Exceptional Family Winter/Spring 2020 by Lexington Family Magazine

WINTER/SPRING

2020

INDEPENDENCE

INTEGRATION

INCLUSION

874K Rally Turns 20 Annual Event Has Raised Awareness in Frankfort About Issues That People With Disabilities Face.

7th Heaven Jill Barry, a Single Mom in Lexington, Adopted Five Children Born With Severe Medical Issues... and Then Had Two Children of Her Own.

4 Meet Tim Moore

7 Reader Survey

16 Paul Hitchcock

6 TAC Meetings

8 Meet the CCDD

20 Resource List

Frankfort man with vision issues is doing real work for real wages at the CCDD.

Technical Advisory Committees provide info that can help Medicaid beneficiaries.

Complete a short survey and earn a chance to win $250.

Learn how you can advocate for change by becoming a member of the Council.

10 KPIP in Action

CCDD’s Kentucky Partners in Policymaking is creating ‘Warriors for Ability.’

Need More Copies?

For additional free copies, Call (859) 494-1140 or Email john@lexingtonfamily.com

Editor..............................John Lynch

of Lexington Family Magazine

Graphic Artist........................Nick Farr 2

of Lexington Family Magazine www.lexingtonfamily.com

Broadcaster, DJ, teacher adds CCDD Council member to his resume.

From autism to vision issues, statewide list provides the information you need.

Advocacy Works

¿Hablas Espanol? For the Spanish version of the magazine, visit www.lexingtonfamily.com

2020 “Exceptional Family Magazine” is published by the Commonwealth Council on Developmental Disabilities. 656 Chamberlin Ave., Suite C, Frankfort, Kentucky 40601 (502) 367-5332 • (502) 564-7841 • www.CCDD.KY.gov

Independence JOIN OUR TEAM integration Inclusion The Council consists of people like you. Members include people with developmental disabilities plus family members and guardians of people with developmental disabilities. The mission of the Commonwealth Council on Developmental Disabilities is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

Come Join Us! If you want to affect policy, influence legislators and advocate for change, the CCDD is the place for you. Call today to learn how you can make a difference.

(877) 367-5332

www.ccdd.ky.gov

Letter

Advocacy Works

From the CCDD Tim Moore

Doing Real Work for Real Wages

eye, and could barely see out of his disliked being away from home – he fundamental principle still lives with his mother in Frankfort in the disability commu- right. When he was 15, cataracts were dis– but thrived at the school where he nity is real work for real covered on his right eye and he under- was the MVP of the wrestling team, wages – and an ideal went a risky surgery. Doctors warned sang in the school choir, took violin personification of that that he could lose vision in both eyes, lessons and was a DJ for the school concept is Tim Moore, radio station. the receptionist at the Commonwealth but he emerged from surgery with Still, he longed to join the sighted Council on Developmental Disabilities. dramatically improved vision in his right eye, which jumped from 20-1000 world and enrolled at Franklin County Moore was hired in 2009 by Carol vision to 20-250. He still can’t see out High where he graduated in 2002. Ann Tudor, a policy and operations Joining the work force manager at CCDD. was frustrating. After She has nothing but receiving training at the praise for Moore, Members include people with developmental Charles W. McDowell whose cheerfulness and disabilities as well as family members and guardians Center in Louisville, he willingness to work has of people with developmental disabilities. was hired at a factory impressed everyone at the CCDD. Council members are expected to attend quarterly that had little for him to do and paid him pea“You will not find a meetings that last two to three days, and other nuts. more conscientious events throughout the year. He returned to the worker than Tim,” TuA member serves a three-year term and is limited McDowell Center for dor said. “He is always to two terms of service. more training and volwilling to help out with Info: www.ccdd.ky.gov or 1-877-367-5332 unteered at the Salvaa project, and he’s a tion Army, and a church great receptionist beof his left eye. and senior center in cause he’s always happy “We thought it was a miracle from Frankfort. That’s when the CCDD to see everyone.” God and my mother started crying,” hired him. He’s also reliable. In the decade he’s Moore said. He admires the CCDD for giving him been there, Tudor can remember him The operation took place in October, a chance and for the work it does for taking only one sick day. Otherwise, and for the first time, Moore realized people with disabilities. he shows up for work, eager to be of that leaves could be colors other than “I work with great people who want service. green. to see me succeed,” he said. “I have “I always wanted a real job where I “The world opened up to me,” he more financial independence and can can help people,” he said. said. contribute to society. Moore, 36, was born prematurely As a child Moore attended the “The CCDD has made me more of and given too much oxygen at birth, an advocate, and it makes the state a which caused retinopathy of prematu- Kentucky School for the Blind, spending Sunday-Thursday at the Louisville better place for people with disabilirity, a condition that can cause blindschool during the academic year. He ties.” n ness. Moore had no vision in his left

HOW TO BECOME A MEMBER

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The Developmental Disabilities Assistance and Bill of Rights Act of 2000

IT’S THE LAW! On October 30, 2000, Congress Passed Law 106-402. It States:

Congress finds that – (1) disability is a natural part of the human experience that does not diminish the right of individuals with developmental disabilities to live independently, to exert control and choice over their own lives, and to fully participate in and contribute to their communities through full integration and inclusion in the economic, political, social, cultural, and educational mainstream of United States society.

OUR MISSION The Commonwealth Council on Developmental Disabilities will create systemic change in the Commonwealth of Kentucky that empowers individuals with developmental disabilities to achieve full citizenship and inclusion in the community through advocacy, capacity building and systemic change. The CCDD will enable individuals with developmental disabilities to exercise self-determination, be independent, be productive, and be integrated and included in all facets of community life.

GET INVOLVED TODAY – Join the CCDD Info: (877) 367-5332 or visit www.ccdd.ky.gov

Reader Survey

Advocacy Works

Get Involved: Learn About Technical Advisory Committees

nyone who receives Medicaid services should be aware of the Technical Advisory Committees that meet in Frankfort. These committees gather information on everything from billing issues to the wait list for people applying for Waivers. The goal is to improve services for Medicaid beneficiaries. Nine different TACs cover various health areas from children’s health to nursing home care. Three TACs address concerns for people with disabilities: Behavioral Health, Consumer Rights and Client Needs, and Intellectual and Developmental Disabilities. Information from these meetings is delivered to the Advisory Council for Medical Assistance, which reports to the state Department of Medicaid Services. TAC members are appointed by the governor based on their experience and expertise. But all TAC meetings are open to the public. Katie Bentley of the Commonwealth Council on Developmental Disabilities sits on the IDD committee. She urges everyone to get involved. “These meetings are an opportunity for people to share concerns and also learn

what issues are being addressed,” she said. “They are conversational, and it’s important for people who use these services to be in the room and be heard.”

2020 TAC Schedule Intellectual and Developmental Disabilities Meets at Cabinet for Health and Family Services Building, 275 E. Main St., Frankfort in the DMS Commissioner’s Conference Room, 6th Floor. 10 a.m.-Noon March 4; May 6; July 1; Sept. 2; Nov. 4. Consumer Rights and Client Needs Meets at Cabinet for Health and Family Services Building, 275 E. Main St., Frankfort in the Cafeteria Conference Room, 1st Floor. 1:30-3:30 p.m. Feb. 18: April 21; June 16; Aug. 18; Oct. 20; Dec. 15 Behavioral Health Meets in Capital Annex, Room 125. 1-3 p.m. March 11 (2-4 p.m.); May 13; July 8; Sept. 9; Nov. 4 Info: Contact Katie Bentley at (502) 782-8602 / Katie.Bentley@ky.gov or visit https://chfs.ky.gov/agencies/dms/tac/ Pages/default.aspx n

CCDD Seeks to Help Hispanics With Disabilities The Commonwealth Council on Developmental Disabilities is seeking adults with disabilities and parents of children with developmental disabilities in the Hispanic community. The CCDD is interested in learning about barriers you face when advocating for services Info: Please contact Izamar de la Luz at izamar. delaluz@ky.gov or (859) 613-4569. n 6

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WINNER

Kim Adkins

he winner of $250 in the latest Reader Survey contest for Exceptional Family Magazine is Kim Adkins, Director of Special Education for Hardin County schools. Adkins has 18 years experience as an educator, including five as a school psychologist. Previously, she was treatment director in a juvenile residential facility. The newly formed Down Syndrome Association of the Heartland in Elizabethtown has named her to its board, and last summer she traveled to Washington, D.C., with the Council for Exceptional Children, of which Adkins is a member. She values Exceptional Family Magazine and makes it available to teachers and parents throughout her school district. “I made sure that each family in our district who has a child enrolled in a low incidence resource setting received a magazine because I felt like the Resource List was very valuable,” she said. “We’re always looking for new or updated resources to put our parents in contact with. “I also liked the article about the legislature. I think more people need to be involved in that process.” n

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WIN $250 Be among the first 50 to enter a drawing for $250.

Simply fill out the survey and mail it to the address listed at the bottom of the page. You can also access the survey online by using the QR code or by following this link:

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NAME PHONE EMAIL ARE YOU... A person with a disability

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Other: Did this magazine help increase your advocacy skills?

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Exceptional Family Magazine 3529 Cornwall Drive, Lexington KY 40503 | 859-494-1140 | john@lexingtonfamily.com | www.lexingtonfamily.com

Advocacy Works

Meet the CCDD

Council members (L to R): Kathy Salazar, Jennifer Dudinskie, Claudia Johnson, Blaire Handshoe, Roxanne Holbrook, Lela Hale, Izamar De la Luz (intern), Mark Rothel, Tammie Isenberg, Jennifer Ulbricht, Andrea Bartholomew, David Merdian, Laura Lyle, David DeSanctis, Karen Brammell, Laura Butler, Laureen Vassil, Camille Collins, Grant Gupton, Norb Ryan Front Row: David Allgood Not Pictured: Morgan Elliston, Paul Hitchcock, Sherry Pickett, Erin Tiemeier

Come Join Us!

If you want to affect policy, influence legislators and advocate for change, the CCDD Council is the place for you. Call today to learn how you can make a difference.

(877) 367-5332 8

www.lexingtonfamily.com

www.kyccdd.com

2020 Calendar Quarterly Council Meetings

KPIP Meetings:

• Feb. 13-14, 2020

Kentucky Partners in Policy Making

• May 7-8, 2020

Hampton Inn 1310 US-127, Frankfort, KY 40601

• Aug. 13-14, 2020 • Nov. 19-20, 2020

Feb. 6, 7: (Friday & Saturday): Session 5 March 12 & 13: (Friday & Saturday): Session 6 April 17 & 18: (Friday & Saturday): Session 7 May 15 & 16: (Friday & Saturday) Sessiion 8

CCDD Office:

656 Chamberlin Ave, Suite C Frankfort, KY 40601

To apply for the next KPIP session, please email CCDD@ky.gov or call (502) 564-7481

Other Notable Dates: January 31: Kentucky Center for Economic Policy 2020 Conference, Lexington February 19-20: ARC Conference, Louisville February 26: 874K Day March: Developmental Disabilities Month March 11: CCDD Day at the Capitol March 23-25: National Disability Policy Seminar, Washington, D.C. March 24: Bowling Green Special Needs Expo May 10-13: National ADA Symposium, Kansas City

June 16-18: National APSE Conference, Denver July 6-10: National Association of Councils on Developmental Disabilities Annual Conference, Washington, DC September 27: Bluegrass Special Needs Expo, Lexington October: National Disability Employment Awareness Month October 1-3: Self Advocates Becoming Empowered (SABE) National Conference, Denver October 25-28: National ARC Conference, New Orleans

Independence • Integration Inclusion 2020 Exceptional Family KY

Advocacy Works

KPIP: Creating 'Warriors For Ability'

CCDD Program Goal: Influence Policymakers

By John Lynch hen Virginia Bland of Berea shared her success story during a Kentucky Partners in Policymaking session in November in Frankfort, she captured the essence of the program, which is sponsored by the Commonwealth Council on Developmental Disabilities. Bland explained that her son, Nicholas, a 21-year-old with autism, was the victim of harassment after she said that a local commission shared the family’s home address on social media and in emails.

come to the training will actually influence policy at the state and federal level and serve on boards in their communities,” said Katie Bentley, who leads the meetings along with fellow CCDD staff member Nicole Maher. “We want to give them the tools they need so they can interact with legislators with confidence and with knowledge. We’re educating them about what’s out there and providing great networking opportunities.”

So she attended a meeting and “called them out.” “I didn’t waver and I didn’t cry when I spoke,” she said. “I was forceful. I don’t think I would have done that if it wasn’t for the training we received at these meetings.” That’s exactly the goal of KPIP, which is based on a national leadership training program that teaches people with developmental disabilities and their family members the best practices they need to become community leaders and catalysts for

PIP is modeled after the Partners in Policymaking program created by the Minnesota Developmental Disabilities Council. This is the first year for the program in Kentucky. Selecting from a pool of applicants, the CCDD picked 23 participants from across the state to attend eight, two-day sessions in Frankfort. With January’s session completed, the group is halfway through the program.

KPIP Participants: Eric Crawford and his wife Michelle; Virginia Bland and her son Nicholas; Aisha Omar (right) with son Addonis Jr and family.

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systems change. The goal is to influence policymakers, who are people in government, including politicians and civil servants, whether elected or appointed, who make decisions about rules and regulations, control funding sources, and who legislate. This can be anyone from a local school board member or principal to a state or federal legislator. Upon completion of the program, KPIP graduates receive a certificate. “We hope that the people who

KPIP MEMBERS Front Row (l to r): Michah Peace, David Allgood, Eric Crawford, Shanae Glenn, Graham Maupin Second Row (l to r): Lesley Reising, Jennifer Gray, Laureen Vassil, Robin Rider-Osborn, Grant Gupton, Aisha Omar, Jennie Jenkins, Paul Hitchcock Back Row (l to r): Dana EmmittHall, Mark Rothel, Johnna Webb, Erin Tiemeier, Ashley Garrie, Debbie Stewart, Virginia, Bland, Tim Moore Not Pictured: Philip Elliston, Krista Payne Participants were chosen to reflect the diversity of the state including geography, age, gender, ethnicity/ race, self-advocates, family members of people with developmental disabilities, and parents of children. Meetings include presentations by nationally recognized speakers who educate participants about “what’s possible.” The speakers also outline best practice in one of the “program competencies.” The competencies include: disability history, inclusive education, supported living and customized employment, state and federal legislative processes, community organizing, and how to effectively run meetings. Initial feedback from participants has been overwhelmingly positive, or as member Aisha J. Omar of Louisville said: “This is making us warriors for ability.” “I’m ready to take on the world after coming out of the classes. It’s been a great refresher on fundamentals.” Omar’s 11-year-old son Addonis has autism with severe speech delays. Cooperation from his schools has been hit and miss, forcing Omar to fight for resources. When thwarted, she moved Addonis to another Louisville public school that was more

responsive. She has learned much as an advocate for her son, knowledge that has been enhanced by KPIP meetings. “Before, I’ve heard that many people felt compelled to keep resources to themselves,” she said. “However, I have always been a believer that if we advocates do not share, the resources will dissipate. With resources already being limited, it makes our journey with special needs all the more arduous. “Sharing one’s resources is important. KPIP is preparing us to put more action behind our work.”

does advocacy work, saying that for many people in the disability community advocacy is a fulltime job. His main passion is making medical marijuana legal. “I use marijuana and I haven’t taken an opiate in five years,” he said. Crawford also enjoyed the session that covered the history of the disability movement. “I learned about how the disability movement got started,” he said. “People before me did some brave things, things I don’t know if I could have done. “The way things used to be was really bad. They’re getting better. It still isn’t great but better than before.” He’s also glad that the meetings put him in contact with so many intelligent people who inspire him to advocate even more. “I get to be around brilliant people who have done awesome things in the advocacy world,” he said. “I’m looking forward to learning more so I can help myself and other people.” n

n 1994, Eric Crawford, now, 47, of Mason County, was wearing a seat belt as a passenger in a car that hit a cow in the road. The cow landed on the top of the Ford Mustang and crushed Eric, whose neck was fractured in three places. He also suffered a head injury and has been a quadriplegic since. Along with pain, he suffers with musThe CCDD is accepting applications for the 2020-21 cle spasms, inflammation set of eight sessions that will begin in September. and urinary For information, call (502) 564-7841 or visit tract infections. He https://ccdd.ky.gov/projects/Pages/default.aspx volunteers and 2020 Exceptional Family KY

Advocacy Works

Heaven

Story by John Lynch

erhaps the best way to tell the story of Jill Barry, a neo-natal ICU nurse and college nursing instructor, is through her children. Certainly, that’s the way Jill would want it. A 38-year-old single mom with seven kids is story enough these days. But consider this: The first five of Jill’s children were adopted after they were born 12

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Photos by Sweetlilpics by ashley childress

into drug addiction and abandonment, and have faced various developmental disabilities and medical issues since. Then, after nurturing those five children – most of whom were her patients at Kentucky Children’s Hospital – Jill added two more of her own children to the family through artificial insemination. And each of those experiences came with complications.

