Genesee Valley Parent Sept 2012 by RocParent

Inside

September

Vol.19 Number 9

INSIDE THIS ISSUE

ANNUAL EDITORIAL GUIDE Rochester Area & Genesee Valley

Special Parent a guide for area parents of children with special needs

find it after page 36

in this issue 6 | GVParent.com On the Web in September

8 | Editor’s Note 10 | Buzzworthy Reviews & News

28 | Book Nook Bear Necessities

30 | Parenting – TEENS & TWEENS Night and Day

Fabulous Fall Fun

CORN MAZES, PUMPKIN PATCHES, APPLE PICKING, FARM FRIENDS & MORE!

MORE READS

Check out these other best-sellers, award-winners, & classics that feature bears: Where's My Teddy? by Jez Alborough Reader pick / The Ruthven Family, Palmyra The Berenstain Bears Series By Stan Berenstain Bear Goes to Town By Anthony Browne Editor's Pick The Last Bit Bear By Sandra Chisholm deYounge & Illustrated by Ellen Ditzler Meloy Alphabears Written by Kathleen Hague & Illustrated by Michael Hague Community Editor's Pick Corduroy By Don Freeman Reader pick / The Young Family, Fairport Blueberries for Sal By Robert McCloskey Reader pick / The Huels Family, Pittsford Brown Bear, Brown Bear, What Do You See? By Bill Martin Jr., & Illustrated by Eric Carle Reader pick / The Kaler Family, Rochester Little Bear By Elsa Holmelund Minarik & Illustrated by Maurice Sendak Zen Shorts By John Muth

Wonder Bear By Tao Nyeu Dial Book for Young Readers, 2008, hardcover, $17.99 Ages 3-5 This wordless picturebook captures magic, emotion and a whimsical sense of imagination in one. When a boy and girl plant a packet of seeds into the ground, what sprouts is a stalk... and a top-hatted bear! Without words, this book is open to a variety of storytelling possibilities between parent and child – quietly soak in each page or craft your own tale to reflect the illustrations along the way – much like the story itself, the possibilities are endless!

The Bear Who Shared By Catherine Rayner Dial Books for Young Readers, 2011, hardcover, $16.99 Ages 3-5 Fact: Plorringes are delicious. So what's Norris the bear to do when he sees one up in the tree, just dangling out of reach? Tulip the racoon and Violet the mouse arrive, also lured by the plorringe's tantalizing smell and appearance. When the plorringe falls right into Norris' lap, he can keep the bounty to himself or treat his new friends to a share... so what will he do? A sweet tale of friendship, patience and generosity with delightful and lovable characters as the stars.

Blackberry Banquet By Terry Pierce Leaves By David Ezra Stein Reader pick / The Benne Family, Newark Bear Snores On Written by by Karma Wilson & Illustrated by Jane Chapman

www.GVParent.com

WIN THIS BOOK! VISIT WWW.GVPARENT.COM & CLICK “GIVEAWAYS”

The Bear's Water Picnic Written by John Yeoman & Illustrated by Quentin Blake Andersen Press, 2011, paperback, $9.99 Ages 3-6 Bear has organized a lovely picnic for his friends – he's packed acorns for the pig, barley for the hen and hazel nuts for the squirrel – but things go downhill in a hurry when they meet a band of noisy frogs. The frogs would be welcome at the picnic, if only their awrk-ing weren't so noisy! Alas, bear and his friends finally leave the frogs behind, only to get stuck on a sandbar. Who could possibly help them now? This fun-filled tale is rich with detail and sure to delight readers old and young alike.

Something to Do By David Lucas Philomel Books, 2009, hardcover, $14.99 Ages 3-5 This bear pair is in search of something to do – creativity blossoms when a stick turns into a drawing tool and a brand new, ever-changing landscape takes shape. Simple and minimal, yet full of charm, the illustrations are like a child's handiwork and the story may remind readers of Harold and the Purple Crayon. Sure to inspire young (and older) readers to let their own imaginations run free. Jillian Melnyk is the Editor for Rochester Area & Genesee Valley Parent Magazine. She has an MFA in Writing for Children from the Center for the Study of Children's Literature at Simmons College. She welcomes questions about books and can offer endless recommendations at Editor@GVParent.com

Coming next month... Spook-tastic Halloween books to frighten and delight!

Rochester Area & Genesee Valley Parent • September 2012

[ parenting teens & tweens ]

By Myrna Beth Haskell

Night and Day THE ISSUES VASTLY CHANGE AS TEENS MATURE

ypical teen temperament, characterized by rebellion, moodiness, and insecurity, usually begins in the “tween” years (ages 10 to 12) and becomes full-blown around age thirteen. In all fairness, though, teens should not be lumped into one category. I prefer to categorize the teen years into two distinct phases – the “roller coaster” phase (ages 13 to 15) and the “know-it-all” phase (ages 16 to 19). During the “roller coaster” phase, teens experience extreme hormonal and physical changes, such as acne, weight gain, and facial hair growth, which leave them feeling awkward at a time when they are desperately trying to fit in. During the “knowit-all” phase, teens experience significant firsts as they prepare for adulthood, such as driving,

physical contact with the opposite sex, and often living on one’s own for the first time on a college campus. To clarify a bit, my daughter experienced mood changes that swung back and forth like Tarzan on steroids during her “roller coaster” phase, and my “know-it-all” son – now eighteen – still has the habit of telling my husband and I, “Let me explain this to you” as if we just fell off the turnip truck. The teen years are particularly demanding on a parent too because expectations and rules must continually adapt to the teen’s ever-changing behaviors.

The Roller Coaster Phase Anthony DeCamello, PhD, a psychotherapist from Long Island who specializes in

treating at-risk teens, describes the young adolescent as conflicted between wanting to rely on his peers and still needing parental support. He claims that this estrangement phase is difficult for parents because their child becomes dismissive and no longer idealizes them. “Though this can be emotionally disconcerting, in my experience, it proves to be less about willfully rejecting loved ones than carelessly struggling with one’s own identity.” “Younger teens are trying to figure out who they are in relation to everyone else,” says Shelly Furuness, PhD, an assistant professor of middle/secondary education at Butler University in Indianapolis, IN. She explains that younger teens are constantly mirror-checking because their bodies are incessantly changing, and they fear that they’ll look weird or different. “It’s physically and emotionally harder for a younger teen to control their behaviors. They know what they’re supposed to do, but it’s hard for them to contain their emotions.”

Thankfully, your younger teen… ...will still ask you for advice. ...doesn’t venture out with strange friends in dilapidated cars. ...has to go to the mall with you to shop for clothing. Thankfully, your older teen… ...will drive your younger kids around. ...will be the one who’s responsible for blowing up the science project. ...will occasionally be seen with you in public.

What’s a Parent to Do? Keep it together! Don’t get caught up in the drama and sink to your teen’s level. Try to empathize with your teen’s inner turmoil and the likelihood that she literally feels uncomfortable in her own skin. Dr. DeCamello urges parents to maintain their role as adult models and to avoid “falling prey to reactive battles with their teens.”

The Know-it-All Phase Teens start to find their way during this phase. Perhaps they are earning their own income, driving to school, or becoming increasingly secretive about their love lives. Fortunately, their temperaments are a bit more

WANT TO SHARE YOUR IDEAS? UPCOMING TOPIC: Suggestions for teens to beat the “winter blues.” Send your full name, address, & brief comments to: myrnahaskell@gmail.com or visit: www.myrnahaskell.com

www.GVParent.com

“

Older teenagers are looking for independence and ways to leave the nest. They take on

responsibilities to show they are capable of being on their own.”

— Shelly Furuness, PhD, an assistant professor of middle/secondary education at Butler University

even-keeled than their younger counterparts. DeCamello reports, “As the teen years progress, a trend toward less emotion-driven impulsiveness and more thoughtful, pondered responses begins to emerge.” It’s not easy to allow your older teen to make mistakes because the consequences can be frightening, such as a car accident or an unwanted pregnancy. Dr. Furuness explains, “Older teenagers are looking for independence and ways to leave the nest. They take on responsibilities to show they are capable of being on their own.” What’s a Parent to Do? Let go. Allow your teen to grow away from you and become a unique person. Levester Johnson, EdD, the vice president for student affairs at Butler University in Indianapolis, IN, instructs parents to provide their teens with more independence so they can acquire the skills they will need as adults. He says, “Give them more freedom as they demonstrate that they’re using their freedoms properly. Don’t sweat the little things like hair and clothing that they may be experimenting with.” Johnson also reminds parents that their teens’ successes and failures are all part of the maturation process.

Myrna Beth Haskell is a freelance writer and frequent contributor to Rochester Area & Genesee Valley Parent Magazine who lives in Salt Point, NY. She is the mother of two teenagers and specializes in parenting issues and children's development.

Rochester Area & Genesee Valley Parent • September 2012

[ try this!]

By Jillian Melnyk

Clean Up Your Act HOW TO BE PRACTICAL & GET ORGANIZED

ometimes when I look around my home office I worry that someone is going to turn me in to be on an upcoming episode of Hoarders. Okay, it's not that bad, but I suffer from what feels like a never-ending encroachment of clutter and just so much stuff.

There are a few reasons. For starters, I'm overly sentimental. I have a hard time throwing things away because they remind me of the past. Second, I was raised not to waste. Every time I'm about to ditch an item a little voice in the back of my head shouts: “Hey! You spent good money on that!” I think it's the voice of my grandmother. Third, I blame Martha Stewart. What that woman can do with old toilet paper rolls and used yogurt cups is miraculous – how can I throw those away when I might need them some day to whip up a miracle craft project of my own? And fourth, there's the environment. Every time I think about throwing something away, I imagine where it's going to end up... a landfill. So it sits in my house instead, which, in my skewed perception, becomes a better option. So, you see, it's hard. But there's hope. I decided it was time to de-clutter and get organized. September might seem like a strange month to suddenly get organized, but it's

8 32

Get kids involved in organizing – have them choose the charity of choice to donate their gently used clothing.

actually quite fitting. Getting your life – and home – in order before the holidays can take a lot of pressure off of the upcoming season. Plus, checking out what's in your closet (and – gasp – realizing you still have unworn clothing or other items with price tags attached) might be just what you need to make you realize what you do (and don't) need to add to your holiday wish list. For kids, starting the school year with an organized wardrobe and orderly desk is key. Not only will it save you from buying unnecessary items, but knowing what you have and where it is will ultimately help save time. This is especially true for winter essentials like scarves, gloves and heavy socks that often get lost in the back of closets or are forgotten in drawers. (And it's usually half of the pair that is missing when you need it most.) Similarly, when cleaning out a desk or

drawer, you may uncover brand-new or barely touched school supplies. (And who wants to spend money on duplicate items?) So go ahead, dive in and see what you might uncover in your kid's closet.

Here's what I did and what you can do too:

the item in question will fit) or styles change and I'll fall back in love with this item. But I needed to be practical. If I hadn't worn it in more than two years – and I was being generous, some organizing experts say to toss things you haven't worn in a year – I gave it the boot.

I was realistic.

I planned.

I have clothing items in my closet that have sat there for years, unworn. Some don't fit, some are sort of out of fashion or are so worn out that they are not looking their best. The key part: I don't wear them. In the past I've had a hard time letting go of them because I tell myself that someday I'll either lose or gain weight (and

I tried my hardest to find a new life for all items that I knew I no longer wanted or needed. And with some planning, everything didn't have to end up in a landfill. I took the best of the best and traded them in for cash at consignment shops and I donated the gently-worn-but-still-useful to a good cause. The worst of the

SUGGEST A CHALLENGE! Do you have something you've been dying to try but you haven't been able to muster the energy? Or you just don't know where to start? Let our editor try it out for you! Jillian is willing to be your guinea pig! Offer her a challenge (within reason!) and she'll try it out and dig up as much helpful info as she can to get your family started on the path towards success. Send Jillian an email to Editor@GVParent.com with subject line "Try This!"

www.GVParent.com

Need organization inspiration? The internet is a great resource, especially Pinterest! We'll be “pinning” some of our favorite home organization finds all month long, join us there at www.Pinterest.com/gvparentmag

worst (like stretched out t-shirts and things with holes or stains) found a new life as cleaning rags. For children's clothes, you'll likely find an array things your children have outgrown or never worn. These are perfect options for donation, trading with other parents, or selling. If you're looking to make some cash, an autumn garage sale might be a great option. (PS: Don't tackle the closet organization all alone, make sure you get your kids involved. They know what they haven't worn, let them help pull from their closets, fold, stack and organize, too. Letting them choose the charity of their choice for donation can also get them involved in the process.)

bathroom? Or that packet of cold medicine? Many beauty products and cosmetics start losing their potency after two years. I also had a lot of cheap beauty products that I flat out didn’t use. These are items that are not worth keeping. Make sure to check the expiration date on any pharmaceuticals. I was surprised to find a number of outdated cold medicines in my medicine cabinet. Make sure that you dispose of all out-dated prescriptions and over-the-counter pills properly. Check with your town to see if they have an upcoming drug drop-off date planned. You can also ask your local pharmacy if they have a drug disposal policy.

I took care of what I owned. I organized. I don't just suffer from having too much but sometimes not knowing what I have, so I end up buying more... it's a snowball effect. For example, I always end up buying things like binder clips because I can never find them. My solution: I purchased new organizational tools including plastic and fabric bins, magazine racks, desk organizers, and drawer setups to corral the stuff I already had in my home office. Now with a little desk organization, I can easily find what I'm looking for, including those pesky binder clips. A word of caution... set a budget and pick a style. It is easy to get carried away, but you don't have to spend a lot to keep things organized.

What's the point of owning nice things if they're going to be mashed in the back of the closet or they are hard to access? I now know where my most prized possessions are and that they are carefully wrapped for safe-keeping until needed. Overall, it felt good to get organized. I wouldn't say it was a revolutionary change, but it certainly helps and makes me re-evaluate each purchase I make. Not only do I think about what I currently own, but now when I buy, ask myself: “Do I really need that?”

Jillian Melnyk is the Editor for Rochester Area & Genesee Valley Parent Magazine. To comment on this story email Editor@GVParent.com

I chucked it. Some things are not meant to last. How long has that jar of face cream been sitting in your

Rochester Area & Genesee Valley Parent • September 2012

[ parenting]

By Carolyn Jabs

Digital Grounding DISCIPLINE VERSUS PUNISHMENT & HOW TO MAKE IT WORK

eaching kids to do the right thing isn’t easy. Basically, parents have three options: Encourage good behavior. Ignore poor behavior (especially when it’s caused by temporary factors such as fatigue, hunger or simple immaturity.) Or discourage bad behavior by associating it with disagreeable consequences.

For wired kids, the most disagreeable consequence is often loss of digital privileges. Although parents have been doing it for years, “digital grounding” got its name in 2010 when research from the Pew Internet and American Life Project reported that 62% of parents had disciplined their kids by taking away a cellphone. Grounding of any kind is simply a big kid version of “time out.” The theory is that, if a child is disconnected from other people for a while, they will have extra time to think about what they did wrong and miss their social connections so much they won’t want to repeat the problem behavior. Now that kids do most of their socializing online, the only effective way to disconnect them is to confiscate their digital devices or limit access to texting, social media, and interactive games.

www.GVParent.com

To make digital grounding effective, parents should be aware of the distinction between discipline and punishment. Both words are rooted in Latin, but discipline comes from a root that means “to teach” while punishment comes from a word that means “to inflict pain.” The impulse to punish is understandable, especially when a child’s behavior has caused distress for a parent. The theory, of course, is that making a child suffer for a mistake will discourage that mis-

take in the future. Unfortunately, it’s not that simple. Punishment often triggers resentment which, in turn, makes kids devious or even defiant. In contrast, the goal of discipline is to help children learn from mistakes and develop the self control that guides better choices in the future. Instead of doing the right thing because he or she is afraid of external consequences, a child who has the benefit of good discipline develops an inner sense of what is

In 2010 the Pew Internet and American Life Project reported that 62% of parents had disciplined their kids by taking away a cellphone.

The goal of discipline is to help children learn from mistakes and develop the self control that guides better choices in the future. Instead of doing the right thing because he or she is afraid of external consequences, a child who has the benefit of good discipline develops an inner sense of what is right based on trust, respect and an ability to think about long term goals.

right based on trust, respect and an ability to think about long term goals. Come to think of it, those three qualities – trust, respect and clarity about long-term goals – are also what parents will need if they are going to make digital grounding a form of discipline in the best sense of the word. Here are some suggestions about how to do just that:

about what you expect and why it matters. As children get older, listen to their point of view and modify rules to reflect their growing capabilities. House rules that are clear and make sense to kids are less likely to be broken. And, when transgressions do occur, kids are less likely to resent calm, even-handed enforcement of penalties that have been discussed in advance.

Establish the idea of digital privileges.

Connect consequences to behavior.

Parents don’t give toddlers their own cellphones because they aren’t responsible enough to use them properly. When your child is old enough for a phone or any other digital device or activity, be sure he or she understands that access is a privilege that has been earned by demonstrating responsibility in other ways. Some parents reinforce this idea by making use of digital devices contingent upon specific behaviors – for example, no screen time until your room is clean or homework is finished. The corollary, of course, is that continued access depends upon appropriate behavior – and that a child who has been grounded can earn back digital privileges by demonstrating more maturity.

Many experts believe the most effective consequences grow logically out of misbehavior. A child who sends inappropriate text messages loses cellphone access precisely because he’s demonstrated an inability to use the device responsibly. A child whose grades suffer because she’s gossiping on Facebook when she says she’s researching a paper can’t use social media until she makes schoolwork a priority. In such cases, parents may actually want to say that the device is causing a problem so it’s being grounded (instead of the child).

