;e,iSñhdj y÷kd .ksuq by Dr Androulla Eleftheriou
m%ldYh wka;¾Pd;sl ;e,iSïhd iïfï,kh PUBLISHED BY THE THALASSAEMIA INTERNATIONAL FEDERATION
Thalassamia Cartoon for Young Children All ABOUT THALASSAEMIA By Dr Androulla Eleftheriou
Thalassaemia International Federation 2011
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ISBN: 978-9963-623-94-5 All right reserved. No part of this book may be reproduced, stored in a retrieval system, or transmitted in any from or by any means, electronic, mechanical, photocopying, microfilming, recording, or otherwise, without written permission from TIF. Author: Dr Androulla Eleftheriou IIustration and Art Direction: Maria Pavlou www.behance.net/mariapavlou www.mariapavlou.com m_pavlou@hotmail.com Director: Nicholas Demetriou nicholas@mediastudios.com.cy Media Studios 1 Mykonou street 1066 Nicosia Cyprus www.mediastudios.com.cy Printed in Nicosia,Cyprus Š February 2011 Published by Thalassaemia International Federation 2
ALL ABOUT THALASSAEMIA By Dr Androulla Eleftheriou
We thank the following:
Dr Michael Angastiniotis, TIF Medical advisor, for his recommendations Mrs. Andrea loannou, Learning Support Co-ordinator of the Junior School Nicosia, for undertaking the pilot study The administration, staff and students of The Junior School Nicosia, for their support and comments
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msÿu wm fï fmd; wkd.;fhaoS ;e,iSñhd frda.fhka iqjùug isysk ujk oekg id¾:lj frda.hg m%;sldr lr i;+gq iqjodhl Ôú;hla .;lrk f,dalfha ;e,iSñhd frda.fhka ìysù we;s Mä;r <uhska yg m%odkh lruq' wka;¾Pd;sl ;e,iSñhd iïfï,kh
isxy, mßj¾;kh cdklS iQßhwdrÉÑ uy;añh fiamd,s wfn.+Kj¾Ok uy;añh iy ñ;+rshka úfYAI{ ffjoH ld,sx. kdkdhlaldr ,xld ;e,iSñhd ljh
4
nd ajkæa w wdh qf
kæ a j a d d h qf n
u
d@ sh , l jq o l .a m qxÑ hd¿jfka Th x f d ,d okakjo u u uu ;uhs yeÍ æ
a bkak hd,f.a hd¿fjl'a < f = T Thd ,f. weÕ we; x
5
mqxÑu m qxÑ hd ¿fjla'
du q K g g fi, a,ï lroao s j e i r; = mdgg j g o S e Kdu - r; = md g g ir lo Thd,g iu yr ñ ; u SreKd u - je, k tka fk' i i a i s oK f. .,d , aZ ' f z s h u - ta ;
d ;u
a Z' s , h f z d j s, d ;sfh k wms yeufokd f.u wef Õa msr ; = fj , l j x t f = ; m r u dg ìx ÿ ì xÿ .a m q x Ñ mq xÑ zf,aZ yefokaf k'
6
s lh
ux jf kafk r; = ffi, . a mq x h s Ñ ìxÿj , g l
s' ,h
w
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d au r; = md gh s'
yßhg mq x Ñ r; =m
a' a jf. k Õ s d g m e;,s m
7
wms ;uhs mqxÑ Thd,f.a weÕ mqrd Tlaiscka f.kshkafk'
okakjd fkao Tl aiscka @
ka ,efnkafk wms yqiau.kak jd;fhka' r;= ffi, weÕ mqrd wmg Tlaisc Yla;sh ,ef nkfak weÕg a ' m f . f k hk Tlaisc ka j,sk a ;uhs w wr
.s y i, weÕ m qrd Tl k f = f . f ; aiscka wr r fï a b ; sk g mhg ÿjkak mkskak kgkak ; w g j T¿ la;sh fokjd' jk Y f H wjY
8
k s a
a Wo õ f j k fï Tl aiscka weÕmqrd f.kshkk
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ySfud.af, dìka f.dvla ;sfhk fldg fyd | d' j g Tl aisck jk a wrf.k hk ak m q¿j k a f
9
fkfuhs ' a k w a f m k s l b j r f , ; .a r f ,aj ; = ffi , ú d¿fjd j¾. ; = k h j audj' l a bk akjd' ; i f i d f , ÿ , a " q m i Üáld i y m ;uhs ï k t hd,f.
