Update Magazine 90 by Cardiac Risk in the Young

News and Events | Raising Awareness | Our Fundraisers

Update 90| January to April 2023

In this

News from the Chief Executive

Alison’s Column

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Why Do I Support CRY?

| 18

Research News

| 20

Our Fundraisers

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Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

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Newsletter

CRY Update 90 January to April 2023

Inside Update 90

Editor Dr Steven Cox

Chief Executive

Deputy Editors Emma Hartnett

Publications Manager

Oliver Sparrow

Communications Assistant

As Deputy Editors of the CRY Update it is our responsibility to put together this newsletter, and our ambition that you find all the CRY news, events and fundraising in these pages to be of interest. We try to endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to contact CRY if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section. If you would like to contact us about the magazine please do so via updatemag@c-r-y.org.uk or on 01737 363222. Thank you for your help.

Contributors Alison Cox MBE

Meet Our Representative News from the Chief Executive CRY Online CRY Screening Report CRY Centre for Cardiac Pathology (CRY CCP) Report Alison’s Column ‘Why Do I Support CRY?’ Campaign Research News Heart of West London (Brentford FC) Screening London Landmarks Half Marathon London Marathon Our Fundraisers Fundraising Events Raising Awareness in the Media Report

Founder

Professor Mary Sheppard Consultant Cardiac Pathologist

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Head Office:

Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

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For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left: 1. Professor Mary Sheppard and her team at the CCP. Read more on page 13. 2. CRY Representative Jenny Boag volunteering at the Bridges Walk. Read her story on page 3. 3. CRY Research. Read our latest updates on page 20

Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more. Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised. If you can supply a writeup or photos for any fundraising activities you have taken part in, please email update@c-r-y.org.uk. Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.

Issue 90 | January - April 2023

Heart of West London Screening. Read full write up on page 28.

Alison at the Heart of London Bridges Walk Read Alison’s full column on page 14.

CRY Supporter running the London Marathon. Read the full write up on page 30.

Former CRY Research Fellow Dr Abbas Zaidi running the London Marathon. Page 30

CRY Volunteers and staff at the London Landmarks Half Marathon. Read the full write-up on page 29.

‘Why Do I Support CRY’ Campaign. Read more on page 18.

10. CRY Supporters running the London Landmarks Half Marathon. Read the full write-up on page 29

11. Screening event at Spondon College in memory of Joe Kellogg on page 12. 12. CRY Supporter at the London Marathon 2023. Read more on page 30. 13. Why Do I Support Cry? Campaign. Read the full write up on page 18.

To subscribe to the online version of the CRY Update, which includes extra features such as embedded videos, visit: www.c-r-y.org.uk/subscribe

Copyright © 2023 Cardiac Risk in the Young. Registered Charity No. 1050845 A Company Limited by Guarantee. Registered in England & wales (3052985) & in Scotland (SC052985) Registered Office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD

Meet Our Representative Jenny Boag Representative in London My darling brother Barry was 28. It was the last game of the season for Rayners Lane FC, the team he had played for since he was 17. The result of the game was not important to league standings, so the Manager changed around a couple of players’ positions. Barry opted to play midfield, rather than his normal left/ right back position. He would have played in any position for Rayners Lane; he loved the club and loved playing football. Not long after the second half started, Barry collapsed in the middle of the pitch… CPR was given immediately by a fellow player and long-time best friend and an ambulance called, but sadly Barry had gone. This was in May 1985.

The loss of Barry has had the most profound effect on my family and his very many friends, it is very hard to comprehend that on average, every week, 12 other families feel the same pain and loss.

It is a privilege to volunteer and represent CRY, and feel I am keeping Barry’s memory very much alive every time I pull on my CRY t-shirt.

Little was known then about SADS or undiagnosed heart conditions and it wasn’t until 1996, when our family became aware of CRY, that things started to make sense. Barry’s passing wasn’t just ‘one of those things’ and more needed to be done to raise awareness about young cardiac risk.

If you would like more information about the myheart network and the support services that we offer, such as the literature we provide and information on different cardiac conditions, you can visit the myheart website at www.myheart.org.uk. There is also the myheart YouTube channel, which includes content such as videos sent in by members sharing their experiences of being diagnosed or undergoing certain tests, as well as myheart cardiologist Dr Michael Papadakis answering a range of frequently asked questions.

You can go to the myheart YouTube channel here: bit.ly/2QjiTyl And here’s where you can find the myheart network on social media:

@myheartnetwork @myheart_UK

www.c-r-y.org.uk

News from the Chief Executive Dr Steven Cox

CRY Chief Executive

January

@Drstevenjcox drstevenjcox Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from May to August, as well as information about some of CRY’s events in this period. Dr Steven Cox, Sandra Jones, Nick Jones and Hope Jones at the CRY Screening Centre

Echocardiogram machine donated in memory of Ethan Jones January 7

CRY Founder Alison Cox MBE and CRY Chairman Hugh Mulcahey

CRY’s Founder Alison Cox MBE Retires After 30 years of dedication to saving young lives, CRY’s Founder, Alison Cox MBE, has decided it was the right time to retire. Alison leaves behind her an incredible legacy. As Hugh Mulcahey, CRY’s Chairman, said “On behalf of CRY’s Trustees, staff and families, I would like to thank Alison for everything that she has done. Quite simply, CRY would not exist without her.” Turn to page 14 to read a message from Alison with foreword from CRY’s Chairman, Hugh Mulcahey.

On the first weekend of the year, I was joined by Ethan’s parents, Nick and Sandra Jones, and Ethan’s sister, Hope, at the CRY office where they presented an echocardiogram machine for CRY’s screening programme, funded in memory of Ethan. The screening weekend at CRY’s National Screening Centre, at our office in Leatherhead, was also funded in memory of Ethan. These events are always well attended, and it was fantastic seeing so many young people start to arrive as the day began. All our meeting rooms are now converted with medical curtains and all the necessary screening equipment (such as beds, machine stands and drawers for consumables) permanently set up to facilitate this incredible service.

BBC Look North Screening Feature in memory of Nathan Ayling January 7 BBC Look North ran an in-depth screening feature based on an event which took place on Wednesday 11th funded by CRY Supporter, Gill Ayling in memory of her

Issue 90 | January - April 2023

News from the Chief Executive When I visited the CRY centre Zephryn Fanton demonstrated the kit and showed me what this upgrade means to the team. Zephryn is one of the CRY funded expert physiologists at the centre, conducting ECGs, ultrasound investigations (ECHOs) and exercise tests with our team of doctors.

February son, Nathan. The feature included interviews with Gill and CRY Doctor, Dr Raghav Bhatia. The story featured on the lunchtime and evening bulletins, raising important awareness of CRY’s vital work.

Why do I Support CRY Campaign Throughout February

Dr Steven Cox and Zephryn Fanton

Freya’s CPET January 16 I visited the team at the CRY Centre for Inherited Cardiac Conditions at St George’s Hospital, to see CRY’s upgraded CPET machine. The CPET, often better known as a VO2 max exercise test, is a vital piece of kit at our centre; used routinely for families when referred to the centre after a young sudden cardiac death or if they are experiencing worrying symptoms This is one of several essential pieces of medical machinery CRY funds at the Centre and we were delighted that the family of Freya Cox agreed to fund the important upgrade to the machine in her memory, to ensure the team are using the most up to date medical equipment.

As part of Heart Month 2023 CRY launched ‘Why Do I Support CRY?’, a new campaign which aimed to tell the stories behind CRY. The response to the campaign was overwhelming, with hundreds of responses coming in, many sharing deeply personal stories. It was incredibly moving to read and listen to each response and see the true impact of a young sudden death. Read more about the campaign and some of the responses on page 18.

Adjournment Debate on Parliament TV February 1 Holly Mumby-Croft MP took part in an adjournment debate in Parliament on sudden cardiac death in young people, this was raised by Holly following a meeting with Gill and Steve Ayling after the death of their son Nathan.

www.c-r-y.org.uk

News from the Chief Executive Holly talked about the terrible impact young sudden cardiac death had on Gill & Steve Ayling when Nathan died.

The Government must address all the points raised if the National screening board is to make a meaningful decision about cardiac screening for young people. All aspects from genetics and defibrillators for reactive measures as well as ECG screening and symptom awareness for preventative measures must be considered. This is a step in the right direction and CRY looks forward to working with Holly Mumby-Croft MP and other cross-party MPs to get these questions answered.

BBC East Midlands feature in memory of George Watson February 27 CRY was the lead story on BBC East Midlands early evening news which featured a CRY screening in Derby, funded by the family of George Watson. This included an interview with George’s mum, Marie. A BBC Radio Lincolnshire presenter was screened at this event, with the follow up audio feature broadcast a fortnight later on 6th March on BBC Radio Lincoln. This included an interview with the organisers of a regular screening at Bourne Grammar School in Lincoln as well as an interview with me.

If you would like to watch the debate, visit: https:// parliamentlive.tv/event/index/253ff768-8268-4fbf-8d4bade339473992?in=17:32:23 Further to their heart screening in January and their ongoing campaigning work with local MP, Holly MumbyCroft, Gill and I were interviewed by ITV Yorkshire on the same day as the adjournment debate.

ITV Meridian feature in memory of Ben Smith February 11 On the early evening bulletin, ITV Meridian broadcast a feature about CRY’s screening programme focusing on the family of Ben Smith. The local ITV news team had followed the family’s screening journey since Ben’s death in 2017 and approached Ben’s mum, Caroline, to request the attendance of a reporter at this, their second screening (held at King Edward VI School, Southampton). Following the filming they produced an excellent feature in which Caroline was interviewed.

Issue 90 | January - April 2023

BBC Morning Live feature in memory of Daniel Hughes February 27 The CRY team worked closely with the BBC production team to help set up a day of filming at a CRY screening day in Derby. The screening day was set up by CRY Representatives Dave and Sue Hughes in memory of their son, Daniel. This 12-minute feature on this highprofile and popular daytime show included interviews with Dave and Sue Hughes; CRY Research Fellow, Dr Sarandeep Marwaha; and Lucy Smith, who was identified with a potentially dangerous heart condition at a CRY screening and successfully treated. If you would like to watch the programme, please visit: www.bbc.co.uk/iplayer/episode/m001jnk0/morning-liveseries-4-02032023

News from the Chief Executive

March

and local communities. Once politicians start to take the impact of young sudden cardiac death seriously, we will start to move towards a time when much more is being done to prevent young sudden cardiac deaths and every young person will have the opportunity to have their heart tested. Following the David Hill Memorial Quaitch Match I joined John Beattie on his BBC Radio Scotland drive-time show, discussing CRY’s work, young sudden cardiac death and the importance of heart screening.

ITV Boarders Interview in memory of David Hill March 3 In this feature, Alex Hill (David’s brother) was interviewed about his incredible fundraising efforts walking the Three Peaks in memory of his brother, David Hill. A week later the 9th David’s parents (Roger Hill and Sharon Duncan) appeared “on the sofa” on Scotland’s flagship, daily magazine news programme, BBC Scotland “The Nine”. And on the 10th, Roger was interviewed on BBC Radio Scotland.

The Times article in memory of David Hill March 11 On the 11 March, teams from the Scottish and Irish parliaments faced each other in the first annual David Hill Memorial Quaich. The friends and family of David Hill launched this fundraising event in David’s memory. David’s father, Rodger Hill was interviewed for The Times and the paper published an article raising awareness of the importance of screening, and the fundraising the family are doing to host CRY screenings in Dumfries.   As well as helping to raise vital funds, this event – and future events in coming years – will also raise significant awareness for CRY across Scotland and amongst parliamentarians, politicians and key decision makers. This could have an important impact on CRY’s wider campaign to ensure politicians understand the terrible impact these tragedies have on so many families, friends

Andrew Osborne completes 3,000 miles across the Atlantic in memory of his daughter March 28 In February the “Wake up with Ady Dayman show” on BBC Leicester featured Andrew Osborne’s trans-Atlantic RowforAmy challenge. By the end of March Andrew had completed his incredible 3,000-mile row. Before he had finished, he had already raised more than £150,000 and he is still receiving donations months later. As well as raising vital funds, an incredible amount of awareness of CRY and the importance of screening has also been raised, with Andrew’s story being featured on BBC News. We would encourage you to go to www. rowforamy.com to read Andrew’s blog. “The row is a time in my life that I will never forget and 3 months that I am truly grateful for. It was just me, my boat and the ocean. So peaceful, yet so gruelling. I now honestly believe that if you set your mind to something, then you really can do it. With determination, dedication and a bit of grit then anything is achievable. You just

www.c-r-y.org.uk

News from the Chief Executive have to start and take it one day at a time, one stroke at a time and eventually you will reach your destination. If I can do it, anyone can.

by MPs Dr Rupa Huq (Ealing Central and Acton) and Ruth Cadbury (Brentford and Isleworth) as well as several players from Brentford FC Women’s 1st and B Teams.

And most importantly above all else, Amy’s legacy lives on through the The Amy Osborne fund. She would have loved all this. It was all for her.”

Go to page 28 to see the full write up, photos and a click through to the video.

It is a truly epic achievement which has been completed by fewer than 200 people. We are privileged to continuously receive inspiring support from families such as Amy’s who sadly know all too well the pain of losing a loved one at a young age to sudden cardiac death. It is incredible how so many bereaved families channel their own traumatic experience to prevent others suffering a similar loss, by undertaking amazing awareness and fundraising challenges such as Andrew’s rowing event.

Toren Scott, Peter Lewis, Suzanne Rowan, Dr Steven Cox, Pontus Jansson, Ellie, Martha Pratt, Josh Dasilva

Heart of West London screening in memory of Rob Rowan March 25 As part of the Heart of West London partnership, Brentford FC Community Trust hosted the CRY team for our 5th screening event in memory of Rob Rowan. CRY Patron and former Brentford FC player and manager, Andy Scott, joined Suzanne and the CRY team on the day along with Brentford FC players Pontus Jansson and Josh Dasilva. The club arranged for their film crew to interview the players as well as our team to share on social media to help raise awareness of the importance of screening. On the second day of the screening the team were joined

Issue 90 | January - April 2023

April

London Landmarks Half Marathon April 2 Thank you and congratulations to the 37 CRY runners who took part in the London Landmarks Half Marathon on Sunday 2nd April. With 17,249 runners taking to the streets of London, the fantastic atmosphere along the route really made the day special.   Read the full write-up on page 29.

BBC East Midlands feature in memory of Nathan Butler April 2 CRY’s screening programme was featured as the lead story on BBC East Midlands early evening news following a 2-day screening event in Derby (funded by CRY Representative and long-term supporter, Angela Butler). The weekend comprised the 19th and 20th screening days funded in memory of Angela’s son, Nathan – and

News from the Chief Executive this milestone event led to a lengthy and informative feature, including interviews with both Angela and CRY doctor, Dr Nikhil Chatrath.

research has always focused on the present, improving the way we screen young people, improving our understanding of the causes of young sudden cardiac deaths, helping young people have the best quality of life while living with these conditions. In this update we have included some interviews with current and past research fellows about some of the most recent work they have published. Recently, two important research reviews – spearheaded by Dr Sabiha Gati, now a Consultant Cardiologist at Royal Brompton and Imperial college, who had previously been a CRY research fellow, and current fellow Dr Nikhil Chatrath– have been published in Heart (the journal of the British Cardiac Society) to help ‘unpick’ some of the myths regarding physical activity and inherited heart conditions.

TCS London Marathon April 23 We were delighted to have had 102 runners take part on behalf of CRY, raising both vital funds and awareness. Some runners were taking the marathon on for a second or third time for CRY, others stepped in to fill places with only a month of training. One runner even decided that 26.2 miles was just one part of their challenge and cycled 810 miles from John O’Groats to London the week of the Marathon. Former CRY Research Fellow and consultant cardiologist Dr Abbas Zaidi took part and completed the marathon in 3 hours and 15 minutes. Dr Zaidi was a CRY Research Fellow from 2010-2013 and during this time helped screen over five thousand young people for cardiac conditions and continues to support CRY to this day with his expertise in cardiology. It was great to see CRY runners mentioned in the BBC TV round-up on the evening of the 2023 London Marathon Turn to page 30 to read the full write up.

The impact of exercise and physical activity on young people living with a heart condition is an issue that often comes up at myheart meetings or is discussed amongst our members. As such, CRY has always been committed to supporting a range of research projects, looking at these issues and striving to gain further understanding about the benefits of physical activity for young people with a diagnosed heart condition, as well as ‘safe’ parameters for exercise. To read more about this go to page 20. Another fantastic interview in this update is with Dr Raghav Bhatia. Raghav provides some wonderful insights into what it means to be a CRY research fellow, how it has helped him and some of his research achievements whilst being funded by CRY.   To read Raghav’s interview in full go to page 23.

If you would like any help with generating awareness and media content around your fundraising efforts or screening events, or if you would like to talk through CRY’s key messages ahead of a media interview, please do contact Jo Hudson in our Press Office on 0770 948 7959 / jo.hudson@trinitypr.co.uk

Communicating the impact of CRY’s research

Jo is always keen to hear from our CRY families who feel able to discuss and share their experience, as part of our overall communications programme and ongoing commitment to raising awareness.

CRY’s research continues to transform the way we understand the causes and prevention of young sudden cardiac death. Whilst often research takes many years before it starts to impact medical practice, CRY’s

The impact of highlighting CRY’s work via the media (whether press, broadcast or digital) is huge – and our Press Office is here to help and support you should you wish to become involved.

www.c-r-y.org.uk

CRY Online Social media Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy. In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us. In this four month period CRY’s Instagram page had over 200,000 impressions/engagements, with over 500,000 on Facebook, and 450,000 on Twitter/X.

Families.