The result is a Lexington family of home. I will never ask you to leave.” seven kids from 12 years old to 22 Seven years ago, Jill’s mother Judy months led by a mother who works joined the household – and Judy is no six days a week as a NICU nurse and ordinary grandmother. She’s 72 and instructor of clinical trainings for still works full time with the LexingUK and Eastern Kentucky University ton police department as a staff assisnursing students. Jill has a bachelor’s tant, a job she has held for 45 years. and master’s degree in nursing. Joining Jill and Judy are three While studying for her master’s babysitters: sisters Ashton, 26, degree, Jill also trained to be a foster Carlee, 19, and Aleah Logan, 17. Jill parent in pursuit of a fairy tale. hired Ashton first but not before “I thought I was going to change interviewing 28 applicants. the world,” she said. “I thought I would foster chilEvan and the other adopted children and then restore them dren have back stories that conjure to their loving family.” a world gone horribly wrong beShe got half of it right. cause of cruelty to our most deShe restored children but not to their biological fami- fenseless members – newborns. lies – who because of drug addiction, homelessness or jail abandoned these children. Jill “Jill has patience, and a lot of grace restored the children to a new family and love,” Ashton said. “Her kids – hers. adore her. I wish I could love kids an In her way she is changing the ounce of what Jill does. I aspire to be world – one adopted child at a time. her.” How does she do it? With excepAn Asbury University graduate, tional organizational skills, a lot of Ashton was transformed by meeting help from family and friends and a Jill. Her job now? She’s a high school commitment to her children: “Once special education teacher in Georgeyou have a home here, it’s a forever town.

Because she was born with cocaine in her system, Caydence spent her first two months in the NICU. In fact, she’s the record-holder at Kentucky Children’s Hospital for cocaine levels in her system. Her first foster family returned her after a day. The second foster family lasted two days. She wouldn’t take a bottle and was fed through a tube. She spent three more months in the hospital and eventually endured 39 surgeries and was not expected to live. A local mortuary had donated a funeral service and

Jill, Judy and the seven children live in a specially designed house in Lexington with an open floor plan that includes eight bedrooms, 5-and-a-half bathrooms and a safe room. Along with her salary, Jill receives financial aid for each of her adopted children because they have special needs. The house was designed to accommodate 8-year-old Evan who uses a wheelchair and, according to Jill, is the only known patient in the world to suffer from a chromosome deletion that puts his health at severe risk. After splitting time between Jill’s home and the Home of the Innocents, a mental health facility in Louisville, Evan has now moved to Jill’s house permanently. Evan and the other adopted children have backstories that conjure a world gone horribly wrong because of cruelty to our most defenseless members – newborns. Here are the stories for Jill’s adopted children: Caydence, 12; William, 10; Carter, 9; Evan, 8; and Catherine, 6.

coffin for her. A social worker reached out to Jill with a desperate message: There is no one else. Would Jill take in Caydence? You know the answer. “She didn’t know what it felt like to be held,” Jill said about Caydence. Jill remedied that and after two weeks Caydence started taking a bottle. “I thought, ‘She isn’t going to die.’ From there she just took off.” That’s an understatement. Today, Caydence is developmentally on track, makes A’s and B’s in middle school, creates her own You Tube videos, has loads of friends, is the family artist and hopes one day to

2020 Exceptional Family KY

be a veterinarian. How to account for the dramatic turnaround? It’s not magic. Jill is not some latter day Mary Poppins. That’s fiction. Jill Barry is the real deal. The only explanation is the power of love. “Jill is unbelievably passionate and never backs down when it comes to advocating for kids,” said Laureen Vassil, who has worked with Jill for 15 years. “She is selfless, gives 110% for each child and always puts the kids first.”

William, 10, had 11 drugs in his system at birth. He showed developmental delays by the time he was 3 when he became short-tempered and easily frustrated. Eventually, he was diagnosed with dyslexia and, now a fourth grader, struggles in school and is working on his coping skills. He’d much rather work with his hands and already is making plans to make money mowing lawns in the neighborhood.

Catherine, 6, was another patient of Jill’s who was exposed to cocaine and weaned with methadone. She came to Jill when she was 10 days old. Like other infants born with cocaine in their system, Catherine emerged from a brutal first few months to eventually catch up developmentally. She’s now a first grader who Jill calls her “social butterfly, a teenager in the making.”

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Carter, 9, spent his first 11 weeks living in a trailer in deplorably abusive conditions. He was beaten, starved and nearly drowned at the hands of others. When he was rescued, he was frightened of water, and as Jill said “had never seen the sky or felt the wind.” He cried incessantly. But when Jill picked him up for the first time and hugged him, he hugged her back and never let go. Like other abandoned children, Carter saved anything he could find to call his own – food, pieces of pizza, he even saved his own clipped fingernails. Carter is also a remarkable success story. A straight-A student in fourth grade, he’s a member of the academic and cross-country teams. He’s also an empathetic protector of others. “He is so sweet. I tell him he’s going to make the best father,” Jill said. “He knows what it’s like to suffer so he is very grateful. He’s going to change the world.”

Evan, 8, is William’s younger brother and spent four weeks in the NICU in drug withdrawal. At six weeks, a relative took him home but showed up at Jill’s house at 9 p.m. with Evan. He was seriously ill. At one point, his heart stopped. Jill performed CPR as he was rushed to the hospital where he spent a week. He was diagnosed with respiratory syncytial virus – which is relatively safe in older children but dangerous to infants. Eventually, it was discovered that he had a chromosome deletion and is missing a tumor suppression gene. Evan has epilepsy, uses a wheelchair and has displayed aggressive, even violent behavior, which is why Jill shares custody of him with the state. After splitting time between Jill’s home and the Home of the Innocents, a mental health facility in Louisville, he has moved permanently into Jill’s house. That’s why the house has an open floor plan and a safe room for Evan. Said Jill: “I advocate for Evan because he’s my son and he’s worth fighting for.”

Heaven Four years ago, Caydence said to Jill, “You have grown so many babies in your heart, what about growing one in your tummy?” Anyone else – especially someone with five kids already – would dismiss the question out of hand. Of course, Jill isn’t like anyone else. After research and checking with fertility doctors, Jill got pregnant but 10 weeks later lost the baby. Undaunted, she got pregnant again. Three years ago, Caroline was born, a healthy baby girl. But Jill hemorrhaged at birth and became seriously ill. Ten days after giving birth, doctors performed surgery to remove multiple abscesses from her chest. Still, she breastfed Caroline, even with an open wound in her chest.

Jill got pregnant again but lost that child at 6 weeks. Pregnant again shortly thereafter, Jill gave birth to Charlotte, who is 22 months old. Jill had preterm labor and barely made it to the hospital in time to deliver Charlotte. Jill had her first contraction at 7:20 a.m. and Charlotte was born 41 minutes later. She was four weeks premature and is undergoing speech and physical therapy. “She is sweet as she can be and I’m sure she will catch up,” Jill said.

Jill’s babysitters are sisters Ashton, 26, Carlee, 19, and Aleah Logan, 17. Right, Jill Barry with her mother Judy, who lives with Jill and her children.

One person not surprised by Jill’s selflessness is her mother. The youngest of three kids, Jill always wanted another sibling whom she could nurture. “From the beginning, she was always special,” Judy said. “She was our Baby Angel. She was big-hearted. Always took up for kids bullied at school. She had many friends and people just flocked to her when they had problems.” Ashton, the oldest babysitter, is one of those

people. “She is one of the first people I text when I have good news and one of first people I text when I have bad news and need counsel and support,” Ashton said. “To me, she is a woman who can do it all.” That makes Jill’s mother proud. Does she let Jill know that? “Every day. I tell her I’m proud of her every single day.” n 2020 Exceptional Family KY

Advocacy Works

Radio Days Station Manager, DJ, Parent & College Instructor Paul Hitchcock Has Added CCDD Member to His Resume By John Lynch

CDD member Paul Hitchcock traces his love affair with radio to his earliest memories as a child. A solitary child beset with speech delays and a pronounced stutter, young Paul was captivated and comforted by radio programs. CCDD member Paul Hitchcock with his “I remember distinctly sitting in my room, daughter Sarah, wife Rebecca and rescue dogs Scoobie and Xena listening to the radio and admiring the people talking on radio,” said Hitchcock, who is from Georgetown College and his entering his third year as a Commonwealth Council on master’s from Morehead State. Developmental Disabilities member. Hired in 1986, Hitchcock has been general manager for the past “Radio was so magical. From an early age, I wanted to 10 years while DJ-ing up to halfbe a DJ more than anything in my life. a-dozen radio programs, including jazz and roots music shows plus his “I thought to myself, ‘If I ever get fixed, I want to talk four-hour, Saturday night “Nothin’ but the Blues” broadcast. like them.’ He did get fixed, thanks to speech therapy sessions as a child. Those efforts allowed him to practice being a DJ, to emulate the voices he heard on radio. So it’s no surprise to learn that 16

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Hitchcock, now 57, and the father of four and grandfather of four, is general manager and an award-winning on-air personality at Morehead State’s public radio station, WMKY. He earned a bachelor’s degree

2020 marks his 28th year as host of that show. A Kentucky Colonel, Hitchcock is active in his church, has served one mission trip to Haiti and was named a Community Scholar by the Kentucky Arts Council.

Hitchcock also is a college instructor, teaching communications at EKU for 19 years and at Kentucky Christian University for the past two years. Overcoming his own disability set the narrative of his life, giving him the confidence to fulfill his childhood dream. “I learned that there are no limitations in life. You can do anything you want to do,” he said. “I learned to believe in myself. That it’s OK to ask for help and that you don’t ever give up. “I have always gravitated to those who are struggling, and I have always sided with underdogs.”

hat mindset has served him well as parent to Sarah, 28, whom he has raised with his wife Rebecca, a nurse who works in quality management at St. Claire Healthcare in Morehead. Because of troubles at birth and an infant disease, Sarah’s intellectual development was delayed. Most of her schooling took place in a separate classroom where she received extra help. She still has difficulty reading and writing and left Rowan County High at the age of 21 with a certification of completion. Transition after that was difficult. “Until we found D&S, she mostly sat on the couch and watched TV,” Hitchcock said. D&S Community Services in Morehead, which provides employment placement, helped Sarah, who has the Michelle P. Waiver, find a job. Now Sarah leads an active life. She has won several awards though Special Olympics and works 12-15 hours a week at a daycare center in Morehead. When not working, she attends

D&S where she works on improving her reading, writing, math and life skills. “We are always striving to improve her quality of life,” Hitchcock said. “Every step is a journey and it’s been a great partnership with my wife. She has done a tremendous job.” CCDD is a living, breathing The couple is gratified that Sarah’s thing. It may be based in Frankjob gives her real fort but it reaches throughout work for real wages, and also matches the state. I couldn’t be prouder her passion. to be a member. “Sarah always talked about working at a daycare,” Hitchcock said. “She loves the kids self-advocates feel engaged and emand has always loved babies. She powered during Council meetings loves having a job, being responsible and activities. and independent. She has found a “Paul also brings his unique ‘dadgood niche.” humor’ to meetings. He’s a good man who shows his passion for others through his service to not just the Council but in his work and itchcock feels the same way family life too.” about his role at the CCDD, Paul admires the work of his colwhere he has been a Council leagues and the CCDD staff, and member since 2018. has been especially grateful to be “CCDD has given me the opportuincluded in the first cohort of the nity to be a better father, husband Kentucky Partners in Policymaking and advocate, not just for Sarah but group. (Please see KPIP story on for all people with disabilities,” he Page 10.) said. “KPIP is like advocacy on steroids. His efforts have not gone unnoI feel like a super human after every ticed by his CCDD colleagues. He session,” he said. is valued for the ideas he brings to “There is a ripple effect to all the meetings and for his ability to enwork that CCDD does. CCDD is a gage with all Council members. “Paul is an incredible asset to the living, breathing thing. “It may be based in Frankfort but Council,” said Kellie McCain, the it reaches throughout the state. I CCDD executive director. couldn’t be prouder to be a mem“He is always mentoring other ber.” n Council members and making sure

2020 Exceptional Family KY

874K Rally Turns 20

Advocacy Works

Event Has Raised Awareness in Frankfort About Disability Issues This Year's Rally Is Wednesday, Feb. 26 at the Capitol Rotunda By John Lynch

At the Podium: Katie Bentley of the CCDD and Sheila Schuster address 874K Rally attendees. Up to 850 people at one time have crowded the Capitol Rotunda

ne of Kentucky’s biggest and best events for the disability community celebrates its 20th anniversary on Feb. 26 – the 874K Rally in Frankfort. Over the years, hundreds and hundreds of folks with disabilities have gathered in Frankfort for this event to raise awareness and influence legislators about the needs of those in the disability community. In those terms, the event is a rousing success each year. Why? It’s all about visibility. One of Kentucky’s biggest and best events for the disability community celebrates its 20th anniversary on Feb. 26 – the 874K Rally in Frankfort. Over the years, hundreds and hundreds of folks with disabilities have gathered in Frankfort for this event to raise awareness and influence legislators about the needs of those in the disability community. In those terms, the event is a rousing success each year. Why? It’s all about visibility. “The rally allows legislators to see actual people who are impacted by services and supports that they fund,” said Steve Shannon, the Executive 18

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Director of the Kentucky Association of Regional Programs. “Legislators see an actual face of someone in their district with a disability. “The folks who come have the opportunity to tell their story to their legislators. It’s so much more powerful when an individual tells his own story. That’s the most effective policy change technique we have.” Shannon was there at the beginning when a group of advocates built on the success of an annual breakfast in Frankfort sponsored by the Kentucky Disability Coalition. Seeing that it was running out of steam, the advocates rebranded the event the 874K

rally following the 2000 census that showed that 874,000-plus Kentuckians had a disability of some kind. That represented nearly one out of every four people in the state. Along with Shannon, some of the key players and the organizations they represented at the time were Pat Seybold (Commonwealth Council on Developmental Disabilities), Patty Dempsey (The Arc of Kentucky), attorney and self-advocate Chase Forrester (Office of the Blind), self-advocate David Allgood (Center for Accessible Living), and Sheila Schuster, one of the rally’s key proponents who has represented multiple organizations. Schuster has devoted nearly half a century to mental health issues and has been a fixture in Frankfort since 1978. A clinical psychologist, Schuster had a private practice in Louisville for 25 years while serving as a consultant to child development groups. In 1978, she attended the General Assembly session as a volunteer for the Mental Health Association of Kentucky and then from 1989 to 2000 served as a lobbyist for the Kentucky Psychological Association. In 2000, she closed her private

practice to work full time as a lobbyist, right when the legislature voted to meet each year instead of every other. She now advocates for five different groups within the disability community. Schuster leads the Advocacy Action Network, an umbrella organization that includes groups addressing disability issues, health care, mental health and social justice. She also chairs Kentucky Voices for Health, a coalition to improve Kentucky’s health, and leads the Kentucky Mental Health Coalition, which includes more than 80 organizations. She chairs the Behavioral Health Technical Advisory Committee to Kentucky’s Medicaid program, and last year was named a Healthy Kentucky Policy Champion by the Foundation for a Healthy Kentucky. A primary organizer of each rally, Schuster has seen the Rally make a difference in Frankfort. “Of course, the Rally hasn’t been as successful as I’d like because there is still so much to be done,” Schuster said, “but I have seen a change in people in Frankfort. There is more awareness among legislators about people with disabilities and more discussion of people’s needs.”

hen the 874K event began two decade ago, it marked the coming together of the entire disability community. That was crucial to the event’s success. “Before that, so many of us were working in our own silos but we decided to make the 874K about all disabilities,” said Pat Seybold, the retired CCDD executive director. “This made it easier for legislators to wrap their head around our message. We focused on what would benefit everyone in terms of education, transportation and housing. That inclusion was very impactful and helped us make a huge difference.”

