Update Magazine 91 by Cardiac Risk in the Young

News and Events | Raising Awareness | Our Fundraisers

Update 91| May to August 2023

In this

News from the Chief Executive

Bereavement Support

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CRY Heart of London Bridges Walk

| 18

Research News

| 20

Our Fundraisers

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Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

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Newsletter

CRY Update 91 May to August 2023

Inside Update 91

Editor Dr Steven Cox

Chief Executive

Deputy Editors Emma Hartnett

Publications Manager

Oliver Sparrow

Communications Assistant

As Deputy Editors of the CRY Update it is our responsibility to put together this newsletter, and our ambition that you find all the CRY news, events and fundraising in these pages to be of interest. We try to endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to contact CRY if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section. If you would like to contact us about the magazine please do so via updatemag@c-r-y.org.uk or on 01737 363222. Thank you for your help.

Meet Our Representative News from the Chief Executive CRY Online CRY Screening Report CRY Centre for Cardiac Pathology (CRY CCP) Report Bereavement Support ‘Medicine and Me’ Conference RideLondon - Essex 100 2023 CRY Heart of London Bridges Walk 2023 London Marathon (reprint) Our Fundraisers Fundraising Events Raising Awareness in the Media Report

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Contributors Alison Cox MBE

Founder

Professor Mary Sheppard Consultant Cardiac Pathologist

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Head Office:

Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

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For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left: 1. CRY Supporters after the Tough Mudder in Manchester in memory of Robert James Jones. Turn to page 40 2. CRY Supporters cycled from London to Paris in memory of Suanu Saro-Wiwa. Turn to page 49

3. CRY Supporters at the CRY Heart of London Bridges Walk. Read the full write-up on page 20

Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more. Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised. If you can supply a writeup or photos for any fundraising activities you have taken part in, please email update@c-r-y.org.uk. Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.

Issue 91 | May - August 2023

Delegates at the International Cardiovascular Pathology Course. Read more on page 12

CRY cyclist at the end of the RideLondon - Essex 100. Read the full write up on page 19

CRY Supporters at the Heart of London Bridges Walk. Read more on page 20

CRY Supporters walked 100km non stop from Richmond to Brighton.

Professor Sanjay Sharma and Dr Steven Cox at the Heart of London Bridges Walk. Page 20

CRY Supporters watching the message wall at the Heart of London Bridges Walk. Page 20

10. The CRY International Medical Conference. Turn to page 16 for the full-write up and videos.

11. CRY cyclist on route at RideLondon - Essex 100. Turn to page 19 12. Steam Rally Day in memory of Charlie Craig. Turn to page 29 13. CRY Supporter on route on 250 miles – 14500ft of ascent – 22 Castles in memory of Matthew Hesmondhalgh. Page 36

To subscribe to the online version of the CRY Update, which includes extra features such as embedded videos, visit: www.c-r-y.org.uk/subscribe Copyright © 2024 Cardiac Risk in the Young. Registered Charity in England & Wales (1050845) & in Scotland (SC052581) A Company Limited by Guarantee. Registered in England & Wales (3052985) & in Scotland (SC052985) Registered Office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD

Meet Our Representative Suzanne Rowan Representative in West London

alone and has given me a very positive focus. Helping CRY in Robert’s memory helps me channel all the love I have for him into something I hope can help others, and will also make him proud.

My husband, Robert, died suddenly in November 2018 at the age of 28. It was five days after our second wedding anniversary, where Robert had surprised me with a day trip to Paris.

There’s not a day that goes by that I don’t think of Robert and what our lives would be like now together.

On the return journey home on the Eurostar, we discussed our future career plans and our hope of starting a family in 2019. I could never have imagined going to sleep a few nights later with the horror that unfolded in the early hours of the Monday morning. I had to call his Mum and Dad to tell them the news and it was devastating. Since then, with support from family, friends, and Brentford FC (where Robert was Technical Director), I have been passionate about raising money and awareness for CRY in Robert’s honour.

Robert was full of life, intelligent, witty, kind and incredibly funny – he had such an impact on so many in such a short time. I wish with all my heart that he was still here with all our family and friends who also miss him terribly. I feel lucky to have met someone who I loved so much and who loved and supported me unconditionally. Even now, his love gives me the strength and courage to move forward each day. I am extremely proud to be a CRY Representative.

It has been wonderful to find CRY as it has helped me feel less

If you would like more information about the myheart network and the support services that we offer, such as the literature we provide and information on different cardiac conditions, you can visit the myheart website at www.myheart.org.uk. There is also the myheart YouTube channel, which includes content such as videos sent in by members sharing their experiences of being diagnosed or undergoing certain tests, as well as myheart cardiologist Professor Michael Papadakis answering a range of frequently asked questions.

You can go to the myheart YouTube channel here: bit.ly/2QjiTyl And here’s where you can find the myheart network on social media:

@myheartnetwork @myheart_UK

www.c-r-y.org.uk

News from the Chief Executive Dr Steven Cox

CRY Chief Executive

impact Rob left on the club and their lives. Watch the full film here: https://www.youtube.com/watch?v=vVlHo_ qgWzE

@Drstevenjcox drstevenjcox Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from May to August, as well as information about some of CRY’s events in this period.

May

RideLondon-Essex 100 January 7 A huge thank you and congratulations to the 15 CRY cyclists who participated on Sunday 28th May. This was the second year the ride took cyclists on a new route starting in London, and then through Epping Forest through to Essex. The CRY Team was congratulated and welcomed back at the finish area on Tooley Street by CRY staff, and given a CRY medal after their fantastic efforts on the day. Turn to page 19 to read the full write up.

‘‘That was for Rob’: The Robert Rowan story’ short film released by Brentford FC January 7 We are very proud to be supported by Brentford FC as part of the Heart of West London partnership. The club have partnered with key organisations, including CRY, to ‘change the game’ when it comes to heart health and awareness. As part of their incredible efforts to raise awareness, they commissioned a short film to be made about the life and work of Rob Rowan. ‘That was for Rob’ is a powerful tribute to Rob Rowan by Brentford Football Club. This half-an-hour piece hears from Suzanne Rowan, Rob’s wife, and many of his Brentford FC friends and family, as they talk about the

Issue 91 | May - August 2023

June CRY becomes a registered Charity in Scotland June 1 CRY is pleased to announce we are now a registered charity in Scotland (SC052581) and this is being added on our website and literature. Obtaining a Scottish Charity number for Cardiac Risk in the Young will bring a number of key benefits. Importantly, it opens access to various funding sources in Scotland, including government grants

News from the Chief Executive and philanthropic organisations, enabling CRY and its supporters to tap into a broader pool of financial support. CRY has always been committed to addressing the needs and priorities of the Scottish community. We have 32 days of cardiac screening scheduled to take places across Scotland in 2024, offering the opportunity for 3,200 young Scottish people to be screened for cardiac conditions. Having a Scottish Charity number will help to support fundraising in Scotland and to screen more young people.

research being produced by CRY’s research team. To see an updated list of research articles published by CRY’s medical team, and for link to the abstracts and sometimes full articles, go to https://www.c-r-y.org.uk/ crys-contribution-to-research/#latestresearch

Dr Abbas Zaidi interviewed on Sunrise Radio June 9 CRY Research Fellow Dr Raghav Bhatia wins “Best of the Best” award at British Cardiovascular Society Conference June 5-7 The British Cardiac Society (BCS), on 5-7th June 2024, is the biggest cardiology conference of the year in the UK. CRY Research Fellow, Dr Raghav Bhatia, won a ‘Best of the Best’ award for research around the prevention of young sudden cardiac death. Former CRY Research Fellow, Dr Hamish McLachlan, was also nominated for a ‘Best of the Best’ award for his CRY research. This is a fantastic recognition of the quality of

Former CRY Research Fellow Dr Abbas Zaidi joined Shabnam Sahi on Sunrise Radio to talk about his recent successful London Marathon Run in March to raise money and awareness for CRY. Dr Zaidi spoke about his work with CRY and the role of the CRY Research Fellow programme. Dr Zaidi is currently working as a cardiac imaging fellow in Wales. His long-term objective is to contribute to the development of services for cardiovascular imaging, inherited heart diseases, screening, and sports cardiology in Wales. To hear the full interview, please visit CRY’s YouTube Channel: https://youtu.be/JRmFTwv9OrY?si=S_5NmQtIN5 G1TRE4

BBC Three Counties Radio June I took part in a live interview, discussing the importance of screening in sports and the risks associated with arterial fibrillation in athletes, following the collapse and subsequent successful treatment of Luton Town Captain, Tom Lockyer.

www.c-r-y.org.uk

News from the Chief Executive partner Elizabeth, at the CRY head office and National Screening Centre in Leatherhead on 10th June, where they donated an electrocardiogram (ECG) machine in memory of Tom. This is the second ECG machine donated in memory of Tom and it will help CRY to continue our vital work screening young people. The fundraising and donations of medical equipment from CRY families in memory of young people who have died are so important in facilitating the continuation of CRY’s screening programme, alongside research and supporting affected families.

ITV Granada Reports on Ben Peters June 8 I was invited to take part in an interview with ITV Granada Reports as part of a report on the fundraising done by the family of Ben Peters since his tragic death in 2022; discussing the importance of screening and the huge impact of family fundraising on CRY’s ability to deliver its core services. The work throughout the UK undertaken by supporters like Ben’s family will have an incredible impact on their local communities, with funds going back into the community allowing other young people the chance to have their hearts screened. It also raises important awareness and helps to fund CRY’s vital research, so we can understand more about these conditions and help save young lives.

CRY Heart of London Bridges Walk June 25 On 25th June 2023 we were so pleased to gather once again in London for the 17th annual CRY Heart of London Bridges Walk. A total of 869 supporters joined us on the day, with 79 walking in their local areas. This year we were grateful to be joined by CRY Cardiologist Professor Sanjay Sharma who gave a speech in Southwark Park before the walk began, welcoming supporters and speaking of the importance of this event:

Dr Steven Cox, Chris Wall and Elizabeth Allen at CRY Head Office.

Second ECG donated in memory of Tom Wall June 12 I was joined by Tom’s father, Chris Wall, and Chris’s

Issue 91 | May - August 2023

“Some of you are getting back on track, and some of your lives have taken a different trajectory; but instead of being immersed in a sense of infinite grief and despair, many of you have dug in to the core of your strength to do something very altruistic and very important, and that is to support our charity Cardiac Risk in the Young.” Supporters set off at 11am after a minute’s silence from Southwark Park towards the Thames on our 6.5 mile route, passing many of London’s iconic landmarks along the way. It is always incredibly powerful to see so many CRY supporters in their Bridges Walk t-shirts walking through some of the busiest areas of London in memory

News from the Chief Executive of those who have died from young sudden cardiac death.

2,222 mile challenge July 5 Joe Williamson featured on BBC Look North as he began his challenge walking and cycling to ninety-two football clubs in ninety-two days, covering 2,222 miles in total.

Dr Steven Cox, Professor Sanjay Sharma, Professor Michael Papadakis and Dr Hamish McLachlan at the CRY Heart of London Bridges Walk.

After the walk we gathered back at the park for the CRY Family Picnic. We were joined by Unity Music Arts Team who performed sets on the bandstand throughout the afternoon, as well as Grusha Tiwari providing arts and crafts. It was a scorching hot day, so picnic tables were moved under the trees, and provided a peaceful place to rest and reflect on the day. Read the full write up on page 20.

July

ITV followed Joe as he set off from Rotherham, aiming to cover 24 miles each day. Joe was met along the way by many CRY supporters. On Saturday he walked from Rotherham’s New York Stadium where Jackie and Alan Cousins, representatives for South Yorkshire, started him off. Elaine and Ian Ward met him at Sheffield Wednesday’s Hillsborough ground when the BBC Look North team filmed him and interviewed Elaine. Then he walked to Sheffield United’s Bramall Lane where Joe was interviewed again alongside a young player. Watch the full report here: https://twitter.com/CRY_UK/ status/1675882530136784896

Heida & BSA Health and Wellbeing Conference July 10 I was invited to speak at this years Heida & BSA Health and Wellbeing Conference to talk about the true incidence, statistics and risks of unidentified heart conditions in young people. The Heida & BSA Health and Wellbeing conference is an important gathering focused on student wellness. Experts from diverse fields, including medicine, psychology, fitness, and nutrition, discuss the latest advancements in healthcare, mental health, nutrition trends, and technology’s impact on wellbeing It was great to be able to talk to so many school nurses, matrons, health and wellbeing leads as well as pastoral staff about how they can help to prevent young sudden cardiac deaths through greater awareness of signs and symptoms as well as the importance of screening.

BBC Look North reports on Joe Williamson as he begins

Royal Society of Medicine Conference July 20 In partnership with the Royal Society of Medicine, and

www.c-r-y.org.uk

News from the Chief Executive held at its prestigious Central London headquarters, CRY was invited to host a conference, spearheaded by Professor Mary Sheppard. The event provided the opportunity for delegates, both in person and remotely, to explore the prevention of young sudden cardiac death; a better understanding of the underlying causes; and how best to manage a safe yet unrestricted lifestyle for those diagnosed with a condition.

CRY Screening feature on ITV Central July 14 CRY Supporters Resham and Dalbag Nagra took part in a feature on ITV Central during a Wolverhampton screening in memory of their son, Pardeep. To date, the family have enabled 1,125 young people to have their hearts screened and hosted 11 screening days in Wolverhampton and Leicester. CRY Doctor Dr Nikhil Chatrath was also interviewed and spoke about the screening process and what doctors are looking for after an ECG test.

The talks were led by Professor Mary Sheppard, Professor Sanjay Sharma, Professor Michael Papadakis and Dr Joe Westaby (left-right above) and provided public discussion around a hugely important piece of CRYfunded research. Turn to page 16 to read the full write up and for the weblink where you can watch the presentations.

It is thanks to families like the Nagra’s that important awareness is raised around screenings and CRY’s work, allowing young people up and down the country to have the choice to have their hearts screened as well as raising vital funds for research. Video and article: https://www.itv.com/news/ central/2023-07-14/parents-screen-1000-young-hearts-inmemory-of-son-who-died-of-cardiac-arrest

August BBC Radio Oxford interviews CRY Supporter Deb Thompson August 25 In August CRY Supporter Deb Thompson was interviewed on BBC Radio Oxford about a heart screening session

Issue 91 | May - August 2023

News from the Chief Executive in memory of Adam Rowbottom. This was a particularly poignant interview talking about Deb’s pledge to see through the screening legacy of her late friend, and former CRY Representative, Ulrike Rowbottom.

prevention of young sudden cardiac deaths. It was fantastic that there were so many excellent talks from our Research Fellows, Professor Sanjay Sharma and Professor Michael Papadakis.

CRY Supporter Shirley Wort nominated for BBC Radio Somerset’s annual ‘Make a Difference’ awards August 27 Shirley Wort took part in an interview with BBC Radio Somerset ahead of the stations annual ‘Make a Difference’ awards. Shirley has dedicated over two decades to fundraising for CRY, and has been nominated for Fundraiser of the Year, following the thousands of pounds she, her husband and family and friends have raised for CRY. Shirley has been fundraising for CRY since the death of her 28-year-old son Julian in March 2000, from an undiagnosed heart condition. She set up the Julian Wort Memorial Fund that has raised more than £50,000 over the past 20+ years. In addition to supporting CRY’s world leading ‘test my heart’ cardiac screening programme. The money raised by the Julian Wort Memorial Fund has been used to buy two electrocardiogram (ECG) machines and defibrillators for Frome Hospital, and to support CRY’s core funds to ensure the vital provision of services such as specialist bereavement support, research, and awareness.

European Society of Cardiology Congress August 25-28 The European Society of Cardiology (ESC) Congress 2023 was held in Amsterdam from August 25 to August 28, 2023. The event was attended by more than 24,000 cardiovascular professionals from around the world, with many more attending to watch the presentations on line. Being selected to speak at ESC is highly important. It provides visibility and recognition among leading experts in cardiology and enhances the scientific impact of CRY’s work. The conference is a prestigious platform that highlights the significance of CRY’s work into the

www.c-r-y.org.uk

CRY Online Social media

walk, and really shows how important this event is to CRY families and supporters.

Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy. In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us.

A post that received over 19,000 engagements and 4,854 reactions was an ITV News article about the Peters family fundraising efforts to fund a CRY screening in memory of Ben Peters.

During this four-month period CRY’s Facebook page had over 1,000,000 impressions and 93,000 engagements, with over 400,000 on Twitter/X, and over 350,000 on Instagram. This is a fantastic show of the impact CRY social media has in raising awareness of YSCD and CRY’s vital work. The launch of the CRY Medical Conference had over 500 engagements and 312 likes on Twitter. Featuring CRY Cardiologists Professor Sanjay Sharma and Professor Michael Papadakis amongst many others, the event each year features pioneers in the field of cardiology from around the world. The CRY Heart of London Bridges Walk took place in June and was an incredibly popular event both in person and across social media. The high engagement with this Twitter/X post, receiving over 300 engagements, showed Professor Sanjay Sharma’s speech at the

Issue 91 | May - August 2023

CRY’s Bereavement support programme made impact on Twitter in July, with over 350 engagements on a key message about the emotional impact a sudden death of a young person has on their loved ones, bringing vital awareness about the support CRY offers to bereaved families. Another popular post on Facebook was a news article about cricket player, Ben Aldred, who survived a cardiac arrest in 2022. The post had 10,800 engagements and 7,689 reactions.

