Foundation for Mitochondrial Medicine 2013 Annual Report

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$5,000-$7,500

Boyd Collar Nolen & Tuggle Mr. David Cohen Mr. and Mrs. Richard W. Courts IV Hublot Mr. and Mrs. Donald Kessler Mr. and Mrs. Keith Hyland Medical Neurogenetics Mr. and Mrs. John Robinson Mr. and Mrs. Meade Stone Drs. John and Karen Shoffner Mr. and Mrs. Harold Wyatt Mr. and Mrs. Frank Wren

$3,000-$4,999

Mr. and Mrs. Neville Isdell Mr. and Mrs. Todd Lacey Mr. and Mrs. John Lloyd Ms. Maurie Mintz and Mr. Markus Pokert Mr. and Mrs. Patrick Wulf

$2,000-$2,999

Mr. and Mrs. Rusty Coleman Mr. and Mrs. Clay Courts Mr. and Mrs. Ben Garren Jr. Mr. and Mrs. David Green The Hudson Family Foundation Isdell Family Foundation Mr. and Mrs. Merrick Olives Mr. and Mrs. Bill Sheppard Mr. and Mrs. Ricks Tucker Ms. Laura Stanley and Mr. Michael Van de Planque Mr. and Mrs. W. Dan Wright Mr. and Mrs. Rusty Coleman

$1,000 - $1,999

Mr. and Mrs. Joey Albert Arizona Community Foundation Mr. and Mrs. Neal Aronson Mr. and Mrs. Manny Arora The Atlanta Braves Atlas Copco Compressors LLC Mr. and Mrs. Matt Caine Mr. and Mrs. Jason Norton EQUIFAX Mr. and Mrs. Jim Frank Mr. and Mrs. Bob Green Mr. and Mrs. David P. Higgins Mr. and Mrs. Harold Hudson IntercontinentalExchange, Inc.

$500-$999

Mr. and Mrs. Andrew Abernathy Mr. and Mrs. Tim Adams Alpha Oxy-Med American Textile Company Mr. and Mrs. Manny Arora Balch Companies Mr. and Mrs. Zan Banks Mr. and Mrs. Matthew Bartelt Mr. Richard Beebe, Jr. Mr. and Mrs. John Bencich Ms. Paula Bevington Mr. Dick Boger Mr. and Mrs. Bill Bollwerk Mr. Gabe Bove Mr. and Mrs. Pat Brumbaugh Ms. Louise Cherry Chick-fil-A Mr. and Mrs. Rodes Cole Mr. and Mrs. Brian Collins Cota Construction Mr. and Mrs. Aaron Danzig Drs. Whitely and Dasilva Mr. and Mrs. Jim Defurio Mr. and Mrs. David Dombrowski Mr. and Mrs. Carl Drake Mr. and Mrs. David Edmiston Mrs. Laura Fritts Mr. and Mrs. Jeffrey Fisher Mr. and Mrs. Tony Gaines Ms. Emily Giffin & Mr. Buddy Blaha Mr. and Mrs. David Gracey Ms. Alison Stuebe and Mr. Geoffrey Green Mr. and Mrs. Richard Griggs Mr. and Mrs. Greg Grizzle Ms. Julia Haesemeyer Mr. and Mrs. Tom Hough Ms. Patricia Hurter James-Bates-Brannan-Groover-LLP Mr. and Mrs. Keith Jernigan Mr. and Mrs. Mark Kauffman Ms. Dee Krueage Mr. and Mrs. Jim Landers Mr. and Mrs. Ben LaPointe

LDJ Enterprise, Inc dba ServPro of Newington Ms. Patricia LeFebvre The Little Bake Shoppe Mr. and Mrs. Wade McKenzie Mr. and Mrs. John Mori Mr. and Mrs. Bruce Moskowitz Mr. and Mrs. Douglas Nichols Mr. and Mrs. John Norton Nutmeg Restaurant - Krini LLC Mr. and Mrs. Michael Ouweleen Mr. and Mrs. Timothy Payne Peerless Tool & Machine Company, Inc Petit Family Foundation Mr. and Mrs. Frank Reese Renn Wealth Management Mr. and Mrs. Jake Ring Mr. and Mrs. Marvin Rosenberg SAKS Incorporated Ms. Molly Smalley and Mr. Brian Scales Mr. Roger Shaffer Mr. and Mrs. Blayne Shelton Mr. and Mrs. Kenny Solomon Southern Auto Sales, Inc Mr. and Mrs. David Stallings Ms. Karen Klein and Mr. David Stearns Mr. and Mrs. Joe Stewart Mr. and Mrs. Randall Street Suntrust Bank Mr. and Mrs. Hugh Tarbutton Jr. Ms. Tracey Tiska and Mr. Peter Tomlinson TRICK 3D Mr. and Mrs. Jonathan Tuggle Mr. and Mrs. Ed Urquhart Mr. and Mrs. Jeff Ussery Bret Watts Automotive Mr. and Mrs. Scott Yates *Thank you to all of our donors. Any and all levels of support makes our Hope Fly. Please let us know if we have inadvertently had an error in the above list: info@mitochondrialdiseases.org

THE FACES OF MITOCHONDRIAL DISEASE

J.B. McGee’s Family For J. B. McGee’s family and many like it, things from the outside may seem perfectly fine and normal, but in reality, the day-to-day means daunting medications, extreme medical expenses, fatigue for the whole family, feeding tubes, ports, and CPAP’s, all of which are required to manage the entire family’s mitochondrial disease.