Be clear about expectations. Children are more likely to experience grounding as punishment if it seems like a random response to behavior parents don’t like. Whenever possible, be clear in advance

Enlist tech support. One of the best things about technology is that there are “off ” buttons that make it possible for parents to enforce digital grounding. If you’ve decided it’s in your child’s best interest to use the computer only for homework, use a timer to back up a digital curfew. Curtail access to specific websites by changing passwords or using the blocking software

Rochester Area & Genesee Valley Parent • September 2012

provided by your ISP. Contact your cellphone carrier to find out whether you can temporarily disable services such as texting or web access. Some companies will also let you restrict calls so your child can use a cellphone only for emergency calls or to get in touch with you.

Think ahead. Before blurting out, “You’re grounded!” parents should anticipate consequences – for themselves. The Pew Report found that many parents didn’t follow through on cellphone bans because they needed to reach their kids on the phone. The same thing may be true of social media or even video games. If your child depends on an afternoon gaming session to relieve stress or social media to maintain friendships, you’ll want to think carefully about whether taking away those privileges is the best way to achieve your goals.

Babies’ brains won’t grow by themselves. Sing to your baby.

Talk to your baby.

Play with your baby.

Call 292-BABY SUPPORT FOR YOU

AND YOUR BABY.

www.GVParent.com

Used judiciously, digital grounding may actually improve family relationships. Some parents find that unplugging a child for a while opens up opportunities for conversation and other shared activities. Though they aren’t likely to see it that way at the time, many children will, in retrospect, be grateful for parents who insisted that they step away from digital distractions so they could reconnect with a better, more responsible version of themselves.

Carolyn Jabs, M.A., raised three computer-savvy kids including one with special needs. She has been writing Growing Up Online for ten years and is working on a book about constructive responses to conflict. Visit www.growing-up-online.com to read other columns.

rochester area & genesee valley parent / special parent 2012

>inside

t health | autism spectrum 4 publisher’s note l disorder on the rise buzzworthy | news 6 | the teacher thinks c education profile | finding focus my child needs testing – 8 fostering communication with your getting active | extraordinary child’s school t bonds – how therapy animals help children with special needs | planning for their b law future – estate planning for parspotlight | kevin schoenl – ents of children with disabilities a president/founder of managing autism together m resources advice | 5 things to know f about parents of children with special needs

j needs – how you can help your health | sleep & special

ON THE COVER SAM MALONEY PHOTO BY CL!X PORTRAIT STUDIO

child get a good night’s rest

Rochester Area & Genesee Valley Parent • Special Parent 2012

SN3

[ publisher’s note ]

by Barbara Melnyk

elcome to our third annual Special Parent supplement within the September issue of Genesee Valley Parent. For the past several years we have been dedicating a large section of our September issue with articles, personal stories and resources related to special needs. As a result of the overwhelming response, in 2010 we created a more extensive supplement for parents to read and hold onto.

The response continues to be fantastic with heartfelt comments from parents with children of all abilities. What we have learned over the past few years is encouraging. There is a wealth of resources available in our community for parents who have children with special needs – you’re not alone. It's that community support which inspired us to continually provide an annual editorial guide that focuses on support agencies, gives a voice to area parents, and helps you stay educated and informed. We offer a special thanks to the parents and businesses for their willingness to share their stories and inspire others. A special thank you also to Cl!x Digital Studio for their assistance again this year in coordinating both cover photos of Sam Maloney, our focus child. We are also incredibly proud to share with you that last year’s Special Needs section was selected as the winner for Special Section within a Publication from the Parent Media Association (PMA). According to the judges at the University of Missouri School of Journalism, “Sections on special needs are now commonplace, but this section finds new subjects to address, such as when parents and kids share the same diagnosis, as well as solid story on the importance of milestones.” This is the second year in a row that this section has been recognized and we hope that you will be inspired by this year’s selection of articles. Also, remember that in addition to the printed version of this guide, you can also find the digital edition online on our website at www.GVParent.com/SpecialNeeds. This dedicated section of the website also includes an ever-growing set of current articles, topics and resources to visit and read throughout the year. Regards,

on the cover Sam Maloney Finding Focus SN8 Fostering Communication with Your Child’s School SN32 Extraordinary Bonds SN14 Sleep & Special Needs SN26 Estate Planning SN34 Area resources SN36 PHOTO BY CL!X PORTRAIT STUDIOS

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www.GVParent.com/SpecialNeeds

Staff PUBLISHER Barbara Melnyk mail@gvparent.com EDITOR Jillian Melnyk editor@gvparent.com ACCOUNT EXECUTIVES Cynthia Goldberg MAGAZINE LAYOUT & DESIGN Jillian Melnyk graphics@gvparent.com CALENDAR EDITOR calendar@gvparent.com Graphics Support Meghan Shoemaker CONTRIBUTING WRITERS John Boccacino, Julia Garstecki, Karen Higman, Stephen Koldin, Michele Ranard, Rachael Moshman Basic subscription rate: $25/year. Send subscription inquiries and changes to address below. Copyright 2012, by GVP, Inc. All rights reserved. Reproduction without permission is strictly prohibited. Distribution of this magazine does not necessarily constitute an endorsement or necessarily reflect the opinions of this publication.

Genesee Valley Parent Magazine 266 Alexander Street, Rochester, NY 14607 p: 585-287-5330 f: 585-287-5344 www.gvparent.com

MEMBER OF PARENT MEDIA ASSOCIATION

Rochester Area & Genesee Valley Parent â&#x20AC;˘ Special Parent 2012

SN5

buzzworthy upcoming events & dates of note September

December

recycle your batteries

Rochester Kidney Walk

ROC The Day Fundraiser

While hearing aid batteries are small, they may contain environmental toxins like zinc, mercury or mercuric oxide – chemicals that could have serious consequences for our environment if they end up in landfill. Before you dump your batteries into the trash, consider recycling! Rochester Hearing and Speech Center is now accepting batteries for recycling at all three of their locations – 1000 Elmwood Ave, Suite 400 in Brighton; 3199 Ridge Road West in Greece and 1170 Ridge Road in Webster. For more information about the program call 271-6080.

Sunday, September 16 Frontier Field, 697-0874 x21, www.kidney.org

Wednesday, December 12 www.roctheday.org

Mary Cariola Children’s Center: Walking on Sunshine

sensory-friendly films

Sunday, September 30 Ontario Beach Park, www.marycariola.org

George Bailey 3K Walk and Caroling Extravaganza for Camp Daydreams Friday, December 21 Damon Campus Building, 461-2324 or www.campdaydreams.org

October

Get out and have some fun! In Partnership with the Autism Society, each month AMC Webster 12 brings Sensory Friendly Films to families in the Rocheter area affected by autism.The program provides a special opportunity for families to enjoy their favorite films in a safe and accepting environment. During the special programming, the dedicated theater has their lights up, the sound turned down, and audience members are invited to get up and dance, walk, shout or sing!

UNYFEAT Annual Fall Conference

February 2013

Thursday, October 4 The Strong National Museum of Play, 248-9011 or www.unyfeat.org

Epilepsy Foundation’s Annual Chocolate Ball

UPCOMING SCREENINGS: September 22 - FINDING NEMO October 13 - FRANKENWEENIE November 10 - WRECK-IT RALPH December 8 - RISE OF THE GUARDIANS

Sunday October 28 Eastview Mall, 442-4430 or www.epilepsy-uny.org

WHERE: AMC Loews Webster 12, 2190 Empire Blvd., Webster, NY 145804 WHEN: All shows are at 10:00 am. Dates and films are subject to change. FOR MORE INFORMATION: 671-0941, www.amctheatres.com/movie-theatres/amc-loews-webster-12

Walk for Epilepsy Awareness

Al Sigl Community Walkabout Sunday October 28 Eastview Mall, www.alsiglcenter.org

November

free digital books Does your child have difficulty reading or have a learning difference like dyslexia? You might quality for free digital books and reading tools from Bookshare! Funded by the Department of Education, this service includes more than 150,000 books from popular literature to textbooks and teacher-recommended reading. Memberships work like an unlimited library card where children can explore the digital library, download books, and read on their own. Students can also be signed up through their teacher and school. For more information visit www.bookshare.org

SN6

www.GVParent.com/SpecialNeeds

442-4430 x27-7 www.epilepsyuny.org

Camp Daydreams Spaghetti Dinner Sunday, November 4 Italian American Sport Center, 461-2324, www.campdaydreams.org

April 2013 Autism Spectrum Connection Fair Saturday, April 20, 2013 www.managingautism.org

find more upcoming events on our online calendar at www.gvparent.com/calendar

Rochester Area & Genesee Valley Parent â&#x20AC;˘ September 2012

SN7

finding focus

Letchworth State Park // Photograph by Sam Maloney

SN8

www.GVParent.com/SpecialNeeds

profile / by Jillian Melnyk

“I

love being creative!” says Sam Maloney. This twelve-year-old aspiring underwater ocean photographer gets excited when you hand him a camera so he can do his thing. But that “thing” is more than just fun for Sam; it's real work, too, and part of his therapy at Rochester's Hochstein School of Music and Dance.

At age three, Sam was diagnosed with autism. “I noticed that something wasn’t right when he was six months old but it was very difficult to get him diagnosed,” says his mother, Debra Bellare of Rochester. “He was always lining up his toys and never made eye contact.” She recalls those early days as difficult times where she felt isolated and overwhelmed. At age five, Sam was having emotional difficulties and was referred to the Music Therapy Department at Hochstein. At the time, Sam was only talking in three word sentences and the 20 minute travel time to the therapy sessions would leave him primed for a meltdown. But Sam's therapists were able to focus on his needs, work on essential skills, and improve his mood. “Sam was a happy kid every time he left his session,” Debra says.

The Right Angle Sam continued to attend therapy but Debra still had concerns over Sam's development. Then inspiration struck and she found her son's true calling. “I read Temple Grandin and she says that you have to teach to your child’s interest and you have to think outside of the box.” Grandin's words sparked something in Debra – she thought her son

might have a real interest in photography: It may have started when Sam was five and had taken his first photograph of Debra and her daughter. Then she recalled an instance during summer camp where Sam was immediately calmed down by hanging out with the camp photographer. Finally, Debra noticed that Sam was always taking photographs with her phone. The pieces of the puzzle started to come together. Debra took Grandin's advice – thought outside of the box – and purchased an SLR camera with interchangeable lenses. “I wanted him to feel like a pro,” she says.

The Process Sam's therapists at Hochstein have since worked to incorporate photography into his therapy sessions. Because he has fine motor difficulties, they first showed him how to hold the camera. “When Sam brought his camera in, we used a song to teach him how to hold the camera and different ways to take a picture,” says Maria Battista-Hancock, Music Therapy Department Chair and Clinical Internship Director at Hochstein. Sam's therapy now includes editing his work, creating slide shows, and setting his work to music. In Hochstein's lab, and with the guidance of his

therapists, he edits, crops, and adds special effects to his work. “Sam's independence is constantly growing, and at times he will even let the therapist know, 'I got this'” says Battista-Hancock. She adds that the success Sam is experiencing adds to his self-confidence and is building a path for his future. The coupling of photography and music is also helping Sam develop cognitive skills such as attention and executive functions while improving his communication. Sam and his therapists work with his photographs and produce original music for how Sam perceives the photos would sound if they were music and they explore the emotions the photos would exude. “I love this because individuals with autism have a difficult time thinking abstractly,” says Debra. “Sam is taking a concrete picture and abstractly thinks about his perception of the photos.”

Sam & Debra at an exhibit of Sam’s work at High Falls

“

I read Temple Grandin and she says that you have to teach to your child’s interest and you have to think outside of the box. – Debra Bellare

In the Field “Sam has a natural way of seeing things,” says Debra. Sam's favorite photography subject is

CONTINUED >>>

Rochester Area & Genesee Valley Parent • Special Parent 2012

SN9

Sam’s first photograph, taken at Hochstein

times finds shots on his own.” But, she adds, Sam is first and foremost still a kid and “it's always fun.”

Engaging

nature and he enjoys traveling and discovering new places where he can hike and fish. They've discovered a lot hidden gems just in the Rochester area but have also traveled all over New York State to hike and see different waterfalls. “We often go to spots with water and Sam loves to skip rocks in the streams,” says Debra. Though no two days

are the same for Sam, Debra tries to plan out their trips and tells her son what to expect. Sometimes they take a friend along so their photography trip is a social activity. She says Sam has come a long way since he first began snapping photographs. “In the beginning I was right beside him every step of the way. Sam today is very independent and often

Debra has also taken Sam's interest in photography beyond his outdoor shots and therapy sessions. “Sam was reading at a first grade level each passing year,” she recalls. To engage her son even further and to build his reading skills, she decided to set up a Facebook fan page – Snapshots by Sam Maloney – dedicated to her son's work. He currently has more than a thousand followers on his page, many who leave comments about his work. Twice a week Sam works with a worker from PRALID and together they read the

Facebook comments, which serves as both a reading project to strengthen Sam's skills and a way for Sam to engage with his photography and see how his fans have responded. Since launching the Facebook fan page, Debra says Sam's reading level has increased a grade and a half. Last April, for Autism Awareness Month, Sam debuted his work at Starry Nites Cafe's where more than 200 people came to admire his work. “Sam was able to handle the crowd with no problems at all,” recalls Debra. His work is also available for sale at Lisa’s Boutique with Heart at Schoen Place on the Pittsford Canal and Jerry Williams Creative Arts and Picture Framing on 506 Long Pond in Greece. Sam plans to use the money he CONTINUED >>>

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connect! find sam’s work on facebook at “Snapshots by Sam Maloney”

Photographs by Sam Maloney

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makes from his sales to fund a camera upgrade.

In Development When I asked Debra about her dreams for Sam's future she says, “I really like this question because for the first time I am not terrified of his future.” She acknowledges that there will always be challenges but she says her son is learning that he's a vital part of society and her prayers have been answered. Sam has also found incredible support in the community. Recently he shadowed a professional photographer during her shoots so he could see first-hand the ins and outs of the business. “Learning the business of baby, wedding and family photography is changing Sam’s ability to be comfortable around people,” says Debra. “When he looks through the lens he has a buffer between himself and the human subject matter. He is using his skills as a photographer and making eye contact his way.” Sam's therapists at Hochstein have noticed a difference in Sam since he began photography as well. “He has improved his attention skills, reasoning and decision making skills, interpersonal skills, eye-contact and has interacted with a variety of people in a variety of situations,” says Battista-Hancock. “Most of all, Sam has developed a sense of who he is as a person, what makes him special, and his self-confidence has blossomed and launched him in on a path of successful living... without being defined by autism.” Debra and Sam are saving for a camera upgrade and a telephoto lens so Sam can shoot birds, and when Sam is old enough he wants to take scuba diving lessons and classes at the community darkroom. They're also planning more local events to showcase Sam's work. “Sam’s life is better because of photography,” Debra says. “The camera is a very powerful tool.”

Jillian Melnyk is the Editor for Rochester Area & Genesee Valley Parent Magazine.

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“

When he’s with [his horse] Lexi, it’s so easy to observe just how happy Dylan is. His favorite part is when he and Lexi are trotting around the stables, and Dylan just has this huge smile on his face. After all these years, Dylan has more control of the horse. When he and Lexi participate in a horse show, he receives a ribbon like the rest of the riders and he’s just beaming!

PHOTO COURTESY OF HERITAGE CHRISTIAN STABLES

– Pete Vamvakias, Dylan's Father

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getting active / by John Boccacino

extraordinary bonds HOW THERAPY ANIMALS HELP CHILDREN WITH SPECIAL NEEDS

ylan Vamvakias is a vibrant, outgoing 10-year-old who has never struggled with self-confidence. Like other children his age, Dylan enjoys playing with his toys and spending quality time with his family. When there is a crowd surrounding him, Dylan will often play to the crowd, embracing being the center of the group’s attention. But for as outgoing and personable as Dylan happens to be, the fifth-grader at the Park Road Elementary School in Pittsford lives with Down Syndrome, a genetic condition in which a person has 47 chromosomes instead of the usual 46. Dylan’s condition causes problems with the development of both his body and brain and, as a result, he communicates mostly through sign language, though he does have the ability to verbalize some of his more basic thoughts.

