t was my pleasure this issue to chat with Lindsey Burrow, our cover star. Lindsey cared for her husband, rugby star Rob, after his diagnosis with Motor Neurone Disease until his sad passing in June 2024. At the same time, she juggled raising three children and her role as an NHS physiotherapist, alongside running marathons, raising funds for MND research, and improving awareness of the nation’s millions of unpaid carers.
This issue we shine a spotlight on carers, from the sister who’s always been there for her disabled brothers, to the Carers Centres across the country which provide a lifeline.
Writer Kate Stevenson spoke with Nick Stapleton about how vulnerable people can protect themselves from losing money through scams. We also look at the latest changes to benefits as part of the new tax year.
You can read opinions and voices from our disabled columnists, learn more about complementary therapies, and we have fascinating interviews with disabled dancer Marc Brew, along with stroke survivor and renowned cartoonist Rupert Fawcett.
You’ll find it all – and more – in this issue. I hope you enjoy it! As always, drop me a line with any suggestions of what you’d like to read about in Enable, and don’t forget to follow our social channels to stay up to date with the latest.
Till next issue
26 SMASHING IT
We spoke with Jodie Ounsley – Fury from TV’s Gladiators – about writing her new empowering book and what it’s like to be a deaf role model.
66 ACCESS ALL AREAS Paralympic powerlifter turned startup success, Ali Jawad discusses enterpreneurship and shares his story of creating an accessible fitness app.
a video doorbell from Ring –turn to page 46
What's inside
8
Interview
8 AT THE HEART OF EVERYTHING
Lynsey Burrow, who cared for her late husband Rob Burrow MBE, spoke exclusively to Editor Melissa Holmes about being a carer, MND, and life since Rob’s passing.
10 DANCE WITH LIFE
Renowned choreographer, director and #DisabilityPower100 winner Marc Brew talked to Kate Stevenson about bringing his story to stages across the world.
20 A DIFFERENT CHAPTER
Popular cartoonist Rupert Fawcett shares the story of his interesting career, and discusses how life has been since his stroke.
26 SMASHING IT
Youngest person in the UK to receive a cochlear implant, former rugby pro, Fury from TV’s Gladiators, and now author… Is there anything Jodie Ounsley can’t do? Editor Melissa Holmes found out.
66 ACCESS ALL AREAS
Paralympic powerlifter turned startup success, Ali Jawad talks about creating an accessible fitness app.
Care
12 A SIBLING’S DUTY
At least 1.7 million adults in the UK have grown up with a disabled sibling. They’re more likely to have experienced prejudice, family breakdown, bereavement or financial hardship. Kausar Iqbal shares her experiences.
15 A HELPING HAND
We learn more about carers centres, whose staff and volunteers are unsung heroes, supporting the nation’s 5.8 million unpaid carers.
Voices
28 WHAT DOES REPRESENTATION LOOK LIKE?
Tim Rushby-Smith ponders the responsibility disabled artists should have when it comes to representing their disability. Cover story
38 IN MY FEELINGS
Samantha Renke shares her experiences around the anger she often feels as a Disabled person, and how she manages those emotions.
Life
18 SHINE A LIGHT
The organisers of World Down Syndrome Day are calling on governments worldwide to improve support systems for people with Down’s syndrome.
30 THE FUTURE OF INDEPENDENCE
How technology is rapidly changing our way of life.
41 HOBBY HOUR
Thanks to inclusive clubs, adaptive equipment and supportive communities, hobbies are more accessible than ever.
44 PUSHING THE LIMIT
Para Nordic skier Scott Meenagh and adaptive surfer Zoe Smith tell Kate Stevenson how they’re proving that extreme sports are for everyone.
53 THE DIARY
From the UK’s biggest disability exhibition to MS Awareness Week, there’s all sorts going on this March and April. We learn more.
55 PRODUCT PICKS
We choose our favourite disabilityfriendly products, including adaptive clothing on the high street and talking tins in your kitchen cupboard.
Health
23 DON’T GIVE UP
We take a closer look at arthritis – the different forms of the condition, what treatments are available, and what it’s like to live with.
35 WHAT’S THE ALTERNATIVE?
Disabled people share their experiences of complementary therapies – including cold water immersion, reiki and reflexology –and discuss how they can enhance quality of life.
Motoring
56 FORD EXPLORER
A famous Ford name is repurposed to become an electric SUV, and it’s one of the best in its class.
Finance
48 A SCAM-DEMIC
Fraud accounts for more than 40% of all crime in England and Wales. Kate Stevenson speaks to scam expert Nick Stapleton about fraud prevention and why disabled people may be at greater risk.
51 ALL CHANGE…OR LOOSE CHANGE? With the new tax year beginning in April, we round up what’s happening with disability benefits.
59 LEGAL PROTECTION
A look at legal protection for disabled people in the workplace.
61 FOCUS: NATIONAL CAREERS WEEK
How National Careers Week offers young people the chance to explore career options and discover what support is available.
News
NHS ENGLAND HAS PUBLISHED its Operational Planning Guidance for 2025/26, outlining priority areas and objectives for the service. The number of headline targets focused on the diagnosis and treatment/ support of specific conditions has been reduced from 31 last year to 18 this year, causing alarm among disability charities.
Mencap’s Jon Sparkes OBE said
the change could cause “irreparable harm”, explaining: “These targets were put in place to address the significant inequalities faced by people with a learning disability.”
Fiona Carragher from Alzheimer’s Society said: “Alzheimer’s Society is shocked to learn that dementia has been removed from the Guidance, meaning it is not considered one of England’s healthcare priorities.”
Changes to NHS guidance spark concern ADULTS WITH ADHD: SHORTER LIFE EXPECTANCY?
A GROUNDBREAKING STUDY by University College London has discovered that adults with a diagnosis of ADHD may be living shorter lives than they should. The research analysed data from 30,029 adults across the UK with diagnosed ADHD.
Researchers found an apparent reduction in life expectancy for men with diagnosed ADHD of between 4.5 and 9 years, and between 6.5 and 11 years for women with a diagnosis.
Senior author Professor Josh Stott called the findings “deeply concerning”. Lead author, Dr Liz O’Nions, added: “Although many people with ADHD live long and healthy lives, our findings indicate unmet support needs. It is crucial that we find out the reasons behind premature deaths so we can develop strategies to prevent these in future.”
LORDS CALL FOR BENEFITS REVIEW
THE CROSS-PARTY HOUSE of Lords Economic Affairs Committee has called for urgent reforms to be carried out within the health-related benefits system. An inquiry found that the 3.7 million working age people who are in receipt of healthrelated benefits have neither the incentive nor support to find and accept a job.
The Committee recommended that Government needs to review the conditions for those in receipt of health-related benefits (like the ‘limited capability’ Universal Credit groups). It also suggested Work Capability Assessments – plans for reforming these were recently deemed ‘misleading’ and unlawful by the High Court – should be carried out faceto-face, and “seek to establish what work an individual can do rather than looking to corroborate what they cannot do.”
The RNIB responded: “The wellbeing of claimants, not cost savings, needs to be at the heart of any reforms. We urge the Government to go further and faster in delivering far better support for people with sight loss to enter and stay in work.”
NTRODUCING THE STYLISH OMODA 5 AND E5
Experience the freedom to drive with the OMODA 5 and E5, now part of the Motability Scheme. Combining bold design, premium technology, and advanced driving aids, these vehicles deliver comfort, safety, and style. With adaptable options and Motability Accredited staff, OMODA is here to help you find the perfect car for your mobility needs.
AT THE HEART OF EVERYTHING
NHS physiotherapist, mum, wife and carer. Lindsey Burrow has taken on many roles, but it’s her role as the carer of her late husband, rugby star Rob Burrow MBE, that many of us know her for. Lindsey spoke exclusively to Editor Melissa Holmes about being a carer, MND, and life since Rob’s passing
QCan you tell me more about what inspired your new book, Take Care?
A: Rob encouraged me to do the book. I felt I wasn’t doing anything different to what millions of other people across the country do in terms of being a carer and looking after Rob. In many ways, I didn’t really feel I had a story. But, having done some work with ITV – a programme called Who Cares for Our Carers? – it really opened my eyes to the work that unpaid carers do. I felt I wanted to highlight the importance of unpaid carers in society.
Q: What do you hope readers will take away from the book?
A: I wanted to write a testimony of strength, love, resilience, and the human
spirit – the power of family in the face of adversity. I hope the book will offer people hope and inspiration. No matter how hard life gets, we can always find a way to keep going.
Q: Looking back on your journey with Rob, what were the most cherished moments you shared?
A: Gosh, we’ve got so many memories. Rob was my childhood sweetheart, and he was my best friend. Obviously our wedding day was special, the birth of the children, you know… But it was just the simple things in life – going out for tea, watching a movie together, or going to the park. We never lived a lavish lifestyle. Family was always at the heart of everything we did. Rob would want me and the children
to be happy – that’s what continues to inspire me. I feel so lucky and honoured to have been Rob’s wife and to have had that time with him, although the time was cut short.
Q: How did your relationship change when you became Rob’s carer after his MND diagnosis?
A: Because my job as a physiotherapist
Family was always at the heart of everything we did
is to look after and care for people, I think I made that transition quite easily. I know Rob would have done the same for me, had it been the other way around. He was still the same person I married, but he was in a body that didn’t work like yours or mine, and he needed help.
Q: What were some of the biggest challenges you faced as a carer?
A: The hardest part was definitely the mum guilt – you know, you’re trying to be a good mum, you’re trying to be a good wife, you’re trying to be a good physio, and juggle everything. But you look at what Rob went through and that really puts things into perspective.
Q: Since Rob passed away in June 2024, how have you and your children been managing?
A: Rob said to us that he wanted us to be happy, and I’m determined to keep that promise to him. I see Rob very much in the children; in their courage and bravery and the way they’ve handled this. They wake up every morning with big smiles on their faces. They’re the reason I keep going.
We talk about Rob every day – it’s really important that we keep his memory alive as a family.
Q: And Rob’s legacy will continue with the opening of the specialist MND centre at Seacroft Hospital…
A: Yes, £6.8 million has been raised for a
new flagship MND centre in Rob’s name – The Rob Burrow MND Care Centre. It’ll be the first of its kind in the UK: a patientcentred place that will meet their needs, with physio, speech and language, dietetics, wheelchair services, there’ll be facilities to voice bank in there for patients, because 80% of MND patients lose speech. All the consultants will be in there, it’s got a kitchen patients can use, a garden you can go and sit in. All those things will make such a difference.
Q: What changes would you like to see for carers and how they’re supported?
A: From speaking to people, Carers Allowance is just not enough. Carers are literally living on the breadline. It’s really important they get the respite care they need as well.
The government needs to recognise and reward carers for what they do. The statistics say that unpaid carers save the NHS £162 billion a year, which is the equivalent of a second NHS. Without those carers, the healthcare system would crumble.
Q: What advice would you give to someone who’s just become a carer?
A: I think the most important thing is self-care; take care of yourself because, to be a good carer, you need to be in good physical and mental health. Then there’s having time away from being a carer – as much as it’s rewarding, it can be very lonely and isolating, and it can take a toll on both your mental and physical health.
Q: What’s been the biggest surprise to you when you’ve spoken to other carers?
A: How quickly life can change. At some point in life, we’re either going to be a carer or need to be cared for. You never know what path life is going to take us on. There are so many people who are doing what they do out of love, day in and day out – not for any rewards, not for any benefits, they just do it purely out of love. We should reward them for their hard work.
Dance with life
Renowned choreographer, director and #DisabilityPower100 winner Marc Brew is redefining the boundaries of what it means to be a dancer by bringing his story to stages across the world. He speaks exclusively to Kate Stevenson
For Marc, dance has always been about more than moving his body; for him, it’s been a lifeline.
His love affair with dance began when he was a young boy. He trained as a professional dancer at the Victorian College of the Arts Secondary School and The Australian Ballet School. At just 20, he was offered a job with PACT Ballet in South Africa. It was a dream come true: “I’d always been fascinated by South Africa,” explains Marc. “After reading The Power of One, I wanted to go there. It was the perfect opportunity.”
