L ve your health Improving hospital care Jon Ridd and Jayne Nicholls
#loveyourhealthldw
The Paul Ridd Foundation
@paulriddfound
www.paulriddfoundation.org
Why we are here today…
Paul’s story This is our brother Paul.
Paul enjoyed many things.
Paul’s story • Paul had many problems with his health and went to the Doctors. • Paul went into hospital in 2008 and died in hospital in January 2009. • He wasn’t given good care.
Paul’s story • After Paul’s death we asked many questions. • We had many meetings. • The Ombudsman investigated and found out Paul shouldn’t have died.
We were very sad when Paul died
Hospital staff only saw Paul’s disability, they didn’t see the person
We have set up a Foundation for our brother Paul This is Debbie in our office in Baglan near Port Talbot We have helpers to help us
We put banners and leaflets everywhere so people can ring us if they need help.
We wanted hospitals to change We have been to many meetings to talk about the changes needed for people with a learning disability.
We have given many talks We have talked to student nurses, carers, doctors and nurses about Paul and the changes needed for people with a learning disability.
We have talked to people with a learning disability.
• In 2014 this booklet was launched..
• Next came this booklet. It is called the Care Bundle. It can be found in many hospitals in Wales.
Here we are at the launch of the Care Bundle.
Pathway Care Bundle for Adults with a Learning Disability
This is to be used by hospital staff whenever someone with a learning disability is admitted to any ward or visits any department. It tells staff what they need to do to help people with learning disabilities.
Pathway Care Bundle for Adults with a Learning Disability Within 4 hours of admission, staff should: Notify acute liaison nurses/learning disability services. Notify the patient’s next of kin and/or primary carer of admission. Request hospital passport for the person.
We have made a leaflet for you
These guidelines aim to ensure good communication between hospital staff and departments, as well as family members and supporters. Family and carers will know lots of useful information about the person they support and this will help hospital staff deliver the best healthcare possible. Daily, staff should: Create/review/update ‘Patient-centred care plan’, developed with patient, primary carers and/or family. Communicate and shared Patient-centred care plan with ward team members. Identify a named nurse to patient/family/carers and other staff throughout the duration of stay. These guidelines aim to ensure that all hospital care for people with a learning disability is person-centred and delivered according to their needs and preferences. Within 7 days of admission: Full multi-agency/family/carers discussion held, with the aim of reviewing progress and/or planning discharge. Discharge should be safe and appropriate. This intervention aims to ensure that the person’s condition, care and treatment are reviewed regularly so that progress can be monitored and discharge can be carefully planned in a way tat it runs smoothly, is safe and appropriate.
We have made a Logo The logo is a gentle indicator that that person needs a little extra care. Our logo is being used across Wales to represent adults with learning disabilities.
We have made a Logo
We have made Logo Packs • We have funded, put together and given out 1200 Learning Disability logo packs to every ward and department in every hospital in Wales.
What can people with learning disabilities do to help themselves?
• Every year go for a Annual Health check •
A health check is when the doctor checks if you are healthy. You don’t need to be ill to get a health check.
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The Doctor will send you a letter inviting you for a Health check. If you don’t get a letter please telephone your Doctor to make an appointment.
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You can ask your doctor or nurse about anything that is hurting or worrying you.
Complete your Traffic Lights (Health Passport)
Learning Disability Nurses
• Some hospitals have special nurses that help everyone in the hospital to care for people with learning disabilities. • In Swansea we have Joanne and in Bridgend we have Claire. In Port Talbot we have Chris.
Learning Disability Champions •
We go to hospitals to help train staff to become Champions
We have paid for LD Champion packs for our Champions in our Health board which is called ABMU
Our Vision for the future
Paul’s Legacy The Logo to be recognised and used across Wales and the UK
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For everyone to have a health passport
All NHS staff should have LD awareness training
For everyone to have a “Quality” Annual Health Check
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Liaison nurses and champions in every hospital across Wales and the UK
To have a flagging system across every health board
What would make your stay in hospital better for you?
Thank you for your time