CHKD Kidstuff, Fall 2019 by Children's Hospital of The King's Daughters

KIDSTUFF Childrenâ&#x20AC;&#x2122;s Hospital of The Kingâ&#x20AC;&#x2122;s Daughters

Fall 2019

Hope for Kaeli CHKD patient among first in the nation to receive new gene therapy

Breaking new ground for mental health

ECMO treatment gives critically ill patients a second chance

Teen athlete wins big after double diagnosis

Kidstuff is a publication of Children’s Hospital of The King’s Daughters 601 Children’s Lane, Norfolk, VA 23507 (757) 668-7043

President/CEO

Jim Dahling

OUR BOARDS OF DIRECTORS (As of October 1, 2019)

Children’s Health System Christine Neikirk, Chair Buffy Barefoot Julie Childress Beck Michelle G. Brenner, MD

John R. Lawson, II Miles Leon Kevin Murphy

Martha Colen

Robert J. Obermeyer, MD

Jim Dahling

Marta S. Satin-Smith, MD

Susan R. Einhorn R. Justin Fulton

Svinder S. Toor, MD Kathryn M. Van Buren

Edward A. “Buzz” Heidt Jr.

Edward D. Whitmore F. Blair Wimbush

Children’s Health Foundation Larry Bernert, Chair Dan Boyle

Katherine M. Knaus

Mark Compton

Michael Matacunas

Jim Dahling Kimberley Geiger Owen Griffin Doug Hillebrandt Trey Huelsberg

Merrick McCabe Sherri Miles Sharon Owlett Karen Priest

The King’s Daughters Julie Childress Beck, President Donna M. Cowdrey Laura Fulton Chandy Jones

Taylor Priest Kathy Protogyrou Mary Beth Sims Rickman

Kristi Jones

Sunny Barlow Sonner Ashley Friend Vellines

Nicole Federinko Legum

CHKD Checkup

Breaking New Ground

Construction begins on mental health hospital

10 Hope for Kaeli

CHKD patient among first in the nation to receive new gene therapy

14 Life-Saving Support

ECMO treatment gives critically ill patients a second chance

16 Harvard Bound and Determined

Teen athlete wins big after double diagnosis

20 Community Benefit Report

Investing in our children

22 Philanthropy Matters

Kristina Malleck

Katherine M. Knaus Carrie Lauck

Kim McMillan

Kelly Johnson

Paula Adams

FALL 2019

Elly Bradshaw Smith

Kim Georges Akhil Jain

Contents

36 Calendar

Stacey J. Vellines Carrie Williams

Kidstuff Editorial Team EXECUTIVE EDITOR

Amy Sampson

MANAGING EDITOR

Ridgely Ingersoll

EDITOR

Heather Kent

ASSOCIATE EDITOR

Alice Warchol

GRAPHIC DESIGNER

Eric Cardenas

MEDICAL EDITOR

Arno Zaritsky, MD

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Connect with CHKD through social media.

CHKD.org

Eliana Sosa says her son, Bryan Guevara, is alive today thanks to the doctors and specialists at CHKD. Earlier this year, Bryan had a potentially fatal infection that caused his heart and lungs to fail. To learn about the highly specialized treatment called ECMO that was used to save his life, see page 14.

PHOTOGRAPH BY Ken Mountain

FALL 2019

CHKD Checkup We’re Wild for San Diego Zoo Kids TV CHKD patients met several animals up close during a kickoff celebration for a new closed-circuit television adventure channel that offers animal-oriented programs from the San Diego Zoo along with features from the Virginia Zoo. Virginia Zoo animal experts brought a hedgehog, a Harris’s hawk, and a Flemish giant rabbit to help CHKD patients and staff celebrate the channel’s launch both in the hospital and in the Ronald McDonald House across the street. San Diego Zoo Kids offers family friendly stories that are entertaining and educational. “We know that children in the hospital benefit tremendously when they turn their attention from their injury or illness and focus instead on something that engages the mind and stimulates the imagination,” said Jim Dahling, president and CEO of CHKD. “This adventure with the San Diego Zoo provides exactly that opportunity.”

Dad Appreciation Day CHKD hosted an event at the Virginia Beach Field House for families throughout Hampton Roads to come together to honor the dads in their lives. After taking pictures with Curious George and Star Wars characters, children enjoyed face painting and crafts that celebrated their fathers.

Children’s Hospital of The King’s Daughters

CHILDREN’S SPECIALTY GROUP Mental Health In response to the growing demand for psychiatric services, CHKD is pleased to welcome two new child and adolescent psychiatrists, Dr. Anisha Garg and Dr. David Meyer.

From the Capitol to CHKD Rep. Elaine Luria of Norfolk recently visited CHKD, getting a sneak peek of the private patient rooms being created as part of our NICU renovations and learning about CHKD’s mental health initiative tackling the crisis facing the youth of our region and beyond.

Dr. Garg’s clinical interests include neurodevelopmental disorders and treating transitional-age youth. She enjoys using a multidisciplinary, collaborative approach to mental health care. Dr. Meyer specializes in childhood psychosis, autism spectrum disorders, anxiety, eating disorders, PTSD, and mental health concerns in athletes. His goal is to help each patient reach their full potential.

Sports Medicine Dr. Micah Lamb joined CHKD’s sports medicine program. A sports medicine specialist, Dr. Lamb is a board-certified pediatrician whose clinical interests include helping athletes recover from activity-related injuries, overuse injuries, and concussions.

CHKD SURGICAL GROUP Orthopedic Surgery Orthopedic surgeon Dr. James Bennett has joined CHKD’s orthopedics and sports medicine practice. Dr. Bennett’s clinical interests include treating complex spinal deformities and traumatic spinal injuries.

CHKD MEDICAL GROUP Pediatric Associates of Williamsburg

He’s a trooper, that Teddy Virginia State Police mascot Trooper Teddy cruised over to CHKD to give fist bumps, hugs, and stuffed animals bearing his fuzzy resemblance to kids throughout the hospital. He even played along with a patient’s request to surprise her mom when she walked into the room. Silly bear!

Dr. Ertle Jones, who completed his pediatric residency at CHKD, is now caring for patients at Pediatric Associates of Williamsburg. His clinical interests include obesity prevention and management, nutrition, and disorders of growth and development.

Nansemond Pediatrics Pediatrician Dr. Dolly Gupta brings her 20 years of experience to Nansemond Pediatrics in Suffolk. She is welcoming new patients at their Main Street location.

FALL 2019

Hospital leaders, elected officials, mental health advocates, and CHKD patients put shovels into sand to mark the start of construction for our new pediatric mental health hospital. From left to right, CHKD President and CEO Jim Dahling, Virginia Gov. Ralph Northam, Mariela and Julian Garcia, Norfolk Mayor Kenneth Alexander, Tymiere Grayson, House Speaker Kirk Cox, Eric Peterson, Rachel Campbell, Michelle Peterson, Emma Brookover, Children’s Health System Board Chair Christine Neikirk, Karen Sanders, Lighting the Way Campaign Chair John Lawson, and Shaliyah Perkins.

n Tuesday, September 17, CHKD celebrated a momentous occasion as we broke ground on our new 14-story mental health hospital and outpatient center in Norfolk. The ceremony marked a giant step forward on our transformational journey to provide the mental health services our children need. The event drew more than 600 people to the site of the new hospital on Gresham Drive. Community leaders, state and local legislators, mental health advocates, donors, and CHKD staff members gathered to mark the significant milestone. 4

Children’s Hospital of The King’s Daughters

Gov. Ralph Northam, a pediatric neurologist at CHKD before becoming governor, was the keynote speaker. He applauded CHKD for taking on this critically important mental health initiative, citing a “cavernous gap” between the number of children with mental health needs and the ones who receive treatment. “We as a society, we as a community, need to step up and make sure that all of our children – not only here in Hampton Roads but across the Commonwealth of Virginia – have access to quality and affordable mental health care,” he said. When the hospital opens in 2022, it will stand out

among the nation’s top pediatric mental health hospitals, with innovative patient- and family-centered design, research-based treatments, academic training programs for the next generation of child psychiatrists, and unparalleled support and community involvement. The new hospital will be a place where compassion meets science and where evidence-based care is provided in a calming environment. It’s a place where children will learn to manage their daily struggles and find respite through exercise, art, and outdoor play. “We are building hope inside the walls of this new tower,”

CHKD President and CEO Jim Dahling said. “We are shining the light on mental health to raise awareness and to erase stigma. We are lighting the way to a future where our children feel as comfortable seeing their psychiatrist in this building as seeing their pediatrician. “We are filling this facility with optimism that robust outpatient and full-day treatment programs will return children to health and restore them to their ability to play, interact, socialize, attend school, enjoy sports, and see a future for themselves. We want to bring light to children living in darkness.” FALL 2019

CHKD’s New Mental Health Hospital Opening 2022

Kenneth Alexander, Mayor, City of Norfolk

“Norfolk is very proud to be your home, CHKD. For decades, you have provided exceptional care to our children – and in the process built a stellar reputation for quality and for compassionate care. You have a grateful community, and this mayor, depending on you to do the same for children’s mental health as you have done for children’s medical care. This is a great day for CHKD, a great day for Norfolk, and a great day for our children.” Kirk Cox, Speaker, Virginia House of Delegates “CHKD’s new mental health hospital and research-focused care can become a national model for addressing the mental health crisis overwhelming our youth. Our commonwealth will become better and stronger – as will our families and children – as a result of CHKD’s incredible mental health initiative.” John Lawson, Chair, Lighting the Way Campaign “No family escapes the toll of this mental health crisis. It is an imperative like none other. This facility and the care that happens inside will be the legacy for every one of us here today. I hope you will join me in making this your personal commitment and priority.” Chris Neirkirk, Chair, Children’s Health System Board “As chair of the CHKD Health System Board of Directors, and a member of The King’s Daughters, I am incredibly proud to serve this organization and our community at such a pivotal time in our history. “ Eric Peterson, Co-Founder, The Sarah Michelle Peterson Foundation “Our daughter Sarah lost her battle with depression in January of 2014, when she took her own life three weeks after her 15th birthday.” “We miss Sarah every single day. The wonderful facility that is going up on this site is a much-needed step toward ensuring that no other family will have to live every day missing their beloved child. It is a step we all take together on a journey, a journey to the world without suicide.” 6

Children’s Hospital of The King’s Daughters

Mental Health Hospital Groundbreaking Celebration September 17, 2019

5 1. Keynote speaker Gov. Ralph Northam. 2. Chris Neikirk, Chair, Childrenâ&#x20AC;&#x2122;s Health System board. 3. (L to R) Councilwoman Mamie Johnson (Norfolk), Sen. Lynwood Lewis, Councilman Aaron Rouse (Virginia Beach), Del. Jeff Bourne, Del. Jay Jones, Del. Cheryl Turpin, and Sen. Lionel Spruill. 4. A crowd of more than 600 attended the event. 5. Petit Voices from Parkway Elementary School in Virginia Beach sang for the crowd.

FALL 2019

Mental Health Hospital Groundbreaking Celebration | September 17, 2019

12 1. Norfolk Mayor Kenneth Alexander; John Lawson, Lighting the Way Campaign chair; Gov. Ralph Northam; CHKD President and CEO Jim Dahling; House Speaker Kirk Cox; and Sen. Lionel Spruill. 2. CHKD’s Larissa Trinder with Susan and Christina Goode. 3. Margaret Ballard, Tucker Corprew, Beau Kirkwood, Kay Ashby, Terry Restin, CHKD’s Healthy Bear, Susan Wynne, and Kathleen Wakefield. 4. Mariela, Julian, and Maria Garcia. 5. Stihl President Bjoern Fischer with Larissa Trinder.

Children’s Hospital of The King’s Daughters

13 6. Allison Whitmore and Katherine Wynne. 7. Beth Duke with CHKD’s Healthy Bear. 8. CHKD’s Amy Sampson with Katie Fletcher. 9. Jamie and Emma Brookover. 10. Edward “Buzz” Heidt Jr. with Jim Dahling. 11. Stephanie Osler, Alexandra Laramee, and Dr. Daniel Spencer of CHKD’s mental health program. 12. The King’s Daughters came out in full force with board members, leaders, and staff in attendance. 13. Lauren Kiger of CHKD with Martha Colen and Katie Van Buren.

