Llyfryn Ymchwil Iechyd a Gofal Cymru

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2015-2020

Integreiddio er Rhagoriaeth Ym c h w i l H e d d i w ; G ofa l Yfo r y 1

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CYNNWYS

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Y Ganolfan Ymchwil Heneiddio a Dementia Canolfan Ymchwil Canser Cymru Y Ganolfan Genedlaethol ar gyfer Iechyd Meddwl Y Ganolfan Genedlaethol ar gyfer Ymchwil ar Iechyd a Llesiant y Boblogaeth Canolfan Cymru ar gyfer Ymchwil Gofal Sylfaenol a Gofal Brys (Canolfan PRIME)

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Uned Cyweirio’r Ymennydd a Niwrotherapiwteg Mewngreuanol (BRAIN) Uned Ymchwil Diabetes, Cymru Uned Ymchwil Arennol Cymru

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Uned Treialon De-ddwyrain Cymru Cymdeithas Hap-dreialon Iechyd Gogledd Cymru Uned Dreialon Abertawe

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Gwasanaeth Cymorth Economeg Iechyd Cymru Parc Geneteg Cymru Banc Data Diogel ar gyfer Cysylltiadau Gwybodaeth Ddienw (SAIL)

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Ymchwil a Datblygu’r GIG Gweithlu Canolfan Gymorth

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Rhith-sefydliad cenedlaethol, amlweddog yw Ymchwil Iechyd a Gofal Cymru. Mae’n cael ei ariannu a’i oruchwylio gan Is-adran Ymchwil Gofal Cymdeithasol ac Iechyd Llywodraeth Cymru. Mae Ymchwil Iechyd a Gofal Cymru’n darparu seilwaith i gefnogi a chynyddu gallu ym maes ymchwil a datblygu, yn rhedeg ystod o gynlluniau ariannu ymatebol ac yn rheoli dyrannu cyllid ymchwil a datblygu’r GIG.

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Yn ystod mis Hydref a mis Tachwedd 2013, ymgysylltwyd â rhanddeiliaid – gan gynnwys cynrychiolwyr cyhoeddus, y GIG, sefydliadau gofal cymdeithasol, prifysgolion, diwydiant, y trydydd sector ac adrannau eraill y llywodraeth – i adolygu’r seilwaith ymchwil iechyd a gofal cymdeithasol a’r rhaglenni y mae Llywodraeth Cymru’n eu hariannu ac i helpu i benderfynu pa newidiadau y dylid eu gwneud. Gwnaeth hyn hwyluso datblygu dogfen gynnig a adolygwyd gan gymheiriaid yn allanol, a gymeradwywyd gan y Gweinidog Iechyd a Gwasanaethau Cymdeithasol, ac sydd nawr yn cael ei rhoi ar waith.

Mae seilwaith arloesol Ymchwil Iechyd a Gofal

cydgrynhoi, yn diweddaru ac yn adeiladu ar yr hyn sydd wedi’i greu a’i ddarparu hyd yma, gan

maes ymchwil iechyd a gofal cymdeithasol. Mae’r feysydd rhagoriaeth presennol Cymru a’r rhai sy’n dod i’r fei. Fe fydd yn sicrhau bod dull o weithredu integredig, rhyngddisgyblaethol, rhyngasiantaethol, Cymru-gyfan yn cael ei fagu ar draws y sbectrwm trosiadol. Bydd dinasyddion Cymru’n ganolog i seilwaith a rhaglenni gan arwain at enillion

gwasanaethau ac o ran cynhyrchu cyfoeth cenedlaethol.

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Ein gweledigaeth yw i Gymru gael ei chydnabod yn rhyngwladol am ei hymchwil iechyd a gofal

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• sicrhau bod ymwneud ac ymgysylltiad y cyhoedd yn ganolog i’r hyn rydym yn ei wneud a bod hyn i’w weld ym mhob elfen ohono; • sicrhau bod ein gwaith wedi’i alinio â pholisi ! " • integreiddio ein seilwaith a’n rhaglenni’n llawn ar draws iechyd a gofal cymdeithasol; • buddsoddi mewn meysydd y mae Cymru’n rhagori ac yn unigryw ynddyn nhw; • cynyddu gallu ym maes ymchwil iechyd a gofal cymdeithasol yng Nghymru; • datblygu systemau sy’n sicrhau bod hyn yn cael ei ddarparu mewn modd rhagorol ac yn defnyddio ein hadnoddau i’r eithaf.

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Mae ymwneud y cyhoedd mewn ymchwil iechyd a gofal cymdeithasol yn sicrhau bod cyhoedd Cymru’n bartneriaid cyfartal mewn creu gwybodaeth newydd, ac maen nhw’n cael dweud eu dweud o ran gweithgaredd ymchwil iechyd a gofal cymdeithasol. Mae ymwneud ystyrlon y cyhoedd wrth siapio’r modd o ddylunio a darparu ymchwil yn helpu i wella ansawdd ymchwil iechyd a gofal cymdeithasol. Mae hyn yn arwain at ymchwil sy’n fwy perthnasol i anghenion a phryderon pobl, ac nhw eu hunain a hefyd ar iechyd a lles eu teulu, eu # $ mae ymchwil iechyd a gofal cymdeithasol yn cael ei blaenoriaethu, ei hariannu, ei datblygu, ei

mae poblogaeth Cymru’n ymgysylltu’n rhagweithiol ag ymchwil yn un o ddyheadau Ymchwil Iechyd % & blaenoriaethau strategol yw hwyluso, galluogi a chynyddu ymwneud, ymgysylltiad a chyfranogiad ehangach a chynhwysol y cyhoedd mewn ymchwil yng Nghymru.

