@ResearchWales Health and Care Research Wales Magazine - Issue 02 - June 2017
The magazine to showcase health and social care research Wales
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‘What is research?’
Find out how research is keeping you extrordinary
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New developments in social care research
Mental Capacity: Action in Research
“Research is critical to improving what
Developing a consensus to improve access to
happens now in social care services”
health and social care research for adults with
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impaired capacity to consent
Health and Care Research Wales Magazine - Issue 02 - June 2017
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Contents
The Wales School for Social Care Research
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Seal or Varnish?
Mental Capacity: Action in Research
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‘What What is is research?’ research? video PAG E 0 3
Foreword
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Professor Jon Bisson, Director of Health and Care Research Wales
Mental Capacity: Action in Research day
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News
Learning to lead our lives
Research news from across Wales
Monmouth Comprehensive School research
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Social care research
R&D Forum
New developments, including the launch of the Wales School for Social Care Research.
The annual NHS R&D Forum comes to Wales in 2018
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Seal or Varnish?
Combating teenage activity
Preventing tooth decay in children How can we help teenagers be more active?
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Ten things you didn’t know about ADHD PAG E 1 6
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International Clinical Trials Day Celebrating the contribution of 24,000 people who took part in research last year
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New mums study
What is research?
Pregnant women and new mothers feel like their health is ‘under surveillance
Watch our latest video
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Meet our fellows
Calendar
Health and Care Research Wales Magazine - Issue 02 - June 2017
to be put in place over the next year with
edition of @ResearchWales magazine. The
the implementation of consistent UK
articles highlight the excellent work being
study set-up processes in Wales, helping
undertaken and demonstrate a vibrant health
ensure excellent delivery and better use of
and social care research and development
resources.
community in Wales that is integrated with other sectors and benefits greatly from
A major development in the last few months
strong public involvement and engagement.
has been the finalisation of appointments to all 30 specialty lead posts in Wales. This
Health and Care Research Wales is now
group of highly experienced, predominantly
two years old and I am delighted that we
clinician/practitioner-researchers will
can already showcase many examples of
champion research in their fields and
excellent health and social care research that
represent Wales at UK-wide meetings to
are having a positive impact on the health,
facilitate involvement of Welsh sites in more
wellbeing and prosperity of the people in
high quality studies and their effective
Wales.
delivery.
Developing and disseminating evidence
I hope you enjoy this edition of @
leads to the delivery of high quality and
ResearchWales magazine and look forward
innovative services. Health and Care
to continuing to work together to ensure that
Research Wales has a major role to play in
Health and Care Research Wales builds on its
this and it is vital that research is used to
positive achievements to date.
deliver prudent health and social care. A key priority for the next year is to build on
Professor Jon Bisson
the work already undertaken to develop a
Director, Health and Care Research Wales
Foreword
It is a pleasure to welcome you to the second
strategic approach to ensure the impactful delivery of research knowledge mobilisation in health and care services in Wales. Over the last year, significant changes have been made to the way we support and deliver high quality research. We anticipate another key piece of the jigsaw
Health and Care Research Wales Magazine - Issue 02 - June 2017
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B ETS I CADWAL ADR U NIVER S IT Y H EA LTH BOAR D
News
Award win for Ysbyty Gwynedd team
Research news from across Wales
Ground-breaking research into the impact of long-term drug herapies to treat people with the chronic skin condition psoriasis has won a top award. More than 140 psoriasis patients who are being treated at Betsi Cadwaladr University Health Board’s three acute hospitals are taking part in the national study.
The team at Ysbyty Gwynedd in Bangor have now won an award from the British Association of Dermatologists Biologic Interventions Register (BADBIR). The award, which names Ysbyty Gwynedd as a ‘model centre’, is for recruiting the highest number of patients in North Wales to the UKwide study, which will continue to monitor patients until at least 2028. The research aims to assess the long-term safety of biologic treatments for psoriasis, which target a specific area of a patient’s immune system.
D IA B ETES R ES EARCH U NIT CY M R U
Public Reference Panel
The Diabetes Research Unit Cymru’s Public Reference Panel has been established for over a year and is made up of eight members of the public. As well as working with the Executive Group and research theme leads to shape research, group members have reviewed funding applications and helped develop and support public engagement activities. Feedback from researchers who have received a review of their research summary: “I’m a new investigator and am working on a new programme of research. The insights will likely shape the way I think about and present this research beyond the current proposal.”
S AIL DATABANK
Celebrating ten years Professor David Ford, co-director at SAIL said: “The SAIL (Secure Anonymised Information Linkage) Databank has come a long way in ten years. We have already formed strong links with many research organisations, and we hope to forge relationships with new partners as we move forward. “There will be challenges ahead, but we look to the future with excitement as we continue to work on improvements and novel developments to enable the best use of data
“The panel provided the opportunity for us to reassess how the application would be understood by potential reviewers. We would like to thank members for their invaluable contribution to the design of this study.”
to benefit population health and well-being.” Download the 10 Year review to read the full story: saildatabank.com/wp-content/uploads/ SAIL_10_year_anniversary_brochure.pdf
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Health and Care Research Wales Magazine - Issue 02 - June 2017
WA LES CA NC E R RE SEA RC H C E NT RE
MONOCLE trial Patients with an uncommon form of cancer known as Chronic Myelomonocytic Leukaemia (CMML) are being recruited to a trial to test the safety and effectiveness of a new drug. 40 patients in the phase two MONOCLE trial will be treated with Tefinostat, allowing researchers to test the effectiveness of the drug in CMML, as well as monitoring side effects. Blood and bone marrow samples from patients will be tested in the laboratory to help us better understand how the drug works and to identify which patients are
The Wales Cancer Research Centre’s Dr Steven Knapper is the Chief Investigator leading the trial in Cardiff. He explains: “We are very excited to be in a position to commence the MONOCLE study which will, for the first time, allow us to assess the effects of Tefinostat, a monocyte-directed often-neglected haematological malignancy. Hospital sites across the United Kingdom will be open for recruiting patients into the trial. I am extremely grateful to our funders Bloodwise and the CRT Pioneer Fund for making this study possible.”
The Early Phase Unit at Velindre is working in partnership with the Wales Cancer Research Centre to adopt its first combination trial, which is now open to a small number of eligible patients.
drug called Lynparza (olaparib) combined
CMML is an uncommon form of cancer that causes a build-up of cells called monocytes in the bone marrow and blood. It mainly affects older people and the average length of survival is only 11-17 months. Most patients with CMML are unsuitable for bone marrow transplant therapy and there are currently very few other treatment options.
side effects.
in the world to access the drug-radiation
The trial, which will look at the effects of a
Chronic Myelomonocytic Leukaemia:
monocytes without causing unacceptable
Welsh patients are to be some of the first combination trial, known as PARADIGM 2.
therapeutic agent, in patients with this
treatments which can target the abnormal
“This is the first ever early phase cancer trial combining drug and radiotherapy to be opened in Wales” Cutting-edge brain tumour treatment made available in Wales
most likely to benefit in future.