FALL 2019

Kaeli is reaching milestones like holding her head up and grasping toys, thanks to a revolutionary gene therapy treatment she received at CHKD in June.

WRITTEN BY Elizabeth Simpson Earley • PHOTOGRAPHY BY Ken Mountain

Children’s Hospital of The King’s Daughters

Feature

CHKD patient among first in the nation to receive new gene therapy hen Kaeli Price was born in March, she was the picture of health. She weighed nearly 7 pounds, had chubby cheeks, and clear blue eyes. Looking back, though, her mother, Kelli Price, remembers a detail that signaled a devastating truth buried in her DNA. She had a soft cry, like a kitten. At her one-month checkup, a pediatrician noted her arms and legs were a little limp. The doctor told Kelli and her husband, Brandon Price, it would probably turn out to be nothing, but he wanted to send their daughter to a neurology specialist. Kaeli was eventually referred to Dr. Crystal Proud, a pediatric neuromuscular neurologist at Children’s Hospital of The King’s Daughters. As soon as Dr. Proud heard the symptoms, she asked the family to come to her office. That day. The signs that seemed so innocent led Dr. Proud to test Kaeli for spinal muscular atrophy (SMA), the top genetic killer of babies worldwide. Nerve cells in the brain stem and spinal cord that control muscles are destroyed over time because a critical protein is missing. As the disease progresses, children lose the ability to walk, eat, or even breathe. Children with severe types of SMA eventually need ventilators and often die by the age of 2. That was the type that Dr. Proud diagnosed Kaeli with, and the news was devastating to the Prices, who live in Belvidere, N.C. How would they tell their 2-year-old daughter, Bella? “We were overwhelmed,” Kelli remembers. “Honestly, we didn’t know what to think.” The timing of Kaeli’s diagnosis, though, worked in the baby’s favor. The week after her parents learned she had SMA, the Food and Drug Administration approved a gene therapy treatment called Zolgensma to treat SMA in children under 2. The drug — the first gene therapy drug for a neuromuscular disease — uses a virus to provide a normal copy of a gene that is missing or mutated in children with SMA. The replaced gene allows production of a critical protein needed for motor neuron development. Children who received the drug in clinical trials did so well reaching milestones, like sitting up and crawling, the FDA fast-tracked approval. Zolgensma is only the second treatment made available for SMA. The first was Spinraza, approved by the FDA in 2016, which Dr. Proud had started Kaeli on immediately. Spinraza allows a backup gene to produce the missing protein. Here’s the difference: Spinraza needs to be given on an ongoing basis, through injections in the fluid around the spinal cord, but Zolgensma is a single treatment. Zolgensma set a price record for a one-time treatment at $2.1 million. Dr. Proud filed the documents to see if the Prices’ insurance would cover it. The insurance company agreed, but with a condition: If Kaeli received the Zolgensma, she’d have to stop the Spinraza. FALL 2019

Dr. Crystal Proud, a pediatric neuromuscular neurologist at CHKD, oversees the infusion of Zolgensma to her patient Kaeli Price – the first child to receive this gene therapy in Virginia for spinal muscular atrophy since its FDA approval.

Brandon and Kelli Price hold their daughter, Kaeli, right, and her older sister, Bella, during a visit to Dr. Proud’s office.

Dr. Proud and Kaeli.

Children’s Hospital of The King’s Daughters

With both drugs, time is of the essence, because every day without the protein was another day of lost motor neurons. “We prayed a lot,” Kelli said, “In the end, the decision wasn’t that hard. We felt God gave us peace with the decision.” They chose Zolgensma. Kaeli would soon be the first child in the state of Virginia to receive the newly approved drug, and among the first in the country. Spinal muscular atrophy is a rare, progressive disease that affects one in every 10,000 births. When Dr. Proud chose her specialty of pediatric neuromuscular neurology, she says some of her friends questioned her decision, knowing she’d have to care for children with SMA along with other heartbreaking diseases like Duchenne muscular dystrophy. Before Spinraza and Zolgensma, there was no treatment for SMA. Dr. Proud’s job was to help the children live life to the fullest, support their families, and ensure children with the most severe forms passed away with grace and comfort. But Dr. Proud entered the field at a transformative time. When she was in her fellowship training at Stanford University, clinical trials of Spinraza were underway there. By the time the FDA approved it, Dr. Proud was practicing at CHKD. Three months later, Dr. Proud administered Spinraza to her first patient, and she’s now giving it to more than 30 patients who come from all over Virginia and North Carolina. Jackson Saville, of Virginia Beach, was one of her first Spinraza patients. His mother, Stacy Saville, said the Spinraza is helping him maintain and gain muscle instead of losing it. Jackson, 10, still uses a wheelchair, but he doesn’t need a ventilator to breathe through the night. He can turn pages in a book, something he had struggled with before Spinraza. And best of all, his head doesn’t drop down. The Saville’s first daughter, Morgan, died of SMA at 3 years of age after her head dropped down to her chest, and she stopped breathing. Seeing Jackson’s head drop used to fill Stacy with anxiety. “It was this incredible fear, and now it’s gone. I don’t even know when it happened, but his head hasn’t dropped in so long I am finally comfortable saying it.” Jackson and Kaeli are two of more than 40 patients who come to CHKD’s Spinal Muscular Atrophy Center from several states. The center has specialists to treat the spectrum of needs caused by the disorder: respiratory therapists, rehabilitation specialists, physical and occupational therapists, genetic counselors, social workers, an educational liaison, and a neuromuscular dietitian.

PHOTOGRAPH BY Bill Tiernan

“For most babies, a cry signals fussiness. With Kaeli, it means victory. That’s a cry we like to hear. It means she’s getting stronger.” – Dr. Crystal Proud

On June 20, Kaeli was resting peacefully in her mother’s arms at CHKD, ready to receive her infusion of Zolgensma. “Hey baby girl, are you ready for your medicine?” Dr. Proud said. For something so monumental, there’s little drama, as the clear liquid trickled through the tube into Kaeli’s blood vessels. In an hour, it’s over, and by late afternoon, Kaeli and her parents are on the road back to North Carolina. For neuromuscular specialists like Dr. Proud, this is a time of excitement, but also uncertainty as they explore a new frontier. Will the impact of the drugs differ from child to child? Will survivors need adaptive devices to walk? Will the drugs work better alone or in combination? New treatment protocols need to be developed as children survive longer. “I used to think of winning little battles as major successes in these kids’ lives, but these types of treatments are completely revolutionizing the word ‘hope’ for them,” Dr. Proud said. With two SMA drugs on the market now, awareness of early symptoms is critical to identify children as soon as possible: low muscle tone, weakness, breathing problems, spontaneous tongue movement, trouble swallowing, and failure to meet milestones like sitting, crawling, and walking. Dr. Proud was on a statewide steering committee that recommended newborn screening in Virginia, which is expected to begin next year. Kelli and Brandon are thankful Kaeli wasn’t born until treatment was available. “We know that this was all God’s doing, that he gave us Bella first and Kaeli second,” Kelli said. With the medication, Kaeli is improving. That kitten cry?

It’s much louder now. She’s holding her head up. She’s kicking her legs. She’s holding toys. “When I first started in the world of neuromuscular disease, we didn’t have any lifesaving treatments for children with these conditions,” Dr. Proud says. “But now there’s a new hope, a new optimism we never had before.” At a follow-up visit, Dr. Proud tested Kaeli’s reflexes and listened to her heartbeat. Suddenly Kaeli started crying, tired of the poking and prodding. “For most babies, a cry signals fussiness,” Dr. Proud said. “With Kaeli, it means victory. That’s a cry we like to hear. It means she’s getting stronger.” This summer, CHKD’s Children’s Health Foundation made a $1.1 million commitment to launch a Center for Novel Therapeutics and Gene Therapy at CHKD, where excellent clinical care will be combined with opportunities for clinical research of new medical treatments.

Dr. Crystal Proud

Dr. Crystal Proud is a pediatric neurologist with Children’s Specialty Group, PLLC, at CHKD. For more information about the Spinal Muscular Atrophy Center, visit CHKD.org/Neurology.

FALL 2019

Dr. Lara Mamikonian, medical director of ECMO; Walter Williford, director of respiratory care and ECMO; and Dr. Philip Smith, chief of cardiac surgery, stand with CHKD’s ECMO equipment, which can take over the work of a patient’s heart and lungs.

WRITTEN BY Alice Warchol • PHOTOGRAPH BY Ken Mountain

Children’s Hospital of The King’s Daughters

Spotlight

Life-Saving Support ECMO treatment gives critically ill patients a second chance Bryan Guevara, a 7-year-old from Suffolk, was being treated in CHKD’s cancer and blood disorders program for leukemia when he came down with a fever and body aches. respiratory therapists, and ECMO specialists His immune system, weakened by his – to put a child on ECMO and monitor disease and its treatment, couldn’t defeat their progress. In Bryan’s case, the CHKD the bacteria making him sick. As the team included Dr. Mamikonian, medical infection spread, he was admitted to CHKD director of ECMO; Walter Williford, director for aggressive antibiotic therapy. of respiratory care and ECMO; and Dr. Philip It wasn’t enough. Smith, chief of cardiac surgery. Bryan’s condition deteriorated. His blood To save Bryan’s life, the team would pressure dropped. His lungs began to have to act fast. Dr. Smith placed tubes fail. Even a breathing tube and respirator called cannulas into Bryan’s right carotid couldn’t supply his body with the oxygen artery and his right internal jugular vein. he needed. One tube transported Bryan’s blood to the “He was in septic shock,” says Dr. Lara oxygenator; another led the blood back into Mamikonian, a pediatric critical care his body. specialist at CHKD. “Neither his heart nor his Once the cannula placement was lungs were working properly.” complete, Bryan remained sedated while The intensive care medical team knew the ECMO support stabilized him under the that Bryan’s only chance of survival was to constant watch of his medical team. try extracorporeal membrane oxygenation His mother, Eliana Sosa, sat by his side and therapy, or ECMO, to take over the work prayed Bryan would get better. of his heart and lungs. If successful, ECMO Over the next few days, Bryan’s blood could buy Bryan some time, giving the pressure and lung function slowly antibiotics a chance to work and his improved. On the fifth day, Bryan was well immune system an opportunity to recover. enough to breathe on his own. Dr. Smith A highly specialized treatment, ECMO removed the tubes and repaired his vessels. uses a pump to circulate blood from the Dr. William Owen, Bryan’s oncologist at patient’s body through an artificial lung – CHKD, credits the ECMO team for saving his removing carbon dioxide, adding oxygen, young patient’s life that day in the hospital. and then returning it to the body. By taking “Bryan was minutes away from death,” Dr. over the work of the lungs, or both the heart Owen says. “What they did was very heroic and lungs, ECMO can support extremely ill and lifesaving. ECMO allowed his body to children while other therapies help them heal and his white blood cells to come back recover from serious, but reversible, medical and fight the infection.” conditions. At CHKD, patients who benefit Today, Bryan, now 8 (pictured on Page 1), from this therapy range from newborns is in remission from his leukemia. When with life-threatening circulatory problems to he’s not busy with school or his outpatient children fighting pneumonia or waiting for appointments, he’s begging his mom to a lung transplant. CHKD is the only hospital take him to the park. in Hampton Roads with the ability to offer “We are so thankful to all the doctors at ECMO to pediatric patients. CHKD,” Eliana says. It takes a multidisciplinary team of specially trained providers – doctors, nurses, FALL 2019

It’s a new game for Tyler Neville. At 18, the football player has overcome cancer and a chest deformity that threatened his lung capacity.