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ac yn rhagweithiol ag ymchwil. • Bydd Ymchwil Iechyd a Gofal Cymru’n gyfrifol am gydlynu gweithgaredd gweithredol, gan ganolbwyntio ar gyngor a chyfarwyddyd ar ymwneud ac ymgysylltiad y cyhoedd a chanllawiau ar gyfer ymchwilwyr a’r cyhoedd. • Bydd Ymchwil Iechyd a Gofal Cymru’n uniongyrchol gyfrifol am hwyluso ymwneud y cyhoedd o fewn eu rhaglenni gwaith. Mae Ymchwil Iechyd a Gofal Cymru wedi ymrwymo i gynnwys y cyhoedd nid yn unig yn ein gwaith ein hunain, ond hefyd i ddefnyddio ein dylanwad i hyrwyddo buddiannau’r cyhoedd yn fwy eang. Yn unol â hyn, ein gweledigaeth yw creu diwylliant lle mae’r holl ymchwil iechyd a gofal cymdeithasol sy’n mynd rhagddi yng Nghymru’n digwydd ‘gyda’r cyhoedd, er budd y cyhoedd’. 5

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CANOLFANNAU YMCHWIL UNEDAU YMCHWIL

Y Ganolfan Ymchwil Heneiddio a Dementia Uned Cyweirio’r Ymennydd a Niwrotherapiwteg Mewngreuanol (BRAIN) Y Ganolfan Genedlaethol ar gyfer Iechyd Meddwl Uned Ymchwil Arennol Cymru Canolfan Ymchwil Canser Cymru Uned Ymchwil Diabetes, Cymru Canolfan PRIME

Y Ganolfan Genedlaethol ar gyfer Ymchwil ar Iechyd a Llesiant y Boblogaeth

YSGOL YMCHWIL GOFAL CYMDEITHASOL

Ymchwil Iechyd a Gofal Cymru

UNEDAU TREIALON CLINIGOL

CEFNOGI A CHYFLENWI

Uned Treialon De-ddwyrain Cymru Canolfan Gymorth Cymdeithas Hap-dreialon Iechyd Gogledd Cymru Gweithlu Uned Dreialon Abertawe Swyddfeydd Ymchwil a Datblygu’r GIG:

• Bwrdd Iechyd Prifysgol Abertawe Bro Morgannwg GRWPIAU CYMORTH SEILWAITH

• Bwrdd Iechyd Prifysgol Aneurin Bevan • Bwrdd Iechyd Prifysgol Betsi Cadwaladr • Bwrdd Iechyd Prifysgol Caerdydd a’r Fro • Bwrdd Iechyd Prifysgol Cwm Taf

Gwasanaeth Cymorth Economeg Iechyd Cymru

• Bwrdd Iechyd Prifysgol Hywel Dda • Bwrdd Iechyd addysgu Powys • Ymddiriedolaeth GIG Gwasanaeth Ambiwlans Cymru • Ymddiriedolaeth GIG Felindre

Parc Geneteg Cymru

Banc Data Diogel ar gyfer Cysylltiadau Gwybodaeth Ddienw (SAIL)

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• Iechyd Cyhoeddus Cymru

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Mae gan Ganolfannau Ymchwil orchwyl gwaith Cymru-gyfan i gefnogi timau ymchwil iechyd a gofal cymdeithasol amlddisgyblaethol sydd â hanes da o ragoriaeth ymchwil i fynd i’r afael â meysydd sydd o fudd i’r cyhoedd ac sy’n diwallu anghenion y cyhoedd.

#"' #" + &! &%"% $$ ' # $%+%" # Mae gan y Ganolfan Ymchwil Heneiddio a Dementia, dan arweiniad Prifysgol Abertawe, genhadaeth i ddod yn ganolfan ymchwil o’r radd

bwysig ym maes heneiddio a dementia. Fe fydd yn gwneud hyn trwy integreiddio gweithgaredd amlddisgyblaethol a datblygu meysydd rhagoriaeth yn amrywio o ymchwil ' bolisi cymdeithasol ym maes heneiddio a dementia.

#"' #" + &! #" %( +( Bydd Canolfan Ymchwil Canser Cymru, dan * &

cefnogi ymchwil canser o’r ansawdd uchaf, ar draws y sbectrwm trosiadol, gan ganolbwyntio ar feysydd angen clinigol pwysig, er budd tymor byr a thymor ' Fe fydd yn ganolfan ymchwil canser gynhwysfawr gydag arweinyddiaeth academaidd a chlinigol gref y GIG a Thîm Uwch Reolwyr amlddisgyblaethol. + / grwpiau rhagorol ymchwil allweddol yn Ne Orllewin Cymru (Abertawe) a Gogledd Cymru (Bangor).

Arweinydd

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Arweinydd

# ) 4 Judith.E.Phillips@swansea.ac.uk 01792 602341

#"' #" %"%$ #% &' #( %( % & $ +%$$! Mae’r Ganolfan Genedlaethol ar gyfer Iechyd Meddwl, dan arweiniad Prifysgol Caerdydd, yn canolbwyntio ar salwch meddwl, anhwylderau mhob cyfnod ac ym mhob agwedd ar fywyd. Mae salwch meddwl ac anabledd dysgu’n brif bethau sy’n achosi dioddefaint ac sy’n cyfrannu’n fawr at faich cymdeithasol ac economaidd clefyd yng Nghymru a thu hwnt. Ar hyn o bryd, mae yna anghydraddoldebau sylweddol rhwng gofal iechyd

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Nod y Ganolfan Genedlaethol ar gyfer Ymchwil ar Iechyd a Llesiant y Boblogaeth, dan arweiniad * V yn y byd ym maes gwyddor iechyd y boblogaeth trwy gynhyrchu sail tystiolaeth ar gyfer polisïau, gwasanaethau ac ymyriadau iechyd cyhoeddus a sicrhau bod cymaint â phosibl o fanteisio ar hyn, ar

Nod Canolfan Cymru ar gyfer Ymchwil Gofal Sylfaenol a Gofal Brys (Canolfan PRIME), dan arweiniad Prifysgol Caerdydd, yw gwella iechyd a lles trwy ymgymryd ag ymchwil o ansawdd uchel i bynciau sydd â blaenoriaeth polisi cenedlaethol mewn gofal sylfaenol a brys, a sicrhau bod darganfyddiadau’n cael eu trosi’n bolisi ac arfer.