Highlights of the 874K Rally have included gubernatorial forums every election year and visits by every sitting governor since 2001. The mission of the event is to influence legislators about the issues that people with disabilities face. The Rally’s effectiveness also spiked when organizers moved it from its original home in the Frankfort Convention Center to the Capitol Rotunda. Instead of making legislators come to them, now up to 850 people with disabilities went to the legislators’ home. “When we spent the whole day visiting their office, it got a lot of attention. Everyone at the Capitol saw people with disabilities,” Seybold said. Plus, there’s strength in numbers, emboldening visitors to reach out to their legislators, according to Allgood. “With so many other people around them talking to legislators, it makes it easier for people who might have been uncomfortable to continue their interactions with elected officials,” Allgood said. “We strongly encourage people to follow up with legislators back in their communities and become resources

for elected officials. I’ve had elected officials call and ask me what I think of certain bills. That’s refreshing and encouraging.”

ypically, rallies run from 9 a.m. to mid-afternoon with the morning hours devoted to meeting with legislators. After lunch, guest speakers – legislators and folks with disabilities alike – address the attendees. Crowds fill the first floor and spill over to the second and third floors, and participants have been known to chant the Legislative Message Line (800-372-7181) and one of the Rally’s key slogans: We Count! We Matter! We Vote! Every governor since 2000 has attended at least once, and the Senate President and Speaker of the House are always invited. “The Rally is a cross between a pep 2020 Exceptional Family KY

Resource List 2020

Jill Barry with her children (l to r): Caroline, Catherine, Evan, Carter, William, Caydence & Charlotte Photo by Robin Allen Photography

General

The Arc of the United States 1825 K Street, NW, Suite 1200, Washington, DC 20006 (800) 433-5255 / 202-534-3700 / info@thearc.org The national organization of and for people with intellectual disabilities and related developmental disabilities and their families. www.thearc.org

advocating for and with people with intellectual and developmental disabilities (I/DD) and serving them and their families. We work tirelessly to uphold our vision that every individual and family living with I/DD in Kentucky has access to the information, advocacy, and skills they need to support their full inclusion and participation in the community throughout their lifetimes. / www.arcofky.org The Arc of Kentucky Chapters Ashland: Toni Mullins / (606) 694-1797 toni@guidedlivingllc.com Counties served: Bath, Menifee, Montgomery, Morgan, Rowan, Boyd, Carter, Elliott, Greenup, Lawrence. Barren County: James Cheely / (270) 590-9013 Central Kentucky: Sherri Brothers / (502) 517-6511 Sherri@arcofky.org Floyd County/Prestonsburg: Earnest Colt Vance (606) 268-0808 Hardin County: Clara Harrison / (270) 300-6659 Logan County: Thomas Thompson / (270) 726-2218 Louisville Area: Serena Jacobs / (502) 939-8273 Meade County: Mary Greenwell / (270) 980-0150 Northern Kentucky The Point: Judi Gerding (859) 491-9191 Owensboro: Sally Phillips / (270) 577-8866 Office / (270)-685-2976 Warren County: Joy Baum / (270) 303-0311

The Arc of Kentucky Sherri Brothers, 706 East Main St., Suite A, Frankfort, Ky., 40601 / (502) 875-5225 / (800) 281-1272 sherri@arcofky.org The Arc is the largest community-based organization

The Arc of Kentucky Self Empowerment Network: Selfempowerment@arcofky.org Self Empowerment Network of Lake Cumberland: Donna Littrell / (606) 875-9847 Self Empowerment Network Different Abilities

Commonwealth Council on Developmental Disabilities 656 Chamberlin Ave., Suite C, Frankfort, Ky., 40601 (877) 367-5332 / (502) 564-7841 The mission of the CCDD is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy. CCDD is a dynamic mix of people with unique backgrounds and experiences. Members include 16 governor-appointed individuals with disabilities and family members of individuals with disabilities, as well as representatives from major state agencies that serve people with developmental disabilities. https://ccdd.ky.gov

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South Central Kentucky: Renee Hathaway (270) 432-5938 Self Empowerment Network The Arc of Ashland: Toni Mullins / (606) 694-1797 Self Empowerment Network The Arc of Greater Louisville Area: Dale Arnett / (606) 224-0240 Best Buddies Kentucky 1911A Bardstown Road, Louisville, Ky., 40205 (502) 742-1698 Best Buddies Kentucky, founded in 2009, is dedicated to establishing a global volunteer movement that creates opportunities for people with intellectual and developmental disabilities such as Down syndrome, autism and traumatic brain injuries. www.bestbuddies.org/kentucky/ Big Brothers Big Sisters Organizations The mission of BBBS is to help all children reach their full potential through professionally supported one-to-one mentoring relationships. Bluegrass 436 Georgetown Street, Lexington, Ky., 40508 www.bbbs-bluegrass.org Greater Cincinnati Reading Road Suite 148, Cincinnati, Ohio, 45202 www.bigsforkids.org Kentuckiana 1519 Gardiner Lane, Louisville, Ky., 40218 (877) 588-2300 / (502) 587-0494 / www.bbbsky.org Madisonville-Hopkins County 1 South Main Street, P.O. Box 305, Madisonville, Ky.,

Resource List 2020 42431 / www.Madisonvillebbbs.org Tristate 1505 Carter Ave., Suite 201, Ashland, Ky., 41105 www.bbbstristate.org Bluegrass Care Navigators 2312 Alexandria Drive, Lexington, Ky., 40504 (855) 492-0812 Bluegrass Care Navigators (formerly Hospice of the Bluegrass) provides physical, emotional and spiritual care for adult and pediatric patients with life-limiting illness, and their families, at home, in nursing facilities and at Hospice Care Centers. Support and bereavement services extend to family members and anyone in the community experiencing grief. Bluegrass Care Navigators provides care in 32 central, northern and southeastern Kentucky counties. / www.hospicebg.org Brighton Center Inc. 799 Ann St., Newport, Ky., 41071 (859) 491-8303 This non-profit organization’s mission is to create

opportunities for individuals and families to reach selfsufficiency through family support services, education, employment and leadership. Brighton Center creates and encourages opportunities for individuals and families to reach self-sufficiency through family support services, education, employment and leadership. Brighton Center creates and encourages mutual respect and maximizes resources. / www.brightoncenter.com Build Inclusion, Inc. 1050 Chinoe Road, Suite 207, Lexington, Ky., 40502 (859) 286-9713 An organization created by parents, self-advocates and industry professionals to facilitate natural networks and community access for individuals with disabilities through education, engagement and employment. www.buildinclusion.org Centers for Accessible Living The Center for Accessible Living is an innovative leader in empowering all people to achieve their goal of independent living while involving the entire community.

Louisville Location 501 S. Second St., Suite 200, Louisville, Ky., 40202 (502) 589-6620 / Toll Free (888) 813-8497 webinfo@calky.org / www.calky.org Murray Location 1051 N. 16th St., Suite C, Murray, Ky., 42071 (270) 753-7676 / Toll Free (888) 261-6194 calmur@calky.org / www.calky.org Northern Kentucky Location P.O. Box 304, Covington, Ky., 41012 (859) 940-3843 / rthompson@calky.org www.calky.org Cerebral Palsy Group 13506 Summerport Village Parkway, Windermere, Fla., 34786 / (866) 510-0717 Cerebral Palsy Group is an online resource for anyone who has been affected by cerebral palsy, brain injuries or birth injuries. The goal is continue to provide the most up-to-date information from trusted sources as it becomes available. /cerebralpalsygroup.com

874K RALLY

work outside the home. I don’t have to live in an institution. These were concrete benefits.” Continued From Page 19 Schuster cited the formation last year of a new legislative caucus centered on disability issues, Engage & Empower, rally, a religious event and an oratorical contest,” Schuster led by Rep. Al Gentry and Rep. Brandon Reed. said. The interaction between participants and legislators Highlights over the years include gubernatorial forums gratifies Schuster the most. She rattles off instances of every election year when all the candidates are invited to the legislators sharing those moments with her: When Rep. event. Questions are sent to each candidate in advance, and Patti Minter told her how excited she was to hear David it’s obvious which candidates have done their homework. Merdian speak. Merdian is a student in the Kelly Autism “I was a moderator once and it’s important that the poProgram at Western Kentucky University, which is in tential chief executive of the state is listening to issues and Minter’s district. concerns of people with disabilities,” Allgood said. Or that Sen. Jimmy Higdon knows the names of the Each Rally has a theme. This year, an old theme has been folks with disabilities he hired to work in his grocery stores revived: Kentucky’s Dollars for Kentucky’s People. Orgain Lebanon. nizers created a giant dollar bill bearing the likeness of the Or Rep. Rick Rand of Henry County who greets people at state’s first governor Isaac Shelby. the Rally from his district by name and gives each a hug. “We need more funds to be available,” Schuster said. “There are legislators “People have needs and 2020 THEME: who get it, who underwe know how to support KENTUCKY’S DOLLARS FOR KENTUCKY’S PEOPLE stand our message,” them but we can’t if we Schuster said. “We need don’t have the funds.” more of them who get Along those lines, it. My goal is that when Seybold’s favorite theme it comes to the budget, centered on how governpeople should be the priorment services and waivers ity. have helped people. “When the budget gets “We had people explaina whole lot more on the ing to legislators that when you give us money, people side, then I will feel this is what happens: I’m like we have really accommore independent. I can plished something.” n 2020 Exceptional Family KY

Resource List 2020 www.eswky. easterseals.com Independence Place, Inc. 2358 Nicholasville Road, Suite 180, Lexington, Ky., 40503 (859) 2662807 / (866) 266-2807 Independence Place is a nonprofit, consumer driven, nonresidential Center for Independent Living, serving people with KPIP: Laureen Vassil makes a point to Philip Elliston, center, and disabilities of Eric Crawford during a recent session of the CCDD’s Kentucky Partall ages. The ners in Policymaking. To see the story, please see Page 10. mission is to assist people with disabilities to achieve their potential for community Children’s Home of Cincinnati inclusion through improving access and equal opportunity. 5050 Madison Road, Cincinnati, Ohio, 45227 www.ipky.org (513) 272-2800 / (513) 808-9632 The Children’s Home of Cincinnati is a private, nonprofit social service agency that improves the lives of children and their families through services in four areas: adoption, early childhood, education and mental health. The Home serves children of all ages and their families, including adoptive children, new parents needing support and guidance, children with special education needs, and children with mental health diagnoses. www.thechildrenshomecinti.org Christian Appalachian Project 485 Ponderosa Drive, P.O. Box 1768, Paintsville, Ky., 41240 / (866) 270-4227 CAP is a Kentucky-based, non-profit Christian organization committed to serving people in need in Appalachia by providing physical, spiritual and emotional support through a wide variety of programs and services. www.christianapp.org Community Action Kentucky 101 Burch Court, Frankfort, Ky., 40601 (800) 456-3452 / (502) 875-5863 Community Action Kentucky (CAK) is a statewide association representing and assisting the 23 community action agencies as they work to empower individuals and families to attain greater economic success. / www.kaca.org Easter Seals Cardinal Hill 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7217 / www.cardinalhill.org West Kentucky 801 N. 29th St., Paducah, Ky., 42001 (270) 444-9687

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Home of the Innocents 1100 E. Market St., Louisville, Ky., 40206 (502) 596-1000 info@homehomeoftheinnocents.org Home of the Innocents is the region’s open arms to kids in crisis, providing therapeutic, loving care to children who are victims of abuse, abandonment and neglect. It’s also home to children who have autism and other behavioral health diagnoses; who are medically fragile; and families with exceptional needs. Open Arms Children’s Health is the Home’s health care facility offering pediatric medical, dental, hearing, vision and pharmacy. www.homeoftheinnocents.org Human Development Institute University of Kentucky, 114 Mineral Industries Building, Lexington, Ky., 40506 (859) 257-4356 HDI’s mission is to promote the inclusion, independence and contributions of people with disabilities and their families throughout the life span. HDI achieves that mission through education, research and evaluation, information sharing, leadership and advocacy across the state and the nation. / www.hdi.uky.edu KARRN (Kentucky Appalachian Rural Rehabilitation Network) phkitz1@uky.edu A collaborative team composed of individuals impacted by neurological conditions, providers who serve them, members of communities in which they live, advocates, educators and researchers who investigate these conditions. / www.karrn.org

Kentucky Association of Sexual Assault Programs 83-C Michael Davenport Blvd., Frankfort, Ky., 40601 (502) 226-2704 / erecktenwald@kasap.org KASAP’s mission is to speak with a unified voice against sexual victimization. KASAP is funded in whole or in part with public funds. / www.kasap.org Kentucky Partnership for Families and Children, Inc. 207 Holmes St., Frankfort, Ky., 40601 (502) 875-1320 / (800) 369-0533 kpfc@kypartnership.org KPFC’s vision is that all families raising youth and children affected by behavioral health challenges will achieve their fullest potential. KPFC’s mission is to empower families affected by behavioral health challenges to initiate personal and systems change. www.kypartnership.org Kentucky Special Parent Involvement Network, Inc. (KY-Spin) 10301-B Deering Road, Louisville, Ky., 40272 (502) 937-6894 / (800) 525-7746 The mission is to link families and individuals with disabilities to valuable resources that will enable them to live productive, fulfilling lives. A project of KY-SPIN, Inc., is the KY-SPIN Parent Center PTI (Parent Training & Information Project), which is funded by the U.S. Dept. of Education. KY-SPIN Parent Center provides training, information and support for children and youth with all types of disabilities (birth through 26 years old), their parents, families and professionals. / www.kyspin.com Kentucky Youth Advocates 10200 Linn Station, Suite 310, Louisville, KY. 40223 (502) 895-8167 / (888) 825-5592 KYA advocates for policies that give children the best possible opportunities for a brighter future and are making Kentucky the best place in America to be young. www.kyyouth.org Kerrington’s Heart, Inc. P.O. Box 911074, Lexington, Ky., 40591 (859) 509-9857 Dedicated to the education, support and encouragement of children with heart disease, their families and caregivers. / www.kerringtonsheart.org The Molly Johnson Foundation P.O. Box 215, Fisherville, Ky., 40023 (502) 724-0067 The Molly Johnson Foundation was created to assist families of children with special needs in a variety of ways, including financial help, supplying medical equipment, home accommodations and travel expenses for services. The Molly Johnson Foundation desires to make a difference in the lives of these families in the best way possible. / www.themollyjohnsonfoundation.org A Mother’s Rest 32 W. Main St., New Market, Md., 21774 Organizes year-round small group respite retreats for

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Resource List 2020 support groups. TASH Disability Advocacy Worldwide (202) 467-5730, ext. 1309 An international association of people with disabilities, family members, other advocates and professionals working for a society in which inclusion of all people in all aspects of society is the norm. / www.tash.org Kentucky Chapter Located in Louisville Darrell Mattingly / (859) 373-8920 www.tash.org/chapters/kentucky-tash/ Tourette Syndrome Association Lexington Support Group (270) 317-3046 Louisville Support Group (502) 235-0704 www.tsa-usa.org

7th Heaven: Jill Barry of Lexington is a single mom who has adopted five children who were born with severe medical issues and then had two children of her own. To see the story, please see Page 12. Photo by Sweetlilpics by Ashley Childress families with children (youth or adult) with disabilities. Locations include Versailles and Mammoth Cave. www.amothersrest.org Prevent Child Abuse Kentucky 801 Corporate Drive, Ste 120, Lexington, KY 40503 859-225-8879 / 1-800-CHILDREN pcaky@pcaky.org / www.pcaky.org The mission of PCAK is to prevent the abuse and neglect of Kentucky’s children through advocacy, education, awareness and training. PCAK is helping to build a better Kentucky by shaping future leaders and their families to ensure Kentucky’s children grow up in safe, healthy environments. Being a parent can be tough. For FREE, confidential information and support, call the helpline at 1-800-CHILDREN. Public Library Home Delivery Service Many of the state’s county public libraries offer home delivery service for those with physical limitations that prevent them from visiting. Below are libraries in the state’s most populous areas. Contact the public library in your county to inquire about services. Boone County (Florence): (859) 342-2665 www.bcpl.org/docs/library/we-deliver.pdf Campbell County (Newport): (859) 572-5035 www.cc-pl.org/services/adult-outreach-services Kenton County (Covington): (859) 962-4000 www.kentonlibrary.org/outreach/homebound Laurel County Public Library (London) (606) 864-5759 www.Laurellibrary.org/services/outreach-services/ Lexington: (859) 231-5500 www.lexpublib.org/outreach Louisville: (502) 574-1611 www.lfpl.org/bookstoyou.html

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Warren County (Bowling Green): (270) 781-4882 https://warrenpl.org/using-the-library/ Daviess County (Owensboro): (270) 684-0211 www.dcplibrary.org/books-to-you Paul Sawyier (Frankfort) / (502) 352-2665 www.pspl.org/outreach-services Hardin County (Elizabethtown): (270) 769-6337 www.hcpl.info/services.asp Safe Kids 1255 23rd St., NW, Suite 400, Washington, D.C. 20037 Safe Kids is a program that brings together health and safety experts, educators, corporations, foundations, governments and volunteers to educate and protect families. Safe Kids is a global network of organizations dedicated to preventing accidental injury. Efforts are needed because as many as 90% of accidental injuries can be prevented. www.safekids.org Fayette County Coalition Kentucky Children’s Hospital, 800 Rose St., Lexington Ky., 40536 / (859) 323-1153 www.ukhealthcare.uky.edu/safekids Kentucky Coalition Kentucky Department of Health, 333 Waller Ave., Suite 242, Lexington, Ky., 40504 / (859) 323-6194 Louisville and Jefferson County Coalition Norton Children’s Hospital, 231 E. Chestnut St., Louisville, Ky., 40202 / (502) 629-7335 Special Persons Advocacy Network bobbie.hancock@uky.edu / ((859) 734-4378 1007 Lexington Road, Harrodsburg, KY, 40330 SPAN seeks to support individuals with disabilities and their families by facilitating community involvement and

United Way Bluegrass 100 Midland Ave., Suite 300, Lexington, Ky., 40508 211 Information Line / (859) 233-4460 www.uwbg.org Kentucky P.O. Box 4653, Louisville, Ky., 40204 334 E. Broadway, Suite 308, Louisville, Ky., 40204 (502) 589-6897 / www.uwky.org Metro 334 E. Broadway, P.O. Box 4488, Louisville, Ky., 40204 (502) 583-2821 / Fax (502) 292-5673 Fights for the education, health, housing and financial stability of every person. / www.metrounitedway.org WHAS Crusade for Children 520 West Chestnut St., Louisville, Ky., 40202 (502) 582-7706 The WHAS Crusade for Children, established in 1954, raises money for agencies, schools and hospitals to better the lives of children with special needs. The Crusade Advisory Panel, an independent board of interdenominational ministers, decides how donations are distributed each year. / www.whascrusade.org

STATE RESOURCES Brain Injury Acquired Brain Injury (ABI) Waiver 275 E. Main St. 6W-B, Frankfort, Ky., 40621 (502) 564-5198 / Toll Free (866) 878-2626 This program is designed to provide intensive services and support to adults with acquired brain injuries as they work to re-enter community life. / dmsweb@ky.gov Traumatic Brain Injury (TBI) Trust Fund 275 E. Main St. 3E-E, Frankfort, Ky., 40601 (502) 564-6930 / toniaawells@ky.gov This program offers flexible funding and support for people with traumatic brain injuries. The fund supports supplemental community based efforts to meet the special needs of individuals with brain injury. chfs.ky.gov/agencies/dail/Pages/tbitrust.aspx

The Autism Society of the Bluegrass serves as resource and support for people in Central Kentucky who care about autism.

