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YOUR Independent Community Newspaper THURSDAY, JULY 3, 2014
Vol. 2 Edition 26
Tough in the corners!
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17,000 pills a year By Jim Blake jim@chathamvoice.com
Sarah Schofield/Special to The Chatham Voice
Barrel racers took sharp turns and rode as fast as they could during the Chatham-Kent Crime Stoppers Ultimate Rodeo Tour in Pain Court on June 27 held at Pain Court Park. Spectators were treated to the best of rodeo events, including saddle bronco riding and trick rider performances.
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Listening to Julie Rice talk, you might think she’s spent her life in medical research. Terms such as osteopenia, pulmozymes, humalog, and heparin roll off her tongue as easily as most people talk about what they had for lunch or any normal everyday activity. For Julie, those terms are indeed part of her everyday life, as she battles her lifelong nemesis, cystic fibrosis. The petite 33-year old redhead (“at least I am right now, she jokes”) has already defeated the odds. “When I was a child, doctors didn’t expect me to live much past high school,” she said. “I’ve fooled them so far and I hope to continue.” Julie is one of 4,000 Canadians with CF, about 12 of which are in Chatham-Kent. Nearly 1,900 variations of the gene are known to exist. “The name of the defected gene is the CFTR (cystic fibrosis transmem-
brane conductance regulator) and it regulates the transportation of sodium chloride in the body,” Julie notes matter-of-factly. “It’s fatal.” ”The damage caused by CF limits lung function. Julie’s lung capacity is about one-third of an average person’s. “My lung capacity is just over one litre, while a person my age and size is about three litres.” CF leads to persistent and ongoing lung infections that are aided by thick mucus that accumulates and must be loosened. As far back as she can remember as a child, Julie’s parents would pound on her back to try and loosen the mucus. “I joke that I was beaten by my parents twice a day,” she said. “We went through it in the morning and again at night. I had to be home by nine o’clock every night, even in high school.” Instead of the “beatings,” Julie now uses a special vest to provide vibration that loosens the mucus. Continued on page 5
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