Partnering with the IMF
Sylvia Dsouza
Vice President, Development
International Myeloma Foundation
Engaging & Partnering with the IMF
Sylvia Dsouza, Vice President, Development
WHO AM I WHAT DO I DO?
Vice President of Development for the IMF
Securing philanthropic support and resources for the IMF through diverse mechanisms
Oversee a team of passionate and determined fundraising professionals who are committed to advancing the mission of the IMF
Have the incredible honor of working with dedicated volunteers from the US and across the globe.
3 Ways to Engage
Philanthropy
• Make a philanthropic gift to support research, education, advocacy or patient support programs.
• Organize or participate in fundraising events such as walks, runs, golf tournaments, community block parties, or galas.
• Create a fundraising campaign online to raise awareness and funds.
Volunteer
• Join your local support group/become a Support Group Leader
• Join our grassroots patient Advocacy program
• Volunteer your time at local races organized by the IMF to engage the community
• Engage on social media to connect with others affected by myeloma and spread awareness and empower patients with knowledge and resources. Intellectual capacity
• Offer your expertise as a speaker or panelist at events.
• Be a beta tester for various new tools and products and provide reviews and feedback
Philanthropy Fuels Needle
Peer-to-Peer Fundraising
• Peer-to-Peer Fundraisers are created from YOUR ideas. Starting a Fundraiser is easy and fun. They also make a world of difference in the myeloma community.
• Engage your family, friends, co-workers, your network who honor your journey with myeloma and want to support you. Let them show you that you are not alone.
Join the HOPE Society (Recurring Monthly & Annual Giving Program)
• Help us cultivate the future by joining the International Myeloma Foundation's Hope Society.
• Monthly and annual gifts support IMF core programs, including educational events, publications, the toll-free InfoLine, and more.
• Start with a monthly contribution and when ready turn it into a yearly commitment. You will be a part of likeminded individuals united in the quest to find a cure for myeloma and a better quaity of life for all myeloma patients.
Transformative Gifts (Major Giving and Principal Giving)
• Gifts can be designated toward a specific program, project or initiative .
• Is there something specific that resonates deeply with you and you want to see change happening?
• Gifts can also be unrestricted, expendable and/or an endowment
P2P
Peer-to-Peer (P2P) and Monthly & Annual Giving
• Laughs 4 Life -- 8 years, $483,850!
• Miracles for Myeloma -- 12 years, $804,422!
• Iceland Cycling Expedition-- Inaugural Event and opportunity to be a part of a group of patients, doctors, nurses to train together, bike across Iceland and raise money to support iStopMM cure trials.
• Hole In One – Inaugural golf tournament that has raised almost $40k in three months.
Monthly & Annual Giving – HOPE Society
• Join our flagship monthly and annual giving program, the HOPE Society.
• Get invited to Regional Salon Dinners in your area with IMF leadership and KOLs.
• Receive exclusive updates on research and trials fresh off the press.
• Play a pivotal role in supporting our four pillars.
• Support long-term initiatives that make a lasting difference.
Major Giving - Black Swan Research Initiative
The Black Swan Research Initiative was funded by a Board member/donor who was a visionary and saw the need for the IMF to launch this initiative
The IMF's Black Swan Research Initiative serves as a conductor of sorts to this orchestra of collaborating experts in the field of myeloma.
The BSRI sponsors more than 50 projects around the world aimed at curing multiple myeloma. Among them:
SPAIN: The CESAR trial uses the combination of Kyprolis, Revlimid, and dexamethasone plus autologous stem-cell transplant to treat high-risk smoldering multiple myeloma. It applies precise minimal residual disease (MRD) testing using next-generation flow cytometry (NGF) and Blood testing for routine monitoring
USA: The ASCENT trial tests early intervention in high-risk smoldering multiple myeloma.
ICELAND: Launched in 2016, the iStopMM project identifies and treats multiple myeloma at the earliest signs of disease.
GERMANY: Studies are exploring long-term survival and hereditary risk factors in multiple myeloma.
AUSTRALIA: Identifying mechanisms of the progression of multiple myeloma and testing DNA mutations in the blood.
SINGAPORE: Hub for the clinical trials network in Asia led for the IMF’s Asian Myeloma Network (AMN) program by Prof Wee Joo Chng. A collaboration of eight countries (or regions), the AMN is unique in providing access to novel agents in a clinical trial setting throughout Asia. In addition, research projects appropriate for the region are conducted in an effort to improve outcomes and achieve a cure.
What will your legacy be?
Planned Giving
• Join the Brian D. Novis Legacy Society and make a planned gift!
• Gain immediate tax benefits
• Potentially increase your income during your lifetime.
• Continue to fund our core programs and four pillars.
• Make a bequest (a gift from your estate)
• Include a provision in your will or living trust.
• Designated us as a beneficiary of a life insurance policy, or retirement plan (IRA, 401(k), or 403(b).
• Leave us in your will is one of the most profound ways to support the people and causes important to you. Corporate and Foundation Gifts
• Your organization can contribute a corporate gift or foundation grant
• Provide seed funding that is necessary to accelerate the path to a cure.
Support Group Leaders Summit 25th Anniversary
>210,000 raised toward goal of $250,000!
• Each year, patients and care partners gather to share their stories, experiences, and knowledge. It is through the tireless dedication of our support group leaders that we’ve been able to extend our reach and foster connected communities across the world.
"The Support Group Leaders Summit has empowered me to network with leaders nationwide, learn from their experiences, and appreciate the dedication of the International Myeloma Foundation (IMF) to patients, caregivers, and families affected by myeloma."
Start the Conversation
We welcome you to continue to learn more about our programs, projects, and initiatives at the IMF and find alignment with your own myeloma journey as well as ways to deepen and strengthen your engagement with us. Reach out to the IMF Development Team to start a conversation on how you can make a difference in the lives of the people impacted by myeloma.
Sylvia Dsouza Vice President, Development sdsouza@myeloma.org (310) 947.4126
Kate Fitzpatrick Assistant Director, Monthly and Annual Giving kfitzpatrick@myeloma.org (818) 487-7455 x 303
Kimberly Francis Assistant Director, Peer-to-Peer Fundraising kfitzpatrick@myeloma.org (818) 487-7455 x304
Matthew Broughton Assistant Director, Operations mbroughton@myeloma.org (818) 487-7455 x299