There is a pressing need for new drug
V ELIN D R E CANCER CEN TR E
with radiotherapy for patients with aggressive brain tumours, could lead to another treatment option being available to patients on the NHS.
Dr Robert Jones, who leads the Unit said, “The work we do here is vital in developing new and better treatments for cancer patients in Wales and beyond, and it is important that we can offer these trials in a more local setting for patients who otherwise may have to travel to Oxford or London. We are excited to be able to offer a new type of trial to patients, and hope that we continue to build on our expanding portfolio of early phase trials.” Over the next five years, there will be a significant rise in the number of drug radiation studies available to cancer patients. The increase in therapies will offer cancer patients across Wales a chance to access new treatments and improve patient outcomes. About the trial Chief Investigator •
Glioblastoma is one of the most common types of brain tumours in adults and is usually treated with surgery and
Professor Anthony Chalmers
Supported by
radiotherapy. Radiotherapy damages DNA in cells, preventing their replication and growth. Lynparza also prevents repair of damage to DNA so enhances the effect of radiotherapy. The effectiveness of the combination will be
•
Cancer Research UK
•
AstraZeneca
•
NHS Greater Glasgow and Clyde
•
The Brain Tumour Charity
•
University of Glasgow
tested on a small number of cancer patients in this early phase trial.
Health and Care Research Wales Magazine - Issue 02 - June 2017
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H EA LTH AND CAR E R ES EARCH WAL ES
Continuing Professional Development accreditation All courses on our national research training programme are now accredited by the Continuing Professional Development (CPD)
accreditation of our training courses ensures we continue to maintain the high standard and quality of teaching we have become known for.” Our training programme provides highquality training delivered across Wales by our team of expert facilitators. Find out more about our training courses: www.healthandcareresearch.gov.wales/ training-courses/what-courses-we-offer/
Certification Service. Courses include: Good Clinical Practice, Valid Informed Consent and
HE A LT H W I S E WA L E S
an Introduction to Research Methods.
Your information will protect the nation Since its launch in 2016, the HealthWise Wales
Certificates of attendance will now display the accreditation logo together with the allocated CPD (Continuing Professional Development) hours.
team has been working with the public to Lynette Lane, Senior Training and
achieve some ambitious goals.
Development Manager, said: “The CPD To encourage members of the public to share their health information, last month they launched a second advertising campaign. The adverts highlight the importance of the public’s involvement in research and features participants who want to share their story. You can hear their stories on the HealthWise Wales YouTube channel: www.youtube.com/channel/ UCdM2NSxdOtek404lV4inaKw The team is working hard to make the project a success to benefit the NHS and the public. If you have any ideas or would like to help raise awareness; the project team is looking for people of different ages and backgrounds, from all over Wales to join in. Your contribution, no matter how small, is invaluable to future generations.
WELS H AM BU L ANCE S ERVICE NH S TR U S T
39p patch is trialled in UK-wide study
Around 13 people per day experience a stroke in Wales according to latest statistics. The researchers believe that the patch can improve outcomes for people who have had a stroke if the medicine is administered quickly.
So far, more than 10,000 participants have
A medicine skin patch, costing as little as
signed up. The results from some of the first
39p, could greatly improve the chances
The patch can be applied by paramedics in
studies will be shared later in the year.
of someone surviving a stroke, according
an ambulance before the patient arrives at
to research funded by the British Heart
A&E, saving vital time.
Find out how you can get involved here:
Foundation (BHF) Cymru. “As a Trust we are proactive in taking part in
www.healthwisewales.gov.wales Researchers are testing a plaster-like patch
research into pre-hospital emergency care
Tel: 0800 9 172 172
which is applied to a patient’s shoulder or
in order to improve the clinical care of our
08:00 - 19:00 Monday to Friday
back and administers a drug whilst a patient
patients.
is travelling to hospital. “We hope that by involving those who are
Email: healthwisewales@cardiff.ac.uk
The Welsh Ambulance Services NHS Trust
eligible in this UK-wide clinical trial we can
is one of the first ambulance services in the
develop a safe and effective pre-hospital
UK to take part in the RIGHT-2 trial in the
intervention for stroke patients.” Dr Brendan
Abertawe Bro Morgannwg and Hywel Dda
Lloyd, Welsh Ambulance Services NHS Trust.
University Health Board areas.
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Health and Care Research Wales Magazine - Issue 02 - June 2017
B R A IN UNI T
First robotic ‘neuromate’ in Wales aids epilepsy surgery The BRAIN Unit is celebrating the landmark
suffering up to six fits every day for the past 20
“It will enable us to investigate and treat even
stereoelectroencephalography (SEEG)
years.
the most complex cases to achieve seizure freedom for our patients. In collaboration
procedure, the first of its kind to be carried out With the robotic arm, it took Professor
with the BRAIN Unit, it will also enable us to
Gray 55 minutes to accurately identify
perform leading research for measuring brain
The ‘neuromate’ robot, named by creators
and operate on the epileptogenic zone in
signals and delivering therapies directly into
Renishaw, assisted Professor Gray, at the
a procedure that would normally take four
the brain, across many neurological diseases,”
University Hospital of Wales, during surgery
hours. Follow-up surgery a week later was
said Professor Gray.
while he used intracerebral electrodes to
performed in the hope of relieving Denise
measure electrical signals in the brain.
of her epileptic symptoms.
with robotic assistance in Wales.
Denise appeared alongside Professor Gray on BBC Wales television to discuss her
Patient Denise Casey, from Neath Port Talbot,
“The Renishaw robot is a significant step
experience. Watch the interview here:
was diagnosed with epilepsy when she was 31,
forward for epilepsy surgery in Wales.
www.bbc.co.uk/news/uk-wales-39513139
WELSH HE A LT H E CO N O M ICS SUPPORT SE RVI C E
Filling the gap where patients used to fall
services makes when they are available in
described seven broad types of valued
clinics. These services are typically delivered
service and support provided by ECLOs,
by eye clinic liaison officers (ECLOs).
working in ways which reflect the individual circumstances of different clinics and
The report identifies three areas of impact:
hospitals.
The Swansea Centre for Health Economics
On patients: ECLOs help those with the
On services: ECLOs enhance and broaden
(SCHE) has completed a major study in
greatest needs and appear to maintain their
the care clinical services provide. They have
partnership with the Welsh Institute for
health-related quality of life by providing a
the potential to not only reduce patients’
Health and Social Care. The study, which was
wide range of well-targeted, well-appreciated
longer-term care needs but to release NHS
commissioned by the Royal National Institute
services.
staff to perform their clinical roles. Evidence
of Blind People (RNIB), evaluated the impact of patient information and support services in UK
of their impact on productivity and efficiency On clinics: Across the UK, the study
is less clear, but they do make a contribution
NHS ophthalmology.
to various other NHS objectives
The study aimed to understand the
relevant to all four
difference providing information and support
nations.