Children’s Hospital of The King’s Daughters

Feature

HARVARD BOUND and

DETERMINED Teen athlete wins big after double diagnosis

WRITTEN BY Rich Radford • PHOTOGRAPHY BY Susan Lowe

yler Neville was just starting ninth grade in the fall of 2016 when he learned he had Hodgkin lymphoma. His parents, Tara and Tom, will never forget his reaction. “We talked with Tyler about his diagnosis and the months of chemotherapy he would need, then waited for all his questions,” says Tom. “But, there was just one: ‘Can I still go to basketball practice tonight?’ “ As surprising as his reaction was, the path to his cancer diagnosis was just as unique. Tyler, a talented multi-sport athlete from Williamsburg, was already on a medical journey that started a year before with a single symptom: shortness of breath while exercising. The Neville family consulted ear, nose, and throat surgeon, Dr. Eric Dobratz, who noticed a sunken area in the center of Tyler’s chest – a telltale sign of a condition called pectus excavatum. He referred Tyler to Dr. Robert Kelly, an international expert on chest wall deformities and chief of pediatric surgery at Children’s Hospital of The King’s Daughters in Norfolk. “There are two main concerns when a patient, especially an athlete, has pectus excavatum,” Dr. Kelly says. “Because the chest wall is curved in towards the spine, severe cases like Tyler’s can impair normal breathing. The heart can also be crowded. When competing, Tyler may need to pump 10 times more blood than when he is at rest. His sternum was pressing in so profoundly it was limiting his lung capacity and his heart’s ability to pump those large volumes of blood. That’s why he was so easily winded.” In August of 2015, Dr. Kelly performed the Nuss Procedure on Tyler to correct the shape of his chest wall. This minimally FALL 2019

“CHKD means everything to me in so many ways. Everyone there has one purpose, to help you get better. Even the patients are there for each other.” – Tyler Neville

invasive surgical technique, the treatment of choice for pectus excavatum worldwide, was developed at CHKD by now-retired surgeon Dr. Donald Nuss. “The Nuss Procedure is a two-part treatment,” says Dr. Kelly. “In the first operation, we place a metal bar under the sternum and rib cage to push the chest out. The bar remains in place for about two years while the chest wall hardens into the new shape. In a second surgery, we remove the bar.” When a patient has a Nuss bar in place, contact sports like football are off the table for safety reasons. So Tyler spent his freshman season sitting on the sidelines of his favorite sport, football. Dr. Kelly agreed to allow him to play basketball, but only if Tyler wore a protective vest. “The vest was kind of like the chest protector a catcher wears in baseball,” says Tyler. “It conformed to my chest and protected the area around the bar.” The bar had been in about a year when Tyler began to feel discomfort deep in his chest. Dr. Kelly ordered an X-ray to make sure the bar was still in its proper position. When CHKD radiologist Dr. Susanne Grasso reviewed Tyler’s images, she found no issues with the bar, but noticed a small spot on one of his lungs. “It could either be an infection, like a mild pneumonia, or a lesion,” Dr. Grasso says. “We gave it a few weeks to resolve, then repeated the X-ray. It was still there.” 18

Children’s Hospital of The King’s Daughters

Dr. Kelly performed a biopsy on an enlarged lymph node in Tyler’s neck, and the family learned that Tyler had Hodgkin lymphoma, a cancer of the immune system. “Tyler was fortunate that we found his cancer early, while looking at something else,” says Dr. Eric Lowe, a pediatric oncologist at CHKD who specializes in lymphoma. “For most kids, a swollen lymph node is the first sign of Hodgkin. But Tyler is a big, athletically built kid. The muscle mass of his neck made any swelling of lymph nodes hard to detect.” “We ordered the X-ray to look at his bar and found something entirely unrelated,” Dr. Kelly says. “Dr. Grasso is the hero in this scenario, no question about it.” Tyler was another kind of hero, showing tremendous bravery and perseverance. From November to early March, he would complete four rounds of chemotherapy while playing on Lafayette High School’s varsity basketball team, a rarity for a ninth grader. He didn’t miss a single practice. “I wasn’t going to stop him from playing,” Dr. Lowe says. “Our goal is always to help our patients maintain as much of their normal life as possible.” One morning, Tyler awoke to find clumps of hair on his pillow – a side effect of his treatment. “I decided then that I would be the one to determine when I went bald,” he says. So, he shaved his head. And, as a show of support, his dad and four brothers did the same.

With more than 25 college offers, Tyler Neville chose to play football for Harvard University.

As his sophomore year of high school began, Tyler would spend another football season on the sidelines. Chemotherapy had slowed the healing process, and Dr. Kelly felt the 13-inch bar needed to remain in his chest a little longer. By the start of basketball season, his cancer was in remission. And, despite playing a second season with his protective vest in place, Tyler made the starting lineup. By spring of that year, Tyler, already 5 feet, 11 inches and 160 pounds when his Nuss Procedure was done, had grown so much that the bar was now too small for his ribcage. It was time for it to come out. With the bar removed, Tyler was finally cleared to play football. His junior year was that of a superstar. Playing both tight end and outside linebacker, Tyler had 18 catches for 404 yards and five touchdowns on offense, along with 36 tackles – 19 of them solo – on defense. In basketball, he averaged 19 points and 15 rebounds a game. When Tyler, now 6 feet, 4 inches and 230 pounds, hit the football camp circuit this past spring, an avalanche of college offers followed, 27 in all. With only one season of high school football under his belt, Tyler chose an offer from Harvard University, which, in addition to being one of the world’s most respected academic institutions, is known for producing NFL-caliber tight ends. Playing football at Harvard will be far removed from

where Tyler began his challenging medical journey four years ago – a place he says he will never forget. “CHKD means everything to me in so many ways,” he says. “Everyone there has one purpose, to help you get better. Even the patients are there for each other.” “One day during chemotherapy, another patient offered me her Girl Scout cookies. She had my two favorites: Thin Mints and Samoas. I just can’t imagine that would have happened at an adult hospital. It’s so many little things that make CHKD a really special place.”

Dr. Susanne Grasso

Dr. Robert Kelly

Dr. Eric Lowe

Dr. Susanne Grasso is a radiologist with Medical Center Radiologists at CHKD. Dr. Robert Kelly is a pediatric surgeon with CHKD Surgical Group. Dr. Eric Lowe is a pediatric oncologist/ hematologist with Children’s Specialty Group, PLLC, at CHKD.

FALL 2019

Community Benefit Report

Investing in our children, our families, and the future of our community. Children’s Hospital of The King’s Daughters traces its history to 1896, when members of The King’s Daughters launched a charity to improve the health of Norfolk children. More than a century later, that benevolent spirit still shines throughout CHKD Health System. With the help of our generous community, CHKD is able to ease the government’s burden of caring for our region’s most vulnerable children, subsidize crucial services available nowhere else in the area, advance knowledge of children’s health, and build a safer, healthier community for all of our children. In the fiscal year that ended June 30, 2018, CHKD’s total community benefit expenses, minus offsetting revenue, topped $104 million.

Matthew, age 4, was born with a cleft lip and palate. He has been cared for by CHKD’s Craniofacial Center since age 2.

$13 million

$58 million

Medicaid Shortfall and Charity Care

Community Health Improvement

CHKD’s benefit to the community begins with our promise to care for every child who needs us, regardless of their family’s ability to pay. CHKD’s extraordinarily high Medicaid utilization rate (59 percent of inpatient days in 2018) results in an enduring financial challenge. In 2018, Medicaid paid CHKD $10 million less than our true cost of care. In addition, the hospital provided $3.2 million in charity care.

CHKD is more than a hospital. We’re a dedicated network of more than 3,000 pediatricians, surgeons, nurses, therapists, and others who collaborate with parents, schools, public health agencies, civic groups, and community agencies to formally assess the pediatric healthcare needs of our region and develop and offer services to meet them. CHKD helps children living with chronic physical and mental illnesses find care close to home. Our outreach programs strengthen parenting skills to help prevent child abuse and neglect. We collaborate with others to reduce complications of premature birth and traumatic injuries. Our goal is a healthier life for every child and a more vibrant future for our community.

CHKD’s Total Communi 20

Children’s Hospital of The King’s Daughters

$27 million

$6 million

Subsidized Health Services

Education and Research

In keeping with our promise to provide the pediatric services our community needs, CHKD offers vital clinical programs even if they operate at a loss. With the help of our generous community, CHKD is able to subsidize services like our child abuse program, which celebrated 20 years of advocacy and treatment for young victims of abuse and neglect in 2018; and the Children’s Cancer and Blood Disorders Center, which surrounds young patients and their families with the support and education they need to cope with a life-altering diagnosis. CHKD’s willingness to subsidize vital services also helps us address critical health needs for our community, such as pediatric mental health.

As the regional authority on pediatric health and wellness, CHKD invests in education and research that advances the understanding of pediatric medicine. We are the clinical home of the Eastern Virginia Medical School department of pediatrics and its pediatric residency training program. We provide a setting for clinical research trials and work with Eastern Virginia Medical School to host continuing medical education programs for professionals throughout the region. Our community outreach program brings important health, safety, and wellness information to thousands of parents and professionals.

ty Benefit: $104 million

Source: CHKD’s IRS Form 990, Schedule H, FY 2018 FALL 2019

Philanthropy Matters

ca Birt, a physical To’Nasia Edwards, 18, works with Jessi tion program. bilita reha therapist in CHKD’s inpatient

Your gift helps kids get the support they need.

o’Nasia Edwards has made incredible strides to regain her speech and mobility since she suffered a traumatic brain injury in 2017 that left her in a coma for months. After more than a year of hard work with speech, physical, and occupational therapists in CHKD’s rehabilitation program, the Portsmouth teen not only achieved her goal of walking across the stage to receive her diploma from Woodrow Wilson High School, she is now attending Norfolk State University. CHKD is home to the only inpatient pediatric rehabilitation program in Virginia, providing specialized care and intensive therapy to children and teens like To’Nasia who are facing serious physical challenges. A planned gift to CHKD helps local children get the pediatric care they need to fight critical illnesses and recover from major injuries. Selecting CHKD as the beneficiary of your retirement plan, insurance policy, or estate plan will help to ensure that our region’s children will receive the care they need for years to come. Contact CHKD’s development department at (757) 668-7070 to find out how your legacy gift can make a difference.

Children’s Hospital of The King’s Daughters

Memorials | Philanthropy Matters

Memorials Memorial gifts received between February 1, 2019 and June 30, 2019. Barbara Addison Mr. and Mrs. George H. Brown Mercedes Amar Mrs. Elise Z. Berkowitz Chris Ambrose Mr. and Mrs. Frank M. Palmer Nonito D. Aragon Mr. and Mrs. Edwin A. Salomonsky Norma Armfield Westminster Chapter #99 Riley Paige Armstrong Mr. and Mrs. Ronnie Anglin Mr. and Mrs. Larry 0. Ballard Frances Barbarisi Ms. Tiffany Bok Mr. and Mrs. Maury N. Bondurant, Jr. Ms. Victoria Buckley Mr. Jonathan Coghlan Mr. and Mrs. Daniel S. Dechert Ms. Danette Fuentes Mr. Dominick Garofalo Ms. Janice Henderson Ms. Kathleen Hoppe Mr. and Mrs. Richard M. Kreassig Norfolk Police Detective Division Billie J. Schnorr Dr. John Taylor Ms. Judy Turner Mr. Aaron VanDyke Mr. and Mrs. David F. Woolwine, Jr. Lauren Wintermyer Ashton Mr. and Mrs. Charles R. Brown The Honorable Edward Everett Bagnell Mr. and Mrs. Chris E. Bacon Mr. and Mrs. Joseph H. Barlow Mr. and Mrs. William C. Branche Mr. and Mrs. Lawrence H. Bryant Mr. William L. Chorey Mrs. Anne Cox Ms. Nancy Dempsey Mr. George R. Everhart and Mrs. Anne Cox Mr. and Mrs. Randy Everhart Mr. and Mrs. Jeffrey L. Gardy The Honorable and Mrs. James C. Godwin Mr. and Mrs. James M. Habel, III Mr. and Mrs. James W. Hall Mr. and Mrs. William H. Helms Mr. and Mrs. William N. Hill Mr. and Mrs. Josh Irby The Honorable and Mrs. S. Chris Jones Mr. and Mrs. Steven Mark Lambert Mr. and Mrs. Art Latimer Mr. and Mrs. Jack R. Miles Ms. Kimberly Miles Mr. and Mrs. Richard F. Najarian Ms. Cheryl U. Oâ&#x20AC;&#x2122;Connor Mr. John E. Pappas