Like the thousands of children in Rochester and the surrounding communities living with mental, physical, or developmental disabilities, life presents different challenges for Dylan and his family. But Dylan and many of his schoolaged counterparts are turning to therapy animals as a way to cultivate their social and inter-personal skills while having a fun time in the process. For the last three years, Dylan has eagerly anticipated his weekly Wednesday horse riding lessons with his beloved bay horse, Lexi, at Heritage Christian Services’ Heritage Christian Stables. There, alongside horses trained specifically to work with children with special needs, as well as dedicated and trained volunteers serving as both the horse leaders and side walkers, Dylan and his peers have a blast learning all about horses. Pete Vamvakias, Dylan’s father, says that while his son won’t often verbalize the emotions he experiences while perched high atop his

trusty and friendly equine, the earto-ear smile tells the whole story of Dylan’s love affair with Lexi. “When he’s with Lexi, it’s so easy to observe just how happy Dylan is,” says Pete. “It’s great for Dylan to have his own activity, and he can be the center of attention. His favorite part is when he and Lexi are trotting around the stables, and Dylan just has this huge smile on his face. After all these years, Dylan has more control of the horse. When he and Lexi participate in a horse show, he receives a ribbon like the rest of the riders and he’s just beaming!” Besides having a cherished weekly activity to look forward to, Pete says having this experience with animal therapy has helped Dylan improve his balance, posture and coordination while socializing better with kids his own age and learning respect for animals. For the better part of a half century, Lorrie Renker has dedicated her life to therapeutic horse riding, and has spent 46 years introCONTINUED >>>

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“

Horses are great for working with children with special needs because the horse is non-judgmental and accepts the riders, regardless of their limitations or special needs. – Lorrie Renker, director at Heritage Christian Stables

PHOTO COURTESY OF HERITAGE CHRISTIAN STABLES

ducing children with special needs to the benefits of working with horses. Renker, the director at Heritage Christian Stables, grew up in Massachusetts surrounded by horses as a self-described “stable bum” who spent as much

time riding as she could. Sensing a potentially life-altering future in the field of equine therapy for children with special needs, Renker’s passion for her occupation has taken her across the globe — from Greece to South Korea —

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spreading the word on the benefits of equine therapy. Among her accomplishments, Renker has worked with campers with Cerebral Palsy on Martha’s Vineyard outside of Cape Cod, Massachusetts, and started up a therapeutic riding/horse-

manship degree at St. Andrews Presbyterian College (now St. Andrews University) in Laurinburg, North Carolina. For children with special needs, Renker says horses are the perfect vehicle for building up self-esteem and improving physical and mental development, as well as their communication skills and social interactions. All this can be accomplished while enjoying a ride atop a majestic horse that has been hand-picked to work with

them. “Horses are great for working with children with special needs because the horse is non-judgmental and accepts the riders, regardless of their limitations or special needs,” says Renker. “There is a bond that develops between horse and rider, and horses tend to have a magical, mythical impact on young riders. A horse is very honest; if you treat them right and show them respect they will treat you right and the rider will accomplish his or her goals.” Of course, before these children can receive these valuable skills, they first must rely on the guiding hand of the volunteers, who number approximately 85. These volunteers receive professional training in several forms. The first step is an hour-long introductory lesson where volunteers learn the basics of working with these specially trained horses who have been selected for their temperament and ability to adjust to their riders. After the first lesson is completed, a two-hour training lesson is conducted in the barn, where the volunteers learn how to groom the horse, how to lead the horse on the trot and what it takes to deal with any potential problems that may arise during the riders’ lessons. “Safety is tantamount,” Renker says, “because when the child is up on the horse, there isn’t much time to figure out how to handle a potential crisis.” Once the rider’s comfort level with the horse increases, she can gallop around the stables with fewer and fewer helpers. In fact some special needs riders progress to where they only need someone to lead the horse around the stable, and are able to demonstrate a solid command over the horse without the benefit of walkers. “This type of activity is really important for these kids,” Renker says. “They have different types of therapy all the time, but here it’s different. A horse is a dynamic, moving surface that you can’t replicate in therapy sessions. Through the interactions with their horses, special needs children really can blossom and grow.”

More Furry Friends Animal therapy extends well beyond the horses, with dogs, cats and even bunnies being utilized by assorted groups and organizations across the Rochester area. Lollypop Farm offers animal therapy sessions year round for children at Cerebral Palsy of Rochester. These children receive valuable one-on-one time with assorted CONTINUED >>> Rochester Area & Genesee Valley Parent • Special Parent 2012

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“

Dogs don’t care if a child can’t speak, or if their brain functions differently than other children; all they want to do is love you and share that bond. – Kathleen Richards, an evaluator with Therapy Dogs International in Rochester

A THERAPY DOG FROM LOLLYPOP FARM VISITS WITH LOCAL CHILDREN

trained dogs, cats, rabbits and even guinea pigs. Joette Hartman, Lollypop’s coordinator of the pet assistance therapy program, says having therapy animals spend time with children with cerebral palsy helps the children “build up their self-confidence and their self-esteem while spending time with an animal that is completely non-judgmental.” She adds, “These specially-trained therapy dogs are great because they love working with children and know how to get along with special needs patients who have different needs and requirements.” Hartman’s dogs receive training from either Therapy

Dogs International or Pet Partners, both national organizations responsible for ensuring these therapy dogs are welleducated in dealing with special needs children. “After we’re able to prove a dog is safe and reliable for use as a therapy animal, we take the dogs wherever there is a need, and wherever the dog will do the best work,” says Kathleen Richards, an evaluator with Therapy Dogs International in Rochester who estimates she has trained over 800 therapy dogs. “Some dogs are not good to be around kids, they can find children to be too exciting with their high-pitched voices and quick movements. A good

Get It!

therapy dog will go where you ask them to go, and to work with children with special needs, a dog needs to be especially gentle and understanding and respect the limitations of these children. But being afraid is not an option.” Much like their horse counterparts, Richards points to a canine’s loving attitude and non-judgmental personality as the biggest reasons why children with special needs can make tremendous strides in their personal development. “Dogs don’t care if a child can’t speak, or if their brain functions differently than other children; all they want to do is love you and share that bond,”

Richards says. “Most therapy dogs make that special connection with these children immediately. If you take a therapy dog into a room with four people, a good therapy dog can pick up on emotions and will focus on the impactful connection they can make with a child.”

John Boccacino is a freelance writer living in Webster, NY who reported on sports and local news for more than 6 1/2 years with the Democrat and Chronicle newspaper. He is currently the Director of Sports Information for Keuka College.

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spotlight / by Jillian Melnyk

local parent

Q&A

Kevin Schoenl FATHER TO MATTHEW, 6, AND BRADLEY, 3, AND PRESIDENT/FOUNDER OF MANAGING AUTISM TOGETHER (MATT)

nce a happy, bright baby, saying words like “ball” and identifying planes overhead, at 18 months of age, Matthew Schoenl began to experience speech delays. “His voice fell silent, he began losing his focus and eye contact, and some of his obsessions started to appear,” says his father, Kevin. After a year of speech services, Matthew wasn't making progress, and his mother, Connie became concerned. She noted that the symptoms looked like autism. Eight months later, her suspicions were confirmed. But Connie and Kevin wouldn't sit back and accept their son's diagnosis without a fight. In the wake of the news, they took action, and founded Managing Autism Together (MATT), a local not-for-profit organization that assists families with children with Autism Spectrum Disorder in locating and utilizing area resources. What were your first thoughts when you learned about your son's diagnosis: What do we do now? I was devastated and not prepared for what the diagnosis would mean for Matthew and our family. I spent the first year after the diagnosis being upset, angry, and isolating myself. I did not know anything about autism, and had a very difficult time accepting that my son received this diagnosis. Over time I began to realize that I needed to focus my energy on helping him and finding solutions for some of the aspects in his life that he struggles with. I needed to focus on what will make his life better and not on my initial problems with labels, asking for help, and other people’s perceptions.

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What led you to found MATT? Knowing that there is not currently a cure for Autism, we founded the organization to make it easier for other families with children with Autism Spectrum Disorder to locate, obtain, and use the community resources that are available to assist their special needs children in the Rochester area so that these children will be able to live happy, healthy, and productive lives. Describe your parenting style in one word: Involved Proudest parenting moment: My son’s 5th birthday when I heard him say “daddy” for the first time.

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Describe your son in one word: Inspirational. He only knows the life he has been living and he makes the most of it. What is most challenging about raising a child with special needs? In our case, his lack of communication. There are many times where Matthew will burst into tears, and will cry for 10 minutes at a time, and this may happen when he’s doing something that he enjoys. Because he can’t speak, we have no idea why this is occurring, and it breaks our heart to watch. The best piece of parenting advice you ever got: “Believe that your child can accomplish more than you can imagine.” On the difficult days,

Matthew Schoenl it’s hard to imagine anything in your child’s future beyond endless therapies and assisted living. However, if you truly have the belief that your child can be successful at something, and you continue to give them the resources to help them meet that goal – whether it be through therapy, specific equipment, or just plain patience – when they finally accomplish it, that is the precise moment where you turn negativity into hope. Advice for other parents: Be patient and be optimistic. Understand that there will be bad days, but there will be great days too – days when you know you are getting through to your child. And trust yourself when making decisions.

There are many wonderful people in the community that will give opinions, however only you truly know your child. How can people get involved and learn more? MATT is a 100% volunteer organization. We exist due to those who dedicate their time to help plan, organize, and volunteer at our monthly and annual events. People can also register on our website, www.managingautism.org, to receive our monthly community updates, learn about community events, sponsorship, donations, and getting involved with MATT.

Connecting & Getting Involved MATT’s website, www.managingautism.org, provides information about numerous local business and organizations that provide early intervention, autism services, assistive technology, medical & dental care, hair stylists, parent and sibling support, recreational opportunities, research, respite, service coordination, and transition services, as well as monthly and annual opportunities for families affected by Autism. Additionally, MATT’s online community calendar centralizes information from over 20 organizations that host seminars or events related to autism.

Monthly Social Events MATT hosts monthly social events including a Family Fun Night at BounceIt-Out (2nd Wednesday of the month), a Dad's Night Out (3rd Wednesday of the month) and a Mom's Night Out (4th Wednesday of the month).

Autism Spectrum Connection Fair In April 2012, MATT hosted its 1st Annual Autism Spectrum Connection Fair. This free event included resources from 78 local organizations and businesses. The 2nd Annual Fair is scheduled for April 20, 2013.

MATT-o-ween Bowling party at AMF Fairview Lanes This Halloween-themed bowling event for families affected by autism is scheduled for October 21, 2012. Rochester Area & Genesee Valley Parent • Special Parent 2012

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advice / by Rachael Moshman

things to know

about parents of children with special needs

y husband and I adopted our daughter when she was nine years old. She has a long list of mental health diagnoses. We quickly discovered that parenting a special needs child results in the whole family having a special set of needs. As I've interacted with other parents of children with special needs, I've noticed that there are some factors that most of us have in common. These characteristics are typically present regardless if the child has been diagnosed with ADHD, autism, physical disabilities, Down syndrome, emotional issues or any other special needs.

We're tired. Really, really tired. Exhausted, actually. This isn't an occasional thing for us. We don't miss out on a full night of sleep once in a while. It's all of the time. My daughter suffers with insomnia and nocturnal panic attacks. It is not uncommon for her to be awake for most of the night. Even if we do get enough sleep, we're still run down from all of the energy it takes to manage our children’s conditions. Our schedules are jam packed with various doctor, therapy and psychiatric appointments, IEP meetings and trips to the pharmacy. On top of it all, we still have to go to work and keep up with general household duties.

Our brains are constantly busy.

We're always considering possible triggers in every situation, wondering how to explain our children’s unique needs to others and worrying about the future. My daughter suffers from post-traumatic stress disorder and seemingly innocent encounters can send her into a meltdown. I spend hours analyzing every one, looking for the trigger and making plans to help her process it and get through it better next time.

Let them know what you’re going through! Copy this page to a friend, colleague, or relative.

We're lonely. Our friends and family often have stepped away because our children’s needs made them uncomfortable. Or perhaps we had to step away from them because they refused to respect our boundaries and parenting decisions. Most special needs children don't respond well to traditional parenting methods. Our brains may explode if we hear one more time that all our child needs is more discipline. Discipline isn't the issue – our children’s special needs are. By the way, that isn't their fault nor ours. My husband's mother even cut off contact because she found our situation to be too stressful to be part of.

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We know more about our child's condition than most doctors. My daughter is diagnosed with reactive attachment disorder. I've read piles of books on the subject and keep up with the latest research online. Her pediatrician has never heard of the disorder. Mental health professionals in our area have very limited knowledge of it. I had to become the expert.

We're fragile. We feel judged all the time. We want what's best for our children like any other parent and worry if we're doing enough for them. We often don't have enough time or energy left to take care of ourselves. So what can you do to help parents of children with special needs? Understand that we're overwhelmed and near the edge. Bring us coffee and a muffin "just because." Tell us we're doing a great job. Be gentle and kind with us. We're doing the best we can.

Rachael Moshman is a mother, freelance writer, educator and family advocate. She lives with her husband, daughter, and three cats. Find her online at www.rachaelmoshman.com

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health / by Julia Garstecki

sleep & special needs HOW YOU CAN HELP YOUR CHILD WITH SPECIAL NEEDS GET A GOOD NIGHT’S REST

or parents of children with disabilities, the chance of a full night's sleep (even four consecutive hours) seems less obtainable than Michael Phelps’ Olympic record. According to Dr. Durand, known worldwide as an authority in the area of autism spectrum disorders, “Disabilities such as autism spectrum disorder, severe visual impairments and seizure disorders seem to be most susceptible to problems with sleep.” He explains it is possible that “disruptions in melatonin production in autism may contribute to the very high number of sleep problems.”

For those with Asperger’s disorder, anxiety can make it difficult to sleep at night, and those with seizure problems can suffer from disruptive sleep due to changing brain wave patterns. Some children with various disabilities such as Down syndrome, muscular dystrophy, or cerebral palsy may have lower muscle tone, which may cause sleep apnea (when a person stops breathing for short peri-

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ods of time). Dr. Accardo, Director of the Sleep Disorders Clinic and Lab at the Kennedy Krieger Institute in Baltimore, helps families desperate for a good night’s slumber. While parents can hope for a quick fix, it may or may not exist. Rarely does she suggest medication, and reminds parents that strategies for sleep success are child specific. The nature of the disabil-

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ity and factors in the home environment can impact sleep issues, and for this reason parents need to understand that fixing the problem can take a while, especially if poor sleep has been an ongoing issue. If it’s clear your family is in need of help, consult your child’s physician. They may refer you to a specialist or sleep clinic like the one at the University of Rochester

Medical Center. Most likely, you will begin with a sleep log or diary to record when your child falls asleep and when they wake up throughout the night. The doctors will be looking for three things: the duration of sleep, the consistency, and frequency of night waking. Generally speaking, sleep problems fall into three categories: too much or not enough sleep, sleeping at the wrong time, or

Dr. Accardo reminds parents that consistency is a key factor in sleep behaviors, which includes the conditions needed to fall back to sleep. For example, if quiet music helps the child fall asleep the first time, make it easy for the child to have the music if they wake up in the middle of the night. disruptive sleep activities like sleep terrors. Dr. Heidi Connolly, from the University of Rochester Medical Center, says occasionally fixing the problem can be as easy as setting a consistent bedtime routine. This can vary depending on the age of the child, but the routine should be constant and dependable – one that can be followed each night regardless of who puts the child to bed. Though it is tempting to allow your child to stay up later on the weekend than during the week, Dr. Accardo suggests not deviating too drastically from your weekday bedtime, and keep the rituals the same. Dr. Durand also suggests a technique called “sleep restriction” which involves restricting the amount of time your child sleeps during the day. If they have been active throughout the day, they should fall asleep faster at night. For many parents, persuading their child to sleep alone in their own room can be difficult, and for that they suggest “sleep training.” There are many variations of sleep training to try, but according to Dr. Accardo’s team, gradual methods seem to work better than forcing your child to sleep alone cold turkey. This is because routines are important for children, more so for children that have disabilities that include anxieties and need for structure. A gradual sleep training program begins with laying your child in her bed and sitting on the bed with her until

she falls asleep. When that has been successful, move to a chair in the room, then stand in the doorway, and eventually you may not be needed at all. If the child never slept well to begin with, this can take a while, and as a parent, it’s important to be both patient and persistent. If your child has a tendency to wake during the night, observe what it takes for him to fall back to sleep. Does he need you to snuggle with him? Sit on the bed with him? Dr. Accardo reminds parents that consistency is a key factor in sleep behaviors, which includes the conditions needed to fall back to sleep. For example, if quiet music helps the child fall asleep the first time, make it easy for the child to have the music if they wake up in the middle of the night. Getting your child to sleep doesn’t have to be a nightmare! It can be something as easy as too early or late a bedtime, or too much caffeine ingested throughout the day. If you do need more help, though, there are resources available. Start with your pediatrician, who can offer help and may recommend a sleep clinic.

Julia Garstecki is contributing writer to Rochester Area & Genesee Valley Parent Magazine. She is a teacher and freelance writer focusing on families with special needs. For more resources, visit juliagarstecki.com.

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health / by Karen Higman

autism spectrum disorder on the

rise

IN THE WAKE OF DIAGNOSES INCREASE, LOCAL PARENTS FIND SUPPORT

arents have high expectations for their babies. They want their children to be happy and healthy and to succeed in life. Remember back to that first year of your child's life when everything started falling into place. Like any new parent, you were tired and a little bit scared, but the overwhelming love that you felt for your baby was helping you get through even the tough days. Now imagine that you begin to notice that your child does not seem to be acting like the other children or meeting milestones like his cousins or friends. Is there a problem? You start with your pediatrician, and one visit turns into many, many visits with your doctor and specialists. Your head is spinning with information, while your heart is sick with worry.

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This is the scenario that plays out every day in the Rochester area and across the country as anxious parents learn that their child is part of the 1% of the US populations who has Autism Spectrum Disorder (ASD). According to the Center for Disease Control (CDC), ASDs are a group of developmental disabilities that can cause significant social, communication and behavioral challenges. People with ASDs handle information in their brain differently. If it seems like you have heard more about autism in the last few years, you’re correct. The rate of diagnosed cases of autism is on the rise and continues to increase. A recent study by the CDC indicates that autism now affects an alarming one in 88 children, (one in 54 boys), which is much higher than the organization’s numbers released in 2009. Although there are many theories about the rise in cases – ranging from environmental causes to childhood vaccines -- the parents of children who are “on the spectrum” care deeply about what resources are now available to their children.