Health and Care Research Wales Magazine - Issue 02 - June 2017
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N O RTH WAL ES O RGANIS AT IO N F O R R A N DO M IS ED T R IAL S IN H EA LTH
Supporting the world’s largest study of preterm children One of the studies NWORTH is currently supporting is Respiratory Health Outcomes in Neonates (RHiNO). The research study - which is taking place at
CA RD IFF AN D VA L E UN IVE RS I T Y
the new Paediatric Clinical Research Facility - aims to understand why prematurely born children develop lung disease and to identify
Paediatric Clinical Research Facility
the optimal treatment for their lung disease.
The first Paediatric Clinical Research Facility
management and statistical support.
NWORTH is conducting the study, along with the RHINO research team, offering trial
(PCRF) in Wales has opened. Based in the Noah’s Ark Children’s Hospital
It focuses on patients with chest injuries
for Wales and supported by the Children and
which, while being relatively minor, can lead
Women’s Clinical Board, the vision is that
to serious, potentially fatal complications.
the facility will act as a hub for paediatric
Often, these complications don’t emerge for
research, attracting new high quality research
several days, leading to people returning to
programmes and expertise to Cardiff.
hospital as emergency cases.
Rhian Thomas-Turner, Operations Manager,
Dr Battle, who has been working on the
explains: “The PCRF, which offers the first
project for a decade, carried out initial
protected space for under 18s, offers
work at Morriston Hospital. The research
significant potential to expand and
resulted in the creation of a risk factor
enhance the current levels of research and
based diagnostic tool that can identify from
development within paediatric services
the start which patients are most at risk of
across Wales.
developing complications.
“As well as collaborating with universities and health boards, we’re also looking to build a broad commercial research portfolio. This will not only give paediatric patients an extra treatment option, but will increase research capacity within the facility.” A team of paediatric research nurses including Gail Marshall, Jennifer Muller from the Children’s Hospital and Deb McNee who
A B ERTAWE BRO M O RGANNWG U N IV ER S IT Y H EALT H BOAR D & S A IL DATABANK
Morriston researchers secure £230,000 for next stage of lifesaving study
But now a UK trial is needed to test whether the screening tool works in clinical practice. The grant has funded a feasibility study, involving four hospitals in Salford, Manchester, Taunton and Newport, with around 300 patients taking part. Dr Battle explains: “The feasibility study allows us to test all the different aspects
is part of the research delivery staff will be
Researchers at Morriston Hospital, working
of the methods for the big trial. After that
helping to deliver studies.
on a study that could save lives around the
we will recruit more hospitals and probably
UK, have been awarded a £230,000 Research
involve a couple of thousand patients, to test
If you would like more information on the
for Patient and Public Benefit grant to take it
whether the score actually saves lives.
PCRF or have an opportunity you’d like to
to the next stage. “The ultimate goal will be getting it into NICE
discuss, contact Rhian Thomas-Turner, PCRF Operations Manager:
The study, led by Dr Ceri Battle (pictured
guidelines, which we hope will happen in
Rhian.Thomas-turner@wales.nhs.uk
above with her supervisor, Professor Adrian
perhaps three or four years.”
Evans), is being carried out as part of Morriston’s academic emergency medicine
Research for Patient and Public Benefit grant:
research programme.
www.healthandcareresearch.gov.wales/ health-research-grant-and-rfppb/
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Health and Care Research Wales Magazine - Issue 02 - June 2017
PRIME C E NT RE WA L E S
Antibiotics not effective for clinically infected eczema in children Findings from a study led by PRIME Centre Wales and Cardiff University suggest there is no meaningful benefit from the use of either oral or topical antibiotics for milder clinically infected eczema in children. Eczema is common, affecting around one in five children in the UK. Eczema sometimes gets worse, or ‘flares’. Doctors currently prescribe antibiotics as a treatment for around 40 per cent of these flares, despite there being little research to show whether the drugs work.
infection, children with milder eczema are
The CREAM study was designed to find out if oral (taken by mouth) or topical (creams and ointments applied to the skin) antibiotics help improve eczema severity in children with infected eczema. Results from the analysis of data showed no significant difference between the groups in the resolution of eczema symptoms at two
Swansea University and Public Health Wales.
unlikely to benefit from antibiotics, and their use can promote resistance and allergy
Health and Care Research Wales delivery staff
or skin sensitization.
recruited and supported the study.
“Providing or stepping up the potency
The study was funded by the National
of topical corticosteroids and emollients
Institute for Health Rsearch Health Technology
should be the main focus in the care of
Assessment Programme
milder clinically infected eczema flares.”
www.healthandcareresearch.gov.wales/ funding
The CREAM (ChildRen with Eczema,
weeks, four weeks or three months. Dr Nick Francis, Clinical Reader at Cardiff University and practicing GP, who led the study said: “Topical antibiotics, often in combination with products with topical corticosteroids, are frequently used to treat eczema flares. Our research shows that even if there are signs of
WA LES G E NE PA RK
Antibiotic Management) study was led
The CREAM study
by Dr Nick Francis and Professor Frank
www.cream-study.co.uk/
Sullivan, University of Toronto, coordinated by the Centre for Trials Research at Cardiff University, and in collaboration with colleagues at University of Bristol, University of Oxford, University of Dundee,
acknowledge individuals or teams who have made a real difference in meeting the
Outstanding contribution to engagement
objectives, values and beliefs of the School of Medicine. The inaugural awards ceremony was held at Cardiff City Hall on 18 October 2016. The Wales Gene Park Genetics Engagement Programme has been delivering events to
The Wales Gene Park has been recognised in an ‘Outstanding Contribution to Engagement’ award. The accolade is part of the STAR (STaff Appreciation & Recognition) awards, launched by Cardiff University in 2016 to
over 58,500 health professionals, school
Left to right: Jayne Dowden (Chief Operating
and college students, patients and the
Officer, Cardiff University), Emma Hughes (Wales
public across Wales for over 13 years. The
Development Officer, Genetic Alliance UK),
programme has expanded over the years and
Angela Burgess (Education and Engagement
is going from strength to strength, adapting
Project Manager, Wales Gene Park), Rhian Morgan
to meet the needs of its audiences and
(Education and Engagement Officer, Wales Gene
keeping abreast of the changes in this fast-
Park) and Professor Ian Weeks (Acting Head, School
moving scientific field.
of Medicine, Cardiff University).