W % & iechyd y boblogaeth yn y meysydd polisi sydd â blaenoriaeth, sef plant a phobl ifanc a hybu a chynnal iechyd trwy fywyd gweithio estynedig.

Arweinydd

# ( r.a.lyons@swansea.ac.uk 01792 513484

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Yn debyg i’r Canolfannau, fe fydd Unedau Ymchwil yn cefnogi timau ymchwil iechyd a gofal cymdeithasol i fynd i’r afael â meysydd sydd o fudd i’r cyhoedd ac sy’n diwallu anghenion y cyhoedd. Fodd bynnag, bydd unedau’n canolbwyntio ar feysydd ymchwil mwy penodol, megis pwyntiau penodol ar y raddfa drosiadol a/neu feysydd cryfder sy’n dod i’r fei yng Nghymru.

"%$ !% ( '.( +%"" $$ # " !(' &%(#4 ! % +%!" (% #"' 6*(# "7 Nod Uned Cyweirio’r Ymennydd a Niwrotherapiwteg Mewngreuanol (BRAIN), dan arweiniad Prifysgol Caerdydd, yw bod yn ganolfan ragoriaeth y DU am & &[ \ \ ' $ niwroddirywiol nad oes modd eu trin ar hyn o bryd, megis clefyd Huntington, epilepsi, strôc, clefyd Parkinson a sglerosis ymledol. Bydd Uned BRAIN yn pontio’r bwlch mewn adnoddau yn rhyngwyneb cymorth treialon niwrolawfeddygol y GIG, gan gefnogi dilysiad labordai a delweddu cyn-glinigol, cefnogi treialon clinigol am y tro cyntaf mewn pobl a hyrwyddo therapïau newydd i ddod yn rhan o arfer clinigol.

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"%$ + &! $ #*% % +( Bydd Uned Ymchwil Diabetes, Cymru, dan arweiniad Prifysgol Abertawe, yn mynd i’r afael ag anghenion cymdeithasol a gofal iechyd pwysig ym maes diabetes trwy gefnogi ac ymgymryd â rhaglen ymchwil drosiadol gynhwysfawr ac integredig, â’r bwriad o hyrwyddo datblygu a gweithredu strategaethau therapiwtig ar gyfer atal, trin a hunan-drin diabetes.

Arweinydd

# 8 * s.c.bain@swansea.ac.uk 01792 602205

"%$ + &! #(%""' +( Bydd Uned Ymchwil Arennol Cymru, dan arweiniad Prifysgol Caerdydd, yn darparu strategaeth Cymrugyfan ar gyfer astudio diagnosis, ataliad, triniaeth a chyd-destun cymdeithasol clefyd yr arennau. Bydd yr Uned yn defnyddio rhagoriaeth mewn gwyddoniaeth sylfaenol i roi dulliau clinigol presennol ar brawf i danategu darganfyddiad, dyluniad a datblygiad cyn-glinigol therapĂŻau a diagnosteg prototeip ar gyfer clefyd yr arennau. Bydd yn darparu seilwaith craidd gan alluogi ' gofalwyr i gydweithio, i ateb cwestiynau ymchwil iechyd a gofal cymdeithasol pwysig, ac i ddatblygu anghenion y boblogaeth.

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Bydd Unedau Treialon Clinigol yn darparu arbenigedd mewn cynllunio, cynnal a dadansoddi treialon arbenigol i ymchwilwyr yng Nghymru a thu hwnt. Byddan nhw’n hwyluso cynnal treialon o ansawdd uchel yn amserol ac yn llwyddiannus, ac yn sicrhau bod gofynion rheoleiddio a llywodraethu’n cael eu bodloni.

"%$ (% # '" $%9$$! (# " +( Nod Uned Treialon De-ddwyrain Cymru, dan * ansawdd treialon (ac astudiaethau eraill da eu cynllun) ym maes iechyd a gofal cymdeithasol dan arweiniad ymchwilwyr yng Nghymru; cydlynu treialon amlganolfan (ac astudiaethau eraill da eu cynllun) ledled Cymru, y DU a thu hwnt; &

yn genedlaethol ac yn rhyngwladol; cyfoethogi gweithio ar y cyd o fewn y seilwaith y mae Ymchwil Iechyd a Gofal Cymru’n ei ariannu a thu hwnt; a &

ym maes iechyd a gofal cymdeithasol i ddatblygu cynigion ymchwil o ansawdd uchel.

+$% &# &#49$(% # '" % & $ ' %$$ +( Nod Cymdeithas Hap-dreialon Iechyd Gogledd Cymru, dan arweiniad Prifysgol Bangor, yw gwella iechyd a lles pobl Cymru a thu hwnt trwy werthuso ymyriadau cymhleth ym maes iechyd a gofal cymdeithasol a hyrwyddo theori ac arfer hap-dreialon wedi’u rheoli a chynlluniau trwyadl eraill ar gyfer gwerthuso. Mae’r Uned Dreialon yn gyfrifol am ddarparu Gwasanaeth Cynllunio a Chynnal Ymchwil yn ardaloedd Bwrdd Iechyd Prifysgol Betsi Cadwaladr a Bwrdd Iechyd addysgu Powys.

Arweinydd

# * , ! b.woods@bangor.ac.uk 01248 382463

"%$ $(% # '" #*%( #!% Mae Uned Treialon De-ddwyrain Cymru’n gyfrifol am ddarparu Gwasanaeth Cynllunio a Chynnal Ymchwil yn ardaloedd Byrddau Iechyd Caerdydd a’r Fro, Aneurin Bevan a Phrifysgol Cwm Taf.