In January we opened registration for the CRY Heart of London Bridges Walk, and over on Facebook this announcement was incredibly popular, with the launch video being viewed over 9,000 times, showing just how important this event is to so many CRY

During Heart Month in February 2023, CRY launched ‘why do I support CRY?’. The campaign aimed to personify and tell the stories behind CRY. The campaign was met with hundreds of responses, many sharing deeply personal stories of the impact of Young Sudden Cardiac Death (YSCD) and our cardiac screening programme. A post that had 13,299 engagements and 909 reactions was a Daily Express article about A Place in the Sun’s Jasmine Harman and her husband Jon. Jon sent his moving response to the Why I Support CRY campaign in memory of his sister, Joanne

Issue 90 | January - April 2023

White. Overall this campaign reached thousands of people across all our social media platforms, with video stories and powerful words from our supporters being shared throughout the entire month, bringing vital awareness to the importance of CRY’s work and the families who’s generosity allows us to continue. In order to raise awareness, we often post our key messages across social media. One of these messages garnered over 12,000 views on Facebook

One of our most popular videos on Facebook highlighted one of CRY’s key messages, with over 9,000 views. We have created a selection of messages to help raise awareness and save young lives. We have created messages about CRY’s screenings, research, support and key messages for raising awareness. There are a selection of messages that can easily be retweeted and a selection that can be copied and posted on your own social media. Visit www.c-r-y.org.uk/ awareness for more.

CRY Online

Another campaign was launched over on our Instagram page, ‘Meet Our Supporters’. This campaign features stories from CRY supporters, following on from ‘Why Do I Support CRY’. Featured in April was Graham and Jenny Loncaster; their story follows their fundraising and memorial fund for their son, Jamie, who died in 2015. “If only we had known he had a heart problem, our lives might not have changed in the tragic way they did… We just hope that the awareness we raise for CRY can save at least one family from suffering as we have.” The Loncaster family through Jamie’s memorial fund have screened over 2,000 young people over 20 screening days. Yet again, our screening numbers social media posts continue to raise awareness of CRY’s screening programme and the impact it has on our communities, with this Instagram reel receiving over 5,000 views.

The reel received over 3,000 views. Another story, sent in by Kate Blackman in memory of her partner, Dan Blackman, received over 5,000 views. Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings and photos from fellow supporters. Every share of a post helps spread awareness about CRY a little further. So if you’d like to follow along, here’s where you can find us:

CardiacRiskintheYoung During Heart Month we created reels featuring supporters video answers as part of the ‘Why do I support CRY’ campaign. Hayley Brember spoke about her reasons for supporting CRY, in memory her husband Richard Brember.

CardiacRiskintheYoung CRY_UK Cardiac Risk in the Young CRY_UK of

www.c-r-y.org.uk

CRY Screening Report Between January and April 2022, CRY screened over 10,000 people

Screening at Biddulph Youth and Community Zone in memory of Jordan Bundred

2857 young people were screened at family screening events in memory of: Ethan Jones; Nathan Bryan; Adam Pearmine; Adam Knapp; Sam Moodey; Michael Land; Gregg Shoults; Jordan Burndred; Tom Clabburn; Claire Prosser; Jack Thomas; Daniel Hughes; Adam Donnelly; Robert Rowan; Joe Kellogg; James Moorfoot; Kevin Alderslade; Jamie Loncaster; Ben Forsyth; Kyle Hancock Craig Lunt and Aaron Dixon.

Screening at Ghyllside Primary School

4954 young people were screened at school screening events held at: Old Swinford Hospital School; Windsor Boy School; Pembrokeshire College; Kingston Grammar School; Crainleigh School; Taunton School; Garstang Academy; King Edward VI School; Sir Henry Floyd Grammar School; St Wilfreds Catholic Primary School; Littleover Community School; Bourne Grammar School; Canford School; Shiplake College; Longridge High School; Allestree Woodlands Primary School; Eton College; Congleton High School; Tudor Hall School; Oakfield Academy; Bideford College; Lonridge High School; Cheadle Hulme School; Torquay Boys Grammar

Issue 90 | January - April 2023

School; Helena Romanes School; Nottingham High School; St Wulstons Catholic Primary School; Sir Thomas Boughey Academy; Ghyllside Primary School; Gloucester University and Knutsford Academy School. 2003 atheltes were screening at sports screening days including White Cross Netball Club; RFU England U20’s; Leeds Rhinos; Harlequins Premiership Rugby Club U16’s; Yorkshire Rugby Academy; Royal Ballet School; British Rowing U16’s; England Cricket - Visually Impaired Squad; British Triathlon Academy; Worcestershire County Cricket; GB Hockey; London City Lionesses and Essex County Cricket Club.

What happens at a screening? The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart. Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire. If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform. The screening programme is under the aegis of Professor Sanjay Sharma.

493 people were screened at events held at the CRY Screening Centre in Screening event at Spondon College in memory of Joe Leatherhead. Kellogg

CRY Centre for Cardiac Pathology (CRY CCP) Report

By Professor Mary Sheppard

Professor Mary Sheppard, Consultant Cardiac Pathologist

Emelia Zullo, Laboratory Technician Khari Edwards, Laboratory Technician

We continue to work on and publish on many research projects with 10 papers already published this year. These papers on aspects of sport, gender , age, ethnicity and pathological diagnosis on sudden cardiac death in the young are a direct result of our CRY-funded database. We also published on the whole database of 7000 hearts which is largest database in the world giving valuable information on causes of sudden death in UK where leading causes are SADS and cardiomyopathies.

We have had a busy year so far in 2023 at the CRY Cardiovascular Pathology Laboratory. Our referral numbers have grown since 2022 to 400 cases until June. We have a new member of staff, Birethine Sathiyanathan, who joins Clementine Cheyne and Emma O’Neill (above photo). They have all now completed their training and are active staff members. Both Professor Sheppard and Dr Joe Westaby reported 303 hearts during this term coming from throughout the UK and given the causes of death as below with sudden adult death and cardiomyopathies predominating.

We are also heavily involved in the National Sudden Death NHS genetic and family follow up programme as Pathology Lead giving guidelines to other pathologists in seven regional centres with coordinators who are essential in arranging the genetic testing and the family screening. We welcomed trainee forensic pathologists to learn cardiovascular pathology under the tutorage of Professor Sheppard and Dr Westaby (see image attached). Dr Nurquin Fasya Binti Shahrir has travelled from Malaysia to be trained at our lab. We hosted a work experience student Amelia Dr Nurquin Fasya Binti Shahrir, Prof. Sheppard & Dr Westaby Ward in our lab who benefited from seeing cardiac pathology in action and the day to day workings of a lab. Professor Sheppard and Dr Joseph Westaby attended the USCAP (United States and Canadian Academy of Pathology) meeting in New Orleans where Dr Westaby presented posters on SCD from our database. Additionally, Dr Davide Radielli from Trieste Italy who trained in our lab for 6 months at the end of 2022, attended the conference and presented his paper on sudden cardiac death in adolescents from our database.

Our collaboration with Inherited Cardiac Conditions within St Georges Hospital continues. We combine the autopsy cardiac diagnosis with family follow up with the CRY research Fellows and also genetic testing with local Genetic Hub.

Dr Joseph Westaby was awarded the runner up Clinical Young Investigator Award by the European Association of Preventitive Cardiology for his paper titled “National sudden cardiac death autopsy database highlighting sudden arrhythmic death and cardiomyopathies, applying diagnostic criteria and expanding the concept of the molecular autopsy”.

www.c-r-y.org.uk

Alison’s Column

After dedicating more than 30 years to Cardiac Risk in the Young, CRY’s Founder, Alison Cox, has taken the decision that now is the time for her to retire. When Alison first began raising awareness of cardiac conditions in apparently fit and healthy young people, she was often dismissed by professionals who, at the time, believed this to be exceptionally rare. Unconvinced, undeterred, and unwilling to accept that apparently fit and healthy young people were dying of undiagnosed cardiac conditions, Alison tenaciously persevered and the charity Cardiac Risk in the Young was formed. To date, CRY has screened the hearts of over 270,000 young people, is producing world renowned research and has supported thousands of families. On behalf of CRY’s Trustees, staff and families, I would like to thank Alison for everything that she has done. Quite simply, CRY would not exist without her. CRY Chairman, Hugh Mulcahey

Hugh Mulcahey and Alison Cox at the Parliamentary Reception

Issue 90 | January - April 2023

To all of you, CRY’s supporters, I would like to say a huge ‘thank you’ for everything you have done to help save so many young lives. I never imagined I would start a charity, and could never envisage being part of something which has had such a tremendous impact. The charity has changed so much since it started in a back room in my house. Thanks to you, CRY has changed the way our society thinks about young sudden cardiac death. CRY families will often say that they have become a member of a club that no one would ever want to join. I hope that CRY has been able to offer a safe space for families to begin to find a way forward, a place where they feel they are not alone and where people understand. Nothing has been more important to me than talking with CRY families. 1999 CRY Conference

2002 Launch of the Cardiac risk in the Young APPG, with Kevan Jones MP, Sandra and Jeff Morland, Sir Ian Botham and Julian Lewis MP

Alison’s Column

2005 Parliamentary Reception

2006 Alison on This Morning

Change occurs in many ways and often it is when you get support in the corridors or power that breakthroughs can happen. There have been so many memorable moments in parliament, with Kevan Jones MP chairing the All Party Parliamentary Group 2018 at Hay’s Galleria as part of the for Cardiac Risk in the Bridges Walk Young and driving forward some of the advances we take for granted today. Whilst cardiac screening is not yet routine throughout the NHS, it is very much within the mindset of many people. Screening is now routine for most elite athletes, as well as some professions, and 10s of thousands of young people are going through the CRY screening programme every year, which is quite incredible.

2008 Number 10 Downing street launch of FA PFA Football Foundation partnership

I have spoken with more than 2,000 parents, partners, siblings, grandparents, and children after a tragedy. It has meant so much that you have trusted me to try to help you. I would like to say how incredible you all are, for being able to confront what has happened, the terrible tragedy your family has suffered.

As increasing numbers of young people are screened, there will be more young people living with conditions. All the young myheart members have really opened my eyes to such courage in adjusting to their diagnoses, as well as showing how important it is to identify heart conditions early.

When I founded CRY I had just finished training to become a counsellor but very early on I could see how important it was for families to be able to talk to another family in a similar situation. The bereavement support programme has made a critical contribution and continues to grow with the next group of supporters currently undertaking their training to join a truly incredible group who give so much to help other families.

2009 Bereavement Support Day

2004 Alison with the myheart members

When I started CRY nobody talked about young people dying suddenly from heart conditions, no one believed it could happen. There were just a few cardiologists with an interest in these conditions. But now the momentum for change is unstoppable.

2013 at the Parliamentary Reception launching the myheart Booklet

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Alison’s Column There are many cardiologists, pathologists, geneticists and researchers in the UK and throughout the world who are doing so much to better understand the causes of young sudden cardiac death and how tragedies can be prevented. It is no longer “if something will change”, it is now just a matter of time before the science informs the changes which are required.

Pathology we have been supporting families in this way for over 15 years. CRY’s research has transformed the understanding of young sudden cardiac death. It is wonderful to see so many cardiologists like Professor Michael Papadakis who are part of this incredible team, continue to produce worldleading research which is helping to save young lives.

2011 CRY Conference with Professor Michael Papadakis

2013 with Professor Sanjay Sharma and Tom James at the CRY Centre for Inherited Cardiac Conditions at St George’s

I would like give a special thank you to Professor Sanjay Sharma and Professor Mary Sheppard. When I first met Sanjay I knew something extraordinary was about to happen and it did! We were lucky to have him. Sanjay took an immediate interest when he was training to become a cardiologist and he has been making such an invaluable contribution to CRY’s efforts to raise awareness of these deadly conditions ever since.

2013 at the Shiplake Dinner with Simon Halliday, John Inverdale, Rob Andrew and Professor Sanjay Sharma

2018 Parliamentary Reception with CRY Supporter Caitlyn Quew 2014 at the CRY Centre for Cardiac Pathology with Rupert and Stephanie Hunter, Professor Mary Sheppard, Baroness Ilora Finlay and Hugh Mulcahey

When I first heard Mary speak about cardiac pathology I remember thinking that we would achieve so much if we could work together. She was determined that there should be more attention on understanding the cause of death and to investigate every possible reason for these terrible tragedies, and through the CRY Centre for Cardiac

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Over the past 30 years I have been privileged to have worked with so many wonderful, courageous and committed families who have done so much in so many different ways. Thank you all for your incredible dedication to save young lives and prevent other families from experiencing such a devastating tragedy. I will always be a committed supporter of CRY and will

Alison’s Column continue to follow the charity’s achievements. Although now is the time for me to step back, I want all families to know that CRY’s team remains dedicated to raising awareness, breaking ground with new research and of course, screening the hearts of young people. Most of all I want CRY families to know that CRY is there to support you and to help in any way possible to reduce your suffering. CRY cannot take it from you. CRY cannot grieve for you. But CRY can be there for the long haul. I am proud to have been there at CRY’s start and for so many years to have been given the chance to be your voice in fighting for change. Thank you

Alison Cox MBE

Left-right: Alison and Pixie Lott at Carols For CRY in 2013 Alison with Bill Neely after the London Marathon 2014 Alison at the Parliamentary Reception in 2015

Founder of Cardiac Risk in the Young

2007 at the 1st Bridges Walk with Kathryn Harries

2009 TV interview at the launch of the CRY Philips testmyheart partnership

2014 Launch of the North 12 A Week postcard

2019 Bridges Walk with Dr Steven Cox

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Why do I Support CRY? During Heart Month 2023, CRY launched ‘why do I support CRY?’. The campaign aimed to personify and tell the stories behind CRY. We asked our supporters to send in their reasons for supporting CRY so we could share across our social media what CRY means to so many. The campaign was met with hundreds of responses, many sharing deeply personal stories of the impact of Young Sudden Cardiac Death (YSCD) and our cardiac screening programme. We will continue to share new responses across our social media channels throughout the year, so if you would still like to share your reasons for supporting CRY; please email comms@c-r-y.org.uk. If you would like to read all the responses to the campaign, please visit www.c-r-y.org.uk/whydoisupportcry. Here are just a few of the personal stories we received over Heart Month:

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Why Do I Support CRY?

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Research News Whenever a donation is made to CRY’s core funding, approximately 25p in every pound will go towards CRY’s research programme. Some families have chosen for all of the funds they raise to go directly to research; and many families who are raising funds specifically for screening, also provide support to the research programme when possible. Thank you to everyone who is helping to support CRY’s research, your support means we can work to train the next generation of specialist cardiologists in inherited cardiac conditions, and transform our understanding of the causes and prevention of young sudden cardiac death. The support CRY has received for research between 2020 and 2022 has been incredible. In 2022 CRY received significant contributions to support research from the following memorial funds: •Tiffany Andrews •Nathan Butler •Tom Clabburn and Claire Prosser •Bruce Cousins •Daniel Lee Duncan •Ashley Goodwin •Adam Green •Matthew Hesmondhalgh •Charlie Ibrahimi •Keiran Joyce •Nina Jelen •Stephen Lamb •Jamie Loncaster •Alan Lumley

•Steven McKay •Rosie Mitchell •Jonathan Morgan •Taylor Panton •Rebecca Phillips •Olivia Raby •Hamish Ross •Suana Saro-Wiwa •Gary Stewart •Natalie Stewart •William Thomson •Fraser Vaughan •Neil Ward •Neil Wickers •Daniel Young

In 2023, between January and May, we have received further contributions from the following memorial funds: •Daniel Lee Duncan •Joe Kellogg •Alan Lumley •Rosie Mitchell •Natalie Stewart •Fraser Vaughan For more information on CRY’s most recent research publications go to: www.c-r-y.org.uk/research. Here you will see interviews with CRY Research Fellows, links to the research publications (either the abstracts or the full articles) as well as links to short films and presentations by our experts including Professors Sanjay Sharma, Mary Sheppard and Michael Papadakis explaining the ongoing impact of CRY’s research.

The impact of exercise and physical activity on young people living with a heart condition The impact of exercise and physical activity on young people living with a heart condition is an issue that often comes up at myheart meetings or is discussed amongst our members As such, CRY has always been committed to supporting a range of research projects, looking at these issues and striving to gain further understanding about the benefits of physical activity for young people with a diagnosed heart condition, as well as ‘safe’ parameters for exercise. CRY’s Research Fellows have been involved in the publication of a raft of internationally acclaimed research looking into this area and one things remains unanimous across all findings; physical activity is almost always beneficial for overall health and well-being and far outweighs the risks associated with a sedentary lifestyle.

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Recently, two important research reviews – spearheaded by doctors who both have an association with CRY’s research programme – have been published in Heart (the journal of the British Cardiac Society) to help ‘unpick’ some of the myths regarding physical activity and inherited heart conditions and to clarify whether exercise really can be the best medicine. Former CRY Research Fellow, Dr Sabiha Gati, is now Consultant Cardiologist at Royal Brompton and Harefield (RBH) NHS Foundation Trust. Dr Gati has also been a huge supporter of myheart for several years, taking on a supervisory role at many meetings. Here, we look at a published review carried out by Dr Gati, entitled; ‘Exercise prescription in individuals with hypertrophic cardiomyopathy: what clinicians need to know’.

Research News Dr Gati, can you briefly describe the objectives of this literature review and why you felt it was so important to evaluate existing, published research?

considerations to age, sex, ethnicity and sporting disciplines and ESC-risk score Can you explain to our myheart community how your findings might impact young people (particularly young people) who are living with a heart condition and who are keen to take part in exercise and sport?

In the last few years, we are seeing a favourable outcome in our patients with hypertrophic cardiomyopathy (HCM). There is emerging evidence that most deaths in HCM are occurring at rest rather than with exercise. Previous exercise guidance for patients with HCM was limited to low intensity physical activity only. However, there is new data emerging that supports the idea of moderate exercise being beneficial for these individuals.

It is well recognised that a sedentary lifestyle may result in a detrimental effect in patients with HCM both physically and emotionally. As clinicians we should be encouraging the current minimum physical activity recommendations and also give guidance to those individuals who are limited by symptoms.