Ben is now raising funds and awareness so that other young cricket players can have their hearts screened with CRY.

CRY Online

Over on our Instagram page we have been sharing a regular campaign ‘Meet Our Supporters’, featuring the stories of CRY families. In June the campaign covered the story behind the Tom Clabburn and Claire Prosser memorial fund. “Since 2008, Tom and Claire’s Memorial Fund has raised more than £200,000 and sponsored the screenings of around 3,000 young people. They have also funded equipment and research. They couldn’t do this without the generosity of the local community. Paul is now also a CRY Representative and raises awareness within his local area.” In August the campaign told the story of Dave and Sue Hughes, and their son Daniel. Dave and Sue lost their son Daniel in 2015; their work with CRY now forms a large part of their lives and along with their daughter Kim they look on it as time they would have spent with Dan if he was still here.

Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings and photos from fellow supporters. Every share of a post helps spread awareness about CRY a little further. So if you’d like to follow along, here’s where you can find us:

CardiacRiskintheYoung CardiacRiskintheYoung Dave and Sue have just completed their 45th screening day and have screened 4,106 young people in Dan’s memory. This campaign followed on from the ‘Why Do I Support CRY?’ campaign, launched in early 2022 and its response on social media shows the importance of telling families stories.

CRY_UK Cardiac Risk in the Young CRY_UK

www.c-r-y.org.uk

CRY Screening Report What happens at a screening?

Between May and August 2023, CRY screened over 8,800 people

Screening at Oakdale Surgery in memory of Jack Thomas

4433 young people were screened at family screening events in memory of: Euan Campbell; Jordan Grant; Darren Uscroft; Aaron Dixon; Stevie Wiggins; Daniel Hughes; Daniel Wilkinson; Jack Thomas; John Pirie; Josh Merrick; Lewis Marsh; Oliver Griffin; Scott Cowan; Carli Lansley; James Patterson; Adam Green; Pardeep Nagra; Matthew Dewhirst; Neil Ward; Amy Osborne; Richard Waight; Graeme Blenkinsop; Bruce Cousins; Olly King; Daniel Blackman; Kieran Joyce; Danny King; Ben Hammond; Ben Forsyth; Ashley Trigg; Dan Hughes; David Williams; and Ella Bury.

days including: Poole Athletics Club; Saracens F.C.; Sale Sharks U16s; Harlequins F.C.; England Rugby; Welsh Rugby Union; Leicester Tigers; Exeter Chiefs; Coventry Rugby Club; Bristol Bears; Bath Rugby; Doncaster Knights; Midlands Rugby Academy; Harborough FC; English National Ballet; and Gloucester Rugby. 423 young people were screened at screening events held at the CRY Screening Centre in Leatherhead. 374 young people were screened thanks to the Northern Ireland Memorial Fund.

The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart. Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire. If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform. The screening programme is under the aegis of Professor Sanjay Sharma.

358 young people were screened thanks to the Tesco Bags of Help Centenary Grant. Screening at The Barlow RC High School in memory of Josh Merrick

2068 young people were screened at school screening events held at: Reeds School; The Barlow RC High School; St John Baptist School; Emanuel School; Halliford School; Dingwal Academy; Sir John Lawes School; The Grange School; Trent College; Barnton Primary School; Stowmarket High School; Campion School; Idris Davies School; John Hampton Grammar School; Nottingham High School; Kings College; and Sir Henry Floyd Grammar School. 1206 athletes were screened at sports screening event

Issue 91 | May - August 2023

Screening event at Cadent Gas in memory of Ella Bury

CRY Centre for Cardiac Pathology (CRY CCP) Report

By Professor Mary Sheppard

Professor Mary Sheppard, Consultant Cardiac Pathologist

Emelia Zullo, Laboratory Technician Khari Edwards, Laboratory Technician

During this period, Professor Mary Sheppard and Dr Joe Westaby reported 196 heart cases from all over the UK. All of these cases were reported within 14 days of receiving the case so families know the cause of death within this time frame, which is a vital part of our service. Departmental News •We have had six research papers published during this four month period. These papers are a direct result of our CRY-funded database. •We welcomed Dr Zainol Izat and Dr Atiqah Azman, who travelled from Malaysia to be trained at our lab over a 6-month period, as well as prospective medical student Anjali Ketan. •The Royal Society of Medicine hosted the Medicine

and Me: Young sudden death conference, for which Professor Sheppard and Dr Westaby presented alongside other experts how CRY is helping to save young lives through research & how this is impacting clinical work. (Please turn to page 16 for the full write up of this event). •We hosted our annual International Cardiovascular Pathology course 15th -16th of June, sponsored by CRY. Pathologists from all over the world attended in person and remotely to learn cardiovascular pathology dissection. •We have welcomed two new members of staff, Lauren Moran and Oscar Williamson, who join Birethine Sathiyanathan and Clementine Cheyne. They have all now completed their training and are active staff members.

To learn more about the research completed at the CRY CCP and Professor Mary Sheppard’s work, you can watch her presentation at the 2019 CRY Family Research Day on our YouTube channel here: bit.ly/2Dmg6RU

www.c-r-y.org.uk

Bereavement Support

Support after a Young Sudden Cardiac Death: Emotional Support CRY has developed a series of booklets which contain personal stories from bereaved mums, dads, siblings, partners and friends. The series focuses on the grief specific to the relationship an individual has with the deceased. Each booklet contains ten personal stories from people who have experienced a tragedy, in the hope that they will help others feel less alone in their experience and their feelings. The booklet, ‘Anniversaries: following a young sudden cardiac death’ which has been compiled by CRY’s Founder and former bereavement counsellor, Alison Cox MBE, features 17 short chapters from men and women talking through their personal experience of having to find ways of coping with the often brutal reminders of what is now missing from their lives – combined with the enduring comfort they find when family members and friends show they have not forgotten the significance of an important “date”. The bereavement support team at CRY developed this booklet in the charity’s ‘grief series’, knowing that bereaved families often find most solace, support and guidance from others who have been through a similar experience. Indeed, since 1995, CRY has received thousands of calls from families wanting to speak to others who have suffered similar tragedies. Alison Cox says; “If someone close to you suddenly dies anniversaries are something, that I have learnt, most of our bereaved families and friends cannot, indeed do not ever want to, escape from.

Issue 91 | May - August 2023

Their suffering is immense but is not easy to share. Their feelings grind and jangle with the demands of everyday life as they struggle to come to terms with the inexplicable tragedy that threatens to take over their present – and future too. “Anniversaries provide a framework within which their recollections of time spent together can be harboured. They create a predictability which confirms that the person who dies will not be forgotten. It holds the promise that their great loss will always be remembered. “Creating traditions for an anniversary, especially those that can be inclusive, provides stability. It often significantly reduces the excoriating anxiety that people will move on, or become immune to the sensitivities of their own private suffering.

Alison adds; “Some of these days of remembrance remain private, known only to themselves. Others are days earmarked for sharing, and can lead to increasing confidence around friends and family that loved the person now missing from their lives, and who have their own needs to share their own experiences. This can anchor the management of their catastrophic grief, and relieve their harrowing nightmares. “Although they can be painful, anniversaries crystallise memories. They become a focal point, offering precious

Bereavement Support protected time to reflect on cherished moments plucked from their brief lives spent together. Moments that are needed to serve a lifetime.” Other booklets in the series: CRY has created a series of booklets to help bereaved mothers, fathers, siblings, partners and friends who have been affected by a sudden cardiac death.

Other areas of support Group Support CRY’s annual walks in London and in Durham give families the opportunity to come together to remember young people who have died suddenly; In addition, some of CRY’s Representatives have set up their own Walk & Talk groups in London, Gloucestershire and North Staffordshire. If you would like more information on these groups, please email cry@c-r-y.org.uk.

We also offer online support via Facebook groups, where people (18+) can connect and share experiences. Please visit: www.c-r-y.org.uk/facebook-bereavement-support to join.

We also offer two additional booklets; one focusing on the Christmas period, and the other on all aspects of the support CRY offers following a young sudden cardiac death.

Individual Support So many people have contacted CRY wondering if there are others who they could talk to, who have suffered similar problems. No matter how much professional support is offered (either medical or therapeutic), sometimes just chatting to someone “who has been through a similar experience” helps the most. All the booklets are free to order and/or can be read online. www.c-r-y.org.uk/support-resources can be read online.

If you would like to speak with a CRY Bereavement Supporter, please contact CRY’s support team on 01737 363222 or at cry@c-r-y.org.uk.

www.c-r-y.org.uk

Research News Every donation to CRY’s core funding helps to support CRY’s research programme. Some families have chosen for all of the funds they raise to go directly to research; and many families who are raising funds specifically for screening, also provide support to the research programme when possible. Thank you to everyone who is helping to support CRY’s research, your support means we can work to train the next generation of specialist cardiologists in inherited cardiac conditions, and transform our understanding of the causes and prevention of young sudden cardiac death.

For more information on CRY’s most recent research publications go to: www.c-r-y.org.uk/research. Here you will see interviews with CRY Research Fellows, links to the research publications (either the abstracts or the full articles) as well as links to short films and presentations by our experts including Professors Sanjay Sharma, Mary Sheppard and Michael Papadakis explaining the ongoing impact of CRY’s research.

In 2023, between May and August, we have received further contributions from the following memorial funds: •Bruce Cousins •Alan Lumley •Scott Cowan •Rosie Mitchell •Oliver Hewitt •Suana Saro-Wiwa •Stewart Howard •Natalie Stewart •Joe Kellogg •Fraser Vaughan •William Lane •Julian Wort

“Our programme today highlights many of the questions that families will have following the sudden cardiac death of a young person”; these were the opening words from CRY’s CEO at the start of the “Medicine and Me” one day conference, held on Thursday June 20th in partnership with the Royal Society of Medicine, at its prestigious Central London headquarters. Cardiac Risk in the Young (CRY) had been invited to host the conference following a competitive ‘pitch’ process, spearheaded by Professor Mary Sheppard. And, the academic event certainly achieved the remit of providing a unique opportunity for delegates (whether in person or watching remotely) to explore the following key pillars; the prevention of sudden cardiac death in young people; a better understanding of the underlying causes; how best to manage a safe yet unrestricted lifestyle for those diagnosed with a condition.

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Before ‘handing over’ to the esteemed panel of cardiology and pathology experts, Dr Cox went on to explain the rationale behind the seminar; “We hope that the programme which we have put together for the first part of the session highlights many of the areas that families will need guidance on following the tragedy of a young sudden cardiac death. These initial discussions will take us from “what causes sudden cardiac death”, through to the highly emotive issue of the confusion that can so often surround the coroner service and the cause of death recorded on death certificates. “For almost 30 years, we have supported families as they have navigated this incredibly difficult period, particularly when an ‘official’ cause of death doesn’t convey what they feel has happened in their family and can seem misleading and inaccurate. Such uncertainty can really impact the rest of the family and it’s often only as they start to

Medicine & Me Conference go through the different stages of follow-up assessments, that this can even begin to be dealt with”. He adds; “Whilst we accept that so much has been achieved in the past 25-30 years, there is still much to learn and understand and this conference is a wonderful opportunity to reflect on what we already know, as well as showcasing areas of new research and illustrating CRY’s commitment to pushing the boundaries for the benefit of all those affected by young sudden cardiac death.” One of the world’s leading experts in cardiac pathology and sudden death, Professor Mary Sheppard, led the opening session which looked at how cardiac pathology offers invaluable help to families who have suffered a sudden cardiac death and, crucially, how CRY’s commitment to funding a specialist unit in London for almost two decades has led to the development of a pioneering ‘fast, expert and individual service provision.’ Professor Sheppard, who is the Director of CRY’s Centre for Cardiac Pathology, based at St George’s, University of London, is the lead investigator on the hugely important piece of CRY-funded research, the results of Professor Mary Sheppard which were recently published in the leading medical journal, ‘Histopathology’. The study, which Professor Sheppard talked the delegates through, looked at the largest cohort of sudden cardiac death autopsy findings ever reported from one country, the results of which highlight the vital importance of expert post-mortem following the sudden cardiac death of a young person. Investigating over 7,000 autopsies from a 25 year period, also showed that sudden arrhythmic death (SADS) was the predominate cause of death (up to 40%), alongside cardiomyopathies (conditions affecting the heart muscle), which accounted for around one fifth (22%) of sudden deaths. Due to this pioneering project, there is now a national, cross-organisation pilot study integrating molecular autopsy and family screening into the assessment of SCD victims (with any related genetic testing taking place within the NHS). The next focus area saw Dr Joe Westaby, Clinical Lecturer in Histopathology, University of London and St George’s University Hospitals NHS Foundation Trust, explain in great depth the importance of a full and universal recognition of ‘modes of death’ and how this improved knowledge should automatically trigger referrals to autopsy and further investigations. Specifically, Dr Westaby updated delegates on

the proposed move to the reviewed ICD-11 code [International Classification of Diseases] which should significantly reduce the use of the term “non-specific causes” as a cause of death. This discussion highlighted an area which is of huge interest for CRY families and health policy makers alike, and is something which CRY will continue to monitor and advocate for. However, perhaps the most poignant and relatable eleDr Joe Westaby ment of the talk was Dr Westaby’s reference to a recent case which had been bought to his attention, where a 17 year old, apparently fit and healthy man had died suddenly. On further investigation, it was found that his mother had died suddenly, 5 years previously, aged 38, with her cause of death recorded as myriad factors, including “end stage heart failure and rheumatoid arthritis”. Dr Westaby shared slides from his cellular investigations and explained to delegates; “Through the microscope, I immediately saw this….it’s called myocyte disarray and it clearly indicates Hypertrophic Cardiomyopathy.” This one case study alone illustrated succinctly and powerfully the driving force behind CRY’s research programme

Dr Joe Westaby’s talk. Available on our YouTube channel.

and commitment to funding specialist pathology services. A thorough post-mortem, referred to a specialist pathology team would have most likely picked up this familial condition, potentially allowing for the prevention of the boy’s death. In essence, a tragedy that should not have happened. Pathology and prevention are clearly key to CRY’s underlying principle that “improved knowledge and accuracy of the true incidence of YSCD in our population is the most

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Medicine & Me Conference effective way to improve risk stratification and develop preventative strategies for family members.” However, the purpose of this prestigious conference was to also explore current understanding – and to share knowledge – of the impact of inherited, genetic and acquired cardiac condiProfessor Michael Papadakis tions on young people once diagnosed, and the steps that can be safely taken to help improve and maximise quality of life.

Professor Michael Papadakis’s talk. Full video available on our YouTube channel.

This section was led by two, leading cardiologists with impressive international reputations – and who CRY is so fortunate and proud to have worked closely with for many, many years. Both based at St George’s, University of London, Professor Sanjay Sharma (Professor of Sports Cardiology and Inherited Cardiac Diseases) and Professor Michael Papadakis (Senior Lecturer in Cardiology, Honorary Consultant Cardiologist and currently President of the European Association of Preventive Cardiology) Professor Sanjay Sharma delivered hugely thoughtprovoking and insightful presentations addressing the impact of a diagnosis on a young person and how they should be supported through their subsequent lifestyle decisions. The engaging talks took the delegates through many of the questions often asked by patients whilst working with their cardiology teams to ascertain and stratify risk factors. “The dreaded one is always ‘how much and how hard can I

Issue 91 | May - August 2023

exercise?”, explained Professor Papadakis. Professor Sharma concluded the day with a fascinating review of new frontiers in drug therapies and how evolving medications have the potential to transform the way these conditions can be managed and treated. Speaking after the conference, Dr Steven Cox, commented; “This conference, held in the unquestionably prestigious surroundings of the Royal Society of Medicine, was a unique opportunity to gather a phenomenal panel of experts, bringing together decades of experience from the forefront of research, aspiring to improve the prevention of young sudden cardiac death. “In a relatively short space of time – which is testament to the expertise and unrivalled knowledge of our four presenters – we were able to cover a wealth of important issues from cardiac screening protocol, through to new and exciting drug therapies, how best to identify high-risk individuals and ways of providing optimal care for patients with diagnosed cardiac conditions. “We also explored CRY’s longstanding commitment to support affected families and, whilst we looked back across our history of how we have worked to develop and fund world-renowned expert cardiology and pathology services, we were also inspired by news of ongoing studies and published research. Such emerging knowledge will continue to inform our decision-making policy and commitment to ensuring that every family affected by the devastation of a young sudden death will receive the ‘answers’ they so desperately need to even attempt to being able to adjust to and understand the cause of death of their child, partner, parent or sibling. “And, vitally, we also want to reassure families that their first degree relatives will not be left at risk from the same condition. “No family should ever be given a cause of death of ‘unascertained’ and I feel immensely proud that teams of researchers funded by CRY share our determination to support bereaved families and protect young people.” Dr Cox concludes; “It feels impossible to do justice to the knowledge, insight and vision that was shared during the “Medicine and Me: young sudden cardiac death” conference in a short write-up….so I really do urge our supporters and stakeholders to view the individual video clips here.” If you would like to watch all the videos from the conference, please visit our YouTube channel ‘Cardiac Risk in the Young’ and you’ll fiind the playlist from the day. If you are reading the digital version of the magazine, please click here

RideLondon - Essex

A huge thank you and congratulations to the 15 cyclists who participated on Sunday 28th May Around 22,500 cyclists took part in the 10th anniversary of the event, which saw a very sunny and warm day for those taking part. Riders taking on the 100-mile challenge made their way into Essex via the historic Epping Forest. From there, they cruised past some of the county’s most picturesque towns and villages – where residents lined the streets to cheer them on – for around 65 miles, before heading back into central London, where a rapturous applause awaited them at Tower Bridge: a fitting end to an epic day in the saddle. There was a CRY cheering station near the end of the 100-mile course, with CRY staff and volunteers making as much noise as possible with their CRY cowbells, whistles and clap bangers to cheer on the CRY cyclists and others to help spur them on to the finish line. The CRY Team were congratulated and welcomed back at the finish area on Tooley Street by CRY staff. CRY riders were given a CRY medal along with some snacks and refreshments after their fantastic efforts on the day. After taking their photos and meeting the family and friends of Team CRY, it was lovely to speak to the team about their experiences of the event.