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Mae Uned Dreialon Abertawe, dan arweiniad Prifysgol Abertawe, yn cael ei hariannu gan Lywodraeth Cymru ar hyn o bryd i ddarparu Gwasanaeth Cynllunio a Chynnal Ymchwil yn ardaloedd Byrddau Iechyd Abertawe Bro Morgannwg a Phrifysgol Hywel Dda. Wrth ddarparu’r Gwasanaeth Cynllunio a Chynnal Ymchwil, cenhadaeth yr Uned Dreialon yw gweithio mewn partneriaeth â darparwyr eraill yng Nghymru i ddatblygu a chryfhau ymgysylltiad a chydweithrediad â gwasanaethau iechyd a gofal cymdeithasol a & yn enwedig hap-dreialon o ansawdd uchel, er mwyn sicrhau bod y gwasanaethau hyn yn diwallu anghenion eu defnyddwyr am ofal gochelgar, seiliedig

canolbwyntio ar y claf.

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Bydd y Grwpiau Cymorth Seilwaith yn cynnig cymorth arbenigol i ymchwilwyr o fewn seilwaith Ymchwil Iechyd a Gofal Cymru. Byddan nhw’n helpu ymchwilwyr i sicrhau bod technegau cysylltu data, geneteg/genomeg ac economeg iechyd o ansawdd uchel yn cefnogi eu hymchwil.

!# #"#% & +'( & % '"'+% % & $ +( Mae gan Wasanaeth Cymorth Economeg Iechyd Cymru, dan arweiniad Prifysgol Bangor, genhadaeth i gefnogi ymchwil a gwella’r penderfynu ym maes iechyd a gofal cymdeithasol yng Nghymru trwy ddarparu cymorth economeg iechyd yn achos cyfnodau cysyniadol cynnar cynllunio cynnig, ceisiadau ariannu ymchwil, arfer ymchwil a lledaenu gwybodaeth.

*#" $# # $ ' % #( %( #$# ! *'$#% & $$ %"! 6 # 7 Dan arweiniad Prifysgol Abertawe, mae Banc Data Diogel ar gyfer Cysylltiadau Gwybodaeth Ddienw jqV !x z& rhyngwladol ac sy’n gweithio i wneud data y mae’r % % drefn yn ddienw, ac i gysylltu’r data hyn mewn modd diogel er dibenion cefnogi ymchwil iechyd a gofal cymdeithasol.

Arweinydd

# $ 8 d.v.ford@swansea.ac.uk 01792 513404 Arweinydd

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` q { Q % % % Ymchwil Iechyd a Gofal Cymru a Chanolfan Gymorth Ymchwil Iechyd a Gofal Cymru – a fydd yn gweithio mewn partneriaeth i ddarparu cyngor cyfoes ac amrywiaeth eang o wasanaethau cymorth a chyllid ar gyfer

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Mae Ymchwil a Datblygu’n un o swyddogaethau craidd GIG Cymru. Mae yna saith Bwrdd Iechyd a thair Ymddiriedolaeth Cymru-gyfan. Mae gan bob sefydliad dîm ymchwil a datblygu dan arweiniad Cyfarwyddwr Y&D i ddarparu amrywiaeth o

Mae’r Gweithlu’n darparu gwasanaeth a gydlynir yn iechyd a gofal cymdeithasol yng Nghymru.

• ran y sefydliad, ar y cyd a chydweithwyr yn y brifysgol; • darparu cymorth i ymchwilwyr trwy’r llwybr ymchwil, o ymgeisio am grant trwodd i ledaenu canlyniadau; • sicrhau bod gwybodaeth am ymchwil ar gael i ' " • " • gyfrifoldebau cyfreithiol, rheoleiddiol ac ariannol sy’n berthnasol i ymchwil y mae’n ei gwesteio neu’n ei noddi, ac yn rheoli risgiau sy’n gysylltiedig â’r cyfrifoldebau hyn.

Mae’r Gweithlu wedi’i drefnu’n dri Rhwydwaith rhanbarthol ac mae’n darparu tîm wedi’i reoli o weinyddwyr ymchwil, swyddogion ymchwil, nyrsys ymchwil, swyddogion astudiaethau clinigol a hwyluswyr datblygiad ac ansawdd y gweithlu i weithio ledled Cymru. * . / • gweithio mewn partneriaeth â Swyddfeydd Ymchwil a Datblygu’r GIG o ran cymorth ar gyfer astudiaethau ac o ran rheoli gwybodaeth ac adnoddau; • gweithio mewn timau ymchwil iechyd a gofal astudiaethau, nodi a recriwtio cyfranogwyr a gwaith dilyniant gyda chyfranogwyr.

Arweinydd Mae swyddfeydd Ymchwil a Datblygu’r GIG yn tynnu ar wasanaethau canolog y mae Canolfan Gymorth a Gweithlu Ymchwil Iechyd a Gofal Cymru’n eu darparu. Un nod allweddol yw cynyddu nifer yr astudiaethau y gall GIG Cymru eu cynnig i bobl yng Nghymru.

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•

darparu Gwasanaeth Caniatadau Ymchwil a Moeseg Ymchwil;

Rôl y Ganolfan Gymorth yw hwyluso gweithredu polisïau a strategaethau Llywodraeth Cymru trwy ddarparu swyddogaethau a gwasanaethau cymorth canolog i’r gymuned ymchwil iechyd a gofal cymdeithasol yng Nghymru.

•

hwyluso mentrau i gynyddu ymchwil fasnachol ac ymchwil gofal sylfaenol a gofal cymdeithasol;

•

lledaenu darganfyddiadau astudiaethau ymchwil;

, /

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& gwasanaethau cyfathrebu.