The Honorable and Mrs. Westbrook J. Parker Ms. Lucky Peterson Mr. and Mrs. James Rainey Robb, Scott, Bradshaw & Rawls, P.C. Ms. J. Catherine Roberts Mr. and Mrs. Donald M.Schubert Ms. Joyce H. Trump Ms. Nancy S. Walliser Mr. David A. Williams Mrs. Jane B. Wommack Juanita Ball Dr. and Mrs. George W. Koehl Mr. and Mrs. Lynn Kelly Barger Ron and Julie Childress Beck Kristen Bartneck Mr. and Mrs. Robert Fleenor Stanley F. Barto Sunray Farmer Association Nina Batzel CAPT. and Mrs. Thomas J. Batzel, USN (Ret) Brandon Gabriel Beasley Mr. and Mrs. Harry A. Potter Eleanor D. Bell St. Andrews United Methodist Church Doreen Benton Mr. Patrick Burger Mr. William Raymond Bernstein Mr. and Mrs. Theodore A. Levin Mrs. Sandra Berryman Mr. John W. Rusher Mr. and Mrs. John B. Scott Mr. Robert Bob Biddle Mrs. Barbara West Mr. James Wesley Billings Ms. Sandra Sullivan Minnie Bishop Mr. and Mrs. Donald French Mrs. Irene Blum Ms. Gloria Banks Mrs. Alice J. Brady Mr. and Mrs. Donald P. Sullivan Ms. Maxine Tate Martin Bosl STIHL Incorporated Ms. Blythe Nancy Boyes Mr. and Mrs. Kenneth E. Aducci Mr. and Mrs. Bill Schoonover Mr. and Mrs. Stan D. Tissue Mrs. Susan R. Williams Mr. and Mrs. Douglas Willock

Barbara Brantly Mr. and Mrs. L. Thomas Duke, Jr. Mr. and Mrs. Donald Fentress Ms. Louise C. Gaskins Dr. and Mrs. William W. Gough Mr. and Mrs. Reno S. Harp, III Rev. Richard J. and Rev. Evelyn G. Keever Mrs. Betty Brantly Mason Pat Brennen Mr. and Mrs. Donald P. Sullivan Mr. Scott Brich Mr. and Mrs. Ken Burns Mr. Donald Brickhouse Mr. and Mrs. Frank M. Palmer Ann Brightbill Ms. Vera E. Eardley lreleen S. Bright Mr. Shelton Bright, Sr. Dr. Morton Brownstein Mr. and Mrs. Stephen Schreier Mrs. Gabriella Maria Buccieri Mr. Robert Jones N. Channa Steinberg Roye. Bunch Suanne Armstrong Ms. Ann V. Butler Mrs. Virginia Land Darden Dr. Rebecca L. Byrd Dr. and Mrs. Michael A. Bergevin Mrs. Ernestine Bunch Mrs. Rachel V. Caldwell Ms. Susan P. Campbell Mara Castro Dr. and Mrs. Sheldon Cohn Sanders DeNardi Mr. and Mrs. L. Thomas Duke, Jr. Rev. Richard J. and Rev. Evelyn G. Keever Dr. and Mrs. George W. Koehl Dr. and Mrs. Dean S. McGaughey, III Mr. and Mrs. John L. Medinger Dr. and Mrs. Douglas K. Mitchell Dr. and Mrs. William C. Owen Mr. and Mrs. Gary W. Sprance Mr. and Mrs. Michael Stallings Mr. and Mrs. Charles Taylor Tidewater Jewish Foundation Mr. and Mrs. Robert S. Ukrop Dr. Kenneth J. Walker Mr. and Mrs. Brad Watkins Drs. Alice and Eric Werner Mr. and Mrs. Thomas Whitaker Ms. Margaret R. White Myles Christopher Campbell Mr. and Mrs. Jacob T. Campbell

Mabel Boyles Mr. and Mrs. Robert M. Jones

David J. Carey Blackwater Baptist Church Mrs. Mary G. Cardwell Mr. and Mrs. Jeffrey Carey Ms. Carol Cornett Ms. Tiffany Drummond Mr. and Mrs. Jack L. Tipton

Jennifer Lynn Braun Ms. Donna J. Bolton

Lea Carey Mr. Robert Cerquoz

Mary Carney Ms. Rosa Redmon Joan Chappell Mrs. L. Ann Eason Mr. Raymond E. Chaput Mr. Brian L. and Dr. Renee B. Schoenfeld Karen Chipok Mr. and Mrs. Ellis W. James Jackson Claire Cooper Ms. Karla Cooper Boggs Mrs. Charlotte Jackson Ms. Mary B. Jackson John G. Cooper Mr. and Mrs. Donald French Jonathan Coverston Mrs. Anne M. Lohr David Cox, Jr. Mr. Stephen A. Hackney Matthew H. Curle Ms. Mary Lee Warren Ashley Wolcott Curley Anonymous Ms. Elaine Angelini Ms. Kris W. Bergman Berkshire Hathaway HomeServices Towne Realty Mr. Edward I. Bohnslav, IV Mr. and Mrs. Dennis Buckley Mr. Chris Bufis Ms. Kiley Daube Ms. Amerika C. Davis Ms. Harriet Doub Mr. and Mrs. David Ermen Mrs. Gladys M. Fain Mr. and Mrs. Erik Ferebee Mr. and Mrs. Lowery D. Finley, III Ms. Mary Gentry Mr. and Mrs. Patrick D. Gravitt Ms. Heather Johansen Mr. Michael S. Keithley and Mrs. Kimberly A. Wolcott Ms. Barbara Levine Mr. and Mrs. Gray D. Lynn, Jr. Ms. Sandy Mccombs Mr. and Mrs. Joel R. Nied Mrs. Maureen E. Olivieri Mrs. Susan Pender Mr. and Mrs. Sam Roady Ms. Debbie Robbins Mr. and Mrs. William D. Sessoms, Jr. Ms. Ute Shaw Mr. and Mrs. John M. Stefanou Ms. Denise Tarrant Mr. and Mrs. Owen R. Thornton Mr. and Mrs. Keith Till Mr. and Mrs. Michael Via Ms. Bethany A. White Margaret Curtis Mr. and Mrs. George H. Brown Kay W. Dadson Mrs. Lena M. Scarborough Mr. Jewel H. Davenport Mr. and Mrs. Donald P. Sullivan

FALL 2019

Philanthropy Matters | Memorials Clyde W. Davis Ms. Barbara Darden Oscar Smith High School Class of 1958

Zoe Olivia Ewing Mrs. Judith R. Mattoon

Betty Garrett Westminster Chapter #99 Gary Whybark Ms. Beverly McCredy

Sam Davis The Blocker Foundation

Mr. and Mrs. Jon D. Terry Mr. and Mrs. R. Stephen Turnbull Ms. Elizabeth Verde Mr. and Mrs. Ken Vinson Mr. Jason Witte

Christina Deard Mrs. Ruth I. Deard

Lola Dickerson Mr. and Mrs. Howard M. Williams

Carolyn Sue Farley Mr. and Mrs. Terry L. Comstock Mr. and Mrs. Elvin C. Cruise Mr. and Mrs. James R. Hooper, Jr. Mr. and Mrs. W. Jack Litz, Jr.

Mrs. Betty Demko Mr. Jeff Banker Ms. Caren Berei Ms. Marti Bevan Mr. and Mrs. Skip Bevan Mr. and Mrs. Marvin L. Brangan Ms. Judith Brown Ms. Michelle Brustlin Ms. Judith Cavaleri Ms. Dawn Christy Cindy Mcinteer Charitable Account Ms. Betty Dawson Ms. Barbara Dion Ms. Patricia Doherty Ms. Catherine Donley Ms. Elizabeth Fineo Ms. Lisa Garcia Mr. and Mrs. James Goodwin Mr. and Mrs. John Harris Mrs. Darlene Hayes Mr. Curt Hess Ms. Lauren Hilleshem Ms. Sylvia Illuzzi Mr. and Mrs. Bruce Johnson Ms. Pamela L. Jones Ms. Georgeanne Limbach Mr. and Mrs. Clayton Noel Ms. Paula O’Connor Dr. and Mrs. William C. Owen Ms. Sally Parrott Mr. and Mrs. Michael Phelps Mr. Gary Prugh Ms. Constance Putnam Mr. and Mrs. Dennis Reardon Mr. and Mrs. Alvin S. Schnitzer Ms. Marilyn Shapiro Ms. Melissa Stroup Ms. Joanne Taylor

Suzanne “Sue” Doviak West Ghent Circle

Dr. Andrew Fekete Mr. Charlie Dawson

Mrs. Bronia Drucker Mr. and Mrs. Theodore D. Galanides

Mrs. Ann Fentress Ms. Rosemary Moyers

Paula P. Duke Mrs. Norma F. Rosenberry

Mrs. Sarah A. Ferris Ms. Suzanne Berman

Bill Dunn Mr. and Mrs. William E. Ellsworth

Charles R. Fitchett, Jr. Mr. and Mrs. James R. Abicht Mr. and Mrs. George Bradley Mr. and Mrs. Leroy Dunning, Jr. Mr. and Mrs. Elmer L. Jones Martin, Dolan & Holton, LTD Ms. Patricia N. McConnell Mr. and Mrs. Tommy Turner Mr. and Mrs. W. S. Magann

Bill Farley Eason Mr. and Mrs. George Y. Birdsong Mr. and Mrs. Paul L. Blanchard Mr. William L. Chorey First Baptist Church Sunday School Class Ms. Mary S. Hearring Mr. and Mrs. Robert L. Herring Mr. James Horton Mr. and Mrs. Charles S. Lowder Mr. and Mrs. Jack W. Nurney, Jr. Mr. Robert Penley Mr. and Mrs. James Rainey Ms. Suzann K. Stimpert Ms. Joyce H. Trump Louise B. Eckleberry Mr. David Arel Mr. and Mrs. James D. Bray Neal Anthony Edgerton Mrs. Barbara Pucciarelli Mr. and Mrs. Richard J. Sanborn

Hannah Geise Mr. and Mrs. Robert P. Hawk Richard Steven Glasser Mr. and Mrs. Theodore D. Galanides Edward Lee Goddard Princess Anne Circle Quin Gray Mr. and Mrs. Francis I. Bartlett Lynn Gunter Mr. and Mrs. Karl W. Gunther Roy C. Gwaltney Cowling Brothers, Inc. Ms. Mary Annette Dunn Mr. Duane Harver Mr. Levette E. Pope, Jr. Mr. and Mrs. Marvin W. Raiford

Theresa Flinn Mr. Patrick J. Flynn

Mr. John H. Hackney, Jr. Mr. and Mrs. Richard F. Aufenger The Blocker Foundation

Peter Florin Mr. and Mrs. Jason Kastrounis

Charles S. Hale Mr. and Mrs. John W. Hale

CDR R. Malcolm Fortson The Honorable and Mrs. Dennis Ferebee McMurran

Lynn Steele Hale Mr. and Mrs. Robert Baxter Mr. and Mrs. Aubrey Beach, Jr. Mr. Thomas Brandl Ms. Alice G. Burlinson Shari Ann Carlson Mr. Charlie Davey Mrs. Johanna Paul Elder Ms. Sharon Engel CMDR and Mrs. Dennis A. Fewell, USN (Ret) Ms. Antoinette Flegal Mr.Thomas J. Henderson Ms. Kristin Kano Kiwanis Club of Norfolk Ms. Jessica McKinney Dr. and Mrs. David B. Propert Ms. Kathy Sebring Ms. Sharon Stacy Virginia Division of Child Support Enforcement Ms. Catherine Vredenburg

Jose Francisco Virginia Beach Sheriff’s Office Jordan Franklin Mr. and Mrs. J. A. Bohannon Mike Freeman Mr. and Mrs. Ronald B. Whitley

David Elder Mr. and Mrs. Benjamin G. Cottrell, IV

Ms. Lillian Fudge Mr. and Mrs. Kenneth L. O’Bannon

Dr. Thomas David Elder Mrs. Bruce K. Forsberg

Mrs. Nancy Ann Fulgham Mr. and Mrs. John C. Harrell

Eliot Dr. Sophia Tailor

Tara Welch Gallagher Mr. and Mrs. Theodore N. Miller

Mr. Jarrett Emanuel Mr. and Mrs. Richard Emanuel

Marcia Game Ms. Marolyn K. Corriere

Your old car can bring new hope to kids at CHKD.