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Resource List 2020 Cabinet for Health and Family Services Commission for Children with Special Health Care Needs The Commission for Children with Special Health Care Needs has received a grant from the federal Health Resources and Services Administration to create Family to Family Health Information Centers throughout the commission offices. The centers will be staffed by mentors who are parents of children with special needs and will provide support to families of individuals with special needs. Parents and caregivers have the opportunity to connect with another parent or caregiver with a similar situation or special health care need. chfs.ky.gov/agencies/ccshcn/Pages/about.aspx Regional Offices: Central office / Louisville 310 Whittington Parkway, Suite 200 Louisville, Ky., 40222 (502) 429-4430 / Toll Free (800) 232-1160 Serving Bullitt, Carroll, Gallatin, Henry, Jefferson, Oldham, Owen, Shelby, Spencer, Trimble counties and statewide. Barbourville 110 Johnson Lane, Barbourville, Ky., 40906 (606) 546-5109 / (800) 348-4279 Serving Bell, Clay, Harlan, Jackson, Laurel, Rockcastle, Knox and Whitley counties. Bowling Green 2040 Louisville Road, Bowling Green, Ky., 42101 (270) 746-7816 / (800) 843-5877 Serving Allen, Barren, Butler, Christian, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Todd and Warren counties. Elizabethtown 580-B Westport Road, Elizabethtown, Ky., 42701 (270) 766-5370 / (800) 995-6982 Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson and Washington counties. Hazard 103 Town and Country Lane, Suite M, Hazard, Ky., 41701/ (606) 435-6167 / (800) 378-3357 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry and Wolfe counties. Lexington 333 Waller Ave., Suite 300, Lexington, Ky., 40504 (859) 252-3170 / (800) 817-3874 Serving Anderson, Bourbon, Boone, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Grant, Harrison, Jessamine, Kenton, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, and Woodford counties. Morehead 214 W. First St., Morehead, Ky., 40351 (606) 783-8610 / (800) 928-3049 Serving Bath, Boyd, Bracken, Campbell, Carter, Elliot, Fleming, Floyd, Greenup, Lawrence, Lewis, Magoffin, Mason, Menifee, Morgan, Montgomery, Pendleton, Robertson and Rowan counties. Owensboro 1600 Breckenridge St., Suite 1200, Owensboro, Ky., 42303 / (270) 687-7038 (877) 687-7038 Serving Daviess, Hancock, Henderson, Hopkins, McLean, Muhlenberg, Ohio, Union and Webster counties. Paducah 400 Park Ave., Bldg. D, Paducah, Ky., 42001 (270) 443-3651 / (800) 443-3651 Serving Ballard, Caldwell, Calloway, Carlisle, Crittenden, Fulton, Graves, Hickman, Livingston, Lyon, Marshall,

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McCracken and Trigg counties. Prestonsburg 5000 Ky. Route 321, Prestonsburg, Ky., 41653 (606) 889-1761/ (800) 594-7058 Serving Floyd, Johnson, Magoffin, Martin, Pike counties. Somerset Professional Plaza, 401 Bogle St., Suite 104, Somerset, Ky., 42503 (606) 677-4120 (800) 525-4279 Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor and Wayne counties. Family to Family Health Information Centers Western Region Located at the offices of the Commission for Children with Special Health Care Needs, Family to Family HICs are family-run centers that assist families of children and youth with special health care needs and the professionals who serve them. The goal is to help keep children healthy by promoting regular medical care. F2F HICs help families make more informed choices by providing support, information, resources and training. F2F HICs promote access to community based, self-directed services that are available to children with special needs. Louisville 310 Whittington Parkway, Suite 200, Louisville, Ky. 40222 / (502) 429-4430 Sondra Gilbert Sondra.GIlbert@ky.gov / (270) 852-5533 Eastern Region (Including Louisville) Debbie Gilbert DebbieA.Gilbert@ky.gov / (502) 429-4430 - Ext. 2069 https://chfs.ky.gov/agencies/ccshcn/Pages/ftf.aspx Hart-Supported Living Program 275 E. Main St. 3E-E, Frankfort, KY. 40601 (502) 564-6930 ext. 3491 The Hart-Supported Living program is for Kentuckians with disabilities to request grants so they can live in, contribute to and participate in their communities. Any Kentuckian with a disability recognized under the Americans with Disabilities Act (ADA) is eligible to apply for a Hart-Supported Living grant. chfs.ky.gov/agencies/dail/Pages/hslp.aspx Home and Community-Based Waiver (HCB) (502) 564-5560 The Home and Community-Based Waiver program provides Medicaid coverage to eligible persons who are aged or disabled and would otherwise require nursing facility level of care. Services include but are not limited to the following: assessment and reassessment, case management, homemaker services, personal care services, respite care, minor home adaptations, attendant care and adult day health care. chfs.ky.gov/agencies/dms/dca/hcbsb/Pages/hcb-waiver.aspx Kentucky ADA Office 501 High St., Frankfort, Ky., 40601 (502) 564-1835 The State Office of the Americans with Disabilities Act provides technical assistance, consultations and training for state government employees. ADA Coordinator: Donna Shelton

https://personnel.ky.gov/Pages/ada.aspx Other Kentuckians should contact the Southeast ADA Center at 1419 Mayson St. NE, Atlanta, Ga., 30324 (800) 949-4232 / www.adasoutheast.org Kentucky Assistive Technology Loan Corp. Mayo-Underwood Building 500 Mero St., 4th Floor NE, Frankfort KY 40601 (877) 675-0195 The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities for assistive technology. Working with its lending partner, Fifth Third Bank, KATLC can provide loans for modified vehicles, hearing aids, adapted computers, mobility devices, augmentative communication devices or any other type of equipment or home modification that will improve the quality of life or increase the independence of Kentuckians with disabilities. / www.katlc.ky.gov Kentucky Cabinet for Workforce Development Lexington location 1050 Goodwin Ave., Lexington, Ky., 40505 (859) 233-5940 Louisville location 600 West Cedar St., Louisville, Ky., 40202 (502) 595-4003 Connecting Kentuckians to employment, workforce information, education and training. / www.kcc.ky.gov Kentucky Children Insurance Program (K-CHIP) (877) 524-4718 / chfs.kchip@ky.gov K-Chip’s mission is to provide free health insurance to low income, uninsured children in Kentucky. The K-CHIP staff understands that access to health care is important and that preventive care is a large part of health care. kidshealth.ky.gov/Pages/index.aspx Kentucky Coalition Against Domestic Violence 111 Darby Shire Circle, Frankfort, Ky., 40601 (502) 209-5382 In addition to providing a safe, secure environment for victims/survivors and their children, programs now also offer a variety of support services to residents and non-residents including legal/court advocacy, case management, safety planning, support groups, individual counseling, housing assistance, job search and children’s groups. / www.kcadv.org Kentucky Commission on the Deaf and Hard of Hearing 632 Versailles Road, Frankfort, Ky., 40601 (502) 573-2604 (V/TTY) / (800) 372-2907 (V/TTY, in Kentucky only) / kcdhh@mail.state.ky.us www.kcdhh.ky.gov/ Kentucky Community Mental Health Centers 275 E. Main St. 6W-D, Frankfort, Ky., 40621 (502) 564-6890 Publicly-funded community services are provided for Kentuckians who have problems with mental health, developmental and intellectual disabilities, or substance abuse, through Kentucky’s 14 regional Boards for Mental Health or Individuals with an Intellectual Disability (Regional MHID Boards). Regional MHID Boards are private,

Resource List 2020 nonprofit organizations established by KRS Chapter 210 (see Related Links) which serve residents of a designated multi-county region. chfs.ky.gov/agencies/dms/dpo/bpb/Pages/cmhc.aspx Regional Offices: Adanta MH / MR Board 130 Southern School Road, Somerset, Ky., 42501 (606) 679-4782 Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne counties. www.adanta.org Centerstone Kentucky 10101 Linn Station Road, Suite 600, Louisville, Ky. 40223 / (502) 589-8600 Serving Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble counties. https://centerstone.org/locations/kentucky/#nav-locations Communicare, Inc. 107 Cranes Roost Court, Elizabethtown, Ky., 42701 (270) 765-2605 Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington counties. www.communicare.org Comprehend, Inc. 611 Forest Ave., Maysville, Ky., 41056 (606) 564-4016 Serving Bracken, Fleming, Lewis, Mason, Robertson counties. / www.comprehendinc.org Cumberland River Comprehensive Care 175 Peachtree St., Corbin, KY 40701 (606) 526-9459 Serving Bell, Clay, Harlan, Jackson, Knox, Laurel,

Rockcastle, Whitley counties. / www.crbhky.org Four Rivers Behavioral Health 425 Broadway, Suite 201, Paducah, Ky., 42001 (270) 442-7121 / 24-hour Line (800) 592-3980 Serving Ballard, Calloway, Carlisle, Gallatin, Graves, Hickman, Livingston, McCracken,Marshall counties. www.4rbh.org Ky. River Community Care 3830 Kentucky Highway 15-South, Jackson, Ky., 41339 (606) 666-7591 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe counties. / krccnet.com Lifeskills 380 Suwanee Trail St., P.O. Box 6499, Bowling Green, Ky. 42103 / (270) 901-5000 Serving Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren counties. www.lifeskills.com Mountain Comprehensive Care Center 104 S. Front Ave., Prestonsburg, Ky., 41653 (606) 886-8572 Serving Floyd, Johnson, Magoffin, Martin, Pike counties. www.mtcomp.org New Vista (Formerly bluegrass.org) 1351 Newtown Pike, Building 5, Lexington, Ky., 40511 (859) 253-1686 / (859) 272-7483 24-hour help line (800) 928-8000 Serving Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford counties. newvista.org NorthKey Community Care

502 Farrell Drive, P.O. Box 2680, Covington, Ky., 41011 (859) 578-3200 / Toll Free (877) 331-3292 Serving Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton counties. / www.northkey.org Pathways, Inc. P.O. Box 790. 1212 Bath Ave., 8th floor, Ashland, Ky., 41101/ (606) 329-8588 ext. 4078 www.pathways-ky.org Serving Bath, Boyd, Carter, Elliott, Greenup, Lawrence, Menifee, Montgomery, Morgan, Rowan counties. Pennyroyal MH / MR Board 3999 Fort Campbell Blvd., Hopkinsville, Ky., 42240 (270) 886-2205 Serving Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg counties. www.pennyroyalcenter.org River Valley Behavioral Health, Inc. 1100 Walnut St., P.O. Box 1637, Owensboro, Ky., 42302 (270) 689 6500 Serving Davies, Hancock, Henderson, McLean, Ohio, Union, Webster counties. / www.rvbh.com Kentucky Department for Behavioral Health, Developmental and Intellectual Disabilities 275 E. Main St., 4W-F, Frankfort, Ky., 40621 (502) 564-4527 / (502) 564-7700 The department oversees services in Kentucky to people with intellectual and other developmental disabilities, mental health and substance use disorders. https://chfs.ky.gov/agencies/dbhdid/Pages/default.aspx

2020 Exceptional Family KY

Resource List 2020 Kentucky First Steps State Lead Agency 275 E. Main St., HS2WC, Frankfort, Ky., 40621 (502) 564-3756 First Steps is a statewide intervention system that provides services to children with developmental disabilities from birth to age 3 and their families. Administered by the Department for Public Health in the Cabinet for Health and Family Services, First Steps offers comprehensive services through community agencies and service disciplines. Children who participate in early intervention have significant improvement in development and learning. Helping to decrease the problems early in a childâ&#x20AC;&#x2122;s development can reduce or prevent costly educational programs in the future. https://chfs.ky.gov/agencies/dph/dmch/ecdb/Pages/ firststeps.aspx Regional Offices: https://chfs.ky.gov/agencies/dph/dmch/ecdb/fs/ POElistingforWebsite.pdf Barren River District Point of Entry P.O. Box 6499, 380 Suwannee Trail, Bowling Green, Ky., 42103 (270) 901-5749 / (800) 643-6233 Counties served: Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren Big Sandy District Point of Entry 104 South Front Ave., Prestonsburg, Ky., 41653 (606) 886-4417 / (800) 230-6011 Counties served: Floyd, Johnson, Magoffin, Martin, Pike Buffalo Trace District Point of Entry 4611 Forest Ave., Maysville, Ky., 41056 (606) 564-3919 / (800) 335-4249 Counties served: Bracken, Fleming, Lewis, Mason, Robertson Cumberland Valley District Point of Entry P.O. Box 568, Corbin, Ky., 40702 (606) 523-0229 / (800) 509-9559 Counties served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley. FIVCO District Point of Entry 5850 U.S. 60, Box 11 Summit Plaza, Ashland, Ky.,

41102 / (606) 929-9155 / (800) 650-1329 Counties served: Boyd, Carter, Elliott, Greenup, Lawrence Gateway District Point of Entry P.O. Box 290, Owingsville, Ky., 40360 (606) 674-3204 / (800) 942-4358 Counties served: Bath, Menifee, Montgomery, Morgan, Rowan Green River District Point of Entry 1501 Breckenridge St., Owensboro, Ky., 42303 (270) 852-2905 / (888) 686-1414 Counties served: Daviess, Hancock, Henderson, McLean, Ohio, Union, Webster Kentuckiana District Point of Entry 312 Whittington Parkway, Suite 020, Louisville, Ky., 40222 / (502) 429-1249 / (800) 422-0087 Counties served: Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble Kentucky River District Point of Entry 115 Rockwood Lane, Hazard, Ky., 41701 (606) 439-1325 / (800) 328-1767 Counties served: Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe Lake Cumberland District Point of Entry 259 Parkers Mill Road, Somerset, Ky., 42501 (606) 678-2821 / (800) 378-2821 Counties served: Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne Lincoln Trail District Point of Entry 108 New Glendale Road, P.O. Box 2609, Elizabethtown, Ky., 42702 / (270) 737-5921 / (800) 678-1879 Counties served: Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington New Vista (formerly Bluegrass) District Point of Entry 343 Waller Ave., Suite 201, Lexington, Ky., 40504 (859) 271-9448 / (800) 454-2764 Counties served: Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford Northern Kentucky District Point of Entry North Key: 718 Columbia St., Newport, Ky., 41071

(859) 308-5963 Counties served: Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton Pennyrile District Point of Entry 400A Hammond Plaza, Hopkinsville, Ky., 42240 (270) 886-5186 / (877) 473-7766 Counties served: Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg Purchase District Point of Entry 425 Broadway, Suite 204, Paducah, Ky., 42001 (270) 442-6223 / (800) 648-6599 Counties served: Ballard, Carlisle, Calloway, Fulton, Graves, Hickman, Livingston, Marshall, McCracken. Kentucky IMPACT Program 275 E. Main St., 4W-G, Frankfort Ky., 40621 (502) 564-4456 Kentucky IMPACT is a statewide program that coordinates services for children with severe emotional disabilities and their families. IMPACT serves children and youth of all ages. / https://dbhdid.ky.gov/dbh/kyimpact.aspx

The Kentucky Office of Vocational Rehabilitation 275 E. Main St., Mail Stop 2E-K, Frankfort, Ky., 40621 (502) 564-4440 The Kentucky Office of Vocational Rehabilitation (OVR) assists Kentuckians with disabilities to achieve suitable employment and independence. The organization recognizes and respects the contribution of all individuals as a necessary and vital part of a productive society. https://kcc.ky.gov/Vocational-Rehabilitation/Pages/default. aspx Regional Offices: Ashland (606) 920-2338 Bluegrass (859) 246-2537 (888) 211-7276 Bowling Green (270) 746-7489 (800) 443-6055 (800) 246-6193 (TTY) Carl D. Perkins Center (800) 443-2187 Covington (859) 292-6513 (866) 380-3450 Danville (859) 239-7885 (800) 795-8481 Elizabethtown (270) 766-5121 (866) 883-0001 Florence (859) 371-9450 / (877) 371-9451 Lexington (859) 246-2185 / (859) ur goal at Exceptional Family Magazine is to provide a compre246-2540 hensive, statewide list of resources for folks with disabilities. (877) 246-2185 Louisville (502) 595-4173 / (800) Since we first published this magazine in 2009, we have updated 456-3334 and expanded our list of resources many times. Middletown (502) 426-0145 / Help us continue to make this Resource Directory as accurate and thor(866) 304-1958 Owensboro (270) 687-7308 / ough as possible. If you know of resources in the state or in your part of (800) 241-5821 Kentucky that need to be included, please let us know. (TTY) (888) 640-2811 Thanks for your assistance and we look forward to hearing from you. West Kentucky (270) 575-7304 West Liberty (606) 743-7978 / (606) 743-7551 To add to this Resource Directory, simply contact Editor John Lynch by phone (800) 440-2530 (859) 494-1140 or email at john@lexingtonfamily.com. n Whitesburg (606) 633-2568