The

FireFlyer 2013 Annual Report

J.B. McGee’s first child, Noah, was born in 2005, seemingly healthy. In 2006, after a year of constant infections, diagnosis of sleep apnea, and surgery to take out his adenoids, Noah needed to have another surgery called a Nissen Fundoplication and a feeding tube inserted to keep him from aspirating his reflux into his lungs. Within two weeks of that surgery, J.B. and her husband learned they were expecting Jonah.

Dear FMM supporters: On behalf of our Board of Directors and everyone worldwide affected by mitochondrial disease and the many related diseases, I’d like to thank you for your continued support of the Foundation for Mitochondrial Medicine. 2013 was a year filled with many new fruitful opportunities, particularly in our efforts to fund cures and fuel connections. FMM is now poised for expansion of our initiatives, and we look forward to exciting developments in this coming year.

Soon after, J.B. and Chad realized that Jonah was following in his brother’s footsteps. Within six months, Jonah was also diagnosed with the same motility issues as Noah. Jonah also had sleep apnea and periodic limb movement disorder along with frequent wheezing and infections. He had numerous hospitalizations and by one year of age had already needed over twenty antibiotics. At last, a trip to see a new doctor for the boys led to a referral to see Dr. John Shoffner and the investigation into a genetic condition called Mitochondrial Disease set full sail.

2013 Hope Flies Catch the Cure Pictured from left to right: Danielle & We are extremely pleased to announce the Jim Poppins, Laura Stanley, Dr. John Shoffner, Laura & David Green recent addition of new Board of Directors and Advisory Committee members and look forward to their contributions to FMM’s growth and success in 2014 and beyond: Fred Blankenship WSB-TV News Anchor Dick Boger Lex-Tex International Anthony Soscia Atlantic Pharmaceuticals and Advisory Committee members include: Bob Baxter, Korn/Ferry International; Nate Bennett, Georgia State University; Paula Bevington, Bevington Advisors; Brian Dorrien, Venadar; Rich Fabritius, Brunner Advertising; and Russ Lipari, Validus Group.

Muscle biopsies and genetic testing first for Noah, then for Jonah and later for mother and father, J.B. and Chad. For J.B. and Chad, diagnoses of mitochondrial disease became the explanations for chronic lifelong symptoms that never seemed to have a single point of origin. Throughout J.B.’s life, she has suffered from fatigue, overheating, frequent dehydration and infections. During her freshman year of college, J.B. was forced to take a medical leave for symptoms, now known to be related to mitochondrial disease. Chad has had a ten year history of fatigue, pain, and GI symptoms all of which stem from mitochondrial disease.

We are very proud to announce our partnership with the Alzheimer’s Drug Discovery Foundation to co-fund innovative translational research for mitochondrial dysfunction. In 2014 and beyond, we look to continue our partnership with the ADDF as well as expand our collaborative efforts with other organizations also dedicated to funding cures for diseases with mitochondrial dysfunction as a core element.

Noah was diagnosed with gastrointestinal dysmotility, and despite the previous surgery, his sleep apnea persisted. He also had developmental delays, and J.B. and husband, Chad were positive that there had to be something more to these symptoms.

J.B. McGee has channeled her energies into writing and in 2012 published her first novel. Your support of her work helps raise awareness for mitochondrial disease and fuel hopes for treatments and eventual cures. To learn more and donate in honor of J.B. McGee and her family, visit www.hopeflies.org.

In September 2014, we will celebrate the 5th anniversary of our first Hope Flies event, our Atlanta Hope Flies Catch the Cure, which has raised more than $850,000 since its inception. As we prepare for the year ahead, we have our sights set on continued growth, expansion and partnerships. We thank you for your continued support of our organization through your dedication to fundraising, attending and organizing events, volunteering, connecting us with new partners, and increasing awareness to help FMM lead the way to treatments and cures.

{ Did You Know? }

Mitochondrial disease is more common than childhood cancer.

Upcoming Events

Most sincerely,

Check out www.hopeflies.org for all of the details Hope Flies For Friends

Hope Flies Stars for Audrey

Partners for the Cures

Hope Flies Catch the Cure

Hope Flies Walk for Abby

FMM Scientific Summit

Color Run - Miles in Memory of Michaela

Firefly Run

Hope Flies with the Braves

Interested in supporting one of our events? Contact us at info@mitochondrialdiseases.org.

February 20, 2014 Ponte Verde Beach, FL March 6 & 27, 2014 Atlanta, GA/Chattanooga, TN April 26, 2014 Broad Brook, CT June 2, 2014 Portland, ME

July 26, 2014 Turner Field, Atlanta, GA

September 13, 2014 Greenwood, IN September 19, 2014 Atlanta, GA September 20, 2014 Atlanta, GA October, 2014 Atlanta, GA

Phone 1.888.448.1495 Web mitochondrialdiseases.org

Future Digital 1111 Foundation Stealth Peptides Incorporated Mary R. Gilbert Trust

Mr. and Mrs. Mark Kessler Mr. and Mrs. Larry Klein Mr. and Mrs. Chris Martin Neiman Marcus Mr. and Mrs. Erwin Reid Mr. Griff Stanley Patricia Bowman Terwilliger Family Foundation Charitable Trust Mrs. Pam Perkowski and Mr. Mark van Weegen Webster Bank Mr. and Mrs. Iwan Williams

5424 Glenridge Drive NE Atlanta, GA 30342

$10,000 and above

Non-Profit Org. U.S. Postage Paid Atlanta, GA Permit 2563

Major Donors

Executive Director Foundation for Mitochondrial Medicine

Board of Directors Fred Blankenship Dick Boger David Green Keith Hyland, Ph.D. Steve Rothschild

Dr. John Shoffner, M.D. Anthony Soscia Frank Wren Terri Wren

Laura Stanley Executive Director Morgan Smith Operations Manager


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