THE FIRST ACT
But one ill-fated Saturday, Marc’s burgeoning career as a rising ballet
I was told I could no longer be a dancer. That there was no place for a disabled dancer
star took an unexpected turn. Marc was heading to a game reserve to go bushwalking when a drunk driver struck his car. The accident claimed the lives of his friends – Joanne, Simon and Toby – and left Marc paralysed from the chest down.
“My life changed in a split second. I remember feeling a huge impact, and then it was like I’d been to a concert because my ears were ringing,” recalls Marc. “Everything just froze, and I felt like I couldn’t move.” Marc recalls seeing his three friends not moving. “And then I must’ve lost consciousness, because I woke up again outside the car surrounded by people. I kept saying, ‘don’t worry about me, worry about the others’.”
The next time Marc woke up, he was in hospital with his mum by his side. He’d suffered massive internal injuries and his spinal cord had been damaged at C6 and C7. “The doctor came in and told me I was never going to walk again, and everything changed.”
THE SECOND ACT
Marc had thought he was “invincible” in his early twenties but, in an instant, the accident turned his world upside down. The next few months were undeniably difficult as he rediscovered life as a disabled person. “I felt immense survivor’s guilt,” he adds. “But I knew I had to live my life fully – not just for myself, but for them.”
Yet returning to dance was not immediate, or easy. “I was told I could no longer be a dancer – that there was no place for a disabled dancer,” he shares. But, through experimentation and persistence, he began creating and performing again. “I stopped focusing on how it looked and instead concentrated on how it felt,” Marc explains. “Dance became about the sensation, not the image or achieving perfect lines.”
In his critically acclaimed work, an Accident / a Life, Marc revisits the crash. “Even now, some moments catch me off guard,” he admits. “But performing it honours those I lost and keeps their memory alive.”
Each performance is a testament to the transportive power of art. “Dance is not just about moving your body,” reveals Marc. “It’s about moving our hearts and minds.”
A SIBLING’S DUTY
At least 1.7 million adults in the UK have grown up with a disabled sibling. They’re more likely to have experienced prejudice, family breakdown, bereavement or financial hardship. Kausar Iqbal shares her experiences with Kate Stevenson
Family is important to everyone, but Kausar’s life has always revolved around hers. Growing up as one of six siblings in a bustling household, she faced responsibility few can understand. Her two younger brothers, Saeed and Irfan, have microcephaly, epilepsy and learning challenges. For most of their lives, she’s been their full-time carer.
FAMILY FIRST
Even as a child, she felt the weight of obligation: “I was only eight when Saeed was born,” she recalls. “To me, he was just my baby brother. But over time, I realised things weren’t the same as other families.” When her next brother was born, she noticed the developmental differences between him and Saeed. “At six, he still couldn’t
walk. He was in nappies, and mum was struggling to cope. That’s when I understood my childhood was going to be different.” As the second eldest, her parents turned to her for respite. At 15, her caring responsibilities doubled when her mum was expecting Irfan.
Half of the UK’s young carers are siblings of disabled children who had no choice but to help their parents – just like Kausar.
But acting as a carer while trying to hold onto her own childhood wasn’t easy. “I took them everywhere: to the park, the library, on errands. One in a pram, the other holding onto the side,” she remembers. “I tried to plan it perfectly because I was scared they’d have a tantrum or cause a scene. I was just a child myself, but I didn’t have the option to put myself first.”
Reflecting back, Kausar acknowledges that venturing out with no adult supervision – let alone while caring for two vulnerable children – probably wasn’t wise. “I didn’t know any better,” she admits. “I used to sit my brother up on the wall outside so he could watch us play. I didn’t realise he might get hurt if he had a seizure and fell.”
THE COST OF CARING
Today, Kausar is her brothers’ official carer. First, Saeed moved into her house with her family after he failed to settle in residential care. Then, when her parents were looking to place Irfan in housing, Kausar once again opened her doors, as well as giving up her job as a nursery officer.
It’s an all-consuming role, which she says has taken its toll: “Some days, I feel like I’m running on empty. I’ve developed arthritis, high blood pressure, and sleep apnoea. But there’s no time to
stop – not when they need me.”
The financial burden of caregiving is another constant stress, especially when her siblings need adaptations that benefits won’t cover. And beyond these pressures, Kausar struggles with the isolation. “I’ve lost parts of myself. I don’t know how to put makeup on or style my hair because I’ve never had time to learn. Sometimes I wonder, ‘Who am I, beyond being their carer?’.”
I was just a child, but I didn’t have the option to put myself first
Kausar with her brothers, Saeed and Irfan
TAKING A TOLL
Caring has not only shaped Kausar’s relationship with herself, but the relationship she has with her friends and family too. “I don’t have a traditional bond with my siblings or parents,” she reveals. “Growing up, I had to be the adult. I never had the chance to lean on my mum or dad because they were dealing with their own struggles.”
Kausar tries not to feel aggrieved, but her relationship with her parents –and other siblings – is strained. “There were times I wished they helped more, but we all had our roles. Now, my relationship with my siblings is polite, but I feel the distance... We fell out about my brothers after my dad’s passing, and it’s taken years to rebuild even a basic connection.”
Being a carer for a family member is “a balancing act,” she reveals. Sometimes you get it right, sometimes
you don’t – but even Kausar’s children struggled to understand this. “My kids grew up with their uncles in the house. They’re incredibly empathetic, but they’ve also felt like they’ve had to share me,” she explains. “Sometimes they say I put my brothers first, and that breaks my heart.”
A FAILING SYSTEM
Looking after her brothers comes with challenges, but Kausar feels happier being in charge of their care. When her eldest brother briefly moved into residential care, it was traumatic. “He was miserable,” she remembers. “We were naive to think the system would care for him like we did.”
After six months, Kausar brought Saeed home. But this wasn’t the only time the system let her down: “I had a hernia operation and was given just two weeks of respite care. By the time my brothers returned, I hadn’t recovered
properly and developed an infection. That’s the reality of being a carer: even when you need help, it’s not there.”
The lack of mental health support is another failure. “Carers’ mental health is overlooked,” points out Kausar. “I’ve been carrying this responsibility since I was eight. It’s affected every part of my life, but there’s no one to offload to. I just have to keep going.”
Despite the challenges, Kausar’s devotion to her brothers is unwavering. “They’ve taught me patience, resilience and compassion,” smiles Kausar. “When I’m having a hard day, they’ll come and hug me. That love makes up for so much.”
A HELPING HAND
The staff and volunteers at carers centres are unsung heroes and a vital source of support for the nation’s millions of unpaid carers. Editor Melissa Holmes – a parent-carer herself – learns more about the work of this vital service
Iget a call through every couple of months: “It’s Fiona, from the carers centre. Just checking in to see how you’re doing.” Or “Have you applied for our local carer’s discount card or the short breaks service yet?” And “We’re having a meal out for parentcarers – we’d love you to join us for a night off.”
As a single parent-carer of an autistic child, life can get a bit much. If I’m not dealing with educational needs or school refusal, I’m wading through benefit applications or carving out one-on-one time with my child when I have some respite from parenting my younger two. But I’m certainly not alone.
UNPAID ARMY
Carers UK estimates there are some 10.6 million unpaid carers in the UK, who save the NHS around £162 billion
per year (the equivalent of a second NHS!). Many of them are caring for a family member, like a child with additional support needs or an elderly parent.
Kirsty was already working as a paid community carer when her husband Jim was diagnosed with Parkinson’s ten years ago, aged 44. A year after his diagnosis, a mix-up with medication caused dopamine withdrawal which led to dystonia, making Jim’s feet twist and his bones break. Unable to walk, Jim had to give up work and Kirsty left her job to become his full-time carer.
Jim is in the advanced stages of Parkinson’s and has Parkinson’s dementia. He needs medicating every two hours, so Kirsty is up day and night administering that, as well as taking care of all her husband’s needs. “The only thing he’s really doing on his own is feeding himself,” she says.
Kirsty
I’ve had so much support from the carers centre – it’s been invaluable
Kirsty
Carers getting creative at Camden Carers Centre
IT’S A LOT
Being a carer has a huge impact on your life. There’s time away from your other loved ones, juggling work and caring (around 600 people per day quit their jobs to focus on their caring responsibilities), and the financial, physical and emotional aspects of being a carer. It’s a lot.
“I always say, we’ve got Parkinson’s – not just him, we’ve got it,” Kirsty reflects. “We had a great circle of friends, but we’ve got one of them left. They’ve all disappeared. You lose that social connection because you’re not available to go for a drink or go out for the day.”
SOURCE OF SUPPORT
Which is why local carers centres, along with charities like Mobilise, Carers UK and Carer’s Trust, are so vital. From social meetups to counselling provision, the UK’s 130+ carers centres are an unending source of support for many. You can find your nearest local carers
Carers UK estimates there are 10.6 million unpaid carers
centre by visiting carers.org and using the simple postcode finder.
“I reached out to Trafford Carers Centre about 12 months after Jim’s diagnosis,” reveals Kirsty. “I was at a really low point. It was all-consuming; I slept and breathed Parkinson’s.” Kirsty admits she was: “probably at the lowest point I’ve ever been. I phoned the care line, and was on the phone for about two and a half hours. They had me in seeing a counsellor within a week, I had a full Carer’s Assessment, they sent a benefits advisor to the house to help me apply for benefits.”
Many carers centres offer help with complex tasks like benefit applications or tackling the meetings that may be needed when you become a carer. They can talk you through legal aspects of caring, like lasting power of attorney, or offer mindfulness sessions to help you navigate the mental load of caring, give training in proper moving and handling techniques, or provide an independent advocacy service.
LITERALLY LIFESAVING
Kirsty has continued to be involved with Trafford Carers Centre. She’s used the counselling service many times and says: “It helps you clear things in your mind, and it’s literally lifesaving.”
She also helped set up a ‘knit and natter’ session at the centre – one of around 50 offshoot groups there. With ten regular members, three of whom are men, it’s become “more of a chattering
group than a knitting group,” Kirsty says. Carers centres across the country host a range of groups including young carers’ groups, meetings for parentcarers of autistic children, male carer services, help for people caring for someone with an eating disorder, and support for LGBTQ+ carers.
“Through the knit and natter, we have a WhatsApp group we all connect in,” highlights Kirsty. “If someone’s having a hard time, everyone’s there and they all understand. That’s a big thing. Other than my one pre-Parkinson’s friend, everyone I connect with now is a carer.” She says: “The carers centre has given me friends again.”
INVALUABLE SUPPORT
Kirsty has also found more purpose thanks to the carers centre, as they gave her a part-time role of community fundraiser. “It’s flexible, there’s no pressure,” she explains. “It gives me something else to think about, something else to focus on.” She recommends that anyone who has caring responsibilities gets in touch with their local carers centre to find out what support is available, concluding: “I’ve had so much support from them – it’s been invaluable.”
Shine a light
World Down Syndrome Day takes place on 21 March, offering the opportunity to celebrate the lives and contributions of people with Down’s syndrome. This year, organisers are calling on governments worldwide to improve support systems
Around one in 1000 babies are born with Down’s syndrome (DS) each year in the UK, making it one of the most common chromosomal conditions. Sometimes referred to as Trisomy 21, it’s a naturally occurring genetic difference, which occurs when a person has an extra copy of chromosome 21. That’s why World Down Syndrome Day takes place every year on 21 March.
Down’s syndrome affects everyone differently, but many people with DS are impacted by a range of health issues including delayed language and speech development, reduced motor skills, heart conditions and hearing loss.
NO LIMITS
However, DS is more than just a collection of symptoms, and people with DS, their families and the professionals who work with them are keen to show that a life with DS doesn’t need to be limited. More people than ever with DS are attending mainstream schools, securing employment, and living independently or with support.