The cyclists in the CRY Team this year were: Mehmet Ahmetoglu in memory of Rochelle Grogan; Emma Aldworth in memory of Laura Moss; David Andrews; Claire Bowen in memory of Freya Bowen; David Clewer in memory of Martyn Luckett; Emily Clifford; Jack Ellis; Jamie Hughes; Stuart Kemp; Charlotte Luckett in memory of Martyn Luckett; Marisa May in memory of Thomas May; Peter May in memory of Thomas May; Robert Page in memory of Lewis Page; Nick Young and Paul Daniels in memory of Ben Daniels.

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CRY Heart of London Bridges Walk 2023

Thank you to the 869 supporters who joined us on the day, and the 79 supporters walking in their local areas On 25 June 2023 we were so pleased to gather once again in London for the 17th annual CRY Heart of London Bridges Walk. Supporters began arriving in Southwark Park from 9am and gathered around the bandstand, connected with other participants and CRY staff, and began uploading messages and photos to our message wall. A total of 869 supporters joined us on the day, with 79 walking in their local areas.

lives have taken a different trajectory; but instead of being immersed in a sense of infinite grief and despair, many of you have dug in to the core of your strength to do something very altruistic and very important, and that is to support our charity Cardiac Risk in the Young. Many of you have raised money to demonstrate awareness of this catastrophe, and to do something about preventing such deaths. […] Today we join hands and take some very positive strides in making a difference to ensure that other families do not have to endure the same fate as yours.”

Once supporters had arrived, we got started with speeches from CRY Cardiologist Professor Sanjay Sharma and CRY CEO Dr Steven Cox. Professor Sharma began by introducing the day, and thanking those who joined us; “Today we are going to be celebrating and cherishing the lives of late loved ones who passed away during the pinnacle of their life years and prematurely. I think our message wall here is just a reminder of the sort of people that we have lost; spouses, partners, children, siblings, friends; and these losses have transformed your lives.” “Some of you are getting back on track, and some of your

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Next to speak was CRY CEO Dr Steven Cox who began by thanking everyone who helped make the day possible, from participants to staff, volunteers and food vendors; before taking a moment of remembrance and thanks to CRY Patron Kathryn Harries for her legacy of work with CRY, “The CRY Heart of London Bridges Walk has been our

CRY Heart of London Bridges Walk 2023 flagship event since 2007, having been established by CRY Patron Kathryn Harries, working with the CRY Team. I’d like to take a moment to remember Kathryn and acknowledge everything she did for CRY. She has left an incredible legacy in the creation of this important event and will be missed by all who knew her.” “For those of you joining us for the first time we hope you can experience what how it feels to be part of a community that understands. Thank you for coming today to support this event, and to be a part of a community of support for one another.”

Dr Cox continued, thanking Professor Sanjay Sharma, Professor Michael Papadakis and Professor Mary Sheppard for their continuing support and commitment to CRY through their work and research. It was special to have the whole team at Southwark Park this year, each taking part with their families. Dr Cox concluded by highlighting the importance of the event, CRY’s research, and what that means for our understanding of the cause of young sudden death.

raising funds, and by supporting screening and research. Thank you for your support and joining us today at our most important event to bring families together from all over the country.” After the speeches a minute’s silence was held, then at 11am it was time for the walk to begin. Walkers set off from Southwark Park towards the Thames on our 6.5 mile route, passing many of London’s iconic landmarks along the way. It is always incredibly powerful to see so many CRY supporters in their Bridges Walk t-shirts walking through some of the busiest areas of London, raising important awareness of CRY and young sudden cardiac death. The route included walking by landmarks such as; Tower Bridge, the Tower of London, The Gherkin, St Paul’s Cathedral, Shakespeare’s Globe, and The Shard with many photo opportunities along the way.

“When CRY was founded, people questioned if something should be done. There is no longer a question of if, but what and when. This progress has only happened because of all the families like yourselves who have given so much to help others; by talking about what has happened, by

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CRY Heart of London Bridges Walk 2023 as always. Thank you to all of our supporters who took part, whether you completed your My Walk For CRY or came to the main event in London.

After making their way through the heart of London, walkers headed back towards Southwark Park for the CRY Family Picnic from around 1pm. There was delicious food and drink waiting as people arrived from; Bratwurst Bros, Chocolate Balloons, Smokin’ Bean Coffee Truck, Deuce Hospitality Ltd – West African Street Food, Howe & Co Fish & Chips and Eat Argentina. It was a very hot day, so families relaxed on tables under the trees, connecting with each other and listening to wonderful jazz music performed by Stephen Pierre and a collective of Jazz Musicians from Unity Music Arts Team. There were two musical performances throughout the afternoon from the group, alongside a card-making workshop run by Grusha Tiwari, using stamps of the artist’s own designs, inks and crayons. We are so grateful to both the performers and Grusha and her team for donating their time to CRY.

Thank you to our fantastic team of volunteers as well. Events like this are only possible because of your help! CRY’s volunteers were: Falak Ali; Najma Saidahmed; Lorna Benham; Callum Carruthers; Krizstina Cserhalmi; Julie Essex; Michael Essex; Lianne Frost;Caroline Gard; Peter Gard; Gregory Hadjinicolaou; Barbara Holland; Jim Holland; Kelvin Holt; Jo Hudson; Nick Hudson; David Jewell; Victoria Joy; Liz Kerwood; Martin Kerwood; David Lee; Julie Lockton; Alexandra MacLeod; Freya Mollerstrom-Frost; Ayda Mollestrom-Frost; Sasha Pasimisina; Dee Ran; Sue Robinson; Peter Robinson; Giles Semper; Tony Sizer; Jos Sizer; James Slade; Alison Stevens; Sophie Thomas; Vicky Walker; Ari Walker; Tyrone Walker; Toby Ward; Tim Ward; Lucy Wasdell-Bowyer; Fi Wasdell-Bowyer; Ash WasdellLane; Livvy Welch; Matt Wilson; Marion Wilson; Aranja Kugathas; Joanne Lister.

Thank you to our event sponsors: ServiceMaster Clean; Chubb; Oppo Brothers Ice Cream; and Saputo Dairy UK. And thank you to Robert Jones and Richard Sainsbury of the London Street Photography group kindly volunteered at this year’s Bridges Walk. You can see more photos from the day in our Flickr album here: www.flickr.com/photos/cardiacriskintheyoung/albums

The support tent was open throughout the day, with supporters writing messages and memories on their back signs from the walk and hanging them in the tent. These message cards will later be moved and displayed in the CRY office. The CRY Heart of London Bridges Walk is always an emotional day. It was so special for everyone to gather together

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London Marathon 2023 Congratulations to the 102 runners who took part in the London Marathon on Sunday 23rd April

Correction from Update Magazine Issue 90 - There was a misprint in the list of runners taking part in the 2023 London Marathon, showing names from last years event. With thanks to the 2023 team, who were: William Arkell in memory of Matt Hadfield; Hayden Bailey in memory of Thomas Day; Joe Barnes in memory of Matt Cragg; Ella Barnes; Michelle Beard in memory of Jasper Bryan Cook; Simon Bedford in memory of Dylan Rich; Tom Bird in memory of his cousin; Laurence Bolton; Matt Bowler in memory of Graeme Blenkinsop; Matt Bramhall in memory of Robert Rowan; Ben Brook in memory of Emlyn Wibberley; Donna Brown in memory of Farley and Dan Kidner; Paul Buchanan in memory of Thomas Hadwin; Sean Carley in memory of Jamie Carley; Sean Chaney in memory of Harry Dubois; Neil Cole; Ellie Conroy in memory of Emma Broad; Sam Cook in memory of Harry Dubois and Daniel Wilkinson; Olivia Cooke in memory of Emma Broad; Orla Cooke in memory of Emma Broad; Frankie Cooke in memory of Edward Ridgway; Rick Crowther in memory of Thomas Day; Angela Dakin in memory of Jasmine Latham; Narendra Dhariwal in memory of Sidharth Nanu; Patrick Doyle in memory of Jonathan McGrath; Nic Evans in memory of Andrew Key; Alex Ewing in memory of Harry Dubois; Connie Ffitch in memory of Mark Laker; Sean Fitzpatrick in memory of Elise Fitzpatrick; Maria Gabriel in memory of William Lane and Ariana Jahangir; Charlotte Galvin in memory of Elise Fitzpatrick; Dave Gandee; Richard Gill in memory of Christopher Martin Parr; Natasha Gillings in memory of Micah Gillings; Glen in memory of Marcus Fisher; Betty Glover in memory of Harry Dubois; Becca Green in memory of Matt Hesmondhalgh; Becky Grey in memory of Harry Dubois; Ellie Harbinson in memory of Robert Worboys; Hannah Henshaw; Ian Heslop in memory of Mia Jennings; Caroline Hodgson; Barry Holcombe in memory of Andrew Holcombe; Callanda Housley in memory of Laura West; Alex Howell in memory of Harry Dubois; Phil Hughes in memory of Harry Dubois; Rebecca

Hyland in memory of Robert Rowan; Tariq Jahangir in memory of Ariana Jahangir and William Lane; Stephen King in memory of Olly King; Matt Ladkin in memory of Tom Petley; Rosie Leech in memory of Rob Worboys; Lympany in memory of Matt Beadle; Cameron Mackinnon in memory of Jem; Peter Mason in memory of Owen Morris; Samantha Matthews in memory of Aaron Dixon; Paula Morell in memory of Laura West; Carol Murphy; George Musson in memory of James Sheppard; Karen Nethersole; Olivia O’Neil in memory of Billy Teather; Mike Peter; Faye Pickles in memory of Andrew Pickles; Steve Price in memory of Alden Price; David Quick in memory of Olly King; Gary Ramsbottom in memory of Freya Cox; Victoria Ramsey in memory of David Hill; Raymond Randall; Luke Reddy in memory Harry Dubois; Hannah Richmond; Aisling Roche in memory of Killian Roche; Gary Rose in memory of Harry Dubois; Debbie Ross in memory of Neil Desai, Ben O’Connoll and Ben Skinner; Beth Sadler in memory of Freya Cox; Gabrielle Shaw in memory of Adam Shaw; Isabel Shaw in memory of Olivia Shaw; Oliver Sheppard in memory of James Sheppard; Peter Smiley in memory of David Smiley; Emma Smith in memory of Harry Dubois; Cameron Spencer; Josh Stefanini in memory Robert Rowan and Raymond Lambert; Grace Stevenson in memory of Madison Beau Campbell; Phil Sweatman in memory of Ben Hammond; Lee Tennent-Butler in memory of Dale Tennent-Butler; Gemma Thomas in memory of Jordan Bullock; Glen Thompson in memory of Christopher Dixon; Angelo Tomasso; Felicity Towler in memory of Robert Worboys; Claire Turner in memory of Jonathan Clark; Clare Viney in memory of Amber Robinson; Vu Vo in memory of Simon; Cameron Ward; Chris Ward; Robert Watley in memory of Alex Watley; Jane Watts; Charlotte Whistlecroft in memory of Harry Dubois; Sam White; Fay Willet in memory of Sophie Konderak; Beth Williams in memory of Aaron Dixon; Ruth Williams in memory of Ellie Williams; James Wood in memory of Harry Dubois; Anna Worboys in memory Robert Worboys; Abbas Zaidi

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Our Fundraisers Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from May to August 2023.

Corrections

but we apologise if you have ever been affected in some way by this.

Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes. We always strive to enforce new methods to eradicate such administrative errors,

If you see a mistake in the Update or you have any questions, please do not hesitate to contact CRY via UpdateMag@c-r-y.org.uk.

In Memory of

• Kelly Garwood sent a donation of £1,571.65 from her Charity Day fundraiser.

• Hannah Bennett raised £210 in donations in memory of Gareth Beckett

Adam Ayres

In Memory of

• Rachel Isbister donated £250.

• Boo Williams sent a donation of £1,700 from her fundraising evening.

Alan Bain

• Nancy Wilson forwarded a donation of £8,331.68 from the Bisgeos 12 Mile Run/Walk. • Kirsten Sinclair sent a donation of £350 on behalf of KGS Class of 1993-1999, this money was raised at their class reunion.

In Memory of

Matthew Beadle

• The Rotary Club of Greenwich donated £500. • Lynne Beadle sent a donation of £593 raised at the NGS open weekend. • Kevin Parry donated £100.

Douglas Bell

£1,700 was raised for CRY at a successful fundraising evening held at the White Horse Inn in Neatishead on Saturday, 5th August. George Hemstock from HSBC Norwich was delighted to join and support the fundraising with an additional donation of £500 from the bank. The event was organised by Boo Williams, whose son Douglas – a passionate conservationist and experienced walking guide in Tanzania – suddenly and tragically died in 2021. There were presentations by CRY representative, Sue Standing, and local author, writer, presenter, and passionate conservationist, Nick Acheson. Local acoustic duo, LTC, provided the music.

In Memory of

• Alison Beasey sent a donation of £1,000 raised from a Memorial Football Match, raffle and BBQ.

• Jenny Bergman completed a Skydive and raised £2,790.61.

Brett Beasey-Webb

Gareth Beckett

Issue 91 | May to August 2023

Phillip Bergman

Our Fundraisers In Memory of

In Memory of

• Andrew Hadley sent a donation of £566.

• Helen Blake sent donations totalling £16,000

Ben Birch

In Memory of

Daniel Joshua Blackman

• Richard and Hazel Blackman donated £100. • Hazel Blackman sent a donation of £246.15 raised through her ‘life laundry’ sales. • Hazel Blackman sent a donation of £105 raised from collection pots. • Hazel Blackman sent a donation of £200 from the sale of grandma’s patchwork quilt. • Richard Blackman sent a donation of £200 • Hazel Blackman sent a donation of £180 raised through a cake stall at the Forestside Fun Dog Show. My friend Chloe & I attended Forestside Fun Dog Show on Saturday 17th June. We had a cake stall and made £180 on the day. - Hazel Blackman

Nathan Blake

In Memory of

Graeme Blenkinsop

• The ICCM Recycling of Metal Scheme donated £6,000 following a nomination to support screenings on the Isle of White. • Jeralyn Clark donated £100

In Memory of

Matt Bond

• Guy Chapman raised £2,520 for the Matthew ‘Bondy’ Bond Memorial Cricket Day, in memory of Matt Bond.

In Memory of

Daniel Boreham

• Chelmer Valley School raised £163.53 from a Charity Football Match.

In Memory of

• Denis McKeown sent a donation of £2,553 raised from a memorial concert

• Robyn Sayers fundraised £365 as part of ‘Jacks Day 2018’.

Tuqiri M Blackwell

• Denise McKeown forwarded a donation of £100 from friends of Mary and Mark. • Paul Morgan sent a donation of £600 from Team XIII.

Jack Boulton

The annual Jack’s Day was held on 26th May 2018 with thunder and lightning lurking in the distance……. but luckily didn’t reach us. Saltford AFC played against KCCFC with the usual passion with Saltford AFC winning the match 2 goals to 1. There was a raffle and a Barbeque and altogether £1,560 was raised for CRY. - June Boulton

In Memory of

• David Boulton sent £131 raised from a Dorset Golf Tour.

• Susan Blair sent a donation of £205

• Jon Williams sent a donation of £258.26 raised through a collection bucket from Saltford Football Club.

Steven Blair

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Our Fundraisers • Iain Rider sent a donation of £184 raised through a card collection from Saltford Football Club.

In Memory of

• David and June Boulton donated £100.