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Resource List 2020 Kentucky Transitions (Money Follows the Person Demonstration Grant) 275 East Main St. 6 W-B, Frankfort, Ky., 40621 (502) 564-0330 / (877) 564-0330 Using funding from the Money Follows the Person Demonstration Grant, the Department for Medicaid Services assists eligible individuals to transition from institutional settings back into the community. resources.hdiuk.org/directory/ky-transitions-moneyfollows-the-person-demonstration-grant/ Kentucky Department for Medicaid Services Division of Community Alternatives If you are elderly, have a physical, intellectual or developmental disability or are ventilator dependent, you may qualify for Medicaid waiver services. Known as 1915(c) Home- and Community-Based Services waivers, these services provide the support you need to continue to live at home. https://public.medicaid.gov/connect.ti/public.comments/ view?objectId=3217936 Medicaid Waiver Provider Directory The Provider Directory is maintained by the Division of Developmental & Intellectual Disabilities. Contact information for provider agencies certified to provide SCL/ Michelle P. Medicaid waiver services may be accessed in this interactive map. https://dbhdid.ky.gov/ProviderDirectory/ProviderDirectory. aspx Michelle P. Waiver Division of Community Alternatives 275 E. Main St. 6 W-B, Frankfort, Ky., 40621 (855) 459-6328 / (502) 564-1647 / (502) 564-4527 A Medicaid program that helps people live in the community or return to the community after living in an institution. The Michelle P. Waiver is for anyone with an intellectual or a developmental disability who is eligible to receive services at an Intermediate Care Facility. chfs.ky.gov/agencies/dms/dca/Pages/default.aspx Pathways to Careers and Special Programs 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 / (502) 564-4970 Donnalie Stratton, Program Consultant education.ky.gov Personal Care Attendant Program Department for Aging and Independent Living 275 E. Main St. 3E-E, Frankfort, Ky., 40621 (502) 564-6930 Ext 3477 Attendant services are provided for people 18 and older with functional loss of two or more limbs and who have the ability to hire and supervise an attendant. Services include assistance with personal care, housekeeping, shopping, travel, self-care procedures, meal preparation, and other daily activities. / chfs.ky.gov/agencies/dail/Pages/pcap.aspx Social Security Administration (800) 772-1213 / www.ssa.gov Regional Offices: https://www.benefitsoffices.com/state/index. php?st=KY&page=1

Ashland 1405 Greenup Ave., Room 132, Ashland, Ky., 41101 Bowling Green 2724 Chandler Drive, Bowling Green, Ky., 42104 Campbellsville 101 Hiestand Farm Road, Campbellsville, Ky., 42718 Corbin 159 Future Drive, Corbin, Ky., 40701 Danville 103 Belinda Blvd., Danville, Ky., 40422 Elizabethtown 591 Westport Road, Elizabethtown, Ky., 42701 Florence 7 Youell St., Florence, Ky., 41042 Frankfort 140 Flynn Ave., Frankfort, Ky., 40601 Hazard 122 Reynolds Lane, Hazard, Ky., 41701 Hopkinsville 1650 Marie Drive, Hopkinsville, Ky., 42240 Jackson 850 KY-15 N., Jackson, Ky., 41339 Lexington 2241 Buena Vista Road, Suite 110, Lexington, Ky., 40505 Louisville 10503 Timberwood Circle, Suite 50, Louisville, Ky., 40223 Madisonville 4431 Hanson Road, Madisonville, Ky., 42431 Maysville 509 Market Place Drive, Maysville, Ky., 41056 Owensboro 4532 Lucky Strike Loop, Owensboro, Ky., 42303 Paducah 125 Brett Chase Road, Paducah, Ky., 42003 Prestonsburg 1897 Ky. Route 321, Prestonsburg, Ky., 41653 Richmond 1060 Gibson Bay Drive, Richmond, Ky., 40475 Somerset 3975 US-27, Somerset, Ky., 42501 Supports for Community Living Waiver Branch 275 E. Main Street, 4CF, Frankfort, Ky., 40621 (502) 564-7700 The Supports for Community Living (SCL) Waiver Branch of the Division of Developmental and Intellectual Disabilities (DDID) provides staff support for and oversight of the Supports for Community Living waiver program. The SCL waiver program is a home- and community-based program funded by the Kentucky Department for Medicaid Services and administered by DDID. dbhdid.ky.gov/ddid/scl.aspx

ADOPTION AND FOSTERING

Adoption Support for Kentucky UK College of Social Work 1500 Bull Lea Road Ste. 194, Lexington Ky., 40511 (859) 257-7361 / adoptky@uky.edu Adoption Support for Kentucky (ASK) is a statewide

program that specializes in the utilization of support groups to offer pre- and post-adoptive support and services to both foster and adoptive parents. ASK provides the opportunity to share resources, suggestions, frustrations and successes with those who share this unique experience. ASK strives to prevent pre-adoption disruption and post-adoption dissolution through peer-led support and training. There is no cost and any and all are welcome. www.uky.edu/trc/ask The Bair Foundation 2393 Alumni Drive, Suite 205, Lexington, Ky., 40517 (859) 519-3273 Bair Foundation is a therapeutic Foster Care agency in the process of getting the certification for caring for medically complex children. Bair Foundation foster care families are specially trained to care for children with medical and behavioral needs. Bair Foundation provides trauma-informed care for all children, helping them face challenging behaviors, and provides them with stable environments while focusing on the child’s strengths. www.bair.org Benchmark Family Services Therapeutic Foster Care, Kentucky Administrative Office 160 Burt Road, Lexington, Ky., 40503 (859) 899-9515 Provides quality out-of-home placements for youth in need by working with referring agencies to guarantee the support, treatment and care they deserve. Serves children with emotional, mental and physical disabilities along with youth who have been severely neglected or abused. Therapeutic services include training of foster families. Benchmark Family Services has offices in Berea, Bowling Green, Columbia, Corbin, Elizabethtown, Florence, Hazard, Lexington, Louisville, Madisonville, Morehead, Owensboro, Owenton, Paducah, Prestonsburg, and Somerset. www.benchmarkfamilyservices.org Children’s Home of Cincinnati 5050 Madison Road, Cincinnati, Ohio, 45227 (513) 272-2800 / (513) 808-9632 The Children’s Home of Cincinnati is a private, nonprofit social service agency that improves the lives of children and their families through services in four areas: adoption, early childhood, education and mental health. The Home serves children of all ages and their families, including adoptive children, new parents needing support and guidance, children with special education needs, and children with mental health diagnoses. www.thechildrenshomecinti.org Key Assets Kentucky 961 Beasley St., Suite 160, Lexington, Ky., 40509 (859) 226-5022 Key Assets provides support for specialized foster parents who care for children with developmental delays or autism. / www.keyassetskentucky.com Kentucky Adoption Profile Exchange (Formerly Special Needs Adoption Program) 275 East Main St. 3C-E, Frankfort, Ky., 40621 (800) 928-4303 or (800) 432-9346

2020 Exceptional Family KY

Resource List 2020 DCBS/Adoption Service prdweb.chfs.ky.gov/kape/index.aspx

THE ARTS All Abilities Drama Camp Jessamine Early Learning Village 851 Wilmore Road, Nicholasville, Ky., 40356 aadramacamp@gmail.com Embracing the gifts of all campers through the arts by celebrating difference, skills, personalities and abilities. www.allabilitiescamp.blogspot.com Allegro Dance Project (715) 252-6137 Based in Lexington, Allegro Dance Project is a non-profit contemporary dance company specializing in Inclusive dance outreach for children with Down Syndrome, Autism Spectrum Disorder and other specific needs. www.allegrodanceproject.org Latitude Artist Community 734 National Ave., Suite 110, Lexington, Ky., 40502 (859) 806-0195 Latitude is an art studio that serves all people, with an emphasis on those who are considered to have a disability. The multimodal activities, workshops and community outreach events form a framework that encourages us to recognize our own life’s narrative, and to then choose ways in which we may contribute to the well-being of our community. / www.latitude-arts.com Lexington Children’s Theatre 418 W. Short St., Lexington, Ky., 40507 (859) 254-4546 LCT is committed to creating an environment where everyone feels welcome to enjoy the magic of theatre. Join LCT for sensory friendly performances that are designed to be a safe environment where young people with sensory sensitivities or disabilities, first-time theatre goers, young children, and their friends and family are free to speak, respond and move around the seating area in reaction to the story. ASL interpretation and audio description are also available. / www.lctonstage.org/tickets/access-at-lct/ The SHINE House 402 North Main Street, Somerset, Ky., 42501 (606) 416-5380 The SHINE House is a nonprofit community arts center whose goal is to provide instruction in a variety of visual arts forms in a creative educational space developed with inclusion in mind. / www.theshinehouse.com VSA Arts of Kentucky 601 College St., Bowling Green, Ky., 42101 (270) 792-0023 Nonprofit organization dedicated to providing inclusive arts and education programs for children, youth and adults with disabilities, in addition to professional development for artists and teachers in schools and communities statewide. Offers an under-served population equal opportunity to

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explore the arts in a way that is fully accessible. Through participatory involvement with trained professionals and volunteers, people with disabilities learn new creative and social skills that open doors to new opportunities. www.vsartsky.org

ASSISTIVE TECHNOLOGY Carl D. Perkins Vocational Training Center 5659 Main St., Thelma, Ky., 41260 (606) 788-7080 The mission of the Carl D. Perkins Vocational Training Center is that persons will achieve sustainable competitive integrated employment, maximize independence, and yet gain self-respect through the provision of comprehensive services. Consumers may live on our campus in dormitory housing or can commute to the Perkins Center each day they are scheduled for classes and/or therapy. https://kcc.ky.gov/Vocational-Rehabilitation/cdpvtc/Pages/ default.aspx

need it in rural Kentucky. In order to make this happen, Project CARAT is partnering with agencies across the state. To request equipment or for donation information, call the ProjectCARAT Hotline at (800) 327-5287. www.katsnet.org/projectCARAT Kentucky Assistive Technology Loan Corp. Mayo-Underwood Building 500 Mero St., 4th Floor NE, Frankfort Ky., 40601 (877) 675-0195 The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities for assistive technology. Working with its lending partner, Fifth Third Bank, KATLC can provide loans for modified vehicles, hearing aids, adapted computers, mobility devices, augmentative communication devices or any other type of equipment or home modification that will improve the quality of life or increase the independence of Kentuckians with disabilities. / www.katlc.ky.gov Ky. Department of Education Exceptional Children 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4770 www.education.ky.gov/specialed/Pages/default.aspx

Enabling Technologies of Kentuckiana (enTECH) at Spalding University 812 S. Second St., Louisville, Ky., 40203 (502) 992-2448 / www.entech.spalding.edu

Kentucky Assistive Technology Guidelines 8412 Westport Road, Louisville Ky., 40242 (800) 327-5287 www.katsnet.org/resources/web-accessibility/ky-ait-law/

HDI Center for Assistive Technology Services 2358 Nicholasville Road, Suite 180 Lexington, Ky., 40503 / (859) 218-7979 (CATS) is a non-profit, grassroots organization that assists individuals who have disabilities, their families and service providers in connecting with various technologies and services that provide the gateway to greater independence, productivity and quality of life. CATS is a member of the Alliance for Technology Access, The Eastern Regional Center for the Kentucky Assistive Technology Service (KATS) Network. / www.hdi.uky.edu/HDICATS www.facebook.com/HDICATS

Redwood Assistive Technology Center 71 Orphanage Road, Ft. Mitchell, Ky., 41017 (800) 728-9807 / www.redwoodnky.org

KATS (Ky. Assistive Technology Service Network Coordinating Center) 8412 Westport Road, Louisville, Ky., 40242 (800) 327-5287 / Info@katsnet.org The Kentucky Assistive Technology Locator is a free service of the KATS Network that connects Kentuckians to the AT devices they need to live independently. By registering for an account, you can borrow devices to try, find used devices for free or low-cost, sell used devices, give away devices or place want ads for devices you need. www.katsnet.org KATS Project CARAT (800) 327-5287 / Sheila.levy@ky.gov A program of KATS, CARAT enables under-served individuals with disabilities in the Appalachian region of Kentucky by collecting, refurbishing and redistributing assistive technology and durable medical equipment through a collaborative network of partners. The goal of Project CARAT is to make Assistive Technology and Durable Medical Equipment more accessible to those who

Western Kentucky Assistive Technology Center Wendell Foster’s Campus 815 Triplett St., Owensboro, Ky., 42302 / (270) 683-4517 / https://wendellfoster.org

AUTISM The Kelly Autism Program Western Kentucky University Clinical Education Complex, 104 Alumni Ave., Bowling Green, Ky., 42101 / (270) 745-4KAP (4527) www.wku.edu/kellyautismprogram Wendell Foster’s Kelly Autism Program 815 Triplett St. / P.O. Box 1668, Owensboro, Ky., 42303 (877) 932-2678 / https://wendellfoster.org Autism Society of Kentucky Bluegrass P.O. Box 24212, Lexington, Ky., 40524-241 saraspragens@gmail.com Established in 1991 and a chapter of ASA, this allvolunteer advocacy group of parents, caregivers, and selfadvocates serves Central and Eastern Kentucky. Its mission is to provide education, advocacy and support to families, educators and health providers affected by ASD. www.asbg.org Autism Society of Greater Cincinnati P.O. Box 75, Milford, Ohio, 45150

Resource List 2020 (513) 561-2300 / info@autismcincy.org ASGC works to promote awareness and education about autism. ASGC provides information packets, support groups for families and individuals, newsletters and public speakers. / www.autismcincy.org Autism Society of Kentuckiana P.O. Box 21895, Louisville, Ky., 40221-0895 Rebecca Thompson, Kentucky Resident Contact (502) 263-5708 / www.ask-lou.org Families for Effective Autism Treatment 1100 E. Market St., Louisville, Ky., 40206 (502) 596-1258 / www.featoflouisville.org Hopebridge 1300 E. New Circle Road, Suite 150, Lexington, Ky. 40505 / (859) 685-1019 5215 Commerce Crossings Drive, Louisville, Ky., 40229 (502) 251-7002 2427 Russellville Road, Bowling Green, Ky., 42101 (270) 936-7472 Provides a full range of professional services in one location for a child with Autism Spectrum Disorder and other developmental delays. / www.hopebridge.com Ky. Autism Training Center at Kosair Charities University of Louisville 1405 E. Burnett Ave., Louisville, Ky., 40217 (502) 852-4631 / (800) 334-8635 ext. 852-4631 www.louisville.edu/education/kyautismtraining PACT: Police Autism Community Training PACT is a non-profit program aimed at educating and raising autism awareness within Kentucky’s law enforcement departments. PACT seeks to increase awareness and knowledge through a classroom session focused on improving miscommunication among law enforcement officials and individuals with autism. www.pactautism.com Weisskopf Child Evaluation Center 411 E. Chestnut, Louisville, Ky., 40202 (502) 588-0850 Provides center-based and outreach diagnostic evaluations and treatment to infants and children with, or at risk for, developmental disabilities, congenital anomalies, genetic disorders, autism, organic behavior disorders (ADHD) and learning disabilities, as well as genetic counseling to adults. louisville.edu/medicine/departments/pediatrics/divisions/ weisskopf

CAMPS AND RECREATIONAL ACTIVITIES Bowling Green Parks and Recreation Special Populations Division 225 E. Third Ave., Bowling Green, Ky., 42101

(270) 393-3549 Programs and services offered provide all individuals, regardless of their ability level, opportunities for recreation and leisure. People with and without disabilities participate side by side in an inclusive environment. Activities include Bowling Green Special Olympics (softball, basketball, flag football, bowling, cheerleading, swimming, and track and field), adapted sports (wheelchair basketball, wheelchair tennis and goalball), and social gatherings (holiday parties, movie nights, dances and more). www2.bgky.org/bgpr/specialpopulation.php/ Camp Discovery 33 W. Second St., 3rd Floor, Maysville, Ky., 41056 (606) 301-8338 A three-day, all-female camp designed to teach women in wheelchairs physical fitness and how to form lasting relationships. Sports such as wheelchair tennis, SCUBA diving and horseback riding as well as whole body wellness such as art therapy, nutrition classes, cooking and massage are all incorporated throughout the weekend. maysvilleinitiatives.com/camp-discovery/ Camp Hendon 1640 Lyndon Farm Court, Suite 108, Louisville, Ky., 40223 / (502) 272-2370 Camp Hendon is an all-volunteer camp for children (ages 8-17) with Type I diabetes. The camp provides two separate week-long residential camping sessions to empower children to take control of their journey with diabetes. / www.camphendon.org Cassidy’s Cause Therapeutic Riding Academy 6075 Clinton Road, Paducah, Ky., 42001 (270) 554-4040 / www.cassidyscause.org The Center for Courageous Kids 1501 Burnley Road, Scottsville, Ky., 42164 (270) 618-2900 / info@courageouskids.org The Center for Courageous Kids (CCK) is a medical camp where children with disabilities or life-threatening illnesses will experience what a real camp is like, in a setting that is physically safe and medically sound. The camp offers children who are typically watching rather than participating the opportunity to fully engage in camp activities that focus on their abilities. Illness specific summer camps for children (7-15) and illness specific family weekend retreats, free of charge. / ww.courageouskids.org Central Kentucky Riding for Hope P.O. Box 13155, Lexington, Ky., 40583 (859) 231-7066 / lauriston@ckrh.org Operated at the Kentucky Horse Park Under the guidance of trained teachers, volunteers and medical personnel, disabilities are challenged and new abilities are created. The program has proved successful in helping people with disabilities develop self-esteem, confidence, coordination and a sense of achievement while learning horsemanship and track riding principles. www.ckrh.org Easter Seals Adaptive Recreation 2050 Versailles Road, Lexington, Ky., 40504 (859) 246-8816 / cindy.jacobelli@cardinalhill.org