What’s more, research carried out in 2011 – which involved surveying people with DS who were over 12 years of age to learn more about their self-perception – found that nearly 99% of people surveyed said they were happy with their lives. In the 1960s, the average life expectancy for a person with Down’s syndrome was only 15 years. Now many people are living into their sixties and beyond, thanks to advances in medical care, education and social attitudes (as well as, according to the Global Down
In the 1960s, the average life expectancy for people with Down’s syndrome was 15
Syndrome Foundation, the end of the inhumane practice of institutionalising people with Down’s syndrome).
However, barriers remain. Many families report difficulties accessing healthcare, education, and social services. A 2023 report in The Lancet found that people with DS face “persistent disparities in health outcomes stemming from insufficient awareness and training about Down’s syndrome among physicians, professionals and families…all exacerbated by wider structural factors such as social discrimination and inadequate provision of services.”
A HUMAN RIGHT
Officially observed globally by the United Nations since 2012, this year’s World Down Syndrome Day theme
is #ImproveOurSupportSystems. People are being asked to call on their governments to implement support systems that meet the needs of disabled people and their families, since “support is a key human right that helps make other rights possible.”
By improving these support systems – like governance, social protection, in-person support, access to transport and accessible, affordable housing –governments across the world can help uphold the human rights of people with DS so they can take part in politics, be included in education, receive good healthcare, and enjoy access to culture, leisure and sport.
That’s why World Down Syndrome Day provides an important call to action, encouraging people with DS, their families and wider society to improve accessibility and support for people with DS, so they can live long, fulfilling and happy lives.
A DIFFERENT CHAPTER A
One day, a multimillionselling cartoonist, the next, in hospital fighting for his life. Editor Melissa Holmes caught up with Rupert Fawcett, creator of Fred and Off the Leash, to chat about life after a stroke
s a child, Rupert Fawcett would draw for hours. “I used to disappear into my own private world and draw cartoon characters,” he explains. “I was always good at drawing, and I enjoyed it.” But a regular route into an artistic career didn’t suit Rupert, who tried three different art schools, none of which ‘felt right’.
The next stop was, of course, rock and roll. “I formed a band with my brother… We got nowhere fast,” Rupert chuckles. Dreaming of the big time as a rock star, working his way through a
succession of menial jobs, and going “off the rails” due to drinking too much... In his early twenties, Rupert’s artistic dreams seemed a million miles away. It wasn’t until he went through a 12step recovery program to sobriety and became a counsellor himself that he returned to his first love: drawing. “I got a job as a trainee in a clinic in Chelsea,” he recalls. “When I was working there, in our tea breaks and at lunchtime, I had a little book in my pocket and I used to take it out and doodle.” Rupert found this helped him to relax and switch off from his stressful role.
Rupert at work recently
Drawing during rehab
Signing books before his stroke
“I drew this little bald man with a cat and decided to call him Fred,” remembers Rupert. “The next day I thought I could do some more drawings of Fred and maybe put in little captions.”
SELLING LIKE HOTCAKES
That was the beginning of everything for Rupert. After photocopying his work and offering it to different publications, he received some 80 “very positive” knockbacks. Finally, the cartoon was picked up by a magazine called Midweek. It ran for two years. Rupert got himself an agent, soon bagged a book deal, and a greetings card company who’d previously turned him down decided to publish his work. “Once the cards went into the shops in around 1990, they started selling like hotcakes,” says Rupert. “Since then, I’ve been a professional cartoonist full-time.”
As well as creating Fred, Rupert devised the popular series Off the Leash and On the Prowl, leading to sales of ten million greetings cards and several hundred thousand books. With more than one million followers across his social media platforms and having had work published in numerous newspapers, Rupert is every inch the accomplished creative cartoonist.
But his life changed in an instant in January 2024. A few weeks after experiencing what doctors described as “the smallest bleed on the brain they’d ever seen,” Rupert collapsed at home. Experiencing a much larger stroke this time, he ended up in hospital for five months. “I was constantly visited by my family and friends, so I got lots of support and lots of love,” he recalls. “But being in hospital for a long period of time is not fun. I was in the right place though – it was where I needed to be to get well.” The Fawcett family is eternally grateful to the NHS for the incredible care Rupert received at Charing Cross and Queen Mary’s Hospitals.
ON MY FEET
He still has physiotherapy at home, which is being privately funded by
generous donations from friends, fans and family (justgiving.com/ crowdfunding/fawcett-family). “Stroke affects the whole family, so having that support has been invaluable,” says Rupert.
Now 67, Rupert was very fit and healthy prior to his stroke – cycling his daughter to school everyday, running and doing yoga a few times a week. He had to learn to walk again, and feels mobility is his biggest hurdle. He misses how things used to be.
can continue drawing, and was even signing prints and sketching while in hospital.
DAY BY DAY
The good thing is, I can still work. My drawing hand is not affected
“I feel depressed quite a lot of the time. Life has changed: I can’t drive, my walking is restricted, and it’s quite easy for me to feel overwhelmed and get in a muddle with appointments and things.” Rupert has the support of his wife and children with both practical and emotional aspects.
“The good thing is,” smiles Rupert, “I can still work. My drawing hand is not affected. Which is very lucky.” He didn’t realise how much he used both hands for work – steadying and moving paper, using a ruler, sharpening pencils – until he lost the use of his left arm. He’s devised workarounds so he
Rupert is taking things day by day, although in the future he’d like to come up with a new project. “I enjoy the work that I do. But it would be nice to come up with an idea that came from the stroke. Or find a way of helping people, especially people who’ve had strokes,” Rupert ponders. To those people, he says: “Don’t isolate yourself, accept help, and believe you can get better.”
Emotionally, returning to drawing has been a help. “It gives me purpose,” he reveals. “Because I feel so impaired after the stroke. Drawing is the one thing that I can do which makes me feel good. I’m trying to accept my life has changed,” Rupert reflects.
“I’m in a different chapter – I don’t like it, but it is what it is, so I’ve got to get on with it and make the best of it.”
Rupert’s wife Amanda says: “Our whippet Daisy has been a godsend through all of this”
DON’T GIVE UP
We learn more about arthritis – the different forms of the condition, treatments, the support available, and what it’s like to live with
Persistent pain, tenderness, stiffness, popping joints, extreme fatigue, rashes, weight loss and even hair loss – arthritis can have a huge impact on the millions of people who live with it, and their families and loved ones.
Christie’s pain started in her fingers: “I woke up one morning and my finger was swollen,” she explains. “I thought I must have slept on it funny. After a month, I still couldn’t bend it.” Christie went to her doctor and was told it was soft tissue swelling. But soon after, she started to get pains in her feet. “Every time I walked, I had really bad heel pain,” she reveals. “My ankle started swelling up to the size of a balloon, but we kept putting it down to me working and being on my feet too much.”
AN OLD PERSON’S CONDITION?
“At that point,” admits Christie, “we still didn’t realise young people can get arthritis.” Struggling with costochondritis (inflammation of the cartilage that connects the ribs to the breastbone) and unable to walk – “It got to the point that I had to crawl around to get to the toilet” – Christie began to see a podiatrist but had no improvement. Forced by her pain to quit her job in retail, Christie visited her doctor again and was sent for a rheumatology appointment.
On arrival at the hospital, Christie recalls getting “funny looks” due to her age – just 24 at the time of her diagnosis, she’d always believed arthritis was an ‘older person’s
condition’. “When I met the consultant, he asked a couple of questions. And then he said, ‘Have you got psoriasis, by any chance?’. I’d had a little patch on my scalp for about eight years.”
After some checks, he diagnosed psoriatic arthritis, which came as a surprise to Christie and her family.
Osteoarthritis affects more than 10 million people in the UK
MSK CONDITIONS
There are many different forms of arthritis, including osteoarthritis (the most prevalent form, affecting more than 10 million people in the UK), rheumatoid arthritis, ankylosing spondylitis (which mainly affects the back), and palindromic rheumatism.
Around a third of the UK population lives with a musculoskeletal (MSK) condition – that’s some 20 million people struggling with the pain, fatigue, immobility, and reduced dexterity these conditions can cause.
Arthritis can be genetic; this is often the case with rheumatoid arthritis, which is an autoimmune disorder (where the body’s immune system attacks itself). Osteoarthritis can be caused by ageing, injury (which is why older sportspeople can develop osteoarthritis after repetitive overuse of specific joints), or by being overweight. It can even be caused by infections, or by certain medications (water tablets can increase the risk of gout, for example, which is a form of arthritis).
NO CURE
There’s no cure for arthritis, but there are treatments which help reduce pain, improve mobility and make daily life more manageable.
Christie currently takes a DMARD (disease-modifying anti-rheumatic drug). These medications reduce the activity of the immune system that can cause some types of arthritis. There are also biological therapies, and a wide range of pain-relieving medication can be prescribed too – from simple NSAIDs like ibuprofen, to steroid medication and even opioids.
Another treatment option for arthritis is surgery, which can include joint replacement, tendon repair or joint fusion to help stabilise or realign a joint. If needed, weight management or supportive devices (such as a cane or wrist splint) can make a difference too. Physical or occupational therapy can help many people – speak to your GP or pain management team to find out what’s available locally, or check out the ESCAPE-pain website to find out if this effective group rehabilitation programme offers classes near you.
Low impact exercise including swimming and walking can be beneficial for people with arthritis. There’s even anecdotal evidence to suggest that cold water swimming can help reduce inflammation and therefore relieve the pain caused by arthritis, while others prefer to use warmer therapies.
A BIG IMPACT
Christie has been able to return to her job in retail with a few adjustments, but she’s found that her friendships have changed since diagnosis. “A lot of my friends ruled me as too boring because I couldn’t go out,” she says. “They’d still be going out to bars and clubs, and I couldn’t do that.” Christie had a few friends stick by her, but explains: “A lot of people stopped bothering with me, which was really upsetting because that’s when I needed them the most – I was still the same person.”
She’s keen to share her story, working with charity Versus Arthritis to let the world know that young people get arthritis too. Her advice to people who are newly diagnosed? “Make sure you tell people about it, don’t be afraid to speak up,” she offers. “Don’t give up on anything, because it is going to get better for you.” She also emphasises the importance of having a supportive circle around you, because a diagnosis and living with chronic pain can impact your mental health.
“When they get diagnosed, a lot of people think ‘Why have I got this?’,” says Christie. “But it just happens. You have to do your best to deal with what you’ve got – and don’t be afraid to ask for support.”
Christie
Versus Arthritis campaigners
Leg bags to suit everyone’s lifestyle and individual needs, whether they are to be connected to a sheath, a
Bendi Bag ( specifically designed for wheelchair users)
Discreet Thigh Bag ( ideal for summer, sports, and even some short clothing)
Leg bag straps ( latex-free)
Comfort Bag ( 7cm shorter in length than many 750ml bags)
For more information or sample requests, please scan the QR code, visit the website or contact the helpline on: 01604 595 696 quoting ENABLE/M/A helpline@manfred-sauer.co.uk www.manfred-sauer.co.uk/nephsys.asp We
SMASHING IT
Youngest person in the UK to receive a cochlear implant, former rugby pro, Fury from TV’s Gladiators, and now author of an empowering children’s book... Is there anything Jodie Ounsley can’t do? Or anything that scares her? Enable’s Editor found out
The first time I interviewed Jodie Ounsley in April 2024, we laughed at how my Yorkshire accent became stronger during our conversation. This time around, Jodie – who’s from Dewsbury – remembered who I was, joked about our accents, and chatted with me like I was an old friend. That’s the sort of person Jodie is – generous, smart, funny and kind. Beyond her athletic prowess, it’s those attributes that have seen her become one of the most-loved Gladiators and a roaring success away from the rugby pitch. She’s also profoundly deaf – she was the first deaf female rugby player to play for a senior England side, and the world’s first ever deaf female rugby sevens international.
