Annual Report United Cerebral Palsy of the Wabash Valley
2013
1400 Hulman Street, Terre Haute, IN 47802 (812) 232-6305 • E-mail: info@ucpwv.org www.ucpwv.org
Our Mission Improving the life and well-being of individuals with disabilities through advocacy, outreach, service, and support. United Cerebral Palsy of the Wabash Valley is building bridges by helping people with all disabilities achieve independence. United Cerebral Palsy of the Wabash Valley provides information and referral services for individuals with disabilities and their families in Clay, Greene, Parke, Sullivan, Vermillion, and Vigo Counties in Indiana.
Message from the Executive Director and Board President 1 Independent Living 2 Adaptive Equipment Purchase and Loan 3 Adaptive Technology Lending Library
4
Information, Advocacy, and Referral
5
2013 Agency Revenue
6
2013 Donors 7
UCPWV Staff (left to right)
Front row: Nancy Sanders, Susie Thompson Back row: Travis Phillips, Chad Curtis, Martina Thompson
Message from the Executive Director and Board President If you always do what you always did, you will always get what you always got. —Albert Einstein
M
any have disliked the overused and often irritating phrase, thinking outside the box. So, you cannot imagine the surprise UCPWV had when the year of 2013 forced us to continually and with a no other choice attitude of thinking outside the box. Let’s face it, the driving force behind thinking outside the box is the frustration we feel when there seems to be no solution to the problem or need we face. In 2013, we had to challenge assumptions and broaden our scope both in the application of our mission and the services we offer to the Wabash Valley. It seemed we were constantly facing challenging and unmet consumer needs while facing continued financial limitations. We wanted to respond effectively to the challenges our consumers faced and did not want to be forced to turn people in need away. When there seemed to be limited community options or services to meet the growing need of our neighbors, we had to rethink how we might serve our mission and even how we needed to define a disability. Our mission had always been about helping people with disabilities live “life without limits.” Did those individuals that had no food to eat, had no place to sleep, or those without heat meet that mission? Through a focus group and several discussions with our consumer base, we determined that poverty and homelessness are truly a disability. Without the basic needs of life, we cannot function or live with success and dignity. With that thought in mind, our direct aid to individuals needing assistance with basic needs increased. The number of homeless individuals that asked for our assistance increased dramatically, as well. In 2013, we made sure that 102 individuals would have a safe, warm place to live and food to eat.
of the needed equipment. UCPWV really did not know where to begin to meet this all too common, daunting challenge. Once again, we were faced with thinking outside the box. The challenge forced us to develop new partnerships with unique partners and redefine existing relationships with old friends. As a result of that effort, some very complex medical situations were resolved. For example, a special bed was made and delivered to a gentleman forced to sleep on the floor as a result of his health condition. In another situation, a specialized wheelchair was designed and built to accommodate a child’s unusual physical needs. In yet another situation, special braces were made for an adult to make it possible for her to stand. The examples are many and varied. Housing continues to be a challenge for many people in our community and it can be even be more difficult for a person with a disability. We knew the need was great when during the first half of the year we, on average, received five calls per week for housing, and by the end of the year that number increased to, on average, 10 per week. By this point, that box was working pretty well so we continues, thinking outside the box. As a result, in early 2013 we finished construction on four homes. They were occupied, by those from our ever expanding waiting list, within two weeks of possession. Additionally, we purchased a ten unit apartment building, formerly owned by another social service agency. By the end of 2013, the apartment units were fully rehabbed and more than half were occupied. And, as of April 2014 all of the apartments were filled and a waiting list for the Hulman property initiated.
Many of UCPWV’s consumers, in 2013, were faced with unique and unmet medical needs. Many could not find the equipment they needed to solve the issue, or the equipment did not exist in the open market. Others did not have the funds to meet the exorbitant medical cost
I am happy to report that 2013 also saw UCPWV expand staff. We welcomed Nancy Sanders as our Program and Finance Coordinator and Martina Thompson as our Veterans Service Coordinator. With Nancy’s assistance, we have expanded our outreach in the Adaptive Lending Library and caught up on our property management. With Martina on board, we have started our Veteran’s initiative. Each of them bring their own talents and strengths. Our hard-working and skilled team including Travis, Nancy, Al, J.D., and Martina are always thinking outside the box to meet the needs of those we serve.