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“

Children with autism are similar to their peers in the fact that every kid is different. Some children are more verbal, some more withdrawn. You can’t make blanket statements that begin with 'all children with autism...' – Ann Cole, a local mother of two children with ASD

An Organization Born Out of Parental Love “Children with autism are similar to their peers in the fact that every kid is different,” says Ann Cole, a local mother of two children with ASD. She says that her kids do not have similar symptoms and that no two children are exactly the same. “Some children are more verbal, some more withdrawn. You can’t make blanket statements that begin with 'all children with autism,'” she says. “Although there are certainly traits that are more common among those with ASD, one of the challenges is finding help for exactly what your child needs.” Help is exactly what Ann found when she contacted Upstate New York Families for Effective Autism Treatment (UNYFEAT). The Rochesterbased organization was started

in 2004 by four concerned area mothers who would meet in a coffee shop to talk about what therapies were working for their own children. The mothers shared information, referring each other to those who could help their sons and daughters. However, they soon realized that the issue was much bigger than they realized, and there was no organization to bring families affected by ASD together, particularly for socialization, which was critical. Their answer was to start an organization. Together, they founded UNYFEAT, which in the past eight years, has grown to 1,000 local members who are dedicated to supporting children with autism and their families by expanding and enhancing opportunities to improve their quality of life.

A recent study by the CDC indicates that autism now affects one in 88 children, (one in 54 boys)

Help in Our Community “We were not alone,” says Julie Buick, a local mother of three children, including two boys on the spectrum. “After years of feeling like there was no place for us to fit in, we met families who shared our challenges and our triumphs.” Buick is now a volunteer board member and Cole is a part-time staff member at UNYFEAT. The organization currently operates eight ongoing special interest groups during the school year for kids ages 5-16, parent support groups, an electronic message board for parents, an annual conference for both parents and professionals, and summer social skills camp and bike camp programs. Sarah Milko is a parent of a son with autism and the President of the UNYFEAT Board. She explains that UNYFEAT is different from a national group with a local presence because UNYFEAT focuses on the educational and recreational needs of local families by building social skills. “And we're a local not-for-profit that directly benefits local families,” she says. Milko also notes that Rochester is very fortunate to have a number of excellent medical resources for families affected by ASD including The Kirch Center at the University of Rochester. Local parents who are affected by autism say there is reason for optimism as new information is constantly being discovered. “The scene has changed dramatically even over the last five years,” explains Milko. “As everyone in our community becomes more aware of ASD, there is a greater level of acceptance for our children and an increased willingness to help.”

continued >>> Rochester Area & Genesee Valley Parent • Special Parent 2012

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Potential Warning Signs of Autism There is no cure for autism, but much of the emphasis is on early detection and intervention which can vastly improve a child’s outcome. The Modified Checklist for Autism in Toddlers (M-CHAT™) is a scientifically validated tool for screening children between 16 and 30 months of age to assess their risk for ASD. The American Academy of Pediatrics (AAP) recommends that all children receive autism screening at 18 and 24 months of age, and the M-CHAT is one of the AAP’s recommended tools. Keep in mind that just because your child scores at risk on this test, it does not mean that ASD will be the final diagnosis. It simply indicates that further testing may be warranted. All parents should be proactive in ensuring that their child receives this screening and that any concerns they have regarding their child's health or development are given serious consideration by their pediatrician or health care provider. Nothing replaces a parent’s ability to share with a doctor what they see their child doing on a daily basis. According to the CDC, a child with ASD might show the following symptoms, although parents should always check with their own physician. • Not responding to their name by 12 months • Not pointing at objects to show interest, e.g., point at an airplane flying over, by 14 months • Not playing "pretend" games, e.g., pretend to "feed" a doll, by 18 months • Avoiding eye contact and wanting to be alone • Having trouble understanding other people's feelings or talking about their own feelings • Having delayed speech and language skills • Repeating words or phrases over and over (echolalia) • Giving unrelated answers to questions • Getting upset by minor changes • Having obsessive interests • Flapping their hands, rocking their body, or spinning in circles • Having unusual reactions to the way things sound, smell, taste, look, or feel Karen Higman is a contributing writer to Rochester Area & Genesee Valley Parent Magazine. She is a fund-raising consultant for non-profit organizations who lives in the Rochester, NY area.

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education / by Michele Ranard, M.Ed.

the teacher thinks my child needs

testing

TIPS TO FOSTER COMMUNICATION WITH SCHOOL AND EASE YOUR ANXIETY

hen my son’s first-grade teacher said she suspected a serious learning disability, I freaked. Despite my background in counseling, I let anxiety temporarily distract and paralyze me. I needed this article. It was a bumpy road for my struggling son, but I’m happy to report that with time, tutoring, advocating, and a wait-and-see approach, he is thriving. These tips may ease your worry if your child faces a similar challenge.

Listen With an Open Mind In their handbook The Way of Boys (Harper Collins, 2009), Anthony Rao and Michelle Seaton say parents sometimes disagree about the need for testing. They suggest parents remain open even if they’re convinced that what their child is experiencing is simply a developmental glitch. The teacher brings a wealth of valuable information to the table which, they say, “may or may not be accurate long term, but describes what’s been happening recently.” If it turns out your child is simply navigating a developmental rough spot, the feedback from his teacher seeing him every day may still lead to an educational plan to serve him better.

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Learn About Learning Disabilities & Your Rights Gathering information about learning disabilities (LD) and attention disorders and becoming familiarized with the vocabulary will help you better advocate for your child. The website Ldonline.org provides up to date information and advice about LDs and ADHD. You should not assume your child’s school will provide everything you need to know about your rights. Every state has a Parent Training and Information Center financed by the Individuals With Disabilities Education Act (IDEA). Information for Rochester area parents can be found at www.advocacycenter.com or visit www.Wrightslaw.com, a website

www.GVParent.com/SpecialNeeds

for special-education law and advocacy.

Keep Emotions In Check Depending on your interpersonal style, you may react to the news your child has a problem with panic like me, feel upset or angry, or even shut down. It is stressful to hear there may be something wrong, but in order to effectively help your child, your response is critical.

To make clear-headed decisions, keep these ideas (culled from the chapter on testing in Rao and Seaton’s new book) in mind:

1. Keep paper at hand for phone conversations with the school. “If you’re panicking, you won’t process the information, or remember the details, and you might acciden-

“

Don't think of a diagnosis of a learning disability as the end of the world. Think of it as the first step in getting your child the help he needs to survive and thrive in school. – Susan Yellin, Founder and Executive Director of the Center for Learning Differences

tally inflame the situation with a defensive or hostile reaction.” Writing down the teacher’s thoughts will give you something other than fear to focus on.

2. Prepare questions before a parent-teacher conference. Make sure to ask about your child’s strengths and remain focused on solutions. Ask “What should we do at home, and what might you plan to do at school, so we can help him?”

3. Take notes like a journalist. Get details about the teacher’s observations, specific behaviors and incidents, the time of day, and classroom happenings when the behaviors occurred. Gathering information to become educated in this way is better than “remembering instead only a few phrases and your emotional state.”

4. Keep your child’s teacher in the loop. Send a note with your child so teachers stay updated about treatment, milestones at home, and tutoring. Share the positive stuff too!

5. Take your time. If you show up for a parent-teacher conference and instead find a meeting of administrative staff sprung on you, feel free to reschedule. Parents have a right to be prepared for such meetings which can overwhelm with technicalities and emotion. You may be asked to sign forms, and these should be reviewed carefully at home first.

6. Prepare statements before a meeting. For example, Rao suggests parents practice one like this: “Let’s pause here. This is all a bit overwhelming, and I’ll need to take this home and get back to you when I’ve had time to digest this. I know we all have Sam in mind here, and I appreciate that.”

Keep Your Eyes on Your Child Founder and executive director of the Center for Learning Differences Susan Yellin advises, “Don't think of a diagnosis of a learning disability as the end of the world. Think of it as the first step in getting your child the help he needs to survive and thrive in school.” Rather than becoming defensive it’s important to remain upbeat and ask lots of helpful questions. School psychologist and learning disabilities expert, Ann Logsden says if you suspect your child has a learning disability, learn about your rights as a parent under IDEA. Additionally, as authors Rao and Seaton suggest, be a cheerful skeptic and stay focused on the long-term well-being of your child “rather than on short-term interventions being thrown at you.” Remember, there are always educational options beyond those proposed by the school.

Michele Ranard is a freelance writer with a background in professional counseling and academic tutoring. Find her online at cheekychicmama.com.

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law / by Stephen K. Koldin, Esq.

planning for

their future

ESTATE PLANNING FOR PARENTS OF CHILDREN WITH DISABILITIES

veryone who has a child or is financially responsible for minors should execute basic legal estate planning documents, including a Last Will and Testament, Power of Attorney and Health Care Proxy. The need for these basic legal documents is even more compelling when you have a child with a disability. Failing to properly plan could result in your child losing his/her government benefits, including Medicaid and SSI. Here are the ins and outs of what you should know about providing for your disabled or special needs child:

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Last Will and Testament A Last Will and Testament is a document expressing your wishes as to how you want your estate distributed at the time of your death. A Will also allows you to designate a guardian to raise your children. Finally, a Will can designate that any assets to be distributed to your children be held in a Trust. For parents with children, there are two important types of Trusts to consider for your Last Will and Testament. For a child who is not expected to require any government benefits, you can leave his/her share in a special asset management trust for minors. This Trust for minors can be used to pay for the support and education of your child until he/she reaches a designated age such as 25 years old. Once he/she reaches the designated age, he/she would then receive the balance outright.

www.GVParent.com/SpecialNeeds

Supplemental Needs Trust For a child who is expected to require government benefits such as Medicaid and SSI, programs that have strict financial eligibility rules, his/her share can be left in a Supplemental Needs Trust. A Supplemental Needs Trust provides that income and principal may be made available to the person with disabilities but only to supplement and not to replace government benefits. As long as the Trust complies with the strict statutory requirements, assets from the Trust can be used to provide for the wellbeing of your child with a disability without disqualifying him/her from receiving governmental benefits. A Supplemental Needs Trust for your child with a disability can be created immediately, through your Will, or as part of the beneficiary clause of your own Living Trust. Also, if you want to be able to make gifts now to your child or grandchild with disabilities, you can establish a Supplemental

Needs Trust immediately as a "living trust" for the benefit of your child or grandchild and make gifts to the Trust for the child to enjoy while you are living. The assets owned by a person with a disability can also be transferred to a Supplemental Needs Trust for his/her benefit if he/she is under age 65. He/she could then qualify for immediate Medicaid coverage or other government benefits. There is no Medicaid transfer penalty period of ineligibility. When a Supplemental Needs Trust is funded with the assets of a person with disabilities, the Medicaid Agency must be designated as the primary remainder beneficiary to be reimbursed for any benefits paid on behalf of the person with disabilities. A second remainder beneficiary can be named to receive any balance left in the Trust. This type of Trust can be very valuable in a personal injury situation. The person with a disability is no longer required to deplete personal injury settlements on the cost of care.

A Supplemental Needs Trust can protect the settlement so the person can qualify immediately for Medicaid. In addition, this type of Trust is useful in a situation where a person with disabilities directly inherits assets in his/her name that could cause him/her to lose governmental benefits.

Power of Attorney A Power of Attorney is an important legal document where you give a person the legal authority to handle your finances and make other business decisions on your behalf. If you become incapacitated in the future and have not signed a Power of Attorney, then a Guardianship proceeding might become necessary. When you have children, a Power of Attorney can be critical to allow someone to access your finances to be able to pay for your children’s needs.

Health Care Proxy A Health Care Proxy designates someone to make medical decisions on your behalf in the event you become incapacitated. If properly drafted, the Proxy should include the authority to carry out your wishes regarding the removal of life support machines, feeding tubes and hydration. There are many factors to consider when deciding whether to establish a Supplemental Needs Trust through your Last Will and Testament, Revocable Trust or Irrevocable Trust, or by establishing an immediate "Living" Supplemental Needs Trust. With a properly designed Supplemental Needs Trust, the quality of life for a person with disabilities can be greatly enhanced. It is recommended that you meet periodically with an Estate Planning Attorney to review your estate planning needs which often can change over time.

Stephen K. Koldin is an Elderlaw and Estate Planning attorney practicing with the Koldin Law Center, P.C. with offices in Rochester and Syracuse. He can be reached by email through the Koldin Law Center’s Website Contact form at www.koldin.com.

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Resources Activities & Programs .....................................36 Advocacy Services ........................................36 Day Care & Child Care ....................................36 Education & Learning Programs ............................37 Health, Medical & Evaluations .............................37 Professional Services ......................................38 Programs & Services ......................................38 Support Groups & Organizations ...........................40

Activities & Programs Cobblestone Arts Center for Persons with Disabilities 630 Crowley Rd. Farmington, 14425 398-0220 ~ www.cobblestoneartscenter.com If your special education student is aging out of school, we offer an artsbased day program for adults with disabilities. We build confidence and self esteem through visual arts, music, dance, and theater. Also performance opportunities and community enrichment activities exist. Medicaid waivered. We offer transportation. Blue Ridge Music Therapy Center 800 East Ridge Road , Rochester, 14612 303-0066 ~ www.trinityassistance.org The Blue Ridge Music Therapy Center is one of Trinity Assistance programs that serve to promote and empower individuals with special needs by providing quality music therapy and creative arts programming for people all ages. Blue Ridge offers a variety of services including music therapy sessions, school-based programming, adapted music lessons, homebased consultation, transitional programming, specialized classes, and group sessions.

The Gymnastics Training Center 2051 Fairport Nine Mile Point Rd., Penfield, 14526 388-8686 ~ gtc@frontiernet.net - www.GTC-Rochester.com The Gymnastics Training Center offers customized Special Needs Programs that can include year-round training & competition in Special Olympics for boys and girls of all ages. Programs for the blind and visually impaired as well as children with Autism are available. GTC believes all disabilities can be turned into possibilities through participation in gymnastics.

Heritage Christian Stables Owned and operated by Heritage Christian Services 1103 Salt Rd. (P.O. Box 200), Webster, 14580 872-2540 ~ info@heritagechristianservices.org www.heritagechristianstables.org Find us on Facebook (Heritage Christian Stables) Therapeutic horsemanship program providing riding lessons for people with special needs led by certified instructors. Applicants must be age four and older. Application/evaluation required prior to acceptance into program. Day/evening lesson times available. The 13-acre site offers programming rain or shine in indoor and outdoor arenas. Program accredited and instructors certified by Professional Association of Therapeutic Horsemanship International (PATH, Intl).

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Special Needs Resources & Area Providers Hochstein School of Music & Dance 50 N. Plymouth Ave., Rochester 14614 - 454-4596 Hochstein at Canandaigua, 435 East Street, Canandaigua 14424 ~ 396-3778 www.hochstein.org Using Music Therapy and Expressive Arts techniques, individuals of all ages with physical, emotional, developmental, cognitive, communication, or social challenges can learn to overcome obstacles while discovering their potential and increasing their independence. Programs include individual instruction, group classes at Hochstein and throughout the community, wellness offerings, and assessments, among others. Music Education Centers 1.877.632.6833 ~ www.musicedcenters.com/ Music Education Centers has developed educational systems that break Musical tasks down to their very core to ensure success for every student. These programs are particularly appropriate for students with Autism Spectrum Disorder, Down Syndrome or other Developmental or Learning Disabilities. Call Today to schedule a FREE trial lesson.

Rochester Fencing Club, LLC 777 Culver Rd., Rochester 14609 654-6047 ~ www.RochesterFencing.com We serve youth with learning and developmental challenges. Visit our website, come in, or call for more information on how to get started with fencing. Special Olympics 1 Grove St., Suite 216, Pittsford, 14534 586-7400 ~ www.nyso.org

Advocacy Service The Advocacy Center 590 South Avenue, Rochester, 14620 546-1700 or 1-800-650-4967 www.advocacycenter.com - www.specialedparentcenter.org Information, advocacy and service coordination for individuals with disabilities and their families. Educational workshops for individuals, families and groups on many disability-related topics. Interactive workshops for organizations and schools to increase their effectiveness working with individuals with disabilities and their families. Workshop catalog available online. Berkowitz, M.Ed., J.D. Legal Representation and Consultation 6605 Pittsford-Palmyra Rd., Suite E-10, Fairport, 14450 421-9094 Joyce Berkowitz provides legal representation and consultation to parents of disabled children, preschool through grade 12, on Special Education issues including school disciplinary actions. She welcomes the opportunity to advocate at Committee on Special Education meetings, represents parents at due process impartial hearings and at ALL levels of appeal.

Day Care & Child Care Child Care Council, Inc. 595 Blossom Road, Suite 120, Rochester, NY 14610 654-4720 or TTY – 654-1224 ~ www.childcarecouncil.com Special Needs Programs include child care referrals (including confirmed vacancy checks) , technical assistance for parents and caregivers plus caregiver access to loaned equipment/toys specifically designed for special needs children. The Council is your community resource for all early care and education issues, programs and business start-up.

Daystar for Medically Fragile Infants 47 Lochnavar Pkwy., Pittsford, 14534 385-6287 ~ www.daystarhome.net Daystar for Medically Fragile Children is a nursing supervised day and respite program for children up to 5 years of age. The Daystar for Medically Fragile Children home is specifically designed to support families whose vulnerable babies require care above and beyond the capabilities of traditional child care. Open Mon.- Fri. from 7:30am to 5:30pm. Expressive Beginnings Child Care A division of Heritage Christian Services 875 Commons Way, Rochester, NY 14623 340-2077 ~ www.expressivebeginningschildcare.org ~ info@expressivebeginningschildcare.org Find us on Facebook (Expressive Beginnings) and Twitter (@ExpBeginnings) Care for infants/toddlers, preschool, pre-k, full-day kindergarten, wraparound care and school-age summer program. Staff is trained to empower and celebrate children of all abilities. Teachers stay with same group of children through age 3; internet monitoring helps parents be part of their child’s day; fingerprint recognition enhances security. The center is on the Pieters Family Life Center campus. Stepping Stones Learning Center 41 Colebrook Dr., Rochester, 14617 467-4567 ~ Info@steppingstoneslearning.com www.steppingstoneslearning.com Stepping Stones Learning Center strives to be the advocate and leader in the development and implementation of inclusionary services for children of all ages and backgrounds through the design of programs that meet the child’s ever changing needs. Classroom programs provide a unique learning environment for children with and without special needs.