• hwyluso gweithredu polisïau ariannu ymchwil % % & ymchwil a datblygu’r GIG; • &

ledled Cymru;

Arweinydd

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Cyfarwyddwr Y&D Steve Bain

E-bost Jemma.Hughes@wales.nhs.uk

Rheolwr Y&D Jemma Hughes

Ffôn 01792 704056 abm.rd@wales.nhs.uk

* 4 # * 8

Cyfarwyddwr Y&D Sue Bale

E-bost Jeanette.Wells@wales.nhs.uk

Rheolwr Y&D Jeanette Wells

Ffôn 01633 656353 ABB.R&D@wales.nhs.uk

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Cyfarwyddwr Y&D Nefyn Williams

E-bost Lona.TudorJones@wales.nhs.uk

Rheolwr Y&D Lona Tudor Jones

E-bost Rossela.Roberts@wales.nhs.uk

Rheolwr Y&D Rosella Roberts

BCU.research&development@wales.nhs.uk

Cyfarwyddwr Y&D Christopher Fegan

E-bost Jane.Jones17@wales.nhs.uk

Rheolwr Y&D Jane Jones

Ffôn 029 2074 3742 CAV_research.development@wales.nhs.uk

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Cyfarwyddwr Y&D John Geen

E-bost Susan.Kedward@wales.nhs.uk

Rheolwr Y&D Susan Kedward

Ffôn 01443 443421 CTUHB_RD@wales.nhs.uk

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*Swyddfeydd Ymchwil a Datblygu

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Cyfarwyddwr Y&D Keir Lewis

E-bost Lisa.Seale@wales.nhs.uk

Rheolwr Y&D Lisa Seale

FfĂ´n 01554 779308 Hdd.research-development@wales.nhs.uk

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Cyfarwyddwr Y&D Kevin Smith

E-bost Gemma.Beynon2@wales.nhs.uk

Rheolwr Y&D Gemma Beynon

FfĂ´n 01874 712553 research.development.pow@wales.nhs.uk

Cyfarwyddwr Y&D Mark Bellis

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Rheolwr Y&D ` ? % ‚

FfĂ´n 029 21841945 publichealthwales.research@wales.nhs.uk

Cyfarwyddwr Y&D Peter Barrett-Lee

E-bost Sarah.Townsend@wales.nhs.uk

Rheolwr Y&D Sarah Townsend

Ffôn 029 2019 6165 „ <†Q‡‚ > ?

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02920 230457

@YmchwilCymru

SENIOR RESEARCH LEADERS Health and Care Research Wales Senior Research Leaders (previously known as the NISCHR Faculty) have been selected to support, advise and promote research in Wales.

Professor Stephen Dunnett

Swansea University

Bangor University

Professor Julie Williams CBE

Professor John Williams CBE

Professor Clare Wilkinson

ˆ ‰

ˆ ‰

Swansea University

Professor Nicholas Topley

Professor Andrew Sewell

Professor Ian Russell

Swansea University

Swansea University

ˆ ‰

Professor Mark Rees

Professor Judith Phillips OBE

Professor Sir Michael Owen

ˆ ‰

Swansea University

Swansea University

Professor Paul Morgan

Professor Ronan Lyons

Professor Keith Lloyd

Bangor University

ˆ ‰

Bangor University

Professor Peter Huxley

Professor Kerenza Hood

Professor Rhiannon Tudor Edwards

ˆ ‰

ˆ ‰

ˆ ‰

Professor Colin Dayan

Professor Chris Butler

ˆ ‰

Professor Bob Woods Bangor University

CONTACT DETAILS

HEALTH AND CARE RESEARCH WALES CONTACT DETAILS Telephone number Email address Website address Twitter

02920 230457 healthandcareresearch@wales.nhs.uk www.gov.wales/healthandcareresearch @ResearchWales

18

RESEARCH CAPACITY BUILDING COLLABORATION

Research Capacity Building Collaboration (RCBC) Wales is a partnership between six Higher Education Institutions in Wales. It was established in order to increase the research capacity of nursing, midwifery and allied health professions in Wales and to contribute toward the development of clinical academic roles. RCBC represents an opportunity for new and experienced researchers in these areas to obtain funding for various research projects. The research fellowship schemes also strengthen the R&D infrastructure by increasing the quality and quantity of research in health and social care in Wales.

Marina McDonald marina.mcdonald@southwales.ac.uk 01443 483156

COMMUNITY

Health and Care Research Wales will provide leadership for research professionals in Wales, develop and value individuals through training ? & ‰ & ' Welsh health and social care research both within and outside Wales. Resources formerly assigned to the National Institute for Social Care and Health Research (NISCHR) Faculty will be realigned to focus on those areas where need is greatest and where a community approach can add the most value & & '

17

SCHOOL FOR SOCIAL CARE RESEARCH

The School for Social Care Research succeeds the All-Wales Academic Social Care Research Collaboration (ASCC) pilot initiative. The School will evolve and expand selected elements of the ASCC pilot. It has been established to be fully integrated with social care practice and to bridge the gap between academic research and social care services in Wales.

to identify social care research priorities and knowledge gaps in Wales, and to assist the sector to address those areas;

•

to facilitate the development of social care research capacity in both practice and academia;

•

• The School has four main aims: • to lead and promote the development of a culture of research-mindedness, evidenceenhanced practice, and research activity in social care services in Wales;

to lead by example in facilitating, developing, and championing innovative and fully embedded public involvement in social care research in Wales.

Lead

Professor Judith Phillips Judith.E.Phillips@swansea.ac.uk 01792 602341

GRANT SCHEMES

Health and Care Research Wales runs a number of schemes designed to support capacity building in health and social care research by funding high-quality research projects that will provide robust evidence with ‰ & ‰

‰ ‰ and social services. • Health Research Award & Social Care Research Award • PhD Health Studentship Award (HS) & PhD Social Care Studentship Award (SCS) • Health Fellowship Award (HF) & Social Care Fellowship Award (SCF) • < * * W ' j< **Wx Wales

Health and Care Research Wales also work with UK funding partners to give researchers based in Wales access to additional schemes. These include: • X‚ ` X‰

jX`Xx • Health Technology Assessment Programme (HTA) • Health Service and Delivery Research Programme (HS&DR) • Public Health Research Programme

• Clinical Research Time Competition (CRT) Further details on all these schemes can be found on the Health and Care Research Wales website. www/gov.wales/healthandcareresearch

• Invention for Innovation (i4i) • National Prevention Research Initiative (NPRI) • ESRC Doctoral School Studentships

16

Hywel Dda University Health Board

R&D Director Keir Lewis R&D Manager Lisa Seale

Email Lisa.Seale@wales.nhs.uk Telephone 01554 779308 Generic mailbox Hdd.research-development@wales.nhs.uk

Powys Teaching Health Board

Telephone 01874 712553

R&D Manager Gemma Beynon

Email Gemma.Beynon2@wales.nhs.uk

R&D Director Kevin Smith

Generic mailbox research.development.pow@wales.nhs.uk

Public Health Wales

Telephone 029 21841945

R&D Manager ` ? % ‚

Email ` ? % ‚ ƒ> ?