A GREAT ROLE MODEL
Since Jodie stepped back from rugby last year, a world of opportunities has opened up. Her debut book – Keep Smashing It: Be Strong, Be Brave, Be Confident! – is aimed at children aged eight upwards. “It’s a good thing for
kids to see successful people and learn they go through the same challenges as everyone else,” explains Jodie. “The book is to help children feel empowered, be brave and do things that scare them, but also to learn it’s ok to have struggles in life.”
The idea for a book started during lockdown, when Jodie was reading stories online to young rugby players. “It was definitely a lightbulb moment,” she reveals. “I’ve always had a message to get out there, and I realised books are so powerful for kids.”
IN AT THE DEEP END
The book’s title is Keep Smashing It, so I ask Jodie when she’s had to really push herself and keep smashing it. She says: “One time I really felt out of my comfort zone was presenting the Paralympics. I got thrown in at the deep end, going on live TV and covering post-race interviews for athletics.”
The production team worked with Jodie to manage the challenges her deafness presented. She was unable to wear an earpiece, so used headphones instead. Jodie also had a producer stand alongside her to give visual cues. “It was a lot to take on, but in the best way possible,” she admits. “I thought ‘I’m going to make it work’.”
Jodie advises anyone going through hard things to believe in themselves. “It’s easier said than done, isn’t it?” she smiles. If young Jodie could read Keep Smashing It, what would she love most about the book? “I’d appreciate seeing someone who’s proud to be a badass
The book is to help children feel empowered, be brave and do things that scare them
in a male-dominated sport,” she says, “and a deaf sportsperson too.”
With the release of the book, Jodie will tour schools to share her story. “I’m really excited for that,” she enthuses. “I’ve always had that little bit of fire in me, to want to help kids. To do it through my book is going to be really heartwarming.”
FOR MORE INFORMATION
Keep Smashing It: Be Strong, Be Brave, Be Confident! by Jodie Ounsley and co-written with Becky Grey is published with Macmillan Children’s Books on 13 March (RRP £9.99) and available to order on Amazon. Follow Jodie: instagram.com/jodieounsley
Adaptable living in Southwark
A collection of stylish wheelchair adaptable apartments available with Shared Ownership*, designed to make living in London the best it can be.
With great layout options that accommodate wheelchair users, rest assured you will find the perfect home at Glengall Rise.
Our accessible homes offer:
• Step-free access, with wider doors and hallways
• Space to charge and store two wheelchairs
• Lower switches and higher sockets
• Larger bedrooms to enable wheelchair access
If you reserve your home offplan, you may be able to have an adjustable kitchen** installed to suit your needs, ready for when you move in.
Bathrooms are designed with plumbing and drainage fitted so that a level access shower can be installed if required.
Tim Rushby-Smith
Originally from London, writer, artist and paraplegic Tim Rushby-Smith is based in Australia. He is the author of two books: Looking Up and Beyond the Break.
Follow Tim on X @trushbys
What does representation look like?
Iwear many different hats.
For the next 400 words or so, I don the chapeau of ‘the writer’, and I get to share my thoughts with you, dear reader.
On other occasions, I am the ‘peer trainer’, sharing my journey and the experiences of others to help people build an idea of the future they would like, post-spinal cord injury.
Then there is the ‘visual artist’, my first passion (I even went to art school back in the day).
CHOOSE YOUR FOCUS
In many ways, the peer trainer role is the easiest, as the subject matter is predetermined by the role. But when I write, or when I make art, I have to choose the story I wish to tell. And when disabled artists and writers are underrepresented, the question is: Should my work focus on my experience of disability?
I am very familiar with the adage ‘write
what you know’. I have done this a lot. And when one looks at the works of artists like Frida Kahlo or Vincent van Gogh, the intimacy which comes from their honest representations of their experiences has a visceral impact (let’s be clear: the only way in which I could ever be compared to these titans is that I have been known to wield a paintbrush on occasion). But there are also many artists with disability who chose not to share that particular aspect of their lives.
HUMAN BEINGS
We need to be seen, and there are often initiatives that seek to make this happen. But if artists with disabilities only receive recognition when they are describing their experience of disability, then we risk being reduced to our disability. Many of the challenges we face every day are caused by a failure to see us as human beings like everyone else.
“Do I contradict myself? Very well then I contradict myself, (I am large, I contain multitudes)”
Walt Whitman (who also wrote about his disability)
Tim Rushby-Smith ponders the responsibility disabled artists should have when it comes to representing their disability
I have produced work that reflects my personal journey and the struggles associated with impaired mobility, chronic pain, and even the awkwardness I have encountered socially. But my work mostly looks outward, focussed on issues associated with the natural world.
Yet I still feel a tension, as if focussing on my ‘lived experience’ is somehow more valid, more worthy. As if I have an obligation to be more visible as a disabled artist.
As 24% of the population, there is overwhelming evidence that disabled people are underrepresented in the arts, just as they are in senior roles in both the public and private sector, in the media, and in Government… The list is long.
The outcome we must strive for is one where such iniquities are resolved, and disability becomes irrelevant.
Although we can still reflect our experience.
GET TO GRIPS WITH YOUR WHEELCHAIR
Getting on a bus or train, visiting your local cinema, playing with your children or grandchildren in the park, or carrying a cup of tea from the kitchen to your living room – these are just some of the skills you learn with Back Up’s Wheelchair Skills App.
Scan the QR code and download Back Up’s Wheelchair Skills App today.
The future of independence
For many years, technology has played a role in shaping how disabled people live, work, and interact with the world. From the earliest prosthetic limbs crafted from wood and leather in ancient Egypt, to the distribution of Invacars in the UK from 1948 until the 1970s, there’s a long history of research and innovation when it comes to making life more accessible for disabled people.
And now, life-changing advances in Artificial Intelligence (AI), robotics, app development, and product design are helping enhance independence, improve access to employment and education, and make leisure and social activities more inclusive.
ALL-SEEING EYES
In recent years, AI has made a huge impact on accessibility for disabled
From AI to robotics and useful apps – advanced technology is rapidly changing our way of life
people. Barely 20 years ago, speechto-text software was slow and clunky, requiring hours of monotonous training to get used to the user’s voice. This tech has really evolved, enabling visually impaired users to interact with their environment in real time.
The smartphone app Be My Eyes connects blind and visually impaired users with sighted volunteers, who provide real-time assistance via video
call. Be My Eyes now offers an AI-driven virtual assistant – Be My AI – to provide instant descriptions of images and surroundings. Not sure if the food can you’re holding is vegetable soup or your dog’s dinner? Snap a photo of it and Be My AI can tell you straightaway.
CLONING?
When it comes to text-to-speech, developments like Speechify use AI to convert written text into natural-sounding speech, to help make processing information more manageable – ideal for people who are neurodivergent or who have learning disabilities. The app even offers AI voice cloning, whereby you can record a sample of yourself speaking and then generate an AI clone of your voice, saying whatever you want.
Recent developments by Apple include on-device machine learning that enables iOS devices to ‘Listen for Atypical Speech’, to enhance voice recognition for people with conditions that affect speech, like Motor Neurone Disease or cerebral palsy. Apple devices on iOS 18 now also offer Eye Tracking, which is powered by AI, takes seconds to set up, and lets users navigate apps and controls on their iPad and iPhone with just their eyes.
Meanwhile, people with hearing loss can access speech-to-text technology via devices like smart glasses, which allow wearers to follow conversations. They work by using cloud-based transcription services and project spoken dialogue as in-lens captions in real time.
SELF-DRIVING WHEELCHAIRS
But it’s not all about words. AI is being used to improve mobility too, with Adventus Robotics developing an autonomous self-driving wheelchair using special sensors, cameras and a user interface to provide increased independence. Described as intuitive and simple to use, the system is able to map unique environments and has been designed to avoid motion sickness, which is a common problem for autonomous vehicles.
The CoMoveIT Smart is an intelligent steering system for people with complex movement disorders. It mounts on a powered wheelchair, and the user
controls the wheelchair by pressing their head against one of three pads. AI is used to filter out any involuntary movements, like muscle jerks caused by cerebral palsy, to deliver a smooth ride, and the technology can also be used to control devices like gaming consoles and TVs.
OK COMPUTER
Although they sound like something from science fiction, brain-computer interfaces are already in use, thanks to advances like the NeuroNode wireless wearable sensor by Control Bionics. This can be worn anywhere on the body and uses bioelectric signals from an individual’s brain, or 3D spatial awareness, to complete tasks that would otherwise need a keyboard, mouse, joystick or touchscreen – such as manoeuvring a wheelchair.
The company has also developed Obi, a robotic arm. This device mimics the functionality of a human arm during eating to enable independent dining for people with upper limb conditions. Obi can be controlled independently by customisable switches or via the NeuroNode.
Looking further into the future, the use of exoskeletons (robot-powered wearable devices which can cover specific body parts or the full body) seems set to increase.
Wandercraft’s latest personal exoskeleton prototype was showcased during the 2024 Paralympic Torch Relay by Thibault Simon, brother of Wandercraft co-founder Nicolas Simon, and inspiration for the device. At the time, he said: “Walking with the flame today, without any pain or difficulties, was so easy. The goal is for it to help anyone living with a mobility disability.” The exoskeleton uses AI to mimic human movement; it has a self-
balancing feature and gives users the ability to stand and walk.
ETHICAL DILEMMA
Of course, lots of these devices are very expensive and remain inaccessible to many disabled people. Plus of course, one’s moral compass starts spinning wildly when considering the ethical dilemma around being able to “walk again” – medical versus social model of disability, anyone…?
But all the same, the advance of AI and the development of intuitive, inclusive devices represents a major breakthrough in mobility technology. These developments offer hope for greater independence in the future, especially with the mainstreaming of AI-enhanced inclusive tech in everyday devices, such as Apple iPhones. It seems there’s been a shift, with more companies now considering accessibility at the design stage, and working alongside disabled people to create products and services that really meet their needs.
From AI-powered assistants to robotic mobility aids, the future’s not just digital – it’s inclusive.
Surrounded by 86 acres of parkland with supermarkets, coffee shops and schools right on your doorstep! Excellent connectivity from Kidbrooke station to London Bridge in just 16 minutes*. A brand new collection of 2 and 3 bed wheelchair adaptable apartments available through shared ownership in the Royal Borough of Greenwich.
Play your part in society
Shirley Proctor is a local Labour councillor in Lostock & Barton Ward, part of Trafford Council. Shirley, who was born with Poland’s Syndrome and has a range of disabilities including scoliosis, ME, cervical stenosis, arthritis and spondylosis, shares her experiences of being a councillor, and explains why she’d love to see more disabled people put themselves forward for election
QWhat inspired you to become a local councillor, and what does your role involve on a day-to-day basis?
A: I became Christian while at university, and realised I needed to play a part in society. I joined CND, and through this I was encouraged to join The Labour Party. The rest is history! I was the first disabled and first woman delegate to Party Conference in 1988. Daily, I receive between 20 to 30 emails, so I start by reviewing those. I also sit on two committees – Planning and Children’s Services Scrutiny committees. They involve quite a bit of work. And every month we have Labour Group where we meet to discuss plans, then every other month we have full Council, which is an opportunity to steer the direction of the council.
Q: As a disabled councillor, have you faced any barriers in your role?
A: The first barrier was in my head – I was concerned how people would perceive me when I was out campaigning – I use a mobility scooter and didn’t know how voters would react. But it was amazing – people’s reactions were so positive! The next barrier was actually canvassing, and being able to reach people’s front doors due to
steps or gravel, so whoever is leading the canvassing session checks with me where I can reach.
Once elected, the biggest physical barrier was accessing our Town Hall, as the building was not accessible. The Leader asked me how I found getting around and, when I said I couldn’t, he immediately put plans into place to make the Town Hall accessible.
This has positively impacted so many of our staff – now, anyone who needs it can have a zapper that unlocks and opens doors automatically. Blue Badge spaces were also added to the staff car park, under cover.
Most barriers I’ve faced have been down to people making assumptions that they knew what was best for me –the old ‘does he take sugar?’ frame of mind – or people trying to hold meetings in inaccessible venues. They only make that mistake once.
