SKIN DEEP BEHIND THE MASK
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SPONSORED CHARIT Y EVENT An invitation to support through sponsorship a charity white-tie Masquerade Ball to be held at the Grosvenor House Hotel in Mayfair, London. The organizers are a charity called, ‘Skin Deep Behind the Mask’ or SDBM SEPTEMBER 2014 GR O S V E N O R
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3 Course Fine Dining Fashion Shows With collections ranging from up and coming designers to established, a collection from a world renowned names (to be announced) Choreographed Dance interval entertainment. Art Exhibition: Opening Night Private Viewing. Art Auction: Donation bids.
DONATIONS Text SDBM33 £10 to 70070 Web: www.skinawareness.org/donations
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Nearly 13 million people (24% of the population) in England and Wales visit their GP with a skin related complaint each year. Whilst some ailments are easily addressed with o i n t m e n t , o t h e r s u ff e r e r s h a v e n o h o p e b u t t o survive their illness.
The emotional and psychological e ff e c t s o f s k i n d i s e a s e c a n b e a s d e b i l i t a t i n g a s the physical. When a condition limits an individual’s mobility leaving them housebound and isolated, it can devastate their work and family life, schooling and relationships.
SDBM help provide practical support and advice t o t h e m i l l i o n s w h o s u ff e r f r o m a l l t y p e s o f s k i n disease.
SDBM aims to help and support the forgotten p s y c h o l o g i c a l s i d e e ff e c t s o f s k i n d i s e a s e .
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T h r o u g h i t s c o n t i n u e d e ff o r t s , S D B M i s a i m i n g to provide a valuable resource of information and support for all skin types and conditions. Thank you for taking time to consider this proposal and/or your donation.
SDBM has been established to provide education,
support and guidance to skin disease sufferers and carers alike. Registered charity number 1153203
September 2014 GR OSV ENOR
SKIN DEEP BEHIND THE MASK
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CONTENTS PLEASE NOTE images used within this proposal can be explicit in nature.
ABOUT SDBM WHY FUND SDBM? MASQUERADE BALL AND FASHION SHOW ART EXHIBITION BOOK A TABLE SPONSORSHIP DEALS CONTAC T
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SDBM has been established to provide education,
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Registered charity number 1153203
SKIN DEEP BEHIND THE MASK
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ABOUT SDBM SDBM
I had never imagined nor understood how debilitating a skin disease could be, until it affected me.
Skin Deep Behind the Mask is a not for profit organisation dedicated to supporting sufferers of all types of skin diseases by helping to manage their condition and symptoms. It also aims to educate and raise awareness of the difficulties skin disease patients face and the impact it can have on their families and loved ones.
My condition was immediately visible to the outside world. The obvious physical affects invited prejudice because of my appearance; something I found modern society places increasing importance on. This was in addition to the consequences of long-term hospitalisation, enforced job losses and the substantial ramifications on personal relationships. Unlike some illnesses, so little is known and discussed when it comes to skin diseases.
We are grateful for your time and your kind consideration to donate or sponsor to SDBM.
Thank you.
Shabana Islam F
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I am told my condition has no specific name and is incurable. More research and information is needed for sufferers and carers. Greater publicity will help break down prejudices and overcome ignorance to help others understand that beyond the obvious effect on physical appearance, skin disease can cause serious physical pain, distress and incapacity.
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SDBM has been established to provide education,
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WHY FUND SDBM? Case Studies The first is a young Chinese girl by the name of Wan Lao Yang. The other two are teenage siblings: Josh and Sarah Thurmond from Detroit, Michigan. So extreme were their cases, they were respectively televised on Sky Living (“Living without Skin”). Wan Lao She suffers from Xeroderma Pigmentosum, a rare and incurable genetic disorder that makes exposure to the sun, or any UV light, extremely dangerous. Sufferers rapidly develop skin crusting, scarring and cancer. But as the saying goes: a picture is worth a thousand words. Josh and Sarah suffer from a rare genetic disease called Epidermolysis Bullosa (or EB for short), which causes the skin to blister and fall from their bodies. Sadly, to date, there is no cure for it. They, and others with the same illness, are sometimes called ‘Butterfly Children’ because their skin is so delicate like a butterfly’s wings. When Josh was born he looked as though he had third degree burns. His parents say that a great deal of caution had to be taken when lifting him, as there was a danger that layers of his skin would be removed. It was clear how much pain he was in as a baby. Out of the two siblings Sarah’s case is more severe. However, Josh’s wounds cover his arms, shoulders and hands. It takes him around two hours to dress his wounds everyday. The constant scaring around his hands has caused them to fuse together. Seeing Josh wearing a number of layers to cover his
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body, and gloves to cover his hands, reminded me that Shabana had to do exactly the same. The introduction saw an image of Sarah’s back. Some would be shocked, but I was far to familiar with the reality of such conditions. Sarah practically had most of her back covered with open wounds. It was raw, it was red and extremely weepy. Sarah has undergone a number of skin graft operations using skin from babies’ foreskins. Unfortunately, the funding for this treatment has run out. This is one of the reasons the documentary was made, as at the time of filming Sarah was undergoing her last operation.
A mother, whose two children died from EB, explains vividly what it’s like to live with this disease.
DONATIONS Text SDBM33 £10 to 70070 Web: www.skinawareness.org/donations
‘In chronic pain sufferers endorphins are produced by the body to switch off pain. But in doing so a double- in the struggle to retain energy.
‘Try to imagine your own body covered with open wounds’ wounds that are much like burns, but they never go away. These children always hurt. They never know a day without pain.’