In fact some individuals with the mild form of the disease and with a low risk profile may also take part in vigorous exercise following discussions with their specialists. The current exercise and sports cardiology guidelines from the European Society of Cardiology (ESC), the American Heart Association (AHA) and the American College of Cardiology (ACC)on the management and treatment of HCM have been updated and support a more liberal approach to exercise and sports participation in HCM. This review provided the general physicians and patients with the evidence that is available to support the notion of exercise in HCM and how best to prescribe it.

Generally, how can people living with heart conditions know what a ‘safe’ and recommended level of exercise and physical activity is?

What were the main findings and recommendations of this review? In summary, the key conclusions drawn from this research review were as follows: Exercise is beneficial for cardiovascular health and light and moderate exercise should be encouraged in all able individuals with hypertrophic cardiomyopathy (HCM) A detailed comprehensive risk evaluation of all individuals with HCM is recommended to formulate a safe exercise prescription plan. The current European Society of Cardiology guidelines and the 2020 AHA/ACC guideline for the diagnosis and treatment of patients with HCM recommend a liberal approach to exercise in HCM. Asymptomatic individuals with a mild phenotype and absence of high-risk features for sudden cardiac death (SCD) may engage in all competitive sports Longer term follow-up studies are required in individuals with HCM who exercise vigorously with important

We know, based on the evidence in the literature, that moderate exercise is safe. If you are keen to take up exercise, speak to your specialist, ensure that a detailed risk evaluation has been undertaken and discuss a shared exercise plan with realistic goals.

The recently ESC guidelines in sports cardiology and the updated AHA/ACC guidelines in management and treatment of HCM support light to moderate exercise in all individuals with HCM. They also provide guidance of other heart conditions too. Most individuals with HCM may engage in recreational sports of low to moderate intensity and competitive sports of low intensity. Among patients who want to engage in more intensive exercise, a comprehensive assessment is recommended, which considers symptoms, family history, functional capacity, cardiac function, and risk profile. A full complement of cardiac investigations is recommended including an echocardiogram, exercise stress test, cardiovascular magnetic resonance (CMR) and prolonged ECG monitor. We recommend that all patients whether with HCM or another heart condition should engage in the minimal physical activity recommendations of 150 minutes of moderate exercise per week divided over 4-5 sessions and preferably 300 minutes per week in able individuals, if symptoms permit, to maximise the benefits of exercise. They may wish to discuss arranging an exercise stress test with their specialist which can be particularly useful when prescribing exercise because it provides relevant information about functional capacity, exercise induced rhythm abnormalities and your body’s response to exercise. Apart from walking, patients without symptoms or rhythm

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Research News abnormalities during moderate levels of exercise may still be able to do gentle cycling, stationary cycling, treadmill, or low intensity weights, at a heart rate below 75% of the maximum predicted for age and to avoid any exercise that induces symptoms. We would generally advise avoiding sudden explosive exertion such as sprinting. Exercise programmes are also not recommended particularly those that involve systematic training with increasing intensities and workload. We would advise on a gradual warm-up for at least 10 minutes before starting exercise and a cooldown post exercise. We would also advise avoiding exercise during a fever or diarrhoeal symptoms as this may precipitate electrical abnormalities of the heart. Individuals should abstain from exercising in extreme adverse environmental conditions. If individuals would like to engage in free weights, the general advice is to do six repetitions up to three times followed by 2 minutes of rest to prevent fluctuations in blood pressure. Individuals should not push more than 20% of their body weight with the upper limbs and more than 50% of their body weight with the lower limbs in the initial stages of weight training. This may be increased at a later stage if it does not result in a heart rate exceeding 70% of the maximum predicted for age. In what cases – if ever – might an individual be advised against exercise? Individuals considered to be high risk including those who have survived a cardiac arrest, experienced unexplained loss of consciousness, report exercise induced symptoms, or have multiple high-risk features (such as obstruction to the blood flow across the left chamber outflow tract (LVOT); significant left chamber wall thickness; fatal rhythm abnormalities from the bottom chambers – NSVT >120bpm) should confine themselves to low intensity only. This equates to <55% of their maximum heart rate. Can you tell us about any new research (current or upcoming) which you’re involved with? There is some limited evidence that reduced size electrical complexes/traces of the heart on the electrocardiogram (ECG) may be associated with scarring in the heart muscle, which may predispose to serious life-threatening electrical abnormalities and sudden cardiac death (SCD). There is no guidance on reduced ECG traces for young individuals and athletes. Their correct interpretation is crucial for identifying athletes with disease and at risk of SCD. Some athletes experience SCD despite normal standard cardiac tests. We, therefore, propose to study athletes and young people aged 17-35 years old using cardiovascular MRI and

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genetic analysis to determine the significance of reduced ECG traces. These results should enable informed clinical decisions (at national and international level) following pre-participation screening evaluation and help ultimately to identify young individuals and athletes who are genuinely deemed to be at risk of sudden cardiac death (SCD) whilst providing appropriate reassurance to those with normal QRS voltages. And finally Dr Gati, do you have any further insight that you’d like to share with CRY’s ‘community’ about the ongoing positive impact of CRY’s research programme? I am passionate about research into the athlete’s heart as well as imaging and electrical changes associated with the risk of sudden cardiac death. I have made significant contribution to the CRY screening programme and it’s phenomenal that we have screened almost 300,000 young individuals in the UK. The CRY screening programme has been pivotal in supporting research in young exercising individuals. The results of some of this data collected via CRY’s screening programme have been published and revealed that one in 300 young individuals in the UK harbours a potentially serious cardiac condition. Early detection of affected individuals results in proactive management strategies. We have to thank all the supports of CRY who have made this possible and I hope they will continue to generously donate to the charity for this valuable work. This study is being conducted in collaboration between CRY and Royal Brompton and Harefield hospital charity. Dr Nikhil Chatrath is one of CRY’s current Research Fellows, based at St George’s, University of London. In the same journal, ‘Heart’, Dr Chatrath published a review looking at; “Physical activity and exercise recommendations for patients with valvular heart disease” Can you briefly describe the objectives of this research, and why you decided to focus on valvular heart disease (VHD)? This is a condition that can actually affect people of all ages – although there is a subset of young individuals who can have congenital defects associated with the heart valves (either the mitral or aortic valve). So, the purpose of looking specifically at valvular defects was to help us

Research News analyse the potential impact of exercise. We know that when we do physical activity we put additional stress on the heart – which normally is good for us. But strenuous exercise can also cause a widening of the heart muscle or the aorta, and as such, researchers often hypothesise that in some people with an underlying heart condition (such as valvular heart disease) this could be exacerbated by very high levels exercise. In the first instance, we wanted to review the literature available, looking at various studies amongst both athletes and the general public to assess the effects of both exercise and that of a more sedentary lifestyle. And, it’s important to note that as part of this research review, we looked at European Guidelines (all comprising 3-4 multi centre studies), so it was a thorough and comprehensive project. Generally, how people who have been diagnosed with Valvular Heart Disease (VHD) living with heart conditions know what a ‘safe’ and recommended level of exercise and physical activity is? The good news is that, by and large, all individuals with mild to moderate valvular heart disease (whether ‘leaky’ or causing a ‘stiffening’ of the valve’) can still exercise without restrictions. Although, of course there are caveats if any new symptoms appear and we would always suggest seeking the advice of your doctor or cardiologist for further assessment. In cases where VHD has been deemed ‘severe’, then it is more than likely that an athlete (or individuals who regularly train at a high level) would be advised to refrain from professional sport and so-called strenuous activity.

If, however, a patient with severe VHD remains symptomless and has undergone an evaluation from their healthcare professional, with ongoing monitoring (e.g. to determine normal heart rhythms, no increase in blood pressure) then low to moderate physical activity is still encouraged and normally considered safe. What other conclusions did you draw from this important research review? Overall, we were reassured by these findings and the fact they aligned with our current understanding and recommendations for ‘safe exercise levels’ in those people living with VHD. However, what was interesting – and perhaps a cause for some concern – was the fact we also ‘uncovered’ a general lack of data and research looking at VHD in young people and its impact on lifestyle and exercise considerations. So much of the research carried out globally to date (looking at inherited and congenital heart conditions in young people) have focused on arrythmias and cardiomyopathies. VHD affects a small – but significant – amount of younger people and it feels as though the research focus has gone slightly under the radar. However, thanks to ongoing funding from CRY families, we have recently been working on some important and pioneering new studies looking at heart valve issues, which will further inform our understanding of the impact on risk of sudden cardiac death and how we might improve diagnosis in asymptomatic young people.

CRY Research Fellow reflects on his recent accolade at international cardiac conference As another of CRY’s inspiring Research Fellows concludes a 3-year tenure with our team based at St George’s, University of London, we’re delighted to announce that Dr Raghav Bhatia was recently awarded “Best of the Best” – for the second time running! – at the 2023 British Cardiovascular Society (BSC) held in Manchester at the start of June. During his time as a CRY Research Fellow, Dr Bhatia (who

has now returned to a clinical role in Yorkshire, currently working with in the Cardiology Department at Hull University Teaching Hospitals NHS Trust) often went above and beyond in his support for CRY. His involvement included taking part in many media interviews on behalf of the charity, attending numerous screenings across all corners of the UK and being an active member of the “Running for Research” team, who not only trained together during their busy schedule at St George’s but also helped to raise over £10,000 in sponsorship! Here, we chat to him to find more about this awardwinning study and how its findings will help to improve and inform CRY’s nationwide screening programme.

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Research News frequent causes of cardiac mortality in young people. Our manuscript will be submitted soon for peer review, and everyone involved in the research looks forward to sharing these findings once published. What does it mean to you to be recognised for your research at national and international meetings and how do you ensure productivity?

Firstly, congratulations on your recent award at the British Cardiovascular Society (BSC) in the ‘Best of the Best’ category. Can you briefly describe the focus and objectives of this piece of research that you were recognised for?

Being recognised for our research at national and international meetings holds immense significance. It demonstrates that our findings are respected, appreciated and contribute to the advancement of knowledge in the field. The opportunity to showcase our research conducted at CRY not only highlights the significance of our work but also fosters collaboration, suggestions, and ideas for future work. Most importantly, being recognised at these esteemed gatherings provides hope to the CRY families who have supported my research journey and Fellowship.

Thank you very much. It was truly an honour to receive the cardiomyopathy ‘Best of the Best’ award at the BCS for the second consecutive year. The research for which I was recognised forms an integral part of my PhD thesis, which centres around the prevention of young sudden cardiac death. The specific focus of this project was to gain a deeper understanding of cardiac and sudden death in young individuals, using novel insights from the Office for National Statistics in England and Wales. The background to this topic was rooted in the importance of accurately representing the incidence and underlying causes of cardiac and young sudden cardiac death in individuals under 35 years of age and we analysed ONS data from 2013 to 2021 (focusing on a 9-year period, within an incredible 20-year cohort of unique, CRY-data). Additionally, we aimed to investigate temporal trends in mortality data, which has not been previously reported. By shedding light on these aspects, our research aimed to make valuable contributions to the understanding and prevention of young sudden cardiac death. Such an accurate representation is crucial for healthcare policy makers to effectively allocate resources, address issues such as screening for potentially lethal conditions, improving post-mortem evaluations and enhancing resuscitation facilities. This topic built upon the existing work published by Professor Papadakis and Professor Sharma in 2009 which has significantly contributed to the CRY screening programme over the past decade. The main findings of this research have been really quite significant in terms of our current understanding of the incidence of young sudden cardiac death and the most

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My approach to clinical research has always been centred around our patients and addressing key, unanswered questions. The recognition I have received is the result of a lot of hard work, which I would like to emphasise has always been a team effort, facilitated by my incredibly supportive colleagues and mentors in London and East Yorkshire, as well as my family, who have been a tremendous pillar of support throughout the rigours and challenges of academia. In addition to the above research award, can you tell us which of your other research outputs have been presented at national and international award categories in the last 24-months? Over the past 24 months, there have been several research works led by myself and collaborative efforts with my peers at St. George’s. For example, I am honoured to have received recognition and awards for the following research outputs: •British Cardiovascular Society, Best of the Best

Research News cardiomyopathy section, 2023 (Manchester, UK): Understanding Cardiac and Sudden Death in Young Individuals: Novel Insights from the Office for National Statistics (ONS) in the United Kingdom. •European Association of Preventative Cardiology, Young Investigator Awards, 2023 (Malaga, Spain): Prevalence and diagnostic significance of de-novo 12-lead electrocardiogram patterns following COVID-19 infection in elite soccer players. •European Society of Cardiology, Young Investigator Awards (Barcelona, Spain): Sudden cardiac death during exercise in young individuals with hypertrophic cardiomyopathy. •British Cardiovascular Society, Young Investigator Awards, 2022 (Manchester, UK): Prevalence and diagnostic significance of de-novo 12-lead electrocardiogram patterns following COVID-19 infection in elite soccer players. •British Cardiovascular Society, Best of the Best cardiomyopathy section, 2022 (Manchester, UK): 1) Mitral valve abnormalities in decedents of sudden cardiac death due to hypertrophic cardiomyopathy and idiopathic left ventricular hypertrophy. 2) Prevalence and diagnostic significance of de-novo 12-lead electrocardiogram patterns following COVID-19 infection in elite soccer players. I have also enjoyed contributing to the annual CRY International Conference from 2020 to date. What are your next research topics focussed around? My future research outputs remain focussed on cardiac screening and the prevention of young sudden cardiac death. For example, I am currently leading two exciting areas of research, which are near completion. Firstly, I am delving into the field of myocarditis and its association with sudden cardiac death, particularly in the community i.e., non-hospitalised individuals. This project aims to provide valuable clinical and pathological insights, drawing from the expertise and resources available at the CRY Centre for Cardiac Pathology (CRY CCP). Our objective is to contribute to a better understanding of myocarditisrelated cardiac events and potentially identify strategies for prevention and improved management.

From the early years of my medical career as a junior doctor, I had a strong desire to dedicate a specific period of time to research while also developing expertise in a niche and emerging clinical field. It was during this time that I became aware of the CRY Research Fellowship, which offered a unique opportunity to pursue both of these goals simultaneously. The Fellowship offered the opportunity to work under the mentorship and guidance of renowned experts in the field, Professor Sanjay Sharma and Professor Michael Papadakis. So, in 2019, after speaking to several past and current CRY Fellows at the time, which included Dr Joyee Basu, Dr Rajay Narain, Dr Gemma Parry-Williams and Prof Aneil Malhotra, I made the decision to apply for the highly competitive CRY Research Fellowship. Following a rigorous selection process, I was fortunate enough to be awarded the fellowship, and my tenure as a CRY Fellow began in February 2020, just prior to the onset of the COVID-19 pandemic. The Fellowship has provided me with an invaluable platform to expand my knowledge base and make meaningful contributions to the field of preventive cardiology. Working alongside esteemed mentors and within the supportive CRY framework has allowed me to not only engage in cutting-edge research but also develop unique clinical skills and expertise. Overall, the opportunity to undertake a CRY Research Fellowship has aligned well with my career aspirations and provided the ideal environment to foster my growth as a clinician-scientist. What have been your main highlights during this time? There have been so many! I guess the best way would be to contextualise these highlights based on quite a diverse role that I have had with CRY.

Secondly, I am in the final stages of a large research project focused on the outcomes of cardiac screening in elite rugby players in the UK. This project aims to shed light on the effectiveness of screening protocols, identify potential risk factors, and explore ways to optimise the cardiac health of these athletes. We aim to contribute to evidence-based recommendations for screening practices in elite sports, ultimately ensuring the well-being and safety of athletes. If we roll back time, why did you decide to apply for a CRY Research Fellowship?

Screening: As a CRY Research Fellow, I have had the privilege to travel across the British Isles, personally

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Research News screening over 15,000 young individuals and working closely with CRY families at each event. Meeting these families and supporters associated with every one of these screenings – and understanding the personal stories behind the fundraising which facilitates CRY’s screening programme – has been a truly humbling and often emotional experience. Moreover, the welcome I received from CRY Families (who were hosting the screenings I attended), was always so warm. There was also a great deal of interest shown in the research I was involved with, and I like to think we developed a positive rapport. And, collaborating with an exceptional group of volunteers and CRY staff, I really have developed lifelong friendships along the way. Through my screening experiences, I know that we successfully identified several individuals with ‘dormant’ cardiac conditions associated with young sudden cardiac death and identified individuals with markers requiring onward evaluation. Assessing risk in the community and communicating this to the individual, their family (and importantly, primary care and secondary care physicians in a timely manner) whilst following up on cases has harnessed the finesse required in the field of inherited cardiac conditions. Supportive colleagues and team: I would like to acknowledge the incredible nurses, physiologists, doctors and support staff at CRY and St George’s. Some of us, recently participated in the Vitality 10K in London, raising over £10,000 to support the CRY research program. This experience showcased the strong camaraderie and dedication within our team.

diseases, and the appraisal of family members following sudden cardiac death. Additionally, I have gained qualifications in advanced cardiac imaging modalities such as cardiac MRI and worked in the emerging field of sports cardiology, collaborating with prominent organisations like the English Football Association (FA), Rugby Football Union (RFU), England and Wales Cricket Board (ECB), English Institute of Sport (EIS) and British Athletics. Contributions to Sports Cardiology during the COVID-19 Pandemic: I take particular pride in our contributions to sports cardiology during the novel COVID-19 pandemic. It started with leading a consensus recommendations paper on safe physical activity and exercise during the first wave. Subsequently, we performed a multi-centre study, which was recently published, involving collaborators from various clubs in the UK, the Netherlands, and Brazil, providing valuable insights in this area. Lecturer: I have had the opportunity to harness my academic potential as a senior lecturer and module lead in the novel Sports Cardiology MSc at St. George’s, University of London under the guidance of Professor Papadakis, Dr Finocchiaro and Professor Sharma. This has involved working closely with our MSc students, guiding them in their dissertations, delivering lectures and developing comprehensive course materials. It has been a rewarding experience to contribute to the growth and development of aspiring professionals in the field. All of these highlights have enriched my journey and I am grateful for the experiences, collaborations, and friendships that have shaped this chapter of my career. Where are you now in terms of your CRY journey? While my initial 1-year fellowship evolved into a 3-year tenure at CRY and St. George’s, and I am now at an exciting juncture as I continue to progress in my career. Currently, I am back in Yorkshire, where I complete the final 12 months of my sub-specialty Cardiology training. This period allows me to enhance my skills and knowledge in a specific area of cardiology while expanding my expertise beyond the scope of my Fellowship.