• Rob Haycock completed the Manchester Marathon raising £2,399.80.

Alfie Brown

• Saltford Sports Club donated £250 in relation to the annual Jack’s Day football match. On a sunny Saturday 10th June, the annual Jack’s Day football match was held at Saltford Football Club. The day comprised of a number of junior matches and a Veterans versus 1st team match. This year’s Jack’s Day celebrations was a great day and the support from the community was magnificent. Donations, bar takings and BBQ amounted to a fantastic total of £742.26 to the Jack Boulton Memorial Fund.

In Memory of

Oliver H Brown

• Eleanor Cantello sent £2,613 raised during her year as Lady’s Captain at Disley Golf Club.

In Memory of

Leanne Brownhill

• Zoe Ashbridge donated £100.

In Memory of

Darren Buchanan

In Memory of

Jack Branch

• Gay Frankland sent a donation of £160 from the WAFC U13s, Martyn Rossi and the commercial booking lads.

• Mark West sent a donation of £162 raised from a model car racing memorial.

In Memory of In Memory of

Richard Brember

• Gordon Brember completed the ‘Randonnee for Rich 2023’ raising £1,050.38

Kristen Marie Bugeja

• Margareth Ainley chose CRY as the charity to benefit in respect of sponsorship totalling £1,040 from ‘Pilates for Kristen.’

• Robert Whitwroth completed the ‘Randonnee for Rich 2023’ raising £480.

In Memory of

• Luke Batten donated £275.

• Lisa Burgess chose CRY as the chairty to benefit in respect of her event SalonShades 10 years younger makeover donating £100.

In Memory of

Steffani Broughton

• Tom Chesney sent a donation of £200 from himself and colleagues.

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Jordan Burndred

• Jacki Hodgkinson donated £134.14.

Our Fundraisers In Memory of

Oliver D Burnham

• Dan Burnham sent a donation of £2,284.

In Memory of

Robert Burns

• Doreen Burns sent a donation of £1,400 raised through a raffle and cake sale.

In Memory of

Nathan Butler

Helen, Madison, Sheila, Madeleine and Susan.

In Memory of

James W Campbell

• Michael Gardner sent a donation of £428.10.

In Memory of

Tony Campbell

• Tullymore Swifts FC donated £1,903.52 raised through their annual charity football tournament, The Tony Campbell Cup.

• Gerard Tduch donated £500. • Debbie Wade donated £170. • Assured Systems sent a donation of £1,000 in respect of a bid for the signed Aaron Ramsdale shirt.

In Memory of

Jordan Carter

• Tom McCarthy completed the Swansea Half Marathon raising £755.

• Jason Davies donated £200. • Dean Pritchard donated £160.

In Memory of

Ryan W Carter

• Greg Hanly donated £280.

• Linda Bundy donated £100. • Helen Tidyman donated £200. • Vicki Gibson donated £100. • Ben Warrender donated £180.

• Mandy and Jamie raised £260 from their fitness club. • April Woodnutt sent a donation of £220 from Sustain Therapy clients.

• Charles Plummer donated £200. • Kevin Tidyman donated £120.

• Nathaniel Holland sent a donation of £158.60 raised through a Charity Football Match.

• Philip Manning donated £240. • Carol Bridgewater donated £160.

In Memory of

• The Worthing Cissbury Trefoil Gulid raised £135 from their monthly bring and buy sales.

Alistair Calvert

Andrew Carter

• Douglas and Joy Gordon chose CRY as the charity to benefit from their double 65th Birthday celebrations raising £1,305.

In Memory of

• Alice Wheaton sent £500 made up of donations from

• Anchal Chopra-Chhabra sent a donation of £1,000

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Anuj Chopra

Our Fundraisers raised from a concert.

In Memory of

Adam Cooper

In Memory of

Katrina Christopher & Cheryl ChristopherWebber

Connar Lomaz completed a 24 Hour Snowdon Climb raising £1,633.

• Cheshire Training Academy raised £195. • Joy Cooper-Crippin sent a donation of £1,075.55 raised at the Carney Festival. • Jamie Lennon sent a donation of £1,000 from CRM Roofing. • Joy Cooper-Crippin sent a donation of £250, the Warrington Wolves Rugby League Club donated a signed rugby shirt and tickets to one of their games.

In Memory of

The annual rugby festival that has been named after Adam (Carney) happened again on Saturday 8 July this will be 6 years since Adams passing.

• Morna Hinton donated £200.

Each year the festival has grown and this year for us was the best. We have found a formula that works for us and gives people the best prizes.

Tom Clabburn & Claire Prosser

• David Legg donated £100 in memory of Gordon Prosser. • Margaret Prosser donated £100 in memory of Gordon Prosser • David Prosser donated £100 in memory of Gordon Prosser.

We asked for donation of products to make hampers and we were overwhelmed with donations of items and people even made their own hampers and donated them to us. We also received some very generous amounts of cash. Lots of Adam’s team mates turned up and we swapped stories about him and they held a minute’s silence before the rugby game.

In Memory of

Michael Clarke

• Evelyn Partners sent a Match Giving donation of £235 in relation to the Creative Crafters fundraising.

In Memory of

Jasper B Cook

• Pat Gwyn sent a donation of £1,205 raised by Jasper’s Nanna and Gran’pa through a Sweepstake. • Barclays sent a Match Giving donation of £1,140 in relation to Kathryn Gray’s Yorkshire 3 Peaks Challenge fundraising. • Pat Gwyn sent a donation of £500 raised through the Birkenshaw Village Association Fair & the Tesco Batley Community Summer Fair.

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All in all a wonderful day and great support from lots of generous people and companies. We raised £1,095 on the day and lots more great memories.

Our Fundraisers In Memory of

Bruce Cousins

• Jackie Cousins sent a donation of £100.46.

In Memory of

Scott Cowan

• Christine Cowan sent £120 representing donations made at the screening day at Lagoon Paisley.

In Memory of

Christopher Cowe

• Jane Mole completed the Baxters Loch Ness Marathon • Balerno High School raised £2,037.33.

very good friends. Losing Charlie, at just 15 years from SADS was just horrific but with the help from Mr Beaden and Tim Buckle from Chimp Management (I have to mention these two amazing humans for getting the boys through the last couple of years of school) they made it to the end of year 11. CRY, and the testing of young people for undiagnosed heart conditions holds a very special place in our hearts. We would like to remember Richard Hill, Kyle Hancock and Charlie who all lost their lives due to sudden adult death syndrome but also to Jake. We miss them terribly. Each year the collaboration of families who own collections of Steam Engines and various types of old, weird and wonderful vehicles tour the Hope Valley, Peak District, often from Pub to Pub where the generosity of local hostelry’s provides refreshments for its participant’s. It truly is a sight to be hold when you see the trail of smoke, followed by these incredible machines traveling along the country lanes. This year proved to be another phenomenal day! Everyone’s incredible kindness and generosity helped to raise £2,480. Thank you to everyone who came along and made the day such a wonderful success.

• Ross Cowe donated £150.

In Memory of

Matthew Cragg

• Andrew Strange chose CRY as the charity to benefit from his ‘Rockin the House’ event which raised £6,679.

In Memory of

Charlie Craig

• Warren Drew donated £100.

In Memory of

• Sarah Mappin sent a donation of £2,431.08 raised from the 2023 Hope Valley Steam Rally Day.

• Maggie Burrows donated £300.

The Steam Rally Day was born three years ago in memory of a young man, Jake Birkinshaw who, sadly lost his life following a fatal car accident. Jake had a passion of all things mechanical, so a group of people got together to create something that Jake would have loved… a day full of his family, friends and an array of amazing mechanical machines, mixed together with a party feel.

Adam Dabell

In Memory of

Chandler Aston Dagg

• Samantha Lord completed an inflatable 10k run raising £500.

Jake was in Charlie Craigs year at Hope Valley College and along with a cracking group of young people were all

www.c-r-y.org.uk

Our Fundraisers In Memory of

Freya Dalrymple

• Ingrid Dalrymple sent £1,006 representing donations received in lieu of floral tributes, in memory of Freya’s grandad, Edgar Matheson. • Ingrid Dalrymple sent a donation of £8,331.68, raised through The Bisgeos 12 Mile Run/Walk 2022. • William Dalrymple sent a donation of £1,609 raised through the Walk For Freya 2023 fundraiser. • Ingrid Dalrymple sent a donation of £241 raised through a raffle.

In Memory of

Ben Daniels

Adam’s memory. The National Three Peaks Challenge is one of the toughest challenges going. It involves climbing the highest peaks in Scotland, England, and Wales all within 24 hours, the catch being that the driving time is included in the total time too. The challenge consists of over 10,000 ft of ascent, 23 miles of walking and over 450 miles of driving – no mean feat. Jordan and Luke trained for 6 months to be ready for the physicality of the challenge, aptly supported by Tom who handled all the driving. The challenge started in Scotland with Ben Nevis, the tallest of the three mountains, at 1345m. They started at midday and had a target time of just 5 hours to complete the hike, a tall-ask when the average time to tackle the mountain is between 7 and 8 hours. They managed it in 5 hours 15 minutes in really challenging heat conditions, but despite that, there was still some snow on the summit.

• Emma Baker fundraised with ‘Why Not Run 2018’ in memory of Ben Daniels. • Sharon Warren and Orla took part in ‘Orla’s Why not Run’ event • Ravens Wood School donated £5,130.67.

In Memory of

Jake Dean

• Karen Carruthers sent £105.50 representing donations received in lieu of floral tributes, in memory of her mother Shirley Brooke.

In Memory of

Adam Dearnley

• Jordan Phillips, Luke Sills and Tom Ward completed the 3 peaks challenge. In total, the friends have raised £5,030 for CRY in Adam’s name. In February last year, friends Jordan Phillips, Luke Sills and Tom Ward were devastated by the loss of their friend Adam Dearnley. Aged just 26, Adam lost his life to SADS (Sudden arrhythmic death syndrome) without any prior cardiac issues. CRY supported the family and trio of friends following the bereavement, and this year, the friends decided to take on a challenge to raise funds in

Issue 91 | May to August 2023

The team then hot-footed it down to the Lake District for an overnight ascent of Scafell Pike, the highest mountain in England at 978m. Beginning at 11pm the pair began their ascent with a target time of 4 hours. It was a cloudless sky, so much so that they didn’t use their headtorches and instead navigated by moonlight, completing the mountain dead on 4 hours. The final mountain was Snowdon in Wales, standing at 1085m. There was a 5-hour target time, but by now they were starting to struggle with the fatigue of their knees and calves. The pair stormed to the top, summiting in 2 hours 15 minutes, but the descent was slow and painful. In the end, they crossed the line after 23 hours 40 minutes, leaving just 20 minutes to spare. Jordan, Luke, and Tom celebrated with some fizz at the finish line and the obligatory giant cheque photo. On completing the challenge, Jordan said “That was the most physically challenging thing I’ve ever done, I knew it was going to be tough, but I didn’t think it would be that tough!”. Luke agreed, adding “The 3 peaks challenge lived up to its name – it was a challenge. However, knowing that we had already raised so much money was

Our Fundraisers the motivation we needed to keep pushing to the finish line. The money will go towards helping so many people’s lives which makes every one of the 60,000 steps worth it!”. Tom didn’t get away lightly either, saying “I thought the driving was supposed to be the easy part, but I was very wrong. I ended up getting just two hours sleep while they climbed Scafell Pike, so I relied heavily on copious amounts of coffee!”

• UK Containers Ltd donated £4,117.

• Kenneth Grundy donated £100.

• Deborah Dixon sent a donation of £100.

• Deborah Dixon sent £510.30 from donations received at her screening weekend at Winnington Rugby Club and £478.55 from donations received at her screening at The Grange School, Hartford. • Sian Riley donated £325.

• Scott Anderson sent a donation of £1,636.47 raised through his sponsored Marathon Golf Day.

In Memory of

Thomas J Demaine

• John Bozson sent a donation £185 raised by his friends and family for his 80th Birthday.

• Looe Rowing Club donated £400. • David Bryning sent a donation of £629.25 raised from Barnton Juniors Charity Bowls Match. • Centre Parcs LTD donated £1,000.

In Memory of

Matthew Dewhirst

• Gary Dixon sent £108.16 representing donations collected at Whitchurch Rugby Club.

In Memory of

Aaron Dixon

• Elizabeth Gordon completed the MBNA Chester 10K

In Memory of

Reg Dolphin

• Kelly Dolphin donated £182.

In Memory of

Mena Donnelly

• Tiffany Donnelly sent a donation of £100 raised through a basketball tournament by St Louise’s Comprehensive College.

• Carly Dalkowski sent a donation of £100 in memory of Ronnie Jones. • Dr S Dilworth donated £100. • Alice Kramer sent a donation of £1,000. • Rick and Trish sent a donation of £100 in memory of Ronnie Jones.

In Memory of

Niamh Donohue

• Iona Charlton completed the Manchester Marathon raising £2,200.03.

• Alexandra Storey donated £100. • Carole Jones sent £342.50 representing donations received in lieu of floral tributes, in memory of Ronnie Jones. • Ashley Costello sent a donation of £1,441.29 from the team at WPRFCGirls.

www.c-r-y.org.uk

In Memory of

Jean Dubery

• Rob Dubery sent £200 representing donations received in lieu of floral tributes, in memory of his mother Jean.

Our Fundraisers In Memory of

In Memory of

• Graham Eastham sent a donation of £391.

• Wynne Owens donated £200 in memory of Sebastian and Howard.

Zoe Eastham

In Memory of

Robert Edington

• Liz Edington sent £1,741.97 representing donations received in lieu of floral tributes, in memory of her husband Robert.

Sebastian English

In Memory of

Olukayode Famoriyo

• Patrick Mckimmon fundraised for ‘C-R-Y 4 Kay 2022’, in memory of Olukayode Famoriyo raising over £16,000

In Memory of

• Hannah Rowland chose CRY as the charity to benefit in respect of sponsorship from a Charity Football Match fundraiser.

• Josh Ryan fundraised for the ‘10 Year’s for Harry Event’ in memory of Harry Faulkner.

Gary Edwards

We finally held the third football match and raffle in memory of our son on Sunday 15th April. The weather wasn’t as good as the first two years, and we therefore worried if people would turn up. We needn’t have worried! Gary’s twin brother Rob and friends enjoyed a great game on Taunton Town FC’s football ground, a total of six goals being scored. Afterwards family and friends enjoyed an afternoon in the Peacock Club where our annual raffle was held. We are really proud to have raised £1,020 with an additional £135 online. Our aim is to hold a local screening and awareness session in the town. - Hilary Edwards

Harry Faulkner

On Saturday 11th February, Berkhamsted Squash Club (Harrys second home) hosted an afternoon of top quality squash. Taking part were his old team mates, club players and professional players (Ben Coleman, Daryl Selby, Adrian Waller and Miles Jenkins) The event was well supported throughout the day, with large numbers of members and friends spectating. After the games had been played a raffle and auction (some amazing squash prizes) was held which helped to increase the overall monies raised on the day to over £3,500. His old friend and teammate Josh Ryan was the driving force behind the event, together with Harrys coach Adam Fuller. Together they designed an amazing shirt that was worn proudly by his friends in his memory. Harry was a humble young man...He would have been so proud of his friends and club. - Harry’s mum (Donna Faulkner)

• Hilary Edwards sent a donation of £325.

In Memory of

Rachel English

• Donna Faulkner completed the Royal Parks Half Marathon

• Christopher English donated £200. On Sunday 9th October, after months of early morning

Issue 91 | May to August 2023

Our Fundraisers training, blisters and tears, and together with my amazing friend Helen Vaites, who has been by my side since the day we lost Harry, we run the Royal Parks Half Marathon in Harrys memory. Being cheered on by the crowds was so encouraging, and never realised until you run how much a crowd supports and encourages you. My Harry, as always is in my heart, all I could hear was “Mum, you’re amazing, never thought I would ever see you run a race, especially a marathon” To be honest I was feeling the same! The finishing line was very emotional, so proud of my personal achievement, but I don’t think I could ever do it again. So very proud of the £1,650 that we raised for such an amazing charity. - Harrys mum x (Donna Faulkner) • Helen Vaites completed the Royal Parks Half Marathon and raised £485. • Stefan Faulkner chose CRY as the charity to benefit in resoect of sponsorship from ‘Raising a Glass (or two) for Harry raising £1,715. • Julian Craxton sent a donation of £165 raised through the Radlett Junior Squash Tournament.

In Memory of

Therese Field

• A cheque for £1,255.30 was donated by students and staff in RothschildPearce House during their charity week. We have been liaising with Tara Challenor, our local CRY ambassador who kindly came to talk to the students in an Autumn assembly and again recently to acknowledge the funds raised. We are very grateful to Tara for her time.

