Flanders today
june 11, 2014 current affairs
Suspect denies involvement As the fourth victim dies, the man arrested says he’s not responsible for Jewish Museum shooting 2
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Summer at your doorstep
Ghent researchers have found the gene that allows insects to store cyanide from plants
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Trouble in mind A Flemish network is tackling the challenge of living with early-onset dementia Andy Furniere
At least 3,000 people in Belgium under the age of 65 suffer from early-onset dementia, but until now, there’s been minimal support and information about the condition. A new website aimed at patients, families and health workers is changing that
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hen you think of people with dementia, you probably don’t picture active and working people in their 40s or 50s. But at least 3,000 people in Belgium under the age of 65 suffer from one of the brain diseases categorised under the term early-onset dementia. A new website launched by Flemish organisations and a Dutch
partner aims to raise awareness about the condition among the public, health-care professionals and policymakers. Early-onset dementia was first put in the spotlight in Flanders in 2007, when a working group published the first practical manual on the disorder. The group included not-for-profit organisations, hospitals, government agencies, scientists and partners of people with the disease. “At the time, there was almost no information available on the condition, which caused a lot of frustration among people who were confronted with it,” explains Jurn Verschraegen, director of the Flemish Expertise Centre on Dementia. Now the working group has presented an updated manual and an informative website, in conjunction with Maastricht
University’s Alzheimer Centre Limburg. “We developed the website at the request of the children of people with earlyonset dementia, who sometimes exchange experiences,” says Verschraegen. “The design was in the hands of the daughter of someone suffering from the disorder, who knows all too well which questions have to be answered.” The website includes practical information, the proper channels to search for help, scientific progress and the latest news. It also features the working group’s 10-point plan, a compilation of the most important challenges for policymakers in Flanders. It was first published in 2010, as a guideline for the previous government, and was adapted after the Dutch NeedYD study (Needs in Young-onset Dementia) identified more clearly the `` continued on page 5