Mentorship and exposure to experts in the field: Under the guidance of Professor Papadakis and Professor Sharma, I have had the opportunity to participate in a weekly inherited cardiac clinic and engage in regular local and regional multidisciplinary team meetings. These experiences have allowed me to develop competencies in managing complex cardiomyopathies, ion channel

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I am honoured to have recently been appointed as an honorary lecturer at St. George’s, University of London, which allows me to continue my research outputs. Furthermore, I aim to foster close links between my current base hospital, Hull University Teaching Hospitals NHS Trust, and the esteemed team at St. George’s and CRY. Finally, now as a CRY Cardiologist, I am committed to

Research News maintaining strong links in the community, as evidenced by facilitating the first in-person CRY myheart support group meeting in London in May 2023 since the COVID-19 pandemic. The CRY journey certainly continues, and I aspire to continue contributing to this amazing charity.

CRY Research Fellows What do CRY Research Fellows do? Within their role at cardiac screening events they: •Carry out consultations with every person CRY tests •Manage all abnormal screening results Within their role at CRY hospitals they work with Professor Sharma at the CRY Inherited Cadiovascular Conditions clinics St George’s Hospital, London and at Lewisham University Hospital. Prior to 2010 they were based at King’s College Hospital. At these fast track cliniccs families can be seen within a few weeks of referral after the sudden death of a young family member. Within their role as an academic they: •Publish abstracts and posters of CRY’s research •Publish articles in peer-review journals •Present their research at internation conferences

Do you have any further thoughts and insight you’d like to share with CRY’s ‘community’ or any doctors potentially considering a CRY Research Fellowship? I have had the privilege of experiencing the positive, diverse and rewarding impact of a CRY Research Fellowship first-hand. The broad exposure facilitates a comprehensive understanding of inherited cardiac conditions and their impact on young individuals and communities. The unique setting of the CRY Research Fellowship offers endless potential for impactful clinical research. Above all, the CRY fellowship encourages future generations of Consultant Cardiologists to think differently and adopt a more holistic approach to patient care by engaging with individuals in the community, raising awareness, and embracing the concept of prevention. By working outside the traditional models of care delivered in a hospital setting, CRY Fellows can truly make an impact by addressing the broader needs of patients and their families. I am grateful for these transformative experiences and insights gained during my CRY journey, and I encourage anyone considering a clinical research fellowship to apply and embrace the opportunities and possibilities on offer. The Fellows play a key role in the CRY Screening Programme as well as supporting families and individuals reffered to the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology. If you would like to read more about CRY research Fellows and their work, please visit: www.c-r-y.org.uk/research/research-fellows

How does CRY fund medical research in young sudden cardiac death? CRY funds medical research through research grants. These grants cover a broad spectrum from fast track screening to pathology after a sudden death. The grants also help to provide specialist knowledge of sports cardiology. The field-gathered date in CRY’s screening programme is analysed and reported in peerreviewed journals, providing essential information on the understanding of these conditions. CRY’s Clinical Cardiology Research Programme CRY will continue to progress research in both elite athletes and the general population. Amongst CRY’s future aims is the identification and precise prevalence of cardiac disorders capable of causing sudden death in asymptomatic and apprently healthy individuals: as well as accurately assessing the cost implications of such a programme if it were implemented at national level. Where do CRY Research Fellows go after working with CRY? One of CRY’s aims is to improve the quality of cardiology care of those affected by young sudden cardiac death and this will be acheived by increasing the number of specialists in the NHS with an understanding of how to best support families after the impact of these tragedies. The purpose of training Research Fellows in this specialist area is that they will take these skills to other NHS hospitals throughout the UK.

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Heart of West London Screening 169 young hearts screened at Brentford FC Community Hub On March 25, as part of the Heart of West London partnership, Brentford FC Community trust hosted the CRY screening team for the 5th screening event in memory of Rob Rowan. The Brentford Community Hub welcomed CRY Patron and former Brentford FC player and manager, Andy Scott on the day, along with Brentford FC players Pontus Jansson and Josh Dasilva. On the second day of screening the team were joined by MP for Ealing Central and Acton, Dr Rupa Huq, and MP for Brentford and Isleworth, Ruth Cadbury. Over the two-day event more than 150 young people between 14- 35 were screened, including several players from Brentford FC Womens 1st and B teams. The club arranged for their film crew to interview the players, CRY CEO, Dr Steven Cox and the team to share on social media and help raise awareness of the importance of screening.

Issue 90 | January - April 2023

London Landmarks Half Marathon 2023 Thank you and congratulations to the 37 runners who took part in the London Landmarks Half Marathon on Sunday 2nd April With 17,249 runners taking to the streets of London, the buzzing atmosphere along the route really made the day special. The enthusiastic CRY cheering team spurred on our CRY London Landmarks team with noisy whistles and cowbells! We saw some fantastic costumes and fancy dress coming past, including a few well-known buildings, a Toothpaste Tube, a Gorilla and much more. CRY staff Megan Alford, Phil Houlton, Cara MacMillan, Hannah Walker and Stevie Ward were there on the day along with our amazing volunteers; Enya Maguire, Leah Maguire, Suzanne Rowan, Kayleigh Griffith and Krisztina Cserhalmi at the CRY cheer point. We were so glad that we were able to see so many CRY runners! Everyone seemed to enjoy the day. The runners in the CRY team this year were: Maria Feeney (running in memory of Connor James Feeney); Rebecca Meredith; Harry McKay (running in memory of Rockwell Gayakaya); Joseph Wrigglesworth (running in memory of Benjamin Russell); Kathleen Maxted (running in memory of Rockwell Gayakaya); Cormac Power (running in memory of Conor Power); Adam Townsend; Annie Williams (running in memory of Aaron Dixon); Nicola Anne Howell (running in memory of Osahon Osawe); Lara Anne Nugent (running in memory of Natasha Kay); Sian Nugent (running in memory of Natasha Kay); Cara Brookes; Lee Hills (running in memory of Abby Hills); Scott Green (running in memory of Natasha Sandhu); Charlene Ward-Greef (running in memory of Fay Howell); Sarah Heritage (running in memory of Pam Heritage) ; Harry Sambrook (running in memory of Harry Faulkner) ; Lydia Reynolds; Suzanne MacDonald (running in memory of Eleanor Rose Keeler) ; Jennifer Victoria Freer (running in memory of David John Harrop); Diana Lowth; Isabella Rachel Crane (running in memory of Isobel Riley Moulding) ; Alicia James (in memory of Richard Harwood); Emillia Freer; Benjamin Connolly; Matthew Moroney (running in memory of Alex Reid); Samantha Macmillan (running in memory of Abby Hills); Natalie Smith (running in memory of Abby Hills); Alexander Carruthers (running in memory of Jim Carruthers); Georgia Kate Crane (running in memory of Isobel Riley Moulding); Surinder Singh (running in memory of Sukhwinder Singh); Alexandra Grace Crane (running in memory of Isobel Riley Moulding); Julie Bartlett (running in memory of Abby Hills); Luke Simmons (running in memory of Sebastian English); Peter Stubbings (running in memory of Robert Rowan); Andrew Pointon (running in memory of Daniel Hughes); Karen Wilcox (running in memory of Freya Cox).

www.c-r-y.org.uk

TCS London Marathon 2023 Congratulations to the 102 runners who took part in the London Marathon on Sunday 23rd April

Sunday 23rd April 2023 marked the London Marathon’s return to its usual spot in the annual calendar of events, having been postponed and moved to October for the last few years due to the pandemic; and #TeamCRY were ready to take on the iconic 26.2 miles through London. We were delighted to have had 102 runners take part on behalf of CRY, raising both vital funds and awareness. The efforts our runners go to is always inspiring and the sacrifice #TeamCRY make to try and complete the 26.2 miles of the London Marathon is a great motivator to CRY staff and supporters alike. Some runners were taking the marathon on for a second or third time for CRY, others stepped in to fill places with only a month of training, and one runner even decided that 26.2 miles was just one part of their challenge and also cycled 810 miles from John O’Groats to London the week of the Marathon! CRY also saw a welcome return of one of our previous Research Fellows, Dr Abbas Zaidi. He had swapped his stethoscope for running shoes this time to complete the marathon in 3 hours and 15 minutes! Dr Zaidi was a CRY Research Fellow from 20102013, during this time he helped screen over five thousand young people for cardiac conditions and continues to support CRY to this day, with his expertise in cardiology and now his running shoes. CRY volunteers and staff were based out on the route at miles 12 and 23 to spur on our charity heroes. The weather on the day was wet for the most part but this did not dampen the spirits of our cheerers and runners.

Issue 90 | January - April 2023

Runners were greeted by CRY staff and volunteers near the finish area, before being guided back to the Institute for Government where CRY were based to offer massages, showers and refreshments. Upon runners arriving at the post-race venue, they were welcomed with applause and cheers, offered a CRY medal, photographed by CRY staff, and supplied with plenty of refreshments. This was followed by a massage from a therapist with the aim of easing some of the discomfort they might be experiencing, and then a warm well-deserved shower. This was the first year that CRY had been based at the Institute for Government and we have received plenty of good feedback from runners, supporters and volunteers about the venue. We were so pleased to welcome 56 of our runners, along with their families and friends, back to see us after they had finished. It was a pleasure for CRY staff to meet everyone in person and thank them for their incredible efforts and dedication to the charity. Thank you so much to the runners and supporters who were able to come and meet us. A huge thank you to all of our wonderful volunteers who were: Andy Clarke; Phoebe Connolly (in memory of Jason Williams); Heather Darby (in memory of Neil Darby); Caroline and Peter Gard (in memory of Andrew Gard); Emel Hamit (in memory of Jenny Kerwood); Phil and Wendy Harrington (in memory of Barry Nivett); Barbara and Jim Holland (in memory of Philip Holland); Isabelle Honey; Jo and Nick Hudson; David and Jan Hughes; Victoria Joy; Julie Lockton; Arianna Mena (in memory of Isabelle Tudisca); Becky Meredith and Henry Sweetman; Peter and Sue Robinson; Suzanne Rowan (in memory of Robert Rowan); David and Deborah Steed; Mike Tointon; Fiona Tucker (in memory of Jack Jarvis) and Paul Ward.

TCS London Marathon 2023 As you can imagine there was a wide variety of emotions on the day, especially so for those who were sadly taking part in memory of someone they have lost. We hope that the experience was a positive one for those involved. Finally, we would like to thank the CRY runners for their fantastic efforts and valued support. We really appreciate you taking part on behalf of CRY. Congratulations and thank you to you all! The CRY Team Runners were: William Arkell (in memory of Matt Hadfield); Hayden Bailey (in memory of Thomas Day); Joe Barnes (in memory of Matt Cragg); Ella Barnes; Michelle Beard (in memory of Jasper Bryan Cook); Simon Bedford (in memory of Dylan Rich); Tom Bird (in memory of his cousin Laurence Bolton); Matt Bowler (in memory of Graeme Blenkinsop); Matt Bramhall (in memory of Robert Rowan); Ben Brook (in memory of Emlyn Wibberley); Donna Brown (in memory of Farley and Dan Kidner); Paul Buchanan (in memory of Thomas Hadwin); Sean Carley )in memory of Jamie Carley); Sean Chaney (in memory of Harry Dubois); Neil Cole; Ellie Conroy (in memory of Emma Broad); Sam Cook (in memory of Harry Dubois and Daniel Wilkinson); Olivia Cooke (in memory of Emma Broad); Orla Cooke (in memory of Emma Broad); Frankie Cooke (in memory of Edward Ridgway); Rick Crowther (in memory of Thomas Day); Angela Dakin (in memory of Jasmine Latham); Narendra Dhariwal (in memory of Sidharth Nanu); Patrick Doyle (in memory of Jonathan McGrath); Nic Evans (in memory of Andrew Key); Alex Ewing (in memory of Harry Dubois); Connie Ffitch (in memory of Mark Laker); Sean Fitzpatrick (in memory of Elise Fitzpatrick); Maria Gabriel (in memory of William Lane and Ariana Jahangir); Charlotte Galvin (in memory of Elise Fitzpatrick); Dave Gandee; Richard Gill (in memory of Christopher Martin Parr); Natasha Gillings (in memory of Micah Gillings); Glen (in memory of Marcus Fisher); Betty Glover (in memory of Harry Dubois); Becca Green (in memory of Matt Hesmondhalgh); Becky Grey (in memory of Harry Dubois); Ellie Harbinson (in memory of Robert Worboys); Hannah Henshaw; Ian Heslop (in memory of Mia Jennings); Caroline Hodgson; Barry Holcombe (in memory of Andrew Holcombe); Callanda Housley (in memory of Laura West); Alex Howell (in memory of Harry Dubois); Phil Hughes (in memory of Harry Dubois); Rebecca Hyland (in memory of Robert Rowan); Tariq Jahangir (in memory of Ariana Jahangir and William Lane); Stephen King (in memory of Olly King); Matt Ladkin (in memory of Tom Petley); Rosie Leech (in memory of Rob Worboys); Lympany (in memory of Matt Beadle); Cameron Mackinnon (in memory of Jem); Peter Mason (in memory of Owen Morris); Samantha Matthews (in memory of Aaron Dixon); Paula Morell (in memory of Laura West); Carol Murphy; George Musson (in memory of James Sheppard); Karen Nethersole; Olivia O’Neil in memory of Billy Teather; Mike Peter;

Faye Pickles in memory of Andrew Pickles; Steve Price (in memory of Alden Price); David Quick (in memory of Olly King); Gary Ramsbottom (in memory of Freya Cox); Victoria Ramsey (in memory of David Hill); Raymond Randall; Luke Reddy (in memory Harry Dubois); Hannah Richmond; Aisling Roche (in memory of Killian Roche); Gary Rose (in memory of Harry Dubois); Debbie Ross (in memory of Neil Desai, Ben O’Connoll and Ben Skinner); Beth Sadler (in memory of Freya Cox); Gabrielle Shaw (in memory of Adam Shaw); Isabel Shaw (in memory of Olivia Shaw); Oliver Sheppard (in memory of James Sheppard); Peter Smiley (in memory of David Smiley); Emma Smith (in memory of Harry Dubois); Cameron Spencer; Josh Stefanini (in memory Robert Rowan and Raymond Lambert); Grace Stevenson (in memory of Madison Beau Campbell); Phil Sweatman (in memory of Ben Hammond); Lee Tennent-Butler (in memory of Dale Tennent-Butler); Gemma Thomas (in memory of Jordan Bullock); Glen Thompson (in memory of Christopher Dixon); Angelo Tomasso; Felicity Towler (in memory of Robert Worboys); Claire Turner (in memory of Jonathan Clark); Clare Viney (in memory of Amber Robinson); Vu Vo (in memory of Simon); Cameron Ward; Chris Ward; Robert Watley (in memory of Alex Watley); Jane Watts; Charlotte Whistlecroft (in memory of Harry Dubois); Sam White; Fay Willet (in memory of Sophie Konderak); Beth Williams (in memory of Aaron Dixon); Ruth Williams (in memory of Ellie Williams); James Wood (in memory of Harry Dubois); Anna Worboys (in memory Robert Worboys); Abbas Zaidi.

www.c-r-y.org.uk

Our Fundraisers Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from January to April 2023.

Corrections Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes. We always strive to enforce new methods to eradicate such administrative errors,

but we apologise if you have ever been affected in some way by this. If you see a mistake in the Update or you have any questions, please do not hesitate to contact CRY via UpdateMag@c-r-y.org.uk.

In Memory of

• Sky UK sent a Matched Giving donation of £1,000.00 in support of the Tough Mudder challenge.

• Mike Fleet donated £100, £117 from the Croydon Harriers book sales and £750 raised from the auction of a signed Olympic flag and in lieu of sending Christmas cards.

Gary Anderson

In Memory of

Jack Atkinson

Cecilia Barriga

• The Sir Francis Drake Lodge No 6053 donated £1,000.00 raised from their Christmas Ball.

• Clare Ling sent a donation of £925.00 raised through a cake sale and raffle.

In Memory of

Matthew Beadle

In Memory of

Catherine Rose

• Cortexa selected CRY as their charity of the year for 2022 for a donation of £150.

In Memory of

David Barber

• Mrs Atkinson sent £200.00 representing donations received in lieu of floral tributes, in memory of David Barber.

In Memory of

Katie Benson

• Annabel Cooper took part in the Dorney Lake Triathalon in memory of Katie Benson raising £323.

In Memory of

• Julie Barker sent £1,305.00 representing donations received in lieu of 70th birthday gifts for Stephen Barker.

• Jack Berringer donated £120.00.

Johnny Barker

• Lynne Beadle sent donations totalling £360.00 raised as follows; £300.00 from the Shepheard’s House Residents Association, £50.00 in lieu of Christmas cards and £10.00 from a family member.

Penelope Berringer

Issue 90 | January to April 2023

Our Fundraisers In Memory of

In Memory of

• Julie Bignell donated £290.00.

• Susan Blair sent a donation of £215.00.

William Bignell

In Memory of

Jack Bilboe

• Gemma ran the Royal Parks Half Marathon this year in memory of Jack Bilboe. Gemma has raised £1299 through JustGiving and her company has donated an amount directly from M & G investments. It was such an achievement for her has this was her first marathon that she had ever ran and now planning to run the London marathon!

Steven Blair

In Memory of

Sebastian Body

• Sophie Body donated £100.00.

In Memory of

Sarah Booth

• Ita Booth sent a donation of £170.00 from Invest NI from funds raised by a weekly Premier league score predictor competition.