R&D Director Mark Bellis

Generic mailbox publichealthwales.research@wales.nhs.uk

Velindre NHS Trust

Telephone 029 2019 6165

R&D Manager Sarah Townsend

Email Sarah.Townsend@wales.nhs.uk

R&D Director Peter Barrett-Lee

Generic mailbox „ <†Q‡‚ > ?

Welsh Ambulance Service NHS Trust

R&D Manager < ] '

Email < ] ' > ? Telephone 029 2093 2903 Generic mailbox amb_research.development@wales.nhs.uk

15

R&D OFFICES – CONTACT DETAILS

Abertawe Bro Morgannwg University Health Board

Telephone 01792 704056

R&D Manager Jemma Hughes

Email Jemma.Hughes@wales.nhs.uk

R&D Director Steve Bain

Generic mailbox abm.rd@wales.nhs.uk

Aneurin Bevan University Health Board

R&D Director Sue Bale R&D Manager Jeanette Wells

Email Jeanette.Wells@wales.nhs.uk Telephone 01633 656353 Generic mailbox ABB.R&D@wales.nhs.uk

Betsi Cadwaladr University Health Board

> ; ] University Health Board

R&D Director Nefyn Williams

Email Lona.TudorJones@wales.nhs.uk

Email Jane.Jones17@wales.nhs.uk

R&D Director Christopher Fegan

Generic mailbox BCU.research&development@wales.nhs.uk

R&D Manager Rosella Roberts

Email Rossela.Roberts@wales.nhs.uk

R&D Manager Lona Tudor Jones

R&D Manager Jane Jones

Telephone 029 2074 3742 Generic mailbox V„� ‰ & > ?

Cwm Taf University Health Board

Telephone 01443 443421

R&D Manager Susan Kedward

Email Susan.Kedward@wales.nhs.uk

R&D Director John Geen

Generic mailbox CTUHB_RD@wales.nhs.uk

14

' "

•

facilitating initiatives to increase commercial, primary care and social care research;

•

The Support Centre’s role is to facilitate the implementation of the Welsh Government’s policies and strategies by providing centralised support functions and services for the health and social care research community in Wales.

•

HEALTH AND CARE RESEARCH WALES SUPPORT CENTRE

The functions the Support Centre will provide include:

providing a Research Permissions and Research Ethics Service;

providing training, information and communications services.

•

supporting patient and public involvement;

•

• facilitating the implementation of NHS R&D funding policies and performance monitoring NHS R&D;

Lead

Helen Grindell

• managing the portfolio of research being undertaken across Wales;

02920 230 457

13

SUPPORT AND DELIVERY

The Support and Delivery Infrastructure consists of three parts: the NHS Research & Development (R&D)

‚ Ž < ] ] ? Ž < ] q && Centre - who will work in partnership to provide up-to-date advice and a wide range of support services and funding for the promotion and delivery of high-quality commercial and non-commercial research.

The Workforce provides a nationally co-ordinated service to support research delivery in health and social care in Wales.

Research & Development (R&D) is a core function of NHS Wales. There are seven Health Boards and three all-Wales Trusts. All organisations have a R&D team led by a R&D Director to provide a range of services including:

HEALTH AND CARE RESEARCH WALES WORKFORCE

NHS RESEARCH & DEVELOPMENT (R&D) OFFICES

• developing and delivering a research strategy for the organisation, in collaboration with university colleagues; • providing support to researchers through the research pathway, from grant application to dissemination of results; • ensuring information about research is available to patients and clinicians; • & so that studies can be delivered; •

' ' & to research it hosts or sponsors, and manages risks relating to these responsibilities.

The Workforce is organised into three regional Networks and provides a managed team of research ‚ ‚ ? ‰ & and quality facilitators to work across Wales. The functions of the Workforce will include: • ? & & Žq <†Q ‚ in relation to study support, information and resources management; • working within health and social care research teams to support research delivery through study set-up and study site management, & & '

participant follow-up.

Lead

Lucy Seago

Žq <†Q ‚ ‰ & ‰ by the Health and Care Research Wales Support Centre and Workforce. A key aim is to increase the Žq ] & & Wales.

029 2031 6241

12

INFRASTRUCTURE SUPPORT GROUPS

‘ q && % & specialist support to researchers within the Health and Care Research Wales infrastructure. They will help researchers to ensure that their research is supported by high-quality genetics/genomics, health economics and data linkage techniques.

WELSH HEALTH ECONOMICS SUPPORT SERVICE The Bangor University led Welsh Health Economics Support Service has a mission to support research and improve decision-making in health and social care in Wales by providing health economic support at the early conceptual stages of proposal planning, in research funding applications, in research practice and in the dissemination of information.

THE SECURE ANONYMISED INFORMATION LINKAGE (SAIL) DATABANK Led from Swansea University, the Secure Anonymised Information Linkage (SAIL) databank is an internationally-recognised research group that works to anonymise and link routinely collected data from the NHS and other sources in a safe and secure way for the purposes of supporting health and social care research.

Lead

Professor David Ford d.v.ford@swansea.ac.uk 01792 513404 Lead

Professor Ronan Lyons Lead

r.a.lyons@swansea.ac.uk 01792 513484

Professor Rhiannon Tudor Edwards r.t.edwards@bangor.ac.uk 01248 383712

WALES GENE PARK ! ˆ ‰ ] % * ? promotes and facilitates Welsh medical genetic and genomic research and educates and informs the public and health professionals about the issues and opportunities this raises.