Susie Thompson EXECUTIVE DIRECTOR
Lisa Moore BOARD PRESIDENT
1
Independent Living 2013 IMPACT: 168 accessible/low-income housing consumers • 124 case management units provided (2,786 hours)
T
he year 2013 has been a year of growth and change for United Cerebral Palsy of the Wabash Valley (UCPWV); however, with growth and change always comes challenges. These challenges required a great deal of thinking outside the box. In April 2013, our staff realized the agency was receiving 15-20 calls requesting housing each week. In many cases, the individual was either homeless, facing a loss of their current housing, or trying to survive with little to no income. Most of the requests for housing came from people with significant disabilities and finding few options in the community to meet their often complex needs. In an effort to meet the needs of this diverse group, UCPWV began to look for ways to expand our Independent Living Program. UCPWV was able to purchase a two-building, ten unit apartment complex located at 1400 Hulman Street in Terre Haute from Council on Domestic Abuse. This purchase has allowed us to serve twenty-two additional individuals, increasing to 168 consumers served, who are either disabled or have low-income. UCPWV’s Independent Living Program
2
www.ucpwv.org
isn’t just about housing. Routine case management is offered to help our families, from making copies to assisting them in job placement. We are there to support, advocate, and provide services where needed. Struggling with housing issues can be a true hardship. Imagine for a moment that you did not know if you and your family would have a place to sleep from day-to-day. This is a story we hear from many of our consumers. This past year, the agency has seen more of our consumers relying on the kindness of friends for a place to sleep, or finding their car the only place they have to call their own. Statistics show that about 85% of people who are homeless are also disabled. The mission of UCPWV is to improve the life and well-being of people with disabilities, thereby helping them live “life without limits.” For our families, having a permanent place to live has helped them maintain jobs and have a sense of stability. Most importantly, they are just grateful to have a place to call home.
Adaptive Equipment Purchase and Loan 2013 IMPACT: 187 consumers
L
iving life independently and with dignity is something to which everyone is entitled. People with disabilities strive to achieve this goal every day through the utilization of adaptive equipment, but with the lack of funding or gaps in insurance, it is difficult. With a lack of resources, many challenges are presented. The challenge is compounded when the need of the individual cannot be met through accessible medical equipment that is available on the open market. Our community partners work with us each day to help meet the diverse needs of our consumers. One especially valuable partner in meeting the challenges is Anderson Medical Products. They have been part of the UCPWV family since 1984. Their innovative and creative thinking
helps us meet the needs of our consumers, needs that often far exceed our resources. The staff at Anderson’s works with UCPWV on the challenges that we face, including—but not limited to—working with Medicaid, Medicare and other insurance companies and modifying standard equipment to the specific need(s) of the consumer without increasing cost. Sometimes, there is no standard equipment to meet the specific need(s) of our consumers and the thinking outside the box strategy has worked to meet the unique challenges of our consumers, the medical field, and our partners at Anderson’s. As Dave at Anderson’s always says, “Tell me something good.” With this partnership, we can.
Living life independently and with dignity is something to which everyone is entitled.
3
Adaptive Technology Lending Library 2013 IMPACT: 603 children • 110 teachers, parents, and therapists
T
he year 2013 has been a year of expansion for UCPWV. As part of the expansion, our staff increased to meet the growing needs and increased numbers served. Nancy Sanders, who has been part-time with UCPWV since November 2011, stepped in as the Program Coordinator for the Adaptive Technology Lending Library in the second quarter of 2013. Since then, Nancy has put together a comprehensive inventory list of all 3,000 items in the library and is working on a supportive curriculum to accompany each item in the library. The items are organized in the five domains of development, including gross motor, fine motor, cognitive, social/emotional, and language. This helps teachers, parents, and therapists to select the appropriate item(s)Â needed. Nancy has had a love of the Library since joining UCPWV, and when the position of Program Coordinator opened, she jumped at the opportunity to join the effort. As a mother and grandmother, Nancy has a good understanding of child development and is excited to work with teachers, therapists, and parents to expand the
4
www.ucpwv.org
learning opportunities of the children in our communities. She has brought a great deal of thinking outside the box to the library and uses this when trying to identify the best methods to meet the needs of our consumers. Nancy has done a tremendous amount of outreach to our service area, which has enabled us to reach some of the outlying counties that we serve. After receiving a letter from Nancy, a therapist from one of the outlying counties came to see what items we had available to assist her clients. Not only did she leave with items, but she commented that this was a tremendous resource for the Wabash Valley.