Health and Care Research Wales Magazine - Issue 02 - June 2017
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FE AT U RED
The Wales School for Social Care Research launches
Improving care through research and evidence The Wales School for Social Care Research officially launched at the Temple of Peace in Cardiff, on 14 February 2017. The School has been created to improve and increase social care research in Wales. Its close links with social service providers will ensure that care and support for children, young people and adults in Wales is based on solid evidence of what works. Rebecca Evans, Minister for Social Services and Public Health, who spoke at the launch, said: “The Welsh Government has prioritised social care as a sector of national strategic importance. “Social care must be high quality and effective, and the work undertaken at the Wales School for Social Care Research will help ensure that we develop evidenceinformed policies and services that meet the needs of people in Wales. Today’s research is tomorrow’s care.” Professor Fiona Verity, Director of the Wales School for Social Care Research, explains: “At the heart of the School will be a genuine approach to working together; sharing and generating new knowledge that can make a difference. We believe the School is a vital step in improving social care research across Wales in ways that strengthen and build on what is already happening across the country. “Research is critical to improving what happens now in social care services, and can also tell us how to improve the wellbeing of individuals, families and communities.” The School will work with social care providers to help improve care for children, young people and adults as outlined in The Social Services and Well-being (Wales) Act 2014. There will also be an emphasis on involving
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Health and Care Research Wales Magazine - Issue 02 - June 2017
and engaging the public in social care research, helping to better meet the needs of individuals, their families and carers. Facebook: www.facebook.com/WSSCR Twitter: @WSSCR
New Developments in Social Care Research
“The work undertaken at the Wales School for Social Care Research will help ensure that we develop evidenceinformed policies and services that meet the needs of people in Wales” Rebecca Evans The scale of need indicates the importance of robust research to both increase knowledge and to inform practice. In response to this, the Welsh Government has made a commitment to support social care research, which has seen the launch of the
Social care services have traditionally had a lower profile than health services. It may be because social care activities are less visible, often taking place in people’s homes rather than in public buildings such as hospitals and clinics. But low visibility doesn’t equate
Wales School for Social Care Research. The
improving social care policy and practice.
School will lead in developing capacity in
These initiatives align with an existing
social care research, promoting research-
programme of work funded by Health and
mindedness in practice, and fully-embedding
Care Research Wales to support health and
public involvement in social care research in
social care research teams who have a track
Wales.
record of research excellence, to address areas of public need. These developments
to low numbers. Data from StatsWales
In addition to this, Social Care Wales will
(2015-16) show there were more than twice
launch a consultation on the new Social
as many places in care homes (26,259) as
Care Research Strategy, which has been
hospital beds (10,935) in Wales. Most people
developed jointly with Health and Care
who have social care needs remain in their
Research Wales and the Wales School for
own home, supported by formal services or
Social Care Research, in summer 2017.
friends and family. Carers Wales reported
This is underpinned by the aim for Wales
If you would like to know more about these
that over 320,000 people were caring for
to be renowned for the development,
developments, please contact Dr Catherine
others and that 123,000 people take on a
conduct and use of excellent social care
Poulter, Social Care Research Manager, Health
new caring role each year.
research that supports individuals, families
and Care Research Wales Support Centre
and communities through informing and
Catherine.Poulter@wales.nhs.uk
will not only complement the world class social care research that is already taking place in Wales but will also ensure that the research findings make a difference to people in Wales.
Health and Care Research Wales Magazine - Issue 02 - June 2017
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FE AT U RED
Seal or Varnish? Preventing tooth decay in children Research published in May 2017 found that applying fluoride varnish to children’s teeth is just as effective as alternative expensive treatments.
Since fluoride toothpaste was introduced in the early 1970s, we’ve seen
Novel aspects of this trial and the contribution to revised trial regulations
huge improvements in oral health. But tooth
Fluoride Varnish is a prescription only
decay remains an issue.
medicine, which meant that full regulations
Diet is a major factor in
that apply to a Controlled Trial of an
the growth of plaque,
Investigational Medicinal Product (CTIMP) applied. This led to interesting discussions
with sugary foods and
The Seal or Varnish study was led by
with the Medicines and Healthcare products
Professor Ivor Chestnutt from Cardiff
Regulatory Agency (MHRA) over the
drinks being the main
University School of Dentistry, in
application of CTIMP protocols in a mobile
contributors. Rates
collaboration with Cardiff and Vale University
dental clinic at a time when the MHRA were
Health Board Community Dental Service.
producing their Risk-adapted Approaches
of decay are often
Professor Chestnutt and his team set out
to the Management of Clinical Trials of
higher in children who
to discover whether decay on first adult
Investigational Medicinal Products. Professor
live in disadvantaged
molars can be prevented by two different
Chestnutt believes that discussions over the
treatments: fissure sealants (seal) or fluoride
resulting risk-adapted approach would make
communities.
varnish (varnish).
running a similar trial again less taxing.
The first adult molars that come through when
The role of Health and Care Research Wales
More than 800 children were treated as part of the trial and given either ‘seal’ or
children are around six years old are particularly
‘varnish’. The children, from disadvantaged communities across Cardiff and Vale and
Professor Ivor Chestnutt commented: “This
Cwm Taf university health board areas,
study shows that we have the infrastructure
vulnerable to decay –
attended a mobile dental clinic which visited
and support in Wales to run what has been one of the largest dental clinical trials
which is caused by a
schools every six months for three years.
build-up of plaque that
conducted in recent years.
attacks the teeth.
Professor Ivor Chestnutt said: “Our research has shown that the fluoride varnish – which
“The support of Health and Care Research
is simple to apply – does prevent tooth
Wales and its predecessor bodies have been
decay just as well as a more difficult and
crucial in us being able to compete for this
expensive treatment. Over the three years
type of work and to deliver a world leading
there was a cost saving of £68.13 per child in
study in the area of pragmatic clinical trials
the varnish group.
in Wales. The research infrastructure in the form of the Trials Unit and the financial
“The study provides invaluable evidence
support for the excess treatment and service
for National Health Service dental services
support costs, which are considerable in a
in the UK and has implications for dental
study such as this, are crucial.
prevention around the world.” “We also benefitted from input from Health and Care Research Wales research nurses
who helped us chase up responses to parental questionnaires that were important in informing the health economic analysis that was an integral part of the study.” The setting for the trial was the Welsh Oral Health Improvement Programme – Designed to Smile (www.designedtosmile.co.uk). The study was funded by the National Institute for Health Research (NIHR) and coordinated by the Centre for Trials Research at Cardiff University.
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Health and Care Research Wales Magazine - Issue 02 - June 2017
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“Teeth designed to last a lifetime, frequently have to be extracted within a few years of eruption.� Professor Chestnutt
Name Surname Name Surname
Health and Care Research Wales Magazine - Issue 02 - June 2017
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F EATURED
Ten things you didn’t know about ADHD Professor Anita Thapar is Clinical Professor in the Division of Psychological Medicine and Clinical Neurosciences at Cardiff University. She is also senior investigator in the National Centre for Mental Health (NCMH). You’ve probably heard of Attention Deficit Hyperactivity Disorder – better known as ADHD, and is one of the many conditions studied by NCMH researchers. It’s a relatively common condition that is thought to affect somewhere between 1 in 100 to 3 in 100 children in the UK. But there are a lot of
1
misconceptions. Here, Professor Thapar tells us ten things you might not know about ADHD.
ADHD is not just ‘naughty ’ behaviour ADHD is a combination of attention difficulties, hyperactivity and impulsive behaviour which causes real problems for how children get on both at home and at school, and affects learning and relationships. This pattern of symptoms has a strong biological basis.
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ADHD is not ‘new’
ADHD hasn’t become more common recently
3
The prevalence of ADHD isn’t increasing – research shows the number of people with ADHD hasn’t changed over recent years. However, there is now more awareness of and recognition of ADHD, so more people are being diagnosed.