Lead

Professor Julian Sampson q & > ? 029 2074 6412

11

CLINICAL TRIALS UNITS

Clinical Trials Units will provide expertise in specialist trial design, conduct and analysis to researchers in Wales and beyond. They will facilitate high-quality, timely and successful trial conduct and ensure that regulatory and governance requirements are met.

SOUTH EAST WALES TRIALS UNIT ‘ ˆ ‰ q X ] ‘ Unit aims to: improve the number and quality of trials (and other well-designed studies) in health and social care led by Wales-based investigators; coordinate multi-centre trials (and other welldesigned studies) across Wales, the UK and beyond; develop portfolios of expertise which are recognised both nationally and internationally; enhance collaborative working within the Health and Care Research Wales-funded infrastructure and " & ‰ && ‰ working in health and social care to develop high quality research proposals. The South East Wales Trials Unit has responsibility for delivering a Research Design and Conduct q ‰ † „ V W ‰ Cwm Taf University Health Board areas.

Lead

Michael Robling < `<> ? 02920 687177

NORTH WALES ORGANISATION FOR RANDOMISED TRIALS IN HEALTH The Bangor University led North Wales Organisation for Randomised Trials in Health aims to improve the health and wellbeing of the people of Wales and beyond by evaluating complex interventions in health and social care and advancing the theory and practice of randomised controlled trials and other rigorous designs for evaluation. The Trials Unit has responsibility for delivering a Research Design and Conduct Service within Betsi Cadwaladr University Health Board and Powys Teaching Health Board areas.

Lead

Professor Bob Woods b.woods@bangor.ac.uk 01248 382463

SWANSEA TRIALS UNIT The Swansea University led Swansea Trials Unit is currently funded by the Welsh Government to provide a Research Design and Conduct Service within the Abertawe Bro Morgannwg and Hywel Dda University Health Board areas. In delivering the Research Design and Conduct Service, the Trials Unit’s mission is to work in partnership with other providers in Wales to develop and strengthen engagement and collaboration with health and social care services and professionals in research and development, particularly high-quality randomised trials, in order to ensure that these services meet the needs of their users for evidence-based and prudent care ‰ ‚ & /

Lead

Professor Helen Snooks h.a.snooks@swansea.ac.uk 01792 602346

10

RESEARCH UNITS

Similar to the Centres, Research Units will support health and social care research teams to address & ' Ž ‰ ˆ & ' as certain points on the translational scale and/or areas of emerging strength in Wales.

BRAIN REPAIR AND INTRACRANIAL NEUROTHERAPEUTICS (BRAIN) UNIT ‘ ˆ ‰ W < & Intracranial Neurotherapeutics (BRAIN) Unit aims to be a UK centre of excellence for delivering novel cell/drug/growth factor therapies to patients with currently untreatable neurological and neurodegenerative diseases such as Huntington’s disease, epilepsy, stroke, Parkinson’s disease and multiple sclerosis. The BRAIN Unit will bridge a resource gap at the neurosurgical NHS trials support interface, supporting pre-clinical laboratory and imaging ‰

' / / ‰ novel therapies onward into clinical practice.

Lead

Professor William Gray % ]*> ? 029 2068 8491

DIABETES RESEARCH UNIT CYMRU The Swansea University led Diabetes Research Unit Cymru will address the important social and healthcare needs in diabetes by undertaking and supporting a comprehensive, integrated translational research programme, designed to advance development and implementation of therapeutic strategies for prevention, treatment and self-management of diabetes.

Lead

Professor Steve Bain s.c.bain@swansea.ac.uk 01792 602205

WALES KIDNEY RESEARCH UNIT ‘ ˆ ‰ ] ’ < Unit will deliver an all-Wales strategy for the study of diagnosis, prevention, treatment and social context of kidney disease. The Unit will use excellence in basic science to test existing clinical approaches to underpin discovery, design and pre-clinical development of prototype diagnostics and therapies for kidney disease. It will provide core infrastructure enabling & carers to work together, to answer important health and social care research questions, and to develop / / / ‰ ' & &

needs.

Lead

Dr Donald Fraser ^> ? 029 2074 8449

9

NATIONAL CENTRE FOR POPULATION HEALTH AND WELLBEING RESEARCH The Swansea University led National Centre for Population Health and Wellbeing Research aims to make Wales a world leader in population health science by generating an evidence base for public health policies, services and interventions and optimising take up on a scale that makes a population level impact. The Centre will have a particular focus on population health science in the priority policy areas of children and young people and the promotion and maintenance of health through an extended working life.

PRIME CENTRE WALES (THE WALES CENTRE FOR PRIMARY AND EMERGENCY CARE RESEARCH) ‘ ˆ ‰ ] * and Emergency Care Research (PRIME Centre Wales) aims to improve health and wellbeing through undertaking high-quality research on topics of national policy priority in primary and emergency ' policy and practice.

Lead

Professor Adrian Edwards X V%> ? 029 2068 7186

Lead

Professor Ronan Lyons r.a.lyons@swansea.ac.uk 01792 513484

8

RESEARCH CENTRES

Research Centres have an all-Wales remit to support multi-disciplinary health and social care research teams who have a track record of research “ & ' need.

CENTRE FOR AGEING AND DEMENTIA RESEARCH The Swansea University led Centre for Ageing and Dementia Research has a mission to become a world class research centre, addressing internationally important questions in ageing and dementia. It will do so by integrating multi-disciplinary activity and developing areas of expertise from biological, psychosocial and environmental research, through to social policy in ageing and dementia.

WALES CANCER RESEARCH CENTRE ‘ ˆ ‰ ] < Centre will perform and support cancer research of the highest quality, across the translational spectrum, focusing on important areas of clinical / / ' patients and the public. It will be a comprehensive cancer research centre with strong academic and NHS clinical leadership and a multi-disciplinary Senior Management Team. It will have an all-Wales brief, involving key research excellent groups in South West Wales (Swansea) and North Wales (Bangor).