Information, Advocacy, and Referral 2013 IMPACT: 493 Consumers
U
CPWV receives approximately 150 calls per month requesting information about both our services and other services that are available to individuals with disabilities in our communities. UCPWV provides connections for people to appropriate services in the
area and can make referrals when needed. Often a staff member can answer questions and normalize the event facing the caller which helps in dealing with the issue athand. The consumer can then move forward in an often complex and confusing medical system.
UCPWV provides connections for people to appropriate services in the area and can make referrals when needed.
As the Assistant Executive Director, Miss Wiggins is always working very hard to help our consumers get connected with the programs and services that will best help them live “life without limits.�
5
2013 Agency Revenue Agency net assets increased from 2 million in 2012 to 2.6 million dollars in 2013.
$2,600,000.00 Revenue streams remained steady during the year with property management contributing 53% of the total agency revenue, donations and fundraisers at 42% of the agency revenue, and United Way totaling 5% of total revenue.
United Way
Donations and Fundraisers
Property Management
$171.00 Average cost to serve each consumer in 2013.
6
www.ucpwv.org
United Cerebral Palsy of the Wabash Valley served over 1500 individuals during the 2013 calendar year in four major programs.
1,500+
Donors
2013 Donors PLATINUM Dr. & Mrs. Michael Deady Robert J. & Mary K Primus 105.5 American Legion Riders Riley Post 328 Asylum Concepts Dever Distributing Fifth-Third Bank International Paper Midwest Printing Sycamore Technology Solutions United Way of the Wabash Valley
GOLD Jared McCullough Kim Williams Eric D. Parker Anderson Medical Products First Financial Bank Vigo County School Corporation Wabash Valley Asphalt
SILVER Ronald W.Adams Amalgated Transit Union Boilermakers #374 Bricklayers Local 4 IN/KY Capenters Local #133 Diamond Brothers Insurance Duke Energy IBEW Union Electric #725 Ironworkers Local #22 Kanizer Excuvating Laborers International #204 Mahurin, Inc Plumbers & Steamfitters #157 Saratoga Restaurant Terre Haute Savings Bank Union Hospital Wilkinson, Goeller, Modesitt, Wilkinson & Drummy
BRONZE Anonymous David & Corinne Gasner Mike McCormick Christopher & Lisa Moore John Plasse Charlie & Kim Welker
8
www.ucpwv.org
Covered Bridge Special Ed Dist First Farmers Bank & Trust Rowdy Williams Law Firm, P.C. Wells Fargo Advisors Jetz
GREEN Bob Alexander Kapri Ames-Barker Anonymous Yvonne Avary Debbie S. & Kevin P. Badeaux George & Roberta Bakker Ron B. Bayles Rick Baysinger Roberta Beaumont Greg Bishop Debbie Bissinger Mike Booe Israel Borrero Sandy Boswell David Bray Joyce Bridgette Jeff Bridgewater Janet Brosmer Ron Brown Jay Brown Cindy Brown Cynthia G. Brown Julia Bruce Leslie Burdick Summer Burke Cary Burpo Kevin Caldwell Dan Callahan Cathy Cardinal Pat Carney David P & Mika J. Cassell Rich Cheever Tom & Linda Chiado Jennifer Clark Patricia Clark, DDS Clay Cohren John Collett Karen Conley Ralph & Allison Conn Debby & Ralph Conn Randy & Jennifer Conn Juanita & Vicki Conn Doug & Lisa Cooper Mike Cooper Janice N. Crosby
Carter Crouch Steve Danielson Barb Davis Rick Dawson Angel Dean Brett Dinkel Pally Dodman Todd & Patricia Doorman Julie & Mike Dougherty & Grimes Kenneth & Mary Beth Dugger Matt & Cathy Effner Michael Eldred Brad Elliot Tina Elliott Greg Ewing Sue Ferguson Scott Findley, DDS Mary Finley Tammy Fish Laura Followell Ferruccio & Mary Fornero Ward Frazier Steven D. & Pat L. Friday David Friedrich Cindy Gloye
Tom & Melissa Haley Beth & Bill Haley Heather Hancock Mary Beth Harris Alva & Max Helton Deninne Helton Cindy Hendrix Sharon A. Hensley Jeri Herbert Billy & Mika Hill Amanda Hogue Perry Hollowell Olivia & Pete Holvey Tina Horrall Mike Huddleson Steve Hunter Morris Jenkins Tim & Mary Jenkins Kristi Jerrell Dustin Joy Brenda Junker Mary Ellen Kearns Joseph D. Kerr Sharon Kerr Nick Kerr Larry J. & Susan K. Kreig
Thanks to all our Donors! Without our donors we could not make our organization work. Your donation to United Cerebral Palsy of the Wabash Valley supports the programs of this agency. Every dollar raised stays in the Wabash Valley.