The charity weeks for each of our four houses involve students and staff undertaking a range of events. This year included basketball and football shoot-outs, raffles, a fayre, chess and Rubix competitions, cake and pancake sales, request-a-tune, chocolate sales and soak the teacher. We are so pleased to note that the amount raised is the most in any charity week. We are in the process of identifying dates for the next academic year when cardiac screening may take place at the school. CRY will also remain the chosen charity for our house for the academic year 2023-24. • Tara Challenor sent a donation of £355 raised by her performing arts group Stargazers, who put on a charity show in aid of CRY.

In Memory of

Conor James Feeney

• Maria Feeney completed the London Landmarks Half Marathon 2023 raising £740.

In Memory of

Anthony Fitzgerald

• Paul Brannigan completed the Liverpool Skyline Half Marathon raising £220.

In Memory of

Derek (Fergie) L Ferguson

• Raymond Ferguson sent a donation of £5,872. This was raised at a fundraiser from entrance donations, auctions and stalls/raffles. • The Cross Keys Rangers Supporters Club donated £1,500.

www.c-r-y.org.uk

• Lindsay Duncan Harris completed the Hackney Half Marathon raising £1,123.38 The Hackney Half Marathon 2023 was a good experience, perfect conditions and a great atmosphere. I hadn’t trained as much as I ideally should

Our Fundraisers have done so was pleased with my time of 2 hours 27 minutes, only a few minutes slower than my London Landmarks time for CRY last year. I am hugely grateful to everyone who sponsored me.

In Memory of

Rhian Nadine Fry

• Hannah Ball completed the Cotswold Way Ultra Challenge raising £3,761.12.

• Alison Fitzgerald sent donations totalling £100; £50 from Blackheath Rugby supporters club and £50 from Vic and Simon. • The Capital Group sent a Match Giving donation of £3,000 in relation to Habib Annous’ fundraising efforts.

In Memory of

Rockwell Gayakaya

• Harry Mckay completed the London Landmarks Half Marathon 2023 raising £515.

• Toby Jacobs fundraised and grew his hair 30cm in memory of Anthony Fitzgerald and managed to raise £1,215.

In Memory of

Eleanore Gillespie

In Memory of

Robert D Fitzpatrick

• John Gillespie sent £231 representing donations received in lieu of floral tributes, in memory of his wife Eleanore.

• Allan Scullion donated £100. • Michael Daly donated £100.

In Memory of

Steven Gilmour

In Memory of

Katie Fleet

• Janice Fleet sent a donation of £1,000 raised through various fundraising events over the past year.

• Donna Walls completed the Great Scottish Run. A total of £1,772 was raised. These funds will be donated to the Steven Gilmour Memorial Fund and will go towards preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families. - Donna Walls

In Memory of

Ben Forsyth

• Megan Miller completed the Maribyrnong 10K River Run. • Murray Mckenzie completed the Santa Run raising £1,022. • Phil Darby took part in the Youth Race day raising £283.80 • Margaret Forsyth sent a donation of £300 from collections at screenings in Musselborough. • Margaret Strang sent a donation of £100 in memory of Ben’s 26th birthday. • Alison Risi donated £100.

Issue 91 | May to August 2023

In Memory of

Ashley Goodwin

• Linda Goodwin sent £162.75 raised as follows; £80 from Mike Aggleton’s talk at a Probus club and £82.75 from car

Our Fundraisers boot sales.

In Memory of

• Linda Goodwin sent £113.85 raised in the following ways; £29.45 raised through a collection box at Cafe au Chocolat in Tewkesbury and £84.40 from car boot sales.

Kayleigh R Griffiths

• Leon Griffiths sent a donation of £1,153 from Maldon Golf Club. • Bill Shelley sent a donation of £1,850.

• Linda Goodwin sent £113.90 raised as follows; £34.25 from a collection box in Cafe au Chocolat Tewkesbury and £79.65 from car boot and gumtree sales.

In Memory of

Adam Green

• Tom Green sent £395 raised through screening day donations, the sale of CRY mugs and Judy’s Jams.

• Leon Griffiths sent a donation of £2,118 raised from Maldon Golf Club Captains Charity Tin and a Charity Golf Day.

In Memory of

David and James Hamilton

• Sarah Izzard sent £2,998 representing donations received in lieu of gifts at her 70th Birthday Party.

• The Strasser Foundation donated £500. • The Ashley Young Farmers donated £415.06.

In Memory of

Alexander Hampshire

In Memory of

Doreen B Green

• Peter Green sent £234.05 representing donations received in lieu of floral tributes.

In Memory of

Matthew Green

• Mary and Chris Morgan donated £100.

In Memory of

Mark Hancock

• Angela Hancock sent a donation of £637.20, raised by John Jones and his band ‘Still Standing’ who played a fundraising gig at the Biddulph Festival.

• Mrs Green sent £1,264.13 representing donations received in lieu of floral tributes.

In Memory of In Memory of

Thomas S Greenwood

• Karen Carruthers sent £105.50 representing donations received in lieu of floral tributes, in memory of her mother Shirley Brooke.

In Memory of

Alan Griffiths

• Ray Cornwall sent a donation of £1,780 raised through a Golf Day at Prestatyn Golf Club.

www.c-r-y.org.uk

Thomas Hardman

• Chris Hardy completed the TH96 2022 Run raising £390. • Jennifer Cross completed the TH96 Run and raised £691.

In Memory of

David Harrop

• Donations from the funeral of Mike Harrop totalling £345 to go into his son David Harrop’s Memorial fund.

Our Fundraisers In Memory of

Richard James Harwood

• Kathleen Dickinson donated £200.

In Memory of

Anthony Hayes

• Ben Scott fundraised for the ‘Ben’s Good Friday Football’ game, in memory of Anthony and raised £1,168.95.

Toby and friends eagerly anticipated kicking off a similar relay from Strasburg to Cologne on June 4, 2023. After Toby’s passing, his team decided to defer the race, taking the weekend to hold a fundraising run for the charity CRY in Toby’s honour. The route wound its way from Hackney to the Emirates stadium, following a path well-worn and loved by Toby. What Toby’s team imagined as an intimate event ballooned to more than a hundred devoted friends, family, and even colleagues, who joined in, all wearing Toby’s beloved Arsenal signature colour, red. As a result of the run which was organised by Your Friendly Runners, 430 supporters contributed £10,375 to CRY in Toby’s memory.

• Ben Scott chose CRY as the charity to benefit inrespect of sponsorship from the ‘Good Friday Football Match’ raising £1,805.43

In Memory of

Jonathan Hayman

• Stephanie and Fluff Preston raised £545 at the Sidmouth Seafest. Stephanie and Fluff Preston, and a group of friends, raised £545 on a stall at the Sidmouth Seafest Festival. The team made all the items for sale from reused and recycled materials; in keeping with the theme of the festival. • Stephanie and Fluff Preston raised £505 from various stalls.

In Memory of

Toby Hayward-Seers

• David Hare and the ‘Your Friendly Runners club, Hackney’ chose CRY as the charity to benefit from their fundraising. Following the successful and joyous completion of a 400 kilometre, six person relay race in Poland the year prior,

Issue 91 | May to August 2023

In Memory of

Matthew Hesmondhalgh

• Michael Coleran completed his ‘My Northern Castles Ride’ challenge, in memory of Matthew Hesmondhalgh. 250 miles – 14,500ft of ascent – 22 Castles. Garstang (Lancs) to Holy Island (Northumberland). It was just before all the lockdowns that I came up with the idea of a solo cycle ride across northern England connecting as many castles as possible along the way. Now that things are almost back to normal, I couldn’t wait any longer so, on a drizzly Monday morning (Sept 19) I set off from the ruins of Greenhalgh Castle in my hometown of Garstang, Lancashire. The weather improved and the miles ticked slowly by as I made my way to Penrith for my first overnight stop. Along the way I had ticked off a further six castles – Lancaster, Sizergh, Kendal, Lowther, Brougham and Penrith. I was thankful not to have to carry all my gear with me as my wife Jo, my trusty support driver, was meeting up with me along the way. Day two between Penrith and Haltwhistle turned out to be a harder day that I had imagined with lots of sharp, very steep hills around the Eden Valley to contend with. Kirkoswald Castle was followed by Corby Castle then into a very busy Carlisle to bag the city’s well preserved 900 year old monolith. Busy roads led me to Brampton then, catching glimpses of Hadrian’s Wall I passed by

Our Fundraisers the castles of Naworth and Thirlwall before the welcome sight of Bellister Castle, just across the road from my farmhouse B&B at Haltwhistle. Day three and up to Morpeth in Northumberland. This was the shortest day at 61 miles with not too many strength sapping hills – apart from the huge climb out of the Tyne Valley to avoid the busy A69 road! Still, all the effort made for a fantastic descent back down to the valley bottom. After a welcome coffee stop in the attractive town of Corbridge, the first of the day’s castles was Aydon, followed by Belsay (which I couldn’t see!), Mitford and Morpeth. The fourth and final day was when the weather changed! It stayed dry until the first castle of the day, Warkworth, but then the heavens opened! The rain was on and off through Alnwick and its magnificent castle but set in for the remainder of the day whilst riding up the Northumberland coast. The atmospheric ruins of Dunstanburgh were just visible through the mist on its remote headland then it was a flat few miles north through driving rain to Bamburgh. With the end now in sight the rain didn’t matter, I was wet, so wasn’t going to get any wetter. Holy Island is only accessible at low tide across a causeway so, meeting up with my wife, we waited for an hour in the warm dry cafe just before the causeway until the tide allowed us to go onto the island. Those last four miles were pure joy! It was wet, it was misty, but I sped along like it was the start of the ride, not the end. The howling sounds of large groups seals just out of sight was eerie as I rode along at the same level as the perfectly calm sea. At last, the beautiful sight of the magical, mystical Lindisfarne Castle was straight ahead.

I was there! Wet, bedraggled and tired but glowing with satisfaction, not just at completing the ride, but the knowledge that so many people had been generous enough to sponsor me in my quest to raise funds for CRY. I did this ride in memory of Matthew Hesmondhalgh. I never had the pleasure of meeting Matt but got to know his parents Paula and Barry who set up his memorial fund and have raised an enormous amount for CRY heart screenings. Also, and always in the back of my mind, is my late brother, Keith, who died suddenly of an undiagnosed heart condition at the age of 38. That was way back in 1981 and he would have been 80 this year. Maybe if there had been CRY and free heart screenings in those days, he could have still been here. A huge thank you to everyone who has helped raise £1,600 through this ride! • Barry Hesmondhalgh sent a donation of £655 raised through a Mega Jumble Sale organised by Samantha. • Jane Mary Wilcox raised £100. • Pauline Sanderson donated £100 raised from clothing sales. • Nathan’s Wastesavers donated £500. • Paula Hesmondhalgh sent a donation of £400 from various fundraising activities. • Barry Hesmondhalgh sent a donation of £758.14 raised at a Peter Rabbit inspired stand at the 2023 Garstang scarecrow festival. • Pauline Sanderson sent a donation of £140 raised through selling pre loved clothing. • Paula Hesmondhalgh sent a donation of £340 raised from Team Matt’s Tombola Stall. • Paula Hesmondhalgh sent a donation of £290.70 raised by Choir 1’s event. • Paula Hesmondhalgh sent a donation of £544 raised through a treasure hunt and raffle.

In Memory of

Kevin Hewitt

• Jacqueline Hewitt sent a donation of £350, raised by Commercial Fishing Club through their memorial fishing match.

www.c-r-y.org.uk

Our Fundraisers In Memory of

Jade Kayleigh Highfield

• Natasha Smith completed a sponsored skydive in memory of Jade Kayleigh Highfield raising £1,959.

• Andrew Brown sent a donation of £5,608.65. • Kirkcudbright Academy raised £1,072.11. • Lesley Hill donated £340 raised through her Eurovision Fundraiser. • The Rotary Club of Dumfries donated £1,000.

In Memory of

David Hill

• Rodger Hill sent a donation of £210 as part of the David Hill memorial match.

• Rodger Hill sent a donation of £155 raised by St. Joseph’s College S5 RE class through their Charity Chocolate Heart sale. • Annan and District Rotary Club donated £200.

David Hill Memorial Quaich • The Rotary Club of Thornhill & District donated £500. On Saturday 11th March 2023, the rugby teams representing both the Scottish Parliament and The Houses of the Irish Oireachtas came together for the inaugural match contesting the David Hill Memorial Quaich. David Hill, aged 30, had tragically died in the same fixture the previous year, playing for the Scottish Parliament side, where he was employed as a senior parliamentary researcher. David died due to a previously undiagnosed cardiac issue.

• The Rotary Club of Thornhill & District sent a donation of £185, following a nomination by Robert Hamilton in relation to his sweepstake winnings. • Dumfries High School raised £355 through their NonUniform Day. • Stranraer Academy donated £200. • Sharon Duncan sent a donation of £2,069.32. • Alex Service sent a donation of £10,907.74 raised from his sponsored 3 Peaks Challenge.

The annual fixture between the two parliamentary rugby teams, as part of a parliamentary six nations mirroring the main tournament, celebrates rugby and politics, and David had played in it on numerous occasions. Commissioned by his parents Rodger, Sharon, Lesley and Gordon, the David Hill Memorial Quaich is now a permanent trophy remembering David, honouring his life, and celebrating the friendship between the Scottish and Irish Parliaments. This year the Irish team won at Peffermill Pitches in Edinburgh, captained by Senator John Mcgahon with several parliamentarians taking to the field alongside friends, family, former colleagues and rugby compatriots. The match was followed by a Gala Dinner in central Edinburgh, attended by numerous politicians, rugby officials, members of the media and VIP guests, alongside over 200 of David’s family and friends. The weekend raised over £10,000 for both CRY and the Murrayfield Injured Players Foundation with the Scottish Rugby Union. The aim was to raise both money and awareness of cardiac risk in young people and fund screening for young people in Dumfries, where David was from.

Issue 91 | May to August 2023

In Memory of

Abby Hills

• White Court School donated £307.10.

In Memory of

Peter John Hinchliffe

• Sarah Hinchliffe sent a donation of £4,624.73.

In Memory of

Nicholas Holland

• Matthew Palmer chose CRY as the charity to benefit from his 40th Birthday celebration raising £495.

Our Fundraisers In Memory of

Justin Knaapen & Bradley Holbrook

• Jason Tomlin sent a donation of £344 raised at the ‘Anything Knaapen Festival’.

In Memory of

Daniel Hughes

• Chris Hall completed the Manchester Marathon • Ravensmead Catholic Primary School raised £147.26 through holding a toy sale. • David Hughes sent a donation of £4,880 from various fundraising activities. • The Discovery Academy donated £505.

In Memory of

Michael T Ince

• David and Margaret Ince sent a donation of £100 from a collection pot.

In Memory of

Camilla Irvine

• George Irvine sent a further donation of £3,612.52 raised through a Santa Run and Raffle.

In Memory of

Mia A Jennings

• Ian Parker sent a donation of £110 from the Community of the Bulls Head at Broken Cross.

• Ian Phillips donated £150.

• Ian Parker sent a donation of £103.

• The Onneley Tea Ladies donated £440.

• Ian Parker donated £110.

• David Hughes sent a donation of £210.

• Whaley Bridge Accident Repair Centre donated £6,000.

• David Hughes sent a donation of £12,744 from various fundraisers.

• James Jennings sent a donation of £215.72.

On the 16th of June we held the 2nd annual Dan Hughes Memorial Golf Day at Wolstanton Golf club in Newcastle under Lyme, Staffordshire.

• Debbie Christopherson sent a donation of £2,225 from Everybody Health and Leisure, raised through their fashion show and raffle ticket sales. • Philip Bosson donated £200. • James Jennings sent £295 raised from donations at his awareness stands. • Paul and Chrissie Carroll sent £550 representing donations received in lieu of wedding gifts. • Cheryl Nield donated £140.29.

20 teams of 4 golfers tee’d off at 12:30 and enjoyed unbroken sunshine as they completed the 18 holes. There followed a BBQ, auction and raffle before everyone enjoyed a few drinks to round off a brilliant day. All together £11,200 was raised for Dan’s memorial fund.

In Memory of

Darren Joliny

• Maria Joliny sent £300 raised from the annual Darren Joliny Football Extravaganza 2022.

• Morson International donated £10,000.

www.c-r-y.org.uk

Our Fundraisers In Memory of

Robert James Jones

• David Fradgley took part in the Tough Mudder Manchester. As a group of friends, we decided to take part in the Tough Mudder in Manchester on 23rd October to raise funds for CRY in loving memory of our dear mate Rob Jones, who sadly passed away last year. Leading up to the Tough Mudder event in Manchester we should have all done a little more training, but we knew we would help each other round. The team consisted of David Fradgley, Chris Leech, Gaz Humphreys, Pete Sargent and Liam Gilhooley, who has broken his leg 6 months previously. We really enjoyed the day in the Manchester torrential rain, especially the artic enema – jumping into tub of ice and being electrified whilst running through a muddy obstacle! It was a great event, and we want to thank everyone who donated, and we wish CRY all the success in supporting people like Rob’s family and friends.

• The Breedon Group donated £200. • Lisa Gray donated £100. • Andrea Joyce sent a donation of £550 raised through a fashion show.