Q: What kind of support is available to people considering becoming a local councillor who might have a disability?
A: If you’re a member of a political party, talk to your local party and ask what support is available. The ‘Be a Councillor’ website has lots of information as well as details of online and in person information events which
Most barriers I’ve faced have been down to people making assumptions. They only make that mistake once
give a good idea about the role.
Q: What advice would you give to other disabled people who are interested in putting themselves forward for election to their local council?
A: Do it! We need councillors to truly reflect the population we serve, otherwise disabled people’s voices will be marginalised at best, and – at worst –be silenced.
FOR MORE INFORMATION
To discover more about becoming a councillor, visit bit.ly/be_a_cllr
Be a Councillor – A Guide for Disabled People: local.gov.uk/be-councillor/resources/improving-accesslocal-government-elected-office-disabled-people
Councillor Shirley Proctor (L, wearing a pink blazer) talks to Local Government Association (LGA) President Baroness Tanni Grey-Thompson, DBE, DL (R, wearing a blue blazer and scarf)
Disabled people share their experiences of complementary therapies and how they can enhance quality of life, including cold water immersion, reiki and reflexology
Kirsty jokes that she plays “disability bingo, because I collect them all,” she laughs. “But a lot of people in our situation tend to have comorbidities. I have fibromyalgia, psoriatic arthritis, PTSD, carpal tunnel, migraine and I had cataracts as well.”
After carrying out research, one of the first options Kirsty tried was hyperbaric oxygen therapy, which she accessed via a charity. She finds it helps with ‘fibro fatigue’. “It’s not even that I feel amazing after it,” she says. “I just sleep better, and I really notice if I’ve not had it.”
“Out of all the things I do,” says Kirsty, “cold water is probably the most accessible. If you’d told me a few years ago that I’d do this regularly for fun, I would’ve thought you were off your head.” So what benefits does she experience from the cold water? “The pain relief I get when I’m in the water is amazing – and for hours afterwards.” There’s also the effect on her mental health: “The clarity and quietness of mind – I call it the exhilarating calm.”
MORE MANAGEABLE
Disability advocate and artist Sanah has Spinal Muscular Atrophy, endometriosis and psoriasis. She says: “I’m a huge believer in alternative therapies. They won’t make your chronic illnesses disappear, but they may alleviate symptoms to make things more manageable.
“I’ve used Bowen Fascia Release Technique,” she explains. “This is soft tissue and fascia manipulation that reduces pain and tension and improves mobility. I love this treatment. I also do a cold shower blast for 30 seconds every day – it helps me feel
The clarity and quietness of mind – I call it the exhilarating calm
Kirsty
alive and awake, and decreases my inflammation. It’s the hardest thing to do at the end of your warm shower but so worth it… and it’s free!” Find Sanah on Instagram and TikTok via @FreeWheelingSanah
MUSCLE MEMORY
Alex enjoys cold water immersion and explains: “I started it for my anxiety –I’d been having panic attacks and was in burnout. My (now) husband was training for open water swims in a local lake in Yorkshire, so I got a wetsuit to try it out.
“When we moved to Scotland, I’d got out of practice but thought I’d try again without the wetsuit! I found it didn’t just help with anxiety – your body’s reaction to cold water creates the same symptoms as a panic attack, so when you learn to breathe through the cold you gain muscle memory for overcoming panic – but it also really helped me manage my pain and bloating from endometriosis. I have no idea of the science, but I really notice when I go without it.”
Alex takes to the water
PEACE AND CALM
Abi was first introduced to reiki – a Japanese healing technique which uses gentle touch to promote wellbeing and relaxation – when her dad had cancer. She shares: “A cancer support centre offered free complementary therapies for patients and their families. At the time I had an undiagnosed autism spectrum condition and had always suffered with anxiety. However, after receiving an hour’s reiki treatment, the stress within my mind and body was cleared and I felt completely at peace and calm.”
Abi went on to complete Level 1 and 2 reiki training through the cancer support centre. This means she can transfer healing energy to help others or use it on herself. She explains: “Alternative therapies can complement management strategies for neurodiverse conditions as they’re non-intrusive, and I use reiki on myself
Science and safety
Many complementary therapies have been used for thousands of years and have plenty of anecdotal evidence showing that they work for some people. The science doesn’t always stack up though, so it’s vital to do your own research to investigate what might work for you, and what’s accessible.
For instance, research on cold water immersion is in its infancy, but limited studies have shown it may help reduce inflammation, joint pain and symptoms of depression.
We’ve used reiki when he’s been having seizures, and it brings immediate calm
Jessica
for the relief of symptoms of autism and ADHD. It can calm an overactive mind, help sensory overload, and allow more restorative sleep.”
NATURAL APPROACHES
Jessica’s 13-year-old son has cerebral palsy and epilepsy. He also uses a wheelchair. “We’ve always tried natural approaches first,” she says. Her son has benefitted from massage,
However, it can also come with risks so – as with all complementary therapies – seek the advice of your GP or consultant before trying anything new.
When it comes to paying for this support, a few options (like acupuncture) may be funded through the NHS. Some charities provide therapies for free or a donation, while other therapies can be covered via private healthcare programmes (for example through employment) or your own funds.
reflexology, reiki, breathwork and sound baths.
“A lot of it comes down to the central nervous system and getting out of fight or flight, and moving into a state of what they call rest and digest,” she reveals. “We’ve used reiki when he’s been having seizures, and it brings immediate calm – he’ll yawn, his body completely relaxes and he’ll fall into a deep, restful sleep. With reflexology, he’ll often sleep very deeply the night after he’s had it.”
“If you’re anecdotally trying things and you’re finding they work, then that’s science with a small ‘s’. That’s evidence it’s working – as a parent, that’s all the evidence I need.”
Sanah
Kirsty receives hyperbaric oxygen therapy
Kirsty enjoys cold water immersion
2025/26
Samantha Renke
Samantha is a broadcaster, actress, disability activist and the author of ‘You Are the Best Thing Since Sliced Bread’. Follow Samantha on Instagram @samantharenke
In my feelings
Samantha Renke shares her experiences around the anger she often feels as a Disabled person, and how she manages those emotions
It’s ok to feel angry as a Disabled person sometimes. Life for anyone is tough. But throw health issues and ignorance into the mix, and life is undoubtedly much harsher.
PUT UP, SHUT UP
Despite this apparent struggle, I often get the feeling that Disabled people are (to a degree) expected to put up and shut up!
Gratitude guilt is a real thing – we’re almost programmed to be grateful for the token love, acceptance or accommodations that are thrown our way, instead of being encouraged to demand more, fight for our agency and condemn disability discrimination.
Yet, when we do advocate for our rights and our safety, we can be gaslit. The phrase, ‘We’ve got a ramp’, followed by a beaming smile – as though this should make us feel so included and grateful – is something I’m sure many of you have experienced. We daren’t point out legal requirements or duties, in case we’re seen as being ungrateful.
SCARY
As a Disabled adult, I never really feel safe or secure. There’s always uncertainty. We’re beholden to pre-Disabled people, who have no idea what our lives look and feel like. It’s so scary.
In the first week of 2025, I had a PA quit without notice or explanation. Then, after enquiring about a holiday destination, I received an email that read: ‘Unfortunately, none of our cabins are wheelchair friendly at present –this is something we’d love to make happen in the future.’ Additionally, after enquiring about the accessibility of beauty treatments, a salon worker nonchalantly told me: ‘None of our treatment rooms are on the ground floor’.
EMBRACE YOUR ANGER
So yes, sometimes I get so angry at the world. Over the years, instead of hiding this anger, I’ve embraced it.
I’ve cried, I’ve written complaints, I’ve offloaded to my Disabled friends, and I’ve set boundaries by saying: ‘Actually, that’s really upset me,’ or ‘Can you clarify what you mean?’.
However... here comes a ‘but’. But if you’re going to feel and embrace these raw, unfiltered emotions, it’s important you safeguard your wellbeing, particularly your mental health.
I allowed my anger at the injustices I encountered to warp my view on life
Have your ‘violin’ days, cry and offload. But understand that anger can spiral into resentment, hopelessness, envy and bitterness – none of which will make you feel better or more empowered in the long-term.
I was once this person; I allowed my anger at the injustices I encountered to warp my view on life and what really mattered. I have so much to be grateful for; so much joy. Don’t lose sight of that. Now I give myself a cut-off point. Anger has its time and place… Just don’t let it spill out. Now I turn anger into something proactive. We can’t change the ableist world overnight, but we can change how we interact with it.
HOBBY HOUR
Thanks to inclusive clubs, adaptive equipment and supportive communities, hobbies are more accessible than ever
Finding a hobby you like provides a great way to relax, socialise and develop new skills. They’re more than just a way to pass the time – many offer a range of benefits for both your mental and physical wellbeing. Whether it’s painting, playing an instrument, gardening or sport, hobbies can often provide a real sense of purpose and feeling of fulfilment.
ADAPTIVE SPORT
There are more than 800 recognised sports worldwide and many can be made accessible with the right adaptations. It’s often said that there’s a sport out there for everyone, and the charity Everybody Moves can help you find the right one for you. From basketball or swimming, to rugby or archery, you’ll be spoilt for choice. Head to their website to find out what’s on offer in your local area.
CREATIVE PURSUITS
Getting in touch with your artistic, musical or crafty side can help you express yourself. It’s also a healthy outlet for any stress, anxiety or pent-
up emotions that have been weighing you down. The UK is home to a range of inclusive arts programmes, and a number of charities, local councils and colleges offer accessible craft and creative courses in areas such as pottery, painting, drama and creative writing workshops. You never know, you could be the next Jane Austen, Clarice Cliff or Banksy.
THE GREAT OUTDOORS
Spring is a wonderful time to immerse yourself in nature and garden your way to better health. Gardening offers a relaxing and therapeutic hobby that can be easily adapted using raised beds and ergonomic tools. The charity Thrive operates specialised gardening programmes for disabled people in the UK. They can also offer advice on how you can enjoy your own garden, and have recently released an app that allows you to create a personalised gardening and nature wellbeing plan. If you don’t fancy getting greenfingered, you can enjoy the fresh air and changing seasons thanks to rambling. Disabled Ramblers is a small charity which works to make the
countryside more accessible to people with limited mobility. Operating across England and Wales, they campaign for the removal of man-made barriers such as steps and stiles. They also run up to 30 rambles per year between April and October, with rambles in April and May including Stanmer Park in Brighton and Sutton Bank in Yorkshire, both suitable for walkers and mobility scooter users.
HIGH-TECH HOBBIES
Games change lives – especially since people who have mobility and/or communication challenges often seek comfort in online worlds and communities to escape the inaccessibility of the real world. Organisations like SpecialEffect provide adaptive gaming controls so everyone can enjoy video games. They’ve even developed free eyecontrol software, EyeMine, that enables you to play Minecraft without a keyboard or mouse. If gaming isn’t your thing, there are plenty of accessible online courses and coding clubs for those eager to learn more or expand their tech skills.
Beekeeping
As the Chair of the Fareham and District Beekeepers Association, Penny has a deep passion for beekeeping. Penny, who is blind, first got involved after being inspired by her husband who is an experienced beekeeper. She eventually found her own way to enjoy the hobby.
“I don’t go near the hives when they’re full, but I help in many other ways,” explains Penny. She assists in extracting honey, filtering out debris, and even making mead. As a person without sight, her other senses are heightened which helps her get the last drops of honey out of the extractor using her hands. “I cook almost exclusively with honey, and I love experimenting with different recipes too.”
Penny, who holds an OBE “For services to Disabled and Disadvantaged People”, is passionate about making beekeeping more accessible. She believes new hive lifting equipment in development at Lancaster University will help disabled beekeepers manage hives more easily.
“Beekeeping is such a rewarding hobby and, with the right adaptations, more disabled people can get involved,” hopes Penny. Learn more at pennymelvillebrown.com
Martial Arts
12-year-old Isobel Johnson has been practising martial arts for years, just like her dad and sister. As a wheelchair user with limited mobility in her legs (Isobel was born with Arthrogryposis Multiplex Congenita), she has adapted traditional movements to suit her needs.