Education & Learning Programs Augustin Children’s Center 3399 Winton Road South, Rochester, NY 14623 334-6000 ~ www.cprochester.org Your child can benefit from our many services delivered at our center, in your home, at school or in the community. We offer Early Intervention Services, Preschool, Physical, Speech/Language, Occupational and Music Therapies and Individualized Adaptive Services. Call or visit our web site for information or to tour our facility. Communication Center for Hearing & Speech & STARS Preschool 380 Cedarwood Office Park, Fairport, NY 14450 223-5090 ~ www.communicationctr.com CCHS is a NYS Department of Education and Department of Health approved agency that provides special education, speech, occupational and physical therapy services for children birth - 5 years of age. STARS is a preschool program for children with typical and/or delayed development - locations in Gates, Fairport, Webster and E. Irondequoit.

LDA Life and Learning Services 339 East Ave., Suite 420, Rochester, 14604 263-3323 ~ info@LDARochester.org - www.LDARochester.org Since 1963, LDA has been helping families access appropriate educational supports for their children who are struggling in school or who have learning disabilities, ADD/ADHD or other developmental disabilities. Educational consulting, individualized transition services, college coaching, life coaching, employment support, community workshops and information and referral services are offered. Rochester Childfirst Network 941 South Ave., Rochester, 14620 473-2858 ~ www.rcn4kids.org Rochester Childfirst Network (RCN) is more! A Preschool. A Place for Children with Special Needs. An After-School and Summer Day Camp for school age children. A Resource for Child Care Providers. A Leader in Early Education for over 150 years. Nationally Accredited. Serving Children 18 mos-12 years. Rochester School for the Deaf 1545 St. Paul Blvd., Rochester, 14621 544-1240 voice/TTY ~ www.RSDeaf.org Rochester School for the Deaf is one of America’s leading, private schools for deaf and hard of hearing children, newborn to 21 years old. New York State Regents-level educational programs are provided at no cost to families. RSD has built successful futures for deaf and hard of hearing children and their families, since 1876. Visit us online. Stepping Stones Learning Center 41 Colebrook Dr., Rochester, 14617 467-4567 ~ Info@steppingstoneslearning.com www.steppingstoneslearning.com Stepping Stones Learning Center strives to be the advocate and leader in the development and implementation of inclusionary services for children of all ages and backgrounds through the design of programs that meet the child’s ever changing needs. Classroom programs provide a unique learning environment for children with and without special needs.

Health, Medical & Evaluations Dr. Maria Aslani-Breit, D.D.S., PLLC Pediatric Dentistry, 1655 Elmwood Ave., Suite 120, Rochester, 14620 427-8620 Our mission is to provide specialized and comprehensive care for children from infancy through adolescence including those with special needs in a fun, safe and state of the art environment with a focus on prevention and education for the families. Marcy A. Bush Ph.D. 95 Allens Creek Road Building 1, Suite 324 Brighton 14618 241-0031 Providing psychotherapy for children, adults and families. Most insurances accepted. Elmwood Pediatric Group 919 Westfall Rd., Bldg. A. Ste. 015, Rochester, 14618 244.9720 1000 Pittsford-Victor Road, Pittsford, 14534 381.3780 ~ www.elmwoodpediatrics.com The Elmwood Pediatric Group has 65 year history of nationally recognized excellence in pediatric care. Our practice is available 365 days a year and our group is on call 24/7. Our Pittsford-Victor Road office offers morning walk-in hours 6 days per week. Our Westfall Rd. office is located in the Clinton Crossing Medical Complex and offers walk-in hours Mon - Thurs from 5:30 - 6:30 PM.

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Freedom To Speak 8619 North Shore Dr., Honeoye, 14471 329-0616 ~ freedomtospeak@frontiernet.net - www.stuttertherapy.com Freedom to Speak is a specialized speech therapy practice dedicated to treating people of all ages who stutter. Susan Cochrane (owner) is a licensed Speech and Language Pathologist and is Board Recognized as a Specialist in treating stuttering. Traditional and Intensive Programs available. Goodman Pediatrics 500 Helendale Rd., Suite 200, Rochester, 14609 473-7028 ~www.goodmanpeds.com Nothing is more important than the health of your child. That’s why our experienced staff takes pride in providing services in a caring manner on the phone and in the office. Our Doctors offer personalized health care to best suit your family’s needs from infancy through college years. Dr. Marcy Hartle, M.D. 3629 East River Rd., W. Henrietta, 14586 292-6893 ~ tmasfuller@aol.com - www.marcyhartlemd.com Dr. Marcy Hartle opened her solo pediatric practice because of her desire to supervise every level of care for her patients. Her wonderful staff consists of Laura Baker FNP; Sheila Wolf RN; Sharon Woodward LPN; Isabel Kolgut Kerr; David Wolf and Jolana Babacek.

Programs & Services Center for Autism and Related Disorders, Inc. (CARD) Service Region: Monroe County 6 N. Main St., Suite 110, Fairport, 14450 Toll Free: 1(855) 345-2273 info@centerforautism.com ~ www.centerforautism.com CARD diligently maintains a reputation as one of the world’s largest and most experienced organizations effectively treating children with autism, Asperger’s Syndrome, PDD-NOS, and related disorders. Following the principles of applied behavior analysis (ABA), we develop individualized treatment plans for your child. Clinical Associates of the Finger Lakes 590 Fishers Station Dr., Suite 130, Victor, 14654 ~ 924-7207 2765 Buffalo Road Suite 1B, Rochester, 16424 ~ 924-7207 www.clinassoc.com Our exceptional staff of highly qualified speech-language pathologists, special educators, physical therapists, occupational therapists, social workers, and school psychologists provides evaluation and therapeutic/educational services to children to meet the needs of each child and family we serve.

Pamela J. Harwood, LMFT, ATR 61 N. Main Street, Honeoye Falls, NY 14472 585-582-1995 www.PamelaJHarwood.com Child & Family Therapist and Registered Art Therapist specializing in treatment of children 3 and up, adults, and families. Cognitive behavioral therapy, strength-based, solution-focused, art and play therapy, to treat a full range of behavioral health issues.

CDS Monarch, Inc. 860 Hard Road, Webster, 14580 341-4600 ~ http://www.cdsmonarch.org/ CDS Monarch is a world-class human services organization which supports more than 1,700 children and adults with disabilities in the pursuit of their personal dreams. CDS Monarch provides Residential, Employment, Transitions and Day Habilitation Services. CDS Monarch offers Family Support Services that include: Service Coordination, CSS Brokers, Support Groups and Recreation Services, specializing in Autism.

Pediatric Therapy Services of CP Rochester 3399 Winton Rd. South, Rochester, 14623 334-4330 ~ www.cprochester.org Pediatric Therapy Services (PTS) serves children from birth through age 18, working in consultation with physicians, health care providers and educational professionals. We offer Occupational, Physical and SpeechLanguage evaluation and treatment as well as Assistive Technology services. PTS also has a fully accessible heated therapy pool.

CP Rochester Outpatient Clinical Services 3399 Winton Rd. South, Rochester, 14623 334-6000 ~ www.cprochester.org CP Rochester’s Outpatient Clinic offers compassionate care to people of all ages including individuals with developmental disabilities. Support and treatment comes from a team of licensed physical and occupational therapists, social workers, speech/language pathologists, dentists, psychiatrists, psychologists, and massage therapists. CP Rochester also offers preschool, early intervention, and residential services.

Carol I. Reinhardt, Ph. D., Licensed Psychologist (formerly of Lockwood Psychological Svcs., PC) 481 Penbrooke Drive, Suite 5 , Penfield 14526 678-4773 Providing psychological services for adults, children, and families. Most insurances accepted.

Professional Services Koldin Law Center, P.C. 120 Corporate Woods, Suite 130, Rochester, 14623 292-0090 ~ 800-533-8826 ~ www.koldin.com The Koldin Law Center, P.C., provides legal services to individuals and families with loved ones who have disabilities. We prepare Supplemental Needs Trusts to provide for the well being of a person with disabilities without disqualifying him/her from receiving Medicaid/SSI benefits. There is no fee for the initial consultation. Richard Kroll, ESQ 2425 Clover Street, Rochester, 14618 271-4470 Practice covers Trusts, Estates, Wills, Probate, Asset Protection, Elderlaw and Special Needs Planning. Located In a convenient Suburban Location. Red Stone Studios 626 County Road 27, Pittsford, NY 14534-3717 383-4529 ~ www.redstonestudio.com Red Stone Studios provides families with an opportunity to capture those special smiles and expressions that make your child unique. Having worked with Day Star and the Special Olympics, we understand that caring and patience are a must when working with children with special needs. We shoot on location and/or in the studio, whatever fits your needs.

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Easter Seals New York 103 White Spruce Blvd., Rochester, NY 14623 (585) 292-5831 ~ www.eastersealsny.org Easter Seals New York provides exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities. Our ServiceFirst Pledge - Our Customers’ needs come FIRST in all that we do, every day. WHATEVER IT TAKES! Grace Community Services 1786 Penfield Rd, Penfield 14526 672-2749 ~ www.gracecommunityservices.com Since 1987, our family-focused agency has been providing individualized and compassionate services to both our residents and community members. Through faith and caring, we touch lives and help maximize potential. GCS operates Individualized Residential Alternatives, At-Home Residential Habilitation, and Medicaid Service Coordination. Call or visit us online today. Happiness House 731 Pre-Emption Rd., Geneva 14456 ~ 315-789-6828 5415 County Road 30, Canandaigua, 14424 ~ 394-9510 www.happinesshouse.org Happiness House is the leader in services provision for children with disabilities and adults with brain injuries in the Finger Lakes region. Happiness House operates three center-based programs that provide a variety of educational, therapeutic, recreational and family support service options. These programs serve more than 1,000 children and adults.

Happiness House 731 Pre-Emption Rd., Geneva 14456 ~ 315-789-6828 5415 County Road 30, Canandaigua, 14424 ~ 394-9510 www.happinesshouse.org Happiness House is the leader in services provision for children with disabilities and adults with brain injuries in the Finger Lakes region. Happiness House operates three center-based programs that provide a variety of educational, therapeutic, recreational and family support service options. These programs serve more than 1,000 children and adults. Heritage Christian Services 349 W. Commercial St., Suite 2795, E. Rochester, 14445 340-2000 ~ info@heritagechristianservices.org - www.heritagechristianservices.org Find us on Facebook (Heritage Christian Services) and Twitter (@HCSnews) HCS supports 1,600+ children and adults with developmental disabilities through residential home, service coordination, respite and day programs. Inducted into the NYS Office of People With Developmental Disabilities COMPASS program, it is identified as one of the state’s top service providers. Programs: Pieters Family Life Center, Expressive Beginnings Child Care, Employment Alliance, Springdale Farm, Heritage Christian Stables and Heritage Hollow. Mental Health Association Family Support Services, A Family Run Service of the MHA 320 North Goodman St. Rochester, 14607 325-3145, ext. 131 ~ www.mharochester.org Family Support Services provides support for families raising children with mental health diagnoses and behavioral challenges. Programs consist of Parent and Teen Support Groups, Individual Family Support, Family Development, Information, Referral to Services and Educational Advocacy. Ontario ARC 3071 County Complex Drive, Canandaigua, NY 14424 585-394-7500 ~ www.ontarioarc.org Ontario ARC is a non-profit organization that provides personalized services, supports and programs for people with developmental disabilities. The agency’s many supports include: The Autism Center, counseling, guardianship, job coaching & placement, play therapy, recreation & respite, residential, service coordination, as well as school to adult transition.

Pieters Family Life Center A premier program of Heritage Christian Services 1025 Commons Way, Rochester, 14623 487-3500 ~ info@heritagechristianservices.org - www.pietersfamilylifecenter.org Find us on Facebook (Pieters Family Life Center) and Twitter (@RocPieters) A health and wellness facility for people of all ages and abilities, PFLC recognizes each person as a unique individual with needs and opportunities for growth in multiple dimensions. Offering affordable fitness memberships, various traditional and creative therapies, a state-of-the-art HydroWorx 2000 fitness and therapy pool, fitness classes, programs for youths with/without disabilities and more. Trinity Assistance 97 Canal Landing Blvd. Suite 1, Rochester, NY 14626 (585) 861-6817 ~ http://trinityassistance.org We provide personalized innovative programs designed in partnership with individuals with developmental disabilities, recognizing both their individual choices and common interests and Trinity’s Vision, to be recognized by the community and its partners as a world class organization and a premier provider. Trinity also provides Music Therapy at Blue Ridge.

UNYFEAT Upstate New York Families for Effective Autism Treatment 248-9011 ~ contact@unyfeat.org - www.UNYFEAT.org UNYFEAT is a 501(c)3 not-for-profit organization dedicated to supporting individuals with Autism Spectrum Disorder, and their families, by expanding and enhancing opportunities to improve quality of life. Visit our website for more information about our social, recreation and life skill education programs, support services and membership options.

For more Special Needs Resources, Articles and Information

Visit www.GVPARENT.com/SpecialNeeds

Have questions about your baby’s development or just looking for non-emergency advice? 292-BABY is a community collaboration administered by Monroe Community College

• 292-BABY telephone helpline - call 292-baby (2229) to talk free to a registered nurse seven days a week from 7 AM to midnight. From the tip of their heads to the tip of their toes, our nurses can answer any non-emergency question you have. They just love to talk about babies! • 292-BABY television - Monday through Friday from 9 - 10 PM on Cable Channel 4. Programming is for parents of babies from pregnancy to age three. Each night addresses a different developmental stage ranging from pre-pregnancy and newborns through 36 month-olds. • www.292baby.org - the only website in the world where you can access more than 100 educational videos for free on a wide variety of early childhood topics including feeding, potty training, adoption, health issues, parenting concerns and more.

Rochester Area & Genesee Valley Parent • Special Parent 2012

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National and Area Support Groups and Organizations 2-1-1 Finger Lakes Region . . . . . . . . . . . . . . . . . . . . . . . . . 2-1-1 or 1-877-FLNY211 www.211fingerlakes.org 24-hours a day and 7 days a week free, confidential, three-digit phone service that connects people to local specialists which can address their needs.

Dream Factory of Rochester PO Box 308, East Rochester, 14445 . . . . . . . 234-0740 Rochester@dreamfactoryinc.com www.dreamfactoryrochester.com A volunteer organization that fulfills dreams for children diagnosed with critical or chronic illnesses.

292-BABY Administered by Monroe Community College . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 292-BABY (-2229) www.292baby.org/index.htm A community which links parents and child care providers with other professionals, existing community resources and each other.

Compeer Rochester, Inc. 259 Monroe Ave., Rochester, 14607 . . . . . . . . 546-8280 www.rochester.compeer.org This non-profit helps adults and children overcome the effects of mental illness through the healing power of friendship.

Al Sigl Center 1000 Elmwood Ave., Suite 300, Rochester, 14620 . . . . . . . . . . . . . . . . . . . . . . 442-4100 www.alsiglcenter.org Working together to develop a collaborative community solution for accessible space for programs and services to bring abilities to life. The Arc of Monroe County 1000 Elmwood Ave., Rochester, 14620 . . . . . . . . . . . . . . . . . . . . . 271-0660 www.arcmonroe.org Arc provides a warm environment where individuals with mental and/or developmental disabilities exercise their unique talents. Arthritis Foundation 3300 Monroe Ave., Suite 319, Rochester, 14618 . . . . . . . . . . . . . . . . . . . . . . 264-1480 info.uny@arthritis.org - www.arthritis.org Asperger’s Support Group Contact Beth Grier-Leva, Twelve Corners Middle School, 2643 Elmwood Ave, Brighton 14618 . . . . . . . . . . . . . . . . . . . . . . . . 288-4150 The Association for the Blind and Visually Impaired (ABVI) Goodwill Industries of Greater Rochester, Inc., 422 S. Clinton Ave., Rochester, 14620 . . . . . . . . 232-1111 or TTY 232-1698 www.abvi-goodwill.org The Autism Council of Rochester, Inc 1000 Elmwood Ave Suite 200, Rochester, 14620 . . . . . . . . . . . . . . . . . . . . . 413-1681 info@theautismcouncil.org - www.theautismcouncil.org Providing high quality and individualized community integration services. We support youth, young adults, and parents of individuals with Autism Spectrum Disorder (ASD) and other developmental disabilities Autism Jam P.O. Box 245, Fairport, 14450 755-0010 info@autismjam.org - www.autismjam.org Autism Speaks www.autismspeaks.org Depression and Bipolar Support Alliance 320 N. Goodman St., Rochester, 14607 . . . . . . . . . . . . . . . . . . . . . . 924-7936 www.dbsaroch.org

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www.GVParent.com

To submit your organization’s information, send e-mail to: office@gvparent. com or mail to: GVP Special Needs Resource 266 Alexandar Street, Rochester, NY 14607 March of Dimes 3445 Winton Place, Suite 121 Rochester, 14623 . . . . . . . . . . . . . . . . . . . . . . 424-3250 www.marchofdimes.com/newyork Meeting Extraordinary Moms Out (MEMO) Erin Beyers erinbeyers@gmail.com Melissa’s Living Legacy Teen Cancer Foundation 1000 Elmwood Ave, Suite 300 Rochester, 14620 . . . . . . . . . . . . . . . . . . . . . . 563-6221 http://melissaslivinglegacy.org

Continuing Developmental Services Parent Support and Education 860 Hard Rd., Webster, 14580 . . . . . . . . . . . . 341-4600 apopeck@cdsunistel.org - www.cdsunistel.org Group for parents and family members of people with disabilities to come together for support, resources, and information sharing.