John Goldner Bruce & Jeri Gooding Thomas & Ann Goss Meredeth Gray, DDS Brad Greiner Dave & Pam Grimes Bill & Peg Grimes Elizabeth Grimes Michael Grimes William G & Margaret M Grimes Mary Ann Hale Joe & Chris Haley
Amy Ladd Sam Lee Andrea Long Cathy Long Belinda Lonick Jennifer M. & Marcus D Lorrick Carol Lucas Aaron Luttrell, DDS Lee Anne Luttrell Jack Lynch John Malone Kim Marlow
2013 Donors GREEN continued Bill & Susan Marr Dave Marrietta Paul & Connie Mason John Mast, DDS Collin McCray Mary McCullough Rodney McDonald, DDS Alisa A. & Jay A. McKee Jessica Meier Kristy Merk Mel Mickelson Jake & Caitlin Miller Scott Miller Terry Modesitt Betty Mooney Thomas Moore LeAnna Moore Stephanie Moore Kenneth Moore Richard W. & Tracie L. Morris John & Cecelia Myers Charles Nay Revenend Nay April Newton Velma Newton Sherry Olds Barry O’Neal Charles Overpeck Susan Overpeck Todd Pancake Carol Peak Michael & Janet Phillips Steve Pilipovich, DDS Eleanor Plahn
Jill Pruett Marc & Jennifer Pruett Robert Puckett Julie Ragle Janet Raines Megan Ramsey Brad Rayce Ellen Reeves Gretchen & Robbert Rhoades Pauline Rippy John & Tammy Roach Carolyn Roberts Jan Robinson Nancy Ross Charles Ross Ryan Ross, DDS Jack L. Rost Trust Trudy Seaney John Sedletzek Jim Sharp Ron Shepard Holly & Jon Silver Roy C. Simpson Jr., DDS Mary Silvers Eric Smith Forrest & Rebecca Smith J.T. Smith William Smith Greg Smith, DDS Suzanne Soules Gary Staadt, DDS Henry Stadler Edward Stewart Lynn Stoelting Dean Strohm
Kathy Sutterer Laurie Taylor Tom Szymanski Tom & Joyce Taylor Brandon, Laurie, & Gracie Taylor Andy Thompson Oscar Thompson Rebecca S. & Richard W. Thompson Tom Tingley Judy Tompkins Bruce E. & Jocyce Travis Sara & Anthony Treash Cindy Trueblood Bill Turner Katherine Utley Neal Wagner Brian & Heather Walborn Seth Webb Matthew Welker Denise White Curt Wilkinson Brad Williams Janie Williams Ted Wilson Donna Wilson Scott Woelfle Jo Anne Youngblood Andrews Heating & Air Conditioning Blue Star Energy Bob Bower Ford Brazil Family Dentistry Burger Chysler Jeep
Century 21 Comfort Keepers Etheridge Chiropractic First Free Will Baptist Church Fleschner, Stark, Tanoos, & Newlin Frist Funeral Home Indiana Business Equipment Ivy Tech Community College Jetz Logan’s Ribeye Malone Realty Martini Stirs, Inc. McGlone Law Office Midwest Contracting Mike’s Auto Wrecking Model Cleaners Peffley Hinshaw Wrecker Service Pfister & Company Racop Law Russ Fisher Truck Parts SG Solutions Slagle Law Office Smock & Etling Smudde Family Dentistry Terre Haute Endodontics UAP Clinic Wabash Valley Central Labor Council Wetnight RV Wright, Shagley, & Lowery
9
Do you want to help United Cerebral Palsy of the Wabash Valley make an impact? Contact us about volunteer opportunities and participate in our annual events! Join us in improving the life and well-being of individuals with disabilities. Your support will help us make a difference!