In Memory of

Kathleen Judge

• Tracey Spencer collected donations for her Birthday in 2018, in memory of Kathleen raising £115.

In Memory of

Amritpal Kaur

• The Top Shop Mini Mart donated £3,555.20 raised from collection pots.

In Memory of

Paul Kelly

• Joe Kelly completed the Sparkasse 3-LänderMarathon raising £710.91

In Memory of

Andrew Key

• Mark Ross sent a donation of £500.

In Memory of

Aiden Joyce

• Cath Higham donated £120.

• Clare Gillies sent donations totalling £10,565.

• Ann-Marie Key sent a donation of £1,035 from cake sale proceeds and screening donations.

• Lorraine Joyce sent a donation of

• Greg Key sent a donation of £435 representing proceeds from a raffle at Longridge High School sports awards evening.

£3,000. • Lorraine Joyce sent donation of £3,000 from a fundraising event supported by O-I Glass ltd.

In Memory of In Memory of

Kieran Joyce

• Weobley High School completed the Weobly High 7-11 Challenge raising £1,214.

Issue 91 | May to August 2023

Harry J King

• Samantha King sent a donation of £320 raised through a Stall at St Mary’s Church, with the help of Natalie and Andy.

Our Fundraisers In Memory of

Judith Krish

grandson. • Jenny and Chris Dennis donated £100.

• Felicity Good donated £200. • The Downs Family donated £500.

In Memory of

Rishi Kukar

• Parvin Kukar sent a donation of £250 in memory of Rishi’s 26th birthday.

In Memory of

Carli Lansley

• Karl Lansley sent in 4 donations totalling £21,800. • Eddie Short donated £100.

In Memory of

Jannik Lam

• Sunny Sandhu donated £100.

• Elizabeth Talbot donated £120 in lieu of payment for personal training.

• Colin Campbell sent a donation of £1,054 raised through the Campbell Ramble 2023.

In Memory of

• Mark Roberts completed the Tour de Vale 75k cycle ride raising £437.97.

• Wythall Gymnastics Club donated £1,000 from a fundraiser in memory of Jasmine’s birthday.

Adam & Jenny Lambert

Jasmine Latham

In Memory of

• Hannah Fretz sent £200 representing a donation made in lieu of wedding favours.

• Nicola Lee sent a donation of £100 raised at Kettering midsummer market.

Anthony Lane

• Nathaniel Holland sent a donation of £158.60 raised through a Charity Football Match.

In Memory of

William Lane

Miriam Kate Lee

In Memory of

Jenny Legg

• Cherry Legg sent £305 representing donations received in lieu of floral tributes, in memory of her father Rev. Eric Buiton.

• Emily Jamieson donated £100. • Mike Evans donated £100. • Sophie Saunderson donated £100. • Mary-Claire Holliman donated £100. • Thomas Jones donated £100.

In Memory of

Samuel John Little

• Mimi Berry completed the Bath Half Marathon raising £1,674. • William Fisher completed the Singapore Marathon and raised £803.40.

• Helen Sandon donated £100 in memory of her

www.c-r-y.org.uk

Our Fundraisers In Memory of

In Memory of

• Allan Harvey and the Swanland Ducks cycle club completed the Swanland Ducks Coast to Coast cycle ride and raised £982.50.

• Jarinder Mann donated £200.

Jamie Loncaster

• Ian Clucas and the Swanland Ducks cycle club completed the Swanland Ducks Coast to Coast cycle ride raising £510. On 17th June, a group of 9 cyclists (Allan Harvey, Rich Foster, Ian Suddaby, Ian Clucas, David Fletcher, Adrian Lockyer, Brad Wilson, Philip Mackay and Cliff Puttock) rode 158 miles between St Bees and Whitby in one day.

Balinder Mann

• Narinder Mann donated £500.

In Memory of

Isa Marquardt

• Annette Jones-Kellener sent £110 representing donations received in lieu of floral tributes.

In Memory of

Lewis Marsh

• Jennifer Rademan donated £120. • Matt Rogers donated £100. • Ruth Whiddett donated £100. • Amy Jenkins donated £100. • Julia Dickinson donated £130. • Jon Winslade donated £150.

In Memory of

Martyn Luckett

• Brenda Luckett sent a donation of £6,062.54.

• Gill Weston sent a donation of £9,000.

In Memory of

Dean Mason

• Ross Bumby donated £100.

• Actif Sport and Leisure completed the Troelli Elusen Actif Charity Spin raising £255.

In Memory of

Alan Lumley

• Bob Phillips sent £375 representing donations received in lieu of gifts at his 70th Birthday.

• Jenny Lumley sent a donation of £500 in memory of Alan’s 38th Birthday. • Jennifer Lumley sent a donation of £270 raised through an annual Tag Rugby event at Barnard Castle School, The Alan Lumley Cup.

In Memory of

Stephen McAlpine

• Simon Garman donated £100.

Issue 91 | May to August 2023

Our Fundraisers In Memory of

In Memory of

• George McCann sent a donation of £850 raised from his evening of entertainment at The Varne Supporters Club.

• Llan Healthcare sent a donation of £521.12 raised from various fundraising events.

David George McCann

Owen Morris

In Memory of

• The Upstagers’ Theatre Group sent a donation of £2,200 following their Cinderella performance.

• Sherry Daniels completed the Abergavenny 3 Peaks Challenge and raised £105.

In Memory of

• Steven McFadzean sent a donation of £100 raised from collection tins in Annbank and Mossblown.

• Breadalbane Academy pupils raised £554.11 from their various fundraising activities.

Gina McCann

Alasdair McFadzean

David Moss

Andrew Murch

In Memory of

• Elizabeth McMillan sent £255 representing donations received in lieu of floral tributes, in memory of her father in law.

• Amaelle Marchal completed the Royal Parks Half Marathon raising £674.05.

Owen McMillan

In Memory of

Josh Merrick

• St Catherine’s RC Primary School raised £175. • Eileen Prendergast sent £930.20 representing a donation from Alex Lord and the team at TACE, raised from their dress down days.

In Memory of

George Morgan

• Melanie Barlow sent a donation of £360 raised at an annual squash competition, ‘The George Morgan Cup’.

Siddhartha (Cubby) Nanu

In Memory of

Austin Neve

• Gareth Stingemore sent a donation of £750 raised by his daughter, son and himself.

In Memory of

Dominic Newton

• Alice Surgy sent a donation of £180 raised from taking part in the Newport Half Marathon.

In Memory of

Jennifer A Newton

• Elizabeth Gold donated £105.

www.c-r-y.org.uk

Our Fundraisers In Memory of

James Nicholas

• Kevin and Lesley Nicholas sent a donation of £6,000.

• Jonathan Cotton donated £250. • Catherine Elvidge donated £100. • Ed Fife donated £250. • Amita Straesser donated £250.

In Memory of

Clarissa Nicholls

• Hughie Wong donated £250. • Matthew Bowden donated £100.

• Caroline Cook donated £250. • Daniel Moore donated £250. • John and Joanna donated £200. • Liz Staples donated £250. • Isabel Taylor donated £250. • Elizabeth Fordham donated £150. • Elizabeth Bamforth donated £100. • Rebecca Mondadori donated £100. • Robin Ogle donated £200. • Richard and Louise donated £500. • Michelle Holford donated £100. • Tequila Bone donated £250. • Emily Hunter donated £100. • Isabel Thompson donated £100. • David and Diane Redfern donated £200. • Sally Wokes donated £500. • John and Miriam donated £200. • Ingrid Southorn donated £200.

• Thomas Shropshire sent a donation of £100 from all at Diageo.

• Victoria Whyte donated £200.

• Mark Redfern donated £200.

• Ceri McIntosh donated £100.

• Natalie Cook donated £150.

• Debbie McAlpine donated £200.

• Philip Boeckman donated £500.

• Nicola Archer donated £100.

• Christopher Saul donated £1,000.

• Caroline Phillips donated £200.

• Roly Turnill donated £1,000.

• Deborah Karmel donated £200. • Alexander Matthewson donated £500.

• A donation of £750 was sent from Clarissa’s Grandma, Grandpa, Auntie Melanie and Auntie Hannah.

• Paul Marchand donated £250.

• Donna and Julian donated £250.

• Chris and Jane Watt donated £200.

• Christopher Pittway donated £100.

• Jonathan Marks donated £250.

• Graham White donated £500.

• Philipp Haas donated £500.

• Christa Dakin donated £100.

• Richard McElwaine donated £100.

• Andreas Bernstorff donated £500.

• Claire Cooke donated £200.

• Rowena Archer donated £110.

Issue 91 | May to August 2023

Our Fundraisers • Laura Levy donated £250. • Steve and Bongo Cooke donated £500.

mother) is my godmother and so I wanted to help in any way I can. I managed to swim 970 lengths over the week we were there. I hope this helps CRY - William (age 13)

• Elizabeth White donated £250. • Christian and Antonia donated £500. • Hannatu Gentles donated £100. • Gayathri Kamalanathan donated £250. • Alison Anderson donated £250. • Harry and Claire donated £250. • Hywel Davies donated £500. • Dan Gaydon donated £100.

We decided to raise money for CRY, a good charity that might be able to help prevent deaths like Clarissa. I swam 1000 lengths and raised £684 for CRY.- Freddie (age 14)

• Martin McIntyre donated £100. • Anna and Jaime donated £250.

• Frances MacIntosh sent a donation of £298 in respect of the ‘Emilia Romagna Summer Swim and Steps’ fundraiser.

• Cathryn O’Hare donated £250. • Victoria Macduff donated £250.

• Hilary Nicholls sent a donation of £300 in respect of Freddie, Will, Frances and Neil’s fundraising effort.

• Merijn Schellekens donated £150.

• Tsun On Choy donated £500.

• Tom and Samantha Fletcher donated £100. • Robert and Susie donated £100. • Margaret McElwaine donated £100. • Anthony Brockbank donated £200. • Ben Monaghan donated £500.

In Memory of

Barry Nivett

• Jenny Boag collected donations in memory of Ellen Nivett and Barry Nivett, for the Barry Nivett Memorial Fund.

• Neil and Tanya Dodgson donated £250. • Claire Jackson donated £250. • Charlotte Mulholland donated £250. • Robert Way donated £250.

In Memory of

Richard Northedge

• Pat and Derek Northedge sent a donation of £100 in memory of Richard’s 48th birthday.

• Isabel Winter donated £300. • Caroline Brown sent a donation of £300 in respect of sponsorship for Fred, Will, Frances and Neil’s fundraising efforts. My brother and I wanted to do something on holiday in Italy this summer to raise money for this good cause. We decided to do a sponsored swim. Hilary (Clarissa’s

www.c-r-y.org.uk

In Memory of

Alfie Nunn

• Terry Fearfield completed the Outlaw Half Bowood 2022 raising £715.

Our Fundraisers In Memory of

In Memory of

• Mark Galpin donated £190.

• Andrew Osborne sent donations totalling £6,150 in support of his ‘Row For Amy’ fundraising.

Ben O’Connell

• Cathy and Mark O’Connell sent a donation of £15,213, raised from their Sunflower Ball in memory of Ben’s 18th birthday. • Matt Reeves sent a donation of £4,855 fundraised during his year as Captain at Woldingham Golf Club.

In Memory of

Andrew Oliver

• Judith Oliver sent a donation of £270.50 raised at The Andrew Oliver Memorial Cycling Time Trials organised by Dave Cook and Ferryhill Wheelers. This included collection tin donations and proceeds from tea, coffee and cake.

In Memory of

Clayton Olson

• Jasper Benson completed the Race2Paris raising £2,190.73.

Amelia M Osborne

Row for Amy Update: Month One MHR is proud to be sponsoring Andrew on his journey as he rows solo and unsupported across the Atlantic in support of CRY. Andrew Osbourne is rowing 3,000 miles to raise funds for the charity Cardiac Risk in the Young (CRY), after his daughter Amy passed away of young sudden cardiac death, aged 25. Andrew’s journey started in the Canary Islands, and he’s already completed 1,000 miles of his journey. Despite the physical and mental challenges, he’s seen breathtaking sights along the way, including schools of dolphins and stunning sunsets. He’s even gone fishing to pass the time, making the most of his journey in the open ocean. He has also faced harsh weather conditions, including storms, but he’s remained strong and determined to reach his goal. He’s been sharing his experiences through social media, and his journey has been an inspiration to us all at MHR. The outpouring of support and donations he’s received is a testament to the impact he’s making for CRY. His journey across the Atlantic is not only a physical feat, it’s also been a huge success in raising funds for the charity. Andrew has already reached his goal of raising £100,000 and has now extended his target to £125,000.

In Memory of

Charlotte Ellen Orwin

• Huddersfield Grammar School raised £2,404.44. • Katy Hampton sent a donation of £1,145 from the ‘ladies who lunch’. • Huddersfield Grammar School raised £865.86.

In Memory of

Osahon Osawe

• Jason Stowell donated £120.11.

The challenge will take him roughly 90 days to complete and is the world’s toughest row, crossing the 5-miledeep ocean in his 20-foot rowboat. The journey requires over 1.5 million oar strokes, and he must consume over 5,000 calories a day to maintain his energy levels! Andrew’s journey is a true adventure, and we wish him all the best as he continues on his journey. We encourage

Issue 91 | May to August 2023

Our Fundraisers everyone to follow his journey and support CRY. Together, we can help make a difference and prevent young sudden cardiac death.

In Memory of

Ben J Peters

• Maria Rainford donated £200. • Butler Sherborne LLP sent a donation of £1,000 in support of Andrew Osborne’s ‘Row For Amy’ fundraising. • The Samworth Foundation sent a donation of £3,000 in support of Andrew Osborne’s ‘Row For Amy’ fundraising. • Stamford XT 41 Club donated £500 in support of Andrew Osborne’s ‘Row For Amy’ fundraising.

• David John donated £200. • Michael Peters sent a donation of £2,088.97 raised from the Kick for CRY charity football match.

In Memory of

Tom Petley

• Sarah Ward completed Dry January raising £275.

In Memory of

Paul Parker

• Katrina Parker donated £100.

In Memory of

Sam Parkinson

• Sara Munds donated £100. • Kate Morgan sent a donation of £100 from everyone at Anello.

• Serco Ltd sent a Matched Giving donation of £250 in relation to Sarah Ward’s Dry January fundraising efforts.

In Memory of

Christopher & Steven Phillips

• The Heart of Weston donated £914.12.

• Ordinary Friends donated £500.

In Memory of

Jake Anthony Pickford

In Memory of

Daniel Parris

• The Harrow Inn raised £109.03 through their Quiz Night. • Daisy Friend sent a donation of £595 raised by colleagues and customers of Marks and Spencer Bexhill.

• Gaye Pickford sent a donation of £450 raised through an Easter raffle. • Owain Jones raised £520 from his sponsored Sky Dive. • Gaye Pickford sent £190 from donations received at her screening day event. • Julie Thorne donated £100.

In Memory of

James P Patterson

• Kelvin Wilson sent a donation of £2,913 raised from a Charity Golf Day.

In Memory of

John Pirie

• The Wood Foundation sent a donation of £2,500 in respect of the Shetland Heart Screening YPI Award. • Brae High School sent a donation of £500 in respect

www.c-r-y.org.uk

Our Fundraisers of the Shetland Heart Screening YPI Award.

In Memory of

Samuel Polledri

• Louise Polledri sent a donation of £4,523.50 raised from their in memorial charity event ‘The Sam Polledri Charity Dinner’. • Jayne Andrews sent a donation of £1,450 raised in memory of David Andrews.

In Memory of

Elizabeth Rattray

• HSBC Plc sent a Match Giving donation of £125, in relation to Penny Rattray’s ‘50km Big Way Round’ fundraising efforts.

In Memory of

Timothy Rattray

• HSBC Plc sent a Match Giving donation of £125, in relation to Penny Rattray’s ‘50km Big Way Round’ fundraising efforts.

• Emil Mazzotta sent a donation of £607.50 raised from her sponsored ‘Escape from Alcatraz’ Triathlon Challenge.

In Memory of

Craig Rawlinson

In Memory of

Alessandro Pomfret

• Kay Rawlinson sent a donation of £6,085.

• Ally Candle Studio donated £323.50.

In Memory of

Alexandra Reid

• Helen Butler donated £120.

In Memory of

Craig D Powell

• Kim Garrod donated £100.

In Memory of

Ben Rendall

• Kim Rendall sent £768.89 representing donations received in lieu of floral tributes, in memory of her father, John Brunsden.

In Memory of

Luca Quinn

• Mimi Quinn donated £300.

In Memory of

Evan Robertson

• Tom Stimson donated £100.

In Memory of

Anthony James Rankin

• Sarah Gould sent a donation of £555, raised through her fitness company Buddies 4 Fitness by her members.

• Samie Aldoori donated £100.

In Memory of

Sabrina Roddy

• Terry Roddy donated £200.

Issue 91 | May to August 2023

Our Fundraisers In Memory of

In Memory of

• Clynelish & Brora Distilleries held a Staff Charity Raffle at thier work which raised £250.