The brain responds in two ways to this kind of pain:
Lynn Anderson – EB Medical Research Foundation
Professor Anthony Jones – Pain Specialist, Hope Hospital, Manchester UK
The life expectancy of an EB sufferer is estimated to be between twenty and thirty years. In this time they are in constant pain. Doctors have discovered that individuals that are exposed to long periods of pain develop a high tolerance to it.
1. Physically – responding to the affects of injury 2. Emotionally – responding to the anxiety of the injury
SDBM has been established to provide education,
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MASQUERADE BALL AND FASHION SHOW Masquerade Ball evening Skin Disease can effect a person’s self-esteem and self-confidence
Fashion Budding fashion designers are organising and producing a unique fashion show for this event.
The Mask will allow everyone to look the same and perhaps feel the same exhiliration of anonymity. An evening where beauty is not only skin deep but also behind the mask.
Months of research, preparation and hard work has already been undertaken in preparing the collections. Like skin disease, fashion and textiles are very much about touch, feel and of course, the visual impact. A fashion show will be he perfect platform to promote SDBM’s message about skin awareness.
DONATIONS Text SDBM33 £10 to 70070 Web: www.skinawareness.org/donations
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Art and Creativity is very close to the heart of SDBM. We firmly believe that through Art much can be understood about skin disease and illness.
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Our charity is already exploring Art and Creativity in children by providing opportunities to design and create fictional characters and write poems to help them and other children better understand the plight of sufferers off all ages.
An Art installation depicting the various stages of some skin diseases will be exhibited at the event. This installation has been created by a respected artist and designer who has themselves suffered from chronic skin disease for many years. A Visual Diary produced by our design team will provide a normally unseen view into the life of a skin condition sufferer and so will show what it is like to manage their illness. The Event will also see the fruition of the ‘Mala’ Exhibition comprising of a unique and varied collection of mannequins. These would have been decorated to represent personalities to help illustrate the qualities that define an individual besides the ‘skin’ seen on the outside.
DONATIONS
The mannequins will be placed around London to raise awareness of skin diseases.disease.
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BOOK A TABLE
DONATIONS
Evening Itenary includes... Presentation given by SKIN DEEP Behind the Mask
Text SDBM33 £10 to 70070 Web: www.skinawareness.org/donations
3 course Dinner Fashion Ball Part 1: Up and coming designers Choreographed dance interval Fashion Ball Part 2: Major world renowned Designer Celebrity Music Artists Comedian to compeer the show Auction
CALL NOW LIMITED TABLES & TICKE TS SingleTickets - £150 if tickets are bought by May 2014, £200 thereafter Table of Ten - £1,250 if tables are bought by May 2014, £1,500 thereafter
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SPONSORSHIP DEALS As a sponsor of Skin Deep - Behind the Mask, you and your company will have a number of opportunities to raise your profile, network with like-minded people and businesses, while making a vital contribution to on-going research into some of the most debilitating and painful of diseases. You can choose from a number of different sponsorship opportunities. Take a look at the benefits of each of them, and if you're interested in joining us please get in touch with me, Shabana Islam on +44 (0) 7827277848 or email us at info@skinawareness.org
Gold Sponsorship (maximum 2) £40,000
Silver Sponsorship £12,000
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B e n e fi t s i n c l u d e :
PR and Marketing
Prominent positioned table of 10 Large logo as on-stage branding, visible throughout the event. Logo on e-marketing colateral. Invitation for your guests to join champagne reception and art exhibition. Advert and sponsor credit in the event programme.
Your logo prominently displayed on all marketing materials, including printed collateral, the event flyer and the email which will be sent to an extensive database including social networks including MySpace and FaceBook, SDBM Website with a link to your site. Listed as Title Sponsor on all press releases, radio and television A dedicated point of contact within the Skin Deep press team who will work with your company to maximise publicity opportunities. Prominent presence and logo positioning within event pre-publicity Association with leading and well respected charities. On The Night One head table of 10 Invitations for you and your guests to join the VIP champagne reception and art exhibition. Large logo as on-stage branding, visible throughout the event and venue. A full page colour advert on the back page of and your logo on the front cover of the event program. Acknowledgement on the night by the celebrity host during the opening speeches.
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SDBM has been established to provide education,
Bronze Sponsorship £6,000 B e n e fi t s I n c l u d e : Prominently positioned table of 10 Invitation for your guests to join champagne reception and art exhibition. Advert and sponsor credit in the event programme.
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support and guidance to skin disease sufferers and carers alike.
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Registered charity number 1153203
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DONATIONS Text SDBM33 £10 to 70070 Web: www.skinawareness.org/donations
CALL NOW +44 (0) 7827 277 848 OR BOOK ONLINE W W W.SKINAWARENESS.ORG
T h a n k Yo u Shabana Islam
HOT NEWS NEW WEBSITE LAUNCHING SOON INCLUDING NEW KIDZONE FEATURING TOBY the tor toise & friends BUY A TOBY DOLL soon “What is the use of living, if it not be to strive for noble causes and to make this muddled world a better place for those who will live in it after we are gone?” Sir Winston Churchill
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SKIN DEEP BEHIND THE MASK
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E XC E R P T F R O M ‘ T H E S TO R Y T E L L E R S TA L E ’
“Love is not patronizing and charity isn't about pity, it is about love. Charity and love are the same with charity you give love, so don't just give money but reach out your hand instead.” M o t h e r Te r e s a
“Maybe you are reading this because you have the ability to change, in some way (whether financially or through volunteering) the world that skin disease sufferers, like myself, live in. Someone once told me, “Many big dreams, though started by one, are completed by many”. Shabana Islam
SDBM has been established to provide education,
support and guidance to skin disease sufferers and carers alike.
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