Promotes healthy and active lifestyles for people with physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community. www.cardinalhill.org/programs/adaptive-recreation Kamp KESSA 758 Beechridge Road, Frankfort, Ky., 40601 (502) 376-4367 A non-profit resident camp serving populations who are at-risk and have special needs. Kamp KESSA provides adventure education and treatment programs utilizing horses and the wilderness. / www.cedarfire.net Legacy All Sports 261 Ruccio Way, Lexington, Ky., 40503 (859) 977-8862 Carousel Kidz is a program to meet your child’s special needs with one-on-one gymnastics lessons. www.legacyallsports.com Lex. Parks and Recreation Therapeutic Recreation Dunbar Community Center, 545 N. Upper St., Lexington, Ky., 40508 / (859) 288-2900 Therapeutic Recreation programs provide opportunities for individuals with disabilities to enjoy activities through recreation, leisure and play, and to showcase their talents and abilities. Programs are designed to enhance the overall health, wellness and social needs of individuals with disabilities. A variety of recreation and sport opportunities are available such as adult fitness, adaptive aquatics, archery, Miracle League Baseball, cooking, summer camps, drama, hand drumming, art, day-trip outings, overnight excursions, bowling, horsemanship, dance class, special events, Zumba, yoga and more. www.lexingtonky.gov/tr Louisville Parks and Recreation Adaptive and Inclusive Recreation 1300 Heafer Road, Louisville, Ky., 40223 (502) 456-8148 Offers adaptive sports and recreation for people in Jefferson and outlying counties. Programs include the state’s only Paralympics Sports Club, plus health and wellness classes such as nutrition, yoga, and exercise and strength training classes. Sports offerings include wheelchair basketball, wheelchair tennis, bocce ball, pickle ball and wheelchair pickle ball, archery, adaptive golf, goal ball and beep baseball for people with low or no vision. Clinics are offered in track & field, wheelchair lacrosse, sled hockey and more. Louisville is also home to the state wheelchair basketball team, Louisville Spokes & Spires. https://louisvilleky.gov/government/parks/ LYSA’s TOPSoccer Program 404 Sporting Court, Lexington, Ky., 40503 (859) 223-5632 TOPSoccer (The Outreach Program for Soccer) is a community-based soccer program designed to meet the needs of athletes with physical, developmental, and/or intellectual disabilities. Player participation and development are key elements of the program. TOPSoccer is designed to improve the overall fitness, self-esteem and social skills

2020 Exceptional Family KY

Resource List 2020 of your athlete. / www.lysa.org/topsoccer Special Olympics Kentucky 105 Lakeview Court, Frankfort, Ky., 40601 (502) 695-8222 / (800) 633-7403 Special Olympics is the world’s largest program of sports training and competition for children and adults with intellectual disabilities. / www.soky.org Toyota Bluegrass Miracle League Central Lexington YMCA 239 East High Street, Lexington, Ky. 40507 (859) 254-9622 A baseball program for youth and adults with special needs. The leagues play on a specially designed field located at Shillito Park in Lexington. The all-accessible field is the only one of its kind in Kentucky with leagues in both spring and fall. www.facebook.com/pages/category/Disability-Service/ Toyota-Bluegrass-Miracle-League-59145356197 YMCA of Central Kentucky (859) 254-9622 / www.ymcacky.org

DOWN SYNDROME Down Syndrome Association of Central Kentucky 1050 Chinoe Road, Suite 204, Lexington, Ky., 40502 (859) 494-7809 DSACK exists to celebrate the Down syndrome community, support individuals with Down syndrome and their families, educate the Central Kentucky community and assist in local and national research efforts. DSACK celebrates that all people are beautiful, capable and loved. Serves Central and Eastern Kentucky. / www.dsack.org Down Syndrome Association of Greater Cincinnati 4623 Wesley Ave., Suite A, Cincinnati, Ohio, 45212 (513) 761-5400 By providing families with support, inspiration and information, the Association helps individuals with Down syndrome achieve their maximum potential. Including individuals with Down syndrome in neighborhood schools, community activities and the business world benefits individuals and their respective communities. www.dsagc.com Down Syndrome Association of the Heartland P.O. Box 6402, Elizabethtown, Ky., 42702-6402 (270) 723-4548 / info@dsheartland.org This organization offers support to individuals with Down Syndrome, as well as their families, friends, caregivers, teachers and coworkers. Plus, this organization strives to educate the public-at-large about Down Syndrome. It is the desire of Down Syndrome Association of the Heartland for every individual who has been touched by Down Syndrome, regardless of age, to have access to support and services that would aid each individual in reaching his or her individual potential. Green River Area Down Syndrome Association Owensboro and surrounding area P.O. Box 2031, Owensboro, Ky., 42302

www.lexingtonfamily.com

(270) 681-5313 / info@gradsa.org GRADSA’s mission is to enable families enriched with Down syndrome connection to share resources, build friendships, and advocate together for the future of individuals with Down syndrome. / www.gradsa.org Down Syndrome of Louisville 5001 South Hurstbourne Parkway, Louisville, Ky., 40291 (502) 495 5088 Down Syndrome of Louisville is a non-profit organization founded in 1977 whose mission is to improve the lives of persons with Down syndrome and their families by providing support, information, education, and advocating for their rights and concerns, enabling individuals to reach their full potential. / www.downsyndromeoflouisville.org Down Syndrome Association of South Central Ky. 522 State St., Bowling Green, Ky., 42101 (270) 796-5002 / info@dssky.org / www.dssky.org Down Syndrome Association of Western Kentucky P.O. Box 7366, Paducah, Ky., 42002-7366 (270) 519-4583 / upsandowns@dsawk.com DSAWK promotes public awareness and acceptance of individuals with Down syndrome by providing information, resources and support in the community. Generally, meetings are on the 3rd Monday of the month at the Heartland Worship Center in Paducah. / www.dsawk.com National Down Syndrome Congress (NDSC) 30 Mansell Court, Suite 108, Roswell, Georgia, 30076 (770) 604-9500 / info@ndsccenter.org The NDSC provides up-to-date information on topics of interest to people with Down syndrome, family members, friends, professionals and interested others. The Center works to promote the availability of and accessibility to a full range of opportunities and/or resources that meet individual and family needs. / www.ndsccenter.org National Down Syndrome Society (NDSS) (800) 221-4602 / info@ndss.org The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. / www.ndss.org

EDUCATION

The Council for Exceptional Children 3100 Clarendon Blvd, Suite 600, Arlington, Virginia, 22201 / (888) 232-7733 / TTY (866) 915-5000 The largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. / www.cec.sped.org EKU Center for Student Accessibility 521 Lancaster Ave., Whitlock Building, Room 361 CPO 66, Richmond, Ky., 40475 (859) 622-2933 Provides equal access to University resources, coursework, programs and activities by serving qualified individuals, and advocating for equal access for all

individuals who qualify. / www.accessibility.eku.edu Kentucky Adult Education Council on Postsecondary Education 1024 Capital Center Drive, Suite 250, Frankfort, Ky., 40601 (502) 573-5114 V/TTY / http://cpe.ky.gov/ Kentucky Department of Education: Division of Exceptional Services 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 (502) 564-4970 Oversees funding, special education programs, data collection, personnel development, monitoring of school districts, curriculum development and more. www.education.ky.gov/specialed/excep/Pages/default.aspx Kentucky PTA 148 Consumer Lane, Frankfort Ky., 40601 or P.O. Box 654, Frankfort, Ky., 40602-0654 (502) 226-6607 / kentuckypta@bellsouth.net www.kypta.org Kentucky State Department of Education 300 Sower Blvd., 5th Floor, Frankfort, Ky., 40601 Rebecca Blessing / (502) 564-3141 education.ky.gov Kentucky State University Disability Resource Center 400 E. Main St., Frankfort, Ky., 40601 (502) 597-6041 / phillip.clay@kysu.edu Hathaway Hall Office #107 / www.kysu.edu Maysville Community and Technical College Office of Disability Support Services 1755 US Hwy 68, Maysville, Ky., 41056 (606) 759-7141 MCTC assures equal access through services and accommodations for students with disabilities. https://maysville.kctcs.edu/about/student-life/studentsupport-services/accessibility-services.aspx Morehead State University Disability Service Adron Doran University Center, Suite 202, Morehead, Ky., 40351 (606) 783-5188 / e.day@moreheadstate.edu This office ensures that the university’s programs, activities, services and the campus itself are accessible to all students and visitors. www.moreheadstate.edu/disability Northern Kentucky University Office of Disability Services Student Union, Suite 303, Highland Heights, Ky., 41099 / (859) 572-5282 NKU provides learner-centered assistance and resources to students with disabilities in their transition to Northern Kentucky University. / inside.nku.edu/disability.html Programs for Children with Disabilities 300 Sower Blvd., Frankfort, Ky., 40601 (502) 564-4970 Division of Extended Learning Office of Academic and Professional Development (Ages 3 through 5) .

Resource List 2020 education.ky.gov Public School Parent Resource Centers, Cabinet for Health and Family Services 275 E. Main St., 3C-G, Frankfort, Ky., 40621 (502) 564-4986 Nearly all public schools in the state have Parent Resource Centers, which are divided into 11 Regions. The mission is to remove nonacademic barriers to learning as a means to enhance student academic success. The Centers are also places where families of children with special needs can receive parent-to-parent counseling on special education issues and concerns. Families are welcome to visit and preview materials from 874K Rally: Rep. Al Gentry of Louisville, flanked by Katie Bentley of the CCDD and Sheila Schusthe lending library, which has many ter of Advocacy Action Network, speaks in the Capitol Rotunda at a recent 874K Rally. To see the books, videotapes and periodicals story, please see Page 18. related to disability. The staff can connect parents to resources and support groups and also help with online research. Region 8: Program Manager Teresa Combs 1906 College Heights Blvd., Suite #21052, Bowling chfs.ky.gov/agencies/dfrcvs/dfrysc/Documents/ teresa.combs@ky.gov Green, Ky., 42101 AdmininstratorsGuidebook.pdf Counties Served: Breathitt, Floyd, Knott, Lee, Leslie, Student Accessibility Resource Center Regional Offices: Letcher, Owsley, Perry, Pike, Wolfe Downing Student Union, First Floor, 1074 Region 1: Program Manager Teresa Dixon Region 9: Program Manager Russell Jones (270) 745-5004 teresa.dixon@ky.gov russell.jones@ky.gov WKU coordinates services and accommodations for Counties Served: Ballard, Caldwell, Calloway, Carlisle, Counties Served: Bell, Clay, Harlan, Jackson, Knox, Laurel, students with documented disabilities. Christian, Crittenden, Graves, Fulton, Hickman, Hopkins, Rockcastle, Whitley www.wku.edu/sarc Livingston, Lyon, Marshall, McCracken, Muhlenberg, Region 10: Program Manager Lisa Gay Todd, Trigg. Plus: Dawson Springs Independent, Fulton lisa.gay@ky.gov Independent, Mayfield Independent, Murray Independent, County Served: Fayette Paducah Independent. Region 11: Program Manager Sherrie Baughn Region 2: Program Manager Dianne M. Arnett Martin / sherrie.martin@ky.gov diannem.arnett@ky.gov Epilepsy Council of Greater Cincinnati Counties Served: Adair, Allen, Barren, Breckinridge, Counties Served: Butler, Daviess, Hancock, Henderson, 895 Central Ave., Suite 550, Cincinnati, Ohio, 45202 Edmonson, Grayson, Green, Hardin, Hart, Larue, Meade, Logan, McLean, Ohio, Simpson, Union, Warren, Webster (513) 721-2905 / (877) 804-2241 Metcalfe, Monroe. Region 3: Program Manager Naela Imanyara and eao@epilepsy-ohio.org / www.epilepsy-ohio.org Andrea Pike-Goff Special Needs Homeschooling naela.imanyara@ky.gov / andrea.pikegoff@ky.gov Epilepsy Foundation of Kentuckiana A blog written by a mother with special needs children, County Served: Jefferson 982 Eastern Parkway, Louisville, Ky., 40217 the author provides resources she has found helpful in Region 4: Program Manager Betty Pennington (502) 637-4440 / (866) 275-1078 / www.efky.org homeschooling her children. betty.pennington@ky.gov www.specialneedshomeschooling.com Counties Served: Boone, Campbell, Carroll, Gallatin, Henry, Kenton, Oldham, Owen, Shelby, Trimble University of Kentucky Disability Resource Center Region 5: Program Manager Paul Cookendorfer 725 Rose St., Multidisciplinary Science Building paul.cookendorfer@ky.gov Counties Suite 407, Lexington, Ky., 40536 Served: Anderson, Bourbon, Clark, Franklin, Grant, (859) 257-2754 Harrison, Jessamine, Madison, Mercer, Nicholas, Resources for prospective and current students and parents. Pendleton, Scott, Woodford Dyslexia Association of the Pennyrile www.uky.edu/StudentAffairs/DisabilityResourceCenter Region 6: Program Manager Barbara Pettus 538 A Noel Ave., Hopkinsville, Ky., 42240 barbara.pettus@ky.gov (270) 885-5804 / www.hopkinsvilledyslexia.com/ University of Louisville Disability Resource Center Counties Served: Bullitt, Boyle, Casey, Clinton, Cumberland, 119 Stevenson Hall, Louisville, Ky., 40292 Garrard, Lincoln, Marion, McCreary, Nelson, Pulaski, The International Dyslexia Assn. - Ky. Branch (502) 852-6938 / askdrc@louisville.edu Russell, Spencer, Taylor, Washington, Wayne P.O. Box 22006, Louisville. 40252 UofL provides support for students with documented Region 7: Program Manager Doug Jones (502) 276-5153 / ky.dyslexiaida.org disabilities by promoting equal access to all programs and wdouglas.jones@ky.gov LD Online services. Counties Served: Bath, Boyd, Bracken, Carter, Elliott, The worldâ&#x20AC;&#x2122;s leading website on learning disabilities and www.louisville.edu/disability Fleming, Greenup, Johnson, Lawrence, Lewis, Martin, Mason, Menifee, Montgomery, Morgan, Robertson, Rowan Western Kentucky University

EPILEPSY

LEARNING DIFFERENCES

2020 Exceptional Family KY

Resource List 2020 ADHD. / www.ldonline.org/ldresources/local_org/kentucky Learning Disabilities Association of Kentucky 2210 Goldsmith Lane, Suite 118, Louisville, Ky., 40218 (502) 473-1256 / (877) 587-1256 This comprehensive mental health professional program includes the “co-morbid” disorders often found with individuals with learning disabilities, including Anxiety, Depression, Obsessive Compulsive Disorder, Anger Control/Bipolar Disorder, and ADHD. / www.LDAofky.org Ohio Valley Branch of the International Dyslexia Association OVBIDAtutorline@yahoo.com A non-profit, scientific and educational organization dedicated to the study and treatment of dyslexia. This Branch was formed to increase public awareness of dyslexia in the Southern Ohio, Southeast Indiana, Kentucky and Huntington, West Virginia areas. / ohv. dyslexiaida.org/ Progressive Educational Program, Inc. Cress Certified 212 Venture Way, Somerset, Ky., 42503 (606) 677-2514 Dyslexia Tester. Specializing in tutoring children with Dyslexia. / www.progressiveeducationalprogram.com Wilson Pediatric Therapy 401 Lewis Hargett Circle, Suite 120, Lexington, Ky., 40503 / (859) 475-4305 / (859) 899-7323 Working with children with dyslexia and other learning differences. / www.wilsonpediatric.com

LEGAL & FUTURE’S PLANNING Attorney Karen L. Perch 2333 Alexandria Drive, Lexington, Ky., 40504 (859) 224-0513 Karen Perch and her staff are dedicated to helping clients with their legal matters regarding Wills, Living Wills, Powers of Attorney, Trusts, including Special Needs Trusts, Qualifying Income Trusts (Miller Trusts) and Family Trusts and Estate Administration. / www.perchlaw.com Attorney Robert McClelland, LLM, CELA McClelland & Associates, PLLC, 1795 Alysheba Way, Suite 2102, Lexington, Ky., 40509 (859) 543-0061 / (800) 773-4040 Robert L. McClelland is a certified elder law attorney, special needs trustee and guardian with Elder Law Lexington, the firm of McClelland & Associates, PLLC. He is a member of the Special Needs Alliance, a national alliance of special needs attorneys who focus their practice on benefits planning and caring for those with family members who have special needs. www.elderlawlexington.com Children’s Law Center Covington Office: 1002 Russell St., Covington, Ky., 41011 / (859) 431-3313 / info@childrenslawky.org

www.lexingtonfamily.com

Lexington Office: c/o Imani Family Life Center 215 W. Short St., Suite 205, Lexington, Ky., 40507 (859) 253-3353 / info@childrenslawky.org Provides free legal services for children with educational disabilities, and performs research and policy work, training and education in this area. www.childrenslawky.org Court Appointed Special Advocates for Children Kentucky CASA Network 1640 Lyndon Farm Court, Suite 108, Louisville, Ky., 40223 (502) 238-2154 CASA volunteers are everyday citizens appointed by judges to advocate for the safety and well-being of abused and neglected children. Last year in Kentucky, more than 800 CASA volunteers advocated for the best interest of nearly 3,000 children in Kentucky. CASA has 20 offices throughout the state. To locate one in your area, visit the web site below. / www. kentuckycasanetwork.org Kentucky Division of Protection and Permanency 275 E. Main St., 3E-A, Frankfort, Ky., 40621 (502) 564-6852 / Fax (502) 564-4653 If you believe a child is being abused, neglected or is dependent, call the Protection and Permanency office in your county or the Toll Free Child Protection Hot Line. 1-877-KYSAFE1 or 1-877-597-2331. chfs.ky.gov/agencies/dcbs/dpp/Pages/default.aspx Kentucky Office of Victims Advocacy 1024 Capital Center Drive, Suite 200, Frankfort, Ky., 40601 / (502) 696-5312 The Office of Victims Advocacy works to ensure crime victims are treated with respect and dignity as their case proceeds through the criminal justice system. www.ag.ky.gov/about/branches/OVA Kentucky Protection & Advocacy 5 Millcreek Park, Frankfort, Ky., 40601 (800) 372-2988 / (502) 564-2967 The mission is to protect and promote the rights of Kentuckians with disabilities through legally based individual and systemic advocacy and education. Staff includes professional advocates and attorneys. / www. kypa.net Life Plan of Kentucky, Inc. 230 Lexington Green Circle, Suite 120, Lexington, Ky., 40503 / (859) 523-2323 Life Plan is a pooled special needs trust serving people with disabilities and their families in Kentucky who have countable resources in excess of $2000.00 and need to maintain their eligibility for Supplemental Security Income (SSI) or Medicaid. People can open an account with Life Plan where the funds can be professionally managed and then requests can be made for expenses that improve the quality of the person’s life. Life Plan provides Trustee services for both individuals with disabilities as well as family members who wish to plan for the future. www.lifeplanofky.org Nick Wallace, Financial Planner Northwestern Mutual