“I love learning new techniques,” smiles Isobel. “If I can’t move my legs in a certain way, I work with my partner to adjust the technique so I can still perform it.”
Her hard work and dedication have earned her a black belt. She explains: “Some people don’t expect someone in a wheelchair to do martial arts, but there’s always a way to do something if you want to. I always say, just try. If you keep working at it, you’ll find a way.”
Isobel has also taken on staff spinning, a complex skill which requires dexterity and coordination. Though it was initially difficult, she persisted: “At first, I kept dropping the staff or hitting myself with it but, with practice, I got better.” Now she’s preparing for her second-degree black belt and hopes to teach younger students in the future.
In the UK, where snow is scarce, mountain trails are rugged, and many beaches remain largely inaccessible, Para Nordic skier Scott Meenagh and adaptive surfer Zoe Smith tell Kate Stevenson how they’re proving that extreme sports are for everyone
Most extreme sports take place outdoors because they involve natural elements that add unpredictability and challenge. These elements, like wind or snow, add thrill to the competition, but make outdoorbased sports harder for disabled people to participate in, especially compared to indoor sports which take place in spaces designed for accessibility. “It’s much more difficult to change natural terrain – like a mountain for an adaptive biking athlete,” explains Zoe, who is a below-knee amputee.
PERSONAL CHALLENGES
As an adaptive surfer, she faces her own set of challenges when it comes to training and competing. The biggest? Accessing the beach: “90% of our beaches are inaccessible,” clarifies Zoe. “The humiliation that comes with crawling along the beach is something society needs to address. People don’t understand that simply just getting to the water is a huge battle.”
Scott, who lost both his legs to an IED blast in Afghanistan, gets equally frustrated with his own sport at times.
He loves Para Nordic skiing, but most trails aren’t fit for sit-skis, and moving around the mountains can be difficult. He struggles with the cold at times, and says: “Keeping my stumps warm is a huge challenge. I’ve had to design a custom sit-ski with a cockpit to protect against windburn at high speeds.”
Scott’s main problem is the lack of accessibility to winter sports infrastructure. “The UK doesn’t have reliable winter conditions, so I have to travel to train, and it’s incredibly expensive,” he adds. “I’ve turned to roller skiing to train. You don’t need snow, just a path, a trail or a road.”
ADAPTING TO THE ELEMENTS
These alternatives aren’t perfect, but Scott and Zoe are making them work by becoming inventive – a skill many Enable readers will be familiar with. Of course, innovation can change everything.
Zoe is still looking for the perfect prosthetic for surfing – preferably one that doesn’t rust or erode over time. “The prosthetic industry doesn’t recognise the need for people with limb loss to access water spaces,” she explains, “even though we know how crucial ‘blue health’ [the psychological benefits of being in water] is.”
To get a functional surfing prosthetic, Zoe’s had to seek private funding. “The cost of a water leg is about £11,000,” she says, shaking her head. Even with modifications, the
They stop and stare. They don’t think disabled people do stuff like this
equipment isn’t perfect: “I’ve had to drill holes in the foot shell to let water drain out, and duct tape my wetsuit to my leg to stop water flushing through. Everything is a workaround.”
Scott’s sport is no different – sitskis are expensive, and the customdesigned smart clothing that keeps him warm isn’t cheap either.
FUNDING, FACILITIES AND FAIRNESS
Even with these obstacles, both athletes are fiercely committed to their sports. But they note that, while their governing sports bodies – GB Snowsport (gbsnowsport.com) and Surfing England (surfingengland. org) – are making strides to level the playing field, more needs to be done at a systemic level.
Scott is unhappy with the lack of grassroots investment. “The funding we get is based on our potential to win medals at the Paralympic Games,” he tells me. “But we can’t win medals at
the highest level if we don’t grow the sport at the lowest level too.”
Zoe is passionate about making Britain’s shores more accessible in general: “We need tracks on beaches, beach wheelchairs, and changing facilities for disabled people,” she stresses. “Even where there are tracks, they don’t reach the water. We’re expected to be carried or crawl.”
THE GREAT OUTDOORS
Both athletes believe that visibility could be key to making more of our outdoor spaces accessible. “People don’t expect to see a disabled person shredding waves, so they stop and stare. They don’t think disabled people do stuff like this,” shrugs Zoe. “That’s the problem: we’re not seen. And if you’re not seen, people assume you don’t exist.”
Scott echoes this sentiment and hopes more disabled people can experience the liberty he feels on the slopes. “Nordic skiing has taken me
to places I never thought I’d reach. As a double amputee, I can explore landscapes on skis that I could never dream of accessing on prosthetics. That’s the magic of adaptive sports.”
FROM THE SLOPES TO THE WAVES
Ultimately, their mission is about more than sport. It’s about proving that the outdoors, and adventure, belong to everyone.
“For me,” Scott admits, “this sport isn’t just about competition – it’s about freedom. And everyone deserves that.”
Zoe agrees: “The sea belongs to all of us. It’s time we made sure everyone can reach it.”
Scott
WIN A RING VIDEO DOORBELL
We’re giving Enable readers the chance to win a Ring video doorbell worth nearly £130
If you’re looking for added security and peace of mind at home, this issue’s competition is perfect for you. Our prize is a battery Video Doorbell and Chime by Ring.
Featuring the latest in smart home security, the Ring doorbell detects motion when people come on to your property, lets you receive notifications on your phone, tablet or PC, and enables you to see, hear and speak to visitors in real time from anywhere.
Easy to install and charge, the Ring Battery Video Doorbell offers an expanded Head-To-Toe View, which allows you to check on visitors and packages at your doorstep and, with Person and Package Alerts, you’ll know exactly when they arrive. The prize also includes a Chime (2nd Gen) so you can hear notifications around your home whenever someone presses your Video Doorbell, or when motion is detected.
There’s no need for any subscription (unless you want to store footage), and features such as instant notifications, Live View and Two-Way Talk are available out of the box and for free on all Ring devices.
HOW TO ENTER
Simply send us your name, contact details and where you picked up your copy of Enable magazine. All entries must be received by Monday 24 March 2025. Good luck! BY EMAIL competitions@dcpublishing.co.uk quoting Ring 2025
TERMS AND CONDITIONS: All entries must be received by Monday 24 March 2025. The prize is a Ring Ba ery Video Doorbell and Chime (2nd Gen) by Ring, which will be sent to the winner. The prize is non-transferable, non-refundable, there is no cash alternative and it cannot be sold to another party. The contents of the prize may differ from the images and descriptions included here. One entry per household. The publisher’s decision is final. If you do not wish to receive further communications from Enable magazine, include ‘opt-out’ in your entry. This competition is not being run in conjunction with Ring.
Set in 3 acre gardens on a quiet country lane on the edge of the Exmoor National Park yet within 1 mile of shops, pubs and restaurants with the beach and promenade beyond. Dog friendly. Sleeping for 2 to 10, Games room, free wifi, laundry room, children’s swings.
Three disabled access single storey lodges with wet rooms, shower wheelchairs, ramped access and adjacent parking.
702789
A SCAM-DEMIC
Fraud accounts for more than 40% of all crime in England and Wales. Kate Stevenson speaks to scam expert Nick Stapleton about fraud prevention, and discovers why disabled people may be at greater risk
Last year, the UK lost £11.4 billion to scams, up £4 billion from the year before. Fraud has become one of the country’s most common crimes, and scammers are continually reinventing their cons.
THE DIGITAL WORLD
One in five disabled people have been targeted by scams, but expert Nick Stapleton says it sounds scarier than it actually is: “It’s not that scammers are deliberately targeting disabled people,” he explains, “it’s that disabled people often spend more time in spaces where scams happen, whether that’s on social media, through online shopping, or email communication. The more time you spend online, the more likely you’ll encounter a scammer.”
“The online world is simply not a safe place,” adds Nick. “A lot of people assume that, because they’re on social media or a reputable site, there’s some
Nick Stapleton
sort of umbrella protection, but that’s just not true.”
Scammers operate in spaces where they can take advantage of people and face very little risk. Right now, there aren’t enough resources or advanced software to track them all down. Nick says: “The conviction rate for fraud in the UK is about 0.1% – for every 1,000 scams, only one person faces justice.”
COMMON CONS
While scams can target everyone, Nick reveals that sometimes con artists will tailor their tactics to specific groups. He warns those using digital spaces for shopping, socialising and banking to stay vigilant, especially if they receive any benefits.
“There are scammers who pose as government officials, claiming they need to review a person’s disability benefits,” reveals Nick. “The victim thinks they’re answering routine questions to keep their benefits or reassess their eligibility. In reality, the scammer is building a profile on them and collecting personal information, which they can sell to other fraudsters.”
But this is only step one. “Weeks later, the victim will get a call from someone claiming to be from their bank’s fraud department,” continues Nick. “Because the scammer already has so much personal data, like account details, they can create an incredibly convincing script: ‘Miss Stevenson, I’m calling to speak to you about your account ending in ****, which I believe you receive your benefits to. Is that correct?’ From there, they’ll get the remaining information they need to access your accounts.”
But benefit scams aren’t the only danger. With ‘carpet bombing’ strategies, fraudsters send out mass scam messages in hopes of catching someone off guard. “The vast majority of scams are out there to target us all.”
I’ve spoken to people who have lost thousands and told no one because they’re so morti ed
RED FLAGS
So, what should you look out for?
Scams can take many forms, but Nick’s golden rule for spotting them is to “assume everything is a scam until proven otherwise.”
Any unexpected phone call, text, email, or direct message should be treated with suspicion. “If someone calls claiming to be from your bank or a government agency, hang up,” he advises. “Then call the organisation back using a number you find yourself –
never use the one they give you.”
Additional red flags to consider include urgency and pressure: “Scammers will try to create a sense of panic. They’ll tell you your benefits will stop tomorrow if you don’t act now, or that your bank account is about to be emptied,” explains Nick. “If something is truly urgent, you should be able to verify it from an official source.”
Requests for personal or financial information are also dodgy: “Legitimate organisations rarely ask for this sort of data over the phone or via email. If someone asks for it, assume it’s a scam.”
And if you’re informed of an unexpected prize or surprising refund? “If it sounds too good to be true, it probably is.”
THE HIDDEN COST
Beyond the financial losses, scams leave deep emotional scars, and many victims experience depression and anxiety. “The hidden cost of scams is immense,” stresses Nick. “Victims feel
embarrassed and ashamed, which stops them from reporting fraud or seeking help. I’ve spoken to people who have lost thousands and told no one because they’re so mortified. That secrecy only benefits scammers.”
VICTIM-BLAMING
He explains that the victim-blaming culture surrounding scams only makes fraud targets feel worse. “If someone is burgled, nobody says, ‘How could you be so stupid?’ But if you lose money to a scam, people question your intelligence.” Nick shakes his head in disbelief. “That mindset needs to change. The blame belongs to the scammer, not the victim.”
The best way to avoid scammers’ tricks and traps is by staying informed of the latest strategies, talking openly by sharing our experiences, and looking out for one another. “Fraudsters rely on secrecy and shame. But if we talk about scams and make scam awareness a normal part of the conversation, we take their power away.”
WHAT TO DO IF YOU’VE BEEN SCAMMED: NICK’S TIPS
“First, take a deep breath. It’s horrible, but it’s not the end of the world,” reassures Nick. If you or someone you know falls victim to a scam, immediate action is crucial:
Report it to the bank: “Many banks will reimburse victims, but you have to report it quickly.”
Contact Action Fraud: “Even if they can’t recover your money, reporting helps build a case against scammers.”
Create a timeline of events: “Write down everything you remember: who called, what they said, what you did. This is vital when speaking to your bank or the authorities.”
Seek emotional support: “You’re not alone. Speak to someone you trust. There’s no shame in being scammed.”