t a jqKd g ksl ï kafk' b ms yefudau f,aj, s h w md ú mdú ;u fï ev f.dvl a ;sfhkj d' j k a k j b d f ú d k a k m k fuh s md ú ' wmsg lr tl; =fj,d m qxÑ Thd ,d j l ú êh h s ' t g l l t wm s yefudau t wm s ke; =j ksfrda.Sj Y kjd' f,v l a; su;aj ;sh fjd lÜáhla ' ¿ d h fma i qÿ ffi, ls h ka f k w a ' wms r; = -mdg i k a fj thd,d wmg jvd áll skau l sõjf k a' u u q, u , h s me;,s msÕk a jf.a l f . a' j a , d n f g d m s' i q ÿ h u kf q ÿ reêrd kq tfyu f i a a t; i qÿ ffi, ; u hs' k f a s k iÿq ffi , ;h S j d a. r s f a i gka lr,d wm sj k tll c Iî wfma weÕg we; = ¿fjk ú
10
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mÜáld ,
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a' f.
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a B<Õ hd¿fjd ;u hs m a, di au .a , d i a f a u m d f j k d j j' w ;uh ;fsh kl ; =r s s' t s ay j g d al g ; efud au md fjù bk afk fï lym we ;u lymdg j; j d a u d i d hs =r m a, , kj wm s jf n d .a k f,a ls h , d lshkafk' b; ska Thd, ïf d gg ,a = m ; fl ' ,a r d fyduo f ' d , s h id s r ; = m d g f j k af k l ,k fm r; = ffi, ál a i m f f w fk f, ;= f k af k a j, r a ka ú . f j m s f a , m di w u a k d j f j df m sk a w fm h g k s . f w e , Õ d Yla; al Th mdg f<d; + r su ; ; a Tkak f,a lymdgg ke; akï j a fj k ak ksf rd . d¾: a S fj s' kak úgñ k a fm%daàka fmd aIK mo uh ; a ud j i d a , m a weÕmqrd f.ks h ka f k ;
'
wfm
11
uf.a m qxÑ hd¿fj do kak j yefud au tkafk fldfy fud au s m o w f e l * ï k a g a f k ß t k ao lsh,d@ wms ye hl s ka ' t a *el agßh ; sfhkafk yßhgu wfm a <' weg lgq w e; = f
;ska Thd,d l, f.a amkd lrhs oeka b weglgq we; =f< fldfykao wm s j
ffi, yok *elagßhla ;sfhkafka lsh,d' Tõ we;a;gu ;sfh kjd' g fï t a;a iuy r fj,dj wmj yok *el agß fh a m sfjkjd' qxÑ m qxÑ m%Yak we; t;fldg r; = ffi , j,g dìk a tl; = lr t hd,f. .kak ud.af, S f y h d ¿ neßfjkjd' u;lhs fkao w r y Sf ud . af,d ìka æ Õ e w m a r q m d f w Tlaisc ka f. k shkak W lrkafk æ oõ 12
,d'
@
ma f b;ska thd ke; =j fldf yd uo r; = f i , w k f kaf weÕg ´k lrk s h k Tlai sc k a weÕm qrd f. fï Tlaisck a ke;sj . qKdu mqxÑ Thd ,f ' jd k weÕg f .dv la uykais oe fk sh dl jd ' h ñ S k T j k h f dj u<dk sl we k a f d' sh,d' lshk jkj i f s q g ÿ l u e < u ,d d a l u t r a ; i d d fo h i Sñ , e tfyu ke; akï ;
13
每Kq orejka f e y d h 帽 S i .dv , e ; la b qr d m h kak l a d jd f, '
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;e, iñ ; sfhk *elagßfh r;= S h ffi , yoo aos t ajd we; = <g y e; =f< w d ; sf h eÕ Sfu w a m f k w f ldg d.a f d' ySfu ,dìka od k ak neß fjkj d' ,g weÕmqrd Tlaisck d. fi, j neßfjkj a s k a f k . k h f = fï j fa,dì f. ka ke;s jqKdu fï r; mqrd bkakjd' ;e, a a f,dlh i S ñ h d yeÿ K d u r ; = a; l v d e,i S . h d , f g T j d' s f Ñ o q x d i a;r udu ñ h d yeÿKq <uh dg m k f jk f ´ l õ f o . k a W f t; ffi, ÿ¾ j, fjkjd'
ta l s
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's