Children with the clinical features that characterise ADHD were described by a paediatrician in The Lancet medical journal as early as 1902, and there are also much earlier descriptions – so it certainly isn’t a ‘new’ condition.
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Health and Care Research Wales Magazine - Issue 02 - June 2017
4
Some children grow out of ADHD, but some don’t The course of ADHD is very variable. While some individuals no longer experience ADHD symptoms when they reach adulthood, many will continue to meet all the criteria for a diagnosis, or will at least retain some of the symptoms.
5
A diagnosis of ADHD doesn’t necessarily mean a child will be prescribed medication In the UK, behavioural interventions are the first line of treatment for children with milder ADHD. Medication is only used when ADHD symptoms are severe and are causing major difficulties. Even then,
67
medication shouldn’t be given without behavioural interventions.
There’s no test for ADHD Neither blood tests nor brain scans can tell whether or not someone has ADHD. The diagnosis is made by taking a careful clinical history, including information from home and school, and by observing the child in a clinic setting.
ADHD has nothing to do with junk food, or bad parenting
So far there has been no substantial evidence to suggest sugar and artificial food additives play any part in ADHD. There is also little evidence to show dietary changes can help with ADHD symptoms.
8
ADHD is certainly not caused by bad parenting or lack of discipline. Parenting a child with ADHD can be challenging, but specific parenting strategies with more structure, routines and positive reinforcement can help.
There is no single cause for ADHD We know so far that ADHD is a largely genetic disorder, but some environmental factors also play a role. We still have yet to understand how these different factors contribute to developing
9
the condition.
Genetics are important, but there’s no ‘ADHD gene’ While ADHD is strongly linked to our genetics, there isn’t a specific gene that causes it – instead there are many different genes that seem to contribute to our risk of developing ADHD. We also know these genes don’t entirely account for the development of ADHD, so things in a young person’s environment must also be involved. We don’t know exactly what yet, which is why research like ours is taking place. This
10
is also why there isn’t a genetic test that can tell us whether or not someone has ADHD.
ADHD can run in families, but doesn’t always People who have a close relative with ADHD are more likely to have ADHD, or features of ADHD themselves, than people who don’t. However, as described above, the way genes contribute to ADHD isn’t straightforward. This means someone with a close relative with ADHD won’t necessarily have the condition themselves, and someone with ADHD might have no other relatives with it. The way genes interact with other factors is extremely complicated, which is why research in this area is so important.
For more information from the NCMH about ADHD visit: www.ncmh.info/conditions-we-study/attention-deficit-hyperactivityHealth and Care Research Wales Magazine - Issue 02 - June 2017
15
FE AT U RED
Pregnant women and new mothers feel like their health is ‘under surveillance’
New mums and pregnant women today feel more judged than ever before, according to a recently published study from the South East Wales Trials Unit. The study achieved significant media coverage, striking a chord with expectant and new mums across the UK. Lead author of the research, Aimee Grant, tells us about what they discovered after talking to mothers and grandmothers from across South Wales.
“
Pregnancy is a time when women are
expected to make changes to their health in order to benefit their unborn child. The list of ‘risky behaviours’ has increased significantly over the past 50 years, and today expectant mothers are advised to cut out alcohol, cigarettes and a range of foods, among other things. After their baby is born, women are reminded of the superiority of breast milk over formula – and can feel guilty whichever they choose. But we’ve found that women aren’t left alone in their pre and postnatal health endeavours: friends, family and even strangers are all also policing their behaviour, focusing on anything thought to be risky to the baby’s health. We spoke to six mothers, with babies aged two years and under, and their own mothers (the grandmothers) to tell us their experiences of infant feeding. Most reported that as soon as they were pregnant, they were asked about how they were going to be feeding their baby by acquaintances, friends and family. Everybody who asked appeared to have an opinion on what the ‘right’ choice should be. Though most questioners acted with good intentions, some of the mums reported more intrusive and judgmental experiences. This ever present low level surveillance and policing continued when the babies were born too, this time focusing on feeding. In
16
Health and Care Research Wales Magazine - Issue 02 - June 2017
general, the mothers said that pressure from health professionals was less than from other sources. Unhelpful and often incorrect feeding advice came from a broad range of sources. We heard that friends would push some women to feed their babies differently, and eventually the mums withdrew from these friendships to stop the flow of advice. Family and friends also judged women for how they fed their baby, for example criticising for breastfeeding frequently (a normal behaviour in young babies). Most surprisingly, pressure continued to come from strangers. Mothers were questioned by strangers about what milk was being fed to babies from bottles in public.
One of the mums told researchers about her experience in a café. Tanya, who was pregnant at the time, was having lunch with her mother. They didn’t expect the waiter to tell them what to eat.
A fear of negative judgement also existed around the preparation of formula: one mum
But according to Tanya he acted “like the kind of food police”.
reported hiding the powder under the table so as not to be seen.
“He said ‘The only things you can have are, um, cheese and pickle’.”
For new breastfeeding mothers, it is important they feel able to do so in public. New motherhood is exhausting and finding the time to express breastmilk to use in public adds a further time-consuming task to
“It was just like, ‘We can’t serve you this.’ It was like he was the pregnancy expert.” Tanya also told us that in another cafe, a man cleaning the floor had reacted to her getting out a bottle of expressed milk by asking her if she was breastfeeding.
their days. So the policing of new mother’s behaviour in public is likely to contribute to
She simply replied: “Yes”, but later admitted: “It’s quite intrusive ... I wouldn’t walk
the UK’s low rates of breastfeeding.
up to him and say ‘What did you have for your lunch today?’”
Alongside this, the UK does not currently
By contrast, Tanya’s mother Diane told the researchers that she had not
have a strong breastfeeding culture or
experienced anything like the same pressure to breastfeed or eat certain foods
adequate interventions to help mums to meet their breastfeeding goals, so this means
when she was a young mother.
that knowledge and support about how to breastfeed is not passed on to new mothers. This explains why 81% of new mums start breastfeeding, but only 55% are still
Associate at the South East Wales Trials Unit.
breastfeeding at six weeks. For this reason,
Researchers: Miss Ruby Marzella, summer
it is really important that mums who are
placement student, School of Medicine,
formula feeding are not stigmatised when
Cardiff University; Dr Dawn Mannay, Senior
they feed their babies.
Lecturer, School of Social Sciences, Cardiff University.
The best advice to take is that if you see a woman you don’t know, who is pregnant or
The study was funded by the Children and
has a baby with her, think carefully before
Young People’s Research Network, who were
asking questions about infant feeding. Your
part of Health and Care Research Wales.
”
questions and comments could be making a difficult situation worse.
Aimee is currently working on an animated video to help disseminate the findings on
January this year. This second project examined health and wellbeing in pregnancy (and health behaviours such as smoking in pregnancy and infant feeding) from a holistic perspective, considering the women’s life history and current circumstances. Women were interviewed three times, using participatory tasks to help them lead the interview. She is currently finalising papers for publication from this project and plans to further pursue this research later in the year. If you have any questions or would like any
social media.
further information, please contact Aimee
from a piece originally written for The
Aimee has also led on a larger study funded
622).
