 12pm Charlestown Bi-monthly

White House, Prince St Internet only

FIBROMYALGIA INFORMAL SUPPORT

(from left to right) Carol Vleeskens; Beryl Godley; Beth Michie; Leon Goltsman, Arthritis NSW Ambassador; Lola Beck; Front: Karen Filocamo, CEO Arthritis NSW.

* run warm water exercises

Winsome Stephenson: 02 4284 8890

HEALTH & FITNESS

TIMETABLE FOR TERM 4, 2012 Arthritis NSW coordinates a number of warm water exercise and Tai Chi, classes at various locations across Sydney. Term 4 commenced Monday 8 October 2012. Term 1 will commence Tuesday 29 January 2013.

THE ORIGINAL

WARM WATER EXERCISE Venue

Day

Times

Mowll Village Retirement Village – Castle Hill

Monday

2.30pm

Tuesday

1.30pm, 2.30pm

Thursday

1.15pm, 2.15pm

Karonga School - Epping

Saturday

8.00am

Royal Prince Alfred Hospital – Camperdown

Monday

5.00pm, 6.00pm

St Lukes Hospital – Potts Point

Wednesday

12.30pm

Saturday

9.00am, 10.00am

Canterbury Hospital - Campsie

Wednesday

1.30pm, 2.30pm

Lane Cove Physio

Thursday

5.00pm

Venue

Day

Times

Salvation Army Church Hall - Hurstville

Saturday

9.00am

TAI CHI

Please contact Melissa at Arthritis NSW on 1800 011 041 for more details or to attend a class. Please contact your support group or branch for classes in your area, not listed.

CHRISTMAS CARDS FOR CHARITY Help your favourite charity raise much-needed funds by purchasing your Christmas cards from The Goodwill Charity Card Shop. Twelve charities, including Arthritis NSW, are working together to help spread some Christmas Cheer.

2012

CHRISTMAS CARDS

Now Available!

The Goodwill Charity Card Shop is located at Scots Church, 44 Margaret Street Sydney and open Tuesday 2 October to Friday 14 December 2012. Opening hours are Monday to Friday 9.30am to 4pm.

For more info visit www.goodwillcharitycards. org.au or purchase your Arthritis NSW Christmas cards at www.arthritisnsw.org.au Contact Arthritis NSW to place your order on: Phone: 02 9857 3300 Toll Free: 1800 011 041 or purchase packs of 10 online at: arthritisnsw.org.au

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