When you donate an operational car, truck, van, or boat, you’re helping children at CHKD receive the best care possible. If you would like to donate a vehicle to CHKD, please contact CHKD’s auto auction company at (757) 487-3464 for details.

Children’s Hospital of The King’s Daughters

WRITTEN BY Alice Warchol • PHOTOGRAPH BY Ken Mountain

Donor Spotlight | Philanthropy Matters

Paying it Forward

Twiddy family inspired to help others after daughter’s surgeries.

Elyse Twiddy and her parents, Clark and Anna, enjoy time outside with their chickens at their Kitty Hawk home.

“We are so grateful for the quality of healthcare at CHKD.” – Clark Twiddy, Elyse’s dad

f you ask 3-year-old Elyse about the pink scars that run up the back of her arm, she’ll tell you in her sweet little voice this simple truth: “Every scar has a story to tell. I was born with a birthmark. I went to CHKD, and Dr. Hoerr took it off and I had stitches.” And with that, she’s ready to shift the conversation to her favorite doll, named Summer, or how much she likes to go swimming with her dad in the Albemarle Sound. Despite six surgeries to remove the potentially cancerous birthmark covering the upper part of her left arm, life today is pretty normal for Elyse. When she’s not trying to climb trees in her front yard, she likes to run in the grass with the family’s chickens and dogs following close behind. As she grows older, she probably won’t remember the number of skin grafts she’s needed or the hundreds of stitches that covered her arm with each surgery. But her parents, Clark and Anna Twiddy of Kitty Hawk, North Carolina, are forever grateful to CHKD. Now that Elyse has healed, the Twiddys have committed to help other families who need medical care for their children. They recently established an endowment fund that will help cover medical expenses for families who need assistance. They’re hoping by sharing their story that others will help CHKD, too. “We felt like we have a duty and an obligation,” says Clark

Twiddy, president of Twiddy & Company, a second-generation family business on the Outer Banks that specializes in hospitality and tourism. “We want other families to have the same experience we did.” Elyse’s birthmark was a surprise the day she was born. Dark in color, it covered her arm from her shoulder to below her elbow. At six days old, she had her first biopsy to check for cancer. Thankfully, it came back negative. But the Twiddys would have to wait until Elyse was 6 months old to begin the process of removing the birthmark. “Removing the birthmark protects Elyse’s physical and psychological well-being,” says Dr. George Hoerr, a pediatric plastic surgeon at CHKD. “She no longer faces an increased risk of skin cancer and won’t have to deal with other issues that can come with having a birthmark that noticeable.” Throughout the process, Dr. Hoerr and his team answered every question the Twiddys had. It was a comfort the Twiddys won’t soon forget. “We are so grateful for the quality of healthcare at CHKD,” Clark Twiddy says. “It’s not just the medical competence. It’s the emotional empathy that Dr. Hoerr and his team had for us. He would sit patiently with us and explain every detail. My wife was in tears. He was kind and took his time. As a father, and a husband, I can’t tell you how much that means to me.” FALL 2019

Philanthropy Matters | Memorials Carolyn Jean Hampton Princess Anne Circle

John (Baby Jack) Kelsey Mr. and Mrs. David Kelsey

Curtis Lee Hardnack Mr. and Mrs. Clark F. Childers Ms. Cynthia B. Peebles

Mr. Sam F. Kennedy, Jr. Ms. Lindsay Bristow Ms. Pamela DeFazio Mr. and Mrs. Larry Lewis Mr. and Mrs. Chris Wechsler

Richard Lee Harper Mr. Paul Carter Mr. Robert C. Hart, Jr. Mr. and Mrs. Marvin M. Aldridge Mr. Francis Brady Hayslett Ms. Doris C. Madison Thomas W. Hedish Mrs. Velma S. Mann Mr. Charles A. Helms Mr. and Mrs. Marvin M. Aldridge Laura Hierholzer Mrs. Lena Scarborough Frederick E. Hobson, Sr. Mrs. Alberta V. Hobson Mr. Larry A. Holland Mr. Philip Helman Mrs. Nita D. Horton Mr. and Mrs. Donald P. Sullivan Mr. Jerome H. Hughes, Jr. Ms. Gloria C. Harper Nicholas Andrew Hurdle Mr. and Mrs. A. L. Hurdle, Jr. Mrs. Virginia T. Hurdle Robert J. Jackson Mr. and Mrs. Edward C. Allison Mrs. Ula D. Cooper Mr. and Mrs. Joseph B. Henderson Mr. Larry L. Pecenka Mr. and Mrs. Thomas R. White Mr. Burton H. Jaffe Mr. and Mrs. Jerry Harris Dave Jones Mr. and Mrs. Michael S. Starring Henry J. Jones Mr. and Mrs. Donald P. Sullivan Jesse T. Jurnigan Mr. and Mrs. C. A. Duck

Floyd Ronnie Labelle Mr. and Mrs. William Diggs Mr. Donald E. King

Brad Foster Mr. and Mrs. R. Justin Fulton Eric Giesinger Bonnie Green Dr. and Mrs. Harold P. Heafner, Jr. Denis and Siobhan Hubel Ms. Tami Kamarek Mr. and Mrs. Matthew L. Lafler Ken and Beth Legum Mr. H. Timothy Little Tom and Mary Miller Dabney and Georgie Morgan Tom and Gabe O’Gorman Ms. Lucky Peterson Mr. and Mrs. Andrew A. Protogyrou Ms. Delores E. Rodman Cynthia Rub Dr. and Mrs. Stanley B. Smith Mr. and Mrs. Stephen M. Smith Ms. Karla Taylor Ms. Vicki B. Thompson Mr. and Mrs. Kees Vandenheiligenberg Mr. and Mrs. Brian Weireter Nicole Wood-Sabo

Josephine Lampitt Mr. Andrew Lampitt

Dr. Donald Lewis Mr. and Mrs. Walter C. Evans, Jr.

David Gary Lawrence, Sr. Mr. and Mrs. James L. Baker, Sr.

Mrs. Ronnie Lira Mr. and Mrs. Theodore A. Levin

Mrs. Frances Naylor Dr. and Mrs. David L. Kreger Mr. and Mrs. William T. Naylor Mrs. Kay B. Shields

Carolina Leach Mr. and Mrs. Thomas J. Cox

Mr. David W. Longacher Mr. and Mrs. Robert M. Jones

Ms. Rena Naylor Mr. and Mrs. John Healy

Dr. Leon A. Leach Mr. and Mrs. Yale Nesson

Mr. Dennis Paul Mabe Mr. and Mrs. Jim Jones Ms. Elenor Loving Mrs. Anne Moore

Mr. James Terry Noland, Sr. Mr. and Mrs. Monty Evans

Ms. Anne D. Kiley Mr. and Mrs. Richard F. Aufenger Mrs. Anne A. Crenshaw Mrs. Inez W. Korzeniowski Mr. and Mrs. Dennis Ivey Annette Krawchuk Dr. and Mrs. Robert W. Fagerlund Randolph Carl George Kuhlmann,Sr. Mr. Randolph Quick-Kuhlmann Edith Marie Kuntz Mr. and Mrs. James R. Kelly

Aaron Archer Legum Mr. and Mrs. Michael L. Albertson BDO USA, LLP Ron and Julie Childress Beck Mr. and Mrs. Walton G. Bondurant, Jr. Neil and Julie Brown Earl and Rachel Chinn Mrs. Lois Cohen BGEN and Mrs. Christian Cowdrey USMC (Ret) Mr. and Mrs. Gregory W. Deaver Mr. and Mrs. Richard Dodge Drs. Scott and Michelle Eichelberger Mr. and Mrs. Michael D. Flora

Mrs. Betty Darden Hodges Mr. and Mrs. Steven A. Kayer Mr. and Mrs. Alan Peltz Mr. and Mrs. J. Douglas Perry Mr. and Mrs. H. Waller Whittemore Graham C. McGurgan Mr. and Mrs. Donald C. McComb Mr. and Mrs. John McGurgan Cameron McKinley Mrs. Glenda I. McKinley Ted Mclaughlin Mr. James E. Hopkins, III F. T. (Buddy) Meier Mrs. Ruby F. Meier Mrs. Billie Miller Mr. and Mrs. Lawrence Barron Wood, Jr. Malcolm Moody Mrs. Clarice V. Moody Mrs. Dianne N. Morton Mr. and Mrs. David N. Doyle Joseph P. Murphy Mr. William M. Murphy

Dennis Oatridge Mr. and Mrs. Michael J. Thomas

Michael Walsh McCabe, Sr. Mr. and Mrs. Robert H. Carriker Dr. and Mrs. William Levi Old, III

Vincent Oatridge Mr. and Mrs. Michael J. Thomas

Harry Ellington McCoy, Jr. Mr. and Mrs. Richard F. Aufenger The Blocker Foundation Mrs. Betty Darden Hodges Mr. and Mrs. J. Douglas Perry Mr. and Mrs. H. Waller Whittemore

Mr. Earl B. Parker Mrs. Lena M. Scarborough

Martha Lee McCoy Mr. and Mrs. Richard F. Aufenger

Eve Owens Mr. Carl Lewis

Gene Pearce Mr. and Mrs. Michael R. Gomez Rachel Peckham MSGT Everett W. Peckham, USAF (Ret)

Shop on Amazon through Amazon Smile and you can designate CHKD to receive a half percent of all your eligible purchases. Once you enroll, simply do all of your Amazon shopping through your Smile account, and your donation will add up! Visit Smile.Amazon.com and find ‘Children’s Hospital of The King’s Daughters’ to get started.

Children’s Hospital of The King’s Daughters

WRITTEN BY Elizabeth Simpson Earley • PHOTO BY Ken Mountain

Donor Spotlight | Philanthropy Matters

Stepping into Leadership Longtime volunteer with The King’s Daughters named chair of CHKD Health System board.

Chris Neikirk, part owner of Smartmouth Brewing Company, is passionate about helping the community.

“The visits to see the patients help ground me in the true mission of CHKD.” – Chris Neikirk

ne of the first things Chris Neikirk did when she moved to Norfolk 20 years ago was look for ways to get involved in her new community. She was drawn to Children’s Hospital of The King’s Daughters for many reasons, but one in particular stands out in her mind: The hospital system’s commitment to care for all children regardless of the family’s ability to pay. In 1999, Chris joined the Union of Hands Circle of The King’s Daughters to help support that mission. Chris became a member of The King’s Daughters board in 2003. Eight years later, she joined the board of directors of CHKD Health System. In July, Chris was named chair of the CHKD Health System board, a critical position as the organization enters a transformative stage – building a new $224 million mental health facility. Just as CHKD Health System expanded its footprint throughout the region by opening surgery centers, medical offices, and urgent care centers during the past decade, Chris sees the expansion of mental health services as the next logical step in addressing children’s needs. “I’m honored to work with the talented members of the board, the dedicated management of the hospital, and all the physicians and nurses who work each day to care for the children of our community,” says Chris. “That becomes even more imperative as we seek to close a critical gap in mental health services for children.”