Conversation.
by the Wellcome Trust’s Institution Strategic
Research Lead: Dr Aimee Grant, Research
Support Fund, which was completed in
The above is an amended extract taken
Grant (GrantA2@cardiff.ac.uk ; 02920 687
Health and Care Research Wales Magazine - Issue 02 - June 2017
17
F E AT URED
Meet our fellows Health and Care Research Wales runs a number of funding schemes designed to stimulate excellence in health and social care research.
Our Health Research Fellowship Award
“As graduation approached I started looking
aims to support individuals to become
at my options. I was especially interested in
independent researchers and to undertake
diseases. Why do they happen? What can be
high-quality research. Find out more
done to help people and families affected
information about our funding schemes: www.healthandcareresearch.gov.wales/
by them?
funding/our-funding-schemes/
“So the logical next step was to do a PhD. I started applying for projects that sounded
Here, we find out a bit more about three
interesting, and I was successful in applying
of our health fellows and the projects they
for a Huntington’s disease research project
secured funding for.
within the Brain Repair Group.
Dr Emma Yhnell, Cardiff University
“During my PhD I conducted some research into cognitive training in Huntington’s disease, which allowed me to apply for further research funding to translate ideas into the patient clinic. Initially, I was able to secure research funding from the Jacque and Gloria Gossweiler Foundation to use brain imaging to try to see if computer game brain training changes the structure of the brain.” Emma’s Health Research Fellowship Award “In 2016, after completing my PhD, I was awarded the Health Research Fellowship Award to further explore computer game brain training, looking at personalising cognitive training and how feasible it is for people with Huntington’s disease – something that’s never been done before.
Title: Using computer based cognitive training to provide a personalised
“Based on pre-clinical work and research
therapeutic intervention for people with
into other brain diseases we think computer
Huntington’s disease
game brain training has the potential to be
How I got here
beneficial in Huntington’s disease, but we
“I’ve always loved science. In 2009 I started
have to test this to be sure.
my first degree in biochemistry at Cardiff University, which confirmed that science was
“I love talking to patients and feeling that I
where I wanted to work.
can make a real difference to people’s lives.
18
I get paid to do something I love and I really appreciate that.”
Dr Nathan Bray, Bangor University Title: Mobility and Quality of Life: Improving methods of economic evaluation of assistive technologies for people with impaired mobility In the UK more than 11 million people live with an impairment, disability or limiting chronic illness. Many people rely on mobility aids, such as wheelchairs, to help them move around and maintain independence. The NHS supports more than 1.2 million people with long-term mobility needs, half a million of which are working age adults. More evidence is needed to understand which devices and interventions are the most costeffective means of improving mobility and quality of life. The aim of this project is to develop a mobility-related quality of life outcome measure, which will help researchers and medical professionals to understand how different mobility aids effect the quality of
Health and Care Research Wales Magazine - Issue 02 - June 2017
“I love the challenge of answering questions nobody knows the answers to. There is no better feeling than finally getting the results of an experiment that you have been working on for two years.” Dr Emma Yhnell Dr Kelly Morgan, Cardiff University
But later research suggested that schemes are often not delivered consistently after a trial has finished. Plus, there is little evidence relating to the effects of schemes like exercise referral on long term health outcomes. Kelly is investigating post-trial NERS implementation across all 22 local
life of people with mobility impairments.
authorities in Wales, and aims to evaluate
This novel outcome measure will also enable
the longer-term physical and mental health
health economists to assess the relative cost-
benefits of NERS for patients.
effectiveness of different mobility aids. Nathan will be interviewing people who
She hopes that the evidence will help
use mobility aids, then developing an
understand what kinds of changes can be
outcome measure questionnaire based on
made to NERS to meet the needs of local
their responses. He will then validate the
stakeholders without compromising the
questionnaire and develop a preference-
effects of the scheme. The research will also
based scoring system.
“I have found my career
reveal more about the longer-term health Physical activity is related to lowered
outcomes for NERS patients compared
risk of heart disease and diabetes, and
to other patients who are eligible for the
improved well-being. But most adults
scheme but have not taken part.
in Wales do not meet public health
in research to be fulfilling,
recommendations for physical activity.
“The best part about
challenging and exciting; to
In 2007, a National Exercise Referral
being a researcher
date I have dedicated my
Scheme (NERS) was introduced in Wales to increase activity levels among patients
is the opportunity to
career to disability research
who are most at risk of health problems
continually learn, work
and I hope my work will
that could be prevented by physical activity.
with individuals from all
have a positive impact on the lives of people with disabilities.” Dr Nathan Bray
different sectors, all the An evaluation of the scheme showed the scheme benefitted patients referred for both coronary heart disease and mental health problems. It all looked promising, so NERS was rolled-out across all local authorities in Wales in 2012.
while striving to make a difference to the health of the public.” Dr Kelly Morgan
Health and Care Research Wales Magazine - Issue 02 - June 2017
19
F E AT UR ED
Mental Capacity: Action in Research On 16 March 2017, researchers and members of the public from across the UK converged on City Hall in Cardiff. Together, they aimed to develop a consensus
delegates on their understanding of the
to improve access to health and social care
principles of the Mental Capacity Act and the
research for adults with impaired capacity to
need for change.
consent. The second keynote was from William The day was sponsored by the National
Mieville-Hawkins, who was joined by
Mental Capacity Forum, Welsh Government
members of his family to give a very
and Health and Care Research Wales, and
moving account of his ongoing recovery
was unique in bringing together research
from a catastrophic brain injury. In an
leaders and the public from different
inspirational address, William and his
disciplines and care settings.
family sharply highlighted the need for evidence-based improvements in services
It was the first step in the development of an
and care, and the imperative to work closely
easy-to-read guide for researchers, people
with those directly affected. William’s blog
with impaired capacity and the public around application of the Mental Capacity Act to
on his day in Cardiff can be viewed here mybraininjuryrecoveryblog.wordpress.
health and social care research.
com/2017/03/16/amazingly-proud/
Two keynote speakers galvanised the
A series of short presentations gave further
delegates into action. Firstly, Baroness Finlay
insights into research with adults with
of Llandaff, Chair of the National Mental
impaired capacity from legal (Helydd Wyn),
Capacity Forum, passionately challenged
researcher (Vicky Shepherd), participant
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Health and Care Research Wales Magazine - Issue 02 - June 2017
(Charlotte Harding) and carer (Caryl Kelly) perspectives. These set the scene for workshops in emergency care, intensive care,
5 Principles of the Mental Capacity Act
learning disability, dementia care, mental health and end of life/palliative care, where delegates highlighted the key issues and challenges within each specialty area. The themes from each workshop were brought back to the whole group to begin to develop consensus statements. The commitment of Welsh Government to improving the access of people with impaired capacity to research and to ongoing service development was underlined by Vaughan Gething, Cabinet Secretary for Health, Well-being and Sport, who spoke of the opportunities in Wales through established research and lay communities to work closely with policy-makers. The proceedings of the whole day were captured as a visual ‘map’.