330 E. Main Street Suite, 300 Lexington, Ky., 40507 (859) 302-1223 / Nick.Wallace@nm.com Provides financial planning, life insurance, investments for special needs families to fund special needs trusts and retirement. www.nickwallace.nm.com

MEDICAL AND THERAPY SERVICE PROVIDERS

Associates in Pediatric Therapy Louisville Area: (502) 633-1007 Lexington Area: (859) 899-2022 Indiana Area: (812) 542-2771 Bowling Green Area: (270) 467-7700 APT’s unique appeal is that it offers a family approach with multiple pediatric services including Occupational Therapy, Speech Therapy, Physical Therapy, Developmental Intervention and Audiology to the patient and family in a team approach. APT strives to provide therapy in a variety of locations that are appealing to the patient and family. / www.kidtherapy.org The Kid SpOt Center (Pediatric Therapy) Locations 50 Gene Cash Road, Campbellsville, Ky., 42718 (270) 465-SPOT (465-7768) 529 Westport Road, Elizabethtown, Ky., 42701 (270) 763-8225 944 Fields Drive, Suite 102, Bowling Green, Ky., 42104 (270) 495-1312 200 Tower Circle, Somerset, Ky., 42503 (606) 416-5139 The Kid SpOt Center provides supports to families of children with disabilities. Services include Speech Therapy, Occupational Therapy, Physical Therapy, Positive Behavior Supports, ABA, Mental Health Counseling, Community Living Supports, Social Skills, Targeted Case Management, Medication Management and Neuropsychology Evaluations. / www.thekidspotcenter.com. Brain Injury Alliance of Kentucky 7321 New LaGrange Road, Suite 100, Louisville, Ky., 40222 / (502) 493-0609 BIAK is committed to serving those affected by brain injury through advocacy, education, prevention, outreach, service and support. / www.biak.us Cardinal Hill Rehabilitation Hospital 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 Outpatient Services (859) 367-7125 Home Care (859) 367-7148 cardinalhillhealthsouth.com/ Cincinnati Children’s Hospital Center for Infants and Children with Special Needs Cincinnati Children’s Hospital Medical Center MLC 7009

Resource List 2020 3333 Burnet Ave., Cincinnati, Ohio, 45229 (513) 636-4200 / TTY (800) 344-2462 www.cincinnatichildrens.org Crohn’s & Colitis Foundation of America Southwest Ohio & Kentucky Chapter 2368 Victory Pkwy, Suite 240, Cincinnati, Ohio, 45206 (513) 772-3550 / (877) 283-7513 swohioandkentucky@crohnscolitisfoundation.org www.crohnscolitisfoundation.org/chapters/ swohioandkentucky Early Periodic Screening Diagnostic and Treatment Special Services (EPSDT) Dept. of Medicaid Services, Children’s Health Services 275 E. Main St., 6C-C, Frankfort, Ky., 40621 (800) 635-2570 / TTY (800) 775-0296 The EPSDT Screening Program provides routine physicals or well child check-ups for Medicaid eligible children at certain specified ages. EPSDT can also provide speech/language, physical and/or occupation therapy, and specialized durable medical equipment for children who qualify and need those services. chfs.ky.gov/agencies/dms/dpqo/dcmb/Pages/epsdtscreenings.aspx Easter Seals Cardinal Hill 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7217 Creative Beginnings Child Development Center (859) 246-8815 Cardinal Hill Adult Day Health / (859) 367-7178 HorseAbility / (859) 367-7217 Promotes healthy and active lifestyles for people with physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community. / www.cardinalhill.org Frazier Rehab Institute 220 Abraham Flexner Way, Louisville, Ky., 40202 (502) 582-7400 Known for world-class care in comprehensive acute rehab, Frazier Rehab Institute provides extensive therapy across a number of specialties for inpatient and outpatient rehab needs. www.kentuckyonehealth.org/rehabilitationcarefrazier Health Point Family Care, Covington 1401 Madison Ave., Covington, Ky., 41011 (859) 655-6100 HealthPoint Family Care’s vision is a community where everyone has access to quality, affordable health care. The mission is to be the best provider of health services through compassion and innovation. www.healthpointfc.org/location/covington/ Horn and Associates in Rehabilitation 2412 Greatstone Point, Lexington, Ky., 40504 4127 Todds Road, Lexington, Ky. 40509 (859) 224-4081 HRA offers assessments and intervention from a multidisciplinary team including physical therapy, occupational therapy, speech-language pathology, psychology,

developmental intervention, social work and case management. HRA provides independent evaluation and intervention services. www.horntherapy.com Kentucky Children’s Hospital University of Kentucky, 800 Rose St., Lexington, Ky., 40536 / (859) 257-1000 / (800) 333-8874 Established in 1957, UK HealthCare consists of the medical, nursing, health sciences, public health, dental and pharmacy patient care activities of the University of Kentucky, and in several off-site locations. www.ukhealthcare.uky.edu/KCH Kids Center Pediatric Therapies 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 Since 1959, the Kids Center for Pediatric Therapies has been helping children with special needs. Each week the Center sees over 300 children facing challenges such as autism, Down syndrome, spina bifida and cerebral palsy. www.kidscenterky.org The Kidz Club Erlanger: 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 Lexington: 2200 Regency Road, Lexington Ky., 40503 (859) 224-0799 Louisville: 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318 Louisville: 225 N. 25th St., Louisville, Ky., 40212 (502) 365-2426 The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a daycare setting. Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy follow-through, field trips and activities in a fun social setting. Transportation can be provided. Medicaid and private insurance accepted. There are no costs to children or their family. / www. thekidzclub.com Kraska & Associates, Inc. 437 Lewis Hargett Circle, Suite 120, Lexington, Ky., 40503 / (859) 219-0956 Private practice providing occupational and speech therapy services. Family-centered approach. Areas of specialty include sensory integration, sensory processing disorder, fine motor/handwriting, dyspraxia, autism, Asperger’s, articulation, phonological disorders and reading programs. / www.kraskaandassociates.com Marshall Pediatric Therapy 109 Wind Haven Drive, Suite 100, Nicholasville, Ky., 40356 / (859) 224-2273 Offers occupational and speech therapy for Lexington and surrounding counties. The practice accepts EPSDT, most private insurance plans, participates with Kentucky First Steps, and offers payment plans and provides needbased scholarships from birth to age 21.

www.mptcares.com Multiple Sclerosis Society Kentucky-Southeast Indiana Chapter 1201 Story Ave., Suite 200, Louisville, Ky., 40206 (502) 451-0014 / www.nationalmssociety.org www.nationalmssociety.org/Chapters/KYW/About-thisChapter/Staff NorthKey Community Care 502 Farrell Drive, P.O. Box 2680 513 Madison Ave., Covington, Ky., 41011 (859) 578-3200 / (877) 331-3292 NCC is paving the way to a community that is healthy in mind and spirit in the Cincinnati and Northern Kentucky areas with a comprehensive continuum of mental health, developmental disability and substance abuse care. www.northkey.org Passport Health Plan 5100 Commerce Crossings Drive, Louisville, Ky., 40229 (800) 578-0603 EST / TDD (800) 691-5566 Passport Health Plan is a Medicaid managed care plan that has been coordinating health services to qualified members since 1997. Passport is community-based and provider-sponsored, and the only non-profit Medicaid health plan available to members in Kentucky. The mission is to “improve the health and quality of life of our members,” which Passport follows every day through exceptional customer service, a large provider network, and case and disease management programs. www.passporthealthplan.com Ronald McDonald House Charities of the Bluegrass 1300 Sports Center Drive, Lexington, Ky., 40502 (859) 268-0757 This charity exists to create and support programs that directly improve the health and well-being of children and to strengthen families by keeping them together in times of medical need. / www.rmhclexington.com Shriners Hospitals for Children 110 Conn Terrace, Lexington, Ky., 40508 (859) 266-2101 Shriners Hospitals for Children has a mission to provide the highest quality care to children with orthopaedic or neuromusculoskeletal disorders and diseases within a compassionate, family-centered and collaborative care environment. www.shrinershospitalsforchildren.org/lexington SKY Pediatric Dentistry Dr. Mandy Ashley, DMD, MsEd, MS 234 Natchez Trace Ave., Bowling Green, Ky., 42103 (270) 715-5437 Dentistry for children and teens with special needs. www.skypediatricdentistry.com Square One Specialists in Child and Adolescent Development 6440 Dutchmans Parkway, Louisville, Ky., 40205

2020 Exceptional Family KY

Resource List 2020 (502) 896-2606 / info@squareonemd.com Comprehensive medical, psychological, psychiatric, educational, and speech-language evaluations are offered to help understand differences that impact children’s and adolescents’ development, behaviors and emotions. www.squareonemd.com

www.360mentalhealth.com Creative Psychiatry P.L.L.C. Dr. F. Allen Walker P.O. Box 23509, Louisville, Ky., 40223 (502) 384-ADHD (2343) / drwalker@louisvilleadhd.com www.louisvilleadhd.com

Robert A. Underwood, Ph.D. & Byron White, Psy.D: Edelson and Associates, PSC 7511 New La Grange Road, Louisville, Ky., 40222 (502) 423-1151 Neuropsychological, ADHD, Learning Disability, Autism and Psychological Disorder Evaluations. www.edelsonandassociates.info

The Kentucky Association of Regional Programs 3459 Buckhorn Drive, Suite 100, Lexington, Ky., 40503 (859) 272-6700 A state association whose members are 11 of the 14 community mental health centers in Kentucky. KARP can connect citizens to their local community mental health center for information about services and support. www.sites.google.com/site/kentuckycmhcs

University of Louisville Norton Children’s Hospital 231 E. Chestnut St., Louisville, Ky., 40402 (502) 629-6000 Norton Children’s Hospital is a 253-bed teaching facility and serves as a referral center for central and western Kentucky and southern Indiana. The hospital is also the primary pediatric teaching hospital for the University of Louisville health sciences program. Each year there are approximately 8,000 admissions, 50,000 Emergency Department visits and 10,500 outpatient clinic visits. nortonchildrens.com/location/hospitals/norton-childrenshospital/ Verbal Behavior Consulting, Inc. 1035 Straighter Drive, Lexington, Ky., 40505 (859) 899-9200 Established in 2007, VBC provides treatment solutions to families, schools and agencies regarding techniques and procedures guided by the science of Applied Behavior Analysis and Verbal Behavior literature. Providing services through Board Certified Behavior Analysts, VBC offers experience, training and expertise in working with children with language delays and problem behavior. www.vbcaba.com Wellness Music Therapy Center 1029 Monarch Street, Suite 240, Lexington, Ky., 40513 / (859) 287-4111 Wellness Music Therapy Center offers individual and group music therapy sessions that address social, emotional, communication, behavioral and/or motor skills. Adaptive music lessons are also offered to teach those with special needs to learn a musical instrument. www.wellnessMTC.com

MENTAL HEALTH PROVIDERS 360 Mental Health Services 1517 Nicholasville Rd., Suite 302, Lexington, Ky., 40515 (859) 948-9471 / tim@360mentalhealth.com Dr. Tim Houchin is one of only approximately 200 physicians triple-board certified in child/adolescent psychiatry, general psychiatry and forensic psychiatry. He believes in a holistic, 360-degree approach to evaluating and treating both children and adults.

www.lexingtonfamily.com

Mental Health America (MHA) MHA is the nation’s leading community-based nonprofit dedicated to addressing the needs of those living with mental illness and to promoting the overall mental health of all Americans. The work is driven by a commitment to promote mental health as a critical part of overall wellness, including prevention services for all; early identification and intervention for those at risk; integrated care, services and supports for those who need it; with recovery as the goal. Regional Offices: Mental Health America of Kentucky 501 W. Sixth St., Suite 250, Lexington, Ky., 40508 (859) 684-7778 / mhaky@kih.net / www.mhaky.org Mental Health America of Northern Kentucky & Southwest Ohio 912 Scott St., Covington, Ky., 41011 (877) 361-4518 / (859) 431-1077 / www.mhanky.org NAMI (National Alliance for the Mentally Ill) NAMI is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness www.nami.org Regional Offices: Kentucky (606) 677-4066 / (800) 257-5081 namiky@bellsouth.net / http://namiky.org/ Bowling Green Deborah Weed / (270) 796-2600 Wc2600@outlook.com Buffalo Trace Dinah Adamson / (606) 782-3261 dinahadamson@gmail.com Cumberland River Joy Bachman / (606) 584-2716 joy.l.bachman@icloud.com Danville Tim Joyce / (859) 265-1590 ky40330@hotmail.com Green River Jeff Cox / namigreenriver@gmail.com (270) 619-2461 Hazard Tarah Caudill / (606) 439-6600 Namihazardky@yahoo.com Heartland Gary Barr / (502) 471-4064 gary.barr@ge.com

Hopkinsville Eric Embry / (270) 886-2205 eembry@pennyroyalcenter.org Lexington Fareesh Kanga, Chair / (859) 272-7891 fareesh.kanga@gmail.com Phill Gunning, Executive Director / (859) 272-7891 pgunning@namilex.org Julie Caudill, Office / (859) 272-7891 julie@namilex.org Louisville Nancy Brooks / (502) 588-2008 nancy.brooks@namilouisville.org Madison County Myranda McClure / (859) 986-6301 myrandamcclure@sjhlex.org Madisonville Linda Pierce / (270) 836-7087 savedn82@gmail.com Larry Pierce / (270) 836-7087 savedn82@gmail.com Morehead Carol Mauriello / (606) 356-9194 camauriello@moreheadstate.edu Mountain Region Mary Prater / (606) 349-3115 mary.prater@mtcomp.org Murray Brenda Benson / (270) 748-6133 brenda.benson@murraystate.edu Northern Kentucky Christine Reasoner / (859) 392-1730 creasoner@naminky.org Owensboro Tom Ilsley / (270) 993-4236 tewntyone21@gmail.com Paducah Ella Emerson / (270) 556-4374 namipaducah@yahoo.com Somerset Lori Ollo / (317) 443-6237 loliollo@gmail.com Winchester Brenda Harrington / (859) 749-3702 bebe1@bellsouth.net New Vista (Formerly bluegrass.org) 1351 Newtown Pike, Lexington, Ky., 40511 (859) 253-1686 / (859) 272-7483 24-hour help line (800) 928-8000 New Vista celebrates more than 50 years of service to 17 Central Kentucky counties. The mission of the nonprofit organization is to help individuals and families live their best life. New Vista provides services for community members in the areas of intellectual and developmental disability, mental health and substance use. newvista.org

MISCELLANEOUS Alter UR Ego P.O. Box 56, Farmers, Ky., 40319 hello@alterurego.co

Resource List 2020 Adaptable clothing for people in wheelchairs to be fashionable and functional. For kids, teens and plus sizes. www.alterurego.co NuMotion Bowling Green 1017 Shive Lane, Suite E, Bowling Green, Ky., 42103 (270) 904-4934 Lexington 973 Beasley St., Suite 110, Lexington, Ky., 40509 (859) 225-3624 Louisville 11380 Bluegrass Parkway, Jeffersontown, Ky., 40299 (502) 266-9061 With a strong local focus, NuMotion aims to be the most responsive and innovative complex wheelchair company with which to do business. www.numotion.com Superior Van & Mobility 1180 E. New Circle Road, Lexington, Ky., 40505 (859) 253-1832 1506 Lakeshore Court, Louisville, Ky., 40223 (502) 447-8267 Superior Van & Mobility provides mobility solutions for the consumer and commercial transportation industry. Member of the National Mobility Equipment Dealers Association and a participant in NMEDAs Quality Assurance Program, which is recognition reserved for the highest quality mobility dealers. www.superiorvan.com