In Memory of

• John and Rebecca Wallis completed the Yorkshire 3 peaks challenge raising £893.42.

• Marian Bradley sent a donation of £100.00 in memory of Norris’ birthday.

Daniel Joshua Blackman

• Hazel Blackman sent a donation of £166.16 and £152.06 raised through her ‘life laundry’ Ebay sales. • The Southern Co-op donated £500.00. • Richard Blackman sent donations of £406.28 and a further £100.00 from Sarah.

In Memory of

Tuqiri M Blackwell

• Tubby FC donated £3,788.00 raised from a Charity Football Match against Morrisons and a Race Night.

Norris Bradley

In Memory of

Jack Branch

• Richard Porter sent a donation of £725.00 from the sale of Jack’s remaining collection of slotstox cars.

In Memory of

Richard Brember

• George Milligan sent a donation of £631.15 raised from rugby match fees. • Bracknell RFC donated £1,000.00.

• Sellafield Ltd sent a Match Giving donation of £200.00 in support of Tubby FC’s fundraising. • The West Cumbria Tri Members donated £542.00.

www.c-r-y.org.uk

Our Fundraisers In Memory of

Emma Broad

• Philip Broad donated £100.00. • Surbiton Hockey Club donated £1,000.00.

In Memory of

Alexander Broadbent

In Memory of

Jennifer Bucknell

• Bill and Hillary Durrant sent donations totalling £237.00 raised as follows; £207.00 raised from the sale of chutney, jams and logs and £30.00 representing a Christmas donation from Mrs Powell. • Bill and Hillary Durrant sent donations of £140 and £160 as well as a donation of £518 from various fundraising projects.

• Ian Johnson donated £100.00.

In Memory of

Jordan Burndred

In Memory of

Laura Broadwell

• Ryan Hardy sent £1,050.00 representing donations received in lieu of floral tributes, in memory of Laura.

• Lisa Burgess supported CRY in memory of Jordan, by fundraising at the SalonShades Andrew Barton Makeover event. • Nicola Burndred sent £231.78 from donations received at a screening day.

In Memory of

Connor Brown

• Pauline Brown donated £100.00.

In Memory of

Dominic P Brown

• Milly Brown sent a donation of £200.00 in memory of Margaret Brown.

In Memory of

Ella Bury

• Claire Jones sent £1,863.89, representing donations received in lieu of floral tributes, in memory of her husband Christopher Jones. • Chris Heatherington donated £100.00.

In Memory of

• Juliet Buchanan sent £2,400.00 raised by friends and family who supported Darren’s Memorial Matches Charity night and raffle, held at Whitehaven Amateurs Football Club.

Greg Hanly and the Exertis Cybersecurity Stoke team did a sponsored Row-a-Thon to reach 1 million metres rowed, in memory of Nathan raising £900.

Darren Buchanan

In Memory of

Alex Buckler

• Andrew Johnston sent a donation of £1,000.00 raised from the La Folia Wincanton Charity Race Day in memory of Katie.

Nathan Butler

• Steve and Flavia Sims sent £480.00, representing donations received in lieu of floral tributes, in memory of Janet Sims. • Angela Butler sent a donation of £365.00 raised through an annual Sports Quiz Night organised by Phil Butler at Porthill Park Cricket Club as well as another £400 recived at their April screening weekend.

Issue 90 | January to April 2023

Our Fundraisers In Memory of

Alistair Calvert

• Dougie Gordon and Joy collected donations totalling £1305 for their 65th Birthdays in memory of Ally Calvert. • Alice Wheaton sent £360.00 representing donations recceived from Pauline English, Vikki Smith and Janet Biddle.

• Susan Carter donated £100.00. • Jamie and Amanda Jewell donated £200.00 in memory of Ryan’s birthday.

In Memory of

Tom Clabburn & Claire Prosser

In Memory of

Euan Campbell

• Margaret Waddell sent a donation of £1,183.44.

In Memory of

James W Campbell

“Paul and Ellen would like to offer a huge ‘thank you’ to the hundreds of people who have supported Tom and Claire’s Memorial Fund via our Justgiving page. Over the years, more than £95,000 has been raised, a magnificent achievement that has sponsored many heart screenings. We’ve decided to close the page because donations can now be made via the CRY site” • Elizabeth Zita donated £150.00.

• Karen Campbell sent a donation of £635.80, raised through holding a preChristmas auction on Facebook of a variety of new items donated by Tesco, friends and family.

In Memory of

• Stuart Clarke sent a donation of £130.00 in memory of his Grandmother Lilian.

Jake Thomas Carney

• David Carney sent a donation of £500.00 at the bequest of Elsie Carney in memory of her grandson Jake.

• Sabeha Syed donated £100.00. • Tim Carpenter donated £100.00.

Lilian Clayton

In Memory of

Brian R Cole

• James and Celia Robinson donated £100.00.

In Memory of

Andrew Carter

• Hazel Cole sent £100.00 representing donations received in lieu of floral tributes, in memory of her father Brian.

• Mary Tomsett sent a donation of £445.00 representing proceeds from the sale of handmade Christmas decorations and cards in 2022.

In Memory of

Christopher D Connor

In Memory of

Ryan W Carter

• Ann Marie Connor forwarded a donation of £100.00 from Karen.

• Richard Wesemyer sent a donation of £2,000.00 from the Southampton Round Table.

www.c-r-y.org.uk

Our Fundraisers In Memory of

Jasper B Cook

• L1310 Harrow Temple in Unity Lodge donated £500.00. • Sarah Washington donated £100.00. • Claire Ayres sent a donation of £100.00.

In Memory of

Bruce Cousins

• Jackie and Alan Cousins sent a donation of £100.80. • Jackie Cousins sent a donation of £106.54.

In Memory of

Christopher Cowe

donations of kind people like you, raised an amazing £750 for one of our nominated charities – Cardiac Risk in the Young. Determined to do even better this year, a challenge was set to reach £1,000. Guess what? With your help, we have achieved that goal! Tim Buckle a mentor with the Chimp management team and who has had a number of tragic encounters with cardiac sudden death will be raising money again this year to continue his support of CRY. All it takes is for one to make a small purchase – whether it be one, two or a dozen eggs – to have a positive and meaningful impact on a life. Not to mention the amazing taste that comes with these free-range organic eggs. The money raised over the year will be donated in Charlie Craig’s name from Ride For Charlie – Foundation supporting inspired young off road riders. • Professor Steve Peters and the team at Chimp Management raised £1,000.00 from the sale of eggs.

• Ross Cowe held an online Christmas Raffle which raised £1,001.70. • Richard Hart donated £400.00.

In Memory of

John Cunningham

• Brian Cunningham donated £100.00.

In Memory of

Freya Cox

• Mike, Alison, Ollie and Matilda completed the Andes Mountan Trek raising £21582.05.

In Memory of

Matthew Cragg

In Memory of

Stuart Cutler

• The Rotary Club of Whitburn sent a donation of £100.00 in appreciation of a talk by Dave and Natalie Cutler. • Natalie Cutler donated £250.00.

• Georgia Cragg sent a donation of £1,050.00 raised from the Cobham Rugby Ladies Lunch.

In Memory of

Chandler A Dagg

In Memory of

Charlie Craig

• Samantha Lord sent a donation of £714.00 raised by herself, Eleanor, James and Charlotte through an 10K inflatable obstacle race.

This time last year, Chimp management, the psychological wellbeing team created by Professor Steve Peters with the help of Professor Steve, chickens and the

Issue 90 | January to April 2023

Our Fundraisers In Memory of

Freya Dalrymple

• Ingrid Dalrymple sent a donation of £500.00 raised by Melanie Smith of Orkney Mangata Candles, She created 50 unique candles together with Celina Rupp, Jeweller and Ingrid in memory of Freya which were sold at a charity event. • Ingrid Dalrymple sent £582.00 representing donations received in lieu of floral tributes, in memory of Freya’s Granny Lorna Dalrymple.

In Memory of

Ben Daniels

• Cams Hall Golf & Country Club donated £7,500.00 raised from their year of fundraising. • Ravenswood Parents Friends Association donated £700.00 which was raised in the Christmas packing at Waitrose with Ravenswood School.

In Memory of

Thomas Day

• Leeds Grammar School raised £127.97. James Day completed the Leeds 10k in memory of his brother Thomas Day. Team Tommy’s challenge for 2022 was to run the 10k run in Leeds, Tom’s home city. Team Tommy comprised of a small group of family and friends this year – James, Maria, Amelia and myself. As usual we had a great response from family and friends continuing to raise the much-needed funds to support CRY. Thank you, Team Tommy, and a big thank you to everybody who donated to this worthy cause.

In Memory of

Adam Dearnley

• Tricia Dearnley forwarded a donation of £310.00 from the West Bridgford Methodist Church Meeting Point. • Tricia Dearnley sent a donation of £877.50 raised by West Bridgford Methodist Church from their Coffee morning and through the sale of knitted toys.

• Opera donated £350.00. • Tricia Dearnley sent a donation of £140.00 raised through a bucket collection at Morrisons Gamston.

In Memory of

Neil John Darby

• Heysham Golf Club donated £670.00 raised from a Charity event.

In Memory of

Claire Dee-Shapland

• Nick and Eve Dee-Shapland donated £300.00.

In Memory of

Paul Davies

• The Dudley Hugs support group donated £3,650.00.

In Memory of

Aaron Dixon

Luke May completed the The National 3 Peaks in under 24 hours in memory of his friend Aaron Dixon.

In Memory of

Andrew Dawson

• Ann Bath sent donations of £132.33 and £205.88 raised from cake sales.

On the 31st July 2021 we embarked on the gruelling challenge of completing the national 3 peaks within 24 hours in memory of our good friend Aaron James Dixon. It’s been nearly 10 years since we lost Aaron. It was the 4th of September in 2011 when our world changed forever. Heaven gained an angel, and we lost an exceptionally charismatic, funny, popular friend, we all miss so dearly!

www.c-r-y.org.uk

Our Fundraisers We lost Aaron from an undiagnosed genetic heart defect, called ARVC, and in memory of him, and following on from his 30th Birthday Challenge of climbing the yorkshire 3 peaks in 12 hours, we set ourselves a new challenge of completing The National 3 Peaks in under 24 hours.

In Memory of

Adam Donnelly

• David Williams completed the Night Rider London in memory of his best friend Adam raising £1110.42.

As we did in Yorkshire, we lay down a rose on each of the summits on the tallest mountains in Scotland (Nevis), England (Scafell Pike) and Wales (Snowdon) in memory of Aaron, whilst raising some vital funds for the charity CRY (Cardiac Risk in the Young) The money raised will be used to fund free heart screening days for young adults aged 14-35 years of age across the north west organised by his amazing mum Debbie

• Julie Donnelly sent £110.00 raised as follows; £10.00 in lieu of a 90th birthday present for her mother and £100.00 representing a Christmas donation from her auntie.

The challenge consisted of 3 mountains, across 3 countries, 23 miles of walking, over 600 miles of driving, 3064 metres ascent, and 68,000 steps and we completed all of this in 22.5hrs.

• Anglesey Soroptimist Club sent a donation of £1,000.00 in contribution to the screening event in Anglesey.

This was such an incredible experience for our boy, as we pushed all our bodies and mental strength to the extreme. Our team members were exceptionally motivated and we worked incredibly hard together to succeed. • The Gannett Foundation donated £541.18. • Deborah Dixon forwarded a donation of £215.00 from Mr and Mrs Burke from Lymm Cruise Club as well as donating a further £3512.18.

• Julie Donnelly sent £4,944.69 raised by Our Lady of the Rosary social club who held a race night in memory of Adam.

In Memory of

Gary Edwards

• Chloe Boobyer sent a donation of £200.00 from Unite in memory of her husband Mark Boobyer.

In Memory of

David Egerton

• William Rossiter donated £250.00.

• Alison Knowles sent a donation of £658.95 in memory of her partner Malcolm Ellwood.

In Memory of

• Samuel Jones sent a donation of £469.92 raised from a Charity nutritional talk.

• Olivia Pearce completed the Birmingham Black Country Half Marathon in memory of her cousin, Anthony raising £1836.51

• Everybody Health and Leisure donated £3,000.00.

Anthony Evans

• Mrs Swainson donated £120.00. • Groundwork UK donated £500.00. • The Rotary Club of Northwich donated £1,000.00. • Chris Woods donated £1,174.00.

In Memory of

Harry Faulkner

• Julian Craxton sent a donation of £270.00 raised from an annual Junior Squash Christmas competition. • Julian Craxton sent a donation of £380.00 raised from 2 Junior Squash Tournaments.

Issue 90 | January to April 2023

Our Fundraisers In Memory of

Threse Field

• Tara Challenor sent donations totalling £825.50 raised as follows; £197.00 from a Christmas market with stalls ranging from cakes, jewellery, xmas craft and perfume and £628.50 raised through a Christmas concert.

In Memory of

Ben Forsyth

• Margaret Strang donated £150.00. • Isla Short donated £500.00. • Linda Lawton sent a donation of £900.00 raised by friends and fellow cyclists at the Strathpuffer. • Victoria Baring donated £100.00.

In Memory of

Anthony Fitzgerald

• Genreal Page set up for Anthony by his sister Laura raised £29442.96. • Desmond Diamond donated £300.00.

In Memory of

Henry Foster

• Frances Foster sent a donation of £4,410.00 raised at a Charity ball.

• Blackheath Rugby Club donated £160.00. • Alison Fitzgerald sent a donation of £1,023.50 raised through a quiz night at Blackheath Rugby Club.

In Memory of

Joanne Fotheringham

• Caledonian Maritime Assets Limited donated £2,000.00.

In Memory of

Katie Fleet

• Alex Eaton sent a donation of £800.00 raised from The Great Wilderness Challenge.

Janice Fleet sent a donation of £800.00 raised from a Wreath Fundraiser. On the 26th November, festive fun was had by all who attended an afternoon of traditional wreath crafting. Over the following weeks homemade wreaths were sold in high demand and a total of £741.50, was raised in loving memory of my daughter Katie. All proceeds will go on to Katie’s memorial page for CRY. A huge thank you to all who attended the wreath workshop and to those who purchased a holly wreath in aid of the charity, CRY.

In Memory of

Andy Forbes

In Memory of

Brian Francis

• Mrs M Francis sent £100.00, representing donations received in lieu of floral tributes, in memory of her husband Brian.

In Memory of

Roger J Freeman

• Stuart Freeman raised donations on JustGiving.

In Memory of

John Garrigan

• Jane Stubbings donated £200.00.

• £3349.99 was raised through the Tesco Supply Chain Walkathon.

www.c-r-y.org.uk

Our Fundraisers In Memory of

In Memory of

• James Gault sent £1,520.00, representing donations received in lieu of floral tributes, in memory of his wife Margaret.

• Peter Dennis sent a donation of £6,150.00 representing funds raised during his time as Seniors Captain at Kilworth Springs Golf Club.

Jaimie Gault

Matthew Gore

In Memory of

• The Debenham Young farmers club sent a donation of £510.00 as they chose to raise money for CRY last year.

• Mark Tipping choose CRY as the charity to benefit a donation of £3717 in respect of Tipping’s 2022 Christmas Lights.

Joshua Thomas Gilbert

In Memory of

Steven Gilmour

Jordan Grant

In Memory of

Adam Green

• Elaine Mccrorie donated £100.00.

• Max Christian donated £100.00. • Stuart Wotherspoon sent a donation of £300.00.

• Tom Green sent a donation of £205.00.

• Lorraine Gilmour sent a donation of £522.50 from a Christmas Hamper.

In Memory of

David Green

In Memory of

Alexander Goodman

• Funds raised from an Open Day which included handmade cards, cakes, Christmas gifts and a raffle. £500 was donated from family, with generous support and gifts from friends.

In Memory of

Ashley Goodwin

• Linda Goodwin sent donations totalling £489.54 raised as follows; £339.54 from a coffee morning and raffle, £100.00 from Mark Aggleton and £50.00 from Mike Aggleton. • Linda and Geoff Goodwin sent a donation of £1,300.00. • Linda Goodwin sent £116.00 from donations made at a screening day.

• Quinton Shillingford completed a Birthday Skydive.

In Memory of

Thomas Stanley Jack Greenwood

• The Potteries North District Scout Council raised £1,127.99 through a Carol Service and Gang Show events.

In Memory of

Oliver Griffin

• Suzanne Pullen sent a donation of £1,000.10. On Friday evening 12 eager quiz teams from Runnymede Runners assembled to raise money for CRY. This was in memory of Oliver Griffin who suddenly passed away 15 years ago at the age of 26. His family were all present. His dad, Owen Griffin, is a member of the club, a marathon runner, and a witty and terrific quiz master. His mum, Barbara Griffin, gave a touching welcoming speech

Issue 90 | January to April 2023

Our Fundraisers which gave the event and evening real meaning.

In Memory of

It was a fun occasion, and much appreciated because – since the pandemic – there have been very few opportunities for us to come together as a friendly and mutually supportive club.

• Angela Hancock sent a donation of £320.00 raised by Anne Barber through making and selling her crafts.

In total we raised £1000 for CRY, and also helped support the local cricket club by getting (politely) rowdy at their bar. We really appreciated raffle donations from Achieve Lifestyle Egham, the Fairmont Windsor Park Hotel, Jumbo Importers, Saville Garden, Synergy Physiotherapy, and Up & Running in Teddington and lots of help from running friends.

Mark Hancock

In Memory of

Thomas Hardman

• Jennifer Cross ran the TH96 9 mile run in memory of Tom Hardman raising £691.

In Memory of In Memory of

Matthew Hadfield

• Diana Hunt donated £200.00 from her nectar points.

Graham Harrison

• Driffield Town Cricket and Recreation Club sent a donation of £374.00 raised from a General Knowledge Quiz Evening.

In Memory of

• Rebecca Spencer sent a donation of £1,510.00.

• Liz Moston sent £140.00, representing donations received in lieu of floral tributes, in memory of her father Michael.