1.
Least restrictive option
2.
Best interests
3.
Unwise decisions
4.
Support individual
5.
Presume capacity
All delegates will now be involved in the ongoing development of easy-read resources in this field. If you would like further information or would like to be added to the circulation list to be kept up-to-date with further work, please contact healthandcareresearch@wales.nhs.uk
Health and Care Research Wales Magazine - Issue 02 - June 2017
21
FE ATUR ED
“Learning to lead our lives”
Researchers at PRIME Centre Wales have tracked an innovative approach to student health and well-being that t
Deputy headteacher of Monmouth Comprehensive School, Andy Williams, introduces restorative practice and tells us about the benefits it has brought to his school
At Monmouth Comprehensive we see academic errors as accidental and students are supported. But we also see errors in behaviour as accidental, and when
“In the face of pressure
relationships are harmed, our restorative
from various sources for
practice mirrors the academic approach, and
schools to become exam
provides support.
factories, the restorative Our outcomes over the past five years demonstrate the significant contribution that
model supports our
restorative practice has made to the wellbeing
young people in leading
of our students, staff and also the wider
their lives as healthy,
community: • The number of students receiving a fixed-term exclusion dropped by 95%
resilient, centred and valued individuals.”
• The number of days lost through exclusion dropped from 160.5 to 2 • Attendance figures at the school are at their highest level in its history
R
• All students at the school have left with a estorative practice has transformed
qualification
our climate, our language and our
• Staff illness with a stress-related tag has
culture, and we feel that every school could benefit from this model.
dropped by 82% over the same period. • Anti-social behaviour involving youths in Monmouth has dropped by 48% in
A restorative school emphasises the
three years.
importance of relationships for supporting emotional wellbeing, resolving conflict and
Our approach to teaching and learning
preventing harm.
builds relationships and self-esteem from the classroom out, starting with the young
The practice is based on the values of
person’s experience and giving them skills.
restorative justice, used in a criminal justice
In line with our core restorative beliefs, we
setting. It’s about empowering individuals by
support young people in expressing their
giving them a voice.
22
perspectives, their thoughts and feelings, strengthening their sense of self. In addition, the school is now exploring the links between developing restorative practice and mental health and wellbeing. Building self-confidence and self-worth through expressing and exploring our personal narratives, linked to the cognitive and affective aspects of our nature and through being able to express our need along with supporting the needs of others. The above is an extract from a piece originally published in SecEd magazine.
Health and Care Research Wales Magazine - Issue 02 - June 2017
they hope can be rolled out across schools in Wales
The role of research
What did we find? Students and staff experience reflected and confirmed the principles of restorative
Dr Nina Gobat, Research Fellow from PRIME
practice and helped us better understand
Centre Wales, tells us about how she got
how we think the approach works to achieve
involved in the project.
its outcomes. Students described feeling valued and confident. They were able to
What did we do?
articulate how they felt – which really stood
We used a new method of developing
a commitment to understanding student
out for me. And for staff? They developed
interventions called a pragmatic formative evaluation. To do this we looked at the
behaviour and a shift in focus away from using punishment and reward to focusing on relationships. Longer term outcomes
evidence on restorative approaches and
included increased school connectedness,
worked with Andy to map out what we
positive student engagement in learning
thought was happening in the school in a
and enhanced school reputation. Students
model. We then ran several focus groups
described the school culture as inclusive,
with staff and students and interviewed further refine it to explore underdeveloped areas.
Staff and senior leadership commitment,
The novelty of the work is that we
is fundamental to the progression and
investment and ownership of the approach,
collaborated with innovation that seemed to be working already at the “front line”, i.e.
maintenance of the approach. But there are challenges too of course, such as staff
in the school, rather than try and impose our research ideas onto existing systems. intervention to continue and grow in the school over time, as well as things that challenge its continuation.
approach and tensions between wellbeing and academic attainment outcomes. It’s an on-going process of reflection and improvement to keep restorative practice alive and well.
trustworthy and supportive.
senior leadership to test this model, and
We could identify what has allowed this
changes, lack of consistency in delivering the
“We’re trying to think about health at a much earlier stage. It’s also about finding new ways of carrying out research.”
“(Wellbeing) is what the school runs on. If students feel safe and secure, almost like loved, it’s like a big family and then they’re more likely to concentrate and get on with work.” – student
Health and Care Research Wales Magazine - Issue 02 - June 2017
23
NEWS
R&D Forum comes to Wales The NHS R&D Forum, Health and Care Research Wales and the Health Research Authority are delighted to announce that the 2018 Annual NHS R&D Forum will be held on the 14 and 15 May 2018 at the Celtic Manor, Newport. The 2018 event will coincide with the 70th anniversary of the NHS. The Celtic Manor will host the the Forum, allowing more space for sessions, exhibition and workshops.
What were the outcomes?
(the Centre for Development and Evaluation of Complex Interventions for Public Health
Professor Jon Bisson, Director Health and
The main outcome of this research has been
Improvement) was key to the success of the
Care Research Wales said: “We look forward
the co-production of a model for a whole
project.
to welcoming the R&D community across
school restorative approach that impacts on
the UK to this great event and to celebrate
student wellbeing. The approach adopted
School Health Research Network is funded
the importance of research at the exciting
in Monmouth is an example of front-line
through Health and Care Research Wales’
milestone of the 70th anniversary of the
innovation. We hope to be able to share
National Centre for Population Health and
NHS.”
this in a way that other schools might use
Wellbeing Research.
to enhance mental health and wellbeing
Dr Maria Palmer, Director R&D Forum, said:
outcomes. We plan to track the diffusion of this approach by using information collected routinely through the School Health Research Network, of which Monmouth Comprehensive is a member.
“We are delighted to have secured such a
“We’re all equal here. Staff or students. We’re all the same.” – student
fantastic venue for the 2018 Annual Forum. We are grateful to Health and Care Research Wales who have provided tremendous support to us to enable us to bring the Annual Forum to Wales in 2018.”
And it all feeds nicely into the Wellbeing of Future Generations Act (Wales) 2015. The
Keep up to date with information about the
Act is about improving the social, economic, environmental and cultural well-being of Wales. Specifically, in this context, “A society in which people’s physical and mental wellbeing is maximised and in which choices and behaviours that benefit future health are understood.” That’s an inspiring vision and one that will take commitment and innovation to achieve. The project was supported by a grant received through the Institutional Strategic
2018 Annual Forum, including when the call
“They get down to your level, they don’t stand at the front and say, ‘I’m your teacher, you’ve got to respect me’, they’re not pushy. They (help) you to realise what you’re doing wrong and how you can (sort it out).” – student
Support Fund (ISSF) at Cardiff University, which is funded by the Wellcome Trust. Collaboration between PRIME and DECIPHer
24
Health and Care Research Wales Magazine - Issue 02 - June 2017
for abstracts and bookings open here: www.delegant.co.uk/2018rdf
Combating teenage inactivity A project to assess whether giving teenagers vouchers to spend on activities of their choice can improve their health launched earlier this year at Swansea’s Limitless Trampoline Park. The ACTIVE project, which is being carried
receive £20 per month in vouchers, for 12
out by a team of researchers based at the
months, to spend on physical activities of
Farr Institute, Swansea University Medical
their choice. The other four will act as a
School, will involve eight secondary schools
comparison group and will continue as usual,
in Swansea, and around 1,000 pupils aged
but will receive a fully-funded mindfulness
13 to 14.
course for pupils or teachers as a thank you for taking part.