• Joseph Wrigglesworth completed the London Landmarks Half Marathon 2023 raising £1,789.

• June Ross sent a donation of £320 from a quiz night.

• Team Shambles completed the Yorkshire 3 Peaks Challenge raising a total of £5,776.54.

Hamish Ross

• Anna Smith sent a donation of £691 from sponsorship for completing the Edinburgh Marathon. • Golspie Rowing Club donated £224. • Rogart Coffee & Blether donated £150.

In Memory of

Robert Rowan

• Colin Halstead completed the Great Bristol Run 10k raising £262 in memory of Robert Rowan. • Neil Greig completed the New York Marathon raising £7583.47

Benjamin Russell

In April 2021 a bright light went out when we lost Benjamin Clifford Russell to Sudden Arrhythmic Death Syndrome. Ben (aka B-Ronts/Captain Glaze) was funny, kind and caring – playing such a huge part in the lives he touched. To raise funds for ‘Cardiac Risk in the Young’ – Bek, Emily, Joe, Sam, Sarah, Tori, Alastair, Andy Jenkins and Andy Smith will be tackling the Yorkshire 3 Peaks Challenge. We hope to scale Yorkshire’s 3 highest mountains inside twelve hours. During the long slog to the summits we’ll reminisce over our treasured memories of Ben and recount many a funny tale along the way.

• Peter Edward donated £200. • The National Federation of Demolition Contractors donated £3,000. • Northriver Ltd donated £20,000.

In Memory of

Phoebe Eileen Ryder

• Eddy and Karen Ryder took part in the 12 A Week Challenge raising £2,565.

• James Carabine donated £250. • Suzanne Rowan sent a donation of £2,433.38 raised through the A K A Day 2023 fundraiser, in memory of Robert. • Thornton Golf Club sent a donation of £1,450 raised at their Seniors Charity Day.

In Memory of

Simon Rushby

• Tony Riley sent £1,085.96 raised from his sponsored WCF Boxing Fights.

www.c-r-y.org.uk

In Memory of

Suanu Saro-Wiwa

• Katie Driver and Hannah completed the Le tandem tour de Paris. Hi everyone!! We’re Katie and Hannah. We undertook our first fundraising event 4 years ago, a 10km run dressed as rhinos! This August we took on a new challenge, a tandem cycle from London to Paris – and back!

Our Fundraisers As amateur cyclists, getting to grips with a tandem was… interesting, but 729km of cycling, £1550 raised for an absolutely amazing cause and just like that…we made it back to London Town. I don’t think there was any point on this journey where we were really sure we’d make it in one piece – but we did, and it has been truly incredible!! (we might even go as far as to say we are really gonna miss the tandem)

In Memory of

Evan J Shonfield

• Millbrook Distribution Services raised £1,350 from their office World Cup Sweepstake. • Peter and Sharon Shonfield donated £100. • Sharon and Peter Shonfield donated £100.

In Memory of

Aashi Sinha

• Satish Gupta donated £2,000. • Amrit Bhakar donated £100. We are so so grateful for everyone who’s donated and supported us on our way, it’s really kept us going.

• Caroline May donated £100.

There’s probably a book we could write of all the lessons we’ve learnt, but top of the list would be to never ever (like seriously never) cycle on a motorway.

• Asif Imran donated £200.

R&R is very much needed right now, but you best believe this is not the last crazy idea we will come up with – so stay tuned;)

• Barking Group Medical Practice donated £1,000.

• Vidya Thakur donated £116.

• Meenakshi Rawal donated £100. • Suman Sinha donated £1,000. • Sanjula Sharma donated £110. • Mohamed Kanji donated £200.

In Memory of

Benjamin M Smith

In Memory of

Matthew Seymour

• Dora and Ian Cairns sent a donation of £285 raised from Gran’s knitting.

In Memory of

Dipesh Shah

• Pravin Shah sent a donation of £250 in memory of Dipesh’s 40th birthday.

Issue 91 | May to August 2023

• HSBC Plc sent a Match Giving donation of £250, in relation to Penny Rattray’s ‘50km Big Way Round’ fundraising efforts.

In Memory of

Bill Smith

• RUMS Men’s Rugby (Students Union UCL Medics) took part in the ‘Bill Smith Cup’ event raising £300.70

Our Fundraisers In Memory of

In Memory of

• Linda Smith sent a donation of £1,406 raised from her Annual Charity Night.

• Julie McCoy donated £315.

Robert Daniel Smith

• Linda Smith sent a donation of £914 raised in the following ways; £314 from St Michael’s Primary School and £600 from a collection.

In Memory of

Rupert Spurling

• Andrew Spurling chose CRY as the charity to benefit in lieu of gifts on his 80th Birthday raising £750.

Julia Swinglehurst

In Memory of

Claire Taylor

• Jennifer Shepherd chose CRY as the charity to benefit from her 30th Birthday fundraiser raising £340.

In Memory of

George Taylor

• Stuart White completed a Skydive and raised £618.46.

In Memory of

Philip Standing

• Richard Hallos donated £100. • Sue Fisher sent £100 for the 11th Phil Standing Golf Open. • Richard Hallos sent a donation of £500 raised through an annual meet up of the University of Warwick Mens Football Club. • The Mountbatten School donated £376.30 raised through plant sales.

In Memory of

Hannah Taylor

• Teresa Walker sent a donation of £577.35 raised from a Garden Party. • Maureen Bull sent donations totalling £198.34 raised as follows; £84.02 a collection box at The Castle Inn, £32 a collection box at the Homecraft shop and £82.32 from donations at events.

In Memory of

• Louise Staple-Hughes donated £113 from plant sales.

• Abbots Hill School raised £835.33 from their Easter Ball Event.

Callum Staple-Hughes

Dale Tennent-Butler

• Katy Studholme completed the Manchester Half Marathon raising £875. • Gillian Hughes sent a donation of £460 raised from plant sales throughout the year.

In Memory of

Jack Thomas

• Rachel Varney Completed the Cardiff Half Marathon raising £510.

In Memory of

Ian Strange

• Patricia Strange sent a donation of £100 in memory of Ian’s birthday.

www.c-r-y.org.uk

• John Hodges donated £200. • Colin Scott donated £100. • A donation of £100 from Colin and Jill Childs and

Our Fundraisers Alex and Andrew Traube-Childs.

tributes, in memory of her sister, Annemarie Thompson.

• June Thomas sent a donation of £400. • June Thomas sent a donation of £780 from Biffa, Ystrad Mynach.

In Memory of

• June Thomas sent £770 representing donations received in lieu of floral tributes, in memory of Jack’s Nan, Betty Thomas.

• Groby Ex-servicemens Club donated £100

Ryan Tilley

• June Thomas sent a donation of £400. • Blackwood RFC Griffins Rugby Development donated £2,559.93.

In Memory of

Ashley Trigg

• Mary-Anne Palmer set up a page for Faith-Louise, as she did a sponsored hair cut raising £700.92.

In Memory of

Jean Thomas

• Gillian Hall sent £175 representing donations received in lieu of floral tributes, in memory of her mother Jean.

• CRY was chosen as the charity to benefit in respect of fundraising from Magic Mike at Pontins.

In Memory of

£560.20 was raised at the United Kingdom Federation of Majorettes National Championships 2023. This was raised from a group novelty performance from Magic Mike’s group, Mick, Mandy, Trish, Helen and Georgina. Ashley would have loved watching it and would have had a good giggle.

• Chaos Netball Club donated £300.

Thank you to all the United Kingdom Federation of Majorettes for your amazing support.

Sarah Thomas

In Memory of

William P Thomas

• Nina Ward donated £170. • Simon Thomas sent a donation of £500.00 from the sale of clothing and family donations.

In Memory of

Jack Thompson

• Llara Sneller sent a donation of £968.

In Memory of

Kyle Thompson

• Ms Geraghty sent £200 representing donations recived in lieu of floral

Issue 91 | May to August 2023

• Karen Trigg sent a donation of £1,192.10 following the closure of the Capricorn Majorettes.

In Memory of

Hannah Turberville

• Lucy Turberville, Holly Townson and Aphra-Lily Middleton completed the Windsor Half Marathon 2022 raising £567. • Aphra-Lily Middleton, Lucy Turberville and Holly Townson completed the Windsor Half Marathon 2022, raising £472.

Our Fundraisers In Memory of

Sian Turnbull

• Mark Lovell sent a donation of £100 in support of a fundraising day at the Sports Club in Thrapston.

• John Turnbull donated £100.

In Memory of In Memory of

Fraser Vaughan

• Frank Vaughan completed the Glasgow Kiltwalk raising £1,255.33

Thomas Wall

• Christopher Wall chose CRY as the charity to benefit in respect of his birthday fundraiser and raised £460.

In Memory of

Oliver Vaux

• Gail Vaux sent a donation of £1,000 in appreciation to Karin Borland for her beautiful painting.

In Memory of

Chloe Waddell

• Eilish Brennan completed the Great North Swim and raised £1,257.25.

In Memory of

Richard Waight

• Kenneth Waight sent £131.65 representing donations made at his screening day.

Neil Ward

• The Barlow Red Barrows donated £1,000 raised from their various displays. • Elaine Ward sent donations totalling £1,287.40 raised in the following ways; £750 from The Cutler’s Charitable Trust, £235 from the Dronfield Gala, £50 from a Talk at Codnor WI, £45 from donations at Codnor WI, £50 from Trish Pickering’s yoga class, £50.40 Recycling from Derbyshire WI’s, £102 from Hazel and Raymond Vernon and £5 from Rutland Group of WI’s. • Elaine Ward sent donations totalling £520 raised in the following ways; £170 from Andrea Powell’s Dance Group and £350 from screening donations.

• Nicholas Price chose CRY as the charity to benefit in respect of sponsorship from his back wax raising £465.

On Saturday 1st July Ian and Elaine Ward supported Joe Williamson of Sheffield United Community Foundation in raising money for a heart screening for youngsters involved with the Foundation. Joe lost his cousin who was in his early 30s to an undiagnosed heart condition. Joe is walking and cycling to all clubs in the football leagues and on Saturday walked from Rotherham’s New York stadium to Sheffield Wednesday’s Hillsborough stadium finishing at Sheffield United’s Bramall Lane. He was accompanied on his route by members of Sheffield United Community Foundation as well as family and friends. Sheffield United’s Oli Arblaster joined them on the last leg from Hillsborough.

• Sue Eglesfield donated £200.

CRY representatives for South Yorkshire Jackie and Alan

In Memory of

Martin Wailes

• Sue completed a ‘All Around the World and Back’ fundraiser in memory of Martin raising £1,810.12.

In Memory of

Benjamin Walker

www.c-r-y.org.uk

Our Fundraisers Cousins saw the group off at the New York Stadium and they were welcomed at Hillsborough and Bramall Lane by Elaine and Ian. The event was featured on BBC Look North on the Saturday evening with interviews with both Elaine and Joe. The following week Ian was at the Crosspool Crawl which was a 7km run starting and finishing at the Three Merry Lads public house on Redmires Road, Sheffield. Some of the money raised will be going to the Neil Ward Memorial Fund to help fund future screenings by CRY. The 24th and 25th heart screening days funded by the Neil Ward Memorial Fund were held at Gosforth Playing Fields on 15th and 16th July. Over the two days nearly 200 young people were screened for undiagnosed heart conditions. Some were referred for further testing and others will attend a future screening for rechecks. To date nearly 2500 young people have been screened with the money raised by the local community. Lee Rowley MP for North-East Derbyshire visited the screening day. Ian and Elaine would like to thank everyone who has made these screenings days possible. Without the help and support of the local community they would not take place. Elaine continues to give talks to Rotary clubs, WIs, Church Groups, Probus.

In Memory of

Matthew Webb

• Louise Webb sent a donation of £900 raised in memory of her husband, Matthew.

In Memory of

Eric Webster

• Mr Webster sent £210 representing donations received in lieu of floral tributes, in memory of his father, Eric.

In Memory of

Oliver William Jamieson Wellings

• John Losh completed the Camino de Santiago Trail in memory of Ollie Wellings and raised £1,030.

In Memory of

David White

• Lisa Steel Completed a zipwire across the Tyne raising £395.

• The Rotary Club of Bakewell donated £1,000.

In Memory of

Alex Wardle

• Denise Wardle completed the Great South Run 5k raising £320. Big well done and thank you to Denise Wardle from Lee-on-the-Solent for completing the Great South Run 5k in Portsmouth, on Saturday 15 October. Denise was running in memory of her son Alex who died from SADS in 2016.

Issue 91 | May to August 2023

In Memory of

Stevie Wiggins

• Robert Bamber completed the F2 Crew Dragon Boat challenge. The Dragon Boat race went great with lots of fun, and we have raised over £700 so far with money still coming in!

Our Fundraisers There were 12 teams in total on the day from various companies, so we set up our Gazebo and made sure we had plenty of liquid refreshment (mainly alcohol) to keep our spirits high. Each team had 3 races and then the fastest 4 teams qualified for a 4 dragon boat race off final.

In Memory of

Ian (Flan) Wood

• Will Royce completed the Lochness Marathon raised £1,295.

In Memory of

Cara Bethan Woods

• Ian and Collette Bell chose CRY as the charity to benefit from donations in lieu of wedding gifts on their wedding day and raised £1,000. Our team ‘The F2 Crew’ managed to just scrape in with the 4th fastest time so just qualified for the final and by this time after 3 races and plenty of drinks we were in good spirits and well up for it. As the under dogs and the only team with zero practice, we were there for the spirit of the day and to raise money for CRY in memory of Steve. It was evident from the other teams in the final that we were not a threat to them however we managed to romp it home in second place with the team who had easily beat everyone else in the heats beating us by just 1 second which was quite amazing really. The sun was shining all day and our party gazebo was the place to be. All this was in memory of Stevie Wiggins and pretty much summed up his complete personality as he was the life and soul of everything. I am very proud of all our team and know that we have done him proud and cannot stress how much of a great day was had by all. Robert Bamber • Ann Coles sent a donation of £170 from the sale of donated items. • The Heartfelt Group sent a donation of £195 from screening donations and penny jar collections.

In Memory of

Hugh Wright

• Sandra created a page as Cheikh and Frances decided to collect donations for their wedding, raising £981.60.

In Memory of

Matthew Wright

• Claire Bland chose CRY as the charity to benefit in respect of sponsorship from her Fancy Dress Touch Rugby Tournaments and raised £7,014.23.

In Memory of

Sam Wright

• Kevin Wright donated £287.

In Memory of

Michael Yorston

• Breadalbane Academy pupils raised £554.11 from their various fundraising activities.

In Memory of

Kevin Wilson

• Stephen Boult sent a donation of £440 from the Rhein lads.

www.c-r-y.org.uk

General Fundraising • Chris Treasure completed Mount Kilimanjaro Summit Climb in support of CRY raised £2,228.95. • Lynn Willacy fundraised through the Stoke Team CHASE FY21 Programme in support of CRY raising £1,782. Emma Ricketts completed the Run Reigate Half Marathon in support of CRY. So, why did I run and why did I run for CRY? In 2016, during labour, I suffered heart failure. Happily, I gave birth to my beautiful, healthy, baby girl and, despite being very poorly myself, I was so happy to be a Mummy. I have been on a long, hard journey over the past years, and eventually heart specialists have diagnosed me with a Cardiomyopathy, which was pre-existing to pregnancy and labour. It is still unknown if I have had this Cardiomyopathy my entire life and been unaware. I am so lucky; my Cardiomyopathy does not massively impact my daily life. However, there are many people out there who have lost loved ones to a heart condition. During the first lockdown, when COVID hit, I went on a very personal journey to improve my health, fitness and mental well-being and, also with the hope, that more exercise, would slightly improve my heart function. Having never run in my entire life (having walked Race for Life in the past) I started a Couch to 5K. I worked hard. I persevered. I found it hard, but I wanted so much to run. I started to run 5K’s a couple of times a week. I was so proud of myself. By the second lockdown, I had the running bug! In 2021 I ran, Run Reigate, and completed my first ever 10K!!! I ran this run for Cardiomyopathy UK because I want to raise awareness of heart conditions.

Last year, in 2022, I turned 40 years old, and I ran the Run Reigate Half Marathon for CRY. This was my first EVER Half Marathon! It was an incredible achievement for me. I have made it my mission to raise funds for different heart charities or for people who have lost a loved one to Cardiomyopathy. This year, in 2023, I run another Half Marathon for Ruben’s Fund. • Tim Ward collected donations for his birthday in support of CRY raising £120. • Laura Corrick fundraised for the We Are Fulwood Scarecrow trail in support of CRY raising £417. • Dulwich Prep London completed a Park Run in support of CRY and raised £380. • Simon and Hannah Proctor chose CRY as the charity to benefit from their 21st and 50th Birthdays raising £120. • Harrison Tomsett completed the London Triathlon and raised £1,924.23. • Paul Dougall completed Run Sandringham 24 raising £200. • Mike Atwell swam the English Channel raising £3,054.41. • NCS Epsom Team Six donated £680. • David Barker trained with the Mighty 100 raising £200. • Tom Andrew completed the Cascais Ironman and raised £455. • Marina Mylondais completed the Royal Parks Half Marathon raising £510. • Andy Smith completed the Manchester Half Marathon raising £580. • Coco Bates chose CRY as the charity to benefit in respect of her sponsored hair cut in memory of her friend, Jake, raising £200. • Mhairi Hutchinson completed a cycle ride from Vietnam to Cambodia raising £1276. • Harry Cardwell took part in the Jersey White Collar Boxing raising £520.

