First Pan-European Workshop on Thalassaemia Organized by Thalassaemia International Federation Monday 26 November 2007 Programme, 12:00-19:00
Venue: Marriott Lisbon, Portugal
Hours 12:00-13:00 Lunch 13:00-13:30 Welcoming Ceremony Thalassaemia International Federation- Panos Engelzos DG Health and Consumer Protection- Antoni Montserrat Cyprus Embassy in Portugal- Nearchos Palas 13:30-13:40 Chairpersons: Shobha Tuli/ Roberto Ficara 13:40-14:00 An overview of the epidemiology of Thalassaemia Androulla Eleftheriou (TIF) 14:00-14:20 Need for the Establishment of National Prevention Programmes in European countries Beatrice Gulbis (Belgium) 14:20-14:40 Guidelines on establishing screening programmes for the haemoglobinopathies in Europe: the UK experience Alisson Streetly (UK) 14:40-15:00 Clinical Management of Thalassaemia: major and intermediate Anne Yardumian (UK) 15:00-15:30 Coffee Break 15:30-15:40 Chairpersons: Fatemeh Hashemi/ Mouna Haraoui 15:40-15:55 Sickle Cell disease: treatment and prevention 15:55-16:10 Patients/Doctors Relationships Bernard Davis (UK) 16:10-16:30 ENERCA Projects: activities and objectives Joan LLuis Vives Corrons (Spain) 16:30-16:45 News from Novartis, Dr. Lisa Rojkjaer (Switzerland) 16:45-17:00 News from Apotex-ApoPharma Dr. Fernando Tricta (U.S) 17:00-18:45 Interactive patient/ parent session- Co-ordinators Michael Angastiniotis/George Constantinou • Strong NTA* , Co-ordinator Ramli Yunus • Treatment: current and future, Co-ordinator Riyad Elbard • Growth and Sexual Maturity, Co-ordinator Dr. Christina Stephanidou • Psychosocial Support, Co-ordinator Anton Skafi • The role of the parents, Co-ordinator Shobha Tuli • Social and Professional Integration, Co-ordinator Dawn Adler 18:45-19:00 Conclusions and Outcomes, Panos Englezos
*
NTA (National Thalassaemia Association)