Chris grew up in Pennsylvania, and first came to Virginia to attend the University of Virginia, where she earned a degree in governmental affairs. She then moved to the Washington, D.C., area, where she met her husband, who is also named Chris. She has an extensive background in marketing, communications, and launching start-up ventures. Chris is passionate about her community, serving on boards of the Elizabeth River Trail Foundation, the Norfolk Commission on the Arts and Humanities, and the Hermitage Museum & Gardens. The Neikirks have two sons, who are 18 and 21. With the youngest off to college this fall, the Neikirks are now empty nesters. They have plenty to keep them busy, though, as the Neikirks are also part owners of Smartmouth Brewing Company, where Chris oversees community engagement, event planning, and a variety of administrative duties. Her husband is assistant vice president of finance for Norfolk Southern. Chris said her 20 years of volunteer work with The King’s Daughters, most recently with the Dogwood Circle, has given her a ground-level connection to the young faces of CHKD and deepened her respect for the hospital system. “The visits to see the patients help ground me in the true mission of CHKD,” Chris says. “It helps me keep the children in the forefront of my mind.”

FALL 2019

Philanthropy Matters | Memorials / Honors

Please consider investing in our children. Families turn to CHKD when they need expert pediatric care. Every year, we help thousands of children who need a range of medical treatments from chemotherapy and surgery to emergency and trauma care. With your support, we can provide children at CHKD the medical care they need to heal and recover from serious illnesses and injuries. For more information, visit CHKD.org/Give or call (757) 668-7070.

Children’s Hospital of The King’s Daughters

Dr. Edgar Peltz Mr. and Mrs. Gary Osmundson

Mack T. Saunders, Jr. Mr. and Mrs. Gordon L. Saunders

Stanley Neal Pickens Mr. and Mrs. Robert B. Quinn, Jr.

Jean Schlegel Mr. and Mrs. George H. Brown

James Thurston Poindexter Mr. and Mrs. Ellis H. Bowling

Ms. Constance Connie Schneider Mr. and Mrs. Donald P. Sullivan

Dr. Annette Reda Molly Allred Mr. Gary Bartholomew Mr. Jeffrey Chernitzer Mr. and Mrs. Aaron B. Cohen Ms. Lisa Corpuz Ms. Tracey Crooks Mr. and Mrs. L. Thomas Duke, Jr. Ms. Gwen Edwards-Langley Mr. and Mrs. Walter L. Fenska, Jr. Mr. and Mrs. Ellis Forbes Dr. and Mrs. William W. Gough Mr. and Mrs. Lewis D. Hirschler, Jr. Mr. John Schaefer MD Consulting, Inc. Ms. Anne G. Kellam Ms. Monica Kladakis Mrs. Julia Maggiano Ms. Mary L. Mason Mr. and Mrs. James R. McCarthy Mr. and Mrs. Mike McCarthy Mr. and Mrs. John McIntosh Mr. and Mrs. William Miller Ms. Lisa Moffett Ms. Karen B. Pearson Nancy J. Popovich Mr. and Mrs. William Poynter Mr. and Mrs. Michael Reda Mr. and Mrs. Wilson L. Rivers Mr. and Mrs. Casey F. Robinson Mr. and Mrs. Neil Rose and Family Mr. and Mrs. Grigsby Scifres Ms. Nancy Steh The Honorable and Mrs. Robert G. Doumar Virginia Ophthalmology Associates, P.C. Mrs. Irene Zaso

Alan Schultz Mr. and Mrs. Yale Nesson LTC Kenneth H. Sellers, USAF (Ret) The Blocker Foundation Elizabeth Grey Sexton Mr. Lowell Shannon Sexton Jackson Howard Shumate Mr. and Mrs. John Shumate Ms. Susan Siegler Ms. Rosa Redmon Ms. Joan Simon Mr. and Mrs. Herbert K. Bangel Mary B. Simpson Mr. and Mrs. George H. Brown Mrs. Gricelda Smalls Mr. Harold L. Smalls, Sr. Dr. Claude A. Smith Mrs. Elizabeth Dudley Mr. and Mrs. Guilford D. Ware Doris Smith Westminster Chapter #99 Ms. Raley Smith Ms. Judy Barrack Tyler Spruill Mr. and Mrs. Greg Everton Mr. and Mrs. Donald M. Lane, Jr. Sarah E. St. John Mr. and Mrs. Donald M. Lane, Jr.

Joseph A. Reynolds, Jr. Ron and Julie Childress Beck

Dana Rae Stiening Mr. and Mrs. Charles M. Baynard Mr. and Mrs. Richard Niel Mason

Keith Riddick Mr. and Mrs. Michael S. Starring

Norma D. Stillman Mr. and Mrs. Donald P. Sullivan

COL Gary Riggs Mr. and Mrs. L. Thomas Duke, Jr.

Vernon E. Stuart, Sr. Nancy Allen Mr. Calvin W. Barnes Mrs. Celestine W. Carter David J. Cecil Mrs. Elizabeth Dudley Mr. and Mrs. Thomas B. Favrot Dr. and Mrs. Elmer 0. Fisher, Jr. Dinah Hall June Hartzler Mrs. Colleen Harvey Mr. and Mrs. Thomas N. Hunnicutt, III COL and Mrs. I. Neil Mcinnis, Jr. Mrs. Margaret Mumford Mrs. Mary E. Pope Mr. and Mrs. Steven Savage Ms. Charlotte T. Smith Mr. and Mrs. Robert H. Smith Dr. Helmuth W. Trieshmann, Jr.

Adrian Rodriguez Thompson Entertainment, Inc. Evelyn Royster Mr. and Mrs. Karl W. Gunther Teddy D. Russell Mr. and Mrs. George Asfari Mr. and Mrs. Alan Rice John W. Rutherford Mr. and Mrs. L. Thomas Duke, Jr. Mr. and Mrs. James Gilman Mr. and Mrs. Steve Gross Mr. and Mrs. Arthur Gresham Morris Mr. and Mrs. Peter Hoyt Mrs. Roberta C. Rutherford RADM and Mrs. Paul 0. Soderberg Ms. Linda Sulkin

Honors | Philanthropy Matters United States Submarine Veterans, Inc. Chase Ware COL and Mrs. William R. Williamson Elisabeth Wilson Mrs. Bonnie Thacker Ms. Kathie Vogel Mrs. Diane Thatch Anonymous Children’s Surgical Specialty Group Department of Urology The Conklin Family Ms. Annette Griffin Mr. and Mrs. Bill Marietti Ms. Bernice D. Moses Ms. Daphne Overstreet Ms. Mary Sonesen Mr. Philip B. Thatch Mr. and Mrs. Kevin W. Trainum Mr. Bob Wehmer Mr. Fred Thompson Ms. Doris Thompson Lavan Timmons, Jr. Mr. LaVan K. Timmons Evan James Titus Ms. Deborah C. Andrus Craig Todd Mr. and Mrs. Frank M. Palmer Kyle Spencer Townsend Mr. and Mrs. William S. Townsend, USN LCDR Alan Tupman Mr. Hoyte Cole Era Mae Turlington Mr. Jeanne B. Hargis Mr. Edward Douglas Tyndall Mr. and Mrs. Monty Evans Virginia Beach Municipal Center Victims Kaufman & Canoles, P.C. Lilian Charlotte Wade Mr. and Mrs. John P. Wade Amanda Ward Mr. and Mrs. Andrew Ward

Anthony Paul West Mr. and Mrs. Arthur L. Collins

Honors

Mrs. Patricia Dean Whalen Mr. Chip Wittern

Dr. and Mr. A.G. Ajwani Dr. Dolly Gupta and Mr. Bhavdeep Gupta

Claudine and Kenny Mr. and Mrs. Ross E. Legum

Jill Wheat Mr. and Mrs. Richard L. Wheat

Miss Alexis Sarita Viloria

Charlie Crain Ms. Molly C. Finucane

Caroline Wheeler Ms. Alexandria Snyder

All God’s Children Ms. Margaret S. Brothers

Dr. Allison Crepeau Mr. and Mrs. John C. Huenerberg, Jr.

All the Children 4 Brother’s Social Club

Mrs. Agnes L. Criner Mrs. Patricia Amburgey Mr. and Mrs. Gary Hall Mr. and Mrs. T. E. Joyner Mr. and Mrs. L. W. Langley Mr. Louis W. Liakos

Richard Welsh Ms. Carly Thomas Mr. and Mrs. Michael F. Winter

Mrs. Betty Jo Whitehead Mr. and Mrs. Joseph H. Drake Mary Davies White Suanne Armstrong Mr. and Mrs. Ernest A. Castelow Holly Springs Baptist Church Gail Layden Thaddeous White Mrs. Barbara N. Dalton Diane Whitmore Mr. Richard H. Barnes, Jr.

Honor gifts received between February 1, 2019 and June 30, 2019.

Jacob, Jordan and Madison Baker Mr. and Mrs. Henry J. Huelsberg David Beckner Edith Graham Grandy Ms. Sarah Braham Mr. and Mrs. Kenneth L. O’Bannon Avery Brinkley Mrs. L. Ann Eason

Ella, Van and Vivian Deans Mr. and Mrs. Henry J. Huelsberg Josue Diaz PR International Piping System

Mr. Zachary Burke Mr. and Mrs. Robert G. Burke

Annamarie Dubossi Mr. and Mrs. Ralph L. Dubossi Mrs. Eliza B. Melvin

Jordan Butler Mrs. Wyllo Hanson

Mr. Fedrico Bolques AB Homes LLC

Presley Claire Butts Mr. and Mrs. Billy P. Presley, Sr.

Suzy Feldman Mrs. Elise Z. Berkowitz

Blaine Allyn Williams Mr. and Mrs. Ritchie E. Eure

Caleb Mr. and Mrs. John J. Lavezzo, III

Ruby M. Foster Ms. Sherine Hargrove

Carroll A. Williams Mr. and Mrs. James E. Rammell, Sr.

Cecelia “CeCe” Mr. Anthony Livoti

Dr. Frazier Frantz Mr. and Mrs. Peter Ortell

Becky Winslow Mrs. Margaret B. Denison

Dr. Elizabeth Childs Ms. Althea Fackrell

Stanley M. Giddings Mrs. Margaret Giddings

Ms. Elaine Chismer Ms. Patricia Gustin

Greyson Greene Mr. and Mrs. William J. Lamoureux

CHKD Staff Mrs. L. Ann Eason

Mr. Jeremiah Green Mr. and Mrs. Dale Green

Bailey and Carter Chowns Mr. and Mrs. Warren D. Lewis

Mr. Wayne Haddock Mr. and Mrs. Marvin M. Aldridge

Jesus Christ Mr. Rayfield Douglas

Trey and Jack Hancock Mr. and Mrs. Henry J. Huelsberg

Almyra Taylor Williams Ms. Jane L. Johnston Barbara Joyce Williams Mr. and Mrs. Warner Hall, III Mr. Timothy Hinson

Mr. Thomas Cofer Woolridge, Jr. Mr. and Mrs. Robert M. Jones Kyoko F. Wright Mrs. Suzanne Weaver Alena Zoubul Ms. Angela Zoubul

Discrimination is against the law. Children’s Hospital of The King’s Daughters complies with applicable civil rights laws and does not discriminate, exclude or treat people differently because of race, color, national origin, age, disability, sexual preference, gender identification or expression, religion (creed) or sex. CHKD provides aids and services, such as qualified interpreters and information in alternative formats, to help people with disabilities and/or limited proficiency in English. These aids are provided free of charge and in a timely manner. If you need these services, please contact cultural/ language services at (757) 668-8246.If you believe that CHKD has failed to provide these services or has discriminated in another way on the basis of race, color, national origin, age, disability, or sex, you can file a grievance with: Tina Allen, Corporate Compliance Officer, 601 Children’s Lane, Norfolk, VA 23507, Phone: (757) 668-7776, Fax: (757) 668-5663, Email: Tina.Allen@chkd.org. You can file a grievance in person or by mail, fax, or email. If you need help filing a grievance, Tina Allen is available to help you. You can also file a civil rights complaint with the U.S. Department of Health and Human Services, Office for Civil Rights, electronically through the Office for Civil Rights Complaint Portal, available at https://ocrportal.hhs.gov/ocr/portal/lobby.jsf or by mail or phone at: U.S. Department of Health and Human Services, 200 Independence Avenue, SW, Room 509F, HHH Building, Washington, D.C. 20201, Phone: 1-800-368-1019 | 800 537-7697 (TDD). Complaint forms are available at www.hhs.gov/ocr/office/file/index.html. 1 (757) 668-6930 PAUNAWA: Kung nagsasalita ka ng Tagalog, maaari kang gumamit ng mga serbisyo ng tulong sa wika nang walang bayad. Tumawag sa 1 (757) 668-6930 1 (757) 668-6930 1 (757) 668-6930 1 (757) 668-6930