Thomas W Hadwin

David Harrop

In Memory of

Ben Hammond

• The Weald of Kent Ploughing Match Association raised £500.00 through their annual Ploughing Match.

In Memory of

Jonathan Hayman

Marion Hayman sent a donation of £2,511.00 raised through the Sidmouth 4 Trigs Challenge.

In Memory of

Kyle Hancock

• Ian Hancock sent donations totalling £240.00 raised as follows; £100.00 from a Christmas Jumper day at Geo Carbolite, £90.00 from The Bamford Women’s Institute through holding a raffle and £50.00 from Josephine Stables in lieu of Christmas cards. • The Hathersage Association for the Prosecution of Fellows donated £100.00.

www.c-r-y.org.uk

This year, the weather for the 4 Trigs Challenge totally transformed the run, as the sun was out and the horrendous conditions of last year became a distant memory. 129 competitors set off from Sidmouth’s esplanade at 9.30am on Sunday 5th February. Ideal weather and perfect conditions underfoot, were possibly contributing factors as to why two longstanding records were broken. In repetition of last year, Samuel Kelly, of Exmouth Harriers, and Jo Meek, of Tavistock Athletics Club were the first man and first woman home. They both managed to break the existing records. Samuel Kelly came home in 2:09:15 beating G Perratt’s record of

Our Fundraisers 2:09:40 back in 2004. Jo Meek came home in 2:36:31 beating L Kendon’s record of 2:37:00 in 2010. This ‘low-key’ off-road running event covers a distance of approximately 28km with an obscene amount of climb involved. Underfoot is mixed terrain, mainly dirt trails, but with some grass and gravel, not to mention steps, tree roots and some drainage gutters on the route, as well as some steep sections of climb and fast descents. The aim is to visit each of the four Triangulation Pillars around the Sid Valley, with runners choosing their own routes, but they must visit each Trig Point in order (Weston Cliff was first this year), taking in the 5 Check points to help taper the route. Local club, Sidmouth Running Club, “The Mighty Greens” had been preparing for the challenge by upping their mileage on the Club Sunday runs. This year the training was in worse conditions underfoot than the actual event; no slip sliding down the mud to Weston mouth and running through rivers of water for example! 36 Mighty Greens entered the Challenge. Richard Summerhayes was Sidmouth Running Club’s first man home 2:48:05 in 18th place and Jessica Watkins was SRC’s first woman home in 3:34:33-fantastic running by both.

£2,500.00 was raised from entry fees and donations at the event. Several online donations have also been made post-race, and have boosted funds further, bringing the total so far to £2,750. The amount “The 4 Trigs Challenge” has raised for Cardiac Risk in the Young, has broken another record this year. Thank you to everyone for your generosity. Marion Hayman sent £600.00 raised by Stephanie and Fluff Preston, and a small team of helpers, on numerous stall events. Marion Hayman and her team of ladies, led by Stephanie Preston, raised an amazing £682 at their cake bake/ coffee morning on Friday 25th November. Stalls included cakes, bunting, reindeers, Christmas trees, raffle and so much more. The event was well-supported by the local community. The money raised will go to the Jonathan Hayman Memorial Fund. • The Sid Valley Cycle Club raised £285.00 through a raffle at their Annual Dinner and Presentation Evening. • Marion Hayman sent two donations £170.00 raised by Marguerite and Pete Grant from produce on stalls and £600.00 raised by Stephanie and Fluff Preston, and a small team of helpers, on numerous stall events. • John Keast donated £1,000.00.

New to the event this year was a team from Sidmouth Primary School, put together by Jess Trim and Adrian Horne. They wanted to raise extra funds for the school and the CRY charity, by asking for sponsors amongst staff, parents, friends and family. Local businesses added their support to the event. Kate Truman of Phyzz Soft Tissue Therapy kindly provided a post-race massage, for any runners in need, in return for donations to the charity. A big thank you, must go to the sponsors of the event, Nigel Winchester, of Ian Winchesters and Sons, and Richard King of Kings Garden and Leisure. Also, to the Marshals out on the course and on the finish line, and to the team at the clubhouse providing refreshments. A special mention must also go to our 10-year-old granddaughter Chloe Frisby, who was there from 7.30am. She helped with registration by giving out the numbers. She then helped in the kitchen preparing food, waited on tables and cleared up. When we got home after a very long day, she counted the money in the CRY collection boxes. It was so lovely to have her involved in the CRY family and my fundraising event.

•

George Rosser donated £100.00.

• Stephen Rosser donated £100.00. • Sidmouth C of E Primary School donated £250.00.

In Memory of

John W Heap

• Pamela Heap sent £337.00, representing donations received in lieu of floral tributes, in memory of her husband John.

In Memory of

Brian Heath

• Jill Heath sent £1,220.00, representing donations received in lieu of floral tributes, in memory of her husband Brian.

We are delighted with how the event went. Over

Issue 90 | January to April 2023

Our Fundraisers In Memory of

In Memory of

• Pauline Sanderson sent a donation of £500.00 raised from a Boogie Night Evening.

• Tony Hillier sent a donation of £375.00 raised as follows; £200.00 in lieu of Christmas cards and gifts, £145.00 in loose change and notes at home and £30.00 from Mrs P Hemshall.

Matthew Hesmondhalgh

• Paula Hesmondhalgh sent donation of £2575.63 raised as follows; £303.00 from a festive pop-up shop including body shop sales from Krystal and £75.50 from a coat sale, £381.00 raised from various small sales, donations and gifts over the past year, £451.65 from screening day donations, £200.58 raised from Pop-up shop sales, £507.90 raised from the URC Garstang Coffee Morning and £656.00 raised through pop-up shops and a local village fundraiser. • Nathan’s Wastesavers donated £396.00 and £458 raised through the sale of rag bags. • Maelstrom Kitchens and Bedrooms donated £150.00. • Lehmann Food Ingredients Ltd donated £500.00 following a nomination from Craig Clifford. • The Tamarisk Dance Group donated £300.00.

Laura Hillier

• Tony Hillier forwarded a donation of £100.00 from Michael Wreford as part of the annual pre-Christmas sleigh ride.

In Memory of

Liam Hipkin

• Julie Rust sent £162.15, representing donations received in lieu of floral tributes, in memory of her husband Stanley Rust.

In Memory of

John Hodgetts

• Patricia Tayler-Jones donated £100.00.

In Memory of

David Hill

• Samantha Jarvie donated £100.00. • Gus Dykes donated £180.00.

In Memory of

Nicholas Holland

• Matthew Palmer collected donations totalling £495 for his 40th Birthday.

• The Morrinton Community Group donated £300.00. • Tom Stone sent a donation of £1,000.00 on behalf of Team re:act.

In Memory of

• Kirstin Harrison sent a donation of £1,000.00.

• Charlotte Quint completed the Swansea Half Marathon raising £735.

Lauren Holly

• Jenny Lindsay sent a donation of £1,000.00. • Matthew Stevens ran the Brighton Marathon in memory of his niece Lauren Holly raising £8461

In Memory of

Richard Hill

• Nicola Hill sent a donation of £133.55 raised by the staff at Eyam Surgery from their non uniform days.

In Memory of

Stewart Howard

• Jane Howard sent a donation of £820.00 raised through a Christmas light display and Tesco collection.

www.c-r-y.org.uk

Our Fundraisers • Paula Locke sent a donation of £436.40 raised from her ebay sales.

In Memory of

• Jane Howard sent a donation of £2,000.00 raised through a car boot sale at Tesco’s on Easter Sunday.

• Gawsworth Methodist Church raised £300.00 from a Coffee Morning.

• Paula Locke raised £273.23 through her ebay sales.

• Ruth Worth donated £150.00.

In Memory of

Daniel Hughes

• David Hughes sent a donation of £730.00 raised at Neil Martin’s Bingo evening, £600.00 raised from the sale of Around Audley Calendars by Duncan Richardson and £495.00 raised through ticket sales from a sports evening. as well as donation £100 and £1225

Mia Jennings

• James Jennings sent £320.00, representing donations received in lieu of floral tributes, in memory of his daughter Mia. • Lyn and Chris Tarr donated £100.00. • Simon Foster donated £100.00. • Judith Chalkley donated £100.00. • Alan Mellor donated £100.00. • Margaret Black donated £100.00.

• Potteries Building Supplies donated £1,000.00 in lieu of Christmas cards.

• Sandra Boardman donated £100.00.

• Thomas Hall donated £100.00. • Mr & Mrs Davenhill donated £200.00.

In Memory of

• Mrs Griffiths sent £1,410.53, representing donations received in lieu of floral tributes, in memory of her husband Alan Griffiths.

• Margaret Bailey donated £200.00.

• The Hitmix 107.5 donated £250.00 from the Johnny Owen Fund.

In Memory of

Robert J Jones

Stevie Jivani

In Memory of

Lisa Johnson

• Eunice Johnson sent a donation of £200.00 of which £50.00 was raised through a walk by Carl Johnson and Dave Lock.

• Alice Bew completed the Peak District 100k Ultra Challenge in memory of her friend Rob raising £2726.82 • Ann Bew and Ians wedding raised £1780 in lieu of gifts, tributed to Ann’s Nephew Rob. • Ian and Ann Macaulay sent £200.00 representing donations received in lieu of wedding gifts.

In Memory of

Alexander E Jones

• David Williams sent a donation of £250.00 from Velotik RT and Wrexham RC following a National Hillclimb Championships event.

Issue 90 | January to April 2023

Our Fundraisers In Memory of

Ethan Jones

• Sabeha Syed donated £100.00.

dwarfs in the 43-year history, it has been an absolute delight. The amazing cast and technical team had pulled out all the stops, in their first show post Covid, to make it a huge success.” • Lucton School donated £851.00.

In Memory of

Kieran Joyce

“Snow White and the Seven Dwarfs In February 2023, almost three years since our last production, HAPS finally got to perform their 40th Pantomime. This was the first time HAPS had performed Snow White and we were thrilled to bring it to the Courtyard, Hereford. We welcomed 10 new members this year, mainly youngsters with a mixture of ages and abilities who brought such fun and laughter to rehearsals. Many of them took on a small principal role for the first time. What a wonderful week it was being back on stage doing what we all love – performing and spreading fun and laughter to audiences. Each year HAPS endeavour to make a donation to a local charity of their choice and in 2023 the chosen Charity was CRY (Cardiac Risk in the Young) – Kieran Joyce Memorial Fund. This fund was set up by the Joyce family to support CRY reduce the frequency of young sudden cardiac death. In September 2019 Kieran, who was only 15, fell asleep and never woke up. He was a fit and healthy youngster. The fund was set up by Kieran’s family, not only to inform and create awareness, but also to raise money in Kieran’s memory. CRY facilitate the vital screening needed to help avert cases of young sudden cardiac death. For every £6,000 raised, this allows for a team to come along to Hereford for a day and screen 100 young adults between the ages of 14 to 35. During the run of our show over 180 young people were screened at the local football ground, including several members of the cast. Louisa Tobin said it was a great privilege as HAPS Chairman and Snow White in the show, to present a cheque on the last night to Kieran’s mum, Andrea and daughter Ruby Joyce for £2,000.

• Andrea Joyce sent donations of £2,000.00 raised through a cocktail party, £147.00 raised through glitter face painting by Sarah Davies at smoke feast and £1,605.00 raised from her Cocktail Party. • Hannah Price sent £1,200.00 raised by herself, Emily, Lucy, Tash, Will and Olly at the Kington Food Festival through a cake sale and raffle. • Olwen Jones donated £100.00. • The Hereford Amateur Pantomime Society raised £1,500.00.

In Memory of

Eleanor Rose Keeler

• Annette Keeler donated £100.00.

In Memory of

Joe Kellogg

• Your Space Property Group donated £500.00.

In Memory of

Alanna Keltey

• Nicola Ketley completed the Solihull Half Marathon in memory of her daughter, Alanna raising £3827.37.

In Memory of

Jennifer Kerwood

• Anthony Parsons donated £100.00.

Director Louise Hickey said that, as this was the first time that HAPS had performed Snow White and the seven

www.c-r-y.org.uk

Our Fundraisers In Memory of

Andrew Key

• Ann-Marie Key sent a donation of £2,064.00 raised from her mince pie sales.

In Memory of

Zoe King

• Steven Paul and the Paragon team completed a 7km long obstacle & #lovemud course event, including up to 70 obstacles such as the Deathslide, Akilla Walls & Terror Traverse! in memory of Zoe King raising £150.

In Memory of

William Lane

• Henry Sainty donated £100.00. • Rachel Lewis donated £150.00. • Suzanne Hulls donated £100.00.

In Memory of

Rishi Kukar

• Parvin Kukar donated £250.00.

• Richard and Teresa Lane donated £110.00. • Neil Allcock sent a donation of £300.00 raised from a January Diet Challenge by friends. • Laurie Horwood donated £100.00. • Sam Macdonald donated £100.00.

In Memory of

Michael Land

• Grania Bryceson donated £100.00.

• Ruth Cain sent a donation of £175.00 raised in the following ways; £125.00 from screening day donations, £10.00 from Ken and Janet James in lieu of Christmas cards, £20.00 from a collection box at the Al Football Factory and £20.00 from a collection box from Simon and Suzanne Griffiths.

• Georgina Fraser donated £100.00. • Alice and Mark Yandle donated £200.00. • Jo Ord donated £100.00. • Laura Conduit donated £100.00.

• Diane Green sent £516.27, representing donations received in lieu of floral tributes, in memory of her husband Stan Green.

• Oli Piper donated £100.00.

Ruth Cain sent donations totalling £1,300.00 raised at a Gentleman’s Dinner arranged by David Thorpe. £600.00 was raised on the night and a further £700.00 donated at the same event by Craig Hewitt of Logic Lettings.

• Nyla Yousuf donated £100.00.

• Jonathan Eley donated £100.00.

• Bethan Waters donated £100.00. • Zaid Dadah donated £100.00.

David Thorpe arranged a Gentleman’s Dinner at Darrington Golf Club and raised £600 in Memory of Michael Land for CRY.

• Patrick Hammond donated £100.00. • Marie Bates donated £100.00.

Craig Hewitt of Logic Lettings who attended the dinner, donated a further £700 to Michael Lands Memorial fund making a total of 1,300 pounds.

• Russell Cohen donated £100.00. • James Maloney donated £100.00.

Issue 90 | January to April 2023

Our Fundraisers • Georgina James donated £100.00. • David Todd sent a donation of £100.00 from Maria Hunter. • Richard Berkley-Matthews donated £100.00. • Charles Anderson donated £100.00.

In Memory of

Joseph Leyland

• Paula Ratchford-Barker sent a donation of £292.50, raised through Louise Waldron-Kelly’s Triple Chester sponsored run and Paula and her daughters cake sales.

• Bryony Cove donated £100.00. • Jenny and Daniel Dayan donated £100.00. • Nick Dunnell made a donation in memory of William Lane.

In Memory of

Jacob K Lister

• Joanne Lister sent £838.85, representing donations received in lieu of floral tributes, in memory of her son Jacob.

In Memory of

Carli Lansley

• Karl Lansley sent a donation of £3,900.00. • Wesley Methodist Church sent a donation of £704.05 raised from a Christmas Cafe and Santa’s Grotto.

In Memory of

Samuel J Little

• Liz Devenish donated £100.00 in lieu of sending Christmas cards.

In Memory of In Memory of

Kris Ledgard

Kira Louise Lloyd

• The Simply Spiritualist Church donated £100.00.

• Jenny Perry donated £100.00.

In Memory of

Myra J Locock

In Memory of

Kelly Lee

• Norman Locock sent a donation of £205.00 raised through a quiz night.

• The University of York Biology Department collected donations totalling £438 in memory of Kelly Lee. • Gerald Lee sent £363.00, representing donations received in lieu of floral tributes, in memory of his daughter Kelly.

In Memory of

Jamie Loncaster

• Abbie Jackson sent a donation of £1,187.29 raised from the Porsche Centre Hull charity walk. • Swanland Parish Council donated £194.21. • Neil Evans donated £250.00. • Susan and Peter Loncaster donated £250.00.

www.c-r-y.org.uk

Our Fundraisers In Memory of

In Memory of

• Michelle Turner sent £105.80, representing donations received in lieu of floral tributes, in memory of her mother Joanie.

• Chris Yoxall completed Chase the Sun North raising £1290.

Joanie A Greenway Lowther

Lee Mallison

In Memory of

Helen Luke

Sally Hughes cycled from Vietnam to Cambodia in memory of Sally’s sister Helen raising £2907.58. Louise Parckar Cycled 450km across Vietnam and Cambodia with Sally Hughes raising £2619.27. Two years later than originally planned, Sally and Louise reached their goal of cycling 450 km across Vietnam and Cambodia. Starting in Ho Chi Minh City, Vietnam and finishing in Siem Reap, Cambodia at the ancient site of Angkor Wat. The pair raised £5,472 in memory of Sally’s sister Helen Luke who died suddenly of Arrhythmogenic right ventricular cardiomyopathy (ARVC) at the age of 26 in 1994. A huge heartfelt thank you to all our supporters.

Lewis Marsh

• Wokingham Tennis Club raised £200.00.

In Memory of

Dean Mason

• Gwenfair Mason sent a donation of £800.00 raised by the Camrose Vintage Working Day. • Rhian Williams donated £100.00.

In Memory of

Richard Mason

• Val and Roger Mason donated £100.00.

In Memory of

• DLA Manchester completed Office Yoga raising £979.

• Alan Mayger donated £100.00.

Alan Lumley

In Memory of

Andrew Macleod

• Lewis & Harris Rangers Supporters Club donated £1,000.00. • Marina Mackay sent £1,000.00, representing donations received in lieu of floral tributes, in memory of her father Donald Norman Macmillan.

Claire Mayger

In Memory of

Aine McCann

• Aravon Mccann sent a donation of £500.00 raised through the following; £250.00 from a charity line dancing fundraiser and £250.00 from customer tips at K9 Kennels. • Aravon McCann sent a donation of £105.00 raised through collection boxes at Frazers shop in Maguiresbridge.