The project, funded by the British Heart Foundation, aims to see whether giving
Both groups will take part in data collecting
teenagers vouchers to spend on activities of
exercises, measuring fitness, motivation
their choice can reduce the time spent being
and heart health and pupils will wear an
sedentary, improve fitness, lower the risk of
accelerometer device to record activity
heart disease and improve general health.
levels.
The ACTIVE project follows on from an earlier
Professor Sinead Brophy, a principal
study, where children in a Swansea school
investigator from the Farr Institute at
were given vouchers to spend on sporting
Swansea University Medical School, said:
activities.
“This project is trying to examine how we might help teenagers be more active
The study found that Year Nine pupils who
and how being active affects educational
received the vouchers had improved attitudes
attainment, social relationships, and the
to physical activity, increased socialisation
health, fitness and wellbeing of the pupils”.
Physical inactivity is one of the most important issues in public health today. Studies have indicated there is a decline in physical activity in adolescence. Research has shown that physical activity can control weight, reduce stress and even result in a higher IQ.
with friends and improved fitness and physical activity.
All schools involved will receive a
Four schools taking part in the project will
report on the outcome of the study with
Follow the ACTIVE project on Twitter:
recommendations for future interventions.
@ActiveProject_
Health and Care Research Wales Magazine - Issue 02 - June 2017
25
International Clinical Trials Day 2017 The contribution of 24,000 people who took part in part in research in Wales last year was celebrated on 20 May.
cancer to cognitive behavioural therapy. Events to celebrate International Clinical Trials Day took place across Wales, including a ‘satsuma tour’ by the Welsh Ambulance Service Trust, and a public-facing event at the
International Clinical Trials Day marks the day James Lind started his first ever clinical trial on board the HMS Salisbury in 1747. The naval surgeon took 12 men with scurvy, divided them into six pairs and experimented with different remedies. The two treated with citrus fruits made an impressive recovery. The experiment not only cured two men of scurvy, but paved the way for the discovery of the health and social care advances we’re all
26
One of the easiest ways people can get involved in health and social care research is by registering for HealthWise Wales.
familiar with – from effective treatments for
Waterfront Museum in Swansea. Professor Jon Bisson, Director of Health and Care Research Wales, said: “Behind every effective treatment there is a person. A person who has taken part in a study or
In the run up to International Clinical Trials
research project. Without them, we simply
Day, we launched our new animated video.
wouldn’t have the treatments we rely on. So
Aimed at members of the public who have
International Clinical Trials Day offers a great
little or no knowledge of research, the video
opportunity to thank the 24,000 people who
explains research in easy to understand
took part in research in Wales last year.
terms.
Health and Care Research Wales Magazine - Issue 02 - June 2017
Jon Bisson added: “We hope the video prompts more people to ask about health and social care research. Taking part, however big or small, gives people the opportunity to improve tomorrow’s care. That’s a powerful thing.” International Clinical Trials Week also saw us launch our first ever Facebook page.
HealthWise Wales is a unique opportunity to be part of shaping the health and wellbeing of future generations in Wales, and help the NHS in Wales to plan for the future. Register for HealthWise Wales here:
Follow, like and share our Facebook page and YouTube channel: Facebook www.facebook.com/ResearchWales/ YouTube www.youtube.com/channel/UCKR5m1jTmj06DnECTA5XTfg
www.healthwisewales.gov.wales
Health and Care Research Wales Magazine - Issue 02 - June 2017
27
Calendar Click here for: Health and Care Research Wales events calendar
28
Aneurin Bevan University Health Board R&D conference
MediWales Connects
Tuesday 20 June Christchurch Centre, Newport
Wednesday 21 June Mercure Holland House Hotel, Cardiff
ABUHB’s eighth annual research and
An all Wales NHS collaboration conference.
development conference, with speakers
The event will highlight and showcase the
including Professor Marcus Longley,
excellent work being carried out by the
University of South Wales, and Louise Taylor,
health and care communities in in Wales.
consultant midwife.
Genetics and Genomics for the 3rd Generation
Dining with Dementia in Mind
Wednesday 21 June Jury’s Inn, Cardiff
Wednesday 21 June Scout and Guide HQ, Swansea
Join the Wales Gene Park for the second ‘3G’
The seminar will highlight the importance of
conference and discover how genetics and
the dining experience for residents in long
genomics affect our everyday lives.
term care, with a focus on dementia.
National Centre for Population Health and Wellbeing Research conference
National Social Services Conference
Monday 26 June Park Plaza, Cardiff
Join the key leaders from social care across
An opportunity to learn more about the work of
motivating speakers.
Wednesday 28 June Venue Cymru, Llandudno Wales to access inspirational, informative and
NCPHWR.
Health and Care Research Wales Magazine - Issue 02 - June 2017
Welsh Stroke Conference 04 - 05 July All Nations Centre, Cardiff
Health and Care Research Wales Conference Thursday 05 October SWALEC Stadium
One of the biggest multidisciplinary events in
Centre for Ageing and Dementia Research annual conference Tuesday 10 October Jury’s Inn, Cardiff
Wales, the conference is now in its 16th year.
Collaborate 2017 Tuesday 17 October Taliesin Arts Centre, Swansea
Wales Cancer Conference 23 - 25 November Principality Stadium, Cardiff Hosted by the Wales Cancer Network and the
Dedicated to celebrating and promoting
Wales Cancer Partnership, the conference
collaborative projects and partnerships
will bring together the professional cancer
across industry, academia, government,
community from across research and clinical
health boards and other organisations.
disciplines.
2018 NHS R&D Forum 14 - 15 May 2018 Celtic Manor, Newport The NHS R&D Forum, Health and Care Research Wales and the Health Research Authority will come together to host the 2018 annual event. Delegate bookings open later this year www.annualrdforum.org.uk/delegates
F UN D ING
Health and Care Research Wales funding scheme launch dates 2017
2018
Summer
PhD Social Care Studentship Award
Summer
PhD Health Studentship Award
September
Clinical Research Time Award 2017 Health Research Fellowship Award
September
Clinical Research Time Award 2018 Social Care Research Fellowship Award
November
Research for Patient and Public Benefit (RfPPB) Wales Research Funding Scheme - Social Care Grant Award
November Research for Patient and Public Benefit (RfPPB) Wales Research Funding Scheme - Health Grant Award
www.healthandcareresearch.gov.wales/funding/our-funding-schemes/
Health and Care Research Wales Magazine - Issue 02 - June 2017
29
‘What is research?’
Find out how research is keeping you extraordinary Page 27
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Health and Care Research Wales Magazine - Issue 02 - June 2017