Lead

Professor John Chester 8Q> ? 029 2074 5452

Lead

Professor Judith Phillips Judith.E.Phillips@swansea.ac.uk 01792 602341

NATIONAL CENTRE FOR MENTAL HEALTH ‘ ˆ ‰

Mental Health focuses on mental illness, neurodevelopmental disorders and learning disability conditions at all stages and in all areas of life. Mental illness and learning disability are major

the social and economic burden of disease in ] V & ' inequalities between physical and mental health care.

Lead

Professor Ian Jones 8 <=> ? 029 2068 8327

7

HEALTH AND CARE RESEARCH WALES INFRASTRUCTURE

RESEARCH CENTRES RESEARCH UNITS

Centre for Ageing and Dementia Research Brain Repair and Intracranial Neurotherapeutics (BRAIN) Unit National Centre for Mental Health Wales Kidney Research Unit Wales Cancer Research Centre Diabetes Research Unit Cymru PRIME Centre Wales

National Centre for Population Health and Wellbeing Research

CLINICAL TRIALS UNITS

Health and Care Research Wales

SCHOOL FOR SOCIAL CARE RESEARCH

SUPPORT & DELIVERY

South East Wales Trials Unit Support Centre North Wales Organisation for Randomised Trials in Health Workforce Swansea Trials Unit Žq < † Q ‰ & ‡‚

• Abertawe Bro Morgannwg University Health Board • Aneurin Bevan University Health Board

INFRASTRUCTURE SUPPORT GROUPS

• Betsi Cadwaladr University Health Board • † „ ˆ ‰ Ž W • Cwm Taf University Health Board

Welsh Health Economics Support Service

• Hywel Dda University Health Board • Powys teaching Health Board • Welsh Ambulance Services NHS Trust • „ Žq ‘ • Public Health Wales

Wales Gene Park

Secure Anonymised Information Linkage Databank (SAIL)

6

ENGAGEMENT, INVOLVEMENT & PARTICIPATION

Public involvement in health and social care research ensures the public of Wales are equal partners in the creation of new knowledge and truly have a voice in health and social care research activity. Meaningful involvement of the public in shaping research design and delivery helps improve the quality of health and social care research. This leads to research that is more relevant to people’s needs and concerns, and more likely to have an impact on not only their own health and wellbeing but on the health and wellbeing of their family, friends and the public as a whole. To ensure the public are given the opportunities to be involved in and have a say on how health and social care research is prioritised, funded, developed, designed and delivered, it is Health and Care Research Wales’ ambition to create an environment where the population of Wales is pro-actively engaged with research. To help achieve this, one of our strategic priorities is facilitating, enabling and increasing wider and inclusive public involvement, engagement and participation in research in Wales.

Central to this ambition are interrelated components: • HealthWise Wales will be the primary mechanism for raising awareness and will provide direct and proactive engagement for the public with research. • The Health and Care Research Wales Support Centre will be responsible for coordinating operational activity, focusing on public involvement and engagement advice and guidance for researchers and the public. • The Health and Care Research Wales infrastructure will have direct responsibility for facilitating public involvement within their work programmes. Health and Care Research Wales is committed to involving the public not only in our own work, but &

public more widely. Accordingly, it is our vision to create a culture whereby all health and social care research that takes place in Wales happens ‘with the public, for the public’.

5

INTRODUCTION

Health and Care Research Wales is a national, multi-faceted virtual organisation. It is funded and overseen by the Welsh Government’s Division for Social Care and Health Research. Health and Care Research Wales provides an infrastructure to support and increase capacity in research and development (R&D), runs a range of responsive funding schemes and manages the NHS R&D funding allocation. During October and November 2013, stakeholders including public representatives, the NHS, social care organisations, universities, industry, the third sector and other government departments - were engaged to review the health and social care research infrastructure and programmes funded by Welsh Government and help determine what changes should be made. This facilitated the development of a proposal document that was externally peer-reviewed, approved by the Minister for Health and Social Services, and is now being implemented. Health and Care Research Wales’ innovative infrastructure and portfolio of funded programmes consolidates, updates and builds on what has been created and delivered to date, placing Wales at the international forefront of health and social care research. The new infrastructure allows a sharper focus on Wales’ current and emerging areas of excellence. It will ensure that an integrated, interdisciplinary, interagency, all-Wales approach is taken across the translational spectrum. The citizens of Wales will be central to an infrastructure and programmes that lead to major gains in health ‰ ‰ generation of national wealth.

VISION Our vision is for Wales to be internationally recognised for its excellent health and social care research that has a positive impact on the health, wellbeing and prosperity of the people in Wales.

STRATEGIC AIMS To achieve our vision we will: • ensure public involvement and engagement is central to what we do and visible in all elements of it; • ensure our work is aligned to Welsh Government policy and has real impact; • fully integrate our infrastructure and programmes across health and social care; • invest in areas in which Wales excels and is unique; • increase capacity in health and social care research in Wales; • develop systems that ensure excellent delivery and maximise the use of our resources.

Professor Jonathan Bisson Director of Health and Care Research Wales

4

CONTENT

Research Centres

07

Health and Care Research Wales Infrastructure

06

Engagement, Involvement and Participation

05

Introduction

04

Centre for Ageing and Dementia Research Wales Cancer Research Centre National Centre for Mental Health National Centre for Population Health and Wellbeing Research PRIME Centre Wales (the Wales Centre for Primary and Emergency Care Research) 09

Research Units Brain Repair and Intracranial Neurotherapeutics (BRAIN) Unit Diabetes Research Unit Cymru Wales Kidney Research Unit

10

Clinical Trials Units South East Wales Trials Unit North Wales Organisation for Randomised Trials in Health Swansea Trials Unit

11

Infrastructure Support Groups Welsh Health Economics Support Service Wales Gene Park Secure Anonymised Information Linkage (SAIL) Databank

12

Support and Delivery NHS Research and Development Workforce Support Centre

Community

17

Research Capacity Building Collaboration

17

Grant Schemes

16

School for Social Care Research

16

3

2

2015-2020

Integrating for Excellence To d a y ’ s Re s e a rc h ; To m o r row ’ s Ca re 1

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