Issue 90 | January to April 2023

Our Fundraisers In Memory of

Luke Moss

• Jeremy Moss sent a donation of £675.00 raised from a party and raffle at Preston & Fylde Gyms.

In Memory of

James McGowan

In Memory of

Paul Mulford

• The Poker Players donated £100.00.

• Ellery McGowan sent a donation of £160.00 raised from charity boxes at Charterhouse Café.

In Memory of

Angus Ross McPhaden

Harry Mullington

• Garry Jackson donated £300.00.

• The BSI Group donated £500.00. • Jane McPhaden donated £285.00.

In Memory of

Andrew Murch

In Memory of

John Millar

• Christine Charpentier sent £1,885.00, representing donations received in lieu of floral tributes, in memory of Iain Millar.

• Alastair Cruickshank donated £2,000.00. • Pitlochry High School’s Fairtrade Committee raised £100.00 through their Community Cafe donation collections.

• Barbara Henry sent a donation of £4,022.00. • Charmain Tattersall sent a donation of £200.00.

In Memory of

James Murgatroyd

• Sarah Thellusson donated £100.00.

In Memory of

Samuel Moodey

• Mickleover 95 Football Club donated £175.00.

• Sally Moodey donated £100.00 raised from a cake sale.

In Memory of

James Nicholas

In Memory of

James Moorfoot

• Mike Heyes completed a 32 day 10K challenge raising £260.

• Hornsea School donated £370.84.

www.c-r-y.org.uk

Our Fundraisers In Memory of

Frederick A Ninham

• Stephen Ninham sent £285.00, representing donations received in lieu of floral tributes, in memory of his father Frederick.

donations received in lieu of floral tributes, in memory of Tony Oliver.

In Memory of

Clayton Olson

• Sutton Valence School sent a donation of £1,085.37 raised through a quiz.

In Memory of

Barry Nivett

• Thomas Guy donated £200.00.

In Memory of

Amelia M Osborne

• Andrew Osborne sent a donation of £500.00 from Buildform Ltd in support of his ‘Row for Amy’ fundraising.

In Memory of

Richard Northedge

• Derek and Pat Northedge donated £100.00.

In Memory of

Alfie Nunn

• The Gladstone Trust sent a donation of £200.00 in support of Andrew Osborne’s ‘Row For Amy’ fundraiser. • Charlie and Tom Horsley donated £200.00. • Christopher Tetley sent a donation of £1,000.00.

• Nicky Reader donated £100.00. • The Martin Smith Foundation donated £1,000.00 in support of Andrew Osborne’s ‘Row For Amy’ fundraising.

In Memory of

Sean O’Brien

• Aileen Hankin sent a donation of £127.50 raised from a World Cup Sweepstake.

• Margo and Charles Sly from Sly Brothers Ltd donated £1,000.00 in support of Andrew Osborne’s ‘Row for Amy’ fundraising.

In Memory of

James Ogden

Charlene Page

• Patrick Ruddy sent a donation of £1,000.00.

• Christine Butter Worth donated £100.00.

In Memory of

Andrew Oliver

• Robert Bell donated £100.00.

In Memory of

Gregory Palmer

• Janet Palmer donated £200.00 in commemoration of the 20th Anniversary of Gregory’s death.

• Chris and Judith Oliver raised £263.56 through holding a Christmas craft stall and a Tombola at Elm Ridge Christmas Fayre in Darlington. • Donations were sent totalling £681.56, representing

Issue 90 | January to April 2023

Our Fundraisers In Memory of

In Memory of

• Karen Holdcroft did dry January and raised £250.

• Charles and Karen Pearmine donated £152.00.

Ben Parkes

In Memory of

Andrew Parr

• Ruth Lowe sent £192.00 from donations made at a screening weekend.

Adam Pearmine

In Memory of

Phillip Perkins

• Chrissy Morgan sent £262.50, representing donations received in lieu of floral tributes, in memory of Phillip.

In Memory of

Amit Patel

In Memory of

Ben Peters

• Mrs K Patel sent £676.00, representing donations received in lieu of floral tributes, in memory of her husband Amit.

• Stephen Peters sent £3,222.82, representing donations received in lieu of floral tributes, in memory of his son Benedict.

In Memory of

Kevin Paterson

In Memory of

Tom Petley

• Patricia Toft sent a donation of £150.00 in memory of Kevins’s birthday and in lieu of sending Christmas cards.

In Memory of

James P Patterson

• Rogers Stirk Harbour & Partners Charitable Foundation donated £150.00 in support of Andrew Highton’s 2022 Lake District Challenge.

The Volunteer Clacton-on-Sea Police Cadets raised £153.46 from a raffle. “On Saturday the 19th November Clacton police cadets had a stand at the Clacton Victorian Fayre that was held at Clacton Town Hall. The cadets at a unit night talked about at various ways in which they could raise money for the charity Cardiac Risk in the Young at this event. The cadets came up with a raffle, guess the name of the teddy bear, lucky dip and guess how many coppers in a coppers hat. We will continue to look at ways to raise money for this fantastic cause.” •

Helen Petley donated £100.00.

In Memory of

• Penguin Random House UK donated £299.00.

• Liberton Primary School donated £150.00.

• Brian Petley sent a donation of £793.09 raised through a Pig Racing event.

Jenni & David Paul

• The Hanlon Stevenson Foundation donated £1,000.00.

www.c-r-y.org.uk

Our Fundraisers In Memory of

In Memory of

• Bethan Phillips and the Mumbles Rangers Ladies completed a Park Run and raised £1243.

• Stephen Pomfret sent £1,017.00 raised through a Coffee Morning.

Duncan Phillips

Alessandro Pomfret

• Dana Fiori raised £257.00.

In Memory of

Andrew J Pickering

• Stephen and Nadia Pomfret donated £100.00 in memory of Alessandro’s birthday.

• Neil Levett donated £100.00.

In Memory of

Aiden B Poxon

In Memory of

Jake Anthony Pickford

• Carolyn Harrison completed a zip wire for CRY and raised £270.

• Cheeky Little Burger donated £158.00. • Jordan Coulson sent a donation of £927.50 raised through a Charity football match.

• Gaye Pickford sent a donation of £2,838.98 raised through a Charity Night held in memory of Jake on his 21st birthday alongside raising £430 through a raffle.

In Memory of

• Alyson Davies donated £100.00.

• Diane Tolley sent a donation of £400.00 raised through a Christmas bazaar at The Horn and Trumpet.

Robert Poysor

• Diane Tolley sent a donation of £3,583.00.

In Memory of

John Pirie

• Bristow Helicopters donated £1,250.00. • Dianne Hughson sent £1,700.00, representing donations received in lieu of floral tributes, in memory of her husband Leslie Hughson.

In Memory of

Alden Price

• GXO Logistics Ltd donated £4,500.00, raised through surplus / unwanted goods to staff which they chose to donate to CRY.

• The Shetland Young Farmers donated £1,200.00.

In Memory of

Samuel Polledri

• Louise Polledri sent a donation of £680.00.

In Memory of

Mark Richard Price

• Dawn Price sent £400.00 representing donations received in lieu of floral tributes’, in memory of Mark’s grandmother Nancy Bradshaw.

• Emil Mazzotta sent a donation of £1,854.00 raised through a sponsored Lands End to John O’Groats bike ride.

Issue 90 | January to April 2023

Our Fundraisers In Memory of

In Memory of

• Anilsa Ramos sent a donation of £1,000.00.

• The ASDA Foundation sent a Match Giving donation of £100.00 in support of Ashleigh Hartburn’s fundraising efforts.

Fabio H Ramos

In Memory of

Alex Reid

• Daisy and Carl Rushforth completed the Conwy Half Marathon and raised £800. Rod Hutchinson sent various donations raised totalling £1,850.00. •

Stephen Rogers

• Carol Charlton donated £142.00. • Lilian Hunt donated £120.00 in lieu of Christmas cards.

In Memory of

Jamie-Leigh Rose

• The Duke of Kent Lodge No 5818 sent a donation of £285.50 raised through a raffle.

In Memory of

Debbie Rendle

In Memory of

Hamish Ross

• Sylvia Pezzack sent a donation of £100.00 from the Mousehole Carnival Committee.

In Memory of

Anthony J Rhodes

• Julie Fox sent £151.92, representing donations received in lieu of floral tributes, in memory of Anthony

• Alison and Tony Atkins donated £100.00. • Erin Johnstone sent £165.00 representing donations received at her 21st birthday party. • Karen Smith sent a donation of £888.40 raised at the John Smith’s Memorial Darts competition at The Stags Head. • Kareen Ross sent a donation of £450.00 raised by the Pittentrail Inn.

In Memory of

Joe Ridgway

• Julie Woollams sent £137.50, representing donations received in lieu of floral tributes, in memory of her mother Lucy.

• June Ross sent a donation of £289.00 raised from a Bonus Raffle and Neil McInnes donated a signed Scottish Rugby Ball as the winning prize.

In Memory of

Robert Rowan

• The Brentford Lifeline Society donated £1,520.00.

In Memory of

Shelia Roberts

• Terry Roberts sent £161.00, representing donations received in lieu of floral tributes, in memory of his wife Sheila.

• Caroline Lockhart donated £100.00.

In Memory of

Matthew Sanderson

• Alexander Neil sent a donation of £450.00 raised through a Charity event at The Domino Club.

www.c-r-y.org.uk

Our Fundraisers In Memory of

In Memory of

Katie Driver and Hannah took part in the Le tandem tour de Paris 2022, in memory of Suanu.

• Dove Bank Primary School lunchtime and catering staff donated £100.00 in lieu of Christmas cards and and secret santa.

Suanu Saro-Wiwa

“Hi everyone!! We’re Katie and Hannah. We undertook our first fundraising event 4 years ago, a 10km run dressed as rhinos! This August we took on a new challenge, a tandem cycle from London to Paris – and back! As amateur cyclists, getting to grips with a tandem was… interesting, but 729km of cycling, £1550 raised for an absolutely amazing cause and just like that…we made it back to London Town. I don’t think there was any point on this journey where we were really sure we’d make it in one piece – but we did, and it has been truly incredible!! (we might even go as far as to say we are really gonna miss the tandem). We are so so grateful for everyone who’s donated and supported us on our way, it’s really kept us going There’s probably a book we could write of all the lessons we’ve learnt but top of the list would be to never ever (like seriously never) cycle on a motorway R&R is very much needed right now, but you best believe this is not the last crazy idea we will come up with – so stay tuned;)

Carl D Shenton

In Memory of

Evan J Shonfield

• Peter and Sharon Shonfield donated £100.00 in memory of Evan’s 26th birthday. • Peter and Sharon Shonfield donated £100.00.

In Memory of

Rosie Sillett

• Christina Sillett donated £250.00 in lieu of wedding favors.

In Memory of

James P Patterson & Stephanie Simpson

• Niki Read completed the Lake District Challenge and raised £19005.40

In Memory of

Benjamin M Smith

In Memory of

Tracey Dawn Sendell

• Dee Ambler sent a donation of £1,025.00.

• Kirsty Rowlinson donated £120.00. • Ann Bates donated £200.00. • Caroline Smith sent £200.00 from donations collected at the screening weekend at King Edward VI School.

In Memory of

Matthew Seymour

• Bishipton Rugby Club completed 24 hours of Touch Rugby.

In Memory of

Robert Daniel Smith

• Linda Smith sent a donation of £1,285.00.

Issue 90 | January to April 2023

Our Fundraisers In Memory of

In Memory of

• Sue Fisher sent a donation of £100.00 raised at Romsey Charity Fair for CRY awareness week.

• Shona Tennent-Butler sent a donation of £450.00 raised through completing a 12 mile walk.

Philip Standing

• Mountbatten School donated £710.66.

Dale Tennent-Butler

• Abbots Hill School sent a donation of £14,007.47 raised through a Spring Ball organised by the Parents Association.

In Memory of

Callum Staple-Hughes

• Louise Staple-Hughes sent a donation of £636.96.

In Memory of

Gareth Llywelyn Thomas

• Lee Dymond sent a donation of £350.00.

• Anne Thomas sent £280.00, representing donations received in lieu of floral tributes, in memory of Gareth’s nan.

In Memory of

• Michael Styles donated £200.00.

• The Blackwood Masonic Lodge donated £1,000.00.

• Newcroft Nursery raised £106.50.

David Styles

In Memory of

Paul Sykes

Jack Thomas

• Gillian Bennett raised £1,260.00 from her climb to Everest Base Camp. • June Thomas donated £500.00.

• John Law completed the London to Paris Cycle 2022 in memory of Paul Sykes.

In Memory of In Memory of

Ross Taylor

• Scott and Lizzie Taylor completed the Afan Forest Trail Half Marathon and 10k events.

Nicholas Thomas

• Jenny Thomas sent a donation of £200.00 raised from the sale of handmade cards.

In Memory of

Nathan Tiller

In Memory of

Suzanne Taylor

• Beryl Ewing sent a donation of £250.00 raised from the sale of handmade Christmas cards and donations from friends.

• Jackson Tiller donated £156.00.

In Memory of

Ryan Tilley

• Dave Tilley sent a donation of £106.88 raised by Dance Sensation at Groby Ex-servicemans’ Hall through a dance evening.

www.c-r-y.org.uk

Our Fundraisers • Shannon Knight sent a donation of £160.00 raised through a Charity dance performance.

In Memory of

Isabelle Tudisca

• Trudy Castelynn donated £164.00.

In Memory of

Joe Tiplady

• Jane Tiplady donated £100.00.

In Memory of

Justin J Turner

In Memory of

Stuart Tocher

• Emma Turner sent a donation of £440.00.

• Janice Dobbin Completed a Skydive for Stu (brother) and raised £685.

In Memory of

Fraser Vaughan

In Memory of

Ashley C Trigg

Karen Trigg sent donations of £120.00 raised from the sale of the wooden twirling rifles, belonging to the Capricorn Majorettes and the Academy of Twirl and £560.20 raised at the U.K.F.M National Championships 2023. From a novelty performance from Magic Mike’s team, Mick, Mandy, Trish, Helen and Georgina. £120 was raised from the sale of the wooden twirling rifles, belonging to Ashley’s troupe, the Capricorn Majorettes and the United Kingdom Federation of Majorettes, Academy of Twirl. Ashley loved twirling rifle, she was also an instructor in the Academy and loved teaching it to it others too.

• Cayman Management sent a donation of £200.00 in lieu of a wedding gift for Charlotte and Charlie. • David and Kathy Roberts sent a donation of £200.00 in lieu of a wedding gift for Charlotte and Charlie.

In Memory of

Jamie Vincent

• Stuart Rolf held the AFC Wimbledon Poker Club Charity Event.

In Memory of

Lee Vine

• Glencore Commodities Ltd donated £20,000.00.

£560.20 was raised at the United Kingdom Federation of Majorettes National Championships 2023. This was raised from a group novelty performance from Magic Mike’s group, Mick, Mandy, Trish, Helen and Georgina. Ashley would have loved watching it and would have had a good giggle. Thank you to all the United Kingdom Federation of Majorettes for your amazing support.

In Memory of

Chloe Waddell

• Fiona Waddell sent £153.14 from donations made at a screening. • Altrincham Grammar School for Girls raised £954.85 from their Christmas Jumper Day.

In Memory of

Jonathan Walker

• St Andrew’s C of E Primary School donated £103.38.

Issue 90 | January to April 2023

Our Fundraisers In Memory of

In Memory of

• Lesley and Steven Wallbank sent donations totalling £100.00 from themselves, Janean and Charlie Brady, Catherine Ford and Matthew’s Nana.

• Angela Hayward sent a donation of £115.00 for a ProBus talk.

Matthew Wallbank

Lily Webster

In Memory of In Memory of

Neil Ward

• Elaine Ward sent donations totalling £2415 raised in the following ways; £170.00 from Christmas wreaths made and sold by Kathryn Bullock, £50.00 from the sale of knitted dolls by Sonya Hodgson, £15.00 from the Dronfield Singers rehearsals, £50.00 from Thelma Gill in lieu of Christmas cards, £320.00 from a talk to Sheffield Wednesday FC Wise Old Owls and £50.00 from St Paul’s Happy Circle, £950.00 raised from a 1960’s Gig, £500.00 from Dronfield Lodge, £50.00 from her 60’s gig and £210.00 from Mapperley and Arnold Rotary Club.

Aimee Wellock

• The Spotlight Stage School raised £150.00. • Debra Kormoczi sent a donation of £1,010.00 raised through a Christmas hamper raffle.

In Memory of

Sally Wells

• Mike Yaxley and Charlotte Wells sent Wedding Day donations in memory of cousin, Sally Wells.

• Paul Page donated £100.00.

In Memory of

David White

In Memory of

Alex Wardle

• Lisa took part in a sponsored zip wire in memory of David raising £395.

• Steve Wardle sent a donation of £300.00. • James Cane sent £405.00 from the clients of Apollo Events and money raised from a Christmas Charity Auction.

In Memory of

Alex Watley

• Martin Terril did a charity golf day in memory of Alex Watley and raised £848.

In Memory of

George Watson

• Grace Thornhill sent a donation of £205.00 from the Ladies Day Gang. • Marie Watson sent donations totalling £450.00 from Costco and cake sales and donations made at a screening.

www.c-r-y.org.uk

In Memory of

Stevie Wiggins

“The Heartfelt ladies had a stall at the Cottam Community centre Christmas fair selling all things Christmas. There were hundreds of people attending, a torchlight procession, fire engine hot food, mulled wine, a wonderful few hours. As always leaflets were handed out, hopefully providing awareness. This made us a total of £16090. We also had an online Christmas draw which made £143. So, a total of £303-90 which was deposited into the Stevie Wiggins memory fund.”

Our Fundraisers • Ann Coles forwarded a donation of £110.00 raised by Elisa and Matt Coles-Campbell through holding World Cup Sweepstakes.