h s h, l h drú,hk alg lshkafk reêr m t ' d fodi a;r udud Th ok j s ;d f d,dg f s r , m a w¨; ,a bi au w¨;a r; = ffi amsß ; df , o s ' Thd,d tkl i b k a fo ok fa f k 'f, kjd' ls h k a a f f, tlg S hd hk iñ dg , u ;uhs' e ; , d , d d Th g Woõ lrkak' th Thd,d d j ak bk ak bk f.d d , vla f okd wdorf h ka n yd|g ok akjd' .ek f.dvla foaj, eá;a f y a ok k ak j ak ´ d' T h k r d,g Woõ l
15
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w;g ß; s , f a a § df m o . dia;r bi h df udu T a d yß q l gj k¾i k j d K s l q u ' t w a ; | fldg a kekaod yß m qxÑ b a ñk eä h j k; pqÜg g up qK d j q Ügl a t a r sf o k ß fo ; uhs' j d kafk s' kE' ai sh , f m q reÿ jq Kdu yß pqÜgla ßÿK; a wms fldfy d u yß w¨; b;ska Bg mi afi w a r; = r b | sl e' ff i , g q jg tmd h w a w k < e = ; d k o . Õ g e w ¨ ; au wuqKkjd' t a r; w¨;a = ff i r; = a , mqx ffi, msreK q m qxÑ nE.a tll Ñ b| sl gqj Tkak Thd,g wdfh osf.a p q u;a f, Üg p qÜg weÕ we; =<g hkfldg dl = i k Sm h la we Õg Y la;shla oefkk ak mgk a .kakjd'
16
ka' iuyre j ¿ q m b i a m sr s ; d f , o s T h d ,g wdi lrk f.d vl a foaj,a lrkak n,kjd' ù á ' ,iaik l;kao d r fmd;a lshjkjd' m ska ; + r fmd;a n,kj
' ,ia ik ld gQka n ,kjd
jkak , o s Thd,g w¿;a hd¿fjd f d f s ; n s ï r f.dvl =;a y biam
17
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=g
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ta ;a
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k' f j
ok n ï' r; = reêrd k a f ; r a ¨ q weÕ ; sck hs w i a m e l q r T a k d j g w ksk eÕg f,dl = ieye m w ,a¨j dg l a oefkkj d Wv l f t;
18
fo shk kak fa '
f, a
oj
ks
al hd¿fjd tl k a k a k mk k j ' ska kk a ,efnkj d m l v gkak W v f i , a, ï l f r k ak Y l a; s h
.d
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ud
l
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d kj = reêrd kq j ; j r a f t ,g T hd f ne ß t a jq Kd g . wefÕ a f.dvl a l,a bkak e;fsj,d hkj d' B jd k a jd' t k i a g f k i m i af i f ojilg m wdfh;a weÕg uykai s oe l ál Õg e k' w u d a k k ÿ a ; a f, d h f si úo d' fï shg wd fh ;a wd okakjd' t a k fkkj j e n a k o a s t Yla; h tk ud iafi wdfh; a m ksfrd a. S fjkjd' g l a i ¨; w u a ; a w¨ ; fh wd
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¨;a r; = reêrd kq tk t a w f.dv g Õ e la f w yd| d v . l f a i k Sm l r hd,j T d h s' j a j kjd' t x Ñ W mq oõjla ´f j k fj hd,dg ; kjd t a; a T '
Thd ,g
Sfud.af,dìka @ u;l hs fkao y
= ffi, wiafi b| wr r; f.k afk weÕ ï k k f ï u T g l d a ; h a i ; e m scka f w e| s, .ksh qrd u Tlaiscka wrf .k n kafk h lv lE,s ;uhs' g ;sfhk a j, fï ySf ud .af,d ì k
b;ska f,a oS,d ál ojil gm lefvkfldg wr iaf i ux b fï i ai r r; = f fj, fi, leä, a f k j j k d d hkjd' r; = ff j f d' f,a lsh i, oS,d á mq h l v lE,s;a lo ySfud.af,dìk jil aj,ska a hk fl d g ;uhs fuf yu fjkafk'
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t;f ld g fï ajqK q hlv lE,s Thd,f. wef Õ a k j leä,d f fldf y a yß . fjkjd' yojf;a wl aud fj fï sy ska k;r skak m q¿jka' fld fy ß kj; ay
we
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t;
.