Issue 91 | May to August 2023

General Fundraising • James Bovington took part in the Leeds Schools sponsored swims and raised £225.

impressed with the efforts of everyone involved and the work that they do.

• Ruby Ellis and Thought Machine Partnerships completed a charity walk for CRY raising £1,029.98. • Callum Hardy and the Tilman House boys of Berkhamstead School took part in ‘Tilman’s leap of faith’ raising £960. • Neil Coverley completed a marathon golf challenge and raised £265. • Lucy Gray took part in ‘The Factory Coach the Coach’ raising £455. Jamie Ballantyne and Christopher Halls Completed the London to Brighton 100K Challenge.

University friends Christopher and Jamie have always enjoyed taking on exercise challenges, from frequently running the Battersea 10k, to cycling from Land’s End to John O’Groats. 2022 was no different, and they sought a new challenge with the London to Brighton Ultra – a nonstop 100k continuous walk from Richmond down to the Brighton Racecourse. Training, however, was abruptly stopped in early 2022 when Jamie was hospitalised after feeling some tight chest pains. He was subsequently diagnosed with Myocarditis, an inflammation of the heart muscle, and had to spend 6 months resting as part of his recovery. Whilst very fortunate that it wasn’t more serious, it was still a shock to them both that someone so active in their early 30s could have an unknown heart condition. They were successfully able to transfer their London to Brighton Ultra places to 2023, and training began once again after the medical all-clear. Christopher and Jamie decided to raise money for CRY as part of the challenge, hoping to also raise awareness of heart health in young, active people. Jamie was fortunate enough to have a scan through CRY as part of his recovery and was very

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After many months of training, and with a goal to complete the challenge in under 24hrs, Christopher and Jamie successfully walked from London to Brighton from 27th-28th May, finishing just under with a time of 23hrs and 38mins. It was certainly one of the most intense challenges they’ve ever undertaken, especially the night-time section, but they are immensely proud of both completing the event and also the amount of money raised for CRY. Heart health is something they still continue to discuss, and they will keep sharing this experience with those around them to help raise more awareness. • Sumit Singhal chose CRY as the charity to benefit in respect of his Giff Gaff Ride and Stride fundraising raising £200. • Simon Young chose CRY as the charity to benefit in respect of sponsorship from his 90 day weight loss challenge raising £430. • Fleming House chose CRY as the charity to benefit in respect of their Valentine’s Day fundraising and candy grams raising £235. • Stephen Branagh completed the Belfast Marathon and raised £555. • Phillip McKeown completed the Belfast Marathon and raised £300. • Stewart Kyle completed the Belfast Marathon and raised £250.

General Fundraising • Jordan Kernaghan completed the Belfast Marathon and raised £230. • Rebecca Meredith completed the London Landmarks Half Marathon 2023 and raised £835. • Connect Health donated £120. • The University of Nottingham Lodge 7598 donated £450. • David Sochon sent a donation of £600. • David Brown donated £100. • Matt Symons donated £100. • Vicky Doyle sent a donation of £1,104.35 following the closure of her football club.

On Friday 15th July, after a 2 year break, Cedar + Co. hosted its annual charity golf day at Mickleover golf course. It was a beautiful day for golf, the food was lovely, plenty of drinks (it was important to stay well hydrated!) good networking and all for a great cause. It was a tight competition, but Invictus Communication took the lead and won the competition with a score of 87. Green 2k came second with 86 and the previous winners, Pontoon & Dock, came in third with 85. Neil King, Director of Cedar + Co. said, “After a 2 year break it was great to be back out on the course for our charity golf day. We are thrilled with the support we received from local businesses and organisations both in terms of entering teams, hole sponsorship and donating prizes towards the raffle. There are some truly great businesses in Derby! We managed to raise over £2,500 for the charity which we think is fantastic! CRY is a brilliant charity and deserve all the support.”

• Ian Tinsley donated £500. • Beverley and Sandra Ellis raised £320 through holding cake sales at Salisbury Football Club. • The Leyton Orient Supporters Club donated £100 raised from their swear box. • Aspire Competitions sent a donation of £500 following a nomination from Richard Corbett. • Saundersfoot NYDS Ltd donated £125 raised through their New Years’s Day Swim. Kathryn Senior sent a donation of £2,500 raised from the Cedar & Co Annual Golf Day.

• Susan McNally donated £100. • Leofric Studd donated £150. • Moira Ward sent a donation of £200 raised through a collection box. • Clive Woodbridge sent a donation of £3,315.71 representing funds raised during his time as Epsom and Ewell Mayor 2022/2023. • The West Cumbria Youth League donated £1,075 raised from the entrance fee for their annual finals weekend.

Issue 91 | May to August 2023

General Fundraising • Lloyds Bank Foundation sent a Matched Giving donation of £500, in relation to Kieran Harley’s fundraising efforts at the Northern Soul Charity Event.

• Royalty & Specialist Protection donated £500 raised from their Coronation Challenge Coin sales.

• Newport Shropshire Cycling Club raised £300 through their Reliability Ride.

• Oundle School sent a donation of £328.98 raised from Chapel collections.

• Justin Sullivan donated £100.

• Jennie Turner sent a donation of £315 raised from her sponsored Triathlon Challenge.

• The Sixth Formers at Arnold Lodge School raised £122 from their cake sale. • The Begbies Traynor Group raised £467.95 through a cycling event.

£150.

• Tracie Pal donated £100. • St Andrews Kingsbury donated £206.81. • Sapphire Balconies Ltd donated £2,500.

• Ergon Lodge L5038 donated £500. • Newsquest Media Group donated £195. • Tonbridge School donated £143.99. • Samantha Rickson donated £125. • Brooke Priory School donated £2,500. • Gordon’s School raised £896.49. • The Church of the Annunciation, Chislehurst sent a donation of £428 raised from their Lent collection. • Jo Connor sent a donation of £110 raised through collection pots at her Inflatable 5K Event.

• Phillippe and Miriam Spozio selected CRY as the charity to benefit from their wedding day collection raising £197.19.

• The Staffordshire Searchers raised £330.

• Jeremy Atherton sent a donation of £100 in lieu of a wedding gift for Lucinda and Joe.

• Neil Munro donated £100.

• Greenergy donated £500.

• Unity Peace & Concord Lodge L316 donated £255.

• Crieff High School raised £2,959.78.

• George Elliston sent a donation of £600.

• Metis Homes Ltd donated £139.21.

• Louise Forsyth donated £150.

• Nicholas Buckle donated £200.

• Colombia Threadneedle Investments donated £500.

• Mrs Ferguson donated £130.

• Haseltine Lake Kempner LLP donated £250.

• £1236.20 donated by Stuart Freeman

• The St Augustine’s Chapel Charity at Tonbridge School donated £2,500 from service collections.

• Lloyds Bank Foundation sent a Matched Giving donation of £500, in relation to Stephanie Parson’s fundraising efforts.

• Ian Hillman sent donations totalling £5,000 raised during his year as Captain at Woburn Golf Club. • Julia Simpson donated £100.

• NatWest Bank Plc donated £100. • The University of Nottingham Korfball Club raised £348 from a Korfball Tournament.

• Roger Gray donated £200. • Leek Town Football Club donated £297.78.

• The Financial Times sent a Match Giving donation of £647.38 in relation to the 24/7 Static Bike Ride fundraiser.

• Trent Lodge L4269 donated £100. • Worcestershire Trail Blazers Running Club raised

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Raising awareness with the Update

One way to further the use of CRY’s Update magazine is by sharing it with other people. For those who may not be familiar with CRY, the Update can be a good way for them to learn more about young sudden cardiac death and what CRY and our supporters are doing to prevent more tragedies. To inform others, and hopefully encourage them to get involved with CRY, why not try sharing the Update magazine however you can? This could include leaving a copy in a waiting room or reception area, or somewhere at your workplace; taking one to a fundraising event for passers-by to flick through; or even by posting a link to the online version on social media. As CRY’s printed publications halted during the pandemic, we developed the digital version of the Update. We’re able to add more engaging features to the digital issue that simply can’t work in the printed copy. For one, we can include links for you to quickly access relevant pages on the CRY website, social media posts from recent months, interviews from members of the CRY team and our supporters, and more. We also include videos covering all sorts of topics for you to enjoy watching as you click through the online magazine. The more that word of CRY’s work and young sudden cardiac death is shared – however that may be – the better. And because it’s so easy to share a link with others or post it on social media, the digital version is often easiest for raising more awareness too. We would encourage you to subscribe to the digital version of the Update, but you can also subscribe to receive a printed copy. You can sign up to receive your preferred choice here: www.c-r-y.org.uk/subscribe

Issue 91 | May - August 2023

Fundraising Events Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/upcoming-cry-events-places/ All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

Tough Mudder

Adidas Manchester Marathon

Form your own #TeamCRY with friends and family and tackle a teamwork-inspired, mud-filled obstacle course. With 5K, 10K, or 15K options all over England and Scotland!

The adidas Manchester Marathon is one of the UK’s premier running events, famous for its fast, flat and friendly route. The 26.2 mile challenge attracts both elite runners and those who thought completing a marathon would never be possible.

Throughout 2024

Inflatable 5K

Throughout 2024 Spurred on by pumping music and cheering supporters, bounce your way along a 5K inflatable course while raising awareness and funds for CRY. Providing a fun-filled and accessible alternative to a typical run, the inflatable 5K hosts events all over Scotland and England.

ASICS Wilmslow Running Festival March 24 2024

The iconic ASICS Wilmslow Half Marathon offers the opportunity to run through beautiful countryside and on a course that is renowned for producing fast times. Many people record their personal bests here. Huge thanks to Asics for supporting this event.

Easter 50 Challenge April 6 2024

Walk, jog or run an Ultra Challenge, or take on the 25K half challenge and make it an active Easter. From Windsor Racecourse looping through the Great Park with views of Windsor Castle , along the Thames Path and taking in some wonderful countryside.

London Landmarks Half Marathon April 7 2024

The London Landmarks Half Marathon is a closed road, central London run and is the only half marathon to go through both the City of London and City of Westminster. The London Landmarks Half Marathon is so much more than just a run!

April 14 2024

TCS London Marathon April 21 2024

The London Marathon is London’s most popular sporting event with over 40,000 people taking part. Join Team CRY in 2024 and help us raise awareness and funds for our vital work.

Edinburgh Marathon Festival May 26 2024

Fast & flat, this course was voted the fastest marathon in the UK by Runners World, ideal if it’s your first marathon or you are looking for a PB. The Edinburgh Marathon has sold out every year since 2008 and is the second largest marathon in the UK, behind only London.

CRY Heart of London Bridges Walk June 23 2024

The Bridges Walk each year hopes to give supporters the opportunity to connect with others, and remember those who have died from Young Sudden Cardiac Death (YSCD). 2024 will mark the 18th annual CRY Heart of London Bridges Walk. We hope that you will be able to join us in Southwark Park.

Great North Run September 8 2024

The Great North Run is the world’s biggest half marathon, with more than 57,000 runners pounding the streets of Newcastle. The 13.1-mile course runs from Newcastle upon Tyne to South Shields and attracts many world-class athletes.

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Raising Awareness in the Media Report Between May and August CRY featured in 124 print, national, online and magazine articles.

Headlines from May to August in the press... ‘“Man send home from A&E after having chest pains found dead hours later by parents’ The Mirror A 25-year-old man was found dead by his parents after being discharged from hospital with chest pain. Published 17 May 2023

‘More than 1000 young hearts screened in memory of son who died from cardiac arrest’ ITV News The parents of a man who died from a rare cardiac arrest when he was just 26 years old have raised enough money to screen over 1000 young hearts in his memory. Published 14 July 2023

‘Aspiring cricketer raising funds after surviving cardiac arrest at age of 18’ Metro Aspiring cricketer Ben Aldred is raising funds for Cardiac Risk in the Young after surviving a cardiac attack at the age of 18. Published 13 July 2023

‘Newark man takes on John O’Groats to London Marathon challenge to fundraise for cardiac screeings in brother’s memory’ Newark Advertiser Olie Sheppard cycled 810 miles from John O’Groats in Scotland, to London, starting on April 17, before running the 26-mile race in the capital on Sunday. Published 2 May 2023

Online... ‘Aaron Ramsdale’s brilliant gift as cricket club remembers teenager’ Stoke on Trent Live (23 August 2023) Porthill Park Cricket Club have had help from England and Arsenal goalkeeper Aaron Ramsdale as they prepare for annual Nathan Butler Memorial Read at https://www.stokesentinel.co.uk/sport/football/football-news/aaron-ramsdale-porthill-parkarsenal-8697820

‘Winsford firm raises £4,000 for Aaron Dixon Memorial Fund’ Northwich & Winsford Guardian (21 June 2023) A mum who lost her son to an undetected heart defect has been ‘overwhelmed’ by the generosity and support shown in her quest to save lives in his memory. Read at https://www.northwichguardian.co.uk/news/23601984.winsford-firm-raises-4-000-aaron-dixonmemorial-fund/

For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia 62

Issue 91 | May - August 2023

CRY Update January - April 2023 Our Fundraisers By fundraising for CRY you will be helping to: • subsidise CRY’s national cardiac screening programme • fund CRY’s bereavement support programme to provide counselling and support to affected families • support research into young sudden cardiac death (YSCD) • develop the myheart Network to support young people living with cardiac conditions • provide all CRY literature and information free of charge • develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources. If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone. For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donate All your help is greatly appreciated.

Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.

Our Patrons The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons. For more information visit www.c-r-y.org.uk/about-us/patrons

Our Mailings 1. CRY Update magazine Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.

2. CRY enewsletter Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.

Current Patrons of CRY: Rob Andrew MBE • John Barrowman MBE • Jeremy Bates • Ben Brown • Clive Clarke • Jack Clifford • James Cracknell OBE • Nick Easter • Jonny Evans • Baroness Ilora Finlay • Simon Halliday • Michael Hoey • John Inverdale • Tom James MBE • Pat Jennings OBE KSG • Rob Key • Gary Longwell • Pixie Lott • Emily Maitlis • Graeme McDowell MBE • Lee Mears • Bill Neely • Lawrence Okoye • Phil Packer MBE • Sir Steve Redgrave CBE • Vincent Regan • Joe Root • Andy Scott • Roger Taylor MBE • Professor Gaetano Thiene • Gregor Townsend MBE • Andrew Triggs-Hodge MBE • Andrew Trimble • David Walliams • Alison Waters • Matt Wells • Sir Clive Woodward OBE

If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know: • Complete the online form; www.c-r-y.org.uk/subscribe • Call the CRY office; 01737 363222 • Email the CRY office; cry@c-r-y.org.uk

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Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS). CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.

CRY also works to guide and support families and close friends affected by YSCD. We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD. In 80% of cases of young sudden cardiac death there are no prior

symptoms of a heart defect. CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information

1 in 300 young people CRY tests will have a potentially lifethreatening heart condition. CRY believes cardiac screening should be available to all young people aged between 14 and 35.

CRY is grateful for grants or donations from trusts and foundations. We would like to thank the following for the generous support they have given us:

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A & R Woolf Charitable Trust • Aubrey Orchard-Lisle Charitable Trust • The Bartle Family Charitable Trust • The Brian Shaw Memorial Trust • Borrows Charitable Trust • The Cantiacorum Foundation • Carval Foundation • The Cecil Rosen Foundation • Charles Littlewood Hill Trust • The Charles Wolfson Charitable Trust • Childwick Trust • CMS Cameron McKenna Foundation • Cosaraf Foundation • Doris Field Charitable Trust • The Edith Murphy Foundation • G C Gibson Charitable Trust • G M Morrison Charitable Trust • Gawthorn Cardiac Trust • Hasluck Charitable Trust • James Tudor Foundation • Kent Family Charitable Trust • The Lady Forester Trust (supporting the work of CRY in Shropshire) • Leathersellers’ Company Charitable Fund • The Mabel Harper Charitable Trust • The May Gibson Charitable Trust • The Rachel & David Barnett Charitable Trust • The Samuel Storey Family Charitable Trust • The Schroder Charity Trust • Sir John Sumner’s Trust • Sir Robert Gooch Charitable Trust • St Christopher Health Fund • The Stanley Grundy Foundation • Tudor Foundation Inc • Vernon N Ely Charitable Trust

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

Update Magazine 91

Articles inside

CRY Heart of London Bridges Walk 2023

Ride London - Essex

Medicine and Me: Young Sudden Cardiac Death

CRY Screening Report Update 91

Suzanne Rowan : Representative in West London