Multiple Sclerosis Society Upstate New York Chapter 1650 South Ave., Suite 100, Rochester, 14620 . . . . . . . . . . . . . . . . . . . . . . 271-0801 or . . . . . . . . . . . . . . . . . . . . . 800-FIGHT-MS (344-4867) CHAPTER@MSUPSTATENY.ORG www.msupstateny.org

CURE Childhood Cancer . . . . . . . . . . . . . . . . . . . . . . . . 800-443-CURE (-2873) www.curechildhoodcancer.org

Muscular Dystrophy Association 1425 Jefferson Rd., Suite 19 Rochester, 14623 . . . . . . . . . . . . . . . . . . . . . . 424-6560 www.mdausa.org

Epilepsy Foundation of Rochester-SyracuseBinghamton 1650 South Ave., Suite 300 Rochester, 14620 . . . . . . . . . . . . . . . . . . . . . . 442-4430 www.epilepsyuny.org Flower City Down Syndrome Network 2117 Buffalo Rd., Suite 132 Rochester, 14624 . . . . . . . . . . . . . . . . . . . . . . 568-7421 www.fcdsn.com Food Allergies: Coping, Teaching, Supporting 31 W. Church St., Fairport, 14450 . . . . . . . . . 264-9033 www.FACTSplace.com Future Care Planning 1000 Elmwood Ave., Suite 500 Rochester, 14620 . . . . . . . . . . . . . . . . . . . . . . 402-7840 www.futurecareplanning.org Create comprehensive plans on behalf of adults with disabilities. Hunter’s Hope Foundation P.O. Box 643, 6368 West Quaker St, Orchard Park, 14127. . . . . . . . . . . . . . . . . 716-667-1200 info@huntershope.org - www.huntershope.org Juvenile Diabetes Research Foundation International (JDRF) 1200-A Scottsville Rd., Suite 100 Rochester, 14624 . . . . . . . . . . . . . . . . . . . . . . 546-1390 www.jdrf.org/rochester Kirch Developmental Services Center Golisano Children’s Hospital at Strong 601 Elmwood Ave., Rochester, 14642 . . . . . . . 275-2986 www.stronghealth.com Make a Wish Foundation of Western New York 26 Corporate Woods, Suite 10 Rochester, 14623 . . . . . . . . . . . . . . . . 272-WISH (9474) or . . . . . . . . . . . . . . . . . . . . . . . 1-888-336-WISH (9474) http://wny.wish.org

National Alopecia Areata Foundation PO Box 150760 San Rafael, Ca 94915 . . . . . . . . . . . . . . . 415-472-3780 info@naaf.org - www.naaf.org National Stuttering Association . . . . . . . . . . . . . . . . . . . . 800-WeStutter (800-937-8888) info@WeStutter.org - www.nsastutter.org Noogieland 255 Alexander St., Rochester, 14607 . . . . . . . 423-9700 info@gildasclubrochester.org - www.gildasclubrochester.org Serves children with cancer or children with a family member who has cancer - making sure everyone gets the social and emotional support the need. NYS Office of Mental Retardation and Developmental Disabilities 44 Holland Ave. Albany, 12229 . . . . . . . . . . . . . . 866-946-9733 Toll Free www.opwdd.ny.gov Regional Early Childhood Direction Center Monroe #1 BOCES 41 O’Connor Road, Fairport 14450 . . . . . . . . . 377-4660 www.monroe.edu/recdc Supporting families with children birth to 5 years by providing free information and individualized assistance. Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) 2982 South Union St. Rochester, 14624 . . . . . . . . . . . . . . . . . . . . . . 594-4621 or . . . . . . . . . . . . . . . . . . . . . . . . 800-716-SOFT (-7638) barbsoft@rochester.rr.com - www.trisomy.org

Rochester Area & Genesee Valley Parent â&#x20AC;˘ September 2012

Calendarseptember events Activities • Exhibits • Theater • Storytelling • Shows • Family Fun • Outdoor Adventures Parenting Programs • and lots more for families to do in & around Rochester!

FRI

SAT

SUN

14, 15 & 16

WeePeats Children’s Consignment Event WeePeats is a seasonal event for you to buy and sell quality like-new Children's Items from 1300+ registered consignors. Ages range from preemie to preteen, and items include baby gear, books, toys, clothing, shoes and much more. Admission is $3 (18yrs+) on Friday from 9am-6pm, $1 on Saturday 9am-4pm, and free Sunday 9amNoon. Fair & Expo Center-Monroe County Fairgrounds, 2965 E. Henrietta Rd., Henrietta, 14467. www.weepeats.net

SAT

September 22 Barktoberfest 2012

nleash your inner animal lover for the 2012 Barktoberfest Run & Walk to benefit Lollypop Farm! Gather a group of animalloving friends to participate in the race, or show your support with a donation to help homeless and abused animals in the Greater Rochester community. Bring your four-legged friend to enjoy the festivities and participate in a costume contest, talent competition and hot dog eating contest! There will also be vendor booths, food, activities for the kids and more! Where: Egypt Park 7 Victor Rd., Fairport, NY 14450 When: Saturday, September 22, 8:30am-3pm Cost: Attendance is free, but donations are encouraged. Walkers: $30, Runners: $20 For More Info: Visit www.lollypop.org or call 585-223-1330

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Baby Day at Eastview A special day featuring experts in everything baby! Representatives from area pediatrician’s offices, OB/GYN offices, childcare centers, mother support services, portrait studios, and baby specialty stores will be on hand. Get ideas on how to welcome your new baby home, tips for what to do after baby arrives, and what you need to know as they grow! There will also be great giveaways and prizes. 11am-3pm. 672 Eastview Mall, Victor, 14564. 223-4420. www.eastviewmall.com

SUN

16, 23 & 30 Fall Foliage by Trolley and Train

Enjoy the beauty of autumn in western New York State from the window of an authentic 80-year-old electric trolley car. Trolleys depart every half-hour no reservations are required. 11:30 am. New York Museum of Transportation, 6393 East River Road, Rush, 533-1113. www.nymtmuseum.org

calendar of events • local family-friendly activities calendar guide: Support Groups . . . 43 October . . . . . . . . . 44 Library . . . . . . . . . . . 48 Ongoing . . . . . . . . . 50

01 * Saturday LITERATURE LIVE:PAPA BEAR. 11am4pm. Free with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org

____ 02 * Sunday

E.T., THE EXTRA-TERRESTRIAL. 2pm. $8 public, $6 students/museum members Ages: 13+ George Eastman House, 900 East Ave., Rochester, 271-3361. www.eastmanhouse.org LITERATURE LIVE:PAPA BEAR. See Aug 31. 1-4pm. Free with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org

____ 03 * Monday

EXHIBIT CLOSING: DESIGN ZONE. Last chance to see: hands-on interactive and computer-based activities reveal how video game developers, music producers, roller coaster designers, and others use math to do amazing things. Free with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org LABOR DAY PARADE. The parade will include area bands, over a hundred vehicles, and several community groups will accompanied the marchers. 11am. East Avenue from Alexander Street, proceeds north on East Avenue to Main Street, then West on Main Street to Plymouth Ave., Rochester, 428-6690 http://rochesterlabor.org TASTE OF LORI’S 2012. Join Lori’s Natural Foods and over 40 vendors for free samples, product info, raffles, prizes and more. Proceeds benefit All 4 Pets WNY and the Crisis Nursery for Greater Rochester. 6:30-8:30pm. Lori’s Natural Food Center 900 Jefferson Road Rochester, 14623. 424-2323 www.lorisnatural.com

____ 07 * Friday

MONTEZUMA MUCKRACE. This 24hour birding event raises funds to support conservation projects within the Montezuma Wetlands Complex. 7pm7pm. Montezuma Audubon Center, 2295 State Route 89, Savannah, 13146, 315-365-3588 www.audubon.org

FREE • OPERATION KIDSAFE. Free digital fingerprint and photo safety program. No database or records are saved- all info is given to parents for their child’s safety. Noon-6pm. Van Bortel Used Car Center, 7325 Rte. 96 Victor 14564. 924-3850. www.vanbortelusedcarcenter.com FREE • TAILS & TALES STORY HOUR. A story hour with a special farm animal guest- perfect for all ages. 11am. Wickham Farms 1821 Fairport 9 Mile Point Road, Penfield 14526. www.wickhamfarms.com

____ 08 * Saturday

ACCIDENTAL SOCIAL SKILLS. Ontario ARC presents a seminar for children with special needs designed to boost the communication abilities of teens age 12-18 diagnosed with Asperger’s Syndrome, HighFunctioning autism, ADD/ADHD, anxiety & Bipolar disorders and Tourette’s Syndrome 11am-12:30pm. $30 for one session, $50 for both The Autism Center, 3071 County Complex Dr., Canandaigua. 394-7500 ext. 2300. www.ontarioarc.org BUBBLEFEST. A day-long celebration of bubbles! Outdoor tents full of bubble activities: a kiddie car wash, bubble crafts, glow in the dark bubbles, the Bubble Man, live music and more! Rain or shine. 10am-4pm. Included with museum admission. Buffalo Museum of Science, 1020 Humboldt Pkwy., Buffalo 14211. 716-896-5200. www.sciencebuff.org CLOTHESLINE ARTS FESTIVAL. Enjoy family art activities and visit the museum, food vendors, live entertainment and more. 10am-6pm. $5. Memorial Art Gallery, 500 University Ave. 276-8900. www.mag.rochester.edu FREE • HANG AROUND VICTOR DAY. Community Festival: Music, crafts, food, clowns, magicians and Victor non-profits gather to celebrate everything great about Victor. 9am5pm. Downtown Victor, Main Street, 742-0140. http://business.victorchamber.com LITERATURE LIVE: NUTBROWN HARE. Each Literature Live weekend offers the opportunity to meet, greet, and pose for photos with some of the most popular storybook characters of all time and enjoy related story readings. 11am-4pm. Free with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org MACEDON CENTER LUMBERJACK FEST. Arts and crafts, food, timber sports, pancake breakfast, demonstrations and entertainment. 8am. $3 adult, $1 child, under 5 free. Macedon Center Fireman’s Field, Route 31, Canandaigua Rd., Macedon, 315-986-3732. www.macedoncenterfire.org

The Clothesline Art Festival September 8 & 9 10am-6pm

OPERATION KIDSAFE. See Sept 7. 10am-4pm. Van Bortel Used Car Center, 7325 Rte. 96 Victor 14564. 924-3850. www.vanbortelusedcarcenter.com PITTSFORD CELEBRATES. Music, food, and family amusements will be available throughout the day. Bands will provide an afternoon filled with party tunes and dance hits, leading up to a spectacular fireworks display at 9pm. 12-9pm. Municipal parking lot, behind Pittsford Library Main Street. 248-6280. http://townofpittsford.org

____ 09 * Sunday

CLOTHESLINE ARTS FESTIVAL. See Sept 8 10am-6pm. $5. Memorial Art Gallery, 500 University Ave. 2768900. www.mag.rochester.edu FREE • FAMILY FUN FEST. A carnivallike event including the Zoomobile and activities for all ages. Activities are free, $1 hot dogs. Rain or shine. 11:15am-1:15pm. Summerville Presbyterian Church, 4845 St. Paul Blvd., Rochester, 14617. 342-4242 www.summervillechurch.org LITERATURE LIVE: NUTBROWN HARE. See Sept 8. 1-4pm. Free with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org

MACEDON CENTER LUMBERJACK FEST. See Sept 8. 8am. $3 adult, $1 child, under 5 free. Macedon Center Fireman’s Field, Route 31, Canandaigua Rd., Macedon, 315-986-3732. www.macedoncenterfire.org

____ 10 * Monday

FESTIVAL OF FOOD. The largest local tasting event in Rochester is part of the Greentopia event and celebrates the region’s agricultural bounty and culinary talent. Tickets available at Wegmans. 6-9pm. Rochester Public Market, 280 N. Union St. 328-3380. www.foodlinkny.org GREENTOPIA FESTIVAL. Greentopia is a week-long celebration of inspiration through art, music, organic and locally grown food and beverages, ideas and activism Historic High Falls in Rochester and at the Center at High Falls. http://greentopiafestival.com/

____ 11 * Tuesday

____

GREENTOPIA FESTIVAL. See Sept 10. Historic High Falls in Rochester and at the Center at High Falls. www.greentopiafest.com

Rochester Area & Genesee Valley Parent • September 2012

calendar of events • local family-friendly activities 12 * Wednesday

____

GREENTOPIA FESTIVAL. See Sept 10. Historic High Falls in Rochester and at the Center at High Falls. www.greentopiafest.com

13 * Thursday GREENTOPIA FESTIVAL. See Sept 10 Historic High Falls in Rochester and at the Center at High Falls. www.greentopiafest.com FREE • LITERACY VOLUNTEERS OF ROCHESTER: PREVIEW SESSION. If you’re interested in becoming a tutor to help others improve their reading, writing, speaking and/or math skills, attend a preview session to learn more. Prior experience not required. 5:30-6:30pm. Literacy Volunteers of Rochester, 1600 South Ave, Rochester 14620, 473-3030. www.literacyrochester.org MONTEZUMA BIRDING VAN TOUR. Hop in the van for an excursion to Montezuma’s birding hot spots where hundreds of thousands of waterfowl can be seen. Participants are encouraged to bring binoculars and cameras. 8-11am. $7.50/child, $10/adult, $30/family Montezuma Audubon Center, 2295 State Route 89, Savannah, 13146, 315-365-3588 or email Montezuma@audubon.org www.audubon.org

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Children’s Film Festival @ Greentopia September 15th

calendar of events • local family-friendly activities FREE • RMSC TURNS 100! Celebrate a century of learning, science and fun with the Rochester Museum and Science Center. All visitors today will receive free admission, party hats, birthday cake and seedling trees. 9am-5pm. Rochester Museum & Science Center, 657 East Ave. 2711880. www.rmsc.org

____ 14 * Friday

GREENTOPIA FESTIVAL. See Sept 10. Historic High Falls in Rochester and at the Center at High Falls. www.greentopiafest.com FREE • TAILS & TALES STORY HOUR. See Sept 7. 11am. Wickham Farms 1821 Fairport 9 Mile Point Road, Penfield 14526. www.wickhamfarms.com WEEPEATS CHILDRENS & TWEEN EVENT. a seasonal event for you to buy and sell quality like-new Children’s Items from 1300+ registered consignors. Ages range from preemie to preteen, and items include baby gear, books, toys, clothing, shoes and much more 9am-6pm. $3. The Dome Arena- Fair and Expo Center. 2965 E.Henrietta Rd., Henrietta. . www.weepeats.net

____ 15 * Saturday

FREE • BABY DAY AT EASTVIEW MALL Get ideas on everything BABY! Experts & Representatives from area offices, childcare centers, support services, studios, and baby specialty stores will be on hand. Great giveaways and prizes! 672 Eastview Mall, Victor, 14564. (585) 223-4420 www.eastviewmall.com CAMP GOOD DAYS COURAGE BOWL. Annual football game between the St. John Fisher College Cardinals and the University of Rochester Yellowjackets. Camp Good Days selects honorary coaches and cheerleaders. 7pm. $10/$8 youth. Growney Stadium - St. John Fisher College 3690 East Avenue, Rochester, 14618. 385-8000 http://www.campgooddays.org

WEEPEATS CHILDRENS & TWEEN EVENT. See Sept 14. 9am-4pm. $3. The Dome Arena- Fair and Expo Center. 2965 E.Henrietta Rd., Henrietta. . www.weepeats.net FREE • WXXI OPEN HOUSE. Meet some of your favorite PBS Kids’ characters including the Cat in the Hat and Arthur, talk with WXXI’s radio hosts, ask questions of WXXI’s news reporters, visit the set of Homework Hotline, listen to live music, see yourself on TV and more. 10am-2pm. WXXI Public Broadcasting, 280 State Street Rochester, 14614. 258-0200 www.wxxi.org

____ 16 * Sunday

FREE • ARTIST’S ROW AT THE MARKET. A venue for young & emerging as well as established artists. Accompanying showcase, sales, juried exhibition, musical entertainment, etc. Varied media/genres represented. 10am-4pm. Rochester Public Market, 280 N. Union St. 428-6907. http://www.marketfriends.org FALL FOLIAGE BY TROLLEY AND TRAIN. Enjoy the beauty of Autumn in western New York State from the window of an authentic 80-year-old electric trolley car. Trolleys depart every half-hour no reservations are required. 11:30am. $5-$8. New York Museum of Transportation, 6393 East River Road, Rush, 533-1113. www.nymtmuseum.org GREENTOPIA FESTIVAL. See Sept 10. Historic High Falls in Rochester and at the Center at High Falls. www.greentopiafest.com TRAINS WEEKEND. All aboard for an action packed trains weekend. Model train displays, train crafts and more. Included with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org WEEPEATS CHILDRENS & TWEEN EVENT. See Sept 14. 9am-Noon. $1 (Sunday only) The Dome Arena- Fair and Expo Center. 2965 E.Henrietta Rd., Henrietta. www.weepeats.net