Thd,f g d fl la h Õ j d ak mq¿ g i q; jk y w m f ;s
t;fldg Thd, jkjd' f g d m f. yu w÷re weÕ ÿ¾j, fjkjd' fyd|g jefv jd' kak; a neßfjk fldg Thd,f qr hlv m ä . we t; e j fÕka t a whsk a l r k ak fjkjd' 21
Th
aú ' o af l ; fnfy
a;r udu,d t a .ek yßh gu okak . fodi f jd' thd ,d Thd g d, t a fnfy;g wr jeäm qr h d' j lv ldk k aoulg j f. a weos,d t
Thd,d jei sl s, shg
<s h t .shdu t a hlv Tl afldu
g
jd' k h
, t al g l shkafk hlv lS,kh lsh 22
h s'
.;fjkfld g w ,d ß s ? a i e f ú , a Õ oj
qK q s n ;
g mi fai yeuod u h s w ska fjk , E l jd a ï jefä f.d v l f vl $f e a ' j s f d , ai j ï u, a,g tl; = fjk fuhs' t a;a t alg a shs lsh,d k f a f ,i ál y sf ; l v a ú' la m .d f qreÿ j qKdu kï dç ueisu tl T m biafld af,os msÜ hd f g d gk sfhos;a l ksoh s kfld g .uk a hkf f.oroS;a wu qKf.k b mdç ueis u t l Thd ,f . kak mq¿jk a' we; a;gu fï f jl u hd¿f a jf.a ;uh s' | d fy
kï
hl v
slgqj we`.g wuqK | .; b ; a
fï
fï
b| s
ú os
a hlv lE,s t <shg jf. fï wo l s ak ;j tl t k ; y a f l n % u f ;sfh a kj fh d' tl a g mq x Ñ h = s fmdç ueisul l j q h= s lg ´ k fjkjd'
23
fï jf. a hlv whs ka lrk ;j;a úoshl a ;sfhkj d' t a ;uh s fnfy; a fm;s' tajd Thdg j; = r tl al meK s î u tlal j qK;a . s,skak m q¿ jka'
g s Thd ; a h ; d ; uhs ï w . fodia;r udu a hk fldg f l i d d fo j Th kf lo á nfy; a j¾ . ' ,d yßhgu lshd s h foaú l k f ld a f fyduo fnd k h s' j Thdg t ajd ; f a jk k hs ¿ q m u u fndkak;a
d Th
fyd|ska i ; =ák a k sfrd a.Sj bkak kï yßhgu f ï Tlaf ldu ál lr.k ak ´fk'
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lrkak Thd jfÜ Thdg wdo f¾ lrk f u d l .dvla fok Tlaf d bkak ï f jd' ¿ f h d j h Ef d o E d f k o d d a ; i ; d a ;r udu,d ïud ; k¾i a kek w . ao,d fï f d u T a d h u d g f Th e f .dvla wdofrhs' y f.dvlau f.dv la wdofrhs'
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ak wfkl +; a ï; +rka , i , .eko f, a j bk .ek ok f f + ; r akj d h T fk a k e ao o ;e,iSïhd .ek;a okakj fkao mdç <uhskag; a fï .e fmf,k wfkl +;a f k lshd a k j f d h fokak S ï i , e ;
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About the Publishers: THALASSAEMIA INTERNATIONAL FEDERATION Thalassaemia International Federation (TIF) is a non-profit, non-governmental, patient-driven organisation founded in 1986 with headquarters in Nicosia, Cyprus. TIF's mission is to secure equal access to quality health care for every patient with thalassaemia across the world. TIF has been working in official relations with the World Health Organnisation (WHO) since 1996, and its educational programme includes a wide range of publications, workshops and conferences at local and international levels for patients, carers, health professionals, and the general public.
This book has been created with a lot of love for the children with thalassaemia who need to understand their condition, accept it, and draw strengh from this knowledge to build a better future for themselves.
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ISBN: 978-9963-623-94-5