1 (757) 668-6930 1 (757) 668-6930 ATTENTION : Si vous parlez français, des services d’aide linguistique vous sont proposés gratuitement. Appelez le 1 (757) 668-6930

ACHTUNG: Wenn Sie Deutsch sprechen, stehen Ihnen kostenlos sprachliche Hilfsdienstleistungen zur Verfügung. Rufnummer: 1 (757) 668-6930 1 (757) 668-6930 1 (757) 668-6930 ATENCIÓN: si habla español, tiene a su disposición servicios gratuitos de asistencia lingüística. Llame al 1 (757) 668-6930

1 (757) 668-6930 1 (757) 668-6930 1 (757) 668-6930 1 (757) 668-6930

FALL 2019

Philanthropy Matters | Honors Kathy Head CAPT and Mrs. Kenneth L. Meek, USN (Ret)

Ms. Beverly J. Watkins Mr. Jason York

Mireyah Zand Holden D. Lee Mr. and Mrs. Karl F. Lee

lsabela Jane Rainey Mr. and Mrs. Joseph M. Lewis

Dr. David Herce, DDS Mrs. Ramona M. Conol

Alexis Huelsberg Mr. and Mrs. Robert H. Carriker

Laney Lyon Mr. and Mrs. Richard M. Halbert, Jr.

Emma R. Roman Mr. and Mrs. Reuben Reinick, Jr.

Jack Maquire Cycle Bar Red Mill Blake McConnell Mrs. Margaret G. Whitley Mr. and Mrs. Ronald B. Whitley

Layne and Carol Rowland Mel Wheeler, Inc.

Tanner Meads Ms. Gladys Lane

Paige and Dalton Russell Mrs. Joan Russell

Dr. Doug Mitchell Mr. and Mrs. Bill McGloon

Ginger Shackleford Corinth Baptist Church

Mrs. Liz Moore Mr. and Mrs. Peter Heinen

Sarah M. Shepard Mr. and Mrs. James Shepard

Amanda Jernigan, PA-C Ms. Samantha Stallings

Dr. Dave Norris Mr. and Mrs. Bill McGloon

Logan Simon Mr. and Mrs. C. G. Harris

Caroline Jones and Adrianna Ross Ms. Cindy Jones

Dr. Donald Nuss Mr. and Mrs. Robert W. Weaver

Haiden Sparrow Mr. and Mrs. Buddy Sparrow

Foster Jones Thoroughgood Elementary School

Dr. Robert Obermeyer Dr. and Mrs. Kong T. Oh

Maddox Jones The Honorable and Mrs. Michael Duman

Dr. Luis Olmedo Ms. Samantha Stallings

Triston Kight Ms. Gladys Lane

Jessica Peckham MSGT Everett W. Peckham, USAF (Ret)

Payton Kirnie Mr. and Mrs. Brian C. Benz

Emily and Jack Peltz Anonymous

Oliver Rollinson Kramer Mr. and Mrs. Sammy Kramer

Judy Perry Mr. and Mrs. L. Thomas Duke, Jr.

Mrs. Helen Laibstain Mr. and Mrs. Yale Nesson

Benjamin Piacentini Mr. and Mrs. Winthrop A. Short, Jr.

Hilary Mr. Justin O’Brien Mr. Brian Hirschler Mr. and Mrs. Joseph S. Weintrob Miss Finley Hooker Mr. and Mrs. R. Page Ayres Mr. and Mrs. Jeffrey M. Bauer Broadway Dance Arts, LLC Mr. and Mrs. Donald J. Campbell Ms. Deborah Y. Everitt Ms. Nathalyn L. Field Mr. and Mrs. Ronald F. Gill Mr. and Mrs. Brennan S. Gilliam Mr. and Mrs. Charles E. Glisan Mr. and Mrs. Victor J. Gonzalez Mr. and Mrs. Henry L. Hooker, III Mr. and Mrs. Henry L. Hooker, IV Mr. and Mrs. Greg Watkins Ms. Christine G. King Ms. Kimberly Kirby-Saunders Mr. and Mrs. Lynn LaFever, III Mr. and Mrs. Bobby J. Lappas Mr. and Mrs. Thomas A. Lawson Mr. and Mrs. Daniel W. Lufkin Ms. Samantha A. Martinez Jamie E. May Ms. Kirstyn L. McArdle Mr. and Mrs. Mark McCullough Ms. Keiko Monier-An Ms. Anne M. Nevins Mrs. Patricia Hooker Newman Mrs. Judith Pysher Dr. and Mrs. Ricky J. Rubin Mr. and Mrs. David B. Rudders Mr. and Mrs. Mark Ryan Ms. Katelyn McLanahan Salonish Mr. and Mrs. Roger E. Sams Mr. and Mrs. Michael L. Schmidt Mrs. Marilee Segal Mr. Gregg R. Shipp Mr. and Mrs. Robert A. Trubenbach Mr. and Mrs. Brady J. Walker

Edith Lee Hurst Mr. Dean A. Adams Mr. and Mrs. Bryan W. Althouse Caitlin Bubb Dr. Claudia Duncan Mr. and Mrs. Thomas W. Geisweit Ms. Nancy A. Hurst Mr. and Mrs. Neal T. Hurst Carole and Joel Jason’s granddaughter Dr. and Mrs. Fredric N. Fink

Ms. Stephanie Langevin Alpha Delta Kappa International Honorary Organization for Women Educators L. S. Beaton Peggy Darr Diane E. Gibson Barbara Haney Louisa Hammond Caden Palmer Betty K. Short Ellen J. Steiner Adelaide Weeks

Dillon Polston Mr. James Meagher

Veronica Royal The Bionetics Corporation

Ms. Maggie Swingle Mr. Dale K. Mitchell Mr. Gus Taglis Mrs. Molly McCraw Fred Thompson Mr. Rodger Jones The Thorne Girls Ms. Amanda Weber Mr. Ford Totten Ms. Virginia Lee Bagnell Gracie Toutaint-Perry Mr. and Mrs. Richard N. Toutaint Mr. Al Vancuren Mr. Michael VanCuran

Ms. Mariellen Poynter Mr. and Mrs. James C. Diggs, Jr.

Mr. James Whalen Mr. and Mrs. Thomas H. Askins, Jr. Ms. Leslie W. Creech Mr. and Mr. Scot Creech Ms. Tracey Creech

Dr. Crystal Proud Mr. Peter Herrick

Campbell Wright Mr. and Mrs. Henry J. Huelsberg

Luke Purser Mr. and Mrs. Paul L. Blanchard

James “Jimmy” Youngs MSGT Everett W. Peckham, USAF (Ret)

Mr. Graham Poynter Mr. and Mrs. James C. Diggs, Jr.

“My wish is that every child has a life of happiness and good health. Let’s make that wish come true - together.” – Kendra Scott

You can support CHKD by purchasing the Children Charm by jewelry designer Kendra Scott. This elegant charm will fit on charm bracelets, necklaces, or even hoop earrings. Kendra Scott is donating 50 percent of the proceeds from all local purchases to CHKD. Visit KendraScott.com and search ‘Children Charm’ to purchase today.

Children’s Hospital of The King’s Daughters

Harbor Park Night | Philanthropy Matters

A Home Run for Mental Health

More than 2,500 of our employees, donors, and their families created a sea of green at CHKD Mental Health Awareness Night at Harbor Park when the Norfolk Tides took on the Columbus Clippers. The event celebrated our dedicated staff and generous donors while raising awareness of our regionâ&#x20AC;&#x2122;s increasing need for pediatric mental health services. 1

(from left) 1. Jeff George, Audra Wendel, Barbara Baxter, Anne Roesch, Megan Baxter, and Robert Baxter. 2. CHKDâ&#x20AC;&#x2122;s Healthy Bear with Julianni Blackford. 3. Sloan and Sawyer Mountain. 4. Conner Lamb. 5. Tymiere Grayson with mom, Genene Milligan. 6. Dick and Kim Moutvic with Catherine and Paul Morlock. 7. Solon E. Paul with his wife Helen George.

FALL 2019

Philanthropy Matters | Board Members Reception 1

Honoring Our Leaders CHKD hosted a reception at The Historic Cavalier Hotel and Beach Club to express appreciation for the time and dedication of our board members. These committed leaders have been instrumental in the growth and success of our health system. Special thanks to Ellen Libby and Buzz Heidt for underwriting this event.

(from left) 1. Dr. Nadia Wasylyshyn, Dr. Christopher Foley, CHKD President and CEO Jim Dahling, and Dr. Svinder Toor. 2. John Lawson, Amy Sampson, and Dr. Robert Obermeyer. 3. Ron Beck, Julie Childress Beck, and Larissa Trinder. 4. Laura and Justin Fulton. 5. Drs. Leah and Shane Swatts. 6. F. Blair and Jane Wimbush. 7. Katie Van Buren, Chris Neikirk, and Elly Smith. 8. Chuck Owlett, Sharon Owlett, and Tom Smith.

Childrenâ&#x20AC;&#x2122;s Hospital of The Kingâ&#x20AC;&#x2122;s Daughters

CHKD Development Boards | Philanthropy Matters

CHKD Development Boards (as of September 1, 2019)

Development Advisory Board Wendy Goldberg, Chair Susie Archer Catherine Callahan Todd Copeland

J.T. McDonald Richard Meredith David E. Russell

Edward Deets

Stephen E. Sigmon

Walker Dorroh

Deb Vollmer

Janet D. Dungan

Susan Whitten

Pace Edwards

Rolf A. Williams

Stephen A. Leon

Bennett Zier

Brad Martin

Future Generations Board

Join Team CHKD!

Dedicate your next event, birthday, holiday, or special occasion to local kids at CHKD. Your support helps improve the lives of children in our community. Get creative. With Team CHKD’s online fundraising program, the opportunities are endless. Donate your birthday, create a fundraising page in honor of a loved one, or fundraise on a larger scale by organizing a charity race or sports tournament for CHKD.

Set goals. Decide how much you want to raise. Set a deadline to achieve your goal and create a sense of urgency. Write a list of supporters. Reach out directly to friends, family, neighbors, colleagues, and acquaintances. Invite people to contribute a gift or participate in your event. If they donate, make sure to express your appreciation. Showing gratitude can encourage continued support.

Lee Westnedge, Chair Ashley Bussey

Stephen Klimkiewicz

Dennis Cestra Jr.

Stephan Lipskis

Cynthia Chaing

David Poteran

Billy Chard

Cameron Reeves Poynter

Jason Deans

Amy Przymuzala

Katie Denton

Shikma Rubin

Matt Fanghella Nate Fine Brooke Garrett

Will Russell Leah Swatts Jill K. Wainger

Katherine Hines

J. Britton Williston

Ryan King

Katherine Wynne

Make it personal. Whether you’re sharing on social media, by email, text, or phone, explain why you’re asking for support. Form a team. Several people working toward a goal will raise money faster than fundraising alone. Recruit family and friends to share on social media. Stay organized. Make sure you follow up and send reminders to your supporters. Let them know that their donations are tax-deductible. And, be sure to keep track of all donations.