____

RMSC TURNS 100! September 13, 2012 marks 100 years from the day that the Rochester Museum & Science Center opened its doors to the public. Join them to celebrate their birthday through various activities, events and opportunities as they honor the past and look forward to the next 100 years of discovery, exploration and inspiration. All visitors on the 13th will receive free admission, party hats, birthday cake and seedling trees. 9am-5pm. Rochester Museum and Science Center, 657 East Ave., Rochester 14607. 271-1880. www.rmsc.org THE PLAY BALL. A night of unforgettable fun as the museum is transformed into an adult-friendly playground. Sip creative cocktails, feast on favorite childhood foods with a grownup twist, enjoy live entertainment, bid on playfully irresistible live and silent auctions. 6-10pm. $150/person National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org

GREENTOPIA FESTIVAL. See Sept 10 Historic High Falls in Rochester and at the Center at High Falls. www.greentopiafest.com

17 * Monday

LITERACY VOLUNTEERS OF ROCHESTER: PREVIEW SESSION. If you’re interested in becoming a tutor to help others improve their reading, writing, speaking and/or math skills, attend a preview session to learn more. Prior experience not required. 10-11am. Literacy Volunteers of Rochester, 1600 South Ave, Rochester 14620, 473-3030. www.literacyrochester.org

____ ____

TRAINS WEEKEND. All aboard for an action packed trains weekend. Model train displays, train crafts and more. Included with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org

FREE • TAILS & TALES STORY HOUR. See Sept 7. 11am. Wickham Farms 1821 Fairport 9 Mile Point Road, Penfield 14526. www.wickhamfarms.com

TODDLER BOOK CLUB AT THE STRONG. Readings of classic children’s tales followed by music and movement activities. This month: All Aboard! 10:30am, 11:30am, and 12:30pm. Free with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org

22 * Saturday

21 * Friday

BARKTOBER FEST 2012. Get those tails wagging, 5-mile race and 1.5 mile walk for the animals. There will be great food, fun, prizes, and activities for the entire family—and the pets too. 8:30am-3pm. Lollypop Farm 99 Victor Road, Fairport 585-223-1330. www.lollypop.org/bfest

EXHIBIT OPENING: DORA AND DIEGO: LET’S EXPLORE! Join beloved characters Dora and Diego along with their friends Boots, Map, Backpack, Isa, Tico, and of course, Swiper. During opening weekend meet Dora and pose for pictures. Included with admission National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org FREE • FAITH, FITNESS & FUN. All dance levels are welcome. The Refit kid-class will focus on age appropriate movement, basic elements of fitness, and infuse faith concepts through song, dance and group interaction. Registration is required. 10-11am. Ages: 6-12 yrs. Victory Community Center, 32 Wildbriar Rd., Rochester 14623. http://bit.ly/refitrochester

____

Rochester Area & Genesee Valley Parent • September 2012

calendar of events • local family-friendly activities

BUBBLEFEST AT BUFFALO MUSEUM OF SCIENCE A day-long celebration of bubbles! Outdoor tents full of bubble activities: a kiddie car wash, bubble crafts, glow in the dark bubbles, the Bubble Man, live music and more! Saturday September 8, 10am to 4pm. Buffalo Museum of Science, 1020 Humboldt Pkwy., Buffalo 14211. www.sciencebuff.org

23 * Sunday

28 * Friday

FAMILY ZUMBA PARTY. Family-friendly cardio dancing with a multicultural beat! Zumba, refreshments, raffles and fun for the entire family. Proceeds benefit the YMCA Invest in Youth Campaign, helping children and families in the local community. 6:30pm. $10/ person or $15 for a family of up to 6 Southeast Family YMCA, 111 E. Jefferson Rd, Pittsford 14534. 341-3239. www.rochesterymca.org

FALL FOLIAGE BY TROLLEY AND TRAIN. See Sept 16. 11:30am. $5$8. New York Museum of Transportation, 6393 East River Road, Rush, 533-1113. www.nymtmuseum.org

____ 24 * Monday

TODDLER BOOK CLUB AT THE STRONG. See Sept 17. 10:30am, 11:30am, and 12:30pm. Free with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org

RPO PRESENTS: SGT. PEPPER’S LONELY HEARTS CLUB BAND. Beatles tribute band the Classical Mystery Tour’s special 45th anniversary tribute to the Beatles’ groundbreaking album. 8pm. Varies by seat, starts at $15. Kodak Hall at Eastman Theatre, 60 Gibbs St., Rochester, 454-2100. www.rpo.org FREE • TAILS & TALES STORY HOUR. See Sept 7. 11am. Wickham Farms, 1821 Fairport 9 Mile Point Road, Penfield 14526. www.wickhamfarms.com

____ ____ 42

www.GVParent.com

calendar of events • local family-friendly activities

meet up!

29 * Saturday

club & support groups 08 * Saturday

18 * Tuesday

26 * Wednesday

MOMS IN MOTION. Fall Kick Off/Info meeting for women of all ages and ability levels who are interested in fun, fitness, and philanthropy. 10-11:30am Webster Public Library Community Room, 980 Ridge Rd., Webster. MIMSWebster@yahoo.com

MOMS CLUB OF PENFIELD/ER/BRIGHTON. Offers support and socialization for athome moms and their children. Meetings are held the second Tuesday of every month. 1011:30am. Email penfieldmoms@yahoo.com for locations and details.

MOMS CLUB OF WEBSTER/ONTARIO. Annual Open House event with carnival themed activities and fun. Email for location and details. 10:15am. momsclubofwebsterandontario@ yahoo.com.

11 * Tuesday FIRST TIME AROUND GROUP. This educational and social monthly support gathering is for first time mothers and their babies. Carrie Hartman, RN BSN and Jan Thompson, RNC, certified lactation consultant will be available for questions on breastfeeding and parenting. 10am-11:30am. F.F. Thompson Hospital, 350 Parrish Street, Canandaigua, 396-6497. www.thompsonhealth.com OPERATION KIDS. This program is geared toward children who will be undergoing surgery and their families. Includes a tour of the Surgical Care Center, Operating Room and Post Anesthesia Care Unit. RSVP required. 8pm. F.F. Thompson Hospital, 350 Parrish Street, Canandaigua, 396-6231. www.thompsonhealth.com

13 * Thursday MOMS CLUB OF CLARKSONHAMLIN. Daily activities as well as occasional evening events for you and your child. We offer playgroups, family activities, field trips, kid’s activities, moms and couples nights out, and many other activities. 10am. Call 502-8805 or visit website for location and details. http://www.frontiernet.net/~clarksonhamlinmomsclub/ MOMS CLUB OF HENRIETTA EAST. Moms and kids are finding support, friendship and more. Meets the second Thursday of the month. Please contact for location and time info. Email HenriettaEastMoms@yahoo.com, or call 234-4666 ext 6.

19 * Wednesday MOMS CLUB OF IRONDEQUOIT. Moms and kids are finding support, friendship and more. We look forward to meeting you! Meets the third Thursday of the month. 9:30-11am. Check web site or email April at momsclubofirondequoit@yahoo.com.

20 * Thursday GREATER ROCHESTER MOTHER OF TWINS CLUB. September June GRMOTC meets on the third Thursday of each month. 7pm. Laurelton United Presbyterian Church, 334 Helendale Road, Rochester. www.grmotc.com

22 * Saturday GIRLS ARE SPECIAL. A motherdaughter day of fun and learning about changes that take place during adolescence. For mothers and daughters age 9-11. $35 for mother & one daughter, $5 for each add’l daughter Thompson Health 350 Parrish St., Canandaigua 14424. 396-6156. www.thompsonhealth.com

25 * Tuesday OPERATION KIDS. See Sept 11. 8pm. F.F. Thompson Hospital, 350 Parrish Street, Canandaigua, 396-6231. www.thompsonhealth.com

____ October 09 * Tuesday MOMS CLUB OF PENFIELD/ER/BRIGHTON. Offers support and socialization for athome moms and their children. Meetings are held the second Tuesday of every month. 10-11:30am. Email penfieldmoms@yahoo.com for locations and details.

11 * Thursday

BIRDING AND BOATING. Explore the waterways of the Montezuma Wetlands Complex and find out what birds are singing, flying or swimming along the way. Rent a canoe or bring your own. 2-4:30pm. $7.50/child, $12.50/adult, $40 canoe rental Montezuma Audubon Center, 2295 State Route 89, Savannah, 13146, 315-365-3588 or email Montezuma@audubon.org www.audubon.org EXHIBIT OPENING: THE SCIENCE OF SPORTS. Test the accuracy and speed of your slapshot in the professional RapidShot hockey simulation training system. Compare your speed to an NFL running back. See if you have the balance of a cheerleader. Learn the physics behind the curveball. 10am-4pm. Included with general museum admission. Buffalo Museum of Science, 1020 Humboldt Parkway, Buffalo, 14211. (716) 896-5200. www.sciencebuff.org GILDA’S CLUB HEROES BALL. Celebrating the Power of Hope, Courage and Commitment. All fundraising efforts are to support the free programs for men, women, teens and children living with cancer in the Rochester community. 6pm. $175 Rochester Plaza, 70 State St Rochester 14614. www.gildasclubrochester.com LITERATURE LIVE: LILLY. Each Literature Live weekend offers the opportunity to meet, greet, and pose for photos with some of the most popular storybook characters of all time and enjoy related story readings. 11am-4pm. Free with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org

MOMS CLUB OF CLARKSONHAMLIN. Daily activities as well as occasional evening events for you and your child. We offer playgroups, family activities, field trips, kid’s activities, moms and couples nights out, and many other activities. 10am. Call 502-8805 or visit website for location and details. http://www.frontiernet.net/~clarksonhamlinmomsclub/

FREE • NATIONAL TRIMATHLON. Kids in grades 3-6 will compete in three challenging math events: The Counting Game, Magic Squares Challenge, and Mental Math Workout. Registration is free, and is open now. Time Mathnasium of Penfield, 1802 Penfield Rd., Penfield 14526. 203-1717. www.mathnasium.com/penfield

MOMS CLUB OF HENRIETTA EAST. Moms and kids are finding support, friendship and more. Meets the second Thursday of the month. Please contact for location and time info. Email HenriettaEastMoms@yahoo.com, or call 234-4666 ext 6.

17 * Wednesday MOMS CLUB OF IRONDEQUOIT. Moms and kids are finding support, friendship and more. We look forward to meeting you! Meets the third Thursday of the month. 9:30-11am. Check web site or email April at momsclubofirondequoit@yahoo. com.

WANT YOUR SUPPORT GROUP LISTED IN THIS SECTION? Send information by the 10th of the month prior to the event date to calendar@gvparent.com

____ 30 * Sunday

EXHIBIT CLOSING: DOODLE 4 GOOGLE. Last chance to view a display of the 2012 Doodle 4 Google New York State contest finalists’ art. These playful and innovative doodles submitted by students in grades K through 12 are based on the theme, “If I could travel in time, I’d visit” Free with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org

Rochester Area & Genesee Valley Parent • September 2012

calendar of events â&#x20AC;˘ local family-friendly activities FALL FOLIAGE BY TROLLEY AND TRAIN. See Sept 16. 11:30am. $5-$8. New York Museum of Transportation, 6393 East River Road, Rush, 5331113. www.nymtmuseum.org LITERATURE LIVE: LILLY. See Sept 29. 1-4pm. Free with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 2632700. www.museumofplay.org

____ October 06 * Saturday

Mary Poppins The Broadway Musical Rochester Broadway Theatre League Oct. 9 - 14

GEORGE EASTMAN HOUSE PHOTO FINISH 5K. Raise funds for both George Eastman House & all the cultural, educational, community, & health organizations that make Rochester a great place to live, and to create an event that embodies both his philanthropic spirit and his ideals of wellness & health. 8am. See website for registration cost George Eastman House, 900 East Ave., Rochester, 271-3361. www.eastmanhouse.org

____ 07 * Sunday

FALL FOLIAGE BY TROLLEY AND TRAIN. Enjoy the beauty of Autumn in western New York State from the window of an authentic 80-year-old electric trolley car. Trolleys depart every half-hour

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calendar of events • local family-friendly activities

2012 FESTIVAL OF FOOD The largest local tasting event in Rochester is part of the Greentopia Festival and celebrates the region's agricultural bounty and culinary talent. Monday September 10, 6-9 pm. Rochester Public Market, 280 N. Union Street, Rochester 14609. www.foodlinkny.org

PLEASE NOTE: Dates and times for all calendar and ongoing events are subject to change. Please call the numbers provided or visit their website to confirm event information WANT TO SEE YOUR EVENT

IN PRINT & ONLINE? To submit an event to our calendar e-mail: calendar@gvparent.com or mail to: GVP Calendar 266 Alexander Street Rochester, NY 14607

All entries must be received by the 10th of the month prior to publication in order to be considered. (October events must be submitted by September10th.) Events printed as space permits.

Rochester Area & Genesee Valley Parent • September 2012

calendar of events â&#x20AC;˘ local family-friendly activities

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calendar of events • local family-friendly activities

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no reservations are required. 11:30am. $5-$8. New York Museum of Transportation, 6393 East River Road, Rush, 533-1113. www.nymtmuseum.org

09 * Tuesday RBTL PRESENTS: MARY POPPINS. Features the irresistible story and unforgettable songs from one of the most popular Disney movies of all time, plus brand new dance numbers and astonishing stage craft. 7:30pm. $47.50-70.50 Auditorium Theatre, 885 East Main St., Rochester, 800-745-3000. http://rbtl.org

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10 * Wednesday

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RBTL PRESENTS: MARY POPPINS. See Oct 9. 7:30pm. $47.50-70.50 Auditorium Theatre, 885 East Main St., Rochester, 800-745-3000. www.rbtl.org

11 * Thursday

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RBTL PRESENTS: MARY POPPINS. See Oct 9. 7:30pm. $47.50-70.50 Auditorium Theatre, 885 East Main St., Rochester, 800-745-3000. www.rbtl.org

12 * Friday

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RBTL PRESENTS: MARY POPPINS. See Oct 9. 8pm. $47.50-70.50 Auditorium Theatre, 885 East Main St., Rochester, 800-745-3000. www.rbtl.org

13 * Saturday LITERATURE LIVE: STELLALUNA. Each Literature Live weekend offers the opportunity to meet, greet, and pose for photos with some of the most popular storybook characters of all time and enjoy related story readings. 11am-5pm. Free with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org

TRAINS WEEKEND All aboard for an action-packed trains weekend. Little engineers will enjoy train displays, crafts, and family activities daily. Check out the Lionel trains in the National Toy Hall of Fame and play with the train set in the U.S. of Play display. Learn about train safety from Operation Lifesaver. Make an engineer’s hat craft, and much more! Saturday, September 15 from 11am-4pm and Sunday, September 16 from 1-4pm. National Museum of Play at the Strong, One Manhattan Sq., Rochester 14607. www.museumofplay.org

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RBTL PRESENTS: MARY POPPINS. See Oct 9. 2pm & 8pm. $47.50-70.50 Auditorium Theatre, 885 East Main St., Rochester, 800-745-3000. www.rbtl.org

14 * Sunday FALL FOLIAGE BY TROLLEY AND TRAIN. See Oct 7. 11:30am. $5-$8. New York Museum of Transportation, 6393 East River Road, Rush, 533-1113. www.nymtmuseum.org LITERATURE LIVE: STELLALUNA. Each Literature Live weekend offers the opportunity to meet, greet, and pose for photos with some of the most popular storybook characters of all time and enjoy related story readings. 1-5pm. Free with admission. National Museum of Play at The Strong, One Manhattan Sq., Rochester, 263-2700. www.museumofplay.org RBTL PRESENTS: MARY POPPINS. See Oct 9. 1pm & 6:30pm. $47.50-70.50 Auditorium Theatre, 885 East Main St., Rochester, 800-745-3000. www.rbtl.org

Rochester Area & Genesee Valley Parent • September 2012

calendar of events • local family-friendly activities

check out your local library!

storytimes, activities, and more... 04 * Tuesday TEEN ADVISORY BOARD. Come and be a part of the Teen Advisory Board. Grades 7-12. No registration. 6-7pm. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

05 * Wednesday BEGINNING QUILTING & BEYOND For those new to quilting or with some experience. Supplies and projects will be discussed in the first session. Deadline to register is September 19th. Limit 25 6:30pm8:30pm. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org TIME FOR TOTS. Forty minutes of free play with toys followed by a twenty minute story time. No registration is required. 10:15-11:15am. Ages: 1-5 yrs. Gates Public Library 902 Elmgrove Road, Rochester, 14624. 247-6446 www.gateslibrary.org

07 * Friday FILM FRIDAY. Each Friday morning a movie will be shown and popcorn provided. Call for movie details. 10am-12pm. Gates Public Library 902 Elmgrove Road, Rochester, 14624. 247-6446 www.gateslibrary.org

08 * Saturday TODDLER DANCE PARTY. Toddlers and their caregivers will have a blast listening and dancing along to some of their favorite tunes. 10:30am11am. Ages: 18months-3 yrs Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

11 * Tuesday JUNIOR BOOK CLUB. A book club for our youngest book lovers. Each month read and discuss a picture book and make a craft. Limit 15registration required. 4-4:45pm. Ages: Grades K-3. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org JUNIOR FRIENDS. Junior Friends are a group of volunteers who meet year-round and help the library with different activities such as: book sales, parties, bulletin board displays and many more exciting things. We also get involved with community

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service activities. 4-5:30pm. Ages: 916 yrs. Gates Public Library, 902 Elmgrove Rd., Rochester, 14624. 247-6446 www3.libraryweb.org

13 * Thursday SIT, KNIT & STITCH. Bring and work on your own project and enjoy the company of others who enjoy needlecraft like knitting, stitching and crocheting. Registration is not required. Bring your own snack or beverage if you wish. 6:30-8pm. Gates Public Library 902 Elmgrove Road, Rochester, 14624. 247-6446 www.gateslibrary.org