Specialist Medical Travel Insurance
ALL CHANGE… OR LOOSE CHANGE?
With the new tax year beginning in April, we round up what’s happening with disability benefits
The 6th of April – not a particularly monumental day for many people, but it marks the start of the new 2025-26 tax year. This also means changes to benefit amounts, which will impact disabled people and carers across the UK.
UP WITH INFLATION
The headline news is the increase of social security benefits like Disability Living Allowance, Employment and Support Allowance, Incapacity Benefit and Universal Credit. These will go up by 1.7%, in line with inflation. However, according to a Resolution Foundation briefing, the changes will actually amount to a net welfare cut of £3.9 billion in 2029/2030.
Those in work will get a boost, with changes to the National Minimum Wage expected to impact 3.5 million low-paid workers. From the 1st of April, National Minimum Wage will increase by 6% for people aged 21 and over, who’ll earn a minimum of £12.21 per hour. 18 to 20-year-olds will see a 16% increase.
FIT TO WORK?
The Autumn Budget saw the announcement of reforms to the Work Capability Assessment (WCA), in line with the previous government’s proposals to tighten up the system in a bid to save money. The controversial test is used to assess an individual’s fitness to work.
Responding to plans to change the WCA criteria, Jonathan Andrew of mental health charity Rethink said: “We fully understand the difficult economic
Carers will be able to earn more and still be eligible for Carer’s Allowance
situation the government finds itself in. However, we remain steadfast in our view that this is the wrong choice, which will not help with the underlying problem of economic inactivity and sickness levels.”
CHANGES FOR CARERS
The new tax year brings some better news for carers – Carer’s Allowance is increasing in line with inflation, from £81.90 to £83.29 per week. In a big change, the benefit’s weekly earnings limit is being increased from £151 to £196. The government says this means 60,000 more carers will become eligible for the benefit. From April, you’ll be able to earn £45 more per week from employment or selfemployment and still be eligible for Carer’s Allowance.
However, moneysavingexpert. com’s Molly Greeves explained: “Earn a penny over this and you’ll still see the entire benefit clawed back.” This ‘cliff-edge’ is especially important to consider alongside the rise of the National Minimum Wage, which may push some over the earnings limit.
NORTH OF THE BORDER
In spring 2025, a number of benefits for claimants in Scotland will change, as part of Scottish devolution. These changes will happen automatically; claimants won’t need to do anything. For example, Disability Living Allowance is being replaced by Child Disability Payment and Scottish Adult DLA. PIP is changing to the Scottish Adult Disability Payment, and a new benefit called the Carer Support Payment is replacing Carer’s Allowance. The Pension Age Disability Payment is replacing Attendance Allowance – it’s worth between £290 and £434 a month, depending upon the needs of the claimant.
The diary
17 AND 18 MARCH
19 MARCH
British Diversity Awards
London
The British Diversity Awards promote Diversity, Equity and Inclusion by recognising individuals and organisations who strive to make workplaces and society more inclusive for all. Categories include Diversity in Tech and Media Champion of the Year, celebrating those who are helping make the UK a better place to live and work. britishdiversityawards.com
19-20 MARCH
Naidex
NEC Birmingham
Naidex is the UK's leading event in empowering and supporting the disabled community. Featuring hundreds of exhibitors, inspirational talks, CPD opportunities, performances and interactive sessions, Naidex covers every topic related to disability, from family dynamics to education, employment opportunities and leisure and lifestyle choices.
Naidex.co.uk / free
28 APRIL TO 4 MAY
MS Awareness Week
Events nationwide
Affecting more than 130,000 people in the UK, MS is a neurological condition affecting the brain and spinal cord. MS Awareness Week aims to raise awareness and help people get the support and help they need. mssociety.org.uk
UNTIL 25 MAY
Everlyn Nicodemus
National Gallery of Scotland, Modern One
Discover drawings, collages and paintings in the first ever retrospective exhibition of artworks by Edinburgh-based Everlyn Nicodemus. Her joyful artworks show how creativity can be a form of healing, and explore issues around racism, trauma and recovery. Wheelchair accessible, with audio described tours, large print labels, and sensory resources available. nationalgalleries.org / free
RNIB Scotland's Inclusive Design for Sustainability (IDS) Conference
Glasgow Science Centre
The IDS conference brings together global tech giants and accessibility advocates to examine how innovative solutions can drive development in accessibility for people with sight loss. Keynote speakers and expert panels will highlight the role of cutting-edge technologies in creating inclusive environments in public spaces, at home and in the workplace.
rnib.org.uk/inclusive-design / Delegate entry from £50
THROUGHOUT APRIL
Limb Loss and Limb Difference Awareness Month
Founded by limb loss and limb difference charities including Blesma, Limbless Association and Finding Your Feet, the campaign exists to raise awareness, inform, educate and start a conversation. The awareness month aims to promote inclusion, and reduce isolation and loneliness while increasing self-esteem and wellbeing. Visit the website to find out more about the events taking place, and check out #LLLDAM and #limblosslimbdifference to get involved. limblosslimbdifference.co.uk
Visit a Motability Scheme Live event to find out everything you need to know about the Motability Scheme.
Motability Scheme Live events in 2025
Birmingham at the NEC, 16 and 17 May
Harrogate at the Great Yorkshire Events Centre, 1 and 2 August
Northern Ireland at the Eikon Exhibition Centre, 19 and 20 September
Learn more. Scan the QR code or visit motabilityschemelive.co.uk
LITERATURE & SPOKEN WORD FEB – JUN
LAURA BATES
MAGGIE O’FARRELL
NNEDI OKORAFOR
TORREY PETERS
KIT DE WAAL
PLUS: INTERNATIONAL BOOKER PRIZE SHORTLIST READINGS
THE MOTH: GRANDSLAM
TALKING TINS
Talking Tins are designed to help people with a visual impairment identify the contents of their tinned food. The magnetic cap sits on any sized steel tin, and adapters are available for bottles, sprays and storage containers. The cap allows you to record a voice message of 20 or 40 seconds, which can easily be played back. A new message can be re-recorded again and again.
talkingproducts.com / From £6.50 with VAT relief
BATTBOOST
The BattBoost is a revolutionary device designed to enhance the performance of your mobility scooter, electric wheelchair or powerchair. This innovative accessory seamlessly connects to your vehicle without any modifications, providing an immediate boost in power and efficiency. The BattBoost is lightweight, portable, and includes a smart charger, quick-release attachment, and a storage bag with carry handle.
bblbatteries.co.uk / 0808 1680635 / price on application
Product picks
JELLY DROPS
Jelly Drops are designed to boost fluid intake. In six juicy flavours, they’re perfect to help people with dementia or other conditions stay on top of their fluids – although they’re not suitable for people with swallowing difficulties. Jelly Drops are made of 95% water, with added electrolytes and vitamins. They’re also sugar free, vegan and have no laxative effect.
jellydrops.com / £27.30 for a pack of 21 servings
ADY AND ME
ADHD Love’s Rich and Rox Pink bring their personal experience of neurodivergence to children. Join Sophie and her best friend, Ady, as they work together to find a place where they feel happy and valued, on their journey from misunderstanding to acceptance. This unique story, published on 24 April, helps children understand and embrace neurodivergence.
Written by Rox and Rich Pink, illustrated by Sara Rees / £7.99
RELISH RADIO
The Relish radio has been designed to enable people living with dementia to listen to music independently. With simple controls, three buttons can be preset to your favourite radio stations. The fourth button lets you choose your own playlist (which is easily added via USB key). One buyer said: “This radio has brought my dad back to life. We’ve put all his favourite songs on the memory stick, he’s so happy with it, and it sounds so clear.” shop.alzheimers.org.uk / £124.99 with VAT relief
PRIMARK ADAPTIVE CLOTHING
Primark’s new adaptive clothing range includes more than 40 affordable staples including trench coats, tees, jumpers and jeans. Adaptive elements include magnetic snap fastenings, waist loops, and hidden openings for tube, stoma or catheter access. There’s also a range of options for people who are seated. The collection was developed alongside Unhidden founder Victoria Jenkins. Available in 31 stores nationwide and through 113 stores offering Click & Collect. primark.com / from £5
REVIEW
Ford Explorer
A famous Ford name is repurposed to become an electric SUV, and it’s one of the best in its class
INSIDE
It’s worth noting that Ford has bought in much of its Explorer’s behind-thescenes bits from Volkswagen, and this is evident in some of the dash. You get the sliding touch controls for the heating and stereo volume control. And, while you get used to these over time, they are never as good as a simple dial.
The good news is, Ford has gone its own way for the vast main infotainment touchscreen. So, you get a 14.6 inch display, which can be tilted to adjust the angle and allow access to a hidden storage cubby underneath. It uses Ford’s own tech, which makes it easier to navigate and understand than a VW ID.4’s, though some of the onscreen icons
are quite small. However, you do get wireless phone charging coupled to Apple CarPlay and Android Auto connectivity.
On a more practical level, the Explorer’s seats are at an easy height to get in and out of the car, and the front and back doors open wide. The driving position is excellent, and the main digital dash display is clear and simple.
You also get masses of storage all around the front cabin, plus good allround vision that’s aided by parking sensors at both front and rear, along with a reversing camera. The 470 litre boot is smaller than a Skoda Enyaq’s, but is still able to carry a folded wheelchair.
The driving position is excellent, and the main digital dash display is clear and simple
The 125kW Select 52kWh 5dr Auto Ford Explorer is available from Motability with an advance payment of £1,995. The 125kW Premium 52kWh 5dr Auto requires an advance payment of £2,995. Both models use the total mobility allowance of your Personal Independence Payment.
EQUIPMENT DRIVING
Ford offers the Explorer in both Select and Premium trims, and both options are available through the Motability scheme.
The Select comes with 19 inch alloy wheels, adaptive cruise control, all-round parking sensors and rear camera, as well as cross traffic alert. You also enjoy the 14.6 inch infotainment screen, heated front seats with electric adjustment, heated steering wheel, wireless phone charging, seven-speaker stereo with soundbar built into the dash, and partial man-made leather upholstery.
Upgrading to the Premium trim will add £1000 to your advance payment. This delivers 20 inch alloy wheels, powered tailgate, panoramic glass roof, full man-made leather upholstery, and a 10-speaker Bang & Olufsen stereo.
Ford has bought in the majority of the Explorer’s components from Volkswagen, but it’s waved that Blue Oval magic wand over the way its SUV drives. The Explorer is notably smoother over bumpy roads than a VW ID.4, though you do notice the occasional ridge in the Premium model on its larger wheels. The Explorer is also more nimble.
Light steering makes the Ford easy when parking or driving in sludgy, slow city traffic. Good vision in every direction for the driver helps here too.
Currently you can only choose from the 286 or 340hp Explorer versions. With its 77kWh battery, the lower power model sticks with rear-wheel drive and is plenty quick enough, going from 0 to 62mph in
6.4 seconds. It offers a driving range of up to 374 miles and can recharge in as little as 28 minutes from 10% to 80% on a suitably rapid charger. The 340hp has four-wheel drive and a 79kWh battery, which gives a 328 mile range and equally fast charging. The big difference is, it dashes off 0 to 62mph in 5.3 seconds, which just seems excessive in a family SUV.
Summary
Keen driving manners are matched in the Ford Explorer by a decent battery range, cabin space, and comfort.
Jane Hatton
Jane is the founder of Evenbreak, a social enterprise run by and for disabled people, with a specialist job board and a career hive.
Send your questions to editor@dcpublishing.co.uk
EMPLOYMENT Q&A
Q Legal protection
This issue, we learn about the legal rights in place to protect disabled people in the workplace
I’m having some problems with my employer. I know there is legislation to protect me, but don’t really know what my legal rights are. Can you help me?
As disabled people, we have rights under legislation, and we’re in a better position to defend our rights if we know what they are.
The Equality Act 2010
The relevant law is the Equality Act 2010. You’re considered to be disabled under this Act if you have a physical or mental impairment that has a ‘substantial’ and ‘long-term’ negative effect on your ability to do normal daily activities.