SCHOOLS

Academy for Individual Excellence 3101 Bluebird Lane, Louisville, Ky., 40299 (502) 267-6187 www.aiexcellence.com Child Development Center of the Bluegrass 290 Alumni Drive, Lexington, Ky., 40503 (859) 218-2322 Five-Star rated preschool for children with and without disabilities. Services provided include assessment, evaluations, and speech, physical and occupational therapy. www.cdcbg.org Christian Academy of Louisville Providence School, 3110 Rock Creek Drive, Louisville, Ky., 40207 / (502) 244-3225 ext 1020 CAL serves children preschool through fifth grade with Down syndrome within an inclusive environment to promote language, social and spiritual goals. Students also receive small group instruction to address individual goals. Curriculum and structure are designed to promote spiritual, cognitive, adaptive, language, motor and selfhelp skills. A Family Service Plan/IFSP is written with each family specific to the needs of their child. This program works in relationship with Down Syndrome of Louisville. School is adding sixth grade in 2019-2020.

www.caschools.us/down-syndrome-providence-school Creative Learning Center Woodland Early Learning Center 575 Woodland Ave., Lexington, Ky., 40508 (859) 255-3444 www.kindercare.com/our-centers/lexington/ky/301376 The dePaul School 1925 Duker Ave., Louisville, Ky., 40205 (502) 459-6131 www.depaulschool.org Growing Together Preschool, Inc. 599 Lima Drive, Lexington, Ky., 40511 (859) 255-4056 Has offered nurturing early child care and education services to children with and without disabilities and other special needs in an inclusive environment since 1982. Additional services include developmental screenings and assessment; physical, occupational and speech therapy; and behavior consultations. Teachers have experience working with children of varying abilities and advantages, and integrating recommended therapeutic practices into the classroom. GTP is accredited by the National Association for the Education of Young Children, rated 5 STARS through KY ALL STARS and offers a Kentucky Proud farm to preschool menu. www.gtplex.org The Kidz Club Erlanger: 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 Lexington: 2200 Regency Road, Lexington Ky., 40503 (859) 224-0799 Louisville: 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318 Louisville: 225 N. 25th St., Louisville, Ky., 40212 (502) 365-2426 The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a day care setting. Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy follow-through, field trips and activities in a fun, social setting. Transportation can be provided. Medicaid and private insurance accepted. There are no costs to the child or their family. www.thekidzclub.com KORE Academy Porter Memorial Church, 4300 Nicholasville Road, Lexington, Ky., 40515 / (859) 971-7129 School for children with learning differences for grades 3-12. www.koreacademy.org The Langsford Center 9402 Towne Square Ave., Cincinnati, Ohio, 45242 (513) 531-7400 2520 Bardstown Road, Louisville, Ky., 40205 (502) 473-7000 2805 N. Hurstbourne Parkway, Louisville, Ky., 40223 (502) 245-1706

www.langsfordcenter.com The Lexington Schoolâ&#x20AC;&#x2122;s The Learning Center 1050 Lane Allen Road, Lexington, Ky., 40504 (859) 278-0501 The Learning Center provides a unique and essential service to children with language-based differences by offering an alternative to traditional classrooms. By creating a teaching environment that eliminates the major obstacles to learning, students are able to close the gap between achievement and their potential. Teacher-student ratios of 1:4 allow for individualized instruction in the core areas of greatest need. In addition, low studentteacher ratios will be maintained in other subjects such as science, social studies, computer skills, specials and social skills. www.thelexingtonschool.org Meredith Dunn School 3023 Melbourne Ave., Louisville, Ky., 40220 (502) 456-5819 www.meredithdunnschool.org Pitt Academy 7515 Westport Road, Louisville, Ky., 40219 (502) 966-6979 / www.pitt.com The Provisions School & Family Counseling Center 128 Dennis Drive, Lexington, Ky., 40503 (859) 396-0644 / www.theprovision.org The Sphinx Academy 1591 Winchester Road, Suite 101 Lexington, Ky., 40505 (859) 309-6372 New and innovative secondary school for grades 7-12. Combines Montessori, homeschooling and special education. / sphinxacademy.org Sproutlings Pediatric Day Care & Preschool Kosair Charities Center 3800 Tom Larimore Lane, Masonic Home, Ky., 40041 (502) 753-8222 Sproutlings is a dual-licensed program and has spaces for medically fragile children and children in traditional day care or preschool. Staffed by Registered Nurses, Certified Nursing Assistants, teachers and teacher aides, and caring for a wide variety of medical conditions. Medicaid and private insurance is accepted. www.SproutlingsDayCare.com Stewart Home School 4200 Lawrenceburg Road, Frankfort, Ky., 40601 (502) 227-4821 Discover a residential school that offers lifelong learning, a postsecondary experience, the opportunity to attain a GED, vocational training and countless social and recreational activities among friends from all around the world. / www.stewarthome.com Summit Academy of Louisville 11508 Main St., Louisville, Ky., 40243 (502) 244-7090 / www.summit-academy.org

2020 Exceptional Family KY

Resource List 2020

SERVICE DOGS 4 Paws for Ability University of Kentucky UK4PAWS@gmail.com www.facebook.com/4PawsatUK 4pawsforability.org/ 4pawsforability.org/photo-galleries/campus-program/ university-of-kentucky/ Paws With Purpose P.O. Box 5458, Louisville, Ky., 40255 (502) 689-0804 / Info@PawsWithPurpose.org pawswithpurpose.org Wildcat Service Dogs University of Kentucky President Elizabeth Crews / wsdpres@gmail.com www.wildcatservicedogs.org

SERVICE PROVIDERS (COMMUNITY AND RESIDENTIAL) For a complete list of Service Providers licensed in Kentucky please see: www.dbhdid.ky.gov/ProviderDirectory/ProviderDirectory. aspx BrightSpring Health Services 805 N. Whittington Pkwy, Louisville, Ky., 40222 (800) 866-0860 / (502) 394-2100 Provider of comprehensive home and communitybased health services to complex populations in need of specialized care. www.brightspringhealth.com Cedar Lake 9505 Williamsburg Plaza, Suite 200, Louisville, Ky., 40222 / (502) 495-4946 Cedar Lake is committed to providing the highest quality of services to the people it supports. To demonstrate its commitment to the development of a compassionate and capable workforce, Cedar Lake has launched a career development program with ongoing educational opportunities to further sharpen people’s skills. In doing so, Cedar Lake employees develop a heightened sensitivity – or compassion – for the people they support and a clear understanding of how they can best support these individuals to live a life filled with abundant possibilities. www.cedarlake.org Commonwealth Case Management A Columbus Company 2333 Alexandria Drive, Lexington, Ky., 40504 (270) 572-1350 / www.columbusorg.com Provides case management for SCL, Michelle P. and

www.lexingtonfamily.com

Acquired Brain Injury Waivers statewide. Commonwealth is dedicated to empowering Individuals and families to realize their meaningful life goals.

best out of our participants and try to help them to continue to improve their skills.” www.strideky.org

New Perceptions 1 Sperti Drive, Edgewood, Ky., 41017 (859) 344-9322 Non-profit organization has been dedicated to enriching lives of those with intellectual/developmental disabilities since 1952. / newperceptions.org

Zoom Group 1904 Embassy Square Blvd., Louisville, Ky.,40299 (502) 581-0658 Zoom Group has been providing supports for individuals with disabilities for over 30 years. Zoom Group’s mission is to “EMPOWER, EDUCATE AND EMPLOY” people of all abilities. www.zoomgroup.org

New Vista Behavioral Healthcare 2441 S. Highway 27, Somerset, Ky., 42503 (606) 677-4214 This non-profit organization is dedicated to assisting individuals achieve their full potential through personcentered, community and integrated services. Supports for Community Living provider offers day training programming, supported employment and residential supports within staffed residences as well as family home providers. / www.newvista.org Pathways 3701 Landsdowne Dr., Ashland, Ky., 41102 (800) 562-8909 Pathways assists in obtaining individual and family-determined supports for persons who have developmental disabilities or intellectual disabilities. Goals are to serve and enhance opportunities for making choices that promote inclusion as a valued citizen in all meaningful phases of community life. www.pathways-ky.org R.E.A.C.H of Louisville 501 Park Ave., Louisville, Ky., 40208 (502) 585-1911 REACH provides an exemplary SCL program with support for individuals and families through highly qualified support staff, which includes psychologists, social workers, crisis support managers, recreational specialists and special educators. www.reachoflouisville.com Redwood 71 Orphanage Road, Ft. Mitchell, Ky., 41017 (859) 331-0880 A non-profit organization funded by United Way, Redwood guides children and adults with multiple and severe disabilities to achieve independence and reach their highest potential throughout their lives, by providing enriching educational, therapeutic and vocational services. / www.redwoodnky.org STRIDE 150 Maryland Ave., Winchester, Ky., 40391 (859) 744-0370 STRIDE serves individuals who have a learning or developmental disability and are at least 16 years of age. Daily programming includes cooking classes, dances, Special Olympic activities, daily living skills classes and much more in an effort to improve the quality of life for the participants. All participants are expected to live up to their responsibilities at home, work and in the STRIDE program. Motto: “We have an obligation to expect the

SPEECH, LANGUAGE AND HEARING Heuser Hearing Institute 117 E. Kentucky St., Louisville, Ky., 40203 (502) 584-3573 Heuser Hearing Institute (HHI) is a multi-specialty nonprofit campus promoting the needs of children and adults with disorders of hearing and balance. The organization has served Louisville and many of the surrounding Kentucky and Indiana communities since 1948. www.thehearinginstitute.org Kentucky School for the Deaf 303 South Second St., Danville, Ky., 40422 (859) 239-7017 Ensures that children and youth who are deaf or hard of hearing have educational opportunities to develop their potential to become educated, life-long learners and productive citizens. www.ksd.k12.ky.us Kentucky Commission on the Deaf and Hard of Hearing 632 Versailles Road, Frankfort, Ky., 40601 (502) 573-2604 (V/TTY) / (800) 372-2907 (V/TTY, in Kentucky only) / kcdhh@mail.state.ky.us www.kcdhh.ky.gov/ Kentucky Hands & Voices P.O. Box 43914, Louisville, Ky., 40253 (888) 398-5030 Hands & Voices is a non-profit, parent-driven national organization dedicated to supporting families of children who are deaf or hard of hearing. The organization is non-biased about communication methodologies and believes that families can make the best choices for their child if they have access to good information and support. The group consists of parents of ASL signers, cued speech users, kids with cochlear implants and total communicators. www.kyhandsandvoices.org Kentucky Speech-Language-Hearing Association 838 E. High St., Suite 263, Lexington, Ky., 40502 (800) 837-2446 / khsaoffice@khsa.info The mission is to enhance the provision of quality

Resource List 2020 services to persons with communication disorders and their families. KSHA provides broad-based education opportunities, public awareness and policy development initiatives, and supports professionals in speech-language pathology and audiology by promoting the highest standards for service providers. / www.ksha.info Lexington Hearing and Speech Center 350 Henry Clay Blvd., Lexington, Ky., 40502 (859) 268-4545 Provides diagnostic, therapeutic and educational services for individuals with hearing, speech and language impairments. www.lhscky.org St. Rita School for the Deaf 1720 Glendale Milford Road, Cincinnati, Ohio, 45215 (513) 771-7600 / www.srsdeaf.org

SPINA BIFIDA

Cardinal Hill Center for Outpatient Services 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7125 / www.cardinalhill.org Kids Center Pediatric Therapies 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 Since 1959, the Kids Center for Pediatric Therapies has been helping children with special needs. Each week the Center sees over 300 children facing challenges such as autism, Down syndrome, spina bifida and cerebral palsy. / www.kidscenterky.org Spina Bifida Association of Kentucky Kosair Charities 982 Eastern Parkway, Box 18 Louisville, Ky., 40217 (502) 637-7363 / sbak@sbak.org The Spina Bifida Association of Kentucky is a resource center for children, their families and adults affected by Spina Bifida. SBAK educates parents how to be the best advocate for their child, and helps children and adults overcome physical, cognitive and social challenges to become successful and independent. The mission is to promote the prevention of Spina Bifida and enhance the lives of all those affected. www.sbak.org Shriners Hospital for Children 110 Conn Terrace, Lexington, Ky., 40508 (859) 266-2101 www.shrinershospitalsforchildren.org/lexington

VISION Radio Eye 1733 Russell Cave Road, Lexington, Ky., 40505 (859) 422-6390 Radio Eye broadcasts the reading of current news,

public service and general interest programming to listeners and others who are blind and print-disabled. Radio Eye, which serves Lexington, Louisville and parts of Eastern Kentucky, strives to produce high-quality programming designed to help the listening audience lead enriched, productive and independent lives. www.radioeye.org

(513) 522-3860 Clovernook has proudly served women, men and children for over 100 years. This rich history provides the backdrop for today’s progressive and caring campus-like environment where the Center remains dedicated to adults and youth who are blind or visually impaired. clovernook.org/

Kentucky Office for the Blind 275 East Main Street, Mail Drop 2EK Frankfort, Ky., 40621 (800) 372-7172 The Kentucky Office for the Blind consolidated services in October 2018 with the Kentucky Office of Vocational Rehabilitation. The mission of the Kentucky Office of Vocational Rehabilitation/Blind Services Division is to provide opportunities for employment and independence to individuals with visual disabilities. The Division serves Kentuckians who are visually impaired or blind and assists individuals in obtaining and maintaining employment, economic self-sufficiency and independence with complete integration into society. The Blind Services Section provides statewide services to all 120 counties and has 10 field offices located throughout Kentucky in Ashland, Bowling Green, Covington, Elizabethtown, Lexington, Louisville, Owensboro, Paducah, Prestonsburg and Somerset. https://kcc.ky.gov/Vocational-Rehabilitation/Office-forthe-Blind/Pages/default.aspx

Family Eyecare Associates & Children’s Vision and Learning Center, Dr. Rick Graebe 105 Crossfield Drive, Versailles, Ky., 40383 (859) 879-3665 / (855) 686-2020 In addition to general optometric services, Family Eyecare offers unique programs such as Vision Therapy for children experiencing difficulty with reading and/ or underachievement at school. Children in these programs average more than a 3-year improvement in performance in 10 to 15 weeks. www.myfamilyvision.com

Kentucky School for the Blind Outreach Services Available Statewide 1867 Frankfort Ave., Louisville, KY 40206 (502) 897-1583 x 7714 / www.ksb.kyschools.us Outreach works in partnership with the Educational Cooperatives to facilitate expansion of regional services. KSB Outreach Consultants are assigned to each of the Educational Cooperatives as points of contact for services and programs offered by KSB. The Director of Special Education within local school districts may make referrals for services to the assigned KSB Outreach Consultant for their cooperative or by contacting KSB Director of Outreach. The Outreach department supports proficient student performance by assisting local school districts, including KSB and the Kentucky School for the Deaf, in reducing barriers to learning associated with a vision loss. It also provides students access to the general curriculum, the Kentucky Core Academic Standards, and Expanded Core Curriculum for Students with Visual Impairments. Cincinnati Association for the Blind 2045 Gilbert Ave., Cincinnati, Ohio, 45202 (513) 221-8558 Cincinnati Association for the Blind and Visually Impaired (CABVI) is a private, non-profit organization offering comprehensive vision rehabilitation services for people of all ages who are blind or visually impaired. cincyblind.org/about/ Clovernook Center for the Blind/Visually Impaired in Cincinnati 7000 Hamilton Avenue, Cincinnati, Ohio 45231

Kentucky Office for the Blind 8412 Westport Road, Louisville, Ky., 40242 (502) 429-4460 / www.blind.ky.govhttps://kcc.ky.gov/ Office-for-the-Blind/Pages/default.aspx Kentucky School for the Blind Division of the Kentucky Department of Education Office of Special Instructional Services 1867 Frankfort Ave., Louisville, Ky., 40206 (502) 897-1583 A K-12 public school serving Kentucky students who are blind and visually impaired. The school offers a Short Course program (1-12 weeks) of specialized instruction available to students throughout the school year. Summer school programs are offered in June and July. www.ksb.k12.ky.us Silver Circles, Inc. 2396 New Shepherdsville Road, Bardstown, Ky., 40004 (859) 489-7773 / www.silvercirclesinc.com Catherine C. Barnes, Director & Irlen Diagnostician The Irlen Method uses colored overlays and precision tinted filters, worn as glasses, to reduce or eliminate perceptual difficulties and light sensitivity.

Visually Impaired Preschool Service (VIPS) Greater Louisville 1906 Goldsmith Lane, Louisville, Ky., 40218 (502) 636-3207 / (888) 636-8477 Central Kentucky 350 Henry Clay Blvd., Lexington, Ky., 40502 (859) 276-0335 / (888-254-8477) The mission of Visually Impaired Preschool Services is to offer appropriate services to infants, toddlers and preschoolers who are visually impaired or blind and to their families; and to maximize each child’s development potential through direct services, advocacy and community education. VIPS staff includes certified teachers who specialize in early childhood education, visual impairment, O&M, and special education. Several staff members are also parents of visually impaired children. www.vips.org n

2020 Exceptional Family KY

KENTUCKY PARTNERS IN POLICYMAKING

Current members of KPIP

APPLY NOW! The Partners in Policymaking program is about: • • • •

POLICY ADVOCACY LEGISLATIVE PARTNERSHIPS DISABILITY TRENDS DISABILITY BEST PRACTICES

For people with developmental disabilities and their family members

LEARN MORE AND CONTACT US: (502) 564-7481 / ccdd@ky.gov www.ccdd.com / facebook.com/kyccdd

Do you want to influence policy at the community, state and national level? Then apply now for the 2020-21 KPIP sessions.