17 * Monday POTTY PARTY. This program is designed to get your little one excited to use the potty. Stories, songs and more. For children and their caregivers. Registration required. 10:30am-11am. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

18 * Tuesday BABY STORYTIME. Babies will experience books, nursery rhymes and songs with puppets and finger plays. Registration required. 10-10:30am. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org EVENING CRAFT SERIES FOR TWEENS. This is a series of craft projects that will be able to be completed in the allotted time. All materials for the crafts will be provided free of charge. 6:30-7:30pm. Ages: 8-12 yrs. Gates Public Library, 902 Elmgrove Rd., Rochester, 14624. 247-6446 www3.libraryweb.org TODDLER STORYTIME. The program includes stories, songs, finger play games, and puppets. Registration required. 10:30 am-11am. Ages: 18-36 months. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

19 * Wednesday PIRATE PARTY. Argh, mateys! September 19 be talk like a pirate day, and we’ll be reading some stories, singing some shanties, making a craft, and eating a tasty snack to celebrate. Call to register. 4-4:45pm. Gates Public Library 902 Elmgrove Road, Rochester, 14624. 247-6446 www.gateslibrary.org

PRESCHOOL STORYTIME. The program includes stories, songs, finger play games, puppets, and poetry. Registration required. Continues each Tuesday. 10-10:30a Ages: 3-5 yrs. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org TIME FOR TOTS. Forty minutes of free play with toys followed by a twenty minute story time. No registration is required. 10:15-11:15am. Ages: 1-5 yrs. Gates Public Library 902 Elmgrove Road, Rochester, 14624. 247-6446 www.gateslibrary.org TODDLER STORYTIME. The program includes stories, songs, finger play games, and puppets. Registration required. 10:30-11am. Ages: 18-36 months Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

20 * Thursday PRESCHOOL STORYTIME. The program includes stories, songs, finger play games, puppets, and poetry. Registration required. Continues each Tuesday. 10-10:30a Ages: 3-5 yrs Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

21 * Friday FILM FRIDAY. Each Friday morning a movie will be shown and popcorn provided. Call for movie details. 10am-12pm. Gates Public Library 902 Elmgrove Road, Rochester, 14624. 247-6446 www.gateslibrary.org

25 * Tuesday BABY STORYTIME. Babies will experience books, nursery rhymes and songs with puppets and finger plays. Registration required. 10-10:30am. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org COLLEGE: GETTING THERE FROM HERE. Discuss questions to consider as you establish a college savings goal, strategies to help you achieve your goal and the features and benefits of 529 college savings plans. Registration is required. 6:307:30pm. Gates Public Library, 902 Elmgrove Rd., Rochester, 14624. 247-6446 www3.libraryweb.org

TODDLER STORYTIME. The program includes stories, songs, finger play games, and puppets. Registration required. 10:30-11am. Ages: 18-36 months. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

26 * Wednesday LEGO CLUB. Hear a story, and then build with our LEGOS! Call to register. 6:30-7:30pm. Ages: 5-12 yrs. Gates Public Library, 902 Elmgrove Rd., Rochester, 14624. 247-6446 www.gateslibrary.org/ PRESCHOOL STORYTIME. The program includes stories, songs, finger play games, puppets, and poetry. Registration required. Continues each Tuesday. 10-10:30am Ages: 3-5 yrs Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org TEEN GAME NIGHT. Come and hang out with your friends at HPL’s monthly Teen Game Night. No registration. 6:30-8pm. Ages: 12yrs+. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org TODDLER STORYTIME. The program includes stories, songs, finger play games, and puppets. Registration required. 10:30-11am. Ages: 18-36 months. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

27 * Thursday PRESCHOOL STORYTIME. The program includes stories, songs, finger play games, puppets, and poetry. Registration required. Continues each Tuesday. 10-10:30am Ages: 3-5 yrs Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

28 * Friday FILM FRIDAY. Each Friday morning a movie will be shown and popcorn provided. Call for movie details. 10am-12pm. Gates Public Library 902 Elmgrove Road, Rochester, 14624. 247-6446 www.gateslibrary.org

calendar of events • local family-friendly activities

October 02 * Tuesday BABY STORYTIME. Babies will experience books, nursery rhymes and songs with puppets and finger plays. Registration required. 10-10:30am. Henrietta Public Library, 455 Calkins Rd. 3597093. www3.libraryweb.org

04 * Thursday PRESCHOOL STORYTIME. The program includes stories, songs, finger play games, puppets, and poetry. Registration required. Continues each Tuesday. 1010:30am Ages: 3-5 yrs Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

09 * Tuesday

TEEN ADVISORY BOARD. Come and be a part of the Teen Advisory Board. Grades 7-12. No registration. 6-7pm. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

BABY STORYTIME. Babies will experience books, nursery rhymes and songs with puppets and finger plays. Registration required. 10-10:30am. Henrietta Public Library, 455 Calkins Rd. 3597093. www3.libraryweb.org

TODDLER STORYTIME. The program includes stories, songs, finger play games, and puppets. Registration required. 10:3011am. Ages: 18-36 months. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

JUNIOR BOOK CLUB. A book club for our youngest book lovers. Each month read and discuss a picture book and make a craft. Limit 15- registration required. 44:45pm. Ages: Grades K-3. Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

03 * Wednesday PRESCHOOL STORYTIME. The program includes stories, songs, finger play games, puppets, and poetry. Registration required. Continues each Tuesday. 1010:30am Ages: 3-5 yrs Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org TODDLER STORYTIME. The program includes stories, songs, finger play games, and puppets. Registration required. 10:3011am. Ages: 18-36 months Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

JUNIOR FRIENDS. Junior Friends are a group of volunteers who meet year-round and help the library with different activities such as: book sales, parties, bulletin board displays and many more exciting things. We also get involved with community service activities. 4-5:30pm. Ages: 9-16 yrs. Gates Public Library, 902 Elmgrove Rd., Rochester, 14624. 247-6446 www3.libraryweb.org TODDLER STORYTIME. The program includes stories, songs, finger play games, and puppets. Registration required. 10:3011am. Ages: 18-36 months Henrietta Public Library, 455 Calkins Rd. 359-7093. www3.libraryweb.org

Rochester Area & Genesee Valley Parent • September 2012

calendar of events • local family-friendly activities

Ongoing Events & Exhibits Astronaut Mission: The Future Currently at RMSC Discover what’s coming up soon: commercial space vehicles and new-generation NASA crafts to get into orbit. With help from SpaceX, Virgin Galactic, other private companies and NASA, RMSC has spectacular things to show you about space travel in the near future. The show concludes with a live tour of the current night sky. Film runs through September 29. Saturdays at 1 pm (confirm show times online) Adults $7; Seniors/college students w/ ID $6; Ages 3-18 $6; Members/children under 3 free. Rochester Museum and Science Center, 657 East Ave., Rochester 14607. 271-1880, www.rmsc.org

STRASENBURGH PLANETARIUM

ROCHESTER MUSEUM & SCIENCE CENTER

657 East Ave., Rochester 14607. 271-1880.

657 East Ave., Rochester 14607. 271-1880. www.rmsc.org Check website or call for prices and hours

www.rmsc.org/StrasenburghPlanetarium/

Check website or call for prices and hours MY PLANETS. For children ages 3-5 and the adults with them, this friendly introduction to the planetarium features worlds in our solar system. Saturdays at 10am. $8. Ages: 3-5yrs. Ends Aug 31. SATURDAY NIGHT LASER SHOW. Intensely colored beams from argon and krypton lasers fill the planetarium dome with dazzling color patterns that spontaneously dance to classic rock music. Shows change monthly. 9:30pm. $9-$10. Ages: 5+. SATURDAY SUN, MOON AND STARS. This relaxed, enjoyable family show presents prominent constellations and takes the audience on a quick trip to the moon. Show Times: confirm at rmsc.org. $8-$10. FLY ME TO THE MOON. Fly Me to the Moon combines the Apollo 11 mission with a whimsical twist involving three tween-age flies who go along on an incredible space adventure. RING OF FIRE. This film explores the fiery Pacific Rim, showing the geological causes of volcanoes and how people have adapted to living in their shadow. Ages 6+yrs. $3-7.

ADVENTURE ZONE. Dive to the bottom of Lake Ontario in the Deep Submergence Vehicle simulator. Experiment with wind currents, stream erosion, and more. AT THE WESTERN DOOR. The hundreds of objects displayed show the Seneca’s and Haudenosaunee’s creative response to new technologies and materials introduced following European Contact.

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K’NEX. Be an engineer! Build trucks, towers- anything you can imagine with this colorful construction toy. LIGHT HERE-LIGHT NOW. Have hands-on fun with light, color, and optics with mirrors, lenses, and lasers. Presented by Bausch & Lomb. RACEWAYS. Experiment with momentum, friction, gravity, and acceleration as you send wooden balls looping and racing over ramps.

CAN YOU TELL ME HOW TO GET TO SESAME STREET? See yourself on TV with the Muppets, drive Elmo around Sesame Street in a big yellow taxicab, sell movie tickets at the Circle in the Square Cinema ticket booth, and more. CELEBRATING AMERICA’S FAVORITE DOLL. The display features more than 500 examples of Barbie and her friends—plus an array of Barbie accessories. DANCING WINGS BUTTERFLY GARDEN®. The Dancing Wings Butterfly Garden team has raised the bar by introducing a variety of birds and animals into the garden to create a lively ecosystem that they have dubbed “butterfly garden 2.0.”

DISCOVER OUR WEATHER. Make a cloud, measure the wind, and marvel at the power of lightning!

NATIONAL MUSEUM OF PLAY AT THE STRONG

ENERGIZE IT. What powers our bodies, cities and planet, and is neither created nor destroyed? ENERGY. ENERGIZE it brings you through a multi-sensory, highly physical experience where YOU hold the power!

eGAMEREVOLUTION. An original, highly interactive exhibit that explores the history of video games and their impact on the way we play, learn, and relate to each other.

One Manhattan Sq., Rochester 14607. 263-2700 or TDD 423-0746, www.museumofplay.org Check website or call for prices and hours

ONE HISTORY PLACE. Amid original artifacts and reproductions, children explore mini-environments and get a taste of life as it was a century ago.

EXPEDITION EARTH. Explore your connections to the natural world in this interactive natural science exhibition. FLIGHT TO FREEDOM. Rochester’s Underground Railroad. Explore stories of courageous African Americans who traveled through Rochester on their way from slavery to freedom. HOW THINGS WORK. Through fun, hands-on investigation, find out how mechanisms such as light switches, thermostats, and traffic signals work.

KEVA PLANKS. Construct your own wooden masterpiece with KEVA Planks--identical, stackable construction blocks. Blending science with art, KEVA planks bring out the designer, architect and engineer in each of us.

AMERICAN COMIC BOOK HEROES: THE BATTLE OF GOOD VS. EVIL. Climb up the side of a building, make your own cape, test your superhero skills, pose for pictures with Spiderman and learn more about your favorite comic book hero. BERENSTAIN BEARS: DOWN A SUNNY DIRT ROAD. Step into the playful world of the Berenstain’s including Main St, Bear Country School, Brother & Sister Bear’s Club Houses, and the Family Tree House. NATIONAL TOY HALL OF FAME. The prestigious hall features historic examples of current toy inductees and play stations.

READING ADVENTURELAND. Step into a life-sized pop-up book and follow the Yellow Brick Road into five literary landscapes from children’s books. SUPER KIDS MARKET. Cruise the aisles and fill your cart with a selection of colorful produce that looks so real, you can almost taste it. Departments are filled with highly interactive stations for dramatic role-playing. THE ELAINE WILSON AND STRONG EXPRESS TRAIN. Experience the thrill of old-fashioned train travel as the mini locomotive chugs down the track surrounded by scenic postcards from across America.

calendar of events • local family-friendly activities OTHER AREA ATTRACTIONS CUMMING NATURE CENTER: ACTIVITIES. A 900-acre preserve located 40 minutes south of Rochester. $3 per person/$10 family. 6472 Gulick Rd., Naples. 374-6160, www.rmsc.org WHEM ANKH: THE CIRCLE OF LIFE IN ANCIENT EGYPT. This is your opportunity to time travel back into the past at a time when everything from birth to death revolved around the seasons and the river of life - the Nile. The Buffalo Museum of Science, 1020 Humboldt Parkway, Buffalo. 716-896-5200 www.sciencebuff.org CULTURES FOR KIDS. Learn about kids from all over the world. $5. Explore & More children’s museum, 300 Gleed Ave., East Aurora. 716655-513. www.exploreandmore.org TOUR THE RIEDMAN ROBOTIC MILKING CENTER. Tours available Mon-Sat 11am-2pm. $2-$3. Springdale Farm, 700 Colby Street, Spencerport. 349-2090 www.heritagechristianservices.org A STEP INTO AFRICA. This state of the art exhibit, focusing on the Ngorongoro Crater region of Tanzania, is the only one of its kind in

the country. Included with admission. Seneca Park Zoo, 2222 St. Paul St, Rochester, 14621. 336-7200. www.senecaparkzoo.org GENESEE COUNTRY VILLAGE & MUSEUM. Meet and chat with the village potter, storekeeper, printer, tinsmith and blacksmith. Speak with reenactors and townsfolk about the clothing styles of the period and visit select pieces from the museum's historic clothing collection. 1410 Flint Hill Rd., Mumford. 538.6822. www.gcv.org. CORN HILL NAVIGATION. All aboard the Sam Patch & Mary Jemison! These authentic tour boats embark from Pittsford and Rochester, and provide unparalleled opportunities to experience history and enjoy relaxing getaways that showcase the beauty and ingenuity of America's celebrated Erie Canal. For details please call 585-662-5748 or visit SamandMary.org. THE HERSCHELL CARROUSEL FACTORY MUSEUM. Currently operates two historic carousels inside its building complex. 180 Thompson St., North Tonawanda, 14120. 716-693-1885 www.carrouselmuseum.org

Find More!

For more calendar events and profiles of places to go: Click on the Things to Do tab to find: • Quickly scan activities listed by week • End of Week selection • Fast and easy preview pop-up calendar • Support Groups & Library Activities • “Out & About” Profiles of places to go • Seasonal activities & articles • Regional trips • .... and more!

www.GVParent.com Rochester Area & Genesee Valley Parent • September 2012

Party Planner – Everything to get the party started!

10/15/12 Diamonds Limo Presents “Pizza By Limo”

Featuring Mark’s Pizzeria

receive a 2-hr limo cruise, stop at a point of interest, a 2-liter of Pepsi and the best pizza in town! Only $99! (Sunday-Thursday)

www.diamondslimo.com

533.9050

Fri. & Sat. packages, larger limos, and service outside of Monroe County are available at an additional charge.

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Are you planning

a party?

CHECK OUR PARTY & CELEBRATION GUIDE AND ARTICLES ONLINE FOR GREAT PARTY IDEAS!

www.GVParent.com Rochester Area & Genesee Valley Parent • September 2012

[ out & about ]

By Natalee Kiesling

Picture Perfect GEORGE EASTMAN HOUSE Where it's located: 900 East Avenue, Rochester, 14607

When it’s open: TuesdaySaturday 10am-5pm, Sunday 11am-5pm (Closed Monday)

Special Events & Activities: DISCOVERY ROOM A special room just for the kids, that parents will enjoy too. Create your own sun-prints using light-sensitive paper and small objects. Bring your own items from home for a personalized print! Kids can also discover the magic of making a still image move at the Animation Station, make their own Camera Obscura at the Camera Corner and more. Opens at 1 pm every day.

nyone that has traveled along East Avenue has noticed the picturesque houses that occupy the tree-lined street. Perhaps the most beautiful, and the most wellknown, is the George Eastman House International Museum of Photography and Film. The House and its perfectly manicured landscape provide a breathtaking glimpse into the history of cinema, a great man, and Rochester itself. 54

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While famous for its historical and cultural significance, the Eastman House is also a perfect destination for a day of family fun. You won’t feel like you’re in the city as you walk along the well-tended grounds and see the stunning garden that frames the house. With plenty of outdoor space to roam, even the most restless museum-goers can satisfy their fidgets, and the more reflective can easily find a quiet spot to rest and take in the exquisite view. Inside the museum, you can join a guided or self-guided tour and visit each of the rooms to experience Mr. Eastman’s legacy firsthand. The trained docents are able to tailor your tour to keep attendees of all ages attentive. Animal lovers, keep a keen eye

out for all of the creatures featured including a rhino desk set, a furry blanket and one big important elephant in the room. Sailors ahoy - you can also find a number of nautical inspired details that Mr. Eastman had specially installed to honor his love of sea travel. In addition to the guided tours, the Eastman House now offers regularly scheduled Sign Language Tours with your host, volunteer docent Robert Menchel. The 45-minute tour is signed and spoken by Menchel, offers the same information covered during the museum’s daily guided tours, and no reservations are needed.

Natalee Kiesling is the Community Editor for Rochester Area & Genesee Valley Parent Magazine.

THE DRYDEN THEATRE One of the few places in Rochester where you can see a selection of classic, rare, foreign and independent cinema. Each month a new series is planned that features a collection of titles that share a similar theme, topic, director or star. PHOTO FINISH 5K, SATURDAY OCTOBER 6TH An annual race to raise funds for the George Eastman House (and other local not-for-profits) that embodies both George Eastman’s philanthropic spirit and his ideals of wellness and health. After the race celebrate with food and drinks, an awards ceremony and enjoy a tour of the museum. To register, donate or learn more visit http://photofinish5k.eastmanhouse.org

For more information: Call 271-3361 or visit http://eastmanhouse.org