‘Substantial’ means ‘not trivial’, and ‘longterm’ means the condition has lasted, or is expected to last, 12 months or longer. You are also considered disabled from the day you’re diagnosed with HIV, cancer or MS.
You are protected by the Act if:
• you have a disability (under the above definition)
• someone thinks you have a disability (called ‘discrimination by perception’)
• you are connected to someone with a
disability (known as discrimination by association)
As well as physical disabilities, the Act also takes into account conditions such as autism, mental health conditions, and learning disabilities.
What’s covered?
The Act protects you from discrimination in a number of areas, including employment, where it covers:
• application forms
• interview arrangements
• aptitude or proficiency tests
• job offers
• terms of employment, including pay
• promotion, transfer and training opportunities
• dismissal or redundancy
• discipline and grievances
Workplace adjustments
Employers have a legal requirement to make ‘reasonable adjustments’ to prevent you from being put at a disadvantage compared to non-disabled people during recruitment and in the workplace. This can include providing assistive technology, flexible hours, or different ways of working (depending on the role and the needs of the business).
In many cases, funding from Access to Work can help identify and pay
towards reasonable adjustments. Failure to make reasonable adjustments is illegal, although the definition of ‘reasonable’ can be open to interpretation.
Recruitment
Employers can only ask you about your health or disability during the recruitment process for the following reasons:
• to help decide if you can carry out a task that is an essential part of the work
• to help find out if you can take part in an interview
• to help decide if the interviewers need to make reasonable adjustments for you in a selection process
• to help monitoring
• if they want to increase the number of disabled people they employ
• if they need to know for the purposes of national security checks Interestingly, it is always lawful to treat a disabled person more favourably than a non-disabled person.
For free resources and advice, visit dls.org.uk/free-advice.
RSBC’s free Accredited Activity Provider kitem Making your activities inclu
Commit to accessibility and inclu for vision impaired children, and knowledge and practical skills thr our specialist training and certifi
www.rsbc.org.uk/kitemark T:02031980225
T: 020 3198 0225
FOCUS
NATIONAL CAREERS WEEK
Finding the right career path can be challenging for anyone but, for disabled people, the barriers to employment can feel insurmountable. National Careers Week runs from 3 to 8 March 2025, and offers young people the opportunity to explore career options and discover the support available to disabled school leavers and jobseekers
Acouple of years before you finish school, the chat really ramps up. What are you going to study at university so you can work in your chosen career? Would an apprenticeship or vocational course suit you better? You must study hard to get the grades you need for college…
BIG DECISIONS
When you’re 13 or 14, making huge choices about your future can seem daunting. There are so many sectors to choose from – something in STEM, something people-focused, or how about a creative role? Maybe you could learn a trade, be your own boss, or join a corporate graduate scheme?
And when you’re a disabled teen preparing to leave school in the next few years, those chats about future roles and employment can seem worrying. Will my disability be accepted in the workplace? What if I can’t get on to the course because I’m disabled? Will they put access arrangements in place so I can carry out the job? Do I let them know about my disability at interview, or when I get the position and need some help?
ANSWERING QUESTIONS
National Careers Week is designed to help answer these questions, and many more. It takes place across the UK at both in-person events, workshops and seminars, as well
enable employment
as via online offerings. It provides a wealth of free resources and advice to help all school leavers take control of their career journey. National Careers Week focuses on highlighting the many different training pathways available to young people, so they can access an interesting, rewarding career.
The Founder and CEO of National Careers Week CIC, which runs the event, is Nick Newman. He told us: “Over the last 14 years, National Careers Week has been committed to working with organisations that are fully inclusive; from employers to SEND schools and organisations, we are there to help young people of all abilities find fulfilling futures in the world of work.”
The week is a celebration of careers guidance, and the events, seminars and website resources on offer are designed to empower people with the knowledge and tools to make informed career choices. National Careers Week brings together employers, educators, and career specialists to share practical advice and real-life experiences, helping young people make confident, informed decisions about their progress on to the career ladder.
Organisations involved in the past have included NatWest, Cats Protection, Science Museum, The Association of Accounting Technicians and Young Enterprise, and there are events and workshops in schools, colleges, careers centres and online for the duration of the week.
VIRTUAL OFFERING
National Careers Week also offers a virtual careers fair featuring plenty of information on aspects like career choices, training pathways and
We are there to help young people of all abilities find fulfilling futures in the world of work
Nick Newman, founder
wellbeing at work. National Careers Week showcases many organisations which are committed to hiring and supporting disabled employees.
As part of last year’s virtual careers fair, visitors to the website could learn more about NatWest’s Dream Bigger Workshop, which is focused on developing transferable entrepreneurial skills in 16 to 18-year-olds. NHS Careers was on hand to educate school leavers about more than 350 roles available with them (many of which don’t require a degree).
There was also information from the UK’s hospitality industry, and case studies on the apprenticeship opportunities available across many employment sectors.
INSPIRING STORIES
Visitors to the virtual careers site can access hundreds of different stories from people sharing their experiences of their chosen profession, from what first inspired them to enter the role, to the day-to-day aspects of the job; including disabled professionals sharing their career journeys and helpful advice.
And it’s not just learning more about different sectors and employment opportunities. National Careers Week offers insightful resources like job quizzes to help you decide where your future career may lie, and step-by-step advice on how to craft a strong CV, along with interview tips and support.
The not-for-profit organisation responsible for organising National Careers Week has recently founded NCW Foundation, in a bid to improve career prospects for disabled people. They state: “As well as being the socially and ethically right thing to do, there are compelling business reasons why organisations are prioritising diversity and inclusion, including improved innovation and problem-solving, enhanced employee engagement and retention, increased access to talent, better decisionmaking, improved reputation and better financial performance.”
National Careers Week helps young disabled people better understand the options available to them, as well as enabling them to discover employers who value diversity and are creating accessible workplaces.
You can make the most of it by getting involved. Explore the website, attend events (whether online or in person), engage with employers and career experts to help boost your confidence and expand your network, write or update your CV with National Careers Week’s helpful resources, and make contact with careers advisors or disability employment experts who can help you navigate the next stage of your career journey.
PUT YOUR CAREER ON THE MAP
Registers of Scotland (RoS) is a modern, digital organisation with a team of diverse and dedicated staff. One of those is Pauline, whose role is Diversity & Inclusion Lead. She lives with depression and anxiety, and says the support from RoS has been critical in helping her manage her mental health at work: “When my energy levels and mood are low, working from home allows me to keep my energy for my working hours and the tasks I need to do.” Flexitime and compressed hours have also made a big difference, allowing Pauline to better balance her home and work life while managing her mental health.
SUPPORTIVE
The supportive working atmosphere at RoS means Pauline feels able to open up about her own circumstances and experiences. “I’ve been met with consideration, understanding and acceptance,” she reveals. An Employee
Passport scheme helps all colleagues, allowing them to have conversations with managers about their needs and the support they require. Pauline says: “It can be difficult to know what to ask for in terms of reasonable adjustments. We’re focusing on how to have the most effective conversations with people about adjustments so we can find solutions together that will make a difference, then checking the adjustment did as we hoped.”
RoS has several systems in place for colleagues, including a dignity at work policy and resources like an Inclusive Language Guide, along with policies like one year full pay for maternity leave and adoption leave. All family-friendly policies have been devised in a way that supports all types of family and includes parents of all gender identities.
INCLUSIVE
As Diversity & Inclusion Lead, Pauline’s committed to supporting colleagues with all protected characteristics,
We find out what it’s like to work for Registers of Scotland, the organisation responsible for keeping public registers of land, property, and other legal documents in Scotland
including disability. “Our policies are as flexible as they can be,” she reveals. “People at all levels of the organisation have different working patterns and use flexitime to meet their needs – for example taking breaks at different times of the day so they can tend to their own needs (relating to their condition), or for any caring responsibilities they may have.”
There’s also ease of access when it comes to obtaining IT equipment and software to help staff do their jobs, both in the office and at home. Finally, there’s an emphasis on peer support and listening to colleagues, with a neurodiversity colleague network, an award-winning carers network, and regular Colleague Voice Sessions to listen to the lived experience of colleagues with protected characteristics. These sessions help inform the work of RoS.
Pauline concludes: “Some other organisations I’ve worked in have perhaps talked a good game on diversity and inclusion, but delivery hasn’t always matched up. Of course, that will always happen at some point, where we fall short of the way we want things to be. The difference in RoS is I genuinely believe senior managers and colleagues are committed to always improving things.”
FOR MORE INFORMATION
To find out more about career opportunities with Registers of Scotland, visit: ros.gov.uk/about/ careers
Pauline
We’ve been named as a disability confident employer by Jobcentre Plus and have a positive attitude towards job applications from disabled people.
As we progress, we’ll continue to improve the way that we support our staff, customers, and stakeholders, regardless of disability, gender, ethnicity, age, religion, or sexual orientation.
Our Diversity and Inclusion strategy is a priority at RoS. It’s not a one off or an event, it is an ongoing process, and we will work for our colleagues to feel safe, supported and included at work.
We want to be an employer of choice, attracting and retaining the best and widest possible pool of talent.
ros.gov.uk/about/careers
Defending disabled people’s rights in the workplace, in our communities, and across our region. Creating a more inclusive society, built on respect, opportunity, and equality. www.unitetheunion.org
and
for young adults (aged 16–25) with
educational
and disabilities (SEND) Through a variety of taught and practical
students learn:
and
Access all areas
From his dreams of sporting glory as a boy to founding an accessible fitness app, Paralympic powerlifter and entrepreneur Ali Jawad opens up
to Editor Melissa Holmes
Ali Jawad had a dream from the age of six. While watching the 1996 Olympic Games, Ali saw Michael Johnson win his historic double. From there, a dream was born. “When he was on the podium, he was very emotional,” Ali explains. “I was like, ‘I need to feel what he’s feeling’. And the only way to do that is to compete at that level.”
At 16, Ali – who was born without legs and has Crohn’s disease – discovered powerlifting. “A friend took me to a gym which was owned by a Paralympic powerlifting coach,” Ali reveals. “He said I had incredible potential and he’d attempt to coach me to the Paralympic Games.” Two and a half years later, Ali had his own Michael Johnson moment.
Users are empowered to create their own training sessions
GAP IN THE MARKET
After a successful competitive career, during which he became World Champion at the 2014 IPC Powerlifting World Championships, Ali teamed up with sailing champion Sam Breary to found Accessercise. He says: “Even though disabled people wanted to be active and the industry wanted to be more inclusive, I felt there was a huge gap in terms of how many disabled people went to the gym.”
With more than 70,000 fitness apps available, Ali discovered there was no accessible fitness app specifically for disabled people. His research discovered that 81% of disabled people wanted a fitness tool based on their impairment. His idea took flight and, eight months later, Accessercise was built, with the aim of including at least 80 evidence-based and impairment-specific exercises for almost 200 impairments, so users can create their own gym workouts.
The Accessercise team is partnering with Future Fit to train personal trainers so they feel comfortable coaching disabled people. Ali highlights: “We launched the first ever impairment-specific CPD course for
personal trainers focusing on visual impairments. We’ve got two more coming this year, covering amputees and spinal cord injuries.”
EXERCISE EMPOWERMENT
The powerlifter, who uses his app several times a week, describes the culture at Accessercise as “dynamic” and says his small team of staff must be adaptable. But the hard work is worth it. “Users are empowered to create their own training sessions,” Ali enthuses, “whereas before they got told what to do by somebody that doesn’t know their impairment. This time they’re in full control.”
Ali feels things may be on the up for disabled founders. “We don’t get much luck in terms of funding. A lot of investors don’t see disability as a lucrative market. But there clearly is a market!” he says.
“Disabled people have problems that are daily recurrences, which means other people have them too,” he relates. “Whatever problems you have, if you can address it and scale it, then you’ve got a business. You just have to make people’s lives a little bit easier, and that’s what we’ve tried to do”.