In Memory of

Sam Wright

• Paul Paling donated £150.00. • Ann Coles sent a donation of £303.00 raised from a stall at a Christmas fair and a Christmas raffle. • Ann Coles forwarded a donation of £100.00, raised by Barbara Maddock through an Easter raffle, in memory of her grandson Michael James LeesMaddock.

• John Simpson donated £100.00. • Kevin Wright donated £110.00.

In Memory of

Michael Yorston

In Memory of

Keith Williams

• Josh Lamerton sent a donation of £1,120.00 raised by the Lizard village.

• The Perthshire Association of Junior Agricultural Clubs sent a donation of £846.92 raised through a Charity 108Km cycle. • Pitlochry High School’s Fairtrade Committee raised £100.00 through their Community Cafe donation collections.

In Memory of

Theo Williams

• Julian Williams completed the Wytham Woods 10K and raised £493.40.

In Memory of

Lee Wilson

• St Peter’s Church raised £200.00. • PGS Theatre Productions donated £150.00.

In Memory of

Ryan Winter

• Stephen Gilroy completed 12-A-Week and raised £110.

In Memory of

Julian Wort

• Shirley Wort sent donations totalling £252.70 raised as follows; £24.00 from a collection box at The Kingfisher and £228.70 from screening day donations.

Issue 90 | January to April 2023

General Fundraising •

•

Instead of sending Christmas cards APC Cardiovascular decided to donate £200 to Cardiac Risk in the Young. Ruth Hoose chose CRY as the charity to benefit from donations totalling £560 in lieu of gifts on her 60th birthday. Heather-Louise Hughes chose CRY as the charity to benefit with £522.50 in respect of sponsorship from taking part in Miss Inspiration 2020. Rochelle Antley completed her Heart2Heart fundraising, Walk and Boxing raising £3695.

•

Sue Fisher donated £100.00.

•

Mr & Mrs Tipton sent £100.00 representing donations received in lieu of gifts for their 50th Wedding celebration.

•

Julie Devenport donated £100.00.

•

Kindertons Ltd raised £200.00.

•

The Knights of St Columba 401 Chingford donated £300.00.

•

Ecclesiastical Insurance Office Plc donated £100.00.

•

Louise Eastwood Completed the 3 Peaks Challenge and raised £2094.49.

•

Glyn School raised £6,347.11 during their Charity week for CRY.

•

Thomas and LeeAnne Morris completed the Lake District Ultra Challenge raising £3145.51.

•

Burhill Golf Club members donated £730.00.

•

Bistech donated £1,000.00.

•

Hayley Towlson completed the Lake District Virtual Challenge and raised £590.

•

Brenda Hughes bequeathed a legacy gift of £54,652.73 in her will.

•

Sean Galvin donated £100.00.

•

The Hannover Re Charity Committee donated £250.00.

•

Pauline Coleman donated £100.00.

•

Julia Saunders donated £100.00.

•

Jenice Collins donated £100.00.

•

Julie Fenton sent £275.00 representing donations received in lieu of floral tributes, in memory of her mother Evelyn.

•

Shrewsbury Colleges Groups Outdoor Course raised £2600 by completeing the national 3 peaks challenge.

•

Lee Edwards completed the London to Brighton Bike Ride 2022 and raised £744.

•

Simon Proctor and Hannah collected donations totalling £120 for their 50th and 21st Birthdays.

•

Harrison Tomsett took part in the London Triathlon 2022 and raised £1924.23

•

Paul Dougall took part in the RUN SANDRINGHAM 24 raising £200.

•

Mike Atwell Swam the English Channel in support of CRY raising £3054.41.

•

Briggs Equipment donated £450.00, following a nomination from Lynn Stubbs.

•

NCS Epsom Team Six fundraised £680 in support of CRY in August 2022.

•

Sarah Teford donated £250.00.

• •

Matt Mackenzie completed a River Loop Walk in support of CRY and raised £1809.47.

The Gordano Valley Tangent sent a donation of £580.00 in appreciation of a talk from June and David Boulton.

•

Imogen Hall did 5K for 21 days in a row for CRY raising £307.

•

The Hope Valley Tangent Club No 539 donated £125.00.

•

Stoke CHASE FY22 chose CRY to receive their 2022 donation of £1468.75.

•

Lianne Troughton donated £100.00.

www.c-r-y.org.uk

General Fundraising •

John O’Hanlon donated £150.00.

•

Morrisons Supermarket sent a Match Giving donation of £2,478.00 in support of Michael McLaughlan’s sponsored walk.

•

Hannah Campbell donated £350.00.

•

Tudor Capital Europe LLP sent a Matched Giving donation of £1,000.00 in relation to Daryl Cook’s fundraising efforts.

•

Sellafield Ltd donated £150.00.

•

Chalfont St Giles Lodge No 9139 donated £250.00.

•

Foster’s donated £500.00.

•

ServiceMaster Clean Newbury donated £139.00.

•

The Straumann Group sent a donation of £877.86, on behalf of Dr Sean Power who has chosen to donate his prize to CRY.

•

The UK Autograss Championship Series sent a donation of £205.00 raised at the NEC Autosport Show through a raffle.

•

Castlerock Golf Club sent £1,234.60 raised by Karl Stewart during his year as Captain.

•

Siemens Congleton Care and Share Team donated £400.00.

•

The Duke of Kent Lodge No 5818 raised £285.50 from their Sunday lunch raffle.

•

The Football Association FA Premier League Limited donated £500.00.

•

James Godrich donated £419.00.

•

Simon Harbord donated £200.00.

•

Complete Financial sent a donation of £1,000.00 following a nomination by one of their clients for CRY to be a beneficiary of their ‘pledge’ campaign to support deserving causes.

•

Mike Westergaard sent a donation of £1,528.28 raised through a Charity concert.

•

Rogers Stirk Harbour & Partners Charitable Foundation sent a donation of £100.00 in support of Ben Manners’ fundraising efforts.

•

Eleonora Drago donated £200.00.

•

The Elms School raised £487.00 from their Annual Swing and Jazz Evening.

•

King Edward VI School donated £1,500.00.

•

Margaret Whitfield donated £100.00 from the choir.

•

St Martin’s Church donated £490.00 as part of their monthly Mission Giving.

•

Willa Fairbairn donated £100.00.

•

Wellacre Academy donated £192.50 raised from their Christmas Collection.

•

The Middleton Foundation donated £105.25.

•

St Andrews University Canoe Club raised £287.98.

•

Strategic Dimensions donated £2,000.00.

•

Sue Fisher donated £100.00.

•

Hannah Davies sent a donation of £1,000.00 raised from a raffle.

•

Mark Norton donated £100.00 raised from running a race.

• •

Adam Hunt donated £101.00. Raghav Bhatia sent a donation of £1,750.00, he chose CRY as the Charity to benefit from his Prize Awards.

•

Anna Crossing Cooke donated £100.00.

•

Charlie and Katie Holland donated £1,230.00 representing donations received in lieu of wedding gifts.

•

Woodford Friends and Neighbours donated £636.35 from their closing funds.

•

Ethan Levenson sent a donation of £642.59 raised from his fundraising event.

•

Andrew Howard donated £100.00.

Issue 90 | January to April 2023

General Fundraising •

Chorley and Leyland Valley Lions Club donated £300.00.

•

St Michael’s Lodge L6683 donated £125.00.

•

Savage Silk Law Ltd donated £307.19.

•

Rory Acock, Harrison Chew, Joshua Burvill, Harry Goodfellow and Finn Usher held a Charity football match and raised £100.50.

•

Alastair Jackson donated £150.00.

•

The Corporation of St. Lawrence College donated £226.27.

•

Alfreton Rambling Club donated £100.00.

•

The Old Colfeians Masonic Lodge No 7412 donated £100.00.

•

Blenheim High School sent a donation of £301.40 raised from their RAG week.

•

Fleur Lane sent a donation of £100.00 raised from a Charity quiz.

•

SSE PLC sent a Match Giving donation of £1,290.00 in support of Charlotte Doell’s Charity Raffle and Auction fundraiser.

•

Michelle Collett sent a donation of £200.00.

• Keenan Corporate Finance Ltd sent a donation of £740.00 raised through a Quiz Night and Raffle. David and Mary Crowhurst sent a donation of £625.00 raised from their Annual Quiz. • Auchterarder Police Station donated £300.00.

•

www.c-r-y.org.uk

Raising awareness with the Update

One way to further the use of CRY’s Update magazine is by sharing it with other people. For those who may not be familiar with CRY, the Update can be a good way for them to learn more about young sudden cardiac death and what CRY and our supporters are doing to prevent more tragedies. To inform others, and hopefully encourage them to get involved with CRY, why not try sharing the Update magazine however you can? This could include leaving a copy in a waiting room or reception area, or somewhere at your workplace; taking one to a fundraising event for passers-by to flick through; or even by posting a link to the online version on social media. As CRY’s printed publications halted during the pandemic, we developed the digital version of the Update. We’re able to add more engaging features to the digital issue that simply can’t work in the printed copy. For one, we can include links for you to quickly access relevant pages on the CRY website, social media posts from recent months, interviews from members of the CRY team and our supporters, and more. We also include videos covering all sorts of topics for you to enjoy watching as you click through the online magazine. The more that word of CRY’s work and young sudden cardiac death is shared – however that may be – the better. And because it’s so easy to share a link with others or post it on social media, the digital version is often easiest for raising more awareness too. We would encourage you to subscribe to the digital version of the Update, but you can also subscribe to receive a printed copy. You can sign up to receive your preferred choice here: www.c-r-y.org.uk/subscribe

Issue 90 | January - April 2023

Fundraising Events Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

Tough Mudders

London Landmarks Half Marathon

Form your own #TeamCRY with friends and family and tackle a teamwork-inspired, mud-filled obstacle course. With 5K, 10K, or 15K options all over England and Scotland!

The London Landmarks Half Marathon is a closed road, central London run and is the only half marathon to go through both the City of London and City of Westminster.The London Landmarks Half Marathon is so much more than just a run!

Throughout 2023/24

Inflatable 5K

Throughout 2023/24 Spurred on by pumping music and cheering supporters, bounce your way along a 5K inflatable course while raising awareness and funds for CRY. Providing a fun-filled and accessible alternative to a typical run, the inflatable 5K hosts events all over Scotland and England.

CRY Heart of Durham Walk October 1

Join CRY for the 14th annual Walk in Durham. The route (suitable for all) starts and ends at Durham Amateur Rowing Club and passes along the River Wear and through the beautiful city of Durham.

Royal Parks Half Marathon October 8

Runners pass through four of London’s royal parks - Hyde Park, The Green Park, St James’s Park and Kensington Gardens, as well as other iconic sights and landmarks in central London, all on closed roads. This event has been running since 2008, the first half marathon of its kind within central London!

April 7 2024

Adidas Manchester Marathon April 14 2024

The adidas Manchester Marathon is one of the UK’s premier running events, famous for its fast, flat and friendly route. The 26.2 mile challenge attracts both elite runners and those who thought completing a marathon would never be possible.

TCS London Marathon April 21 2024

The London Marathon is London’s most popular sporting event with over 40,000 people taking part. Join Team CRY in 2024 and help us raise awareness and funds for our vital work.

RideLondon 100 May 26 2024

Saddle up and join us for the RideLondon 100 in 2024 At the heart of this celebration of all things cycling is the RideLondon 100 challenge – a unique opportunity to ride 100 miles on traffic-free roads through the heart of London.

Raising Awareness Week

Great North Run

November 25 - December 3

September 8 2024

Support CRY during Raising Awareness Week by organising your own fundraising event, displaying/distributing posters and leaflets, or sharing our posts on social media.As part of Raising Awareness week we will, of course, be holding our popular annual CRY Great Cake Bake, and #12AWeekChallenge events.

The Great North Run is the world’s biggest half marathon, with more than 57,000 runners pounding the streets of Newcastle. The 13.1-mile course runs from Newcastle upon Tyne to South Shields and attracts many world-class athletes.

www.c-r-y.org.uk

Raising Awareness in the Media Report Between May and August CRY featured in 500 print, national, online and magazine articles.

Headlines from January to April in the press... ‘“It helps me cope with grief”: Knitters on why they’ll never put down the needle’ Metro When Tricia Dearnley, 55, went through the very thing no parent is prepared for - losing her son - she turned to knitting to help with the grief. Published 1 February 2023

‘Birkenshaw boy, Jasper Cook, remembered through memorial fund’ Telegraph and Argus A legacy has been created in memory of a much-loved little boy following his tragic sudden death Published 21 January 2023

‘Dad starts Atlantic solo row after the sudden death of daughter’ BBC News Cumbria The father of a 25-year-old who died suddenly in her sleep from an undiagnosed heart condition has begun a bid to row across the Atlantic. Published 11 January 2023

‘A Place in the Sun star Jasmine Harman shares tearful husband’s heartbreak after family tragedy’ The Sun Jasmine shared a heartbreaking clip on Instagram, showing the Channel 4 star’s husband detailing the sidden death of his sister. Published 24 February 2023

Online... ‘Breakthrough for parents of ‘fit and healthy’ son who died suddenly with no warning’ Cheshire Live (14 March 2023) Nathan Bryan died from Sudden Adult Death Syndrome. His family has since campaigned tirelessly for more screenings for young people Read at https://www.cheshire-live.co.uk/news/real-life/breakthrough-parents-fit-healthy-son-26472367

‘My wife died suddenly when she was out on a run - but that won’t stop me running’ Runners World (15 March 2023) Last summer, Abby Hills collapsed mid-run and died. She was just 30 years old. We spoke to her husband, Lee, to find out how pulling on his trainers and pounding the streets has helped him to cope. Read at https://www.runnersworld.com/uk/news/a43043639/sudden-death-in-young-people/

For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia

Issue 90 | January - April 2023

CRY Update January - April 2023 Our Fundraisers By fundraising for CRY you will be helping to: • subsidise CRY’s national cardiac screening programme • fund CRY’s bereavement support programme to provide counselling and support to affected families • support research into young sudden cardiac death (YSCD) • develop the myheart Network to support young people living with cardiac conditions • provide all CRY literature and information free of charge • develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources. If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone. For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donate All your help is greatly appreciated.

Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.

Our Patrons

Our Mailings

The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons. For more information visit www.c-r-y.org.uk/about-us/patrons

Sir Ian Botham OBE

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”

Current Patrons of CRY: Rob Andrew MBE • John Barrowman MBE • Jeremy Bates • Ben Brown • Clive Clarke • Jack Clifford • James Cracknell OBE • Nick Easter • Jonny Evans • Baroness Ilora Finlay • Simon Halliday • Michael Hoey • John Inverdale • Tom James MBE • Pat Jennings OBE KSG • Rob Key • Gary Longwell • Pixie Lott • Emily Maitlis • Graeme McDowell MBE • Lee Mears • Bill Neely • Lawrence Okoye • Phil Packer MBE • Sir Steve Redgrave CBE • Vincent Regan • Joe Root • Andy Scott • Roger Taylor MBE • Professor Gaetano Thiene • Gregor Townsend MBE • Andrew Triggs-Hodge MBE • Andrew Trimble • David Walliams • Alison Waters • Matt Wells • Sir Clive Woodward OBE

1. CRY Update magazine Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.

2. CRY enewsletter Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives. If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know: • Complete the online form; www.c-r-y.org.uk/subscribe • Call the CRY office; 01737 363222 • Email the CRY office; cry@c-r-y.org.uk

www.c-r-y.org.uk

Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS). CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research. 1 in 300 young people CRY tests will have a potentially lifethreatening heart condition. CRY believes cardiac screening should be available to all young people aged between 14 and 35.

Registered Charity No. 1050845

CRY also works to guide and support families and close friends affected by YSCD. We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD. In 80% of cases of young sudden cardiac death there are no prior

We are very proud that over 80p in every £1 we spend goes into supporting CRY’s key aims.

symptoms of a heart defect. CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information

Research 29.5% Support 12.5%

Without the fantastic support we receive this wouldn’t be possible.

Awareness 16.5% Governance 3%

Screening 23.5%

Fundraising 15%

Due to the anticipated impact of COVID-19 on fundraising in 2020/2021 CRY reduced the number of research fellowship grants awarded.

CRY is grateful for grants or donations from trusts and foundations. We would like to thank the following for the generous support they have given us:

n io rs ve it: e vis lin e, / on at k e d .u th Up .org e ive RY r-y rib ce C c- c re the w. bs To of ww su

A & R Woolf Charitable Trust • Aubrey Orchard-Lisle Charitable Trust • The Bartle Family Charitable Trust • The Brian Shaw Memorial Trust • Borrows Charitable Trust • The Cantiacorum Foundation • Carval Foundation • The Cecil Rosen Foundation • Charles Littlewood Hill Trust • The Charles Wolfson Charitable Trust • Childwick Trust • CMS Cameron McKenna Foundation • Cosaraf Foundation • Doris Field Charitable Trust • The Edith Murphy Foundation • G C Gibson Charitable Trust • G M Morrison Charitable Trust • Gawthorn Cardiac Trust • Hasluck Charitable Trust • James Tudor Foundation • Kent Family Charitable Trust • The Lady Forester Trust (supporting the work of CRY in Shropshire) • Leathersellers’ Company Charitable Fund • The Mabel Harper Charitable Trust • The May Gibson Charitable Trust • The Rachel & David Barnett Charitable Trust • The Samuel Storey Family Charitable Trust • The Schroder Charity Trust • Sir John Sumner’s Trust • Sir Robert Gooch Charitable Trust • St Christopher Health Fund • The Stanley Grundy Foundation • Tudor Foundation Inc • Vernon N Ely Charitable Trust

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

Update Magazine 90

Articles inside

Meet our representative

CRY Screening Report

TCS London Marathon 2023

London Landmarks Half Marathon 2023

169 Young hearts screened at Brentford FC Community Hub

CRY Research Fellow reflects on his recent accolade at international cardiac conference

The impact of exercise and physical activity on young people living with a heart condition