Child Abuse Development Board Sarah Bishop, Chair Warren Aleck L. Ashley Brooks Jean Compton Scott Duncan Sandra Harrison

Ken B. Shewbridge Gay W. Shulman Lisa Smith Lawrence Steingold Lydia C. Taylor

Lynn Hornsby

Sandra Warden

Maureen E. Olivieri

Carol Weinstein

Solon E. Paul

Dorothy Winn

Jenn Pfitzner

Judi Worley

Betsy F. Phillips Jim Schneider

Nancy Yokois, MD

Go to TeamCHKD.org FALL 2019

Philanthropy Matters | Making a Difference

Making a Difference Individuals, businesses, and organizations throughout the community hold campaigns to support the children at CHKD. Here’s a look at some of our all-star supporters.

CHKD cancer patient Kimber Poindexter, pictured here with her friend Gaiden Orrick, celebrated 18 months in remission by hosting an Anthem LemonAid stand in front of Port 13 Tattoo in Norfolk where their parents work. Kimber’s lemonade stand raised more than $1,800 to benefit CHKD’s cancer program.

As part of Give Local 757, Bank of America provided CHKD with a $10,000 gift to support the mental health and social work services that help families at CHKD’s General Academic Pediatrics. Charlie Henderson (right), market president for Bank of America, presented the generous gift to CHKD’s president and CEO Jim Dahling.

Mason’s Toy Box delivered hundreds of toys for patients at CHKD through the nonprofit’s Summertime Santa program. Pictured here are Jennifer Via, Danielle Blanks, and Kelley Kassay from Mason’s Toy Box. The Melton Team of RE/MAX Peninsula helped raise the spirits of kids at CHKD’s Health and Surgery Center at Oyster Point by donating a brand new Mercedes ride-on car for kids to drive on their way to surgery.

Children’s Hospital of The King’s Daughters

Making a Difference | Philanthropy Matters

Staff from 39 local Walmart and Sam’s Club stores came together to kick off their fundraising campaign for CHKD. They proudly announced their fundraising goal for 2019 to be $555,000!

Panda Express restaurants in Hampton Roads raised more than $130,000 in the last year to benefit CHKD. Thanks to donations from customers, the top fundraising store was Battlefield Boulevard, which collected $20,749. To celebrate, the Panda Cares mascot made a special appearance with restaurant staff to present their check.

PGA Tour player Marc Leishman and his wife, Audrey, who founded the Begin Again Foundation, presented CHKD’s April Le, shown center, a check for $40,000. The gift comes from the nonprofit’s Butterfly Blessings, an initiative that helps CHKD families cover expenses related to transportation, food, rent, and utilities so they can focus on their children’s health needs.

Kay Young-Brown from Enterprise Holdings Foundation stopped by ABNB Federal Credit Union to deliver a $1,500 check to CHKD in support of ABNB’s efforts to help kids in our community. Pictured left to right are Rob Henderson of ABNB, Bryan Schools from Enterprise, Lauren Kiger of CHKD, Kay Young-Brown and Christina Sigmon from Enterprise, and Jay Allen of ABNB.

tHRive, a young professionals program of the Hampton Roads Chamber, celebrated four years of success with an anniversary bash and fundraising event at The Harbor Club. Nearly 200 members attended, raising more than $1,200 for CHKD.

Jill Lewis and Karen Clifford, from the Holly Circle of The King’s Daughters, presented a keyboard and guitar to Shannon Hood, CHKD’s child life and patient experience services manager. The circle raised $1,500 for the hospital’s music therapy program in memory of member Lynn Hale.

FALL 2019

Calendar | Events and Classes

Calendar Upcoming events for Children’s Hospital of The King’s Daughters

The King’s Daughters Events Visit KingsDaughters.org for more information.

Fundraising Events Visit CHKD.org/Giving or call (757) 668-7070. 94.9 The Point Radiothon Wednesday through Friday, November 6 – 8 Tune in to the 18th annual Radiothon to benefit CHKD. During the event, morning show hosts Mike and Woo Woo from 94.9 The Point will broadcast live from the hospital lobby. Hear amazing stories from patients and their families. Call (757) 668-9000 during the event to give. To learn more, visit CHKD.org/Radiothon. 10th Annual Vegas Night Friday, January 17, 7 p.m. Join David Wright, former captain of the New York Mets, as he hosts a night of fun to benefit CHKD at The Virginia Beach Convention Center. Vegas Night event will include a poker tournament and other casino games, plus live and silent auctions. Advance registration is required. For more information, visit CHKD.org/DavidWright. Holiday Shopping on Amazon Smile Make your Amazon purchases through Amazon Smile and you can designate CHKD to receive a half percent of all eligible purchases. Once you enroll, simply do all of your shopping through your Smile account and your donation will add up! Visit Smile.Amazon.com and find ‘Children’s Hospital of The King’s Daughters’ to get started.

20th Annual Oyster Roast Saturday, November 2, 4 – 8 p.m. Downtown Circle is hosting their 20th Annual Oyster Roast at the Tidewater Boat Club in Norfolk. Tickets include oysters, clams, barbecue, Brunswick stew, beer, wine, silent auction, and more. Tents provided rain or shine. Breakfast with Santa Saturday, November 16, 10 a.m. – 1 p.m. The King’s Daughters invite you to Breakfast with Santa presented in partnership with Busch Gardens Christmas Town. Enjoy holiday performances, children’s activities, and a silent auction of trees at The Westin Virginia Beach Town Center. Tickets include breakfast and a photo with Santa. Moonlight & Mistletoe Saturday, December 7, 6 to 10 p.m. Please join us at The Historic Cavalier Hotel and Beach Club for this 7th annual event. Enjoy an elegant cocktail party with a TWIST! All proceeds will benefit CHKD’s mental health program. Kids’ Christmas Shop Saturday, December 7, 10 a.m. –1 p.m. Join Azalea Unity and Union of Hands Circles for their annual Kids’ Christmas Shop where children shop for holiday gifts for family and friends with help from Junior Circle “elves.” Gifts range from $2 to $10. Kids can meet Santa and have their photo taken. Parents can also find gifts for friends, teachers, and family.

RADIOTHON

f o r t h e b e n e f i t o f C h i l d r e n ’s H o s p i t a l o f T h e K i n g ’s D a u g h t e r s

November 6 – 8, 2019

Tune in to the 18th annual 94.9 The Point Radiothon to benefit CHKD. Call (757) 668-9000 during the event to pledge your support.

CHKD.org/Radiothon 36

RADIO

Children’s Hospital of The King’s Daughters

Your Baby

Newborn care and development presented by CHKD’s pediatric providers. Visit CHKD.org/Classes for dates, times, and to register. Welcome, Baby! Learn about basic newborn care including topics such as immunizations, breastfeeding, bathing, sleep safety, and more. There will also be an opportunity to meet the providers, tour the office, and ask questions. General Booth Pediatrics Pediatric Specialists Premier Pediatrics Meet and Greet and Baby Care 101 Expectant and new parents will meet the pediatricians and receive basic tips on caring for baby during the first six months, including sleep safety, swaddling, diapering, cord care, bathing, and more. Suffolk Pediatrics Meet and Greet Open House New and expectant parents – or families new to the area – are invited to tour the office and ask questions. Chesapeake Pediatrics Newport News Pediatrics Pediatric Associates of Williamsburg Breastfeeding Classes Get all your breastfeeding questions answered. Learn how to get off to a good start during the first month after your baby is born. Coastal Pediatrics Happiest Baby on the Block Find out how to soothe even the fussiest infant in minutes, and help your baby sleep longer. All participants receive “The Happiest Baby on the Block” DVD by Dr. Harvey Karp and a soothing sounds CD. Space is limited. Friday, January 10, 10 a.m. – Noon CHKD Health Center at Landstown

Events and Classes | Calendar

Community Parenting Education

Your Child

CHKD’s parenting experts offer classes on a wide range of topics to help you understand and connect with your child. Register at CHKD.org/Classes.

CHKD.org/Classes • CHKD.org/ParentingResources

Presented by

Attend four Parent Academy workshops to be recognized as a CHKD Parent Academy graduate! Understanding Anger in Children (Ages 6 – 12) Understand the causes of anger, how to anticipate and defuse angry outbursts, and how to help children manage their emotions. Wednesday, January 29, 6:30 – 8:30 p.m. CHKD Health Center at Oakbrooke

Imperfect Parenting (Ages 0 – 5) Connection is more important than perfection when it comes to parenting. Learn how to be in tune with your baby and how your responses build a strong, secure relationship. Based on Circle of Security Parenting. Wednesday, November 6, 6:30 – 8:30 p.m. CHKD Health Center at Oakbrooke Wednesday, January 22, 6:30 – 8:30 p.m. CHKD Health Center at Landstown Helping Young Children Manage Emotions (Ages 2 – 6) Learn how an adult’s response to a child’s emotional upset can influence their ability to develop secure attachments, manage emotions, and develop the brain architecture for positive coping. Wednesday, November 20, 6:30 – 8:30 p.m. CHKD Health and Surgery Center at Oyster Point

Purposeful Parenting Create clear expectations and consistent responses to enable your child to develop self-discipline and selfconfidence. Respond rather than react to challenging behaviors by understanding what your child needs. Wednesday, January 8, 6:30 – 8:30 p.m. Children’s Hospital of The King’s Daughters Positive Discipline (Ages 5 – 12) Learn how being kind and firm helps parents get to the core of their child’s misbehavior. Positive discipline techniques work to establish strong relationships and thinking, responsible children. Wednesday, January 15, 6:30 – 8:30 p.m. CHKD Health and Surgery Center at Oyster Point

Fall Fest Enjoy games and activities at this free community event designed for families with children under 18 who have special needs. Presented by CHKD and Chesapeake Parks and Recreation’s therapeutic program, Fall Fest includes an indoor “neighborhood” to trick-or-treat for sweets and prizes. Activities include face painting, live entertainment, and a photo booth. Kids can wear their favorite costume and decorate their wheelchair or adaptive equipment. Saturday, October 26, 1 – 4 p.m. River Crest Community Center, Chesapeake

EDUCATION

School Healthcare Conference We are pleased to announce that this year’s School Healthcare Conference will be a part of the Donald W. Lewis Pediatric Update 2019. Saturday, November 16 Hilton Norfolk The Main Target Audience: School nurses, teachers, counselors, administrators, physicians, and allied health professionals. For more information, contact Sandra.Fabian@CHKD.org.

Dads in Action Presented by CHKD Future Generations Board

Register at CHKD.org/Classes for login information. Children and Divorce Webinar Learn about the impact of divorce on children. Explore how to have difficult conversations with your children and build their coping capacity. Tuesday, November 12, Noon – 1 p.m. Positive Discipline – Calm, Connect, Correct Webinar Positive discipline offers techniques that work to establish strong relationships and thinking, responsible children. Tuesday, December 10, Noon – 1 p.m.

Learn more at CHKD.org/DadsinAction. Fatherhood 101 Class Get prepared for the arrival of your new baby. This class is for both new and expectant dads. Saturday, December 7, 10 – 11:30 a.m. CHKD Health Center at Oakbrooke Dad Talks This is a time for dads of all ages, in any stage of parenting, to connect and discuss the challenges and successes of being a parent. Visit CHKD.org/ DadsinAction for dates, times, and locations. Dad’s Day Out Bring the kids and get involved in these monthly activities designed for fathers and their kids to get together and do something fun. Visit CHKD.org/DadsinAction for event details.

FALL 2019

NON-PROFIT ORG US POSTAGE PAID CHKD

601 Children’s Lane • Norfolk, VA 23507

Save these dates to support November 6 – 8, 2019

Presented by Busch Gardens

Tune in to 94.9 and give to support CHKD

Saturday, November 16, 2019

CHKD.org/Radiothon

KingsDaughters.org/BreakfastWithSanta

The Westin Virginia Beach Town Center

Friday, January 17, 2020 Virginia Beach Convention Center

An Elegant Cocktail Par ty with Live & Silent Auctions

SATURDAY, DECEMBER 7, 2019 THE HISTORIC CAVALIER HOTEL

KingsDaughters.org/MoonlightAndMistletoe

Hosted by David Wright of the New York Mets

CHKD.org/DavidWright

All events are for the benefit of Children’s Hospital of The King’s Daughters.